Administrative Data Research Centre, England (ADRCE)
Lead Research Organisation:
University of Southampton
Department Name: Statistical Sciences Research institute
Abstract
Our vision is to transform the way that administrative data, routinely collected by government departments and other agencies, are converted into knowledge and evidence for public and economic policy. Improved access to, and use of these data, will ensure we can tackle some of the major issues facing society, innovatively and efficiently. This will be achieved by safely managing and maximising the use of new data linkages across sectors and government departments, and working across academic disciplines. This will create new evidence to guide development, implementation and evaluation of public policy and future research, as well as new methods to link and analyse data.
We aim to develop new linked data resources, provide access to these data, ensure it is used safely and effectively, and develop research capacity. Our programme is based around seven integrated aims:
1) State of the Art Facilities: will allow access to administrative data by accredited researchers. We will strictly manage the data and researchers who are allowed to access the data, to prevent the identification of individuals. These new facilities will combine exceptional physical facilities with high performance computer systems, database management systems and advanced data analysis and statistical tools.
2) Data management and statistical analysis support: will allow external researchers to securely access the data. We will build our expertise to include providing access to and support analysis of linked data as these new resources are developed. We will work with the Administrative Data Service (ADS) to upgrade our existing secure IT facilities in line with the required standards.
3) New Data Resources: We will link administrative data sets from across different services and government departments and make them accessible for research. These new resources will be relevant for developing policy and services. At the same time we will work with the ADS to begin more ambitious linkage projects, and work in collaboration with partner organisations to link data, and develop and test different approaches to do this.
4) Original Research: We will develop a variety of new methods that enhance the use of administrative data for policy-focussed research. Key research in the first 2 years of the Centre include: methods of linking data; data quality; and policy-focussed research. A Scientific Panel of expert researchers will drive forward our research plans. Each of these researchers will lead a specific research project, which will form a rolling programme of two-year projects. The panel will also review and provide guidance on other proposed projects.
5) Training and capacity building: will increase and improve the use of administrative data by researchers (at all career stages) across social and biomedical sciences (from universities, government departments, third and private sectors). We will offer short training courses, workshops and seminars, online material, six PhD studentships, internships, and a network of national and international experts. This will deliver both the necessary safe researcher training, and improve their skills to take advantage of the opportunities provided by new linked data.
6) Collaboration with the ADRN: We will provide a range of tools and a forum for working closely with our key partners ADS, ESRC and the Office for National Statistics (ONS), as well as other who will benefit from this work. We will work to standardise datasets across the UK and beyond to allow national and international comparisons. We will develop our established links with government departments, data providers and Trusted Third Parties, and a range of organisations managing cohorts and surveys.
7) Public Engagement: We will engage with the public about linking administrative data. A Communications & Engagement Officer will lead activities in this area, and we have further dedicated staff working on legal and policy development.
We aim to develop new linked data resources, provide access to these data, ensure it is used safely and effectively, and develop research capacity. Our programme is based around seven integrated aims:
1) State of the Art Facilities: will allow access to administrative data by accredited researchers. We will strictly manage the data and researchers who are allowed to access the data, to prevent the identification of individuals. These new facilities will combine exceptional physical facilities with high performance computer systems, database management systems and advanced data analysis and statistical tools.
2) Data management and statistical analysis support: will allow external researchers to securely access the data. We will build our expertise to include providing access to and support analysis of linked data as these new resources are developed. We will work with the Administrative Data Service (ADS) to upgrade our existing secure IT facilities in line with the required standards.
3) New Data Resources: We will link administrative data sets from across different services and government departments and make them accessible for research. These new resources will be relevant for developing policy and services. At the same time we will work with the ADS to begin more ambitious linkage projects, and work in collaboration with partner organisations to link data, and develop and test different approaches to do this.
4) Original Research: We will develop a variety of new methods that enhance the use of administrative data for policy-focussed research. Key research in the first 2 years of the Centre include: methods of linking data; data quality; and policy-focussed research. A Scientific Panel of expert researchers will drive forward our research plans. Each of these researchers will lead a specific research project, which will form a rolling programme of two-year projects. The panel will also review and provide guidance on other proposed projects.
5) Training and capacity building: will increase and improve the use of administrative data by researchers (at all career stages) across social and biomedical sciences (from universities, government departments, third and private sectors). We will offer short training courses, workshops and seminars, online material, six PhD studentships, internships, and a network of national and international experts. This will deliver both the necessary safe researcher training, and improve their skills to take advantage of the opportunities provided by new linked data.
6) Collaboration with the ADRN: We will provide a range of tools and a forum for working closely with our key partners ADS, ESRC and the Office for National Statistics (ONS), as well as other who will benefit from this work. We will work to standardise datasets across the UK and beyond to allow national and international comparisons. We will develop our established links with government departments, data providers and Trusted Third Parties, and a range of organisations managing cohorts and surveys.
7) Public Engagement: We will engage with the public about linking administrative data. A Communications & Engagement Officer will lead activities in this area, and we have further dedicated staff working on legal and policy development.
Planned Impact
Impact Summary
Newly linked administrative data has huge potential for policy relevant and high impact research. Our Southampton-Bloomsbury consortium ADRC-E will develop the brief given by the ESRC in seven integrated work-streams, in order to ensure that the ESRC's ambitious vision is realised and the impact of the new Administrative Data Network is maximised.
This approach involves:
1. Providing state-of-the-art facilities for accessing this new administrative data. We will establish e-Infrastructure which will meet national research ambitions, combining exceptional physical facilities with high performance computational platforms, relational database management systems and advanced data analysis and statistical tools. This will be crucial for ensuring external researchers have easy and immediate access to approved linkages, in high quality settings.
2. Having a first-class team providing data management and statistical analysis support functions for external researchers accessing the data. Our team brings together world-class expertise in analytic methods and administrative data use from education, health, crime, environment, economic and welfare sectors, and deep understanding of the services that generate these data which will help maximize the impact of new linkages
3. Commissioning and creating new linked administrative data resources for a growing research agenda. Our aim is the establish and make widely accessible a suite of linked datasets across government departments and other sources which have previously been hidden from the research view, which because of their novelty or richness, are likely to make decisive contributions to knowledge, often in ways that are internationally uniqueusing a two tier strategy that initially prioritizes minimally disclosive linkages but at the same time works with the ADS to commence more ambitious linkage projects informed by our ambitious research agenda.
4. Conducting original research using linked administrative data and related analytical approaches. We aim to deliver new knowledge through research in methodology (in linkage methods, data quality) and in substantive policy relevant exemplar projects. This will include establishing a Scientific Panel who will drive data linkage projects around our core research programme as well as contributing to the development of the methodological research, which in the first two years will focus on:
a. Developing and evaluating linkage methods.
b. Developing and implementing methods to evaluate data quality using linked datasets.
c. Exemplar research projects to demonstrate the added value of studies using linked data for policy and service improvement.
5. Engaging in training and capacity building. Our proposed TCB activities will play a major role in our impact and to contribute to ESRC's efforts to promote better use of a range of administrative data resources and to build capacity in the use of these data. ADRC will deliver a programme of training courses in the methods for linking and analysing administrative data.
6. Working in collaboration with other elements of the ADRN. ADRC-E will establish a 'scientific front end' to diverse forms of administrative data with a range of collaborative tools and a forum for working closely with our key partners ADS, ESRC and ONS, as well as wider beneficiaries. We will engage with the ADS, other ADRCs and government departments to standardize datasets across the UK countries and beyond to allow national and international comparisons.
7. Ensuring engagement with the public and wider stakeholders is taken seriously. ADRC-E will employ a Communications and Engagement Officer who will lead on delivery of our work in this area and further dedicated staff time to lead on our input to legal and policy development. The IOE has agreed to host a number of public engagement seminars and the UCL contributed PhD will be concentrate of public engagement issues.
Newly linked administrative data has huge potential for policy relevant and high impact research. Our Southampton-Bloomsbury consortium ADRC-E will develop the brief given by the ESRC in seven integrated work-streams, in order to ensure that the ESRC's ambitious vision is realised and the impact of the new Administrative Data Network is maximised.
This approach involves:
1. Providing state-of-the-art facilities for accessing this new administrative data. We will establish e-Infrastructure which will meet national research ambitions, combining exceptional physical facilities with high performance computational platforms, relational database management systems and advanced data analysis and statistical tools. This will be crucial for ensuring external researchers have easy and immediate access to approved linkages, in high quality settings.
2. Having a first-class team providing data management and statistical analysis support functions for external researchers accessing the data. Our team brings together world-class expertise in analytic methods and administrative data use from education, health, crime, environment, economic and welfare sectors, and deep understanding of the services that generate these data which will help maximize the impact of new linkages
3. Commissioning and creating new linked administrative data resources for a growing research agenda. Our aim is the establish and make widely accessible a suite of linked datasets across government departments and other sources which have previously been hidden from the research view, which because of their novelty or richness, are likely to make decisive contributions to knowledge, often in ways that are internationally uniqueusing a two tier strategy that initially prioritizes minimally disclosive linkages but at the same time works with the ADS to commence more ambitious linkage projects informed by our ambitious research agenda.
4. Conducting original research using linked administrative data and related analytical approaches. We aim to deliver new knowledge through research in methodology (in linkage methods, data quality) and in substantive policy relevant exemplar projects. This will include establishing a Scientific Panel who will drive data linkage projects around our core research programme as well as contributing to the development of the methodological research, which in the first two years will focus on:
a. Developing and evaluating linkage methods.
b. Developing and implementing methods to evaluate data quality using linked datasets.
c. Exemplar research projects to demonstrate the added value of studies using linked data for policy and service improvement.
5. Engaging in training and capacity building. Our proposed TCB activities will play a major role in our impact and to contribute to ESRC's efforts to promote better use of a range of administrative data resources and to build capacity in the use of these data. ADRC will deliver a programme of training courses in the methods for linking and analysing administrative data.
6. Working in collaboration with other elements of the ADRN. ADRC-E will establish a 'scientific front end' to diverse forms of administrative data with a range of collaborative tools and a forum for working closely with our key partners ADS, ESRC and ONS, as well as wider beneficiaries. We will engage with the ADS, other ADRCs and government departments to standardize datasets across the UK countries and beyond to allow national and international comparisons.
7. Ensuring engagement with the public and wider stakeholders is taken seriously. ADRC-E will employ a Communications and Engagement Officer who will lead on delivery of our work in this area and further dedicated staff time to lead on our input to legal and policy development. The IOE has agreed to host a number of public engagement seminars and the UCL contributed PhD will be concentrate of public engagement issues.
Organisations
- University of Southampton (Lead Research Organisation)
- UK Biobank (Collaboration)
- University of Portsmouth (Collaboration)
- Karolinska Institute (Collaboration)
- National Centre for Social Research (Collaboration)
- Health Data Research UK (Collaboration)
- University of Sheffield (Collaboration)
- University of Auckland (Collaboration)
- Akcea Therapeutics (Collaboration)
- University of Oxford (Collaboration)
- UNIVERSITY OF BIRMINGHAM (Collaboration)
- Keele University (Collaboration)
- Chinese University of Hong Kong (Collaboration)
- Medical Research Council (MRC) (Collaboration)
- Office for National Statistics (Collaboration)
- University of Bristol (Collaboration)
- University College London (Collaboration)
- PUBLIC HEALTH ENGLAND (Collaboration)
- Lancaster University (Collaboration)
- Administrative Data Research Centre for Scotland (Collaboration)
- University College London (Collaboration)
- Ministry of Justice and Public Security (Collaboration)
- National Health Service (Collaboration)
- University of Western Australia (Collaboration)
- British Heart Foundation (BHF) (Collaboration)
- National Institute for Health Research (Collaboration)
- Maastricht University (UM) (Collaboration)
- AstraZeneca (United Kingdom) (Collaboration)
- Farr Institute of Health Informatics Research (Collaboration)
- University of Ulster (Collaboration)
- Economic and Social Research Council (Collaboration)
- London School of Hygiene and Tropical Medicine (LSHTM) (Collaboration)
- Telethon Kids Institute (Collaboration)
- QUEEN MARY UNIVERSITY OF LONDON (Collaboration)
- Servier Laboratories (Collaboration)
- UNIVERSITY OF YORK (Collaboration)
- University of Toronto (Collaboration)
- European Commission (Collaboration)
Publications
Aldridge RW
(2019)
Causes of death among homeless people: a population-based cross-sectional study of linked hospitalisation and mortality data in England.
in Wellcome open research
Banerjee A
(2019)
Subtypes of atrial fibrillation with concomitant valvular heart disease derived from electronic health records: phenotypes, population prevalence, trends and prognosis.
in Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology
Banerjee A.
