Big Society? Disabled People with Learning Disabilities and Civil Society
Lead Research Organisation:
University of Sheffield
Department Name: Education
Abstract
'Big Society' has been hailed as David Cameron's and the Coalition Government's big idea. Some have described Big Society as the bits of society that are left over outside of the state or the economy and others see 'Big Society' as enabling local communities to take control of their own quality of lives. The Cabinet Office identified three core layers of the Big Society policy agenda: (i) Empowering communities: giving local councils and neighbourhoods more power to take decisions and shape their area; (ii) Opening up public services: enabling charities, social enterprises, private companies and employee-owned co-operatives to compete to offer people high quality services; (iii) Promoting social action: encouraging and enabling people from all walks of life to play a more active part in society, promoting more volunteering and philanthropy. Big Society appears to be calling upon civil society to support the communities they serve. Civil society refers to charities, social enterprises, faith communities and voluntary groups. Clearly, disabled people with learning disabilities rely heavily on and contribute to civil society, though this is often ignored. This proposed research will work with people so-labelled and their key partners from the civil society to consider their place in the current Big Society context, with a specific focus on three regional locations in England. We pose a number of questions:
1. To what extent are people with learning disabilities participating in civil society today?
2. What are the ongoing and anticipated impacts of the cuts in public funding and new policies of the coalition government on civil society organisations aligned to people with learning disabilities?
3. In the current climate what opportunities exist for people with learning disabilities to contribute to and benefit from the Big Society and, hence, civil society?
4. To what extent are the three layers of Big Society (empowering communities, opening up public services, promoting social action) illuminated by three civil societal practices of people with learning disabilities (circles of support, real employment, self-advocacy)?
5. What can be learnt about the realities of the Big Society in practice from current and emerging examples of civil society for people with learning disabilities?
6. How are people with learning disabilities experiencing opportunities for (self)advocacy, employment and community support and participation in civil society?
Our research will draw on ideas from sociology, social policy, community psychology and disability to help us contextualise these questions. Our study will work with three civil society research partners - Circles of Support in Lancashire, Real Employment in Bristol, self-advocacy in Yorkshire - in order to explore the three core layers of the Big Society and to see if (or how) they fit with the practices and ambitions of our research partners and people with learning disabilities. First, we will interview key stakeholders including policy makers, lawyers and disabled people's organisations to access their views on Big Society. Second, we will carry out a longitudinal analysis of policy documents and review the academic literature on Big and Civil Society. Third, we will work with our three research partners to learn about what they do and how this fits with the Big Society agenda. Fourth, we will analyse the data and, fifth, feed this back to our research partners and others to check and revise our findings through findings workshops. Sixth, we will place a 'researcher in residence' into the three partner organisations in order to give something substantive back to the groups. Seventh, we will share our findings through public engagement festival and conferences. Throughout the entirety of the project we will be guided and evaluated by a group of Impact Experts who will ensure that our research tackles key issues and that our findings and recommendations have the best practice.
1. To what extent are people with learning disabilities participating in civil society today?
2. What are the ongoing and anticipated impacts of the cuts in public funding and new policies of the coalition government on civil society organisations aligned to people with learning disabilities?
3. In the current climate what opportunities exist for people with learning disabilities to contribute to and benefit from the Big Society and, hence, civil society?
4. To what extent are the three layers of Big Society (empowering communities, opening up public services, promoting social action) illuminated by three civil societal practices of people with learning disabilities (circles of support, real employment, self-advocacy)?
5. What can be learnt about the realities of the Big Society in practice from current and emerging examples of civil society for people with learning disabilities?
6. How are people with learning disabilities experiencing opportunities for (self)advocacy, employment and community support and participation in civil society?
Our research will draw on ideas from sociology, social policy, community psychology and disability to help us contextualise these questions. Our study will work with three civil society research partners - Circles of Support in Lancashire, Real Employment in Bristol, self-advocacy in Yorkshire - in order to explore the three core layers of the Big Society and to see if (or how) they fit with the practices and ambitions of our research partners and people with learning disabilities. First, we will interview key stakeholders including policy makers, lawyers and disabled people's organisations to access their views on Big Society. Second, we will carry out a longitudinal analysis of policy documents and review the academic literature on Big and Civil Society. Third, we will work with our three research partners to learn about what they do and how this fits with the Big Society agenda. Fourth, we will analyse the data and, fifth, feed this back to our research partners and others to check and revise our findings through findings workshops. Sixth, we will place a 'researcher in residence' into the three partner organisations in order to give something substantive back to the groups. Seventh, we will share our findings through public engagement festival and conferences. Throughout the entirety of the project we will be guided and evaluated by a group of Impact Experts who will ensure that our research tackles key issues and that our findings and recommendations have the best practice.
Planned Impact
This proposal responds directly to issues raised by impact experts at a stakeholder workshop held in MMU in January 2011 (see 'Case for Support'). The meeting, funded by MMU, brought together researchers from three universities, The Foundation for People with Learning Disabilities, MENCAP, an Independent Living Organisation and Person Centred planning coordinators, Speak Up Self advocacy, Rotherham. All of these partners now constitute the 'Impact expert research management and advisory group' who will guide the project from start to finish and, drawing on their expertise and connections, will advise the research team to ensure that the projects findings feed into practitioner, service, policy making and civil society contexts.
Our project interconnects perspectives from disability studies, community psychology, sociology and social policy and garners the perspectives of people with learning disabilities and civil society supporters, in order to deliver a number of impacts. We have two key questions: who will benefit from this research and how will they benefit?
First, academics, students and practitioners in the areas of psychology, sociology, social policy and disability studies will benefit. We will draw on our track record in disseminating our findings across disciplines and international contexts (See CVs & End of Project Report for RES- 062-23-1138). Mid to long-term impact will be made through knowledge transfer via the presentation of our findings at conferences, events and through publication. Short term impact will include teaching of under/postgraduate students on psychology, disability studies and social work courses managed and delivered by the PI and Co-Is. (see also 'Academic Beneficiaries' section).
Second, we have identified a number of key players in the Public Sector including practitioners, civil servants, service users, policy makers. We seek to raise public engagement with the lives of adults with learning disabilities and inform government thinking by disseminating information to key departments including: Office for Civil Society, the Office for Disability Issues. We aim to increase the effectiveness of public services through our relationships with our third sector impact partners and our Research Management Group.
Third, we will collaborate with third sector impact partners (list available on request) who will also be beneficiaries of the research. These partners are at the forefront of engagements with civil servants and service providers and it is through their existing relationships that we will channel key findings and recommendations. They have agreed to act as project champions to share key findings and recommendations with service providers, civil servants and policy makers. These organisations have expressed commitment to draw on our findings, utilising/adapting these within their own interventions/training support packages/services delivered to professionals etc. We will provide evidence that seeks to promote the social and emotional well-being of adults with learning disabilities - thus updating their resources with empirical evidence.
Fourth, we will collaborate with adults with learning disabilities, allies, families and professionals to promote their critical engagement with services, professional practice and enabling support mechanisms. We have devised co-operative training and impact activities (see 'Activities Schedule' attachment) that will tap into and enhance their critical capacities as key impact participants (see 'Pathways to Impact'). Operational and Organisational Change will occur in through the 'professional allied to the community' and 'impact workshop' phases of our research (see 'Case for Support'). We will seek to publicise these local changes through inter/national dissemination activities. We have costed for involvement of civil society partners as co-researchers to enhance impact.
Our project interconnects perspectives from disability studies, community psychology, sociology and social policy and garners the perspectives of people with learning disabilities and civil society supporters, in order to deliver a number of impacts. We have two key questions: who will benefit from this research and how will they benefit?
First, academics, students and practitioners in the areas of psychology, sociology, social policy and disability studies will benefit. We will draw on our track record in disseminating our findings across disciplines and international contexts (See CVs & End of Project Report for RES- 062-23-1138). Mid to long-term impact will be made through knowledge transfer via the presentation of our findings at conferences, events and through publication. Short term impact will include teaching of under/postgraduate students on psychology, disability studies and social work courses managed and delivered by the PI and Co-Is. (see also 'Academic Beneficiaries' section).
Second, we have identified a number of key players in the Public Sector including practitioners, civil servants, service users, policy makers. We seek to raise public engagement with the lives of adults with learning disabilities and inform government thinking by disseminating information to key departments including: Office for Civil Society, the Office for Disability Issues. We aim to increase the effectiveness of public services through our relationships with our third sector impact partners and our Research Management Group.
Third, we will collaborate with third sector impact partners (list available on request) who will also be beneficiaries of the research. These partners are at the forefront of engagements with civil servants and service providers and it is through their existing relationships that we will channel key findings and recommendations. They have agreed to act as project champions to share key findings and recommendations with service providers, civil servants and policy makers. These organisations have expressed commitment to draw on our findings, utilising/adapting these within their own interventions/training support packages/services delivered to professionals etc. We will provide evidence that seeks to promote the social and emotional well-being of adults with learning disabilities - thus updating their resources with empirical evidence.
Fourth, we will collaborate with adults with learning disabilities, allies, families and professionals to promote their critical engagement with services, professional practice and enabling support mechanisms. We have devised co-operative training and impact activities (see 'Activities Schedule' attachment) that will tap into and enhance their critical capacities as key impact participants (see 'Pathways to Impact'). Operational and Organisational Change will occur in through the 'professional allied to the community' and 'impact workshop' phases of our research (see 'Case for Support'). We will seek to publicise these local changes through inter/national dissemination activities. We have costed for involvement of civil society partners as co-researchers to enhance impact.
