Living well with dementia

Title	A Grand Day Out - Chapbook
Description	The third in a series of chapbooks features the work of three DEEP (Dementia Engagement & Empowerment Project) groups: DEEP Vibes Scarborough, York Minds and Voices and Face It Together (FIT) in Bradford. The three groups have been working with Ian Beesley, Ian McMillan and Tony Husband on a project focusing on the 'Right to Get Out and About' organised by IDEAL project partner Innovations in Dementia. The design of the chapbook is based on the 1950s 'Picture Post' magazine which every summer would include a feature on going on a day out, often with people enjoying a trip to the seaside.
Type Of Art	Artwork
Year Produced	2018
Impact	The Chapbook was part of an exhibition in the city of Yellowknife ( located in the Northwest Territories - in the Arctic, Canada). This small show featured visual artwork by local seniors and their care partners, and the chapbook were under the title "Voices from Abroad". Many meaningful discussions were had about the role of creativity in care partnerships, and the importance of prioritizing 'lived experiences' in dementia care.
URL	https://www.idealproject.org.uk/media/universityofexeter/schoolofpsychology/ideal/documents/A_Grand_...

Title	Artwork for 'The World Turned Upside Down' play
Description	We needed artwork to advertise the play 'The World Turned Upside Down' and commissioned Willy Gilder (who lives with dementia and is a prolific artist) to create it. We went through different iterations and offered feedback to come up with the final artwork, which advertised the play on physical and digital flyers, as well as the digital advertisements at the venue itself.
Type Of Art	Artwork
Year Produced	2022
Impact	Many people commented on how eye-catching the artwork was and expressed surprise upon being told it had been produced by a person living with dementia.
URL	https://exeterphoenix.org.uk/events/the-world-turned-upside-down/

Title	Brave New World (song)
Description	A popular song written and recorded by two men living with dementia on the basis on IDEAL research.
Type Of Art	Composition/Score
Year Produced	2022
Impact	Coverage on regional TV and radio. People affected by dementia sharing that it gives them hope. Co-produced with people living with dementia from Thred CIC, Liverpool.
URL	https://www.youtube.com/watch?v=vH9dKe4-_J0

Title	From Negative to Positive - Chapbook
Description	The second in a series of chapbooks features the work of the Oldham-based 'Ragamuffins', a group of people with dementia, their partners and volunteers. Ian Beesley, Ian McMillan and Tony Husband held regular workshops with the group at Gallery Oldham. The 'From the Negative to the Positive' chapbook includes some of images and poetry produced during these sessions and it was accompanied by a short exhibition of the same name at Gallery Oldham in early 2018.
Type Of Art	Artwork
Year Produced	2018
Impact	The Chapbook was part of an exhibition in the city of Yellowknife ( located in the Northwest Territories - in the Arctic, Canada). This small show featured visual artwork by local seniors and their care partners, and the chapbook were under the title "Voices from Abroad". Many meaningful discussions were had about the role of creativity in care partnerships, and the importance of prioritizing 'lived experiences' in dementia care. Visitors to this isolated part of the world, were most appreciative of having voices from abroad.
URL	https://www.idealproject.org.uk/media/universityofexeter/schoolofpsychology/ideal/documents/from_the...

Title	The Allotment of Time - Chapbook
Description	The first chapbook produced as part of the 'A Life More Ordinary' project was co-created by Age UK Exeter's 'Budding Friends' group. Ian Beesley, Ian McMillan and Tony Husband spent time with the group both on their rapidly growing allotment and indoors. Members of the group shared their images and stories, both from the past and in the present, and joined in activities with the artists. The chapbook presents some of the photographs, poems and cartoons produced during the workshops on the theme of 'The Allotment of Time'.
Type Of Art	Artwork
Year Produced	2017
Impact	From Martyn Rogers, Age UK Exeter's chief executive 'This has been a fantastic partnership with the University of Exeter, enabling people with dementia who attend our Budding Friends group to have the chance to work with three brilliant artists and create a wonderful booklet that has humour and insight.' We are incredibly proud of Budding Friends, which is a regular source of support and joy to the people who attend. The group (and the allotment!) have been nurtured by our Carers' Support Co-ordinator, Penny Unitt and her team of dedicated and green-fingered volunteers, and what they achieve together is a great example of the kind of creative, flexible support Age UK Exeter provides week in, week out across the City' The artists ran their first set of workshops within the 'Budding Friends' group's usual weekly gathering, both on their allotment and indoors. Together with the artists, they created the photos, poems and drawings featured in the book. From the curator of an exhibition in Canada "The Chapbook was part of an exhibition in the city of Yellowknife ( located in the Northwest Territories - in the Arctic, Canada). This small show featured visual artwork by local seniors and their care partners, and the chapbook were under the title ""Voices from Abroad"". Many meaningful discussions were had about the role of creativity in care partnerships, and the importance of prioritizing 'lived experiences' in dementia care. Visitors to this isolated part of the world, were most appreciative of having voices from abroad."
URL	https://www.ageuk.org.uk/exeter/about-us/news/articles/2017/the-allotment-of-time-chapbook/

Title	The World Turned Upside Down
Description	A forum theatre piece improvised out of anonymised research interviews. Performed three times with the audience able to participate and suggest different outcomes.
Type Of Art	Performance (Music, Dance, Drama, etc)
Year Produced	2022
Impact	Coverage on two regional TV news programmes and 3 radio programmes. Requests for repeat performances and people signing up to receive news of the forthcoming documentary film.
URL	https://www.idealproject.org.uk/

Title	Unfurlings Exhibition: Exeter Library
Description	An art project involving people living with dementia has led to a book as well as an art exhibition that has been moved online to be enjoyed by all during lockdown. In the Unfurlings: Banners for Hope & Change project, a trio of well-known artists worked with groups of people to create banners with those living with dementia to create banners that express their experiences and highlight ways of enabling them to live as well as possible with dementia. Photographer Ian Beesley, poet Ian McMillan, and cartoonist Tony Husband worked with people living with dementia and their carers to create the banners as part of the 'A Life More Ordinary' project which originated from IDEAL research
Type Of Art	Artistic/Creative Exhibition
Year Produced	2020
Impact	The exhibition challenged peoples ideas about dementia. The exhibition was cut short due to the pandemic.

Title	Unfurlings Exhibition: The Harris Gallery- Preston
Description	An art project involving people living with dementia has led to art exhibition (moved online due to the pandemic) and book . In the Unfurlings: Banners for Hope & Change project, a trio of well-known artists worked with groups of people to create banners with those living with dementia to create banners that express their experiences and highlight ways of enabling them to live as well as possible with dementia. Photographer Ian Beesley, poet Ian McMillan, and cartoonist Tony Husband worked with people living with dementia and their carers to create the banners as part of the 'A Life More Ordinary' project which originated from IDEAL Research.
Type Of Art	Artistic/Creative Exhibition
Year Produced	2020
Impact	From members of the public: "Thought provoking" "Broadened our understanding" "As a UCLAN student, I've seen this project develop. It's lovely to see it come so far! Beautiful work Ian, a project that I am attached to with family members suffering with dementia in the past. "A really powerful exhibition, so colourful and inspiring. I hope it helps to raise awareness about dementia and having skills and ideas and needing to still be involved in the community." "Very interesting, It certainly broadened our understanding" Judith Barron, Alzheimer's Society, Bradford Provided feedback from participants: The FIT group met on Zoom this-morning and we talked about their involvement in the design and unfurling of the banner. Here is feedback from 4 people:- Person 1 - "Enjoyed doing the banner and seeing how it all came together, working with and input from Ian Beesley photographer, Ian McMillan poet and Tony Husband cartoonist. Putting our views across and seeing the results" Person 2 - "Really enjoyed, nice to be involved and to know people take notice of what you say" Person 3 - has speech difficulties, but wife showed the unfurling book and the person with dementia pointed to the group photo and commented "great" Person 4 - "Nice and really interesting" In conversation Judith also detailed that the experience was an enjoyable one for all and that the visual medium was particularly beneficial for the group which found written communication challenging. The Unfurlings book was particularly a welcome alternative to the events, providing a visual reminder of what was done. The book, released in April, celebrates the stories behind the banners and the impact the project has had on people living with dementia and their families.
URL	https://www.theharris.org.uk/product/the-unfurlings-banners-for-hope-change/

Description	For the first time, IDEAL provides evidence from a large cohort that people with dementia can live well, provided they have the right support in place. Much of this support sits outside the realm of clinical services and instead requires community action, for example from businesses, community centres, and public transport, as well as joined up and coordinated support from the health and social care system. The findings have been widely publicised to a broad range of audiences including policy makers, health and social care professionals, commissioners, people affected by dementia and local communities. In order to enable the findings from IDEAL to be widely disseminated and implemented, we formed a strategic alliance with Alzheimer's Society, one of the leading dementia charities in the UK that provides services to people with dementia as well as undertaking policy and influencing activity. Through various communication channels, we have reached over 250,000 people. To further support the dissemination of the findings and promote public understanding of dementia, photography, poetry and drawings have been used to document what it means to live well with dementia, through the linked A Life More Ordinary knowledge translation project. A series of arts-based outputs such as The Unfurlings and the chapbooks have been produced which provide a positive but realistic portrayal of the experience and impact of living with dementia. Alzheimer's Society posted blogs and internal bulletins on the chapbooks that were read by 1,771 members of staff and volunteers. The Unfurlings is a series of banners for hope and change created by groups of people with dementia, advocating for what helps with living well, such as accessible public transport and technology, and being able to enjoy social contact. Following a major exhibition at the People's History Museum from December 2019 to January 2020, visited by 5,474 people, the banners have been exhibited at Poole Arts Centre (3,500 visitors), Harris Art Gallery Preston (6,895 visitors), Gallery Oldham (6,402 visitors), Penrith Arts Festival (2,500 visitors) and for 6 months in Exeter Library which has on average 1,500 visitors per day. Due to COVID-19 some exhibitions moved online, with evidence of over 2,000 unique views. Several venues had to postpone but further exhibitions are anticipated once COVID restrictions are lifted. The banners have also been published in a book. The model of factors associated with living well from IDEAL was used by Alzheimer's Society to develop a theory of change for their Operations strategy. The model was the driving force to develop a chain of outcomes in order to get from the activities to the overall outcome of 'people able to manage dementia and live better'. Alzheimer's Society are also exploring how the living well scores from the IDEAL cohort for people who are not receiving any support services could be used to support the evaluation of their new service model, Dementia Connect. "The IDEAL study has been one of the key sources of evidence that we've drawn upon in the development of the theory of change and measurement framework for the Society's strategy- the model of the factors associated with living well with dementia has resonated with colleagues across the Alzheimer's Society- both senior leaders and those who are involved in the delivery of support services to people affected by dementia. The theory of change is now being used as the framework to evaluate the Society's new service model- Dementia Connect- and the evidence from this evaluation will be crucial in securing support to roll out the service across England, Wales and Northern Ireland." Laura Freeman, Evaluation and Impact Programme Manager, Alzheimer's Society The findings have also fed into Alzheimer's Society's Dementia Friends, of which there are 3,322,320 in England, Wales and Northern Ireland (as of 5 November 2020). The findings also contributed to Dementia Friendly Communities, of which there are 504 in England and Wales. IDEAL included a free text question asking people what could be done to enable them to better live in the community. This data will provide a framework of evidence to help drive the Dementia Friendly Community programme and evaluation. Funding a Research Translation Manager within this grant, based at the Alzheimer's Society, provided a rare opportunity for research, policy and practice to work more closely together. Staff at the Alzheimer's Society were able to comment on interview questions and plans for the analysis to help shape and prioritise the research. In addition, Alzheimer's Society had a direct route of access to the data and findings to drive their work. One example involved Alzheimer's Society working in partnership with Sport England to support people affected by dementia to lead more active lifestyles in their community. IDEAL provides data on the amount of activity that people with dementia and their carers are doing, the impact that having a diagnosis has and how activity levels change as the condition progresses. This provides the data needed to be able to influence people and business to take action to better support people with dementia, as well as stimulating more funding for the work. "The IDEAL findings are so useful to help us evidence and understand people's activity habits. It adds depth to what we have found in smaller focus groups and will certainly support future funding bids to extend this piece of work for longer." Steven McFadyen, Programme Partnerships Officer Sport and Leisure, Alzheimer's Society The finding from IDEAL that 80% of people living with dementia are inactive has been used to underpin a bid to Sport England that will shortly be submitted in December 2020. Another example of where this relationship was fully maximised is a last-minute meeting that Alzheimer's Society staff attended with an MP and a Policy Advisor from the Cabinet Officer to discuss the government's plans for tackling loneliness in people with dementia. Unpublished data from IDEAL on loneliness, social isolation and living alone was used to help steer the meeting. Having access to this data meant the meeting and subsequent planning has been based on the best available loneliness data for people with dementia and their carers. The data from IDEAL on carers has been used to steer Alzheimer's Society's influencing work. Traditionally, Alzheimer's Society has focused its influencing and support on people with dementia. However, they have been able to make use of the data from carers in IDEAL to develop their Policy positions. IDEAL's model of the factors associating with living well for carers of people with dementia resulted in a policy report 'The Fog of Support' being written on the needs of carers that was published in September 2020. The data on the use and cost of health and social care has also been widely used by Alzheimer's Society's policy team. For example, the average amount of time carers spend caring for the person with dementia they care for is quoted in an APPG report 'Hidden No More' on dementia and disability. "The work of the IDEAL team was an essential part of Alzheimer's Society influencing work for 2020. We are calling on the government and local authorities to take action to Fix Dementia Care and improve support for carers. By incorporating the findings of the IDEAL team, our Policy, Public Affairs and Campaigning teams can make sure our work is based on the latest evidence of how best to support carers' wellbeing." Morgan Griffiths-David, Senior Policy Officer, Alzheimer's Society The IDEAL team also received additional funding for the IDEAL COVID-19 Dementia Initiative and were able to feed in emerging evidence into Alzheimer's Society's report 'Worst hit: dementia during coronavirus'. This report has been widely used within policy and influencing activity to shine a light on the challenges people with dementia have been facing in receiving support from health and social care. Following on from the Worst hit report, the Public Affairs team at Alzheimer's Society secured a parliamentary debate, focusing solely on the disproportionate effects of Covid-19 and people affected by dementia. To support this, they continued their public and political campaigning efforts to raise awareness of the reality of dementia in lockdown and the variety of challenges people are facing including that of loneliness and isolation as highlighted from the IDEAL-CDI study. The Society called on all supporters to contact their MP to take part in the debate. As a result MPs were contacted almost 10,000 times in just 10 days, and almost every single UK MP was contacted about the issue, significantly raising the profile of dementia and Covid-19 in Westminster. The debate was effective in demonstrating the range of issues people are facing, most notably the significant challenges of care home restrictions for people living with dementia and the impact on unpaid cares for people living with dementia at home. In addition to the debate, Professor Linda Clare worked with other lead researchers and Alzheimer's Society to submit a joint letter to the Times on 7 November 2020 (available here), challenging government guidance for care homes during the second lockdown that were to be published. Following the joint letter to the editor we received a call from the Daily Mail who expressed an interest in launching a campaign. This led to the Daily Mail Campaign calling on the Government to take the necessary steps to allow care home visits; including multiple front page stories and three double-page spreads. The campaign was praised in a parliamentary debate as MPs were told of the challenges their constituents were being put through by the care home lockdown. Baroness Joan Bakewell, said: 'The toll of Covid is more than physical illness. Isolation in care homes makes people depressed, feeling deserted, without love or hugs. It amounts to cruelty.' On Saturday 14 November 2020, the government published this press release launching a pilot for family members to get regular testing for safer care home visits. In a letter of thanks, Dr Fiona Carragher, Director of Research and Influencing at Alzheimer's Society said: "Without your expertise and the research evidence you provided, we would not have been able to have launched such a successful campaign rooted in evidence and the lived experience of people affected by dementia. Your support has given us the tools by which to make a real difference in this critical area for people with dementia living in care homes and their loved ones." In the next few months we have planned meetings with Alzheimer's Society for our IDEAL data to feed into a stream of work on the personalisation of dementia care and also policy work on social care reform. Thus, just as living well with dementia is complex and multifaceted, the IDEAL programme of work has shown that an epidemiological study can have multiple and intricate applications in the real world setting.
First Year Of Impact	2017
Sector	Communities and Social Services/Policy,Healthcare,Leisure Activities, including Sports, Recreation and Tourism,Culture, Heritage, Museums and Collections
Impact Types	Cultural,Societal,Policy & public services

Description	Alzheimer's Society task force on dementia research: prevention, diagnosis, intervention and care
Geographic Reach	National
Policy Influence Type	Membership of a guideline committee

Description	Clearing the backlog caused by the pandemic
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
Impact	As a result of this, Fiona Carragher of Alzheimer's Society subsequently spoke at an oral evidence session.
URL	https://committees.parliament.uk/writtenevidence/38533/html/

Description	Dementia: Fuelling the Moonshot debate in the house of Lords
Geographic Reach	National
Policy Influence Type	Citation in other policy documents
URL	https://hansard.parliament.uk/lords/2021-11-16/debates/CF07ACE8-1326-4226-997B-D4D0862498C8/Dementia...

Description	Department of Health and Social Care: Informal Dementia Programme Board March 2021
Geographic Reach	National
Policy Influence Type	Participation in a guidance/advisory committee
Impact	As a result of this meeting, a Public Health England Doctor stated 'I've found it very helpful in my work on deconditioning in older adults during lockdown.' referring to Linda's work from INCLUDE which was presented during the meeting. This also led to a further meeting in June 2021

Description	Evidence submitted the 'Health and Social Care: Priorities for the Sixth Senedd'
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
URL	https://business.senedd.wales/documents/s118379/PSS52%20-%20IDEAL.pdf

Description	Fuelling the Moonshot: Unleashing the UK's potential through dementia research
Geographic Reach	National
Policy Influence Type	Citation in other policy documents
URL	https://www.alzheimers.org.uk/sites/default/files/2021-09/Fuelling_Moonshot_APPG.pdf

Description	IDEAL Centre for Policy and Ageing
Geographic Reach	National
Policy Influence Type	Citation in other policy documents
URL	https://mailchi.mp/ageing-better/research-and-policy-february?e=6899297122

Description	Left to Cope Alone
Geographic Reach	National
Policy Influence Type	Citation in other policy documents
URL	https://www.alzheimers.org.uk/sites/default/files/2022-06/left-to-cope-alone-after-diagnosis-report....

Description	Meeting with the Department of Health and Social Care, NHS England and Public Health England on INCLUDE findings
Geographic Reach	National
Policy Influence Type	Participation in a guidance/advisory committee
Impact	The findings will be used for developing policy and the new national dementia strategy to improve dementia care.

Description	NICE Quality Standards Advisory Committee for development of dementia quality standards 2018
Geographic Reach	National
Policy Influence Type	Membership of a guideline committee

Description	NIHR Evidence Collection - How can we reduce the toll of loneliness in older adults?
Geographic Reach	National
Policy Influence Type	Influenced training of practitioners or researchers
URL	https://evidence.nihr.ac.uk/collection/how-can-we-reduce-the-toll-of-loneliness-in-older-adults/

Description	New post-diagnostic offer in Oxleas Memory Service using cognitive rehabilitation
Geographic Reach	Local/Municipal/Regional
Policy Influence Type	Contribution to new or improved professional practice
Impact	Oxleas Memory Service are trialling offering 3 post-diagnostic appointments to newly diagnosed patients (who would have previously been discharged) in which the person with dementia is guided through My Life My Goals and cognitive rehabilitation principles with the aid of an Assistant Psychologist. They determine the goal of interest to that person and work on strategies to achieve it. My Life Questionnaire is administered at the start and end of the post-diagnostic programme and the person with dementia is introduced to the Living with Dementia Toolkit. This is a pilot to see how effective the scheme is and to measure uptake. If successful, it may be expanded. The workforce skill level is being improved through completing the GREAT eLearning and having supervision from a senior psychologist as this new offer is implemented.

Description	Place, people, purpose and power - promoting the wellbeing of people living with dementia through personalised care and support
Geographic Reach	National
Policy Influence Type	Citation in other policy documents
URL	https://drive.google.com/file/d/1ksKMBIe-g8G51BQdtrkzn-2E8PRo56M8/view

Description	Presentation by Ian Rees Jones - IDEAL findings at the Cross Party Group on Medical Research, Senedd, Wales, March 13th 2019
Geographic Reach	National
Policy Influence Type	Participation in a guidance/advisory committee

Description	Supporting people with dementia and their carers' report.
Geographic Reach	National
Policy Influence Type	Citation in other policy documents
URL	https://publications.parliament.uk/pa/cm5802/cmselect/cmhealth/96/report.html

Description	The Future of General Practice
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
URL	https://committees.parliament.uk/writtenevidence/41684/pdf/

Description	Treasury Committee inquiry evidence submission: An equal recovery
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
URL	https://committees.parliament.uk/writtenevidence/37232/pdf/

Description	World Alzheimer Report 2022 - diagnosis denial
Geographic Reach	Multiple continents/international
Policy Influence Type	Citation in other policy documents
URL	https://www.alzint.org/u/World-Alzheimer-Report-2022.pdf

Description	World Alzheimer Report 2022 - positive psychology
Geographic Reach	Multiple continents/international
Policy Influence Type	Citation in other policy documents
URL	https://www.alzint.org/u/World-Alzheimer-Report-2022.pdf

Description	Alzheimer's Society Centre of Excellence
Amount	£1,999,704 (GBP)
Funding ID	AS-PR2-16-001
Organisation	Alzheimer's Society
Sector	Charity/Non Profit
Country	United Kingdom
Start	01/2018
End	12/2022

Description	Assistive technology and home modifications: outcomes for people living with dementia and their carers, service use patterns and costs
Amount	£74,003 (GBP)
Funding ID	102645/CM/LSEMK-P175
Organisation	National Institute for Health Research
Sector	Public
Country	United Kingdom
Start	05/2021
End	06/2022

Description	Create
Amount	£35,035 (GBP)
Funding ID	2022002162
Organisation	The Arts Council for Wales
Sector	Public
Country	United Kingdom
Start	10/2022
End	04/2023

Description	ESRC Festival of Social Science 2017
Amount	£940 (GBP)
Funding ID	ES/L001853/2
Organisation	Economic and Social Research Council
Sector	Public
Country	United Kingdom
Start	11/2017
End	11/2017

Description	ESRC/NIHR-IDEAL project-proposal for additional funding January 2018
Amount	£10,000 (GBP)
Funding ID	ES/L001853/2
Organisation	Economic and Social Research Council
Sector	Public
Country	United Kingdom
Start	01/2018
End	03/2018

Description	IDEAL ESRC FOSS 2018
Amount	£620 (GBP)
Funding ID	ES/L001853/2
Organisation	Economic and Social Research Council
Sector	Public
Country	United Kingdom
Start	11/2018
End	11/2018

Description	IDEAL International Collaboration for ESRC Investments June 2018
Amount	£26,800 (GBP)
Funding ID	ES/L001853/2
Organisation	Economic and Social Research Council
Sector	Public
Country	United Kingdom
Start	10/2018
End	03/2019

Description	Knowledge Exchange (KE) projects for ESRC investments
Amount	£114,018 (GBP)
Funding ID	ES/L001853/1
Organisation	Economic and Social Research Council
Sector	Public
Country	United Kingdom
Start	07/2015
End	12/2018

Description	Physical activity and dementia evidence review. Funded by Alzheimer's Society, Sport England and National Lottery
Amount	£13,683 (GBP)
Organisation	Alzheimer's Society
Sector	Charity/Non Profit
Country	United Kingdom
Start	08/2021
End	10/2021

Description	Understanding and improving support to help people with dementia and their carers prepare for advanced illness and end of life
Amount	£241,238 (GBP)
Funding ID	AS-PG-17b-015
Organisation	Alzheimer's Society
Sector	Charity/Non Profit
Country	United Kingdom
Start	09/2018
End	08/2023

Title	My Life Questionnaire
Description	My Life Questionnaire, living well measure for people with dementia
Type Of Material	Physiological assessment or outcome measure
Year Produced	2022
Provided To Others?	Yes
Impact	the measure is currently being piloted
URL	https://medicine.exeter.ac.uk/reach/publications/

Title	Representations and Adjustment to Dementia Index
Description	Representations and Adjustment to Dementia Index
Type Of Material	Physiological assessment or outcome measure
Year Produced	2018
Provided To Others?	Yes
Impact	This measure has been used in research
URL	https://medicine.exeter.ac.uk/reach/publications/

Title	The Representations and Adjustment Index (RADIX)?: Italian version
Description	The Representations and Adjustment Index (RADIX)?: Italian version
Type Of Material	Physiological assessment or outcome measure
Year Produced	2021
Provided To Others?	Yes
Impact	This measure has been used in research
URL	https://medicine.exeter.ac.uk/reach/publications/

Title	The Representations and Adjustment Index (RADIX)?: Spanish version
Description	The Representations and Adjustment Index (RADIX)?: Spanish version
Type Of Material	Physiological assessment or outcome measure
Year Produced	2022
Provided To Others?	Yes
Impact	This measure has been used in research
URL	https://medicine.exeter.ac.uk/reach/publications/

Title	IDEAL conceptual model
Description	The IDEAL study contains data for 1500 people with dementia and their carers. The conceptual model develops a framework for living well with dementia.
Type Of Material	Database/Collection of data
Year Produced	2020
Provided To Others?	Yes
Impact	The model has already started to be cited. The data that underpin the model is shared in a data archive for further use.

