Administrative Data Research Centre Wales (Part of ADR UK)
Lead Research Organisation:
Swansea University
Department Name: Institute of Life Science Medical School
Abstract
Please see attached documentation
Organisations
- Swansea University (Lead Research Organisation)
- Cardiff University (Collaboration)
- Public Health Wales NHS Trust (Collaboration)
- SAIL Databank (Collaboration)
- Economic and Social Research Council (Collaboration)
- Ministry of Justice and Public Security (Collaboration)
- BANGOR UNIVERSITY (Collaboration)
- Social Care Wales (Collaboration)
- Government of Scotland (Collaboration)
- Government of Wales (Collaboration)
- Office for National Statistics (Collaboration)
- Health Data Research UK (Collaboration)
Publications
Abbasizanjani H
(2023)
Harmonising electronic health records for reproducible research: challenges, solutions and recommendations from a UK-wide COVID-19 research collaboration
in BMC Medical Informatics and Decision Making
Akbari A
(2022)
Developing a population-scale harmonised ethnicity-spine in Wales.
in International Journal of Population Data Science
Allnatt G
(2022)
Data resource profile: children looked after administrative records in Wales.
in International journal of population data science
Allnatt G
(2022)
Use of Linked Administrative Children's Social Care Data for Research: A Scoping Review of Existing UK Studies
in The British Journal of Social Work
Alsallakh M
(2023)
Patterns of Healthcare Resource Utilisation of Critical Care Survivors between 2006 and 2017 in Wales: A Population-Based Study
in Journal of Clinical Medicine
Bandyopadhyay A
(2023)
Weighting of risk factors for low birth weight: a linked routine data cohort study in Wales, UK.
in BMJ open
| Title | ADR Wales Programme of Work launch video |
| Description | A video showing the highlights of the ADR Wales Programme of Work launch at Senedd Cymru, including support from the Minister for Health and Social Services, Eluned Morgan. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2023 |
| Impact | An easily digestible account of the planned work and the support that the Programme and investment has received from Ministers in Wales. |
| URL | https://www.youtube.com/watch?v=8iY31wZnEy8 |
| Title | ADR Wales overview video 2022 |
| Description | A video for use on the ADR Wales website, social media and as an engagement tool that describes the purpose, aims and people behind ADR Wales |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | This video succinctly explains the work of ADR Wales, the value of the investment and it's role aiding policy decision making in the UK. |
| URL | https://www.youtube.com/watch?v=55eMESkNEUg |
| Title | Fuel poverty overview video English language 2022 |
| Description | A video explaining the work of the ADR Wales looking at warm homes schemes in Wales. The video relays the team's findings and the impact that has been achieved. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | This video covers a programme of work that spanned several years and succinctly relayed the work and the considerable impact that the findings had on the eligibility criteria for accessing fuel poverty schemes in Wales. |
| URL | https://www.youtube.com/watch?v=tj8ii40LLT0 |
| Title | HAPPEN study engagement video for use at ADR UK Conference 2022 |
| Description | A video of HAPPEN lead Dr Emily Marchant discussing how the study engaged with stakeholders and the value that it added to the project. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | The video was played an an example of strong engagement to researchers who travelled from across the UK to attend the ADR UK Conference in Edinburgh in September 2022. |
| URL | https://www.youtube.com/watch?v=fuIyODBS_vY |
| Title | New Data Explained: HAPPEN Dataset |
| Description | A video of ADR Wales researcher Dr Michaela James providing an overview of the ADR Wales Data Explained on the HAPPEN dataset |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2023 |
| Impact | The video provides a very quick, succinct synopsis of the dataset for interested researchers. |
| URL | https://adrwales.org/6329/ |
| Title | Welsh language Fuel poverty video 2022 |
| Description | A video in Welsh that explains the work of the ADR Wales team and the impact that the findings went on to have on how fuel poverty schemes were implemented |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | This video details several years of work and the resulting impact that has been achieved, namely a significant change in teh eligibility criteria for warm homes schemes in Wales. The video enables the user to cover several years of work in a digestible way. |
| URL | https://www.youtube.com/watch?v=9CFLOU94L9Y&t=2s |
| Description | 2022 Collaboration included in Welsh Government, Equality, Race and Disability Evidence Units strategy |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Citation in other policy documents |
| URL | https://www.gov.wales/sites/default/files/pdf-versions/2022/10/1/1666000672/equality-race-and-disabi... |
| Description | 2022 MRC Data Science Strategic Advisory Group (DSAG) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022 Office Statistics Regulation - invitation to input to data sharing/linkage review |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | 2022.0.629 Advanced Detection of Disease (ADD) Advisory Board (Our Future Health (OFH)) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.03.17 SafePod Network Advisory Board Meeting |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.04.07 Digital Research Infrastructure Committee & Advisory Group (DRIC) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.05.03 ISCF Accelerated Detection of Disease Advisory Group Meeting |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.05.05 ARDC SeRP Advisory Committee Meeting |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.06.09 Development and delivery of Synthetic Data Pre Conference Workshop at IPDLN 2022, Simon Thompson, Ashley Akbari |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | 2022.06.16 DARE Extraordinary Scientific and Technical Advisory Group (STAG) Meeting |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.06.21 Involvement in Centrepoint event to advise and develop Upstream Cymru, Pete Mackie |
| Geographic Reach | National |
| Policy Influence Type | Contribution to new or improved professional practice |
| Description | 2022.09.06 'Impact through meaningful engagement and practice' Pre=Conference Workshop design and delivery, Cathrine Richards |
| Geographic Reach | National |
| Policy Influence Type | Contribution to new or improved professional practice |
| Description | 2022.09.06, Wallich homelessness policy and evidence training session |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | A half day training session delivered to senior strategy staff at the Wallich on current evidence on homelessness prevention. The session relied heavily on ADR Wales outputs. Participants reported that they benefitted from the information provided. |
| Description | 2022.10.14, Dr Pete Mackie, Welsh Government Homelessness Outcomes Framework Steering Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2022.10.17 Wales Cancer Biobank (WCB) Advisory Board |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | 2023.03.07 Wales Clinical Academic Training Day WCAT, Ashley Akbari |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Cancer Research UK Data Advisory Board |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Developing the 'Future Data Service' for ESRC |
| Geographic Reach | National |
| Policy Influence Type | Contribution to new or improved professional practice |
| Description | Member of the Bevan Commission Working Group |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Supporting the development of the Scottish National Research Infrastructure |
| Geographic Reach | Europe |
| Policy Influence Type | Contribution to new or improved professional practice |
| Description | ADR UK Research-ready data and access funding |
| Amount | £300,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2023 |
| End | 03/2025 |
| Description | ADR/ESRC Studentship |
| Amount | £60,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 08/2027 |
| Description | AD|ARC Project (Led by Welsh Government) |
| Amount | £86,111 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2022 |
| End | 03/2023 |
| Description | Administrative Data| Agricultural Research Collection Welsh Matched funding |
| Amount | £100,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2023 |
| End | 03/2025 |
| Description | Creating harmonised and scalable methods and tools for constructing households in large diverse administrative and health research datasets |
| Amount | £887,777 (GBP) |
| Funding ID | ES/X00046X/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2023 |
| End | 01/2025 |
| Description | DARE UK (HDRUK) |
| Amount | £462,933 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2023 |
| End | 10/2023 |
| Description | DARE UK (HDRUK) DARE FX (Collaboration) |
