Tackling Disabling Practices: co-production and change.
Lead Research Organisation:
University of Bristol
Department Name: Sch for Policy Studies
Abstract
Disabled people's lives are often devalued, by comparison with others' (ODI, 2011). For instance, there are scandals in care homes (Flynn, 2012) and in the health service (Heslop et al., 2013; Francis, 2012) and we know that social care is struggling due to financial cuts (Woods et al., 2011). Disabled people have long said that they can provide solutions for themselves (Oliver & Barnes, 2012) and this notion is now embraced by government policy which aims for disabled people to exercise 'choice and control' over their own lives. In all these areas, there are policies that identify the potential problems and lay out by contrast the person-centred goals of government (DH, 2012).
The problem is therefore not about a lack of appropriate policy, but the gap between that policy and its enactment in practice. There are many areas in which research has shown what works, but in which we do not yet know how to stimulate and maintain changes in practice. Instead of simply describing the barriers faced by disabled people, we will focus instead on mechanisms of change, aiming to find out what theoretical ideas have practical adequacy. This research aims to focus on how to develop and sustain practices that are on the terms of disabled people themselves.
Phase 1: Theories The first key word in our title is 'Co-production', where disabled people's own solutions are in the spotlight. The DRUK (Disability Rights UK) is a partner in this project, and will lead our thinking about co-production. Disabled people are centrally involved across the various strands, and we will collect evidence about the process of co-production from the point of view of all those involved in the study itself. Our second key word is 'change' and we will form a 'Getting Things Changed' group, starting with a series of seminars on: 1) user-driven change; 2) interventionist conversation analysis; 3) social practice theory; 4) theories of 'sense making'. These will kick-start a sustained dialogue across the length of the project.
Phase 2: Research based Interventions The central part of the study is organised into five parallel research based interventions, to identify problematic social practices and work out how to tackle them. Each strand delivers action and insight about how to make changes on the terms of a specific grouping of disabled people and within a different layer of social life. All of these are areas in which research has already revealed problems of practice. The five strands focus on 1) how to improve everyday interaction between people using primarily non-verbal means of communication and their support workers, 2) how to change practices in universities, which unintentionally marginalise disabled students; 3) how to shift health care practices by making 'reasonable adjustments', 4) how to develop better interdisciplinary support for parents with learning difficulties, particularly where child protection issues have been raised; 5) how to affect statutory commissioning of social care by listening to disabled people's own solutions. In each of these areas, we will work with disabled people, to help identify improvements and understand how to sustain them.
Phase 3: Embedding Change Impact is both an outcome and a focus of the study, running through everything we do. The final phase will bring these activities together in academic outputs, policy impact and in dissemination to a network of disability organisations, as we did in the recent Confidential Inquiry (Heslop et al., 2013). Disability Rights UK and its networks are equally a key to our routes to impact, and we are well placed at NFRC to disseminate via disability events and journals. Following our three sets of project briefings for policy makers, during this final period we will hold events led by each of the five strands, and a public dissemination event at a media centre in Bristol.
The problem is therefore not about a lack of appropriate policy, but the gap between that policy and its enactment in practice. There are many areas in which research has shown what works, but in which we do not yet know how to stimulate and maintain changes in practice. Instead of simply describing the barriers faced by disabled people, we will focus instead on mechanisms of change, aiming to find out what theoretical ideas have practical adequacy. This research aims to focus on how to develop and sustain practices that are on the terms of disabled people themselves.
Phase 1: Theories The first key word in our title is 'Co-production', where disabled people's own solutions are in the spotlight. The DRUK (Disability Rights UK) is a partner in this project, and will lead our thinking about co-production. Disabled people are centrally involved across the various strands, and we will collect evidence about the process of co-production from the point of view of all those involved in the study itself. Our second key word is 'change' and we will form a 'Getting Things Changed' group, starting with a series of seminars on: 1) user-driven change; 2) interventionist conversation analysis; 3) social practice theory; 4) theories of 'sense making'. These will kick-start a sustained dialogue across the length of the project.
Phase 2: Research based Interventions The central part of the study is organised into five parallel research based interventions, to identify problematic social practices and work out how to tackle them. Each strand delivers action and insight about how to make changes on the terms of a specific grouping of disabled people and within a different layer of social life. All of these are areas in which research has already revealed problems of practice. The five strands focus on 1) how to improve everyday interaction between people using primarily non-verbal means of communication and their support workers, 2) how to change practices in universities, which unintentionally marginalise disabled students; 3) how to shift health care practices by making 'reasonable adjustments', 4) how to develop better interdisciplinary support for parents with learning difficulties, particularly where child protection issues have been raised; 5) how to affect statutory commissioning of social care by listening to disabled people's own solutions. In each of these areas, we will work with disabled people, to help identify improvements and understand how to sustain them.
Phase 3: Embedding Change Impact is both an outcome and a focus of the study, running through everything we do. The final phase will bring these activities together in academic outputs, policy impact and in dissemination to a network of disability organisations, as we did in the recent Confidential Inquiry (Heslop et al., 2013). Disability Rights UK and its networks are equally a key to our routes to impact, and we are well placed at NFRC to disseminate via disability events and journals. Following our three sets of project briefings for policy makers, during this final period we will hold events led by each of the five strands, and a public dissemination event at a media centre in Bristol.
Planned Impact
WHO WILL BENEFIT, AND IN WHAT WAY?
The key practice beneficiaries for this research fall into three groups: 1) disabled people and their organisations; 2) education, social care and health policy makers and practitioners; 3) practitioners, NGOs and organisations involved with specific groups of disabled people.
1) Disabled people and their organisations (via DRUK & member organisations): we will suggest strategies for tackling inequities experienced by disabled people, by foregrounding the voice and agency of disabled people, and by providing evidence of 'what works' in shifting social practices. Our findings will be fed back directly to DPOs, and to campaigns led by disabled people.
2) Policy makers (e.g. via NHS England, Association of Directors of Adult Social Care): we will contribute to debates about 'challenging culture' , by enabling research evidence to be examined through different theoretical lenses on change. Policy briefings will be disseminated at Months 4, 18, 28 and 35 at key moments following project learning events, and also via blogs and interactive media. Advisory groups in each of the strands, as well as the final-stage policy impact discussions, will enable us to engage with practice guidance, such as guidance for commissioners in local authorities.
3) NGOs and provider or support organisations (e.g. Alzheimers Society, Mencap, Centre for Studies on Inclusive Education): a range of organisations representing particular interests in the disability world, and provider organisations, have signed up to support this project. We will also invite others, such as the Mental Health Foundation, to sit on advisory panels, and they will all benefit from regular strand and cross-project updates about findings, which they will be able to feed into practice (e.g. via training of staff) and into policy (e.g. for disabled parents).
WHAT ARE THE IMPACT GOALS?
Impact is both the topic and the outcome of this project. The goal is to analyze how changes in policies, practices and outcomes for disabled people can be brought about. By building in a central partnership with DRUK, the research messages will be informed by their voice in public debate, and by working with theorists, we will engage with wider interdisciplinary social science debates. The research messages will have impact at two levels:
1) Research evidence about how practices and policy can be shifted, using direct practical examples that foreground the voice of 'users' of the research, in relation to everyday life interactions (Strand 1), inclusion in HE (Strand 2), health service adjustments (Strand 3) social support for parents with learning disabilities (Strand 4) and social care and health commissioning (Strand 5). We will feed these insights into specific policies and strategic documents, via our regular web-based briefings, and the policy meetings detailed in Pathways to Impact.
2) We will contribute to the debate about how research can be linked with impact. For instance, both Strands 3 and 5 will examine the way in which 'dissemination of innovation' can help local authorities or health trusts to implement policy.
HOW WILL WE ACHIEVE IMPACT?
Our key strategies to engage with our various stakeholders are detailed in 'Pathways to Impact'. In summary, they include ongoing work with DRUK and disabled people throughout the project, and an advisory group structure which will help to disseminate messages from our work. An advisory group specific to each strand will involve both policy makers and disabled people, so that their voice is central throughout the research, and the fifth strand turns the spotlight onto disabled people as agents of change, focusing on the ways in which individuals and groups of disabled people can influence statutory provision. We will host a project website and use social media, to publicise our regular research briefings in short accessible formats, and monitor the impact of the work throughout the study.
The key practice beneficiaries for this research fall into three groups: 1) disabled people and their organisations; 2) education, social care and health policy makers and practitioners; 3) practitioners, NGOs and organisations involved with specific groups of disabled people.
1) Disabled people and their organisations (via DRUK & member organisations): we will suggest strategies for tackling inequities experienced by disabled people, by foregrounding the voice and agency of disabled people, and by providing evidence of 'what works' in shifting social practices. Our findings will be fed back directly to DPOs, and to campaigns led by disabled people.
2) Policy makers (e.g. via NHS England, Association of Directors of Adult Social Care): we will contribute to debates about 'challenging culture' , by enabling research evidence to be examined through different theoretical lenses on change. Policy briefings will be disseminated at Months 4, 18, 28 and 35 at key moments following project learning events, and also via blogs and interactive media. Advisory groups in each of the strands, as well as the final-stage policy impact discussions, will enable us to engage with practice guidance, such as guidance for commissioners in local authorities.
3) NGOs and provider or support organisations (e.g. Alzheimers Society, Mencap, Centre for Studies on Inclusive Education): a range of organisations representing particular interests in the disability world, and provider organisations, have signed up to support this project. We will also invite others, such as the Mental Health Foundation, to sit on advisory panels, and they will all benefit from regular strand and cross-project updates about findings, which they will be able to feed into practice (e.g. via training of staff) and into policy (e.g. for disabled parents).
WHAT ARE THE IMPACT GOALS?
Impact is both the topic and the outcome of this project. The goal is to analyze how changes in policies, practices and outcomes for disabled people can be brought about. By building in a central partnership with DRUK, the research messages will be informed by their voice in public debate, and by working with theorists, we will engage with wider interdisciplinary social science debates. The research messages will have impact at two levels:
1) Research evidence about how practices and policy can be shifted, using direct practical examples that foreground the voice of 'users' of the research, in relation to everyday life interactions (Strand 1), inclusion in HE (Strand 2), health service adjustments (Strand 3) social support for parents with learning disabilities (Strand 4) and social care and health commissioning (Strand 5). We will feed these insights into specific policies and strategic documents, via our regular web-based briefings, and the policy meetings detailed in Pathways to Impact.
2) We will contribute to the debate about how research can be linked with impact. For instance, both Strands 3 and 5 will examine the way in which 'dissemination of innovation' can help local authorities or health trusts to implement policy.
HOW WILL WE ACHIEVE IMPACT?
Our key strategies to engage with our various stakeholders are detailed in 'Pathways to Impact'. In summary, they include ongoing work with DRUK and disabled people throughout the project, and an advisory group structure which will help to disseminate messages from our work. An advisory group specific to each strand will involve both policy makers and disabled people, so that their voice is central throughout the research, and the fifth strand turns the spotlight onto disabled people as agents of change, focusing on the ways in which individuals and groups of disabled people can influence statutory provision. We will host a project website and use social media, to publicise our regular research briefings in short accessible formats, and monitor the impact of the work throughout the study.
Organisations
- University of Bristol (Lead Research Organisation)
- OpenUp Music (Collaboration)
- Southmead Hospital (Collaboration)
- Mental Health Foundation (Collaboration)
- Avon and Wiltshire Mental Health Partnership NHS Trust (Collaboration)
- Uplands Care Service (Collaboration)
- Wellcome Trust (Collaboration)
- ALZHEIMER'S SOCIETY (Collaboration)
- Dementia Action Alliance (Collaboration)
- Centre for Deaf and Hard of Hearing People (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
Publications
Antaki C
(2019)
When the larger objective matters more: support workers' epistemic and deontic authority over adult service-users.
in Sociology of health & illness
Dowling S
(2019)
Managing relational autonomy in interactions: People with intellectual disabilities.
in Journal of applied research in intellectual disabilities : JARID
Gall, M.
