Disability and Community: Dis/engagement, dis/enfranchisement, dis/parity and dissent - aka The D4D project
Lead Research Organisation:
Bath Spa University
Department Name: Research Support Office
Abstract
Disability and Community: Dis/engagement, Dis/enfranchisement, Dis/parity and Dissent (aka the D4D project) will investigate the evolving ways in which disabled people express, perform, experience and practise 'community'.
The work will be informed by critical disability theory, and it will foreground the knowledge and lived experiences of disabled people. The project team brings together academics from a range of disciplines, community investigators with expertise in performance and arts practice, and community partners (including Shape, Accentuate and DRUK).
Our goals are to learn from participating communities, to build understanding, to generate opportunities for connections, solidarity, resilience and activism, and to create meaningful legacies for the communities and partners involved.
D4D will explore aspects of the historical, clinical, institutional, political and technological construction of disabled communities, and trace the ways in which community members have contested, rejected and embraced these varied possibilities over time. The project will facilitate agency and empowerment among participants, facilitate knowledge exchange and professional development, and create new spaces for dialogue and intervention.
D4D's research question is: In what ways are disabled people connected/disconnected to/from surrounding communities, and how might they trouble existing affiliations, re-situate themselves, and re-shape communities around them?
The team will explore this question while drawing on disability studies and community research literature, and engaging in continual collaboration and reflection (on issues of power, ethics and research practice, for example).
There will be 8 work streams:
WS1 - will explore issues of integration and marginalization, focusing on two settings: mainstream schools and the work-place. It will explore lived experience of 'inclusion'. This work will combine ethnographic studies, with a series of cultural animation workshops through which disabled participants will articulate and explore aspects of inclusion and marginalization.
WS2 - will explore the ways in which technology might impact on or facilitate experiences of social belonging, by focusing on play. The steam will support methodological development, as it will involve exploring the ways in which new technologies can support the agentic participation of non-traditional research participants.
WS3 - will examine the origins, development and future of the Disability Arts community. In particular, this will involve exploring the tensions within 'identity arts' movements regarding issues of affiliation and community.
WS4 - this strand will explore how participants form, experience and express alternative community, as well as how they manage their (dis)placement and disqualification by mainstream society. This research will also support disabled communities critically responds to clinical practice.
WS5- In this strand, arts based research will drive an investigation of past, present and future disabled communities. In particular, through the creation and exhibition of an interactive art-piece, 'Evolution', mainstream audiences will be asked to consider disability perspectives on such matters as eugenics and genetic screening.
WS6 - Playful Bodies, Technology and Community will address technologies, social change and the body, and identify the implications for disability and community, while drawing on player studies, social media research, collaborative game design, and public play.
WS7 - Ethics, reflection and learning for participation will inform all the above activities and support the practices and professional development of all those taking part.
WS8 - Will provide a forum for skill sharing and knowledge exchange across all streams, and work to maximize impact across and beyond the academic.
The work will be informed by critical disability theory, and it will foreground the knowledge and lived experiences of disabled people. The project team brings together academics from a range of disciplines, community investigators with expertise in performance and arts practice, and community partners (including Shape, Accentuate and DRUK).
Our goals are to learn from participating communities, to build understanding, to generate opportunities for connections, solidarity, resilience and activism, and to create meaningful legacies for the communities and partners involved.
D4D will explore aspects of the historical, clinical, institutional, political and technological construction of disabled communities, and trace the ways in which community members have contested, rejected and embraced these varied possibilities over time. The project will facilitate agency and empowerment among participants, facilitate knowledge exchange and professional development, and create new spaces for dialogue and intervention.
D4D's research question is: In what ways are disabled people connected/disconnected to/from surrounding communities, and how might they trouble existing affiliations, re-situate themselves, and re-shape communities around them?
The team will explore this question while drawing on disability studies and community research literature, and engaging in continual collaboration and reflection (on issues of power, ethics and research practice, for example).
There will be 8 work streams:
WS1 - will explore issues of integration and marginalization, focusing on two settings: mainstream schools and the work-place. It will explore lived experience of 'inclusion'. This work will combine ethnographic studies, with a series of cultural animation workshops through which disabled participants will articulate and explore aspects of inclusion and marginalization.
WS2 - will explore the ways in which technology might impact on or facilitate experiences of social belonging, by focusing on play. The steam will support methodological development, as it will involve exploring the ways in which new technologies can support the agentic participation of non-traditional research participants.
WS3 - will examine the origins, development and future of the Disability Arts community. In particular, this will involve exploring the tensions within 'identity arts' movements regarding issues of affiliation and community.
WS4 - this strand will explore how participants form, experience and express alternative community, as well as how they manage their (dis)placement and disqualification by mainstream society. This research will also support disabled communities critically responds to clinical practice.
WS5- In this strand, arts based research will drive an investigation of past, present and future disabled communities. In particular, through the creation and exhibition of an interactive art-piece, 'Evolution', mainstream audiences will be asked to consider disability perspectives on such matters as eugenics and genetic screening.
WS6 - Playful Bodies, Technology and Community will address technologies, social change and the body, and identify the implications for disability and community, while drawing on player studies, social media research, collaborative game design, and public play.
WS7 - Ethics, reflection and learning for participation will inform all the above activities and support the practices and professional development of all those taking part.
WS8 - Will provide a forum for skill sharing and knowledge exchange across all streams, and work to maximize impact across and beyond the academic.
Planned Impact
Who will benefit?
The beneficiaries of this research fall into four main groupings:
1) The key beneficiaries of this project will be people with disabilities themselves, including user groups and activist communities. We particularly aim to improve service provision and quality of life for people with disabilities, not least by enabling the voices of people with disabilities to be heard as co-producers of the research;
2) Professional communities and service providers across a number of fields including arts, health and social care, education and employment;
3) The policy audience, including those government departments whose policies most directly impact upon the lives of people with disabilities, including the Departments of Health, Education, Work and Pensions, Business, Innovation and Skills, Culture, Media and Sport, and Communities and Local Government. Local Government itself will be another key beneficiary;
4) The general public.
How will they benefit?
Our aim is to create meaningful legacies for the communities and partners involved. Participants will benefit through the opportunities for reflection on their everyday lives, connections to others, and support with articulation of concerns and aspirations. D4D seeks to help them to establish both new voices and new networks.
We seek to provide a better, stronger evidence base which will challenge the assessment orientated, positivist models of disability that continue to manifest in economic policy and educational practices. We seek to address issues of power, alienation and marginalisation, shifting emphasis to the voices and lived experience of participants, promoting agency and integration, and providing a new model for people working with communities of people with disabilities.
This new model will improve engagement between manufacturers and providers of technology and the users of that technology, improving end products so that they better meet the needs of users. It will also inform and change practice so that schools and employers are better able to integrate people with disabilities.
Our focus on inclusivity will extend to the connections we create, as we will bring together organisations that have hitherto rarely worked together. Many of our partner organisations are local grassroots organisations, and we will help these link to national organisations involved with this project, such as DruK and Mencap.
Practitioners, professionals and policy-makers will be provided with new understandings and insights. They will be encouraged to engage with accounts that portray in vivid ways the outcomes of policy and entrenched practice. In each context we will seek to provide a forum for open and direct dialogue with disabled people and user groups.
Through pop-up and larger events, we will also assist the general public through thought-provoking performance that will engender more profound and humane understandings of disability and the issues that confront disabled people on an everyday basis.
The beneficiaries of this research fall into four main groupings:
1) The key beneficiaries of this project will be people with disabilities themselves, including user groups and activist communities. We particularly aim to improve service provision and quality of life for people with disabilities, not least by enabling the voices of people with disabilities to be heard as co-producers of the research;
2) Professional communities and service providers across a number of fields including arts, health and social care, education and employment;
3) The policy audience, including those government departments whose policies most directly impact upon the lives of people with disabilities, including the Departments of Health, Education, Work and Pensions, Business, Innovation and Skills, Culture, Media and Sport, and Communities and Local Government. Local Government itself will be another key beneficiary;
4) The general public.
How will they benefit?
Our aim is to create meaningful legacies for the communities and partners involved. Participants will benefit through the opportunities for reflection on their everyday lives, connections to others, and support with articulation of concerns and aspirations. D4D seeks to help them to establish both new voices and new networks.
We seek to provide a better, stronger evidence base which will challenge the assessment orientated, positivist models of disability that continue to manifest in economic policy and educational practices. We seek to address issues of power, alienation and marginalisation, shifting emphasis to the voices and lived experience of participants, promoting agency and integration, and providing a new model for people working with communities of people with disabilities.
This new model will improve engagement between manufacturers and providers of technology and the users of that technology, improving end products so that they better meet the needs of users. It will also inform and change practice so that schools and employers are better able to integrate people with disabilities.
Our focus on inclusivity will extend to the connections we create, as we will bring together organisations that have hitherto rarely worked together. Many of our partner organisations are local grassroots organisations, and we will help these link to national organisations involved with this project, such as DruK and Mencap.
Practitioners, professionals and policy-makers will be provided with new understandings and insights. They will be encouraged to engage with accounts that portray in vivid ways the outcomes of policy and entrenched practice. In each context we will seek to provide a forum for open and direct dialogue with disabled people and user groups.
Through pop-up and larger events, we will also assist the general public through thought-provoking performance that will engender more profound and humane understandings of disability and the issues that confront disabled people on an everyday basis.