| Amount | £566,457 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2023 |
| End | 10/2023 |
| Description | Development of a data cohort identifier system - Special Opportunities funding |
| Amount | £68,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 03/2022 |
| Description | MoJ BOLD - Substance Misuse Project (Welsh Government and Public Health Wales Partners) |
| Amount | £281,725 (GBP) |
| Organisation | Ministry of Justice |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 03/2024 |
| Description | PHR Researcher Led |
| Amount | £6,843 (GBP) |
| Funding ID | 313504 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2022 |
| End | 05/2024 |
| Description | PHaCT Trial: Preventing Homelessness improving health for people leaving prison: a pilot randomised controlled trial of a Critical Time intervention |
| Amount | £744,145 (GBP) |
| Funding ID | NIHR134281 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2022 |
| End | 05/2024 |
| Description | Secure Research Environment for Government |
| Amount | £120,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2023 |
| End | 03/2026 |
| Description | Senior Research Leaders Discretionary Award |
| Amount | £60,000 (GBP) |
| Funding ID | SRL2022-25-09 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2022 |
| End | 03/2023 |
| Description | The Effectiveness and Cost-Effectiveness of a Clinical Violence Prevention Team Based in the Emergency Department |
| Amount | £91,724,336 (GBP) |
| Funding ID | NIHR134055 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 08/2024 |
| Description | The impact of additional learning needs identification in Wales |
| Amount | £56,904 (GBP) |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2023 |
| End | 01/2024 |
| Description | Wales Covid Evidence Centre (Additional) - Special Opportunities funding |
| Amount | £65,000 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 03/2023 |
| Title | Data use Register - SAIL Databank |
| Description | Data use registers are part of ensuring public trust and acceptability in the transparent use of public data for research. An additional benefit is that they are an effective resource for data owners, researchers and funders to see what datasets have been made available for research by a trusted research environment. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Impact will be recorded in 2024 Research Fish submission. Public engagement case study on the impact and value of data use registers is being developed. |
| URL | https://saildatabank.com/data/data-use-register/ |
| Title | Federated Data Analysis Model |
| Description | A model of federated data analysis has been developed during the grant period. This mechanism allows data centres around the UK to have data queried by researchers without data leaving their safe havens. The development of this approach will seek to address the common governance barriers to sharing of datasets across jurisdictions and will allow researchers to analyse a greater range of data. The model is being refined and is supported by funding in 2023 from the DARE UK programme. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | No |
| Impact | The model is being proven currently in the DARE UK funding with partner data centres. |
| Title | Phenomics Library |
| Description | Building on a pilot - The Phenotype Library developed by SAIL Databank is a platform to host phenotyping algorithms and harness their power for research. The aim is to provide researchers with the "GitHub of phenotyping": an open platform for creation, storage, dissemination, re-use, evaluation, and citation of curated algorithms and metadata. The goal is for this to be a place where researchers can share their own work, benefit from what others have shared, and even build new collaborations. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | A growing development of phenotypes, concepts that are actively used by the research community and the ability for researchers to actively contribute new types arising from their work. |
| URL | https://phenotypes.healthdatagateway.org/ |
| Title | Rapid cohort identification system |
| Description | The tool will allow rapid identification of cohorts from population level data for the following purposes: 1. Identification of clinical trial participants (not disclosed at individual level, it provides a feasibility assessment that a viable cohort exists within a geography) 2. Identification of groups with specific characteristics (not disclosed at individual level) The purpose of the tool is to allow a rapid assessment of the size of a pre defined group within a population that have specific societal status and/or health issues. It will operate as an information and feasibility tool. It has been funded by Welsh Government to build on work that was undertaken to identify specific groups that were at risk during the pandemic. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | No |
| Impact | The Beta model has just been developed and is undergoing testing, impacts will be reported in the next submission. |
| Title | Statistical Disclosure Control System |
| Description | Statistical Disclosure control (SDC) is a managed process where researchers request outputs (such as charts/graphs) from the research within a secure environment. These outputs are then reviewed by 2 senior analysts to check for any small numbers or potential risks of identification of people. Previously this was a manual process that relied on the two reviewers to obtain, assess and return reviews. The new system error traps any potential issues, is auditable, allows a greater tracking of workload and provides the reviewers a much more structured environment to assess outputs and thus is more efficient for staff and researchers who are awaiting outputs. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | No |
| Impact | Reviews are now undertaken faster - Allowing the KPI of 'Reviews to be completed in 2 days' to be tracked Reviews can be shared amongst team members more easily to help with developing new SDC checkers Easier to identify common issues and communicate solutions to the research base Human error is mitigated (no accidental approval) |
| Title | AD|ARC Wales Research Ready Dataset |
| Description | De-identified linked administrative dataset covering farming households in Wales alongside four matched control groups |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | No |
| Impact | The AD|ARC team is in discussion with policy makers on how to disseminate preliminary findings. The team are also working with the ESRC to create funded research fellowships to use the dataset. |
| Title | Anti Viral Dataset - Digital Health and Care Wales |
| Description | Deidentified Anti Viral Dataset - Digital Health and Care Wales, deposited into the SAIL Databank |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Available for use by accredited, approved researchers via SAIL's IGRP application process |
| Title | Carer Assessment Data - Denbighshire |
| Description | Deidentified Carer Assessment Data - Denbighshire, deposited into the SAIL Databank |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | Will shortly be available to accredited, approved researchers via SAIL's IGRP application process. |
| Title | Carer Assessment Data - Neath Port Talbot County Borough Council |
| Description | Deidentified Carer Assessment Data - Neath Port Talbot CBC deposited into SAIL Databank |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Available for use to accredited, approved researchers via SAIL's IGRP application process. |
| Title | Carer Assessment Data - Swansea Council |
| Description | Deidentified Carer Assessment Data - Swansea Council deposited into the SAIL Databank |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Available for use to accredited, approved researchers via SAIL's IGRP application process. |
| Title | Census 2021 - Office of National Statistics |
| Description | Deidentified ONS Census 2021 deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | This will shortly be available to researchers |
| Title | Data First - Crown Court Defendant Data - Ministry of Justice |
| Description | Deidentified Ministry of Justice Data First - Crown Court Defendant Data deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | This will shortly be available for use to accredited, approved researchers via SAIL's IGRP application process. |
| Title | Data First - Family Man Data - Ministry of Justice |
| Description | Deidentified Ministry of Justice Data First - Family Man Data deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Available for use by accredited, approved researchers via the SAIL Databank's IGRP application process. |
| Title | Data First - Magistrates' Court Defendant Data - Ministry of Justice |
| Description | Deidentified Ministry of Justice Data First - Magistrates' Court Defendant Data deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | Available for use to accredited, approved researchers via the SAIL Databank's IGRP application process. |
