Administrative Data Service
Lead Research Organisation:
University of Essex
Department Name: UK Data Archive
Abstract
Access to administrative data for research purposes is a positive public good. The ability to use these records - collected in the course of normal business by governmental and other bodies - and to link them with each other and with other information about people and organisations, can greatly enhance our ability to do the research modern society needs. With these linked data we can evaluate public policies on everything from tax structures, educational reforms and health service innovations to changes in benefits regimes and the effect on crime and beyond. It can help us to model economic progress, assess the impact of changing legal and political circumstances and really understand societal change over time and place. These data are a rich and greatly under-utilised research resource.
They are also governed by a myriad different departmental and national policies and legislative frameworks and gateways which make them extremely difficult to access, link and use in a consistently safe, secure and regulated fashion. Because these data are information about individual people and businesses collected not for research purposes per se, there are rightly many concerns about how they are used, in what settings, by whom and why. The purpose of the Administrative Data Research Network (ADRN) is to facilitate access to this rich research resource while preserving maximal data security and individual confidentiality.
The Administrative Data Service (ADS) is a crucial part of ADRN; serving as the public face of the network and the bond which bridges the four national Administrative Data Research Centres (ADRCs).
It provides:
- the first port of call for researchers interested in using administrative data
- substantial enhanced documentation and information about administrative data resources - what they contain, how they are structured, how and why they were collected, and how these have changed through time
- extensive guidance on many issues around the use of administrative data for research, including briefs on the most up-to-date legal developments
- the one-stop-shop where users can request access to administrative data and for data linkages for proposed research.
The service collects all the required information about the researchers and their research, and negotiates with data owners for research access and with trusted third parties for data linkage. It allows researchers to track the status of their requests, and works with a network of experts to ensure that only feasible projects are put forward as data access and/or linkage requests to data owners.
The service also is responsible for building consensus around standard procedures and practices among national statistical agencies, other data owners and ADRCs in regard to criteria for evaluating research and accrediting researchers, and requirements for secure facilities in which to access data. This consensus-building will have a great and long-ranging impact on all research which uses data. It sits squarely within the Open Government agenda but is also informed by and mindful of the increasing requirements for data protection. Getting the key stakeholders literally to sit around a table and discuss these issues and deliver proposed solutions may well be the service activity with the longest lasting impact.
Finally, the service engages the public to ensure that the discourse around data protection and open government is informed by positive impact stories reflecting the public good that comes from enabling and easing research access to administrative data.
They are also governed by a myriad different departmental and national policies and legislative frameworks and gateways which make them extremely difficult to access, link and use in a consistently safe, secure and regulated fashion. Because these data are information about individual people and businesses collected not for research purposes per se, there are rightly many concerns about how they are used, in what settings, by whom and why. The purpose of the Administrative Data Research Network (ADRN) is to facilitate access to this rich research resource while preserving maximal data security and individual confidentiality.
The Administrative Data Service (ADS) is a crucial part of ADRN; serving as the public face of the network and the bond which bridges the four national Administrative Data Research Centres (ADRCs).
It provides:
- the first port of call for researchers interested in using administrative data
- substantial enhanced documentation and information about administrative data resources - what they contain, how they are structured, how and why they were collected, and how these have changed through time
- extensive guidance on many issues around the use of administrative data for research, including briefs on the most up-to-date legal developments
- the one-stop-shop where users can request access to administrative data and for data linkages for proposed research.
The service collects all the required information about the researchers and their research, and negotiates with data owners for research access and with trusted third parties for data linkage. It allows researchers to track the status of their requests, and works with a network of experts to ensure that only feasible projects are put forward as data access and/or linkage requests to data owners.
The service also is responsible for building consensus around standard procedures and practices among national statistical agencies, other data owners and ADRCs in regard to criteria for evaluating research and accrediting researchers, and requirements for secure facilities in which to access data. This consensus-building will have a great and long-ranging impact on all research which uses data. It sits squarely within the Open Government agenda but is also informed by and mindful of the increasing requirements for data protection. Getting the key stakeholders literally to sit around a table and discuss these issues and deliver proposed solutions may well be the service activity with the longest lasting impact.
Finally, the service engages the public to ensure that the discourse around data protection and open government is informed by positive impact stories reflecting the public good that comes from enabling and easing research access to administrative data.
Planned Impact
The primary aim of the ADRN is to facilitate secure access to administrative data and infrastructure for data linking, in order to increase the depth and scope of the evidence-based research that can be carried out in the UK. By promoting the ESRC's focused priority areas in terms of data use, re-use and knowledge exchange we will be actively contributing to the ESRC's impact agenda to enable and further topical, innovative, societally-relevant, quality social and economic research.
ADS will be a major player in the UK and international data environments, with an unprecedented role in influencing the practice of statistical organisations and other major data creators. The service will provide advice to data owners and develop consensus on strategies to release data securely which will assist in providing a framework for data release, thus increasing data owners confidence that they can release data legally and safely. The ADS team will work tirelessly to promote administrative data use and linking and thus have an enormous opportunity to impact on future data developments.
The ADS coordination of the user service will provide straightforward and streamlined procedures for accessing and linking administrative data. This in turn will increase the range of research that can be undertaken, and increase research productivity by removing the need for often arduous, ad hoc, time-consuming negotiations for data access. The ADS's role in developing and coordinating training for researchers in data access, data use, and data security will not only contribute to improving analytical and methodological skills, but also in researcher understanding of, and commitment to, data security and legislation. The infrastructure coordinated by the ADS alongside the training program, portal and value-added materials will widen access for 'fit and proper persons' who would otherwise not have the skills or resources to process administrative data. We will also work with teachers to showcase good practice in using key datasets in the development of quantitative data analysis skills.
While the focus is on administrative data and in particular the benefits to be gained from linking administrative data, innovations developed on this project are likely to impact the data access more widely by building consensus around standards for, and attitudes to, access to sensitive. It is not only in the UK where the impact will be felt, as a highly innovative undertaking the ADRN is attracting considerable interest internationally.
