Comprehensive approach to modelling outcome and cost impacts of interventions for dementia
Lead Research Organisation:
London School of Economics and Political Science
Department Name: Personal Social Services Research Unit
Abstract
Dementia has enormous impacts on health and quality of life for people with the illness, their families and other people who care for them. Many people with dementia need care in many areas of their lives, and use a range of health and social care services, as well as getting support from their unpaid carers. Many people with dementia eventually move into care homes. The costs of caring for people with dementia can therefore be high. As the UK population ages over the coming decades, the number of people with dementia will increase considerably. A big challenge facing the country is how to provide high-quality treatment and support to these individuals in ways that are acceptable to them and at a cost considered by society to be affordable.
In England, care and support arrangements are guided by the National Dementia Strategy; there are similar commitments in Scotland, Wales and Northern Ireland. Last year the Prime Minister announced his personal 'Challenge' on dementia. Dementia is now getting unprecedented attention: it is a high priority for government, the NHS and local councils. Our research will feed new evidence into this national debate to help decision-makers at many levels in health and social care systems to meet the needs and respond to the preferences of people with dementia and their carers in ways that make best use of the country's resources.
We will examine existing data to get a clearer understanding of the links between a number of factors: the characteristics of individuals and families, their dementia-related and other needs for care and support, and the services and treatments that could be available to them. We will look at the effects of care, support and treatments on outcomes for individuals and carers - how those interventions can improve their health and wellbeing - and also on the costs of support.
With this information we will first make projections of how many people there will be with dementia over the period to 2040, what family or other unpaid support they are likely to have available, and what it will cost to provide care services. Second, we will examine whether there are better ways to support people with dementia and their carers by introducing new forms of care and treatment. For this part of the research we will rely on previous studies that have examined whether these interventions improve health and wellbeing, and at what cost. We will identify those 'new ways' by reviewing previous studies of dementia care and treatment (and also reviewing ways to prevent or delay dementia). We will look for evidence on, e.g., medications, cognitive stimulation and other therapies, exercise programmes, nutrition advice, telecare, community initiatives, respite and training for carers.
We will collect new data from 300 people with dementia and their carers, looking at their lives, needs and care at two time points over 12 months. We will not be testing any interventions with these people. Instead we need information to help make the best use of data that we can draw from previous studies. We will also conduct interviews and set up focus groups so that we can get 'experiential' evidence, including information on people's preferences.
We will pull all this evidence together to simulate what would be likely to happen if interventions with proven benefits for people with dementia and/or their carers were more widely adopted nationally over the coming decades. We are particularly interested in the economic implications: how the future costs of care might be reduced while health and wellbeing are improved.
We will develop a publicly available tool (accessible via the Web) to enable commissioners, providers, charities, individuals and families to use our evidence to make projections of future costs under different assumptions about population needs, services and treatments. We will work with people with dementia, carers and other potential users of our research at all stages of the project.
In England, care and support arrangements are guided by the National Dementia Strategy; there are similar commitments in Scotland, Wales and Northern Ireland. Last year the Prime Minister announced his personal 'Challenge' on dementia. Dementia is now getting unprecedented attention: it is a high priority for government, the NHS and local councils. Our research will feed new evidence into this national debate to help decision-makers at many levels in health and social care systems to meet the needs and respond to the preferences of people with dementia and their carers in ways that make best use of the country's resources.
We will examine existing data to get a clearer understanding of the links between a number of factors: the characteristics of individuals and families, their dementia-related and other needs for care and support, and the services and treatments that could be available to them. We will look at the effects of care, support and treatments on outcomes for individuals and carers - how those interventions can improve their health and wellbeing - and also on the costs of support.
With this information we will first make projections of how many people there will be with dementia over the period to 2040, what family or other unpaid support they are likely to have available, and what it will cost to provide care services. Second, we will examine whether there are better ways to support people with dementia and their carers by introducing new forms of care and treatment. For this part of the research we will rely on previous studies that have examined whether these interventions improve health and wellbeing, and at what cost. We will identify those 'new ways' by reviewing previous studies of dementia care and treatment (and also reviewing ways to prevent or delay dementia). We will look for evidence on, e.g., medications, cognitive stimulation and other therapies, exercise programmes, nutrition advice, telecare, community initiatives, respite and training for carers.
We will collect new data from 300 people with dementia and their carers, looking at their lives, needs and care at two time points over 12 months. We will not be testing any interventions with these people. Instead we need information to help make the best use of data that we can draw from previous studies. We will also conduct interviews and set up focus groups so that we can get 'experiential' evidence, including information on people's preferences.
We will pull all this evidence together to simulate what would be likely to happen if interventions with proven benefits for people with dementia and/or their carers were more widely adopted nationally over the coming decades. We are particularly interested in the economic implications: how the future costs of care might be reduced while health and wellbeing are improved.
We will develop a publicly available tool (accessible via the Web) to enable commissioners, providers, charities, individuals and families to use our evidence to make projections of future costs under different assumptions about population needs, services and treatments. We will work with people with dementia, carers and other potential users of our research at all stages of the project.
Planned Impact
Our project will generate unusually rich insights into the needs and circumstances of people with dementia over future decades, the health and wellbeing consequences of a range of interventions, and cost implications across all relevant budgets. These insights (made available as far as possible during the study) will be of relevance to national and local decision-makers, people with dementia, families and the public. We plan continuous, informative engagement with relevant communities. Inputs from our Advisory and Reference Groups will be key.
We will also establish an Impact Advisory Group, composed of chief executives and/or public policy leads of a range of key public and other bodies (e.g. relevant royal colleges, DH, Alzheimer's Society, Age UK, Carers UK). This high-level group will meet to discuss key project milestones, helping us to tailor our work to ensure effective translation for policy discussion and service development, with the aim of improving the lives of people with dementia and carers.
We will seek dialogue with some Councils (and ADASS and LGA) to discuss what they and partner Clinical Commissioning Groups would find helpful to assist in planning public health, health and social care interventions. Links to the NHS Commissioning Board, Public Health England and Think Local Act Personal will be important too.
We will present findings at regular intervals to stakeholders and to brief relevant parliamentary committees, all party parliamentary groups, parliamentary inquiries, relevant consultations and non-governmental stakeholders. We have good experience of this (e.g. our earlier macro-simulation models have been instrumental in guiding government thought in the area of need for and cost of long term care through the DH and in evidence to the House of Commons Health Committee, Dilnot Commission on the Funding of Care and Support, and the House of Lords Select Committee on Public Service and Demographic Change). Interim findings will be discussed with research users and put in the public domain as soon as possible via briefing notes and discussion papers. External designers will help us produce infographics and visual representations within texts. We will disseminate interim findings through a dedicated blog and tweets. We will assess research impact by asking stakeholders how well our interim/final findings, and in due course the model made publicly available, have assisted policy development and planning of services. We will track citations to our work (policy documents, parliamentary reports, media).
At the end of the project, we will produce a range of outputs:
- a policy-based report outlining findings and associated implications for next steps
- an overall project summary and guide for the wider public, connecting research findings to the everyday life and challenges of people with dementia, families and carers. This will include infographics, pictures and real-life testimonials to contextualise and humanise the academic evidence. We will look to use animation in the form of the RSA's 'Animate' series; it would be uploaded to relevant websites and social media sites
- the web-based interactive legacy model will be free to use by commissioners, providers, researchers and general public
- we will hold seminars with stakeholders and experts during the project to present interim findings and discuss scenarios for modelling. We will hold a major event at the end of the project to present findings to central and local government, voluntary organisations, people with dementia, carers and academics. We will present our findings at seminars and conferences arranged by others.
We will also establish an Impact Advisory Group, composed of chief executives and/or public policy leads of a range of key public and other bodies (e.g. relevant royal colleges, DH, Alzheimer's Society, Age UK, Carers UK). This high-level group will meet to discuss key project milestones, helping us to tailor our work to ensure effective translation for policy discussion and service development, with the aim of improving the lives of people with dementia and carers.
We will seek dialogue with some Councils (and ADASS and LGA) to discuss what they and partner Clinical Commissioning Groups would find helpful to assist in planning public health, health and social care interventions. Links to the NHS Commissioning Board, Public Health England and Think Local Act Personal will be important too.
We will present findings at regular intervals to stakeholders and to brief relevant parliamentary committees, all party parliamentary groups, parliamentary inquiries, relevant consultations and non-governmental stakeholders. We have good experience of this (e.g. our earlier macro-simulation models have been instrumental in guiding government thought in the area of need for and cost of long term care through the DH and in evidence to the House of Commons Health Committee, Dilnot Commission on the Funding of Care and Support, and the House of Lords Select Committee on Public Service and Demographic Change). Interim findings will be discussed with research users and put in the public domain as soon as possible via briefing notes and discussion papers. External designers will help us produce infographics and visual representations within texts. We will disseminate interim findings through a dedicated blog and tweets. We will assess research impact by asking stakeholders how well our interim/final findings, and in due course the model made publicly available, have assisted policy development and planning of services. We will track citations to our work (policy documents, parliamentary reports, media).
At the end of the project, we will produce a range of outputs:
- a policy-based report outlining findings and associated implications for next steps
- an overall project summary and guide for the wider public, connecting research findings to the everyday life and challenges of people with dementia, families and carers. This will include infographics, pictures and real-life testimonials to contextualise and humanise the academic evidence. We will look to use animation in the form of the RSA's 'Animate' series; it would be uploaded to relevant websites and social media sites
- the web-based interactive legacy model will be free to use by commissioners, providers, researchers and general public
- we will hold seminars with stakeholders and experts during the project to present interim findings and discuss scenarios for modelling. We will hold a major event at the end of the project to present findings to central and local government, voluntary organisations, people with dementia, carers and academics. We will present our findings at seminars and conferences arranged by others.