Organisations
- University of Sheffield (Lead Research Organisation)
- Ryerson University (Collaboration)
- Youth Employment UK (Collaboration)
- LEARNING DISABILITY ENGLAND (Collaboration)
- Sunderland People First (Collaboration)
- United Voice (Collaboration)
- University of Guelph (Collaboration)
- IPPR Institute for Public Policy Research (Collaboration)
Publications
Bates K
(2017)
Precarious lives and resistant possibilities: the labour of people with learning disabilities in times of austerity
in Disability & Society
Bates, K.
(2015)
Blog: Knowledge Exchange in Malaysia
Dan Goodley
(2023)
Disability and the medical posthumanities
in interconnections: journal of posthumanism
Ecclestone K
(2014)
Political and educational springboard or straitjacket? Theorising post/human subjects in an age of vulnerability
in Discourse: Studies in the Cultural Politics of Education
Goodley
(2014)
Dis/ability Studies: Theorising disablism and ableism
Goodley
(2014)
Dis/ability Studies: Theorising disablism and ableism
Goodley D
(2014)
Becoming dishuman: thinking about the human through dis/ability
in Discourse: Studies in the Cultural Politics of Education
Goodley D
(2014)
The posthuman
in Disability & Society
Goodley D
(2014)
Big Society? Disabled people with the label of learning disabilities and the queer(y)ing of civil society
in Scandinavian Journal of Disability Research
Goodley D
(2015)
The DisHuman child
in Discourse: Studies in the Cultural Politics of Education
| Description | The findings of the research project can be broken down into three interconnected areas: theory, practice and policy. In brief, we summarise our findings under each of these headings: Theory Disability is a good place to start thinking about the ways in which we live together; Thinking about disability can change the way we think about society; Disability can change how we think about our relationships with others and to re-shape, trouble and expand on ideas of what it means to be 'human'; Disabled people's experiences and views should always be included in discussion about what a 'good society' might look like; We live in a time when people who are 'able' to 'work hard' are valued most; we call this 'neo-liberal ableism'; It is important to question the value of what it means be a 'normal' human at the same time as recognising that disabled people are human too (DisHumanism); We need a social policy that recognises the importance of interdependence, rather than independence; We need to find new ways of valuing human diversity - disability is a good place to start. Practice Disabled people should not be 'left out in the cold' in social policy or society; Disability is a good place to start thinking about how we might labour (work) differently and think again about what work means; Self-advocacy enables people to fight for their rights and to speak up. Job coaching can work well to support people into employment; Social enterprises can also create employment opportunities for people with learning disabilities; Business circles of support can help people become self-employed; Circles offer a powerful form of 'co-produced' advocacy; Information about circles should be shared widely; We need to act now to expose and challenge widespread disabling attitudes and practices in the lives of disabled people with learning disabilities. Policy It is time to end the institutionalisation of disabled people; assessment and treatment units should be closed to new admissions with a view to closing all such provision within the National Health Service. Every disabled person with a personal budget should be offered access advocacy, either by an independent advocate or through co-produced advocacy in the form of a circle of support. There should be increased investment in proven mechanisms for supporting people with a learning disability into work (e.g. supported internships, social enterprise, self-employment - supported by business circles). There should be increased investment for local self-advocacy groups for people with learning disabilities and that these are not replaced by large, generic advocacy organisations. We have captured these and other key findings through the writing of accessible Summary Cards and Policy Briefings documents which can be downloaded as pdfs from our project website https://bigsocietydis.wordpress.com. Each of the cards accessibly summarises an academic output, blog or presentation. |
| Exploitation Route | We expect that the findings re: good practice evidence base for moving people with learning disabilities into employment will be taken forward by the Departments for Welfare, Labour, PERMANDU (Prime Minister's Office) and Special Education in Malaysia, as well as Gamuda, a Malaysian construction company. We expect that the findings re: circles of support as a form of co-produced self advocacy will be taken up by third sector; local authority social care services, by activists and allies to disabled people. Findings are being drawn on by campaigners seeking to change the law to ensure that there is a presumption that people with LD live in their own homes and communities, this campaign is under the banner of the #LBBill. We expect that the model of circles of support will also be developed by a consortium of special schools in Sheffield. We expect that the findings re: self-advocacy will be taken up by self-advocates in Canada to develop models of paid advocacy. We also expect that the findings will become part of a wider movement to secure the future of self-advocacy in England working in partnership with Pathways Associates, Mencap, Housing and Support Alliance, Foundation for People with Learning Disabilities and the Learning Disability Alliance - all of whom we have engaged with as part of the research. Our expectations in relation to the above-mentioned pathways to impact will be met through the development of our ESRC Impact Acceleration Account grant funded website (working title www.humanstoo.com) which will produce resources for people with learning disabilities and their allies around the themes of self-advocacy, work and independent living (drawing on findings and recommendations from our research). |
| Sectors | Communities and Social Services/Policy Construction Education Healthcare Leisure Activities including Sports Recreation and Tourism Government Democracy and Justice Culture Heritage Museums and Collections Retail |
| URL | https://bigsocietydis.wordpress.com |
| Description | BIG SOCIETY Impacted on organisation and social welfare by increasing knowledge of the self-advocacy landscape for user led organisations and people with learning disabilities. Self-advocacy organisations are spaces for friendships, relationships, empowerment, advice and can also provide supportive opportunities for employment. However, the research also found that many people were unaware of self-advocacy or where they can find out about it locally (finding 2). Funding cuts to self-advocacy mean there are fewer groups, and no central way to find out what is available since the Department of Health-funded National Forum ceased to exist. To address this gap the research team worked in partnership with local and national self-advocacy groups in the UK (SpeakUp Self-Advocacy; Sunderland People First; Learning Disability England) to raise awareness of and access to self-advocacy through the creation of an online map to extend the availability and access of this information to organisations, people with LD and their allies. Sunderland People First (SPF) reported a lack of joined-up working amongst advocacy groups which can limit their impact. Liaising with other groups in compiling the map had led them to learn about new groups, provide bespoke support to the people who contact them and increase their confidence in approaching other self-advocacy organisations about joint working. SPF won the Michael Ludlam Award for Advocacy, policy and the media and were announced as learning disability leaders in 2019. This award was for the map, described by judges as much needed and the first of its kind. By combining our knowledge of the self-advocacy landscape and working within a self-advocacy organisation with Katherine and Dan's academic research knowledge and contacts we have delivered an award winning project that will have a long standing legacy for self-advocacy organisations. Development worker, Sunderland People First The success of the map has resulted in its international adoption in Malaysia, Belgium, Sweden and the Netherlands. (2) Impacted on organisations and the social welfare of disabled people in Malaysia by increasing access to and quality of supported employment provision The findings from GoodLey, Lawthom and Runswick-Cole's Big Society project revealed that in the UK supported employment was urgently needed for people with learning disabilities to access work; NGOs and DPOs played a key role in this and self-advocacy had empowering and multi-faceted role in people's lives (findings 1, 2, 3). Building on previously developed relationships with organisations in Malaysia Goodley, Lawthom and Runswick-Cole tested the applicability of the findings in an international context. As in the UK, in Malaysia people with learning disabilities are excluded from work, due to negative stereotypes of disabled people and a lack of employment support. By working closely with partners at a national and local level Goodley, Lawthom and Runswick-Cole have had significant impact on organisations, industry and the lives of disabled people. They have engaged with Malaysian organisations by delivering a series of bespoke training events in March 2015, September 2015 and April 2019 in collaboration Mutually Inclusive Partnerships. The events were supported by the Prime Minister's Office and delivered to special education teachers, Job Coaches, employers and representatives from the Department of Education. In 2019 Goodley presented a keynote at Malaysia's 1st International Special Education Exhibition & Conference. This event was officiated by the Minister of Education and attended by various ministries, parents and people with disabilities. During the visits Goodely, Lawthom and Runswick-Cole also met with industry partners and self-advocacy groups. i) Raised awareness about the need to develop national standards for job coaches in Malaysia. Goodley, Lawthom and Runswick-Cole engaged with the Job Coaching Network in Malaysia to support them to develop a national set of standards for job coaches. This national network sits within the Department of Social Welfare and is supported by NGOs, industry and other government departments including the Departments of Labour, Special Education and Human Resources. The National Standards enable Job Coaches to be accountable and trained to a consistent standard. This in turn improves employment outcomes for people with learning disabilities. These standards were finalised in 2017 and are undergoing implementation. Job coaching will now receive greater recognition and be endorsed by the Department of Skills Development. This will impact the 350 job coaches currently practicing. ii) Changing the supported employment practices in Gamuda in Malaysia Gamuda, a large construction company in Kuala Lumpur, was committed to ensuring that 1% of the employees of the construction company would be people with autism. They drew on findings 1- 3 to enable this to happen and ensure it was successful and sustainable. Between 2015 and 2019, the Big Society team delivered a programme of research-led events to Gamuda including public focused meetings with HR management team and CEO and a training day for 70 employees and its partners. Our research has informed the training programme currently delivered by Gamuda's Enabling Academy, a charitable foundation delivering employment for people with autism (currently N= 60) within Gamuda and its partner companies (including: HSBC, Uniqlo, CIMB Bank). Specifically, Gamuda has drawn directly on our research to introduce circles of support and the adopt of the term reasonable adjustments in training materials and practices of the Enabling Academy when engaging with industry partners As a result of including this in the training (reasonable adjustments), job coaches are more aware of the needs of people with autism and they now are able to offer more appropriate support leading to better employment outcomes for people with autism...This has contributed to employee well-being and sustainability rates Swee Lan Yeo, role [S2] The Gamuda employment programme has expanded the reach of the programme by engaging with partners on the supply chain: Returning to Malaysia in 2019, it was clear that much progress has been made and that the employment support programme had developed significantly. Not only did this mean that more disabled people were able to access employment opportunities through the programme but Gamuda had also actively widened the participation of