(2019)
Machine learning for phenotyping and risk prediction in cardiovascular diseases: a systematic review
in EUROPEAN HEART JOURNAL
Brauer R
(2015)
Antipsychotic drugs and risks of myocardial infarction: a self-controlled case series study.
in European heart journal
Bromage DI
(2019)
Metformin use and cardiovascular outcomes after acute myocardial infarction in patients with type 2 diabetes: a cohort study.
in Cardiovascular diabetology
Casanova Dias M
(2017)
Equipping doctors for global health challenges.
in Journal of the Royal Society of Medicine
Chapman B
(2017)
Conceptual and Empirical Issues for Alternative Student Loan Designs: The Significance of Loan Repayment Burdens for the United States
in The ANNALS of the American Academy of Political and Social Science
| Title | ADRC-E First Year Anniversary Video Interview with Prof. David Martin |
| Description | ADRC-E First Year Anniversary Video Interview with Prof. David Martin, Deputy Director and Co-investigator of ADRC-E. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | ADRC-E celebrated its first year of operations on 4th July 2015 and recorded a video to share and celebrate our achievements so far and our plans for the future. |
| URL | https://www.youtube.com/watch?v=3R5ZJiSXi2c&feature=youtu.be |
| Title | ADRC-E Public Engagement 'Guess Who' Board Game |
| Description | ADRC-E received the 'Creative Activity Design' award from the University of Southampton Roadshow on 18 Nov 2015 for a board game developed to increase public engagement with Key Stage 2 children and their teachers, parents and carers. |
| Type Of Art | Artefact (including digital) |
| Year Produced | 2014 |
| Impact | The board game was a key exhibit in the University of Southampton's nationwide Roadshow in year 2014/15 which brings research to life to over 20,000 visitors each year. It will continue to be used and developed in 2016 as part of our PE and outreach strategy. |
| URL | http://www.southampton.ac.uk/per/university/roadshow.page |
| Title | ADRC-E/ONS Collaboration Video Interview with Dr Emma White & Lucy Vickers |
| Description | Video interview with Dr Emma White, Assistant Director of the ADRC-E and Lucy Vickers, Deputy Director of Administrative Data, ONS, to announce the ADRC-E collaboration between ADRC-E and ONS |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video celebrate the collaboration between the centres. |
| URL | https://www.youtube.com/watch?v=ndUPhKQqvVI |
| Title | Public engagement activity: Better Candies Benefit Society |
| Description | Better Candies Benefit Society game provides the 'sweetest' way to learn about linkage of different datasets to benefit society. Each participant chooses a sweet according to their taste (4 flavours, Ministry of Candies - Dataset #2). To receive it, they need to insert the button corresponding to their age and sex (Census - Dataset #1) in the piggy-bank jar corresponding to the candy flavour (Data Linkage platform). After receiving the candy, an ADRC-E business card will be given away to invite people checking the result outcome at the end of the day (on Twitter) or next week (on the ADRC-E website). |
| Type Of Art | Artistic/Creative Exhibition |
| Year Produced | 2017 |
| Impact | With this activity we engaged more than 1,500 at the ADRC-E stand across local and national and science festivals. |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/ |
| Title | The Admin Data Geo Challenge |
| Description | The Admin Data Geo Challenge consists of a large banner with a map of Southern England. On the map a selection of cities/towns are shown as a series of 1km square cells. Participants (the game is designed for school pupils), are given a question sheet that asks them to perform a series of simple mathematical calculations using admin data. For example, participants are given the average number of people in square kilometre in Portsmouth, Southampton and Bournemouth and using the number of square cells for each location calculate the total population of each place. Similar questions are asked using data relating to energy use (source: Ofgem), sold properties (source: Land Registry), school pupils (source: Ofsted), broadband connections and speed (source: Ofcom) and other population statistics (source: 2011 Census). The aim of the game is to showcase the different types of administrative data available and how they can be used to better understand society; whilst also being an engaging exercise for the participants that tests their maths skills. |
| Type Of Art | Artistic/Creative Exhibition |
| Year Produced | 2016 |
| Impact | The Admin Data Geo Challenge has been part of the Administrative Data Research Centre for England's stand at a number of University of Southampton Roadshow events held since summer 2016, including the Cheltenham Science Festival and Winchester Science Festival. It has also been used by the Office for National Statistics at some of their outreach events. |
| Title | Video Podcast with Dr Chris Gale on Introduction to Spatial Data Linkage Using R |
| Description | Video podcast with Dr Chris Gale on 'Introduction to Spatial Data Linkage Using R' to introduce the ADRC-E short course. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been produced to preview the content learned during the ADRC-E short course and is often view by interested applicants. |
| URL | https://www.youtube.com/watch?time_continue=1&v=jAFVcZ9Ofgc |
| Title | Video Podcast with Dr Emma White on Introduction to Administrative Data |
| Description | Video podcast with Dr Emma White, Assistant Director of ADRC-E, on Introduction to Admin Data to introduce the ADRC-E short course. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been produced to preview the content learned during the ADRC-E short course and is often view by interested applicants. |
| URL | https://www.youtube.com/watch?v=LblmcqRo9Nk |
| Title | Video Podcast with Dr Katie Harron on Introduction to Data Linkage |
| Description | Video podcast with Dr Katie Harron (LSHTM) on Introduction to Data Linkage to introduce the ADRC-E short course. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been produced to preview the content learned during the ADRC-E short course and is often view by interested applicants. |
| URL | https://www.youtube.com/watch?v=b7AEhRkcycU |
| Title | Video Podcast with Dr Linda Wijlaars on Introduction to Data Visualisation |
| Description | Video podcast with Dr Linda Wijlaars (UCL) on Introduction to Data Visualisation to introduce the ADRC-E short course. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been produced to preview the content learned during the ADRC-E short course and is often view by interested applicants. |
| URL | https://www.youtube.com/watch?v=ArxK4tPg_PU |
| Title | Video Podcast with Dr Pia Hardelid on Introduction to Hospital Statistics |
| Description | Video podcast with Dr Pia Hardelid (UCL) on Introduction to Hospital Statistics to introduce the ADRC-E short course. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been produced to preview the content learned during the ADRC-E short course and is often view by interested applicants. |
| URL | https://www.youtube.com/watch?v=6_TSSqu4JvI |
| Title | Video Podcast with Prof Li-Chun Zhang on Combining Data from Multiple Administrative and Survey Sources for Statistical Purposes |
| Description | Video podcast with Prof Li-Chun Zhang, ADRC-E co-Investigator, on 'Combining Data from Multiple Administrative and Survey Sources for Statistical Purposes' to introduce the ADRC-E short course. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been produced to preview the content learned during the ADRC-E short course and is often view by interested applicants. |
| URL | https://www.youtube.com/watch?v=6hE6nETXH6I |
| Description | The Administrative Data Research Centre for England (ADRC-E) developed state of the-art facilities, policies and procedures to allow approved researchers access to sensitive administrative data in secure settings. The University of Southampton secure laboratory was awarded CESG Official (Sensitive) accreditation in October 2014, and a secure laboratory was also available in the Farr Institute in Bloomsbury, London. The ADRC-E, Office for National Statistics (ONS) infrastructure was completed with both the ONS accredited secure linkage facility and the secure environment for researchers to access data fully functional. The latter was part of a new Virtual Microdata Laboratory (VML) which became operational in mid-2015. In addition to the VML, ADRC-E also had agreement in principle for the University of Southampton to hold ONS datasets and for them to be made available to researchers via the Southampton and Bloomsbury secure laboratories. The ADRC-E ran an extensive programme of training courses. From April 2014 to July 2018, we delivered 62 short courses, with 87.5 days of training to over 1000 attendees on various aspects of administrative data. Courses were oversubscribed, feedback was exceptional and we received requests to repeat many of the courses. We also organised eight Administrative Data Research Network (ADRN) Accreditation Training sessions in Bloomsbury and Southampton, and had our own trainers to deliver the Safe Use of Research data Environments (SURE) training. We supported the SURE training needs of the ESRC Consumer Data Research Centre. The ADRC-E organised and attended outreach activities and conferences for researchers and data owning organisations to promote our facilities and research findings. We gave invited presentations on the ADRC-E and ADRN in the UK, Australia, Belgium, France, Italy, Portugal, South Africa, Sweden and the USA, and gave over 110 presentations at national and international conferences. ADRC-E produced a data investigation activity designed to spark the interest of the future generation of researchers, key stage 2 children, and their parents, carers and teachers. In 2015, this was taken on the University of Southampton Roadshow, which attracted 35,000 visitors from across the UK, and received the Roadshow's award for Creative Activity Design. ADRC-E built fundamental relationships with ADRN partners and stakeholders, managed expectations and worked towards achieving an outstanding reputation within the research community. We met with data owners to share our ambitions, influence potential research opportunities, and motivate them to be involved with our strategies and the positive impact we can have on society. ADRC-E methodology research demonstrated high levels of linkage error in routinely available health data, showed how score-based methods can improve linkage accuracy and how to reduce survey costs with little impact on representativeness. We worked with the MoJ to evaluate new methods for multi-dataset linkages. Exemplar studies using education, social care, health and geospatial data devised whole-country cohorts to address policy questions and data extracts that could be made available for re-use. We obtained permission to link the National Pupil Database and Hospital Episode Statistics. |
| Exploitation Route | ADRC-E's exemplar studies set precedents to enable further flows of data and offer evidence for policy, data resource development and e-cohorts for re-use. Concept studies to enable novel linkages that unlock new areas of research should be conducted. Examples include ADRC-E's emerging work on enhancing dormant trials through unconsented linkage to administrative data and work with DWP to develop safe and acceptable linkages between health and benefits data to evaluate the wider societal benefits of health interventions. The methodological contribution of ADRC-E could be expanded, which would benefit researchers and data providers. For example, further work on anonymization of geospatial indicators or developing efficient approaches to improve linkage accuracy or reduce resulting biases. Data providers in England have no natural working relationships with academic methodologists and lack capacity and incentives for innovative research and development. The ADRC-E model of collaborative work within data providers for mutual benefit needs to be expanded to develop, validate and document innovative methods for widening access to linked administrative data for research. ADRC-E methodologists should develop, share and evaluate methods for data processing, linkage and anonymization, and bridge the gulf between technical advances and interpretation of governance requirements. ADRC-E work, in collaboration with the ESRC National Centre for Research Methods, explored ways to improve the trade-off between data provider and researcher needs in geographical research using administrative data. This work takes forward the current implementation of automated zone design methods used by ONS and implements these methods in a way that can be customised to the needs of each research project. These tools have the potential to enhance spatial analysis of administrative records while providing increased levels of geoprivacy. |
| Sectors | Communities and Social Services/Policy,Education,Environment,Healthcare,Government, Democracy and Justice |
| URL | https://adrn.ac.uk/centres/england |
| Description | The methodological work of the Administrative Data Research Centre for England (ADRC-E) on the representativeness of surveys has the potential to reduce the cost of data collection without adversely affecting the quality of the survey. Based on this work the Office for National Statistics limited the number of calls to 13 or fewer to an address for the 2017-18 Labour Force Survey and will follow suit for all their surveys. Findings from ADRC-E exemplar studies have informed policy. Evidence from linking student loans to subsequent earnings, from linking children in care over their life course, from linking data on flooding to long-term health, have been relevant to practice and policy. Exemplar data applications, though slow to progress, will enable more efficient data flows for future requests but the detailed legal and technical discussions have also enabled learning between departments about how linkage could be sustainably achieved. The ADRC-E contributed to widening the use of linked administrative data for research by creating resources to enable the safe and appropriate use of data, by creating curated datasets for re-use, and through exemplar studies that demonstrated how administrative data can be used to improve the effectiveness of policy and services. In collaboration with government data providers (NHS Digital, MoJ), the ADRC-E quantified the impact of linkage error in widely used health data and demonstrated how alternative methods could improve linkage quality. We also engaged with data providers through visits, invited workshops and projects. Our work on information to be shared about data processing and linkage methods (the GUILD guidance) has been welcomed by data providers and researchers, and should improve the quality of analyses based on linked administrative data. ADRC-E developed new methods and generated whole-country linked administrative cohorts in health, children's social care and education that could be re-used, with appropriate permissions. For example, we published methods for de-identified linkage of 10 million mother-baby pairs in hospitalisation data for England and created comparable e-birth cohorts in Scotland, England, Sweden and Ontario. Using children's social care data, we also published an e-birth cohort profile for looked after children in England and a curated dataset for re-use. We developed meta-data to characterise school attributes over time, linkage of small area pollution indices, and validated coding clusters for health conditions, which are being widely used. We produced scoping reports to guide data providers through the permission and technical processes to link their data, combined with exemplar service and policy questions that could be addressed, taking into account data quality and expected event rates (e.g. with Family Nurse Partnership and the Family Justice Service). |
| First Year Of Impact | 2015 |
| Sector | Communities and Social Services/Policy,Education,Energy,Environment,Healthcare,Government, Democracy and Justice |
| Impact Types | Societal,Economic,Policy & public services |
| Description | 'New' Data for Policy: exploiting Big Data, linked data and other sources |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| URL | http://www.britac.ac.uk/policy/PopulationStudies.cfm |
| Description | 2021 Census User Group |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | 2021 Census topic consultation response on behalf of Market Research Society (MRS) and MRS Census and Geodemographics Group (CGG), representing ADRC-E views |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://consultations.ons.gov.uk/census/2021-census-topics-consultation |
| Description | ADRC-E Response to ONS Approved Researcher Consultation |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Anonymisation standard review & workshop (HSCIC-led initiative to support increased health data-sharing) |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | Cabinet Office Data Sharing Res & Stats Workshop 2015 leading to (design of) data sharing consultation 2016 |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.gov.uk/government/consultations/better-use-of-data-in-government |
| Description | Feedback on DECC NEED data anlaysis to DECC statistical team |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Market Research Society Census and Geodemographics Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | As of September 2018, I chair this group. I am the Deputy Chair of the Market Research Society's Census and Geodemographics Group, an advisory board that exists to promote the full use of census and other geodemographic information. The group includes representatives from the commercial, academic and government sectors, and has influenced design and dissemination of UK censuses for more than 20 years, including production of a social grade algorithm, advances in the availability of bulk census data for use and re-use and distribution. We engage with ONS and UKSA on a monthly basis, seeking with some success to drive improvements in statistical disclosure control, accessibility of data, quality and methodological innovation. |
| URL | https://www.mrs.org.uk/mrs/census_and_geodemographics_group |
| Description | British Science Association - Future Debates sponsorship |
| Amount | £500 (GBP) |
| Organisation | British Science Association |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 11/2017 |
| Description | Clinical Researcher Starter Grant |
| Amount | £99,463 (GBP) |
| Funding ID | V0017 |
| Organisation | Great Ormond Street Hospital (GOSH) |
| Sector | Hospitals |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 06/2018 |
| Description | Defining and redefining human disease at scale - the human phenome project (GSK) |
| Amount | £851,000 (GBP) |
| Organisation | GlaxoSmithKline (GSK) |
| Sector | Private |
| Country | Global |
| Start | 01/2020 |
| End | 01/2021 |
| Description | EPSRC Standard Research |
| Amount | £5,938,853 (GBP) |
| Funding ID | EP/P032761/1 |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2017 |
| End | 08/2022 |
| Description | HDR UK Phenomics Implementation Project |
