Administrative Data Research Centres 2018

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

ADRCW will build on its achievements over the last four years, learning the lessons from both its work in Wales and its involvement with other UK components of the ADRN. With even closer cooperation with Welsh Government, enabled by new, much-needed investment in Wales' NSA, and with new funding to expand the operational remit of the SAIL Databank to cover non-health subjects and data, we will work in a new focussed way to deliver research benefits straight to government. In doing so, we will build up our data assets, already better than any other parts of the UK, and make them more convenient to access and use. We will take advantage of our existing, innovative, and widely used data sharing tools and platforms (e.g. National Research Data Appliances) to support data owners in sharing their data for research safely, simply, efficiently and regularly. We will also utilise our data access platforms (UKSeRP and SAIL Gateway) to allow access to the data by any researcher across the UK (subject to permissions and approvals). We will work hard to integrate our Centre into the emerging UK-wide model for ADRP, and play our part in facilitating access to potent data across the UK. Our centre will provide a seamless services to research users (where this is sensible) and take a full part in delivering strategic programmes of research set at a UK level. We will continue to support our current portfolio of projects, but will begin to steer project proposals coming from the research community at large towards topics that fit with Wales' and the UK's strategic governmental interests. Our engagement with the Welsh population regarding the secondary use of their data will continue, and feed into a research programme where we strive to develop and test ways of improving privacy in the work of our Centre and others like it. We will continue to support the next generation of big data social scientists, supporting them at undergraduate, postgraduate and doctoral levels by providing them opportunities to interact with real data on real project wherever possible. Our Strategic Impact Programmes (SIPs) in Education, Housing and Homelessness, Health and the Environment, Future Generations, and Emerging Governmental Priorities have been devised in partnership with Welsh Government and are hard wired into policy areas. These SIPs are designed to deliver impact, which we shall collate, share and promote as part of an efficient management and reporting approach operating right across the Centre, and harmonised across all the ESRC ADRP investments.

Planned Impact

The Collaboration for Welsh Administrative Data Research (CWAR) will seek to build on our existing outstanding record on achieving impact and will contribute to maximising the impact of ADRC projects and SIPs during the next phase of the ADR partnership across the UK. We propose a mixture of proven activities based on our previous experience and a new, wider set of activities to maximise impact. The Collaboration will be devoted to the successful delivery of a range of SIPs and, by utilising impact focused postholders based in both WG and ADRC, will provide the ability to capitalise on previous activity to build impact. The availability of UK datasets via the ONS will also add significantly to the impact of projects on a national and potentially global basis. This activity will be driven towards national strategy priorities and will secure senior commitment to this agenda. This will ensure that projects in Wales will have maximum exposure to senior influential individuals and thus the maximum opportunity to achieve impact.
Activities to Maximise Impact
We will seek to maximise impact at the UK level, within Welsh Government, across the wider Welsh public sector, and within the academic community. At all levels, we will work with the Strategic Hub and the wider partnership to maximise impact by developing and feeding into an Impact Working Group. The Centre believes that this will be key to maximising impact across the partnership, taking lessons learned from all partners and building them into a determined, explicit impact strategy, ensuring every project is fully exploited for impact opportunities.
Building on existing success: In the short term, we will maximise impact from existing projects. For these projects, senior officials and ministers are already thoroughly engaged, experienced, and have highly trained analysts in place. Existing research partners are familiar not only with complex data and analysis methods but also the challenges and opportunities of working with government.
Maximising the impact of new projects:
Funding as a lever provides the ability to bridge the gap between Government (Show me what you can do and I'll invest) and researchers (Invest and we'll show you what we can do). A huge strength of Wales' success to date has been the ability to run projects with significant potential to deliver impact and/or act as exemplars to encourage further investment/engagement.
Focus on national priorities is a critical pre-requisite for achieving impact within Welsh Government and beyond. Through our over-arching governance, we will ensure that research programmes are continuously tested against those priorities to identify opportunities for impact. We will use our Emerging Governmental Priorities SIP as a tool to identify and deliver rapid, impactful pieces of analysis in response to emerging policy requirements.
Impact Accelerator Fund: controlled jointly by ADRC-W and Welsh Government, which can be used either to match-fund investments by policy departments or fully fund small demonstrator projects.
Incentivise and reward: As part of our yearly evidence planning process, we will run an annual process where policy teams within Welsh Government are encouraged to submit proposals for the use of CWAR resources. Creating a level of informal competition is highly likely to draw out the best ideas with the highest level of senior engagement and potential impact. This ADR Partnership Policy Impact Prize could be operated for Wales or could be adopted at the UK level.
Ruthlessly exploiting relationships: We welcome the opportunity to build on the virtuous circle already developing in Wales, which is in no small part due to the ruthless exploitation of relationships with policy officials at all levels. As policy officials move posts, they will use their relationship with us to champion the cause of administrative data research in new posts and we therefore spread virally.