other organisations through engagement of its supply chain (Director, Mutually Inclusive). As a direct result of the theoretical engagements that took place during the project, members of the research team (Goodley, Runswick-Cole and Lawthom) with Liddiard, The University of Sheffield set up a web hub: dishuman.com, to promote the theoretical impacts of the project in the fields of disability studies, community psychology, education and sociology. This work was downloaded and cited in these areas. Following an international satellite public engagement event in Malaysia in 2016, two of our partners from The Foundation For People with Learning Disabilities, were invited back to Malaysia to deliver further training re supported employment and transitions to adulthood for people with learning disabilities. They delivered training for the Malaysian government department for Welfare, Labour, PERMANDU (Prime Minister's Department) and Special Education as well as private sector organisations and the Japanese International Co-operation Agency. In addition, they were invited to deliver further training on supported employment to Gamuda, a large construction company employing 4,000 people, in Malaysia and to support the development of their existing supported employment programme for people with learning disabilities. These impacts will enhance the quality of life, and health of people with learning disabilities and enable them to participate in the work force and contribute to the economy. The team will return to Kuala Lumpur in April 2019 to assess the impact of the workshops, research seminars and public events from the previous two trips on private companies, job coaches and government policy. SpeakUp Self-advocacy made a successful application (with members of the research team from MMU and Sheffield Universities) to secure a Social Sciences and Humanities Research Council, Canada, Network Grant and attended a series of workshops in Toronto, Canada focusing on intimate citizenship in the lives of people with learning disabilities. Following this public engagement event in Canada, a self-advocacy organization based in Toronto is looking to develop its model of advocacy based on the research findings. SpeakUp have also submitted a proposal to Rotherham Local Authority to develop further circles of support across England. Costings for an evaluation led by MMU is included in the application. They are working alongside Pete Crane, independent living advisor and project partner to develop further circles of support facilitated by SpeakUp. This participation in and expansion of the role of self-advocacy is a key mechanism for increasing the effectiveness of public services and policy and for promoting health and well-being for people with learning disabilities. Community living advisors have been using research findings to change the way that advocacy is offered to families. A consortium of special schools in Sheffield is collaborating with the research team to develop circles of support for parents and disabled children in Sheffield. As above the rolling out of circles of support are a key tool for enhancing health, well-being and community engagement. Findings were drawn on by campaigners seeking to change the law to ensure that there is a presumption that people with LD live in their own homes and communities, this campaign is under the banner of the #LBBill. This will not only enhance the lives of people with learning disabilities but will promote community connection and inclusion. Vicky Farnsworth, Speak Up Self-Advocacy said: quote: 'This work makes me feel proud and valued and I feel part of a group of colleagues who really want to make a lasting difference'. Keith Bates, Foundation for People with Learning Disabilities said: 'As this research affords us a geographical snapshot combining three pieces of our work illustrated by the five participants, it has afforded an excellent chance to reflect on the impact of current government policy. This is further boosted by plans, inspired by the project, to launch a programme of conversations about employment with local family carers as they support their son or daughter in preparing for a future as an adult'; David Fiddament, Royal National Mencap, said: "The research has been shared with our Senior Leadership Team and will help to inform the current review of our strategic priorities. Our initial research identified that tackling inequalities (Health, Social Care; Financial) should be at the core of our new vision. Your research has identified the benefits of Community Circles, for families, individuals and organisations and will be a helpful tool in shaping our thinking." Pete Crane, independent living advisor said: 'Already some of the work produced by Katherine and Dan (from the Big Society project) has made a real difference in the lives of real families that we have networked with'. We have rolled out findings and recommendations of our research through our ESRC Impact Acceleration Account Grant funding: We have produced three films and launched these at a networking event on the 2nd December 2016 to coincide with the International Day of Disabled Persons on the 3rd December. Supportive work https://www.youtube.com/watch?v=vVEP4uHfP18&feature=emb_logo Promoting self-advocacy https://www.youtube.com/watch?v=rCwhj3pvqwA&feature=emb_logo Enabling community https://www.youtube.com/watch?v=Psws0VY8wM8&feature=emb_logo Each of these themes has associated: (i) films documenting good practice and the impacts of austerity (ii) worked case study examples of good practice (iii) links to organisations in the UK that further promote work, self-advocacy and community living. (iv) key summaries of related research findings associated with good practice (v) A number of policy briefings that we are developing with the Social Science Impact and Knowledge Exchange Team at the University of Sheffield. Over 2016-2017 we put in place a number of audit trail days each week to; (i) log and track visits; (ii) capture responses to the site; (iii) build up resources through appealing for crowd-sourcing; (iv) use social media to enhance reach. Humanactivism.org has already been used to: (i) feed into the Rethinking Care Group report led by Dr Simon Duffy which will contribute to the Parliamentary Inquiry on Adult Social Care hosted by Clive Betts MP, the Chair of the Communities & Local Government Committee in late 2016 and (2) contribute to foundational debates of the new Learning Disability England - an alliance between people with learning disabilities and academics. ADDITIONAL impact activities to report since the 2018 Research Fish submission include: In the UK, we have worked with IPPR North to produce policy guidance for local and national decision-makers to improve pathways to employment. We will disseminate these findings at a number of workshops in Manchester aimed at employers, disabled people and service providers. In Malaysia, the team will revisit Kuala Lumpur to deliver training sessions on supported employment at Gamuda and collate evidence and testimonies of the impact of our research on policy, practice and provision in relation to (i) Gamuda; (ii) Job Coaches Network; (iii) United Voice self-advocacy group and (iv) government departments including Special Education and Labour; Drawing down Impact Accelerator funds via the University of Sheffield and as a consequence of Goodley and Runswick-Cole convening the 2018-2019 Crook's Fellows (https://www.sheffield.ac.uk/faculty/social-sciences/crook-public-service-fellowships/disabilityanddisadvantage) we are working in partnership with local and national self-advocacy groups in the UK (SpeakUp Self-Advocacy; Sunderland People First; Learning Disability England) to raise awareness of and access to self-advocacy in the UK, through the creation of an online map of self-advocacy groups. Previously, this information was not available to people with learning disabilities and their supporters. We are also going to draw down additional Impact Accelerator funds to reproduce this interactive map with self-advocates in Malaysia (United Voice) to produce a Malaysian version of the map. Dr Kenji Kuno provided the following testimony in January 2019; 'In my role as JICA's senior advisor and expert on disability, I have used the research of Professor Dan Goodley in a variety of ways. Dan's work has been crucial to developing Disability Studies and awareness in Malaysia, prior to this awareness was limited. My role as JICA's senior advisor on disability ran from 2004 to 2013 but Dan's research has continued to have an impact on my work that of organisations for disabled people in Malaysia'. In this letter he directly reports on the wide reach of the Big Society's impact activities on developments in Malaysia. The original theoretical work that was housed under dishuman.org is now to be found at the new iHuman website; http://ihuman.group.shef.ac.uk/work/ FEEDING INTO RESEARCH COLLABORATIONS In 2019. we built on the co-production methods and civil society partnerships developed in the Big Society to work with partners - including Speakup Self-advocacy - to write an ESRC grant application that brings together partnerships with healthcare practitioners, NHS services and clinical researchers. This project Humanising Healthcare has been approved for funding and we will be working towards pathways to impact to identify and promote humane and compassionate healthcare: Economic and Social Research Council (£731,114). ES/W003406/1. Humanising the Healthcare Experiences of People with Learning Disabilities and/or Autism. PI: Goodley. Co-Is Katherine Runswick-Cole, Rebecca Lawthom (University of Sheffield), Rohit Shankar (University of Plymouth), Charlotte Lawthom (Aneurin Bevan University Health Board), Speakup Self-advocacy, Sheffield Voices, Sunderland People First, Barod. September 2022 - August 2025 During the Big Society project, we developed collaborative partnership with Speak Up Self Advocacy, and established an approach to co production built on mutual respect and shared knowledges. The collaboration and methodolical approach directly influenced the development of the Public Patient Involvement and co production elements of the research grant Maximising Individual Placement and Support Beyond Severe Mental Illness, National Institute of Health Research (NIHR202996) Lead Applicant: Adam Whitworth, Co-Applicants: Katherine Runswick-Cole, Sheffield, Rebecca Spencer, Social Finance, Susan Baxter, Sheffield, Michele Scattergood, Breakthrough UK, Adrian Harper, Speak Up Self Advocacy, Alan Brennan, Sheffield (September, 2021- May, 2023) £397,999.00. |
| First Year Of Impact | 2014 |
| Sector | Construction,Education,Healthcare,Government, Democracy and Justice,Retail,Other |
| Impact Types | Cultural Societal Economic |
| Description | A workshop and dialogue event held at Enabling Village Singapore (the newest and most disability inclusive space in the nation state) that brought together practitioners, professionals, government funded organisations and disabled people to explore the promotion of community participation, self-advocacy and supportive employment for people with intellectual disabilities. This invited session permitted Goodley to share key research funding to key people. |
| Geographic Reach | Asia |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Disability Matters |
| Amount | £2,977,154 (GBP) |
| Funding ID | 226705/z/22/z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2023 |
| End | 08/2029 |
| Description | Further Funding: Economic and Social Research Council Festival of Social Science, 2014 |
| Amount | £1,008 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2014 |
| End | 11/2014 |
| Description | Humanising the Healthcare Experiences of People with Learning Disabilities and/or Autism |
| Amount | £731,114 (GBP) |
| Funding ID | ES/W003406/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2022 |
| End | 08/2025 |
| Description | Social Sciences and Humanities Research Council Network Grant |
| Amount | $24,795 (CAD) |
| Organisation | Government of Canada |
| Department | SSHRC - Social Sciences and Humanities Research Council |
| Sector | Public |
| Country | Canada |
| Start | 06/2015 |
| End | 10/2015 |
| Description | WAARC: Wellcome Anti-Ableist Research Culture: Wellcome Institutional Funding for Research Culture Award |
| Amount | £1,000,000 (GBP) |
| Funding ID | 228084/Z/23/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2024 |
| End | 03/2026 |
| Description | Improving pathways to employment for disabled young people |
| Organisation | IPPR Institute for Public Policy Research |
| Department | IPPR North |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | We collaborated on with IPPR North on a report "Plans that work: improving pathways to employment for young disabled people" |
