Centre for Administrative Data Research and Evaluation (CADRE) - an ESRC Administrative Data Research Centre
Lead Research Organisation:
Swansea University
Department Name: Institute of Life Science Medical School
Abstract
Administrative data is the term used to refer to the datasets collected by the Government and other public bodies which, amongst other things, is used to generate information to guide policy and the development of public services. Some examples are the Census and National Household Surveys, and datasets about education, health and social services, employment and benefits, crime, housing, the environment and the economy. These datasets hold great value for research, especially if they are linked together. However, as information about individuals is very sensitive, it must be very carefully managed so that it is anonymous, safe and secure, and used only in the public interest by approved researchers. Data linkage research is the term applied to the development of methods of bringing datasets together and linking them so that important public issues (such as education, crime and employment) can be studied in relation to each other. There are a range of techniques to make sure that the linked datasets used by researchers are kept anonymous throughout.
The Centre for Administrative Data Research & Evaluation (CADRE) is a powerful new centre specialising in making UK-wide administrative data safely available for research. CADRE has a strong team, with a wealth of experience in data linkage and in economic and social research. CADRE will work closely with CIPHER (the Centre for the Improvement of Population Health through E-records Research), in a new, purpose-designed building, massively increasing the opportunities for research to benefit people and society.
The main aim of CADRE is to create a world-class administrative data research centre, that is widely known for its ability to access, link and make safe use of data for high quality research. Our work will be underpinned by a robust Governance framework. This means that we will follow all the rules, laws and regulations that govern data usage, and set many new standards, so that our work is always ethical and respects the rights and privacy of individuals and organisations. CADRE has a set of objectives are these are to:
1. Provide powerful, robust, state-of-the art data linkage and data access facilities. This will include highly secure 'safe rooms' where researchers will work on the data.
2. Run a high quality, equitable and efficient 'customer focused' user support service, free at the point of access, ensuring that the analytical opportunities provided by CADRE are accessible to the widest possible community of researchers
3. Create a rich linked administrative data resource for the UK research community, by enabling datasets from different organisations to be used together safely.
4. Carry out original research using linked administrative data. This will include developing new methods for data linkage, working with government, law and ethics bodies on the Governance of data use, and working with the general public and organisations to understand their views on data linkage. We will work with other researchers to answer important social and economic research questions.
5. Provide a range of high-quality training and development opportunities for researchers, public service professionals and policy makers.
6. Involve members of the public in the work of CADRE, and engage with the public to raise awareness of data linkage research, to understand the concerns they may have, and to seek to provide reassurance.
7. Build good working relationships and collaborations within the Administrative Data Research Network (ADRN), with Welsh Government, other UK governments, and their National Statistical Agencies (NSAs), the economic and social science research community and health researchers.
The Centre for Administrative Data Research & Evaluation (CADRE) is a powerful new centre specialising in making UK-wide administrative data safely available for research. CADRE has a strong team, with a wealth of experience in data linkage and in economic and social research. CADRE will work closely with CIPHER (the Centre for the Improvement of Population Health through E-records Research), in a new, purpose-designed building, massively increasing the opportunities for research to benefit people and society.
The main aim of CADRE is to create a world-class administrative data research centre, that is widely known for its ability to access, link and make safe use of data for high quality research. Our work will be underpinned by a robust Governance framework. This means that we will follow all the rules, laws and regulations that govern data usage, and set many new standards, so that our work is always ethical and respects the rights and privacy of individuals and organisations. CADRE has a set of objectives are these are to:
1. Provide powerful, robust, state-of-the art data linkage and data access facilities. This will include highly secure 'safe rooms' where researchers will work on the data.
2. Run a high quality, equitable and efficient 'customer focused' user support service, free at the point of access, ensuring that the analytical opportunities provided by CADRE are accessible to the widest possible community of researchers
3. Create a rich linked administrative data resource for the UK research community, by enabling datasets from different organisations to be used together safely.
4. Carry out original research using linked administrative data. This will include developing new methods for data linkage, working with government, law and ethics bodies on the Governance of data use, and working with the general public and organisations to understand their views on data linkage. We will work with other researchers to answer important social and economic research questions.
5. Provide a range of high-quality training and development opportunities for researchers, public service professionals and policy makers.
6. Involve members of the public in the work of CADRE, and engage with the public to raise awareness of data linkage research, to understand the concerns they may have, and to seek to provide reassurance.
7. Build good working relationships and collaborations within the Administrative Data Research Network (ADRN), with Welsh Government, other UK governments, and their National Statistical Agencies (NSAs), the economic and social science research community and health researchers.
Planned Impact
As well as being of obvious benefit to the academic community, the establishment of CADRE will also benefit researchers and policy makers in the wider non-academic communities. Policy makers in Wales and elsewhere in the UK will benefit from improved access to data and analytical resources that will enable them to carry out, or commission, their own research based on the data. The role of CADRE in building a community of academic researchers who are expert in the analysis of such datasets will contribute to increased levels of competition in the procurement of social science research based on CADRE and non-CADRE sources. Policy makers will also be made aware of the results of academic research conducted within these environments, via the CADRE workshop series and regular updates of research findings posted on the CADRE website and promoted via newsletters etc. A Wales ADRC will support the development of relatively low cost longitudinal research which is of particular importance in the context of being able to evaluate the impact of policy interventions that have often relied upon the collection of primary data which can be of considerable expense. The availability of relatively cheap data combined with the expanding numbers of users experienced in the analysis of such data will enhance the efficiency of evaluation exercises. The custodians of data resources deposited in the ADRC will also benefit in terms of what they can learn about their own data from a community of researchers who are interrogating these resources at a level of detail that is not typically done (i.e. examining the integrity of data at the unit level) when such sources are used in the production of aggregate statistics. The value of the ADRC is recognised by the Welsh Government who are supporting a post that is to be embedded within the ADRC. Given the importance of European funded interventions in Wales, the activities of the ADRC will be of significant interest to the European Commission, contributing to the development of best practice in the evaluation of EU funded interventions and in turn shaping the nature and delivery of future interventions. Political parties, interest groups, think-tanks and similar organisations will also be targeted in terms of the dissemination activities of CADRE and will therefore benefit from the enhanced understanding of complex social issues that can be derived from the research that is supported by CADRE, thereby enhancing the level of debate surrounding the development of policy and practice. A public engagement strategy that enhances understanding among general population as to the benefits of data linking and the use of administrative data for research will also be of benefit to both researchers and the populations covered by these datasets. Engagement that supports that creation of more positive attitudes to such research could contribute to increased levels of response to social surveys and an increased willingness to provide necessary consents for data linking. By enhancing our understanding of the effectiveness of policy interventions at both local, national, UK and European level, CADRE may directly contribute to improving the material conditions and well-being of the wider population.
Organisations
- Swansea University (Lead Research Organisation)
- Wales Institute of Social and Economic Research, Data & Methods (Collaboration)
- Wales Council for Voluntary Action (Collaboration)
- Children and Family Court Advisory and Support Service (Collaboration)
- Sport Wales (Collaboration)
- South Wales Police (Collaboration)
- Cardiff University (Collaboration)
- University of Bath (Collaboration)
- University of South Wales (Collaboration)
- Zoe Global Ltd (Collaboration)
- Government of Wales (Collaboration)
- Office for National Statistics (Collaboration)
- University of Bristol (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
- University College London (Collaboration)
- Administrative Data Service (Collaboration)
- Gwynedd Council (Collaboration)
- SWANSEA COUNCIL (Collaboration)
- Careers Wales (Collaboration)
- Blaenau Gwent Local Authority (Collaboration)
- Research Institute for Applied Social Sciences (RIASS) (Collaboration)
- UNIVERSITY OF EXETER (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- Welsh blood service (Collaboration)
- MONMOUTHSHIRE COUNTY COUNCIL (Collaboration)
- Equal Pay Portal (Collaboration)
- SWANSEA UNIVERSITY (Collaboration)
Publications
Mackie P
(2017)
Homelessness Prevention:Reflecting on a Year of Pioneering Welsh Legislation in Practice
in European Journal of Homelessness
Jones KH
(2013)
How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register.
in PloS one
Baker D
(2016)
How to refer to people with disease in research outputs: The disconnection between academic practise and that preferred by people with multiple sclerosis.
in Multiple sclerosis and related disorders
Hayley Prout
(2022)
I don't mean to be rude, but could you put a mask on while I'm here?" A qualitative study of risks experienced by domiciliary care workers in Wales during the COVID-19 pandemic
in Health & Social Care in the Community.
Middleton R
(2017)
iConsent an Electronic Consent Platform with the MS Register IJPDS (2017) Issue 1, Vol 1:342 Proceedings of the IPDLN Conference (August 2016)
in International Journal of Population Data Science
Osborne L
(2013)
Identifying and Addressing the Barriers to the Use of an Internet-Register for Multiple Sclerosis
in International Journal of Healthcare Information Systems and Informatics
Balbuena, L. D
(2022)
Identifying long-term and imminent suicide predictors in a general population and a clinical sample with machine learning
in BMC psychiatry
Al Sallakh MA
(2018)
Identifying patients with asthma-chronic obstructive pulmonary disease overlap syndrome using latent class analysis of electronic health record data: a study protocol.
in NPJ primary care respiratory medicine
Mizen A
(2020)
Impact of air pollution on educational attainment for respiratory health treated students: A cross sectional data linkage study.
in Health & place
Mohee K
(2019)
Impact of social deprivation on outcome following transcatheter aortic valve implantation (TAVI).
