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RESPONDING TO HOMELESSNESS, MULTIPLE EXCLUSION AND STIGMA: DEVELOPING A COMPLEX PUBLIC HEALTH INTERVENTION APPROACH

Lead Research Organisation: King's College London
Department Name: Health and Social Care Research

Abstract

Homelessness is a growing challenge in the UK, particularly because it has severe impacts on health: people who are homeless can live 30 years less than the population average. London in particular has a high and growing number of people who are homeless, including people rough sleeping, but also in hostels and temporary accommodation.

The causes of homelessness and poor health are complex, and can include a person's life history but also social processes like housing availability. This research will focus on one component of this complexity: stigma. Stigma refers to people being 'marked' - in society's eyes - as lesser, unworthy or disgraced. This stigma that often focuses on people who are homeless is a persistent barrier to addressing ill-health and homelessness. It can mean people don't seek care and support, and receive poor quality support if they do; a result is worsening health and reduced chances of ending homelessness.

Stigma is a problem across health care, welfare support and other parts of society and the systems that people rely on. Importantly, the stigma across these separate areas link and cause complex problems; for instance, problems with benefits can cause problems with health care access. We have some understanding of these social sides of stigma and their complexity, but not enough to understand how to respond and prevent it. Efforts to prevent stigma could support people who are homeless in accessing health, housing and other forms of welfare and support. If we could prevent stigma our public health and health care responses can be more effective and efficient, improving health and increasing potential to end homelessness for individuals.

This research aims to improve our theory and explanations for the complexity of stigma. Based on that explanation, the research will develop an intervention that will try and prevent stigma across the many systems that cause it. A focus for the research will be in-depth study in London to understand the complexity of stigma that people who are homeless face. We will spend time with people who are homeless using interviews to understand their experiences, and also study the systems that support them (or stigmatise them). Researchers who have experience of homelessness themselves will be part of the research team. The team working to develop an intervention response will involve experts from across south London.

Stigma is a problem around the world. To try and ensure our research in London has impact in other places (and also learns from experiences elsewhere), we will work closely with a research team in Canada. Through comparing experiences we can develop better explanations of stigma and the complex systems behind it. Through working with the team in Canada we also want to develop ideas and ways of working that we can expand to include other places; including low and middle income countries around the world.

Throughout the research we will work closely with people who are homeless, policy makers and the general public. This close public engagement will ensure the study is actually responding to the important questions and needs people have, but also to make people aware of our findings, and so through that ensure the study has positive impact on people's lives, health and welfare.

The final output of the research programme will be to work with people, policy makers and other stakeholders to develop a 'complex intervention'; this will be a strategy to make changes across the many systems that influence the lives of people who are homeless. Through multiple and coordinated changes we hope to be able to make significant impacts on stigma and prevent it. We will initially develop an intervention in south London, and then after working to understand its impacts, we will try and scale-up any success to other places, across the UK but also globally.

Planned Impact

The overall impact sought through the fellowship is reduced stigma as it affects people who are homeless, to then allow access to health care, welfare and support, including housing. Priority beneficiaries for this impact are then people who are homeless, and also people working in public health and services seeking to enhance the efficacy and efficiency of their work. Within the first 4 years of the fellowship we will produce a novel intervention strategy to seek impact on stigma; by the end of the 7 year period an aim is to have an intervention strategy implemented and under evaluation within south London. Through these processes we aim to directly impact on stigma, and so support the welfare of people who are homeless, and the work of stakeholders across health care, welfare services and other housing and support services. This group of stakeholders will in particular include collaborators such as Groundswell, a south London charity working with people who are homeless, and then Southwark Public Health Division. The theoretical developments and related intervention strategy will enhance their work and the achievement of their goals.

The theoretical outputs from the fellowship - theoretical models of the system complexity of stigma - in tandem with evidence of intervention process and impact, will have potential indirect impact across London, other urban settings in the UK and globally. Our aim will be to support generalizability of rigorous theory and so to enable application in other settings, whilst attending to system complexity. We will seek to engage with services and stakeholders across the UK with the study outputs of peer reviewed articles and linked reports, through presenting research at local and national conferences, but also through targeted engagement as directed by study collaborators; for example, Groundswell, a study partner, support people centred services for the homeless across the UK, and have extensive networks in cities such as Manchester, Newcastle and Birmingham, through which to build impact across the UK. The fellowship will also seek impact internationally, through partnership with the International Network of People who use Drugs and other collaborators; this will be driven in the first instance by extending the comparative analyses between London and Vancouver to other cities, notably those in low and middle income contexts; through such analysis, and then continued links to tintervention development, we aim to explore the application of the intervention approach in these other settings.

A range of public audiences will benefit from the research. In the short term, participants involved in data collection will benefit from the opportunity to represent their views, and through public engagement processes influence their articulation within research; following these, the experiences will be presented to policy stakeholders at the workshops, and also more widely through public exhibitions. As elaborated in the pathways to impact, we will be using a range of strategies to engage young people and the wider public in south London in dissemination activities, particularly involving the Museum of Homelessness and Groundswell. A principal target is to increase awareness of the social complexity of homelessness, and so address prevailing public discourses that understand homelessness as resulting from choice and individual responsibility; such an impact with wider public understanding in turn has indirect impacts for people who are homeless and policy makers, through creating more enabling environments for support services, welfare and policy advance.
 