| Collaborator Contribution | They authored the report in collaboration with the research team for Living Life to the Fullest and Big Society They also collaborated on a co-authored journal article with the research team for the British Journal of Special Education |
| Impact | Plans that work - IPPR report https://www.ippr.org/research/publications/plans-that-work Plans that work - journal article https://onlinelibrary.wiley.com/doi/abs/10.1111/1467-8578.12298 |
| Start Year | 2018 |
| Description | International Advisory Board Member |
| Organisation | Ryerson University |
| Country | Canada |
| Sector | Academic/University |
| PI Contribution | Katherine Runswick-Cole is a member of the Inclusive Early Childhood Service System project international advisory board http://inclusiveearlychildhood.ca |
| Collaborator Contribution | Katherine is an advisor to the project and has presented at conferences and co-authored with colleagues a journal article which is under review |
| Impact | Journal article is in press |
| Start Year | 2018 |
| Description | Learning Disability England hosting map |
| Organisation | Learning Disability England |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Learning Disability England have agreed to host and maintain the self-advocacy map produced with Sunderland People First |
| Collaborator Contribution | LDE is committed to hosting the map on its website and to updating it with details of new groups |
| Impact | Online interactive map |
| Start Year | 2019 |
| Description | Re*Storying Autism |
| Organisation | University of Guelph |
| Country | Canada |
| Sector | Academic/University |
| PI Contribution | Professor Katherine Runswick-Cole is a collaborator a Social Sciences and Humanities Research Council funded project led by Dr Patty Douglas (Brandon University) Re-Storying Autism. She has travelled to Toronto to take part in a digital story telling workshop. The result of this collaboration is three internationally co-authored journal articles in preparation. |
| Collaborator Contribution | The partners hosted a three day digital story telling workshop facilitated by artists and film makers, they are promoting the films via their social media platforms. |
| Impact | Three journal articles are in press One digital story was made |
| Start Year | 2017 |
| Description | Sunderland People First - self advocacy map |
| Organisation | Sunderland People First |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Working as part of the Crook Public Service Fellowship Scheme, and allied to Living Life to the Fullest and Big Society? Disabled people with learning disabilities and civil society, we worked with Sunderland People First to co-produce an on-line map of self-advocacy groups in England. For the first time, disabled people will be able to have access to a resource that will allow them so search for their nearest advocacy group and to find out about the work it does. |
| Collaborator Contribution | The partner organisation were involved in the inception of the piece of work, they carried out data collection for the map, worked with the web developer to produce an accessible online resource and are promoting the resource through their networks. |
| Impact | The output is an online searchable map of self advocacy groups - we will be able to track engagement with the site and the reach of the project |
| Start Year | 2018 |
| Description | United Voice - Self Advocacy Map |
| Organisation | United Voice |
| Country | Malaysia |
| Sector | Charity/Non Profit |
| PI Contribution | United Voice have worked with us to develop an online interactive map of self advocacy groups in Malaysia. They will host the map on their website and will continue to update it when new groups open and when groups close |
| Collaborator Contribution | UV have been involved in the design of the map working alongside us to ensure that the map is culturally relevant, they have collected information about the groups to upload on the map. They will continue to host the map and update it. |
| Impact | Online interactive map of self advocacy groups in Malaysia |
| Start Year | 2018 |
| Description | Youth Employment UK |
| Organisation | Youth Employment UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | As a result of the work by the team of co-researchers on living life to the fullest and on employment, we were invited to collaborate with Youth Employment UK on revising their materials for young people and employers to enhance accessibility and improve information. We also co-produced a podcast with them and with Sunderland People First and My Life My Choice, Self-Advocacy groups, which focused on advice to employers. |
| Collaborator Contribution | By hosting the podcast and disseminating materials linked to the project, the partners have contributed their networks to the project. |
| Impact | Materials for employers Podcast |
| Start Year | 2019 |
| Description | 'Put your money away, love, I don't charge for retards' : emotional labour and disavowal in the lives of mothers of disabled children |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presented at the Manchester Metropolitan University 'Child, family and disability' seminar day. After the talk, parents of disabled children shared their experiences of exclusion and discrimination in their lives. |
| Year(s) Of Engagement Activity | 2009 |
| Description | 1. Runswick-Cole K. (2017) People with learning disabilities. Invited Speaker at the Launch Event for Metropolis - the research led policy think tank, Manchester Metropolitan University, Manchester UK, 29th March, 2017. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 100 attendees came to the launch of the university's research led think tank Metropolis. Following the discussion, we had further meetings with IPPR North in order to take forward the impact of the Big Society project re: employment and disabled people |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://mcrmetropolis.uk/what-now-for-the-north/ |
| Description | 1. Runswick-Cole, K. (2017) Looking back, looking forward: re-thinking mothering through disability, Disability and the Disciplines, Keynote Speaker Liverpool Hope University 6th July, 2017. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Runswick-Cole, K. (2017) Looking back, looking forward: re-thinking mothering through disability, Disability and the Disciplines, Keynote Speaker Liverpool Hope University 6th July, 2017. The conversation focused on collective action for disabled people in the context of austerity |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.youtube.com/watch?v=R3YVrB2f4MI&t=182s |
| Description | 2017: Social Care Debate with The Guardian's Frances Ryan at Manchester Metropolitan University, 15th May, 2017. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | 60 member of the general public attended the debate on the future of social care for disabled people. The panel included Frances Ryan, The Guardian, Cheryl Houston, Activist and coronation street actress |
| Year(s) Of Engagement Activity | 2017 |
| Description | A RIGHT TO EDUCATION FOR ALL: #SENDNATIONALCRISIS |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Katherine Runswick-Cole spoke at one of 28 marches across the country organised by parents campaigning for better support for children with "SEND" in schools. |
| Year(s) Of Engagement Activity | 2019 |
| Description | A talk- Working the Edges of Posthuman Disability Studies in Toronto |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Drawing on work with colleagues Dan Goodley and Kirsty Liddiard and the Co-Researcher Collective made up of Sally Whitney, Lucy Watts, Ruth Spurr, Carrie Aimes, Emma Vogelmann and Katy Evans, Katherine spoke about the project, Living Life to the Fullest: life, death, disability and the human. Katherine outlined the ways in which the project has used the principles of coproduction from research design to dissemination of findings and the impact that this has had on the research project. An audience of up to 30 faculty and students from across the universities in Toronto attended the event which sparked discussion about how research can be coproduced with disabled young people. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Best use of breaks for disabled children |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | The government's 2007 strategy, Aiming High for Disabled Children, identifies the need for efficient and effective short breaks. In our study of services for disabled children aged between four and 16 over the past 10 years, parents, carers and children told us what they wanted from short breaks. This was used by Derbyshire Parent Carer Forum in order to advocate for funding for short break provision in Derbyshire. |
| Year(s) Of Engagement Activity | 2011 |
| URL | http://www.communitycare.co.uk/Articles/2010/04/23/114362/quality-in-practice-best-use-of-breaks-for... |
| Description | Blog post: close assessment and treatment units for people with learning disabilities |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Blog discusses the closure of ATUs in the UK in the light of abuse scandals. As a result of the publication of this blog, a member of the research team, Katherine Runswick-Cole, was interviewed for an article that appeared in The Guardian newspaper: http://www.theguardian.com/society/2015/dec/16/families-long-stay-units-learning-disabilities |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.metropolis.mmu.ac.uk/big-ideas/health-social-care/close-assessment-treatment-units-atus-f... |
| Description | Blog: Thinking about the human; thinking about disability |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This blog was referred to by another blog talking about the Finnish rock band of people with learning disabilities. Blog written in response to the NNDR blog: http://mic.com/articles/112964/meet-the-finnish-punk-band-changing-the-global-understanding-of-disability |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://nndr.no/thinking-about-the-human-thinking-about-disability/ |
| Description | Blog: 60% of MPs believe that learning disabled people can't work: Big Society research shows that they can |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Blog post sparked online discussion with care provider, Dimensions, and follow up meetings re: joint mail to MPs to inform them about people with learning disabilities and employment 38 retweets 24 facebook shares |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/05/11/60-of-mps-believe-that-learning-disabled-people-cant-... |
| Description | Blog: A few violent individuals |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Blog post was re-tweeted 10 times. |
| Year(s) Of Engagement Activity | 2013 |
| URL | https://bigsocietydis.wordpress.com/2013/10/08/a-few-violent-individuals/ |
| Description | Blog: Accessing the digital age: blog post for Disability Studies in Education Conference, 2014 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Blog post raises awareness of digital exclusion of people with LD. Research team members are developing a project to explore and challenge the digital exclusion of people with LD. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2014/05/02/accessing-the-digital-age-blog-post-for-disability-st... |
| Description | Blog: Hidden Cameras and Mystery Shoppers |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Two comments and 4 re-tweets. 2 comments and 4 re-tweets |
| Year(s) Of Engagement Activity | 2013 |
| URL | https://bigsocietydis.wordpress.com/2013/10/15/hidden-cameras-and-mystery-shoppers/ |
| Description | Blog: Intimate Citizenship and learning disability |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk has sparked on line discussion about intimate citizenship 52 retweets on twitter and 150 Facebook shares |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/05/20/intimate-citizenship-and-learning-disability/ |
| Description | Blog: Japan International Cooperation Agency |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion of employment strategies for people with learning disabilities in the UK and Malaysia. Keith Bates, Head of Employment at the Foundation for People with Learning Disabilities has been invited back to Malaysia to develop a series of workshops on supported employment |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/05/japan-international-cooperation-agency-and-the-senato... |
| Description | Blog: Learning Journeys and #JusticeforLB |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This blog contributed to the debates surrounding the discussion of the lack of investigation into the deaths of people with learning disabilities in the NHS. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://bigsocietydis.wordpress.com/2016/01/07/learning-journeys-and-justiceforlb/ |