(2018)
Researching Open Orchestras in 2 special schools
| Title | A Good Match |
| Description | This is the video produced by the Misfits Theatre Company, launched on May 25th 2018. It is based on their own interpretation of data from the research concerning interactions between personal assistants and people with learning disabilities. It is presented in the form of a football commentary, and has been greatly enjoyed by audiences. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2018 |
| Impact | The video has been shown both to local practitioner audiences, and in academic conferences. It was discussed with Baroness Sheila Hollins on 29th May 2018, to influence her thinking on the Mental Capacity Act and the type of support practices which assist people with learning disabilities to make life decisions. |
| URL | https://www.youtube.com/watch?v=cZqYbVU7hFc |
| Title | Dementia Training video 2: Quizzes in Dementia Groups |
| Description | This is the second of a set of training videos about interacting with people with dementia, produced with people with dementia who worked with our research. We decided to produce one specifically on the communication involved during quizzes, since this was a very common group activity observed in dementia groups. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2018 |
| Impact | The training videos were produced with a group of practitioners and professionals, who guided and advised on what would be most useful for their own training. They were all people who provide and train staff and volunteers who communicate with people with dementia. |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/about-the-project/dementiatalk/dementia-communicat... |
| Title | Dementia Training video 3: Talking in the Here and Now |
| Description | This is the third of the set of training videos produced from our research, with the Forget-me-Not research group members. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2018 |
| Impact | The video is designed with practitioners and professionals, who wanted material that they could use in communication training, and has already been successful in workshops with practitioners. |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/about-the-project/dementiatalk/dementia-communicat... |
| Title | Dementia Training video: Introduction |
| Description | This video is an introduction to the set of training videos produced from our research findings. It includes key messages in the direct words of the people with dementia who worked with us in the research. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2018 |
| Impact | The training videos were produced with advice and guidance from a group of practitioners, who are all keen to use the material in their own training of practitioners working with people with dementia. |
| URL | https://www.youtube.com/watch?v=DEFV7JMSYww |
| Title | Dr Stanley Blue Discussing Social Practice Theory |
| Description | A workshop was held in April 2014 which was facilitated by Dr Val Williams, Dr Sue Porter and Dr Stanley Blue. Dr Blue discussed Social Practice Theory with Dr Williams and it was recorded and uploaded to the University of Bristol School for Policy Studies youtube channel and the research project's webpage. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | This video stimulated discussion at the workshops and was then made public. This has been shared on the Project's webpages and shared via the project's various social media accounts. This video is aimed at increased the general public's understanding of Social Practice Theory, how things change and how this can be used in this project to get things changed with and for disabled people. |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/workshops/socialpractice/ |
| Title | Forget-me-Nots video |
| Description | The Forget-me-Nots dementia group worked with members of the project team to produce a short video, to show to potential participants in memory cafes and elsewhere. This was completed in June 2016. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been used since to recruit participants, and has been particularly useful in promoting conversation amongst other people with dementia and their supporters. |
| Title | Getting Good Support video |
| Description | The 'Misfits' Theatre Company worked with the project team to produce a video for recruiting new participants to Strand 1 of our project, 'Getting Good Support'. This was completed in April 2016. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | The video has been used to recruit new participants, particularly through the Listening Partnership group of young disabled people at the West of England Centre for Inclusive Living. |
| Title | Getting Things changed: Thinking Futures Festival |
| Description | Students who identify as disabled are co-researchers in Strand 2 of our project. These researchers successfully bid for and ran a 'Thinking Futures' festival event in Bristol as part of the University of Bristol's Festival of Social Sciences, on November 7th 2016 ( see http://www.bristol.ac.uk/fssl/festival/programme/2016-/). The event consisted of a Forum Theatre staging of two scenarios from their auto-ethnographic research, where actors worked with the students to engage the audience with the ideas and issues they were presenting. |
| Type Of Art | Performance (Music, Dance, Drama, etc) |
| Year Produced | 2016 |
| Impact | Twenty-four participants signed up and attended the event, including University of Bristol staff, members of the public and several individuals from other universities. This audience took part in the Forum Theatre presentation as 'spectactors', and several also contributed individual interviews for the research. The overall impact was to support the idea of training to be carried out by disabled students, to improve practices in universities. This matter has since been discussed by the student group with the Pro-Vice Chancellor of the University of Bristol, and will be instituted within a planned future online training offer to University staff. Other points the students pursued relate to accessible signage within the University, and engagement with the new Equality, Diversity and Inclusion Steering Committee. https://storify.com/laurinegrmo/getting-things-changed-tackling-disabling-practice |
| URL | http://www.bristol.ac.uk/fssl/festival/programme/2016-/ |
| Title | Music Making for All: working well in Open Orchestras |
| Description | This is a short accessible booklet based on the anonymised stories of five young people with complex needs who took part in the research about the 'Open Orchestras' approach. In each case, their own point of view is put across, so that teachers, supporters and families can become inspired to try out the new approach to music making with young people they know. This booklet is intended to help staff who are working in Open Orchestras sessions, but it could also be inspiring for students, and their families and friends. The young people who took part in these sessions did not use words to communicate ideas but, from our observations, we have reconstructed some of the things that were important to them. Looking at the musical world from their point of view will help us all to do things differently |
| Type Of Art | Performance (Music, Dance, Drama, etc) |
| Year Produced | 2018 |
| Impact | The Open Orchestras approach was filmed in two schools during the course of our research programme, and two of the young people with complex needs who play 'The Clarion' (a technological instrument) came to the final event of the programme on May 25th 2018. People tried out the instruments, and were able to see the new approach in action. The booklet and other products from this part of the research have been presented at the bi-annual World Conference of the International Society for Music Education in Azerbijan (July 2018), and more locally they have influenced and supported the setting up of a National Open Youth Orchestra. |
| URL | http://www.bristol.ac.uk/media-library/sites/sps/images/gettingthingschanged/Music%20Booklet_web.pdf |
| Title | Talking About the Past: first of the dementia training videos produced with Forget Me Not group |
| Description | This is the first of a series of training videos based on the research about conversations with people with dementia (see project website video link). It is co-produced with people who have dementia themselves, from the Forget Me Not group in Swindon. Several provider organisations have worked with the research team to ensure that these videos are useful for training purposes. There are three more videos currently being produced with an ESRC IAA grant. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2018 |
| Impact | Five organisations whose managers or staff attended a workshop in January 2018 said that they felt these videos were extremely useful, and that they would use them in their training. They took part in role-play exercises based on the video material. Since then, we have used the videos with ten participants at the European Social Work Research Association, and also in the workshop at the final project event on May 25th in Bristol, where 20 participants from different organisations and interest group participated. They are currently available and being used for training in a variety of dementia settings (e.g. North Somerset). |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/about-the-project/dementiatalk/dementia-communicat... |
| Title | That's Just How It's Done: a zine exploring disabled students' experiences at university |
| Description | This was a 'zine' created and self-published by the group of disabled students who were co-researchers in the strand of the research called 'Changing Academia'. They produced it during a collaborative writing weekend, and it is based on their own personal experiences at university. It has some strong messages, and some calls to action in it. |
| Type Of Art | Creative Writing |
| Year Produced | 2018 |
| Impact | The zine was launched at the final project event on May 25th 2018. The University of Bristol is currently developing its strategies for inclusion, and has been particularly active in responding to mental health issues in the university during 2018. |
| URL | http://www.bristol.ac.uk/media-library/sites/sps/images/gettingthingschanged/policy-briefings/Zine%2... |
| Title | The Audition |
| Description | This animated film was made by Beth Richards, with her co-researchers Hannah Brana-Martin and Mike Steele. It was produced to illustrate and create impact from the findings of her research about the barriers facing people with learning disabilities who want to go on TV. See the findings of that part of our project at: http://www.bristol.ac.uk/media-library/sites/sps/images/gettingthingschanged/policy-briefings/Policy%20Briefing%20-%20TV_web.pdf The film was designed and created by Beth, and included knitted characters, who unravel when facing inaccessible auditions in a TV studio. It illustrates well the destructive nature of the barriers faced by actors with learning disabilities. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | This film has been shown at various workshops and events since it was produced. For instance, it influenced the way that Aardman Animations (based in Bristol) approach their film-making and processes to include people with learning disabilities, and this is reported under the 'Influencing Policy and Practice' section. It was also picked up by 'Calling the Shots' (http://callingtheshots.co.uk/) who asked Beth to run a workshop in September 2019 with people from the creative and media industries. Subsequently, Beth contacted the group of people at Sky TV who are promoting diversity and inclusion in TV, and received an email from Amanda Wilkie-Sweeney, (Head of Production, Drama and Entertainment at Sky): "Thanks for sharing your film and leaflets. I loved your film. I have also shared this with my colleague, Tsedenia Skitch who is our diversity and inclusion champion in original programming here at Sky. Tsedenia is cc'd in so you also have her details." The film was also shared with Channel 4's '4Talent' initiative. 4Talent@channel4.co.uk |
| URL | https://www.youtube.com/watch?v=Pc4lwUq_LGU |
| Description | This research set out to understand disabling practices and mechanisms of change, bringing together social practice theory (SPT) with Disability Studies (DS), and contributing significantly to both areas (Williams et al., 2018). 1. We found that power is an important way of understanding what goes on in social life. A key issue was 'institutionalism': ways of doing things sometimes became stuck, with power differentials, where experts, professionals or managers made the rules. (Final Report, p 45). Our final report gives more information about how social practice theories can be drawn on to help understand the shaping of practices via material resources, meanings and competences, and particularly how interconnected practices can become constraining for disabled people. For example we found that transport, parking, physical access and online arrangements have to be coordinated for inclusion, either as a disabled employee or as a patient in a hospital. The contribution to Disability Studies lies in unlocking this understanding of social barriers, giving a concrete shape to concepts such as oppression, culture and discrimination. Products such as our 'Social Practices booklet' will ensure that these theories can be used by disabled people as tools for change. 2. Human rights approaches (Equality Act 2010) require public services in the UK to make 'reasonable adjustments' to existing practices. However, this research study found that public institutions including NHS hospitals, were failing to implement and record reasonable adjustments. Even when adjustments were made, they often left individual disabled people feeling like a 'misfit', and some of those adjustments, including those funded by government schemes such as Access to Work, generated significant extra labour for the individual disabled person. The 245 disabled people who took part in this research were facing many different kinds of 'exclusion' in everyday life, and in Health and Social Care services. 3. Methodologically, a key contribution was to demonstrate how Conversation Analysis (CA) can connect with Social Practice Theories. Both look at how social life is done, with CA focusing on the fine detail of person-person interactions, building on a body of knowledge about the routine machinery of talk. SPT offers a wider view, but each complements the other, revealing how language is at the heart of social life. We found that micro-analysis of interaction can create change, but that tended to be limited to the practitioners who took part in training. We experimented with producing video training materials based on our research with people with dementia and, separately, with actors with learning disabilities. Changing the shape of practices (for instance music-making in the Open Orchestras approach) can be most influential when the perspectives of disabled people are central. 4. Co-production with disabled people was vital to this project. We showed that change happened more effectively when co-production was involved, but that this was not always sufficient for change to occur. For instance, Disability Rights UK found that shifts to existing professional practices can create conditions for genuine co-commissioning of social care. We also revealed how successful support services for disabled parents sprang from deep changes to the way professionals trusted the competence of their clients, created an open and honest dialogue and maintained a reliable, long-lasting service. 5. New research pathways include a) building on the inclusion of people with dementia as researchers, to explore the post-diagnosis stage; b) accessibility for people with learning disabilities in the media; c) universities developing inclusion by working with research groups of disabled students and staff. |
