Pictures of ageing in Uganda; A partnership to explore demographics, phenotype and self perception in a community of older people

Lead Research Organisation: University of Cambridge
Department Name: Institute of Public Health

Abstract

People are getting older and not just in Western countries. Societal pressures from extended life expectancy are now emerging in low-income countries. We don't really know what ageing looks like in low-income countries, and many people don't know their exact age. We will work on methods to determine people's exact ages (demographic information) in a community in Uganda and build up a picture of its older people's functional and cognitive health. At the same time, we will involve the same people in a community arts project to explore their self-perception of ageing.

Ageing populations across the globe will lead to a rise in frailty, disability and dependency. Solutions to these problems must be financially, socially and environmentally sustainable to avoid prejudicing life chances of current and future populations. In addition proposed solutions must have buy-in from the older population themselves.

Through this grant we will establish an exciting multi-disciplinary partnership network of academics, artists, non-governmental and governmental organisations in Cambridge and Uganda with a community of older people in Uganda. This partnership will provide a framework to explore demographics, the healthy ageing phenotype, and self-perception using historical demography, psychology, public health epidemiology, and visual arts in order to build up a holistic picture of ageing in a community in Uganda. We will co-develop ideas with a community of older people to produce a multi-disciplinary demographic, phenotypic and functional capacity and visual representation of what ageing means to them. We hope that this forms the basis of a future research grant application.

Planned Impact

Short term impact: this grant will connect researchers in Cambridge, UK and Uganda interested in working with colleagues around the topic of ageing. They will bring experience and expertise of working in different resource settings and different disciplines, but with a shared interest in ageing. These researchers will learn from each other and share their experience and ways of working to build a combined project

Medium term impact: Senior researchers will help to train early career researchers in multidisciplinary ageing research; this will include those attending the short course. The senior researchers will help a Ugandan student to apply for a PhD under the University of Cambridge- Africa scheme, which is led by Uganda's Makerere University and seeks to support African scientists. 3 post-graduate trainees working with the project will be trained in data collection methods

We will adapt/develop survey tools that can collect data on health and demographics of older people that can be used elsewhere in Uganda or East Africa

Long term impact: The project will produce information to help Ministries of Health and Gender plan their support for older people. We aim for this partnership to be a lasting collaboration between researchers in UK and Uganda in the area of ageing working across their subjects to build up a complete picture of what it is like to be older in Uganda.

Publications

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Title An Exhibition on Self-Perception of a Community of Older Persons in Busukuma Division 
Description Objectives: 1) To exhibit artwork and dance and drama skills by older persons to express their perceptions of older age as well as work produced by Artists in Residence. 2) To share findings and recommendations from the study with the different stakeholders that have been part of it. The event was very colourful and well attended, especially by the older persons and their community leaders. They expressed a lot of gratitude during their feedback session and look forward to future projects that involve them; especially by our government. Fashion show: Doreen Namatovu, the Masters student attached to the project engaged the older persons through fashion. After weeks of engaging them and understanding their perceptions regarding fashion, she was able to design clothes for some of them to show case. Some of these designs were made in Bark cloth; which is a traditional fabric that most of them used to wear back in the day and others; she managed to recycle some of their old clothing items by adding a piece of new fabric to give it a new look. This segment of the entire event was the highlight; the older persons involved were very vibrant and passionate about it. They displayed a great deal of enthusiasm and were quite entertaining. A video documenting all this will be shared. Performing arts: Mr Charles Kasumba, who is the dance and drama director at IDI has also been very supportive in developing this element of the self-perception theme. The older persons practiced their routines and acts for several weeks to deliver a wonderful performance on this day. They showed off all the dance moves of their youth as well as the songs that they could remember. 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2019 
Impact Feedback session: Towards the end of the event, the older persons who participated in the research were given an opportunity to give feedback. Most of them were grateful for the opportunity to participate in a project that was focusing on their needs. They felt relevant and included in the community; which has been lacking from most of the programmes that run in their community. They also called upon their local leaders to advocate on their behalf and forward their needs to government. This has led to a further data collection on the impact of the exhibition on older peoples lives, being analysed. Also led to an invitiation by MOGender to present finding at a National stakeholder meeting on older persons 
 
Title Pictures of Ageing Open Studio with Nikissi Serumaga and Martin Kharumwa 
Description 32° East in partnership with the University of Cambridge, Infectious Diseases Institute and the Margaret Trowell School of Industrial Fine Art, Makerere University hosted the Pictures of Ageing residency to explore self-perception among the elderly. Martin Kharumwa, Nikissi Serumaga-Jamo (former programs manager at 32° East) and Ife Piankhi were selected to respond to questions like; How are older people seen by society? How do older people see themselves? What does healthy ageing look like to older people in Uganda? On 20th September, there was an exhibition on the self-perception of elders in Busukuma Division where the artists exhibited the work created during this project. Following the exhibition, Martin and Nikissi held an open studios at 32° East to meet them, view their work, and hear more about their experience with researchers and the elderly. 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2019 
Impact A follow up research on the artists, researchers experiences of the multi-disciplinary project has been designed to capture experiences of the open studio and overall collaboration 
URL https://www.facebook.com/events/2843886732310921/
 