| Description | Blog: Making Space: Exploring intimate citizenship in the lives of people with learning disabilities |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | The blog has been shared on the Nordic Network of Disability Research We are waiting to track reactions to this posting. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://nndr.no/making-space-exploring-intimate-citizenship-in-the-lives-of-people-labeled-with-learn... |
| Description | Blog: Meeting one of Malaysia's most renowned disability activists |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Discussions with leading disability activist Peter Tan News article published in the Borneo Post: http://www.theborneopost.com/2015/04/26/meeting-the-goodleys/ |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/06/meeting-one-of-malaysias-most-renowned-disability-act... |
| Description | Blog: Meeting with Bathmavathi Krishnan, Disability activist and Senator, Upper House, Parliament of Malaysia |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion about activism in UK and Malaysia. The Senator was interested in the effects of austerity in the UK |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/05/japan-international-cooperation-agency-and-the-senato... |
| Description | Blog: Ministry of Human Resources, the Labour Department, Peninsular Malaysi |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk sparked discussion of the role of the state in the lives of disabled people in Malaysia and the UK with particular reference to supported employment. Twitter shares 7 Facebook shares 10 |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/01/meetings-at-the-ministries-31st-march-2015/ |
| Description | Blog: Rebooting humanity through disability |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Two twitter shares Four Facebook shares. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/02/02/rebooting-humanity-through-disability-by-dan-goodley-... |
| Description | Blog: SEND Focus: what does the future hold for children with SEND |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | This blog discusses the future for children with SEND and the aspirations for them as adults with learning disabilities. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.tes.com/news/school-news/breaking-views/send-focus-what-does-future-hold-students-send |
| Description | Blog: Sharing Big Society findings and Community Psychology at the University of Nottingham in Malaysia |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The blog was shared on social media. 13 retweets on twitter |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/06/sharing-big-society-findings-and-community-psychology... |
| Description | Blog: Travels with LB's flag |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This blog post was widely re-tweeted and mentioned on Facebook. This blog builds the web presence for the project blog. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/13/travels-with-lbs-flag/ |
| Description | Blog: Understanding personhood and disability: beginning a dialogue with moral philosophy. |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The blog post received comments on the nature of the personalisation agenda The blog post received comments on the nature of the personalisation agenda & 7 re-tweets on twitter |
| Year(s) Of Engagement Activity | 2013 |
| URL | https://bigsocietydis.wordpress.com/2013/10/17/understanding-personhood-and-disability-beginning-a-d... |
| Description | Blog: Visit to Gamuda |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion focused on the employment of people with learning disabilities. The research team shared information about approaches to employment with Gamuda. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/05/united-voice-gamuda/ |
| Description | Blog: Visit to United Voice Self-Advocacy |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Discussion of the state of play for self-advocacy in the UK and Malaysia. A member of the research team, Keith Bates, Foundation for People with Learning Disabilities was invited return to Malaysia to work with United Voice on their enterprise activities. Facebook shares 20 |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/05/united-voice-gamuda/ |
| Description | Blog: What does the comprehensive spending review mean for 'people like you'? |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | This blog post led to its author, Katherine Runswick-Cole, being interviewed on Pure FM, a local radio station about the effect of the comprehensive spending review on people with learning disabilities. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.metropolis.mmu.ac.uk/comprehensive-spending-review/ |
| Description | Blog: Why Malaysia? |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The aim was to share information about the reasons for the research team's visit to Malaysia. Twitter shares 6 Facebook 13 shares |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/03/29/big-society-on-tour-malaysia/ |
| Description | Buying (into) autism : the commodification of 'disability' in the academy |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Talk sparked questioning of how autism is understood as a cultural category and how the category has been commodified within the academy through the development of research centres, training programmes and published literature focused on autism. From this meeting, a group of academics came together to form a critical autism network that has been successful in securing ESRC funding for a festival of social science event in 2013 and an edited book contract with Jessica Kingsley Publisher that will be published in 2015 (Runswick-Cole, Mallett & Timimi (Eds)). |
| Year(s) Of Engagement Activity | 2011 |
| Description | Celebrating cyborgs : photovoice and disabled children |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Seminar four in the ESRC research seminar series entitled: 'Researching the lives of disabled children and young people, with a focus on their perspectives' (January 2010-May 2011). Talk sparked questions about the role of theory in reporting on the lives of disabled children in research. After my talk, there was a stimulating debate about the role of theory in research focusing on the lives of disabled children and whether this enhances or inhibits understanding of disabled children's lives, who it is accessible to and who engages with theory. |
| Year(s) Of Engagement Activity | 2011 |
| Description | Conference: End of project conference 15th & 16th September, 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | The end of project conference brought together people with learning disabilities, family members, activists, academics, third sector organizations and other allies to think about the lives of people with learning disabilities in a time of austerity. Day one focused on the three strands of the project: circles of support; self-advocacy and employment. The day included presentations from • Dan Goodley (Sheffield) & Katherine Runswick-Cole (Manchester Metropolitan) describing key project findings; • Jodie Bradley and Vicky Farnsworth talking about their work as self advocates at SpeakUp self-advocacy (http://speakup.org.uk); • Laurence Clark, Karen Flood and Vicky Hornby described their research on self-advocacy for Pathways Associates (http://blog.pathwaysassociates.co.uk ); • Helen Smith talking about her work for Community Circles (https://communitycirclesblog.wordpress.com); • Keith Bates talking about the work of the Foundation for People with Learning Disabilities moving people into employment (http://www.learningdisabilities.org.uk/help-information/learning-disability-a-z/e/employment-careers/ ) • self advocates Bob Langsford and Kevin White talking about their experience of living with austerity The day concluded with a knowledge café facilitated by Rebecca Lawthom (Manchester Metropolitan) Day Two took up the theme of austerity again and began with a presentation from Dan Goodley (Sheffield) & Katherine Runswick-Cole (Manchester Metropolitan) talking about disability and community. In their presentation Dan and Katherine described disability's radical potential to disrupt notions of the community and, indeed, the human. They were followed by Imogen Tyler (Lancaster) describing her current powerful research on the cultural production of stigma (https://socialabjection.wordpress.com/2014/05/12/from-the-shock-doctrine-to-the-stigma-doctrine-imogen-tyler/ ). Next Alan Roulstone (Leeds) reflected on the 'causes' and consequences of austerity in the lives of disabled people, as well as thinking about opportunities for resistance. Alan was followed by Jenny Fisher's (Manchester Metropolitan) presentation which focused on austerity parenting and her evaluation of the work of Home Start in Manchester (http://www.rihsc.mmu.ac.uk/projects/docs/HSMS%20report.pdf ). After lunch, Aaron Reeves (Oxford) described his work on drawing on social policy and health economics to explore disability and the labour market (https://aaronreeves.wordpress.com ). The day ended with a presentation by Chris Hatton (Lancaster) describing what statistics do (and don't) tell us about the lives of people with learning disabilities (http://chrishatton.blogspot.co.uk). Thanks to the generosity and support of those attending the conference, you can follow the detail of the discussion via twitter #austerity15 and the storify is available here: ?sfy.co/b0lJU ? ? After the days, Katherine Runswick-Cole was invited to attend a workshop hosted by the Housing Support Alliance and People First England on self-advocacy. Katherine Runswick-Cole was invited to present at the annual learning disability forum North West in Blackpool 2016. Katherine was invited to meet with the research lead for Manchester Learning Disability Partnership Discussions were held with the academics present in terms of developing future research collaborations. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/09/17/15th-16th-september-2015-an-inspiring-and-energizing-... |
| Description | Conference: North West Regional Forum for people with learning disabilities |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | We were delighted to be invited back to Blackpool for this year's regional forum. The Annual Forum is an opportunity for 120 self-advocates from across the North West to come together to talk about the issues that matter to them. We spoke about people with learning disabilities experiences of loneliness and the impact on cuts to public services on their lives. We were inited to visit some of the local self-advocacy groups to tell them more. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://bigsocietydis.wordpress.com/2016/02/27/north-west-regional-forum-blackpool-24th-february-201... |
| Description | DWP consultation event |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | On 8th March, 2019, Katherine was invited to take part in a workshop run by the DWP to look at improving transitions for young people with SEND. This informed the development of an evidence review paper: Young people with SEND, improving transitions to employment. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Dialogue: Meeting with the Equalities & Human Rights Commission |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MMU was identified as a centre of research excellence in disability studies. The EHRC were interested in discussing: what were the important issues facing disabled people today? how were disabled students faring in times of shifting funds? how could research be made accessible to disabled people? The meeting marked the start of an ongoing relationship with the EHRC. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com |
| Description | Disability & Community |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Discussion followed about the place of the human in the lives of people with learning disabilities. Discussions followed about developing impact from the project and taking forward future research collaborations. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/09/17/15th-16th-september-2015-an-inspiring-and-energizing-... |
| Description | Does every child matter? |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Every Child Matters was a cornerstone of the Labour Government's children's strategy. As the new administration lays out its plans, we ask ECM specialist Katherine Runswick-Cole how the programme has fared and where its future lies. Publication of research in a non-academic magazine extended the reach of research findings. |
| Year(s) Of Engagement Activity | 2011 |
| URL | http://www.rihsc.mmu.ac.uk/postblairproject/SEN%2048%20ECM.pdf |
| Description | Does every child matter? : Hannah's story |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Co-authored magazine article Publication of research findings in a practitioner magazine increased the reach of the project findings. |
| Year(s) Of Engagement Activity | 2011 |