| Exploitation Route | SENIOR POLICY MAKERS, STRATEGIC MANAGERS, COMMISSIONERS 1. Reasonable adjustments under the Equality Act 2010 must be put in place, and all public institutions including hospitals must have systems, preferably led by disabled people, to monitor and report on how they are adhering to the Equality Act. 2. This minimum legal requirement is however not enough to create a more inclusive society. For that to happen, policy makers in a range of health, social care and higher education settings need to consider how practices are shaped in their institutions, and to carry out a creative re-visioning of practices. 3. The Social Model of Disability should still be the basis of training and disability awareness. That does not mean it can be simply 'put into place', but that it provides a starting point for re-focusing the argument towards disabling practices. 4. Senior managers, local council officials or government should consider how disability is represented in their own ranks, and ensure that promotion and recruitment practices are in place which will attract and value senior disabled staff. 5. All strategic managers in these sectors need to put in place a culture of openness about disability, which would include monitoring of physical access as well as signage, images and identification of disability. 6. Above all, disability needs to be valued as part of increasing diversity within organisations, and to be seen as a means to promote better ways of doing things. PRACTITIONERS IN HEALTH AND SOCIAL CARE, PERSONAL ASSISTANTS AND SUPPORT SERVICES 1. All those who come into direct contact with disabled people need to interact on a basis of equality and sharing, with values at the heart of their practice, where everyone really believes that disabled people can achieve their goals and are an asset to society. 2. Informal, more relaxed settings are often the key to better practices, for instance in personal support but also at universities, within hospital waiting rooms, or in dementia groups. 3. Practitioners should work with disabled people to create better ways of doing things which draw on disabled people's insights. DISABLED PEOPLE, PEOPLE WITH DEMENTIA AND WITH LEARNING DIFFICULTIES 1. Disabled people should not feel that they have to make all the headway on change for themselves. They can become stronger by joining others and forming a collective voice. 2. Identification as 'disabled' should be considered a positive. 3. Disabled people's organisations need to continue to develop awareness of rights, and to use the law, at individual and collective level, to achieve disability rights. 4. Disabled people should aim high, at university, in TV and in every sphere of life. At senior level, disabled people have more power to make changes to practices. 5. Disabled artists and performers can help society see the world in a new way and can help others to see things afresh and make changes. Our findings provide practical examples of how we need to understand practices better, in order to make changes. Social practice theories help us to focus on how things get done routinely, and to see afresh and analyse how to change practices - rather than simply focusing on behaviours. This agenda is important to build into future research, particularly in health, social care and in education. We need more research and practical examples now of how practices can be changed in sustainable ways. |
| Sectors | Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Description | 'Tackling Disabling Practices: co-production and change' was a three year research study known as 'Getting Things Changed' http://www.bristol.ac.uk/sps/gettingthingschanged/ Impact was embedded in the 'Getting Things Changed' research from the start. This was an 'action' project, co-produced with disabled people and their organisations, which had as one of its main goals the development of a 'detailed understanding of how organisations and practices can be shifted, on the terms of disabled people themselves'. In other words, the project was about impact itself. In order to develop those understandings, we worked across a canvas of several different empirical strands of research, and within those strands, we a) developed partnerships with community groups or other organisations to make changes which are beneficial to disabled people; b) we took specific actions to effect change on the terms of disabled people. We will first summarise these two approaches, referring to a few specific examples of how the research findings are being used. Subsequently, we will mention overall impact at policy level, and for disabled people's own organisations. DEVELOPING PARTNERSHIPS Partnership work has been at the heart of our strategy for impact, as NGOs and voluntary organisations have increasingly used the research in order to achieve their own specific goals for inclusion of disabled people. The research has helped them to a) understand how interactions and relationships can be improved to support disabled people; b) create new practices which include disabled people and are accessible to them. Improving supportive interactions and relationships The detailed research we carried out about interactions was based on naturally-occurring video data, and we specifically focused on how support conversations could be carried out in ways that are empowering and helpful for disabled people (specifically, people living with dementia, and separately, people with learning disabilities). The findings from the research were thus already 'illustrated' by real-life examples, and we found powerful ways of translating these into training videos, by working with partner groups. For instance, as reported under our section on partnerships, the Forget-me-Not centre in Swindon collaborated with us, and three people living with dementia worked with us on a follow-up Impact grant to produce training videos based on our research. Following a practitioner workshop in January 2018, we shaped the findings in ways that would be useful for staff training, and five training films have now been produced and are launched on May 29th 2019. We also partnered with a drama group in Bristol run by people with learning disabilities, the 'Misfits' (https://misfitstheatre.com/) , who used the research findings to create dramas about interactions with personal assistants. This group produced a film called 'A Good Match', based on findings from the research and their own analysis of the video data, and have used it since on their social media sites, and with training groups they work with at local councils. A spin-off here is that we have since secured an annual contract with the publishers Taylor & Francis, for the Misfits Theatre Company to produce an annual video article to create greater impact from articles in the international journal 'Disability & Society'. All the video articles are available on the journal website at: https://think.taylorandfranciscom/cdso-videos/ Creating new and more accessible practices Some of the partners we worked with were already innovating to create new, inclusive practices. For instance, OpenUp Music (http://openupmusic.org/) , a Bristol based organisation, is working to change the exclusionary practices of music making, so that disabled people can create and develop their own profile as musicians within high-quality ensemble music making. The project enabled OpenUp Music to reflect on the way learning happens within schools, and we produced a short booklet for supporters and teachers. The research effectively supported OpenUp Music to disseminate the approach at local level by embedding the research into music teacher training, and at international level, via talks and presentations at conferences which we have reported. In the world of TV and the Media, there is currently a wave of interest in including more disabled actors. Our research led by Beth Richards, an actor with learning disabilities herself, was unique in highlighting the needs and skills of actors with learning disabilities. In March 2019, she and her team (Mike Steel and Hannah Branna-Martin) launched a short animation film entitled 'The Audition' and also a guide to people with learning disabilities about how to get onto TV. The results of the partnerships in this part of our research are still unfolding in May 2019, but we know for instance that Aardman Animations in Bristol have taken on board the messages from the animation film. Sky TV has shared this with their diversity and inclusion champion, Beth has been invited to talk about her film at the Oska Bright Film Festival in October, and the 'Calling the Shots' film company has asked to use the film in training. UNDERSTANDING ACHIEVED THROUGH DIRECT ACTIONS Beyond the partnership approach, impact was achieved by direct action in this research. These change actions form instances for reflection and learning about how practices can become exclusive and how we can analyse and change them. Our project developed links between this type of action research, and wider theoretical understandings of social practice, co-production and change. For instance, we have reported how the research on 'Changing the Academy' was led by disabled students in the University, supported by Victoria Mason. Via a forum theatre event in the ESRC 'Thinking Futures Festival' in Bristol, the student group helped staff and visitors to reflect on practices in the University and how these create disabled students as 'misfits' in the university. They also presented their findings to the pro vice-chancellor with responsibility for diversity issues, which has assisted the university in planning for change, particularly regarding mental health issues of students at the university. The disabled staff element of this strand, led by Wendy Merchant, also created direct change within the University, by taking action for instance on proposals for disabled staff car parking arrangements, and by advising on an Equality and Diversity post which was appointed under the Elizabeth Blackwell Institute within the University. We are pleased that impact for this part of our project included collaboration with the projects undertaking new build and redesign of parts of the University Campus, and Caroline Miles successfully gained a small amount of additional funding from one of those projects, in order to ensure we could learn lessons from other universities about developing for inclusion, via universal solutions to accessibility and valuing of disabled people. A further example was reported from the 'User Driven Commissioning' strand of our research, where we facilitated the formation of a group of disabled people who worked with their local authority on the commissioning of Direct Payments support services, and gained agreement from that authority where they will co-assess the bids and have a 20% stake in the final contract award. There were also positive examples of direct change in local authorities effected by disabled people in the other areas where this strand was engaged, creating direct practical learning about how user-driven commissioning can be successful and can overcome barriers at local authority level. PUTTING POLICY INTO PRACTICE This research started from the premise that policy often fails to be put into practice. Therefore it is the implementation of policy which has been our main focus, including that which is based on the Equality Act 2010. For instance, we reported on the workshop activities on 'Reasonable Adjustments in Hospitals' led by Stuart Read, where links were made with practitioners who have innovated in their own settings to provide reasonable adjustments successfully. The practitioner products produced by this strand of our research (e.g. posters about reasonable adjustments for hospitals) have been taken up by patient and practitioner networks, who have adopted them in their training and practice. There is a direct link between this work and another project in our centre, known as the 'LeDer' programme (http://www.bristol.ac.uk/sps/leder/), a national mortality review of the deaths of people with learning disabilities led by Professor Pauline Heslop. We published a joint paper with that project, and some of the findings from this research will have greater impact alongside the findings from the mortality review. Similarly, there is a strong link between the research done about successful support for parents with learning difficulties, and the raft of activities and practice guidance led by Beth Tarleton for the 'Working Together with Parents Network'. For instance, professional practitioners are using the 'Six T's for Support' model developed in this research, via dissemination and presentations provided by Beth to the British Association of Social Work and internationally. The model is being used in training to over 400 children's social work trainees annually, and in response to the RCM consultation on maternity services. Our final set of outputs included a set of Policy Bristol briefings, as well as strand-specific outputs aimed at practitioners. All the reports, accessible versions and videos were made available on our project website at: www.bristol.ac.uk/sps/gettingthingschanged/ on the day of our launch on Friday 25th May 2018. Blogs and associated press releases were coordinated, so that the products would become known to others, and we were fortunate in being able to make a link shortly after that with Baroness Sheila Hollins, for whom we wrote a briefing based on the findings about people with learning disabilities, which she will use in her Private Members' Learning Disabilities Bill, which is still awaiting its second reading in the House of Lords https://services.parliament.uk/bills/2017-19/learningdisabilitiesreviewofservices.html Since the end of the project, there has continued to be considerable interest in several parts of the research programme. For instance, Williams (PI) was invited to take part in a panel at the Westminster Forum on Disabled Students, and presented alongside a former member of the disabled students' co-research group. Subsequently, a submission was made to the Disabled Students' Inquiry, which was represented at the event. During 2019/20, the PI (supported by other members of the project team) submitted feedback to the Cabinet Office on the development of research to inform a new Disability Strategy. She was also invited, and submitted, a report of evidence from this research programme, to document the barriers faced by disabled people in several areas of their lives. SUPPORTING DISABLED PEOPLE AND THEIR ORGANISATIONS TO CREATE CHANGE Our project findings, as planned, have started to make a difference for disabled people themselves. For instance, the videos mentioned above are being used by disabled people and their organisations, as well as by practitioners. We also produced a booklet which is a lay guide to 'Social Practice Theory' (SPT) aimed primarily at disabled people and practitioners. The practical use of SPT is valuable for disabled people to understand better how practices can become 'stuck' in exclusionary cultures, and how that can be changed. The project team has supported people living with dementia to have a more active influence on their services and lives, by collaborating with the 'Dementia Enquirers' network, and helping them to establish principles for their own ethics committee. Finally our project has started to have an influence on how government think-tanks approach disability policy: a meeting held in early 2019 by the Cabinet Office resulted in this project being able to advise on co-production so that the voices of disabled people are not segregated or sidelined in such discussions. The co-production basis of this research is the clearest route to impact. |
| First Year Of Impact | 2018 |
| Sector | Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections |
| Impact Types | Cultural,Societal,Policy & public services |
| Description | 'I can make it' campaign |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Strand 5 of our project is led by Disability Rights UK, who are working with various councils and user-led organisations to facilitate change via 'user driven commissioning'. Anna Denham from that strand has linked with Disability Rights UK's 'I Can Make It' campaign, which is recruiting young disabled people as champions for change. She has worked directly with various local authorities and councils to effect change in their processes based on the findings from the research. These include Darlington Council and Hertfordshire County Council. |
| URL | https://www.disabilityrightsuk.org/how-we-can-help/i-can-make-it |
| Description | Aardman Animations |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Beth Richards from this project led a strand about people with learning disabilities on TV. Subsequently, she received a small IAA grant, and produced a short animated film about the experience of going into TV or other performance. It is called 'The Audition' and is produced with knitted characters who unravel when facing inaccessible processes. She showed this to Aardman Animations at a media event, and subsequently received the following email: "Thank you for sharing your film with us at Aardman. I really enjoyed watching it. The way you used knitted characters to show how the audition process has made you feel is a great idea. Also more importantly, it is a great reminder to us as an animation studio about how we should consider individual needs." Understanding how inaccessible media processes can pose barriers to people with learning disabilities will help shape the way things get changed in the media world, and Aardman are one of the leaders in promoting new public attitudes. |
| URL | https://www.aardman.com/ |
| Description | Accessibly |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Citation in other policy documents |
| Impact | 'Accessibly' contacted the project to ask for a copy of the journal article (Williams et al., 2018) in Disability & Society, and subsequently published a link to our project on their website, which influences accessibility in several countries. |
| URL | https://www.instagram.com/p/BtDUxNIAmCw/ |
| Description | Alzheimers Society New Zealand |
| Geographic Reach | Australia |
| Policy Influence Type | Citation in other policy documents |
| Impact | The New Zealand Alzheimers Society asked for a stand-alone version of the Dementia report from our research, contacting on 31st July 2018 to note the usefulness of the videos and our other products for their Services and Standards report. They wrote a piece in their 'Thinking Dementia' publication to highlight the research outputs. |
| URL | http://www.alzheimers.org.nz/getattachment/News-Info/Newsletters/Thinking-Dementia-Issue-7-April-201... |