ADS will act as the 'public face' of the ADRN and will have considerable public impact. ADS will undertake a major programme of public engagement through involvement in forums; interaction with key organisations and influencers in this area; as well as a dedicated 'public engagement/feedback' space on the ADS website. These initiatives will enable ADS to provide the public with reliable transparent information on processes and procedures used to access data, to protect privacy and to prevent misuse - in unprecedented detail. In addition, ADS plans to address some of the common public misconceptions surrounding data use in order to raise confidence in secondary use of data for research. This will impact the public understanding of how data is used for research and the high levels of protection associated with access.
The cross disciplinary nature of the senior leadership team gives ADS access to a wide range of networks and research communities, maximising the disciplines that will benefit from ADS outcomes. In addition the establishment of a network of experts associated with ADS will further increase the potential for wide ranging academic impact.
ADS will be a major player in the UK and international data environments, with an unprecedented role in influencing the practice of statistical organisations and other major data creators. The service will provide advice to data owners and develop consensus on strategies to release data securely which will assist in providing a framework for data release, thus increasing data owners confidence that they can release data legally and safely. The ADS team will work tirelessly to promote administrative data use and linking and thus have an enormous opportunity to impact on future data developments.
The ADS coordination of the user service will provide straightforward and streamlined procedures for accessing and linking administrative data. This in turn will increase the range of research that can be undertaken, and increase research productivity by removing the need for often arduous, ad hoc, time-consuming negotiations for data access. The ADS's role in developing and coordinating training for researchers in data access, data use, and data security will not only contribute to improving analytical and methodological skills, but also in researcher understanding of, and commitment to, data security and legislation. The infrastructure coordinated by the ADS alongside the training program, portal and value-added materials will widen access for 'fit and proper persons' who would otherwise not have the skills or resources to process administrative data. We will also work with teachers to showcase good practice in using key datasets in the development of quantitative data analysis skills.
While the focus is on administrative data and in particular the benefits to be gained from linking administrative data, innovations developed on this project are likely to impact the data access more widely by building consensus around standards for, and attitudes to, access to sensitive. It is not only in the UK where the impact will be felt, as a highly innovative undertaking the ADRN is attracting considerable interest internationally.
ADS will act as the 'public face' of the ADRN and will have considerable public impact. ADS will undertake a major programme of public engagement through involvement in forums; interaction with key organisations and influencers in this area; as well as a dedicated 'public engagement/feedback' space on the ADS website. These initiatives will enable ADS to provide the public with reliable transparent information on processes and procedures used to access data, to protect privacy and to prevent misuse - in unprecedented detail. In addition, ADS plans to address some of the common public misconceptions surrounding data use in order to raise confidence in secondary use of data for research. This will impact the public understanding of how data is used for research and the high levels of protection associated with access.
The cross disciplinary nature of the senior leadership team gives ADS access to a wide range of networks and research communities, maximising the disciplines that will benefit from ADS outcomes. In addition the establishment of a network of experts associated with ADS will further increase the potential for wide ranging academic impact.
Organisations
- University of Essex (Lead Research Organisation)
- University of Manchester (Collaboration)
- Administrative Data Research Centre for Scotland (Collaboration)
- Administrative Data Research Centre for Northern Ireland (Collaboration)
- Ministry of Justice and Public Security (Collaboration)
- Census & Administrative Data Longitudinal Studies Hub (CALLS-Hub) (Collaboration)
- Administrative Data Research Centre for Wales (Collaboration)
- UK Data Service (Collaboration)
- HMRC HM Revenue & Customs (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- EMBL European Bioinformatics Institute (EMBL - EBI) (Collaboration)
- Understanding Society (Collaboration)
- Longitudinal and Life Course Studies (Collaboration)
- Research Councils UK (RCUK) (Collaboration)
- Office for National Statistics (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
Publications
ADRN
(2016)
Network April 2016
ADRN
(2016)
Network- October 2016
ADS
(2017)
Network April 2017
ADS
(2017)
Better Use of Data
ADS
(2017)
Network Review 2016
Aitken M
(2019)
Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.
in International journal of population data science
Bell J
(2016)
Legal Issues for ADRN Users
Bell, J
(2019)
Lawful disclosure of administrative data for research purposes in the UK.
