Disability under Siege - Development Award

Lead Research Organisation: University of Birmingham
Department Name: Education

Abstract

15% of the world's population - 1 billion people - experience some form of disability, with the prevalence even higher in lower- and middle-income countries exacerbated by poverty and conflict (LMIC) (World Bank, 2018). Furthermore, there is a significant gendered dimension to disability, where three quarters of disabled people in LMICS are women. Disability negatively affects socio-economic outcomes, including education, employment and participation in society, and the gendered dimension of disability exacerbates these outcomes for women and girls. Therefore, the need to map, review and build on this body of work in contexts of conflict and crisis is essential in order to make meaningful progress toward meeting the SDGs focused upon inclusive quality education provision (specifically UN Sustainable Development Goals 4.2, 4.5, 4.6, 10.2 and 10.3).

While the challenges arising from provision for disability in education in conflict-affected states is a global issue, the work of this project focuses on one specific region: The Middle East - and specifically the countries of Lebanon, Jordan and Palestine. This region has been chosen as it provides a differentiated conflict and crisis context through which to strengthen the theoretical and empirical evidence base on the subject of Education in Conflict and Crisis with a focus on disability.

Project team members and partners in the region have identified and prioritised the importance of understanding, challenging and co-producing new ways of understanding disability as a pre-requisite for addressing the challenges in implementing inclusive, quality education, a global challenge exacerbated in LMIC countries and further compounded in contexts of conflict and crisis.

This Development Award will be used for developing equitable partnerships with local organisations, mapping research and policy, gathering and disseminating information via inclusive workshops, developing educational training materials and constructing a range of legacy-building activities to ensure the outcomes of the Award are taken forwards for future beneficiaries. Each of the planned actions and activities are intended to raise awareness of issues surrounding education provision for those with disabilities and to improve the quality of this education to support those where they need it most.

The Award will allow local partner organisations in the regions to lead on the identification of the issues they feel are most problematic based on their direct experiences. Expertise and knowledge will be drawn from all levels, from international organisations such as UNESCO, to local schools and educational experts, in order to share best practice and build capacity. The Award team will share outcomes directly with local communities in the pursuit of social, educational and economic benefits for all of those involved. Training and educational materials will be developed in conjunction with schools and academic networks will be established to drive forwards the agenda of improving educational outcomes for those with disabilities.

By providing more effective education, the Award team hopes to reinforce a pathway out of poverty by increasing potential for economic activity and eroding social barriers experienced by those with disability as a result of limited access to education.

Planned Impact

It is intended that the activities proposed within this Development Award will be undertaken in the pursuit of social, educational and economic benefits primarily for those with disabilities and their communities in the countries of Lebanon, Palestine and Jordan, with potential future impact to extend to other countries in the region based around the planned legacy activities.

Stakeholder organisations, such as Legal Agenda, UNICEF and the Queen Rania Foundation, will have the opportunity to be involved in key workshops throughout the duration of the Award, where they will be able to contribute to discussions around educational provision and challenges encountered based on their own experiences. The knowledge gathered in these workshops, and during the literature and policy mapping process, will feed into the design and early planning for educator training materials, which can be used by schools and relevant organisations in the region. The workshops will also provide a space for networking and collaboration opportunities between the organisations and with individuals who are affected by disability in relation to education.

The workshop discussion topics, preparation of best practice materials and policy briefing documents will be presented at an open dissemination event, which will focus on changing public attitudes and discourses of disability. This event and dissemination activity, along with the establishment of a South-South facility for networking and collaboration between organisations, will be of paramount importance for ensuring the agenda remains relevant and that improving outcomes for children with disabilities in the Middle-East is prioritised by future policy makers, local support organisations and schools.
 
Title Change Makers 
Description Liwan Youth Space, one of our partners in Jordan has produced a series of short films called "Change Makers" that focusses on young change-makers who are expanding the space for youth participation in governance, rights and influence on their issues. In 2020, 5 short films were produced documenting the role and influence of 5 young people on the rights of people with disabilities. These films are part of a broader series that are posted via Liwan online. 
Type Of Art Film/Video/Animation 
Year Produced 2020 
Impact Impacts as yet unknown. 
 