| Description | Arts Council England ACE |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | In September 2019, Dr Marina Gall was interviewed by Tanya Gold - a journalist for the Guardian newspaper - for a piece on Open Orchestras which featured as a lead article on the home page of the Arts Council England (ACE) website from December 2019 - March 2020. (It has now been moved to https://www.artscouncil.org.uk/long-read/open-orchestras ). Open Orchestras' marketing and Communication Manager stated that my interview was crucial to Tanya's understanding of the work, since she is not a music specialist. She also stated that the GTC information/ the article is also important since it is supporting ACE's attempts to secure long-term funding for the arts. |
| URL | https://www.artscouncil.org.uk/long-read/open-orchestras |
| Description | British Association of Social Work capabilities conference |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Legal, health visitor and speech and language therapists met at Birmingham City University on 26th February 2019, where Beth Tarleton from our project presented a model for parenting support ('The Six T's') developed in this research project. Approximately 200 people attended, and the model was found to be very useful for their practice in supporting parents with learning difficulties. |
| URL | https://www.basw.co.uk/about-basw |
| Description | CLF summer conference 2019 |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Beth Richards, who led the strand of work in our project about 'People with Learning Disabilities on TV' was asked to present a keynote speech at the CLF conference for schools, teachers and students in July 2019. |
| URL | https://www.clfinstitute.net/professional-development/teaching-school-conferences/ |
| Description | Cabinet Office workshop |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Professor Val Williams was invited to a Cabinet Office workshop on 'Addressing the Barriers Faced by Disabled People' on January 18th 2019. There was considerable disquiet in the Disabled People's movement about this, as DPOs and disabled people's representatives were not invited. Val chose to support disabled people in their campaign for recognition, and was afterwards consulted by the Cabinet Office about the best way to proceed with further consultations. She sent both summary points from the research overall, which were incorporated into the Cabinet Office plans, and also summaries of the co-production aspects of our research. Following this, Professor Val Williams was asked to a meeting in October 2019, and subsequently gave advice and feedback on government strategies. There was a further request for evidence in February 2020, and this project will submit evidence about the barriers faced by disabled people in the UK today. |
| Description | Dementia Enquirers |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Dementia Enquirers is a DEEP project (UK Network of Dementia Voices). It is aiming to develop a new approach to research, or 'enquiry', that is led and controlled by people with dementia. It is already supporting around 20 DEEP groups in conducting their own research projects. It will explore with people with dementia, the lessons that emerge from their work. This learning will be widely shared. Because of the close links with this organisation throughout our research, the PI (Williams) was asked to take part in an advisory meeting to develop ethical standards for dementia-led research. This resulted in the production of the 'DEEP Gold Standard for Ethical Research' publication, which sets out in clear, accessible terms how to approach ethics. It is planned that this document and approach will influence national ethics committees, in assessing dementia related social care research. |
| URL | https://www.dementiavoices.org.uk/wp-content/uploads/2020/07/The-DEEP-Ethics-Gold-Standards-for-Deme... |
| Description | Dementia Quality of Care: Co-researching communication |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| URL | https://openforumevents.co.uk/events/2018/dementia-quality-of-care-personal-accessible-original/ |
| Description | Dementia Training films promotion |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | The first of our video set 'Talking About the Past' was produced and launched at our final project event on May 25th 2018. The group of people with dementia who are still active in this project (Forget Me Not group) have taken flyers to AWP via their user group, and also to Swindon Social Services. It is important that they are taking an active role in promoting the videos, as well as producing them. In 2018/19, they produced the full set of videos which is available on the project website. |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/about-the-project/dementiatalk/dementia-communicat... |
| Description | Dementia training workshop |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | A workshop was held on 23rd January in which Professor Val Williams and Dr. Joe Webb from Strand 1 of our project worked with three people with dementia diagnoses, from a group called 'The Forget-me-Nots'. The group members presented their work to an audience of practitioners and professionals, who had signed up to assist our research with developing meaningful training products to use in their services. The organisations represented included the Bristol Dementia Action Alliance, the Alzheimers Society, NHS, an NGO called 'Growing Support' and Uplands Care Services in Stroud. The event was extremely well evaluated, with all evaluation forms recording a 'strongly agree' or 'agree' on all the questions, and commenting that they intended to use the videos we produce in their own training. |
| Description | Developing inclusive communication alongside people with learning disabilities |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to new or Improved professional practice |
| Description | DfE Music Policy |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | On 4 September 2019, Dr Marina Gall took part in the inclusive music SEND stakeholder meeting with the DfE Music Policy Team to inform work towards the 2020 new National Plan and consequent update of National Curriculum for Music, in London. Findings from the GTC research informed this. (She not only participated but was also asked to help create the participant list - which included Open Up Music staff). |
| Description | Disabled Students' Inquiry (Higher Education Commission) |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.policyconnect.org.uk/hec/events/call-evidence-disabled-students-inquiry |
| Description | Educational Psychology |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Equality and Diversity Officer, Bristol Community Health |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Fiona Spence, Equality and Diversity Officer at Bristol Community Health and her colleague Julie Collison, attended our final project event on May 25th 2018, and afterwards contacted the PI to express thanks and to follow up. "I just wanted to let you and your team of colleagues know how much I enjoyed the Getting It Right Day last week at the SS Great Britain. They said: 'It was a fabulous day, full of listening, networking and celebrating the talent and experience of so many folk! Thank you .' In my capacity now as Equality lead for Bristol Community Health, I am working with some amazing teams, who provide Health services to many people trying to access health care who also have a learning disability. We are moving forward with the people we support and their support staff to look at developing new models of more empowering support, including peer mentoring about health, and community navigators who may be able to assit people with LD to get the right level and types of support. We are planning to meet up to discuss how we could evaluate the changes ahead, and document person-centred support in the organisation. |
| URL | https://briscomhealth.org.uk/ |
| Description | Getting more powerful |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Elizabeth Peel, pro vice-chancellor at Loughborough University, put out a message to researchers in the communication field, asking for advice to help disabled people become more 'powerful', so that those in positions of authority would listen to them. Williams (PI) sent a full response, with links to reports from this research, and started a conversation with Elizabeth Peel about the implications. A particular relevance is with the research we carried out with Disability Rights UK about co-commissioning: http://www.bristol.ac.uk/media-library/sites/sps/images/gettingthingschanged/policy-briefings/Policy%20Briefing%20-%20Commissioning_web.pdf |
| Description | Government Disability Strategy |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | The impact of this participation is reflected to some extent in the Government Disability Strategy, and more specifically in its approach to co-production. While still needing improvement, there has been progress in consulting with and involving disabled people's organisations. The 'Getting Things Changed' project is listed in the Acknowledgements in the national disability strategy, see the link below. |
| URL | https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1006... |
| Description | Hamilton House |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Hamilton House is a Bristol community hub, and they produced a blog and a link to the animation film created by Beth Richards called 'The Audition' which illustrates how people with learning disabilities face barriers when auditioning for roles on TV or elsewhere. The blog illustrates how products from this part of the research are being disseminated and are creating an influence on those working in community or media areas. |
| URL | https://www.hamilton-house.org/feature/2019/3/22/theaudition |
| Description | Healthwatch Bristol |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Sarah Ambe of Healthwatch Bristol reported in June 2018 that she had distributed the resources about reasonable adjustments in hospitals produced by the research, to their contacts. They included information about the research in their Annual Report. |
| URL | https://healthwatchbristol.co.uk/wp-content/uploads/2018/03/Healthwatch-Bristol-Annual-Report-2017-1... |
| Description | How Educational Systems Can Respond to Diversity and Inclusion |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | How Educational Systems Can Respond to Diversity and Inclusion in Spain |
| Geographic Reach | Europe |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Inclusive Universities |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Impact | Caroline Miles from our research project worked with the manager of the new development at the University of Bristol, known as Campus Heart. Caroline carried out a short research project to find out the views and experiences of disabled people in other universities where new developments had occurred. She fed these into the University of Bristol via her report to the planning committee in October 2018. Following this, she has been appointed to a part-time position as inclusion officer for the new University development at Temple Quay. |
| URL | http://www.bristol.ac.uk/media-library/sites/university/documents/governance/VC%20Court%202018.pdf |
| Description | Learning Disability Bill: a briefing on the Learning Disability findings from this project was given (at her request) to Baroness Sheila Hollins 6.07.18 |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Learning Disability Core Group |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Central Bedfordshire Council asked project team members ('User Driven Commissioning' led by Disability Rights UK) to take part in their Learning Disability core group, to feed in the results of the research we have carried out about co-production. |
| Description | Learning Disability week MENCAP |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | MENCAP staff attended the final event of our research, on May 25th 2018. The research influenced their campaign 'Treat Me Well' during Learning Disability Awareness week, which is about hospital and health care treatment for people with learning disabilities. (See Strand 3 of our research, 'Reasonable Adjustments in Hospitals'). We also linked up our work on decision making and good support. (see article in 'Learning Disability Today': https://www.learningdisabilitytoday.co.uk/heres-how-personal-assistants-can-support-decision-making) |
| URL | https://www.mencap.org.uk/get-involved/campaign-mencap/current-campaigns/treat-me-well |
| Description | Local Government Association |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | Tina Holland from the Local Government Association included a paragraph on the "Disabled People as Commissioners" strand (with a link to the policy briefing and the full report), in the SOPO e-newsletter, which went out on the 29th June. |
| URL | https://www.local.gov.uk/national-procurement-strategy/home/nagsopo-newsletter |
| Description | Microaggressions in universities |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | The University of Bristol's Union has a publication called 'Epigram', and they ran a campaign about 'Microaggressions' in December 2018. Val Williams was invited to be part of the panel, and Katrina Plumb (a member of the disabled students' group in this project) also came to present her views and experiences. It was a well attended meeting, with some 50 students, and a heated discussion about problems of microaggression in university ensued. Plans were made for changes within the university. |
| URL | https://epigram.org.uk/2018/12/07/valuing-disabled-people-in-university-practices/ |
| Description | ONS COVID Impact |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | The Office for National Statistics conducted a search for literature and/or contacts relating to particular disability-related research, in order to improve ways of identifying risks from COVID. Williams (PI) responded, with various points relating to this research, and the impact has already been seen in supporting the increased attention to vaccination of disabled people, and in particular people with learning disabilities. |
| URL | https://www.ons.gov.uk/ |
| Description | OpenUp Music annual report |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | The research undertaken by Dr. Marina Gall as part of this programme was cited in the OpenUp Music annual report for 2019/20. It highlights the practical ways in which new forms of technology can and are being used in schools, to enable young disabled people to develop their skills as musicians. |
| Description | POST briefing |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Based on the 'Getting Things Changed' project, advice was followed relating to: a) co-production; b) terminology; c) use of social practice theory. For instance, the points about lack of coordination between different university departments, as well as the emphasis on valuing disabled students and staff, were added because of the evidence of the 'Getting Things Changed' project. Two recent publications in the project have covered the issues raised by disabled academics (Merchant et al., 2019) and disabled students in HE (Williams et al., 2021). Both these publications were referenced several times in the POST research briefing. |
| URL | https://post.parliament.uk/research-briefings/post-pn-0689/ |
| Description | POST briefing |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Based on the 'Getting Things Changed' project, advice was followed relating to: a) co-production; b) terminology; c) use of social practice theory. For instance, the points about lack of coordination between different university departments, as well as the emphasis on valuing disabled students and staff, were added because of the evidence of the 'Getting Things Changed' project. Two recent publications in the project have covered the issues raised by disabled academics (Merchant et al., 2019) and disabled students in HE (Williams et al., 2021). Both these publications were referenced several times in the POST research briefing. |
| URL | https://post.parliament.uk/research-briefings/post-pn-0689/ |
| Description | People with learning disabilities on TV: evidence to All Parliamentary Group for Disability |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.disabilityrightsuk.org/policy-campaigns/briefings-reports-responses |
| Description | People's Voice Project |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | There is already an impact in the way this project is being set up, jointly with people with learning disabilities. The longer term impact is yet to come, when the eventual organisation run by people with learning disabilities comes into being. |
| Description | Presentations to Equality and Diversity strategy group at University of Bristol |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Strand 2 of our research is about disabling practices within the Higher Education sector, and specifically focuses on our own university and our practices. In that context, we have recruited and worked with a group of disabled students, and also have disabled staff within our team and elsewhere in the university. We have started to influence policy on diversity by presenting findings to the Equality and Diversity strategy group chaired by the pro-vice chancellor (Merchant and D'Evelyn) and the PI Williams has also presented and discussed the sustainability of our recommendations with the pro vice-chancellor (February 15th 2018). |