in Journal of Data Protection and Privacy
| Title | 4 steps to access administrative data for research- fold out guide for researchers |
| Description | Concertina handy guide for researchers explaining the ADRN process |
| Type Of Art | Artwork |
| Year Produced | 2016 |
| Impact | Many given out at conferences and researcher events |
| Title | Accessing administrative data infographic |
| Description | Infographic outlining the process of applying to the ADRN aimed at researchers. |
| Type Of Art | Artwork |
| Year Produced | 2016 |
| Impact | At present it is too early to identify impacts. |
| URL | http://www.adrn.ac.uk/application-process/application-process/ |
| Title | Jaywick case study video |
| Description | Video focusing on the benefits of research using administrative for a town called Jaywick in Essex. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | Product completed recently so too early for impacts to be evaluated. |
| URL | https://www.youtube.com/watch?v=AdOXFI7ojzk |
| Title | Poem- Dr Dobb's Data Doohickey |
| Description | The Network uses new technology and expertise in its role using data science to help tackle the social challenges of today and in the future. To raise awareness of this work the Administrative Data Service worked closely with award winning poet, Luke Wright, who's poem 'Dr Dobb's Data Doohickey' is an engaging poem describing how Dr Dobbs came up with an idea to link administrative data in a bid to tackle social and economic challenges. |
| Type Of Art | Creative Writing |
| Year Produced | 2017 |
| Impact | Public performance capturing attention of general public. Has been performed as part of repertoire on tour at many venues. |
| URL | https://www.youtube.com/watch?time_continue=1&v=SCFeENdalrc |
| Title | Protecting Privacy |
| Description | Short animation explaining process of data linkage. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | Animation has been used as part of presentations and at conferences. Positive feedback received. |
| URL | https://www.youtube.com/watch?v=nnxz3_XGMAE |
| Title | Sharing data for research- Government Consultation |
| Description | Short video detailing the benefits of sharing data in the context of the government's public consultation on data sharing |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | 69 views on Youtube. |
| URL | https://www.youtube.com/watch?v=ltW3aAL5t5c&t=2s |
| Title | Using data intelligently |
| Description | Short (3:40) animation explaining the Administrative Data Research Network. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2014 |
| Impact | Animation has been used at events and as part of presentations. Positive feedback has been received. |
| URL | https://www.youtube.com/watch?v=E3e4D2bHxa8 |
| Title | Video interview with Prof. Peter Elias |
| Description | Interview with Prof. Peter Elias, Deputy Chair of the Network's Board, about the conception of the Network and the way it works. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | 67 views of video. |
| URL | https://www.youtube.com/watch?v=auWRkS0rr_w&feature=youtu.be |
| Description | Please see Final Report submitted November 2018 |
| Exploitation Route | Please see Final Report submitted November 2018 |
| Sectors | Government, Democracy and Justice |
| Description | Delivery of service for social science researchers enabling access to linked administrative data. |
| First Year Of Impact | 2014 |
| Sector | Communities and Social Services/Policy,Education,Government, Democracy and Justice |
| Impact Types | Societal |
| Description | Contribution to Cabinet Office Data Ethics Framework |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.gov.uk/government/publications/data-ethics-framework/data-ethics-framework |
| Description | Data sharing legislation event |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | EAGDA membership |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Impact | The Expert Advisory Group on Data Access (EAGDA) was established in 2012 by the Wellcome Trust, Cancer Research UK, the Economic and Social Research Council, and the Medical Research Council to provide strategic advice to these funders on the emerging scientific, legal and ethical issues associated with data access for human genetics research and cohort studies. From October 2014, EAGDA is funded equally between the four partners. The group provides support to current and future studies and, where relevant, their Data Access Committees (DACs), across the fields of genetics, epidemiology and the social sciences - identifying best practice and encouraging harmonisation in governance and decision-making. It also seeks to enhance the UK's input into international policy discussions on data access. |
| Description | ESRC Public Dialogues workshops |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | Influence on Department of Health wording in new national opt out advocating that (that the term 'confidential patient information' should not be exchanged for 'personal data' in the new national opt out as it was contrary to the statute and would make health data linkage more difficult) was the one ultimately adopted |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Member of the Open Poilicy Making Group, Cabinet Office |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Member of workshop reviewing government data sharing proposals consultation |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | Participation in International workshop to develop consensus statement on Public Engagement |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Participation in consultation event on Codes of Practice for the Digital Economy Act |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Presentation to the US Commission on Evidence Based Policy |
| Geographic Reach | North America |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Title | ADRN |
| Description | Policies developed to ensure information security for a Network providing linked administrative datasets for research. |
| Type Of Material | Data handling & control |
| Provided To Others? | No |
| Impact | Approaches from Sloan Foundation in America and Chuo University in Japan for advice on setting up similar structures. |
| Description | ADRN |
| Organisation | Administrative Data Research Centre for Northern Ireland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADS acts as the administrative hub ensuring the four ADRCs provide a national network for social science and economic research using linked administrative data. |
| Collaborator Contribution | The four ADRCs provide services to researchers including safe settings where researchers can access linked administrative data. |
| Impact | Outputs and outcomes from the Centres will be reported by themselves. As this award is solely concerned with ADS's participation in the ADRN, outputs and outcomes from ADS are included in the relevant sections. |
| Start Year | 2013 |
| Description | ADRN |
| Organisation | Administrative Data Research Centre for Scotland |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADS acts as the administrative hub ensuring the four ADRCs provide a national network for social science and economic research using linked administrative data. |
| Collaborator Contribution | The four ADRCs provide services to researchers including safe settings where researchers can access linked administrative data. |
| Impact | Outputs and outcomes from the Centres will be reported by themselves. As this award is solely concerned with ADS's participation in the ADRN, outputs and outcomes from ADS are included in the relevant sections. |
| Start Year | 2013 |
| Description | ADRN |
| Organisation | Administrative Data Research Centre for Wales |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADS acts as the administrative hub ensuring the four ADRCs provide a national network for social science and economic research using linked administrative data. |
| Collaborator Contribution | The four ADRCs provide services to researchers including safe settings where researchers can access linked administrative data. |
| Impact | Outputs and outcomes from the Centres will be reported by themselves. As this award is solely concerned with ADS's participation in the ADRN, outputs and outcomes from ADS are included in the relevant sections. |
| Start Year | 2013 |
| Description | ADRN |
| Organisation | University of Southampton |
| Department | Administrative Data Research Centre for England |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADS acts as the administrative hub ensuring the four ADRCs provide a national network for social science and economic research using linked administrative data. |
