A View from the Inside: Portraying the Experience of Mental Illness

Lead Research Organisation: University of Westminster
Department Name: Faculty of Media Arts and Design

Abstract

As a visual artist working in an academic context, I propose to create a series of large-scale photographic portraits of people with short-term psychotic disorders or episodic conditions like schizophrenia. These images will challenge the viewer to readdress his or her ideas about 'the type of people' represented. Subjects will be depicted normally, but the settings in which they are located will be altered digitally to coincide with the perceptual experiences described by each person. This interdisciplinary project will draw on the conventions of portraiture, on scientific understandings of the inner worlds of those who experience psychotic states and on the lived experiences of affected individuals. I will use digital manipulation to create images that subvert established pictorial conventions and, in doing so, question conventional ways of thinking about and relating to people with mental illness.

The term psychosis literally means 'abnormal condition of the mind'. It is used to indicate a mental state often described as involving a 'loss of contact with reality'. Schizophrenia is a general term for a group of psychotic disorders characterized by long term disturbances in perception, affect, behaviour, and communication. A person's lived experience of psychosis could be seen to contradict accepted notions of what constitutes 'reality'. In fact, the involuntary loss of a 'normal' sense of reality is an aspect of human experience that remains stigmatized because we cannot account for it. The proposed photographs will form an essential contribution to my ongoing project of making work that challenges established conceptions of the relationships between identity, subjectivity and what is 'normal'. It will build on previous photographic projects such as After Image (1997), 'I' (1999) and Skin (2000), made in collaboration with people with physical disabilities or severe skin conditions.

The imagery I create as a result of this new research will be inspired by the symbolism and style of historical portrait paintings. The purpose of the type of painting that I will refer to is usually to aggrandize and dignify the individual by showing him or her in an ornate interior, or outdoors as a wealthy landowner. In these paintings the subject of the portrait is characterized visually, using a number of symbolic and narrative elements. The subjects of my work will be people whose ability to function within society has been affected by the experience of mental illness. I am interested in the challenge of creating a series of believable, realistic images that reveal something of the chaotic and sometimes incomprehensible inner worlds of the people portrayed. Based on the physiognomic belief that a person's appearance mirrors his or her subjectivity or 'inner' identity, a traditional concern of portraiture has been to create an external 'likeness' of someone. In depicting both the external appearance and the internal experiences of the subjects, I aim to create rich and compelling images that will bring mental health issues into the public domain. These images will also provide a means of publicly representing the experiences of people whose sense of reality does not always coincide with that of 'normal' people.

Planned Impact

The principal investigator will manage all the impact activities relating to this project, during both the research and dissemination phases.

Beneficiaries of the project will include people who experience intermittent or short-term psychoses, in particular those who participate in the research. The process of devising a means of visual representation for their unique perceptual experiences should be both cathartic and rewarding for participants of the research phase of the project. As principle investigator I will undertake this research and, under the guidance of staff at Kings College Institute of Psychiatry, will ensure that the research is conducted in such a way that it not only informs the outcome of the project, but is also of maximum benefit to participants themselves. All participants will be free to engage with the project as much or as little as they wish and can withdraw from it at any point. At the end of the grant period each person will be asked to complete a written consent form, giving permission for his or her image to be exhibited publicly.

The photographs will be exhibited in hospitals such as the Maudsley in South London, where patients, families and medical professionals will be able to see them. One of the project partners, Dr Heidi Lemppe, who is a senior qualitative researcher at Kings College and a specialist in medical education, will help to facilitate this exhibition. (Please see attached letter of support from Professor Thornicroft at Kings College Department of Psychiatry). I have a longstanding track record of exhibiting in medical contexts.

The photographs will also be exhibited in art galleries and museums that attract a broad audience, both in this country and abroad. In this case, artists, arts organizations and the gallery going public will benefit from the project.

I am currently in conversation with the Freud museum in North London. This is a new connection, established with a view to exhibiting the photographs at the museum. The context of psychoanalysis will offer a framework for investigating particular theoretical interpretations of what constitutes reality.

The cost of producing the photographs for exhibition will be in the region of £15,000. It is anticipated that the costs of mounting exhibitions, openings and publicity will be covered by the venues.

The public will benefit from seeing the work online. It will be documented at: www.alexawright.com. This site was visited more than 8000 times in 2009. I will upload the works myself, so the cost of this will be minimal.