Publications
Banerjee S
(2016)
Video: MODEM study on #JoinDementiaResearch
Comas, A
The Economics of Dementia
Comas-Herrera A
(2017)
MODEM: A comprehensive approach to modelling outcome and costs impacts of interventions for dementia. Protocol paper.
in BMC health services research
Comas-Herrera A
(2016)
P2-437: Modem: A Comprehensive Approach to Modelling Outcome and Cost Impacts of Interventions For Dementia
in Alzheimer's & Dementia
Daley S
(2019)
Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework.
in International journal of geriatric psychiatry
Damant J
(2017)
Effects of digital engagement on the quality of life of older people.
in Health & social care in the community
Dangoor, M
(2015)
Blog: Dementia and day care - supporting the partnership of care
Dixon J
(2018)
The Effectiveness of Advance Care Planning in Improving End-of-Life Outcomes for People With Dementia and Their Carers: A Systematic Review and Critical Discussion
in Journal of Pain and Symptom Management
Farina N
(2019)
The Impact of Physical Activity
Farina N
(2021)
Barriers, motivators and facilitators of physical activity in people with dementia and their family carers in England: dyadic interviews.
in Aging & mental health
Farina N
(2017)
Factors associated with the quality of life of family carers of people with dementia: A systematic review.
in Alzheimer's & dementia : the journal of the Alzheimer's Association
Govia I
(2021)
Mapping Long-Term Care in Jamaica: Addressing an Ageing Population
in Sustainability
Karagiannidou M
(2022)
Recruitment into dementia studies: Experiences of researchers using the Join Dementia Research register.
in International journal of geriatric psychiatry
Kingston A
(2018)
Forecasting the care needs of the older population in England over the next 20 years: estimates from the Population Ageing and Care Simulation (PACSim) modelling study.
in The Lancet. Public health
Knapp M
(2017)
MODELING THE OUTCOME AND COST IMPACTS OF INTERVENTIONS FOR DEMENTIA (MODEM)
in Innovation in Aging
Knapp M
(2022)
What are the current and projected future cost and health-related quality of life implications of scaling up cognitive stimulation therapy?
in International journal of geriatric psychiatry
Knapp M
(2017)
THE MODEM PROJECT
in Innovation in Aging
Knapp M
(2015)
Dementia: Economic Considerations
in Science in Parliament
Lombard D
(2015)
Blog: A day in the life of people with dementia
Lorenz K
(2019)
Technology-based tools and services for people with dementia and carers: Mapping technology onto the dementia care pathway.
in Dementia (London, England)
Lorenz K
(2015)
Blog: When Hollywood touches on our research
MODEM Project Team
(2018)
MODEM Project Summary (Current Findings)
MODEM Team
(2015)
MODEM newsletter: May 2015
Pennington M
(2018)
The cost of diagnosis and early support in patients with cognitive decline.
in International journal of geriatric psychiatry
Pickett J
(2018)
A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025.
in International journal of geriatric psychiatry
Read S
(2020)
Social Isolation and Memory Decline in Later-life.
in The journals of gerontology. Series B, Psychological sciences and social sciences
Read S
(2016)
Blog: Is parenthood beneficial for later life cognition?
Read S
(2017)
Fertility History and Cognition in Later Life
in The Journals of Gerontology: Series B
Wittenberg R
(2014)
Modelling the costs of dementia care in the UK
Wittenberg R
(2019)
The costs of dementia in England.
in International journal of geriatric psychiatry
Wittenberg R
(2020)
Projections of care for older people with dementia in England: 2015 to 2040.
in Age and ageing
Wong G
(2020)
Should we move dementia research funding from a cure to its care?
in Expert review of neurotherapeutics
| Description | 1) Risk factors of cognitive impairment Findings from this component of the study suggest that the social activities of individuals and their social networks help to maintain steady levels of cognition, in addition to their education. Researchers from the University of Southampton (Jitka Pikhartova and Ann Bowling) investigated a hypothesis drawn from the literature that the following factors might be associated with cognition at 50 years old: health behaviours, social support and social net in adolescence, and socio-economic characteristics during childhood and adulthood. The team used data from the National Child Development Study (NCDS). This is a longitudinal data set which follows the lives of 17,000 adults born in a single week in 1958. The associations between the possible risk factors and cognition at age of 50 were analysed using linear regression for multivariable analysis. Positive associations with cognition were found with participation in civic activities at the age of 33 and 50, frequent participation in sporting activities at age 42, highest achieved qualification, and being female. On the other hand, having a manually working father at age of 11 and having at least 2 family members to whom respondents could turn for advice at the age of 33 were negatively associated with cognitive outcomes. 2) Fertility history and cognition in later life Using data from the English Longitudinal Survey of Ageing (ELSA), Dr Sanna Read and Professor Emily Grundy from the London School of Economics and Political Science looked at the level and changes in cognition (memory and word fluency) over an 8-year period among women and men aged 50 or more at the start of the study. They assessed how cognition was associated with number of children (0, 1, 2, 3 or 4 children), early parenthood (before age 20 for women and 23 for men) and late parenthood (after age 35 for women and 39 for men). Previous work on parenthood and cognition has mainly focused on women only and a narrow range of physiological effects, especially hormonal factors. The novelty in this study was to include both men and women and widen the scope to consider the role of socio-economic position, health and social factors in the association. Findings reveal that family building history has both negative and positive effects on cognition in later life. Large family size and early parenthood were associated with poorer cognitive functioning in both men and women, following a similar pattern as found previously for other health outcomes. Poorer cognitive functioning in these cases resulted from negative pathways between early parenting, larger family size and poorer socioeconomic position, which further affect health and social engagement in later life. The benefits of parenting on cognition were also evident; parents had higher cognitive functioning than childless men and women. Moreover, those women who experienced their last birth after turning 35 also exhibited higher cognitive functioning in later life. Although some of these benefits were due to better socioeconomic position, health and social engagement, these background factors did not fully explain why parenthood and cognition was positively associated. Findings were recently published in the Journal of Gerontology. 3) Technology-based tools and services for people with dementia and carers The project collaborated with the Department of Health and Social Care's Policy Innovation Research Unit to identify how technologies fit within the dementia care pathway, by conducting a scoping review of digital technology, robotics and other technology (as relevant) in the care and support of people with dementia and/or their unpaid family and other carers, and supplementing this with experiential information gathered from people with dementia and carers, and interviews with experts in the field. The research found that the largest number of technologies identified aim to enhance the safety and security of people with dementia living in the community. These devices are often passive monitors, such as smoke detectors. Other safety interventions, such as panic buttons, require active intervention. The second largest number of interventions aims to enhance people's memory and includes global positioning systems devices and voice prompts. These technologies mostly target people in the early stages of dementia. A third group focusing on treatment and care delivery emerged from the literature. These interventions focus on technology-aided reminiscence or therapeutic aspects of care for people with dementia and their carers. While the review found a range of technologies available for people with dementia and carers there is very little evidence of widespread practical application. Instead, it appears that stakeholders frequently rely on everyday technologies re-purposed to meet their needs. 4) Microsimulation epidemiological model The MODEM project has developed a new dynamic micro-simulation model called the Population, Ageing and Care Simulation (PACSim). Its aim is to model (a) the health and associated care needs of the English population over the coming decades; and (b) the impact of interventions for risk factor reduction, disease prevention and treatments that slow down progression to disease and disability. The model builds on two similar ones: firstly a previous epidemiological macro-simulation model, SIMPOP, which linked multiple diseases to disability to project future disability burden in people aged 65 years and over; and secondly DynoptaSim, an Australian dynamic micro-simulation model of the health and functional status of the Australian population aged 45 years and over. The base population for PACSim is individuals aged 35 years and over from three longitudinal studies: the new CFAS cohort; the English Longitudinal Study of Ageing (ELSA); and Understanding Society (waves 1 and 2). Baseline characteristics generated on individuals include: sociodemographic (age, sex, living arrangements/marital status, education, occupation, retirement); lifestyle behaviours (smoking, physical activity, BMI, social engagement); diseases/geriatric conditions (dementia/cognitive impairment, CHD, stroke, hypertension, diabetes, arthritis, cancer, respiratory disease, hearing impairment, visual impairment). The outcome variable is disability as measured by the interval of need scale, and categorising people on the basis of activities of daily living and cognitive function on the intensity of care required. The technical report gives further detail about the construction of PACSim. We found that between 2015 and 2035 in England, both the prevalence of, and numbers with, dependency will fall for the young-old (65-74 years) whilst for very old adults (=85 years) numbers with low dependency will increase by 148% and with high dependency (24-hr care) will almost double (increase of 91.8%) though prevalence will change little. For men aged 65 there will be a compression of dependency as gains in years independent (4.1 years) exceed gains in life expectancy (3.5 years). In contrast for women there will be an expansion of mainly low dependency. In 2015 just over half (58%) of older adults with dementia and substantial (medium or high) dependency will have at least two other concurrent conditions whilst by 2035 this proportion will rise to 81%. Multi-morbidity prevalence and years spent with multi-morbidity are estimated to increase over the same period, but the largest increases will be seen in 4+ diseases where the proportion will rise from 9.8% to 17%, and most of the life expectancy gains will be in years spent with 4+ diseases. Findings from this part of the project were published in a MODEM technical report, in Age and Ageing in January 2018, and in Lancet Public Health in August 2018. The findings received considerable media coverage. 5) Macrosimulation model Outputs from the microsimulation model on intensity of care by age, gender and year in the presence of dementia form inputs to the MODEM macrosimulation model. Scenarios for risk-factor reduction and treatment strategies will be informed by reviews on costs, effectiveness and cost-effectiveness of interventions to prevent or delay dementia onset, being undertaken in other parts of the project (e.g. exercise, social engagement). Outputs include life expectancies with different care needs (to feed into the care pathways model developed by other members of the study) and years spent with and without individual diseases and multimorbidity to allow exploration of the likelihood of compression or expansion of morbidity/disability given different health scenarios. Development of our macrosimulation model has taken place with data drawn from the MODEM PACSIM model, the Office for National Statistics (ONS) 2014-based population projections, the Cognitive Function and Ageing Study (CFASII), NHS Digital data from local authorities, MODEM cohort study data and PSSRU Unit Costs of Health & Social Care. We estimated the number of people living with dementia currently: this figure is around 690,000 people with dementia in England, of whom 565,000 receive unpaid care or community care or live in a care home. We calculated the total annual cost of dementia in England at £24.2 billion in 2015, of which 42% (£10.1 billion) is attributable to unpaid care. Social care costs (£10.2 billion) are three times larger than healthcare costs (£3.8 billion). £6.2 billion of the total social care costs are met by users themselves and their families, with £4.0 billion (39.4%) funded by government. Total annual costs of mild, moderate, and severe dementia are £3.2 billion, £6.9 billion and £14.1 billion, respectively. Average costs of mild, moderate and severe dementia are £24,400, £27,450, and £46,050, respectively, per person per year. We used the microsimulation and macrosimulation models together to make projections of future numbers of people living with dementia and the costs of their support under current care arrangements. There will be increases in the numbers of older people living with dementia, and more people needing care. In 2035 it is projected that there will be 1,350,000 people living with dementia in England. By 2035 in England, the numbers of people with low care needs will increase by 148%, and the numbers with high needs (meaning they require 24-hour care) will increase by 92%. We made projections of the demand for unpaid care, social care and healthcare for the older population with dementia and of the associated costs of care from 2015 to 2040. We conducted regression analyses to identify the key drivers of receipt of unpaid care and of care services. Our projections take account of expected changes in the prevalence of dementia from the PACSim model, changes in the number of older people by age and gender published by the ONS and expected real rises in wages reported by the O?ce for Budget Responsibility (OBR). The costs of dementia in England are projected to increase from £23.0 billion in 2015 to £80.1 billion in 2040. Findings were published in two papers in 2019, one in Age and Ageing and the other in the International Journal of Geriatric Psychiatry, with associated press coverage. Another paper on methods of costing unpaid care is in preparation. The figures for current costs, future predicted prevalence and future predicted costs are quoted by third sector organisations such as the Alzheimer's Society and Alzheimer's Research UK, as well as by DHSC. 6) Care pathways We have mapped the full dementia care pathway in England to understand access to services and interventions. By the dementia care pathway, we mean the stages of care that people living with dementia and carers may experience, from the very first symptoms or concerns, to the end of life, considering health, social care and community services. We have done this through a wide consultation that enabled us to map graphically the sequence of services that are potentially available, and then proceeded to look for data on the numbers of people living with dementia and carers that are able to access those services in practice. This process has highlighted that, while there is a wide variety of services available in England, the system is very fragmented and complex, suggesting that, without good care coordination, it is not easy for people living with dementia and their carers to access services. It is also evident that there is a relatively well-established health care pathway and data on what happens up to the point of diagnosis, but, in contrast, there is very little information to enable the monitoring of how well the current dementia care services are able to provide adequate care, treatment and support beyond diagnosis. A paper is in preparation. 