| Description | Reasonable Adjustments Workshops |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | The research team conducting research about reasonable adjustments in hospitals ran four reasonable adjustments 'change' workshops for disabled people and health professionals and representatives: two in March/April 2017 in Bristol and Leeds respectively, and again in October 2017. The focus of these four workshops was to learn about and share examples of reasonably adjusted care, so that professionals could make and embed changes within their own services. In all four workshops health professionals were asked to bring and share examples of how they provided reasonably adjusted care to disabled people within their own service. In the first two workshops, this sharing was group-based and informal. In the second set of workshops, we built on what we had learned from the first two and included a greater focus on sharing of positive examples and strategies. What has happened from the workshops: All workshops: • From the first workshops in March/April 2017, we invited individual delegates who shared particularly exciting examples of reasonable adjustments to present these again as guest speakers at our October 2017 workshops. Contacted individuals who were happy to present their examples did so either as a keynote presentation, or as part of a 'marketplace' of examples, where chosen presenters shared their examples at an individual table, and delegates were able to attend tables of their choice. • We also worked with healthcare staff from three hospital trusts to write a clinical paper about their reasonable adjustment examples they discussed during the workshops. This paper was accepted for publication in June 2018 (see Publications: Turner, Read et al (2018) Reasonable adjustments for disabled people by healthcare services. Nursing Standard). • Healthwatch Bristol/The Care Forum provided a presentation about their work and how reasonable adjustments are being embedded within the local area. From our workshop, Stuart Read was asked to attend their own Healthwatch Bristol/The Care Forum Annual Conference in March 2018, as an invited speaker. Leeds workshops: • One of our speakers from the Leeds workshops also organised a learning disability conference entitled 'What makes the difference? Improving care and treatment for adults with a learning disability', based at The Mid Yorkshire Hospitals NHS Trust, Wakefield. The research team were asked to present a keynote presentation based on our work. |
| URL | https://www.thecareforum.org/networking/event/healthwatch-bristol-conference-6-march-2018/ |
| Description | Reasonable Adjustments: North East and Cumbria |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Macmillan project Manager, Julie Tucker, reported in June 2018 that she felt the resources on Reasonable Adjustments in hospitals produced by the research team were excellent. She shared them with the acute liaison nurses in North East and Cumbria. |
| Description | Reasonable adjustments: Patient council action |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Sue Kelley, Patients Council June 2018 shared the posters about Reasonable Adjustments produced by this research, at an open day at Derriford Hospital, and with the Equality Group Meeting with a view to placing them on wards and out-patient services. |
| Description | Responsible tourism in Barcelona |
| Geographic Reach | Europe |
| Policy Influence Type | Citation in other policy documents |
| Impact | The Academic Chair of Responsible Tourism University Ramon Llull from Barcelona contacted the project, to ask about our outputs and website. She subsequently included our publication in her research about tourism and disability in Barcelona. |
| Description | SCIE Involve Report on participation of public in social care research |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Description | Successful co-production: King's Fund project |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Temple Quarter site at University of Bristol |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Impact | Val Williams and Caroline Miles from this research team were invited to join the project board to advise on accessibility and inclusion in the new development at the University of Bristol, which is based at Temple Meads Station (Temple Quarter). They advised on the best options for accessible car parking, in view of the sustainability agenda of the new development (a 'green' campus). Caroline is continuing to sit on this board, and offer advice as a disabled member of staff at the University, and has been asked to run a short project relating to 'case studies' of disabled people at the university. |
| URL | http://www.bristol.ac.uk/news/2016/november/temple-quarter-campus.html |
| Description | USA Newsela |
| Geographic Reach | North America |
| Policy Influence Type | Citation in other policy documents |
| Impact | Newsela is a US based media platform which produces content for US school students, in order to promote debate and discussion of societal matters. They approached PI (Williams) to ask for consent to adapt the content of a blog produced in this project (https://theconversation.com/how-to-make-people-with-learning-disabilities-feel-more-included-in-society-98493), which would be made accessible to a range of reading ages and abilities. This was agreed in February 2020. Newsela reaches over 17,000 readers in the USA, and so this is a huge impact of the project in terms of opening up debates about equality and social justice. |
| URL | https://www.fastcompany.com/company/newsela |
| Description | We are the People |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://wellcome.org/grant-funding/people-and-projects/grants-awarded/setting-emancipatory-agenda-di... |
| Description | Creating Inclusive Universities |
| Amount | £18,309 (GBP) |
| Organisation | University of Bristol |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 06/2018 |
| End | 09/2018 |
| Description | ESRC Impact Acceleration Account: Forget Me Not Dementia Training |
| Amount | £19,163 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 09/2018 |
| Description | Impact Acceleration Account: People with Learning Disabilities on TV |
| Amount | £19,998 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 03/2019 |
| Title | Ethics in Dementia Research |
| Description | Innovations in Dementia (http://www.innovationsindementia.org.uk/news/) are currently in receipt of a 700K grant from the Big Lottery, for projects run BY people with lived experience of dementia, and as part of that initiative they held a one-day workshop to explore ways of establishing a meaningful ethics process which would be led by people with dementia. PI (Williams) was invited to participate in the workshop on 12th February 2020, and following that remains in touch to support the initiative. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2020 |
| Provided To Others? | Yes |
| Impact | The leadership and involvement of people with lived experience of dementia is a new area, and extending this to their control of ethics processes is an exciting new venture. People with dementia can shed a new light on what ethical processes entail, and how they are managed. That has an impact not just for the people themselves, but also for the quality of their research and for ethics committees more generally to learn from. |
| URL | http://www.innovationsindementia.org.uk/news/ |
| Title | Inclusive research with people with dementia |
| Description | The emancipatory research paradigm led to versions of participatory research which have been used to involve and include various groups of disabled people, as active co-researchers rather than as participants. This has included people with learning disabilities, as well as those with autism and people who have used mental health services. In our project we have developed these methods to include people with dementia diagnoses as active researchers. A group of three people from a dementia 'empowerment' project (the Forget-me-Not group) formed a research group, and have worked with Professor Val Williams and Dr. Joe Webb. We have learnt with them how to support this type of research and create meaningful inclusion. The process of carrying out 'inclusive research' with this group has been published in the journal Qualitative Research (DOI below), and has led to invitations to take part in the Dementia Empowerment Network ethics initiative in February 2020. Dr. Joe Webb has also continued working, with colleagues, to include people with dementia in research and particularly that which is initiated by them. A seedcorn project about dementia diagnosis was carried out in Bristol during 2019, which was concluded and published. Since then, the Forget-me-Not group has secured funding from the Dementia Empowerment Network to carry out its own research about the impact of diagnosis and support post-diagnosis. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | The inclusive research carried out with the Forget-me-Not group has led to the creation of practical tools for change, in the shape of training videos based on our research. This approach has been piloted with practitioner organisations, and we had an ESRC IAA grant to complete the project. The paper written about this new way of carrying out research was published in the journal 'Qualitative Research' (see Publications section). The report which we reference below represents the start of our research journey, when the Forget-me-Not group presented their work at a co-production day we held in Bristol, along with people from other parts of our project. Since then, further research led by people living with dementia has blossomed, via the 'Dementia Enquirers Pioneers', https://dementiaenquirers.org.uk/pioneers-and-advisors/dementia-enquirers-pioneers/ and the Forget-me-Not group has linked with them to carry out a new project about dementia post-diagnosis support. |
| URL | http://www.bristol.ac.uk/media-library/sites/sps/images/gettingthingschanged/Co-production%20Day%20R... |
| Title | Playing with Words |
| Description | An organisation of disabled actors (known as 'The Misfits') have worked with Dr. Sandra Dowling to present and explore their own insights in relation to videos we have filmed with people with learning disabilities and their personal assistants. This method draws on creative arts methods in social research, but extends them by developing creative approaches, in which people with learning disabilities can analyse and respond to social interactions. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | No |
| Impact | A video called 'A Good Match' was made by the Misfits drama group and Redweather Productions (http://www.redweather.co.uk/_ , with Dr. Dowling, and was used to extend the awareness and skills of other people with learning disabilities who might have personal assistants in their lives. The method itself will be written up for publication during 2018. |
| URL | https://www.youtube.com/watch?v=cZqYbVU7hFc |
| Title | Using Conversation Analysis with people with intellectual disabilities |
| Description | Conversation Analysis (CA) (Sidnell and Stivers, 2014) is a highly specialised field, but addresses an omni-relevant issue of how human interactions work. CA scholars study the fine detail of talk, including embodied interaction, in order to discover patterns and strategies used in particular circumstances. This can be a practical tool, as others have also shown (Antaki, 2010), and the current research project has applied CA in the field of Intellectual Disability. The novel innovation attributable to this project is to discover a new way of engaging people with intellectual disabilities (learning disability) directly with CA data, via drama. Because of this, Val Williams has been invited to co-lead a workshop at the International IASSIDD congress (International Association for the Scientific Study of Intellectual and Developmental Disability) at Glasgow in August 2019, with Dr. Deborah Chinn from Kings College, London. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | This method is mentioned in the JARID publication, 2019 (Williams et al.), but we plan to write further about the method, in order to make more explicit how we carried out this co-produced research with disabled actors. |
| Description | Centre for Deaf and Hard of Hearing People |
| Organisation | Centre for Deaf and Hard of Hearing People |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | We discussed ideas about future research in the area of dementia and hearing loss, and pursued the conversation afterwards by email and by a meeting at the WECIL 'Access All Areas' event in June 2018. |
| Collaborator Contribution | The Centre for the Deaf in Bristol attended our final event for the research on May 25th 2018, and suggested a promising direction for future research, linking Sign Language learning with dementia. |
| Impact | The proposed partnership could lead to future research proposals, specifically linking the user-led research we are carrying out with people with dementia, with Deaf Studies. The research proposal would be multi-disciplinary, involving Deaf Studies, disability studies, linguistics. |
| Start Year | 2018 |
| Description | Conversation Analysis and Learning Disability |
| Organisation | King's College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Deborah Chinn is bringing together a group of academics who are interested in Learning Disability and Conversation Analysis, to conduct a review of work done in that field and plan for the future. Following joint discussions in July 2018, our research will be an important part of the review. |
| Collaborator Contribution | This review brings our work on 'micro' interactions with people with learning disabilities further into the academic arena, validating and promoting some of the approaches we have taken in involving people with learning disabilities in the research. |
| Impact | Multi-disciplinary collaboration: Health sciences, psychology, sociology and disability studies. |
| Start Year | 2018 |
| Description | Dementia co-production |
| Organisation | Mental Health Foundation |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | I invited a representative from the Mental Health Foundation to our advisory group, who is able to collaborate with us on moving forward the agenda for involving people with dementia as central partners in the research process. |
| Collaborator Contribution | The representative was able to link the project with a previous project by the Mental Health Foundation (DEEP | Dementia Engagement & Empowerment Project), in which a network of organisations of people with dementia have taken active roles in development of services and other projects. We have thus been able to link up with this network to recruit people who may wish to have an active role in co-producing the research about dementia interactions. This was important and innovative for our research. |
| Impact | Via the DEEP network, the project was able to make contact with a group of people with dementia who have helped us with the project. Three of that group took on roles as co-researchers in the project, produced a recruitment video, helped to analyse data and to create impact from the research via a set if training DVDs which they have produced. |
| Start Year | 2015 |
| Description | Equality and Diversity |
| Organisation | Wellcome Trust |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The Elizabeth Blackwell Institute (EBI) at the University of Bristol receives funding from the Wellcome Trust; in 2017, they appointed an Equality and Diversity officer, to promote equality within the University. The project team worked with the EBI to develop a job description and to discuss the possibilities for joint working with the project, subsequently meeting with the new post holder. |
| Collaborator Contribution | The Elizabeth Blackwell Institute, with funding from the Wellcome Trust, appointed an equality and diversity officer. The post-holder met with our project, 'Changing the Academy'. |
| Impact | None yet. |
| Start Year | 2017 |
| Description | Equality and Diversity |
| Organisation | Wellcome Trust |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The Elizabeth Blackwell Institute (EBI) at the University of Bristol receives funding from the Wellcome Trust; in 2017, they appointed an Equality and Diversity officer, to promote equality within the University. The project team worked with the EBI to develop a job description and to discuss the possibilities for joint working with the project, subsequently meeting with the new post holder. |
| Collaborator Contribution | The Elizabeth Blackwell Institute, with funding from the Wellcome Trust, appointed an equality and diversity officer. The post-holder met with our project, 'Changing the Academy'. |
| Impact | None yet. |
| Start Year | 2017 |
| Description | Forget-me-Not Dementia Training |
| Organisation | Alzheimer's Society |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The objectives are: 1. To use specific findings from our research about communication with people with dementia to enable staff to develop their own communication skills. 2. To promote and trial the active involvement of people with dementia in training staff on communication skills. 3. To complete a professional series of short self-contained videos which will be made available for training via Youtube. 4. To monitor the effectiveness of these videos via feedback forms from organisations or trainers who make use of them in their training. This part of our project is now funded via an ESRC Impact Acceleration Grant, and builds on 'Tackling Disabling Practices: co-production and change'. A workshop was held on January 23rd 2018 to bring together all the partners, who helped to shape what is needed for training of dementia provider organisations. There were also trials of the first video, which we have already produced on 'Talking about the Past' (see https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be) at the final project event workshop on Dementia Talk in May 2018, and at other conferences. |