in Open heart
| Title | ADR Wales overview video |
| Description | Overview video demonstrating the work of the centre to date. Included quotes from several Cardiff/Swansea based PI/Co-Investigator colleagues, as well as quotes from senior Welsh Government staff involved in the project. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events |
| URL | https://www.youtube.com/watch?v=v3I8FWELrHo |
| Title | Artwork: ADRC-Wales Publicity Poster |
| Description | Publicity posters created for ADRC-Wales meeting at WCCSJ in Aberystwyth University |
| Type Of Art | Artwork |
| Year Produced | 2015 |
| Impact | Provided further information to potential users of the ADRC-Wales service and increased the impact of the promotional event that the team were co-ordinating |
| Title | Flying Start infographic - Childcare analysis |
| Description | Infographic providing an overview of the key findings from the research on the Flying Start project (Childcare analysis) |
| Type Of Art | Image |
| Year Produced | 2019 |
| Impact | Image shared online and available for dissemination digitally and at events |
| URL | https://twitter.com/ADR_Wales/status/1200054440658649089 |
| Title | Flying Start infographic - Emerging findings |
| Description | Infographic providing an overview of the key findings from the research on the Flying Start project (Emerging Findings report) |
| Type Of Art | Image |
| Year Produced | 2019 |
| Impact | Image shared online and available for dissemination digitally and at events |
| URL | https://twitter.com/ADR_Wales/status/1164107469288816641 |
| Title | Flying Start research overview video |
| Description | Overview video of the ongoing Flying Start project work and its outputs |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events |
| URL | https://www.youtube.com/watch?v=A9LTpPf2TDc |
| Title | Flying Start research overview video (CYMRAEG) |
| Description | Welsh translation - Overview video of the ongoing Flying Start project work and its outputs |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events |
| URL | https://www.youtube.com/watch?v=ysua4GaT_Jw |
| Title | Fuel Poverty inforgraphic |
| Description | Infographic providing an overview of the key findings from the research on the Fuel Poverty project |
| Type Of Art | Image |
| Year Produced | 2019 |
| Impact | Infographic shared on social media and available for dissemination digitally or at events |
| URL | https://twitter.com/ADR_Wales/status/1182569289984991232 |
| Title | Fuel Poverty research overview video |
| Description | Overview video of the ongoing Fuel Poverty project work and its outputs |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events |
| URL | https://www.youtube.com/watch?v=88FG8oN_QRw |
| Title | Fuel Poverty research overview video (CYMRAEG) |
| Description | Welsh translation - Overview video of the ongoing Fuel Poverty project work and its outputs |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2019 |
| Impact | Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events |
| URL | https://www.youtube.com/watch?v=k8a-kdI9XfM |
| Title | Jo Davies - Animation (dialogue): Welsh dialogue for ADRN Infographic |
| Description | Jo Davies provided Welsh language dialogue for an animation produced by the ADS. The animation was designed as a Public Engagement tool. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | Adherence to bi-lingual policies allows the animation to be used across Wales, including with organisations that require bi-lingual communication. This also allowed an alternative and more appropriate method for communicating with members of the public who are first language Welsh speakers. Both of these reasons allow the animation to be used amongst a wider audience. |
| Title | Video: Guide for Data Providers Uploading Data to ADRC-Wales |
| Description | Video published on SAIL Data Acquisition website describing the process of uploading data to ADRC-Wales. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2016 |
| Impact | Users will find the process of uploading datasets significantly easier as a result |
| Title | Video: Welsh Government Chief Statistician on the role ADRC-Wales can play in informing policy and decision making |
| Description | Welsh Government Chief Statistician Glyn Jones was invited to give his thoughts on the benefits of the ADRC-Wales programme. He gave permission to be filmed by the ADRC-Wales team so that the clip could be used to promote the programme. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | This video has been used to demonstrate the positive impacts that ADRC-Wales facilitated projects could have on Welsh Government policy decisions. |
| Description | A key development in this grant for ADRC Wales has been the development of a methodology of working with government that is both collaborative and has high impact potential. Key policy influencing projects have been undertaken in a tripartite format with Welsh Government. This includes a researcher, government policy team, government researcher as well as a steering group (where appropriate) made up of third sector and local authorities. This model differs from the standard format of undertaking research and then communicating findings to policy. It is extremely pleasing to see that the new ADRP has a model based on the approach in Wales, where government are a core part of the research project and not solely a beneficiary of it. In addition to the undertaking of substantive research projects, our understanding of public attitudes to data sharing, as well as the development of methodological tools and approaches, has advanced significantly during the lifetime of the grant. We are discussing the deployment of these tools with the new ADRP and are also collaborating with ADRP on the public involvement and engagement approach the ADRP will take. This is based on all the learning we have undertaken during the ADRN grant period which will benefit the ADRP as well as other large grants allied to the ADRP such as the Nuffield Family Justice Platform. |
| Exploitation Route | The collective outputs of ADRC Wales are being applied within the new ADRP as well as disseminated via all academic and government networks that the ADRP has. Existing projects from this grant that have produced outputs will have impact driven by the funded ADRP Impact teams. Welsh Government will also be taking forward outputs generated as a result of our public engagement programme to inform their national public use of data programme. |
| Sectors | Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Healthcare,Government, Democracy and Justice,Security and Diplomacy |
| Description | The projects undertaken with Welsh Government in the Data Maximisation programme have significant societal and policy impacts. The narrative on these are in case study format and are also covered in the closure report for the ADRC grant. - Policy projects have been utilised by Welsh Government to directly inform policy at Ministerial level - Public engagement and governance work is being used by the new ADRP and also HDR grants - Methodological developments from the ADRC initial grant now underpin other major grants such as Nuffield Family Justice Data Platform and many other UKRI investments such as HDRUK, BREATHE, Dementias Platform. Other findings that have been used to develop 'non academic impacts' - CADRE developed a much wider level of public involvement and engagement and has embedded this in government research, especially in the new ADR award. This award has in effect served as a precursor to the Administrative Research Data Centre (Wales) 2018 - 2026 programme. The systems, processes and relationships developed with government and academia, allied to the developments made in the availability of 'Trusted Research Environments (TREs) have been pivotal during the operations of ADR Wales. Nowhere has this been more realised than in the ADR Wales response to the pandemic where systems, approaches and relationships developed during the period of this award were utilised and provided an effective data response to the pandemic. The lessons learnt from involvement in this grant served to underpin the approaches taken in developing ADRUK and ADR Wales and ADRUK is providing to be a highly successful investment. |
| First Year Of Impact | 2015 |
| Sector | Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Education,Healthcare,Government, Democracy and Justice,Security and Diplomacy |
| Impact Types | Societal,Policy & public services |
| Description | Digital Economy regulatory committee |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Contributed to a session that resulted in revised regulations |
| Description | EDARA Steering Committee |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | David Ford contributed to a steering group session that had a major influence on the policy and practice landscape around alcohol at a UK level. |
| Description | Ian Thomas Membership of Welsh Index of Multiple Deprivation (WIMD) Health Domain group |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Description | Karen Tingay - Flying Start |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Description | Karen Tingay - GSS Administrative Data Challenges: Joining Forces extraordinary meeting |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Part of a working group advising the Office for National Statistics on the use of administrative data |
| Description | Membership of IPDLN |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Membership of a guideline committee |
| Impact | Membership of IPDLN ensured that the expertise of ADRC Wales and Swansea University was included as part of an international programme focussed on utilising data for societal benefit |
| Description | Membership on advisory board (Grenoble) |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Description | Minimum passing distance |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Ministerial briefing - Skills and science |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Input into science and skills policy development |
| Description | New Brunswick advisory session |
| Geographic Reach | North America |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Advised visitors from Canada on an effective model for data research that replicated ADRC Wales operating model |
| Description | Nuffield Foundation |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Participation in an advisory session on UK wide investment into data related activities |
| Description | Peter Mackie - Advisory position on Welsh Government funded project (The Wallich) |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Description | Peter Mackie - Participation at Equality, Local Government and Communities Committee |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Peter Mackie presented work undertaken with colleagues through his own research and engagement with ADRC Wales. He highlighted the importance of linked data on future policy decisions |
| URL | http://www.senedd.tv/Meeting/Archive/afcb1d3d-514d-4582-9d81-2ee1395c3144?autostart=True# |
| Description | Peter Mackie - Provided advice to H-Click data collection programme in England |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Description | Police and Crime Commissioners |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Description | Prof Chris Taylor - Reference in Welsh Government annual remit letter 2018/19 to the Higher Education Funding Council for Wales (HEFCW) |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | https://www.hefcw.ac.uk/documents/about_he_in_wales/WG_priorities_and_policies/2018-19%20Remit%20Let... |
| Description | SAIL access to education data |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Description | Supporting People - Full feasability report |
| Geographic Reach | Europe |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | Evidential basis for utilising linked data in social policy programme evaluation |
| Description | Supporting People Data Linking feasability study - Emerging findings |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | Utilising linked data to effectively evaluate existing policy and inform future policy |
| URL | http://gov.wales/statistics-and-research/supporting-people-data-linking-feasibility-study/?lang=en |
| Description | UK Government Gateway Review of ADRN Programme |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | UK e-infrastructure consortium |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Part of a working group advising on an effective model for UK National e-infrastructure across multiple scientific fields |
| Description | Visit from Finnish Government |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | ADRC Wales staff demonstrated the benefits of ADRC Wales data sharing architecture to representatives from Finnish government. The understanding is that they will look to adopt similar models and involve Swansea University researchers in future collaborations. |
| Description | Welsh Scientific Advisory Committee |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Participation in the Welsh Scientific Advisory Committee to ensure that ADRC Wales and related data linkage activities in Swansea University were included as part of the national strategy |
| Description | A Data Platform and Analytics Service (DPAS) |
| Amount | £998,608 (GBP) |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 03/2023 |
| Description | Administrative Data Research Centres 2018 |
| Amount | £4,879,389 (GBP) |
| Funding ID | ES/S007393/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2018 |
| End | 03/2021 |
| Description | Alcohol Misuse: Electronic Longitudinal Alcohol Study in Communities (ELAStiC) |
| Amount | £978,102 (GBP) |
| Funding ID | ES/L015471/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2014 |
| End | 10/2017 |
| Description | Asthma UK Centre for Applied Research |
| Amount | £2,000,000 (GBP) |
| Funding ID | AUK-AC-2012-01 |
| Organisation | Asthma + Lung UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 09/2018 |
| Description | Asthma UK Centre for Applied Research |
| Amount | £1,999,910 (GBP) |
| Organisation | Asthma + Lung UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2019 |
| End | 04/2024 |
| Description | BREATHE |
| Amount | £925,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2019 |
| End | 08/2022 |
| Description | BRIDGE-Health (BRidging Information and Data Generation for Evidence-based Health Policy and Research) |
| Amount | € 5,833,629 (EUR) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 04/2015 |
| End | 10/2017 |
| Description | CEDAR Collaboration Agreement, |
| Amount | £94,927 (GBP) |
| Organisation | National Institute for Health and Care Excellence (NICE) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 04/2017 |
| Description | Cardiff University: Fuel Poverty PhD |
| Amount | £59,400 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 10/2018 |
| Description | Centre for Administrative Research & Evaluation - Administrative Data Research Centre. |
| Amount | £7,982,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2014 |
| End | 11/2018 |
| Description | Centre for Improvement of Population Health through E-health Research (CIPHER), an Heath Informatics Research Centre (HIRC) Centre of Excellence. |
| Amount | £4,373,292 (GBP) |
| Funding ID | MR/K006525/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 04/2018 |
| Description | Centres of Excellence in Public Health Research |
| Amount | £2,935,823 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | Cystic Fibrosis Epidemiological Network (CF EpiNet) (Identifying policy-relevant determinants of health inequalities in cystic fibrosis using data linkage) |
| Amount | £140,000 (GBP) |
| Funding ID | SRC004 |
| Organisation | Cystic Fibrosis Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | DECIPHer: Centre for the Development and Evaluation of Complex Interventions for Public Health Improvement |
| Amount | £2,935,823 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | DVLA/DfT commissioned research |
| Amount | £100,000 (GBP) |
| Organisation | Department of Transport |
| Department | DfT, DVLA and VOSA |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2015 |
| Description | DataFlow Development Project |
| Amount | £175,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | DataFlow Development Project |
| Amount | £128,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | Dataflow Development Phase2 |
| Amount | £325,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 03/2021 |
| Description | Development and feasibility cluster randomised controlled trial evaluation of a Peer-Led physical Activity iNtervention for Adolescent girls (PLAN-A) |
| Amount | £527,571 (GBP) |
| Funding ID | PHR/13/90/16 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 07/2017 |
| Description | Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort |
| Amount | £153,855 (GBP) |
| Funding ID | ES/R005478/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 03/2020 |
| Description | Dynamic Insights for Health and Care |
| Amount | £57,006 (GBP) |
| Funding ID | NE/N007255/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 04/2018 |
| Description | ERA - Electronic records in ambulances |
| Amount | £380,318 (GBP) |
| Funding ID | HS&DR/14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | ESRC Studentships |
| Amount | £191,670 (GBP) |
| Funding ID | ES/l007444/I |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 10/2019 |
| Description | Electricity Safety Council |
| Amount | £5,000 (GBP) |
| Organisation | National Home Improvement Council (NHIC) |
| Department | Electricity Safety Council |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2013 |
| Description | Family Identifiers using linked data |
| Amount | £4,586 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 06/2017 |
| Description | Green-blue space exposure changes and impact on individual-level wellbeing and mental health: a population-wide record-linked natural experiment |
| Amount | £613,804 (GBP) |
| Funding ID | PHR/16/07/07 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2021 |
| Description | HGT5 funding for SBRI Innovation Catalyst Programme |
| Amount | £49,552 (GBP) |
| Organisation | European Commission |
| Department | European Social Fund |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2014 |
| End | 04/2016 |
| Description | Health outcomes of children and adults with learning difficulties |
| Amount | £30,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 04/2017 |
| Description | Healthwise Wales initiative |
| Amount | £1,600,000 (GBP) |
| Organisation | NHS England |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2015 |
| End | 05/2018 |
| Description | Integrated DEmentiA research environment (IDEA) |
| Amount | £321,000 (GBP) |
| Funding ID | MR/M024881/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2016 |
| Description | International Digital Healthcare Conference grant |
| Amount | £50,000 (GBP) |
| Organisation | Welsh Assembly |
| Department | Welsh Government A4B programme |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Description | MQ Adolescent Data Platform. MQ Transforming Lives |
| Amount | £800,000 (GBP) |
| Organisation | MQ Mental Health Research |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2020 |
| Description | MRC Dementias Platform |
| Amount | £4,511,230 (GBP) |