After winning the 'Beauty' category in Channel 4 Year 1 photography competition an image depicting the hands of a woman with Vitiligo from my previous photographic work 'Skin' (2000) was used by the Vitiligo society in a promotional campaign. Mental health charities such as Mind could benefit in a similar way by using one or more of the photographs from this new series in a promotional or informative context.

At the end of the research period a select group of forty to fifty artists, arts professionals, mental health professionals and service users will be invited to a symposium at University of Westminster on the theme of 'Otherness', with a focus on the role of visual representation of psychological differences.

Copyright for the work will remain with the artist. It is unlikely that the project will generate intellectual property of any commercial value.

Publications

10 25 50
 
Title A View From Inside (Book) 
Description Limited edition (800) artists book. Hardcover, 40 pages 10 full colour illustrations, fine art print, 270 x 210 mm A View from Inside aims to challenge preconceptions of what constitutes reality. The ten portrait photographs in the book draw on the principals of eighteenth century portrait painting to give form to the unique realities encountered by different people during psychotic episodes. The accompanying narratives offer a vivid first-hand insight into the experiences of the people portrayed. Two essays, by psychiatrist, Professor Graham Thornicroft (IOP Kings College, London) and Canadian cultural theorist, Jeanne Randolph give the portraits a wider theoretical and social context. ISBN 978-0-9571558-0-0 
Type Of Art Artefact (including digital) 
Year Produced 2012 
Impact Copies of the book have been distributed worldwide in both art and mental health contexts and have contributed to a change of attitude towards those who experience mental ill-health. For example, an article on the work was published in Chatelaine, the largest-selling women's magazine in Canada: Whyatt, Antonia, 'Voices in my Head', Chatelaine, October 2012, pp.186-7. 
URL https://aviewfrominsidephotoseries.wordpress.com
 
Title A View From Inside (Exhibition Photographs) 
Description A View From Inside (2012) is a series of ten digital C-type photographs, framed, 100 x 76cm. Located in English Heritage or National Trust properties, these formally structured, digitally manipulated portrait photographs draw on the principals of eighteenth century portrait painting to give form to some of the unique realities encountered by different people during psychosis. The aim was not to exoticise the 'unreal' or bizarre perceptual experiences of the people portrayed, but to use digital media both to explore this notion of 'reality', and to find a visual language that will provoke discussion and add to our understanding of the experience of mental illness, and of psychosis in particular. 
Type Of Art Artwork 
Year Produced 2012 
Impact A View from Inside follows my earlier projects such as the award-winning series, After Image (1997), which pioneered the use of Photoshop to question the nature of portraiture. Using the medium of digitally manipulated photography in a way that simultaneously draws on and subverts the traditions of both painting and photography, this research project "realises" the subjective experiences of its subjects in a new way. Participants were consulted throughout the project, and played an active role in the decision-making process. In many cases this impacted on the person's self esteem and relationship with his/her experiences whilst unwell. Part of the intention of this work was to help reduce the stigma around mental ill-health. The photographs have been exhibited in art galleries and museums, and the project was the subject of a short BBC documentary, 'Postcards from Another Person's Reality', Rachael Buchannan, April 10, 2012. It was also featured on BBC World, 'En fotos: la realidad desde el punto de vista de quienes sufren de psicosis', Laura Plitt, April 14, 2012. Several blog posts refer to the impact of this work, including: http://scicomm2012.deviantart.com/art/A-View-from-Inside-by-Alexa-Wright-305611499 ; http://theworldofmentalists.com/2012/04/11/this-news-in-mentalists-the-alternative-reality-edition/ 
URL https://aviewfrominsidephotoseries.wordpress.com
 
Description The ten portrait photographs that make up 'A View From Inside' draw on the principals of eighteenth century portrait painting to give form to some of the unique realities experienced by different people during psychotic episodes. Whilst the people I have photographed here all appear entirely 'normal', their ability to function within society has, to varying degrees, been affected by the experience of a psychotic 'disorder' such as Bipolar or Schizophrenia. Visual, auditory and other sensory phenomena experienced by someone during a psychotic episode contradict accepted notions of what constitutes 'reality', and yet for that person they are absolutely real. The disorder and disruption arising out of even a temporary detachment from consensual reality can be immense, as the first-hand accounts documented in a book accompanying the images demonstrate.



In making 'A View from Inside' I was interested in the challenge of creating believable, realistic pictures that reveal some of the chaotic and sometimes incomprehensible experiences that are present for an individual during psychosis, but are not accessible to anyone else. In these photographs the physical expression of the subject reveals nothing of his or her inner world. It is the (highly constructed) setting -which in each case incorporates a view through a window and an array of significant objects - that gives some clue to each individual's private world.