7) Cohort analyses Over 300 dyads of people with dementia and their carers were recruited onto our cohort study, with at least 100 each with mild, moderate and severe dementia. We were successful in recruiting 307 people living with dementia and their primary carer. Cross-sectional data analysis revealed: proxy-report, but not self-report, quality of life of the person with dementia is associated with dementia severity; carer quality of life is not a?ected by dementia severity, even after controlling for key confounding variables; factors such as the quality of life of the person with dementia and carer burden, are significantly associated with carer quality of life. 250 participants were available to participate at the 12-month follow-up. Longitudinal data analysis revealed: between testing, approximately 45% of participants experienced at least one of the following; a) hospital admission, b) moving into residential care, c) commenced formal home care, d) had a fall in quality of life (0.10 decline in EQ5D); having severe dementia is associated with poorer generic quality of life at follow-up when compared to mild severity participants. This was not found in the disease-specific quality of life outcome; and disease-specific quality of life at follow-up is significantly associated with greater behavioural disturbance. Even within a year, therefore, there can be significant changes to an individual's dementia severity and/or personal circumstances. It is estimated that unpaid carers spend, on average, at least 71 hours a week caring. The quality of life of carers does not depend upon whether the person they are caring for has mild, moderate or severe dementia. However, it is affected by whether the person living with dementia has a good or poor quality of life and how much time carers spend caring. Two papers have been submitted to journals from this part of the study. 8) Evidence on advance care planning The MODEM study has gathered new evidence on the lives of people with dementia and their carers, and interventions that could delay onset, slow deterioration in cognition, functioning or behaviour, or reduce their adverse impacts on wellbeing, and on costs. A paper focusing on the evidence on the effectiveness of advance care planning (ACP) in improving end of life outcomes for people with dementia and their carers was published in January 2018 in the Journal of Pain and Symptom Management. Systematic searches of academic databases (CINAHL Plus with full text, PsycINFO, SocINDEX with full text, and PubMed) were conducted to identify research studies, published between January 2000-January 2017 and involving statistical methods, in which ACP is an intervention or independent variable, and in which end-of-life outcomes for people with dementia and/or their carers are reported. A total of 18 relevant studies were identified. Most found ACP to be associated with some improved end-of-life outcomes. Studies were predominantly, but not exclusively, from the U.S. and care home-based. The type of ACP and outcome measures varied. Quality was assessed using National Institute of Health and Care Excellence quality appraisal checklists. Over half of the studies were of moderate to high quality. Three were randomized controlled trials, two of which were low quality. Findings suggest that there is a need for more high-quality outcome studies, particularly using randomized designs to control for confounding. These need to be underpinned by sufficient development work and process evaluation to clarify the appropriateness of outcome measures, explore implementation issues and identify "active elements." 9) Dementia Evidence Toolkit Additional funding was provided by the ESRC to support the project to build on our systematic mapping of the literature on effectiveness of interventions in dementia to develop an evidence library. The Dementia Evidence Toolkit was launched in July 2016 and is a web-based resource consisting of: a searchable coded bibliographic database of 3000 empirical papers and 700 systematic reviews on interventions for the treatment, care and support of people with dementia and carers, comprising the period between 2009 and June 2015; and plain language summaries of the evidence on the effectiveness (and cost-effectiveness) of key care and treatment interventions. The aim of the Toolkit is to provide easy access to scientific evidence of dementia care and treatment and to provide clear and rigorous information to people living with dementia, family and other unpaid carers, staff working in the health and social care sectors, local and strategic decision-makers and researchers. The toolkit has evaluated the evidence base for typical interventions in use in the UK: Advance Care Planning, STAR, Maintenance Cognitive Stimulation Therapy, Cognitive Stimulation Therapy, Music Therapy and START: Strategies for Relatives. These interventions were found to be cost-effective, and further detailed information is available on the Toolkit website. 10) Evidence-based interventions We examined the potential for a number of evidence-based interventions to be more widely delivered across the country over future years to help people living with dementia and their carers. We looked particularly at three: cognitive stimulation therapy, combining anti-dementia medicines, and support for carers (using the START approach as the basis for analyses). We modelled the health, quality of life and cost impacts of making these interventions more widely available over the period to 2040. There are cost savings with some interventions, health improvements and quality of life gains. Papers from these analyses are currently in preparation for submission to journals. 11) Carer gender and age As part of a MODEM studentship, we investigated if and how well-being and quality of life of carers of people living with dementia are a?ected by di?erences associated with carer gender and age. We used a literature review to investigate how well-being and quality of life of carers of people living with dementia have been measured, and qualitative research based on interviews with family carers to investigate aspects that carers reported as important to their well-being. Results from the quantitative analysis cautiously suggested that women might experience worse outcomes than men with respect to health-related quality of life, happiness and life satisfaction. Carer age influenced mental health outcomes in two of the studies, but results were not conclusive. Results from the final analysis showed that women spent more time than men on personal care and instrumental activities of daily living tasks. No statistically significant di?erence was found for carer gender regarding time spent on supervision or total time spent caring. Similarly, carer age was not found to significantly a?ect the time carers spent on any of the task groups investigated. This suggests that carer age does not play a significant role in determining the intensity of care provided. |
| Exploitation Route | The MODEM study formed the basis of two substantial new studies. One is funded by RCUK's Global Challenges Research Fund. This is STRiDE: Strengthening responses to dementia in developing countries (ES/P010938/1). The study started in October 2017 and runs for 51 months. The study is working with local partners and stakeholders in seven middle-income countries (Brazil, India, Indonesia, Jamaica, Kenya, Mexico and South Africa) to: (a) build capacity in generating and using research evidence/tools to support policies for improvement of dementia care, treatment and support; (b) build up research evidence on what works in dementia in low- and middle-income countries; (c) better understand impacts of dementia in various cultural, social and economic contexts to help countries develop appropriate responses; and (d) support development, financing, planning, implementation and evaluation of national dementia plans. One component of the study will attempt to develop the Dementia Evidence Toolkit into an international evidence database. A second study which has built explicitly on MODEM has recently started, and involves most of the MODEM team in further collaboration. This is DETERMIND: DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their family carers (ES/S010351/1). The study will look at inequalities in dementia care and outcomes and what we can do to improve them. It will have a unique focus on decision-making, how care is funded, people with dementia of black Caribbean and South Asian heritage, the older LGBTQ+ population, and the benefits and harms of earlier and later diagnosis of dementia. DETERMIND will focus on identifying and understanding factors that generate unequal access and experiences, leading to inequalities in care and inequities in outcome in the three years following diagnosis, and will recruit a large (n=900) cohort of people newly diagnosed with dementia and their carers and follow them closely for three years to do this. Further funding opportunities are also being explored to build on other components of the MODEM study. In addition, funding has been received from the Alzheimer's Society to project the future costs of dementia for the Alzheimer's Society across the four countries of the UK (i.e. extending beyond England, which was the focus of the main MODEM study) using an updated version of the MODEM model. The resulting Working Paper underpinned a report by the Alzheimer's Society which has led to the Government considering further measures to support dementia care. Members of the team are part of key stakeholder groups and initiatives which are utilising MODEM findings. Martin Knapp, Sube Banerjee and Adelina Comas-Herrera were part of a taskforce established by the Alzheimer's Society of leading UK clinicians and researchers in dementia, UK funders of dementia research, people with dementia, and carer representatives to develop, using iterative consensus methodology, goals and recommendations to advance dementia research by 2025. Emerging findings from the MODEM study fed into this taskforce which published its recommendations in the International Journal of Geriatric Psychiatry in February 2018. Adelina Comas-Herrera is a member of the Guideline Development Group for the World Health Organization's Risk reduction guidelines for cognitive decline and dementia. |
| Sectors | Communities and Social Services/Policy,Healthcare,Other |
| URL | http://www.modem-dementia.org.uk/ |
| Description | A summary report of our findings (prepared for a launch event in November 2018, attended by 120 people) is available on our website, and we have finalised a policy report alongside an animated video targeted at people living with dementia and carers. The MODEM Dementia Evidence Toolkit has generated impact: at the launch event (July 2016), Jeremy Hughes CEO of the Alzheimer's Society said it 'puts all that evidence together in an accessible and usable way in the public domain'. In just its first four months, the Toolkit had 7,029 visits and 9,155 searches from researchers, carers, social workers, commissioners, GPs, and people with dementia - demonstrating the breadth of reach for the resource. Project team members continue to present findings at conferences and seminars, as well as sharing them as part of policy discussions. We have a number of stakeholders who continue to engage with us to utilise and build on the findings, including the Alzheimer's Society and the Department of Health and Social Care (DHSC). Findings from MODEM have been shared regularly with DHSC officials, including through three invited presentations at their offices, plus other briefings. Additional analyses were conducted at the request of DHSC analysts as they prepared for the 2020 Spending Review, which was later shelved. DHSC commissioned further work using this model within one of its new Policy Research Units, to address a range of policy-related questions regarding the older population. In early March 2019 we were asked for evidence from MODEM (on potential savings from better prevention efforts) to feed into DHSC work to prepare the Green Paper on social care. We have continued to receive requests to provide evidence building on MODEM research (details are set out in the Key Findings section). MODEM findings on projections of future needs from our microsimulation modelling (led by Jagger and Kingston) received significant media attention when published in two papers in 2018. The first of these papers was awarded the Dhole-Eddlestone Memorial Prize for best paper in Age and Ageing in 2018. Figures from our projections of prevalence and cost were quoted in a speech by the Secretary of State in a major speech on dementia in December 2018, and continue to feed into policy discussions, including through follow-on modelling on the costs of dementia for the Alzheimer's Society. Estimates generated as part of the MODEM, building on data collected within the CFAS study, were cited in the NHS Long Term Plan, published in January 2019. Based on reviewing undertaken within MODEM, summaries of economic evidence were requested from CPEC by the National Clinical Director for Dementia at NHS England and NHS Improvement. These were published as case studies on their websites to inform and influence local patterns of NHS commissioning and provision. Findings from research on social isolation, and the costs of dementia, received considerable press attention in 2019. Building on evidence syntheses in MODEM, Comas-Herrera and Knapp were members of an Alzheimer's Society taskforce that prepared a 'roadmap' recommending dementia research goals to support policymakers, influence funding opportunities and develop research infrastructure. Knapp was invited to join the small Expert Advisory Group for WHO's Dementia Blueprint for Action "to accelerate global dementia research and innovation". |
| First Year Of Impact | 2019 |
| Sector | Communities and Social Services/Policy,Healthcare |
| Impact Types | Economic,Policy & public services |