| Amount | £1,000,000 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 03/2022 |
| Description | Milojevic A (Co-PI), Mudway I (Co-PI), Beevers S, Wilkinson P. LSHTM - King's Research Collaboration Award, Air pollution and dementia in urban aging society: building capacity of collaboration research. |
| Amount | £9,747 (GBP) |
| Organisation | King's College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 02/2018 |
| Description | NIHR Fellowship |
| Amount | £250,000 (GBP) |
| Organisation | National Institute for Health Research |
| Department | NIHR Biomedical Research Centre |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 12/2018 |
| Description | Pathways to avoidable and unexplained deaths in the early lifecourse |
| Amount | $110,808,640 (AUD) |
| Funding ID | APP1127265 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 01/2017 |
| End | 12/2020 |
| Description | Scoping study for a family justice observatory |
| Amount | £298,168 (GBP) |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2016 |
| End | 11/2017 |
| Description | Student bursary |
| Amount | € 260 (EUR) |
| Organisation | Society for Longitudinal and Lifecourse Studies SLLS |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 10/2015 |
| Description | UCL Big Data Institute Fund |
| Amount | £4,000 (GBP) |
| Organisation | University College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 12/2015 |
| Description | Understanding the health needs of mothers and children involved in family court cases |
| Amount | £394,802 (GBP) |
| Funding ID | KID/42838 |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2017 |
| End | 08/2020 |
| Description | Using linked administrative datasets for testing, evaluation, monitoring of FNP in England |
| Amount | £10,000 (GBP) |
| Organisation | Nurse-Family Partnership |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 02/2016 |
| End | 03/2016 |
| Description | open door programme |
| Amount | £249,559 (GBP) |
| Funding ID | OPD/42729 |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2019 |
| End | 11/2022 |
| Title | Phenome-wide phenotyping algorithms |
| Description | Machine-readable versions (CSV files) of electronic health record phenotyping algorithms for Kuan V., Denaxas S., Gonzalez-Izquierdo A. et al. A chronological map of 308 physical and mental health conditions from 4 million individuals in the National Health Service published in the Lancet Digital Health - DOI 10.1016/S2589-7500(19)30012-3 |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | Algorithms are being used in two additional projects: 1) Pathak N. et al Migrant EHR and 2) Denaxas S. et al GSK/phenomics |
| URL | https://github.com/spiros/chronological-map-phenotypes |
| Title | tofu |
| Description | Tofu is a Python library for generating synthetic UK Biobank data. The UK Biobank is a large open-access prospective research cohort study of 500,000 middle aged participants recruited in England, Scotland and Wales. The study has collected and continues to collect extensive phenotypic and genotypic detail about its participants, including data from questionnaires, physical measures, sample assays, accelerometry, multimodal imaging, genome-wide genotyping and longitudinal follow-up for a wide range of health-related outcomes. Tofu will generate synthetic data which conform to the structure of the baseline data UK Biobank sends researchers by generating random values: For categorical variables (single or multiple choices), a random value will be picked from the UK Biobank data dictionary for that field. For continous variables, a random value will be generated based on the distribution of values reported for that field on the UK Biobank showcase. For date and date/time fields, a random date will be generated. For all other fields, such as polymorphic fields, no data will be generated. Some general observations: The lookups directory contains lookups downloaded from the UK Biobank showcase - they might need to be updated when new fields become available. Data conform to the structure and schema of the baseline file but are otherwise nonsensical: no checks have been implemented across fields. All eid's (patient identifiers) generated from this tool are prefaced with 'fake' in order to avoid confusion with legitimate datasets. Dates randomly generated are between 1910 and 1990 again to avoid confusion with real data. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | Data has been used for training purposes at a postgraduate and postdoc level. |
| URL | https://github.com/spiros/tofu |
| Title | Multiple databases |
| Description | Databases generated 1. National birth cohort using whole of England hospital data (10M mother child pairs) 2. National birth cohort for whole of Scotland data (for ~ 1M mother child pairs) 3. LInked neonatal surveillance data for whole of England linked to national infection surveillance data 4. National adolescent cohort for whole of England (age 10-19 admitted for adversity related injury). 5. Mother child linked cohort in CPRD (primary care data) ~800k pairs 6. National longitudinal data linking children's social care data with all education data for whole of England 7. Linked cohort for Down Syndrome cytogenetic registry to data for whole of England hospitalisation trajectories (linked mother and chlid) 8. Head or Heart study - linkage of 9 RCTs of early infant nutrition to whole of education trajectory 9. RCT CATCH trial linked to deaths and HES records 10 PREVAIL trial linked to deaths, HES, NNRD and PICANet records |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | No |
| Impact | International comparisons of mortality, health care use and pregnancy outcomes in England, Scotland, Sweden, Ontario. Comparisons for outcomes of teenage vs older pregnancies in 6 countries. Comparisons of socioeconomic variability in waiting times for orchidopexy - 5 countries Generalisability studies for PREVAIL and CATCH trials showing changes in risk adjusted infection rates over time. |
| Description | Akcea Therapeutics |
| Organisation | Akcea Therapeutics |
| Country | United States |
| Sector | Private |
| PI Contribution | TBC |
| Collaborator Contribution | TBC |
| Impact | Not yet. |
| Start Year | 2018 |
| Description | Astra Zeneca Cardiovascular Renal and Metabolic disorder (£0.5M) |
| Organisation | AstraZeneca |
| Department | Astra Zeneca |
| Country | United States |
| Sector | Private |
| PI Contribution | As PI we will determine aetiologic relations among these commonly occurring conditions and the impact this may have on the design and interpretation of major trials. |
| Collaborator Contribution | Collaboration between UCL and Astra Zeneca for a study on cardiovascular renal and metabolic disorders: 2019-2020, £0.5M |
| Impact | Meetings and engagement activities have taken place to maximse scientific and societal benefits. |
| Start Year | 2019 |
| Description | Astrid Guttman |
| Organisation | University of Toronto |
| Department | Institute for Clinical Evaluative Sciences |
| Country | Canada |
| Sector | Academic/University |
| PI Contribution | Collaboration and work on Big Data Project |
| Collaborator Contribution | Collaboration and work on Big Data Project |
| Impact | publications related to international comparisons |
| Start Year | 2013 |
| Description | British Heart Foundation-HDR UK National Cardiovascular Data Science Centre |
| Organisation | British Heart Foundation (BHF) |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | As member of Scientific Steering Group gave invited talk at workshop (phenomics) and advised on priorities |
| Collaborator Contribution | £10M |
| Impact | Academic, research and clinical outputs |
| Start Year | 2019 |
| Description | CAFCASS |
| Organisation | Lancaster University |
| Department | Department of Sociology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | to provide the first systematic analysis of the inter-relationship between health needs, service provision and family court trajectories for mother and child by linking together administrative health and courts data for the first time. |
| Collaborator Contribution | Data permissions & CAFCASS analyses; linkage to other sectors |
| Impact | Project in phase 1 - no outputs as yet |
| Start Year | 2017 |
| Description | Computing eInfrastructure for genomic and imaging data (eMEDLAB) |
| Organisation | Medical Research Council (MRC) |
| Department | MRC Medical Bioinformatics Infrastructure Grant |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Co-PI |
| Collaborator Contribution | MRC £9M |
| Impact | academic, research and clinical outputs |
| Start Year | 2015 |
| Description | Data linkage at Public Health England |
| Organisation | Public Health England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | We are implementing probabilistic linkage of Hospital Episode Statistics (HES) to the National Down Syndrome Cytogenetic Register. This linkage is expected to serve as a template for future linkage of HES to other registers of congenital abnormalities managed by the National Congenital Anomaly and Rare Disease Registration Service at Public Health England. |
| Collaborator Contribution | Public Health England are providing access to data, computing and office facilities, as well as Honorary Academic Contracts for researchers involved. |
| Impact | This is a new collaboration and has not yet produced outputs. |
| Start Year | 2016 |
| Description | Data linkage at the Ministry of Justice |
| Organisation | Ministry of Justice |
| Department | Ministry of Justice Analytical Services |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | We are currently exploring methods for improving linkage of 12 datasets managed by the Ministry of Justice (datasets relating to police, courts, prisons and probation services). This collaboration is expected to results in (1) methodological developments relating to data linkage, (2) improvements in the validity of statistics currently produced by the Ministry of Justice, (3) creation of a linked dataset to support a potentially wide range of future research applications, and (4) possible improvements to service delivery in the justice sector. |
| Collaborator Contribution | The Ministry of Justice are providing access to the sensitive identifiable record-level data that is needed to develop new methods in data linkage. |
| Impact | This collaboration is still in an early stage, with no outputs available yet. |
| Start Year | 2016 |
| Description | Digital Innovation Hub DATA CAN |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | I contributed to the engagement of industry partners including IQVIA (2019-) |
| Collaborator Contribution | IQVIA |
| Impact | As part of the Digital Innovation Hub process I contributed to the engagement of industry partners including IQVIA |
| Start Year | 2019 |
| Description | ESRC FoSS 2017 |
| Organisation | Economic and Social Research Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC-E: development of idea, grant proposal and submission to ESRC; comms and material management with ESRC; event planning bottom-up; venue negotiation; UoS website development (graphics and content); UoS SharePoint group creation; Eventbrite page development and booking management; briefing communications with speakers; meetings organisation; marketing plan; VIP invitation; UoS social media and press team relations; negotiation for projector screen rental; Wed guest negotiation; Risk Assessment forms; Thu night host training; ONS attendance negotiation; official .pptx presentations development; feedback development (A6 forms, interactive questions); Twitter handles gathering; list of material for transportation, ticketing instructions, material transportation and host instructions (Wed); photography and post-production (Wed, Thu); funding negotiation with FSHMS; feedback forms (ESRC, A6, pptx) recording. |
| Collaborator Contribution | NCRM: speakers invite and communications (Migration), posters/flyers design, publicity, NCRM VIP invitation, video recording and post-production (Wed, Thu). CPC: speakers invite and communications (Ageing), publicity, CPC VIP invitation, venue visit organisation, material transportation (Wed). |
| Impact | Collaboration with the ESRC National Centre for Research Methods (NCRM) and ESRC Centre for Population Change to organise and run the ESRC Festival of Social Science event: 'Hope & Hops: the science of society' on November 8-9 2017. Photo gallery (on Flickr) and video playlist (on YouTube). |
| Start Year | 2017 |
| Description | European Innovative Medicines Initiative-2 Horizon 2020 Big Data for Better Outcomes BigData@Heart |
| Organisation | European Commission |
| Department | Horizon 2020 |
| Country | European Union (EU) |
| Sector | Public |
| PI Contribution | I am the PI on this project and have provided scientific and management leadership |
| Collaborator Contribution | €9m H2020, €9m Industry |
| Impact | Academic and research outputs |
| Start Year | 2017 |
| Description | European leverage of health records and omics for drug development: Innovative Medicines Initiative 2 'Big Data for Better Outcomes' (Servier, Bayer, Novartis, Vifor, Actelion and Somalogic) |
| Organisation | Servier Laboratories |
| Country | France |
| Sector | Private |
| PI Contribution | I lead two work packages (informatics platform and omics enrichment) and sit on the five-member Executive of this 2017-2022 initiative seeking to tackle unmet need in heart failure, atrial fibrillation and acute coronary syndromes |
| Collaborator Contribution | European leverage of health records and omics for drug development: Innovative Medicines Initiative 2 'Big Data for Better Outcomes' (£9m from Horizon 2020 + £9m in kind from Servier, Bayer, Novartis, Vifor, Actelion and Somalogic). |
| Impact | TBC |
| Start Year | 2017 |
| Description | Family Justice Observatory |
| Organisation | Lancaster University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | A scoping study that aims to explore the feasibility of, and inform the design of a new family justice observatory |
| Collaborator Contribution | Enabling research at different levels of complexity through better use of administrative, survey and cohort datasets; national consultation with stakeholders; a review of selected 'observatories' and relevant literature and project management/coordination |
| Impact | An outline specification for the new observatory (2-3 prototypes) and a final full project report: http://wp.lancs.ac.uk/observatory-scoping-study/publications/ |
| Start Year | 2016 |
| Description | Farr Institute of Health Informatics Research |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Grant writing Developing infrastructure Capacity Building Public and Patient Engagement Research |
| Collaborator Contribution | Grant writing Developing infrastructure Capacity Building Public and Patient Engagement Research |
| Impact | None at present |
| Start Year | 2013 |
| Description | Farr Institute of Health Informatics Research |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Grant writing Developing infrastructure Capacity Building Public and Patient Engagement Research |
| Collaborator Contribution | Grant writing Developing infrastructure Capacity Building Public and Patient Engagement Research |
| Impact | None at present |
| Start Year | 2013 |
| Description | Farr Institute of Health Informatics Research |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Grant writing Developing infrastructure Capacity Building Public and Patient Engagement Research |
| Collaborator Contribution | Grant writing Developing infrastructure Capacity Building Public and Patient Engagement Research |
| Impact | None at present |
| Start Year | 2013 |
| Description | Farr Institute of Health Informatics Research, London |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Collaborator Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Impact | to follow |
| Start Year | 2012 |
| Description | Farr Institute of Health Informatics Research, London |
| Organisation | Public Health England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Collaborator Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Impact | to follow |
| Start Year | 2012 |
| Description | Farr Institute of Health Informatics Research, London |
| Organisation | Queen Mary University of London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Collaborator Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Impact | to follow |
| Start Year | 2012 |
| Description | Farr Institute of Health Informatics Research, London |
| Organisation | UCL Partners |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Collaborator Contribution | Grant writing Research Writing of peer-reviewed papers Organisation of workshops, seminars, PhD programme and other training opportunities Infrastructure development |
| Impact | to follow |
| Start Year | 2012 |
| Description | Health Data Research UK |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Inaugural Research Director |
| Collaborator Contribution | £120m 2018-2023, with responsibility for London £10m |
| Impact | Health Data Research in the UK |
| Start Year | 2018 |
| Description | HiGODS, Cross-cutting (Healthcare Informatics, Genomics/omics, Data Science) |
| Organisation | National Institute for Health Research |
| Department | UCLH/UCL Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I have provided leadership contribution as Director, Healthcare Informatics, Genomics/omics, Data Science from 2016 |
| Collaborator Contribution | tbc |
| Impact | Meetings, Publications, Engagement Activities, Education, Policy, |
| Start Year | 2016 |
| Description | Janice McGhee |
| Organisation | Administrative Data Research Centre for Scotland |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Collaborative project on neonatal drug withdrawal syndrome and involvement of social care services in England and Scotland (part of ADRN research). |
| Collaborator Contribution | Collaborative project on neonatal drug withdrawal syndrome and involvement of social care services in England and Scotland (part of ADRN research). |
| Impact | Still active - none as yet |
| Start Year | 2015 |
| Description | Karolinska Institute |
| Organisation | Karolinska Institute |
| Country | Sweden |
| Sector | Academic/University |
| PI Contribution | Co-supervision of PhD Studentship at Farr Institute |
| Collaborator Contribution | Co-supervision of PhD studentship at Farr Institute. |
| Impact | - |
| Start Year | 2014 |
| Description | Linkage of Millenium Cohort Study data and air pollution data |
| Organisation | University College London |
| Department | Centre for Longitudinal Studies |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We guided CLS (Millenium Cohort Study team) regarding available air pollution data to be linked to the study cohort and the linkage methods. Other useful data in investigating air pollution impacts on child health and cognitive function is also suggested along with how they can be linked to enable a slid study design. |
| Collaborator Contribution | CLS conducted data linkage at the smallest geographically available scale (currently post-code level, but in future address level is expected) and provided data access to MCS data and linked air pollution data within secure environment. |