Title	Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life under Physical Distancing on People with Dementia and Carers, 2020-2022
Description	Archived INCLUDE datasets
Type Of Material	Database/Collection of data
Year Produced	2022
Provided To Others?	Yes
Impact	The datasets are currently embargoed until July 2023
URL	https://reshare.ukdataservice.ac.uk/855800/

Title	Improving the experience of dementia and enhancing active life 2014-2018
Description	Archived IDEAL T1 to T3 quantitative datasets
Type Of Material	Database/Collection of data
Year Produced	2020
Provided To Others?	Yes
Impact	The datasets are currently embargoed, but will be freely available April 2023
URL	https://reshare.ukdataservice.ac.uk/854293/

Title	Improving the experience of dementia and enhancing active life: living well with dementia cohort study 2016-2018
Description	Archived IDEAL qualitative datasets
Type Of Material	Database/Collection of data
Year Produced	2020
Provided To Others?	Yes
Impact	The datasets are currently embargoed but will be available for access April 2023
URL	https://reshare.ukdataservice.ac.uk/854317/

Description	"The bridge to understanding dementia" - Article about IDEAL opera in 'The Psychologist'
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	13th March 2023 'The Psychologist' (the magazine of the British Psychological Society) ran an article about IDEAL's opera project. It quotes Professor Linda Clare, along with librettist Marian Bryfdir. The article features details of how to book for the opera performances and mentions the linked workshops and photographic project.
Year(s) Of Engagement Activity	2023
URL	https://www.bps.org.uk/psychologist/bridge-understanding-dementia

Description	'Researching the 'obvious'' Altzhimers Society magazine article, October
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Alzheimer's Society magazine ('Dementia together') article, featuring Nicola Hart, p. 15
Year(s) Of Engagement Activity	2019

Description	'Singing from the heart' - North Wales Magazine article about opera project
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	North Wales Magazine, a free monthly publication which is distributed to a variety of outlets around North Wales and also offers a personal subscription service, ran a two-page article about IDEAL's opera project in their March edition. 'Singing from the heart: Local opera will translate experiences of dementia into powerful performance' features quotations from Prof Linda Clare and the creative team, as well as photographs from Ian Smith of both opera rehearsals and Dementia Actif Gwynedd, project partners. This timely publication will hopefully cause more people to book to attend the opera performances.
Year(s) Of Engagement Activity	2023
URL	https://twitter.com/IDEALStudyTweet/status/1632687824221745154

Description	'The World Turned Upside Down' Dementia Friendly Communities Webinar 13th Sept 22
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Dr Catherine Charlwood was an invited speaker to the Dementia Friendly Communities webinar regarding the (then) forthcoming release of the film 'The World Turned Upside Down'. This webinar is facilitated by Alzheimer's Society staff and attended by Dementia Friendly Community leads around the UK. Many audience members expressed a willingness to promote and show the film in their local area.
Year(s) Of Engagement Activity	2023

Description	'The World Turned Upside Down' community film screening - Aberystwyth Arts Centre
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	In conjunction with the Centre for Ageing and Dementia Research (CADR), we ran a free public screening of our documentary film 'The World Turned Upside Down' at Aberystwyth Arts Centre cinema. Dr Cathy Charlwood from IDEAL and Prof Charles Musselwhite (CADR, Aberystwyth University) facilitated a discussion of the film's themes with the audience. IDEAL and CADR resources were distributed and Ceredigion Council had a stand to advertise local provision for carers. As a result of this event, 6 further local screenings are now planned or in planning across diverse regions of Wales. The audience reported changes in views such as "Very powerful film. Makes you realise how important it is to raise profile and create a better understanding of dementia. The film was a real inspiration and really makes you take a step back and think about how you talk about dementia. Definitely something I can utilise in Denbighshire as I think it is a great tool for getting people talking in an honest and open way." and "It's given me an understanding of dementia, one that I didn't know I was missing. I think when dementia comes up in my life, I will feel more equipped to not react emotionally, but to be there for the person and stay calm. It's also given me some hope in that there are people and places out there that want to help and can provide education on how and what to do. I also didn't know that dementia is different on a case-by-case basis."
Year(s) Of Engagement Activity	2022

Description	A Life More Ordinary - Chapbook Launch Exeter
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	The event was an opportunity to thank all those living with dementia or living with someone with dementia involved. Beyond this, the event gained publicity that went out on multiple regional TV and radio stations, sharing the aims of both the 'A Life More Ordinary' and IDEAL projects: Featured on ITV West Country news: linked article still available online http://www.itv.com/news/westcountry/2017-11-01/exeter-project-creates-book-dispelling-misconceptions-about-dementia/
Year(s) Of Engagement Activity	2017
URL	http://www.exeter.ac.uk/news/featurednews/title_618779_en.html

Description	A future for personalised care
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	IDEAL's model of factors associated with living well with dementia to feed into report re: personalisation around what what does living well mean.
Year(s) Of Engagement Activity	2021
URL	https://www.alzheimers.org.uk/sites/default/files/2021-03/A%20Future%20for%20Personalised%20Care.pdf

Description	ALMO Kent Workshop 1 (Canterbury)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	First workshop in Kent took place in Canterbury with IDEAL participants and members of the Forget Me Nots group. The artists, Ian Beesley, Ian McMillan and Tony Husband gave an introduction to the 'A Life More Ordinary' project and previous work by the artists and other groups was displayed. Participants were asked to help Ian McMillan create an 'epic' poem while Tony Husband illustrated the poem in the background. Next everyone wrote a line based on the theme of 'routine' at the top of a piece of paper, folded it over and passed it on to the next person to write their line. After a tea break Ian McMillan read out the poems and Tony Husband illustrated some of the lines. Ian Beesley took photographs of participants during the workshop and of them holding a photograph they had brought with them, which meant something to them.
Year(s) Of Engagement Activity	2017

Description	ALMO Kent Workshop 2 (Maidstone)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	The second Kent workshop took place in Maidstone with members of Memorybilia. The artists, Ian Beesley, Ian McMillan and Tony Husband gave an introduction to the 'A Life More Ordinary' project and previous work by the artists and other groups was displayed. Participants co- created some poems with Ian McMillan while Tony Husband illustrated the poems in the background. Ian Beesley took photographs of participants during the workshop and of them holding a photograph they had brought with them, which meant something to them.
Year(s) Of Engagement Activity	2017

Description	ALMO Oldham workshops (eight dates)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	A series of eight workshops took place at Gallery Oldham throughout 2017 with a local group of people with dementia, their partners and volunteers. The workshops were led by artists, Ian Beesley, Ian McMillan and Tony Husband as part of the 'A Life More Ordinary' project. They have been using the education suite at Gallery Oldham to run the workshops and some of the objects at the gallery have been a source for discussion. For example, a large stuffed owl inspired a discussion around the question 'if memory was an animal what would it look like?' Key themes from the workshops have been around memory and time. In January 2018, Gallery Oldham announced that they would fund the workshops for another year. All images and poems produced would be deposited into the archive of images being created as part of the 'A Life More Ordinary' project. The group will also invite new members to join.
Year(s) Of Engagement Activity	2017

Description	ALMO Right to Get Out and About
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	Ian Beesley (photographer) and Tony Husband (cartoonist) took part in event run as part of the 'Right to Get Out and About' project organised by Innovations in Dementia. It involves three Dementia Engagement & Empowerment Project (DEEP) groups: DEEP Vibes Scarborough, York Minds and Voices and Face it Together (FIT) in Bradford. Ian Beesley will produce black and white photos of the day and Tony Husband will produce a set of postcards about our travel stories in cartoon style in the old seaside postcard style. Wendy Mitchell, who is a member of the Mind & Voices group in York, wrote a piece on her blog about this event. A further event is planned in February 2018.
Year(s) Of Engagement Activity	2017
URL	https://whichmeamitoday.wordpress.com/2017/09/04/minds-and-voices-head-to-the-seaside/

Description	ALWAYS (PPI) and DEAR group meeting, July 2019
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	ALWAYs patient and public involvement group meets DEAR patient and public involvement group to feedback on on coproduction work by DEAR
Year(s) Of Engagement Activity	2019

Description	APPG on Dementia 'Fuelling the Moonshot' report launch
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	The APPG on Dementia launched their latest report, Fuelling the Moonshot. IDEAL are cited in the report and the panel launching the report including ALWAYs member Jane Ward who spoke live in the event about the IDEAL programme.
Year(s) Of Engagement Activity	2021
URL	https://www.alzheimers.org.uk/about-us/policy-and-influencing/all-party-parliamentary-group-dementia

Description	APPG report 'Hidden No More'
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	The average amount of time carers spend caring for the person with dementia they care for is quoted in an All Party Parliamentary Group for Dementia report 'Hidden No More' on dementia and disability.
Year(s) Of Engagement Activity	2020

Description	Ageing Research Open Day-Brunel University, during Dementia Action Week
Form Of Engagement Activity	Participation in an open day or visit at my research institution
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Display and discussion of the IDEAL 'A Life More Ordinary' banners
Year(s) Of Engagement Activity	2022

Description	Always involved: Making dementia research the best it can be
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	An article on the ALWAYs group was written in Alzheimer's Society's magazine, Dementia Together, to raise awareness of the positive benefits that being involved in research can have on people affected by dementia as well as the impact on the research.
Year(s) Of Engagement Activity	2019
URL	https://www.alzheimers.org.uk/dementia-together-magazine-dec-19jan-20/always-involved-making-dementi...

Description	Alzheimer's Europe 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Poster on 'Adjustment and representations in dementia' presented at the Alzheimer's Europe conference.
Year(s) Of Engagement Activity	2017
URL	http://www.alzheimer-europe.org/Conferences/Berlin-2017/Detailed-programme-and-abstracts/PO1-Living-...

Description	Alzheimer's Society Blog
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Patients, carers and/or patient groups
Results and Impact	The Alzheimer's Society blog was aimed at publicizing the study to a lay audience of people with dementia and carers. The blog also announced the launch of the chapbooks that are being produced as part of the study.
Year(s) Of Engagement Activity	2017
URL	https://blog.alzheimers.org.uk/research/ideal-project-chapbooks/

Description	Alzheimer's Society Blog: The World Turned Upside Down
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	The World Turned Upside Down film is hosted on Alzheimer's Society website, along with a blog about the making of the film and a comments section. The comments section shows a strong reaction to the film.
Year(s) Of Engagement Activity	2022
URL	https://www.alzheimers.org.uk/blog/watch-world-turned-upside-down-film-about-dementia-and-communicat...

Description	Alzheimer's Society Insight into Control
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	IDEAL findings re: illness representations included in an evidence review to support Alzheimer's Society's insight into how people affected by dementia feel in control. Led to IDEAL being linked into another workstream on Alzheimer's Society branding and messaging.
Year(s) Of Engagement Activity	2021

Description	Alzheimer's Society Insight into Inequalities and Service Access
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	The limited receipt of support services among people with mild-moderate dementia paper shared with senior leaders in operations services to help inform conversations on inequalities and service access.
Year(s) Of Engagement Activity	2022

Description	Alzheimer's Society Insight into Reach
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	IDEAL findings re: illness representations, QoL in dementia for different subtypes included in an evidence review to support Alzheimer's Society's insight into reaching people affected by dementia.
Year(s) Of Engagement Activity	2021

Description	Alzheimer's Society Policy Conference - Delivering Quality Care: An Introduction to our Centre of Excellence
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Professor Linda Clare talked about the aims and some findings so far from IDEAL study as well as the 'living well' map. Linda was then part of a panel taking questions from the audience.
Year(s) Of Engagement Activity	2021
URL	https://www.youtube.com/watch?v=0LbDiUkui1E&t=1765s

Description	Alzheimer's Society Policy event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Session included IDEAL findings and discussed with policy makers how relevant to developing a new framework for social care that is relevant to people affected by dementia.
Year(s) Of Engagement Activity	2021
URL	https://www.alzheimers.org.uk/dementia-professionals/conferences-and-events/policy-conference-2021

Description	Alzheimer's Society Research Evidence Review into Diagnosis Experience
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	IDEAL findings on people without a diagnosis of dementia used to provide insight to Alzheimer's Society on why people may not get a diagnosis.
Year(s) Of Engagement Activity	2021

Description	Alzheimer's Society Research Evidence Review on Experience of People Living with Dementia post diagnosis
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	IDEAL findings used in a research evidence review to be used to inform insight for Alzheimer's Society.
Year(s) Of Engagement Activity	2021

Description	Alzheimer's Society Research Update Webinar
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	IDEAL presented their research and some key findings to staff from Alzheimer's Society and hosted a Q&A session.
Year(s) Of Engagement Activity	2021

Description	Alzheimer's Society Sports England Bid
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	IDEAL findings provide insight and evidence about the challenges facing people affected by dementia to taking part in physical activity, as well as analysing the benefits to health.
Year(s) Of Engagement Activity	2021

Description	Alzheimer's Society policy and analysis of cohort data
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Two Alzheimer's Society meetings where IDEAL research findings were discussed to see how the Society could suggest future cohort data analysis to align with their policy priorities. As a result of this, the IDEAL research team are re-examining the data sets to see if we can provide further evidence in these priority areas.
Year(s) Of Engagement Activity	2022

Description	Alzheimer's Society researchers taking on COVID-19 and dementia
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Podcast talking to three researchers supported by Alzheimer's Society working in dementia care research to find out about their work and how they have adapted it to also consider the impact of the pandemic on people affected by dementia. Claire Pentecost, Programme Manager for the IDEAL programme is one of the panellists and discusses in detail the IDEAL CDI project.
Year(s) Of Engagement Activity	2020
URL	https://open.spotify.com/episode/18B2ntKxnDhdU7HDoL4OlH

Description	Alzheimer's Society roundtable discussion on IDEAL Cohort Data Analysis
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Meeting with Alzheimer's Society policy, public affairs and operations staff to discuss themes and suggestions for IDEAL cohort Data Anaylsis using examples of previous research findings to highlight what may be in scope. Included an overview of both IDEAL 1 and IDEAL 2.
Year(s) Of Engagement Activity	2022

Description	Alzheimer's Society's Dementia Action Week
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Data on loneliness, isolation and living alone from IDEAL was shared with Alzheimer's Society to influence the scope and focus on their Dementia Action Week. The data was used to help them narrow the focus of their key messaging. However, the data was not directly referenced as it was only reflective of those living in the community with mild to moderate dementia.
Year(s) Of Engagement Activity	2018

Description	Alzheimer's Society's Dementia Friendly Communities and Champions Webinar
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Ccharlwood spoke about the 11-18-year-olds LILAC toolkit competition to over 140 representatives of the Dementia Friends around the UK. Participants agreed to share the information within their own networks and requested further information which CC passed to the webinar lead who sent it to the mailing list.
Year(s) Of Engagement Activity	2021

Description	Article Findings from IDEAL, Innovation Magazine, 01 October
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Article in the 'Innovation' magazine, a the Research and Development newsletter published by Leeds and York Partnership NHS Foundation Trust. Magazine available in print and online. Newsletter mostly distributed to internal Trust staff and departments, external Trusts and Universities.
Year(s) Of Engagement Activity	2019
URL	https://www.leedsandyorkpft.nhs.uk/research/publications/

Description	Article about A Life More Ordinary (ALMO) banners and where they will be displayed around the country, University of Exeter website, 21 Feburary
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Website article with quotes from an interview with L. Clare promoting the work of the artist Iam Beesley and the DEEP dementia groups and where the banners and artwork will be exhibited
Year(s) Of Engagement Activity	2019
URL	http://medicine.exeter.ac.uk/news/articles/artcreatedbypeoplelivingw.html

Description	Article in New York Times about: 'Dementia May Never Improve, but Many Patients Still Can Learn', quoting IDEAL findings, 04 Janurary
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Article dispelling some negitave myths about dementia to the general public
Year(s) Of Engagement Activity	2019

Description	Article in Wales Institute of Social and Economic Research, Data and methods (WISERD)
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	'What helps people living with mild-to- moderate dementia to 'live well'? Findings from the IDEAL study' - article in WISERD based on presentation by Ian Rees Jones in March
Year(s) Of Engagement Activity	2019
URL	https://wiserd.ac.uk/publications/caregivers-beliefs-about-dementia-findings-ideal-study

Description	BAME sub - study used an example of under represented groups in research
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	The BAME sub-study within the IDEAL Covid-19 Dementia Initiative was referenced in correspondence from Helen Whately (Minister of State for Care) to an MP, with regards to how government is increasing diversity in dementia research. The BAME sub-study was given as an example of NIHR-funded research which actively recruited and involved under-researched groups and promoted diversity in dementia research.
Year(s) Of Engagement Activity	2021

Description	BBC Radio 4 Women's Hour: Interview with Professor Linda Clare
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Discussion between with Professor Linda Clare and presenters on the impact of people with dementia during the Covid-19 crisis and lockdown including signposting for people needing support and the IDEAL project.
Year(s) Of Engagement Activity	2020

Description	BBC Radio Devon Christmas Lecture
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	CCharlwood gave the BBC Radio Devon Christmas Lecture sharing news of our work on the play 'The World Turned Upside Down' and the new Living with Dementia Toolkit. The voices of those involved in both projects were interspersed throughout. We got in touch with BBC Radio Devon who reported that they have 186,000 listeners.
Year(s) Of Engagement Activity	2021

Description	BBC Radio Devon interview about 'The World Turned Upside Down' - how the performances went
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	This was a follow-up interview on the Gordon Sparks morning show with Dr Claire Pentecost (Producer) to share how the performances of 'The World Turned Upside Down' had gone. BBC Radio Devon report 186,000 listeners a week and that the breakfast show is the most popular.
Year(s) Of Engagement Activity	2022

Description	BBC Radio Devon interview about 'The World Turned Upside Down' and casting
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Dr Claire Pentecost (IDEAL Programme Manager and play producer) and Paul Jepson (Director) were interviewed to promote the forthcoming play 'The World Turned Upside Down' and to encourage people with lived experience of dementia to audition. One of the actors appointed heard about the project via the radio.
Year(s) Of Engagement Activity	2021

Description	BBC Radio Devon: interview with Professor Linda Clare
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Media interview, press release, press conference or other response to a media enquiry.
Year(s) Of Engagement Activity	2020

Description	BBC Radio Merseyside interview about 'Brave New World', a commissioned song about IDEAL research
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	Paul Hitchmough and Tommy Dunne BEM of Thred CIC were interviewed on the Tony Snell mid-morning radio show about their song 'Brave New World', which IDEAL commissioned about our research.
Year(s) Of Engagement Activity	2022

Description	BBC Radio Somerset interview about 'The World Turned Upside Down' - how the performances went
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	This was a follow-up interview on the Simon Parkin mid-morning show with Dr Claire Pentecost (Producer) and Paul Jepson (Director) to share how the performances of 'The World Turned Upside Down' had gone.
Year(s) Of Engagement Activity	2022

Description	BBC Radio Somerset interview about 'The World Turned Upside Down' and casting
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Dr Claire Pentecost (IDEAL Programme Manager and play producer) and Paul Jepson (Director) were interviewed to promote the forthcoming play 'The World Turned Upside Down' and to encourage people with lived experience of dementia to audition.
Year(s) Of Engagement Activity	2021

Description	BSG 2017 Positive Aspects of Caregiving
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Presentation on "Positive aspects of dementia caregiving" at the British Society of Gerontology 2017 conference held in Swansea. This was part of a symposium on "Positive experiences of living with dementia and caring for someone with dementia"
Year(s) Of Engagement Activity	2017
URL	http://www.swansea.ac.uk/media/BS_Gerontology_Abstract_Book.pdf

Description	BSG 2017 Symposium Social & Supportive Relationships
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Rippon I., Nelis S.M., Wu Y-T. & Victor C. on behalf of the IDEAL Study Team (6 July 2017) How lonely and isolated are older people with dementia and their carers? Presentation at the 46th Annual British Society of Gerontology Conference, Swansea. One of four presentations given as part of Prof Christina Victor's Reimaging Loneliness symposium.
Year(s) Of Engagement Activity	2017
URL	http://www.swansea.ac.uk/media/BS_Gerontology_Abstract_Book.pdf

Description	BSG 2017 conference: Presentation on social class, ageing and identity in dementia
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Presentation of PhD work and emergent findings at British Society of Gerontology annual conference in Swansea.
Year(s) Of Engagement Activity	2017
URL	http://www.swansea.ac.uk/media/BS_Gerontology_Abstract_Book.pdf

Description	Bangor Emerging Researchers in Aging (ERA)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Title of activity 'Living well with dementia: Implementing what we know' One day workshop/seminar What was the engagement activity One day seminar/workshop event targeted at early career researchers in dementia and key stakeholders including people with dementia, carers, practitioners and care providers, community groups and third sector organisations. The purpose was to foster collaboration and networks between those starting out in research and users of research with the aim of improving research impact. Geographical reach (local, regional, etc.) The event happened in Bangor - the delegates (particularly the stakeholder groups were from North Wales) but the research delegates were more spread including people from the Bradford Dementia group and Brunel University. Primary audience: The audience was a 50/50 split between early career researchers and stakeholders/users of research (including people with dementia, carers, practitioners (OTs, memory clinic staff, audiology), artists (working on dementia related projects), community groups and third sector representatives (dementia friendly communities for example). Main purpose of the activity o Share info - early career researchers to share their projects with key people who may be affected by their findings Information sharing across different groups about the research needs people living with or caring for people with dementia have as well as how best to disseminate key findings and help use it to implement change o Stimulate thinking Sharing knowledge, experience across the different groups helped to generate ideas about future relationships and partnerships for research o Improve understanding of other's thinking Bringing together the different groups - academics, services, people with dementia etc. helped academics better understand the ways people engage with and use research o Inform decision making The event was not focussed on key policy change - however, it may have shaped services' decisions regarding the allocation of resources towards engaging with research or pilot projects to help implement a strategy that research has shown to be of benefit. o Make decisions The event may help decisions regarding future partnerships and research collaborations How many people did it reach?: The event was attended by 43 people Describe the results of the activity: The results of the activity are difficult to predict. The workshop generated some key strategies for helping make research related to living well with dementia more impactful. These are being written up into a document and distributed to all delegates. Delegates lists were shared with the group and new contacts and relationships may be built from the event in the future. Describe any notable impacts: I think they will be more long term (building of relationships across research and user groups, future research bids for example) Most NB impact of this activity o Requests for further info: Greater awareness of the studies presented - people asking for slides to be shared so that they could follow the links to the study websites more easily. o Increase in requests about participation/involvement: People with dementia asking about getting involved in the various studies. o Plans for future related activity: This was a one off event o Audience change in views/opinions: Difficult to judge until we see the feedback forms - general view on the day that it was positive to see how much was being done in relation to living well with dementia that they were previously unaware of. o Own/colleagues change in views: Greater understanding of other large studies - like GREAT and ACTIFCare for example. o Decision made or influenced
Year(s) Of Engagement Activity	2017

Description	Banner unfurling 'When we talk you will listen', A Life More Ordinary (ALMO), Touchstones BME dementia service group, Leeds, 15 November
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	The artists have been working with Touchstones BME dementia Service group to create a banner. The Touchstones banner asks us to listen and try to understand the concerns of people living withdementia. One of the symptoms of certain kinds of dementia can be the disturbance of speech and the ability to speak a second language. The banner was officially unfurled alongside a poem where members of the group and the general public attended.
Year(s) Of Engagement Activity	2019

Description	Banner unfurling, Cottingley Crew, A Life More Ordinary (ALMO), Leeds, 8 June
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	The artists have been working with Young Dementia Leeds to create a banner. The Cottingley Crew banner draws on the themes of togetherness and still being ourselves. The tag line is 'Marching together forward against dementia' and Ian McMillian produced a poem entitled 'Marching Forward' to accompany the banner. The images used represent Leeds and its industrial past. The banner was officially unfurled at an event held in Leeds on Saturday 8 June to which members of the group attended.
Year(s) Of Engagement Activity	2019

Description	Banner unfurling, Kirklees group, A Life More Ordinary (ALMO), Huddersfield, 22 November
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	The artists have been working with Kirklees group to create a banner. The Kirklees banner represents a campaign for a better and clearer system to access contacts, advice and care and suppport. The banner was officially unfurled alongside a poem in Huddersfield where members of the group and the general public attended.
Year(s) Of Engagement Activity	2019

Description	Banner unfurling, York DEEP group, A Life More Ordinary (ALMO)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Public unfurling of banner created by York DEEP group, event was attended by 25 people with dementia, 12 students/brass band players performing at the event and 50 members of the public, as well as photographer from local newspaper, TV crew from local BBC news and local radio station
Year(s) Of Engagement Activity	2019

Description	Blog - The World Turned Upside Down: a Newton's cradle of memories (researchandinnovation.co.uk)
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Industry/Business
Results and Impact	A play which aims to give audiences a sense of what it's like to live with dementia will be staged in Exeter this week. The World Turned Upside Down has been devised by Director, Paul Jepson, and inspired by the Improving the experience of Dementia and Enhancing Active Life (IDEAL) project, which aims to find ways to support people to live as well as possible with dementia, Tess Walsh (an Exeter College Film, English and Politics student) explains more about the project.
Year(s) Of Engagement Activity	2021
URL	https://researchandinnovation.co.uk/the-world-turned-upside-down-a-newtons-cradle-of-memories/

Description	Blog - Research Delivery Psychologist Paula Brown, shares her experience of working on dementia studies with Nottinghamshire Healthcare NHS Foundation Trust's Research Delivery Team.
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Blog - Research Delivery Psychologist Paula Brown, shares her experience of working on dementia studies with Nottinghamshire Healthcare NHS Foundation Trust's Research Delivery Team.
Year(s) Of Engagement Activity	2022
URL	https://www.institutemh.org.uk/news/blog2/research-delivery-working-on-dementia-studies-my-personal-...