| Description | Advice for Prime Minister's Challenge on Dementia 2020: Implementation Plan |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Member of DH Advisory Group on Dementia Research |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | Member of World Dementia Council |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Member of the Guideline Development Group for the World Health Organisation's Risk reduction guidelines for cognitive decline and dementia |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Membership of a guideline committee |
| Impact | While it is difficult to quantify this impact, WHO guidelines have a very wide reach, and they are often adopted, almost directly, by the public health departments in many countries in the world. They are also used directly by WHO for public health campaigns, which are expected to affect at least some individual's behaviour. |
| URL | https://www.who.int/mental_health/neurology/dementia/guidelines_risk_reduction/en/ |
| Description | NIHR Signal based on projections of multi-morbidity paper |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | https://discover.dc.nihr.ac.uk/content/signal-00572/multi-morbidity-predicted-to-increase-in-the-uk-... |
| Description | PHE Productive Healthy Ageing and Dementia Expert Advisory Group |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | Participation in the Future Support in Later Life Workshop, organised by GO Science and the Cabinet Office. This part of a short, future-focussed project looking at support for people in later life. The workshop brought together the team from GO Science and the Cabinet Office working on the review with a group of experts, to explore how future provision of housing and technology could help people live well for longer. |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Award: Case for investment in technology to manage the global costs of dementia |
| Amount | £49,997 (GBP) |
| Organisation | Government of Catalonia |
| Department | Department of Health |
| Sector | Public |
| Country | Spain |
| Start | 06/2015 |
| End | 11/2015 |
| Description | Award: Pilot Dementia Data Collection Exercise to contribute to WHO Dementia Observatory |
| Amount | £22,982 (GBP) |
| Organisation | Government of Catalonia |
| Department | Department of Health |
| Sector | Public |
| Country | Spain |
| Start | 01/2016 |
| End | 04/2016 |
| Description | Economic costs of dementia in Japan and the UK |
| Amount | £3,200 (GBP) |
| Organisation | The Great Britain Sasakawa Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 05/2016 |
| Description | Framework funding: Commissioning effective and cost-effective primary prevention services for dementia |
| Amount | £94,976 (GBP) |
| Organisation | Public Health England |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2015 |
| End | 06/2016 |
| Description | Further funding: Dementia Evidence Toolkit |
| Amount | £120,000 (GBP) |
| Funding ID | ES/L001896/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2015 |
| End | 03/2016 |
| Description | Long-Term Care Financing: Report to the WHO Working Group on Long-Term Care Systems |
| Amount | $7,500 (USD) |
| Organisation | World Health Organization (WHO) |
| Sector | Public |
| Country | Global |
| Start | 03/2016 |
| End | 08/2016 |
| Description | STRiDE: Strengthening Responses to Dementia in Developing Countries (GCRF) |
| Amount | £7,922,983 (GBP) |
| Funding ID | ES/P010938/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2017 |
| End | 12/2021 |
| Description | Tools to inform Chinese Communities' Action in Response to Dementia |
| Amount | HK$4,295,300 (HKD) |
| Organisation | Research Grants Council Hong Kong |
| Sector | Public |
| Country | China |
| Start | 03/2019 |
| End | 02/2022 |
| Description | World Alzheimer's Report 2016 |
| Amount | £24,815 (GBP) |
| Organisation | Alzheimer's Disease International |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 11/2016 |
| Title | Population Ageing and Care Simulation Model (PACSim) |
| Description | Dynamic microsimulation model of disease and dependency with ageing |
| Type Of Material | Model of mechanisms or symptoms - human |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | Two publications with high media attention. |
| URL | https://docs.wixstatic.com/ugd/e1a359_b0ae66e642ac4263b67c629c9eb22543.pdf?index=true |
| Title | Population, Ageing and Care Simulation (PACSim) |
| Description | The MODEM project has developed a new dynamic micro-simulation model called the Population, Ageing and Care Simulation (PACSim). Its aim is to model (a) the health and associated care needs of the English population over the coming decades; and (b) the impact of interventions for risk factor reduction, disease prevention and treatments that slow down progression to disease and disability. The model builds on two similar ones: firstly a previous epidemiological macro-simulation model, SIMPOP, which linked multiple diseases to disability to project future disability burden in people aged 65 years and over; and secondly DynoptaSim, an Australian dynamic micro-simulation model of the health and functional status of the Australian population aged 45 years and over. The base population for PACSim is individuals aged 35 years and over from three longitudinal studies: the new CFAS cohort; the English Longitudinal Study of Ageing (ELSA); and Understanding Society (waves 1 and 2). Baseline characteristics generated on individuals include: sociodemographic (age, sex, living arrangements/marital status, education, occupation, retirement); lifestyle behaviours (smoking, physical activity, BMI, social engagement); diseases/geriatric conditions (dementia/cognitive impairment, CHD, stroke, hypertension, diabetes, arthritis, cancer, respiratory disease, hearing impairment, visual impairment). The outcome variable is disability as measured by the interval of need scale, and categorising people on the basis of activities of daily living and cognitive function on the intensity of care required. The technical report gives further detail about the construction of PACSim. |
| Type Of Material | Model of mechanisms or symptoms - human |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | The PACSim tool is being used within the MODEM study. Outputs on intensity of care by age, gender and year in the presence of dementia will form inputs to the MODEM macro-simulation model. Scenarios for risk factor reduction and treatment strategies will be informed by reviews on costs, effectiveness and cost-effectiveness of interventions to prevent or delay dementia onset, being undertaken in other parts of the project (e.g. exercise, social engagement). Outputs will also include life expectancies with different care needs (to feed into the care pathways model in WP10) and years spent with and without individual diseases and multimorbid to allow exploration of the likelihood of compression or expansion of morbidity/disability given different health scenarios. |
| URL | http://www.modem-dementia.org.uk/wp4 |
| Title | Dementia Evidence Toolkit |
| Description | The Dementia Evidence Toolkit is for commissioners, care providers, people working in health and social care and people with dementia and their families. The toolkit has two resources: • A searchable database with information on over 1433 research studies on interventions for people living with dementia and their carers • Summaries of the research findings for some of the main care and treatment interventions. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | There has been growing use of the Toolkit, and the summaries have been used by third sector organisations and others. The Toolkit is relatively new and we expect the impact to increase over time. |
| URL | https://toolkit.modem-dementia.org.uk/ |
| Description | - Presentation at a workshop of the NHS London Strategic Clinical Networks "Supporting people with dementia: Life after diagnosis". London, July 2015. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | I was invited to speak about the MODEM project to a workshop of the NHS London Strategic Clinical Network for dementia and other neurological conditions. There was a lot of interest in the potential that some of the intermediate outputs generated by MODEM will have for local commissioners in the NHS and local authorities. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.londonscn.nhs.uk/wp-content/uploads/2015/07/dem-life-after-diagnosis-event-presentations-... |
| Description | - Presentation at the Westminster Health Forum Keynote Seminar: Policy priorities for dementia care: funding, integration and research. London, January 2016. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This seminar brought together a mixture of policy makers, practitioners, carers, members of the public and third sector organisations. I gave a presentation and took part in a discussion afterwards. I made useful contacts with local commissioners and a carer. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.westminsterforumprojects.co.uk/forums/event.php?eid=1078 |
| Description | 54th Annual Congress of the Quebec Association of Psychiatrists, 28 May 2021, Economics: why, how, and with what impacts? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Canadian psychiatrists |
| Year(s) Of Engagement Activity | 2021 |
| Description | A Comas-Herrera was invited to speak at the Regional Policy Dialogue: Pillars of Long-term Care organized by the Inter-American Development Bank in Washington DC (US) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Regional Policy Dialogue is an Inter-American Development Bank initiative that seeks to facilitate dialogue between Ministers and Deputy Ministers to exchange experiences and ideas on policy opportunities that contribute to the development agendas of Latin American and Caribbean countries. This event featured the participation of worldwide experts and IDB specialists to learn about and debate four key issues in the design and implementation of a long-term care system: Who to provide long-term care services for? What services to provide? How to ensure the quality of long-term care? How to finance the system? In addition, the event offered the opportunity to discuss the role of technology n long-term care, among other topics. Adelina Comas-Herrera was invited to present on the implications of dementia for long-term care systems, introduced the STRiDE project's approach and, with Mariana Lopez-Ortega (from STRiDE Mexico) and Ricardo Pérez-Cuevas (a Senior Health Specialist from the IDB who is in the STRiDE Jamaica National Advisory Group held a panel session discussing experiences of carrying out STRiDE in Mexico and Jamaica and the value of this approach (this is available on video). Adelina's presentation also included material from the MODEM project. Following this presentation, Adelina Comas-Herrera has been in discussions about the possibilities to carrying out STRiDE in other countries in the American continent, including Argentina, Peru and Cuba. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://vimeo.com/380828669 |
| Description | A presentation in which I covered results from the MODEM project was reported in detail by the British Medical Journal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation I gave was covered in detail by an article in the BMJ, which means that it reached many more people than would have been in the audience. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.bmj.com/content/352/bmj.i370.full |
| Description | A. Comas-Herrera was invited as a panellist at the National Academies of Science led The Global Roadmap for Healthy Longevity workshop held in Singapore |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The Global Roadmap for Healthy Longevity (led by the US National Academies of Science) is an international, independent, and multidisciplinary initiative that will develop a comprehensive report assessing the challenges presented by population aging. Through evidence-based recommendations, the report will demonstrate how these challenges can be translated into opportunities for societies globally. The report will be informed by workstreams in three domains: Social, Behavioral, and Environmental Enablers Health Care Systems and Public Health Science and Technology A. Comas-Herrera was a panellist in one of the sessions of the Health Care Systems and Public Health workshop held in Singapore, she was asked to speak about Long-Term Care financing and the role of unpaid care, she built on her work in the MODEM and STRiDE projects. Following her presentation she was asked by JOHN EU-LI WONG, who is drafting the report, to submit further information and papers. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://nam.edu/wp-content/uploads/2020/01/NAM-Health-Care-Public-Health-Roadmap-Workshop-Agenda_FIN... |
| Description | Alzheimer's Disease International Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | conference |
| Year(s) Of Engagement Activity | 2020 |
| Description | Alzheimer's Research UK event, 18 January 2022, Potential costs and cost-effectiveness of treatment regimens for agitation. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation of ongoing work |
| Year(s) Of Engagement Activity | 2022 |
| Description | Argentinian Psychiatric Association annual conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | conference |
| Year(s) Of Engagement Activity | 2020 |
| Description | Challenges of evaluating effectiveness in dementia research. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Challenges of evaluating effectiveness in dementia research: discussed outcomes and costs. Audience of researchers and policy people, Kuopio, Finland |
| Year(s) Of Engagement Activity | 2019 |
| Description | Chatathon on dementia (online; linked to NIHR). |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | podcast |
| Year(s) Of Engagement Activity | 2020 |