Organisations
- Bath Spa University (Lead Research Organisation)
- M&C Saatchi (Collaboration)
- Misfits Theatre Company (Collaboration)
- University of Amsterdam (Collaboration)
- UNIVERSITY OF WESTMINSTER (Collaboration)
- Cardiff University (Collaboration)
- Bright Black Associates (Collaboration)
- SICK! Productions Ltd. (Collaboration)
- Autograph ABP (Collaboration)
- Disability Rights UK (Collaboration)
- hastings contemporary (Collaboration)
Publications
Bell, S.L. & Bush, T.N.
(2020)
'Never mind the bullocks': animating the go-along interview through creative nonfiction
in Mobilities
Bolt D
(2019)
Routledge Handbook of Disability Studies
Bolt, D.
(2022)
Introduction: Disability Futurity
in Journal of Literary and Cultural Disability Studies
Brydon-Miller M
(2019)
The Wiley Handbook of Action Research in Education
Brydon-Miller M
(2020)
Participatory Action Research: International Perspectives and Practices
in International Review of Qualitative Research
Brydon-Miller M
(2019)
Reflections of the role of relationships, participation, fidelity, and action in participatory action research
in Educational Action Research
Brydon-Miller M
(2018)
Critical learning, community, and engagement: elements for creating positive learning environments and opportunities for positive change
in Educational Action Research
Brydon-Miller, M.
(2018)
First-, second-, and third-person values-based ethics in educational action research: Personal resonance, mutual regard,and social responsibility.
in Educational Action Research
Brydon-Miller, M.
(2018)
Critical learning, community, and engagement: Elements for creating positive learning environments and opportunities for positive change
in Education Action Research
Brydon-Miller, M.
(2018)
Den ufærdige fremtid: Aktionsforskningens potentialer og udfordringer
Burke L
(2021)
Hostile environments? Down's syndrome and genetic screening in contemporary culture
in Medical Humanities
Bush Tanvir
(2019)
Cull
Caleb-Solly P
(2018)
Exploiting ability for human adaptation to facilitate improved human-robot interaction and acceptance
in The Information Society
Carr, D.
(2017)
Methodology, Representation and Games
in Games and Culure
Carr, D.
(2019)
Methodology, Representation, and Games
in Games and Culture
Carr, D.
(2020)
Bodies That Count: Augmentation, Community and Disability in a Science Fiction Game
in Journal of Literary and Cultural Disability Studies
D.Carr
(2019)
Games, Play, Meaning and Minecraft
in Well Played: A Journal of Video Games, Value, and Meaning
D4D Project Team
(2022)
Future Perfect - Future Imperfect?
Disconsortia
(2020)
At the Table (A Digital Exhibition)
Harvey, S
(2021)
The Pivotal Roles of Racism and Discrimination in Mental Health
Harvey, S.
(2022)
Hierarchies of Disability
Levinson, M.P.
(2020)
The quest for genuinely participatory and inclusive research approaches: exploring and expressing experience through Cultural Animation and Transcription Poetry
in International Review of Qualitative Research
Lucy Burke
(2021)
So What's the Problem with Peter Singer?
McHugh, L
(2020)
Disconsortia: is this group of disabled artists from the North East planning a hostile takeover?
in Disability Arts Online
Parker, R. & Levinson, M.P.
(2018)
Student behaviour, motivation and the potential of attachment-aware schools to redefine the landscape
in British Educational Research Journal
Ralph, T. & Levinson, M.P.
(2019)
Survival in the badlands: An exploration of disaffected students' uses of space in a UK secondary school
in British Journal of Sociology of Education
Read, S.
(2021)
A call to action for conducting research with people with profound and multiple learning Disabilities
in PMLD LINK
Sutherland, A.
(2021)
Electric Bodies: Travels in Life History
Sutton-Williams, N
(2021)
Sending Robot Doubles to Downing Street: Professor Martin Levinson on the D4D Project
Sutton-Williams, N
(2021)
Wizzybugs A Go Go: Robotics Engineer Praminda Caleb-Solly on her D4D project Catch Me If You Can
Sutton-Williams, N
(2021)
Changing Hearts and Minds with Verbatim Theatre: Director Sue Moffat on the D4D Project
Sutton-Williams, N
(2021)
Ableism and Scholar Activism: Researcher Lucy Burke on her D4D project Now You See Us
Sutton-Williams, N
(2021)
Giving Exposure to Learning-Disabled Artists: Researcher Andy Auld on his D4D PhD
Van Maris A
(2021)
A New Perspective on Robot Ethics through Investigating Human-Robot Interactions with Older Adults
in Applied Sciences
Winkle K
(2018)
Social Robots for Engagement in Rehabilitative Therapies
Winkle K
(2019)
Mutual Shaping in the Design of Socially Assistive Robots: A Case Study on Social Robots for Therapy
in International Journal of Social Robotics
| Title | Disconsortia - a space to explore new work and find impetus to keep creating art |
| Description | Pauline Heath shares a collage reflecting her practice. August 25, 2020 |
| Type Of Art | Artwork |
| Year Produced | 2020 |
| Impact | Increased profile for the artist |
| URL | https://disabilityarts.online/magazine/showcase/disconsortia-a-space-to-explore-new-work-and-find-im... |
| Title | Disconsortia Means |
| Description | Colly Metcalfe shared a creative response in British Sign Language of the impact of being part of the artists' collective 'Disconsortia' on her practice as an artist. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | Increased profile for the artist. |
| URL | https://disabilityarts.online/magazine/showcase/disconsortia-means/ |
| Title | Disconsortia: a safe space to experiment and to speak freely |
| Description | Steph Robson aka Hello Little Lady talks about her engagement with the north-east based consortium, supported by Disability Arts Online through our D4D project. Published August 11, 2020 |
| Type Of Art | Creative Writing |
| Year Produced | 2020 |
| Impact | Increased profile for the artist |
| URL | https://disabilityarts.online/magazine/opinion/disconsortia-a-safe-space-to-experiment-and-to-speak-... |
| Title | Disconsortia: a vehicle for responding to the crisis |
| Description | Award-winning internationally exhibiting artist Simon McKeown shares his thoughts on lockdown and the support of the collective in developing artwork responding to the crisis. Published September 11, 2020 |
| Type Of Art | Creative Writing |
| Year Produced | 2020 |
| Impact | Increased profile for the artist. |
| URL | https://disabilityarts.online/magazine/opinion/disconsortia-a-vehicle-for-responding-to-the-crisis/ |
| Title | Disconsortia: an unexpected key |
| Description | Lady Kitt shares artwork they have been developing with the support of the collective. Published September 2, 2020 |
| Type Of Art | Artwork |
| Year Produced | 2020 |
| Impact | Increased profile for the artist |
| URL | https://disabilityarts.online/magazine/showcase/disconsortia-an-unexpected-key/ |
| Title | Esther Fox, WS5 Institutionalised, Homogenised, Vaporised: Creation of a series of images based on 'troubling legacies' |
| Description | This piece is a response to a series of images selected from the Wellcome Archive and related to the investigation of disability, eugenics and emergent genetic technologies. |
| Type Of Art | Image |
| Year Produced | 2017 |
| Impact | The piece is currently being completed and has yet to be exhibited. Exhibition is planned for 2018 |
| Title | NDACA films - D4D poetry |
| Description | Allan Sutherland reads from his D4D transcription poetry 'Electric Bodies' sequence. Also discussion of the transcription poetry process. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | NDACA (National Arts Disability Collection and Archive) breaks new ground in recording the contribution of disabled artists in the UK. It is a significant repository providing a new archive that showcases the work of both historical and contemporary disabled artists. This product is not just about legacy, but also of significance to a wider audience of researchers who are interested creative approaches to methodology. |
| URL | https://the-ndaca.org/video/allan-sutherland-reads-his-poems-about-tony-heatons-artworks-springback-... |
| Title | Novel - Cull by Tanvir Bush |
| Description | 'Cull' is a novel written by Associate Research Fellow Tanvir Bush. It deals with themes that relate to D4D about the impact of austerity policies on disabled people. |
| Type Of Art | Artefact (including digital) |
| Year Produced | 2019 |
| Impact | Ongoing. Book launch in 2019. Engagement with wider public both through book sales and online. |
| URL | https://tanvirbush.com |
| Title | Novel by Tanvir Bush (Associate Research Fellow on D4D) |
| Description | Novel connecting to D4D research themes about impact of austerity on disabled people |
| Type Of Art | Artefact (including digital) |
| Year Produced | 2019 |
| Impact | Engagement with wider public through sales of book and online. |
| URL | https://tanvirbush.com |
| Title | Open Studio as part of Coastal Currents Arts Festival 2017 |
| Description | Esther Fox (Co I) exhibited a range of new images inspired by my research of the Eugenics Archive housed within the Wellcome Trust. She printed a range of tea towels and seed packets asking people to consider the absurdity of Eugenics rhetoric. This work was displayed in a beach hut over two weekends, as part of the open studios programme. This is a well known and established arts festival with internationally acclaimed artists also taking part. There were around 100 visitors over the two weekends. |
| Type Of Art | Artwork |
| Year Produced | 2017 |
| Impact | Many people were quite surprised to be confronted by such challenging images. Some of the comments included: "I am studying to be a doctor and I think art has a really important role to play in getting people to talk about issues of medical ethics" "These images are really difficult to look at - they really make you think". |
| URL | http://coastalcurrents.org.uk/about/ |
| Title | Transcript poetry by Allan Sutherland |
| Description | 'Thalidomide Acts', cycle of transcription poems by Allan Sutherland from interviews with actor Mat Fraser. Published on D4D website 'Making Links', cycle of transcription poems by Allan Sutherland from interviews with artist Tony Heaton. Published on D4D website |
| Type Of Art | Creative Writing |
| Year Produced | 2017 |
| Impact | The impact is ongoing - in terms of audience responses, reflections by the artists involved in the interviews, and by the academic team with regard to this innovative way of conducting and representing research data. |
| URL | http://d4d.org.uk |
| Title | WS3 Electric Bodies: 'At the Table' exhibition by Disconsortia |
| Description | At the Table is a digital exhibition of work by 17 disabled artists from North East collective, Disconsortia. It features poetry, visual arts, film, performance and a podcast amongst other things. |
| Type Of Art | Artistic/Creative Exhibition |
| Year Produced | 2020 |
| Impact | A review was commissioned from James Zatka-Haas by Disability Arts Online. https://d4d.org.uk/disconsortias-digital-exhibition-at-the-table/ |
| URL | https://www.disconsortia.co.uk/at-the-table-exhibition.html |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'A Different Way of Engaging' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Katherine Araniello presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2019 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities |
| URL | http://d4d.org.uk/a-different-way-of-engaging-tells-the-life-story-of-disabled-artist-katherine-aran... |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Making Links' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Tony Heaton presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2017 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities |
| URL | http://d4d.org.uk/making-links-tells-the-life-story-of-disabled-artist-tony-heaton/ |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Making Merry' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Robin Surgeoner presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2020 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities |
| URL | http://d4d.org.uk/making-merry-tells-the-life-story-of-disabled-artist-robin-surgeoner/ |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Not Getting Lost' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Vici Wreford-Sinnott presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2020 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities. Connection with Vici led to creation of Disconsortia (see other entries regarding this) |
| URL | http://d4d.org.uk/not-getting-lost-tells-the-life-story-of-disabled-artist-vici-wreford-sinnott/ |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Stories of Power' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Jess Thom presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2019 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities |
| URL | http://d4d.org.uk/stories-of-power-tells-the-life-story-of-disabled-artist-jess-thom/ |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Telling Stories' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Julie McNamara presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2019 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities |
| URL | http://d4d.org.uk/telling-stories-tells-the-life-story-of-disabled-artist-julie-mcnamara/ |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Thalidomide Acts' cycle of transcription poems |
| Description | cycle of poems created from interviews with Mat Fraser |
| Type Of Art | Creative Writing |
| Year Produced | 2017 |
| Impact | The cycle will be shared at Daisyfest in Autumn 2017 |
| Title | Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Ways of Understanding' cycle of transcription poems |
| Description | Cycle of poems created from interviews with Colin Hambrook presented as audio file and pdf download |
| Type Of Art | Creative Writing |
| Year Produced | 2019 |
| Impact | Increased understanding of the impact of disability arts on individuals and communities Colin's reflection also assisted the research with Diane Carr (see other entries for 'Making Strange' work) |
| URL | http://d4d.org.uk/ways-of-understanding-tells-the-life-story-of-disabled-artist-colin-hambrook/ |
| Title | disconsortia: a time 2 grow |
| Description | gobscure posts a duo of images reflecting on the sense of solidarity in being part of a collective. |
| Type Of Art | Image |
| Year Produced | 2020 |
| Impact | Increased profile for the artist. |
| URL | https://disabilityarts.online/magazine/showcase/disconsortia-a-time-2-grow/ |
| Description | SOCIAL INCLUSION As a Participatory Action Research project D4D set out to explore and celebrate disabled people's experience of community. External factors have impacted on the project - austerity, and Covid 19 both of which have disproportionately impacted disabled people. Our events and workshops have worked to develop agency, reaching out to disabled and non-disabled people, building shared understanding and self-understanding. ACADEMIC UNDERSTANDINGS Through our workstreams, we have explored connection/disconnection in various contexts: school, youth and play settings, virtual games, the workplace, and leisure / arts activities. As an interdisciplinary project, findings have been disseminated in a wide range of journals, reaching multiple audiences, concerned with health, education, sociology, social policy, technology, cultural studies and the arts. TECHNOLOGY AND SCIENCE Alongside Bristol Robotics, D4D developed and investigated the use of a playful wheelchair for young people, the 'Wizzybug', and the uses of the telepresence robot across different settings. D4D investigated an ethics-based model to respond to advances in the field of genomics involving technologies such as CRISPR that enable genetic editing/manipulation. The D4D team has widened discourse around neo-genetics. See Co-I Burke (2021) in BMJ's Medical Humanities. INNOVATIVE METHODOLOGIES Working with community partners and community co-investigators (including artists and poets), D4D has developed innovative and reflexive methods. Through workshops on Gaming and game playing (co-ordinated by Co Is Carr and Fox), and our Cultural Animation workshops (led by the New Vic Theatre), we have tested and refined arts-based approaches, making them more appropriate for disabled users. We have evolved new approaches to both data-collection and data representation - See PI Levinson (2020) in IRQR. We have developed approaches to Transcription Poetry (Co Is Sutherland and Hambrook, blending poetry, art and animation. (See, e.g. Electric Bodies: Epiphanies on YouTube). In each case, work has been informed by our separate workstream on Ethics, with the emergence of more genuinely collaborative research practice (See e.g. Co-I Bryson-Miller, 2018; van Maris, Caleb-Solly et al, 2021). Through a synthesis of research approaches of academics, artists and activists, we have sought to shift the focus of research culture away from academia, evolving processes that are more meaningful to participants. OUTPUTS We exceeded our initial commitments. For instance, the team produced three books, not one, along with academic papers, an exhibition, short films, podcasts, artefacts, performance poetry and animation, an Alternate Reality Game (or ARG) and a playful, interactive art installation. RESPONSE TO COVID 19 We collaborated with partner organisation WECIL to explore ways that D4D technology, the telepresence robots, could be utilised to access clients who were needing to self-isolate. We also collaborated with Hastings Contemporary and Saatchi, London, utilising the robots for virtual tours, keeping disabled and elderly people actively connected, as reported by the BBC, Guardian, New York Times and media outlets in places like India and South Africa. ENGAGEMENT WITH POLICY-MAKERS There has been sustained engagement during with policy-makers based in the Disability Unit, the DPW, the Cabinet Office, the Criminal Prosecution Service and the House of Lords. This engagement has concerned issues around science, technology, health, social welfare, work and education. OHCHR has published a D4D submission to the UN Human Rights Committee (see Levinson et al, 2020). INTERNATIONAL DIMENSION Through the workstream 'Brave New World', the project acquired an international dimension, a collaboration between academics, artists and activists in the UK, the Netherlands and Germany. The films and artefacts resulted in a ground-breaking initiative - see the D4D website, Virtual Museum of Disability and Eugenics: http://d4d.org.uk/workstreams/brave-new-world/brave-new-world-exhibition/ ACTIVITIES GROWING FROM D4D D4D has provided a platform for related projects. PI, Levinson, and Research Fellow, Bush, are part of a team of four at Bath Spa University awarded £1.1 million from the Wellcome Trust to develop a Disability Network across the South West. Disability Arts Online (DAO) have also received further funding, creating 'Disconsortia', a new organisation supporting North East based artists, and with Co-I Burke, ACE funded Transforming Leadership with Access All Areas Theatre. |
| Exploitation Route | CULTURAL LEGACY Development of international collaboration: Virtual Museum of Disability and Eugenics. We would like to give D4D's virtual museum a new 'wing', one concerned with disability futures. This could add artefacts that explore technologies such as prenatal diagnosis and CRISPR gene editing, emphasising lost futures if congenital impairments are screened out. This part of the museum could draw upon our expertise in co-production through work with disabled creative practitioners and showcase more utopian and provocative imaginings about the future of work, leisure, and community for disabled people. TECHNOLOGY D4D noted how inventions for disabled people are so often conceived and developed by non-disabled people. We could develop collaborations with companies to establish consultation processes with users at all stages. The D4D team in conjunction with Bristol Robotics considered innovative technologies, and in particular, the potential of the 'Wizzybug', a 'fun' wheelchair for disabled children, altering self-perception and external perceptions of disabled children. Our work indicates a need to review the design of all wheelchairs EDUCATION In terms of education policy, the research has highlighted the need to re-examine notions of 'inclusion', moving beyond 'box-ticking' to genuine integration. We are particularly concerned by a growing tendency to move disabled youngsters out of mainstream education, a step back to early C20 practice. A film made with disabled people across age-groups would be one option for making a statement about the impact of this kind of segregation. |
| Sectors | Communities and Social Services/Policy,Creative Economy,Digital/Communication/Information Technologies (including Software),Education,Environment,Healthcare,Government, Democracy and Justice,Manufacturing, including Industrial Biotechology,Culture, Heritage, Museums and Collections,Pharmaceuticals and Medical Biotechnology |
| URL | http://d4d.org.uk |
| Description | In terms of academic practice, we believe that the D4D project has had clear impact. This is manifested in several ways. One concerns community work and the building of long-term relationships and collaboration across projects. Several partners who were involved with the D4D team are now involved in follow-up work, such as the five year Wellcome Trust project to develop a new research network in the South West. It is not simply in the partners that the D4D work has impacted on that new project. D4D was committed to the notion of a new kind of inclusive research language and set of practices among disabled people. It aspired to the ideals of the Connected Communities programme. The new Wellcome work continues the idea of shifting the research landscape, involving partners at all phases of the process and redistributing power more equitably between academic and community partners. One area in which we felt we made particular progress was the work which has sought to promote the use of more creative research methods. We had set out to help develop creative ways of working with people who were liable to be particularly disadvantaged by traditional research approaches. It is difficult to evaluate the impact of the D4D team's use of alternative and arts-based research methods, but the response at conferences and presentations has been enthusiastic. The responses after conference presentations on these new approaches, which include the uses of Cultural Animation and Transcription Poetry, and 'Gaming' and Games-based workshops, have been enthusiastic, and it has been gratifying to receive feedback such as the following, demonstrating how other academics and students are reviewing their own practice: Wed, 9 Feb, 2022 Dear Professor Levinson, ... I'd just really like to thank you for your seminar today. It was very enlightening and has had a massive impact on how I seek to conduct my future research as a first year PhD student. My research centres around representations of disability within video games... I've reconfigured my whole approach and am hoping to involve participants in a series of open gaming sessions as a group to help breakdown the hierarchy...You have completely shifted the ways that I was looking at my research and I am so grateful for the reminder that as a researcher with a learning disability I want my research to be for the disabled community and not just for academic consumption... For the project team, the most important element here has been the signs of impact among participant / participant groups / agencies supporting disabled groups. Organisations involved in this group have also been changed through involvement. The development of relationships across disconnected