Publications

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Alrouh B (2019) Born into Care: characterising newborn babies and infants in care proceedings in England and Wales in International Journal of Population Data Science

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Bandyopadhyay A (2020) Behavioural difficulties in early childhood and risk of adolescent injury. in Archives of disease in childhood

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Bejko D (2018) "To survey or to register" is that the question for estimating population incidence of injuries? in Archives of public health = Archives belges de sante publique

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Griffiths L (2019) The Nuffield Family Justice Observatory Data Partnership in International Journal of Population Data Science

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Jones KH (2019) A Profile of the SAIL Databank on the UK Secure Research Platform in International Journal of Population Data Science

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Song J (2018) case study in distributed team science in research using electronic health records in International Journal of Population Data Science

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Trefan L (2019) Electronic Longitudinal Alcohol Study in Communities (ELAStiC) Wales - protocol for platform development in International Journal of Population Data Science

 
Title ADR Wales overview video 
Description Overview video demonstrating the work of the centre to date. Included quotes from several Cardiff/Swansea based PI/Co-Investigator colleagues, as well as quotes from senior Welsh Government staff involved in the project. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=v3I8FWELrHo
 
Title Flying Start infographic - Childcare analysis 
Description Infographic providing an overview of the key findings from the research on the Flying Start project (Childcare analysis) 
Type Of Art Image 
Year Produced 2019 
Impact Image shared online and available for dissemination digitally and at events 
URL https://twitter.com/ADR_Wales/status/1200054440658649089
 
Title Flying Start infographic - Emerging findings 
Description Infographic providing an overview of the key findings from the research on the Flying Start project (Emerging Findings report) 
Type Of Art Image 
Year Produced 2019 
Impact Image shared online and available for dissemination digitally and at events 
URL https://twitter.com/ADR_Wales/status/1164107469288816641
 
Title Flying Start research overview video 
Description Overview video of the ongoing Flying Start project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=A9LTpPf2TDc
 
Title Flying Start research overview video (CYMRAEG) 
Description Welsh translation - Overview video of the ongoing Flying Start project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=ysua4GaT_Jw
 
Title Fuel Poverty inforgraphic 
Description Infographic providing an overview of the key findings from the research on the Fuel Poverty project 
Type Of Art Image 
Year Produced 2019 
Impact Infographic shared on social media and available for dissemination digitally or at events 
URL https://twitter.com/ADR_Wales/status/1182569289984991232
 
Title Fuel Poverty research overview video 
Description Overview video of the ongoing Fuel Poverty project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=88FG8oN_QRw
 
Title Fuel Poverty research overview video (CYMRAEG) 
Description Welsh translation - Overview video of the ongoing Fuel Poverty project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=k8a-kdI9XfM
 
Description Contributed to Learned Society of Wales response to Protecting and Transforming Health and Wellbeing and Planetary Health (Welsh Government) and engagement with the One Health Cymru Steering Group (Learned Society of Wales, Bevan Commission, Future Generations Commissioner)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Contributed to public debates and evidence submission to Welsh Government's ban on smacking children
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Minimum passing distance
Geographic Reach National 
Policy Influence Type Gave evidence to a government review
 
Description Police and Crime Commissioners
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description SAIL access to education data
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Strategic Coordination of Health of the Public Research Committee (SCHOPR) to develop a set of public health research principles and goals to guide funding decisions
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a national consultation
 
Description BREATHE
Amount £925,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 10/2019 
End 08/2022
 
Description Data phenotyping longitudinal multimorbidity trajectories in cardiovascular disease: a statistical machine learning approach using nationwide electronic healthcare records
Amount £301,553 (GBP)
Organisation Alan Turing Institute 
Sector Academic/University
Country United Kingdom
Start 12/2019 
End 11/2022
 
Description Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort
Amount £153,855 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2018 
End 03/2020
 
Description HDRUK
Amount £3,003,650 (GBP)
Funding ID NIWA1 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 05/2018 
End 04/2023
 
Description Measuring and Understanding Multimorbidity Using Routine Data in the UK
Amount £1,004,703 (GBP)
Funding ID CFC0110 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 07/2019 
End 03/2023
 
Description Nuffield Foundation Justice Observatory
Amount £988,000 (GBP)
Organisation Nuffield Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2019 
End 06/2023
 
Description Secondary Data Analysis Intitiative (Katy Huxley)
Amount £201,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2019 
End 03/2021
 
Description Secure Anonymised Information Linkage Databank (SAIL).
Amount £4,545,558 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2020 
End 03/2025
 
Description The epidemiology, healthcare and societal cost of Melanoma in Wales: Analyses of standalone and linked national databases
Amount £7,706 (GBP)
Funding ID TIG2019-08 
Organisation Tenovus Cancer Care 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2019 
End 03/2021
 