| Funding ID | MR/L015382/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2019 |
| Description | MS register - Extension |
| Amount | £181,244 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 11/2018 |
| Description | Measuring and Understanding Multimorbidity Using Routine Data in the UK |
| Amount | £1,004,703 (GBP) |
| Funding ID | CFC0110 |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 07/2019 |
| End | 03/2023 |
| Description | NICE Cardiac Ablation Project |
| Amount | £19,624 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 04/2016 |
| Description | NIHR Public Health Research Programme |
| Amount | £736,755 (GBP) |
| Funding ID | 11/3020/05 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2013 |
| End | 12/2015 |
| Description | NISCHR CENTRE FOR POPULATION HEALTH AND WELLBEING RESEARCH (NCPHWR) |
| Amount | £695,527 (GBP) |
| Organisation | NHS England |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | NISCHR Health Call |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | NISCHR Health Call |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | NISCHR Health Call |
| Amount | £249,010 (GBP) |
| Funding ID | RFS-12-39 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | NISCHR RFS: Social Care Research Award |
| Amount | £175,445 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 03/2015 |
| Description | NISCHR RfPB |
| Amount | £170,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2015 |
| Description | NISCHR: RFS Social Care Research Award |
| Amount | £151,464 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 03/2015 |
| Description | National Confidential Enquiry into Patient Outcome and Death |
| Amount | £1,400,823 (GBP) |
| Organisation | The Health Quality Improvement Partnership (HQIP) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | National Health and Medical Research Council (NHMRC) Project Grants 2014 |
| Amount | $738,450 (AUD) |
| Funding ID | APP1061786 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 04/2014 |
| End | 03/2018 |
| Description | Nuffield Foundation Justice Observatory |
| Amount | £988,000 (GBP) |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 06/2023 |
| Description | Pattern of recovery following serious injury and implications for service delivery |
| Amount | $738,450 (AUD) |
| Funding ID | APP1061786 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 04/2014 |
| End | 03/2018 |
| Description | Pattern of recovery following serious injury and implications for service delivery |
| Amount | $872,800 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 04/2014 |
| End | 03/2018 |
| Description | Rhys Davies - Careers Wales |
| Amount | £55,896 (GBP) |
| Organisation | Careers Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2017 |
| End | 09/2019 |
| Description | Sail Databank extension |
| Amount | £1,373,112 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2020 |
| Description | Scientometrics as a tool to aid strategic research development |
| Amount | £119,226 (GBP) |
| Organisation | European Medical Information Framework (EMIF) |
| Sector | Charity/Non Profit |
| Country | European Union (EU) |
| Start | 05/2017 |
| End | 04/2018 |
| Description | Secondary Data Analysis Intitiative (Katy Huxley) |
| Amount | £201,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 03/2021 |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2019 |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Funding ID | SRL-19-06 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2019 |
| End | 03/2020 |
| Description | Senior Faculty Award (2013/14) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2014 |
| Description | Senior Faculty Award (2016-17) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 03/2017 |
| Description | Social Care and Health of Older People (SCHOOP): The relationship between use of Social Care and the use of healthcare by people aged 65+ in Wales before and after theimplementation of the Chronic Conditions Management Policy. |
| Amount | £219,306 (GBP) |
| Funding ID | SC-12-29 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2016 |
| Description | Social Policy Analysis |
| Amount | £17,301 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 11/2020 |
| Description | Supporting people |
| Amount | £268,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 03/2020 |
| Description | Swansea University: Postgraduate Research Bursary (x2) |
| Amount | £24,720 (GBP) |
| Organisation | Swansea University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 12/2015 |
| End | 01/2019 |
| Description | TexGov Data Governance |
| Amount | £12,386 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2018 |
| End | 04/2019 |
| Description | The Airwave Health Monitoring Study (AHMS). An Occupational Cohort Study of the British Police Forces |
| Amount | £1,941,097 (GBP) |
| Funding ID | MR/R023484/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2018 |
| End | 04/2023 |
| Description | The CHERISH_DE Centre |
| Amount | £3,017,488 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2015 |
| End | 12/2020 |
| Description | The National Centre for Mental Health (NCMH) |
| Amount | £3,833,764 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | The UK Multiple Sclerosis Register |
| Amount | £755,611 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 04/2017 |
| Description | The UK Multiple Sclerosis Register |
| Amount | £285,212 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2014 |
| Description | UK Collaborative Centre for Housing Evidence (CaCHE) secondment fund |
| Amount | £19,118 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 06/2019 |
| Description | UK MEDical BIOinformatics partnership - aggregation, integration, visualisation and analysis of large, complex data (UK MED-BIO). |
| Amount | £5,941,410 (GBP) |
| Funding ID | MR/L01632X/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2014 |
| End | 05/2019 |
| Description | UK MS Register |
| Amount | £897,833 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2017 |
| Description | UKRI Innovation / Rutherford Fund Fellowships at HDR UK |
| Amount | £560,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2018 |
| End | 02/2021 |
| Description | Unmet Legal Needs Project |
| Amount | £76,000 (GBP) |
| Organisation | The Legal Education Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 06/2019 |
| Description | WCRC |
| Amount | £4,500,000 (GBP) |
| Organisation | NHS England |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | WG Matched Funding for WISERD Education Data Lab (with Chris Taylor) |
| Amount | £180,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2019 |
| End | 03/2021 |
| Description | WG Policy Communities and Housing |
| Amount | £198,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2021 |
| Description | WISERD Dissemination and Impact activities |
| Amount | £7,730 (GBP) |
| Organisation | Wales Institute of Social and Economic Research, Data & Methods |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 09/2019 |
| Description | Wales Cancer Bank. Subcontract to Cardiff University for information system development. |
| Amount | £502,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Wales Centre for Primary and Emergency Care Research - PRIME Centre Wales |
| Amount | £2,700,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Wales Kidney Research Unit (WKRU) |
| Amount | £212,313 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Welsh Government Homelessness Grant Programme |
| Amount | £19,118 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 06/2019 |
| Description | Welsh Government Social Policy Research Funding: Fuel Poverty |
| Amount | £190,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 01/2018 |
| Description | Welsh Government: Evaluation of Supporting People |
| Amount | £65,545 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2016 |
| End | 06/2017 |
| Description | Welsh SBRI Innovation Catalyst Programme |
| Amount | £785,010 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Title | Karen Tingay - Policy/academic text analysis tool |
| Description | Methods of analysing policy and academic texts to provide an evidence base for strategic research management |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | Funding obtained to develop methods further. Additional funding may be forthcoming |
| Title | Welsh Government UKSeRP |
| Description | Provision of UKSeRP secure data analysis infrastructure to the Welsh Government team for use across a range of their projects |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | Welsh Government are assessing the capabilities that the platform offers them and are in the process of planning research projects that will benefit greatly from the project |
| Title | Core Datasets SAIL - Lee |
| Description | Database of Core and Core-restricted datasets in SAIL |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | Makes it much quicker to provider a list of CORE datasets in SAIL and the up-to-date information on them |
| Title | Data Sets Created - PROJ 003 - Developing an Analytical Approach for Assessing the Effectiveness of the Flying Start Programme: Analysis of the Health and Education Impacts of Flying Start |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health and education data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | Analysis is being undertaken and will be on going. |
| Title | Data Sets Created - PROJ 004 - Assessing the Health Impacts of Adults' Participation in Sports in Wales: Investigating the Mediating Role of Accessibility to Sports Facilities |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health and data sets from Sports Wales to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. |
| Title | Data Sets Created - PROJ 0115 , Exploring differences in the reporting of Welsh Language Ability: An Exploratory Study Linking Survey and Census Data |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling survey and Census data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. |
| Title | Data Sets Created - PROJ 021 - Understanding Participation in Post Compulsory Education Training in Wlaes |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, school and post-compulsory education data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No Impacts Yet. Analysis to be undertaken. |
| Title | Data Sets Created - PROJ 022 - Examining Contributory Factors in Road Traffic Collisions Data Involving Older People in Wales |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health data sets from SAIL to be linked to police data. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. |
| Title | Data Sets Created - PROJ 035 - Examining the Link Between Family Health Events and Pupil Performance Indicators in Wales |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health and education data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. |
| Title | Data Sets Created - PROJ 088 - Examining Risk Factors for Domestic Abuse and Child Sexual Exploitation to Inform Future Policing in the Swansea Area |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health, police and Swansea County Council data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. |
| Title | Data Sets Created - PROJ 113 - Explaining Associations Between Job Characteristics and Objective and Subjective Measures of Well-being |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health and employment data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. |
| Title | Data sets Created - PROJ 062 - Evaluating the Impacts of Welsh Government Funded Schemes Designed to Improve the Energy Efficiency of the Homes of Low Income Households on Health Outcomes Through the Use of Existing Data |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier, enabling health and Welsh Government data sets to be linked. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | No impacts yet. Analysis is being undertaken and will be on going. An emerging findings report has been published by Welsh Government and a presentation was given at International Population Data Linkage Conference (IPDLN), Swansea, 24th to 26th August, 2016: https://www.ipdlnconference2016.org/Programme/Abstract/310 |
| URL | http://gov.wales/statistics-and-research/fuel-poverty-data-linking-project/?lang=en |
| Title | Emma Squires - Swansea University Data Science Impact Tracker |
| Description | Outputs and impact tracking system for Swansea University Data Science research projects |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | Assists with the collation and further dissemination of outputs generated by research centre for the purposes of driving and deriving impact. |
| Title | Families - Karen |
| Description | Method of identifying members of the same family using anonymised routine data |
| Type Of Material | Computer model/algorithm |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | The tool was provided to researchers in the Diabetes Research Unit. |
| Title | Households - Karen |
| Description | Method of aggregating individuals into households, including changes over time |
| Type Of Material | Computer model/algorithm |
| Year Produced | 2018 |
| Provided To Others? | No |
| Impact | The tool will be released for researchers and policy makers as soon as testing is complete. Additional funding from ONS is in discussion. An article is being reviewed following submission to the International Journal of Population Data Science |
| Title | Ian Thomas - Data provisioning for Supporting People |
| Description | Data from Swansea Housing Options was sent to SAIL/NWIS. Housing Options data relates to assistance provided to people who are homeless or at risk of homelessness by the City and County of Swansea Council. Data were primarily for use in ADRC-W project PROJ-0127. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | Data have also been explored for use as part of ADRC-W project PROJ-0118 (Supporting People). Intended use of the data will be to create a comparison group of homeless people. Housing Options data has become a core restricted resource within the Secure Anonymised Information (SAIL) databank, and can therefore be used in other studies wishing to explore homelessness. |
| Title | Lee Au-Yeung - GP data collection |
| Description | SSIS/C# application that routinely collects the GP data file data and GP engagement data and builds a data warehouse from it ready for reporting |
| Type Of Material | Database/Collection of data |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Facilitate convenient and accurate reporting of incoming GP data. |
| Title | Lee Au-Yeung - RALF Processing system |
| Description | Used to generate anonymised keys of geographical locations |
| Type Of Material | Data handling & control |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | Locator Hub software produces more RALF matches then previous system |
| Title | Network outputs monitoring system |
| Description | UK multi stakeholder research and associated outputs web based monitoring system |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | Utilised to inform stakeholders of progress against either milestone, work package or target based assessment |
| Title | Obtaining requirments for Education Data - Arfon |
| Description | Administrative Data collected by Welsh Government that can be used for Research |
| Type Of Material | Database/Collection of data |
| Year Produced | 2014 |
| Provided To Others? | Yes |
| Impact | Allow access to Education data with supported documentation |
| Title | PEDW/SMR harmonisation - Karen |
| Description | Rules for harmonising inpatient datasets from Wales and Scotland so that they can be analysed as a single unit |
| Type Of Material | Data handling & control |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | The rules have been used in a research project. Abstracts on this work have been submitted to two conferences, and an article is in draft. |
| Title | PROJ 16 - Data sets created for; An investigation into the impact of disability on employment in Wales |
| Description | Data sets were created using data from: National Survey for Wales, WDS, GP data, Inpatient and Outpatient Data, Emergency Department Data. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | The research being carried out forms part of a PhD project, interim statistical outputs have been generated from the analysis of the dataset. Analysis on the new linked dataset is on-going. A presentation was given at the WISERD Annual Conference, Swansea, 13th July, 2016 (Aideen Ahern) A presentation was given at International Population Data Linkage Conference (IPDLN), Swansea, 24th to 26th August, 2016. |
| URL | https://www.ipdlnconference2016.org/Programme/Abstract/142 |
| Title | PROJ-037 Data sets created for; Feasibility study exploring the use of data linkage in the evaluation of the Supporting People Programme. |
| Description | Bespoke data sets have been anonymised, each case given a unique identifier. A linked dataset was created by combining Swansea and Blaenau Gwent Local Authority Supporting People Data with health data held in SAIL. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Initial feasibility report was published by Welsh Government in November 2015, the final report will be published in March 2016. The findings were of interest to charities who have linked to and commented on the report. http://www.housinglin.org.uk/_library/Resources/Housing/OtherOrganisation/Untitled_attachment_00049.pdf Another notable impact is that the Welsh Government is creating a funded research post in order to continue this research. |
| URL | http://gov.wales/statistics-and-research/supporting-people-data-linking-feasibility-study/?lang=en |
| Title | Richard Noyce - Data cleansing model |
| Description | Cleansing of GP registration records, providing researchers with methods to cleanse registrations by parameter driven cleansing function |
| Type Of Material | Computer model/algorithm |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Removal of loss of cohort due to insufficient GP registration data by allowing researcher to plug gaps in registrations using the cleansing function if required |
| Title | Richard Noyce - Encryption |
| Description | Encryption of already encrypted key columns on core datasets to provide projects with project level encrypted views. This ensures researchers cannot build a picture via data linkage across projects. |
| Type Of Material | Data handling & control |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Removal of ability to cross link projects |
| Title | WEDL Database |
| Description | Amalgamation of education records held within SAIL Databank to create analytical data base |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | No |
| Impact | Not yet known - the funding award was recent, but the additional research capacity within the ADR Wales Skills and Employability SIP provides an opportunity for an even broader range of impactful research attributable to ADR Wales |
| Description | Academic Partnership - Collaboration with RIASS |
| Organisation | Research Institute for Applied Social Sciences (RIASS) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Sharing research ideas, conferences and promotions |
| Collaborator Contribution | Sharing research ideas, conferences and promotions |
| Impact | Promotion of ADRC |
| Start Year | 2014 |
| Description | CAFCASS |
