Assessing the 'MD_evReader' iPad app as a technological aid to enhance reading in macular disease.

Lead Research Organisation: Royal Holloway University of London
Department Name: Psychology

Abstract

Context
Age-related macular degeneration (AMD) is the leading cause of registered blindness in the UK and is the single most common cause of vision loss in people over the age of 50. One adaptive strategy, used by individuals with AMD, is to view stimuli eccentrically using the peripheral regions of their retina that may be less impaired in AMD. This so-called 'eccentric viewing' (EV) technique forms part of a training program being implemented by the Macular Society and offers one way of adapting to the consequences of MD. One limitation of EV is that it is difficult to overcome the natural, strong, tendency to make eye-movements (called saccades) that are normally made to shift gaze and attention onto objects and words for detailed processing. The eye movement system has evolved specifically to shift gaze onto objects and trying to hold an eccentric gaze location is effortful and unnatural. Stable eccentric fixation is, however, an essential requirement of the EV technique and requires some degree of practice in order to maintain fixation whilst reading. Reading dynamic (horizontally scrolling) text does not require eye movements and is expected to improve reading performance and user experience of reading when using the EV technique.

The project has two main objectives: the first is to evaluate reading performance and user experience of reading dynamic (scrolling) text; the second is to incorporate the app into the Macular Society's 'Eccentric viewing' training programme and in the 'Daily Living Champions' scheme.

The first part of the project will be a formal investigation of reading in volunteers with macular disease when reading dynamic (scrolling) text presented with the MD_evReader. The main measures of interest are: reading rate (words per minute) and comprehension (how well the text was understood) and these will be compared with reading normal static lines of text. We will also use a modern video-based eye tracker to obtain detailed measures of eccentric viewing performance (percentage of time spent successfully holding an eccentric viewing position). In addition the user experience of reading with and without the app will also be evaluated using a questionnaire.

The second objective is to incorporate the app as a training aid in the Macular Society's eccentric viewing (EV) training programme. The app will be used a method for demonstrating the eccentric viewing technique and will also allow people to practice the technique. The effectiveness of the app as a training aid will be evaluated using questionnaire measures of user experience and self-reports of the maintenance of the EV technique 6 months after initial training. These measures will also be obtained from individuals (controls) who have taken part in EV training sessions without having used the app as a training aid. The control group will include individuals who have had EV training before the start date of this project. The app will also be demonstrated as part of the Daily Living Champion (DLC) scheme as an example of a technological aid that can be used to improve reading.

Planned Impact

The main beneficiaries are individuals with macular disease, volunteers and health professionals working with people with macular disease, academics interested in reading and commercial private sector groups interested in developing technological aids for the visually impaired.

People with macular disease
This project involves assessing the use of a novel iPad app as a technological aid to help people with MD read eBooks (and other ePub documents). It is a proof of concept study that will demonstrate if this approach can a) improve reading; b) improve user experience of reading and c) demonstrate the use of bespoke technological aids developed by applying a theoretical understanding of the cognitive process of reading. The app is to be made freely available via iTunes and so this will have no cost implications for the users.

Volunteers and health professionals working with MD
Those working with MD will benefit from having a (free) visual aid that can allow them to demonstrate the eccentric viewing and steady eye techniques. It will also show how the development of apps can provide new and innovative ways of developing therapeutic aids.

Academics and cognitive scientists
The findings from this study will be of interest to those interested in macular disease and low-vision with specific interests in rehabilitation. Very little work has been performed on reading and eye-movement control with dynamic scrolling text so the findings will be of interest to cognitive scientists working on reading.

Commercial technology developers
The rapid rise of the popularity of the iPad and other tablets along with apps has opened up a new avenue for the development of bespoke technological aids. By demonstrating the practicality of this approach it is envisaged that commercial developers will be motivated to create apps that can target other impaired user groups. In the short term there is scope for developing the MD_evReader for other platforms (such as Android) and for including additional features (e.g. audio menus). The longer-term may see the approach of combining a theoretical understanding of a cognitive process or disability to develop low-cost bespoke technological aids for wider user groups.

Publications

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Description This project aimed to evaluate the potential benefits of the MD_evReader iPad app as a technological reading aid for people with macular degeneration. The app is designed to be used in conjunction with the 'eccentric viewing technique' whereby the person with a loss of central vision (as in macular degeneration) learns to make use of their less impaired eccentric (parafoveal) visual abilities. The MD_evReader is designed to scroll lines of text from an eBook which may help people read under eccentric viewing conditions, by reducing the demands to make eye movements. This project was an evaluation of reading performance and user preferences in volunteers recruited from the Macular Society. We found that although reading performance (measured by reading speed) was not significantly improved with the app reading error rates did improve. Furthermore the volunteers rated reading with the app very highly and indicated it would encourage them to read more than when using their existing visual aids. We also found that reading with the app improved after short periods of practice, which is suggestive of practice being required in reading with this method in order to demonstrate significant improvements in objective measures of reading performance.
Exploitation Route The findings will be of use to the Macular Society who are promoting the MD_evReader as a technological reading aid. We will continue to work with the Macular Society to develop technological aids for eccentric viewing training as well as for reading.
Sectors Healthcare