Description	Blog - The World Turned Upside Down :A play, an experience, an insight.
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Tess Walsh, Exeter College film English and politics Student who enjoys the film theatre and the performing arts as well as human rights and environmentalism activism wrote a blog on her experience of dementia and the changes in her opinion, after seeing the play rehearsals.
Year(s) Of Engagement Activity	2021
URL	https://researchandinnovation.co.uk/the-world-turned-upside-down-a-play-an-experience-an-insight/

Description	Blog Post on 'Dementia Studies' Blog
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Blog post on University of Bradford Dementia Studies site ' What difference does relationship quality make to people with dementia and carers?' . This research was recently published in the Aging and Mental Health https://doi.org/10.1080/13607863.2019.1617238.
Year(s) Of Engagement Activity	2019
URL	http://blogs.brad.ac.uk/dementia/what-difference-does-relationship-quality-make-to-people-with-demen...

Description	Blog by Wendy Mitchell, a person living with dementia, 01 Feburary
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Blog by Wendy Mitchell, a person living with dementia, on meeting where they reflected on the impact of the 'Right to get out and about' banner. Ian Beesley joined the group and gave them an update on the ALMO project and where the banners will be exhibited.
Year(s) Of Engagement Activity	2019

Description	Blog post on 'Dementia Studies' blog
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Blog post on University of Bradford Dementia Studies site 'Carers' experience of caring can influence the well-being of people with dementia'
Year(s) Of Engagement Activity	2019
URL	http://blogs.brad.ac.uk/dementia/carers-experience-of-caring-can-influence-the-well-being-of-people-...

Description	Blog post on 'Dementia Studies' blog
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Blog on University of Bradford Dementia Studies site ' 29th Alzheimer Europe Conference' The Centre for Applied Dementia Studies was well represented at the 29th Alzheimer Europe Conference "Making valuable connections" that was held in The Hague from the 23 to 25 October 2019.
Year(s) Of Engagement Activity	2019
URL	http://blogs.brad.ac.uk/dementia/29th-alzheimer-europe-conference/

Description	Blog post on 'Dementia Studies' by Catherine Quinn,Co-investigator,10 April
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Blog 'Both positive and negative experiences are important for carers' well-being' University of Bradford Website and Tweeted by IDEAL and C Quinn
Year(s) Of Engagement Activity	2019
URL	http://blogs.brad.ac.uk/dementia/both-positive-and-negative-experiences-are-important-for-carers-wel...

Description	Blog post on 'Public Discourses of Dementia' IDEAL Study: Communication situations - What happens when you stage and screen dementia?
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	A blog post created about 'The world Turned Upside Down' featuring the thoughts of two of the PPI group, Julia Burton and Keith Oliver, and Catherine Charlwood, Research Translation and Impact Manager for IDEAL
Year(s) Of Engagement Activity	2022
URL	https://wp.lancs.ac.uk/public-discourses-of-dementia/2022/11/15/ideal-study-communication-situations...

Description	Blog post on University of Bradford Dementia Studies site, 'Both positive and negative experiences are important for carers' well-being' by C. Quinn - IDEAL co-investigator, 10 April
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Blog to raise awareness of research findings to academics and the general public
Year(s) Of Engagement Activity	2019
URL	http://blogs.brad.ac.uk/dementia/both-positive-and-negative-experiences-are-important-for-carers-wel...

Description	Blog: Dementia and lonliness:prevalence and determinants for people living in the UK
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Blog post on the 'National Elf Service' summarising Victor et al's 2020 paper Dementia and lonliness:prevalence and determinants for people living in the UK, added by Rosie Mansfield.
Year(s) Of Engagement Activity	2021
URL	https://www.nationalelfservice.net/mental-health/dementia/dementia-loneliness/

Description	Book Launch: 'The Unfurlings' - public launch at Gallery Oldham with Debbie Abrahams
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Book launch of the Unfurlings Banners with Debbie Abrahams- Labour MP for Oldham East and Saddleworth
Year(s) Of Engagement Activity	2020

Description	Borth Dementia Group presentation
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Dr Catherine Charlwood presented the Living with Dementia toolkit
Year(s) Of Engagement Activity	2022

Description	Bradford Community Broadcasting (BCB) Interview with Dr Catherine Quinn
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Discussion between with Dr Catherine Quinn and presenters on the impact of people with dementia during the Covid-19 crisis and lockdown including signposting for people needing support. Catherine also discussed the IDEAL project.
Year(s) Of Engagement Activity	2020

Description	Brave New World Song tweet by ESRC
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Economic and Social Research Council tweeted about 'Brave New World', the song create as a message of hope for people living with dementia, based on IDEAL research and the experiences of the writers and singers.
Year(s) Of Engagement Activity	2022
URL	https://twitter.com/ESRC/status/1552949558887546880

Description	Brave New World' segment on ITV Granada regional news programme
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	The video segment about 'Brave New World', a song commissioned and inspired by the IDEAL project was broadcast as part of ITV Granada, the regional news programme in the North West.
Year(s) Of Engagement Activity	2022

Description	Bristol Dementia Event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	Presented the study at the Bristol Dementia Wellbeing service development day. The audience were primarily GPs, Dementia Practitioners and Dementia Navigators who work in Bristol. The presentation resulted into discussion of the study afterwards.
Year(s) Of Engagement Activity	2017

Description	British Psychological Society conference 2017: Living well with dementia: a systematic review
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Clare, L., Martyr, A., Nelis. S.M., Quinn, C., Lamont, R., Henderson. C., Jones. I.R., & Victor, C. (2017, May). Living well with dementia: a systematic review. Paper presented at the British Psychological Society Annual Conference, Brighton, UK.
Year(s) Of Engagement Activity	2017
URL	https://www1.bps.org.uk/system/files/user-files/Annual%20Conference%202017/AC2017%20ABSTRACT%20BOOK_...

Description	British Society of Gerontology Conference 2017: Symposium on dementia narratives
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Symposium on 'Dementia narratives: How people understand and adjust to a diagnosis of dementia' at the British Society of Gerontology 2017 conference held in Swansea
Year(s) Of Engagement Activity	2017
URL	http://www.swansea.ac.uk/media/BS_Gerontology_Abstract_Book.pdf

Description	COVID dementia projects nominated for award
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Press release from UKRI concerning the two ESRC projects shortlisted for AlzSoc Dementia Hero Award in Research.
Year(s) Of Engagement Activity	2021
URL	https://www.ukri.org/our-work/tackling-the-impact-of-covid-19/researching-the-impact-of-coronavirus/...

Description	Café Scientifique: Is it possible to live well with dementia?
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Public/other audiences
Results and Impact	Drawing on the findings of the IDEAL cohort study, Catherine Quinn explored how living well is defined by those living with dementia and describe recent work to understand the issues facing people affected by dementia during the Covid-19 pandemic. She will talk about how research has identified changes that need to occur at a community level to enable people to live well. Lastly, she will consider some of the ways we can better support both people with dementia and their carers, especially during these troubled times.
Year(s) Of Engagement Activity	2020
URL	https://www.bradford.ac.uk/events/archive/2019/cafe-scientifique-is-it-possible-to-live-well-with-de...

Description	Cambridge and Peterborough NHS Trust's annual dementia conference 'Building Knowledge in Dementia Care'
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	"The Living with Dementia Toolkit advisory group spoke at the dementia conferences about the benefits of the toolkit. Feedback included: I love the energy exuding from the group. You are incredible! You guys are brilliant as is the toolkit! Very well done to you all on such a great idea and resource what a wonderful group of people you are. So inspiring. Cant wait to look through the toolkit. I used to teach health and social care apprentices, this toolkit is also brilliant for them - plus nurse associates. Thank you for producing this, so good Thank you. The positivity from you guys is amazing! Keep doing what you're doing! "
Year(s) Of Engagement Activity	2022

Description	Clare (2015) 50th Anniversary symposium, Cork
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Clare, L. (2015, Sept.). Promoting health and well-being for older people and people with dementia. Presentation at the 50th Anniversary symposium, School of Applied Psychology, University College Cork, Ireland. -
Year(s) Of Engagement Activity	2015

Description	Clare (2015) Discussion panel, Exeter
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Clare, L. (2015, March). Post-show discussion panel following performance of 'Inside Out of Mind' (a play about dementia) at the Northcott Theatre, Exeter. -
Year(s) Of Engagement Activity	2015

Description	Clarke AAIC Poster 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Clarke, R., Chen, H.L., & Rusted, J. (2017, July). Exploring psychological wellbeing in working dementia carers. Poster presented at the Alzheimer's Association International Conference, London, UK.
Year(s) Of Engagement Activity	2017
URL	http://www.alzheimersanddementia.com/article/S1552-5260(17)31947-7/fulltext

Description	Conference address
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	IDEAL CI and GREAT trial CI, Prof. Linda Clare and Jackie Pool (GREAT trial Co-Investigator) gave the Tom Kitwood Memorial Address for the online UK Dementia Congress, talking about the IDEAL study, GREAT trial and GREAT iP project.
Year(s) Of Engagement Activity	2020
URL	https://careinfo.org/speakers-2020/?z=31836

Description	Conference address - Keynote at the Brain, Behaviour and Emotion 2020 Congress, Brazil, given by Professor Linda Clare.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Keynote at the Brain, Behaviour and Emotion 2020 Congress, Brazil, given by Professor Linda Clare related to the IDEAL programme and GREAT and GREAT-iP studies.
Year(s) Of Engagement Activity	2020
URL	https://braincongress.com.br/2020/convidados/index.php#topo

Description	Conference presenetation, C.Quinn, IDEAL co-investigator, Alzheimer's Society conference, London, UK 21-22 May
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Quinn, C. & Oliver, K. (2019, May). Reflections on Patient and Public Involvement from the 'Action on Living Well: Asking You' (ALWAYs) advisory network. Presentation at Alzheimer's Society conference, London, UK.
Year(s) Of Engagement Activity	2019

Description	Conference presentation of IDEAL findings 'Psychosocial interventions in Dementia', L. Clare, Demantias conference, London, 14-15 Feburary
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Demantias 21st National conference, presentation to practitionsers and academics under the theme 'Advancing dementia diagnosis and management'
Year(s) Of Engagement Activity	2019

Description	Conference presentation of IDEAL paper, WISERD July
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Conference presentation of IDEAL paper: Henley, J., Jones, I.R., Hillman, A.E., Woods, B., & Clare, L. (2019). 'We're happy as we are'. What are the psychosocial barriers to seeking a dementia diagnosis? WISERD Annual Conference, Cardiff, July.
Year(s) Of Engagement Activity	2019
URL	https://wiserd.ac.uk/news/wiserd-annual-conference-2019-take-place-3rd-4th-july

Description	Conference presentation: Involvement and co-production in the IDEAL programme at the National Dementia Action Alliance's Annual Conference 2020
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Presentation by Linda Clare (CI, IDEAL, University of Exeter) and Rachael Litherland (Innovation in Dementia), about the IDEAL study and the various groups that are involved in the programme. ALWAYS group - advising the research team DEAR group - co-producing new questionnaires about 'living well' to capture what is important to people living with dementia A Life More Ordinary - working with artists to raise public awareness about the experience of living with dementia.
Year(s) Of Engagement Activity	2020

Description	Course delivery, Future learn massive open online course (MOOC) Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives, 13 May - 03 June
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Future Learn MOOC (massive open online course) created in partnershiop with UCL - Arts & Dementia online training for arts practioners - Understand how the arts can improve the lives of people with dementia. Course accredited by Royal Society for Public Health and recognised by its CPD scheme
Year(s) Of Engagement Activity	2019
URL	https://www.futurelearn.com/courses/dementia-arts/6

Description	Course delivery, Future learn, massive open online course (MOOC) Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives, 18 November - 19 December
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Future Learn MOOC (massive open online course) created in partnershiop with UCL - Arts & Dementia online training for arts practioners - Understand how the arts can improve the lives of people with dementia. Course accredited by Royal Society fro Public Health and recognised by its CPD scheme
Year(s) Of Engagement Activity	2019
URL	https://www.futurelearn.com/courses/dementia-arts/6

Description	Course delivery, Future learn, massive open online course (MOOC) Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives. 10th February to 22nd June 2020.
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Explore, challenge and shape your perceptions of dementias through science and the creative arts. Creating a society that supports and includes those living with a dementia is a major challenge - and opportunity. In this online course attendees discover how the arts can create common ground between people, and in doing so, learn what we can all do to improve the quality of life and care for people living with different dementias. The course references the IDEAL ALMO project ( A life More Ordinary)
Year(s) Of Engagement Activity	2020
URL	https://www.futurelearn.com/courses/dementia-arts

Description	Course delivery, Future learn, massive open online course (MOOC) Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives, 21 janurary-11 Feburary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Future Learn MOOC (massive open online course) created in partnershiop with UCL - Arts & Dementia online training for arts practioners - Understand how the arts can improve the lives of people with dementia. Course accredited by Royal Society for Public Health and recognised CPD scheme
Year(s) Of Engagement Activity	2019
URL	https://www.futurelearn.com/courses/dementia-arts/6

Description	Course delivery, Future learn, massive open online course (MOOC) Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives, 31st August - 17th September 2020
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Featuring the IDEAL project ALMO ( A life More Ordinary) Future Learn MOOC (massive open online course) created in partnership with UCL - Arts & Dementia online training for arts practioners - Understand how the arts can improve the lives of people with dementia. Course accredited by Royal Society for Public Health and recognised by its CPD scheme.
Year(s) Of Engagement Activity	2020
URL	https://www.futurelearn.com/courses/dementia-arts

Description	Course on mental health economics and policy, Hong Kong, 5-9 August
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Martin Knapp presenting about IDEAL - a course 'Special topics in mental health I (Mental health economics and policy)' in the Department of Social Work and Social Administration, Hong Kong University. In addition, the course was open to faculty, third sector organisations and others in Hong Kong, and there were roughly 45 people attending throughout the five days. There were five follow-up requests for information about IDEAL, and referred people to the project website, given that it is so informative.
Year(s) Of Engagement Activity	2019

Description	DEEP (The UK Network of Dementia Voices) York meeting other groups for A Life More Ordinary (ALMO) banner making 27 Feburary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	DEEP (The UK Network of Dementia Voices) York meeting other groups for A Life More Ordinary (ALMO) banner making 27 Feburary
Year(s) Of Engagement Activity	2019

Description	DEEP Network celebration in Wales 'Loud and Proud about Dementia'
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Living with dementia Toolkits handed out at the celebration event for DEEP Network in Wales.
Year(s) Of Engagement Activity	2022

Description	Day of the Older Person
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Public/other audiences
Results and Impact	This was a public engagement day in the Local Shopping centre. The project was among several that we talked about during the day. Key finding leaflet was distributed.
Year(s) Of Engagement Activity	2022

Description	Dementia Awareness Week 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Public/other audiences
Results and Impact	To mark Dementia Awareness Week 2017, the Ageing Studies Theme at Brunel University hosted a seminar to showcase their dementia related research and public engagement activities. The theme of the seminar was Living Well with Dementia. Prof Christina Victor presented an overview of what the IDEAL study aims to achieve, along with some of the key findings from the systematic review and qualitative work. Feedback received highlighted the importance of considering the person with dementia in the context of family, friends, and where they live, care should be tailored and not 'one size fits all' and need for greater public understanding and awareness.
Year(s) Of Engagement Activity	2017

Description	Dementia Change Action Network
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Meeting findings discerned IDEAL findings will be of interest in understanding how to deliver person centered care. DCAN agreed to develop webpage to host research findings
Year(s) Of Engagement Activity	2020

Description	Dementia Creatives: Creations and links to the community
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Dementia Creatives is a website for people living with dementia who are using their creations to make supportive and enjoyable links across communities. The project is all about the pride in creating something yourself from scratch (whether it's knitting, painting, song or play-writing, poetry, woodwork, or much more) while sending, if you so choose, your own message to others. Some of the resources feature the IDEAL ALMO (A Life More Ordinary) project.
Year(s) Of Engagement Activity	2020
URL	https://dementiacreatives.org.uk/

Description	Dementia Friendly Communities: Dissemination of recent IDEAL paper
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Shared summary of research articles and potential areas of impact.
Year(s) Of Engagement Activity	2021
URL	https://www.idealproject.org.uk/media/universityofexeter/schoolofpsychology/ideal/laysummaries/IDEAL...

Description	Dementia Research Chatathon
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Adam Smith, Programme Director in the Office of the NIHR National Director for Dementia Research was host for the whole 12 hour marathon session. Adam talked with 55 researchers from all fields of dementia research, using video chat - live streamed using Zoom and YouTube. Meeting in small groups, and generally themed by their work, they 'dropped-in' throughout the day, discussing their research, the latest hot topics in their field and how they are working to beat the disease and improve the lives of people affected. Catherine Quinn, Co Investigator on the IDEAL project discussed the IDEAL project during her session.
Year(s) Of Engagement Activity	2020
URL	https://chatathon.uk/

Description	Dementia Research Chatathon: Involving People Living with Dementia in Research
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Other audiences
Results and Impact	Dr Catherine Charlwood (IDEAL Research Translation Manager) and Dr Catherine Quinn (CI on IDEAL) took part in the Dementia Researcher Chatathon LIVE which was held on Friday 2nd December (a non-stop 12.5 hours livestream hosted by Adam Smith, interviewing 68 Dementia Researchers and Special Guests working across all areas of discovery to beat Alzheimer's disease and all forms of dementia). Their session was on the topic discussing involving people living with dementia in research and how this has worked for IDEAL. Dr Charlwood mentioned the Living with Dementia toolkit as a exemplary example of Co-Production.
Year(s) Of Engagement Activity	2022
URL	https://www.dementiaresearcher.nihr.ac.uk/catch-up-dementia-research-charity-chatathon/

Description	Dementia Strategic Clinical Network Leads Seminar
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	"Presentation to the NHS England Dementia Clinical Network, Activity was to provide emerging evidence from the analyses of the IDEAL CDI work, to consider next steps and dissemination. Presenters included IDEAL researchers and PI, subjects included: Overview of the IDEAL programme and the IDEAL Covid-19 dementia initiative (IDEAL CDI) Isolation and loneliness among people with dementia and carers: evidence from the IDEAL programme 'Living well' with dementia: evidence from the IDEAL programme IDEAL CDI
Year(s) Of Engagement Activity	2020

Description	Dementia action week
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Based on IDEAL paper "Caregiver influences on 'living well' for people with dementia: Findings from the IDEAL study, Bradford University and Brunel University press release
Year(s) Of Engagement Activity	2019

Description	Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives, 2-23 September
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Future Learn MOOC (massive open online course) created in partnershiop with UCL - Arts & Dementia online training for arts practioners - Understand how the arts can improve the lives of people with dementia. Course accredited by Royal Society fro Public Health and recognised by its CPD scheme
Year(s) Of Engagement Activity	2019
URL	http://www.edenvalleyartisticnetwork.co.uk/penrith-arts-festival

Description	Dementia and the Arts: The many faces of dementia
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Featuring information/ work produced for the IDEAL ALMO project, this course, participants gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses. They explore key issues in dementia care and research through the eyes of people affected by four less common conditions. World-leading experts at UCL show how research into the signs, stages, symptoms and causes of these forms can bring us closer to defeating dementia. Runs 30th March - 11th May.
Year(s) Of Engagement Activity	2020
URL	https://www.futurelearn.com/courses/faces-of-dementia

Description	Dementia and the arts: sharing practice, developing understanding and enhancing lives
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	A workshop exploring, challenging and shaping your perceptions of dementias through science and the creative arts. Creating a society that supports and includes those living with a dementia is a major challenge - and opportunity. This online course allows the participant to discover how the arts can create common ground between people, and in doing so, learn what we can all do to improve the quality of life and care for people living with different dementias. 2020 run dates. This workshop includes work from ALMO (A life more ordinary) and IDEAL.
Year(s) Of Engagement Activity	2020
URL	https://www.futurelearn.com/courses/dementia-arts

Description	Dementia and the arts: sharing practice, developing understanding and enhancing lives
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Explore, challenge and shape your perceptions of dementias through science and the creative arts. Creating a society that supports and includes those living with a dementia is a major challenge - and opportunity. In this online course you will discover how the arts can create common ground between people, and in doing so, learn what we can all do to improve the quality of life and care for people living with different dementias.
Year(s) Of Engagement Activity	2020
URL	https://www.futurelearn.com/courses/dementia-arts

Description	Dementias 2020 - What can epidemiology tell us about dementia
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	For health practitioners to keep their professional certification. Lots of discussion about dementia and how the population health is influenced.
Year(s) Of Engagement Activity	2020

Description	Devon Partnership Trust research conference 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Contributes to engagement with Devon Partnership Trust in terms of participating in service developments
Year(s) Of Engagement Activity	2017
URL	https://www.dpt.nhs.uk/news/2017-dementia-and-mental-health-research-conference

Description	Discovering Dementia podcast
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	A podcast with Penny Bell. Penny talks to Linda Clare, Professor of Clinical Psychology of Ageing and Dementia at the University of Exeter Medical School, about the IDEAL study that explores people's experiences of living well with dementia.
Year(s) Of Engagement Activity	2020
URL	https://podcasts.apple.com/gb/podcast/season-2-ep-2-different-kind-day-care-filo-project/id123919698...