| Organisation | Children and Family Court Advisory and Support Service |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets |
| Collaborator Contribution | Provision of public and private law case management system data from CAFCASS Wales. Provision of case file data from CAFCASS England. |
| Impact | Research is ongoing with data provision from CAFCASS Wales, whilst discussions around the use of case data (CAFCASS England provision) are ongoing |
| Start Year | 2019 |
| Description | Careers Wales - Proj 0021 Data |
| Organisation | Careers Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has successfully negotiated with Careers Wales in order to get their careers data deposited in SAIL/ADRC Wales. |
| Collaborator Contribution | Careers Wales has deposited their careers data in SAIL/ADRC Wales |
| Impact | Data from Careers Wales is being used by researchers on ADRN Project 0021 in their analysis. The data is also available, by application, for other researchers to use. |
| Start Year | 2017 |
| Description | Department of Education - National Pupil Database - ADRC England Proj 0128 |
| Organisation | University of Oxford |
| Department | Department of Education |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADRC Wales worked with ADRC England to successfully negotiate for the English NPD data from Department of Education. |
| Collaborator Contribution | The Department of Education has supplied their NPD data to SAIL/ADRC Wales for use by ADRN Proj 0128 (an ESRC funded project).. |
| Impact | NPD data supplied by DfE is being analysed by researchers on ADRN Proj 0128. |
| Start Year | 2017 |
| Description | Department of Education - National Pupil Database - ADRC England Proj 0128 |
| Organisation | University of Southampton |
| Department | Administrative Data Research Centre for England |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADRC Wales worked with ADRC England to successfully negotiate for the English NPD data from Department of Education. |
| Collaborator Contribution | The Department of Education has supplied their NPD data to SAIL/ADRC Wales for use by ADRN Proj 0128 (an ESRC funded project).. |
| Impact | NPD data supplied by DfE is being analysed by researchers on ADRN Proj 0128. |
| Start Year | 2017 |
| Description | Flying Start Gwynedd Data |
| Organisation | Gwynedd Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Swansea University Data Science team agreed to continue delivering on commitments made under the ADRC Wales grant. These commitments were to support research with the Flying Start team within the council to generate value from their data in order to evidence the benefits of their support programme. |
| Collaborator Contribution | The Flying Start team signed a Data Disclosure Agreement with the university. The plan is to provide anonymous data to the university for research. |
| Impact | No outcomes at this stage, but research outputs that were not previously achievable prior to the collaboration are anticipated |
| Start Year | 2018 |
| Description | Flying Start Monmouth Data |
| Organisation | Monmouthshire County Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Swansea University Data Science team agreed to continue delivering on commitments made under the ADRC Wales grant. These commitments were to support research with the Flying Start team within the council to generate value from their data in order to evidence the benefits of their support programme. |
| Collaborator Contribution | The Flying Start team signed a Data Disclosure Agreement with the university. The plan is to provide anonymous data to the university for research. |
| Impact | No outcomes at this stage, but research outputs that were not previously achievable prior to the collaboration are anticipated |
| Start Year | 2019 |
| Description | Flying Start Swansea Data |
| Organisation | Swansea Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Swansea University Data Science team agreed to continue delivering on commitments made under the ADRC Wales grant. These commitments were to support research with the Flying Start team within the council to generate value from their data in order to evidence the benefits of their support programme. |
| Collaborator Contribution | The Flying Start team signed a Data Disclosure Agreement with the university and have provided initial datasets. There is a plan to provide further data and some analyst support from the council team. |
| Impact | No outcomes at this stage, but research outputs that were not previously achievable prior to the collaboration are anticipated |
| Start Year | 2018 |
| Description | Homelessness Data from Welsh Local Authorities - Proj 0127, Proj 0118 |
| Organisation | Swansea Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has successfully negotiated with Swansea County Council for their homelessness administrative data, a data sharing agreement has been signed and we are currently awaiting transfer. |
| Collaborator Contribution | Swansea County Council have agreed to deposit their homelessness data with ADRC Wales/SAIL. |
| Impact | Projects facilitated by ADRC Wales can apply to have access to this data. |
| Start Year | 2017 |
| Description | Looked after children data (Children in Need census/Children in receipt of care and support/SSDA903) |
| Organisation | Blaenau Gwent Local Authority |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has successfully negotiated with Swansea Council in order to get their Looked after Children data deposited into SAIL/ADRC Wales. |
| Collaborator Contribution | Swansea County Council have deposited their Looked after Children data in SAIL/ADRC Wales. |
| Impact | Swansea County Council's Looked after Children data is available for use by Proj 88 and for use by other projects on an application basis. |
| Start Year | 2017 |
| Description | MCS - UCL |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets |
| Collaborator Contribution | Provision of agreed MCS datasets. The study began in 2000 and is conducted by the Centre for Longitudinal Studies (CLS), it aims to chart the conditions of social, economic and health advantages and disadvantages facing children born at the start of the 21st Century. |
| Impact | Research using provisioned data is ongoing |
| Start Year | 2019 |
| Description | NEST, Arbed, HEED DATA - PROJ 62 Fuel Poverty |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales have negotiated for NEST, Arbed and HEED data to be deposited in SAIL/ADRC Wales for use in analysis by a project being facilitated by them. |
| Collaborator Contribution | The Welsh Government has deposited NEST, Arbed, and HEED data in SAIL for use by an ADRC facilitated project. |
| Impact | ADRC Wales now has access to NEST, Arbed, and HEED data and can allow the approved project requiring this data to use it. A Data Brief on Fuel Poverty Intervention Data was published by ADRC Wales in 2017. Two findings reports have been published by Welsh Government based on this project's research. |
| Start Year | 2015 |
| Description | National Pupil Database |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has requested and been given approval to use the NPD database on several projects being facilitated by them. |
| Collaborator Contribution | The Welsh Government have agree that ADRC Wales can have access to the NPD so it can allow projects being facilitated by them to use this data for analysis. |
| Impact | Projects being facilitated by ADRC Wale have access to NPD on a project by project approval basis. |
| Start Year | 2015 |
| Description | ONS Data Provision |
| Organisation | Office for National Statistics |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets |
| Collaborator Contribution | Providing users the opportunity to make online researcher and project accreditation applications under the DEA, and enable researchers to make change requests to their projects. The facility to request output clearances, data ingests and software will only be available for projects in the SRS, in RAS at this time. The research project application process will enable researchers to select a data access processor in RAS on the basis of the data they have selected for their research. A number of ONS data owners have indicated that they are happy to make their secure data available for research via all DEA accredited data access (provision) processors. SAIL is one of these. This has opened up a vast range of opportunities for data acquisition |
| Impact | DEA accreditation confirmed following ONS site visit and audit response. |
| Start Year | 2019 |
| Description | Office for National Statistics - Proj 0115 |
| Organisation | Administrative Data Service |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | ADRC Wales worked with the Administrative Data Service and Welsh Government to successfully negotiate for ONS UK Census 2011 data. |
| Collaborator Contribution | Office for National Statistics has supplied Census 2011 data to SAIL/ADRC W for use by ADRN Proj 0115. |
| Impact | ONS Census data is being analysed by the researcher on Proj 0115. |
| Start Year | 2017 |
| Description | Office for National Statistics - Proj 0115 |
| Organisation | Office for National Statistics |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | ADRC Wales worked with the Administrative Data Service and Welsh Government to successfully negotiate for ONS UK Census 2011 data. |
| Collaborator Contribution | Office for National Statistics has supplied Census 2011 data to SAIL/ADRC W for use by ADRN Proj 0115. |
| Impact | ONS Census data is being analysed by the researcher on Proj 0115. |
| Start Year | 2017 |
| Description | PROJ 0129 - Does local authority care make a difference to the lives of vulnerable children? |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. |
| Collaborator Contribution | Cardiff University researchers have brought this research project to the ADRC Wales in order to be able to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2016 |
| Description | Proj 0127 - The health impacts of homelessness services in a Welsh Local Authority |
| Organisation | Cardiff University |
| Department | School of Social Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | WISERD researchers have brought this research project to the ADRC in order to be able to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. The researchers on this project are from the social sciences and geography and planning. |
| Start Year | 2016 |
| Description | Proj 016 An investigation into the impact of disability on employment in Wales |
| Organisation | Cardiff University |
| Department | Economics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. Researchers have been trained by ADRC Wales staff in the safe use of data and have attained their ADRN Safe Researcher Accreditation. |
| Collaborator Contribution | Researchers from Swansea and Cardiff University have brought this research project to the ADRC Wales. |
| Impact | A new dataset of linked data has been produced, this has been reported in the relevant common outcome section. Interim statistical outputs have been produced from the linked data to-date. The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Proj 016 An investigation into the impact of disability on employment in Wales |
| Organisation | Swansea University |
| Department | School of Management |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. Researchers have been trained by ADRC Wales staff in the safe use of data and have attained their ADRN Safe Researcher Accreditation. |
| Collaborator Contribution | Researchers from Swansea and Cardiff University have brought this research project to the ADRC Wales. |
| Impact | A new dataset of linked data has been produced, this has been reported in the relevant common outcome section. Interim statistical outputs have been produced from the linked data to-date. The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Proj 022 Examining contributory factors in road traffic collisions data involving older people in Wales |
| Organisation | Swansea University |
| Department | College of Medicine |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | Swansea University has brought this research project to the ADRC Wales in order to further their research through the use of linked data. |
| Impact | A social science project with researchers from gerontology and criminology backgrounds. The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Proj 033 - Examining the Effects of Local Authority Housing Assistance on the Reconviction Rates of Homeless Prison Leavers |
| Organisation | Cardiff University |
| Department | School of Geography and Planning |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborator through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for a member of the research team on this project, the researcher is now an ADRN Accredited Safe Researcher. |
| Collaborator Contribution | A researcher from Cardiff University brought this research project to the ARDC Wales in order to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Proj 035 Family health events and pupil performance indicators in Wales |
| Organisation | Swansea University |
| Department | School of Management |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | Researchers from Swansea University have brought this research project to the ARDC Wales in order to further their research through the use of linked data. |
| Impact | This a social science collaboration working with researchers from Economics. The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Proj 056 Job quality, well-being and health |
| Organisation | Cardiff University |
| Department | School of Social Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. Unfortunately the project brought by the collaborators has been turned down by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | Researchers from Cardiff University have brought this research project to the ARDC Wales in order to further their research through the use of linked data. They also were to contribute a data set to the ADRC Wales Catalogue. |
| Impact | The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who unfortunately turned it down. |
| Start Year | 2015 |
| Description | Proj 080 - The Relationship between benefit sanctions, poverty and deprivation |
| Organisation | Cardiff University |
| Department | School of Social Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. The researchers on this project have attended and passed the SURE accreditation training held by ADRC Wales. Work regarding data acquisition has also been carried out by ADRC Wales' research support officers. . |
| Collaborator Contribution | Researchers from Cardiff University have brought this research project to the ARDC Wales in order to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. Unfortunately the data owners were not able to supply the data requested by this project and therefore the project has been stopped. |
| Start Year | 2016 |
| Description | Proj 113 - Explaining associations between job characteristics and objective and subjective measures of well-being |
| Organisation | Cardiff University |
| Department | School of Social Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for a member of the research team on this project, the researcher is now an ADRN Accredited Safe Researcher. |
| Collaborator Contribution | Cardiff University have brought this research project to the ADRC in order to be able to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. Unfortunately this project has had to be stopped as there were issues with consent to link with some of the data. |
| Start Year | 2015 |
| Description | Proj 115 - Exploring differences in the reporting of Welsh language ability: An exploratory study linking survey and Census data. |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for a member of the research team on this project, the researcher is now an ADRN Accredited Safe Researcher. |
| Collaborator Contribution | Welsh Government have brought this research project to the ADRC in order to be able to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2016 |
| Description | Proj 131 - Use of administrative data in developing direct measures of social capital |
| Organisation | Wales Institute of Social and Economic Research, Data & Methods |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | WISERD researchers have brought this research project to the ADRC in order to be able to further their research through the use of linked data. |
| Impact | The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2016 |
| Description | Proj 34 Extending the opportunities for prevention of suicide |
| Organisation | Swansea University |
| Department | Swansea University Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. |
| Collaborator Contribution | Researchers from Swansea University have brought this research project to the ARDC Wales in order to further their research through the use of linked data. The ADS has helped progress this project by assisting with feasibility and data negotiations. |
| Impact | A Social Science research project brought by researchers at Swansea Medical School. The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Proj 34 Extending the opportunities for prevention of suicide |
| Organisation | University of Southampton |
| Department | Administrative Data Research Centre for England |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. |
| Collaborator Contribution | Researchers from Swansea University have brought this research project to the ARDC Wales in order to further their research through the use of linked data. The ADS has helped progress this project by assisting with feasibility and data negotiations. |
| Impact | A Social Science research project brought by researchers at Swansea Medical School. The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Rhys Davies - GW4 Building Communities Programme |
| Organisation | Equal Pay Portal |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Rhys Davies is working along-side colleagues in Cardiff Business School and in collaboration with GW4 partners (Exeter, Bath and Bristol) on a GW4 Accelerator funded project 'The GW4 Pay Equality Research Consortium' (PERC). The research team will bring their expertise in employment relations and data access to investigate opportunities to enhance research access to sensitive employer data. |
| Collaborator Contribution | The GW4 PERC combines expertise in pay inequality and the collection of hard-to-access data. GW4 universities employ around 40 colleagues working directly on pay and income inequality, gender disadvantage or affiliated topics within research institutes and centres. Representing this community are six academics whose work focuses on the intersections of characteristics of disadvantage (Woodhams, Exeter), gendered perceptions of capabilities (Jeanes, Exeter), collecting data on pay inequality (Davies (Cardiff) Parken (Cardiff), Milner (Bath)), wage discrimination and labour markets (Schwartz) and embedding pay equality in organisations (Parken, Milner). Researchers have experience with the analysis of 'big' (i.e. non-consented administrative) data (Davies, Schwartz (Bristol), Woodhams). Our external partner is Sheila Wild from the equal pay consultancy www.equalpayportal.co.uk . Sheila has worked with The Law Society, the EHRC, the NUT, TUC, the CIPR, WAVE Wales, Eversheds and BITC. Sheila is widely acknowledged as one of the UK's leading experts on equal pay issues, having first headed up the EOC / EHRC's strategy in respect of equal pay claims. |