| Impact | None yet. |
| Start Year | 2017 |
| Description | NIHR UCLH/UCL Biomedical Research Centre (Informatics) |
| Organisation | National Institute for Health Research |
| Department | UCLH/UCL Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I have been providing leadership vision and direction as the BRC Executive member since 2017 |
| Collaborator Contribution | BRC £110m, £3m for theme 2017-2022 |
| Impact | Publications, Meetings, Engagement Activities, Reports, Recommendation to policy |
| Start Year | 2017 |
| Description | ONS Coherence Vacuity and Linkage |
| Organisation | National Centre for Social Research |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | I contributed to writing the original bids, and am leading on delivery of two of three contracts that we jointly bid for. I work across ADRC-E/University of Southampton and NatCen (part-time secondment) and am ideally placed to manage the collaborative activities and ensure successful completion of the research. Final project workshop 12 March 2018. Project report has been submitted. |
| Collaborator Contribution | NatCen senior staff contributed to writing the original bids, and NatCen is leading on delivery of one of the three contracts that we jointly bid for. I work across ADRC-E/University of Southampton and NatCen (part-time secondment) and am ideally placed to manage the collaborative activities and ensure successful completion of the research. |
| Impact | The three related projects are underway. The collaboration is statistical and analytical. |
| Start Year | 2016 |
| Description | OneLondon LHCRE |
| Organisation | NHS England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Academic and Research Leadership in bringing OnLondon LHCRE together with Luke Readman |
| Collaborator Contribution | £0.9M |
| Impact | Academic, research and clinical outputs |
| Start Year | 2017 |
| Description | PROGRESS (Prognosis Research Strategy) Partnership (2011-2016 MRC £800k |
| Organisation | Keele University |
| Department | Research Institute for Primary Care and Health Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We developed a series of articles which sets out a framework of prognosis research and makes recommendations. Apart from these core papers, we have promoted the PROGRESS framework of prognosis research in several auxiliary papers and research exemplars from our ongoing population research. We have collaborated with other partner for writing grants, and currently plan to apply for an MRC Methodology research programme grant to continue our collaborations for developing new methods in the prognosis research area. We have also organised several workshops and short courses and presented our partnership in various international meetings and collaborations. |
| Collaborator Contribution | Our partners have contributed in all areas of this partnership including writing and preparation of the core papers and research exemplars, promoting the the PROGRESS framework in various meetings and research collaborations, writing grants (both methodological and translational), and organising and presenting in workshops and short courses that we developed. |
| Impact | MRC grant G0902393 16 manuscripts published 2 International three-day courses (PROGRESS Summer Course in Prognosis Research 2013 & 2014) Several workshops about prognosis research, use of longitudinal data, clinical cohorts, Stratified Medicine, diagnosis versus prognosis Monthly teleconferences for discussing ideas and 3 overall PROGRESS Research meetings so far (last one Oct 2014 at Farr Institute, London) |
| Start Year | 2011 |
| Description | PROGRESS (Prognosis Research Strategy) Partnership (2011-2016 MRC £800k |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Department | Faculty of Epidemiology and Population Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We developed a series of articles which sets out a framework of prognosis research and makes recommendations. Apart from these core papers, we have promoted the PROGRESS framework of prognosis research in several auxiliary papers and research exemplars from our ongoing population research. We have collaborated with other partner for writing grants, and currently plan to apply for an MRC Methodology research programme grant to continue our collaborations for developing new methods in the prognosis research area. We have also organised several workshops and short courses and presented our partnership in various international meetings and collaborations. |
| Collaborator Contribution | Our partners have contributed in all areas of this partnership including writing and preparation of the core papers and research exemplars, promoting the the PROGRESS framework in various meetings and research collaborations, writing grants (both methodological and translational), and organising and presenting in workshops and short courses that we developed. |
| Impact | MRC grant G0902393 16 manuscripts published 2 International three-day courses (PROGRESS Summer Course in Prognosis Research 2013 & 2014) Several workshops about prognosis research, use of longitudinal data, clinical cohorts, Stratified Medicine, diagnosis versus prognosis Monthly teleconferences for discussing ideas and 3 overall PROGRESS Research meetings so far (last one Oct 2014 at Farr Institute, London) |
| Start Year | 2011 |
| Description | PROGRESS (Prognosis Research Strategy) Partnership (2011-2016 MRC £800k |
| Organisation | Queen Mary University of London |
| Department | Barts and The London School of Medicine and Dentistry |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We developed a series of articles which sets out a framework of prognosis research and makes recommendations. Apart from these core papers, we have promoted the PROGRESS framework of prognosis research in several auxiliary papers and research exemplars from our ongoing population research. We have collaborated with other partner for writing grants, and currently plan to apply for an MRC Methodology research programme grant to continue our collaborations for developing new methods in the prognosis research area. We have also organised several workshops and short courses and presented our partnership in various international meetings and collaborations. |
| Collaborator Contribution | Our partners have contributed in all areas of this partnership including writing and preparation of the core papers and research exemplars, promoting the the PROGRESS framework in various meetings and research collaborations, writing grants (both methodological and translational), and organising and presenting in workshops and short courses that we developed. |
| Impact | MRC grant G0902393 16 manuscripts published 2 International three-day courses (PROGRESS Summer Course in Prognosis Research 2013 & 2014) Several workshops about prognosis research, use of longitudinal data, clinical cohorts, Stratified Medicine, diagnosis versus prognosis Monthly teleconferences for discussing ideas and 3 overall PROGRESS Research meetings so far (last one Oct 2014 at Farr Institute, London) |
| Start Year | 2011 |
| Description | PROGRESS (Prognosis Research Strategy) Partnership (2011-2016 MRC £800k |
| Organisation | University College London |
| Department | Research Department of Epidemiology and Public Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We developed a series of articles which sets out a framework of prognosis research and makes recommendations. Apart from these core papers, we have promoted the PROGRESS framework of prognosis research in several auxiliary papers and research exemplars from our ongoing population research. We have collaborated with other partner for writing grants, and currently plan to apply for an MRC Methodology research programme grant to continue our collaborations for developing new methods in the prognosis research area. We have also organised several workshops and short courses and presented our partnership in various international meetings and collaborations. |
| Collaborator Contribution | Our partners have contributed in all areas of this partnership including writing and preparation of the core papers and research exemplars, promoting the the PROGRESS framework in various meetings and research collaborations, writing grants (both methodological and translational), and organising and presenting in workshops and short courses that we developed. |
| Impact | MRC grant G0902393 16 manuscripts published 2 International three-day courses (PROGRESS Summer Course in Prognosis Research 2013 & 2014) Several workshops about prognosis research, use of longitudinal data, clinical cohorts, Stratified Medicine, diagnosis versus prognosis Monthly teleconferences for discussing ideas and 3 overall PROGRESS Research meetings so far (last one Oct 2014 at Farr Institute, London) |
| Start Year | 2011 |
| Description | PROGRESS (Prognosis Research Strategy) Partnership (2011-2016 MRC £800k |
| Organisation | University of Birmingham |
| Department | Department of Public Health, Epidemiology & Biostatistics (PHEB) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We developed a series of articles which sets out a framework of prognosis research and makes recommendations. Apart from these core papers, we have promoted the PROGRESS framework of prognosis research in several auxiliary papers and research exemplars from our ongoing population research. We have collaborated with other partner for writing grants, and currently plan to apply for an MRC Methodology research programme grant to continue our collaborations for developing new methods in the prognosis research area. We have also organised several workshops and short courses and presented our partnership in various international meetings and collaborations. |
| Collaborator Contribution | Our partners have contributed in all areas of this partnership including writing and preparation of the core papers and research exemplars, promoting the the PROGRESS framework in various meetings and research collaborations, writing grants (both methodological and translational), and organising and presenting in workshops and short courses that we developed. |
| Impact | MRC grant G0902393 16 manuscripts published 2 International three-day courses (PROGRESS Summer Course in Prognosis Research 2013 & 2014) Several workshops about prognosis research, use of longitudinal data, clinical cohorts, Stratified Medicine, diagnosis versus prognosis Monthly teleconferences for discussing ideas and 3 overall PROGRESS Research meetings so far (last one Oct 2014 at Farr Institute, London) |
| Start Year | 2011 |
| Description | PROGRESS (Prognosis Research Strategy) Partnership (2011-2016 MRC £800k |
| Organisation | University of Oxford |
| Department | Centre for Statistics in Medicine |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We developed a series of articles which sets out a framework of prognosis research and makes recommendations. Apart from these core papers, we have promoted the PROGRESS framework of prognosis research in several auxiliary papers and research exemplars from our ongoing population research. We have collaborated with other partner for writing grants, and currently plan to apply for an MRC Methodology research programme grant to continue our collaborations for developing new methods in the prognosis research area. We have also organised several workshops and short courses and presented our partnership in various international meetings and collaborations. |
| Collaborator Contribution | Our partners have contributed in all areas of this partnership including writing and preparation of the core papers and research exemplars, promoting the the PROGRESS framework in various meetings and research collaborations, writing grants (both methodological and translational), and organising and presenting in workshops and short courses that we developed. |
| Impact | MRC grant G0902393 16 manuscripts published 2 International three-day courses (PROGRESS Summer Course in Prognosis Research 2013 & 2014) Several workshops about prognosis research, use of longitudinal data, clinical cohorts, Stratified Medicine, diagnosis versus prognosis Monthly teleconferences for discussing ideas and 3 overall PROGRESS Research meetings so far (last one Oct 2014 at Farr Institute, London) |
| Start Year | 2011 |
| Description | Rose Lafferty |
| Organisation | Office for National Statistics |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Developing standards for data linkage |
| Collaborator Contribution | Developing standards for data linkage |
| Impact | Development of standards for data linkage document - confidential. Data Linkage Workshop, December 2015. |
| Start Year | 2015 |
| Description | Telethon Institute University of WA |
| Organisation | Telethon Kids Institute |
| Country | Australia |
| Sector | Charity/Non Profit |
| PI Contribution | Collaboration on cross-country comparisons of child adversity. Input into supervision of PhD student, and Co-Investigator on grant. |
| Collaborator Contribution | Collaboration on cross-country comparisons of child adversity. |
| Impact | - |
| Start Year | 2013 |
| Description | Telethon Institute of Child Health Research |
| Organisation | Telethon Kids Institute |
| Country | Australia |
| Sector | Charity/Non Profit |
| PI Contribution | Collaboration on international comparisons of child maltreatment using routine data. |
| Collaborator Contribution | Collaboration on international comparisons of child maltreatment using routine data. |
| Impact | - |
| Start Year | 2009 |
| Description | UCL Institute of Health Informatics |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Inaugural Director |
| Collaborator Contribution | Current 5 year budget £33m |
| Impact | Academic and Research |
| Start Year | 2014 |
| Description | UK BIobank |
| Organisation | UK Biobank |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Cardiac outcomes working group |
| Collaborator Contribution | Using research data to validate electronic health record data |
| Impact | Papers in preparation |
| Start Year | 2010 |
| Description | WUN DAPPER |
| Organisation | Chinese University of Hong Kong |
| Country | Hong Kong |
| Sector | Academic/University |
| PI Contribution | World University Network (WUN) Data Analysis with Privacy Protection for Epidemiological Research (DAPPER): plan content of two-day workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Collaborator Contribution | 2017: Participation in and presentation delivered at workshop in August 2016. 2016: Plan content of workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Impact | 2017: A workshop took place in August 2016. I presented my work and participated in the workshop. Details of the presentation are in the appropriate section. The group is planning its next meeting. 2016: Two-day workshop to take place in August 2016 in conjunction with IPDLN conference in Wales. Multi-disciplinary: health research, statistics, data science, medicine. |
| Start Year | 2015 |
| Description | WUN DAPPER |
| Organisation | Maastricht University (UM) |
| Country | Netherlands |
| Sector | Academic/University |
| PI Contribution | World University Network (WUN) Data Analysis with Privacy Protection for Epidemiological Research (DAPPER): plan content of two-day workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Collaborator Contribution | 2017: Participation in and presentation delivered at workshop in August 2016. 2016: Plan content of workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Impact | 2017: A workshop took place in August 2016. I presented my work and participated in the workshop. Details of the presentation are in the appropriate section. The group is planning its next meeting. 2016: Two-day workshop to take place in August 2016 in conjunction with IPDLN conference in Wales. Multi-disciplinary: health research, statistics, data science, medicine. |
| Start Year | 2015 |
| Description | WUN DAPPER |
| Organisation | University of Auckland |
| Country | New Zealand |
| Sector | Academic/University |
| PI Contribution | World University Network (WUN) Data Analysis with Privacy Protection for Epidemiological Research (DAPPER): plan content of two-day workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Collaborator Contribution | 2017: Participation in and presentation delivered at workshop in August 2016. 2016: Plan content of workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Impact | 2017: A workshop took place in August 2016. I presented my work and participated in the workshop. Details of the presentation are in the appropriate section. The group is planning its next meeting. 2016: Two-day workshop to take place in August 2016 in conjunction with IPDLN conference in Wales. Multi-disciplinary: health research, statistics, data science, medicine. |
| Start Year | 2015 |
| Description | WUN DAPPER |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | World University Network (WUN) Data Analysis with Privacy Protection for Epidemiological Research (DAPPER): plan content of two-day workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Collaborator Contribution | 2017: Participation in and presentation delivered at workshop in August 2016. 2016: Plan content of workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Impact | 2017: A workshop took place in August 2016. I presented my work and participated in the workshop. Details of the presentation are in the appropriate section. The group is planning its next meeting. 2016: Two-day workshop to take place in August 2016 in conjunction with IPDLN conference in Wales. Multi-disciplinary: health research, statistics, data science, medicine. |
| Start Year | 2015 |
| Description | WUN DAPPER |
| Organisation | University of Western Australia |
| Country | Australia |
| Sector | Academic/University |
| PI Contribution | World University Network (WUN) Data Analysis with Privacy Protection for Epidemiological Research (DAPPER): plan content of two-day workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Collaborator Contribution | 2017: Participation in and presentation delivered at workshop in August 2016. 2016: Plan content of workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Impact | 2017: A workshop took place in August 2016. I presented my work and participated in the workshop. Details of the presentation are in the appropriate section. The group is planning its next meeting. 2016: Two-day workshop to take place in August 2016 in conjunction with IPDLN conference in Wales. Multi-disciplinary: health research, statistics, data science, medicine. |
| Start Year | 2015 |
| Description | WUN DAPPER |
| Organisation | University of York |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | World University Network (WUN) Data Analysis with Privacy Protection for Epidemiological Research (DAPPER): plan content of two-day workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Collaborator Contribution | 2017: Participation in and presentation delivered at workshop in August 2016. 2016: Plan content of workshop in August 2016 in conjunction with International Population Data Linkage Network conference in Wales |