Description	E-Bulletin Special Issue 157 2019, Dementia Knowledge Centre, Alzheimer's Society - IDEAL, 1 September
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A newslettser that goes out to Altzhiemers Society members Special issue 157 2019
Year(s) Of Engagement Activity	2019

Description	Encouraging positive thinking about dementia
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Blog post to promote the chapbook 'From Negative to Positive' to encourages more positive conversations around dementia by highlighting the talents and experiences of the people and their carers behind a diagnosis. The blog post was read by over 600 people.
Year(s) Of Engagement Activity	2018
URL	https://www.alzheimers.org.uk/blog/artists-chapbook-encourages-positive-thinking-dementia

Description	Evaluation of services - Alzheimer's Society's evaluation team
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Meeting with Alzheimer's Society's evaluation team to support them to develop their theory of change to evaluate their services based on the IDEAL model for living well.
Year(s) Of Engagement Activity	2018

Description	Exeter dementia research team are award finalists
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Media (as a channel to the public)
Results and Impact	Press release dual released by Exeter CMH and PenARC detailing INCLUDE being a finalist for the AlzSoc Dementia Hero Awards for Research 2021
Year(s) Of Engagement Activity	2021
URL	http://medicine.exeter.ac.uk/news/articles/exeterdementiaresearchtea.html

Description	Exhibition of A Life More Ordinary (ALMO) banners, Bradford Industrial Museum, June - December
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of all of banners and artwork from the A Life More Ordinary (ALMO) project - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience.
Year(s) Of Engagement Activity	2020
URL	http://www.theunfurlings.org.uk

Description	Exhibition of A Life More Ordinary (ALMO) banners, Exeter Library, 19 October - 23 Janurary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of five banners created by people with dementia from DEEP (The UK network of Dementia voices) and artists, including contextual material in a special dementia friendly space, to raise awareness of Dementia and the challenges and pleasures people with Dementia experience
Year(s) Of Engagement Activity	2019
URL	http://www.theunfurlings.org.uk

Description	Exhibition of A Life More Ordinary (ALMO) banners, Gallery Oldham
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of a selection of banners and artwork from the A Life More Ordinary (ALMO) project created by The Ragamuffins DEEP (The UK network of Dementia voices) and a selection of their work from previous projects including contextual material - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience.
Year(s) Of Engagement Activity	2020
URL	http://www.theunfurlings.org.uk

Description	Exhibition of A Life More Ordinary (ALMO) banners, Harris Art Gallery, Preston 15 Feburary - 25 April
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of a selection of banners and artwork from the A Life More Ordinary (ALMO) project in conjunction with the Harris gallery including contextual material - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience.
Year(s) Of Engagement Activity	2020
URL	http://www.theunfurlings.org.uk

Description	Exhibition of A Life More Ordinary (ALMO) banners, Lighthouse, Poole
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of a selection of banners and artwork from the A Life More Ordinary (ALMO) project created by people with dementia from DEEP (The UK network of Dementia voices) and artist Ian Beesley, including contextual material - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience
Year(s) Of Engagement Activity	2020
URL	http://www.theunfurlings.org.uk

Description	Exhibition of A Life More Ordinary (ALMO) banners, People's History Museum Manchester, 18 November
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of all banners and artwork from the A Life More Ordinary (ALMO) project created by people with dementia from DEEP (The UK network of Dementia voices) and artist Ian Beesley, held at the People's History Museum Manchester including contextual material. Plus: exhibition catalogue and website - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience
Year(s) Of Engagement Activity	2019
URL	http://www.theunfurlings.org.uk

Description	Exhibition of A Life More Ordinary (ALMO) banners, Thackray Medical Museum, December - May
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of a selection of banners and artwork from the A Life More Ordinary (ALMO) project - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience.
Year(s) Of Engagement Activity	2020
URL	http://www.theunfurlings.org.uk

Description	Exhibition of banners created by people with dementia, UK Dementia Congress, Doncaster 5-7 November
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Exhibition of five banners created by people with dementia from DEEP (The UK network of Dementia voices) presented by artist Ian Beesley, including contextual material in a special dementia friendly space, to raise awareness of Dementia and the challenges and pleasures people with Dementia experience
Year(s) Of Engagement Activity	2019

Description	Exploring God in Dementia
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Other audiences
Results and Impact	The session shared the IDEAL project ideas around living well with dementia and the principles of re-ablement and person-centeredness. This was followed by discussion among the attendees of their current activities and support for people with dementia in their congregations and the wider community. The result was therefore the stimulation of thought around better care for people with dementia, but also the sharing of ideas between attendees. IDEAL contains measures of spirituality and religiosity. By attending this day, Dr Ruth Lamont was able to engage in discussion and hear from both church leaders and people with dementia about their experiences of dementia and religion/spirituality. These discussions will feed into ideas around this element of the IDEAL model. In particular, multiple individuals with dementia talked about their faith as a means through which they made sense of their diagnosis, enabling them to continue to live well. They talked of their faith as allowing them to know they are still of importance even when the things that we typically see as making us human fade (e.g. ability to make choices, be independent, to remember), they described how they achieved meaning through sharing their faith with and supporting others with a diagnosis, and they described how their churches had facilitated their continued involvement in meaningful roles.
Year(s) Of Engagement Activity	2017

Description	Festival of Social Science Exeter November 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	The event is part the Economic and Social Research Council's (ESRC) annual Festival of Social Science taking place next month. It is part of the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) Project at the University of Exeter. Dr Nelis said: "Over 850,000 people have a diagnosis of dementia in the UK, our work focuses on how people can 'live well' with dementia. This event will look at how we can better understand the experience of living with dementia and how we can all make a difference and promote accurate portrayals of dementia." Author Keith Oliver who was diagnosed with early onset dementia at the age of 55, will speak at the event. He will discuss his thoughts on living with Alzheimer's disease, including both the struggles and opportunities he's encountered throughout his diagnosis. He said: "Initially it was such a shock. I hadn't expected dementia at all. I was busy and successful and I loved my job. Yet even on that first day, when I got the diagnosis, I said to my wife 'when one door closes, another door opens'. At that point, I had no idea what those new doors would hold, but actually a lot of it has been very positive." Researcher Dr Alex Hillman will also be speaking at the event, and will be sharing images like those we often view on TV to encourage audience members to reflect on how dementia is portrayed in mainstream media, and how this media depiction may shape their own views, as well as the experiences of those who live with the condition. Steve Milton from Innovations in Dementia - a community interest company that works collaboratively with people with dementia to enhance their lives - will then lead a discussion on this topic, focusing specifically on how we can shift the way people with dementia are, often negatively, defined and described in the media.
Year(s) Of Engagement Activity	2017
URL	http://medicine.exeter.ac.uk/news/articles/publicinvitedtointeractiv.html

Description	Fog of Support: policy briefing
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	IDEAL's model of the factors associated with living well for carers of people with dementia resulted in a policy report 'The Fog of Support' being written on the needs of carers that was published in September 2020.
Year(s) Of Engagement Activity	2020
URL	https://www.alzheimers.org.uk/sites/default/files/2020-09/as_new_the-fog-of-support_carers-report_fi...

Description	GREAT / IDEAL Keynote Glasgow 2018
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Clare, L. (2018). Cognitive rehabilitation for people living with dementia: a practical framework for enablement. Keynote address. British Association for Behavioural and Cognitive Psychotherapies Conference, Glasgow, July. The presentation included discussion of the IDEAL programme. Plans for future related activity were briefly discussed at the end of the symposium.
Year(s) Of Engagement Activity	2018
URL	http://babcpconference.com/programme/keynotes_2018.htm

Description	GREAT/IDEAL National Dementias Conference Feb. 2019
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Clare, L. (2019, Feb.) Psychosocial interventions in dementia: enabling people with dementia to 'live well'. Presentation at the National Dementias Conference, London.
Year(s) Of Engagement Activity	2019
URL	http://www.dementiasconference.com/Speakers

Description	Gerontological Society of America (GSA) Annual Scientific Meeting, IDEAL Symposium, Phoenix, Arizona, 11-15 November
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	IDEAL symposium led by Professor Christina Victor including 3 papers based on IDEAL findings: Clare, L., Martyr, A., Quinn, C., & Victor, C. (2019). Living alone with dementia: findings from the IDEAL cohort. Rippon, I., Quinn, C., Martyr, A., Victor, C., Matthews, F., & Clare, L. (2019). Prevalence of loneliness and isolation among people with dementia and their carers. Victor, C., Rippon, I., Martyr, A., Matthews, F., & Clare, L. (2019). How lonely and isolated are older people with dementia and their carers: a dyadic analysis.
Year(s) Of Engagement Activity	2019

Description	H&Sc Inquiry - Backlog of Support
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	IDEAL contributed to the H? inquiry with a submission of relevant IDEAL findings on the Backlog of Support.
Year(s) Of Engagement Activity	2021

Description	How to stay well during the Coronavirus Outbreak: 5 key messages for carers
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	"A 6 page leaflet produced for people living with dementia with tips to make things more manageable throughout lockdown during the Coronavirus outbreak. Building on findings from the 'Improving the experience of Dementia and Enhancing Active Life' research programme, the team has produced a leaflet for people with dementia, which will also be helpful for their family members or other supporters providing unpaid care. The leaflet is funded by the National Institute for Health Research (NIHR), in a project led by the University of Exeter and the NIHR Older People and Frailty Policy Research Unit, with partners including Alzheimer's Society, Manchester University, Bradford University and Brunel University London. Feedback Many thanks for sharing this leaflet, it really is superI will ensure that we make this really helpful leaflet available on our website and alert Carers to it. Jean Tottie, Director, TiDE. https://www.tide.uk.net/resources/impact-of-covid-19-lockdown/ All responses have been immensely positive and folk are sharing it in a similar manner to its earlier ""cousin"" (5 key messages for people living with dementia). Keith Oliver, Alzheimer's Society Ambassador.
Year(s) Of Engagement Activity	2020
URL	http://www.idealproject.org.uk/covid/carer/

Description	IAGG Cohort 2017
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Clare, L., Nelis, S.M., Wu, Y.-T., Martyr, A., Knapp, M., Henderson, C., Lamont, R.A., & Matthews, F.E. (2017). Improving the experience of dementia and enhancing active life (the ideal study): cohort profile. Innovation in Aging, 1, 1344. doi: 10.1093/geroni/igx004.4934
Year(s) Of Engagement Activity	2017
URL	https://academic.oup.com/innovateage/article/1/suppl_1/1344/3902181

Description	IAGG Duality 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Jones, I.R., Hillman, A., Quinn, C., & Clare, L. (2017). Dualities of dementia accounts: biographical reconstruction and narrative economies. Innovation in Aging, 1, 1344-1345. doi: 10.1093/geroni/igx004.4936
Year(s) Of Engagement Activity	2017
URL	https://academic.oup.com/innovateage/article/1/suppl_1/1344/3902183

Description	IAGG Symposium 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	The symposium presented initial findings from the study. Clare, L. (2017). Improving the experience of Dementia and Enhancing Active Life: early findings from the IDEAL cohort. Innovation in Aging, 1, 1344. doi: 10.1093/geroni/igx004.4933
Year(s) Of Engagement Activity	2017
URL	https://academic.oup.com/innovateage/article/1/suppl_1/1344/3902180

Description	IAGG Systematic review 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Martyr, A., Wu, Y., Morris, R., Hindle, J., Rusted, J., Thom, J., Clarke, R., & Clare, L. (2017). Factors associated with quality of life in dementia: a correlational meta-analysis. Innovation in Aging, 1, 1344. doi: 10.1093/geroni/igx004.4935
Year(s) Of Engagement Activity	2017
URL	https://academic.oup.com/innovateage/article/1/suppl_1/1344/3902182

Description	IAGG representing dementia 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Hillman, A., Jones, I.R., Quinn, C., & Clare, L. (2017). Letting go of coherence: the challenges of representing dementia. Innovation in Aging, 1, 1345. doi: 10.1093/geroni/igx004.4937
Year(s) Of Engagement Activity	2017
URL	https://academic.oup.com/innovateage/article/1/suppl_1/1345/3902184

Description	IDEAL - ALMO Blog May 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	A blog on the Alzheimer's Society website: This artists' 'chapbook' encourages positive thinking about dementia: A new chapbook collaboration between artists and people living with dementia is promoting positivity through poems, photos and drawings. It outlines one of the chapbooks from the IDEAL KE linked studies from 'A Life More Ordinary'
Year(s) Of Engagement Activity	2018
URL	https://blog.alzheimers.org.uk/research/chapbook-positive-thinking/

Description	IDEAL / ALMO Symposium UK Dementia Congress Nov. 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	60 people (health-care professionals, researchers and people with dementia and their carers) heard about the IDEAL study, its linked arts project and ALWAYs group through a symposium. Three people with dementia and three people who are/have cared for someone with dementia from the IDEAL ALWAYs group talked during the symposium, sharing their personal experiences of advising on the IDEAL programme to an audience of 60 people. The group were overwhelmingly positive about their involvement in the ALWAYs group and talked about the benefits they get from sharing their experiences in a safe and friendly environment. The audience also provided much positive feedback e.g. Feedback from attendees- "Good talks, interesting to ensure value with PPI, great ideas" and "Provided a great insight to all the work being conducted". The session led to people thinking differently and wanting to implement change in their work practices with people with dementia: Feedback from attendee: "Made me think about how we give our info to PPI - need to improve this" "The 'being useful' by being part of the research project is something I can utilise at work. I am part of the CRT project at [carehome name redacted] and I can highlight how helpful/useful the residents would be in contributing to the research and how it will help others in the future." As well as leading to changes in thought and thinking around future plans, the symposium engaged people with the research for future dissemination. Seven people gave their contact details to receive updates on the project. The session also received a lot of attention during and afterwards on Twitter, encouraging further awareness of IDEAL and the agenda to increase the ability to live well with dementia.
Year(s) Of Engagement Activity	2018
URL	https://www.dementiaaction.org.uk/news/26705_uk_dementia_congress_2018

Description	IDEAL AAIC Chicago July 2018
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Clare. L. (2018; July). A comprehensive model of factors associated with subjective perceptions of living well with dementia: findings from the IDEAL study. Presentation at The Alzheimer's Association International Conference, Chicago, USA.
Year(s) Of Engagement Activity	2018
URL	https://www.alz.org/aaic/overview.asp

Description	IDEAL ADI Chicago Conference July 2018
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Clare. L. (2018; July). Living well with dementia: findings from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) study. Presentation at the Alzheimer's Disease International (ADI) Conference, Chicago. Keith Oliver, living with dementia, joined Prof. Linda Clare in discussing living well with dementia drawing on both personal experience and findings from the IDEAL study. Plans for future related activity were briefly discussed at the end of the talk. There was interest from Japan and Brazil in developing IDEAL programmes in the future.
Year(s) Of Engagement Activity	2018
URL	https://www.adi2018.org/sessions/plenary-5-psychosocial-interventions/

Description	IDEAL AH Radio Wales 2016
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Dr. Alexandra Hillman participated in a radio programme linked with Dementia Awareness Week in May 2016. During the programme Alex discussed the IDEAL project.
Year(s) Of Engagement Activity	2016

Description	IDEAL ALMO Press Release Telegraph & Argus August 2018
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	The ALMO project KE linked with IDEAL had an article campaigning for the right to 'a grand day out in the Telegraph & Argus on August 7th 2018 promoting their showing the positive and negative sides of travel for people with dementia.
Year(s) Of Engagement Activity	2018
URL	http://www.thetelegraphandargus.co.uk/news/16404160.campaigning-for-better-public-transport-services...

Description	IDEAL ALWAYS (PPI) group meeting, 23 April
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	ALWAYS (PPI) group meeting - work on concept of living well with dementia, giving reflections to build on the data from IDEAL, worked with Nicola Hart to help to shape the recommendations for commissioners using the IDEAL findings
Year(s) Of Engagement Activity	2019

Description	IDEAL BBC Breakfast 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Chris Roberts, a participant in IDEAL from north Wales, appeared on BBC Breakfast program on 14/08/15 to discuss participation in dementia research and the Join Dementia Research Initiative (JDR). Chris directly mentioned his involvement with the IDEAL study.
Year(s) Of Engagement Activity	2015

Description	IDEAL BSG July 2018 Hillman
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Alexandra Hillman, Ian Jones, Catherine Quinn, Sharon Nelis, Linda Clare (2018, July). Risking vulnerability: The precariousness of living with and caring for those with dementia. Presentation at the British Society of Gerontology Annual Conference, Manchester.
Year(s) Of Engagement Activity	2018
URL	https://app.oxfordabstracts.com/stages/25/programme-builder/submission/30522?backHref=/events/28/ses...

Description	IDEAL BSG July 2018 Jones
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Ian Jones, Alexandra Hillman, Catherine Quinn, Sharon Nelis, Ruth Lamont, and Linda Clare (2018, July). Letting go of coherence: Qualitative interviews and the challenges of representing dementia. Presentation at the British Society of Gerontology Annual Conference, Manchester.
Year(s) Of Engagement Activity	2018

Description	IDEAL BSG July 2018 Rippon
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Rippon, I. & Victor, C.R. (2018, July). Which is the best way to measure loneliness in people with dementia? A comparison of single and multi-item measures. Presentation at the British Society of Gerontology Annual Conference, Manchester.
Year(s) Of Engagement Activity	2018

Description	IDEAL Blog Quinn 2017
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Interviewing people with dementia: Practical tips Guest Blog written by Dr Catherine Quinn, Senior Research Fellow, University of Exeter on Tuesday February 28, 2017
Year(s) Of Engagement Activity	2017
URL	http://enrich.nihr.ac.uk/blogpost/interviewing-people-with-dementia-practical-tips

Description	IDEAL Bristol AK Feb. 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	• Title of presentation: Improving the experience of dementia and enhancing active life: living well with dementia The IDEAL study. • Title of event: Bristol Dementia Wellbeing Service - research group meeting in Bristol 06/02/17 • Attendees: NHS staff, healthcare practitioners and managers from the Bristol Dementia Wellbeing Service, Devon Partnership NHS Trust • Attendees increased their understanding of the IDEAL aims and intended outcomes; expressed their interest in using the study results to inform their practice
Year(s) Of Engagement Activity	2017

Description	IDEAL CDI briefing with Alzheimer's Society
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Dissemination of the first findings of the IDEAL CDI study to Alzheimer's Society, A strand of work funded by the NIHR examining the impact of COVID-19 on the health and wellbeing of people affected by dementia. The meeting was to discuss the likely policy implications and opportunities for further dissemination. Involved in the meeting were Alzheimer's Society personnel from the communications, policy, public affairs, campaigns and knowledge teams. Findings will be used to used to develop the Living Well Alongside COVID (LILAC) toolkit of resources.
Year(s) Of Engagement Activity	2020

Description	IDEAL Clare Ill Rep 2016 Press
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	People Who Consider Dementia an Illness Have a More Negative Outlook Neuroscience news.com Based on the paper: "I Don't Think of it as an illness": Illness Representations in Mild to Moderate Dementia" by Linda Clare, Catherine Quinn, Ian Rees Jones and Robert T Woods in Journal of Alzheimer's Disease. Published online February 27 2016 doi:10.3233/JAD-150794
Year(s) Of Engagement Activity	2016
URL	http://neurosciencenews.com/dementia-illness-negativity-3776/

Description	IDEAL Clare Ill Rep 2016 Press ii
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Dementia perceived as "illness" rather than aging symptom can lower mood www.medicalxpress.com Linda Clare et al. "I Don't Think Of It As An Illness": Illness Representations in Mild to Moderate Dementia, Journal of Alzheimer's Disease (2016). DOI: 10.3233/JAD-150794
Year(s) Of Engagement Activity	2016
URL	http://medicalxpress.com/news/2016-03-dementia-illness-aging-symptom-mood.html

Description	IDEAL Clarke NIHR Poster Presentation 2015
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Type Of Presentation	poster presentation
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Clarke, T., Chen, L., Rusted, J. (December 2015). Work and life balance among working family carers of a Person with Dementia. Poster presentation at the NIHR Clinical Research Network - Kent, Surrey and Sussex event. Poster was awarded First prize. -
Year(s) Of Engagement Activity	2015

Description	IDEAL Comorbidity Blog 08/11/18
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Health services must address multiple conditions in dementia care - a blog based on IDEAL publication Sharon M Nelis, Yu-Tzu Wu, Fiona E Matthews, Anthony Martyr, Catherine Quinn, Isla Rippon, Jennifer Rusted, Jeanette M Thom, Michael D Kopelman, John V Hindle, Roy W Jones, Linda Clare; The impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study, Age and Ageing, , afy155, https://doi.org/10.1093/ageing/afy155
Year(s) Of Engagement Activity	2018
URL	https://www.bgs.org.uk/blog/health-services-must-address-multiple-conditions-in-dementia-care

Description	IDEAL Comorbidity Press Release November 2018
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Press release Health services must address multiple conditions in dementia care. Most people living with dementia also have at least one other health condition, and health services need to adapt to optimise their health and quality of life. Based on the publication Nelis, S.M., Wu, Y.-T., Matthews, F.E., Martyr, A., Quinn, C., Rippon, I., Rusted, J., Thom, J.M., Kopelman, M.D., Hindle, J.V., Jones, R.W., & Clare, L. (2018). The impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study. Age and Ageing. Advance online publication. doi: 10.1093/ageing/afy155
Year(s) Of Engagement Activity	2018
URL	https://www.exeter.ac.uk/news/featurednews/title_690975_en.html

Description	IDEAL DAA London February 2019
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Presentation by Nicola Hart & Keith Oliver on the IDEAL study at the National DAA Annual Conference Wednesday 06 February 2019, London
Year(s) Of Engagement Activity	2019
URL	https://www.dementiaaction.org.uk/events/28164_national_daa_annual_conference

Description	IDEAL ESA Newsletter q1 2017
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Rippon, I (2017). Improving the experience of dementia and enhancing active life: living well with dementia - The IDEAL study. Ageing in Europe: The Newsletter of the Research Network on Ageing in Europe. Winter, Issue 20, p.4
Year(s) Of Engagement Activity	2017
URL	http://ageing-in-europe.net/images/newsletter20.pdf

Description	IDEAL ESRC Website Dementia Awareness 2015
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Involving people with dementia in research. Posted on ESRC website as part of Dementia Awareness Week 22/05/15 -
Year(s) Of Engagement Activity	2015
URL	http://www.esrc.ac.uk/news-and-events/features-casestudies/features/34363/involving-people-with-deme...

Description	IDEAL Event Blog November 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Aiming for an IDEAL world for everyone affected by dementia - blog on Alzheimer's Society UK website
Year(s) Of Engagement Activity	2018
URL	https://www.alzheimers.org.uk/blog/aiming-ideal-world-everyone-affected-dementia

Description	IDEAL FoSS Cardiff Henley Nov. 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Henley, J. (2018, November). Could community fitness help combat Dementia? Presentation at The ESRC Festival of Social Sciences: Everyday fitness for All event, Cardiff. Part of the launch of accessible exercise machines in Llanishen leisure centre, part of the Festival of Social Science. The event consisted of talks from people with disabilities who had campaigned for the accessible exercise machines to be available in the leisure centre, a physiotherapist and NHS manager, and a social scientist talking about the benefits of exercise. There was a break for people to use the machines and a "yoga mobility" class and then a panel discussion with the speakers. The event connected different stakeholders within the field
Year(s) Of Engagement Activity	2018

Description	IDEAL GSA Clare 2015
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Clare, L., Quinn, C., Woods, R.T., & Jones, I.R. (2015, Nov.). Understanding and adjusting to dementia: implications for how we talk to people about the condition. The Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida. -
Year(s) Of Engagement Activity	2015

Description	IDEAL GSA Jones 2015
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Jones, I.R., Victor, C. & Clare, L. on behalf of the IDEAL study team (2015, Nov.) Capitals, assets and resources: a framework for understanding the lived experience of dementia. Presentation at the Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida -
Year(s) Of Engagement Activity	2015

Description	IDEAL GSA Jones Social Class 2015
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Jones, I.R. (2015, Nov.). Social Class, Dementia, and the Social Imaginary of the Fourth Age. Presentation at the Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida Stimulated discussion of research evidence on social class and dementia in the symposium and following symposium
Year(s) Of Engagement Activity	2015

Description	IDEAL GSA Morris 2015
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Morris, R., Martyr, A., Nelis, S.M,, Markova, I.S., Roth, I., Woods, R.T., & Clare, L. (2015, Nov.) Being less aware of functional decline may preserve emotional well-being in people with dementia. Presentation at the Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida -
Year(s) Of Engagement Activity	2015

Description	IDEAL GSA Victor 2015
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Victor, C., Pikhartova, J., & Woodbridge, R. (2015, Nov.) Is loneliness a cause or consequence of dementia? Presentation the Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida -
Year(s) Of Engagement Activity	2015

Description	IDEAL GSA Victor Boston Nov. 2018
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Victor, C. (2018; Nov.). The IDEAL Study Model of Living Well With Dementia. Presentation at the Gerontological Society of America's 70th Annual Scientific Meeting, Boston.
Year(s) Of Engagement Activity	2018

Description	IDEAL GW4 Aging and Dementia, Bristol 2015
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Type Of Presentation	poster presentation
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Clare, L. (2015, Jan.). Living well with dementia: the IDEAL study. Poster presentation at the GW4 Aging and Dementia (GW4AD) Consortium Conference, Bristol. -
Year(s) Of Engagement Activity	2015

Description	IDEAL Henley National Social Care Conference September 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Display at the National Social Care Conference in Wales - opportunity to discuss work with social care planners and practitioners.
Year(s) Of Engagement Activity	2018
URL	https://socialcare.wales/events/national-social-care-conference?record-language-choice=en-cy

Description	IDEAL Hillman BSA 2016
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Hillman, A. (2016, Feb.). Letting go of coherence: The challenges of representing dementia. Presentation at the British Sociological Association (BSA) Ageing, Body and Society Study Group 7th Annual Conference entitled: 'Ageing and Culture' at the University of Manchester, UK
Year(s) Of Engagement Activity	2016

Description	IDEAL Hillman, A. & Jones, I.R. (2016). BSA Birmingham
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Hillman, A. & Jones, I.R. (2016). Dualities of dementia accounts: Biographical reconstruction and narrative economies. British Sociological Association's Medical Sociology Group's Annual Conference 7th-9th September 2016, Aston University, Birmingham. The discussion and feedback following the talk has helped refine and focus our analytical interpretations of the data and will inform how we take this forward for publication.
Year(s) Of Engagement Activity	2016
URL	https://www.britsoc.co.uk/events/medsoc

Description	IDEAL INS Morris Prague July 2018
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Morris, R. (2018, July). Measuring Subjective Accounts of Symptoms and Diagnosis in People with Dementia: The Development of the RADIX. Presentation at the International Neuropsychological Society 2018 Mid-Year Meeting, Prague.
Year(s) Of Engagement Activity	2018
URL	http://www.ins2018.org/program-at-a-glance

Description	IDEAL Illness Rep WISERD Website 2016
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Illness representations in caregivers of people with dementia. News item for Wales Institute of Social Economic Research Data and Methods (WISERD) at Cardiff University website January 2016. http://www.wiserd.ac.uk/news/latest-news/better-understanding-caregivers-perceptions-dementia-could-improve-level-support-they-are-offered-new-paper-finds/#sthash.kb7Tnbp9.dpbs
Year(s) Of Engagement Activity	2016
URL	http://www.wiserd.ac.uk/news/latest-news/better-understanding-caregivers-perceptions-dementia-could-...