URL https://pure.royalholloway.ac.uk/portal/en/persons/robin-walker_3c66dd6c-cfb3-46dc-8289-33485bf88ad6.html
 
Description The main societal impact of the MD_evReader app is in improving the quality of life of people with macular degeneration by enhancing their ability to read and also by increased their awareness and understanding of the eccentric viewing strategy. The main beneficiaries are people with macular degeneration, estimated at 196 million cases worldwide, with some 513,000 cases (rising to 699, 000 by 2020) and 34,000 new cases each year in the UK. Reading difficulty is one of the most commonly reported consequences of MD that impacts on the individuals' quality of life, with negative consequences for a range of tasks of everyday living. It is estimated that round 300 million iPads have been sold worldwide (and over 33% of UK adults aged 55 and over now own a tablet) so the potential reach of the MD_evReader is great. Clinicians and therapists (Optometrists, Low-vision therapists, Orthoptists) working with MD patients can also use the app as a tool for demonstrating the eccentric viewing technique (testimonial from Focus Birmingham to follow). The Macular Society promote the app on their website (https://www.macularsociety.org/reading-app) and have trained a total of 315 volunteers on the uses of the app and these individuals now train individuals with MD, on a one-to-one basis, on how to make the most of their remaining vision. In 2018 we released a new web application EV News which has the same features as the MDevReader but presents the current news in an accessible format for people with macular degeneration.
Sector Healthcare
Impact Types Cultural,Societal

 
Description Macular Socity PhD Studentship
Amount £75,000 (GBP)
Organisation Macular Society 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2017 
End 09/2020
 
Description Macular Society UK 
Organisation Macular Society
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Developed MD_evReader app and new eccentric viewing training feature.
Collaborator Contribution Macular Society - provided in-kind support including contacts with members with macular degeneration for inclusion into evaluation study.
Impact Walker, R. (2012). An iPad app as a low-vision aid for people with macular disease. British Journal of Ophthalmology, bjophthalmol-2012.
Start Year 2011
 
Title EV News web ap for people with macular degeneration 
Description Ev News has been developed by Royal Holloway University to help people with macular degeneration read news articles more easily. It was designed to support the use of reading using the eccentric viewing technique, whereby the reader holds their gaze slightly away from text scrolling right-to-left like a newsfeed. 
Type Of Technology Webtool/Application 
Year Produced 2018 
Impact Usage data indicates EV News is being used by people with macular degeneration 
URL http://www.mdevreader.rhul.ac.uk/ev-news/#.ev-feeds
 
Description MDevReader recommended by Dame Judy Dench 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Dame Judy Dench has macular degenerationb but has endorsed the MDevReader as a reading aid in a video she recorded herself.
Year(s) Of Engagement Activity 2018
URL https://www.facebook.com/royalholloway/videos/dame-judi-dench/10155789386752075/
 
Description Media Universities UK 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact iPad app selected by Universities UK to promote wider understanding of University research


'Ideas for Life' is a compilation of 20 world-class research projects. The compilation was a main focus of activity during Universities Week 2014, a campaign that has been running since 2010.
Exhibition stand

From 9-15 June 2014, Universities Week opened up a national conversation about the relevance of university research and its everyday impact on our lives. Universities across the UK invited everyone to be inspired, get involved and discover the work that they are doing to improve the way we live our lives.

More than 250 public engagement activities took place at universities, museums and galleries across the UK. In addition, more than 28,000 people alone took part in a week-long series of engaging activities at the Natural History Museum.

Universities Week 2014 was run by Universities UK with Research Councils UK, the Higher Education Funding Council for England and the National Coordinating Centre for Public Engagement.
Year(s) Of Engagement Activity 2014
URL http://www.universitiesweek.org.uk/Ideas/Pages/AppsForEyes.aspx?utm_content=buffer0b063&utm_medium=s...
 
Description Speaker at International Society for Low Vision Research (ISLLR) - The Hague 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Talk about the MDevReader app to academics and clinicians working with people who have macular degeneraiton. The aim is to promote the wider use of scrolling text as a reading aid for people with visual impairments.
Year(s) Of Engagement Activity 2017
URL http://www.vision2017.org/
 
Description Talk British and Irish Orthoptrist Association (BIOS) Annual National Meeting (Reading November 2014) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The Orthoptists work directly with visually impaired people and had useful feedback on the app and also made some interesting suggestions for other potential user groups (including children with reading problems).

Some members may use the app in their practice. Report to appear in the BIOS monthly newsletetr "Parallel Vision".
Year(s) Of Engagement Activity 2014