Description We have developed a multi-disciplinary partnership of academics from UK and Cambridge, and established strong links with a community in peri-urban Uganda for research activities.
Exploitation Route We hope to publish our findings in the coming year, but already the Ministry of Gender in Uganda are excited about our approach. Our partners HealthNest have established 3 peer support groups in the community which will continue post grant, and the MTSFIA will be applying lessons learnt in new craft workshops. Our qualitative research in analysis will provide pointers on whether a further evaluation of the effect of the arts on quality of life in older people should be studied
Sectors Communities and Social Services/Policy,Education,Healthcare

 
Description Capacity building 1 day course in Ageing Research Methods >30 Masters students, 8 Policymakers Staff training on data collection & tools piloted 2 day course in qualitative data collection and analysis - 20 Master students attended Stakeholder and team engagement 2x one week workshops in Uganda for the multi-disciplinary teams National - Ministries of Gender & Health District level - Mayor, LCIII Academic - College of Health Sciences, School of Public Health, CEDAT Community meetings
First Year Of Impact 2018
Sector Communities and Social Services/Policy,Education,Healthcare
Impact Types Cultural,Societal,Policy & public services

 
Description Training in Ageing Research Methods for Ministry of Health and Gender Ageing teams
Geographic Reach Africa 
Policy Influence Type Influenced training of practitioners or researchers
Impact We held a stakeholder meeting with Ministry of Health and Ministry of Gender (which looks after older people). We introduced the study and our work. They asked for a workshop on methods and internationally recongized evaluation of Research in Older Persons. This was held by the multi-disciplinary team. It included a round table discussion on development of research priorities for the Mininstries for Older Persons.
 
Description Training on Qualitative data collection and analysis
Geographic Reach Africa 
Policy Influence Type Influenced training of practitioners or researchers
Impact Study team have gained skills for analysis of qualitative data which has led to submission of an abstract to the International AIDS Society Conference 2019. 20 Masters students gained training in qualitative data collection methods and use of NVIVO software.
 
Description Extending the Pictures of Ageing multi-disciplinary network to Southern and Eastern Africa
Amount £14,789 (GBP)
Funding ID SYAG/086, RG 102642 
Organisation University of Cambridge 
Sector Academic/University
Country United Kingdom
Start 01/2020 
End 07/2020
 
Description Collaborative agreement between University of Cambridge and Infectious Diseases Institute, Makerere University 
Organisation Makerere University College of Health Sciences
Department The Infectious Diseases Institute, Kampala
Country Uganda 
Sector Hospitals 
PI Contribution This collaboration has enabled this research project to be completed; we have had oversight of the project, and supported protocol development/ IRB approvals/ Managed the International Advisory Board
Collaborator Contribution IDI have managed the project in Uganda including protocol approvals, data collection, data management, running of the exhibition, sub-granting to smaller organisations
Impact Summary outputs 1) protocol approved by Ugandan and Cambridge IRB 2)data collection undertaken 3) Exhibition in community of art work/ fashion show/ dance and singing 4) Community peer support groups for older people established in 4 villages 5) Engagement in Ministry of Gender national activities for older persons
Start Year 2018
 
Description CSaP talk - How to stop bad data driving out the good in an age of misuse, misleadingness and misinformation 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact CSaP talk - How to stop bad data driving out the good in an age of misuse, misleadingness and misinformation
4 March 2019

Ed Humpherson is the CEO of the Office of Statistics Regulation. He gave an elegant talk about how numbers can be used poorly - The Number, misleading and too much unsignposted data. He talked about creating standards and reporting on these, how his office has interacted with government departments to call such practice out and how they have responded. He also talked about responsible media.

I gained insight into how such a government function can operate to hold government to account. It highlighted the fact that this is possible to do within a (relatively) stable governmental/public domain structure but that it would be unlikely professional integrity heading for CPD.
Year(s) Of Engagement Activity 2019
 
Description Contemporary populations and dementia, what have we learnt and where are we headed 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact A talk was given at Fourth Annual NHMRC National Institute for Dementia Research Australian Disease Forum 2019 at Hobart, Tasmania

Keynote Address: Contemporary populations and dementia, what have we learnt and where are we headed?
Year(s) Of Engagement Activity 2019
 
Description Global Challenges Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Presentation at Cambridge Global Challenges (CGC) conference on 27 11 18. We presented on the project progress so far. This included partnership and project development. Representatives and interested academics from around Cambridge attended
Year(s) Of Engagement Activity 2018
 
Description Mapping Morality in Global Health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Study co-ordinator Dr Hortense Videler made a presentation at Mapping Morality in Global Health conference in Cambridge. 26th June 2018. Presented lessons learnt from first partnership meeting in Kampala Jan 2018
Year(s) Of Engagement Activity 2018
 
Description Pictures of Ageing Presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Dr Alice Reid presented on the project for the Public Health at Cambridge network event on Global Health in June 2018. This was a learning day in Cambridge to foster discussion on global health issues across the entire university
Year(s) Of Engagement Activity 2018
 
Description WHO Bulletin Interview with Carol 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Interview with Carol Brayne: a life-course approach to prevent dementia
https://apps.who.int/iris/handle/10665/272247
WHO Bulletin Interview with Carol
Year(s) Of Engagement Activity 2018
URL https://apps.who.int/iris/handle/10665/272247