| Title | Data First - Prisoner Custodial Journey Data - Ministry of Justice |
| Description | Deidentified Ministry of Justice Data First - Prisoner Custodial Journey Data deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | This will shortly be available for use to accredited, approved researchers via SAIL's IGRP application process. |
| Title | Data First - Probation Data - Ministry of Justice |
| Description | Deidentified Ministry of Justice, Data First - Probation Data deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | This dataset will shortly be available for use by accredited approved researchers via SAIL's IGRP application process |
| Title | National Survey for Wales 21/22 - Welsh Government |
| Description | Deidentified National Survey for Wales 21/22 - Welsh Government, deposited into the SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Available for use to accredited, approved researchers via the SAIL Databank's IGRP application process. |
| Title | Radio Therapy Data Set - Digital Health and Care Wales |
| Description | Deidentified Radio Therapy Data Set - Digital Health and Care Wales deposited into SAIL Databank. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Available for use to accredited, approved researchers via SAIL's IGRP application process |
| Title | School Health Research Network Health and Wellbeing Survey - Cardiff University |
| Description | Deidentified School Health Research Network Health and Wellbeing Survey deposited into the SAIL Databank |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | This dataset will very shortly be available to accredited, approved researchers via SAIL's IGRP application process. |
| Description | Census 2021 provisioning ONS/ADR Wales |
| Organisation | Office for National Statistics |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | ONS are in a major transitional phase from the Secure Research Service (SRS) to the new Integrated Data Service (IDS) SAIL/ADR Wales have been given the major responsibility of hosting and provisioning the Census 2021 UK record to UK researchers. |
| Collaborator Contribution | Data acquisition of UK Census Support for provisioning at scale Linkage of data |
| Impact | None yet - To be reported in 2024 Research Fish entry |
| Start Year | 2022 |
| Description | ESRC Doctoral Training Partnership - Supporting PhDs with Data Science |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | During the award, ADR Wales ahs supported the securing of 3 PhDs via the DTC. ADR Wales supports PIs in applications and provides a 'wrap around' support package for PhDs in data science. |
| Collaborator Contribution | ADR Wales has a collaboration with the Wales DTC and provides support, training and knowledge for the PhD recruitment the partner facilitates the management of this work. |
| Impact | 3 PhDs secured to date via external application process |
| Start Year | 2022 |
| Description | MoJ BOLD Research Programme (Better Outcomes from Linked Data) |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | The MoJ BOLD Team, Public Health Wales and Welsh Government and ADR Wales have partnered on a project to analyse impacts of substance misuse on individuals, health services and society. Project in very early stages Also supporting BOLD, via ADRUK with its stragey |
| Collaborator Contribution | Outlines the benefits of using a TRE for this activity Promoted the work of ADRUK and an assurance to BOLD that the team had extensive experience in linked data research at a UK level. Developed project methodology and research objectives Identified required data |
| Impact | Early stages, no outputs yet. Will be captured in the next RFish period. |
| Start Year | 2022 |
| Description | MoJ BOLD Research Programme (Better Outcomes from Linked Data) |
| Organisation | Ministry of Justice |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | The MoJ BOLD Team, Public Health Wales and Welsh Government and ADR Wales have partnered on a project to analyse impacts of substance misuse on individuals, health services and society. Project in very early stages Also supporting BOLD, via ADRUK with its stragey |
| Collaborator Contribution | Outlines the benefits of using a TRE for this activity Promoted the work of ADRUK and an assurance to BOLD that the team had extensive experience in linked data research at a UK level. Developed project methodology and research objectives Identified required data |
| Impact | Early stages, no outputs yet. Will be captured in the next RFish period. |
| Start Year | 2022 |
| Description | MoJ BOLD Research Programme (Better Outcomes from Linked Data) |
| Organisation | Public Health Wales NHS Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | The MoJ BOLD Team, Public Health Wales and Welsh Government and ADR Wales have partnered on a project to analyse impacts of substance misuse on individuals, health services and society. Project in very early stages Also supporting BOLD, via ADRUK with its stragey |
| Collaborator Contribution | Outlines the benefits of using a TRE for this activity Promoted the work of ADRUK and an assurance to BOLD that the team had extensive experience in linked data research at a UK level. Developed project methodology and research objectives Identified required data |
| Impact | Early stages, no outputs yet. Will be captured in the next RFish period. |
| Start Year | 2022 |
| Description | Social Care Wales/ADR Wales - Data Aquisition and key research collaboration |
| Organisation | Social Care Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADR Wales will be seconding a Research Officer who will work with Social Care Wales (SCW) to undertake the following: - Data acquisition primarily Adult Social Care - Supporting research development in local authority social services ADR Wales will manage the data acquisition process and SAIL will provision the data. One of the primary aims of the post is to build on the success of acquiring and developing the Children's Social Care dataset (Wales) and replicate this with Adult Social care data. |
| Collaborator Contribution | Provide expertise and contacts in Social Care in Wales Lead on acquisition and research strategy for newly acquired data. Support seconded post to execute the objectives of the role |
| Impact | No outcomes yet - Only commenced December 2022 |
| Start Year | 2022 |
| Description | Support to Research Data Scotland |
| Organisation | Government of Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | As part of the ADRUK funding, ADR Wales was required to support other country data infrastructures with knowledge exchange, sharing of best practice to enable them to develop. ADR Wales and SAIL Databank staff have a programme of meetings with Research Data Scotland staff supporting them in a range of areas from data acquisition processes, data management, user applications and support and also governance. |
| Collaborator Contribution | The partner (RDS) are using the knowledge shared by ADR Wales to improve their services and processes to deliver linked data for research purposes. |
| Impact | As part of the ADRUK funding, ADR Wales was required to support other country data infrastructures with knowledge exchange, sharing of best practice to enable them to develop. ADR Wales and SAIL Databank staff have a programme of meetings with Research Data Scotland staff supporting them in a range of areas from data acquisition processes, data management, user applications and support and also governance. |
| Start Year | 2022 |
| Description | UKRI DARE Programme |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Providing input into planning of DARE at strategic level via UKRI groups and HDR UK/ADR UK management meetings. |
| Collaborator Contribution | Management of the delivery of the DARE programme |
| Impact | No outcomes realised yet. |
| Start Year | 2021 |
| Description | UKRI ESRC Safe Pod Network |
| Organisation | Economic and Social Research Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | The Safe Pod Network is an ESRC funded programme that places small physical secure 'pods' into academic institutions that researchers can use to conduct secure analysis of data. SAIL has gone through the 'on boarding' process and assurance checks and is now formally a member of the Safe Pod network. |
| Collaborator Contribution | Provided full information requirements on the following to join the network: Technical architecture Governance Certifications Access processes |
| Impact | Wider access for researchers to secure data where a data owner has specified that analysis may only be undertaken in a certified secure environment. |
| Start Year | 2022 |
| Description | Welsh Government Covid Evidence Centre |
| Organisation | Bangor University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022 |
| Collaborator Contribution | Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources |
| Impact | Outputs recorded under 'Publications' section. |
| Start Year | 2020 |