Description	IDEAL Infographic Model Carer 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Infographic: Living well with dementia: Findings from the IDEAL programme IDEAL based on the publication Clare, L., Wu, Y.-T., Quinn, C., Jones, I.R., Victor, C.R., Nelis, S.M., Martyr, A., Litherland, R., Pickett, J.A., Hindle, J.V., Jones, R.W., Knapp, M., Kopelman, M.D., Morris, R.G., Rusted, J.M., Thom, J.M., Lamont, R.A., Henderson, C., Rippon, I., Hillman, A., Matthews, F.E., & On behalf of the IDEAL study team. (2018). A comprehensive model of factors associated with capability to "live well" for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL study. Alzheimer Disease and Associated Disorders. Advance online publication. doi: 10.1097/WAD.0000000000000285
Year(s) Of Engagement Activity	2018
URL	http://www.idealproject.org.uk/activities/info/

Description	IDEAL Infographic Model Person with Dementia 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Infographic: Living well with dementia: What helps people live well Findings from the IDEAL programme based in the publication Clare, L., Wu, Y.-T., Jones, I.R., Victor, C.R., Nelis, S.M., Martyr, A., Quinn, C., Litherland, R., Pickett, J.A., Hindle, J.V., Jones, R.W., Knapp, M., Kopelman, M.D., Morris, R.G., Rusted, J.M., Thom, J.M., Lamont, R.A., Henderson, C., Rippon, I., Hillman, A., Matthews, F.E., & On behalf of the IDEAL study team. (2018). A comprehensive model of factors associated with subjective perceptions of "living well" with dementia: findings from the IDEAL study. Alzheimer Disease and Associated Disorders. Advance online publication. doi: 10.1097/WAD.0000000000000286
Year(s) Of Engagement Activity	2018
URL	http://www.idealproject.org.uk/activities/info/

Description	IDEAL Infographic Systematic Review 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Infographic: Living well with dementia: A review of the literature based on the IDEAL publication Martyr, A., Nelis, S.M., Quinn, C., Wu, Y.-T., Lamont, R.A., Henderson, C., Clarke, R., Hindle, J.V., Thom, J.M., Jones, I.R., Morris, R.G., Rusted, J.M., Victor, C.R., & Clare, L. (2018). Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being, and life satisfaction in people with dementia. Psychological Medicine, 48, 2130-2139. doi: 10.1017/S0033291718000405
Year(s) Of Engagement Activity	2018
URL	http://www.idealproject.org.uk/activities/info/

Description	IDEAL Living Well Blog 2015
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	'Living well with dementia' a blog on the WISERD website in March 2015
Year(s) Of Engagement Activity	2015
URL	http://blogs.cardiff.ac.uk/wiserd/2015/03/13/living-well-with-dementia/

Description	IDEAL Magazine of the Alzheimer's Society 2015
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Article 'IDEAL: how to 'live well', June 2015, Living with Dementia, The Magazine of the Alzheimer's Society, pg. 23 -
Year(s) Of Engagement Activity	2015
URL	https://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=2977&pageNumber=7

Description	IDEAL Mar 2018 Newsletter
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	The newsletter was issued to everyone who has participated in the study to date to provide an update on study progress and to note dates for future activity. It was also distributed to the research network staff involved in the process of participant recruitment. We shared the newsletters with other key stakeholders such as the Older People's Commissioner for Wales, the NIHR National Director for Dementia Research, Alzheimer's Society Branches throughout the UK, The Faculty for the Psychology of Older People (FPOP) Members and our Project Advisory Group.
Year(s) Of Engagement Activity	2018
URL	http://www.idealproject.org.uk/news/newsletters/

Description	IDEAL Martyr, A. & Clare, L. (2016). INS London
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Martyr, A. & Clare, L. (2016, July). Awareness of functional ability in people with early-stage dementia. Poster presentation at the International Neuropsychological Society mid-year conference, London. Poster presentation. Academics and clinicians asked for further information about the content of the poster. Particularly which rating of functional ability to rely on in clinical and research settings. This may change views/opinions of the reliability of functional ratings in these settings. Also discussed collaboration with researchers at the University of California, San Diego who are working on a systematic review.
Year(s) Of Engagement Activity	2016

Description	IDEAL Masterclass Alz. Society Rep. 2016
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Masterclass conducted by Cristina Ariza from the Alzheimer's Society on June 15th 2016 entitled 'Supporting people with dementia'. Over 50 researchers in attendance.
Year(s) Of Engagement Activity	2016

Description	IDEAL Masterclass CV 2016
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Victor, C. Masterclass: Loneliness in people with dementia. Held on June 16th 2016 with @ 55 researchers.
Year(s) Of Engagement Activity	2016

Description	IDEAL Models Release December 2018
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	To raise awareness of the two main articles from the IDEAL programme, to disseminate findings and to engage with health care professionals, people with dementia and carers and the general public. Based on the following 2 papers: Clare, L., Wu, Y.-T., Jones, I.R., Victor, C.R., Nelis, S.M., Martyr, A., Quinn, C., Litherland, R., Pickett, J.A., Hindle, J.V., Jones, R.W., Knapp, M., Kopelman, M.D., Morris, R.G., Rusted, J.M., Thom, J.M., Lamont, R.A., Henderson, C., Rippon, I., Hillman, A., Matthews, F.E., & On behalf of the IDEAL study team. (2018). A comprehensive model of factors associated with subjective perceptions of "living well" with dementia: findings from the IDEAL study. Alzheimer Disease and Associated Disorders. Advance online publication. doi: 10.1097/WAD.0000000000000286 (open access) Clare, L., Wu, Y.-T., Quinn, C., Jones, I.R., Victor, C.R., Nelis, S.M., Martyr, A., Litherland, R., Pickett, J.A., Hindle, J.V., Jones, R.W., Knapp, M., Kopelman, M.D., Morris, R.G., Rusted, J.M., Thom, J.M., Lamont, R.A., Henderson, C., Rippon, I., Hillman, A., Matthews, F.E., & On behalf of the IDEAL study team. (2018). A comprehensive model of factors associated with capability to "live well" for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL study. Alzheimer Disease and Associated Disorders. Advance online publication. doi: 10.1097/WAD.0000000000000285
Year(s) Of Engagement Activity	2018
URL	http://www.exeter.ac.uk/news/featurednews/title_698065_en.html

Description	IDEAL NIHR Press Release 2016
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	NIHR Press Release 2016 - Getting involved in research could help patients cope with dementia
Year(s) Of Engagement Activity	2016

Description	IDEAL NIHR Website 2015
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Article on the NIHR website Posted May 2015 Nottinghamshire family back 'Join Dementia Research' -
Year(s) Of Engagement Activity	2015
URL	http://www.crn.nihr.ac.uk/news/nottinghamshire-family-back-join-dementia-research/?h=37

Description	IDEAL Nelis PPI March 2016
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Nelis, S.M. (2016, Mar.) Involving people with dementia and carers in the 'Improving the experience of Dementia and Enhancing Active Life' (IDEAL) study. Presentation at the Patient and Public Involvement and Dementia Workshop. The University of Exeter Medical School, Exeter, UK. Capacity building event for researchers working in the area of dementia.
Year(s) Of Engagement Activity	2016

Description	IDEAL Network Training 2015
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	IDEAL Training events in London 17th and 19th June 2015. Trained @ 100 research network staff in IDEAL procedures and working with people with dementia.
Year(s) Of Engagement Activity	2015

Description	IDEAL Network Training 2016
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	IDEAL Training events in London 15th and 16th June 2016. Trained @ 100 research network staff in IDEAL procedures and working with people with dementia.
Year(s) Of Engagement Activity	2016

Description	IDEAL Newsletter 2 Dec 2015
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	The second 'Living Well and Enhancing Active Life: The IDEAL study' newsletter was distributed in December 2015. The newsletter was issued to everyone who has participated in the study to date to provide an update on study progress and to note dates for future activity. It was also distributed to the research network staff involved in the process of participant recruitment. We shared the newsletters with other key stakeholders such as the Older People's Commissioner for Wales, the NIHR National Director for Dementia Research, Alzheimer's Society Branches throughout the UK, The Faculty for the Psychology of Older People (FPOP) Members and our Project Advisory Group.
Year(s) Of Engagement Activity	2015
URL	http://www.idealproject.org.uk/research/newsletters/

Description	IDEAL Newsletter June 2017
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	The newsletter was issued to everyone who has participated in the study to date to provide an update on study progress and to note dates for future activity. It was also distributed to the research network staff involved in the process of participant recruitment. We shared the newsletters with other key stakeholders such as the Older People's Commissioner for Wales, the NIHR National Director for Dementia Research, Alzheimer's Society Branches throughout the UK, The Faculty for the Psychology of Older People (FPOP) Members and our Project Advisory Group.
Year(s) Of Engagement Activity	2017
URL	http://www.idealproject.org.uk/news/newsletters/

Description	IDEAL Newsletter November 2018
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	The newsletter was issued to everyone who has participated in the study to date to provide an update on study progress and to note dates for future activity. It was also distributed to the research network staff involved in the process of participant recruitment. We shared the newsletters with other key stakeholders such as the Older People's Commissioner for Wales, the NIHR National Director for Dementia Research, Alzheimer's Society Branches throughout the UK, The Faculty for the Psychology of Older People (FPOP) Members and our Project Advisory Group.
Year(s) Of Engagement Activity	2018
URL	http://www.idealproject.org.uk/news/newsletters/

Description	IDEAL PPI Blog Exeter Medical September 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	The IDEAL project PPI group (ALWAYs) reflect on their contributions to dementia research at Exeter on the Exeter Dementia Blog.
Year(s) Of Engagement Activity	2018
URL	http://blogs.exeter.ac.uk/dementia/2018/10/29/reflecting-on-ppi/

Description	IDEAL Panaroma May 2016
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Panaroma documentary: Living with Dementia: Chris's Story. Featured Chris talking about his experience of living with dementia and he took part in the IDEAL study with Co-I Dr. Anthony Martyr during the programme.
Year(s) Of Engagement Activity	2016
URL	http://www.bbc.co.uk/iplayer/episode/b07dxmyh/panorama-living-with-dementia-chriss-story

Description	IDEAL Podcast: Research outside the NHS setting May 2018
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Podcast for Dementia Researcher, a network of early career researchers (https://www.dementiaresearcher.nihr.ac.uk/). Podcast focused on research outside the NHS setting and covered topics around working in care homes and hospital. Also covered ethical issues around conducting research with people with dementia.
Year(s) Of Engagement Activity	2018
URL	https://www.dementiaresearcher.nihr.ac.uk/research-outside-the-nhs-setting/

Description	IDEAL Presentation Dementia and You Quinn Oct. 2018
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Quinn, C. (2018, October). Living well with dementia. Presentation at 'Dementia and You: Protecting your health and wealth' event organised by BRACE and the University of Exeter. Exeter, UK. Event jointly organised by the charity BRACE and the University of Exeter. At the end of the event there was opportunity for the audience to ask the speakers questions.
Year(s) Of Engagement Activity	2018
URL	https://www.alzheimers-brace.org

Description	IDEAL Press Article Eastwood 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Pili brings dementia into focus Featured in the Eastwood Advertiser, 19 May 2015 -
Year(s) Of Engagement Activity	2015
URL	http://www.eastwoodadvertiser.co.uk/news/local/pili-brings-dementia-into-focus-1-7267534

Description	IDEAL Press Article Hucknall 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Pili brings dementia into focus Featured in the Eastwood Advertiser, 19 May 2015 -
Year(s) Of Engagement Activity	2015
URL	http://www.hucknalldispatch.co.uk/news/local/pili-brings-dementia-into-focus-1-7267534

Description	IDEAL Press Article Mansfield 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Pili brings dementia into focus Featured in the Mansfield and Ashfield Chad Tuesday 19 May 2015 -
Year(s) Of Engagement Activity	2015
URL	http://www.chad.co.uk/news/health/pili-brings-dementia-into-focus-1-7267534

Description	IDEAL Press Article Newark 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Project into dementia research helped family Featured in the Newark Advertiser, May 21st 2015 pg. 24. -
Year(s) Of Engagement Activity	2015

Description	IDEAL Press Article Worksop 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Pili brings dementia into focus Featured in the Hucknall Dispatch, 19 May 2015 -
Year(s) Of Engagement Activity	2015
URL	http://www.worksopguardian.co.uk/news/local/pili-brings-dementia-into-focus-1-7267534

Description	IDEAL Press Article Yorkshire 2015
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Pili brings dementia into focus Featured in the Yorkshire Evening Post, Tuesday 19 May 2015 -
Year(s) Of Engagement Activity	2015
URL	http://www.yorkshireeveningpost.co.uk/news/latest-news/top-stories/pili-brings-dementia-into-focus-1...

Description	IDEAL Programme Event London Nov. 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The IDEAL Programme held an event to discuss findings from the study and to develop an action plan for people living with dementia. Through the event, we were able to successfully engage with a range of potential knowledge users for the findings, including policy makers, service managers, health and social care professionals, third sector colleagues and people with dementia and their carers. This helped to raise awareness of the IDEAL cohort and the findings to date. It also provided a platform to engage with knowledge users to shape the next steps of the research. This will ensure the findings are relevant to their intended audiences and will, therefore, maximise the impact. During the event, attendees developed an action plan for policy and practice in response to the findings to improve the quality of life for people with dementia. This stimulated commitment from attendees to take their own actions, and also developed ideas for actions that other people could be taking and where we should be focusing our influencing efforts.
Year(s) Of Engagement Activity	2018

Description	IDEAL Programme Newsletter, 01 June
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	The first 'Living Well and Enhancing Active Life: The IDEAL programme' newsletter was distributed in June 2019. The newsletter included a feature on the unfurling of the Budding Friends' banner in Exeter (p.4).
Year(s) Of Engagement Activity	2019
URL	http://www.idealproject.org.uk/activities/newsletters/

Description	IDEAL Programme Newsletter, Fuburary 2020
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	Newsletter featured IDEAL progress, projects, publications and findings and activities to engage with including wher eto see the 'Dementia banners', also viewed by Clinical Research network staff.
Year(s) Of Engagement Activity	2020
URL	http://www.idealproject.org.uk/media/universityofexeter/schoolofpsychology/ideal/documents/IDEAL_Pro...

Description	IDEAL Programme YouTube Channel
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	IDEAL established a public-facing YouTube channel which hosts all of our video outputs from animations, to event recordings, songs and more. People have commented on our videos (or our videos as shared on YouTube) about how they offer hope and show a different perspective on dementia.
Year(s) Of Engagement Activity	2021,2022
URL	https://www.youtube.com/channel/UCKxAm5fpPcGGD5iXC5WIOaw

Description	IDEAL Programme newsletter
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	Newsletter to IDEAL participants updating them on programme progress, next steps and publications using the data from IDEAL. Also on the IDEAL website and sent to NHS sites that were part of the IDEAL programme.
Year(s) Of Engagement Activity	2022
URL	https://www.idealproject.org.uk/news/newsletters/

Description	IDEAL Project Newsletter 2016
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	IDEAL Newsletter No. 3 August 2016
Year(s) Of Engagement Activity	2016
URL	http://www.idealproject.org.uk/research/newsletters/

Description	IDEAL Quinn Blog March 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Postgraduate students
Results and Impact	Day in the life of a researcher Dr Catherine Quinn gives us a glimpse into her work on the IDEAL grant on a blog aimed at researchers.
Year(s) Of Engagement Activity	2018
URL	https://www.dementiaresearcher.nihr.ac.uk/day-in-the-life-of-a-researcher/

Description	IDEAL Research Showcase, Cornwall Partnership 2015
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Quinn, C. (2015, Oct). The IDEAL Project. Research Showcase, Cornwall Partnership NHS Foundation Trust. Eden Project. -
Year(s) Of Engagement Activity	2015

Description	IDEAL SDCRN Newsletter 2016
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	IDEAL upodate in the Dementia reserach Newsletter from the Scottish Dementia Clinical Research Network (SDCRN) Newsletter Summer 2016, pg. 2
Year(s) Of Engagement Activity	2016

Description	IDEAL Service Use and Costs papers shared with Alzheimer's Society national Policy and Public Affairs teams
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Key points from the two Service Use and Costs papers were shared and presented to national Policy and Public Affairs teams at Alzheimer's Society.
Year(s) Of Engagement Activity	2022

Description	IDEAL Site Event 2Gether May 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Presentation of some of the findings from Time 1 of the IDEAL study to researchers from 2gether NHS foundation trust Trust and members of Memory Assessment Service.
Year(s) Of Engagement Activity	2018

Description	IDEAL Site Event Hereford March 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Presentation of the Time findings of the IDEAL study to clinicians from 2gether Trust including the IDEAL study local PI.
Year(s) Of Engagement Activity	2018

Description	IDEAL Site Event Lancashire May 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	Presentation of some of the findings from Time 1 of the IDEAL study to researchers from Lancashire Care NHS Foundation Trust and members of Flyde Coast Memory Service.
Year(s) Of Engagement Activity	2018

Description	IDEAL Site Event Leeds May 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	Presentation of some of the findings from Time 1 of the IDEAL study at a Dementia Awareness Event organised by Leeds and York Partnership Trust.
Year(s) Of Engagement Activity	2018

Description	IDEAL Site Event Newcastle May 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Presentation of some of the findings from Time 1 of the IDEAL study at the Northumberland, Tyne and Wear Research and Development Conference 2018.
Year(s) Of Engagement Activity	2018

Description	IDEAL Study International Workshop - Feb 2019
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	A two day event bringing together international researchers in dementia to discuss collaborations based on the IDEAL programme in order to understand the experience of living with dementia in different countries. This included representatives from Germany, New Zealand, Brazil, Ireland, Taiwan, Japan, Lebanon, Canada, USA.
Year(s) Of Engagement Activity	2019

Description	IDEAL Symposium
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A one day workshop was held with policy makers and practitioners to share findings, discuss how they can be turned into action and to help shape IDEAL 2.
Year(s) Of Engagement Activity	2018

Description	IDEAL Systematic Review Blog Spetember 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Findings from the IDEAL project are described in the blog: How you can support people to live well with dementia posted on the Exeter Dementia Blog.
Year(s) Of Engagement Activity	2018
URL	http://blogs.exeter.ac.uk/dementia/2018/09/21/how-you-can-support-people-to-live-well-with-dementia/

Description	IDEAL Victor (2015) NIHR CRN Thames Valley
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Victor, C. (2015, Mar.). Living well with dementia: the IDEAL study. Presentation at the 'New Directions in Dementia Research' Meeting at the NIHR CRN Thames Valley and South Midlands, Buckinghamshire. -
Year(s) Of Engagement Activity	2015

Description	IDEAL WISERD Blog Jan 2017
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Blog update on the qualitative arm of the IDEAL study: The IDEAL study: finding strategies to live well with dementia
Year(s) Of Engagement Activity	2017
URL	http://blogs.cardiff.ac.uk/wiserd/2017/01/25/ideal-strategies-dementia/

Description	IDEAL WISERD Newsletter 2016
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"Illness" Label can Lower Mood WISERD Newsletter June 2016, pg.10 Findings from the IDEAL project: Professor Ian Rees Jones and Professor Linda Clare
Year(s) Of Engagement Activity	2016

Description	IDEAL WISERD Newsletter 2016 Caregivers
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	'Better Understanding of Caregivers Perceptions of Dementia' WISERD Newsletter June 2016, pg. 11 Findings from the IDEAL project: Professor Ian Rees Jones, Dr Catherine Quinn and Professor Linda Clare
Year(s) Of Engagement Activity	2016

Description	IDEAL Webinar 1: Using the Living with Dementia Toolkit after diagnosis
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The first in IDEAL's webinar series introduced the Living with Dementia Toolkit with a particular focus on using it after diagnosis (since the event was part of Dementia Action Week and the theme was 'diagnosis'. A varied audience including NHS workers and even Commissioners attended and engaged via the Q&A. 4 members of the toolkit co-production team attended and we've had requests for toolkit materials as a result of the session.
Year(s) Of Engagement Activity	2022
URL	https://www.youtube.com/watch?v=gjGhzR0I9Ao

Description	IDEAL Well with Dementia NIHR Blog October 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	NIHR highlights the benefits of longitudinal studies like IDEAL and in the blog we hear from study participant Annie Panton about why she takes part in dementia research.
Year(s) Of Engagement Activity	2018
URL	https://www.nihr.ac.uk/research-and-impact/making-a-difference/living-well-with-dementia.htm

Description	IDEAL Western Mail Article 2017
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	What it means to live well with dementia - Alex Hillman Western Mail March 2017
Year(s) Of Engagement Activity	2017

Description	IDEAL Western Morning News Article May 2018
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Press Release 'What it means to live with dementia'
Year(s) Of Engagement Activity	2018
URL	http://www.idealproject.org.uk/news/press/

Description	IDEAL World Alzheimer's Day Berkshire Healthcare NHS press release 2017
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Media (as a channel to the public)
Results and Impact	Annie urges the public to learn about NHS dementia research Online and available here: https://www.nihr.ac.uk/news/annie-urges-the-public-to-learn-about-nhs-dementia-research/6905 Twitter here: https://twitter.com/NIHRCRN_tvsm/status/911132728023711746 And the patient was interviewed by ITV News Meridian alongside the research director at Berkshire Healthcare NHS Foundation Trust, which was on the 6pm news yesterday.
Year(s) Of Engagement Activity	2017
URL	https://www.nihr.ac.uk/news/annie-urges-the-public-to-learn-about-nhs-dementia-research/6905

Description	IDEAL llness rep. blog WISERD 2016
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	'What's in a name? How family carers understand dementia' blog on the WISERD website published online 24/02/2016
Year(s) Of Engagement Activity	2016
URL	http://blogs.cardiff.ac.uk/wiserd/2016/02/24/whats-in-a-name-how-family-carers-understand-dementia/

Description	IDEAL meet Alzheimer's Society Branding an Marketing Team & External Marketing Agency (MCA)
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	IDEAL met with Alzheimer's Society marketing director and new branding agency to discuss dementia representations and implications for their work.
Year(s) Of Engagement Activity	2021

Description	IDEAL presentation at Alzheimer Europe, The Hague, 24 October
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Quinn, C., Jones, I.R., Martyr, A., Nelis, S.M., Morris, R.G., & Clare, L. on behalf of the IDEAL programme team (2019; Oct.). Caregivers' beliefs about dementia: Findings from the IDEAL study. Presentation at the Alzheimer Europe conference. The Hague, Netherlands.
Year(s) Of Engagement Activity	2019

Description	IDEAL presentation at INTERDEM 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Presentation on IDEAL at the meeting of INTERDEM (Early detection and timely INTERvention in DEMentia)
Year(s) Of Engagement Activity	2017
URL	http://interdem.org/?page_id=4644

Description	IDEAL programme newsletter, June 2019
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Study participants or study members
Results and Impact	Newsletter featured IDEAL progress, projects, publications and findings and activities to engage with, also viewed by Clinical Research network staff.
Year(s) Of Engagement Activity	2019
URL	http://www.idealproject.org.uk/media/universityofexeter/schoolofpsychology/ideal/documents/IDEAL_pro...