| Impact | 2017: A workshop took place in August 2016. I presented my work and participated in the workshop. Details of the presentation are in the appropriate section. The group is planning its next meeting. 2016: Two-day workshop to take place in August 2016 in conjunction with IPDLN conference in Wales. Multi-disciplinary: health research, statistics, data science, medicine. |
| Start Year | 2015 |
| Description | Warwick (now Sheffield) NIHR project on mental health community treatment orders |
| Organisation | Ulster University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | facilitating data access via NHS Digital |
| Collaborator Contribution | The Partners (with Southampton) constitute the project team for this NIHR research |
| Impact | No outputs to date Collaboration is multidiscipluninary - psychiatry, social epidemiology, geography, psychology |
| Start Year | 2015 |
| Description | Warwick (now Sheffield) NIHR project on mental health community treatment orders |
| Organisation | University of Portsmouth |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | facilitating data access via NHS Digital |
| Collaborator Contribution | The Partners (with Southampton) constitute the project team for this NIHR research |
| Impact | No outputs to date Collaboration is multidiscipluninary - psychiatry, social epidemiology, geography, psychology |
| Start Year | 2015 |
| Description | Warwick (now Sheffield) NIHR project on mental health community treatment orders |
| Organisation | University of Sheffield |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | facilitating data access via NHS Digital |
| Collaborator Contribution | The Partners (with Southampton) constitute the project team for this NIHR research |
| Impact | No outputs to date Collaboration is multidiscipluninary - psychiatry, social epidemiology, geography, psychology |
| Start Year | 2015 |
| Description | 17th International Medical Geography Symposium Prof Graham Moon - July 2017- Angers France |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Paper presentation: Beating the retreat in the evaluation of Compulsory Community Treatment - Conference Presentation relating to ADRN Project 061 |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.irdes.fr/imgs2017/index.htm |
| Description | 2 X ADRN Safe User of Research Environments (SURE) training - to be delivered in March 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | To deliver two 6 hour face to face training course to train ADRN project researchers in legal/disclosure risk management aspects as part of the ADRN Researcher accreditation process. |
| Year(s) Of Engagement Activity | 2017 |
| Description | A professional development policy workshop for early-career civil servants & researchers |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation: How is big data research & analysis used to improve public policy & services? |
| Year(s) Of Engagement Activity | 2015 |
| Description | ADRC-E Research Brochure |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | I contributed to the ADRC-E Research Brochure, writing a piece on the legal and ethical implications of using secondary data, and how ADRN and ADRC-E has the expertise to help with decision-making in this area. The brochure has been widely disseminated to stakeholders and is available online, and showcases ADRC-E's achievements. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/centres/england |
| Description | ADRC-E: Making a Methodological Impact, the XXIII Congress of the Portuguese Statistical Society, 19 to 21 October, 2017, Lisbon |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN), the Administrative Data Research Centre for England (ADRC-E) and the methodological impact of the research undertaken by ADRC-E. The presentation introduced the audience to the methodological work of the ADRC-E. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://spe2017.iscte-iul.pt/ |
| Description | ADRN 2017 Conference Paper "Assessing disclosure risk in spatially referenced synthetic data using automated zone design" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at ADRN 2017 conference, University of Edinburgh - Assessing disclosure risk in spatially referenced synthetic data using automated zone design - David Martin (presenter), James Robards and Chris Gale |
| Year(s) Of Engagement Activity | 2017 |
| Description | ADRN Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-E organised the conference (see video below). I prepared and delivered a presentation on Ethical considerations in Secondary Data Analysis. This gave rise to active debate amongst the audience on key ethical issues around the re-use of administrative data, in particular consent, and the importance of taking an ethical approach from the very beginning of the research in order to strengthen it, rather than think of ethics as a barrier to be overcome. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/about/news/newsitem?newsid=4700 |
| Description | ADRN/NatCen Blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The blog's aim was to describe the ADRC-E/NatCen relationship whereby I am on part-time secondment to NatCen to develop their administrative data strategy. NatCen is a data controller and ADRN-eligible research organisation with an excellent reputation, and ADRC-E is keen to engage NatCen and its stakeholders in ADRN projects. I have been able to internally support requests for data for ADRN projects, and University of Southampton/ADRC-E and NatCen are working together on three new ONS-commissioned projects to investigate the characteristics of some of the most important government administrative data sets, including eg. the National Benefits Database and Real-time PAYE. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/understand-data/blog/building-bridges-for-social-research/ |
| Description | AHRC Workshop, Archives of War |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 14 April 2015: AHRC Workshop, Archives of War, London, 'The end of the material archive?'. Elizabeth Shepherd |
| Year(s) Of Engagement Activity | 2015 |
| Description | Activation and impact; the societal role of records and record-keepers |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | FARMER Conference 2016, Dundee. Conference paper, prepared jointly with Alexandra Eveleigh and Oliver Duke-Williams, 'Trusting government administrative data: managing disclosure risk' to international audience of academics and practitioners in archival science. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Admin Data Geo Challenge (activity at the Cheltenham Science Festival 2016) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | ADRC-England was at the Cheltenham Science Festival 2016 (#CheltSciFest) on Friday 10 June. We were part of the University of Southampton initiative 'Bringing Research to Life' Roadshow. We showcased our new game: the Admin Data Geo Challenge. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Admin Data Geo Challenge (activity at the Winchester Science Festival 2016) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-England was at the Winchester Science Festival 2016 (#WinSciFest) on Saturday 30 July. We were part of the University of Southampton initiative 'Bringing Research to Life' Roadshow. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Administrative Data Challenges: Joining Forces, GSS Methodology Advisory Committee Extraordinary Meeting, 28 February 2018, London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Members of the ADRC-E (Professors Peter W. F. Smith, David Martin and Li-Chung Zhang, and Lucy Vickers) took part in strategic discussions on challenges and opportunities linked to the use of admin data methods in statistical production with the view of developing a collaborative programme of research with academic and private sector partners as well as other National Statistical Institutes. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Administrative Data Research Session, ESRC Research Methods Festival, 4 July 2018 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Peter W. F. Smith organised as session which discussed current best practice in data release and access infrastructure. The session looked at models for decision making around data release (the '5 safes' model), then discussed existing and potential infrastructure and skills gaps in light of the opportunities offered by the Digital Economy Act, which received Royal Assent on the 27th April 2017. Finally the session looked at the advantages offered to the UK public and government by the Digital Economy Act and existing data access infrastructure. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.ncrm.ac.uk/RMF2018/ |
| Description | An ADRC-E/ADRN exhibition stand at the ESRC Research Methods Festival, 5-7 July 2016, Bath |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC-E/ADRN had an exhibition stand at the ESRC Research Methods Festival engaging with the Festival participants and promoting ADRC-E/ADRN's services, secure facilities and short course training programme. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ncrm.ac.uk/RMF2016/home.php |
| Description | Archives Education and Research Institute (AERI), University of Maryland |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | 15 July 2015: Archives Education and Research Institute (AERI), University of Maryland, 'Open government, government administrative data and the recordkeeping role' . Elizabeth Shepherd |
| Year(s) Of Engagement Activity | 2015 |
| Description | Archives and Society seminar, Institute of Historical Research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Archives and Society seminar, Institute of Historical Research, 20 Jan 2015 'Information governance for social and economic research using government administrative data' (Elizabeth shepherd, Alexandra Eveleigh) |
| Year(s) Of Engagement Activity | 2015 |
| Description | Article for The Conversation news website |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The purpose of this article was to engage the public in our research that uses administrative data and to disseminate our latest findings related to children in care and to educate the public. Since its publication in January 2017 it has been read by more than 2500 people (primarily in the UK, US, Ireland and Australia) and shared through Facebook and Twitter more than 200 times. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://theconversation.com/why-some-children-are-more-likely-to-go-back-into-care-than-others-70181 |
| Description | Article for the news website The Conversation |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This article was written as part of a series on The Conversation news website that looks at the data and evidence behind important public policy questions and are aimed at the general public. The purpose of this article was to engage the public in our research that uses administrative data, to disseminate our latest findings related to children in care and to educate the public about the importance of understanding the data behind the headlines. Since its publication in December 2015 it has been read by more than 1300 people (primarily in the UK, US, Ireland and Australia) and shared through Facebook and Twitter a further 100 times. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://theconversation.com/hard-evidence-are-more-children-going-into-care-51290 |
| Description | Article on the daily mail on published research |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Daily mail newspaper report on research: "Weight gain risk is at its greatest from the ages of 18 to 34... and the chances of becoming obese DECREASE in middle, study suggests" |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.dailymail.co.uk/health/article-9953055/Weight-gain-risk-greatest-ages-18-34-study-sugges... |
| Description | BBC: The World at One |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The World at One |
| Year(s) Of Engagement Activity | 2017 |
| Description | Better Candies Benefit Society (activity at the Cheltenham Science Festival 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-England was at the Cheltenham Science Festival 2017 (#CheltSciFest) on Friday 9 and Saturday 10 June. We were part of the University of Southampton initiative 'Bringing Research to Life' Roadshow. We talked to 868 people at our ADRC-E stand at the Discovery Zone. We had professional teachers, engineers in cyber security and former policy officers actively interacting with us at the stand and asking further questions about the centre and its work. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/cheltenham-science-festival-2017/ |
| Description | Better Candies Benefit Society (activity at the University of Southampton Science and Engineering Festival 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-England was at the University of Southampton Science and Engineering Day 2017 (#SotSef17) on Saturday 18 March. From 10.30am to 4.30pm, we talked to 320 people at our ADRC-E stand at the Ada Lovelace/zone 11. We had families taking the 'Admin Data Geo Challenge' and more than 30 children were awarded the ADRC-E 'Data Scientist' 'badge of honour'. More than 300 people took part in our new experiment 'Better Candies Benefit Society' and we published the results on our Twitter account before 5pm. Adults actively talking with us included at least a high school teacher, two research scientists in data science, a lecturer/reader from Chichester University, a healthcare professional, an organiser of lifelong learning events for the elderly. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/southampton-science-and-engineering-day-2... |
| Description | Better Candies Benefit Society (activity at the Winchester Science Festival 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-England was at the Winchester Science Festival 2017 (#WinSciFest) on Saturday 29 and Sunday 30 July. We were part of the University of Southampton initiative 'Bringing Research to Life' Roadshow. The team talked to 244 people at our ADRC-E stand across two days at the Winchester Discovery Centre; these included a retired data scientist and a communication officer in crime data, which actively engaged in conversation asking more about our centre (and network) and the type of research we perform. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/winchester-science-festival/ |
| Description | Better Knowledge, Better Society - University of Southampton Public Policy Blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Blog on the newly launched ADRN and ADRC-E in University of Southampton, introducing our purpose and aims and progress to date. UoS has now migrated to a new website and the link no longer works (http://www.southampton.ac.uk/publicpolicybetter-knowledge-better-society/) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Bi-annual Conference of the European Survey Research Association |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Moore, J. Durrant, G.B, Smith, P.W. (2015) Consent to Data Linkage in Business Surveys, Bi-annual Conference of the European Survey Research Association, 13-17 July, Reykjavik, Iceland. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Big data ethics workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Invited workshop in London to discuss the ethics of using big data for research purposes. Key influencers from the UK and Europe were in attendance. A number of important networking relationships were formed and continue, and a summary of the day and reference materials were shared within the group |
| Year(s) Of Engagement Activity | 2017 |
| Description | Blog piece on ADRN Blog - Engaging the public with admin data research: when science festivals can bridge the communication gap (July 2017) |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Blog piece published on the ADRN Blog, entitled: 'Engaging the public with admin data research: when science festivals can bridge the communication gap' |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/understand-data/blog/engaging-the-public-at-science-festivals/ |
| Description | Blog piece on ESRC Blog Shaping Society - Data research at science festivals: engaging the public (July 2017) |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Blog piece published on the ESRC Blog 'Shaping Society', entitled: 'Data research at science festivals: engaging the public' |
| Year(s) Of Engagement Activity | 2015,2017 |
| URL | https://blog.esrc.ac.uk/2017/07/21/data-research-at-science-festivals-engaging-the-public/ |
| Description | British Science Association - Future Debates | Winchester - 'Does it matter who funds science?' (2 Nov 2017) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | The Administrative Data Research Centre for England hosted a free public debate on Thursday 2 November 2017 at the Winchester Discovery Centre. The event was part of the UK-wide 'Future Debates' series (#futuredebates) run by the British Science Association (BSA) and supported by Genomics England. With this series, the BSA aims to "empower many more people - not just scientists - to constructively engage in debates over science's role in their lives, their local economy, and the UK's future" and "to gather information about the opinions of attendees, with the aim of creating a report that will be presented to the Chief Medical Officer for England". The Autumn 2017 debate focused on the question of: 'Does it matter who funds science?'. The event in Winchester was chaired by Vice President (Research and Enterprise), University of Southampton, Professor S Mark Spearing and the debate panel included: - Professor Peter W.F. Smith, Director of the ADRC-England and Director of the ADRN - Debrah Harding, Managing Director of the Market Research Society - Guy Goodwin, Chief Executive of NatCen Social Research - Emma Greenwood, Director of Policy & Public Affairs, Cancer Research UK - Professor Mark Cragg, Professor of Experimental Cancer Research, University of Southampton - Professor Colin Upstill, Managing Director of the IT Innovation Centre, University of Southampton - Professor Paul Roderick, Professor of Public Health, University of Southampton The panel members examined the topic of science funding and who does it and took questions from several members of the public. A total of 55 people from academia and the general public actively took part in the debate and asked questions throughout the night. The discussed themes included: scientific integrity and transparency, publication of negative results, blue sky research, relation between public vs private interests, the possibility for the private industry to take part to the All Trials campaign, the development of the new UK Research and Innovation (UKRI), the relevance of the Research Excellence Framework (REF), Brexit and the freedom of movement for research personnel. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/bsa-future-debates/ |