| Description | Welsh Government Covid Evidence Centre |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022 |
| Collaborator Contribution | Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources |
| Impact | Outputs recorded under 'Publications' section. |
| Start Year | 2020 |
| Description | Welsh Government Covid Evidence Centre |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022 |
| Collaborator Contribution | Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources |
| Impact | Outputs recorded under 'Publications' section. |
| Start Year | 2020 |
| Description | Welsh Government Covid Evidence Centre |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022 |
| Collaborator Contribution | Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources |
| Impact | Outputs recorded under 'Publications' section. |
| Start Year | 2020 |
| Description | Welsh Government Covid Evidence Centre |
| Organisation | Public Health Wales NHS Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022 |
| Collaborator Contribution | Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources |
| Impact | Outputs recorded under 'Publications' section. |
| Start Year | 2020 |
| Description | Welsh Government Covid Evidence Centre |
| Organisation | SAIL Databank |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022 |
| Collaborator Contribution | Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources |
| Impact | Outputs recorded under 'Publications' section. |
| Start Year | 2020 |
| Title | LinXmart Data Linkage Product |
| Description | LinXmart is a software application developed by Curtin university and used in collaboration in the UK with SeRP. LinXmart enables dataset to be linked via either probabilistic or deterministic linkage processes. |
| Type Of Technology | Software |
| Year Produced | 2019 |
| Impact | Increased ability to link data from different organisations to develop a full picture of the individual. |
| URL | https://linxmart.com.au/ |
| Title | New data linkage engine for producing linked datasets in trusted Third Party (TTP) |
| Description | The existing technology in the SAIL TTP (Digital Health and Care Wales) has been in operation since 2010. The purpose of the linkage technology is to allow identifiable records to be submitted by a data owner, then automatically anonymised and then linked via an encrypted key to the 'payload data' that resides in the SAIL Databank. The old system was nearing its end of life and ability to be incrementally upgraded. |
| Type Of Technology | New/Improved Technique/Technology |
| Year Produced | 2022 |
| Impact | - Fast upload of data by data owners and very little technical expertise required - Better probabilistic matching - Greater ability to manage new kinds of data eg imaging - Greater ability to upload larger datasets (previously large datasets would have to be divided) - Automated quality checks |
| Title | SeRP is a Trusted Research Environment which is used by ADR Wales to host Administrative Data and make this available in combination with Health Data for the overall aims of the programme. |
| Description | SeRP is a Trusted Research Environment which allows data providers to host data and make this data available for users as they see fit. The data is accessible via Virtual Desktop Interface. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2007 |
| Impact | Increased accessibility of administrative and health data through a trustworthy and secure location to host data. |
| URL | http://SERP.AC.UK |
| Description | 09.2022 ADR Wales data acquisition and Research Data Scotland meeting, Cynthia McNerney |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meetings between ADR Wales data acquisition and Research Data Scotland to give overview on SAIL's Data Acquisition process and advice to support them with their set up. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 13.09.22 SABRE Cymru One Wales presentation, Ashley Akbari |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation to the Social and Behavioural Sciences Rapid Response Network for Infectious Diseases (SABRE Cymru) on the One Wales, ADR Wales approach and findings |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://sabrecymru.uk/ |
| Description | 2022 2023 ADR Wales Researcher Engagement series |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A group of ADR Wales researchers and researchers from related investments that meet every two weeks to discuss their research, share best practice and provide guidance to others on data matters. This group is managed and maintained by ADR Wales. |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 2023 Data First and SAIL meetings, Cynthia McNerney |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Data First/SAIL fortnightly catch ups, to progress acquisition of data under the Data First Programme, discuss project applications, share knowledge |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 2023 Monthly ADR Wales and ONS data acquisition meeting, Cynthia McNerney |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A monthly meeting to provide updates on acquisitions of administrative data for the partnership, seek advice on business cases and data sharing agreements. |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 AD|ARC Quarterly England Stakeholder Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | A quarterly meeting to discuss with stakeholders the progression and future planning for the AD|ARC project |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Quarterly Scotland Stakeholder Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | A quarterly meeting with third sector stakeholders to discuss the AD|ARC project progress and planning |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Quarterly Stakeholder Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | A Quarterly stakeholder group to plan and discuss AD|ARC progression and planning |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Scientific Advisory Board - Environment & Place |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A quarterly Scientific Advisory Board meeting to discuss matters around environment & Place |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Scientific Advisory Board - Mental Health & Well-being |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A quarterly Scientific Advisory Board meeting to discuss matters around mental Health & Well-being |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Scientific Advisory Board - Physical Health & Well-being |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A quarterly Scientific Advisory Board meeting to discuss matters around physical Health & Well-being |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Scientific Advisory Board - Prosperity & Resilience |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | An AD|ARC Scientific Advisory Board to discuss matters around prosperity & Resilience |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC Scientific Advisory Board - Socio-demographics |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A formal working group to discuss sociodemographics. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC presentation at Data Connect Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by the AD|ARC team at Data Connect Conference 2022 |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.gov.uk/government/news/dataconnect22-is-coming |
| Description | 2022 AD|ARC presentation to ADR UK Ambassadors event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A presentation to the ADR UK Ambassadors to provide an overview of AD|ARC |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC presentation to Agri Food and Bioscience Institute (AFBI) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation by the AD|ARC team to the AFBI, providing an overview of the project and plans |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC presentation to Scottish Government's Rural and Environment Science and Analytical Services Division (RESAS) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation by the AD|ARC team to RESAS to provide an overview of AD|ARC and its plans |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC team overview presentation to ADR Scotland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | AD|ARC team overview presentation to ADR Scotland research team and affiliates |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 AD|ARC team presentation to UK Statistics Authority |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation given by the AD|ARC team to the UK Statistics Authority, providing overview and plans |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 Chair of Quarterly UK Health Data Research Alliance Diversity in Data - Ethnicity coding working group, Ashley Akbari |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chair of the quarterly UK Health Data Research Alliance Diversity in Data - Ethnicity coding working group. The session provides an opportunity for stakeholders working in this area to share