Description UKRI Innovation / Rutherford Fund Fellowships at HDR UK
Amount £560,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 02/2018 
End 02/2021
 
Description WG Matched Funding for WISERD Education Data Lab (with Chris Taylor)
Amount £180,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 10/2019 
End 03/2021
 
Title Welsh Government UKSeRP 
Description Provision of UKSeRP secure data analysis infrastructure to the Welsh Government team for use across a range of their projects 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact Welsh Government are assessing the capabilities that the platform offers them and are in the process of planning research projects that will benefit greatly from the project 
 
Title WEDL Database 
Description Amalgamation of education records held within SAIL Databank to create analytical data base 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? No  
Impact Not yet known - the funding award was recent, but the additional research capacity within the ADR Wales Skills and Employability SIP provides an opportunity for an even broader range of impactful research attributable to ADR Wales 
 
Description CAFCASS 
Organisation Children and Family Court Advisory and Support Service
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of public and private law case management system data from CAFCASS Wales. Provision of case file data from CAFCASS England.
Impact Research is ongoing with data provision from CAFCASS Wales, whilst discussions around the use of case data (CAFCASS England provision) are ongoing
Start Year 2019
 
Description MCS - UCL 
Organisation University College London
Country United Kingdom 
Sector Academic/University 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of agreed MCS datasets. The study began in 2000 and is conducted by the Centre for Longitudinal Studies (CLS), it aims to chart the conditions of social, economic and health advantages and disadvantages facing children born at the start of the 21st Century.
Impact Research using provisioned data is ongoing
Start Year 2019
 
Description ONS Data Provision 
Organisation Office for National Statistics
Country United Kingdom 
Sector Private 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Providing users the opportunity to make online researcher and project accreditation applications under the DEA, and enable researchers to make change requests to their projects. The facility to request output clearances, data ingests and software will only be available for projects in the SRS, in RAS at this time. The research project application process will enable researchers to select a data access processor in RAS on the basis of the data they have selected for their research. A number of ONS data owners have indicated that they are happy to make their secure data available for research via all DEA accredited data access (provision) processors. SAIL is one of these. This has opened up a vast range of opportunities for data acquisition
Impact DEA accreditation confirmed following ONS site visit and audit response.
Start Year 2019
 
Description WEFO data 
Organisation Government of Wales
Department Welsh European Funding Office
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of 2007-2013 European Social Fund data.
Impact Provision of 2007-2013 European Social Fund data.
Start Year 2019
 
Description 2019.01.11 - NWIS NDR Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with NWIS around collaborative opportunities with NDR development
Year(s) Of Engagement Activity 2019
 
Description 2019.01.22 - ONS SIP development roadshow 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Planning session with ONS and ADR Wales colleagues to develop Welsh SIPs and guide national data acquisition strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.01.28 - Legal Needs project advisory group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation on the Legal Needs advisory group - collaboration between Swansea University and UCL to identify service gaps in Welsh legal needs through data research
Year(s) Of Engagement Activity 2019
 
Description 2019.02.01 - Leadership Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Committee to support close collaboration between the accountable leads within the ADR partner organisations.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.04 - Lecturing PMIM 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Teaching delivery to postgraduate students (PMIM)
Year(s) Of Engagement Activity 2019
 
Description 2019.02.08 - HCRW Centre & Unit Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact Discussion on collaborative working with Health and Care Research Wales Centre and Unit leads
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - HCRW Infrastructure call w/ Donald Forrester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussion on children social care data with Prof Donald Forrester, Director of CASCADE at Cardiff University
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - SAIL & Social Care Research call w/ Lisa Trigg 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion on opportunities with Lisa Trigg, Assistant Director at Social Care Wales.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.12 - Exascale Science Board Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular meetings to understand researcher requirements and to assess if supercomputing techniques could assist
Year(s) Of Engagement Activity 2019
 
Description 2019.02.13 - GSK: clinical imaging analytics 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Industry/Business
Results and Impact Explore potential for collaborative projects particularly around the reanalysis of clinical imaging datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.18 - DPAS Project start 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Collaborative work with Nuffield, Lancaster University and Swansea University to set up DPAS platform for analysis of CAFCASS family justice datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.02.18 - Health Foundation Project - Abertawe Medical Partnership 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaborative work with GP cluster in Swansea - Health Foundation Project
Year(s) Of Engagement Activity 2019
 
Description 2019.02.25 - DAFNI (Marion Samler) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Meeting with Marion Samler from DAFNI (Data & Analytics for National Infrastructure Research) to discuss collaborative opportunities
Year(s) Of Engagement Activity 2019
 
