Tackling Health Inequalities with and for the Deaf BSL-Using Communities in Wales
Lead Research Organisation:
Bangor University
Department Name: Sch of Language, Literature & Linguistic
Abstract
The Deaf British Sign Language (BSL) using community in Wales have more challenges than hearing populations in accessing healthcare services (especially in emergency situations), health information, mental health care services and support, and family-related services and training. The Deaf in Wales also suffer from inconsistent interpreting services and poor communication in many health-care settings and, as a result, are also at greater risk of underdiagnoses and under-treatment of chronic diseases and tend to have poorer health than the general population (Sign Health, 2019; Shank & Foltz, 2019; Foltz & Shank, 2020; Foltz et al., 2022). Deaf people also have an incidence of mental health problems that is twice as high as the general population and face barriers accessing support services (Terry et al., 2021). Research has shown that access to nature and outdoor activities is a health asset (Houlden et al. 2018; Rebar et al. 2015); however, many of Wales's cultural and natural assets are not accessible because materials are rarely available in BSL.
The goal of this project is to design, implement and evaluate Deaf-community-lead solutions for these known and documented health inequities and inequalities. We are a transdisciplinary team of academic and non-academic, hearing, and Deaf partners. Our project will use innovative social networking techniques, community outreach, focus groups, interviews, and custom video-based questionnaires and app technologies to identify sustainable, community-led, culturally, and linguistically driven solutions to improve the health and wellbeing of this community. We will then develop, implement, and evaluate these solutions in five areas that impact Deaf Welsh citizens' health and wellbeing. These areas are: (1) public health, (2) mental health, (3) interpreting services, (4) access to natural resources, parks, and use of natural environment resources and (5) language and communication.
In the areas of (1) public health, (2) mental health, and (3) interpreting services we will work with the Deaf community as well as the NHS, Health Boards, interpreters, and other service providers to develop culturally and linguistically driven proposals to improve services at every stage of the healthcare delivery process. Solutions will focus on access to interpreters and BSL language services and improving d/Deaf awareness with respect to language and culture and d/Deaf rights with respect to the law. In the area of (4) natural resources, we will develop BSL video guide apps for better accessibility to Welsh natural resources, parks, and heritage sites at three locations across Wales. In the area of (5) language and communication, the Welsh dialect of BSL, it's lexicon and regional variations, remains undocumented and undescribed. This project will develop an on-line dictionary and corpus resources, with a particular focus on medical terminology, to aid interpreters and service providers in Wales. We will assess the potential positive impact of the resources that we are developing as part of this project and use the results obtained from this project to inform and influence current local and national health care policy, services, practices, and delivery to aid compliance with the 2010 Equality and 2015 Well-being of Future generations Acts.
The goal of this project is to design, implement and evaluate Deaf-community-lead solutions for these known and documented health inequities and inequalities. We are a transdisciplinary team of academic and non-academic, hearing, and Deaf partners. Our project will use innovative social networking techniques, community outreach, focus groups, interviews, and custom video-based questionnaires and app technologies to identify sustainable, community-led, culturally, and linguistically driven solutions to improve the health and wellbeing of this community. We will then develop, implement, and evaluate these solutions in five areas that impact Deaf Welsh citizens' health and wellbeing. These areas are: (1) public health, (2) mental health, (3) interpreting services, (4) access to natural resources, parks, and use of natural environment resources and (5) language and communication.
In the areas of (1) public health, (2) mental health, and (3) interpreting services we will work with the Deaf community as well as the NHS, Health Boards, interpreters, and other service providers to develop culturally and linguistically driven proposals to improve services at every stage of the healthcare delivery process. Solutions will focus on access to interpreters and BSL language services and improving d/Deaf awareness with respect to language and culture and d/Deaf rights with respect to the law. In the area of (4) natural resources, we will develop BSL video guide apps for better accessibility to Welsh natural resources, parks, and heritage sites at three locations across Wales. In the area of (5) language and communication, the Welsh dialect of BSL, it's lexicon and regional variations, remains undocumented and undescribed. This project will develop an on-line dictionary and corpus resources, with a particular focus on medical terminology, to aid interpreters and service providers in Wales. We will assess the potential positive impact of the resources that we are developing as part of this project and use the results obtained from this project to inform and influence current local and national health care policy, services, practices, and delivery to aid compliance with the 2010 Equality and 2015 Well-being of Future generations Acts.
| Title | Logos |
| Description | We have worked with a deaf creative team to culturally appropriate logos for our 3 distinct foci : (i.e. research, advocacy, and the lived life experience panel) and we are in the process of working with members the deaf community to develop identifiers for each of our 6 research hubs. |
| Type Of Art | Artefact (including digital) |
| Year Produced | 2025 |
| Impact | No notable impact but anecdotal appreciation from the Deaf community. |
| Description | Senedd debate on the needs of Deaf communities in Wales |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://pure.bangor.ac.uk/admin/editor/dk/atira/pure/api/shared/model/activity/editor/otheractivitye... |
| Title | The Lived Life experience Advisory Panel (LEAP) |
| Description | The Lived Life experience Advisory Panel (LEAP) is a panel comprised of Deaf community members who advise our project on issues of ethics and best practices when working with the Deaf community and they also provide invalubale comminity driven / informed feedback as to our engagement, communication and feedback with the Deaf community. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2025 |
| Provided To Others? | No |
| Impact | Given the long and poor history of academics, researchers, and investigators will work with the deaf community, and then either never returned to inform the community as to the results or provide avenues for the deaf community to inform and guide ongoing research, the development of this panel and inviting members of the (skeptical) deaf community to participate in such a role has been very well received. |
| Description | Research Hubs Outreach, Community Engagement & Communication |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Our project is still in the community outreach, development and engagement phase. We have 6 research hubs (or work packages): mental health, public health, interpreting services, access to natural resources, law and equality and language & communication. We have done a great deal of work engaging with the Welsh Deaf community, earing trust and confidence, and establishing the networks and identifying community leaders needed for the next steps which will involve the research and data collection phases. This is a community led project and as such takes a great deal of time and energy to get things set up. We can't specify exact numbers or specific activities; they are too numerous and varied to really describe where. Everything from in person meetings with Deaf clubs, to online meetings with Deaf orgs, to informal gatherings at Deaf events, to working with outdoor groups, to lobbying the Welsh Senedd on the pending mental health bill, we have been active in many different areas. |
| Year(s) Of Engagement Activity | 2024,2025 |