Title Lifecycle disability video 
Description This video was produced to raise awareness of the challenges and barriers facing people with disabilities in Lebanon at different stages throughout their lives. 
Type Of Art Film/Video/Animation 
Year Produced 2021 
Impact Impacts still unknown. 
URL https://www.youtube.com/watch?v=T0DyWexeoec&t=52s
 
Description The Development Award has enabled to date:
1.The consolidation and development of interdisciplinary research policy and practice networks in the three countries of focus: Jordan, Lebanon and Palestine. This has been achieved to date through the first three 3 workshops - one held in each country, which focussed on:
i) trust-building for equitable partnerships, as well as
ii) identifying baseline knowledge and attitudes towards disability; and
iii) engaging different sectors and disciplines who have not previously worked together in order to address the challenges of disability in a coordinated multi-sector and interdisciplinary way.
3 further workshops have been held in November 2020 focussing on the role of arts and cultural institutions with respect to disability and the strengthening of partnerships between cultural institutions, disability organisations and educational institutions.
2. We have been successful in engaging additional project partners - a key objective of the Development award. Liwan is an NGO whose remit focuses on youth engagement and disability, and is well-networked nationally in the field of disability. In addition a partnership has been established with Al Ma'mal Foundation in East Jerusalem, a leading cultural organisation in the visual arts, and the Sursock Foundation in Lebanon.
3. This work has enabled us to build on these initial achievements to extend this work through additional funding. We have been successful in being awarded GCRF AHRC Inception Funding (£98,851) GCRF AHRC Full Award funding (£197321.7.10), and the funding of a University of Birmingham International PhD studentship (£101,547).
Exploitation Route The work to date may /is being taken forward through:
i) representations in national consultations. In both Lebanon and Palestine, there have been consultations of international and eregional classification systems, and a multisectoral approach to disability respectively.
ii) identifying gaps in research in the region, as will be further utilised in the Full Award stage where research and related projects will be commissioned in the region.
iii) raising awareness of disability in public discourses;
iv) highlighting key challenges with policymakers and practitioners;
v) informing curriculum development and teacher-training.
Sectors Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections

 
Description The achievements to date from the Development award have been used to: i) foster equitable collaborations across multiple policy sectors, including social policy/social affairs, education, healthcare and the arts; ii) contribute to national and international-level policy consultations; iii) highlight the gendered nature of disability and its differentiated impacts; iv) contribute to a legacy moving forward informing the disability agenda in Jordan, Lebanon and Palestine.
First Year Of Impact 2020
Sector Communities and Social Services/Policy,Education,Culture, Heritage, Museums and Collections
Impact Types Cultural,Societal,Policy & public services

 
Description Participation in a national consultation on disability - Lebanon
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
 
Description Participation in a national consultation on disability - Palestine
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
 
Description GCRF Network Plus Disability Under Siege
Amount £1,973,216 (GBP)
Funding ID AH/T007826/1 
Organisation Arts & Humanities Research Council (AHRC) 
Sector Public
Country United Kingdom
Start 04/2020 
End 04/2024
 
Description Inception Award Disability Under Siege
Amount £98,851 (GBP)
Organisation Arts & Humanities Research Council (AHRC) 
Sector Public
Country United Kingdom
Start 03/2020 
End 06/2020
 
Description PhD studentship Disability Under Siege
Amount £101,547 (GBP)
Organisation University of Birmingham 
Sector Academic/University
Country United Kingdom
Start 09/2020 
End 09/2023
 
Title Arts and Culture Disability Mapping - Jordan, Lebanon and Palestine 
Description This consists of a mapping of all arts and cultural institutions and practices engaging with disability in the region. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact This is be available shortly through the disability under siege website, and is the first mapping database of arts and cultural engagements with disability in the middle east region. It will enable other researchers and practitioners to collaborate with one another in order to promote inclusive education. 
 