groups, and the formation of new groups has been particularly significant. Co Is on D4D linked to DAO (Disability Arts Online) have helped to initiate a new group, Disconsortia, developing close relationships with disabled artists in the North-East. This connects two regional areas - the South East and North East - and also facilitates the cross-fertilisation of skills and development of knowledge, as well as building a sense of solidarity. One example of this has been an artist from the South East working with an animator in the North East to create new artefacts. Such an initiative was not envisaged originally as part of the research plan. Meanwhile, through the work involving Bristol Robotics, team members are also developing concepts of ways in which technologies might be more user-led. We have investigated technology such as the 'Wizzybug', a device to aid the mobility of physically disabled children, and we have explored ways of measuring its efficacy. Considering technology, there was unanticipated impact through our work with telepresence robots. Since the outset of COVID 19 the isolation experienced by disabled people (including participants in this project) has been heightened considerably. Furthermore, the isolation experienced by disabled people was now being experienced by the non-disabled community, too. The D4D team reviewed their focus, and sought to utilise skills and equipment to address the new situation. In particular, the telepresence robots that had been used in our work were redeployed. They were used by both the Hastings Contemporary art gallery and by the Saatchi gallery to provide guided tours of exhibitions for the benefit of disabled and elderly people trapped for long periods in their homes. This led to wide media coverage, nationally and internationally. The use of robots was reported in the BBC, broadsheets such as The Guardian, Telegraph and Times and in tabloids such as the Daily Mail. It was also reported in newspapers such as the New York Times, and across North America and Asia. Mention was even made to the use of the robots on 'Have I Got News for You'! In areas such as education and employment, the team has developed a framework for more genuinely inclusive practices. Practitioners have been influenced in several ways. For instance, WECIL (West of England Centre for Inclusive Learning) purchased its own robot doubles after working with the D4D team, and seeing the potential for engagement in other ways. This has been particularly important during the Covid period, when WECIL clients needed to self-isolate. At a political level, there has been engagement with central government policy-makers, such as Office for Disability Issues (ODI) and Government Office for Equalities. At this stage, it is too early to determine influence on policy, but a dialogue has been established that will continue, with members of the D4D team now receiving invitations from the ODI to contribute to reviews concerning disability issues. Meanwhile, a D4D report to the United Nations Human Rights Committee was published on the UN website, and an invitation was issued to the D4D team for further submissions /engagement. See: https://tbinternet.ohchr.org/_layouts/15/treatybodyexternal/SessionDetails1.aspx?SessionID=1371?=en |
| First Year Of Impact | 2019 |
| Sector | Communities and Social Services/Policy,Creative Economy,Education,Healthcare,Government, Democracy and Justice,Culture, Heritage, Museums and Collections |
| Impact Types | Cultural,Societal,Policy & public services |
| Description | Consultation meeting with Criminal Prosecution Service about Disability Hate Crime |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Disconsortia - An urgent statement on Arts Council England's Emergency Funding Package |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | The letter ensured that disabled creatives were considered during the distribution of emergency funding, helping more disabled creatives stay afloat in the most challenging financial and health-related circumstances. This led to 1,285 awards being made to D/deaf or disabled individuals or disabled-led organisations, totalling £8.5 million, with 79.4% of applicants offered funding. Source Page 4: https://www.artscouncil.org.uk/sites/default/files/download-file/Data%20report%20-%20Emergency%20Response%20Funds%20for%20Individuals%20and%20Organisations%20outside%20the%20National%20Portfolio.pdf |
| URL | https://disabilityarts.online/magazine/opinion/letter-to-the-editor-an-urgent-statement-on-arts-coun... |
| Description | Evidence to House of Lords Select Committee on Ageing: Science, Technology and Healthy Living |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://publications.parliament.uk/pa/ld5801/ldselect/ldsctech/183/18308.htm#_idTextAnchor112 |
| Description | Invited meeting - PI + three other members of D4D team with Cabinet Office policy advisers about disability and inclusion issues |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Office for Disability Issues (ODI) consultation with D4D team member about engagement of grassroots organisations to inform future policy-making |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.gov.uk/government/organisations/office-for-disability-issues |
| Description | Presentation to Civil Servants / Job Centre Senior Managers |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Presentation to the Office for Disability Issues |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://www.gov.uk/government/organisations/office-for-disability-issues |
| Description | Presentation to the Office for Disability Issues |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Providing advice on Arts Council England Investment Principles |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | This work ensured that information was created and provided in accessible formats so that everyone could access it. It ensured that the written policy was delivered from a social model of disability perspective. It ensured that access for disabled people was considered across all aspects of the Investment Principles Hub - not just in relation to inclusivity and relevance. |
| URL | https://www.artscouncil.org.uk/lets-create/explore-investment-principles |
| Description | Strategies to counter hate crime and prejudice |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Description | Submission to UN's ICCPR (International Covenant on Civil and Political Rights) - Periodic Review |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Citation in systematic reviews |
| URL | https://tbinternet.ohchr.org/_layouts/15/treatybodyexternal/SessionDetails1.aspx?SessionID=1371&Lang... |
| Description | invitation to contribute to consultation on workforce reporting on disability for Disability Unit, UK Government Cabinet Office |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Compassionate listening: Understanding the contemporary issues facing disabled people and organisations |
| Amount | £5,000 (GBP) |
| Organisation | Bath Spa University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 11/2020 |
| End | 06/2021 |
| Description | HealthTech Hub ERDF |
| Amount | £6,562 (GBP) |
| Organisation | University of the West of England |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 08/2020 |
| End | 01/2021 |
| Description | LeaD |
| Amount | £283,512 (GBP) |
| Funding ID | ACTL-00159960 (Lottery) |
| Organisation | Arts Council England |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2019 |
| End | 05/2022 |
| Description | Research Development Award 'Setting an Emancipatory Agenda: Disabled People's Research Network' |
| Amount | £1,040,680 (GBP) |
| Funding ID | 222872/Z/21/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2021 |
| End | 07/2026 |
| Description | Social Science in the City |
| Amount | £2,384 (GBP) |
| Organisation | University of the West of England |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 06/2020 |
| End | 10/2020 |
| Description | The Onyx Pilot Project |
| Amount | £62,032 (GBP) |
| Funding ID | ACPG-00357636 |
| Organisation | Arts Council England |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2021 |
| End | 05/2022 |
| Title | Cultural Animation |
| Description | Cultural animation (CA) is a research tool pioneered in the UK by D4D partner, the New Vic Theatre. Cultural Animation (CA) is an arts-based methodology of community engagement and knowledge co-production, involving game-playing. It operates through workshops in which safe spaces are created through playful approaches leading to shared reflection. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | Working within the D4D team, the New Vic theatre developed and refined the ways in which CA could be used as a research tool. In particular, it developed the uses of CA with disabled participants. Many workshops included people with learning difficulties, in which participants were able to problematise the method, and to further democratise strategies based on participant empowerment. Its use is being developed in different contexts, such as health research - see, e.g.: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6117486/#:~:text=Cultural%20Animation%20is%20an%20arts,democratize%20the%20process%20of%20research During the course of the project, D4D Co I, Sue Moffat, has demonstrated the use of CA in several international contexts, such as Greece, France, Canada and Japan. |
| URL | https://solace-research.com/cultural-animation/ |
| Title | Transcription Poetry |
| Description | Transcription Poetry (TP) has emerged as an alternative approach over the last two decades. D4D Co-I, Allan Sutherland, has played a prominent role in this, developing the technique in the context of disability. It involves the collection of many hours of interview transcriptions, followed by their organisation into poetry cycles. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | During the D4D project, TP was developed in an intensive way, and also problematised as an approach, not least through seeking the input of participants at the end of the process, not just during interviews. This adds a great deal to the uses of TP from an ethical perspective. |
| URL | https://journals.sagepub.com/doi/abs/10.1177/1940844720934372 |
| Title | Life History Interviews of 8 disabled artists - Electric Bodies |
| Description | Life History Interviews of 8 disabled artists conducted by Allan Sutherland that would go on to be turned into Transcription Poetry as a new form of research methodology. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2020 |
| Provided To Others? | No |
| Impact | These interviews captured life histories of eight prominent figures in the disability arts community. This led to increased understanding of the way in the which Disability Arts developed as a movement and the impact it had on the individual's sense of community within that. This also connects closely to history and understand of the disability rights movement. It also led to new understandings of the influence of punk and outsider culture on disabled individuals as a means of creating community and connection outside of the mainstream. |
| URL | http://d4d.org.uk/format/resource/?cat=5 |
| Description | Brave New World symposium in collaboration with Sick!Festival 2019 |
| Organisation | SICK! Productions Ltd. |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Sick!Festival is an Arts Council England National Portfolio Organisation, Dr Lucy Burke (Co-I) is named on Sick! Festivals NPO aplication as an academic partner and is involved in the commissioning for Sick!Festival 2019 (encompassing research, development and scoping projects with academics, community and arts organisations across Greater Manchester). She also led panel discussions at Sick! 2017 on disability arts events: Claire Cunninghams Guide Gods, and Koen de Preter amd Theater Stap's To Belong (Lowry Theatre). The collaboration beween D4D and Sick! focuses on our Brave New World workstrand and will facilitate public engagement with our exploration of the implications of genetic screening technologies on disabled people. |