| Impact | The project is in it's early stages and has not yet produced any outputs (3 March 2016) |
| Start Year | 2016 |
| Description | Rhys Davies - GW4 Building Communities Programme |
| Organisation | University of Bath |
| Department | Department of Politics, Languages and International Studies |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Rhys Davies is working along-side colleagues in Cardiff Business School and in collaboration with GW4 partners (Exeter, Bath and Bristol) on a GW4 Accelerator funded project 'The GW4 Pay Equality Research Consortium' (PERC). The research team will bring their expertise in employment relations and data access to investigate opportunities to enhance research access to sensitive employer data. |
| Collaborator Contribution | The GW4 PERC combines expertise in pay inequality and the collection of hard-to-access data. GW4 universities employ around 40 colleagues working directly on pay and income inequality, gender disadvantage or affiliated topics within research institutes and centres. Representing this community are six academics whose work focuses on the intersections of characteristics of disadvantage (Woodhams, Exeter), gendered perceptions of capabilities (Jeanes, Exeter), collecting data on pay inequality (Davies (Cardiff) Parken (Cardiff), Milner (Bath)), wage discrimination and labour markets (Schwartz) and embedding pay equality in organisations (Parken, Milner). Researchers have experience with the analysis of 'big' (i.e. non-consented administrative) data (Davies, Schwartz (Bristol), Woodhams). Our external partner is Sheila Wild from the equal pay consultancy www.equalpayportal.co.uk . Sheila has worked with The Law Society, the EHRC, the NUT, TUC, the CIPR, WAVE Wales, Eversheds and BITC. Sheila is widely acknowledged as one of the UK's leading experts on equal pay issues, having first headed up the EOC / EHRC's strategy in respect of equal pay claims. |
| Impact | The project is in it's early stages and has not yet produced any outputs (3 March 2016) |
| Start Year | 2016 |
| Description | Rhys Davies - GW4 Building Communities Programme |
| Organisation | University of Bristol |
| Department | School of Economics, Finance and Management |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Rhys Davies is working along-side colleagues in Cardiff Business School and in collaboration with GW4 partners (Exeter, Bath and Bristol) on a GW4 Accelerator funded project 'The GW4 Pay Equality Research Consortium' (PERC). The research team will bring their expertise in employment relations and data access to investigate opportunities to enhance research access to sensitive employer data. |
| Collaborator Contribution | The GW4 PERC combines expertise in pay inequality and the collection of hard-to-access data. GW4 universities employ around 40 colleagues working directly on pay and income inequality, gender disadvantage or affiliated topics within research institutes and centres. Representing this community are six academics whose work focuses on the intersections of characteristics of disadvantage (Woodhams, Exeter), gendered perceptions of capabilities (Jeanes, Exeter), collecting data on pay inequality (Davies (Cardiff) Parken (Cardiff), Milner (Bath)), wage discrimination and labour markets (Schwartz) and embedding pay equality in organisations (Parken, Milner). Researchers have experience with the analysis of 'big' (i.e. non-consented administrative) data (Davies, Schwartz (Bristol), Woodhams). Our external partner is Sheila Wild from the equal pay consultancy www.equalpayportal.co.uk . Sheila has worked with The Law Society, the EHRC, the NUT, TUC, the CIPR, WAVE Wales, Eversheds and BITC. Sheila is widely acknowledged as one of the UK's leading experts on equal pay issues, having first headed up the EOC / EHRC's strategy in respect of equal pay claims. |
| Impact | The project is in it's early stages and has not yet produced any outputs (3 March 2016) |
| Start Year | 2016 |
| Description | Rhys Davies - GW4 Building Communities Programme |
| Organisation | University of Exeter |
| Department | Business School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Rhys Davies is working along-side colleagues in Cardiff Business School and in collaboration with GW4 partners (Exeter, Bath and Bristol) on a GW4 Accelerator funded project 'The GW4 Pay Equality Research Consortium' (PERC). The research team will bring their expertise in employment relations and data access to investigate opportunities to enhance research access to sensitive employer data. |
| Collaborator Contribution | The GW4 PERC combines expertise in pay inequality and the collection of hard-to-access data. GW4 universities employ around 40 colleagues working directly on pay and income inequality, gender disadvantage or affiliated topics within research institutes and centres. Representing this community are six academics whose work focuses on the intersections of characteristics of disadvantage (Woodhams, Exeter), gendered perceptions of capabilities (Jeanes, Exeter), collecting data on pay inequality (Davies (Cardiff) Parken (Cardiff), Milner (Bath)), wage discrimination and labour markets (Schwartz) and embedding pay equality in organisations (Parken, Milner). Researchers have experience with the analysis of 'big' (i.e. non-consented administrative) data (Davies, Schwartz (Bristol), Woodhams). Our external partner is Sheila Wild from the equal pay consultancy www.equalpayportal.co.uk . Sheila has worked with The Law Society, the EHRC, the NUT, TUC, the CIPR, WAVE Wales, Eversheds and BITC. Sheila is widely acknowledged as one of the UK's leading experts on equal pay issues, having first headed up the EOC / EHRC's strategy in respect of equal pay claims. |
| Impact | The project is in it's early stages and has not yet produced any outputs (3 March 2016) |
| Start Year | 2016 |
| Description | STATS 19 Data |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer negotiated for STATS 19 data to be deposited by Welsh Government into SAIL/ADRC Wales. |
| Collaborator Contribution | The Welsh Government deposited STATS 19 dataset in SAIL for use by one of the projects being facilitated by ADRC Wales. |
| Impact | ADRC Wales has STATS 19 as a new dataset. |
| Start Year | 2015 |
| Description | Skill and Employment Survey 2006 & 2012 - Proj 113 |
| Organisation | Cardiff University |
| Department | School of Social Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | ADRC Wales has successfully negotiated with the data owner in order to get their Skill and Employment Surveys 2006 & 2012 deposited in SAIL/ADRC Wales. |
| Collaborator Contribution | The data owner has deposited the Skill and Employment Surveys 2006 & 2012 in SAIL/ADRC Wales. |
| Impact | Skill and Employment Surveys 2006 & 2012 have been successfully brought into ADRC Wales for use by one of the projects they are supporting. Unfortunately this project has been stopped due to consent to link issues on one of the data sets. |
| Start Year | 2015 |
| Description | South Wales Police - Known Victims of Domestic Abuse and CSE and Missing Persons Data - Proj 088 |
| Organisation | South Wales Police |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has successfully negotiated with South Wales Police in order to get their Known Victims of Domestic Abuse and CSE and Missing Persons Data deposited in SAIL/ADRC Wales. |
| Collaborator Contribution | South Wales Police have deposited the Known Victims of Domestic Abuse and CSE and Missing Persons Data in SAIL/ADRC Wales. |
| Impact | Known Victims of Domestic Abuse and CSE and Missing Persons Data has been successfully brought into ADRC Wales for use by one of the projects they are supporting. |
| Start Year | 2016 |
| Description | Sports Wales - Active Adults Survey & Enhanced Recreational database - Proj 004 |
| Organisation | Sport Wales |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | ADRC Wales has successfully negotiated with Sports Council Wales in order to get their Active Adults Survey and their Enhanced Recreational database data deposited in SAIL/ADRC Wales. |
| Collaborator Contribution | Sports Council Wales has deposited the Active Adults Survey data and Enhanced Recreational database data in SAIL/ADRC Wales. |
| Impact | Active Adults Survey and Enhanced Recreational database data have been successfully brought into ADRC Wales for use by one of the projects they are supporting. Researchers are using the data for analysis purposes. ADRC Wales published Data Brief 10 on Active Adults Survey in 2018. |
| Start Year | 2015 |
| Description | Supporting People Data |
| Organisation | Blaenau Gwent Local Authority |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | This collaboration with the Local Authorities was to bring in data specifically for one of projects PROJ 037 being facilitated by the ADRC Wales. |
| Collaborator Contribution | Supporting people data sets were transferred to SAIL/ADRC Wales from the two Local Authorities |
| Impact | Data acquired through this collaboration has been linked and used for a Welsh Government, Swansea University, ADRC Wales collaborative project. An initial feasibility report was published by Welsh Government in November 2015, the final report will be published in March 2016. The findings were of interest to charities who have linked to and commented on the report. http://www.housinglin.org.uk/_library/Resources/Housing/OtherOrganisation/Untitled_attachment_00049.pdf Another notable outcome is that the Welsh Government is creating a funded research post in order to continue this research. |
| Start Year | 2015 |
| Description | Supporting People Data |
| Organisation | Swansea Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | This collaboration with the Local Authorities was to bring in data specifically for one of projects PROJ 037 being facilitated by the ADRC Wales. |
| Collaborator Contribution | Supporting people data sets were transferred to SAIL/ADRC Wales from the two Local Authorities |
| Impact | Data acquired through this collaboration has been linked and used for a Welsh Government, Swansea University, ADRC Wales collaborative project. An initial feasibility report was published by Welsh Government in November 2015, the final report will be published in March 2016. The findings were of interest to charities who have linked to and commented on the report. http://www.housinglin.org.uk/_library/Resources/Housing/OtherOrganisation/Untitled_attachment_00049.pdf Another notable outcome is that the Welsh Government is creating a funded research post in order to continue this research. |
| Start Year | 2015 |
| Description | Swansea County Council - Child Social Care/PARIS Data Sets |
| Organisation | Swansea Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has requested and been given approval to use Swansea County Council's Child Social Care Data and PARIS data for PROJ-088 which is being facilitated by us. |
| Collaborator Contribution | The Swansea County Council have agreed that ADRC Wales can have access to Child Social Care Data and PARIS data for use by project 088. |
| Impact | A project being facilitated by ADRC Wale has access to this data. The data is now stored in SAIL and can be used for analysis by other projects. |
| Start Year | 2016 |
| Description | WCVA data - Proj 131 |
| Organisation | Wales Council for Voluntary Action |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | ADRC Wales has successfully negotiated with WCVA in order to get their data deposited in SAIL/ADRC Wales. |
| Collaborator Contribution | WCVA has deposited their data with SAIL/ADRC Wales. |
| Impact | WCVA data has been successfully brought into ADRC Wales for use by one of the projects they are supporting. Data Brief 9 on WCVA data was written and published in 2017. Analysis on this data set has been undertaken. |
| Start Year | 2016 |
| Description | WEFO data |
| Organisation | Government of Wales |
| Department | Welsh European Funding Office |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets |
| Collaborator Contribution | Provision of 2007-2013 European Social Fund data. |
| Impact | Provision of 2007-2013 European Social Fund data. |
| Start Year | 2019 |
| Description | Welsh Blood Service data - Proj 0131 |
| Organisation | Welsh Blood Service |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | ADRC Wales has successfully negotiated with the Welsh Blood Service for aggregate blood registration and donation statistics for use by Proj 0131. |
| Collaborator Contribution | The Welsh Blood Service supplied aggregate blood registration and donation statistics for ADRN Proj 0131. |
| Impact | Data from the Welsh Blood Service has been used by ADRN Proj 0131. The researcher produced several maps for the Welsh Blood Service using the data provided. Analysis of the data is on-going. |
| Start Year | 2017 |
| Description | Welsh Government - Flying Start Data |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has requested and been given approval to use the Flying Start Data on project 003 being facilitated by them. |
| Collaborator Contribution | The Welsh Government have supplied the Flying Start Areas data to ADRC Wales and this data is being used in analysis. |
| Impact | A project being facilitated by ADRC Wale has access to this data set. This project is a collaboration between social science academics and government statisticians. |
| Start Year | 2015 |
| Description | Welsh Government - Key Stage 5 Data for 6th Form Students - Proj 021 |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has requested and been given approval to use the Key Stage 5 Data for 6th Form Students on Proj 021 being facilitated by them. |
| Collaborator Contribution | The Welsh Government have agreed that ADRC Wales can have access to the Key Stage 5 Data for 6th Form Students for use on a project they are facilitating. |
| Impact | A project being facilitated by ADRC Wale will have access to this data set and the data will be stored in SAIL for use on other projects. |
| Start Year | 2015 |
| Description | Welsh Government - Life Long Learning Wales Record (LLWR) data - Proj 021 |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | ADRC Wales has successfully negotiated with Welsh Government in order to get their Life Long Learning Wales Record (LLWR) data deposited in SAIL/ADRC Wales. |
| Collaborator Contribution | Welsh Government has deposited the LLWR data in SAIL/ADRC Wales. |
| Impact | LLWR data has been successfully brought into ADRC Wales for use by one of the projects they are supporting. ADRC Wales published Data Brief 4 on LLWR data in 2015. |
| Start Year | 2015 |
| Description | Welsh Government and ADRC Wales Projects - PROJ 003 Flying Start |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. |
| Collaborator Contribution | The Welsh Government is an enthusiastic supporter and user of the ADRC Wales data linkage facility, they also help with the provision of and access to data. In this collaboration, working with academics from the ADRC Wales, the Welsh Government are collaborating on research in a key area of social interest in order to provide evidence for policy development thereby adding to the societal impact the ADRC Wales is making. A Welsh Government researcher has been carrying out analysis on Flying Start Data in preparation for the project. |
| Impact | This project is not multi-disciplinary. The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Welsh Government and ADRC Wales Projects - PROJ 004 The social and health impacts of participation in culture and sports |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for a member of the research team on this project, the researcher is now an ADRN Accredited Safe Researcher. |
| Collaborator Contribution | The Welsh Government is an enthusiastic supporter and user of the ADRC Wales data linkage facility, they also help with the provision of and access to data. In this collaboration, working with academics from The University of South Wales, and the ADRC Wales, the Welsh Government are collaborating on research in a key area of social interest in order to provide evidence for policy development thereby adding to the societal impact the ADRC Wales is making. |
| Impact | This a multi-disciplinary collaboration between social science, natural sciences and medicine. The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Welsh Government and ADRC Wales Projects - PROJ 004 The social and health impacts of participation in culture and sports |
| Organisation | University of South Wales |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for a member of the research team on this project, the researcher is now an ADRN Accredited Safe Researcher. |
| Collaborator Contribution | The Welsh Government is an enthusiastic supporter and user of the ADRC Wales data linkage facility, they also help with the provision of and access to data. In this collaboration, working with academics from The University of South Wales, and the ADRC Wales, the Welsh Government are collaborating on research in a key area of social interest in order to provide evidence for policy development thereby adding to the societal impact the ADRC Wales is making. |
| Impact | This a multi-disciplinary collaboration between social science, natural sciences and medicine. The main output for the ADRC Wales is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2015 |
| Description | Welsh Government and ADRC Wales Projects - Proj 005 - The Feasibility of Creating an Individual Deprivation Score using Linked Data |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. |
| Collaborator Contribution | The Welsh Government is an enthusiastic supporter and user of the ADRC Wales data linkage facility, they also help with the provision of and access to data. In this collaboration ADRC Wales and the Welsh Government are collaborating on research in a key area of social interest in order to provide evidence for policy development thereby adding to the societal impact the ADRC Wales is making. The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Impact | This is a social science project with researchers from Government and statistical backgrounds. The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Start Year | 2014 |
| Description | Welsh Government and ADRC Wales Projects - Proj 037 - Supporting People Programme |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborators through the ADRN research project application process. The project brought by the collaborators has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | The Welsh Government is an enthusiastic supporter and user of the ADRC Wales data linkage facility, they also help with the provision of and access to data. In this collaboration, working with academics from Swansea University and the ADRC Wales, the Welsh Government are collaborating on research in a key area of social interest in order to provide evidence for policy development thereby adding to the societal impact the ADRC Wales is making. The Welsh Government is funding a Swansea University based researcher to carry out analysis along side an existing Swansea University researcher. |