Description	IDEAL webinar 2: Staging dementia: playing out communication scenarios
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"In the second session of the IDEAL Webinar Series, participants discussed 'The World Turned Upside Down'. This play was performed to three audiences in Exeter in January 2022. The World Turned Upside Down: Using theatre to take a realistic look at dementia' takes the theme of communication, and situations where this could go better or worse depending on the reactions of the people surrounding a person with dementia. In this webinar, key people involved in creating the production share what they've learned from the process. In this session participants heard from: ""Dr Claire Pentecost, IDEAL Programme Manager and the Producer of the play and film Paul Jepson, Director of 'The World Turned Upside Down' Julia Burton, former carer and members of the ALWAYs involvement group, who worked on the play and film - including auditioning the actors!"
Year(s) Of Engagement Activity	2022
URL	https://www.youtube.com/watch?v=pTJysqDkfTg

Description	IDEAL webinar 3: Social and community connection in dementia.
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"In this third session of the IDEAL Webinar Series, we considered what our research findings tell us about social and community connection in dementia. We know that loneliness and isolation can affect quality of life, and that community support can offer people affected by dementia a real lifeline. In this session participants heard from: Professor Christina Victor, Co-Investigator on IDEAL Programme Manager and Professor of Gerontology and Public Health and Vice Dean (Research) in the College of Health and Life Sciences at Brunel University, as well as the Ageing Studies Theme Leader in the Institute of Environment, Health and Societies. Allison who lives with dementia in Northern Ireland. She is part of the ALWAYs group, which advises on all of IDEAL's research and helps us co-produce resources. Allison was part of the co-production team for the Living with Dementia Toolkit and before that worked on 'My Life, My Goals'."
Year(s) Of Engagement Activity	2022
URL	https://www.youtube.com/watch?v=LxXE7-6tINU

Description	IDEAL webinar 4: How could we best respond to the cost of dementia?
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"In this fourth session of the IDEAL Webinar Series, we turned to health economics. What does research tell us about how we can best use public funds to meet the challenges presented by dementia? This is a complex question which receives a lot of media attention as both the underfunding of the NHS and projected significant increases in dementia diagnoses make headlines. In this webinar, experts discussed their perspectives on such things as funding gaps, underappreciated costs and more. Drawing on IDEAL's research but also a wider constellation of research endeavours. In this session participants heard from: Professor Martin Knapp, Professor of Health and Social Care Policy at the London School of Economics and Political Science (LSE), based in the Health Policy Department and Co-Investigator on IDEAL Programme. Dr Cate Henderson, Assistant Professorial Research Fellow in the Care Policy and Evaluation Centre (CPEC) at the London School of Economics (LSE) and economist on the IDEAL programme. George Rook who lives with dementia and has done a wealth of work in raising awareness around dementia: he blogs about his experiences, records videos with the Four Amigos and much, much more. "
Year(s) Of Engagement Activity	2023
URL	https://www.youtube.com/watch?v=HGYxWYZEdJ4

Description	IDEAL webinar 5: Meet the ALWAYs group: Lived experience in dementia research
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	In this fifth session of the IDEAL webinar series, partipants met the ALWAYs group. ALWAYs stands for Action on Living Well: Asking You. The ALWAYs group form the IDEAL programme's involvement group and advise on our research. They have also been directly involved with co-producing resources from the research, too. In this webinar, you'll hear about why these experts by experience want to be involved in dementia research, and what has made this long-standing group - many of whom have been together since 2014! - so successful.
Year(s) Of Engagement Activity	2023
URL	https://www.youtube.com/watch?v=E9pqS9WGvuA

Description	IDEAL webinar 6: Dementia representations: How people with dementia understand the condition
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"In the sixth session of the IDEAL Webinar Series, we discussed dementia representations. How, though, do people with dementia understand the condition, and why does this make a difference? How people think about a condition changes their behaviour around it from public acts (i.e. whether or not they will seek a diagnosis), through to private motivations (i.e. whether they will share with family members if and when they are finding things hard). Some of the most exciting results coming out of the IDEAL cohort study concern how people with dementia and carers see dementia, and the impact this has on them. Following the logic of 'illness representations', we call these mental models of dementia 'dementia representations'. RADIX (produced by Clare et al) provides a means of measuring dementia representations. While this research focuses on how people affected by dementia understand dementia, we also discuss what it might tell us about public (prototype) representations. In this session participants heard from: Professor Linda Clare, Professor of Clinical Psychology of Ageing and Dementia at the University of Exeter and Chief Investigator on the IDEAL programme. Allison and Jane, both members of the ALWAYs group of people with dementia and carers will share their perspectives on this topic."
Year(s) Of Engagement Activity	2023

Description	IDEAL women in research 2015
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Policymakers/politicians
Results and Impact	Savitch, N., Abbott, E. and Parker. G. (2015). Dementia: through the eyes of women. Report commissioned by the Joseph Rowntree Foundation. Section 5: Case study IDEAL research project: thinking differently about women in research studies. pg. 30
Year(s) Of Engagement Activity	2015
URL	https://www.jrf.org.uk/report/dementia-through-eyes-women

Description	IDEAL/;GREAT Festival of Social Science Exeter November 2016
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Teale, J.C. & Kudlicka, A. (2016, Nov.). Dementia: Life, art and research. Presentation at the Economic and Social Research Council Festival of Social Science at the University of Exeter, UK. An evening at a local arts centre featuring 2 short films centring on dementia, an illustrated talk by cartoonist Tony Husband about his book (Take Care, Son) and a panel discussion with dementia experts.
Year(s) Of Engagement Activity	2016
URL	http://www.exeter.ac.uk/news/events/details/index.php?event=5996

Description	IDEAL/ALMO 'The Chronicles of Oldham' Exhibition, Gallery Oldham 2019
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Ian Beesley (photographer), Tony Husband (cartoonist) and Ian McMillan (poet) have held a series of workshops at Gallery Oldham with a group of people with dementia called the Ragamuffins, along with their partners and volunteers. During the workshops Ian Beesley has been discussing images from the Oldham Chronicle Archive that he has be digitising. The exhibition captures these images and the group's reactions to them, focusing on the importance of photographs (not necessarily personal ones) and pictures to stimulate memories. The launch event gave members of the group an opportunity to see the exhibition for the first time. The exhibition will run from 7 January 2019 until 9 February 2019 in the foyer of Gallery Oldham, giving members of the public an opportunity to view some of the images and poems created by the group.
Year(s) Of Engagement Activity	2019
URL	https://www.galleryoldham.org.uk/exhibitions/community-gallery/

Description	IDEAL/ALMO Blog Public Transport Alzheimer's Society August 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	A blog on the Alzheimer's Society website: Understanding public transport from the perspective of people with dementia linked with 'A Grand Day Out' chapbook of a unique series, which forms part of the A Life More Ordinary Project led by artists Ian Beesley, Ian McMillan and Tony Husband.
Year(s) Of Engagement Activity	2018
URL	https://www.alzheimers.org.uk/blog/understanding-public-transport-perspective-people-dementia

Description	IDEAL/ALMO Dementia Action Week Guildhall May 24st 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	IDEAL/ALMO Dementia Action Week Guildhall May 24th 2018 'A Life More Ordinary' Exhibition Exeter Guildhall Shopping Centre People whose lives have been affected by dementia have worked with well-known artists to create insightful images and poems that capture some of their experiences - an exhibit of some of their work.
Year(s) Of Engagement Activity	2018

Description	IDEAL/ALMO Dementia Action Week UoE May 21st 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Other audiences
Results and Impact	'A Life More Ordinary' Exhibition University of Exeter, Forum 21st May People whose lives have been affected by dementia have worked with well-known artists to create insightful images and poems that capture some of their experiences - an exhibit of some of their work.
Year(s) Of Engagement Activity	2010,2014,2018

Description	IDEAL/ALMO Dementia Action Week York 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Artists Ian Beesley, Tony Husband, Ian McMillan and three Yorkshire DEEP (Dementia Engagement & Empowerment Project) groups unfurled two large banners they created together. They highlight the 'right to get out and about' for people with dementia. A brass ensemble from The Minster School, York also participated in the event. The unfurling took place at York train station and provided an opportunity for members of the public to learn more about the project and to talk to people with dementia about the issues they may have accessing transport. The event took place on 23 May 2018 during Dementia Action Week. Local media were also in attendance. Following the event, Ian Beesley has had several requests to display the banner at other venues, for example, at Scarborough Football Club and the People's History Museum in Manchester which holds a large collection of banners.
Year(s) Of Engagement Activity	2018

Description	IDEAL/ALMO Festival of Social Science Brunel November 2018
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	ESRC Festival of Social Science 2018 - Living well with dementia, 6 November 2018, Brunel University London The event was held as part of the ESRC's Festival of Social Science. It highlighted two important strands of the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme: understanding the factors that can help people with dementia to live well and the role of creative arts in providing new insights into how people with dementia can live well. Prof Christina Victor provided an overview of the IDEAL project and discussed some of our early findings. Then photographer Ian Beesley, one of the artists involved in our creative arts-based `A Life More Ordinary' project, showed some examples of the images and poetry created during the project and discussed the impact it has had on the people with dementia, carers and other supporters who have collaborated with the artists. Feedback from attendees was positive and many found it an interesting and informative event. The 'A Life More Ordinary' project was particularly inspiring.
Year(s) Of Engagement Activity	2018
URL	https://www.eventbrite.co.uk/e/living-well-with-dementia-the-ideal-and-a-life-more-ordinary-projects...

Description	IDEAL/ALMO Newspaper Article Living Well with Dementia Mature Times 2018
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Living well with dementia: how life can still be fun, worthwhile and heading forward - Interview with Ian McMillan from A Life More Ordinary.
Year(s) Of Engagement Activity	2018
URL	https://www.maturetimes.co.uk/eileen-caiger-gray-interviews-ian-mcmillan/

Description	IDEAL/ALMO Workshop Exeter (2018)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Ian Beesley (photographer) held two workshops (August and November 2018) with the Budding Friends group in Exeter. They have been creating a banner on the theme of friendship. Ian will hold a final workshop with the group in February 2019 to get the groups thoughts on the positive side of the banner and to finalise the designs for the second (negative) side of the banner. The group plan to unfurl the banner on the first day of spring (21st March 2019).
Year(s) Of Engagement Activity	2018

Description	IDEAL/ALMO Workshop Kent (2018)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Ian Beesley (photographer) and Rachael Litherland (Innovations in Dementia) held a workshop in Canterbury, Kent with representatives from the six DEEP groups in the County (the Forget me Knots, Sunshiners, Ashford Phoenix, Memorybilia, the Seasiders and the Pathfinders). Ian described some of the work he has been doing with other groups as part of the 'A Life More Ordinary' project. Everyone agreed it would be good to include other DEEP groups in Kent and to make a Kent wide banner - "It's our chance to change what people think about dementia." This could be unfurled at the Kent DEEP gathering on 20th June 2019 in Canterbury. Ian Beesley will hold a second workshop in the New Year to get feedback on designs for the positive side of the banner and to discuss ideas for the second side.
Year(s) Of Engagement Activity	2018

Description	IDEAL/ALMO Workshop Leeds (2019)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Photographer Ian Beesley held an initial workshop with the Hamari Yaadain group to introduce the A Life More Ordinary project. This is a mixed group of carers and people with dementia from South Asian communities in Leeds. Plans were made to meet again and to work on a bilingual chapbook (English and Punjabi) together.
Year(s) Of Engagement Activity	2019
URL	https://twitter.com/ripaljeet/status/1085941314070474755

Description	IDEAL/ALMO Workshop York (2018)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Ian Beesley (photographer) and Ian McMillan (poet) took part in a workshop run as part of the 'Right to Get Out and About' project organised by Innovations in Dementia. It involves three Dementia Engagement & Empowerment Project (DEEP) groups: DEEP Vibes Scarborough, York Minds and Voices and Face it Together (FIT) in Bradford. Ian Beesley and Ian McMillan discussed the idea of making a banner to highlight the rights of people with dementia and being able to get out and about. The group plan to meet again on 18th April 2018, to make a banner. It will be launched on 23rd May during Dementia Awareness Week in a public space in York. Wendy Mitchell, who is a member of the Minds & Voices group in York, wrote a piece about this event in her blog.
Year(s) Of Engagement Activity	2018

Description	IDEAL/ALMO York Banner Blog Mitchell May 2018
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Blog by Wendy Mitchell, a person living with dementia, on here experience with the Unfurling of the Great Yorkshire Banners as part 'A Life More Ordinary' KE project.
Year(s) Of Engagement Activity	2018
URL	https://whichmeamitoday.wordpress.com/2018/05/24/unfurling-of-the-great-yorkshire-banners/

Description	IDEAL/GREAT RICE Newsletter 41 2016
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Jones, R. (2016). Improving the experience of dementia and enhancing active life: living with dementia - the IDEAL study. RICE Newsletter, Spring, 41, p. 6.
Year(s) Of Engagement Activity	2016
URL	http://www.rice.org.uk/files/PDF/Newsletters/NL41%20Layout%20A4%20Booklet%20Final.pdf

Description	IFA Global Summit Copenhagen, Panel discussion chair L. Clare 'Shaping the Agenda: Seizing Opportunity and Driving Change'
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Policymakers/politicians
Results and Impact	Next steps for global action towards public health policies that promote cognitive reserve were discussed. Experts from different industries highlighted specific next steps that will help shift the conversation around cognitive decline to that of promoting cognitive reserve across the life course. Gaps in current research/ understanding were reviewed, illustrating what evidence is still required to influence policy will also be discussed by panelists. Panelists discussed their opinion and knowledge, followed by a moderated discussion.
Year(s) Of Engagement Activity	2019
URL	https://www.ifa-copenhagen-summit.com/wp-content/uploads/2019/06/Full-Copenhagen-Summit-Program-for-...

Description	ITV article The musicians living with dementia whose song could give hope to others
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	ITV Granada picked up the 'Brave New World' story and decided to film a segment on it. They also put out an online article as part of the package which has been widely viewed. This article also shares links to the Toolkit.
Year(s) Of Engagement Activity	2022
URL	https://www.itv.com/news/granada/2022-02-07/the-musicians-living-with-dementia-whose-song-could-give...

Description	Ian Beesley's dementia banners re-opens Bradford Industrial Museum' - Bradford Telegraph and Argus article
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	AN exhibition displaying banners created by people with dementia will help re-open a Bradford museum. 'The Unfurlings: banners for hope and change created by people living with dementia' will see a number of large, colourful banners go on display at Bradford Industrial Museum in Eccleshill from Wednesday, May 26. Bradford-born artist Ian Beesley, designer Martyn Hall, cartoonist Tony Husband and poet Ian McMillan, have worked with people with dementia and their carers to create a series of 16 large banners. The designs are inspired by political banners highlighting inequalities, to campaign for a better understanding and representation of people living with dementia.
Year(s) Of Engagement Activity	2021
URL	https://www.thetelegraphandargus.co.uk/news/19303579.ian-beesleys-dementia-banners-re-opens-bradford...

Description	Improving Services for People Living with Dementia Digital Conference
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	From a timely diagnosis to integrated support, the half-day digital conference shared multi-agency case studies from a range of service providers who bridge the gap between housing, health, social care and voluntary sector services. Four members of the IDEAL team including two from the IDEAL PPI group, co presented, talking about the LIVING with Dementia Toolkit.
Year(s) Of Engagement Activity	2022
URL	https://www.westminsterinsight.com/events/improving-services-for-people-living-with-dementia-digital...

Description	Improving the experience of dementia for Black and South Asian communities
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Christina Victor - Co I for IDEAL was invited to talk about the IDEAL, and in particular about the work related to the BAME community. This was at a London Memory service Network Meeting, hosted by Dementia Clinical Network NHSE/London region. The attendees we mostly clinical staff dealing with dementia patients or working in dementia services. The group loved the fact that IDEAL has had a PPI group from the start of the project - shaping it along the way.
Year(s) Of Engagement Activity	2021

Description	Infographic showing evidence from IDEAL - 'Living well' with Dementia
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Infograpgic created by University of Exeter for IDEAL for accessible information about findings from IDEAl held on University of Exeter Website and IDEAL website
Year(s) Of Engagement Activity	2019
URL	http://www.idealproject.org.uk/activities/info/

Description	Infurling of A life More Ordinary (ALMO) banners article, online 'Saddleworth Life' newsletter, 22 July
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Weekly online 'Saddleworth Life' newsletter describing the process of designing and creating the Ragartmuffin banner
Year(s) Of Engagement Activity	2019
URL	https://www.saddleworthlife.com/the-dementia-banners/

Description	Innovation Research and Development Newsletter. Leeds and York Partnership
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Living with Dementia Toolkit features in the magazine (page 8)
Year(s) Of Engagement Activity	2022
URL	https://www.leedsandyorkpft.nhs.uk/research/publications/

Description	Interactive Exeter play explores trials of living with dementia' - Devon Live
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	Devon Live ran the news story about 'The World Turned Upside Down' and embedded our video within the story.
Year(s) Of Engagement Activity	2022
URL	https://www.devonlive.com/whats-on/whats-on-news/interactive-exeter-play-explores-trials-6475853

Description	Item in national newspaper
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Piece in the 'I newspaper' by Keith Oliver, an IDEAL participant and member of the ALWAYS group (Action on Living Well: Asking You) The ALWAYS group are a group of people with dementia and carers of people with dementia who advise on different aspects of the IDEAL project based on their personal experience, skills and expertise. Keith records his coping strategies during lockdown and the pandemic, referencing being part of the IDEAL study.
Year(s) Of Engagement Activity	2020
URL	https://inews.co.uk/opinion/alzheimers-covid-19-well-being-lockdown-coping-health-766806

Description	Launch of 'From the Negative to the Positive' Chapbook and Exhibition at Gallery Oldham
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	The 'A Life More Ordinary' project, linked to IDEAL launched the second in a series of chapbooks entitled 'From the Negative to the Positive'. Ian Beesley (photographer), Tony Husband (cartoonist) and Ian McMillan (poet) held a series of workshops at Gallery Oldham with a group of people with dementia called the Ragamuffins, along with their partners and volunteers. The chapbook and accompanying exhibition present some of the images and poems produced during these workshops. The launch event gave members of the group an opportunity to see the chapbook and exhibition for the first time. The exhibition will run from 8 January 2018 until 2 February 2018 in the foyer of Gallery Oldham, giving members of the public an opportunity to view some of the images and poems created by the group. Feedback received from the group was very positive. Many commented on the social connections the workshops had created and how it helped them to think differently about living with dementia. At the event the artists announced that Gallery Oldham would fund the workshops for another year. The group will also invite new members to join.
Year(s) Of Engagement Activity	2017
URL	http://www.idealproject.org.uk/almo/events/

Description	Launch of exhibition of banners and artwork from the A Life More Ordinary project held at the People's History Museum Manchester, 16 December
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Exhibition of a selection of banners and artwork from the A Life More Ordinary (ALMO) project - to raise awareness of Dementia and the challenges and pleasures people with Dementia experience.
Year(s) Of Engagement Activity	2019
URL	http://www.theunfurlings.org.uk

Description	Leaflet: How to stay well during the Coronavirus Outbreak: 5 key messages for people living with dementia.
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	"A 6 page leaflet produced for people living with dementia with tips to make things more manageable throughout lockdown during the Coronavirus outbreak. Building on findings from the 'Improving the experience of Dementia and Enhancing Active Life' research programme, the team has produced a leaflet for carers of those living with dementia. The leaflet is funded by the National Institute for Health Research (NIHR), in a project led by the University of Exeter and the NIHR Older People and Frailty Policy Research Unit, with partners including Alzheimer's Society, Manchester University, Bradford University and Brunel University London. Disseminated widely and referenced by practitioners and government. Also translated into Welsh. Feedback From members of the public: I wonder whether it might be possible to have a copy of the leaflet sent to [my dad]? He is finding the whole situation really difficult and I am finding it hard not being with him. The Chair of Southwark pensioners whose mother is living with dementia 'thought that the leaflet was very useful and has circulated it to her contacts in South London'. From NHS colleagues: The leaflet has been recommended to services across the south-west after being mentioned in a Dementia Implementation Group. This led to follow-up contact from services, for example a request from a Principal Psychologist in Cornwall NHSFT. Following translation into Welsh: Mae hwnna'n bamffled bach da dydi. Hawdd i'w ddefnyddio i'r tymor hir - pan fydd y Covid wedi pasio - achos mae'n crynhoi y 5 ffordd at lesiant mewn ffordd syml. [It's a good little pamphlet, isn't it. Easy to use in the long term - when Covid has passed - because it summarises the 5 ways to wellbeing in a straightforward way.] Wellbeing Team Leader, "
Year(s) Of Engagement Activity	2020
URL	http://www.idealproject.org.uk/covid/carer/

Description	Living Well with Dementia: Lessons Learned from COVID-19
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	An event as part of the ESRC Festival of Social Science to launch the Living with Dementia Toolkit and to disseminate findings from our COVID-19 work in an accessible manner.
Year(s) Of Engagement Activity	2021
URL	https://festivalofsocialscience.com/events/living-well-with-dementia-lessons-learned-from-covid-19/

Description	Living well with Memory problems in Black and South Asian communities at Age UK Asian Group Hayes
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Study participants or study members
Results and Impact	Presentation to explain project findings to communities that supported the project. Purpose was to inform BAME community about dementia and dementia research and to encourage people to sign up to "Join Dementia Research".
Year(s) Of Engagement Activity	2021

Description	Living well with Memory problems in Black and South Asian communities at Elim house day centre Peckham
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Study participants or study members
Results and Impact	Presentation to explain project findings to communities that supported the project. Purpose was to inform BAME community about dementia and dementia research and to encourage people to sign up to "Join Dementia Research"
Year(s) Of Engagement Activity	2021

Description	Living well with Memory problems in Black and South Asian communities at Southwark Pensioners centre.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Study participants or study members
Results and Impact	Joint presentation with colleagues from Join Dementia research (JDR) to explain project findings to communities that supported the project. Purpose was to inform BAME community about dementia and dementia research and to encourage people to sign up to JDR. People requested further information.
Year(s) Of Engagement Activity	2021

Description	Living well with Memory problems in Black and South Asian communities online presentation
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Public/other audiences
Results and Impact	Invited talk for the Rotary Club of Elthorne and Hillingdon. Club members are working on dementia this year and were particularly interested to involve ethnic minorities.
Year(s) Of Engagement Activity	2022

Description	Living well with Memory problems in Black and South Asian communities online presentation for "Supporting Relationships and Families" Charity
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Presentation to explain project findings to communities that supported the project. Purpose was to inform BAME community about dementia and dementia research and to encourage people to sign up to "Join Dementia Research"
Year(s) Of Engagement Activity	2022

Description	Living well with Memory problems in Black and South Asian communities online presentation for "Supporting Relationships and Families" Charity
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Study participants or study members
Results and Impact	Joint workshop with colleagues from Join Dementia research (JDR) to explain project findings to communities that supported the project. Purpose was to inform BAME community about dementia and dementia research and to encourage people to sign up to JDR
Year(s) Of Engagement Activity	2021

Description	Living well with Memory problems in Black and South Asian communities-at Golden Oldies social group Walsworth
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Study participants or study members
Results and Impact	Presentation to explain project findings to communities that supported the project. Purpose was to inform BAME community about dementia and dementia research and to encourage people to sign up to "Join Dementia Research". The organiser asked for 30 hard copies of the project report for distribution.
Year(s) Of Engagement Activity	2021

Description	Living well with dementia?
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Public/other audiences
Results and Impact	Article in Hayes Town News about 'Living well with dementia?' for people from ethnic minorities. Links to Brunel University press release.
Year(s) Of Engagement Activity	2021
URL	https://myemail.constantcontact.com/Hayes-Town-News---NHS-gears-up-for-local-vaccination-push.html?s...