| Collaborator Contribution | Sixk!Festival will support our activities by providing us with a venue, publicity and an enhanced opportunity to engage members of the public. We will also have the opportunity to share our work via the Sick!Radio podcasts. |
| Impact | pending |
| Start Year | 2018 |
| Description | Collaboration between D4D and Saatchi Gallery |
| Organisation | M&C Saatchi |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | The D4D team were invited by the the Saatchi Gallery to ensure that the Philip Colbert exhibition could reach a virtual audience during the Covid 19 outbreak.The team provided a robot double and expertise on how it might be operated to allow visitors who could not attend physically. |
| Collaborator Contribution | The Saachi team set up part of their website to enable virtual visitors to reflect on the exhibition and to connect to artists. They also collaborated with the D4D team in gathering data to evaluate impact of virtual engagement with art. |
| Impact | The collaboration has led to thousands of visitors viewing the Colbert exhibition, Lobsteropolis. It has led to a consideration of ways in which people who find it difficult to access art physically can view it, virtually. It has also led to consideration of more interactive ways for artist to engage with audience and for separate viewers to share responses. The event was widely reported by UK and international media. See e.g. https://www.reuters.com/article/us-health-coronavirus-art-robots/robots-get-private-view-of-major-pop-art-show-idUKKBN27E1ZZ https://news.cgtn.com/news/2020-10-31/Robot-offers-a-COVID-safe-way-to-view-art-exhibition-in-London-V2eQiIZwOc/index.html https://www.hindustantimes.com/it-s-viral/london-gallery-allows-people-to-enjoy-pop-art-show-through-robots-see-pics/story-ThvSrzbYuPOj9auHoSJ0BO.html https://www.tribuneindia.com/news/schools/robots-get-private-view-of-major-pop-art-show-162878 https://gulfnews.com/photos/lifestyle/in-pictures-lobsteropolis-art-exhibition-in-london-with-robot-viewing-option-1.1603975122028 https://www.thejakartapost.com/life/2020/10/30/robots-get-private-view-of-major-pop-art-show.html |
| Start Year | 2020 |
| Description | Collaboration between Disability Arts Online and Autograph Gallery, Primary and gal-dem |
| Organisation | Autograph ABP |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Disability Arts Online brought together this collaboration to help support the establishing of the Onyx artist collective |
| Collaborator Contribution | The partners have supported the establishment of Onyx Collective (a direct outcome of D4D) by providing guest speakers, staff support and free venue space. |
| Impact | Established a collective of artists |
| Start Year | 2021 |
| Description | Collaboration between team member, Bristol Robotics and Disability organisation |
| Organisation | Disability Rights UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | This is a new partnership. The D4D team provides technological expertise. |
| Collaborator Contribution | Disability Rights and Robotics links the work to user groups, stakeholders and organisations supporting disabled people. |
| Impact | Pending |
| Start Year | 2021 |
| Description | Collaboration in bid led by Cardiff University |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I was invited to participate in the project to provide expertise of evaluating arts-based interventions as developed through D4D. |
| Collaborator Contribution | The research partnership was set up to enhance sight impairment rehabilitation in Ghana. It involved the University of Cardiff, London School of Hygiene and Tropical Medicine and University of Cape Coast, Ghana. |
| Impact | Bid was made to AHRC/ MRC Global Health Fund call. |
| Start Year | 2017 |
| Description | Collaboration with BrightBlack - digital developers to create the Virtual Reality work Evolution |
| Organisation | Bright Black Associates |
| Sector | Private |
| PI Contribution | Setting up workshops - the creation process has involved workshops with Disabled/deaf and disabled participants over an 18 month period. |
| Collaborator Contribution | Providing technological expertise to digitise the experience. |
| Impact | Ongoing. Creation of Virtual Reality Work Evolution. |
| Start Year | 2019 |
| Description | Collaboration with Hastings Contemporary Gallery |
| Organisation | Hastings Contemporary |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | In response to Covid 19, and in the context of increased social isolation, the D4D team worked alongside the Hastings Contemporary Gallery, providing equipment (telepresence robots) and expertise that kept the Gallery open to the public through virtual visits and interactive exhibitions. |
| Collaborator Contribution | The Hastings Contemporary set up part of their website to enable virtual visitors to reflect on the exhibition and to connect to artists. They also collaborated with the D4D team in gathering data to evaluate impact of virtual engagement with art. |
| Impact | Hundreds of visitors have visited the museum to view the virtual exhibition. The initiative was covered by the BBC and by both tabloids and broadsheets, and also widely in the international press, being reported in e.g. New York Times and news outlets in India. See e.g.: https://www.google.co.uk/amp/s/amp.theguardian.com/artanddesign/2020/apr/03/digital-gallery-tours-hockney-daffodils-the-week-in-art https://www.bbc.co.uk/news/av/uk-england-sussex-52136258/robot-brings-hastings-gallery-art-into-people-s-homes https://www.nytimes.com/2020/04/15/arts/museums-robots-coronavirus.html Interest was expressed by other museums and galleries. The Saatchi Gallery approached the D4D team about collaboration, leading to a separate collaboration listed elsewhere. |
| Start Year | 2020 |
| Description | Collaboration with Misfits Theatre Company, Bristol |
| Organisation | Misfits Theatre Company |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | D4D team, led by Dr Aggie Bezzina and Dr Tanvir Bush, set up workshop sessions. Using disposable cameras provided by D4D team, and with training by the team, participants were invited to record objects that were significant to them. |
| Collaborator Contribution | Misfits utilised their community links to access participants for activities. Some of their actors also participated. |
| Impact | Photographs collected for exhibition |
| Start Year | 2018 |
| Description | Collaboration with University of Westminster XR Lab |
| Organisation | University of Westminster |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Esther Fox and colleagues from D4D team ran a series of workshops run starting in 2019 |
| Collaborator Contribution | XR Lab supported a workshop/user testing session with D/deaf and disabled people to feedback on the first iteration of the Virtual Reality co-produced work 'Evolution'. |
| Impact | 'Evolution' VR work accepted to be shown as part of Digital Festival Alt Pitch. This was produced by Artist Digital. Esther Fox was also asked to be a keynote speaker at this Festival. Fox has since been asked to curate an online version of the Festival due to go live in 2021. 'Evolution' shortlisted by Massachusetts Institution for Technology (USA) for the exhibition 'Altered Nature' |
| Start Year | 2019 |
| Description | Genomics and Eugenics - International Collaboration |
| Organisation | University of Amsterdam |
| Country | Netherlands |
| Sector | Academic/University |
| PI Contribution | The D4D team has set up collaboration with an international team - Dr M.Parry at the University of Amsterdam, Dr P. Van Trigt, Leiden University, Dr D.Brehme, Humboldt University, Berlin and Dr R. Maskos, University of Applied Sciences, Bremen, along with museums, community groups and artists in each country to explore historical and contemporary issues around genomics and eugenics. The team will develop shared artefacts, leading to an exhibition and the first virtual collection of artefacts and testimony around the theme. The partnership seeks to utilise D4D work to set in place joint future funding applications. |
| Collaborator Contribution | The teams in the Netherlands and Germany are liaising with arts organisations, community groups and museums in each context. |
| Impact | Collaboration in early stages. This is a multidisciplinary initiative across Cultural Studies, Art, Public History, Disability Studies, Museum Studies, Education and Psychology |
| Start Year | 2020 |
| Description | Graphic Encounters collaboration with Sick! Festival |
| Organisation | SICK! Productions Ltd. |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Graphic Encounters is a collaboration between Lucy Burke, Sick! Festival and two graphic artists, Una Comics and Kaisa Leka. The project explores women's experiences of health inequalities, one strand of which represents the story of a woman with a learning disability and will contribute to the broader collaboration between D4D and Sick! Festival in the Brave New World symposium. The art produced will be displayed on public transport throughout Greater Manchester for the duration of the festival. |
| Collaborator Contribution | Lucy Burke has been involved in the research and development of the project, the identification of participants, interviewing them and recording their stories and then work with the artists. She will also evaluate the impact of the project and write about it - the article to be submitted to the journal Disability and Society |
| Impact | podcast on the project public artworks to be displayed across Greater Manchester journal article on the development and impact of the project (pending) |
| Start Year | 2018 |
| Title | Smart Sense Metrics smartphone app |
| Description | The SmartSenseMetrics app enables the collection of a range of timestamped data from the sensors integrated in a smartphone, which include; accelerometer, gyroscope, GPS and sound levels, encrypting the sensitive data and posting it securely to a cloud-based server. |
| Type Of Technology | Software |
| Year Produced | 2020 |
| Impact | As there is no such product available for a reasonable cost, we are in the process of making our app available as a product on the Android app store which will greatly benefit the wider research community and will be a tangible outcome of the research. |
| Company Name | LIVE SMART ROBOTICS LTD |
| Description | Co-founded and co-directed by D4D Co-I, Praminda Caleb-Solly, Live Smart Robotics supplies robots and training to people/companies that need it. The development of this company was influenced by evidence emerging from D4D that it does not suffice to provide technology for users that need it without offering training. |
| Year Established | 2020 |
| Impact | 2 posts. |
| Company Name | SMART SENSE METRICS LIMITED |
| Description | Company set up to productise the app developed as part of the Catch Me If You Can (D4D) work stream. |
| Year Established | 2019 |
| Impact | Too early to evaluate |
| Company Name | Disconsortia |
| Description | Disconsortia was formed through the efforts of D4D Co Is in the partner organisation Disability Arts Online as a means of developing an arts co-operative in the north east of England. Disconsortia registered as a company limited by guarantee with 15 core artists and 3 directors in February 2021. |
| Year Established | 2021 |