| Description | Education is not a chocolate biscuit - again! |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Katherine Runswick-Cole, Professor of Education, The School of Education and iHuman at the University of Sheffield, was invited to present a version of her inaugural lecture at the Department of Education at the University of Malaya on 4th April, 2019. Katherine's talk focused needs, rights and humanity in the education system in the UK. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Expert Panel: Blackmarket for Knowledge and Non-Knowledge, Wurld Wurchs Festival, Basel, 6th June, 2015 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussion focused on the nature of the 'citizen' and the 'human' with reference to the lives of people with learning disabilities. Information was shared with organisation supporting disabled people into employment in Switzerland and there is a possibility that the Blackmarket model of knowledge exchange will come to Manchester in 2016 |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/06/09/blackmarket-for-knowledge-and-non-knowledge-basel-swi... |
| Description | Expert Panel: Department of Special Education |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion sparked talk of how schools can support transition of young disabled people from school to employment. A follow up visit has been arranged by a member of the research team who will return to Kuala Lumpur to deliver further training to teachers on employment and people with learning disabilities. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/04/01/meetings-at-the-ministries-31st-march-2015/ |
| Description | Expert Panel: Supported employment in the UK - trends, innovations and challenges, Department of Social Welfare, Ministry of Women, Family and Community Development. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk sparked discussion of the development of the Job Coach role in Malaysia, alongside the possibilities of people with learning disabilities entering self-employment. A member of the research team has been invited back to Malaysia to engage in further training and development work with job coaches re: employment and self-employment. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/03/31/workshop-two-supported-employment-in-the-uk-trends-in... |
| Description | Expert Panel: When #JusticeforLB met @BigSocietyDis |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussions were held about the proposed new #LBBill and how findings from the research might feed into the development of the proposed Bill. The discussions from the meeting were incorporated into the the second draft of the LB Bill |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/01/27/when-justiceforlb-met-bigsocietydis-26th-january-2015... |
| Description | Exploring Multiple Childhoods |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tema Barn (Childhood Studies) at the University of Linkoping, Sweden. is an interdisciplinary research centre focused on children and childhoods that focuses on children's perspectives and on child-orientated research methods. Professor Anna Sparrman and her team convened a multidisciplinary workshop to bring together an group of international academics to explore the multiplicities of children's childhoods. Professor Katherine Runswick-Cole (The School of Education and iHuman at The University of Sheffield) was invited to talk about "Ethic as Method". Drawing on her work with colleagues Dr Kirsty Liddiard and Professor Dan Goodley and the Co-Researcher Collective, Katherine spoke about participatory research with children and young people as a form of relational ethics. She described the ways in which disabled children and young people have been excluded from research in the past. She talked about how the research team were learning together to understand the lives of children and young people with life limiting and life threatening impairments as part of an ongoing research project "Living Life to the Fullest: Life, Death, Disability and the Human" (funded by the Economic and Social Research Council. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Good places to go? : families and disabled children talk about leisure |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | What leisure activities do families and disabled children access? Where do they go shopping? Where do they go on holiday? Where are good places to go and why? Which places give disabled kids and their families a sense of belonging? We asked these questions as part of a two-year project funded by the Economic and Social Research Council: "Does every child matter, Post-Blair: Interconnections of disabled childhoods", (www.rihsc.mmu.ac.uk/ postblairproject/). The publication of the article in a non-academic journal widened the dissemination of the research findings. |
| Year(s) Of Engagement Activity | 2009 |
| URL | http://www.cerebra.org.uk/Resources/Cerebra/Parent%20Support/Bulletins/summer09.pdf |
| Description | Humanactivism news articles |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Since summer 2016 we have launched a number of regular news updates that reflect on the findings and applicaitons. To date (February 2017) we have over 20 news articles addressing issues including: Disability politics - Post-Trump Brexit and its impact on disabled people The UN investigation of the UK's austerity impacts on the human rights of people with intellectual disabilities Bring Brandon Home for Xmas |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://humanactivism.org/ |
| Description | Humanity under Duress Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | In June 2019 a number of international researchers came together for a two-day symposium convened by iHuman and the Inclusive Societies group, both based within the Faculty of Social Sciences at the University of Sheffield. The brief given to our invited scholars was clear; write 1500 words (no more), share this with us two weeks before the event (no later) and prepare a 10 minute synopsis of the paper in readiness for some debate and discussion (no worries). Some prompts were provided: ? What does it mean to be human in a post-welfare, post-social, austerity society? ? What does it mean to flourish as a human and who gets to flourish and who does not? ? What are the social, political and economic implications and feedback effects of compressed and damaged flourishing among particular social strata and geographies? ? What kinds of non-human connections are necessary in the time of the anthropocene? ? Can we celebrate the human category and also embrace non-humans such as animals and tech? ? Are we living in a time of the posthuman and, if so, what does this mean in practice, politics and theory? ? Are new vocabularies of winning, losing-out, difference or class required to understand the complex forms of social and (non)human problems as we move forward? Their responses were dynamic, eclectic, theoretical and political. And we share their papers below in the spirit of ongoing debate and dialogue. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://ihuman.group.shef.ac.uk/humanity-under-duress/ |
| Description | Invited Keynote, Dan Goodley, 'Global Perspectives on the Disability Rights Movement: A conversation with Marca Bristo and Dan Goodley Tuesday, September 26, 2017, Access Living Address, 115 W. Chicago Ave. , Chicago, IL, 60654 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | EMICS RESEARCH COMMUNITY SERVICES ALUMNI ABOUT AHS Eyebrow menu Inside AHS AHS Directory Give to AHS UIC menu UIC.edu Campus Map Search the site Search... Submit Breadcrumbs Home AHS Alumni Calendar SEP 26 Global Perspectives on the Disability Rights Movement: A conversation with Marca Bristo and Dan Goodley Tuesday, September 26, 2017 5:30 PM - 8:00 PM RoomAccess Living Address115 W. Chicago Ave. , Chicago, IL, 60654 The UIC Department of Disability and Human Development invites you to our Inaugural Albrecht Global Lecture on Disability. 5:30 p.m. Rooftop reception 6:30 p.m. Marca Bristo and Dan Goodley discuss disability rights and disability activism in the United Kingdom and United States 7:20 p.m. Gary Albrecht joins conversation Gary L. Albrecht is a Fellow of the Royal Belgian Academy of Arts and Sciences, Extraordinary Guest Professor of Social Sciences, University of Leuven, Belgium and Professor Emeritus of Public Health and of Disability and Human Development at the University of Illinois at Chicago. Marca Bristo, President and CEO of Access Living of Metropolitan Chicago, is a nationally and internationally distinguished leader in the disability rights movement, leading for over 30 years, one of the first centers for independent living in the United States. Dan Goodley, Professor, Chair in Education and Director of Research, The University of Sheffield, is a leading disability studies researcher. This event is made possible in part by a donation from Gary Albrecht and the following sponsors: Access Living, the Department of Disability and Human Development and the UIC College of Applied Health Sciences. Contact Cheryl Johnson to request accommodations, ask for directions or make other inquiries. Contact Cheryl Johnson 312-413-1647 cherylj@uic.edu Date postedAug 31, 2017 Date updatedAug 31, 2017 R.S.V.P. AHS ALUMNI Give to AHS AHS Alumni Awards Meet Our Alumni Calendar Contact |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://ahs.uic.edu/alumni/events/global-perspectives-on-the-disability-rights-movement-a-conversati... |
| Description | Invited Public Lecture and Keynote, Dan Goodley, 'Disability and the Human' HAUTE ÉCOLE DE SANTÉ VAUD, Lausanne, Switzerland, 22nd November 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | 22nd November 2017, HAUTE ÉCOLE DE SANTÉ VAUD, Lausanne, Switzerland, Dan Goodley, Keynote public lecture, 'Disability and the Human'. |
| Year(s) Of Engagement Activity | 2013,2015,2017 |
| URL | https://medium.com/soeresearch/ihuman-in-switzerland-disability-and-human-relationships-85148108ca3 |
| Description | Invited keynote, Dan Goodley, 'humanactivism.org', British Council Greece, Athens, One day conference on Inclusive Education,International Day of Disabled People, 3rd December 2016. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Goodley, D. (2016). Humanactivism,org. Invited keynote to British Council Greece, Athens, One day conference on Inclusive Education,International Day of Disabled People, 3rd December 2016. |
| Year(s) Of Engagement Activity | 2012,2016 |
| Description | Invited keynote, Dan Goodley, the Inaugural Gary Albrecht Global Lecture on Disability, at The University of Illinois at Chicago's (UIC) Department of Disability and Human Development (DHD) (26th September 2017) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | This was the Inaugural Gary Albrecht Global Lecture on Disability, at The University of Illinois at Chicago's (UIC) Department of Disability and Human Development (DHD) (26th September 2017); an esteemed invitation to leading international disability studies scholars. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://ihuman.group.shef.ac.uk/ihuman-in-chicago/ |
| Description | Invited speaker, Dan Goodley, workshop at Erfurt University in Germany, 2nd and the 4th November 2017. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | iHuman c0-director Dan Goodley attended a workshop at Erfurt University in Germany between 2nd and the 4th November 2017. Dan was invited, along with researchers from Australia, America and Germany, to debate and discuss papers that address the study of ableism historically and sociologically. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://ihuman.group.shef.ac.uk/ihuman-unpacking-ableism-germany/ |
| Description | Keynote address, Dan Goodley, 'Brexit, Trump and Posthuman disability studies', Past the Post conference: Post-inquiry in the Post-truth Era, 18-19 July, Deakin Burwood Campus. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Schools |
| Results and Impact | Short title: Keynote address to Past the Post conference: Dan Goodley presented a keynote to Post-inquiry in the Post-truth Era, 18-19 July, Deakin Burwood Campus. This conference included academics, practitioners, NGOS and community partners. Conference overview: deakin.edu.au/past-the-posts. Amidst imperatives for measurements of research impact, a 'post-truth' era has simultaneously been declared. The proliferation of 'posts' in empirical inquiry has changed what it means to think, feel and do education research, while 'post-truth' politics has raised other questions about what we do as researchers and why. These posts are theoretically complex, contentious and at times contradictory with unpredictable effects. There is a lack of agreement in how they might best be appropriated within education research. In the current climate of research inter-disciplinarity and new ways of thinking about the posts, questions of incommensurability in relation to matters of ontology and epistemology are ever-present. This conference engages in the research provocations we encounter as educational researchers when we seek to engage with the posts. It takes a broad view of what constitutes post- inquiry and how it might be understood and creatively taken up. ! |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://deakin.edu.au/past-the-posts. |