Title Database Lebanon 
Description A database of grey literature and published literature from the region is being compiled, for the basis of a regional literature review. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? No  
Impact The database will enable the identification of gaps in data collection. Given the gendered nature of disability and its differential effects, particular attention is being paid to the presence and quality of statistics disaggregated by gender. 
 
Title Database Palestine 
Description A database of grey literature, published literature and data from the 2017 Palestinian census is being compiled. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? No  
Impact The database will enable the identification of gaps in data collection. Given the gendered nature of disability and its differential effects, particular attention is being paid to the presence and quality of statistics disaggregated by gender. 
 
Description Covid-19 campaign in development with the American University of Beirut (AUB), Lebanon 
Organisation American University of Beirut
Country Lebanon 
Sector Academic/University 
PI Contribution We have worked with the American University of Beirut's Department for Architecture in producing a campaign on the needs of persons with disabilities in the context of the covid-19 pandemic.
Collaborator Contribution The department of architecture at AUB has contributed its expertise in relation to inclusive design.
Impact Campaign materials.
Start Year 2020
 
Description Media campaign 
Organisation American University of Beirut
Country Lebanon 
Sector Academic/University 
PI Contribution This was a social media campaign on the use of terminology and language use in relation to the topic of disability, and when talking about persons with disability. The research team brought the intellectual expertise to this campaign.
Collaborator Contribution AUB contributed in terms of social media expertise.
Impact Social media campaign materials.
Start Year 2020
 
Description UNDP collaboration 
Organisation United Nations (UN)
Department United Nations Development Programme
Country United States 
Sector Public 
PI Contribution UNDP has invited our CoI in Lebanon to a consultation on transportation, and a simulation of future crises in order to prepare to inclusive planning.
Collaborator Contribution As stated above.
Impact No outcomes as yet.
Start Year 2021
 
Description UNICEF collaboration 
Organisation UNICEF
Country United States 
Sector Public 
PI Contribution UNICEF is a member of our Lebanon Co-Is Disability Hub. We are in discussion with UNICEF about plans for screening the Lifecycle video on national TV in conjunction with support by UNICEF.
Collaborator Contribution As above
Impact Ongoing - planned TV screening of video.
Start Year 2021
 
Description UNRWA collaboration 
Organisation United Nations Relief and Works Agency for Palestine Refugees in the Near East
Country Jordan 
Sector Charity/Non Profit 
PI Contribution We are in the process of an agreement with UNRWA who have approached us for our video on inclusive design and language use/terminology in their campaign working in schools, and we are advising them.
Collaborator Contribution As detailed above.
Impact Ongoing.
Start Year 2021
 
Description "All In" - Fabian Review Article (Vera Kubenz) 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact "All In" article published in Fabian Review Magazine by Vera Kubenz, Research Fellow, Disability Under Siege Network, 14/12/21.

National, incl 7,000 members of the Fabian Society and > 4000 impressions on Twitter
Year(s) Of Engagement Activity 2021
URL https://fabians.org.uk/all-in-2/
 
Description COVID-19 and disability in the Global South webinar (Organiser, Vera Kubenz) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact COVID-19 and disability in the Global South online webinar, organised by Vera Kubenz, Research Fellow, Disability Under Siege Network.
Over 100 participants attended globally to learn of the impacts of Covid-10 on persons with disabilities (PWDs). The webinar intended to raise awareness around the subject and gave PWDs a platform to discuss their lived experiences.

Request for 2 interviews post event
Year(s) Of Engagement Activity 2021
URL https://www.youtube.com/watch?v=a5C-_NZq-cc&t=1s
 
Description Conversation series with stakeholders Palestine workshop II 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A series of conversations were conducted with key stakeholders to investigate conceptions of disability and to identify key challenges facing those with disabilities in their communities and in education.
Year(s) Of Engagement Activity 2020
 
Description Covid-19 disability inclusive campaign Lebanon 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact This campaign raised the key issues and barriers for those with disabilities in the wake of the covid-19 pandemic.
Year(s) Of Engagement Activity 2020
 