| Description | British Science Association Future Debates - Professor Peter Smith (Nov 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Peter W Smith was a panel member at the BSA debate at Winchester Discovery Centre; Event including presentations/briefings/expert panels to answer the question who should fund Science ? The Administrative Data Research Centre for England hosted a free public debate on Thursday 2 November 2017 at the Winchester Discovery Centre. The event was part of the UK-wide 'Future Debates' series (#futuredebates) run by the British Science Association (BSA) and supported by Genomics England. With this series, the BSA aims to "empower many more people - not just scientists - to constructively engage in debates over science's role in their lives, their local economy, and the UK's future" and "to gather information about the opinions of attendees, with the aim of creating a report that will be presented to the Chief Medical Officer for England". The Autumn 2017 debate focused on the question of: 'Does it matter who funds science?'. The event in Winchester was chaired by Vice President (Research and Enterprise), University of Southampton, Professor S Mark Spearing and the debate panel included: - Professor Peter W.F. Smith, Director of the ADRC-England and Director of the ADRN - Debrah Harding, Managing Director of the Market Research Society - Guy Goodwin, Chief Executive of NatCen Social Research - Emma Greenwood, Director of Policy & Public Affairs, Cancer Research UK - Professor Mark Cragg, Professor of Experimental Cancer Research, University of Southampton - Professor Colin Upstill, Managing Director of the IT Innovation Centre, University of Southampton - Professor Paul Roderick, Professor of Public Health, University of Southampton The panel members examined the topic of science funding and who does it and took questions from several members of the public. A total of 55 people from academia and the general public actively took part in the debate and asked questions throughout the night. The discussed themes included: scientific integrity and transparency, publication of negative results, blue sky research, relation between public vs private interests, the possibility for the private industry to take part to the All Trials campaign, the development of the new UK Research and Innovation (UKRI), the relevance of the Research Excellence Framework (REF), Brexit and the freedom of movement for research personnel. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/bsa-future-debates/ |
| Description | British Society for Population Studies (BSPS) Annual Conference - Dr Mirela Nikolova - Sept 17 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk entitled: Coherence, vacuity and linkage: Assessing the potential to use government administrative data to improve social and economic statistics |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.lse.ac.uk/socialPolicy/Researchcentresandgroups/BSPS/annualConference/2017-Conference/Inn... |
| Description | British Society for Population Studies (BSPS) Annual Conference - Sam Wilding - Sept 17 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk entitled: Exploring common mental illness as a driver of internal migration in Great Britain |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.lse.ac.uk/socialPolicy/Researchcentresandgroups/BSPS/annualConference/2017-Conference/Mig... |
| Description | British Society for Population Studies 2015 Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Invited to chair a session on Administrative Data and give presentation on behalf of ADRC-E. I introduced three presentations and also arranged for two academics and one representative from ONS to present their experiences with respect to the use and re-use of administrative data. The audience understood more thoroughly the challenges and potential benefits as a result of this engagement |
| Year(s) Of Engagement Activity | 2015 |
| Description | British Society for Population Studies, Leeds, Annual Conference 2015: Invited panel member |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | 7-9 Sept 2015: British Society for Population Studies, Leeds, Annual Conference 2015: Invited panel member: Linked Administrative Data. Oliver Duke-Williams |
| Year(s) Of Engagement Activity | 2015 |
| Description | Business Survey Microdata User Group Meeting Office for National Statistics |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Moore, J. Durrant, G.B, Smith, P.W. (2015) Survey dataset representativeness: during data collection and with data linkage, Business survey Microdata User Group Meeting, ONS Newport, 18 September 2015. |
| Year(s) Of Engagement Activity | 2015 |
| Description | CDRC/ADRC-E Researchers Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A meeting I organised bringing together researchers from across two centres, the ADRN-E and CDRC. The aim of this meeting was to provide research fellows with a platform to discuss their research, identify best practice and network in order to foster better links. I provided the opening talk to the researchers, followed by centre specific presentations, leading on to a round table question and answer session. The meeting was received well. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Collaborating with Government Statisticians in the UK, UN World Data Forum, 16-18 January 2017, Cape Town |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN), the Administrative Data Research Centre for England (ADRC-E) and other collaborations with the Office for National Statistics. The presentation introduced the audience to the work of the ADRC-E and the ADRN. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://undataforum.org/ |
| Description | Community of Practice for Internet Mediated Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | I gave a presentation on the ethics of secondary data usage and accompanying legal bases at a special meeting within the university to consider data ethics. The audience were very engaged and encouraged by the approach taken ie that data ethics do not have to be a barrier but can be a research enabler |
| Year(s) Of Engagement Activity | 2017 |
| Description | Conference panel session |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Panel session "Uses and Linking of Administrative Data" - BSPS Conference, Leeds, September 7, 2015 |
| Year(s) Of Engagement Activity | 2015 |
| Description | Coram Data Visualisation work shop - Professor Ruth Gilbert |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Prof R Gilbert chaired the talk on the Value of longitudinal data for understanding the use of out-of-home care among children in England |
| Year(s) Of Engagement Activity | 2018 |
| Description | Data Linkage Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | In December 2015 representatives from several departments involved in data linkage attended the first data linkage workshop facilitated by ADRC-E. This first workshop focused on the implications of data linkage error, which can influence conclusions drawn from using linked data. Presentations featured examples of data linkage both within and across government departments, in addition to recent methodological developments that could improve linkage success. Speakers included representatives from: • Department for Education • Ministry of Justice • NHS England • The Office of National Statistics • Department for Work and Pensions Several presentations highlighted the benefits of linked data for better research and service delivery. The meeting was facilitated by ADRC-E who additionally highlighted the implications of data linkage error, which can influence conclusions drawn from using linked data. ADRC-E are developing a set of standards for data linkage of administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | ESRC Festival of Social Science - Hope & Hops: the science of Society (8-9 Nov 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | We proposed and led the organisation of the 2017 ESRC Festival of Social Science event 'Hope & hops: the science of society' that took place in Southampton on Wednesday 8th and Thursday 9th November. Over two engaging nights, research scientists at the University of Southampton and the Office for National Statistics shared their research and expertise into two challenging issues of our time: migration and ageing. This free, informal event was organised by the ADRC-E in collaboration with the other two ESRC-funded Centres at the University of Southampton, the Centre for Population Change (CPC) and the National Centre for Research Methods (NCRM), together with the University of Southampton Public Engagement with Research unit (PERu). The Festival took place at the One-o-Four Kitchen & Lounge (formerly Ebb & Flow) in the heart of Southampton. 75 people attended the event across 2 nights of science talks, discussions and entertainment. Members of the public actively asked questions at the end of each talk and during the final discussion. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/esrc-foss-2017/ |
| Description | ESRC Festival of Social Science - Prof David Martin |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk entitled: Why is it so hard to get detailed counts of UK migration? https://www.youtube.com/watch?v=Y6ZtUPjoQ_g&t=822s&list=PLzv58M2GAfm6eo8LJKRTE0MELoXms18my?dex=1 |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/esrc-foss-2017/my&index=1 |
| Description | Electricity consumption and household characteristics: Implications for census-taking in a smart metered future |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited presentation to the MRS Census and Geodemographics Group Meeting on 'Can Big Data replace the Census?', March 10, 2016 |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.mrs.org.uk/resources/cgg/events/bigdata |
| Description | Engagement with young person and parent groups within GOSH about linkage of hospital data with administrative data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Engagement with young person and parent groups within GOSH about linkage of hospital data with administrative data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Enhancing the collection and analysis of survey and administrative data by linking, Administrative Data Research Conference, 21 June, Belfast |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Peter W. F. Smith, gave a presentation about the methodological work he had undertaken with Jamie Moore and Gabriele Durrant on linking census and survey data to assess and increase the representativeness of surveys and to assess and reduce measurement error. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://adr2018.wordpress.com/ |
| Description | Faculty Ethics Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | I provided significant input into the development of an ethical review pathway and application process for University of Southampton Faculty of Social, Human & Mathematical Sciences staff and students wanting to use secondary data for research purposes. This was driven by updated guidance from ESRC on ethics in 2015. I worked closely with the Head of the Faculty Ethics Committee to create an application form and process that is robust and comprehensive, but not unnecessarily burdensome, including "light-touch" where appropriate. This has been successfully adopted by the FEC, and I have shared the details with others both within and outside of the university in response to many expressions of interest. I am now a specialist ethics reviewer on the FEC, providing advice and guidance for complex ethics applications involving secondary data. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Farr's Frontier Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The aim of the proposed meeting is to draw together researchers from Wales, Scotland and England to form a research team to develop a large grant application to get education, health and environmental data linked across England, Scotland and Wales in order to shed new light on the environmental determinants of cognitive function. Each Farr institute in the UK nations has ability to access administrative data and conduct the linkage with various thematic factors. Working together within a single research project provides an exciting opportunity for a large scale study and consequently great representative population of children. It would involve using both individual health and education data linked to environmental data across time at the relevant geospatial scale for a set of specific research questions, which is expected to transform cutting edge research in this area. Specific objectives of the initial meeting include: 1) across-nations networking on this topic; 2) development of the ideas for a joint cross-country large funding application to look at the environmental determinants of child cognitive function; and 3) development of further work examining the impact of environmental pollution on fetal head growth. This would build on research done by collaborators in Scotland using the Aberdeen birth cohort and would use hospital data available at UCL Partners. |
| Year(s) Of Engagement Activity | 2017 |
| Description | GDPR Research Journey |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Internal University of Southampton workshop to examine implications of GDPR for the research journey. Led to Research workstream being incorporated in the University's GDPR planning and implementation |
| Year(s) Of Engagement Activity | 2017 |
| Description | GKB Blog - Ethics |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This blog outlines some of the issues around ethics in the re-use of secondary data, looking at differences in approach between academic and non-academic disciplines, the latter of which typically do not have standard ethical review pathways. Consent, personal data on social media, relevant legislation, and the fact that something is legal does not automatically make it ethical (and vice versa) are all touched on. The aim was to highlight the complexity of this area and the inconsistencies in approach, and to encourage ethical thinking from the outset of study design. The impact is in influencing decisions. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.geodemographics.org.uk/blog/gkb/emma_white_it_may_be_legal_but_is_it_right_ethics_and_se... |
| Description | Gave a Department of Statistics Seminar, London School of Economics, 4 December 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN), the Administrative Data Research Centre for England (ADRC-E) and Survey Representativeness. The presentation improved the audiences' understanding on the ADRC-E's infrastructure and research, and the ADRN. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Geomed 2017 - Prof David Martin - Sept 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk: Investigating aggregation effects in small area health data using synthetic microdata and automated zone design |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.i3s.up.pt/geomed2017/scientific_programme.html |
| Description | Government Office for Science Workshop on the Use of Data to Support Social Justice Policy Analysis, 1 December 2016, London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Director, Peter W. F. Smith, discussed the work of the Administrative Data Research Network (ADRN) and the Administrative Data Research Centre for England (ADRC-E). |
| Year(s) Of Engagement Activity | 2016 |
| Description | Guess Who (activity at the Cheltenham Science Festival 2015) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | ADRC-England was at the Cheltenham Science Festival 2015 (#CheltSciFest) on Thursday 4 and Friday 5 June. We were part of the University of Southampton initiative 'Bringing Research to Life' Roadshow. We spoke to dozens of adults, only one of whom was slightly concerned about what we were doing. But after a chat, she seemed happier. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Guess Who (activity at the University of Southampton Science and Engineering Festival 2014) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-England was at the University of Southampton Science and Engineering Day 2015 in March 2014 with the 'Guess Who?' board game. The game was designed for children of primary school age, but the age range on the day was 4-14 y.o. The first play of the game was at 10:24 am and it was then played over 90 times until we finally stopped at 16:30. |
| Year(s) Of Engagement Activity | 2014 |
| Description | High-level workshop: big data research, policy and public engagement, 22 September 2017, London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Director of the Administrative Data Research Network (ADRN) and Administrative Data Research Centre for England (ADRC-E), Peter W. F. Smith, attended a high-level workshop in Westminster to review the big data research landscape, and the critical challenges faced in developing policy and public engagement in this area. The meeting was hosted by BEIS and involved senior policy makers from across government, representatives from key agencies working in this area, and leading researchers who are operating at the cutting edge of discovery and application. The workshop identified a set of actions which need to be invested in to ensure that this landscape is navigated with care and confidence. |
| Year(s) Of Engagement Activity | 2017 |
| Description | How the ADRC-E Can Support Your Research and Enhance its Impact, Science and Engineering South Event - The Data Dialogue: Time to Share, 28 July 2016, Cambridge |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN) and the Administrative Data Research Centre for England (ADRC-E). |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.ses.ac.uk/2016/09/08/data-dialogue-time-share |
| Description | Information Superheroes: enabling business excellence |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | IRMS Conference 2016, Brighton. Paper, prepared jointly with Alexandra Eveleigh and Oliver Duke-Williams, 'Government administrative data: is there a recordkeeping role?'. audience of 350 recordkeeping proefssionals working in pubic and private sector organisations. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.irmsconference.org.uk/ |
| Description | Information and Records Management Society, Public Sector Group, Westminster |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Information and Records Management Society, Public Sector Group, Westminster, 13 March 2015 'How will open data impact on records management?' Elizabeth Shepherd |
| Year(s) Of Engagement Activity | 2015 |
| Description | International Council on Archives Second International Conference, Girona, Spain |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | International Council on Archives Second International Conference, Girona, Spain, conference paper 14 October 2014 'What value does records management add to government administrative data?', Elizabeth Shepherd |
| Year(s) Of Engagement Activity | 2014 |
| Description | International Society for Environmental Epidemiology Conference, Sao Paulo, Brazil, 1 Sept 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Prof. Paul Wilkinson, ADRC-E Co-I, was invited to present his work at the conference on 'Comparison of home energy efficiency investments and winter fuel payments for meeting health and environmental goals in England'. The conference was held in Sao Paulo in Brazil on 1 Sept 2015. |
| Year(s) Of Engagement Activity | 2015 |