Description 2019.02.26 - Healthwise Wales Scientific Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales representation at the Healthwise Wales Scientific Steering Group
Year(s) Of Engagement Activity 2019
 
Description 2019.02.27 - Data linkage discussion: Swansea Council 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact Discussion with Swansea Council Flying Start team and Welsh Government policy to identify opportunities for data usage. Flying Start had shared data with ADR Wales, and there was the possibility of bringing their team in to directly influence the direction of research using their data.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.28 - ESRC Admin Data Spine Scoping w/ Andy Boyd & Rob Wilson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales support provided to the scoping process around the ESRC Admin Data Spine
Year(s) Of Engagement Activity 2019
 
Description 2019.02.28 - Teresa Williams (CAFCASS) telecon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussion with Teresa Williams on acquiring CAFCASS data
Year(s) Of Engagement Activity 2019
 
Description 2019.03.05 - ADSS Spring Seminar 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation in the ADSS Spring Seminar, representing ADR Wales/SAIL at a government seminar covering R&D strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.03.08 - Admin Data Research Centre Wales Catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular update meeting series with Glyn Jones, Chief Statistician for Wales, and ADR Wales Operations colleagues (including Welsh Government). Direct working with senior Welsh Government colleagues allows an effective method for identifying jointly beneficial opportunities
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - Glyn Jones SAIL mapping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Chief Statistician for Wales - mapping the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - QUB: NI Health Data & SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Queen's University Belfast - linkage and project collaboration potential between SAIL and Northern Ireland health datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.03.13 - Meeting with Prof Andrew Morris HDRUK 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Andrew Morris HDRUK
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - Telecon w/ Lisa Holmes regarding Department for Education 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with Lisa Holmes, Director of the Rees Centre (Department of Education, Oxford University)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - UKSeRP Discussion w/ AISP, Asemio (Dennis Culhane) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Meeting with Prof Dennis Culhane, Co-PI for Actionable Intelligence for Social Policy (AISP) at Penn University (Philadelphia). Discussion around UKSeRP infrastructure and opportunities for collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.03.18 - UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable
Year(s) Of Engagement Activity 2019
 
Description 2019.03.19 - Paul Jackson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Ad hoc catch up meeting with Paul Jackson
Year(s) Of Engagement Activity 2019
 
Description 2019.03.21 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at UKRI e-Infrastructure Expert Group Meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.03.25 - Interoperability PoC Update w/ Kay Snowley (HDR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Interoperability PoC Update w/ Kay Snowley (HDR)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - Flying Start reference group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation in Flying Start reference group meeting series - advisory and planning meetings with local authority participant groups and Welsh Government policy to support and shape Flying Start research project
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - HDR Scotland - connect represcribing initiative 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation in the HDR Scotland - connect represcribing initiative event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.03 - ADR Hack Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the ADR Hack Day event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - ADR Steering group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Planning, coordianting and attendance of the ADR Steering Group meeting series, which aimed to engage with policy leads in government outside of the ADRU (Welsh Government) project team
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - Blackpool Council/Better Start/Swansea Uni 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration opportunity - Sharing best practice advice and the potential to support with UKSeRP infrastructure a Blackpool Council project
Year(s) Of Engagement Activity 2019
 
Description 2019.04.10 - Teleconference w/ ScHARR team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with University of Sheffield, School of Health and Related Research (ScHARR)
Year(s) Of Engagement Activity 2019
 
Description 2019.04.21 - Census data discussion 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted ONS colleagues to advise on the development of the Welsh Census data dictionary and variables involved in data linkage process
Year(s) Of Engagement Activity 2019
 
Description 2019.04.24 - Developing the ADR UK brand and website 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in developing the ADR UK brand and website
Year(s) Of Engagement Activity 2019
 
Description 2019.04.29 - Karen Dennison: embedding longitudinal cohort studies into population administrative data sets 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting with Karen Dennison: embedding longitudinal cohort studies into population administrative data sets
Year(s) Of Engagement Activity 2019
 
Description 2019.05.01 - ONS Census Data into SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Welsh Government and SAIL discussions to co-ordinate the approach to ONS Census data acquisition
Year(s) Of Engagement Activity 2019
 
Description 2019.05.10 - DPAS development meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Participation in major planning session for the development of DPAS data analysis programme; a collaboration across multiple government and academic groups to analyse Family Justice data
Year(s) Of Engagement Activity 2019
 
Description 2019.05.14 - TC Betsy Stanko (UCL) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Teleconference call with Prof Betsy Stanko OBE, Visiting Professor at UCL and former Head of Evidence and Insight at Mayor of London's Office for Policing and Crime.
Year(s) Of Engagement Activity 2019
 
Description 2019.05.21 - ADRP Gateway review w/ Tricia Dodd & Glyn Jones 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in the ADRP Gateway review
Year(s) Of Engagement Activity 2019
 