Description Disability Under Siege RNIB Radio Interview (Vera Kubenz) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Vera Kubenz, Research Fellow, Disability Under Siege Network, interview by RNIB Radio on 3rd December 2021. Raising awareness of Disability and Covid-19
Year(s) Of Engagement Activity 2021
URL https://audioboom.com/posts/7989857-disability-under-siege
 
Description Disability Under Siege: An Analytical Framework for a Disability-Inclusive COVID-19 Recovery (Vera Kubenz) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Disability Under Siege: An Analytical Framework for a Disability-Inclusive COVID-19 Recovery paper presented at World Pandemic Research Network online conference on 10th December 2021. Raising awareness around the subject of Covid-19 and disability
Year(s) Of Engagement Activity 2021
URL https://wprn.org/item/407052
 
Description Disability and COVID in Low and Middle-Income Countries AMI Radio (Vera Kubenz) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Interviewee on AMI Radio to discuss Disability and COVID in Low and Middle-Income Countries on 08/05/21, Vera Kubenz, Research Fellow, Disability Under Siege Network.

Raising awareness of Covid-19 and disability in the global south
Year(s) Of Engagement Activity 2021
URL https://podcast.app/disability-and-covid-in-low-and-middle-income-countries-e136819137/
 
Description Disability and COVID-19 in the Global South (Vera Kubenz) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact The impact of COVID-19 on disabled people in Low- and Middle-Income Countries paper presented at the Presentation at Midlands Graduate School conference 2021, Warwick University, Vera Kubenz, Research Fellow, Disability Under Siege Network
Year(s) Of Engagement Activity 2021
URL https://warwick.ac.uk/fac/cross_fac/mgsdtp/news/seminars/mgsstudentconf2020/
 
Description Disability and COVID-19 in the Global South AMI Radio (Vera Kubenz) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Interviewee on AMI Radio to discuss Disability and COVID in Low and Middle-Income Countries on 20/05/21, Vera Kubenz, Research Fellow, Disability Under Siege Network.

Raising awareness of Covid-19 and disability in the global south
Year(s) Of Engagement Activity 2021
 
Description Disability classificartion workshop Lebanon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact This was a national level working group meeting held with the UN, with representatives from the Ministry of Social Affairs present, amongst other policy and practitioners stakeholders. A key outcome was a discussion to move from a charity model to a social model. A meeting has been schedules with the Ministry of Social Affairs - in particular the department responsible for reforming the curriculum rto understand their approach to inclusive education and to consult with them.
Year(s) Of Engagement Activity 2020
 
Description GCRF Network Plus Disability Under Siege Development Award final policy and dissemination event (31/03/21), 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact This was the final dissemination event for the Development Award, disseminating key findings and outlining the future programme of work being carried forward by the main award.
Year(s) Of Engagement Activity 2021
 
Description How has the pandemic deepened existing inequality in employability? 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Vera Kubenz, Research Fellow, Disability Under siege Network, research on "How has the pandemic deepened existing inequality in employability?" gained media coverage on FE News. Raising awareness of Disability and Covid-19.
Year(s) Of Engagement Activity 2021
URL https://www.fenews.co.uk/exclusive/how-has-the-pandemic-deepened-existing-inequality-in-employabilit...
 
Description How pandemic responses neglected disabled people's rights (Vera Kubenz 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact How pandemic responses neglected disabled people's rights article written by Vera Kubenz, Research Fellow, Disability Under Siege network, for The Conversation.