| Impact | This feasibility study has lead to the Welsh Government funding a full study of the impacts of the Supporting People initiative, PROJ-0118 of An interim feasibility report was written by the project for the Welsh Government in November 2015. The final report is due to be published by the Welsh Government in March 2016. A new linked dataset was created for this project and has been reported on in the relevant common outcomes section. The ADRC Wales facilitated the collaboration through the processes necessary for submission of the project to the ADRN Approvals Panel. The project has been fully approved. |
| Start Year | 2015 |
| Description | Welsh Government and ADRC Wales Projects - Proj 062 Fuel Poverty |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | An ADRC Research Support Officer (RSO) has facilitated and supported the collaborator through the ADRN research project application process. The project brought by the collaborator has now been successfully approved by the ADRN Approvals Panel. Work regarding data acquisition has also been carried out. ADRC Wales have provided Safe Researcher Accreditation Training for members of the research team on this project, the researchers are now ADRN Accredited Safe Researchers. |
| Collaborator Contribution | The Welsh Government is an enthusiastic supporter and user of the ADRC Wales data linkage facility, they also help with the provision of and access to data. In this collaboration the Welsh Government has funded a Swansea University based researcher to carryout the analysis alongside a Welsh Government statistician who has started on preliminary analysis of data. ADRC Wales and the Welsh Government are collaborating on research in a key area of social interest in order to provide evidence for policy development thereby adding to the societal impact the ADRC Wales is making. This a multi-disciplinary collaboration between social science, natural sciences and medicine. The main output for the ADRC Wales at this stage is that this collaboration has been presented to the ADRN Approvals Panel who have fully approved it. |
| Impact | This is a social science project with researchers from public health and statistical backgrounds. The initial output for the ADRC Wales was that this collaboration was been presented to the ADRN Approvals Panel who have fully approved it. Two Welsh Government Findings Reports have been published based on the analysis carried out through this collaboration. The findings will inform the consultation on a future demand-led fuel poverty scheme and Cabinet Secretary for Environment and Rural Affairs, Lesley Griffiths commented on the findings. This project is on going. |
| Start Year | 2015 |
| Description | ZOE |
| Organisation | ZOE Global Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | The organisation provides the ZOE team with infrastructure to host their Covid Symptom Tracker dataset at no cost. Additionally, the team fully support the governance arrangements around this dataset and manage the data access process, from application through to provisioning. |
| Collaborator Contribution | ZOE provide their Covid-19 Symtpom Tracker data and daily updates for the SAIL platform to host. This data is not owned by SAIL, but is entrusted to them for provisioning to external researchers following an application and governance process |
| Impact | Multiple internal and external projects using the dataset have informed decisions and policy making plans at a government and national NHS level |
| Start Year | 2020 |
| Title | Data Processing tool for GP data - Lee |
| Description | New data processing system for the upload processing of GP Data to SAIL |
| Type Of Technology | Software |
| Year Produced | 2017 |
| Impact | reduce data processing time from 3 weeks to 5 days, reduce disk space requirement saving 400GB, increased process logging to help with problem detection, will help with future more frequent data processing for GP data |
| Title | Lee Au-Yeung - Application for reporting on incoming data |
| Description | SSRS Reports on GP engagement and GP data file data |
| Type Of Technology | Webtool/Application |
| Year Produced | 2015 |
| Impact | Enables researchers to view timely summaries on incoming GP data |
| Title | Lee Au-Yeung - Automated data upload for WRRS |
| Description | New software to automate the upload of WRRS pathology data to SAIL |
| Type Of Technology | Software |
| Year Produced | 2018 |
| Impact | Software is able to complete a full refresh in 2 days, if this was done manually, this would take about 4 weeks. |
| Title | Lee Au-Yeung - Data Processing tool for NWIS |
| Description | New data processing service to automate upload of NHS Wales Warehouse Datasets to SAIL and perform uploading via scheduler |
| Type Of Technology | Software |
| Year Produced | 2018 |
| Impact | Reduced upload processing time for 12 datasets from 10 days to 3 days. |
| Title | Lee Au-Yeung - Data conversion tool (SPSS to csv) |
| Description | Java application to extract data from SPSS file to csv format |
| Type Of Technology | Software |
| Year Produced | 2015 |
| Impact | For larger datasets, this reduces conversion time from hours using the manual conversion method to seconds. |
| Title | Lee Au-Yeung - Data conversion tool (xlsx to csv) |
| Description | C# application to convert xlsx files to csv format |
| Type Of Technology | Software |
| Year Produced | 2015 |
| Impact | Reduction in manual resource required when large batches for files need converting |
| Title | Lee Au-Yeung - Data migration tool (SQL Server to DB2) |
| Description | SSIS/C# application to automate data migration from SQL Server to DB2 for UKHD dataset |
| Type Of Technology | Software |
| Year Produced | 2015 |
| Impact | This has reduced processing time from weeks to hours. In turn, this has led to a reduction in manual resource required |
| Title | Lee Au-Yeung - Data movment tool (DB2 to SQL Server) |
| Description | c# application to copy data from DB2 to SQL Server |
| Type Of Technology | Software |
| Year Produced | 2016 |
| Impact | reduces time to copy data from hours to minutes |
| Title | Lee Au-Yeung - Data upload web service |
| Description | web service application for providers to upload files to ADRC & SAIL |
| Type Of Technology | Software |
| Year Produced | 2016 |
| Impact | facilites scheduled and automated uploads of data from data providers |
| Title | Lee Au-Yeung - Type inference scanning tool |
| Description | c# application to determine field data types in a csv file |
| Type Of Technology | Software |
| Year Produced | 2016 |
| Impact | reduces time and improves accuracy in determining field data types in csv files for very large files |
| Title | Richard Noyce - User access tool |
| Description | ASP .NET application designed to enhance user access to project database |
| Type Of Technology | Webtool/Application |
| Year Produced | 2015 |
| Impact | More accurate and timely administration of project information. Automation of project number assignment |
| Title | Richard Noyce - Web Application supporting encryption |
| Description | Python/Javascript application to provide web based user application to administer project leve encryption |
| Type Of Technology | Webtool/Application |
| Year Produced | 2015 |
| Impact | Reduction in resource required to encrypt projects. Increase in encryption timings |
| Title | UKSeRP (UK Secure eResearch Platform) |
| Description | UKSeRP is a secure data management and analysis platform created through MRC's capital investment in the Farr Institute. It is an integrated suite of hardware and software tools that enables uses to upload and remotely manage their data and make the data available for analysis to distributed research teams. UKSeRP instances have been created for the MRC Dementias Platform UK, UK Biobank outcome adjudication group, ALSPAC, linked Millennium Cohort Data and the Multiple Sclerosis Register. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2014 |
| Impact | UKSeRP supports the development and implementation of distributed multi-disciplinary UK Team Science in providing access to multi-modal multi-cohort data. |
| Description | 'Do the Right Thing', Cochrane Theatre, Southampton Row, London. - 27th January 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | debate regarding 'Do the Right Thing', Cochrane Theatre, Southampton Row, London. |
| Year(s) Of Engagement Activity | 2019 |
| Description | (2013.11.06) - Working Group: ADRN Planning Day at ESRC offices (Swindon) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning day for set up and management of ADRN |
| Year(s) Of Engagement Activity | 2013 |
| Description | (2014.03.03) - Working Group: ADRN Planning Day at Royal Society |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning day for set up and management of ADRN |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.03.18) - Working Group: ADRC-Wales Academic Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Attendance at a meeting defining Co-Applicant engagement model with ADRC-Wales |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.03.25) - Working Group: ADRN Planning Day at RIBA |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning day for set up and management of ADRN |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.05.08) - Exhibition stand: Cardiff Business School Research Fair |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Exhibition stand at City Hall, Cardiff. Presentation on 'Looking Forward to Big Data' given during breakout session |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.07.04) - Presentation: 'Introducing ADRC Wales' at WISERD Conference 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Annual WISERD Conference. Held at Aberystwyth University. 90 sessions across the event including Kakia Chatsiou (ADS), 'Introducing the ADRN' and Rhys Davies (ADRC Wales) 'Introducing ADRC Wales'. |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.07.25) - Working Group: ADRN planning day |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning day for set up and management of ADRN |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.09.16) - Workshop: NISCHR Knowledge Mobolisation Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attendance at a meeting aimed at developing innovative ways to mobilise knowledge across Wales (Linked Data) |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.10.06) ADRN Safe Researcher Accreditation Training Course - Swansea |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRN Safe Researcher Accreditation Training course, run to ensure that all researchers or staff who would be involved with ADRC Wales were trained as Safe Researchers. The course covered the legal responsibilities of a Safe Researcher and Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all day course. Delegates will be able to run approved projects and have access to data via the ADRN. |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2014.12.17) ADRN Safe Researcher Accreditation Training Course - Cardiff |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRN Safe Researcher Accreditation Training course, run to ensure that all researchers or staff who would be involved with ADRC Wales were trained as Safe Researchers. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all day course. Delegates will be able to run approved projects and have access to data via the ADRN. |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2015.01.27) - Working Group: AMS Health of the Public 2040 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To inform decision making Outcome: High level of engagement across the UK from all stakeholder groups. Stimulated imaginative thinking about nature of the problems and opportunities for health and healthcare in 2040 |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.01.29) - Working Group: SAIL User Forum |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Promotion of administrative linked data to analysts |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.03.19) - Workshop: How do we improve access to potentially disclosive data for Wales? |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A workshop on how to improve access to potentially disclosive data in Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.03.19) - Workshop: Role of the ADRN in governmental research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A workshop on how the ADRN can collaborate with government on research |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.03.23) - Event: Launch of the Administrative Data Research Centre Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | The launch of the Administrative Data Research Centre Wales at Swansea University. Attended by delegates drawn from academia, government, NHS, local councils, the voluntary sector and the community, the event introduced the new Centre and showcased the richness and benefits of previous data linkage work undertaken within Wales. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.03.25) - Working Group: ADRN Planning Day at MRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning day for management of ADRN |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.06.01) ADRN Safe Researcher Accreditation and Train the Trainer Course - Cardiff |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRN Safe Researcher Accreditation Training course, run to ensure that all researchers or staff who would be involved with ADRC Wales were trained as Safe Researchers. There was also emphasis on training the delegates to be able disseminate the course.The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all day course. Delegates will be able to run approved projects and have access to data via the ADRN. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.06.03) - Seminar: Third Time Lucky? What can we learn from earlier attempts to measure more than GDP? |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Seminar with Paul Allin organised by ADRC Wales. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.06.18) - Exhibition stand: Welsh Local Government Association (WLGA) Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales stand at Welsh Local Government Association Annual Conference at Brangwyn Hall, Swansea. Attended by 150+ delegates predominantly from local authorities in Wales. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.07.02) - Workshop: Discussing the application process and current projects at WISERD 2015 Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales Research Support Team delivered a free workshop at the WISERD Annual Conference 2015 introducing the Network, Centre, the application process, projects currently under development and a Q&A session |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.07.07) - Presentation: RIASS Grenoble visit |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Jon Smart presented at RIASS Grenoble Conference, Swansea University. Presentation to provide an overview of Network, Centre and work under development. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.07.27) - Presentation: Promoting ADRC-Wales at College of Law, Swansea University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Jo Davies and Cathrine Richards presenting to Swansea University law colleagues on the Centre, how to get involved and examples of projects underway so far. Organised in collaboration with Simon Hoffman. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.09.08) - Workshop: ADRN Internal Event (Impacts) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Attendance at 2 day conference in Greenwich, with facilitation support for a number of workshop events provided by Rob Garlick (ADRC-Wales) |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.09.15) ADRN Safe Researcher Accreditation Training Course - Cardiff |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRN Safe Researcher Accreditation Training course, run to ensure that all researchers or staff who would be involved with ADRC Wales were trained as Safe Researchers. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all day course. Following attendance and successfully passing the Accreditation Training Test delegates will be able to run approved projects and have access to data via the ADRN. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.09.17) - Presentation: Introducing ADRC-Wales to Welsh Centre for Crime and Social Justice (Bangor University group) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Jo Davies and Cathrine Richards delivered a presentation on ADRC Wales to six members of the Welsh Centre for Crime and Social Justice (WCCSJ) group at Bangor University. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.09.18) - Exhibition stand: Welsh Labour Market Summit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Exhibition stand and presentation at Conference by Rhys Davies. Held at Bangor University, attended by delegates from a range of academia, trade unions, labour market practitioners, local government and employers. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.09.18) - Presentation: Introducing ADRC-Wales to Welsh Centre for Crime and Social Justice (Aberystwyth University group) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Jo Davies and Cathrine Richards delivered a presentation on ADRC Wales to members of the Welsh Centre for Crime and Social Justice (WCCSJ) group and fellow academics at Aberystwyth University |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.09.18) - Workshop: Open session with Aberystwyth University researchers |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Jo Davies and Ian Thomas then held an open session with a research group to discuss potential projects. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.10.08) - Presentation: ADRC-Wales Successes delivered at Royal Statistical Society (RSS) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose:To share information Outcome: Heighten awareness of data opportunities in Wales. Greater understanding of ADRN and Farr Institute. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.10.14) - Presentation: 'The Future of Homelessness Data in Wales: Big data to answer big questions' at Cymorth Cymru Homelessness Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Ian Thomas and Pete Mackie (Co-PI) presented on ADRN/ADRC Wales within the context of Welsh homelessness data, and outlined a future ADRN project using Scottish homelessness data linked to prisoner data. This gave Ian and Pete the opportunity to meet with the Chief Executive of Gofal (a mental health charity) which led to further discussions around potential projects using their data. Furthermore, this prompted a successful application from Pete for a PhD grant (see further funding) |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.10.19) - Presentation: Overview of ADRC-Wales/ADRN at Cardiff University postgraduate event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Ian Thomas presented on ADRN/ADRC Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.10.28) - Presentation: Overview of ADRC-Wales/ADRN at DECHIPHer event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Ian Thomas presented on ADRN/ADRC Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.11.11) - Seminar: Overview of ADRC-Wales at Bangor University data linkage session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Jo Davies and Martin Heaven presentation in Bangor University for a session on data linkage following requests from team. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.11.12) - Dialogue: Meeting with Minister for Communities and Tackling Poverty |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Supporting People Project Team met with Lesley Griffiths AM, Minister for Communities and Tackling Poverty on 12th November 2015 to discuss the Supporting People Data Linking Feasibility Study Emerging Findings Report. Welsh Government officials involved in the project also briefed the Minister on the publication of the full feasibility report due 10th March 2016 and, on the basis of a parallel submission by policy officials, the Minister has agreed to fund the first year of a three-year evaluation study which will deliver a quantitative evaluation of the impact of Supporting People on a range of outcomes including health. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://gov.wales/pubdecisionreports/815003/2016/jan-mar/lg06891?lang=en |