Description 2019.05.22 - Court Reform Evaluation Advisory Panel (MoJ) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Court Reform Evaluation Advisory Panel: Arranged by MoJ; multidisciplinary expert meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.05.24 - Population Research Resources Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Population Research Resources Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.05.28 - Meeting with Tiffany Veinot, University of Michigan 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Potential collaboration discussion with Tiffany Veinot, University of Michigan
Year(s) Of Engagement Activity 2019
 
Description 2019.05.29 - Tom Margrain collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Tom Margrain collaboration meeting re: WOPEC (Optometry)
Year(s) Of Engagement Activity 2019
 
Description 2019.05.30 - MoJ Family Justice Meeting w/ Emma Gordon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Engagement with Emma Gordon regarding MoJ Family Justice work
Year(s) Of Engagement Activity 2019
 
Description 2019.06.04 - Progressing Further Data Linkage for Family Justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Progressing Further Data Linkage for Family Justice: Engaging MoJ into the DPAS arena
Year(s) Of Engagement Activity 2019
 
Description 2019.06.12 - Wellcome Event Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Participation in an event delivering a series of presentations to Wellcome
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - AOCDRCA project 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact ADR Wales staff have provided ongoing coordination and technical support to a South Wales police sponsored data research project. This project is undertaken by a Swansea/Cardiff university research team, which is looking into linguistic trends used by child groomers. Due to the incredibly sensitive nature of the data, ADR Wales safe room infrastructure (and associated accreditations) provided the sponsor with the confidence they needed to commission the research
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - HDRUK BSO Project Update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation at HDRUK BSO Project Update meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - Mark Lawler (QUB) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Mark Lawler, Associate Pro-VC and Professor of Digital Health at QUB. Meeting to update on areas of research/collaboration potential
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between Life Sciences Hub & SAIL 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration meeting between Life Sciences Hub & SAIL/ADR teams
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between MS Register - Christoph Weidemann 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Discussion on potential collaboration between MS Register and Christoph Weidemann, Associate Professor in Swansea University Department of Psycology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.18 - Prof Anna Vignoles & Judge Carol Atkinson 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Lectures as part of a NFJO agenda
Year(s) Of Engagement Activity 2019
 
Description 2019.06.19 - NFJO Data Partnership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a series of regular catch ups around Nuffield Family Justice Observatory
Year(s) Of Engagement Activity 2019
 
Description 2019.06.20 - Justice Data Set w/ Kim McGrail 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion, and giving advice, to Australian colleagues (Prof Kim McGrail) on their justice datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - SAIL Scientific Advisory Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact ADR Wales participation on the SAIL Scientific Advisory Group
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Harmonisation of legal frameworks for UK Health Data w/ HDR & NHS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting with HDR UK and NHS colleagues around harmonisation of legal frameworks for UK Health Data
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Safepod discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around the Safepod secure analysis technology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.26 - UKRI Supercomputing Science Case TC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Teleconference to discuss ADR Wales involvement in the UKRI Supercomputing Science case
Year(s) Of Engagement Activity 2019
 
Description 2019.07.01 - Whitehall data acquisition meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion re: development of a joint strategy for acquiring data from Whitehall departments
Year(s) Of Engagement Activity 2019
 
Description 2019.07.04 - CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.07.05 - Nick Moberly & UK MS Register team meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact ADR Wales participation at meeting between Nick Moberly (Chief Executive for the MS Society) and MS Register team
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - CAFCASS data transfer workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in formal planning session re: streamlining the CAFCASS data transfer process. Participation from Lancaster University, Swansea University (including senior SAIL analysts and ADR Co-investigators) and CAFCASS
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - Cancer IT Provision (Richard Clarkson) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Engagement with Dr Richard Clarkson to discuss potential support opportunities with his cancer research department
Year(s) Of Engagement Activity 2019
 
Description 2019.07.09 - ONS metadata meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales hosted event to inform on and plan the development of ONS's metadata across the ADR partnership. Included colleagues from HDR and SAIL to share their existing approaches
Year(s) Of Engagement Activity 2019
 
Description 2019.07.10 - Monash ARDC Proposal discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Monash ARDC Proposal discussion
Year(s) Of Engagement Activity 2019
 
Description 2019.07.12 - MoJ Discussion with Karen Broadhurst and Lisa Harker 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in MoJ discussion with Karen Broadhurst and Lisa Harker
Year(s) Of Engagement Activity 2019
 
Description 2019.07.15 - Jeff Giansiracusa - application for ESPRC funded hub for mathematical sciences in healthcare 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Engagement with Prof Jeff Giansiracusa around an application for ESPRC funded hub for mathematical sciences in healthcare
Year(s) Of Engagement Activity 2019
 