| Description | Consultation meeting with the Alzheimer's Society |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Adelina Comas-Herrera (researcher) and Fergus Bisset (website designer) met representatives of different departments of the Alzheimer's Society to demonstrate an early version of the Dementia Evidence Toolkit website and to obtain feedback on various questions to make sure that the final version of the toolkit is as useful as possible. The Alzheimer's Society representatives also gave very useful suggestions about how the toolkit complements their own digital library and offered to include a link to the Toolkit website on their digital library. There was also an interesting discussion about things we could include in a potential phase two of the toolkit sub-project. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Consultation with Claudia Mahler, United Nations, on deinstitutionalisation, including people living with dementia. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | Consultation with NIHR/DHSC on dementia research priorities. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | Contribution as an external expert to the World Health Organisation "Workshop to support the implementation of the WHO global action plan on the public health response to dementia 2017-2025", Jakarta 6 and 7 November 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This was a workshop organised by the World Health Organisation to "support the implementation of the WHO global action plan on the public health response to dementia 2017-2025". During this workshop I acted as an external expert, facilitating discussions of ways forward in dementia policy development with groups of policy-makers and NGO representatives from various countries. The discussion with the representative of the ministry of health of India was particularly encouraging as, by considering the option of adding dementia to existing National Plans on NCDs and mental health rather than having to develop a whole new dementia plan, he could see a potential avenue to contribute to the development of national policy in dementia that he had not considered before. India is one of the countries in the STRiDE project and we plan to continue that dialogue as part of the project's work. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Discussion meeting on dementia of the Parliamentary and Scientific Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | I was a member of a discussion on dementia on 9 December 2015. Speakers included Professor Alistair Burns (University of Manchester) and Dr Simon Ridley (Alzheimer's Research UK). This was an invitation from the Committee and raised further interest in dementia care and needs. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.ipem.ac.uk/Portals/0/Documents/Publications/Science%20in%20Parliament/sip%20SPRING%202015... |
| Description | ESRC evidence briefing on multi-morbidity |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ESRC selected our paper on projections of multi-morbidity as an evidence briefing. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://esrc.ukri.org/news-events-and-publications/evidence-briefings/multiple-chronic-conditions-an... |
| Description | Economics and mental health: challenges in moving from evidence to recommendations. Invited presentation to the Australian Productivity Commission, Melbourne, 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Raised awareness of new economics evidence and challenges of using such evidence |
| Year(s) Of Engagement Activity | 2019 |
| Description | Essen, Mental Health Economics Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Conference |
| Year(s) Of Engagement Activity | 2020 |
| Description | Festival of Evidence keynote |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Keynote lecture on "Whole systems thinking for complexity and frailty - challenges and guidance" to a group of academics health and care managers engaged in using simulation modelling to solve problems in complex systems. I have been contacted by two organisations since who are interested in my microsimulation model. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://cumberland-initiative.org/2014/07/01/building-investment-in-healthcare-modelling/ |
| Description | Fund-raising event on behalf of the Alzheimer's Society at Deloitte on dementia and the economy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation of our work at LSE on the economic impact of dementia and the economic arguments for better prevention efforts and treatment. Deloitte is a corporate supporter of the Alzheimer's Society. My presentation was requested by the Society to illustrate the sort of work that they support. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Future costs and outcomes (for dementia); and projections of how to change them. OECD event, Paris 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Future costs and outcomes; and projections of how to change them. This meeting was to share research methods and findings with a group from a range of OECD countries |
| Year(s) Of Engagement Activity | 2019 |
| Description | Getting the mental health of older people into national policy agenda. Hong Kong JoyAge Symposium; and follow-on 4-day course on mental health economics at The University of Hong Kong |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation and course to teach new skills, share new evidence, extend impact range |
| Year(s) Of Engagement Activity | 2019 |
| Description | Global challenges, World Dementia Council event, Tokyo, 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation of MODEM, STRiDE and other work to raise awareness of economic issues and policy challenges |
| Year(s) Of Engagement Activity | 2019 |
| Description | HLE past present and future |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Invited seminar on Healthy Life Expectancy research to Department for Work and Pensions analysts. Good discussion and with smaller group after seminar around working life expectancy |
| Year(s) Of Engagement Activity | 2017 |
| Description | Health Technology Wales and Social Care Wales Round Table (dementia carers). |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Wales |
| Year(s) Of Engagement Activity | 2020 |
| Description | Health and Longevity - can we have both |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Keynote at Australian Centre of Excellence in Population Ageing Research (CEPAR) LONGEVITY WORKSHOP HOSTED BY PWC ORGANISED BY CEPAR IN CONJUNCTION WITH THE INTERNATIONAL ACTUARIAL ASSOCIATION MORTALITY WORKING GROUP |
| Year(s) Of Engagement Activity | 2017 |
| Description | Healthy Life Expectancy for actuaries |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Invited presentation to Institute and Faculty of Actuaries Health and Care Board. Resulted in further presentation to the Research Committee of this Board on Health and Care Research. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Healthy ageing with arthritis - is it possible? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Invited seminar to Arthritis Research UK staff. Sparked much discussion and provided background information for the policy report http://www.arthritisresearchuk.org/policy-and-public-affairs/policy-reports/multimorbidity.aspx (though couldn't be cited as paper not published at that point). |
| Year(s) Of Engagement Activity | 2017 |
| Description | How men experience the provision of dementia care: Presentation at ILPN 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation by Klara Lorenz on How men experience the provision of dementia care as part of an organised session at the International Long-term Care Policy Network's 2016 Conference in London on Tuesday 6 September 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | IGPP, UEL, May 2021, Responding to the economic challenges of dementia. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Shared MODEM and (a little) STRiDE material |
| Year(s) Of Engagement Activity | 2021 |
| Description | International Health Economics Association Special Interest Group for Mental Economics, 27 May 2021, Mental health economics: reflections, promises, challenges. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Ranging over various projects |
| Year(s) Of Engagement Activity | 2021 |
| Description | Interview for national news |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Interview on the Daily Politics show on 25th January 2018 around our paper on projections of multi-morbidity |
| Year(s) Of Engagement Activity | 2018 |
| Description | Interview for national news |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Two interviews on 31 August 2018 around Lancet paper on forecasting dependency - one for Radio 4 Today and another for BBC News |
| Year(s) Of Engagement Activity | 2018 |
| Description | Interview on cognitive change |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interviewed by Head of Health Intelligence, NHS Solutions for Public Health |
| Year(s) Of Engagement Activity | 2018 |
| Description | Introductory meeting of the DAVOS Alzheimer's Collaborative Learning Laboratory, 22 July 2021 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | panel which included STRiDE and MODEM |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invitation to take part in a workshop within the mhGAP forum 2018 organised by the World Health Organisation |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Adelina Comas-Herrera was invited to attend the mhGAP 2018 forum by the World Health Organisation, specifically to take part in a workshop to develop the WHO's work on dementia care pathways. She was asked to share work done as part of the MODEM project Dementia Care Pathway in England and also discussed plans to map the dementia care pathways in 7 developing countries, as part of the STRiDE project. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.who.int/mental_health/mhgap/forum_2018/en/ |
| Description | Invited lecture, University of Leuven, on mental illness causes, consequences and policy responses. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Lecture to students on mental health policy, followed by discussion |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited plenary presentation to the World Psychiatric Association meeting, Melbourne, Australia, on investing in mental health reform |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Plenary talk to highlight the economic arguments for investing in mental health reform. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited plenary presentation, Alzheimer's Society Annual Conference, London, on breaking down the cost of dementia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation of results to date from MODEM at this high profile annual conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation (workshop) to the National Council for Social Services, Singapore |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Presentation and discussion of how economic evidence can help to make the case for better community services for people with social care needs. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation at Alzheimer's Disease International conference, Jakarta, Indonesia, on using economic evidence to improve dementia care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Presentation of how we have been building economic evidence to support improved policy and practice for people with dementia and their carers in the UK, feeding into a wider international debate. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation at Health Technology Assessment International Conference, Rome, on the state of Alzheimer's disease in Europe and the need for innovation |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Introduction to session on potential disease-modifying treatments for dementia, emphasising the economic issues. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation at Royal Society of Medicine on the future of health and social care in ageing societies |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation of some of my research on ageing, dementia and mental illness, to inform discussion of policy and practice developments |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation at Trinity College, Dublin, on economic case for better policy, treatment and care for dementia. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Seminar for Fellows (from across the world) on the Global Brain Health Institute Programme, presenting on our dementia research. Also an informal mentoring session with a number of those Fellows, plus some one-to-one meetings |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation at the Alzheimer's Research UK Annual Policy Conference on economic modelling of disease-modifying treatments for Alzheimer's disease |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Plenary presentation at ARUK policy conference, summarising results from economic modelling of disease-modifying treatments. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation at the Alzheimer's Society Annual Research Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation on what is best practice in dementia care and can we afford it at the Alzheimer's Society Annual Research Conference in Bristol on 1 July 2016. The talk led to questions and discussions. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.alzheimers.org.uk/info/20197/past_events/217/annual_research_conference_2016 |
| Description | Invited presentation conference organised by Colombia University, New York, on healthier longer lives, New York City, focusing on dementia economic evidence |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | International conference on mental and physical health. Session chair and presentation on dementia-related activities |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation for the Westminster Health Forum |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Invited presentation on economic issues as part of a Westminster Health Forum event on 'Next steps for improving dementia care: funding, reducing variations and implementing the 2020 Challenge', held on 30 January 2017, including follow-on discussion. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to Alzheimer's Research UK Industry Group, London, on economic modelling of disease-modifying therapies in Alzheimer's disease |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Summary of findings from ARUK-funded study to look at the economic case for disease-modifying treatments for dementia |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation to NHS Confederation Mental Health Network - invited presentation on the economics of mental health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ongoing links with various NHS managers on evidence |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to NHS Confederation Mental Health Network Annual Conference on the economic case for promotion and prevention |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to NHS managers, clinicians and some researchers on the economic case for promotion of wellbeing and prevention of mental illness. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation to NHS England on using economic evidence to support policy discussion and practice development in mental health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Summary of research undertaken at LSE on the economic case for better identification of mental health risks and better treatment of disorders. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to NHS Improvement on economics of mental health interventions |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to civil servants in NHS Improvement on economics of mental health |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to Royal College of Physicians Retirement Society on economic impacts of an ageing population |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of some of my own work on ageing, social care and dementia |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to Second Annual Global Brain Health Initiative Meeting, Barcelona |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of some of my own work on dementia and mental illness, to inform discussion of policy and practice developments |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to University College London Health Economics Symposium, London, on economic continuities across the life course |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Summary of research conducted at LSE on mental health and particularly economics, emphasising inequalities across the life course. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation to a Westminster Health Forum event on key issues for the social care Green Paper |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Public-facing event, focusing on challenges in the adult social care sector that might then have a bearing on the Green Paper |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation to a Westminster Health Forum event, London, on key issues for the long-term funding of adult social care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation to a mixed audience on issues facing the adult social care sector, particularly in relation to its funding. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Invited presentation to the Admiral Nurse Forum, Nottingham, on why we need economic evidence and how we use it |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of LSE research on economic issues relating to dementia and its treatment, particularly for an audience of frontline practitioners. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation to the LSE Global Health Initiative on STRiDE project |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Description of the approach and main findings (to date) from MODEM, and then an introduction to STRiDE. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation, Department of Health and Social Care, on MODEM project findings |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation at the request of DHSC officials to summarise the results to date (mid-project) from MODEM |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation, Leicester University, on social care research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to a mixed academic and service audience on adult social care research, with examples from completed LSE studies |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited presentation, Research School of Population Health, Australian National University, Canberra, on mental health and dementia: how economic evidence can make a difference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | University seminar with non-academic as well as academic audience; presentation of LSE economics research on mental health and dementia. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Invited presentation, University of Northampton, on measuring economic value and effectiveness |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation at a meeting to discuss Northamptonshire's possible investment in a dementia community, looking at the economic arguments. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited seminar at City University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation on technology, older people and social inclusion at City University in London on 12 May 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited speaker at the JPND Workshop on Public Health in Neurodegenerative Disease Paris 21st June 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | EU Joint Programme - Neurodegenerative Disease Research (JPND) workshop that explored the development of public health in ND research in order to provide a view of the opportunities and challenges in the near and longer term. The workshop also examined the barriers and solutions involved in giving greater priority to public health research, particularly in areas such as prevention and risk-reduction which have recently become more prominent. This report from the workshop is being used by the JPND Scientific Advisory Board (SAB) in preparing the 2018 edition of the JPND Strategic Research and Innovation Agenda (SRIA), which will become a framework for future JPND investment in ND research. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited to deliver a lecture at Dementia Masterclass organised by the Centre for Economic and Social Research on Dementia at NUI Galway, supported by the Global Brain Health Institute at Trinity College Dublin and the University of California at San Francisco. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Dementia Masterclass organised by the Centre for Economic and Social Research on Dementia at NUI Galway, supported by the Global Brain Health Institute at Trinity College Dublin and the University of California at San Francisco.The objectives of the Masterclass are: to build research capacity in dementia among early and mid-career researchers; to deepen understanding of key dementia concepts; and to equip researchers with skills and expertise in conducting cutting-edge and high quality research in dementia. The Masterclass will also provide early-career researchers an opportunity to discuss practical and methodological issues in social and economic research in dementia with leading world experts in dementia. This Masterclass has generated at least five follow up discussions about potential collaborations, particularly with the Global Brain Health Institute. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://cesrd.ie/wp-content/uploads/2017/11/Dementia-Masterclass-Programme-Final.pdf |
| Description | Irish Institute of Actuaries |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Invited lecture entitled "The Age of Uncertainty - What do we really know about growing old?" to the Irish Institute of Actuaries. One of the group had heard my IFoA Autumn lecture 2014 on this topic and wished for the Irish Actuaries to hear it. The talk generated discussion after. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Joys and challenges of a rapidly ageing population: how can we respond? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Conference on ageing in cities around the world. Seoul |
| Year(s) Of Engagement Activity | 2019 |
| Description | Keynote presentation at the Alzheimer Disease International Asia-Pacific conference in Jakarta, Indonesia, November 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | I was invited to deliver a keynote at the Alzheimer Disease International Asia-Pacific conference in Jakarta, Indonesia. My presentation was entitled: "The costs of dementia: preparing for the future". This followed up with many conversations about potential research collaborations. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.alzi.or.id/conference |
| Description | LSE Government Society: presentation on mental health policy. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Debate organised by LSE Government Society (students) on mental health policy. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Launch event for the Dementia Evidence Toolkit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The Dementia Evidence Toolkit was launched on 19 July 2016 at the London School of Economics and Political Science. Join us on 19 July 2016 at the London School of Economics and Political Science. The launch included talks from the project team, a person living with dementia (Caroline Young), a carer (Margaret Dangoor) and a commissioner (Janice Richards), and was chaired by Jeremy Hughes, Chief Executive of the Alzheimer's Society. Fifty-eight delegates attending the launch event from a range of backgrounds. Feedback from delegates emphasised the usefulness of the resource. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://dementiaevidencetoolkit.eventbrite.co.uk |
| Description | MODEM Advisory Group Meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | The MODEM Advisory Group consists of a range of key stakeholders in the dementia care area. They meet twice yearly to advise on the study and to discuss emerging findings. The group currently comprises 24 members. |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | MODEM Findings Launch Event - November 2018 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A launch event took place in November 2018 to share findings from the MODEM project. The event took place in London and had just under 100 people attending. The programme is available on our website. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://6c7eac2c-e367-499d-a85f-e8877355dcc0.filesusr.com/ugd/442c21_d68bea8e11df4d0f92b64f4979d3ffa... |
| Description | MODEM Reference Group of Users and Carers Meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The MODEM Reference Group of Users and Carers meets regularly to inform all aspects of the study. |
| Year(s) Of Engagement Activity | 2014,2015,2016 |
| Description | MODEM: Scaling up evidence-based interventions for people with dementia and carers. ENMESH conference Lisbon 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Explanation of MODEM study and how we are looking to feed evidence into policy discussions |
| Year(s) Of Engagement Activity | 2019 |
| Description | Media response to late life dependency paper |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Various media activities during week of 23 Jan when paper was published online including: appearance on Daily Politics Show (26/01/18), article on front page of The Times (24/01/18) and another piece on 25/01/18. Picked up by all major nationals and many local newspapers: 24-01-2018 GET THE GLOSS Just 15% of Brits think they're unhealthy, but experts say otherwise 24-01-2018 GET THE GLOSS Just 15 % of Brits think they're unhealthy, but experts say otherwise 24-01-2018 Newcastle University Number of older people with four or more diseases will double by 2035 24-01-2018 Droitwich Spa Adverser (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Crewe Guardian Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Smallholder (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The heraldscotland Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Chichester Observer (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 AOL Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Swindon Adverser (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Western Telegraph (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Witney Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Southend Standard Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Wilts and Gloucestershire Standard Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 News Shopper (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Somerset County Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Yorkshire Evening Post (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Middlewich Guardian (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Gazee & Herald Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 South Wales Argus (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Bucks Free Press (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Barry & District News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Halstead Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Redhill & Reigate Life Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Bridgwater Mercury (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Belper News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Redditch & Alcester Adverser Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Darlington & Stockton Times (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Bucks Herald (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Wirral Globe (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Carluke Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Longridge & Ribble Valley News and Adverser Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Worthing Herald (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Lancaster Guardian (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Wetherby News (Circulaon : 2666) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Northamptonshire Telegraph (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Burnley Express (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Shields Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Pendle Today Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Lancashire Post (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Pontefract and Castleford Express Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Rugby Adverser (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Scarborough News Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Dudley News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 AdverserRview Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Mid Sussex Times (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Hasngs & St Leonards Observer (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Sussex Express (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Rutland Times Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Leigh Observer (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Braintree & Witham Times (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 TODMORDEN NEWS Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Mireld Reporter Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Buteman (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Diss Express (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Shule Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Bedford Today Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Hartlepool Mail (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Halifax Courier (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 West Sussex Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Louth Leader (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Wiltshire Times Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Spalding Today Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Tring Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Eastbourne Herald Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Donside Piper & Herald Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Dunstable Today Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Thorne and District Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Midhurst & Petworth Observer Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Lilehampton Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Thame Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 News Leer Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Brighton & Hove Independent (Circulaon : 12770) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Evesham Journal (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 hemeltoday Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Melton Times Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 WIGANtoday.net Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Leyland Guardian (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Bury Free Press Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Northern Echo (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Ripley & Heanor News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Batley & Birstall News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 BallymenaTimes Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Borehamwood & Elstree Times (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Reord Guardian Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Fenland Cizen (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Warwick Courier (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 LutonToday Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Local Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Buxton Adverser (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Ripon Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Chad Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Northampton Chronicle and Echo (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Chorley Guardian (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Berwick Adverser (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Blyth and Wansbeck Today Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Fleetwood Weekly News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Whitby Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Doncaster Free Press (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Matlock Mercury (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Wharfedale & Aireborough Observer Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Haverhill Echo (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Bexhill-on-Sea Observer (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Bridlington Free Press (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Lynn News Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Filey & Hunmanby Mercury Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Visitor - Morecambe Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The News (Portsmouth) (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Spenborough Guardian (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Northumberland Gazee (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Peterborough Telegraph (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Shoreham Herald (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Dispatch (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 BERKHAMSTED & TRING Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Daventry Express (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The North Yorkshire News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 South Yorkshire Times (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Biggleswade Today Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Horncastle News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 BANBURY Guardian Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 West Sussex County Times Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 The Courier Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Kenilworth Weekly News (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Suolk Free Press (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Buchan Observer (Circulaon : 5941) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 ELLON TIMES Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Gazee Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Leighton Buzzard Observer (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Crawley Observer (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 theguardian.com Number of Britons living with chronic illnesses set to rise 24-01-2018 Border Telegraph (Circulaon : 2777) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Echo Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 BanburyCake Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 DorsetECHO Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Craven Herald and Pioneer Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 DAILY ECHO Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Surrey Comet (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Warrington Guardian (Online) Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 Tewkesbury Admag Two million Britons will be living with four or more chronic illnesses by 2035 24-01-2018 News & Star Two mil |
| Year(s) Of Engagement Activity | 2018 |
| Description | Membership of a taskforce convened by the Alzheimers Society, to develop research goals in dementia prevention, diagnosis, intervention, and care in the United Kingdom to 2025. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Alzheimer's Society facilitated a taskforce of leading UK clinicians and researchers in dementia, UK funders of dementia research, people with dementia, and carer representatives to develop, using iterative consensus methodology, goals and recommendations to advance dementia research. We developed recommendations to advance research on prevention, diagnosis, intervention, and care in dementia, focusing on real-world outcomes. The roadmap is aimed at researchers who can respond through development of their own research proposals, and for funders and research policy stakeholders who can influence the availability and direction of research funding and the research environment, including strengthening and developing the United Kingdom's skill base with new capacity building. The launch of the roadmap was accompanied by an article in the Guardian and one on the Huffington post and a social media campaign. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.alzheimers.org.uk/info/20021/for_researchers/1274/dementia_research_roadmap_for_preventi... |
| Description | Microsimulation: population health and ageing (Festival of Evidence) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Keynote as part of a day on healthcare simulation models in a two day Festival of Evidence meeting. Reported our microsimulation model which is much more detailed than others evident at the day. Sparked much discussion. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://cumberland-initiative.org/virtual-festival-of-evidence/virtual-festival-of-evidence-dr-carol-... |
| Description | Multi-morbidity modelling including stroke and dementia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited weminar to Bristol, North Somerset and South Gloucestershire Sustainability and Transformation Partnership to transform stroke prevention and care |
| Year(s) Of Engagement Activity | 2017 |
| Description | NIHR RDS South Central, 26 May 2021, event on 'Supporting social care research in south central', Adult social care research: past, present and post-COVID future. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | presentation on social care research |
| Year(s) Of Engagement Activity | 2021 |
| Description | NIHR, ESRC and social care. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | UK dementia care research summit, Leeds |
| Year(s) Of Engagement Activity | 2020 |
| Description | National Audit Office on adult social care consultation. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | Oral evidence to two Parliamentary Select Committees (joint inquiry) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | I was asked to present oral evidence to an inquiry conducted jointly by House of Commons Select Committees (Health and Social Care; and Housing, Communities & Local Government). Their inquiry was focused on the organisation and particularly funding of social care. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.hansardsociety.org.uk/blog/how-a-citizens-assembly-helped-select-committees-find-social-... |
| Description | Oxford University Institute of Ageing, 24 February 2022, Responding to the challenges of dementia: how economics evidence might help. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Presentation of research on dementia |
| Year(s) Of Engagement Activity | 2022 |
| Description | PHE workshop on productive and healthy ageing and dementia |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited talk on the implications of population ageing to form a backdrop to the workshop which aimed to: Support the identification of key priority areas and risk factors for preventative action; Identify key gaps in the evidence base and research opportunities, informing the future work of the Academic Sub Group |
| Year(s) Of Engagement Activity | 2019 |
| Description | Participation as an expert in the "Regional Meeting on Ageing and Health in the Western Pacific, Manila, Philippines, 10-12 July 2017" |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Was invited to take part, as temporary advisor to the WHO Western Pacific Region at their Regional Meeting on Ageing and Health in the Western Pacific, Manila, Philippines, 10-12 July 2017. The aims of the meeting were: to review the implementation of the Regional Framework for Action on Ageing and Health in the Western Pacific (2014-2019), including successes and lessons learnt; to exchange ideas, plans and approaches to accelerate action in the implementation of the Regional Framework and in the context of the WHO Global Strategy and Action Plan on Ageing and Health (2016-2020); and to discuss and agree on next steps on ageing and health for the Western Pacific Region, in the context of UHC and the SDGs. I gave a presentation on financing LTC, which included slides from the MODEM project to illustrate the economic costs of family care and took part in meetings with countries. In particular I supported a team from the government of Camdodia in considering their next steps in terms of long-term care policy development. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://iris.wpro.who.int/handle/10665.1/13686 |
| Description | Population Health Workshop on Dementia Prevalence and Monetary Costs |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Adelina Comas joined a Public Health Workshop in Canada between 8 and 9 May 2015 to discuss dementia prevalence and costs in Canada. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Poster presentation at Alzheimer's Association International Conference, Toronto, 24-28 July 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Poster presentation on the MODEM study at the Alzheimer's Association International Conference in Toronto to engage interest in the study. This lead to some questions and discussion with conference delegates. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation - The evidence and economic case for post diagnostic support for people with dementia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by Raphael Wittenberg to the Strategic Clinical Network Dementia and Neurological Conditions meeting on the evidence and economic case for post diagnostic support for people with dementia. The meeting took place on 27 January 2015 in London. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at IACG and SSCR workshop on carers in research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation on economic considerations as part of a workshop organised by the NIHR School for Social Care Research and the Independent Advisory Group on Carers held on 21 February entitled Including family carers: adding value and impact to research. The talk mentioned the MODEM study, particularly Klara Lorenz's attached PhD. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation at Keio University Medical School, Japan |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | I presented the MODEM project to a group of academics and postgraduate students at Keio University Medical School who are also working on dementia research and wanted to learn about the methods and approach used in MODEM. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at event organised by The Global CEO Initiative on Alzheimer's Disease, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Martin Knapp described MODEM as part of a presentation on using technology in dementia care. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at launch of BADIN, Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | David McDaid spoke about MODEM as part of a presentation on ageing and disability for the launch of the Bridging Aging and Disability International Network (BADIN) at the University of Toronto, Canada, in January 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at the 2017 IAGG World congress of geriatrics and gerontology conference in San Francisco as part of an organised session about the MODEM project. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Organised session providing an overview of various parts of the MODEM project "Comprehensive approach to modelling outcome and cost impacts of interventions for dementia", various international researchers (including from Hong Kong) approached us to discuss aspects of the research and the potential for future collaboration. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.geron.org/meetings-events/iagg-2017-world-congress-of-gerontology-and-geriatrics |
| Description | Presentation at the IV Workshop on the evaluation of public policies for sustainable Long-Term Care in Spain, ILPN, Albacete, June 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | I gave a presentation on "using economic evidence to model an improved dementia care pathway" at the IV Workshop on the evaluation of public policies for sustainable Long-Term Care in Spain, ILPN, Albacete, June 2017 Following that presentation, a Spanish lecturer has requested to come to my research unit as a visiting academic to learn more about the MODEM project. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.ub.edu/rfa/docs/albacete/D1-Adelinacomas.pdf |
| Description | Presentation at the UK-Korea workshop: Optimising the Impacts of National Dementia Strategies. London, February 2016. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A delegation of government officials from the Korean Ministry of Health, the National Institute of Dementia and the National Long-Term Care Insurance Fund visited London to discuss their plans for their new National Dementia Strategy and to discuss recent policy developments in England. I gave a presentation on economic aspects of the dementia care system and discussed the MODEM project. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at the annual conference of the Global Brain Health Institute (GBHI) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at the Global Brain Health Institute (GBHI)'s annual conference, 19-22 April 2017 in Barcelona, as part of a conference to discuss how best to respond to the growing global plight of dementia. The inter-professional conference featured panel discussions, poster presentations, and breakout sessions on science, policy, and narrative, in addition to artistic performances. The meeting drew more than 175 attendees from over 15 countries across Europe, North America, and South America, including 18 scholarship awardees primarily from the Mediterranean and Latin America. Further links are being explored with GBHI. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.atlanticfellows.org/news/2017/6/21/nternational-meeting-on-dementia-inspires-action-and-... |
| Description | Presentation for the NHS Confederation Mental Health Network |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An invited presentation on the economics of mental health to the NHS Confederation's Mental Health Network annual conference and exhibition on 16 March 2017, including leading a session on health economics. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.nhsconfed.org/events/2017/03/mhn-ace-2017 |