| Description | (2015.11.12) - Seminar: UK cohort studies across the life course: A brief introduction |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales external seminar at the Data Science Building. 'Cohort studies across the life course' with three external speakers. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.12.01) - Presentation: Overview of ADRC-Wales/ADRN to SAIL Consumer Panel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | An overview of the ADRC-Wales and ADRN programme was delivered to the SAIL Consumer Panel at Swansea University |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2015.12.01) - Visit at Research Institution: Chinese delegation |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | ADRC Wales information presented by Dr Shangming Zhou at Chinese delegation visit to DSB. |
| Year(s) Of Engagement Activity | 2015 |
| Description | (2016.01.21) ADRN Safe Researcher Accreditation Training Course - Cardiff |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRN Safe Researcher Accreditation Training course, run to ensure that all researchers or staff who would be involved with ADRC Wales were trained as Safe Researchers. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all day course. Following attendance and successfully passing the Accreditation Training Test delegates will be able to run approved projects and have access to data via the ADRN. |
| Year(s) Of Engagement Activity | 2016 |
| Description | (2016.01.26) - Visit at Research Institution: Visit from BIS at Data Science Building, Swansea University |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Guests from BIS visited Swansea University's Data Science Building. During their visit, they toured the facilities (including ADRC-Wales research facilities) and attended presentations on the work of the centre to date. |
| Year(s) Of Engagement Activity | 2016 |
| Description | (2016.03.01) - Seminar: Geographical and Spatial Analysis |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Prof Chris Brunsdon and Prof Dave Martin were invited to discuss how GIS based analysis and visualisation techniques can be used in the context of social sciences and geography, to analyse data whilst maintaining anonymity of individuals and organisations. |
| Year(s) Of Engagement Activity | 2016 |
| Description | (2017.03.22) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The ADRN Safe Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADRN/ ADRC Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/understand-data/sure-training |
| Description | (2017.07.17) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The ADRN Safe Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADRN/ ADRC Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/understand-data/sure-training |
| Description | (2017.09.19) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | The ADRN Safe Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADRN/ ADRC Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. |
| Year(s) Of Engagement Activity | 2017 |
| Description | (2018.05.18) ONS Safe Researcher Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | TThe ONS Safe Researcher Accreditation Training is run to ensure that researchers or staff involved with ONS and/or ADR W data usage have undertaken Safe Researcher training and any accompanying test. The course covers 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADR, for ADR approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL |
| Year(s) Of Engagement Activity | 2018 |
| Description | (2018.06.08) ONS Safe Researcher Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | The ONS Safe Researcher Accreditation Training is run to ensure that researchers or staff involved with ONS and/or ADR W data usage have undertaken Safe Researcher training and any accompanying test. The course covers 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADR, for ADR approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. The course was delivered by Rhys Davies, Cardiff University and Felix Ritchie UWE. |
| Year(s) Of Engagement Activity | 2018 |
| Description | (2018.07.05) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | The ADRN Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADR Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. This course was delivered by Rhys Davies, Cardiff University/ADR Wales. |
| Year(s) Of Engagement Activity | 2018 |
| Description | (2018.09.21) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | The ADRN Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADR Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. This course was delivered by Rhys Davies, Cardiff University/ADR Wales. |
| Year(s) Of Engagement Activity | 2018 |
| Description | (2018.10.26) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | The ADRN Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADR Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. This training was delivered by Rhys Davies, Cardiff University/ADR Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | (2018.11.30) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | The ADRN Safe User of Research Data (SURE) Accreditation Training is run to ensure that researchers or staff involved with ADR Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. It also satisfies the safe researcher training requirements of other data providers such as ONS, UK Data Service and SAIL. This course was delivered by Rhys Davies, Cardiff University/ADR Wales. |
| Year(s) Of Engagement Activity | 2018 |
| Description | (23.11.2016) ADRN Safe User of Research Data (SURE) Accreditation Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRN Safe Researcher Accreditation Training course, run to ensure that researchers or staff involved with ADRN/ ADRC Wales projects have undertaken compulsory Safe Researcher training and the accompanying test. The course covered 1. The Legal responsibilities of a Safe Researcher and 2. Understanding Disclosure Control and Avoiding Disclosive Outputs. It was an all-day event. Delegates will be able to access and analyse data provided to them via the ADRN for their approved projects. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 12-14/9/18 - IPDLN conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Linking Data - Improving Lives, a forum for the presentation and discussion of research and innovation in the area of Linked Population Data Science and Policy Impact. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2016-05-24 - Launch of the Irish Research Board' national data strategy (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Outlining Swansea's contribution to the Irish national strategy |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.hrb.ie/uploads/tx_hrbpublications/Proposals_for_an_Enabling_Data_Environment_for_Health_a... |
| Description | 2016-06-07 - HealthWise Wales Scientific Steering Group (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Steering high profile project with large public engagement component |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.healthwisewales.gov.wales/landingPage.php |
| Description | 2016-06-28 - Presentation to DVLA new CTO and colleagues (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Better understanding of Swansea's data linkage facilities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.14 Academy or Medical Sciences working group - 2016.01.14 (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Working up high impact publication, shaping data collection mechanisms |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf |
| Description | 2016.01.16 - HealthWise Wales Biosampling Workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion of new approaches to sample collection for Health Wise Wales program |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.19 - Health and Care Research Wales Board (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | National health R&D strategic development |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.21 CHERISH-DE National Center Launch (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Launch event |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.02 - Presentation to NHS Digital's Data Access Advisory Group (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overview of safe data linkage and sharing opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.03.01 - ADRC Wales seminar (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Expert Seminar |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.03.22 - Cabinet Office Data Sharing workshop (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Resulted in important sections being included in the Digital Economy bill |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.18 - Dynamic Insights discussion with 02 - Major mobile operator (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Workshop to agree a programme of joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.20 - WHAN conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-W staff attended the Welsh Health Analysts Network promoting ADRC Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.22 - Meeting with NOMS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales staff contributed to a discussion with NOMS about an ADRC Wales project and potential data linkage collaboration with Swansea university |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.25 - ADRC Wales attendance at SAIL Process Mapping workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff provided support and advice at a SAIL workshop. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.27 - People Verus Data debate (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Debate on personal privacy and whether it is still possible in the digital age |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.29 - Domestic Abuse, risk and policing |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC-W staff attended an event related to research, policy and practice from the UK and US for networking purposes and promoting the Centre. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.03 - Crime, Law and Justice Away Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-W staff attendended event to promote the Centre and offering researcher advice |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.09 - Meeting with South Wales Police |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff member met with South Wales Police to discuss potential collaborations and ADRC Wales projects |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.09 - Open data in Healthcare conference (SCATA) (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to delegates on making valuable personal based data safe for research use |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.10 - ADRC Wales seminar at Welsh Government |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | External seminar at Welsh Government in Cathays. Information session for WG staff, detailing the work of the network and centre so far. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.10 - Introduction to ADRC W at Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sharing the benefits of ADRN with a wide selection of policymakers in Welsh Government |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.11 - Health and Care Research Wales Board meeting (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Formulating research strategy for Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.16 - Mobile Data Webex |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Mobile Data Webex |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.17 - WCCSJ Annual Conference in Gregynog |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales attendance at two day conference with promotional stand. ADRC Wales staff also invited to deliver plenary session. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.18 - WG/ADRC Wales - Full Stakeholder Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Working group to make interactions between ADRC-W and Welsh Government efficient and effective |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.24 - ADRC-Wales attendance at CyberUK 2016 conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales staff attended a 2 day conference event which looked at the changing landscape of UK Cyber Security and methods for using data more safely within organisations |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.01 - ADRC-Wales consultation with Data Security experts |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | ADRC-Wales staff inputted into a discussion around further development of data security procedures for Swansea University Data Science group projects |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.02 - ADRN Research Conference London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff member attendance at two day ADRN conference |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.08 - Meeting with Cardiff University Researchers |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff member met with Cardiff Univeristy researchers to discuss potential ADRC project |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.13 - MediWales Directors meeting (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Steering national strategy of this membership organisation of life science businesses |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.13 - International Administrative Data Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Establishing a relationship with representatives of a major US initiative |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.14 - Meeting with US colleagues setting up a national data sharing initiative (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Establishing a relationship with the representative of a major US initiative |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.18 - IG discussion group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Working group advised commercial group on information governance implications of using data from mobile devices |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.21 - Strategic discussions with the DVLA (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Describing trustworthy data safe haven approaches at Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.21 - Visit from DVLA |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff contributed to a discussion with DVLA staff about a potential data linkage collaboration with Swansea University data researchers |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.23 - Stand at Cardiff Business School Research Fair |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales attendance at Research Fair with promotional stand and material. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.24 - Meeting with GE Healthcare (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Building a strategic relationship with an international company |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.27 - Presentation of MS register to patient audiences (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Heighten awareness of opportunity to become involved in sharing data for MS research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.29 - ADRC-Wales presentation at Introduction to Understanding Society presentation course |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Dr Ian Thomas gave presentation on using ADRC-Wales/ADRN at Introduction to Understanding Society course (run by WISERD) |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.29 - ADSS Cymru Conference Llandudno |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | ADRC Wales staff member attendance at two day ADSS conference with promotional stand |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.05 - ESRC Research Methods Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff member attendance at two day ESRC research event with promotional stand |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.05 - SAIL Strategy and Planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales advised at and contributed to a discussion around strategy setting and development for the SAIL data research environment |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.12 - ADRC Wales conference on Data Linkage at Royal Welsh College of Music and Drama |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Seminar outlining the work of the centre, UK and US data linkage projects. Coincided with visit of three US data linkage professors. |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.13 - Visit of US colleagues interested in national systems for data sharing (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Increased understanding of Swansea's capabilities and systems |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.13 - WISERD Conference Swansea |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff member attendance at two day WISERD conference with promotional stand |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.21 - Visit of national delegation from Ireland (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Detailed fact finding mission from Irish government organisations |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.25 - WG and Swansea University collaboration |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales staff member met with researchers from Swansea University and policymakers at Welsh Government to discuss future collaboration and offering researcher advice |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.26 - The Royal Society and the British Academy seminar on connecting debates on the governance of data and its uses (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Thought provoking event about the possible futures for personal data in the UK |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.10 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.24 - IPDLN Conference Swansea |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff member attendance at three day IPDLN conference with promotional stand (ADRN) |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ipdlnconference2016.org/ |