Description 2019.07.17 - Manchester Digital Epidemiology Summer School 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact David Ford participation in a wider programme of lecturing at the Manchester Digital Epidemiology Summer School
Year(s) Of Engagement Activity 2019
 
Description 2019.07.19 - SAIL External Advisory Board - Paul Roderick 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Prof Paul Roderick (University of Southampton) in advance of the SAIL Advisory panel
Year(s) Of Engagement Activity 2019
 
Description 2019.07.23 - Conference call with Univeristy of Chicago (Ronan Lyons, Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Discussion around potential collaborations with University of Chicago (Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan)
Year(s) Of Engagement Activity 2019
 
Description 2019.07.29 - Australian Global Experiences Digital Research Infrastructure Federations 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales participation and coordination of a fact finding delegation visiting Swansea from the Australian Global Experiences Digital Research Infrastructure Federations.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.06 - Oliver Bird Fund Research Programme Panel Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation as a member of the funding decision panel (Oliver Bird Fund Research Programme)
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - Digital Health CRC w/ Victor Pantano 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Discussion on Australia's use of data sharing with Victor Pantano, CEO of Digital Health CRC.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - ONS National Statician's Quality Review (Anthony Edwards) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales engagement with an ONS review - assessing current linkage across government and linking across academia.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.29 - Karen Broadhurst update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Update discussion with senior academic colleagues in Lancaster University around the opportunities to connect various justice data research projects. This was with a view to avoiding unnecessary duplication of work and building on existing work to maximise outputs.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.02 - Healthwise Wales External Panel Discussion (Shantini Parajothy) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Healthwise Wales External Panel Discussion (Shantini Parajothy)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.05 - ADR 2019 2nd Scientific Committee Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales membership and participation on ADR 2019 Scientific Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.09.06 - EHDEN Data Partner Call (Nigel Hughes) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion on a potential application - EHDEN Data Partner Call (Nigel Hughes)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.16 - Population segmentation w/ CTMUHB 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration discussions with Cwm Taf Morgannwg University Health Board re: population segmentation
Year(s) Of Engagement Activity 2019
 
Description 2019.09.17 - BREATHE discussion w/ Gwyn Davies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussion around research opportunities with Gwyn Davies re: BREATHE project.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.18 - Health Foundation social care call (Sarah Lowe & Lisa Trigg) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Health Foundation social care call (Sarah Lowe & Lisa Trigg)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.19 - ADR Wales: DDP Discussion & Monthly catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact As part of a regular catch up with senior Welsh Government colleagues, ADR Wales staff discussed the future options for the development of a data sharing solution for use with local authorities in Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.09.20 - MediWales Directors Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation in the MediWales Directors meeting (David Ford is a Director)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Digital Leaders Wales (Swansea School of Management) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales participation in Digital Leaders Wales (Swansea School of Management) event
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Fliss Bennee (WG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Fliss Bennee, Deputy Director of Technology and Digital at Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.10.01 - ICES Scientific Advisory Committee 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Membership of the ICES Scientific Advisory Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.10.04 - PHRN RIIP Funding Call 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with the Population Health Research Network re: RIIP funding call
Year(s) Of Engagement Activity 2019
 
Description 2019.10.08 - HealthWise Wales Meeting with HCRW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions between HealthWise Wales and Health and Care Research Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.09 - Rebecca Cosgriff - CFT & BREATHE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Potential collaboration discussion with Rebecca Cosgriff, Director of Data and Quality Improvement at Cystic Fibrosis Trust (CFT)
Year(s) Of Engagement Activity 2019
 
Description 2019.10.14 - Barry Sandison CEO AIHW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Engagement with Barry Sandison, CEO for Australian Institute of Health and Welfare (AIHW). AIHW is an independent group which provides information and statistics to the Australian Government in order to support better policy and service delivery decisions.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.16 - OECD Workshop in Paris 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales attendance at the Organisation for Economic Co-operation and Development (OECD) event in Paris
Year(s) Of Engagement Activity 2019
 
Description 2019.10.22 - HCRW Infrastructure Away Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at Health and Care Research Wales away day - with a focus on health data infrastructure across Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.23 - GSS Data Linkage Symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at GSS Data Linkage Symposium
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - BREATHE project setup 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR staff supported the development of BREATHE. The BREATHE Digital Innovation Hub is a consortium of five academic institutions in the UK and several industry partner seeking to facilitate and accelerate respiratory science initiatives and outcomes.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - Daniel Reidpath Safe Havens (Bangladesh) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion around potential collaboration with Daniel Reidpath, Senior Director for Health Systems and Population Studies Division in Bangladesh
Year(s) Of Engagement Activity 2019
 