Description	Living with Dementia Toolkit was accepted on the World Health Organisation, Global Dementia Observatory, Knowledge Exchange platform website.
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	The GDO KE platform is accompanied by the GDO data portal which collates and disseminates data from Member States on 35 key dementia indicators to support evidence-based service planning and strengthening of policies as well as health and social care systems. The living with dementia toolkit features.
Year(s) Of Engagement Activity	2022
URL	https://globaldementia.org/en/resource/living-with-dementia-toolkit

Description	Living with Dementia toolkit presentation at the Aberaeron Forget me Knots Group
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Living with Dementia toolkit presentation at the Aberaeron Forget me Knots Group.
Year(s) Of Engagement Activity	2022

Description	Living with dementia toolkit in the 3 nations dementia working group magazine
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Keith Oliver, one of the co -producers of the toolkit wrote an article about the merits of the toolkit, for the Alzheimer's Society 3 Nations Dementia Working Group monthly newsletter.
Year(s) Of Engagement Activity	2022
URL	https://email.alzheimers.org.uk/t/57EL-LKRL-F3C6C4D60028E21B4QIZY4DECB31C7FB71271B/cr.aspx

Description	Longitudinal Prize
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	IDEAL's model of factors associated with living well with dementia may feed into criteria for scoring for the Longitude prize for dementia
Year(s) Of Engagement Activity	2020

Description	Martyr (2015) Institute of Mental Health, Nottingham
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Martyr, A. (2015, May). Centre for Research in Ageing and Cognitive Health. Presentation at the academic centres for psychosocial research in dementia, The Institute of Mental Health, University of Nottingham. -
Year(s) Of Engagement Activity	2015

Description	Martyr AAIC Poster 2017
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Martyr, A. Nelis, S.M., Quinn, C., Wu, Y.-T., Lamont, R., Henderson, C., Clarke, R., Hindle, J., Jones, I.R., Morris, R.G., Rusted, J.M., Thom, J.M., Victor, C.R. & Clare, L., (2017, July). Living well with dementia: a systematic review and meta-analysis. Poster presentation at the Alzheimer's Association International Conference, London.
Year(s) Of Engagement Activity	2017
URL	http://aanddjournal.net/article/S1552-5260(17)33641-5/fulltext

Description	Meeting with Alzheimer's Society Research Network Volunteers
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Research Network Volunteers (people affected by dementia who support our research activity) wanted to hear from IDEAL about their findings and the impact their findings they have had.
Year(s) Of Engagement Activity	2021

Description	Meeting with staff from Alzheimer's Society's Dementia Friendly Communities
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Meeting with senior staff from Alzheimer's Society's Dementia Friendly Communities team to incorporate the IDEAL findings into the development of their recognition scheme for what a DFC community should look like.
Year(s) Of Engagement Activity	2018

Description	Members of Living with Dementia Toolkit Toolkit involvement group met Health and Social Care students from South Devon UTC
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Schools
Results and Impact	Five members of the Living with Dementia Toolkit involvement group met on Zoom with 16 Year 12 Health and Social Care students from South Devon UTC. The students got the opportunity to ask questions about dementia and have them answered by these experts by experience. The teacher emailed CCharlwood afterwards to say that 'the main takeaway for my students seems to be how the emotions remain even as the memories disappear, and I think that is a brilliant thing for them to remember as they go forward'.
Year(s) Of Engagement Activity	2022

Description	Mirage story 'Play featuring 83-year-old actress will involve audiences to understand experiences of dementia'
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Media (as a channel to the public)
Results and Impact	This Australian news outlet picked up the story about 'The World Turned Upside Down' and ran it in their Science Education section.
Year(s) Of Engagement Activity	2022
URL	https://www.miragenews.com/play-featuring-83-year-old-actress-will-involve-703894/

Description	My Life Questionnaire and My Life My Goals presentation at the National Assessment Service Network of Wales.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Invited to present to the National Memory Assessment Service Network of Wales on My Life Questionnaire and My Life My Goals. c.30 people there, all of whom work in some way with memory assessment services. Feedback and outcomes: two places are going to trial the interventions as well as interest in translating the questionnaire into Welsh.
Year(s) Of Engagement Activity	2022

Description	NIHR Evidence - Dementia Collection Podcast
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Host, Dr Emily Oliver talks with researchers whose work is included in the NIHR Evidence Dementia Collection. Christina Victor, Professor of Gerontology and Public Health from Brunel University talks about IDEAL and the ALWAYS group. They are joined by Ann Pascoe a dementia carer and founder / chair of Dementia Friendly Communities and Nick Spirit, Engagement Manager for the NIHR Centre for Engagement and Dissemination.
Year(s) Of Engagement Activity	2021
URL	https://podcasts.apple.com/gb/podcast/nihr-evidence-dementia-collection/id1350258595?i=1000516747787

Description	National Assembly for Wales - briefing
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Asked to provide a further briefing session following analysis of IDEAL data
Year(s) Of Engagement Activity	2017
URL	https://wiserd.ac.uk/news/wiserd-gives-briefing-ideal-study-national-assembly-wales

Description	Newsletter: IDEAL August 2020
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Newsletter to IDEAL participants updating them on programme progress for IDEAL and INCLUDE, next steps and publications using the data from IDEAL. Also on the IDEAL website.
Year(s) Of Engagement Activity	2020
URL	http://www.idealproject.org.uk/news/newsletters/

Description	Newsletter: IDEAL February 2021
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Newsletter to IDEAL participants updating them on programme progress for IDEAL and INCLUDE, next steps and publications using the data from IDEAL.
Year(s) Of Engagement Activity	2020

Description	Now that COVID restrictions are gradually lifting, what's next for dementia research?
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Professor Alistair Burns wrote about the impact of the COVID pandemic on dementia research and mentions IDEAL as a study incorporating research about the pandemic and the effect it has on people feeling isolated.
Year(s) Of Engagement Activity	2021
URL	https://news.joindementiaresearch.nihr.ac.uk/now-that-covid-restrictions-are-gradually-lifting-whats...

Description	One year on: South West businesses and researchers in the battle against COVID-19
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A press release from UKRI about how publicly funded researchers and businesses in the South West are making a huge difference in tackling COVID- 19. Featuring a synopsis of the INCLUDE study, the release mentions how the questionnaires completed by carers and people living with dementia are being used alongside existing data to better understand the impact on symptoms and wellbeing.
Year(s) Of Engagement Activity	2021

Description	Online article on the homecare.co.uk website about the banners produced by A Life More prdinary (ALMO) project, 28 May
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Article 'Dementia friends make political banners to show they want 'a life more ordinary' on a national website reviewing the quality of care homes
Year(s) Of Engagement Activity	2019
URL	https://www.homecare.co.uk/news/article.cfm/id/1610213/dementia-friends-make-political-banners-to-sh...

Description	Online exhibition and new book celebrates art made by people living with dementia
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	An art project involving people living with dementia has led to a book as well as an art exhibition that has been moved online to be enjoyed by all during Coronavirus lockdown. In the Unfurlings: Banners for Hope & Change project, a trio of well-known artists worked with groups of people to create banners with those living with dementia to create banners that express their experiences and highlight ways of enabling them to live as well as possible with dementia. Photographer Ian Beesley, poet Ian McMillan, and cartoonist Tony Husband worked with people living with dementia and their carers to create the banners as part of the 'A Life More Ordinary' project which originated from research at the University of Exeter. Through the project, the artists have worked with a number of groups of people affected by dementia around the country, including Exeter, Kent, Oldham, York, Leeds, Bradford and Scarborough, taking a different approach in each area tailored to the group. The banners are now featured in an online exhibition at The Harris in Preston whilst a book is being released to celebrate the success of the project. The book, released in April, celebrates the stories behind the banners and the impact the project has had on people living with dementia and their families.
Year(s) Of Engagement Activity	2020

Description	Online talk for British Neuropsychiatric Association Conference, March 2023
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Online talk by Linda Clare on "Understanding quality of life in mild-to-moderate dementia and what we can do to maintain or enhance it" for the British Neuropsychiatric Association Conference held in London in March 2023. Audience consisted of neuropsychiatrists, neurologists, psychiatrists and other health professionals and researchers.
Year(s) Of Engagement Activity	2023

Description	Open Science Workshop3: Citizen Science
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Other audiences
Results and Impact	Christina Victor, Co - Investigator for IDEAL, spoke at a University of Copenhagen event on the 14/06 in a 'citizen Science' (public engagement) seminar about the ALWAYS group and the types of work that have done  - as an example of a research project specific group. The session was about advice and examples of involving users in research in UK and elsewhere, and will influence the opinion leaders in that institution.
Year(s) Of Engagement Activity	2021

Description	Opening of the exhibition "Chronicle" Gallery Oldham, 6 Janurary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Opening of the exhibition "Chronicle" Gallery Oldham
Year(s) Of Engagement Activity	2019

Description	Panel Discussion - Building Back Better: How can we restore mental health and wellbeing after the COVID-19 pandemic?
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Undergraduate students
Results and Impact	Professor Linda Clare - CI for IDEAL was part of an online panel discussion with world-leading experts from the University of Exeter looking at the impact of the pandemic on mental health and wellbeing. The panel consisted of experts focussing on young and old, those with specific conditions like dementia, and offering innovative solutions such as the value of spending time in nature. IDEAL finding were referenced by Linda. The discussion led to questions from the audience and increased in the IDEAL study.
Year(s) Of Engagement Activity	2020
URL	https://www.youtube.com/watch?v=kFWxBiYgbWQ&feature=youtu.be

Description	Parliamentary Group for Social Science and Policy
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	information on IDEAL was given to the APPG Briefing by the ESRC
Year(s) Of Engagement Activity	2017

Description	Penrith exhibition of dementia awareness banners, Penrith Arts Festival, 29 August - 01 September
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	Exhibition of dementia awareness banners throughout the town as part of Penrith Arts Festival, follow the trail map to collect postcards at each venue. Local press coverage - art gallery to be used ongoing for different community groups; 5 banners in 5 different locations.
Year(s) Of Engagement Activity	2019

Description	Personalisation webinar: How IDEAL evidence could be used to help develop personalised plans for people with early-stage dementia.
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	This session was run to gather the thoughts of government and practitioners on how IDEAL evidence could be used by health and social care practitioners to help develop personalised plans for people with early-stage dementia. Personalisation is currently an important area for development in the NHS and social care, and the relevance of this concept to people with dementia is being highlighted by Alzheimer's Society among others. NHS England want to collaborate in future and introduced the IDEAL team to relevant parties to push plans forward.
Year(s) Of Engagement Activity	2021
URL	https://padlet.com/CathyCharlwood/PersonalisationWebinar

Description	Personalising post-diagnostic support in dementia services
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Findings used in the post diagnostic deep dive work and report by Alzheimer's Society. We led two information-gathering sessions on how best to personalise post-diagnostic support in dementia services with Alzheimer's Society's Dementia Voice National Group. This comprised two sessions, one with the people living with dementia group, and one with carers. 8th and 10 Sept. 2022
Year(s) Of Engagement Activity	2021
URL	https://www.youtube.com/watch?v=DVxz0kbkXAI

Description	Podcast and Radio item: The Unfurlings at People's History Museum
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Paul Jenkin's www.pauljenkinspoet.co.uk, met up with poet, journalist and BBC broadcaster, Ian McMillan at the opening of the Unfurlings exhibition. First broadcast on Rossendale Radio 22.12.19. Ian and Paul discussed the context of the banners and how they represent feelings about various aspects of life.
Year(s) Of Engagement Activity	2019
URL	https://www.podbean.com/ei/pb-tsfqh-ccf0cf

Description	Podium Presentation: Sabatini, O Ukoumunne, C Ballard, R Collins, K J Anstey, A Diehl, A Brothers, A Corbett, A Hampshire, H Brooker, L Clare AAIC 2020
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Policymakers/politicians
Results and Impact	"ONLINE Podium presentation: Higher perceived age-related gains and losses relate to lower objective cognitive scores"
Year(s) Of Engagement Activity	2020
URL	https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.043999

Description	Podium presentation: E van den Heuvel, C R Victor, L Clare AAIC 2020
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	"ONLINE Podium presentation: Improving the Experience of Dementia and Enhancing Active Life (IDEAL): Investigating the perspectives of people from ethnic minority communities"
Year(s) Of Engagement Activity	2020
URL	https://alz-journals.onlinelibrary.wiley.com/doi/abs/10.1002/alz.037479

Description	Poster Presentation Isla Rippon , Christina R Victor, Catherine Quinn, Anthony Martyr, Fiona E Matthews, Linda Clare AAIC 2020
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	ONLINE.Presentation poster: Loneliness and isolation among people with dementia and their carers: Prevalence, risk factors and a dyadic analysis. Poster"
Year(s) Of Engagement Activity	2020
URL	https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.041922

Description	Poster Presentation: F E Matthews, L Gamble, L Clare AAIC 2020
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	"ONLINE Poster presentation: Longitudinal factors associated with living well outcomes in people with mild-to-moderate dementia: Initial findings from the IDEAL cohort"
Year(s) Of Engagement Activity	2020
URL	https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.041922

Description	Poster presentation;Presentation A Choi, C Ballard, A Martyr, R Collins, RG Morris, L Clare at at AAIC 2020.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	ONLINE Poster Presentation: Impact of psychosis on quality of life and well-being in dementia.
Year(s) Of Engagement Activity	2020
URL	https://alz-journals.onlinelibrary.wiley.com/doi/abs/10.1002/alz.045871

Description	Presentation 'Psychosocial barriers to seeking a dementia diagnosis' - IDEAL findings at the Alzheimer's Society Cymru Conference, Cardiff March 6th 2019.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Approximately 200 people attended the conference. The presentation was also publicised through Twitter, comments were retweeted 11 times and received around 30 likes, further increasing awareness of the programme and findings. Increased awareness of the IDEAL study and the findings to date among those who can potentially make use of them to inform decision making.
Year(s) Of Engagement Activity	2019

Description	Presentation - Young Onset Dementia Online Knowledge Exchange Event
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Presentation by Dr Christina Victor Professor of Gerontology and Public Health, Brunel University London at the Young Onset Dementia Online Knowledge Exchange Event. Data presented from IDEAL.
Year(s) Of Engagement Activity	2020

Description	Presentation Living well with dementia: The IDEAL programme, C Quinn, 10 October
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Presentation about the IDEAL programme as part of an opening event for the Wolfson Centre of Apllied Health Research in Bradford.
Year(s) Of Engagement Activity	2019

Description	Presentation Victor, C., Rippon, I. & Clare, L. at the UK Research and Innovation (UKRI) Loneliness and Social Isolation in Mental Health Research Network Symposium, London.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Presentation 'Does loneliness and isolation influence the wellbeing of carers of people with dementia: a dyadic analysis'
Year(s) Of Engagement Activity	2020
URL	https://mailchi.mp/aca95fe0d61a/loneliness-social-isolation-in-mental-health-research-network-newsle...

Description	Presentation at ADI2022: ': Translating research and experience: Co-producing the Living with Dementia Toolkit'
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Presentation at the 35th ADI Conference in London. International audience in the room, with the presentation live streamed to online delegates and then available as on-demand content. 4 members of the toolkit co-production group spoke about the Living with Dementia Toolkit. Delegates took toolkit materials with them, tweeted the presentation and commented on how vibrant the toolkit looked and that it was different to hear about the process of co-production and how the project was shaped by the feedback of people living with dementia and carers.
Year(s) Of Engagement Activity	2022
URL	https://adiconference.org/files/general/ADI-2022-Conference-programme-Final.pdf

Description	Presentation at an Alzheimer's Europe event
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Dr Catherine Quinn (Universty of Bradford) , Presentented at an Alzheimer's Europe organised event for the Alzheimer's Academy on "Legal capacity and decision-making" which included findings from the IDEAL study.
Year(s) Of Engagement Activity	2020
URL	https://www.alzheimer-europe.org/News/Alzheimer-Europe/Tuesday-01-December-2020-Third-session-of-the...

Description	Presentation by R. Litherland, IDEAL co-investigator at the Faculty of the Psychology of Older People (FPOP) National Conference 'Beyond the stereotypes of ageing: Tales of the unexpected', Southport. 1-2 July
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Litherland, R. (2019; July). Co-production work of IDEAL-2. Presentation at the Faculty of the Psychology of Older People (FPOP) National Conference 'Beyond the stereotypes of ageing: Tales of the unexpected', Southport.
Year(s) Of Engagement Activity	2019

Description	Presentation of findings
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Third sector organisations
Results and Impact	The IDEAL findings were presented to Alzheimer's Society's Dementia Friendly Communities staff and volunteers in Exeter to raise awareness of the findings. A write up was then circulated in the regional newsletter
Year(s) Of Engagement Activity	2018

Description	Presentation of findings
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Presentation of IDEAL findings to Alzheimer's Society's Dementia Community's team as part of their away day.
Year(s) Of Engagement Activity	2018

Description	Presentation to Admiral Nurses Forum, University of Warwick by L. Clare, 11-12 September
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Keynote at the Admiral Nurses Form - general topic: What works well in Dementia'
Year(s) Of Engagement Activity	2019

Description	Presentation: L Clare gave a conference presentation at Hong Kong University's 'Intervention & Prevention of Neurodegenerative Disease: Building Resilience ' conference
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Professor Linda Clare shared IDEAL's recent findings and emerging evidence from INCLUDE. IDEAL's data was deemed an important consideration as the Hong Kong Greater Bay Area (GBA) seeks to establish its own dementia strategy.
Year(s) Of Engagement Activity	2021
URL	https://ipndgba.edu.hku.hk/

Description	Presentation: L Clare gave the Annual Manchester Institute for Collaborative Research on Ageing (MICRA) Lecture. ''Living well' with dementia before, during and after COVID-19'
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Professor Linda Clare shared IDEAL's recent findings and emerging evidence from INCLUDE.
Year(s) Of Engagement Activity	2021

Description	Presentation: The World Turned Upside Down film at the Dementia Friendly Communities webinar
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	presentation about TWTUD to the Dementia Friendly Communities webinar run by AlzSoc. Audience of 38 people who run DFCs around the country. Members of the group are going to share news of the film within their communities including one who is going to share it in her regional dementia conference. Other people are going to contact their cinema contacts.
Year(s) Of Engagement Activity	2022

Description	Presentations of IDEAL papers at the British Society of Gerontology Annual Conference, 10-12 July, Liverpool
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Three IDEAL presentations with questions from the audience and discussion Quinn, C., Nelis, S.M., Martyr, A., Victor, C., Morris, R., & Clare, L. (2019; July). Influence of positive and negative dimensions of dementia caregiving on caregiver wellbeing and satisfaction with life: findings from the IDEAL study. Rippon, I., & Victor, C. (2019; July). The impact of relationship quality on loneliness in carers of people with dementia: findings from the IDEAL programme. van den Heuvel, E. & Victor, C. (2019; July). Living well with Memory problems for Black and South Asian communities in the UK.
Year(s) Of Engagement Activity	2019

Description	Presenting My Life, My Goals and the Living with Dementia Toolkit to the Memory Assessment Services (MAS) Wales forum
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	We were invited to speak at this national forum comprising staff from all of the memory assessment services across Wales. Many other people attend this group including Improvement Cymru, Social Care Wales and patient and carer advocacy groups. We related news of My Life, My Goals and the Living with Dementia Toolkit and took questions from interested parties. Lots of different services requested copies of the toolkit materials and wanted to follow-up. MAS Wales have also invited us to be part of their national forum going forwards as a result of this presentation.
Year(s) Of Engagement Activity	2022

Description	Press atricle, L Clare quoted in Guardian article, 29 June
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Linda Clare quoted in Guardian article: 'Save your money': no evidence brain health supplements work, say experts (GCBH supplements)
Year(s) Of Engagement Activity	2019
URL	https://www.theguardian.com/science/2019/jun/29/save-your-money-no-evidence-brain-health-supplements...

Description	Promotional video for 'Join Dementia Research'
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Wendy Mitchell, a well-known dementia champion, mentions IDEAL in her video as an example of research that was enjoyable to participate in.
Year(s) Of Engagement Activity	2022
URL	https://t.co/4ro1gxB8sd

Description	Public Health Wales Meeting
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Information and awareness on the Dementia Toolkit and My Life My Goals shared with the group.
Year(s) Of Engagement Activity	2022

Description	Quality of care Dementia report
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	IDEAL's model of factors associated with living well with dementia to feed into report recommendations for a new framework for dementia care.
Year(s) Of Engagement Activity	2020

Description	Race Equality Foundation: Advise for People with dementia and carers leaflets translated
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	IDEAL CDI 6 page guide on helping people living with dementia and their carers during lockdown has been translated into a variety of languages by the Race Equality Foundation. These languages are: Arabic, Bengali, Chinese, Gujarati, Kurdish, Punjabi, Portuguese, Polish, Somali and Urdu. Leaflets sent to the 21 organisations who participated in the Race Equality Foundation dementia programme. Together Dementia Support, Manchester , Black Health Initiative, Centre of Wellbeing, Training and Culture, Subco, Nubianlife, Nyabingi Charity, AmbaCare, BME Health Forum, London, Brent Youth Radio, Culture Dementia, Stanmore, African Caribbean Care Group, Bristol and Avon Chinese Women's Group, Wai Yin Society, Malcolm X Centre
Year(s) Of Engagement Activity	2020
URL	https://raceequalityfoundation.org.uk/health-care/covid-19-translated-materials-resources/

Description	Radio Devon IDEAL-2 Launch
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	David FitzGerald BBC Radio Devon 20th June 2017 - 10.00 - 13.00 Latest listening figures for BBC Devon are 208,000 per week
Year(s) Of Engagement Activity	2017

Description	Raising awareness of findings among Royal College of Nursing
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A summary of the IDEAL findings were posted on the Royal College Of Nursing Facebook page to help raise awareness among nurses.
Year(s) Of Engagement Activity	2018

Description	Remember that Song - Dementia Singing Group
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Presentation to a group of volunteers and dementia carers from Remember that Song - Dementia Singing Group. Talk generated discussion on research in dementia and how researchers disseminate their findings. The group leader reported back to me that the group are interested in using observational techniques to allow for closer observation of changes in members' behaviour during music sessions.
Year(s) Of Engagement Activity	2017
URL	http://www.rememberthatsong.org.uk/index.php/volunteers-activities

Description	Rethinking dementia
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A free event as part of the Being Human Festival (the UK's only national festival of the humanities). We collaborated with Dr Elizabeth Barry (English, University of Warwick) for this. Four speakers each 'rethought dementia' (Liz, one of IDEAL's researchers, former carer Jane and person living with dementia Gerald), before opening to audience Q&A. The event was online with 55 attendees. "Among feedback comments left on SurveyMonkey were "It is easy to fall into the misconception that 'Oh, I know about dementia'. Clearly there is so much to learn, be challenged on, and fascinating people to connect with. This event helped with this." "I wish I had attended an event like this years ago when my Mum was in the earlier stages because I feel I could have managed things differently/better." "I am working with people with dementia daily and this was an amazing opportunity to learn about better ways to deliver support and information. This has really inspired me to challenge myself to think harder and smarter about the way I work." "
Year(s) Of Engagement Activity	2021
URL	https://youtu.be/ALjXYAUapIs

Description	Rotman Research Conference, Toronto, Canada, March 2020: Living well with dementia: well-being among people with dementia and family carers.
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	An invited presentation: Clare, L. (2020). Living well with dementia: well-being among people with dementia and family carers. Rotman Research Conference, March, Toronto.
Year(s) Of Engagement Activity	2020

Description	Scouse musician living with dementia writes song for research project
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Media (as a channel to the public)
Results and Impact	University of Exeter put out a press release to publicise the song project, its release and its inclusion in the broader impact work of the IDEAL programme including the Living with Dementia Toolkit. As a result of this press release, it's been picked up by an NIHR South West patient-facing magazine, Research+Me. An article will be included in the issue which relaunches the magazine after a COVID-19 hiatus.
Year(s) Of Engagement Activity	2022
URL	https://www.exeter.ac.uk/news/research/title_895582_en.html

Description	Segment on 'The World Turned Upside Down' on BBC Spotlight
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	BBC Spotlight came to rehearsals for 'The World Turned Upside Down' and filmed some live rehearsal at Exeter Phoenix, as well as interviews with the Director, Producer and one of the actors. This segment was part of the regional news broadcast that evening.
Year(s) Of Engagement Activity	2022

Description	Segment on 'The World Turned Upside Down' on ITV Westcountry
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	ITV West Country came to rehearsals for 'The World Turned Upside Down' and filmed some live rehearsal, as well as interviews with the Director, Producer and one of the actors. This segment was part of the regional news broadcast that evening.
Year(s) Of Engagement Activity	2022

Description	South Norfolk Older Persons Community Team - CPD session
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	"Dr Catherine Charlwood, IDEAL's Research and Translation Manager spoke to South Norfolk Older Persons Community Team within Norfolk and Suffolk NHS Trust to speak on the Living with Dementia Toolkit for their CPD session. A really positive session. Comments: Really liked that there were times on the videos, so you can plan when to watch • thought it was really important to hear the voices of people living with dementia and carers (and hearing them laughing!) • asked if they could print things out - I encouraged this! • A Consultant liked the fact that this gave a general overview and then they could focus on sharing information about region-specific services i.e. clinics and groups that exist on the ground there. • they've requested toolkit materials and the manager from the North Norfolk team wants to invite Catherine to speak to them. "
Year(s) Of Engagement Activity	2022

Description	South West dementia research spans a Welsh opera: NIHR Applied Research Collaboration South West Peninsula
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A press release about the IDEAL opera 'The Bridge/Y Bont' from NIHR. The article discusses the background to the opera, hears from Professor Linda Clare, Marian Bryfdir the librettist and director and the Arts Council of Wales's Chief Executive, Dafydd Rhys.
Year(s) Of Engagement Activity	2023
URL	https://arc-swp.nihr.ac.uk/news/dementia-research-welsh-opera/

Description	Special screening of 'The Father' with expert panel
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Public/other audiences
Results and Impact	IDEAL collaborated with local arts venue Exeter Phoenix to run an expert panel and Q&A after a screening of 'The Father'. We also produced a 'screener pack' which was handed out at the event and could be downloaded from our website. This hybrid event included panel speakers in the room and over Zoom. Questions were poignant and the audience commented on how hearing from the experts (and watching our edited video of people with dementia) changed their perceptions of dementia than that presented in the film.
Year(s) Of Engagement Activity	2021
URL	https://exeterphoenix.org.uk/events/the-father/

Description	Spreading the word about dementia research
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Presentation to explain IDEAL project findings to NIHR Clinical Network, which includes people living with dementia and carers. Making clinical colleagues aware of project findings.
Year(s) Of Engagement Activity	2021

Description	St Petersberg visit to meet leading Russian Dementia researchers by Chief Investigator Linda Clare 18 May
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Other audiences
Results and Impact	Visited academic colleagues in St Petersburg for purposes of knowledge exchange, and met with Sasha Shishkina, co-president of AlzRus. Presentation of information about dementia care and about IDEAL at a multidiscipllinary meeting.
Year(s) Of Engagement Activity	2019

Description	Summary of IDEAL, potential evidence call and teams in Alzheimer's Society
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Summary of IDEAL findings provided to heads of and managers across directorates outlining the IDEAL team and what data they can analyse to support any upcoming workstreams. Linda Claire offered to have a meeting with IDEAL and Alz Soc Colleagues to discuss any areas of interest.
Year(s) Of Engagement Activity	2021

Description	Talk Centre for Research Excellence in Cognitive Health research day at the Australian National University, Canberra
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Results - shared information. Discussed plans for future activity.
Year(s) Of Engagement Activity	2017

Description	The IDEAL Study International Workshop, 26-28 Feburary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Other audiences
Results and Impact	Delegates from Brazil, Canada, Germany, Ireland, Japan, Lebanon, New Zealand, Taiwan and the USA met to share information, discuss possible collaborations and consider the possibilities for parallel or comparative studies
Year(s) Of Engagement Activity	2019

Description	The IDEAL study: Alzheimer's Society's Dementia Knowledge Centre
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Publications were added to Alzheimer's Society's Dementia Knowledge Centre and a newsletter special addition was circulated to those registered about IDEAL, the concept of living well and summaries of each of the publications. The majority of those receiving the newsletter were Alzheimer's Society employees who will be able to make use o the findings to influence their practice. This includes staff in Policy, Campaigns, Services and Fundraising.
Year(s) Of Engagement Activity	2019

Description	The Right to a Grand Day Out: a story of co-production
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	A booklet produced by Innovations in Dementia with various Dementia groups explaining co production, using a Grand Day out (part of the ALMO project) to explain the concept. Promoted during co production week 2020 on Twitter.
Year(s) Of Engagement Activity	2020
URL	http://www.innovationsindementia.org.uk/wp-content/uploads/2020/07/A-story-of-co-production---The-Ri...