| Collaborator Contribution | The four ADRCs provide services to researchers including safe settings where researchers can access linked administrative data. |
| Impact | Outputs and outcomes from the Centres will be reported by themselves. As this award is solely concerned with ADS's participation in the ADRN, outputs and outcomes from ADS are included in the relevant sections. |
| Start Year | 2013 |
| Description | ADS |
| Organisation | University of Manchester |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Working together to deliver the Administrative Data Service for the ADRN |
| Collaborator Contribution | University of Manchester lead on the provision of training and researcher engagement. University of Oxford team lead on identification and investigation of legal issues impacting upon the ADRN University of Essex lead on the provision of services to the user and communications activities. |
| Impact | Development of training materials and test for safe use of sensitive or personal data. Delivery of ADS objectives as administrative hub for ADRN |
| Start Year | 2013 |
| Description | ADS |
| Organisation | University of Oxford |
| Department | Centre for Health, Law and Emerging Technologies |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Working together to deliver the Administrative Data Service for the ADRN |
| Collaborator Contribution | University of Manchester lead on the provision of training and researcher engagement. University of Oxford team lead on identification and investigation of legal issues impacting upon the ADRN University of Essex lead on the provision of services to the user and communications activities. |
| Impact | Development of training materials and test for safe use of sensitive or personal data. Delivery of ADS objectives as administrative hub for ADRN |
| Start Year | 2013 |
| Description | Collaboration between the UK and India in research and innovation |
| Organisation | Research Councils UK (RCUK) |
| Department | RCUK India |
| Country | India |
| Sector | Public |
| PI Contribution | Tanvi Desai participated in a series of meetings to discuss further collaboration between the UK and India in research and innovation with RCUK India. |
| Collaborator Contribution | participated in a series of meetings to discuss further collaboration between the UK and India in research and innovation with RCUK India. |
| Impact | Follow-up visit from ICSSR in January 2015 ADS with UK Data Service/ESRC/Indian Council for Social Science |
| Start Year | 2013 |
| Description | Data Resource Training Network |
| Organisation | Census & Administrative Data Longitudinal Studies Hub (CALLS-Hub) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Participation in development meetings and participation in events. |
| Collaborator Contribution | Participation in development meetings and participation in events. |
| Impact | A cross-training webinar took place in September to enable all organisations to deliver information on all consortium members Webinar aimed at students on 28th Oct January 2016- one day event aimed at supervisors of PhD students |
| Start Year | 2015 |
| Description | Data Resource Training Network |
| Organisation | Longitudinal and Life Course Studies |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Participation in development meetings and participation in events. |
| Collaborator Contribution | Participation in development meetings and participation in events. |
| Impact | A cross-training webinar took place in September to enable all organisations to deliver information on all consortium members Webinar aimed at students on 28th Oct January 2016- one day event aimed at supervisors of PhD students |
| Start Year | 2015 |
| Description | Data Resource Training Network |
| Organisation | UK Data Service |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Participation in development meetings and participation in events. |
| Collaborator Contribution | Participation in development meetings and participation in events. |
| Impact | A cross-training webinar took place in September to enable all organisations to deliver information on all consortium members Webinar aimed at students on 28th Oct January 2016- one day event aimed at supervisors of PhD students |
| Start Year | 2015 |
| Description | Data Resource Training Network |
| Organisation | Understanding Society |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Participation in development meetings and participation in events. |
| Collaborator Contribution | Participation in development meetings and participation in events. |
| Impact | A cross-training webinar took place in September to enable all organisations to deliver information on all consortium members Webinar aimed at students on 28th Oct January 2016- one day event aimed at supervisors of PhD students |
| Start Year | 2015 |
| Description | Data Resource Training Network |
| Organisation | University of Southampton |
| Department | ESRC National Centre for Research Methods |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Participation in development meetings and participation in events. |
| Collaborator Contribution | Participation in development meetings and participation in events. |
| Impact | A cross-training webinar took place in September to enable all organisations to deliver information on all consortium members Webinar aimed at students on 28th Oct January 2016- one day event aimed at supervisors of PhD students |
| Start Year | 2015 |
| Description | Joint project with Ministry of Justice refining their metadata |
| Organisation | Ministry of Justice |
| Department | Ministry of Justice Analytical Services |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | One member of the team worked with the Ministry of Justice refining and developing metadata. |
| Collaborator Contribution | Worked with team member. |
| Impact | The Ministry of justice reported positive feedback from colleagues, including a customer, & the Chief Statistician. User guide to probation data for use by researchers. |
| Start Year | 2016 |
| Description | Project team for roundtable meeting of representatives of data services |
| Organisation | EMBL European Bioinformatics Institute (EMBL - EBI) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Member of initial scoping partnership to flesh out the aims and objectives of the meeting, and identify who should be involved/invited. |
| Collaborator Contribution | Members of initial scoping partnership to flesh out the aims and objectives of the meeting, and identify who should be involved/invited. |
| Impact | a meeting looking at how we could sustain repositories and develop user-friendly services for communities. A roundtable bringing together representatives of UKDS, EBI (particularly EGA), and study leaders and data managers of other major cohort studies to look at current issues for repositories, benefits/drawbacks of remote access to distributed systems, enhancing services, future challenges and ensuring sustainability. |
| Start Year | 2016 |
| Description | SURE |
| Organisation | HMRC HM Revenue & Customs |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADS has led ADRN input into the National Training for Accreditation of Researchers Consortium (now called SURE) alongside the UK Data Service, HMRC Datalab and ONS Virtual Microdata Laboratory. |
| Collaborator Contribution | Participation in development of training materials for researchers using the ADRN. Agreemeent of joint training principles and provision of cross organisational training programme. |
| Impact | Training materials to train researchers in the safe use of sensitive or controlled data and an accompanying test. |
| Start Year | 2013 |
| Description | SURE |
| Organisation | Office for National Statistics |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | ADS has led ADRN input into the National Training for Accreditation of Researchers Consortium (now called SURE) alongside the UK Data Service, HMRC Datalab and ONS Virtual Microdata Laboratory. |
| Collaborator Contribution | Participation in development of training materials for researchers using the ADRN. Agreemeent of joint training principles and provision of cross organisational training programme. |
| Impact | Training materials to train researchers in the safe use of sensitive or controlled data and an accompanying test. |
| Start Year | 2013 |
| Description | SURE |
| Organisation | UK Data Service |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADS has led ADRN input into the National Training for Accreditation of Researchers Consortium (now called SURE) alongside the UK Data Service, HMRC Datalab and ONS Virtual Microdata Laboratory. |