their research and intelligence experiences. |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 Chair of fortnightly SAIL and DHCW working group, Ashley Akbari |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chair of a fortnightly meeting between SAIL and DCHW to organise and develop ongoing relationships. |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 EUSS Steering Group quarterly |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A quarterly meeting of the Steering Group for the ADR Wales EUSS project |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 Monthly AD|ARC and DEFRA meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A monthly meeting with ADR Wales AD|ARC project and DEFRA to discuss planning and progression |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022 Monthly Government Social Researcher (GSR) meeting attendance |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance o behalf of ADR Wales at the monthly GSR Committee meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022 ONS Social Care knowledge sharing meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales attendance at bi monthly ONS Social Care knowledge sharing meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.01.12 ADR Wales programme of work launch news release and social media content |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A news release and social media activity to detail the ADR Wales Programme of Work launch event and the detail included in the 2022-2026 work plan |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://adrwales.org/adr-wales-unveils-programme-of-work-at-welsh-parliament/ |
| Description | 2022.03.17 ADR Wales Climate change planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales portfolio of work meeting with Climate change officials and ADR Wales academics |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022.03.17 UKRI Actionable Insights Seminar, Dr Peter Mackie |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A presentation on Covid-19 and homelessness drawing upon evidence collected across three different ESRC investments. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.03.18 Data & Research Ministerial Briefing |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Participation in Data & Research Ministerial Briefing |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.03.21 Our Future Health Working Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Future Health meeting with academics, Health Boards and Welsh Blood Service |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.03.22 Centrepoint Ending Youth Homelessness Together Conference keynote, Dr Peter Mackie |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A presentation on a homelessness prevention typology and descriptive data on the early implementation of the Upstream Cymru intervention |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.03.23 ADR Wales Mental health planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | An ADR Wales meeting with mental health policy officials and ADR Wales academics |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022.03.29 ADR Wales EOTAS planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | An ADR Wales meeting with EOTAS officials within Welsh Government |
| Year(s) Of Engagement Activity | 2022,2023 |
| Description | 2022.03.31 ADR Wales ministerial meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales ministerial meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.05 ADR Wales RISE presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales presentation to RISE |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.06 ADR Wales Social Justice planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales meeting with academics and social justice policy contacts |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.06 Welsh Government COVID-19 Data Requirements |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Regular meeting with WG, ONS, NWIS & SAIL |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.08 NHSX TRE (Trusted Research Environment) Design Working Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cross-agency meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.08 News release, ADR Wales academic leads appointed Research Leaders for Wales, Prof Ronan Lyons and Prof Sinead Brophy |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A news release held on the ADR UK website and linked social media to announce the appointment of two of ADR Wales' academic leads as Senior Research Leaders for Wales by Health and Care Research Wales. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://adrwales.org/adr-wales-academic-leads-selected-as-senior-research-leaders-for-wales/ |
| Description | 2022.04.12 UK Health Data Research Alliance Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular Health Data Research Alliance Board meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.21 Pan-UK Data Governance Steering Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular cross-agency steering group, 'for robust, transparent, trustworthy, streamlined and accessible processes for granting data access to health-relevant data across the four nations of the UK, with the aim of delivering improved researcher experience, reducing time between application and approval and building public confidence in the trustworthy use of their data'. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.25 MIRA Partnership |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on grant application. Academic representatives from several institutions. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.25 Swansea and British Columbia Bi-monthly Strategy Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Bi-monthly meeting with British Columbia |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.26 HCRW Governance Meeting (CASCADE) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | HCRW Governance Meeting (CASCADE) |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.26 UKLCC (UK Longitudinal Linkage Collaboration) Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UKLCC (UK Longitudinal Linkage Collaboration) Meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.27 ADR Wales GSR Knowledge Sharing session |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation to GSR participants to raise awareness of ADR Wales |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.27 PHW Interview with User Vision |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interviewed as a key stakeholder in PHW with a view to maximising their work through efficiently meeting the information needs of stakeholders. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.27 Survey for University of Montreal |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Research for develop a valid and reliable tool to assess the responsibility of digital and artificial intelligence based (D/AI) solutions in health and social care. Chosen due to geographical location and expertise. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.28 ADR Wales presentation at MatCHNet Webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales presentation at MatCHNet Webinar |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.04.29 ADR Wales EUSS Home Office meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales meeting to discuss EUSS project with Home Office |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.03 Our Future Health |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on linkage plans and next steps. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.04 Interview on Remote Methods Study with University of Zurich |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Interview with doctoral candidate in the Digital and Mobile Health Group at the University of Zurich, Switzerland, led Professor Viktor von Wyl to assist with a study titled: "Participation in remote digital health studies: an exploration of methodological facilitators and barriers." |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.05 ARDC SeRP Advisory Committee Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ARDC SeRP Advisory Committee Meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.09 Family Justice Data Partnership (FJDP) meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Family Justice Data Partnership (FJDP) meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.10 Alliance & Hub Data Officer Group (Data Standards & Quality Cross-Cutting Workstream) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting to discuss the Goldacre Review |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.11 ADR Wales social care planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A meeting between ADR Wales, ADR Wales academics and social care policy members |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.11 UK REACH |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular catch up meetings |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.12 ADR Wales Education planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A meeting between ADR Wales, ADR Wales academics and education policy members |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.16 MY data webinar discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invite to present at My data webinar. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.18 ADR UK Partnership Conference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance and involvement throughout Conference. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.18 Wales Innovation Policy Roundtable chaired by Jack Sargeant MS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Wales sponsored by Novartis Pharmaceuticals UK Ltd; discussion on mow innovations can improve access to medicine across Wales and how cross-industry collaboration will advance health outcomes. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.05.24 Wales Data Leaders Network Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting involving government, academic and public data leaders. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.06.03 News release and social media for ADR Wales careers guidance publications |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A news release and associated social media detailing the publication of two ADR Wales Data Insights by Rhys Davies and Katy Huxley that looked at the effectiveness and prioritisation of careers guidance using Careers Wales data. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://adrwales.org/new-research-examines-effectiveness-of-careers-guidance-and-how-it-is-prioritis... |
| Description | 2022.06.06 Dr Pete Mackie, Housing Studies Association Conference Presentation on Upstream Cymru |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | This was a presentation to an academic conference but many third sector and some local authority partners also attemd. I presented early descriptive data on the implementaiton of the Upstream Cymru intervention. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.06.07 ADR Wales Social Care planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A meeting between ADR Wales, ADR Wales academics and social care policy leads |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.06.09 News release on testing and prevalence rates of Covid-19 among homeless population |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A news release and linked social media to coincide with the publication of an ADR Wales publication detailing testing and prevalence rates of covid-19 among the homeless population |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://adrwales.org/homelessness-and-covid-19-testing-and-prevalence-rates/ |
| Description | 2022.06.16 DARE Extraordinary Scientific and Technical Advisory Group (STAG) Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chair of the DARE STAG. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.06.17 Data for Research Programme 'Expert Working Group' |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Inaugural meeting for the Health and Care Research Wales Expert WG on 'data for research'. Following commitments in the UK Life Sciences Vision and UK Clinical Research Vision, Health and Care Research Wales are planning a 'data for research' programme, and proposing the creation of an Expert Working Group to provide advice. The intention is for the group to pull together and debate the different strands of work that will shape a successful 'data for research' programme, in order to a) identify the key activities and how we resource/deliver them and b) provide advice/steer on specific issues that impact research uses, to input into the wider discussions on Information Governance, legal gateways and other dependencies. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.06.23 COALESCE full team meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Monthly COALESCE full team meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.06.30 MRC Biomedical Data Science Initiative |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | MRC Biomedical Data Science Initiative discussion. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.05 ADR UK researcher symposium, Jon Smart, Census 2021 data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A presentation to ADR UK researchers on the deposit of Census 2021 into the SAIL Databank |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2022.07.07 EUSS presentation at WISERD Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation to attending academics and delegates at the WISERD Conference on the EUSS project |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.07 Presentation at WISERD Conference, Dr Katy Huxley |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | WISERD Annual Conference, academic, third sector and gov audience, presentation of linked education and census data to explore socio-economic associations with attainment. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.08 Wales Centre for Public Policy engagement meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A meeting with WCPP |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.09 ADR UK researcher symposium, Sian Morrison Rees and Sarah Lowe, Fuel Poverty work |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A presentation to ADR UK researchers on the fuel poverty work undertaken by ADR Wales |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.12 ADR Wales engagement session with Local Authorities |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales presentation and meeting with Local Authorities in Wales |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.13 Discussion with colleagues regarding Data First and police data project |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion between colleagues on the Data First data and ongoing project using police data. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.13 IDS (Integrated Data Service)(ONS) discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on collaborative opportunities between IDS and SAIL. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.20 Presentation at Senedd event, Dr Katy Huxley |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Senedd event on Children and Young People, short presentation on the education related research of ADR Wales. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.20, Dr Pete Mackie, SPARK 3 minute presentation to National Assembly staff on Upstream Cymru |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A very brief presentation on descriptive data relating to Upstream Cymru descriptive data delivered to representatives from the National Assembly for Wales. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.07.21 ADR Wales EOTAS presentation at SPARK |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation and discussion on EOTAS work |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.08.15 SDE (secure data environment) red team session: SAIL |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meetings as required |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.08.23 Perioperative Medicine Database Platform |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on the establishment of a database platform for clinical trials in perioperative medicine and surgery |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.08.30 Genomics Research Review Working Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Initial discussion for the Welsh genomics review leading to development and implementation of the Welsh genomics research strategy. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.02 HealthWise Wales Executive Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Routine meeting of Executive. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.05 Meeting on ESRC Future Data Services programme |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting on ESRC Future Data Services programme |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.06 AD|ARC IPDLN Conference presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation at the IPDLN Conference 2022 on the AD|ARC project |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.07 International Population Data Linkage Network (IPDLN) Conference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Panel chair and member during the 3 day conference |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.07 Presentation at IPDLN Conference, Dr Katy Huxley |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | IPDLN conference presentation of linked education and census data to explore socio-economic associations with attainment. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.15 Wales-Ireland Roundtable |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | "The Life Sciences Hub in Cardiff Bay hosted an event that will bring together targeted companies and leading organisations in digital/artificial intelligence from both nations to a) understand more about opportunities for providing digital/AI solutions and how to progress in respective ecosystems b) raise awareness of solutions being developed/currently offered and c) initiate commercial collaboration" |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.16 Privacy Enhancing Technologies (PETs) Prize Challenge - SAIL involvement |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting to discuss SAIL involvement in Privacy Enhancing Technologies (PETs) Prize Challenge |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.21 PRIME All-Wales Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | PRIME All-Wales Steering Committee Annual meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.27 Presentation at CURSA Symposium, Dr Katy Huxley |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Cardiff University Research Staff Association (CURSA) Symposium, poster presentation of linked education and census data to explore socio-economic associations with attainment. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.09.28 Artificial Intelligence, Data Science & Sharing: Learning and Development Event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to Civil Service Fast Stream personnel about the challenges, benefits and approaches to data sharing and linkage, and ethics. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.10.07 ADR NI Co-ordinating Committee Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR NI Co-ordinating Committee Meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.10.13 news release Better use of data to inform careers guidance in Wales |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A news release and linked social media to outline a report carried out by the ADR Wales team that looked at the better use of linked data to inform Welsh Government careers services |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://adrwales.org/a-new-report-provides-recommendations-on-the-better-use-of-data-to-inform-caree... |
| Description | 2022.10.13, Samantha Turner, Discussion on data linkage in new National Travel Survey for Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting to discuss new national travel survey in Wales with guidance given on consent to enable data linkage. Survey in development. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.10.17 BOLD SeRP |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting to discuss BOLD project and SeRP |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.10.21 Visit of Sir Ian Diamond UK National Statistician to Data Science Building |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Hosted visit of Sir Ian Diamond UK National Statistician to the Data Science Building at Swansea University. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.11.10, Samantha Turner, Meeting to discuss potential around active travel to school in Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Meeting to discuss collaborative project around the potential for active travel to school in Wales. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.11.11 Presentation on routine data and use to the Royal Pharmaceutical Society Conference, Ashley Akbari |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation on the use of routine data using the One Wales work example |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.11.16 Natual Environment Research Council (NERC) Digital Research Infrastructure Investment Board (DRIIB) Inaugural Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | To consider and discuss the implementation and delivery of the Digital Strategy and plans for supporting effective DRI for current and furture environmental science. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.11.23 Dr Katy Huxley engagement with Welsh Government on HESA data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Feedback and advice on meta data and variables related to HESA data |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.11.24, Samantha Turner, Attendance at Transport Injuries Prevention Network meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Network meeting to discuss collaborative work. Short presentation given around the work planned - interest generated. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.12.01 ADR Wales Planned Programme of Work 2022-2026 Launch event, Senedd Cymru |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | An event held at Senedd Cymru with Ministerial attendance and support, to launch the ADR Wales Programme of Work 2022-2026. The event was attended by Ministers, heads of policy within Welsh Government, civil servants, data providers and academics. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://adrwales.org/about-us/aims-mission-history/ |
| Description | 2022.12.12, Dr Pete Mackie, Scottish Government homelessness data resource discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A discussion with Scottish Government colleagues about planned developments in their homelessness data collections and wider homelessness data plans, given the planned shift towards a greater prevention focus. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.12.19, Dr Pete Mackie, Wales Housing Research conference, including presentation on Covid vaccinations |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | I co-organised the Wales Housing Research conference which attracted more than 100 delegates. I presented a paper on Covid vaccination rates amongst people experiencing homelessness. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2022.25.05 ADR UK Researcher Symposium on Crime and Justice, Professor Sinead Brophy presentation on Tackling domestic violence with routine data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A presentation by Prof Sinead Brophy to researchers across the ADR UK investment. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220315 Quarterly ADR UK Leadership Committee Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A quarterly meeting of ADR UK leads |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220315 BREATHE Executive. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | COO & Board Members of BREATHE Datahub |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://breathedatahub.com/ |
| Description | 20220321 ADR Wales Directors Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting with representatives to discuss ADR Wales |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220322 AIM RSF |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Weekly and monthly events and meetings with AIM RSF |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.turing.ac.uk/research/research-programmes |
| Description | 20220322 Discussion on grant submission regarding neurodiversity |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on submission of MRC grant application |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220323 DARE Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chair of DARE Programme Scientific and Technical Advisory Group & Member of the DARE Programme Board both of which meet regularly |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220325 British Heart Foundation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Initiative follow up meeting with BHF, HDR UK and academics |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220329 SAIL Combined Management Board & Operations Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular SAIL Combined Management Board & Operations Group |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220330 UKRI DARE UK-Scientific and Technical Advisory Group (STAG) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chair of regular meetings |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220331 DARE UK Programme Board Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of DARE Programme board, regular meetings |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220401 Interview for PRiAM (DARE UK sprint project) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interview for PRiAM (DARE UK sprint project) |
| Year(s) Of Engagement Activity | 2022 |
| Description | 20220404 National Asthma and COPD Audit Programme (NACAP) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Academic gathering to discuss project |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2023.01.10 Gender pay gap departmental seminar, Dr Catherine Foster |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was a departmental seminar for other academics at Cardiff University in order to gain feedback on the initial piece of work and suggested ways forward. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://wiserd.ac.uk/event/the-gender-pay-and-progression-gap-gppg-in-teaching-in-wales |