| Collaborator Contribution | Representatives of all the above partners are contributing via attending workshops, and feeding in their views about the draft videos we have produced so far. They have also trialled the training activities.The main partner is the Forget-me-Not group itself, and three of their members who have dementia diagnoses. They are all part of the group which is organised and supported by the AWP. They have taken part in advising and co-producing the research itself, and are creating video material in which they are taking 'lead roles' to play out some of the data on screen. They have also led the workshops in which we are trialling the videos. AWP is providing: actors for the videos; a venue to meet; a training workshop venue to film part of the scenes; assistance with impact and publicity. |
| Impact | The video entitled 'Talking about the Past' was launched on 25th May 2018, and two other videos are currently being produced, together with accompanying training materials. This collaboration involves both Health and Social Care organisations. See https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be The video is also available via the project website: http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Start Year | 2016 |
| Description | Forget-me-Not Dementia Training |
| Organisation | Avon and Wiltshire Mental Health Partnership NHS Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | The objectives are: 1. To use specific findings from our research about communication with people with dementia to enable staff to develop their own communication skills. 2. To promote and trial the active involvement of people with dementia in training staff on communication skills. 3. To complete a professional series of short self-contained videos which will be made available for training via Youtube. 4. To monitor the effectiveness of these videos via feedback forms from organisations or trainers who make use of them in their training. This part of our project is now funded via an ESRC Impact Acceleration Grant, and builds on 'Tackling Disabling Practices: co-production and change'. A workshop was held on January 23rd 2018 to bring together all the partners, who helped to shape what is needed for training of dementia provider organisations. There were also trials of the first video, which we have already produced on 'Talking about the Past' (see https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be) at the final project event workshop on Dementia Talk in May 2018, and at other conferences. |
| Collaborator Contribution | Representatives of all the above partners are contributing via attending workshops, and feeding in their views about the draft videos we have produced so far. They have also trialled the training activities.The main partner is the Forget-me-Not group itself, and three of their members who have dementia diagnoses. They are all part of the group which is organised and supported by the AWP. They have taken part in advising and co-producing the research itself, and are creating video material in which they are taking 'lead roles' to play out some of the data on screen. They have also led the workshops in which we are trialling the videos. AWP is providing: actors for the videos; a venue to meet; a training workshop venue to film part of the scenes; assistance with impact and publicity. |
| Impact | The video entitled 'Talking about the Past' was launched on 25th May 2018, and two other videos are currently being produced, together with accompanying training materials. This collaboration involves both Health and Social Care organisations. See https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be The video is also available via the project website: http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Start Year | 2016 |
| Description | Forget-me-Not Dementia Training |
| Organisation | Dementia Action Alliance |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The objectives are: 1. To use specific findings from our research about communication with people with dementia to enable staff to develop their own communication skills. 2. To promote and trial the active involvement of people with dementia in training staff on communication skills. 3. To complete a professional series of short self-contained videos which will be made available for training via Youtube. 4. To monitor the effectiveness of these videos via feedback forms from organisations or trainers who make use of them in their training. This part of our project is now funded via an ESRC Impact Acceleration Grant, and builds on 'Tackling Disabling Practices: co-production and change'. A workshop was held on January 23rd 2018 to bring together all the partners, who helped to shape what is needed for training of dementia provider organisations. There were also trials of the first video, which we have already produced on 'Talking about the Past' (see https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be) at the final project event workshop on Dementia Talk in May 2018, and at other conferences. |
| Collaborator Contribution | Representatives of all the above partners are contributing via attending workshops, and feeding in their views about the draft videos we have produced so far. They have also trialled the training activities.The main partner is the Forget-me-Not group itself, and three of their members who have dementia diagnoses. They are all part of the group which is organised and supported by the AWP. They have taken part in advising and co-producing the research itself, and are creating video material in which they are taking 'lead roles' to play out some of the data on screen. They have also led the workshops in which we are trialling the videos. AWP is providing: actors for the videos; a venue to meet; a training workshop venue to film part of the scenes; assistance with impact and publicity. |
| Impact | The video entitled 'Talking about the Past' was launched on 25th May 2018, and two other videos are currently being produced, together with accompanying training materials. This collaboration involves both Health and Social Care organisations. See https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be The video is also available via the project website: http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Start Year | 2016 |
| Description | Forget-me-Not Dementia Training |
| Organisation | Southmead Hospital |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | The objectives are: 1. To use specific findings from our research about communication with people with dementia to enable staff to develop their own communication skills. 2. To promote and trial the active involvement of people with dementia in training staff on communication skills. 3. To complete a professional series of short self-contained videos which will be made available for training via Youtube. 4. To monitor the effectiveness of these videos via feedback forms from organisations or trainers who make use of them in their training. This part of our project is now funded via an ESRC Impact Acceleration Grant, and builds on 'Tackling Disabling Practices: co-production and change'. A workshop was held on January 23rd 2018 to bring together all the partners, who helped to shape what is needed for training of dementia provider organisations. There were also trials of the first video, which we have already produced on 'Talking about the Past' (see https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be) at the final project event workshop on Dementia Talk in May 2018, and at other conferences. |
| Collaborator Contribution | Representatives of all the above partners are contributing via attending workshops, and feeding in their views about the draft videos we have produced so far. They have also trialled the training activities.The main partner is the Forget-me-Not group itself, and three of their members who have dementia diagnoses. They are all part of the group which is organised and supported by the AWP. They have taken part in advising and co-producing the research itself, and are creating video material in which they are taking 'lead roles' to play out some of the data on screen. They have also led the workshops in which we are trialling the videos. AWP is providing: actors for the videos; a venue to meet; a training workshop venue to film part of the scenes; assistance with impact and publicity. |
| Impact | The video entitled 'Talking about the Past' was launched on 25th May 2018, and two other videos are currently being produced, together with accompanying training materials. This collaboration involves both Health and Social Care organisations. See https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be The video is also available via the project website: http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Start Year | 2016 |
| Description | Forget-me-Not Dementia Training |
| Organisation | Uplands Care Service |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The objectives are: 1. To use specific findings from our research about communication with people with dementia to enable staff to develop their own communication skills. 2. To promote and trial the active involvement of people with dementia in training staff on communication skills. 3. To complete a professional series of short self-contained videos which will be made available for training via Youtube. 4. To monitor the effectiveness of these videos via feedback forms from organisations or trainers who make use of them in their training. This part of our project is now funded via an ESRC Impact Acceleration Grant, and builds on 'Tackling Disabling Practices: co-production and change'. A workshop was held on January 23rd 2018 to bring together all the partners, who helped to shape what is needed for training of dementia provider organisations. There were also trials of the first video, which we have already produced on 'Talking about the Past' (see https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be) at the final project event workshop on Dementia Talk in May 2018, and at other conferences. |
| Collaborator Contribution | Representatives of all the above partners are contributing via attending workshops, and feeding in their views about the draft videos we have produced so far. They have also trialled the training activities.The main partner is the Forget-me-Not group itself, and three of their members who have dementia diagnoses. They are all part of the group which is organised and supported by the AWP. They have taken part in advising and co-producing the research itself, and are creating video material in which they are taking 'lead roles' to play out some of the data on screen. They have also led the workshops in which we are trialling the videos. AWP is providing: actors for the videos; a venue to meet; a training workshop venue to film part of the scenes; assistance with impact and publicity. |
| Impact | The video entitled 'Talking about the Past' was launched on 25th May 2018, and two other videos are currently being produced, together with accompanying training materials. This collaboration involves both Health and Social Care organisations. See https://www.youtube.com/watch?v=BLN_GMua68A&feature=youtu.be The video is also available via the project website: http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Start Year | 2016 |
| Description | OpenUp Music |
| Organisation | Openup Music |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Our research team offered OpenUp Music the opportunity to develop further its roll-out in the Bristol and South West region, via taking part in in analysis of interactions within school settings where young people are learning musical skills and being supported by learning support assistants. We made video recordings in situ, allowing school staff and students to learn from these data, and analysed the data in order to contribute to the practice and academic literature in this field. All of this will assist OpenUp Music in its core mission to make music making more accessible to young disabled people. |
| Collaborator Contribution | OpenUp Music contributed to the project the opportunity to observe and record interactions between young disabled people and support workers. By doing this, we were able to analyse the ways in which interactions can both exclude and facilitate the choices and control of young disabled people. Since the summer of 2019, Open Up Music have presented information from this research in provisional materials sent to all Music Education hubs and arts organisations in their target regions, explaining the affordances of Open Orchestras. This is also sent to all institutions that engage with 'Open Orchestras' each year. |
| Impact | Publication of chapter by Marina Gall (see Publications). A short practice booklet for teachers and assistants was made as a result of the research: http://www.bristol.ac.uk/media-library/sites/sps/images/gettingthingschanged/Music%20Booklet_web.pdf One of the schools involved in the project demonstrated the approach with young disabled musicians who attended the final project event on May 25th 2018. The OpenUp Music annual report 2019-20 makes specific reference to taking forward the results of the 'Getting Things Changed' research, to ensure that Open Orchestras are a central part of the curriculum in all special schools in England. |
| Start Year | 2017 |
| Description | 14th International Pragmatics Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on Peer Research as part of the panel 'Tell me all about it': interactional dynamics in research interviews, led by Kathryn Roulston and Val Williams. This presentation relates to the current research project, because of the link with co-production. In the presentation, Val discussed the importance of peer identity, and questions how this plays out in the interactional context of a research interview. This panel became the basis of a book contract with John Benjamin publishers, and Val Williams wrote up her presentation as a chapter which is now published: Williams, V. (2018). Chapter 4: "Like us you mean?" Sensitive Disability Questions and Peer Research Encounters. In Roulston, K. (Ed.), Interactional Studies of Qualitative Research Interviews (pp. 37-57). Amsterdam: John Benjamins Publishing Company. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://ipra.ua.ac.be/main.aspx?c=.CONFERENCE14&n=1476 |
| Description | 1st workshop on social practices |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | In the first workshop Dr Stanley Blue made a presentation to the group (which consisted of the full team of researchers on this project from University of Bristol and others) about Practice Theory and Change. This has been very influential and is key to our project, provoking debate amongst the team members. It is also influencing the theory underlying some of the research strands. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/workshops/socialpractice/ |
| Description | 2nd workshop: Power and Management |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Professor Andrew Sturdy led the second project workshop which was about power in organisations, to enable the project team to consider management theories and how they relate to change. The presentation is available on the project website. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/workshops/ |
| Description | 3rd Equal is Not Enough Conference Antwerp Feb 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The conference information can be found here http://www.equalisnotenough.org/main.aspx?c=.EQUALISNOTENOUGH&n=103883 "The conference seeks to contribute to the understanding of the causes, consequences and underlying dynamics of inequalities, as well as to the understanding of contemporary policies to combat them. In challenging differences and inequalities in contemporary societies, the conference addresses different grounds of inequality, such as gender, ethnicity, sexual preference, disability, class and age, and also focuses on the comparison and intersection that can be drawn between them." Val Williams presented a paper for discussion (Panel 12) http://www.equalisnotenough.org/main.aspx?c=.EQUALISNOTENOUGH&n=119806 |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.equalisnotenough.org/main.aspx?c=.EQUALISNOTENOUGH&n=103883 |
| Description | 3rd Workshop DRUK Co-Production Bernd Sass |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | In the 3rd workshop, Bernd Sass from Disability Rights UK made a presentation to the group of researchers about Co-production and detecting opportunities and realising them with people in all strands of this project. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/workshops/ |
| Description | 4th Workshop Ongoing Conversation About Change |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | In the 4th workshop Val Williams made a presentation about the ongoing conversation of change and the challenges for disability research and analysis of social practice. In effect, this sums up the position at the start of the empirical research. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/workshops/ |