Having visited many potential locations for these portraits, I was drawn to sumptuous (but faded) eighteenth century interiors because of their elegant symmetry and sense of order. Each of the chosen sites seemed to offer a suitable setting for the unusual array of objects it was to host, and at the same time to characterize the atmosphere of a particular psychotic episode, or series of episodes. Although I have digitally reconstructed most of the rooms depicted to create places that don't quite exist in the 'real' world, the components of each space (doors, windows, walls etc.) were all derived from the same location.

Everyone involved in the project volunteered to participate, most in response to a call put out by 'Rethink Mental Illness', which elicited nearly a hundred responses. On a personal level, I was impressed by the courage and generosity of all the people who have worked with me on this project. The images have, by necessity, been arrived at collaboratively. In each case my visual interpretations were discussed with the person depicted, and then modified to arrive at a final image that characterizes his or her recollected experiences. The aim has been to find a form for the seemingly irrational events that people described, whilst retaining some sort of pictorial logic.


The photographs and book created as a result of this grant aim to help people to think again when treating someone with a mental illness differently out of fear, misunderstanding or prejudice. By giving form to some of the fascinating psychotic experiences of a small group of randomly selected people, the portraits also provide a stimulus for questioning our established, consensual understanding of what constitutes reality. I plan to continue this research during a residency at Camden and Islington Foundation Trust in 2015.
Exploitation Route The ten photographic portraits have been and continue to be exhibited in art galleries, museums and other public spaces. As well as acting as a catalogue for the exhibition, the book has been distributed widely. The mental health charity Rethink Mental Illness have supported its distribution.



A short film about the project is currently in production and will be aired on the health page of the BBC website in January 2012 to co-incide with the launch of the book.
Sectors Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections

 
Description The work has been used by project participants and others as a tool to reduce stigma around mental health.
First Year Of Impact 2012
Sector Healthcare,Culture, Heritage, Museums and Collections
Impact Types Cultural,Societal

 
Description Participant collaboration 
Organisation Rethink Mental Illness
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The project was of direct benefit to the Rethink members who took part. I donated copies of the book to Rethink for use by members and for their publicity.
Collaborator Contribution Rethink assisted me by publicising the project to their members via their Facebook page and Twitter account. I received over 100 messages from Rethink members willing to participate in the project. Some meetings with participants took place at Rethink offices.
Impact The outcomes are those listed in the artistic outcomes section.
Start Year 2011
 
Description 'Phantom Limb' - exhibition 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact 9 July 2016 - 11 February 2017

An interactive exhibition focusing on medicine, memory and the treatment process as part of the Liverpool Biennial 2016 Fringe.

Phantom Limb is an exhibition of around 20 works by nine artists, most of whom work from their own personal experiences of operations and illnesses.

It focuses on medicine and the psychological impact of the treatment process, in particular how memory physically and mentally affects illness, how pain impacts on memory and cognitive functioning and how memory impacts on pain physically (e.g. phantom pain) and mentally through trauma. It also considers the effect memory has on mental illness.

The exhibition is a partnership project between award-winning artist Euan Gray, and Dr Daniel Whistler, from the University's Centre for Health, Arts and Science.
Year(s) Of Engagement Activity 2016
URL http://vgm.liverpool.ac.uk/whats-on/special-exhibitions/phantomlimb/
 
Description Born in 1987: the Animated Gif 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact An animated version of A View From Inside 3 was exhibited on the new Digital Wall as part of the inaugural exhibition, Born in 1987: the Animated Gif at the new Photographers Gallery in London, May 19, 2012-July 7, 2012. Curated by Katrina Sluis.

Unknown
Year(s) Of Engagement Activity 2012
URL http://thephotographersgallery.org.uk/the-wall-2
 
Description Digital Aesthetic 3 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact International exhibition and conference curated by Chris Meigh Andrews at University of Lancaster and Harris Museum and Art Gallery, Preston. I gave a 20 minute presentation, followed by lively questions and discussion from the audience of around 60. The work was on show from October 6, 2012-January 5, 2013.