| Collaborator Contribution | Participation in development of training materials for researchers using the ADRN. Agreemeent of joint training principles and provision of cross organisational training programme. |
| Impact | Training materials to train researchers in the safe use of sensitive or controlled data and an accompanying test. |
| Start Year | 2013 |
| Title | ADRN website |
| Description | ADRN website meeting full accessibility standards |
| Type Of Technology | Webtool/Application |
| Year Produced | 2014 |
| Impact | Front door of service so generates many contacts and requests for further information. |
| URL | http://www.adrn.ac.uk/ |
| Description | 5 safes of secure access to confidential data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | John Sanderson and Mark Elliot presented at a training event called ';the 5 safes of secure access to confidential data' aimed at data professionals thinking of setting up a secure data service. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.ukdataservice.ac.uk/eventsdocs/5safesprog1718sept |
| Description | ADRC Wales Launch event |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Over 100 contacts at launch of ADRC WAles |
| Year(s) Of Engagement Activity | 2015 |
| Description | ADRN Blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRN blog launched. Over 50 people a month visit the landing page. Writers are drawn from across the ADRN and write articles of interest on the use of administrative data. Many have been picked up and tweeted about. |
| Year(s) Of Engagement Activity | 2016,2017 |
| URL | https://www.adrn.ac.uk/understand-data/blog/ |
| Description | ADRN Resarch Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research conference for the ADRN aimed at sharing research ideas and coordination of work streams. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ADRN website |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 26 Nov 2014- 06 Mar 2016 - over 22,000 visitors with over 114,500 page views. |
| Year(s) Of Engagement Activity | 2014,2015,2016 |
| URL | http://www.adrn.ac.uk |
| Description | ADRN wide session at the ADRN conference 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Event for the Network at the 2017 ADRN research conference led by ADS. To develop Network collaboration and |
| Year(s) Of Engagement Activity | 2017 |
| Description | Big Data- Open Data available from government institutions |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at Big Data- Open Data available from government institutions at the Rutherford Appleton Laboratory |
| Year(s) Of Engagement Activity | 2014 |
| Description | Big Data: Cure or Curse Oxford Festival of Ideas |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Miranda Mourby on the panel for Big Data: Curse or Cure for the Oxford Festival of ideas. Drew on work with the ADRN. Over 10,000 views on Livestream. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.ox.ac.uk/event/big-data-curse-or-cure |
| Description | Business and Local Government Catalyst workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Kakia Chatsiou is presenting at the BLG Catalyst workshop on 8th December to a mix of commissioners and data officers from Essex County Council, Suffolk County Council, NHS and Police. They are particularly interested in the procedures that ADS follows when asked to merge data from different agencies and the extent to which these can be extended to local government. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Cafe Scientifique Colchester |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Chris Coates spoke about the benefits of using administrative data for research at Colchester's Café Scientifique on Wednesday 11 November. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Case study publicised in collaboration with Actionable Intelligence for Social Policy |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Case study developed with Actionable Intelligence for Social Policy. Highlighted in their newsletter. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.aisp.upenn.edu/wp-content/uploads/2015/09/March2017Newsletter.pdf |
| Description | Cathie Marsh Lecture 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by Mark Elliot talking about the advantages and security of data release and related anonymisation procedures as part of a debate on anonymisation. |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://www.statslife.org.uk/events/events-calendar/eventdetail/251/-/cathie-marsh-lecture-2014-anon... |
| Description | Data Aquisition for Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Welsh Government on data quisition |
| Year(s) Of Engagement Activity | 2015 |
| Description | Data Points podcast |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Podcast showcasing case study by Actionable Intelligence for Social Research on Helping the Homeless into Homes |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/research-impact/podcasts/homelessness/ |
| Description | Data for Policy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Debate organised by ADS. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://dataforpolicy.org/wp-content/uploads/2017/09/InfoPack_V6_Final_w_cover.pdf |
| Description | Data for Policy- stall |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Stall at Data for Policy event |
| Year(s) Of Engagement Activity | 2017 |
| Description | Data without Boundaries European Data Forum |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on the ADRN by Tanvi Desai |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.dwbproject.org/events/edaf2.html |
| Description | Department Work and Pensions awayday |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Poster presentation by Tanvi Desai at Department of Work and Pensions awayday. Conversations with senior policy makers and analysts. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Digital Economy Bill- blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Blog on University of Essex website explaining benefits of Digital Economy Bill (as was) |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://blogs.essex.ac.uk/essexdaily/2017/05/03/the-digital-economy-bill-a-game-changer-for-research/ |
| Description | ESRC First Year Student Conference Cardiff- Jan 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | ADRN stall at conference |
| Year(s) Of Engagement Activity | 2015 |
| Description | ESRC Resrach methods festival |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Session called Using Linked Administrative Data for Research. Presentation by Melanie Wright called 'getting started'. |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://www.youtube.com/watch?v=cYVUIZFbRFY&feature=youtu.be |
| Description | European Medicines Agency workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attended European Medicines Agency workshop on standards for anonymisation of health data to be shared for research purposes-relevant to the attempts within the ADRN to share health data for research. Draft principles sent by email beforehand incorporated into working principles developed within the workshop-could contribute to the standards applied by the EMA to clinical trial data across the EU. |
| Year(s) Of Engagement Activity | 2017 |
| Description | European Survey Research Organisation Conference Reykavik |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRN's Kakia Chatsiou presented a paper co-authored with Tanvi Desai and Melanie Wright at the latest European Social Research Association Conference in Reykjavik, Iceland on "Data Retention and Public Opinion in the Administrative Research Network", outlining the key messages from recent reports on public attitudes to data retention in the UK. The paper discussed the impact that data retention/destruction can have on resources and effort spent on data preparation and research and outlined some of the arguments for and against preservation of administrative data for research. The paper also provided an overview of the steps the Network has been taking to bring together researchers, data owners and the general public, consult with them, reassure them and enhance their understanding of the advantages of (among other topics) data retention. The conference is one of the largest conferences of its kind (800+ participants) in Europe and Kakia, who presented on behalf of the team had the opportunity to talk about our work with several social scientists from all over the world. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Farr/ ADRN technical workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at Farr-ADRN technical workshop |