| Description | Advisory meetings on Reasonable Adjustments in Health Care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | In 2016, Dr Stuart Read organised two meetings with a learning disability advocacy group, and two meetings with a pan-disability group. Sarah Burrows-Weeks accompanied Stuart to the learning disability advocacy group meetings, and Victoria Mason accompanied Stuart to the pan-disability group meetings. The purpose of these meetings was to: a) introduce the Health strand of the Getting Things Changed programme; b) ask for their advice and support on furthering our research ideas, materials and plans. Both of these disability groups are based in South West England. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Appearance on WECIL radio show |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Val Williams and Joe Webb were invited to take part in a community radio programme, hosted by the West of England Centre for Inclusive Living, and discussed language and disability in relation to the project. This sparked debates about the power of naming and labels, and the identity of being 'disabled' within the group of people on the radio programme. Disabled participants in the programme spoke strongly about their identities, and their lack of identification with 'negative' aspects of disability. This subsequently had some resonance with our project findings, relating to the difficulty of (self) identification for disabled patients in the NHS and for disabled employees. We took this further by reflecting on the issues raised in the debate, particularly in relation to people with learning disabilities and people with dementia, and it is reflected in our publication on 'Social Inclusion': 'Being a Disabled Patient: negotiating the social practices of hospitals in England' (Read, Williams, Heslop et al. 2018). |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://bcfmradio.com/wellbeing |
| Description | Bristol Voluntary, Community and Social Enterprise Sector Review |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Bernd Sass, our project partner from Disability Rights UK, delivered a talk on February 7th 2017 at the Bristol Voluntary, Community and Social Enterprise Sector Review, entitled 'Going out for 'peer-led communities' - some barriers and drivers'. He discussed how dialogue and mutuality could be facilitated in peer-led communities. He also gave participants a short guide to turning their ideas into successful co-produced projects. This sparked off a lot of interest, specifically amongst organisations in Bristol who are keen to make a difference, including the Bristol Disability Equality Forum and the Mental Health Network. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Co-production blog Research into Practice for Adults |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Anna Denham from Disability Rights UK wrote a blog about the project findings on 'User Driven Commissioning' which was published by Research into Practice for Adults to coincide with co-production week on July 2nd 2018. By August 27th 2018 there were 53 shares and 39 tweets of this blog post. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.ripfa.org.uk/blog/fundamental-drivers-of-good-co-production-in-the-commissioning-of-disa... |
| Description | Co-production workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | This co-production workshop took place on September 20th 2016, and was structured around presentations from four groups working with our project. All of them represent different disabled people, and we had presentations from people with dementia, people with learning disabilities, and a group of university students with disabilities. This was a unique occasion for discussion between people with different disabilities, to share perspectives on inclusion and on the social practices which exclude them, and for learning about the process of co-production in research. We discussed specifically the emotional content of co-production, the support which disabled people can give to each other, and the subtle barriers that they face (for instance in Universities, as well as in Health Care). Hearing directly from people with dementia about their experience of diagnosis was extremely powerful, and sparked many discussions with other participants about their own experiences. We reflected and recorded our thoughts about how this day would enable us to think more deeply about co-production, and had some very thoughtful feedback from participants. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/workshops/ |
| Description | Community Care Podcast |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The findings about successful practices in supporting parents with learning difficulties were the subject of a podcast for 'Community Care Inform' by Nadine Tilbury from our project. There were 473 plays within 1st week (e/m Ruth Hardy (producer) 4 Feb); expect over 1000 by end of Feb (e/m Ruth Hardy 5 Feb) |
| Year(s) Of Engagement Activity | 2019 |
| Description | Disability History Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Beth Richards from our project presented her research about people with learning disabilities on TV, at an event in Bristol about Disability and Music. This was organised by Bristol Disability Equality Forum, to celebrate Disability History Month. It took place on 24th November 2018. The talk was important, because it was the only one delivered (and researched) by a disabled person who had a learning disability, and was very popular with the audience. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://bristoldef.org.uk/24-nov-2018-bristol-celebrates-disability-history-month/ |
| Description | Disability Studies course |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Gall, M. (2019) Research presented as part of the University of Bristol Disability Studies MSc course: Disabled Children's Childhoods, Bristol, UK, 7 March 2019. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Engaging young people with special educational needs /disabilities in music making (at National Co-ordinators the European Association for Music in Schools (EAS) / International Society for Music Education (ISME) Regional Conference, Jelgava, Latvia, March 14-17 2018. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Each year, as part of the EAS international conference the National Co-ordinators (NCs) from 32 countries across Europe and wider, meet for a day to share their work and thoughts about music education. As part of this NC day, Marina Gall presented findings related to the Clarion and the work of Open Orchestras. Potential future audiences - a wide range of music and teacher educators, musicians, researchers, institutions and music associations - across 32 countries, as a result of dissemination by EAS National Co-ordinators. See for example: https://eas-music.org/institutional-members/ https://eas-music.org/national-coordinators/ |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://eas-music.org/2018-jelgava-lv/ |
| Description | Expo Pop up workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Bernd Sass from DRUK and Val Williams presented at the Health and Care Innovation Expo 2015, in Manchester UK. The title of the presentation was 'Win-win situations in co-produced solutions with patients and (disabled) people'. It provoked an interesting discussion from the audience, with several examples of ongoing co-production in action in health care situations. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bristol.ac.uk/sps/gettingthingschanged/ |
| Description | From successful parenting for parents with learning difficulties to successful practice in working with parents with learning difficulties |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Even though the title of our strand is officially 'Supporting Successful Parenting', our proposed research in this strand focused on professional practice as much as how adults with learning difficulties actually parented. Our introduction stressed that parents may not have the necessary resources. However, it is equally important that professionals do not have the time, knowledge and skills to support them appropriately. This fourth strand thus focuses on change at the level of implementation of policy, aiming to understand what strategic policies make a difference in 'successful' practice to support parents with learning difficulties. Despite UK legislation and policy (Children Act 1989; DH/DoE, 2007), parents with learning difficulties are more likely than others to have their children removed from their care (McConnell and Llewellyn, 2002; Masson et al, 2008). Parents are seen as neglecting their children because they do not have the resources, knowledge, skills, experiences and support they need (Cleaver and Nicholson 2007) while professionals are regarded as not having the necessary time, skills and support to work with them (Tarleton et al 2007; DoH/DoE 2007; Jones 2013). However, there is an increasing awareness of how parents with learning difficulties can be positively supported via adapted materials, support services and additional time (DoH/DoE 2007; Tarleton and Porter 2012; Tarleton & Turney, 2013). What is now needed is a better understanding of the facilitators and barriers to 'successful' practice, so that we can know more accurately how to implement change for parents with learning difficulties. The discussions in this workshop with disabled people helped us to recognise the need to look at all types of cases that are seen as successful (even if only in particular aspects) by practitioners and parents, even if the eventual outcome is removal of the child/ren as there could be radical differences in parents' responses. Following this workshop, in designing our research, we made decisions to ask parents (and children) about what "practices" worked, from their point of view, as well as the practitioners' point of view. In this way, we will aim to ensure that the parents' and children's views are as central and valid as those of practitioners. This is a clear stance for this strand. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Gall, M. (2018) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop for trainee music teachers studying the Postgraduate Certificate in Education at the University of Bristol on findings from project, including hands-on experience of using the Clarion. Bristol, UK, 11 June 2018. Repeated in 2020. |
| Year(s) Of Engagement Activity | 2018,2020 |
| Description | Getting Things Changed Final Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | We held a final event and launch for this research on May 25th 2018 at the SS Great Britain in Bristol. It was hugely popular, and attended by disabled people as well as practitioners, academics, policy makers, students and members of the public. Following introductory talks about the project as a whole, the day was divided into eight workshops, with creative arts input from a cabaret including the disabled comedian, Laurence Clark. We also had hands-on opportunities for audience members to try the 'Clarion' in the Open Up Music workshop, and most of the workshops had interactive elements. All the products were launched on that day, and can be seen on our project website. A video of the day is available on our project website (and see below), and a set of photos and a second video. Via the website and media campaign, the launch event reached well over the 150 people who attended. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.youtube.com/watch?v=kv4aOCdud68 |
| Description | Good Conversations with People with Dementia |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr. Joseph Webb presented a poster at the Alzheimers' Society Annual Conference on May 23rd 2018. He engaged with at least 20 people directly and gave out information about our project, discussing the implications of our research for practice. Following this, we had some enquiries from regional Alzheimers' Society staff, and a request from a local NGO supporting older people to discuss the research with them. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.alzheimers.org.uk/dementia-professionals/conferences-and-events/alzheimers-society-annua... |
| Description | Inclusion of the findings from the Successful parenting strand in presentations at the Working Together with Parents Network regional seminars. 4 seminars in 2 weeks across England |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The WTPN regional seminars aimed to update local practitioners and commissioners on the latest legal and policy and research regarding parents with learning difficulties. The findings from the strand of work on Successful practices when working with parents with learning difficulties were included in the research update. Participants entered into discussions and completed evaluation forms saying how they were now far more well informed and intended to use the material from the seminars in their practice. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Inclusivity and Music |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Marina Gall delivered a keynote Presentation including GTC research findings: Inclusivity and Music: Implications for Higher Education, VI National/ IV Internal Congress of Conservatoires of Music (Society for Spanish States' Music Education), Santa Cruz, Tenerife, 15 November 2019. The Tenerife conference has led to a Spanish composer/ teacher, who attended, liaising with Open Up Music to create music for them. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://i-cncsm3.webnode.es/vi-consmu/programa-programme/ |
| Description | Inclusivity in Music Teacher Education |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Marina Gall presented findings from Getting Things Changed in 2021 at the 7th International Symposium of Music Pedagogues: "Music Pedagogy in the Context of Present and Future Changes" in Croatia. Her paper was then incorporated into a book (listed in Publications section) from the conference. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://mapu.unipu.hr/images/50025613/Symposium_SGP__Program___Programme.pdf |
| Description | Introduction to Using Conversation Analysis to Study Health Care Encounters |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Dr. Joe Webb presented a talk within an open course on Conversation Analysis, held at the School of Social and Community Medicine, University of Bristol on 14-15th December 2016. It was attended by 30 people over 2 days (ranging from GPs, PhD students, healthcare professionals, psychologists, etc). It opened up to the participants new ways of discussing the methodology of Conversation Analysis for practical purposes, as we are doing in the current project. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.bristol.ac.uk/social-community-medicine/shortcourse/introduction-to-using-conversation-an... |
| Description | Learning Disability blog in The Conversation |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Val Williams published a blog post entitled 'How to make people with learning disabilities feel more included in society' in 'The Conversation' to coincide with Learning Disability Awareness week, to raise the profile of our research findings. The blog also highlighted that two people connected with the research were honoured in the Queen's Birthday Honours in June, Doug Farrimond and Sarah Gordy. The blog was reprinted on June 25th at https://inews.co.uk/inews-lifestyle/wellbeing/learning-disabilities-inclusion-society/ The Conversation reaches 2,720 readers. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://theconversation.com/how-to-make-people-with-learning-disabilities-feel-more-included-in-socie... |
| Description | Meeting with a Disabled people's organisation (South West England.) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | In 2016, Dr Nicky Reynolds (RA on this project at that time) met with a group from a pan-impairment Disabled people's organisation, based in South West England. Mike Steel accompanied Nicky to the meeting, in his capacity as both a group member and researcher associate. The purpose of attending the meeting was to: a) Introduce the Getting Things Changed study, with a focus on Strand 5 'Disabled people as commissioners' b) ask for advice ideas for developing the research based on current and previous co-produced activity. The group expressed interest in a) taking part in the Getting Things Changed study b) taking the opportunity explore commissioning and co-production with Disabled people and public bodies c) developing outputs that could be shared with, and prove useful to, other Disabled people's organisations. Plans were made to interview group members, and Mike developed presentations addressing on the key themes, to be shared with other group members. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Musical Rights for All |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Marina Gall delivered a Keynote Presentation - Special Educational Needs/ Disabilities - within the 2nd of 5 Strands entitled Musical Rights - The Right for All Children and Adults to learn musical languages and skills. This included GTC research findings. International Music Education Council 6th World Forum, Paris, 30 September 2019. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.emc-imc.org/events/6th-world-forum-on-music-2019/ |