Digital Aesthetic³ (2012) was an international exhibition and conference, the third and final in the Digital Aesthetic series, curated by Lindsay Taylor and Chris Meigh-Andrews at the Harris Museum & Art Gallery. It was a celebration of some of the diverse ways in which digital media can impact on thinking and explored the impact that the digital has on our sense of self and our relationship to the physical world. It was the third and final manifestation of the Digital Aesthetic series which included The Digital Aesthetic, (2001) and Digital Aesthetic 2 (2007).
Year(s) Of Engagement Activity 2012
URL http://www.meigh-andrews.com/curatorial-projects/digital-aesthetic-3-2012
 
Description Kaleid Book Fair 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Schools
Results and Impact Exhibition of artists' books, selected by Victoria Browne at Kaleid editions,

Mermaid Court, London SE 1.

As a result of this exhibition a copy of the book is now in the National Art Library
Year(s) Of Engagement Activity 2012
 
Description NordArt 2015 International Exhibition 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Large, International exhibition in Budelsdorf, Germany.
Year(s) Of Engagement Activity 2015
URL http://www.nordart.de/en/ueber-die-nordart.html
 
Description Photomonitor 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The A View From Inside series was published in the online photography journal, Photomonitor

N/A
Year(s) Of Engagement Activity 2013
URL http://www.photomonitor.co.uk/2013/07/a-view-from-inside/
 
Description Piecing it Together 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact This is a blog documenting my recent project, Piecing it Together.

I have had a number of contacts from interested parties
Year(s) Of Engagement Activity 2015
URL http://www.piecingittogether.org
 
Description Portas Abertas 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Portas Abertas was an international artistic project organised by Fórum Eugénio de Almeida on the occasion of its opening in the former Palácio da Inquisição (Palace of the Inquisition), in Évora, Portugal. Exhibition of around 60 International artists curated by Claudia Giannetti.

Unknown
Year(s) Of Engagement Activity 2013
 
Description Postcards from Another Person's Reality 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact A short film was made by the BBC on the A View From Inside project and was published on the BBC News website. Information on the project was also translated into Spanish and presented on BBC World.

As a result of the programme the project was discussed in blogs and online forums concerning mental health.
Year(s) Of Engagement Activity 2012
URL http://www.bbc.co.uk/news/health-17618459
 
Description SCAN Photobook Festival, Tarragona, Spain 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact SCAN PHOTOBOOKS
19 october 2016 | 8 january 2017

In recent years we have seen a rise of self-published photobooks. This consolidates and confirms a new form of creation, an expression closely related to emerging contemporary photography. For this reason, and for the second consecutive year, SCAN Tarragona Festival wants to highlight the quality of these self-published photobooks, not only as a means of expression, but also as a new way of presentation of the work.
Year(s) Of Engagement Activity 2016
URL http://www.scan.cat/es/scan-photobooks/
 
Description Slippage, The Unstable Nature of Difference, exhibition and symposium 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact I was invited to exhibit part of the A View From Inside series along with some other earlier works in this curated exhibition on the subject of disability and difference at the University of Chester Gallery. I was also invited to speak at an associated symposium at the University of Chester.
Year(s) Of Engagement Activity 2015
URL http://www.slippage.info/about/
 
Description Somatechnics International Conference Missing Links: The Somatechnics of Decolonisation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact I was an invited keynote speaker at the 7th international Somatechnics Conference, Linköping University, Sweden. The idea of somatechnics, which has gained wide critical currency since it was first coined, reflects an understanding of corporeality, embodied subjectivity and sociality as always already produced by, and imbricated with, a wide range of contextual practices, technologies and techniques. Most of the presentations at the conference were theoretical papers, my artist's presentation was enthusiastically received and my work much talked about during the remainder of the conference.

TBC
Year(s) Of Engagement Activity 2013
URL https://www.tema.liu.se/tema-g/somatechnics-international-conference-missing-links?l=en
 
Description The Photobook Exhibition, Athens Photo Festival, Benaki Museum, Athens 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact In recognition of the increasing importance of the photo book in contemporary photographic practices, the Festival presents a specific exhibition dedicated to the form of book.

The Festival is pleased to present a selection of over 350 new photobooks from all over the world, including photobooks independently or commercially published and distributed, handmade, self-published, book dummies, exhibition catalogues, zines and limited edition photography books, etc. The exhibited titles have been selected through an international open submission process, inviting artists and publishers to submit their books.

The exhibition takes place at the Benaki Museum (Pireos Annexe), providing an opportunity for the audience to explore the diversity of contemporary photographic books.

In addition to the exhibition, these publications will be featured through an online public access catalog, as a way to further promote their visibility.

9 June - 31 July, 2016
Benaki Museum Pireos Annexe
Pireos 138 & Andronikou, 118 54 Athens
Year(s) Of Engagement Activity 2016
URL http://www.photofestival.gr/photobook-exhibition