6,500 reads incl. 8 reposts on other platforms, >100 social media shares
Year(s) Of Engagement Activity 2021
URL https://theconversation.com/how-pandemic-responses-neglected-disabled-peoples-rights-158591
 
Description Inclusive arts practices in Jordan workshop II 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact This workshop was held online to facilitate dialogue and investigate ways of working together between arts and cultural institutions, disability organisations and educational practitioners, in order to address key challenges in how disability is understand by the public, policymakers and practitioners, and to address ways of promoting inclusive education for children with disabilities as it is estimated that over 85% of children with disabilities do not attend primary school. The focus was on Jordan but the audience was regional.
Year(s) Of Engagement Activity 2020
 
Description Inclusive arts practices in Lebanon workshop II 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact This workshop was held online to facilitate dialogue and investigate ways of working together between arts and cultural institutions, disability organisations and educational practitioners, in order to address key challenges in how disability is understand by the public, policymakers and practitioners, and to address ways of promoting inclusive education for children with disabilities as it is estimated that over 85% of children with disabilities do not attend primary school. The focus was on Lebanon but the audience was regional.
Year(s) Of Engagement Activity 2020
 
Description Media campaign Lebanon 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact We conducted a social media campaign in Lebanon on the use of terminology and language use that are appropriate when speaking about disability and persons with disability.
Year(s) Of Engagement Activity 2020
 
Description Nothing About Us Without Us - What can the COVID-19 pandemic teach us about disability justice? (Vera Kubenz) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Vera Kubenz, Research Fellow, Disability Under Siege Network hosted an online webinar for over 100 participants globally on9th November 2021. The event was part of the ESRC's Festival of Social Sciences held by the University of Birmingham. A mall stipend of £600 was awarded to the webinar from the ESRC to assist with the dissemination of the research into Covid-19 and disability in the global south.

Request for interview post event and further information on the research
Year(s) Of Engagement Activity 2021
URL https://www.birmingham.ac.uk/university/colleges/socsci/events/esrc-festival-2021/events/nothing-abo...
 
Description The impact of COVID-19 on disabled people in Low- and Middle-Income Countries (Vera Kubenz) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact The impact of COVID-19 on disabled people in Low- and Middle-Income Countries paper presented at Presented at Environments by Design: Health, Wellbeing and Place Conference on 2nd December 2021.

Submission of full article to follow.
Year(s) Of Engagement Activity 2021
URL https://architecturemps.com/design-health/
 
Description Website and social media outreach 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact We have developed a website, and have a prescence on twitter, Facebook, Instagram and youtube.
https://disabilityundersiege.org/
Year(s) Of Engagement Activity 2019,2020,2021
URL https://disabilityundersiege.org/
 
Description Workshop 1 - baseline knowlefge and attitudes to disability Jordan 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The purposes of Workshop 1 was to bring together an interdisciplinary and multi-sector group of stakeholders working in the field of disability to:
• identification of baseline knowledge and attitudes towards disability, and the lived experiences of and challenges for those living with different forms of disability in relation to education and more broadly in society.
• develop ways of equitable co-designing and co-working.
14 representatives of relevant government ministries, NGOs, international organisations, humanitarian organisations and disability activists in the fields of education, health, public engagement etc participated in the workshop.
Year(s) Of Engagement Activity 2019
 
Description Workshop 1 - baseline knowlefge and attitudes to disability Lebanon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The purposes of Workshop 1 was to bring together an interdisciplinary and multi-sector group of stakeholders working in the field of disability to:
• identification of baseline knowledge and attitudes towards disability, and the lived experiences of and challenges for those living with different forms of disability in relation to education and more broadly in society.
• develop ways of equitable co-designing and co-working.
26 representatives of relevant government ministries, NGOs, international organisations, humanitarian organisations, refugee support, academics, arts. and disability activists in the fields of education, health, refugee studies, public engagement etc participated in the workshop.
Year(s) Of Engagement Activity 2020
 
Description Workshop 1 - baseline knowlefge and attitudes to disability Palestine 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The purposes of Workshop 1 was to bring together an interdisciplinary and multi-sector group of stakeholders working in the field of disability to:
• identification of baseline knowledge and attitudes towards disability, and the lived experiences of and challenges for those living with different forms of disability in relation to education and more broadly in society.
• develop ways of equitable co-designing and co-working.
over 20 representatives of relevant government ministries, NGOs, museums, international organisations, humanitarian organisations, refugee support, academics, and disability activists in the fields of education, health, social care, public engagement etc participated in the workshop.
Year(s) Of Engagement Activity 2019