| Description | Presentation for the NICE Collaborating Centre for Mental Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation for the NICE Collaborating Centre for Mental Health on 19 July 2016 on the MODEM Dementia Evidence Toolkit. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation of the MODEM project Dementia Evidence Toolkit to the East Kent Forget Me Nots |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Adelina Comas-Herrera gave a presentation of the MODEM Dementia Evidence Toolkit to the East Kent Forget Me Nots, a group of about 20 people with dementia who meet monthly in Canterbury. The meeting was also attended by postgraduate psychology students and members of staff of Kent and Medway NHS and Social Care Partnership Trust. The members of the group asked many questions about the Toolkit and were very interested in being able to use it when it is publicly available. Members asked if the team could think of ways of making the evidence summaries available to people without access to the internet. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://dementiavoices.org.uk/group/the-forget-me-nots-kent/ |
| Description | Presentation on cognitive impairment to AXA actuaries |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Short presentation as part of roundtable on long term care hosted by AXA Global predominantly for their actuaries and then part of a panel discussion. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://gallery.axa-research.org/en/news/long-term-care.htm |
| Description | Presentation on comparisons of unpaid care estimation methods at ILPN 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation of methods used to estimate hours of unpaid care and preliminary results of data collected as part of MODEM at the International Long-term Care Policy Network conference on 11th September held in Vienna. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation on technology in dementia care and support at ILPN 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at the International Long-term Care Policy Network's conference in September 2016 on barriers to wider use of technology in dementia care and support. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation to Israel Ministry of Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Raphael Wittenberg presented on the MODEM project at the Israel Ministry of Health on 21 June 2015 |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Public Health England's Dementia Board |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | As part of a brief talk to Public Health England's Dementia Board in September 2016, Raphael Wittenberg (LSE) presented on the MODEM study. This led to discussion and questions. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation to Yorkshire and Humberside Strategic Clinical Networks Regional Leads meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by Raphael Wittenberg to Yorkshire and Humberside to Strategic Clinical Networks Regional Leads meeting on the evidence and economic case for post diagnostic support for people with dementia. The meeting took place on 12 May 2015 in Wakefield |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to members of the Alzheimer's Society-funded PRiDEM project on 'Mapping and modelling the Dementia Care Pathway in England'. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation to members of the PRiDEM project on 'Mapping and modelling the Dementia Care Pathway in England' by Adelina Comas-Herrera and Klara Lorenz on 25 November 2019 |
| Year(s) Of Engagement Activity | 2019 |
| Description | Presentations at an event organised by the MODEM project, LSE, on scaling up evidence-based interventions to 2040 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Launch event for the findings from MODEM ranging over all components of the project |
| Year(s) Of Engagement Activity | 2018 |
| Description | Press release "Social isolation predicts changes in memory" |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | An LSE press release issued to cover findings published in the Journals of Gerontology which found that a person's level or change of social isolation is associated with increases in memory decline over time, rather than poorer memory increasing social isolation in later life which was covered by national and local media. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.lse.ac.uk/cpec/news/social-isolation-predicts-changes-in-memory |
| Description | Press release on the number of people living with dementia |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | An LSE press release was issued on findings published in Age and Aging in 2019 which set out that the number of people living with dementia to more than double by 2040. The paper was led by Raphael Wittenberg. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.lse.ac.uk/cpec/news/number-of-people-living-with-dementia-to-more-than-double-by-2040 |
| Description | Press release to launch the Dementia Evidence Toolkit |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The Dementia Evidence Toolkit was launched in summer 2016. A press release was issued in collaboration with the ESRC and NIHR on 3 August 2016. The media release was picked up and linked to by a number of relevant organisations (such as the Alzheimer's Society). This increased traffic to the Toolkit. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.lse.ac.uk/website-archive/newsAndMedia/news/archives/2016/08/Dementia-toolkit.aspx |
| Description | Press release: "Dementia care costs to nearly treble in next two decades" |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | An LSE press release describing results from a project commissioned by the Alzheimer's Society utilizing MODEM data. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.lse.ac.uk/News/Latest-news-from-LSE/2019/K-November-2019/Dementia-care |
| Description | Reducing dependency in old age |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Keynote "Are we being successful in reducing dependency in old age?" at the University of Lisbon's Institute of Social Sciences Annual Conference, Lisbon, Portugal, June 2018. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Seminar at Atma Jaya Catholic University School of Medicine in Jakarta, Indonesia, 8th November 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | I was invited to give a seminar on "The costs of dementia: preparing for the future" to 40 staff and students at the School of Medicine at Atma Jaya Catholic University, in Jakarta, Indonesia. The seminar involved a discussion with the participants. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Seminar at the Department of Health on MODEM project |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | We presented the MODEM project at the Department of Health for policy colleagues. There were approximately 30 people in attendance and the presentation has led to further requests for information. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Singapore NCSS consultation. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | SG |
| Year(s) Of Engagement Activity | 2020 |
| Description | Social care responses to ageing populations |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk to open event for citizens of Seoul |
| Year(s) Of Engagement Activity | 2019 |
| Description | Symposium at GSA 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation "What is the Effect of Reducing Obesity on Later Life Dependency? Findings From the PACSim Model" as part of a symposium on Understanding the Impact of Obesity Through the Lifecourse on Later Life Functioning and Dependency. Brought together research throughout the lifecourse on obesity |
| Year(s) Of Engagement Activity | 2019 |
| Description | Symposium on the MODEM study at 21st IAGG World Congress of Gerontology & Geriatrics, San Francisco - 23 July 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Symposium on the MODEM study at the 21st IAGG World Congress of Gerontology & Geriatrics in San Francisco on 23 July 2017. The symposium was well-attended and provided an opportunity to share our findings to international experts and decision-makers in the dementia field. This led to discussion and initial discussions about possible future collaborations. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Systematic mapping of the evidence on what works on dementia: Presentation at ILPN 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation by David McDaid on Systematic mapping of the evidence on what works on dementia: who researches what? as part of an organised session at the International Long-term Care Policy Network's 2016 Conference in London on Tuesday 6 September 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | TIP-CARD event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | .. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Tauranga workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | One of two presentations at a workshop for practitioners "Disruptive Thinking across the wider Health System: Empowering People to Age Well" aimed at rethinking the care pathway for older people in Tauranga |
| Year(s) Of Engagement Activity | 2018 |
| Description | The Age of Uncertainty - what do we really know about growing old |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Autumn lecture to the Institute and Faculty of Actuaries, Royal College of Physicians of Edinburgh, 1 October 2014. Have had two further requests from actuaries to discuss future research |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://draftchannel.multichanneltv.com/0b9fa2571533ccdc1a662c5bb504f13a |
| Description | The MODEM Project: Presentation at ILPN 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation by Adelina Comas-Herrera on The MODEM Project (A comprehensive approach to MODelling outcome and costs impacts of interventions for DEMentia) as part of an organised session at the International Long-term Care Policy Network's 2016 Conference in London on Tuesday 6 September 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | The Royal Foundation, discussion about economics evidence in mental health. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | The future demand for care |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote setting the scene for the 2017 Norfolk care Convention. Included discussion on Radio Norfolk prior to the day. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Training course delivered for the Singapore Civil Service College on economic evaluation of public policy initiatives |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Three-day training event on methods of economic evaluation in social policy contexts, with illustrations from my own work. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Training workshop, Hong Kong University, on using economic evidence to inform old age mental health policies |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | One-day training event on how economic evidence can be used to inform policy and practice discussion, focused on a non-academic audience. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Trends in Healthy Life Expectancy - what might the future hold |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Invited lecture on "Trends in Healthy Life Expectancy - what might the future hold?" to Spanish National Research Council as part of the Postgraduate Training Program on Demography, Statistics and Health, the H2020 training program LONGPOP on longitudinal registers and the Lecture Series "Demography today", Madrid, Spain, March 2018. Produced much discussion and questions. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://demografia.tv/video/f4c6bf3edc969b8/Carol-Jagger-Trends-in-Healthy-Life-Expectancy-%E2%80%93-... |
| Description | Using economic evidence to improve dementia care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation on using economic evidence to improve dementia care at the 20th Alzheimer's Disease International Asia Pacific Regional Conference in Jakarta in 4 November 2017. Opportunity to share MODEM findings and introduce the STRiDE study. This led to discussion and questions afterwards, and contact from individuals to discuss these projects. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Video following talk at the 2016 Alzheimers NZ Conference Dementia Today: Diverse Communities, Collective Action |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | A video of Adelina Comas-Herrera produced by the conference organisers in which she discusses her work, including the MODEM study. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.youtube.com/watch?v=TLfH8PD20ts&app=desktop |
| Description | Visit to two day centers specialised in dementia care in Richmond, London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | A team of researchers from the MODEM project, in an even organised by our research involvement manager, visited two day care centres specialised in the care of people with dementia in Richmond (London). The team were able to visit the centres, hear from members of staff about the activities they do, and even share lunch with people who use one of the centres. In the afternoon people from various local organisations involved in dementia care talked to us about the local support available. This was followed by a tea party for invited guests, including people with dementia attending the centre, their carers, three borough councillors, and professionals including Dr Dagmar Zeuner, Director of Public Health at the London Borough of Richmond, and Aileen Jackson, the Commissioning Manager responsible for commissioning dementia services. During the tea party the MODEM research project was presented and all those attending where able to share their experiences and ask questions. The research team were able to experience first hand what happens in a day centre for people with dementia and were able to interact with both people with dementia and professional carers. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://blogs.lse.ac.uk/healthandsocialcare/2015/11/26/a-day-in-the-life-of-people-with-dementia/ |
| Description | Vox pop online TV recording (COVID and mental health, including dementia). |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | TV |
| Year(s) Of Engagement Activity | 2021 |
| Description | Westminster City Council, 29 September 2021, Turning research evidence into real world impacts. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Talk covered various projects and why they have an impact on policy and practice |
| Year(s) Of Engagement Activity | 2021 |
| Description | Westminster Forum, 28 April 2021, Progress in integrating older people's care and priorities for funding: moving forward from the pandemic. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk at public-facing event |
| Year(s) Of Engagement Activity | 2021 |
| Description | Workshop on Protecting Older People from the Effects of Crime |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Keynote providing background to vulnerability of older people |
| Year(s) Of Engagement Activity | 2018 |
| Description | World Dementia Council care workshop. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | WDC meeting |
| Year(s) Of Engagement Activity | 2021 |