| Year(s) Of Engagement Activity | 2015 |
| Description | First workshop on digital humanities- Prague |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to mixed international audience |
| Year(s) Of Engagement Activity | 2015 |
| Description | HeLEX Centre presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | HeLEX Centre for Health, Law and Emerging Technologies Conference 'Translation in Healthcare: Exploring the Impact of Emerging Technologies' Pecha Kucha Presentation 24th June 2015: 'Linking administrative and health data for research: is it just about the legal issues?' |
| Year(s) Of Engagement Activity | 2015 |
| Description | IAssist 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tanvi Desai presentation on Introduction to the ADRN |
| Year(s) Of Engagement Activity | 2014 |
| Description | IAssist 2014 - poster session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster session 'Bridging the admin data gap' |
| Year(s) Of Engagement Activity | 2014 |
| Description | IAssist 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 3 presentations on the ADRN, its communications focus and working with the ADRN |
| Year(s) Of Engagement Activity | 2015 |
| Description | IAssist 2015- poster session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster session on ADRN |
| Year(s) Of Engagement Activity | 2015 |
| Description | IAssits- pecha kucha |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Pecha Kucha on data acquisition |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://iassist2017.org/program/_program.html |
| Description | Iassist- presentation on managing user expectations |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on managing researcher expectations |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://iassist2017.org/program/_program.html |
| Description | Launch of ESRC BDN Phase 2 launch |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Banner and information given out at the event |
| Year(s) Of Engagement Activity | 2014 |
| Description | Legal developments presentation- ADRN 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented an overview of the legal developments relevant to researchers |
| Year(s) Of Engagement Activity | 2017 |
| Description | NCRM methods festival Bath |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Stand at the NCRM festival in Bath, July 2016. ADS provided an ADRN stall for the workshop and spoke to approximately 60 people over the festival. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Nuffield Department of Population Health Annual Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster Presentation 24th Jan 2015: 'Access to New Types of Data: The Administrative Data Research Network and the Administrative Data Service' |
| Year(s) Of Engagement Activity | 2015 |
| Description | Panel Discussion- JOINT UNECE/EUROSTAT WORK SESSION ON STATISTICAL DATA CONFIDENTIALITY |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participant in panel discussion on Public use files / open data - Future availability of information |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.unece.org/index.php?id=43931 |
| Description | Participation in CESSDA workshop on 'new' forms of data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attended CESSDA (Consortium of European Social Science Archives) workshop on 'new' forms of data-including administrative data. Contribution to workshop, and therefore workshop report. Helped write the case for a CESSDA Legal and Ethical Working Group which (if approved) would provide legal and ethical guidance to researchers across EU-volunteered to provide support with this. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Podcast- Back to school: can cash grants improve school attendance among poorer children? |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Ben Matthews from the University of Edinburgh discusses his research linking administrative and charity data to see if cash grants are an effective incentive to get children from low income families to attend school. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/research-impact/podcasts/back-to-school/ |
| Description | Podcast- Crime and hospital admissions: is there a link with the availability of alcohol nearby |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Sarah Rodgers from Swansea University Medical School discusses her research linking Administrative Data to try see if the number of alcohol-related crimes and injuries in a community is linked with the number of alcohol outlets in the area. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/crime-and-hospital-admissions/ |
| Description | Podcast- Migrants and Healthcare in Northern Ireland |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Anne Kouvonen from Queens University, Belfast discusses her research linking Administrative Data to try to gain a more accurate picture of the changing migrant population in Northern Ireland and what those changes mean for the provision of health services. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/research-impact/podcasts/migrants-healthcare/ |
| Description | Podcast- Taking medication for diabetes during pregnancy |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Podcast- Joanne Given from Ulster University explains how she is using linked administrative data to examine the effects of the drug Metformin on pregnant women and their babies |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/research-impact/podcasts/diabetes-and-pregnancy/ |
| Description | Podcast- Using and linking people's data for research: what do we think about it? |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Carol Porteous from the University of Edinburgh discusses her research into what different groups and individuals think about using personal anonymised data for research for the public good. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/linking-data-for-research/ |
| Description | Podcast: End of life care for cancer patients |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Iain Atherton from Edinburgh Napier University and Deputy Director of ADRC-Scotland explains how linking Administrative Data is painting a more accurate picture of who is caring for people dying from cancer in their final days. He talks about how his research will provide evidence to help develop health and social care services in hospitals and in homes. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/end-of-life-care/ |
| Description | Podcast: Getting a good and better paid job - does Further Education help? |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Peter Urwin from the University of Westminster explains how research using Administrative Data provides a truer picture of the benefits of Further Education qualifications to young people as they move into the world of work. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/return-to-fe/ |
| Description | Podcast: Helping children in care do better at school and in life |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Louise McGrath Lone from the Administrative Research Centre for England and the Great Ormond Street Institute of Child Health, University College London talks about her PhD research using Department for Education data to provide important new evidence on the lived experiences of children in care. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/children-in-care/ |
| Description | Podcast: Poor mental health: can Administrative Data help us measure it more accurately? |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Aideen Maguire from Queens University, Belfast explains how linking Administrative Data could help develop a clearer picture of poor mental health in communities and countries. She explains how her research is attempting to develop a new way of measuring poor mental health in Northern Ireland, which has the largest proportions of people with poor mental health in the UK. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/mental-health/ |
| Description | Podcast: The flip side of the coin: why non use of data could be more dangerous than its misuse |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Kerina Jones from the University of Swansea Medical School explains how the non-use of health data rather than its misuse could be partly responsible for thousands of deaths and cost society billions. She outlines her research into the harms of data non-use and calls for the socially responsible reuse of data to become the norm to save lives and resources. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/the-flip-side-of-the-coin/ |