| Description | Lecture: Becoming Dishuman: re-thinking civil society through disability, 3rd Annual Trevor Parmenter Lecture The Centre for Disability Studies, The University of Sydney, New South Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | There were also questions from audience members about the theoretical development of a 'dishuman' approach to disability studies and how this might impact on the lives of disabled people and social policy. After the talk, Dan and Katherine were asked to present at the International Association for the Study of Intellectual Disability in Melbourne, 2016. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/04/31st-july-2015-becoming-dishuman-re-thinking-civil-so... |
| Description | Lecture: Public lecture with Paul Gibson, Disability Rights Commissioner, New Zealand. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Katherine presented from her research Big Society? Disabled people with learning disabilities and civil society. Her paper co-authored with Dan Goodley Becoming dishuman: re-thinking social policy through disability outlined a dishuman approach to social policy - one in which disabled people play are at the centre in shaping social policy. Drawing on examples from their research in England, they described how disabled people are troubling, re-shaping and extending what it means to be human. They concluded the paper calling for a time when any thought about the human in social policy has in mind what disability does to it that when thinking about the human this will always involve thinking about disability. Paul Gibson spoke next. He set out his vision for a Centre for Disability Studies at the University of Otago, building on the work of the Donald Beasley Institute and creating a disability plan across the university. Paul called for increased representation of disabled students, staff and governors and for the lived experience of disabled people to be built into the curriculum. Focusing on a human rights approach to disability politics, Paul called for research to play a pivotal role in making disability rights real for the diversity of disabled people. He concluded by asking the audience to challenge their own prejudices, and not limit their own hopes & aspirations and those of others. This activity strengthened networks in Otago and possible future research collaborations. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/13/12th-august-2015-public-lecture-with-paul-gibson-disa... |
| Description | Lecture: Towards a DisHuman Society, University of Malaya |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The discussions that followed the presentation focused on the impact of DisHuman theory on the lives of disabled people. Collaboration building with colleagues at the university of Malaya |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with the Family Network, Dunedin |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussions ranged from the challenges families face in finding inclusive schools in the area to talk about the difficulties in transition from children's to adult services. Katherine shared examples from the UK and from the current project about some of the challenges and opportunities for disabled children and young people and their family carers. Connections were made for potential further research collaborations. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/12/11th-august-2015-meeting-the-family-network-dunedin/ |
| Description | Newspaper article: Families doubt plans to close NHS long-stay units will improve care |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Katherine Runswick-Cole was invited to contribute to an article in The Guardian newspaper about the closure of Assessment and Treatment Units for people with learning disabilities and care in the community. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://bigsocietydis.wordpress.com/2015/12/18/families-doubt-plans-to-close-nhs-long-stay-units-wil... |
| Description | Op Ed. for the Yorkshire Post newspaper |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Following an invitation to speak at the SEND crisis rally in Leeds, I was invited to write an Op. Ed for the Yorkshire post |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.yorkshirepost.co.uk/news/opinion/columnists/how-special-needs-families-are-finding-their... |
| Description | Participation for all |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Professor Katherine Runswick-Cole presented at the European Academy of Childhood Disability: Innovation for participation Conference 23rd - 25th May, 2019 in Paris. Katherine was invited to present as part of an international panel including: Dr Tillie Curran, Dr Marisol Moreno Angarita and Emeritus Professor Don Wertlieb, who are all members of the international research management group for The Inclusive Early Childhood Service System Project based at Ryerson University, Canada. Dr Kathryn Underwood leads the project; she also spoke on the panel. Their presentation, A Theoretical and Methodological Basis for Early Childhood Intervention, focused on the importance of centring the concerns of children and families in research about their lives. The presentation sparked lively debate about understandings of childhood, youth and disability and the nature of participation in research and in decisions about health and social care. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Presentation Runswick-Cole, K. and Goodley, D. (2013) Being a researcher-in-residence, Doing participatory research Economic and Social Research Seminar Series Participatory Research, 28th November, 2013, The University of Sout |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | This talked sparked discussion about the inclusion of people with complex needs in the research project. It led to Runswick-Cole being invited to participate in a workshop exploring time banking and research with people with learning disabilities. |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://bigsocietydis.files.wordpress.com/2013/11/southampton-2.pdf |
| Description | Presentation: The Violence of Disablism in the UK. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The seminar day prompted discussion about the de-institutionalisation of people with intellectual disabilities in the UK and Australia. Ater the talk, the research team met with potential research collaborators at the University of Sydney to discuss the development of a de-institutionalisation research bid. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/04/3rd-august-2015-understanding-and-contesting-institut... |
| Description | Presentation: A Posthuman Manifesto, Disability Studies in Education Conference, Melbourne Australia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The talk sparked discussion from the delegates about the nature of the human and how the category of disability disrupts, re-shapes and enlarges understanding of the human. After the talk, we were contacted by several members of the audience asking for further information. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: Becoming Dishuman |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Discussions focused on ending the institutionalisation of people with learning disabilities. An audience member contacted the research team to talk about replicating the study in Iceland. The application is currently in preparation. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2014/09/14/becoming-dishuman/ |
| Description | Presentation: Becoming Dishuman: thinking about the human through disability, The Victoria Institute, The University of Victoria, Melbourne, Australia, 24th July, 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | This talk sparked discussion of the nature of the human in relation to the lives of people with learning disabilities. After the presentation requested copies of the paper and further information about the research project. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: Being a researcher in residence |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Discussion of the participation of people with LD followed from the talk. Members of the research team are developing the researcher in residence methodology in a project in preparation. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2013/11/29/being-a-researcher-in-residence/ |
| Description | Presentation: DisCivilSociety Workshop at the University of Malaya, Kuala Lumpur |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Questions were asked about the relevance of circles of support in a Malaysian context. Members of the research team were contacted by participants asking for more information about setting up circles of support |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/03/30/workshop-one-discivilsociety-workshop-at-the-universi... |
| Description | Presentation: Disability, austerity, resistance: the impact of the cuts |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The event sparked discussion of the possibilities for inclusion of people with learning disabilities in their communities and in employment. the research team were asked for further information about circles of support |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://bigsocietydis.wordpress.com/2014/11/06/disability-austerity-and-resistance-activism-in-the-a... |
| Description | Presentation: Inclusive Research in Social Care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This talk stimulated discussion of the role of disabled people in research. After the talk, there was a big reaction from audience members who were unaware of the role that people with learning disabilities can play in research as partners. |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://bigsocietydis.wordpress.com/2014/07/15/big-society-partners-present-at-inclusive-research-in... |
| Description | Presentation: Key project findings |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Talk followed about the role of self-advocacy in England and about the impact of welfare reform on people with learning disabilities. After the talk, discussion followed of how we can take forward the findings of the current research with partners to further impact on policy and practice. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: Listening to dis/abled children and young people: a creative approach |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk discussed discussion of the skills researchers need to work with dis/abled children and young people. Participants expressed an interest in the research. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www2.mmu.ac.uk/mcys/events/ |
| Description | Presentation: Runswick-Cole, K. Reflecting on Disability, Personhood and Personalisation in a time of Big Society, Faculty of Health and Social Care Seminar Series, The Open University, 30th April, 2014, Milton Keynes, UK. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Discussion of what the personalisation agenda means for people with learning disabilities followed the presentation. Further requests for publication details were made after the talk. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: Runswick-Cole, K. and Clark, L. (2014) What is Big Society? Self-advocates Conference, North West Learning Disability Forum, 26th February,2014?, Blackpool, UK. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Audience members shared their stories of self-advocacy for people with learning disabilities in a time of Big Society. From this event, (with their permission) we tweeted some of the comments made by the self-advocates during the discussion from the project twitter feed. These were re-tweeted by other self-advocates, activists and members of the academic community. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: Runswick-Cole, K. and Goodley, D. (2014) Cruel Optimism: disability, austerity and Big Society, Health and Human Sciences Research Group, The University of Huddersfield, 5th March, Huddersfield, UK. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | The presentation sparked conversation about the nature of citizenship in a time of austerity. Participants requested further information about the project. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: Runswick-Cole, K. and Goodley, D. (2014) The violence of disablism in neoliberal times, The Norwegian Network of Disability Research, Lillehammer, Norway, 5th-7th May, 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This talked sparked discussion of disability hate crime legislation in the UK and Norway. Following the discussion, there were requests for further information about publications from the project. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: What it means to be human? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This public lecture sparked discussion of what it means to be human. The video of the lecture has had more than 630 views. |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://www.youtube.com/watch?v=jAjU2ypSmhI |