Description 2019.10.29 - UK Health Data Research Alliance Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in the UK Health Data Research Alliance Board
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Current Australian Initiatives - Merran Smith 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Engagement with Merran Smith, Chief Executive for Population Health Research Network in Australia. Discussion was re current Australian initiatives
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Wellcome Landscape Review - UCL team on lesssons learnt from longitudinal population studies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Feedback discussion with UCL team on lesssons learnt from longitudinal population studies
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Welsh Centre for Emergency Medicine Research (WCEMR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions around collaborative opportunities with the Welsh Centre for Emergency Medicine Research (WCEMR)
Year(s) Of Engagement Activity 2019
 
Description 2019.11.06 - Office for Statistics Regulations Conference 'A New Regulatory Vision' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales attendance at the ONS Regulations Conference 'A New Regulatory Vision'
Year(s) Of Engagement Activity 2019
 
Description 2019.11.13 - Hub Commerical Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation at the Hub Commercial leads meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.11.18 - Daffodil Cymru meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Supporters
Results and Impact ADR staff supported an engagement with Daffodil Cymru, an organisation that utilises multiple sources of data to identify care services needs across Wales. This discussion was aimed at identifying opportunities for joint working between Daffodil and the research centres that work alongside ADR Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.11.19 - Technical Team Meeting/Trusted Research Environments (Gerry Reilly) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a discussion led by Gerry Reilly, Chief Technology Officer for HDR UK. Discussion was around trusted research environments
Year(s) Of Engagement Activity 2019
 
Description 2019.11.21 - Health Data Research UK Science Leadership Symposium and Dinner 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales colleagues (alongside other Swansea University data research teams) attended Health Data Research UK Science Leadership Symposium and Dinner
Year(s) Of Engagement Activity 2019
 
Description 2019.11.26 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Fuel Poverty in Wales conference
Year(s) Of Engagement Activity 2019
 
Description 2019.11.27 - HDR UK Public Health meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the HDR UK public health meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.12.02 - SAIL External Scientific Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales staff participated and supported the coordination of the SAIL External Scientific Advisory Board
Year(s) Of Engagement Activity 2019
 
Description 2019.12.03 - Housing, Health & Fuel Poverty (Paul Roderick) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Development of ongoing collaborative discussions and planning with Paul Roderick in the areas of housing, health and fuel poverty data. Conversations included research team members on the Welsh Government Fuel Poverty project
Year(s) Of Engagement Activity 2019
 
Description 2019.12.06 - PPHI Management Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact ADR Wales participation in the Population and Patient Health Informatics (PPHI) Management Board. PPHI is a cross disciplinary research group within Swansea University which brings together academic colleagues that have a joint interest in population data research
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - 4th International Conference on Administrative Data Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact ADR Wales team heavily supported the delivery of the ADR 2019 conference, with a number of staff facilitating the events and discussions throughout the day. A number of associated researchers and academics attended and presented
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented paper on Receipt and Effectiveness of Careers Guidance in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented Paper on Careers Guidance and Transitions to Further Education in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Flying Start presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Analysis of Flying Start outcomes using linked data: Childcare analysis' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Ministerial speech at ADR Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Minister for Finance and Trefyndd opened the second day of the ADR Conference with a speech that reflected their strong support for the work of ADR Wales and the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Well-being SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Assessing the health impacts of adults' participation in Wales: Investigating the mediating role of accesibility to sports facilities' at ADR 2019 conference. Presntation was a high level descriptive/text based update on the work of an upcoming report.
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Early Years SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The association between mother's alcohol consumption during pregnancy and their child's educational attainment and risk of hospitalisation by age 14 - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (IT) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Better data, better knowledge: developing an ideal honlessness data system drawing on lessons from global practice' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (PM) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The Prevention priority - linking education and homelessness data to inform policy in Wales' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.12 - Pennsylvania University visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales hosted a visit from senior research and academic visitors from Pennsylvania University to discuss opportunitites for future collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.12.18 - GPW & SAIL - UK Genomics Strategy 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with colleagues at the Genomic Partnership Wales (GPW - Wales Gene Park) to support development of the UK Genomics Strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.12.19 - CDSI visit to SAIL 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted a visit from the Leicester Clinical Data Science Institute. ADR staff in attendance provided an overview of the model utilised in Wales to help identify opportunities for the CDSI to utilise a similar method (supported by the UKSeRP)
Year(s) Of Engagement Activity 2019
 
Description 2020.01.08 - HDRUK/Hub Commercial Framework Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with HDR UK to discuss the Hub Commercial Framework
Year(s) Of Engagement Activity 2020
 
Description 2020.01.14 - MoJ, FJO and SAIL data linkages 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around data linkage opportunities between Moj, Family Justice Observatory, and SAIL datasets.
Year(s) Of Engagement Activity 2020
 