| Description | Podcast: What the Digital Economy Act will do for Administrative Data |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Melanie Wright, Director of the Administrative Data Service discusses her views on the Digital Economy Bill on the lead up to it becoming legilsation: how it will help Government Departments and researchers make more of the rich and powerful data that they collect in the course of doing their business. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/digital-economy-act/ |
| Description | Presentation at Creating Data Policy in a Changing Landscape workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at Creating Data Policy in a Changing Landscape workshop on How can functional anonymization help us interpret the GDPR's model of personal data? |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.ncrm.ac.uk/training/show.php?article=7801 |
| Description | Presentation at Data Analysts User Group Conference 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Data Analysts User Group Conference outlining the Digital Economy Act and the ADRN |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.d-u-g.co.uk/previous-content-646883 |
| Description | Presentation at FARR 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on how ADRN fitted into social science landscape |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation to Cabinet Office |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Melanie Wright, Trazar Astley-Reid and John Sanderson met members of the Cabinet Office to give an overview of the ADRN and participate in a 'deep dive' workshop with direct involvement from ADRN representatives together Government data scientists and others. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Farr on legal developments |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Farr Institute at UCL on legal developments impacting on access to health data for research. Some members of ADRC-E, others researchers within Farr Institute. Raising awareness of/ elucidating legal issues relevant to epidemiological projects, also sparked a collaboration on a paper with ADRC-E about issues researchers facing in accessing health data for public interest research. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation to HSCIC DAAG |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to the HSCIC Data Access Advisory Group by Tanvi Desai |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation to RSS Data Sharing Consultation event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Royal Statistical Society (RSS) is hosting a Data Sharing Consultation event on the 17th March to help researchers, official statistics, policy and statistics users to understand more about the proposed data sharing legislation and to consider their own responses to the consultation. Chaired by Hetan Shah, Executive Director of the RSS, the panel sessions include Melanie Wright, Director of the Administrative Data Service, and Functional Director of the UK Data Service. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation- College of Policing |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to College of Policing on uses of admin data and the ADRN |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation- Iassist on data centres in the UK |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation reviewing the UK network of these partnerships, a description of some of the challenges of taking part in such a diverse growing landscape and some of the benefits to researchers and society. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://iassist2017.org/program/_program.html |
| Description | Presentation- NTTS 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on the ADRN at the NTTS conference, Brussels |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://ec.europa.eu/eurostat/cros/system/files/ntts2017officialprogramme.pdf |
| Description | Presentation- New sources of data for social science research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at event hosted by the Urban Big Data Centre and SASNet and is organised collaboratively by the Administrative Data Research Network, BLG, CALLS-Hub, Centre for Longitudinal Studies, CDRC, CLOSER, NCRM, UBDC, UK Data Service and Understanding Society. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://ubdc.ac.uk/outreach-plus-training/events-workshops-training-more/past-events-2017/new-sources... |
| Description | Presentation- Public Engagement workshop, Cardiff 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at ADRN workshop exploring issues surrounding public engagement, Big Data and social science research. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.eventbrite.co.uk/e/public-engagement-and-social-science-research-challenges-and-emerging... |
| Description | Presentations at IAssist 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Three presentations to the International Association for Social Science Information Services and Technology conference. A pechakucha about the search for administrative data A pechakucha about the work with Jaywick using administrative data A presentation of an overview of the plans for an ADRN Citizens Panel |
| Year(s) Of Engagement Activity | 2016 |
| Description | Public-Academic Research Colloquium (PARC) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADS was responsible for convening one international panel and the two international round tables. International contacts provided by ADRC have also been called to provide evidence to the US Commission on Evidence Based Policy. |
| Year(s) Of Engagement Activity | 2016 |
| Description | RSS Annual Conference 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Trazar Astley-Reid presentation on Accessing and Analysing Administrative Data |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.rss.org.uk/RSS/Events/RSS_Conference/2015_Conference/Programme_and_speakers/RSS/Events/Co... |
| Description | RSS- ADRN event 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | joint event for the ADRN with the RSS on 08 October. Over 120 people attended to hear presentations from Vanessa Cuthill (ESRC), Prof. David Hand (Chair of the ADRN Board), Hetan Shah (RSS) and Paul Maltby (Cabinet Office) on the possibilities fro the Network. This was followed by presentations from the directors from the four Administrative Data Centres and Melanie Wright for ADS. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://us8.campaign-archive1.com/?u=21ca85d2a05698bf6d2f2e484&id=162cad5abb |
| Description | Royal Society event 'Consumer Data: what's in store for you?' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation and attendence on expert panel to discuss the ethical, legal and privacy implications of developments in consumer data |
| Year(s) Of Engagement Activity | 2015 |
| Description | SDAI showcase |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRN stall at Roadshow. Talked to 30 people at length about the Network. ( requests to go onto mailing list. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Social Research Association Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Stall at annual research conference |
| Year(s) Of Engagement Activity | 2014 |
| Description | Talk Big Data event series |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | A series of 6 events with high profile speakers at the University of Essex. Over 350 attendees from a range of audiences: students, general public, university staff. Supporting social media campaign with over 1000 engagements on Facebook, nearly 200 new Twitter followers, 160 requests to join the ADRN mailing list. The aims were to: To raise awareness and understanding across the University of Essex community of multidisciplinary, more conceptual aspects of the three key ESRC Big Data projects. To raise awareness of the Big Data capability at Essex, with external stakeholders including Central Government and business. To hold open discussions around ethical and moral dilemmas with the aim of taking the public with us on the journey to explore contemporary challenges and opportunities of using Big Data for public benefit. To highlight the opportunities for research that each project provides. To raise awareness of the benefits and challenges to society that research can achieve. For the Talk Big Data (TBD) team to hear and understand audience concerns around the themes of our discussions. Outcomes were: Cross-centre collaboration brought together different expertise and perspectives from across the University and paved the way for future collaborations. Participation in the ESRC Festival of Social Sciences. ADRN received applications for lay person vacancy and built links which has lead to a new member of User Services team. ONS are running a mini social media campaign to promote the mini interview series w John Pullinger, UKSA There is a new research opportunity with ECC and Social Sciences faculty to support qualitative surveying of vulnerable groups. A large proportion of the audience joined the Centre mailing lists. Change of audience opinions measured by use of clicker questions before and after events. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.adrn.ac.uk/for-the-public/talk-big-data/ |
