Maintaining dignity in later life: a longitudinal qualitative study of older people's experiences of supportive care
Lead Research Organisation:
University of Bristol
Department Name: Sch for Policy Studies
Abstract
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Publications
Grenier A
(2017)
Precarity in late life: rethinking dementia as a 'frailed' old age.
in Sociology of health & illness
Jane Seymour (Author)
(2012)
How do we protect the needs of the frail older person in palliative care?
Kate White (Author)
(2009)
Maintaining Dignity in later life: Changing circumstances, continuing themes
Kate White (Author)
(2009)
Maintaining Dignity in Later Life: Emerging Findings
Kate White (Author)
(2010)
Researching dignity in later life: methodological challenges
Liz Lloyd (Author)
(2010)
Perseverance:Older People's Experiences of adaptation to loss of independence
Liz Lloyd (Author)
(2010)
Dignity, identity and changing health
Liz Lloyd (Author)
(2008)
Last respects:dignity, ageing and the end of life
Liz Lloyd (Author)
(2011)
Perseverance: older people's experiences of adaptation to loss of independence
| Description | We developed ideas about the complex nature of dignity and about older people's own role in maintaining this. Our findings pose a challenge to contemporary policies which tend to see dignity in care as simply the outcome of the behaviour of practitioners |
| Exploitation Route | In the education and training of social workers and other care practitioners |
| Sectors | Education,Healthcare |
| URL | http://www.bristol.ac.uk/sps/ndadignity/ |
| Description | Findings on ES/FO15917/1 have had an impact in 2 spheres: 1. academic impact in developing knowledge on the Fourth Age 2. Impact on practitioner ideas about dignity and how it can be maintained in care settings . |
| First Year Of Impact | 2012 |
| Sector | Healthcare,Other |
| Impact Types | Societal |
| Description | Nuffield Council on bioethics |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | NIHR School for Social Care Research Core Membership |
| Amount | £214,561 (GBP) |
| Organisation | National Institute for Health Research |
| Department | NIHR School for Social Care Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 03/2018 |
| Description | Age UK England Oldest old day conference: what professionals can learn from older people |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote address on the 'oldest old'. Stimulated thinking, sparked discussions between researchers and specialist national organisation for older people - Age UK Was requested to contribute to 2 non-academic publications as part of Age UK's series on Improving Later Life |
| Year(s) Of Engagement Activity | 2013 |
| Description | BrunelCare and AgeUk Bristol Maintaining Dignity in Later Life: Older People's Views |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk built on existing participation with this group, which has developed strong links between University of Bristol and local service providers. Continued interest in and support for research activities |
| Year(s) Of Engagement Activity | 2011,2012 |
| Description | Cheshire Hospices annual study day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk sparked debate about dignity and old age Impact on thinking of audience |
| Year(s) Of Engagement Activity | 2011 |
| Description | How do we protect the needs of the frail older person in palliative care. International practitioner conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote lecture. Annual Palliative Care congress Stimulated thinking about the place of frail older people in palliative care internationally Professor Seymour asked to contribute further to international palliative care practice development |
| Year(s) Of Engagement Activity | 2013 |
| Description | Leicester LOROS annual meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A keynote speech which sparked debate about the place of older people in end of life care After the talk practitioners reported they had a fresh perspective on their work |
| Year(s) Of Engagement Activity | 2012 |
| Description | Life+ and Keele University - journeys towards the end of life |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at conference organised by Life+ and Keele University to disseminate research findings relevant to palliative care practitioners. Talk sparked questions and discussion afterwrds After my talk practitioners commented on a difference in view about dignity that it had provoked |
| Year(s) Of Engagement Activity | 2012 |
| Description | My Home Life and NDA day conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to one day event which sparked questions and discussion Networking opportunities with professionals associated with care homes who agreed to participate in subsequent research project |
| Year(s) Of Engagement Activity | 2012 |
| Description | NDA final conference - the event of the decade |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk sparked new thinking about dignity After talk, had discussions with service commissioners about thinking about dignity in care |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to participants |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Participants in your research and patient groups |
| Results and Impact | Confirmed accuracy of our findings Participants gave feedback about their experience of being in the project. |
| Year(s) Of Engagement Activity | 2011 |
| Description | Social Care at the End of Life working group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation in this group involved participation at regional events subsequently to stimulate better practice. Report: Supporting People to Live and Die Well Briefing paper for social care practitioners: College of Social Work and National End of Life Care Programme (2012) The Route to Success in End of Life Care: Achieving Quality for Social Work. Contributed to enhanced involvement of social workers and social care practitioners in end of life care |
| Year(s) Of Engagement Activity | 2010,2011 |
| Description | University of South Wales event: Is there a crisis in care? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Networks built in Wales among policy-makers and academics involved in development of policies and services for older people. Attended by Minister for Health, Welsh Assembly government. Further collaborations developed with academic colleagues and practitioners in social care. |
| Year(s) Of Engagement Activity | 2012 |