| Description | 2023.01.12, Samantha Turner, Presentation to Active Travel to School National Advisory Board (ATSNAG) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Presented active travel to school project to Active School Travel National Advisory Board - interest generated. All participants were interested in the work and said the outcomes would benefit their activities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2023.01.25, Rhodri Johnson, consumer panel presentation to public and patient group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation to the SAIL consumer panel, which includes a patient and public group to showcase and request feedback on our proposed research areas for the ADR work programme 2022-2026. |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2023.01.25, Samantha Turner, Presentation to SAIL Consumer Panel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presented ADR Wales proposed project focussing on climate change, health & well-being and inequalities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2023.01.27 Department for Digital, Culture, Media & Sport (DCMS) National Data Strategy Research Infrastructure - Research Cloud Pilot |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Department for Digital, Culture, Media & Sport (DCMS) National Data Strategy Research Infrastructure - Research Cloud Pilot |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2023.02.01 Dr Katy Huxley appointment to Advisory Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Appointment to skills education advisory panel |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2023.02.10 MRC Genomics Position and Vision Expert Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | MRC Genomics Position and Vision Expert Group |
| Year(s) Of Engagement Activity | 2022 |
| Description | 2023.07.03 ADR UK Researcher Symposium, Rhys Davies presentation on careers guidance research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A presentation to ADR UK researchers by Rhys Davies on the work undertaken using Careers Wales data to understand the effectiveness of careers guidance and how it is prioritised |
| Year(s) Of Engagement Activity | 2023 |
| Description | 2023.07.03 AD|ARC refunding news release and associated social media |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A news release and associated social media announcing the investment for Phase 2 AD|ARC |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://adrwales.org/adr-uk-invests-further-funding-in-adarc/ |
| Description | 2023.19.01 Presentation to a delegation from the Office of the Secretary of State for Wales Swansea University visit, Ashley Akbari |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A presentation on the work of ADR Wales and the SAIL Databank to several members of the Office for the Secretary of State for Wales and other invited delegates during a visit to Swansea University. |
| Year(s) Of Engagement Activity | 2023 |
| Description | 22.09.007, Dr Pete Mackie, England Local Authority Practice Network event presentation on Upstream Prevention |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation on a homelessness prevention typology and descriptive data on the early implementation of the Upstream Cymru intervention. The audience was largely local authority housing options managers. |
| Year(s) Of Engagement Activity | 2022 |
| Description | 22.09.23 Dr Pete Mackie, FEANTSA European Annual Research Conference presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | A presentation on a homelessness prevention typology and descriptive data on the early implementation of the Upstream Cymru intervention. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Chairman's address. International Collaborative Meeting on Injury Statistics and Methods (Injury ICE), Adelaide |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chairman's address. International Collaborative Meeting on Injury Statistics and Methods (Injury ICE), Adelaide, 25/11/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Conducting research through globally accessible trusted research environments, University of Sydney |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Conducting research through globally accessible trusted research environments, University of Sydney, 11/11/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Data linkage research- opportunities for enhanced UK/Australia collaboration |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Data linkage research- opportunities for enhanced UK/Australia collaboration, University of New South Wales, 08/11/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Development of a collaboration with NHS Wales organisations and Chicago Medical School to develop a system to evaluate the utility of artificial intelligence/machine learning to derive additional information from medical images to support research and ultimately efficient health service delivery and patient outcomes. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of a collaboration with NHS Wales organisations and Chicago Medical School to develop a system to evaluate the utility of artificial intelligence/machine learning to derive additional information from medical images to support research and ultimately efficient health service delivery and patient outcomes. Presentation to SAIL Consumer Panel. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Ethnic Minority Women in Welsh Healthcare Health Inequalities conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Using data linkage to understand the impact of social and ethnic inequalities in health. Ethnic Minority Women in Welsh Healthcare Health Inequalities conference, Cardiff 24/09/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Health and well-being, social justice and climate change team |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Health and well-being, social justice and climate change team. Administrative Data Research Wales. 12/09/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Invited talk, University of Southern Denmark |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The need for a uniform international definition of severity for injury research and prevention: why and how". Invited talk, University of Southern Denmark, 08/10/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Lecture to medical students at Swansea University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | Preventing hip fractures. Lecture to medical students at Swansea University, 13/10/22. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Multi-sectoral data linkages to explore associations between the built environment and BMI |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Conference presentation at the International Population Data Linkage Network event to discuss the project and highlight some early findings. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://ipdln.org/sites/default/files/IPDLN2022Docs/IPDLN%20Programme%20V10_compressed.pdf |
| Description | NIHR AI for Multiple Long Term Conditions Research Support Facility. Panel Discussion on Public and Patient, Involvement and Engagement |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | NIHR AI for Multiple Long Term Conditions Research Support Facility. Panel Discussion on Public and Patient, Involvement and Engagement. 16/09/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Overview of Trusted Research Environment globally, Dementias Platform Australia, University of New South Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overview of Trusted Research Environment globally, Dementias Platform Australia, University of New South Wales, 08/11/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Proposal for a Population Data Science Research Institute (PDRSI) - presentation to Swansea University faculties |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Proposal for a Population Data Science Research Institute (PDRSI) - presentation to Swansea University faculties 13/12/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Statistical Methods for Covid-19: Mortality Statistics - Wales (Royal Statistical Society) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Statistical Methods for Covid-19: Mortality Statistics - Wales. Presentation to Royal Statistical Society four nation meeting on COVID-19 mortality, 23/03/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Statistical Methods for Covid-19: Mortality Statistics - Wales (Welsh Government) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Statistical Methods for Covid-19: Mortality Statistics - Wales. Presentation to Welsh Government COVID-19 Technical Advisory Group, 25/03/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Update for SAIL Consumer Panel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Update for SAIL Consumer Panel. 29/06/22 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. Maurice Bloch Lecture, Glasgow University, 26/01/22. https://youtu.be/2B4Ak0YuOng |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://youtu.be/2B4Ak0YuOng |
| Description | Working with Swansea University on the ARDC Secure eResearch Platform, Monash University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Working with Swansea University on the ARDC Secure eResearch Platform, Monash University, 15/11/22 |
| Year(s) Of Engagement Activity | 2022 |