| Description | Talk Big Data event series- live streaming |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Live streaming of Talk Big Data events in collaboration with: ONS Big Data Project Cancer.org Islington Borough Council NI Clinical Network, Belfast Business Development team at Suffolk CC Cambridgeshire CC Cambridge Insight circulation list Simon Whitworth - UKSA UoE Campus, Southend |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk Big Data video interviews |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | 22 interviews with speakers at Talk Big Data event series. These video interviews were published on YouTube and have had 841 views to date. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Techniques for Data L:inkage and Anonymisation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tanvi Desai chaired a panel discussion at this event. Very good feedback was received from the event. |
| Year(s) Of Engagement Activity | 2014 |
| Description | TedEx Talk 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Talk under TedEx branding at University of Essex called 'Stories are just data with a soul'. the talk had the aim of introducing the ADRN in an accessible way which would help people with no knowledge of data research to understand the idea of it and the impact it can have. The title is a quote from a TED speaker, Brené Brown (University of Houston Graduate College of Social Work), and the idea was to talk about different types of storytelling and to show that data can tell us new/unexpected things about society. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.youtube.com/watch?v=KYKV-LwGe4g |
| Description | Twitter channel |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Nearly 800 Twitter followers and over 1800 tweets made. @ADRN_UK |
| Year(s) Of Engagement Activity | 2014,2015,2016 |
| URL | http://www.twitter.com |
| Description | UKAN symposium 2014 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tanvi Desai was Policy Panel member. |
| Year(s) Of Engagement Activity | 2014 |
| Description | UKDS Crime Survey Users Conference 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to researchers using crime survey data held at UKDS outlining administrative data at the ADRN theymay be interested in using. |
| Year(s) Of Engagement Activity | 2016 |
| Description | UKDS Crime Surveys User conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on ADRN and possible uses for researchers interested in crime survey statistics. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.statsusernet.org.uk/events/event-description?CalendarEventKey=125b052c-ff3a-4137-aafa-61f... |
| Description | UKSA Statistical Potential Admin Data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | On the 5 December the UK Statistics Authority hosted an event about the statistical potential of administrative data at the RSS. Tanvi Desai, co-director of the Administrative Data Service (ADS), gave a presentation on increasing access to administrative data through the ADRN. |
| Year(s) Of Engagement Activity | 2014 |
| Description | UNECE work session on statistical confidentiality and privacy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by TAnvi Desai introducing the ADRN. |
| Year(s) Of Engagement Activity | 2015 |
| Description | University of ESsex Social Sciences Roadshow |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Poster and stall at Social Sciences roadshow |
| Year(s) Of Engagement Activity | 2015 |
| Description | Video - Using data to help vulnerable children |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Patrick Guthrie, Head of Public Service Reform, Essex County Council talks about a partnership between the Council and the University of Essex using administrative data to help vulnerable children. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/vulnerable-children/ |
| Description | Video- Administrative data: Achievements and challenges |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Lord David Willetts, Executive Chair of the Resolution Foundation and former Universities Minister, talks about the achievements and the challenges around using Administrative Data. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/achievements-and-challenges/ |
| Description | Video- Falling behind the data revolution |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Lord David Willetts, Executive Chair of the Resolution Foundation and former Universities Minister, on the danger for Britain and British social science of falling behind the big data revolution. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/falling-behind/ |
| Description | Video- How a city council improves services and saves money |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Lynn Wyeth Head of Information Governance and Risk, Leicester City Council describes how the council links data in-house to improve services and save money. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/leicester/ |
| Description | Video- Opportunities and obstacles of using Administrative Data |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | John Pullinger CB, UK Statistics Authority talks about the opportunities and obstacles facing those looking to share and use Administrative Data. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/obstacles/ |
| Description | Video- Saving Money by Sharing Data |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Andrew Stott, former Director for Transparency and Digital Engagement gives three examples from around the world where sharing data has resulted in huge savings. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/saving-money/ |
| Description | Video- Sharing data safely and securely |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Sharon Witherspoon MBE, Head of Policy of the Academy of Social Sciences and the Campaign for Social Science talks about how the Administrative Data Network can help Government Departments to share their data safely and securely. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/hear-the-experts/sharing-data/ |
| Description | Warwick Big Data conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This one-day event took place on 10 December 2015 and was hosted by the Warwick Faculty of Social Sciences, alongside the Warwick Q-Step Centre. The event examined the challenges raised by big data across key areas of social science and generated a vibrant transdisciplinary discussion about the shared challenges that cross-cut different areas of social science research, as well as ways in which big data manifests itself in particular fields. Judith Knight presented on Big Data and Administrative Centre |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www2.warwick.ac.uk/fac/cross_fac/q-step/newsevents/eventslist/fssbd/ |
| Description | Workshop on Big Data Methods for social science and policy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by Kakia Chatsiou at workshop hosted by Cambridge Public Policy Initiative on the ADRN. Over 60 researchers from a range of departments and disciplines across Cambridge attended. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bigdata.cam.ac.uk/events/events-archive/big-data-methods-for-social-science-and-policy |
| Description | Youtube channel |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | 11 videos so far on channel: Peter Christen - Record Linkage Workshop ADRC-S playlist (4 videos) Jaywick - how administrative data research can make a difference ADRCE An interview with David Martin Interview with Prof. Peter Elias ADRC-NI: Migrant project case study Protecting Privacy ADRC-NI Launch Linking and protecting government data for social research © ESRC 3,500 views since start- March 07 2016. Cumulative watch time 14,395 minutes. |
| Year(s) Of Engagement Activity | 2014,2015,2016 |
| URL | https://www.youtube.com/results?search_query=administrative+data+research+network |