| Description | International Workshop 'Advances in Adaptive and Responsive Survey Design |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Durrant, G.B. and Schnepf. S. (2013) Non-response Modelling in a Multi-Stage Survey of School Children (PISA), invited paper presented at the International Workshop 'Advances in Adaptive and Responsive Survey Design, 9-10 December 2013, CBS Netherlands |
| Year(s) Of Engagement Activity | 2013 |
| Description | International conference presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | International Council on Archives, annual conference, Reykjavik, conference paper 'Does improved data security for government administrative data lead to trustworthy policy research outcomes?'. followed by questions and discussion. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Intro. to Admin. Data - Video |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | This Introduction to Administrative Data video briefly explains the motivation and opportunities in using administrative data for research purposes, while also outlining the challenges and barriers. It is very helpful to send the link to people who are new to this area, to give them an overview of why we are involved in this activity, and what we hope to achieve. It often generates requests for further discussion, seminars, reading lists etc. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/about/research-centre-england/training-podcasts/ |
| Description | Introducing the Administrative Data Research Network Event, 3 July 2014, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith gave a presentation about the Administrative Data Research Centre for England (ADRC-E) and sat on a panel answering question about the Centre. The presentation improved the audiences' understanding on the ADRC-E's infrastructure and research. After the presentation at the Event, there was an increase in enquiries about the ADRC-E received. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Invited Conference Presentation at the American Educational Research Association Conference, Washington DC, April 9 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | I was an invited speaker in the session "The Contributions and Opportunities of Using Administrative Data Systems in Research and Policy" Sat, April 9, 2:15 to 3:45pm, Convention Center, Level Two, Room 204 C |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited Speaker at Education Panel at Public-Academic Research Colloquium (PARC): Leveraging Administrative Data for Social Policy, in Washington DC on 29 and 30 November |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The use of administrative data for research, evaluation, and policy innovation presents an exciting new frontier for social science research. Administrative data consist of information that many federal and state programs gather for program administration, regulatory, or law enforcement purposes but infrequently use for research, program evaluation, or performance measurement. By harnessing the power of these data, the hope is that government can encourage innovation in service provision that reduces costs while also improving the quality of government-funded programs. This conference broght together national and international scholars who are actively involved in exemplary projects that showcase the use of linked administrative data to advance social policy. Anadditional conference aim was to discuss the challenges in the emerging field of public-academic research practice. The first day of the colloquium featured five panels ofresearchers who will present recent research highlighting the use of administrative data for innovation in the areasof education, healthcare, child welfare, and research methods. Day 2 was a small group meeting that was detail-oriented and technical in nature and involved discussing future potential collaborations. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.aisp.upenn.edu/resources/aisp-events/aisp-parc/ |
| Description | Invited presentation to "Understanding Households in Administrative Data: Definition and Estimation" conference, Edinburgh |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation at meeting hosted jointly by Administrative Data Research Centre - Scotland and Office for National Statistics aimed at census and demographic data users across sectors. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Local college (Richard Taunton) workshop on health inequalities in Southampton |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | 15 pupils attended a workshop on defining and predicting health inequalities across Southampton using contextual (number of takeaways, supermarkets, alcohol outlets, etc) and compositional (% of population retired, student, employed, etc) information on 16 electoral wards in Southampton. All participants agreed with the statements 'I have improved my knowledge of the social sciences and the benefits to society', 'I have a better understanding of the topic of the event' and 'The event has made me more aware of the ESRC and its work' in an anonymous online feedback form. |
| Year(s) Of Engagement Activity | 2016 |
| Description | London: The Information Capital - a mind-expanding look at city life |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | An article called The Information Capital - a mind-expanding look at city life |
| Year(s) Of Engagement Activity | 2016 |
| Description | MRC Methodology Research Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited guest member on MRC Methodology Research Panel |
| Year(s) Of Engagement Activity | 2018,2019,2020 |
| Description | Market Research Society Census and Geodemographics Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | I was asked to give a presentation on ADRN/ ADRC-E to the above group in February 2015. This led to me being invited to join the group. I attend monthly meetings, contribute to consultation responses and general discussion, and was invited to write a GKB blog (referenced separately) |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.mrs.org.uk/mrs/census_and_geodemographics_group |
| Description | Meeting with a delegation from the China Population and Development Research Centre, 6 December 2016, Southampton |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, discussed the work of the Administrative Data Research Network (ADRN) and the Administrative Data Research Centre for England (ADRC-E). |
| Year(s) Of Engagement Activity | 2016 |
| Description | Milojevic A, Dearden L, Church D, Wilkinson P. Air pollution and cognitive development in children of UK Millennium Cohort Study. ISEE17 29th Annual Scientific Conference of the International Society of Environmental Epidemiology, Sydney Australia, 24-28 September 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Oral Presentation - Milojevic A, Dearden L, Church D, Wilkinson P. Air pollution and cognitive development in children of UK Millennium Cohort Study. ISEE17 29th Annual Scientific Conference of the International Society of Environmental Epidemiology, Sydney Australia, 24-28 September 2017 (oral presentation on 25 September) |
| Year(s) Of Engagement Activity | 2015,2017 |
| Description | Milojevic A, Wilkinson P. Air pollution and cognitive development in children: pilot studies of methods and data linkage. The UK Administrative Data Research Network 2017 Annual Research Conference: Social science using administrative data for public benefit. Edinburgh, 1-2 June |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Conference paper - Milojevic A, Wilkinson P. Air pollution and cognitive development in children: pilot studies of methods and data linkage. - |
| Year(s) Of Engagement Activity | 2008,2017 |
| URL | https://teamup.com/event/show/id/oZ22L85eECVJuRNskcx8nLeUwujnQ7 |
| Description | Moldovan National Bureaux of Statistics visit to ADRC-E, University of Southampton, 19 January 2016 |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith gave a presentation about the Administrative Data Research Centre for England (ADRC-E) and Jamie Moore and Chris Gale give presentations about the research they were undertaking. The presentations improved the audiences' understanding on the ADRC-E's infrastructure and research. |
| Year(s) Of Engagement Activity | 2016 |
| Description | NCRM Research Methods Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation: Linking Cohort Studies to Administrative Data |
| Year(s) Of Engagement Activity | 2014 |
| Description | Network event , ADRN, Edinburgh, May 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Moore, J.C., Durrant, G.B. and Smith, P.W.F. (2017) Qualifications responses in the UK 2011 census and LFS: measurement error, or differential reporting? ADRN network conference, Edinburgh, May 2017 - a number of professional practitioners were present and indicated that they would implement the new methods into practice. |
| Year(s) Of Engagement Activity | 2017 |
| Description | ONS Integrated data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Combining data to answer society's biggest questions |
| Year(s) Of Engagement Activity | 2018 |
| Description | ONS Safe Researcher Training Expert Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The purpose of the expert group is to advise and support the ONS to design a new safe researcher training package |
| Year(s) Of Engagement Activity | 2017 |
| Description | ONS attending Government Social Research (GES)/Government Economic Service (GSR) Conference in London on 16 Sept 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ONS/ADRC-E team attended and ran a stall engaging with audience and answering questions on ADRN/ADRC-E. Audience's research interests were discussed and appropriate individuals were encouraged pursuing these through the ADRN. It increased awareness of ADRN/ADRC-E with potential users of the service in government and academia. |
| Year(s) Of Engagement Activity | 2016 |
| Description | ONS presentation - Monitoring non-response bias |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Moore, J.C., Durrant, G.B. and Smith, P.W.F. (2017) Monitoring non-response bias and measurement error during data collection in UK social surveys: can collection be ended early? Seminar at the Office for National Statistics, Titchfield. 26th February 2017. - several professional practitioners were present and they were very interested in applying the methods into practice. |
| Year(s) Of Engagement Activity | 2017 |
| Description | ONS promoting ADRN/ADRC-E at Government Statistical Service (GSS) Conference in Manchester on 8-9 Sept 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ONS/ADRC-E team attended and ran a stall, engaging with audience and answering questions on ADRN/ADRC-E. Audience's research interests were discussed and appropriate individuals were encouraged pursuing these through the ADRN. It increased awareness of ADRN/ADRC-E with potential users of the service in government and academia. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://gss.civilservice.gov.uk/wp-content/uploads/2016/05/GSS-conference-2016-handbook-1.pdf |
| Description | Organised and chaired a session on Administrative Data at the British Society for Population Conference, 12-14 September, 2016, Winchester. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This session focussed on new uses of administrative data, linking methodology and its applications based on the wide range of research being led by the four UK Administrative Data Research Centres. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.lse.ac.uk/socialPolicy/Researchcentresandgroups/BSPS/annualConference/2016 |
| Description | Organised and chaired a session on Administrative Data at the ESRC Research Methods Festival, 5-7 July 2016, Bath |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This session started with an introduction to what the Administrative Data Research Network has to offer in terms of support and infrastructure. Then using various examples, how the methodological challenges when using administrative data to undertake research were overcome were described. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ncrm.ac.uk/RMF2016/home.php |
| Description | Panel member and chaired a session on Data Infrastructure for Policy: Infrastructure to support access to data for research, Data for Policy, Government by Algorithm, 6 and 7 September 2017, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, chaired a session organised by the Administrative Data Research Network (ADRN). The session introduced the audience to current best practice in data release and access infrastructure, models for decision making around data release (the '5 safes' model), the existing and potential infrastructure and skills gaps in light of the opportunities offered by the Digital Economy Act, which received Royal Assent on the 27th April 2017, and the advantages offered to the UK public and government by the Digital Economy Act and the existing data access infrastructure. He also took part in an interactive discussion on reflections and future steps. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://dataforpolicy.org/ |
| Description | Panel member at the Data Linkage, Ethical and Social Concerns, London, 9 July 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director of the Administrative Data Research Centre for England, Peter W. F. Smith was a member of a panel discussing data linkage, ethical and social concerns |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participation in an activity, workshop or similar - Better Candies Benefit Society (activity at the Bloomsbury Festival 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-England was at the Bloomsbury Festival 2017 (#BloomsburyFest) on Saturday 21 October as part of the UCL Hub. We talked to 153 people at our ADRC-E stand across the day in the Northern Cloisters of the UCL Main Quad. People actively engaged with us asking further questions regarding the centre and our research. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/bloomsbury-festival/ |
| Description | Practitioner Workshop Presentation - Responsive design meeting, Washington, Nov 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | invited paper: Durrant, G.B., Moore, J.C. and Smith P.W. (2017) Do Representativeness Indicators Approximate Non-Response Biases during Survey Data Collection? Survey Covariates with Census Sample Auxiliary Information Analogues. Fourth Leverhulme Network Grant Meeting and Fourth International Workshop on Adaptive and Responsive Survey Designs, Michigan, USA, Nov 2017. - several professional practitioners attended the meeting and some indicated that they would use the method in their own survey practice. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation - ESRA (European Survey Research Association) conference, July 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Durrant, G.B., Moore, J. and Smith, P. (2017) When to stop calling? Dataset representativeness during data collection: An assessment using linked 2011 UK Census data, presentation at the ESRA (European Survey Research Association) conference, July 2017, Lisbon. - several statistical practitioners were present and a number indicated that they would implement the methods into practice. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation at Society for Longitudinal and Life Course Conference 2017 - Louise McGrath-Lone - Stirling |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Presentation given by Dr Louise McGrath-Lone on Lifetime experiences of out-of-home care among children in England |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation at Workshop organized by the Stockholm University SIMSAM Node for Demographic Research on New Developments in Register-based Demographic Research, Stockholm, 11-12 June 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith gave a presentation about the Administrative Data Research Centre for England (ADRC-E) and the Administrative Data Research Network (ADRN). The presentation improved the audiences' understanding on the ADRC-E's infrastructure and research, and the ADRN. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://simsam.nu/workshop-on-new-developments-in-register-based-demographic-research/ |
| Description | Presentation at administrative data conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of work on data linkage for Prevail generalisability study at administrative data conference |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://ijpds.org/article/view/519 |
| Description | Presentation at international conference on data linkage |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on data linkage methods used in the generalisability study presented by Caroline Fraser |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://ijpds.org/article/view/930 |
| Description | Presentation at the European Commission Joint Research Centre, Ispra, Italy, 9 November 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith gave a presentation about the Administrative Data Research Centre for England (ADRC-E) and the Administrative Data Research Network (ADRN). The presentation improved the audiences' understanding on the ADRC-E's infrastructure and research, and the ADRN. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at the King's College London Math-Soc Cumberland Lodge Student Weekend, 20 February 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | The Director of the Administrative Data Research Centre for England, Peter W. F. Smith, gave a presentation about the statistical challenges when analysing administrative data to undergraduate mathematics students from King's College, London. The presentation improved the audiences' understanding of current research on methods for handling administrative data. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://nms.kcl.ac.uk/reimer.kuehn/CumberlandLodge/ |