Description 2020.01.23 - Presentation to WRA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Supported Chief Statistician for Wales in an engagement with the Welsh Revenue Authority to discuss the development of a collaborative research project
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Housing Information Group event
Year(s) Of Engagement Activity 2020
 
Description 2020.02.17 - ADR Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales undertook a process of refocusing the programme steering group to include participants from senior policy (Welsh Government) who could take a more active advisory role. This re-aligned group included the senior SIP academics as well, with the intention of reinforcing a direct link between the work being done at a research level and the policy team implementing the outputs
Year(s) Of Engagement Activity 2020
 
Description 4th International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Cardiff
Year(s) Of Engagement Activity 2019
 
Description Academy of Medical Sciences' policy workshop on health data and future data driven technologies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Alzheimer's Disease Data Initiative Working Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Washington and London
Year(s) Of Engagement Activity 2018,2019
 
Description Big data and public health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Sanda Macara BMA Memorial Lecture, Cardiff
Year(s) Of Engagement Activity 2020
 
Description British Heart Foundation Data Science Centre Implementation Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018,2019
 
Description Children in Wales annual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Cardiff
Year(s) Of Engagement Activity 2018
 
Description Consumer Panel for Data Linkage, Development of Wales Multi-morbidity Cohort 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Creating a national approach: the SAIL Databank 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Joint UK-Switzerland Research Symposium, Zurich
Year(s) Of Engagement Activity 2019
 
Description Cwm Taf University Health Board and Public Health Wales, Learning Health System meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Telephone conference
Year(s) Of Engagement Activity 2020
 
Description Dementias Platform UK: Data Portal 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation to MRC Oversight Board, London
Year(s) Of Engagement Activity 2019
 
Description Developing the HDR UK Public Health Research Strategy 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Wellcome Trust, London
Year(s) Of Engagement Activity 2019
 
Description ESRC Expert Advisory Group on Longitudinal Studies 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description European Injury Database Advisory Board 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Telephone conference
Year(s) Of Engagement Activity 2019
 
Description European Union Health Programme: Information for Action 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Brussels
Year(s) Of Engagement Activity 2019
 
Description Health and Care Research Wales Scientific Advisory Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Wales
Year(s) Of Engagement Activity 2019
 
Description Hosting NHS Digital visit to Swansea University 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea University
Year(s) Of Engagement Activity 2018
 
Description International Collaborative Effort on Injury Statistics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Hanoi, Vietnam
Year(s) Of Engagement Activity 2018
 
Description International Scientific Advisory Board, Lady Davis Institute 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact McGill University, Montreal
Year(s) Of Engagement Activity 2019
 
Description MRC Biannual Leaders' Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description MRC Methodology Research Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description MRC expert workshop on the development of guidance for complex evaluation 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description Making game changing improvements in the health of patients and populations 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Adelaide University, Australia
Year(s) Of Engagement Activity 2018
 
Description Meeting with CMO Wales, Dr Frank Atherton, on big data and public health evaluation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Meeting with GSK Imaging Analytics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Meeting with Health Foundation on Data Science 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Meeting with Public Health Wales re Injury Surveillance 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Northern Ireland Honest Broker Service 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Belfast
Year(s) Of Engagement Activity 2018
 
Description OSCHR Health Informatics Expert Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description Population Research Resources Workshop (ESRC, MRC, Wellcome) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Potential of big data research for geriatric medicine, British Geriatric Scoiety 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact British Geriatric Society, Cardiff
Year(s) Of Engagement Activity 2019
 
Description Precision public health: the value of disparate sources of data in understanding and improving health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Public Health England Scientific Conference, Warwick
Year(s) Of Engagement Activity 2019
 
Description Royal College of Physicians. Cardiovascular, metabolic and kidney disease: crosscutting science and best practice in multimorbidity 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Saving the NHS through Data Science 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Health and Care Research Wales conference, Cardiff
Year(s) Of Engagement Activity 2018
 
Description Symposium on Big Data in Healthcare. Distributed team science: real world and cohort data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Partnership between Weizmann Institute of Science and Nature Medicine, Tel Aviv
Year(s) Of Engagement Activity 2019
 
Description Technology Sector Symposium, Developing a Health Data Research Platform 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description UK Biobank Outcomes Working Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2020
 
Description UK Public Health Sciences Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Update on SAIL Databank and related activities. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation to Chief Medical Officer, Wales, Swansea
Year(s) Of Engagement Activity 2019
 
Description Wales Critical Care Network - development of linked data resource for evaluation Office for National Statistics; SAIL and census data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Wales Trauma Network - development of linked data resource for evaluation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Videoconference
Year(s) Of Engagement Activity 2019
 
Description Weizmann Institute of Science, Big Data Meeting, Tel-Aviv 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Tel-Aviv
Year(s) Of Engagement Activity 2019
 
Description Wellcome Science Interview Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019