| Impact | Disconsortia were successful with an Arts Council England award in September 2019 with funding to create commissions for each of the 17 artists in the collective to create work for an online digital exhibition At The Table https://www.disconsortia.co.uk/at-the-table-programme.html Disconsortia is building an entirely new network of artists. Disconsortia were successful with an Arts Council England award in January 2020 with funding to appoint a disabled freelance project manager from Feb to May 2021 for their Towards a Takeover project, which includes broadening out networking opportunities. Other elements of the Takeover consultation phase include planning partnerships and a programme of work, a postcard art project, mini-micro commissions for all Disconsortia artists, disability equality masterclasses for venues and Disability Equality Train the Trainer sessions to members who'd like to develop those skills. |
| Website | https://www.disconsortia.co.uk |
| Description | Telepresence robot at the Saatchi Gallery |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Telepresence robot set up by D4D team to provide tour of exhibition at Saatchi Museum Exhibition, providing access to those affected by Covid 19 and/or disability. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://info.uwe.ac.uk/news/UWENews/news.aspx?id=4092 |
| Description | (Lucy Burke) Panellist/speaker at a live streamed (online) event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Birmingham City University online event: Cultural Theory: The Politics of Care in Covid-19 and Beyond. My contribution addressed the experiences of disabled people during the pandemic in the broader context of disabled people's experiences in the UK over the last ten years. It prompted significant discussion about disabled people's rights and lived experiences and an invitation to be interviewed on a US podcast hosted by Michael Albert (RevolutionZ) |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://bcmcr.org/event/cultural-theory-the-politics-of-care-in-covid-19-and-beyond/ |
| Description | (Relaxed) Performance of 'Treasure Island' at New Vic Theatre, Stoke. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | The New Vic organised a relaxed performance of 'Treasure Island'. Some of the attendees we invited were from colleges and partners who have pupils, or end users of services, with some form of a disability. Others were from institutions such as Strathcross. The purpose is to develop performance catered for the needs of disabled people. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 1. Presentation and 2.Poetry performance at Dada Fest, Liverpool. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Hambrook and Wheatley from the D4D team gave a presentation to a panel and wider audience about disability arts communities. At a separate Festival event, Sutherland gave a reading from his D4D transcription poetry cycle. Dada is an international disability festival, entailing performances and exhibitions, presentations and panel debates, attracting prominent figures from across disability arts. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.dadafest.co.uk/events/archived/dadafest-international/talks-and-workshops |
| Description | After show discussion, Guide Gods by Claire Cunningham, Sick!Festival 2017, Rainbow Rooms, Eccles, Manchester |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Lucy Burke led the after show discussion of Claire Cunningham's show 'Guide Gods' and explorations of disability and religion. This is part of our developing relationship with Sick!Festival and has contributed to further discussions which have placed disability at the centre of programming for Sick!Festival 2019, specifically around our exploration of the impact of genetic screening on particular groups of people. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Arts Event - Contested Spaces - The Foundry, London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Allan Sutherland performed poems from D4D's 'Electric Bodies' cycles of transcription poetry |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://disabilityarts.online/events/disability-arts-online-contested-spaces-london/ |
| Description | BBC Radio Somerset interview |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Extended interview with Professor Martin Levinson and Professor Praminda Caleb Solly on BBC Radio Somerset's Evening Show. Discussing future technology, and particularly, the way in which robots will change care in the future for elderly and disabled people. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.bbc.co.uk/sounds/play/p08xz6tz |
| Description | Book Launch - D4D book - Electric Bodies |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The event was a book launch of Electric Bodies, based around extensive life history interviews transcribed into poetry cycles. This celebration featured a live reading from Electric Bodies by Allan Sutherland; a panel discussion on what we learned about recording our history with Colin Hambrook, Vici Wreford Sinnott and Allan Sutherland; and speeches and networking to showcase and celebrate the book and the artists involved. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://disabilityarts.online/events/disability-arts-online-presents-book-launch-electric-bodies-tra... |
| Description | Book Launch by member of D4D team |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Tanvir Bush (Associate Research Fellow on D4D) had a book launch at Corsham Town Hall for her novel, 'Cull', dealing with themes relating to the D4D project. The town hall was packed for the event, with people queueing on the stairs. A local bookshop reported one customer coming in the following day and purchasing ten books, stating that she was planning to distribute them to her friends as the theme was so important. Other members of the public have approached Ms Bush asking how they can get involved in addressing the issues raised by the novel, around social exclusion. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.gazetteandherald.co.uk/news/17467215.corsham-author-launches-hard-hitting-novel-cull/ |
| Description | Co-organisation of symposium and presentation at Nordic Network of Disability Research Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Co-organised symposium at conference, and gave presentation. Audience included academics, practitioners, policy-makers, activists and a secretary to a UN special rapporteur. Developing of comparative understandings across Europe, new ideas about Eurocentricity in relation to underpinning disability rights. Strengthening of network and plans for follow-up publication and /or event |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.nndr2019.org |
| Description | Contribution to DiGRA conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Dr Diane Carr gave 2 presentations: Carr, D (2016) Delicate Subjects: Vulnerability and validation in action adventure games. DiGRA/FDG '16 - Abstract Proceedings of the First International Joint Conference of DiGRA and FDG. Dundee August 2016. Carr, D (2016) Players, Diverse Bodies and Embodied Interpretation: Issues in Research Design. DiGRA/FDG '16 - Abstract Proceedings of the First International Joint Conference of DiGRA and FDG. Dundee August 2016. Game designers, artists, Digital games research community, Foundations of Digital Games community, students and academics. Purpose of intervention: To disrupt and problematize the dominant models of 'disability' within digital games and digital technology design and research communities. This was successful. It has become more common to see critical, cultural and social models of disability acknowledged across the field. This research also functioned as preparation for the disability and science fictions audience studies work for 2018. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.digra.org/digital-library/forums/13-digra-fdg2106/ |
| Description | Contribution to DiGRA conference, Turin |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | (Carr, D) Body Count, paper for DiGRA 2018: The Game is the Message Campus Luigi Einaudi, Università di Torino, Turin, Italy July 25-28th. DIGRA = Digital Games Research Association |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://digra2018.com |
| Description | D4D Facebook and Twitter Pages |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | D4D Facebook and Twitter pages brings news items about disability to a wider audience and opportunities to discuss current issues and events. |
| Year(s) Of Engagement Activity | 2018,2019 |
| URL | https://d4d.org.uk |
| Description | D4D Telepresence robots - Saatchi Gallery, Philip Colbert Exhibition |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The D4D team were approached by the Saatchi Gallery and asked if they could provide telepresence robots to widen engagement with the Philip Colbert exhibition (November, 2020-Jan. 2021). There was widespread engagement, from international as well as national visitors, with enthusiastic feedback about this new, interactive means of engaging with art, supporting those who are elderly or disabled while also attracting a younger audience, intrigued by the robot technology. The use of the telepresence robots at the exhibition was widely reported across the international media - e.g. BBC, CDE news, Newsbreak.com, Talk talk, Reuters etc. - as well as the UK broadsheets, tabloids, and international papers such as the Tribune in India, the Hindustan Times and the Taipei Times. It was also featured on the BBC's 'Have I Got News for you'. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.saatchigallery.com/exhibition/philip_colbert__lobsteropolis |
| Description | D4D Virtual Museum UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Part of the German-Dutch-UK collaboration, this was a live workshop involving actors, artists, writers and academics. Five prominent actors and artists presented their artefacts for the Virtual Museum, which was followed by an interactive workshop with the audience. |
| Year(s) Of Engagement Activity | 2021 |
| URL | http://d4d.org.uk/d4d-presents-brave-new-world-our-virtual-museum-online/ |
| Description | D4D: DIY cabaret, ARC Stockton Arts Centre |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cabaret show performed at venue in the North East of England with a reputation for supporting disabled art. The event gave artists and opportunity to exchange ideas, enabling disabled artists to build a community and non-disabled audience members to review their ideas about disability. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://arconline.co.uk/whats-on/theatre-dance/disconsortia-diy-cabaret |
| Description | Disability Rights and Robotics: Co-producing futures. How can robotics technology support disability rights? |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The UWE D4D team collaborated on organising an event as part of the Social Science in the City Event for Disability History Month 9th Dec 2020 |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.bristolmuseums.org.uk/m-shed/whats-on/forging-our-future-disability-history-month/ |
| Description | Disconsortia Group meeting, NewBridge, Gateshead |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Disconsortia is a disabled-led consortium reviewing opportunities in the arts for disabled artists, and disseminating information to other artists. While Disconsortia itself consists of a relatively small number of practitioners, it accesses far larger numbers through online dissemination. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://disabilityarts.online/magazine/opinion/disconsortia-a-disabled-artist-led-consortium-of-extr... |
| Description | Event to build new disability arts organisation in the North East of England |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The event was intended to reach out to disabled artists in the North East of England, in need of a developing a community. This led to two successful funding bids to the Arts Council, the establishment of a new group, the creation of a website - and a manifesto for the future |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.disconsortia.co.uk/manifesto.html |