| Description | NHS England - Learning into Action national group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Professor Pauline Heslop shared the report about Reasonable Adjustments in Hospitals produced by this research, and the posters for hospitals, at a meeting on Fri 22nd June 2018 at NHS England in London. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Narrative and Dialogue approaches to quality assurance |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | On 16th January 2017, Val Williams (PI) delivered an invited presentation at a day entitled:' Narrative and Dialogue approaches to quality assurance' organised by Dr. Nick Andrews of the Wales School for Social Care Research. The day was organised around the idea of 'DEEP' developed by Nick and colleagues at Swansea University. DEEP stands for Developing Evidence-Enriched Practice, and was a useful way to approach the idea of dialogic learning. Val presented on the topic of: 'The Inclusion of People who are Seldom Heard', with some emerging findings from Strand 2 (Changing the Academy) and Strand 1 (Getting Good Support), both of which form part of the large study on 'Tackling Disabling Practices: co-production and change'. The day proved to be a very useful forum for networking and exchange of ideas with practitioners, activists and policy makers, many from Wales, but also more generally in the South West and nationally. Specifically, there was a strong exchange of views on how we can both listen to disabled people's experiences and stories, but also analyse and take action on the basis of these stories. A full list of participants' details and their interests in quality assurance was circulated, providing for very good networking opportunities for our project. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.ruru.ac.uk/pdf/nov2015/Nick%20Andrews%20PRESENTATION%20-%2009nov15.pdf |
| Description | National Development Team for Inclusion Newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sue Turner published a piece called 'Getting Things Changed: Final Event' for the NDTI newsletter on 11th June 2018 . NDTI staff members contacted the project team, and joint interests were discussed. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.ndti.org.uk/news/getting-things-changed-final-event |
| Description | PGCE workshop on Clarion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Dr. Marina Gall presented a workshop with Charlotte White, a disabled musician, to music trainee teachers on the post-graduate certificate in Education in June 2018. The workshop included research findings as well as 'hands on' experience of the Clarion, the new technological instrument developed by OpenUp Music and showcased in our research. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Panel at Lancaster Disability Studies Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The research team presented a panel of five short papers at the Lancaster DS conference, entitled 'Tackling disabling practices: A symposium supporting inquiry in the service of change'. Chaired by the PI (Val Williams), each of the main research associates, Stuart Read, Joe Webb, Sue Porter, Victoria Mason, Wendy Merchant and Nicola Reynolds, presented for five minutes on their own strand, to highlight both the disabling practices we are finding, and also the opportunities for change. The panel sparked a lot of interesting discussion about the cross-cutting themes in making change happen, and we kept contact with the participants from the University of Malta who were part of the audience. We have since written and submitted a full paper to the journal 'Disability and Society' on Social Practice Theory and its links with Disability Studies. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.lancaster.ac.uk/fass/events/disabilityconference/index.htm |
| Description | Panel on Disability and Fieldwork |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Williams (PI) acted as invited panel member in event on International Day of Persons with Disabilities, at University of Bristol. School of Biological Sciences. Wednesday December 7th. Dr. Kelsey Byers, a disabled academic, presented her research and discussed the ways she tackled fieldwork as a disabled scientist. After a further presentation, there was a discussion in which Getting Things Changed participated, especially in relation to disability in Higher Education practices. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Personal assistants and decision making |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Val Williams published an article in 'Learning Disability Today' to coincide with the end event of our research. It was published a few days before our end event, on May 21st 2018, and was picked up by MENCAP and other people who were interested in our launch. The article was entitled: 'Here's how personal assistants can support decision making', and is available online. It relates strongly to the research in Strand 1 of our project, and makes the link between our research and the Mental Capacity Act. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.learningdisabilitytoday.co.uk/heres-how-personal-assistants-can-support-decision-making |
| Description | Podcast for Community Care Inform |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Nadine Tilbury did a podcast with a Father with learning difficulties and clinical psychologist. Postive practice from the study promoted. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Poster at Alzheimers National Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr. Joe Webb presented a poster at the National Alzheimer's Society Conference, entitled 'Co-research and Communication'. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.alzheimers.org.uk/info/20204/alzheimers_society_annual_conference |
| Description | Presentation on good practice on working with parents with learning difficulties |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Presentation to Frontline social work students |
| Year(s) Of Engagement Activity | 2019 |
| Description | Presentation on good practice on working with parents with learning difficulties |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Health visiting students, social work students and speech and language students at Birmingham City University |
| Year(s) Of Engagement Activity | 2019 |
| Description | Presentation on the findings from the strand of work on Successful practices when working with parents with learning difficulties at IASSID conference, Athens. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This 20 minute presentation was to an international audience of researchers/practitioners at the European IASSID conference. The presentation was noted as being 'positive' and part of the international work around showing 'how' parents can be supprorted. |
| Year(s) Of Engagement Activity | 2018 |
| Description | RCN International Nursing Research Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Read, S., Heslop, P. (2018). "Disabled people's experiences of accessing reasonably adjusted hospital care." RCN International Nursing Research Conference and Exhibition 2018, University of Birmingham. |
| Year(s) Of Engagement Activity | 2018 |
| Description | RIPFA blog: Social Services as Agents of Change |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A blog was published by 'Research into Practice for Adults' in September 2018, by Val Williams and Joe Webb. It particularly addressed social care practitioners, encouraging them to take on the positive messages about change from our research. The blog was published and disseminated amongst practitioners and other policy makers who read the 'RIPFA' blog. It has received 39 tweets so far, and been shared 45 times. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.ripfa.org.uk/blog/social-services-are-agents-of-change-for-disabled-adults/ |
| Description | Radio show on Disability and Employability |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Wendy Merchant took part in a radio show on local community radio in Bristol, in the series hosted by the West of England Centre for Inclusive Living. This was aired on 10th March 2017, and she discussed the emerging findings at that point from our research within the University, specifically relating to disabled staff. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://bcfmradio.com/ |
| Description | Self-advocacy groups |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Victoria Mason visited three self-advocacy groups, run by people with learning disabilities, to present information about the project, and to record their views about priorities for change. The three groups were in the South West, East Anglia and the North of England. The members of these groups stressed the importance of accessible information, so that they can understand policy as well as care practices. Some of them also discussed the differences faced by people with learning disabilities in rural areas, as compared with urban areas, since there are big problems with public transport, distance between venues, and the range of services and activities available in some rural areas. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Seminar about media and music elements of the research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | On 12 June 2019, PI (Williams), together with Beth Richards and Dr. Marina Gall, presented aspects of the findings from our research to a seminar held at the School of Education in Bristol. There were international as well as local attendees, who engaged with the ideas and findings. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Special Needs course |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Gall, M. (2019) Research presented as part of the University of Bristol MSc course (Special and Inclusive Education). Unit: How Schools Can Respond to Diversity and Pupils' Special Needs, Bristol, UK, January to March 2019. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Strategic briefing for Rip/Ripfa (Research in Practice and Research in Practice for Adults) |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic briefing: Supporting parents who have learning disabilities: Strategic Briefing by Turney D, Tarleton B and Tlbury N |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.rip.org.uk/resources/publications/strategic-briefings/supporting-parents-who-have-learni... |
| Description | Stuart Read was invited speaker at Annual Healthwatch Conference Bristol |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | This was a keynote presentation entitled 'The provision of 'reasonable adjustments' for disabled people by hospital services'. This part of our project had an ongoing relationship with Healthwatch Bristol/The Care Forum in supporting and disseminating our project and its findings. As a development from our reasonable adjustments workshop in Bristol in October 2017, Stuart Read was asked to present the strand's project findings, as well as sharing how Healthwatch Bristol representatives can help support change. This led to Healthwatch Bristol engaging with our project resources about reasonable adjustments in June 2018, and including the project in their Annual Report (see 'Healthwatch Bristol' under 'Influence on Policy') |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.thecareforum.org/networking/event/healthwatch-bristol-conference-6-march-2018/ |
| Description | Teaching at Frontline social work |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Findings from the strand of work on Successful practice in working with parents with learning difficulties were included in my presentation for over 300 trainee child protection social workers. The messages from the presentation were developed during workshop activities. |
| Year(s) Of Engagement Activity | 2018 |
| Description | The Future of Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 'The Future of Health' was an online event run by the University of Edinburgh, on 2 March 2021. Speakers included Dr Anthony Fauci from the USA, and Chelsea Clinton, alongside a range of other international speakers. The focus was planning for the future, after the global COVID pandemic. PI (Williams) took part via feedback during the event, to raise the issues of disabled people's voices and participation. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://efi.ed.ac.uk/events/edinburgh-futures-conversations-the-future-of-health/ |
| Description | The Growing Impact of Open Orchestras in SEN schools: presentation at Music Education Expo |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Marina Gall gave a presentation at Music and Drama Education Expo, Olympia, London, together with one of the Director of Open Orchestras, the focus of her research for this grant. The main foci within this presentation were: i) ways in which OpenOrchestras work impacts positively on the achievements of the young people involved not only musically but also in relation to their broader educational development; ii) considerations needed when setting up and running Open Orchestras in special schools. Participants reported deeper insight into the new technological instrument and into the potential of OpenOrchestras work in special schools, including awareness of the resultant positive impact on individual students' broad educational development. Some participants reported a change in views on what young people with profound and multiple learning difficulties (PMLD) could achieve in relation to music-making. Some school teachers / heads / music education hub leaders indicated that they would go further in exploring whether they might get their school to engage in OpenOrchestras work so as to provide a more inclusive music-making environment for all their students, including with PMLD. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://musicanddramaeducationexpo.co.uk/london/ |
| Description | United Hospitals Bristol |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Professor Pauline Heslop presented the research findings on Reasonable Adjustments at the Bristol Patient Equality and Diversity Group on 18 April 2018. She also presented and discussed the findings at the Disabled children's Advisory group meeting - 19 June 2018 |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.uhbristol.nhs.uk/about-us/our-work-transforming-care/building-capability/equality-and-div... |
| Description | WECIL Access All Areas |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The chair person of the West of England Centre for Inclusive Living gave a talk during the opening presentation of the final event of the project on May 25th 2018. Following that, project outputs were presented at the 'Access All Areas' event in Bristol on 20th June, held by the West of England Centre for Inclusive Living. Approximately 20-25 people came to the table, took reports, and discussed them. There were some in-depth discussions, particularly about disabling practices in universities and about Sign Language and Dementia. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.wecil.co.uk/access-all-areas/ |
| Description | Webinar pilot |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | We conducted a pilot webinar with a disability activist, a representative of families of disabled children, and an educator with recent experience in an Indian NGO. Our purpose was to try out the technology, and to see how we could present and discuss social practice theory online in this forum. We received very interesting and useful feedback, but in the end this route to engagement was not continued, as disabled people did not find it useful or accessible. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Westminster Higher Education Forum Keynote Seminar: Priorities for supporting disabled students |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | PI (Val Williams) was an invited speaker in a panel at this Westminster HE Forum seminar on October 14th 2019. Lilit Movsesyan also took part, as a representative of the disabled student's group of co-researchers in this project. She spoke from direct experience of her time in University, and both Williams and Movesesyan emphasised the systemic and universal changes needed, in order to value disabled students' contribution to university. There were many questions and discussion afterwards, both from those situated in other universities, but also from those audience members with lived experience of disability. There was also a direct link made with the government's Disabled Students' Inquiry, to which the project report was submitted, and a full report is published and for sale - including speakers' contributions and a transcript of the debate. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.westminsterforumprojects.co.uk/publication/priorities-for-improving-the-support-for-disa... |
| Description | Workshop at British Association of Social workers conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop during conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | Workshop for trainee music teachers |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | On 29th April 2019,and again in 2020, Dr Marina Gall presented a workshop based on the research, to music teachers studying on the PG Cert in Education at the University of Bristol, including hands-on experience of using the 'Clarion' (a new virtual instrument produced by OpenUp Music, and at the centre of our research in this area). |
| Year(s) Of Engagement Activity | 2019,2020 |