| Description | Presentation at the Royal Statistical Society Society/Administrative Data Research Network Event, London, 8 October 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith gave a presentation about the Administrative Data Research Centre for England (ADRC-E) and sat on a panel answering question about the Centre. The presentation improved the audiences' understanding on the ADRC-E's infrastructure and research. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to the Health Services Research Network, London, 2 December 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith gave a presentation about the Administrative Data Research Centre for England (ADRC-E) and the Administrative Data Research Network (ADRN). The presentation improved the audiences' understanding on the ADRC-E's infrastructure and research, and the ADRN. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Research engagement stand - ONS attending Government Social Research (GES)/Government Economic Service (GSR) Conference in London (15 Sept 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ONS/ADRC-E team attended and ran a stall engaging with audience and answering questions on ADRN/ADRC-E. Audience's research interests were discussed and appropriate individuals were encouraged pursuing these through the ADRN. It increased awareness of ADRN/ADRC-E with potential users of the service in government and academia. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research engagement stand - ONS attending the British Society for Population Studies Conference in Liverpool (7 Sept 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ONS/ADRC-E team attended and ran a stall engaging with audience and answering questions on ADRN/ADRC-E. Audience's research interests were discussed and appropriate individuals were encouraged pursuing these through the ADRN. It increased awareness of ADRN/ADRC-E with potential users of the service in government and academia. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research engagement stand - ONS promoting ADRN/ADRC-E at Government Statistical Service (GSS) Conference in Sheffield (22-23 Nov 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ONS/ADRC-E team attended and ran a stall engaging with audience and answering questions on ADRN/ADRC-E. Audience's research interests were discussed and appropriate individuals were encouraged pursuing these through the ADRN. It increased awareness of ADRN/ADRC-E with potential users of the service in government and academia. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research engagement stand at the Southampton Medical & Health Research Conference (14-15 June 2017) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research engagement stand to promote the work of the ADRC-E at the Southampton Medical & Health Research Conference at the Southampton General Hospital on 14-15 June 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research implications of new UK and EU legislation - article in SRA Research Matters |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Article summarising upcoming legislative changes in the UK that have relevance to research. The Social Research Association has a broad audience throughout the UK |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://the-sra.org.uk/wp-content/uploads/sra-research-matters-june-2017-edition.pdf |
| Description | Royal Statistical Society Official Statistics Section Discussion Meeting, David J Hand 'Statistical challenges of administrative and transaction data', 15 November 2017, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director of the Administrative Data Research Network (ADRN) and Administrative Data Research Centre for England (ADRC-E), Peter W. F. Smith, discussed David J Hand's paper 'Statistical challenges of administrative and transaction data'. He drew attention to the work of the ADRN and, in particular, the work of the ADRC-E on guidance for information about linking datasets and survey representativeness. The audience gained a better understanding of the work of the ADRN and ADRC-E. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Science & Engineering Day 2017 |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Exhibition stand with Admin Data Geo Challenge quiz and Better Candies Benefit Society experiment |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/network/england/public-engagement/southampton-science-and-engineering-day-2... |
| Description | Singapore government study visit to ONS to learn about potential to use & re-use admin. data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A delegation from the Singapore government visited ONS, who invited me to join the discussion on the potential for the use & re-use of administrative data in the production of government statistics |
| Year(s) Of Engagement Activity | 2015 |
| Description | Statistics User Forum |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | I am a member of the Statistics User Forum, which meets quarterly to provide feedback to the UKSA/ONS on statistical products. The group has a wide ranging membership. Given ADRC-E's close relationship with ONS, whereby we are partners but also consumers of ONS's statistics, it is very helpful to understand other stakeholders' views, and to contribute our perspective to inform and influence debate. The group also provides an opportunity to highlight ADRN/ADRC-E research and to encourage other members to consider developing ADRN projects. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.rss.org.uk/rss/get_involved/statistics_users/rss/get_involved/statistics_users_sub/statis... |
| Description | Talk given to HDR UK North and NICE Collaborative Workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited to give talk titled ' A prognostic atlas for clinical practice guidelines' given to researchers, academics and other audience at the workshop. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Talk to ONS staff in Titchfield on public engagement with research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk to ONS staff in Titchfield on public engagement with research available opportunities. Talk entitled: "Public Engagement: What's On" |
| Year(s) Of Engagement Activity | 2018 |
| Description | The ADRC-E: Making a Methodological Impact, National Institute for Applied Statistics Research Australia meeting, 21 November 2018, Goulburn, Australia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN), the Administrative Data Research Centre for England (ADRC-E) and the methodological impact of the research undertaken by ADRC-E. The presentation introduced the audience to the methodological work of the ADRC-E. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://niasra.uow.edu.au/fellows/UOW039903.html |
| Description | The ADRC-E: Making a Methodological Impact, Statistics New Zealand Seminar, 8 November 2018, Christchurch, New Zealand |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN), the Administrative Data Research Centre for England (ADRC-E) and the methodological impact of the research undertaken by ADRC-E. The presentation introduced the audience to the methodological work of the ADRC-E. |
| Year(s) Of Engagement Activity | 2018 |
| Description | The Administrative Data Research Network - weaving straw into gold |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Blog on ADRN for Geodemographics Knowledge Base, which compiles key information sources for Business Analytics and Big Data. This raised the profile of ADRN in a new arena |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.geodemographics.org.uk/blog/gkb/emma_white_the_administrativedata_research_network_-_weav... |
| Description | The Administrative Data Research Network and the Administrative Data Research Centre for England, Wessex Academic Health Science Networks Optimising Intelligence Super User Group meeting, 7 February 2017, Southampton |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, discussed the work of the Administrative Data Research Network (ADRN) and the Administrative Data Research Centre for England (ADRC-E). |
| Year(s) Of Engagement Activity | 2017 |
| Description | The Administrative Data Research Network, The Economic and Social Research Council and National Natural Science Foundation of China meeting, 18 July 2017, University of Essex |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN),and the Administrative Data Research Centre for England (ADRC-E) including an overview of some of the ADRN projects. The presentation introduced the audience to the work of the ADRC-E and the ADRN. |
| Year(s) Of Engagement Activity | Pre-2006,2006,2017 |
| Description | The ESRC Administrative Data Research Network, MQ Data Science Meeting, 30 March 2017, Manchester |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Director, Peter W. F. Smith, gave a presentation about the Administrative Data Research Network (ADRN), the Administrative Data Research Centre for England (ADRC-E) and current ADRC-E projects on mental health. The presentation introduced the audience to the work of the ADRC-E and the ADRN. |
| Year(s) Of Engagement Activity | Pre-2006,2017 |
| URL | https://www.mqmentalhealth.org/posts/can-data-science-be-a-catalyst-for-improved-mental-health-outco... |
| Description | UCL ICARUS research seminar presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | UCL ICARUS research seminar presentation, Department of Information Studies, 12 November 2014, 'Administrative data and ADRC-E' Elizabeth Shepherd |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.ucl.ac.uk/dis/icarus/culture/researchseminars |
| Description | UK Biobank Board Member |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UK Biobank is a national and international health resource with unparalleled research opportunities, open to all bona fide health researchers. UK Biobank aims to improve the prevention, diagnosis and treatment of a wide range of serious and life-threatening illnesses - including cancer, heart diseases, stroke, diabetes, arthritis, osteoporosis, eye disorders, depression and forms of dementia. It is following the health and well-being of 500,000 volunteer participants and provides health information, which does not identify them, to approved researchers in the UK and overseas, from academia and industry. Scientists, please ensure you read the background materials before registering. To our participants, we say thank you for supporting this important resource to improve health. Without you, none of the research featured on this website would be possible. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.ukbiobank.ac.uk/ |
| Description | UK Indoor Environment Group Annual Conference, London, 11 June 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Prof. Paul Wilkinson, ADRC-E Co-I, was invited to present his work at the conference on 'Home energy efficiency investments: comparison with winter fuel payments for meeting housing-related health and environmental objectives in England'. The conference was held in London on 11 June 2015. |
| Year(s) Of Engagement Activity | 2015 |
| Description | UK Science & Innovation Network & NIH Maternal Health & AI Research Symposium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited to speak at the Maternal Health & AI Research Symposium in Boston, MA, USA. |
| Year(s) Of Engagement Activity | 2020 |
| Description | University College London (UCL) and Yale Open Data Access (YODA) Project Joint Meeting on Facilitating Data Access to Non-Industry Funded Research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited presentation on ADRN to encourage project applications and raise prospect of potential for further support and collaboration. As a result of this workshop, I am now jointly supervising a PhD with ADRC-W (University of Bristol), and am a member of WUN DAPPER (see Influence activities) |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://yoda.yale.edu/about/conferences/university-college-london-and-yoda-project-joint-meeting-faci... |
| Description | University of Southampton GDPR implementation group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Member of University of Southampton's formal GDPR implementation group, as well as a member of the Research workstream sub-group. Administrative data research is directly affected by GDPR and there are considerable potential impacts throughout the University and Research communities should the implications and requirements of GDPR not be well understood at all levels |
| Year(s) Of Engagement Activity | 2017 |
| Description | Using population-level data to understand and improve the family justice system |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This event will bring together academics and data experts from the Ministry of Justice and CAFCASS to share learning and vision about using administrative data and existing cohort studies to understand and improve the family justice system. The event is part of a wider scoping study, funded by The Nuffield Foundation and led by Prof Karen Broadhurst, which will propose an organisational model ('an observatory') for improving the generation and use of research evidence within the family justice system. The day will consist of opportunities to network, a series of short talks by academics using population-level, linked data, and an open discussion about the role of an observatory. |
| Year(s) Of Engagement Activity | 2012,2015,2017 |
| Description | Visit by representatives of the National Information Society Agency, Korea, 20 September 2017, Southampton |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Director of the Administrative Data Research Network (ADRN) and Administrative Data Research Centre for England (ADRC-E), Peter W. F. Smith, met with representatives of the Korean National Information Society Agency. The delegates obtained an understanding of the work of the ADRN and ADRC-E. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Vocational Education Data User Group, organised by Dept Business Innovation & Skills |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Invited to join workshop to consider best management, development and use of BIS datasets in this area, and potential of new linked dataset to be released in 2016. New relationships developed and two potential ADRN projects now in train, as well as further discussion of potential for BIS and ADRC-E collaboration |
| Year(s) Of Engagement Activity | 2015 |
| Description | WUN DAPPER |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | I gave a presentation on UK data-sharing and the ADRN to the international audience, briefly outlining legal gateways and governance, attitudes to data-sharing in the UK and the ADRN. This contextual background set the scene for the workshop, raised the profile of the ADRN, and provided an opportunity for the participants to share best practice, their own experiences, barriers, challenges and their successes in data access applications. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.wun.ac.uk/wun/research/view/dapper-data-analysis-with-privacy-protection-for-epidemiologi... |
| Description | Wellcome Innovations Flagships |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of the Innovations Flagships panel. Innovations Flagships support the development of exciting new products, technologies and other interventions to prevent or treat disease. |
| Year(s) Of Engagement Activity | 2019,2020 |
| Description | What Works Council Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to senior civil servants involved in the What Works initiative about potential to use ADRN/ ADRC-E resources to support their work |
| Year(s) Of Engagement Activity | 2015 |
| Description | What can DECC's NEED data tell us about what drives domestic electricity consumption and how could data linkage help? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at ADRN Conference (Public/Policy stream) 2016 |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://speakerdeck.com/dataknut/what-can-deccs-need-data-tell-us-about-what-drives-domestic-electri... |
| Description | What is data linkage? ESRC Research Methods Festival, 3 July 2018, Bath |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Peter W. F. Smith gave an overview of the methods for linking data, including deterministic and probabilistic linkage. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.ncrm.ac.uk/RMF2018/home.php |
| Description | YouTube - ONS/ADRC-E collaboration |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Lucy Vickers and I were filmed discussing the ADRC-E/ONS partnership, its benefits, and what we hope to achieve. This was an excellent opportunity to describe how cross-sectoral partnerships can break down barriers for public benefit. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.youtube.com/watch?v=ndUPhKQqvVI |
| Description | contribution to 'connections' article on ONS Census/NSW project submitted to ADRN online magazine 09/2017 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Article submitted to online magazine 09/2017 Increased awareness of ADRN/ADRC-E with potential users of the service in government |
| Year(s) Of Engagement Activity | 2017 |
| Description | focus group study (November 22 2017) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | In collaboration with the Mental Health Foundation the ADRC-E/University of Southampton is setting up a retrospective cohort study to examine the effects of community mental health services on users in England before and after the financial crisis. To conduct this research, the University of Southampton has requested NHS Digital to create a pseudo-anonymised dataset containing data shared by NHS Digital, the Department for Work & Pensions, CPRD group, the Office for National Statistics, the Department of Health, and the Care Quality Commission from individuals receiving community mental health services between 2006 and 2016. To familiarize mental health service users with our intent to request shared and linked data on community mental health and social services and determine what safeguards service users would like to see in place before we request this data we ran a focus group. We hoped the focus group would help us assess mental health service users' preferences and acceptance of the current practice of the secondary use of their administrative data. Overall, participants were happy for government departments to share their health, social and/or economic data if the purpose was made transparent and if this information would inform health policy and practice. The focus group discussion helped us improve service users' education on data protection and data linking and create dissent opportunities with regard to our ongoing study. We have also created opportunities for service users to be involved in the research advisory committee. |
| Year(s) Of Engagement Activity | 2017 |
| Description | presentation at European conference on mental health (6 october 2017) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | I presented my research on disparity in health care utilization for British individuals reporting physical and mental health problems. Purpose was to get feedback from nursing mental health professionals in the field regarding the findings. In addition, there is an alternative motive that we hope in the long term will proof effective. By presenting the research findings at professional practitioner meetings we can show practitioners the benefits of the use of administrative data for research purposes. |
| Year(s) Of Engagement Activity | 2017 |
| Description | rehabilitation & social psychiatry conference (November 10th 2017) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | I was invited to give an oral presentation for the Douglas Bennett award on disparity in health care utilization for British individuals reporting physical and mental health problems. The presentation was followed by a discussion which greatly helped me gain insight into the psychiatrists' viewpoint. In addition I had a poster presentation at this conference. The conference was mostly attended by social psychiatrists although some patients and carers were also present. The patients and carers were very happy to hear that the data they are providing is coming to good use and would like to see more studies done with the data they provide. |
| Year(s) Of Engagement Activity | 2017 |
| Description | talk/presentation - ADRN network conference, Edinburgh, May 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Durrant, G.B., Moore, J.C. and Smith, P.W.F. (2017) When to stop calling?, ADRN network conference, Edinburgh, May 2017 - several professional practitioners were present and they indicated they would implement some of the methods into their own practice. |
| Year(s) Of Engagement Activity | 2017 |