| Description | Events at New Vic Theatre |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Work with 'Strathcross' - a group of participants made up of Adults with learning disabilities. The participants at the event were accessed from 2 different residential houses as well as participants who live independently. Through using a series of creative techniques, participants were encouraged to explore ideas surrounding life experiences, personal skills and work related aspirations. The end goal of the project was for participants to exhibit and showcase their personal life journeys and ambitions both individually and as a group. Participants were able to express their highest aspirations regarding their own lives and also had peer to peer testimony fed back to them from their friends and people who know them best. Along with this came spontaneous self-expression about the state of the world as they see it including current political events and emotive responses to pertinent subject matters that affect them both locally and globally. This was both an unexpected and a genuinely enlightening outcome to the project. The same group are currently doing a further Employment based project which will include roleplay in the work in which they aspire to and to ask questions to employers about the kind of skills and life experiences that led them to their roles. This will be a co-designed outcome and will readdresses the balance between interviewer and interviewee as the roles are reversed in terms of asking questions. This will also have the added dynamic of people who are seen to have a disability asking pertinent questions about their potential futures in employment and there is some scope to address several key points, Either directly or indirectly: What are the barriers to employment? How can these barriers be overcome for people who may or may not define themselves as " disabled" Why and If such barriers exist. And what could be done to resolve this? |
| Year(s) Of Engagement Activity | 2017 |
| Description | Exhibition and Workshop, 20.10.17, at MShed Bristol - The Guild of the Brave, Poor Things |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An exhibition was held at MShed, Bristol (20.10.17). This was part of the History of Place events across the UK, and was an opportunity for D4D to showcase ongoing work. The event included a workshop. 3 members of the D4D team gave presentations - and Co I, Esther Fox (Accentuate) played a central role in organising the event in conjunction with Bristol Museums. Dr Praminda Caleb-Solly spoke about technology and disability, and Dr Susan Moffat spoke about Cultural Animation as a research tool. The event was attended by people from a wide range of backgrounds. Apart from being thought-provoking, it facilitated networking across organisations, and heightened awareness of the D4D project. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.bristolmuseums.org.uk/m-shed/whats-on/brave-poor-things/ |
| Description | Hastings Contemporary Gallery - D4D Telepresence robots |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | In response to the Covid pandemic, D4D sent telepresence robots to conduct virtual tours at the Hastings Contemporary Gallery to enable engagement with art/artefacts for isolated people. Hundreds of visitors engaged with the tours in the first few weeks, and the initiative was reported across the media - e.g. the BBC, the Times, Guardian, Telegraph, Daily Mail, and also in the New York Times. There has been widespread public reaction, from international sources, with much enthusiasm about a new interactive way of viewing art and opportunities for attracting new (and younger) audiences as well as those who already attended exhibitions. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.bbc.co.uk/news/av/uk-england-sussex-52136258 |
| Description | Interview on BBC Radio 4 |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Tanvir Bush interviewed about issues concerning Visual Impairment, on In Touch Magazine programme, BBC Radio 4 |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.bbc.co.uk/programmes/b069vtms |
| Description | Invitation to showcase D4D work with telepresence robots at Mudec Museum, Milan |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Praminda Caleb-Solly (D4D Co I) showcasing use of telepresence robots - as used in D4D project, at Exposition of Robotics at Mudec Museum, Milan, after invitation from BioRobotics Institute of Pisa. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.mudec.it/eng/ |
| Description | Invited presentation / keynote at GamesLit, 2019, Kolkata, India |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Dr Diane Carr (UCL) from the D4D team was invited to give a keynote presentation at GamesLit 2019 an international conference in Kolkata, India on Games and Literacy Theory. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://gameslit2019.wordpress.com |
| Description | Invited presentation and panel discussion at Liverpool Hope University |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Circa 60 people attended the presentation, exploring current and future issues around disability. This was a recorded BSL interpreted event with a reach beyond the audience. The event began with a keynote talk from Professor Stuart Murray (University of Leeds). Professor Martin Levinson (Bath Spa University) then provided an overview of the D4D project. Members of the D4D team presented findings across different work streams. Dr Lucy Burke (Manchester Met University) from the D4D team then chaired an expert panel discussion. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://store.hope.ac.uk/conferences-and-events/faculty-of-education/d4d-futurity-disability-today-t... |
| Description | Invited to panel Pen Writers' Circle, Zambia |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tanvir Bush invited to contribute to literary group in Zambia. Discussing her novel, 'Cull' |
| Year(s) Of Engagement Activity | 2021 |
| Description | Low-Cost Sensing and Data Analytics for Understanding Usage Patterns of Early Years Powered Mobility Devices |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Presentation by Professor Praminda Caleb-Solly and colleagues from D4D team at 31st Annual Meeting of the European Academy of Childhood Disability (EACD) Dissemination of evidence about uses of Early Years Powered Mobility (EYPM) devices, and in particular the use of a bespoke app on a smartphone attached to EYPM devices to support analytics. This resulted in considerable interest from an international audience, and a publication for the European Academy of Childhood Disability website. See: http://edu.eacd.org/node/647 |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://edu.eacd.org/node/647 |
| Description | Mahdlo Youth Zone, Oldham |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Co Is Lucy Burke and Susan Moffat met with approximately 20 potential participants at Mahdlo and talked about the kind of things they are currently involved in and what would like to do within the project. There was a lot of interest in creating new worlds and what that would mean, what things they would take with them and what would they leave behind. We also linked up with musicians who are working with Mahdlo, to add a musical element to workshops. We would like to take a co-design, co-created approach with the group ensign that their voices, ideas, further themes questions for research guide to the development the work It was clear that they would like to come to the New Vic Theatre to have a tour as well as attending a workshop with us. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.mahdloyz.org |
| Description | Making Tools to Make Things Strange: The art of understanding Disability Arts from multiple perspectives |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was a workshop inspired by D4D Co Is Hambrook and Carr to explore issues of disability around intersectionality. Following research undertaken with Dr Diane Carr around the concepts of generations and reflexivity, Disability Arts Online adapted the ideas behind "tools to make things strange" for a workshop for a burgeoning collective of black artists and artist of colour. The workshop was facilitated by Disability Arts Online's co-chair Amy Solis who identifies as an artist of colour. We wanted to unpack intersectional issues which prevent black disabled artists and artists of colour from engaging with disability arts. We found common ground and a willingness to allow us to help consolidate the group. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://disabilityarts.online/magazine/opinion/making-tools-to-make-things-strange-the-art-of-unders... |
| Description | Making Tools to Make Things Strange: The art of understanding Disability Arts from multiple perspectives associate artists workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Following research undertaken with Dr Diane Carr around the concepts of generations and reflexivity we adapted the ideas behind "tools to make things strange" for a workshop for our 3 Associate Artists in order to understand better how they understood the ways in which Disability Arts Online influences how disability arts is perceived. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Netherlands event - Virtual Museum of Disability and Eugenics |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Linked to the D4D workstream, 'Brave New World', Dutch collaborators organised two filmed events, led by Dutch author and activist, Jacqueline Kool, Manon Parry (University of Amsterdam) and Paul Van Trigt (University of Leiden), and exploring issues around eugenics. They were working alongside museum curators and the team from the Kreukelcollectief. |
| Year(s) Of Engagement Activity | 2021 |
| Description | New VicTheatre Filmed Performance and Workshop - 'Future Perfect; Future Imperfect' Hybrids, Scroungers or Just Phased Out' |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | A film was shown followed by an interactive panel discussion involving around 50 people. The film captured different activities that have been carried out across D4D's workstreams. Integrated within this there was a filmed theatrical performance. The filmed performance (New Vic Theatre, Stoke) included filmed interviews and animations, poetry, and an opportunity to ask questions of the research team and respond to key questions. Participants included leading Disability Studies theorists, such as the US academic, Lennard Davis. Initially, around 50 people were involved in this activity that took place across an afternoon, but the film was made to be shown on the D4D website, and we anticipate eventual numbers in their thousands, viewing the site. |
| Year(s) Of Engagement Activity | 2021 |
| URL | http://d4d.org.uk/future-perfect-future-imperfect-mini-online-festival-2-9-july-2021-free-entry/ |
| Description | One day 'symposium' - Let's Talk About Disability - at Sick!Festival 2019 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Let's Talk About Disability was a one day workshop at the Lowry Theatre Salford. The programme was devised by Lucy Burke and featured members of the D4D team: Tanvir Bush, Esther Fox, Praminda Caleb-Solly, Colin Hambrook, Allan Sutherland and Disability Arts Online, alongside speakers such as the actor Cherylee Houston, the comedian Lawrence Clark, the journalists Richard Butchins and Frances Ryan, and activists such as Dennis Queen and Simone Aspis. Panel discussions explored themes such as care, technology, media representations and the right to exist (ie genetic screening and the 'new eugenics'). These were all filmed. Other activities included zine-making with Disability Arts Online and Esther Fox's virtual reality 'game' about Galton and genetic selection. Audience feedback indicates that the event introduced new ways of thinking about disability and the value of different ways of being in the world. Sick!Festival audience figures for the disability strand of the event are 1137. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.sickfestival.com/events/disability-and-society/ |