| Description | Public Policy Roundtable - Manchester |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | On 15th April, we hosted a public policy round table with IPPR North to discuss improving pathways to employment for disabled young people. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Public Policy Roundtable - Sheffield |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | On 16th April, 2019, we co-hosted a public policy round table with IPPR North to discuss improving pathways to employment for disabled young people. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Public lecture |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Critical dis/ability studies. North American Federation of Adapted Physical Activity: Revisiting our Research Assumptions 20 Years On: The Role of Interdisciplinarity, September 21 to 23, 2016, Edmonton, Alberta, Canada |
| Year(s) Of Engagement Activity | 2012,2016 |
| Description | Public lecture |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | Dan Goodley - Humanactivism.org: Disability and the human. Invited keynote to the Annual Child and Educational Psychology Conference, Harrogate, 9th January 2017. |
| Year(s) Of Engagement Activity | 2015,2017 |
| Description | Public lecture National Institute of Education Singapore |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A public lecture exploring key lessons for critical disability research and links to practice, policy-making and engagement with NGOs. Brought in findings from three ESRC funded projects |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.nie.edu.sg/event-detail/what-is-critical-disability-studies-and-why-do-we-need-it-in-sin... |
| Description | Public lecture and workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Schools |
| Results and Impact | Disability, special, inclusion: The case of humanactivism.org. Keynote address to the Polish Special Education conference, Uniwersytet Szczecinski,14 - 17th Septemner 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Radio Interview: the impact of the Comprehensive Spending Review on people with learning disabilities |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | The interview, with Katherine Runswick-Cole, was focused on the impact of the CSR on people with learning disabilities. The associated blog "What does the comprehensive spending review mean for people like you?" led to being this local radio interview which will have reached residents in the greater Manchester area. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Reading Rosie: Four theoretical readings of disabled childhood in a time of Big Society |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The talk sparked discussion of the role that labelling plays in the lives of disabled children in Singaport. After the talk, there was further discussion about advocacy for disabled children in Singapore and a research student contacted us asking for further details of our work after the event. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Rights to |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Katherine Runswick-Cole was invited to talk at an event organised by the Serpentine Gallery on at Hoxton Hall on 26th November, 2019. She spoke about the need to uphold disabled children's rights and humanity |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.serpentinegalleries.org/learn/changing-play/rights |
| Description | Runswick-Cole, K. (2018) Work, death, disability and the human, Improving the Lives of People with Learning Disabilities: Combating Inequalities in Health, Education and Employment, Public Policy Exchange |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engaged in public policy workshops with third sector, academics and activists to discuss the poor employment outcomes for people with learning disabilities |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.publicpolicyexchange.co.uk/events/IG05-PPE |
| Description | Seminar presentation: "Becoming Dis/human: Thinking about the Human through Disability" |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Dan Goodley and Katherine Runswick Cole gave a paper at this major international disability conference held annually in the states. Their paper was part of a panel, moderated by Mel Chen, entitled "Beyond 'Human rights' and 'the Human': Disability, (post)human and DisHuman Studies and Intimate Citizenship". There were three papers in the panel: Dan Goodley and Katherine Runswick Cole, "Becoming Dis/human: Thinking about the Human through Disability" Kirsty Liddiard, "'I'm a lie-back-and-think-of-England type of man': Imagining the Posthuman Dis/sexual Subject" Esther Ignagni, "Failing Domesticity: Towards Dis/parenthood" We had a full house for our panel and were able to share our emerging work in http://www.dishuman.com - which has extended out of our work on the BigSocietyDis project and allowed us to work with Kirsty and Esther on shared themes of self-advocacy, intimate citizenship and community & family activism'. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/06/18/bigsocietydis-at-the-society-for-disability-studies-a... |
| Description | Seminar: Becoming a researcher-in-residence (or the problem with coproduction) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Katherine's presentation sparked discussion of the possibilities and challenges of coproduced research in New Zealand and the UK. Discussion about how to ensure that research findings reach audiences outside the university also followed, alongside discussion about different approaches to research dissemination and the requirement in the UK to develop pathways to impact. Links were made with the Donald Beasley Centre at Otago and strengthened with the department of education at Otago |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/11/11th-august-2015-becoming-a-researcher-in-residence-o... |
| Description | Seminar: DisCivil Society: thinking about coproduction, Social Policy & Social Work, 6th October, 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The talk sparked discussion of the role of self-advocacy in research and the wider community. Discussion of the opportunities for work for people with learning disabilities was also a key focus of the conversation as were concerns about the increasing digital divide which has seen people with learning disabilities being excluded from digital citizenship. Links were made with colleagues at SPSW at York and further conversations will be held about future collaborations, particularly around digital exclusion. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/10/08/6th-october-2015-talking-co-production-at-the-centre-... |
| Description | Seminar: Disability, Austerity, Resistance Seminar at the University of New South Wales, Australia |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Talk focused on how we might harness political activism, and come together and collectively agitate around a politics of debility. After the talk, Dan and Katherine were asked to contribute a book chapter to an edited text on social media and disability. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Social Justice in the lives of people with learning disabilities, Keynote lecture -Social Justice Conference, The Institute of Education, Sheffield Hallam University, |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | Keynote presentation to undergraduate students at Sheffield Hallam University. Sparked debates about lives of people with learning disabilities |
| Year(s) Of Engagement Activity | 2019 |
| Description | Working group: Meeting with research & media officers Foundation for People with Learning Disabilities |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Discussion about developing a join media plan from findings from the project Following discussion, the research team are working with FPLD to develop two further projects building on the Big Society research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Workshop Participation: Learning Disability England |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Conversations were held about developing a new umbrella organisation for people with learning disabilities, their family members and professionals with a view to promoting the rights of people with learning disabilities in a time of economic restraint. Numerous connections were made with potential partners for future impact and knowledge exchange activities as well as research collaboration. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Workshop: Every Vote Counts |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussion of the voting rights of people with learning disabilities. Member of the research team met up with disability activist to discuss research findings after meeting at the event. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2014/11/27/every-vote-counts/ |
| Description | Workshop: Intimate Citizenship |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The workshop sparked discussions of models of self-advocacy in the UK and Canada. One of the workshop attendees who worked for an advocacy organisation was very keen to take what she had learned about the UK model (including paying self-advocates) back to her organisation. Discussions were held about future collaborative research bids with partners present. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/09/03/a-hop-across-the-pond-intimate-citizenship-workshop-t... |
| Description | Workshop: Learning Disability Think Tank, Manchester |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Learning Disability Think Tank event was convened by Breakthrough UK, a disabled people led organisation based in Manchester. Attendees at the event included people with learning disabilities and commissioners and practitioners from health, education and social care. The aim of the event was to explore good out comes for young people with learning disabilities in transition to adulthood in the context of the imminent changes to the delivery of service provision as a result of devolution Manchester. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://bigsocietydis.wordpress.com/2016/01/20/15th-january-learning-disability-think-tank-event/ |
| Description | Workshop: Meeting #PeopleFirst, Dunedin, New Zealand |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The meeting was an opportunity for Katherine to share research findings from the project and to talk to members about the state of play for self-advocacy in the UK. She also learned about the opportunities and challenges facing self-advocates in New Zealand. Discussion ranged from talking about opportunities for open employment, to the role of self-advocacy and the opportunities for community participation in New Zealand and the UK. After the meeting, it was agreed to keep in touch and to think about collaborations in the future. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/11/10th-august-2015-meeting-peoplefirst-dunedin-new-zeal... |
| Description | Workshop: Quality & Value in Employment |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk sparked discussion of the developing role of the job coach in Malaysia Delegates suggested taking the message that people with learning disabilities can work back to the department for employment |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/09/21/21st-september-2015-big-society-team-returns-to-malay... |
| Description | Workshop: The Value of Self Advocacy, Centre for Disability Studies, The University of Sydney |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | The session ended with a world café where participants reflected on why self-advocacy is important to them and how this can be supported. After the workshop, Katherine and Dan met with members of the Inclusive Research Group at the University of Sydney to develop plans for research collaborations. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/08/11/6th-august-2015-the-value-of-self-advocacy-centre-for... |
| Description | Workshop: The power of employers |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The workshop sparked discussion of how to develop supported employment at a large engineering organisation in Malaysia Continued contact with the employment team at the engineering organisation. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://bigsocietydis.wordpress.com/2015/09/24/23rd-september-2015-the-power-of-employers/ |