Developing an Aesthetic of Dementia Activism: Using art to mediate agency

Lead Research Organisation: University of Southampton
Department Name: Faculty of Health Sciences

Abstract

Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.

Publications

10 25 50
 
Title Agnes & Nancy - a short documentary film 
Description The film Agnes & Nancy was made in the summer of 2011 by award winning documentary film maker Anne Milne. The film is around 23 minutes long and is suitable for all audiences, including children and young people, and can be shown with or without English subtitles. 
Type Of Art Film/Video/Animation 
Year Produced 2011 
 
Title Five Textile Banners 
Description Five textile banners (roughly the height of a person) are double-sided with the image on one side and embroidered text on the other. These were designed by Shaeron Caton-Rose (installation artist) based on the ideas, conversations and images created during the first residency. 
Type Of Art Artwork 
Year Produced 2012 
Impact Post-award, the banners were displayed at the British Society of Gerontology, July, University of Southampton 
 
Title No Limits Re-imagining Life with Dementia: An educational resource 
Description We produced 500 copies of this educational resource. Each copy included a digital copy of the film on CD, postcard images of the textile banners, and questions to facilitate discussion. 
Type Of Art Artefact (including digital) 
Year Produced 2014 
Impact The resource is used by the Alzheimer's Society, Dementia Knowledge Centre. 
 
Title No Limits| Reimagning Life with dementia 
Description Exhibition Catolgue 
Type Of Art Artefact (including digital) 
Year Produced 2014 
Impact not known 
 
Description As the project was a dissemination project rather than a research study there are no findings as such, however, the outputs we created from this project, have led us to draw a number of significant conclusions about the process of collaborative exhibition, which we intend to publish.These include the:



1. Power of documentary film for provoking dialogue about dementia, and people with dementia; the film has been screened in different places to different audiences, including the Alzheimer's Disease International and Alzheimer's Europe conferences, as well as Dementia Congress. Each time it is interpreted in a different way and typically provokes discussion about profound issues such as end-of-life care, risk taking, and the authenticity of participants' identity as a person with dementia.



2. Value of a residency for collaborating effectively with people with dementia; in particular, we found that it created a space for people to not only work effectively but also create bonds, extend social networks, and have some fun.



3. The importance of creating an educational resource pack that reflects the nature and focus of the collaboration (inspirational, quality of material, person-centred) and which encourages action from the resource user (public promise).
Exploitation Route The overall aim of this project was to raise public awareness and challenge the cultural stereotypes, fear and misunderstandings surrounding dementia. Outputs have been used in a non-academic context, including the International Documentary Film Festival, and at a practice based events.
Sectors Communities and Social Services/Policy

Environment

URL http://www.nolimitsdementia.com