| Description | Online 'talk show' for Sick!Festival Digital |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Lucy Burke was involved in the development of this series conceived as an online talkshow each of which featured four people whose work or personal experiences have placed them at the heart of an unfolding global crisis: the covid-19 pandemic. The experiences of disabled people and those engaged in caring either personally or professionally were central to the project. This work emerged out of D4D's collaboration with Sick!Festival. It has sparked interest in the experiences of disabled people and those living with chronic and significant health conditions during the pandemic. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://sickfestival.com/4ofus-episode-one-nina-gilligan-richard-currie/ |
| Description | Online tour of the Assisted Living Studio in the Bristol Robotics Laboratory for international visitors |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | To engage the public in tissues around disability and robotics the D4D team provided an online tour of the Assisted Living Studio in the Bristol Robotics Laboratory using a telepresence robot, that was followed by an online knowledge café discussion. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Panel presentation at DadaFest |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | DadaFest runs a prestigious international event. The event was streamed live and reached an international audience. DadaFest was one of the first disabled-led arts organisations in the UK and has played an integral part of the campaign for greater equality and access for disabled people. Based in the heart of Liverpool, DadaFest has built a national and international reputation for delivering high quality and accessible events and projects, including a critically acclaimed biennial festival. See - https://www.dadafest.co.uk/who-we-are/history/ Co Is Allan Sutherland, Colin Hambrook and Trish Wheatley (Ceo of Disability Arts Online) read poetry that emerged from D4D and led a panel discussion about disability and the arts. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.youtube.com/watch?v=PVLj51CiXz0&feature=youtu.be |
| Description | Podcast |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Disability Arts Online (partner organisation) (in conjunction with Graeae) producing a monthly podcast on themes relating to D4D interests. Set up involving members of D4D team and including interviews with D4D team members. Circa 1500 listens in total on checking (17.10.19) |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://podcasts.apple.com/gb/podcast/disability-arts-online-graeae-present-disability-podcast/id146... |
| Description | Podcast |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | 2 podcasts on disability hate crime and disabled people's lived experiences of ableism and bullying in their communities for the Miner's Community Arts and Music Centre in conjunction with the City of Manchester Hate Crime Awareness Week. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.theminers.org.uk/copy-of-home |
| Description | Podcast appearance on What Do You Think About X ...? |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview explored disabled people's experience in the UK today both pre and post-pandemic. It sparked discussion and engagement with the challenges disabled people face and what it means to be an ally. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://open.spotify.com/episode/2v8Hf9IoA1BsUZS19eivwA?si=rYrYkifOTCuujLqVZOpagQ&nd=1 |
| Description | Podcast for Sick! Festival 2019 |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | 'What's Normal?' Podcast interview of Lucy Burke, D4D Co-I and curator of the Let's Talk About Disability Strand of Sick! Festival 2019 in Manchester. The interview was conducted by the comedian Smug Roberts at the Miners Community Centre in Moston, North Manchester. The aim of the podcast was to explore attitudes towards disability, community and belonging. It encompassed the main themes of the Disability Strand of Sick! Festival and Lucy's experiences as a mother of a young man with autism and a learning disability. Sick! Festival feedback indicates that the podcast changed audience perceptions of disability (particularly learning disability). |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.sickfestival.com/smug-roberts-sick-festival-2019-episode-2-lucy-burke/ |
| Description | Post-Show Discussion UK Premiere Performance: To Belong by Koen de Preter and Theater Stap (BE), Sick!Festival The Lowry Theatre |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Post show discussion about the meaning of belonging and community as explored in the performance of 'To Belong' by a theatre group comprising adults with learning disabilities. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.sickfestival.com/whats-on/sick-festival-2017-manchester/koendepretertobelong17 |
| Description | Post-show discussion, Let's Talk about Dis, Candoco/Hetain Patel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Lucy Burke lead the post-show discussion and 'talk' after the performance of Candoco dance company's 'Let's Talk About Dis' at the Lowry Theatre, Salford on 18.9.19 This discussion included members of the cast and the show's creator Hetain Patel. It explored attitudes disability and difference in relation to dance and to everyday life. Audience feedback indicated that the experience changed their perceptions of disability art and ideas of 'normalcy'. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.sickfestival.com/events/lets-talk-about-dis/ |
| Description | Presentation at ECER (European Conference on Educational Research), Bolzano, Italy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The aim of the 'European Conference on Educational Research' is to create an inclusive platform for initiating, reporting, discussing and promoting high quality educational research, that not only acknowledges its own context but also recognises wider, transnational contexts with their social, cultural and political similarities and differences. The presentation by Dr Burke and Professor Levinson introduced innovative arts-based practices to the audience. There was significant interest in the approaches - as reflected by discussion after the presentation and e-mail inquiries. Since ECER - and with an interest in D4D methodology - Professor Levinson has been approached by a team led by the University of Oslo to participate in proposed research around citizenship, inclusive education and relations between mainstream and migrant populations. The outline bid has been submitted to NordForsk and is currently under review. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://eera-ecer.de/ecer-2018-bolzano/ |
| Description | Presentation at Oxford Law and Disability Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | 80 people attended the Disability Law and Policy Conference at Oxford University, including representatives of stakeholder groups, charities, grassroots organisations, academics, and policy-makers. Academics involved included Professor Michael Stein from Harvard Law School. Steph Harvey, D4D team member, presented findings on her work - 'Diversity in Disability: Ethnicity and cross-cultural considerations in the UK UN CRPD'. Given the topic, and in the light of Steph's background in government work, she was approached afterwards by other delegates seeking advice on ways of having impact among policy-makers. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.law.ox.ac.uk/events/inaugural-oxford-disability-law-and-policy-conference-2018 |
| Description | Series of D4D presentations, exhibition and participation in expert panels at 2019 SICK! Festival, Manchester |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | The SICK! Festival is an international arts programme that commissions artists and academics from around the world. It took place at the Lowry Arts Centre in Manchester. The D4D team was invited to run presentations and an exhibition which involved a VR installation and use of robot-doubles showing the uses of technology in both research and care contexts. The team was also involved in expert panel discussions, involving 50-100 people, with others accessing via video link. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.sickfestival.com |
| Description | Social Science in the City `event, Disability History - Using telepresence robot |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | As part of the Leaky Robots Strand: the UWE D4D team collaborated on organising an event as part of the Social Science in the City Event for Disability History Month 9th Dec 2020 Disability Rights and Robotics: Co-producing futures. How can robotics technology support disability rights? Aim to engage the public in the key question the UWE D4D team offered an online tour of the Assisted Living Studio in the Bristol Robotics Laboratory using a telepresence robot, that was followed by an online knowledge café discussion. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.eventbrite.co.uk/e/disability-rights-and-robotics-co-producing-futures-tickets-127977932... |
| Description | Three small group workshops with established and emerging disabled artists 14/9/17, 212/9/17/28/9/17 at Graeae Theatre |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Allan Sutherland (Co I) ran three workshops at Graeae Theatre, London, for disabled artists. The workshops explored attitudes among participants around 'disability' and 'art', and invited participants to reflect on ways which disability had had an impact on their own art. Art was considered in social and political contexts. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Troubling Legacies, Fractured Futures Research Seminar and Workshop at University College, London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Two D4D team members played central roles in an event at UCL in March 2019 considering the Galton exhibition, and the implications of Galton's theories in the context of current development of genetic technology. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://playhouse.wordpress.com/2019/01/31/troubled-legacies-fractured-futures/ |
| Description | Virtual Berlin Event - D4D team collaboration with Berlinklusion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The event is part of a collaboration with the D4D team. Berlinklusion is a network for accessibility in art and culture. Led by Kate Brehme, Dirk Sorge, Jovana Komnenic and Kirstin Broussard, a mix of disabled and non-disabled artists and arts mediators, Berlinklusion seeks to positively change Berlin's cultural landscape by promoting inclusion and improving accessibility for artists, cultural workers, participants and audiences with and without disabilities. The all day event - a series of films covering the theme of eugenics, linked to D4D work stream 'Brave New World'. After the series of 5 films and the interactive discussion, involving artists and audience, a film of the event and added to the D4D website. In time it is expected to engage hundreds of viewers |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.berlinklusion.de/ |
| Description | WS3: Electric Bodies featured on Disability And... Electric Bodies Podcast episode |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Disability Arts Online Editor Colin Hambrook chats to Allan Sutherland about the launch of 'Electric Bodies' - a collection of poems based the lives of eight disabled artists. Purpose: Promote the book whilst engaging audiences in understanding the research. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://disabilityarts.online/magazine/opinion/podcast-22-disability-and-electric-bodies-with-allan-... |