Description The project has two parts, funded in two phases. The study reported here is the first phase. The overall study - across the two phases - aims to develop an in-depth understanding of how stigma is experienced and comes about within care and support systems in south London, UK, and then develop and implement new systems level interventions to address this stigma. The first phase of the project was focused on understanding stigma and developing strategies to respond. We have made good progress in developing a model of how stigma 'works' within the care and support system, including how stigma is managed and overcome. The analysis here will be developed more and refined through the second phase of the project. We have also worked with study participants and care and support system stakeholders across south London to identify directions for future systems level interventions. The second phase of the project will develop and then aim to implement these new interventions.
Exploitation Route The eventual outcomes of the project - including from the second phase of the project - will be widely relevant for homelessness care and support system stakeholders across the UK and potentially internationally. The study will be generating a 'toolkit' on responses to stigma that seek system change.
Sectors Communities and Social Services/Policy

URL https://www.kcl.ac.uk/research/social-responses-to-stigma
 
Description Development, publication and dissemination of toolkits to support managers of early caareer researchers
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description A Circle U network on stigma, discrimination and structural change in health care
Amount £5,000 (GBP)
Organisation King's College London 
Sector Academic/University
Country United Kingdom
Start 03/2023 
End 07/2023
 
Description Management of patients with chronic liver disease admitted to hospital as an emergency
Amount £1,000,000 (GBP)
Funding ID NIHR132969 
Organisation National Institute for Health and Care Research 
Sector Public
Country United Kingdom
Start 03/2022 
End 09/2025
 
Description Supporting Institutional and Managerial Responses to Championing the Career Development and Progression of Early Career Researchers
Amount £25,000 (GBP)
Organisation United Kingdom Research and Innovation 
Sector Public
Country United Kingdom
Start 07/2021 
End 07/2022
 
Description Developing a book on stigma, discrimination and health 
Organisation King's College London
Country United Kingdom 
Sector Academic/University 
PI Contribution My research team has contributed to a successful book proposal. Dr Oli Williams, also of KCL, with colleages from Greenwich, Cardiff and Edinburgh Universities are editing a collection of chapters, to which we contribued. Policy Press have agreed to publish the book, open access. The chapter has been drafted, and rewritten in response to editorial comments.
Collaborator Contribution Partners at KCL, Cardiff, Greenwich and Edinburgh have conceptualised the overall collection of chapters, and edited our contribution.
Impact Policy Press have accepted the book proposal.
Start Year 2023
 
Description Analysis groups in south London 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact organised 5 group meetings in a day centre and hostel in south London to explore and refine emerging analysis
Year(s) Of Engagement Activity 2024,2025
 
Description Big Issue article 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact We reported on our recent conference presentation in the Big Issue
Year(s) Of Engagement Activity 2024
URL https://www.bigissue.com/opinion/suella-braverman-stigma-homelesness-rough-sleeping/
 
Description Charite, berlin 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Talk to potential collaborators at Charite Hospital and University, Berlin, Germany
Year(s) Of Engagement Activity 2024
 
Description Consultations with study advisory group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact We hosted three meetings of a study advisory group, to consult on study direction and strategy. The group gave advice and suggestions for the ongoing conduct of the study.
Year(s) Of Engagement Activity 2022,2023,2024,2025
 
Description Lewisham council 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presentation on research progress to Lewisham council
Year(s) Of Engagement Activity 2024
 
Description Lewisham council housing team 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Talk to the lewisham housing team on research progress
Year(s) Of Engagement Activity 2024
 
Description London Network of Nurses and Midwives 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Talk with nurses and midwives from London on study progress
Year(s) Of Engagement Activity 2024
 
Description Museum of Homelessness online webinar about criminalisation and homelessness 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Talk by River Ujhadbor reporting on study data relating to criminalisation of homelessness and stigma.
Year(s) Of Engagement Activity 2024
 
Description Museum of Homelessness online webinar on 'dodgy data' and evidence in the homelessness sector 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Museum of Homelessness led webinar, second of three within a series funded by the study
Year(s) Of Engagement Activity 2024
 
Description Museum of Homelessness podcast 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact First of three events organised with Musuem of Homelessness, with Andy Guise introducing issues around stigma and homelessness
Year(s) Of Engagement Activity 2024
 
Description Pathways 2023 International Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of initial results at conference of policy makers and practitioners
Year(s) Of Engagement Activity 2023
 
Description Pathways 2024 conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation at Pathways conference on homelessness, led by Dan Bleksley, reporting on asects of the study implemented with Groundswell.
Year(s) Of Engagement Activity 2024
 
Description Presentation in south London day centre 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact A report back on the study findings and progress so far, attended by 20 people, to the staff of a day centre. The staff were interested in the study and remain committed to participating in the study and developing recommendations.
Year(s) Of Engagement Activity 2023
 
Description Presentation to Plymouth research group on stigma 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact A research group at plymouth medical school working on alcohol related liver disease invited me to talk on stigma, after recognising that they needed to explore this in their own research.
Year(s) Of Engagement Activity 2023
 
Description Presentation to South East London health inequalities working group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A presentation on the study to a working group of policy makers and practitioners in the NHS and Local Authorities working across south east London. An extensive discussion identified future opportunities for the specific study and for additional future collaborations.
Year(s) Of Engagement Activity 2022
 
Description South east London pathways teams 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Talk to homelessness sector front line workers
Year(s) Of Engagement Activity 2024
 
Description Study feedback event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact Event to report back and discuss study findings and develop strategies to respond
Year(s) Of Engagement Activity 2025
 
Description Study feedback event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact We held an afternoon workshop with 25 participants from our study, including people who are homeless and those working in the homelessness sector. Participants discussed emerging findings and fed back in to study direction.
Year(s) Of Engagement Activity 2023
URL https://www.kcl.ac.uk/research/social-responses-to-stigma