Description	The Unfurlings: Banners for Hope & Change - Online Exhibition
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"An online exhibition of The Unfurlings:Banners for Hope and Change exhibition at the Harris Museum in part of the 'A life More Ordinary' project . Based on traditional trade union and guild designs, there are 9 banners in total, covering subjects such as the need for better signage in public places, and the importance of active living and creativity for our wellbeing. Each banner is accompanied by a poem by McMillan. Feedback from members of 'Preston's Focus on Dementia Action group'. Participants from the group reported: "I felt that our input was valued - and that was an important thing. Worthwhile thing to join in with. To have your views accepted & listened to. Or to have your views listened it. For example, it was great to be asked to contribute to review of signage/the welcome in the Harris building and how we could make it easier to navigate. Great to see that advice put into action in the Welcome area/reception." " There was a great atmosphere & everyone was encouraged to join in with this project. Would like to see these opportunities broadened out to other people. Like to see more of this happen in the future. More co-production."
Year(s) Of Engagement Activity	2020
URL	https://www.theharris.org.uk/product/the-unfurlings-banners-for-hope-change/

Description	The Unfurlings: Banners for Hope & Change - in person exhibition at Bradford Industrial Museum 26/05/21-30/01/22
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	This is the exhibition the Bradford Industrial Museum reopened with after lockdown.
Year(s) Of Engagement Activity	2021,2022
URL	https://www.bradfordmuseums.org/whats-on/the-unfurlings-banners-for-hope-and-change-created-by-peopl...

Description	The World Turned Upside Down - Exeter College (Students and invited guests)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Schools
Results and Impact	Shown to an audience of H&SC students at the city's college - a forum theatre piece improvised out of anonymised research interviews. The play is about communicating with people with dementia, and the audience will be invited to shape the play by offering possible outcomes to different scenes. Audience input will feed back into the research project.
Year(s) Of Engagement Activity	2022

Description	The World Turned Upside Down - Phoenix Arts Centre (Public audience)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	A forum theatre piece improvised out of anonymised research interviews. The play is about communicating with people with dementia, and the audience will be invited to shape the play by offering possible outcomes to different scenes. Audience input will feed back into the research project. Many requests for the film once ready for distribution.
Year(s) Of Engagement Activity	2022
URL	https://exeterphoenix.org.uk/events/the-world-turned-upside-down/#:~:text=A%20production%20which%20c...

Description	The World Turned Upside Down - University of Exeter (Professional practitioners)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Professional Practitioners
Results and Impact	A forum theatre piece improvised out of anonymised research interviews. The play is about communicating with people with dementia, and the audience will be invited to shape the play by offering possible outcomes to different scenes. Audience input will feed back into the research project. Many requests for the film, made from the play once ready for distribution.
Year(s) Of Engagement Activity	2022
URL	http://www.exeter.ac.uk/news/research/title_892117_en.html

Description	The World Turned Upside Down film at the 3 Nations dementia working group meeting
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Other audiences
Results and Impact	The World Turned Upside Down film introduction was shared with the group as well as a PowerPoint. Feedback and extremely positive comments were shared as well as discussion on dissemination. Screening the film at a webinar on 23rd Sept.
Year(s) Of Engagement Activity	2022

Description	The World Turned Upside Down on the Wales Institute of Social and Economic Research and Data website
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Today (23rd September) marks the launch of a documentary film about dementia and communication called 'The World Turned Upside Down'. The film comes from a large-scale dementia research project called IDEAL (Improving the experience of dementia and enhancing active life: living well with dementia), which WISERD has been involved in since its beginnings in 2014.
Year(s) Of Engagement Activity	2022
URL	https://wiserd.ac.uk/news/the-world-turned-upside-down-film-released/

Description	The World Turned Upside Down' mentioned as part of Heart FM broadcast
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	The World Turned Upside Down' play mentioned during multiple broadcasts across Heart FM (Heart Exeter, Heart Torbay, Heart Plymouth and Heart North Devon). Paul Jepson (Director) spoke as part of this.
Year(s) Of Engagement Activity	2022

Description	The value of seldom heard voices in Ageing research
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	Part of a series of shared learning events run by the NIHR Applied Research Collaborations Healthy Ageing, Dementia and Frailty National Priority Programme, hosted a Public and Community Involvement and Engagement event to explore how we can reach and engage with diverse older population and those that are seldom heard. The programmes' public involvement team shared approaches and experiences from the Ageing Dementia and Frailty theme and guest speakers shared their innovative approaches and learning from engaging voices from our communities. Topics included: Connecting communities, digital exclusion, involving people with dementia. Racheal Litherland and PPI member Keith Oliver discussed IDEAL.
Year(s) Of Engagement Activity	2022

Description	Tinted Lens: A Festival of the Mind, Memory and Ageing
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Public/other audiences
Results and Impact	A wider awareness of the IDEAL study for people living with dementia, their relatives/informal carers as well as others involved in caring for people with dementia.
Year(s) Of Engagement Activity	2017
URL	https://www.chapter.org/season/dementia-awareness-day-2017

Description	Torbay and South Devon NHS Foundation Trust dementia steering group presentation
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	The IDEAL programme Manager, Claire Pentecost attended a Torbay and South Devon NHS steering group looking at improvement plans for us as an Integrated Care Organisation. Amongst attendees were 2 community service managers, someone responsible for safeguarding and mental health, 2 consultant geriatricians, a health care assistant, the dementia education lead, a liaison psychiatrist. They will think about the implications for acute care and community care. Claire gave a presentation about IDEAL and the Living Well with Dementia Toolkit and IDEAL video for Dementia Action Week.
Year(s) Of Engagement Activity	2022

Description	Turning IDEAL into reality
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Third sector organisations
Results and Impact	An internal blog post for Alzheimer's Society staff summarising the IDEAL symposium to raise awareness of the findings in order for staff to be able to make use of them.
Year(s) Of Engagement Activity	2018

Description	Twitter 'jpdewhirst' comments on the Bradford Unfurlings exhibition, which elicits further praise for the exhibition in the comments.
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Media (as a channel to the public)
Results and Impact	Spontaneous tweet from a member of the public who enjoyed The Unfurlings at Bradford leading others to comment and plan to visit.
Year(s) Of Engagement Activity	2021
URL	https://twitter.com/jpdewhirst/status/1400097873572859910

Description	UK Dementia Congress Brighton 2016
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshop 'What does living well with dementia mean? Learning from people with dementia and carers through the IDEAL study' held at the 2016 UK Dementia Congress. 6 people with dementia and two of their partners presented a workshop, sharing their personal experiences of living with the dementia to an audience of 40 people. This was a positive experience for these individuals. One presenter emailed afterwards to say "It was a privilege to be asked to attend the Conference and to be able to say a few words.It really was an 'eye opener' to hear so many people speak and to hear the work that is going on.". The audience also provided only positive feedback e.g. "Found it very stirring and thought provoking. Nice balance of theoretical underpinning and lived experience."; "Amazing! Very good speakers who gave a really useful insight into their lives." The session enabled people to reflect on their work practices: Feedback from attendee- "Great, as ever, to hear the real experiences- all of these reflect back on my work" It increased public understanding of the lived experiences of people with dementia and the potential to live positively with it:
Year(s) Of Engagement Activity	2016
URL	http://www.careinfo.org/wp-content/uploads/2016/01/2016UKDC12pp_v2sb-lo-res6.pdf

Description	UKRI COVID ideas scheme speakers and panel discussion. Focus on interdisciplinary response to global challenges such as Coronavirus.
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Prof. Linda Clare was part of a University of Exeter event on the Covid -19 Social Science Rapid response research funded by ESRC. Professor Linda Clare spoke on Identifying and mitigating the individual and dyadic impact of COVID-19 and life under physical distancing on people with dementia and carers (INCLUDE).
Year(s) Of Engagement Activity	2020

Description	Uncover Liverpool - Scouse musician living with dementia writes song for research project
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	A regional arts and culture online magazine ran the story of the song commissioned by our research project. This story was then mailed out as part of their newsletter.
Year(s) Of Engagement Activity	2022
URL	https://uncoverliverpool.com/community/scouse-musician-living-with-dementia-writes-song-for-research...

Description	Understanding public transport from the perspective of people with dementia
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Blog post to promote the chapbook 'Understanding public transport from the perspective of people with dementia'. The aim was to get people to think about their own experiences of travelling on public transport and to put themselves in the shoes of someone with dementia and the challenges they may face. The blog post was read by over 500 people.
Year(s) Of Engagement Activity	2018
URL	https://www.alzheimers.org.uk/blog/understanding-public-transport-perspective-people-dementia

Description	University of Exeter Press Release
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	The University of Exeter Medical School issued a press release to accompany the unfurling of the Budding Friends banner, undertaken with artist Ian Beesley.
Year(s) Of Engagement Activity	2019
URL	http://www.exeter.ac.uk/dementia/news/articles/artistcollaborationcreate.html#ZtLAgbwQVs6lRsEh.99

Description	University of Exeter news on website - Research shows carers' experience can influence how well a person lives with dementia, 20 May
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	Article based on paper published in the journal Aging and Mental Health, C Quinn featuring a summary of evidence and quotes from researchers, also posted on @IDEALStudyTweet paper
Year(s) Of Engagement Activity	2019
URL	https://www.exeter.ac.uk/news/featurednews/title_716891_en.html

Description	University of Exeter press release: 'Play featuring 83-year-old actress will involve audiences to understand experiences of dementia'
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Media (as a channel to the public)
Results and Impact	A University of Exeter press release about 'The World Turned Upside Down'. This press release drew in other media outlets.
Year(s) Of Engagement Activity	2022
URL	http://www.exeter.ac.uk/news/research/title_892117_en.html

Description	Voice of Islam Radio Interview with Prof Linda Clare
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Discussion between with Professor Linda Clare and presenters on the impact of people with dementia during the Covid-19 crisis and lockdown including signposting for people needing support.
Year(s) Of Engagement Activity	2020
URL	http://voiceofislam.co.uk/

Description	Wales Dementia Action Plan
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Summary of IDEAL findings provided to policy and public affairs at Alzheimer's Society Cymru to support insight requested for the evaluation of the Wales Dementia Action Plan.
Year(s) Of Engagement Activity	2021

Description	Website: Dementia Creatives
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Dementia Creatives is a website for people living with dementia who are using their creations to make supportive and enjoyable links across communities. The project is all about the pride in creating something from scratch (whether it's knitting, painting, song or play-writing, poetry, woodwork, or much more). Projects are shared on this platform to inspire others. Some of the resources feature the IDEAL ALMO (A Life More Ordinary) project.
Year(s) Of Engagement Activity	2020
URL	https://dementiacreatives.org.uk/

Description	Well I know now: so much more about dementia.
Form Of Engagement Activity	A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	"Well I Know Now with Pippa Kelly is a podcast in which she and her guests discuss what their dementia experiences have taught them. From profound life lessons to the importance of professionals who truly understand and the joy to be found in the smallest things. Tony Husband, Ian Beesley and Ian McMillan talk to Pippa Kelly about their collaboration on the Unfurlings banners and talk about the IDEAL project. Brought together in 2018 through a series of workshops in Exeter, the trio - along with people with dementia - compiled comments, poems, cartoons & photographs to help the public better understand what it's really like to live with the condition. And in that same year, the first banner was created with Yorkshire dementia & empowerment project, or DEEP, who were campaigning for those living with dementia to be better served by public transport. The Right to a Grand Day Out, as it's called with a nod to Wallace & Gromit, was unfurled in the middle of the rush hour at York station, with Ian McMillan reading his poems. Which is altogether a wonderful image. Many more banners followed - from the Young Dementia Leeds Cottingley Crew marching forward together against dementia to the Budding Friends Allotment Project in Exeter digging for memory & growing stories, the Hamari Yaadeen South Asian dementia café in Leeds & Bradford's Face It Together group who work with local businesses to make facilities such as cash machines more accessible. What links them all is colour, humour, understanding, warmth, local knowledge & a sense of shared history. Banners traditionally represented hope for the future, they showed what ordinary people could achieve when they united in a common cause.
Year(s) Of Engagement Activity	2021
URL	https://podcasts.apple.com/gb/podcast/ian-mcmillan-tony-husband-ian-beesley/id1513600445?i=100051792...

Description	West Yorkshire R&D Research Event, C Quinn "Delivering a High Quality Service in Dementia Care Research Event" Leeds, 8 May
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	C Quinn presenting "Living well with dementia: The IDEAL programme" to inform local healthcare professionals about the research being undertaken in the area.
Year(s) Of Engagement Activity	2019

Description	Workshop - Kent Groups
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Kent for the A Life More Ordinary (ALMO) project.
Year(s) Of Engagement Activity	2019

Description	Workshop - Young Dementia Leeds
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people (under 65's) with dementia in Leeds for the A Life More Ordinary (ALMO) project.
Year(s) Of Engagement Activity	2019
URL	https://www.commlinks.co.uk/?service=young-dementia-leeds

Description	Workshop A Life More Ordinary (ALMO) Bradford Group, 05 June
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Bradford for the A Life More Ordinary (ALMO) project
Year(s) Of Engagement Activity	2019

Description	Workshop A Life More Ordinary (ALMO) Kirklees Group, 05 June
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Kirklees, West Yorkshire for the A Life More Ordinary (ALMO) project
Year(s) Of Engagement Activity	2019

Description	Workshop A Life More Ordinary (ALMO) Raggamuffin group, October
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia for the A Life More Ordinary (ALMO) project, work with Ian Beesley to continue, funded by Gallery Oldham following the success of the banner making workshops
Year(s) Of Engagement Activity	2019

Description	Workshop A Life More Ordinary (ALMO) Touchstones Leeds, 17 Janurary 2019
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshop Touchstones Leeds
Year(s) Of Engagement Activity	2019
URL	https://www.touchstonesupport.org.uk/about-us/news/

Description	Workshop Kirklees Group
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Kirklees, West Yorkshire for the A Life More Ordinary (ALMO) project
Year(s) Of Engagement Activity	2019

Description	Workshop about A lIfe More Ordianary (ALMO) with Springboard group at Gallery Oldham
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshop with Springboard group at Gallery Oldham
Year(s) Of Engagement Activity	2019

Description	Workshop and presentation at Dementia Action Alliance Conference, N Hart, R.Litherland, K. Oliver, 6 Feburary
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Conference attended by Racheal Litherland and Nicola Hart presentation given by IDEAL ALWAYS (PPI) member Keith Oliver - Living with young onset dementia, also Workshop: How research is informing practical solutions to improve the lives of people living with dementia and carers, IDEAL study (Nicola Hart and Keith Oliver)
Year(s) Of Engagement Activity	2019

Description	Workshop by IDEAL co-investigator at conference : The Wellbeing of Caregivers of People with Dementia Considered from a Neuropsychological Perspective at The International Neuropsychological Society, New York
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Workshop entitled: The Wellbeing of Caregivers of People with Dementia Considered from a Neuropsychological Perspective presented by R. Morris, IDEAL Co-Investigator at The International Neuropsychological Society 47th Annual Meeting New York City, New York, USA
Year(s) Of Engagement Activity	2019
URL	https://www.the-ins.org/files/meetings/ny2019/program_book/NY2019_Program_Book.pdf

Description	Workshop series A Life More Ordinary (ALMO) Touchstones, Leeds, 17 Janurary, 21 Feburary, 21 March, 18 April, 16 May
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia for the A Life More Ordinary (ALMO) project, Touchstone Leeds
Year(s) Of Engagement Activity	2019
URL	https://www.touchstonesupport.org.uk/about-us/news/

Description	Workshop with Springboard Group at Gallery Oldham
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Oldham for the A Life More Ordinary (ALMO) project.
Year(s) Of Engagement Activity	2019

Description	Workshop with Springboard group at Gallery Oldham
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshop with Springboard group at Gallery Oldham
Year(s) Of Engagement Activity	2019

Description	Workshop with the Bradford Group
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Bradford for the A Life More Ordinary (ALMO) project.
Year(s) Of Engagement Activity	2019

Description	Workshop, A Life More Ordinary (ALMO) Budding Friends, Exeter, 04 Feburary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Ian Beesley (photographer) held teh final workshop with the Budding Friends group in Exeter. They have been creating a banner on the theme of friendship. Ian gathered thoughts on the positive side of the banner and to finalise the designs for the second (negative) side of the banner in anticipation of teh unfurling on the first day of spring (21st March 2019).
Year(s) Of Engagement Activity	2019
URL	https://www.ageuk.org.uk/exeter/our-services/dementia-care/

Description	Workshops A Life More Oerdinary (ALMO) Young Dementia, Leeds, 1 Feburary
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops Young Dementia Leeds
Year(s) Of Engagement Activity	2019
URL	https://www.commlinks.co.uk/?service=young-dementia-leeds

Description	Workshops A Life More Ordinary (ALMO) Young Dementia Leeds, 01 and 22 Feburary, 22 March, 3 May
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of a group of people with dementia in Oldham for the A Life More Ordinary (ALMO) project
Year(s) Of Engagement Activity	2019
URL	https://www.commlinks.co.uk/?service=young-dementia-leeds

Description	Workshops with Springboard DEEP group, A Life More Ordinary (ALMO) at Gallery Oldham, 13 May, 17 June
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Workshops eliciting the views and experiences of the Oldham dementia carers group for the A Life More Ordinary (ALMO) project
Year(s) Of Engagement Activity	2019

Description	World Alzheimer's Day 2017
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Media (as a channel to the public)
Results and Impact	World Alzheimer's Day 2017 - ITV News Coverage
Year(s) Of Engagement Activity	2017

Description	Worst Hit: Dementia and Coronavirus - policy report
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Findings have fed into this report, which has been widely used within policy and influencing activity to shine a light on the challenges people with dementia have been facing in receiving support from health and social care during the pandemic.
Year(s) Of Engagement Activity	2020
URL	https://www.alzheimers.org.uk/sites/default/files/2020-09/Worst-hit-Dementia-during-coronavirus-repo...

Description	York Minds and Voices Dementia Enquirers Report
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Dementia enquirers ( a group of people with dementia, aiming to develop a new approach to research that they lead and control) wrote a report entitled 'The pros cons and particular needs of those living alone with dementia and those living with a care partner' 'Living alone with mild-to-moderate dementia: findings from the IDEAL cohort' is cited.
Year(s) Of Engagement Activity	2019
URL	https://dementiaenquirers.org.uk/wp-content/uploads/2021/05/minds-and-voices-in-york_report.pdf

Description	Yorkshire DEEP (The UK Network of Dementia Voices) A Life More Ordinary (ALMO) meeting
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Ian Beesley provided an update on the ALMO project and showed the group the banners that have been created by other groups. This gave people an opportunity to reflect on the impact of their banner and the 'right to get out and about' campaign.
Year(s) Of Engagement Activity	2019

Description	invited talk (online) for the UCLA Dementia Colloquium
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Invited talk ('Living well' with dementia: implications of variation in awareness) in January 2023 to faculty members, physicians, fellows, and researchers, at UCLA, in a virtual format to accommodate long-distance guests. As part of the Mary S. Easton Center for Alzheimer's Research and Care at the University of California, Los Angeles, a monthly academic seminar, known as the "Dementia Colloquium," is organized and speakers invited from across the globe to share their latest findings in Alzheimer's disease and related dementias research.
Year(s) Of Engagement Activity	2023

Description	on-demand scientific programme presentation as part of the Alzheimer's Disease International conference 2022
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Clare, L. & Quinn, C. (2022). Dementia representations and well-being among people living with dementia and care partners in Great Britain on-demand scientific programme presentation as part of the Alzheimer's Disease International conference held in person in London and online in June 2022
Year(s) Of Engagement Activity	2022

Description	poster presentation ICTMC conference, Nworth Clinical Trials Unit, IDEAL, Managing the Paper Mountain: Systems and Processes for Tracing, Managing and Transforming High Volume Trial Data from Paper Sources, 6-9 October
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Poster presentation by NWORTH (CTU Bangor) at the 5th International Clinical Trials Methodology Conference 2019, Brighton. Poster was also promoted at the Rapid Abstract session. Conference team have asked if poster could be made publically available. Poster citation: Rusiak, K., Woodrow, I., Flynn, G., Skelhorn, D., Ryan, J., Nelis, S.M., & Clare, L. (2019, October). Managing the Paper Mountain: Systems and Processes for Tracing, Managing and Transforming High Volume Trial Data from Paper Sources. Poster session presented at the 5th International Clinical Trials Methodology Conference, Brighton
Year(s) Of Engagement Activity	2019
URL	https://ictmc2019.com/

Description	poster presentation as part of the Alzheimer's Disease International conference 2022
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Sabatini, S., Martyr, A., Gamble, L.D., Jones, I.R., Collins, R., Matthews, F.E., Knapp, M., Thom, J.M., Henderson, C., Victor, C., Pentecost, C. & Clare, L. (2022). Profiles of social, cultural, and economic resources and quality of life among people living with dementia poster presentation as part of the Alzheimer's Disease International conference held in person in London and online in June 2022
Year(s) Of Engagement Activity	2022

Description	poster presented online as part of the Alzheimer's Association International Conference
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Alexander, C., Martyr, A. & Clare, L. (2022). Does awareness of condition change over time in people with mild-to-moderate dementia? Longitudinal findings from the IDEAL cohort poster presented online as part of the Alzheimer's Association International Conference in San Diego in July/August 2022
Year(s) Of Engagement Activity	2022