| Description | 2016.08.28 - Running and chairing of international conference on data linkage (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 600+ researchers from across the world, coming to hear about advances in safe and effective data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.30 - Mobile Data Webex |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Mobile Data Webex |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.30 - Public Engagement activity (Tenovus) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Tenovus networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.05 - Public Engagement activity (Age Cymru) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Age Cymru Swansea Bay networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.06 - Public Engagement activity (Swansea County Council) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Swansea County Council - Local Area Coordination team networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.06 - Visit of New Zealand's national data sharing infrastucture (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Recognition on Swansea's contribution to the formulation of New Zealand's national architecture and systems for data linkage and sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.07 - ADRC-Wales attendance at National Pupil Databases User Group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Katy Huxley attendance at event promoting ADRC-Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.08 - Lunch and Learn session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Further ideas generating session between ADRC Wales/MORPHeD staff and external collaborators on use of mobile data for research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.13 - Presentation of MS register to patient audiences (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Heighten awareness of opportunity to become involved in sharing data for MS research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.13 - Public Engagement activity (SCVS) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | SCVS networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - ADRC-Wales attendance at Labour Market Summit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Katy Huxley attendance at event promoting ADRC-Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - Public Engagement activity (Involving People) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Involving People Network networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - Public Engagement activity (Technocamps) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Technocamps networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Public Engagement activity (Carmarthenshire 50+) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Carmarthenshire 50+ Networking Event |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Public Engagement activity (Dementia Friends) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Dementia Friends Networking Meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.16 - ADRC-Wales attendance at '50 Years of Social Science' Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Katy Huxley attendance at event promoting ADRC-Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.19 - Public Engagement activity (PHW Carmarthenshire and Pembrokeshire) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public Health Wales Carmarthenshire and Pembrokeshire networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.20 - Public Engagement activity (CETMA) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | CETMA Llanelli |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.21 - Public Engagement activity (Llanelli Town Council) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Llanelli Town Council |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.22 - CHERISH Imaginarium (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Running a workshop to surface exciting new research and innovation project ideas |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - Public Engagement activity (Carmarthenshire Communities First) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire Communities First |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - Visit from ONS |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC-Wales staff contributed to a discussion with ONS about a potential data linkage collaboration with Swansea University |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.26 - Strategic discussions about cooperation with new ONS Data Science campus (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Open discussion about opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.28 - Health Informatics Consumer Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Health Informatics Consumer Panel |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.29 - Public Engagement activity (Age Cymru Sir Gar) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Age Cymru Sir Gar |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.02 - ICES Scientific Advisory Committee - International steering group of major Canadian data research centre (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Advising on strategy |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.05 - ADRC-Wales attendance at Cardiff University Research staff association |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales attendance offering researcher advice, networking and promotional ADRC-Wales stand |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.11 - Visit from NHS Digital |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff contributed to a discussion with NHS Digital about a potential data linkage collaboration with Swansea University data researchers |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.13 - ADRC Wales seminar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Seminar focussed on crime and social justice at Cardiff University with guest speaker Nick Tilley and Prof Martin Innes |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.14 - Public Engagement activity (Afan Communities First) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Afan Communities First |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.14 - Welsh Government Flying Start |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC-W staff attended a meeting to discuss potential support for ADRC-Wales Welsh Government research projects |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.19 - Public Engagement activity (Carmarthenshire 3rd sector Brokers) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire 3rd Sector Brokers |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.25 - Dr Katy Huxley gave presentation at Cardiff University Research Staff Association |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-W Research Support Officer Dr Katy Huxley presented to CURSA. 30 research and research support staff attended |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.27 - Welsh Government Flying Start |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC-W staff attended a meeting to discuss potential support for 'Flying Start' research project |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.27 - Welsh Government project development discussions |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff advised on planning aspects for a prospective Welsh Government social research project utilising ADRC Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.28 - Data sharing VC between ADRC Wales and ADRC Scotland |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff supported a technical discussion around the possibility of creating a safe data sharing connection between ADRC-Wales and ADRC-Scotland |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.03 - Visit from NOMS |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff contributed to a discussion with NOMS about a potential data linkage collaboration with Swansea University data researchers |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.04 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.04 - Public Engagement activity (Digital Communities) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire County Council - Digital Communities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.08 - HL7 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC-W staff presented on data re-use and metadata in linked data research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.11 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | SPICE - Time Banking Network |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.15 - Meeting with Swansea Social Services |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff met with Swansea Social Services to discuss future collaborations |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.23 - Public-Academic Research Colloquium - International conference in the US on data sharing of US public data for social research (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Highlighted UK's strengths in platforms and approaches |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.23 - Data visualisation training workshop - 2 day event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Participation in a Data Visualisation workshop delivered to Swansea University Data Science researchers and external visitors |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.24 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Ataxia and me |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.25 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Filming of participants of the ACTIVE project |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.29 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Engage conference |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.07 - EMIF |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | ADRC-W staff attended a meeting to discuss potential support for an EMIF-funded ADRC-W project |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.08 - Policy review meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Review of MORPHeD project progress and planning discussion for further progress |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.09 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | ACTIVE project peer mentoring day |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.12 - Telephone meeting as part of a recommisioning expert panel for Arthritis Research UK (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Evaluating the performance of a UK research infrastructure against best practice in the field |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.13 - Welsh Government catch up on Government Commissioned Research Project |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff attended a discussion to assess the progress of a project looking into Government Commissioned Research using ADRC Wales research environment |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.14 - ADRC-Wales attendance at Swansea University event - evaluating frontline practices in the justice system |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales attendance offering researcher advice, networking and promotional ADRC-Wales stand |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.15 - ADRC-Wales attendance at Wales Housing Research Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC-Wales attendance offering researcher advice, networking and promotional ADRC-Wales stand |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.19 - IG Event in London |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sharon Heys attended on behalf of ADRC-W with promotional information |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2017.01.05 - Health of the public in 2040: implementation workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Wide range of governmental, research and charitable bodies working to move froward the recommendations of the report |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf |
| Description | 2017.01.06 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | ACTIVE project media launch |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.06 - Statistics support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | ADRC-W staff provided statistical advice to an external PhD student |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.09 - Mobile Operator-Related Phone & Health Data Governance (MORPHeD) Executive meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Mobile Operator-Related Phone & Health Data Governance (MORPHeD) Executive meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.10 - TCP Project meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff contributed to a discussion with Welsh Government research colleagues around progression of an existing data research project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.10 - Welsh Government TCP |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC-W staff attended a meeting to discuss potential support for ADRC-Wales Welsh Government research projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.11 - Data Journeys in Biomedicine: Research Translation and Infrastructure Management workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Identifying best practice in safely sharing data from and for research |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.datastudies.eu/data-journeys-in-biomedicine-2017 |
| Description | 2017.01.11 - Public Engagement activity (Oriel Science) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Oriel Science project meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.12 - Seminar on National Violence Statistics |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff member attended a seminar presented by head of Crime statistics at ONS to promote ADRC Wales services and offering researcher advice |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.12 - Statistics support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC-W staff provided statistical advice to an external clinical researcher |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.19 - Presentation at Housing Information Group Seminar run by Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Dr Ian Thomas gave presentation on homelessness data collections in Wales, making a case for individualised data collection and linked analyses. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.21 - Member of panel awarding research grants for ESRC on proposals for the use of new and emerging forms of data (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Multiple awards made to the best project proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.24 - Welsh Government Social Research Programme scoping discussion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff led scoping discussion around potential support for ADRC-Wales Welsh Government research projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.25 - Using Administrative Data: Information event for Finnish Government visitors |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC-Wales staff contributed to an information event around use of administrative data. ADRC-Wales contribution included info of ADRN, case study examples of benefits, and lessons learnt. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.26 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | NCPHWR Knowledge Exhange Group meeting presentation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.27 - Meeting with Chief Statistician for Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC-Wales staff attended a meeting with Chief Statistician for Wales to discuss options around a technical solution to data linkage problems. This covered options for facilitating dataflow into ADRC-Wales safe research environment |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.31 - ADRC Wales seminar on CRESH/CHALICE |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales seminar with Dr Richard Fry and guest speaker Jamie Pearce. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.02 - ADRC-Wales attendance at Welsh Government Data Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff attended a Welsh Government Data Group meeting to discuss technical solutions to data linkage problems. This covered options for facilitating dataflow into ADRC-Wales safe research environment |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.03 - Public Engagement activity (British Heart Foundation) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Planning meeting with British Heart Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.06 - SToMP Research Focus Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | ADRC Wales staff member invited to be part of a Research Focus Group related to supporting ex-military personnel in the criminal justice system to discuss collaborations with ADRC Wales and offering research advice |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.07 - EDARA Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Steering group for a major national research study aimed at improving alcohol related hard in the UK. Significant public policy interest. Outcome: Changing the policy and practice landscape in the UK for alcohol |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.07 - Supporting People Evaluation project team meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales staff attended a meeting to determine what support an active ADRC-Wales project required going forward |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.09 - Finnish Government visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Delegation from Finnish government and health system representative with some senior academic collaborators to discuss how Finland might build on the work of Swansea in Final for a national data sharing architecture. Outcome: Influencing national policy for Finland, potential involvement in the supply of system to support Finland's progress. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.13 - Welsh Government Dwelling Spine workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC-Wales staff attended a workshop for scoping out opportunities for ONS, SAIL, and ADRC-Wales to support development of a Welsh Government Dwelling Spine. Included discussions around opportunities for a methodological feasibility project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - Children's Legal Centre for Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Discussion to assess how Swansea's data and facilities could be extended to support work in Human Rights of the Child. Outcome: Potential for collaborative activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - MSSN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Project Board overseeing development of national safe setting architecture for the UK, based on "pods" technology. Outcome: Rollout of 40+ preconfigured and approved "safe" settings for use in universities and other sites across the UK to receive access to sensitive data for analysis |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - Public Engagement activity (NCMH) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | NCMH networking meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.15 - Public Engagement activity (Wales Digital Communities) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Supporters |
| Results and Impact | Wales Digital Communities networking meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.22 - EMIF/DPUK meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | ADRC-Wales staff attended a 3-day meeting to discuss ADRC-W support for dementias research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.23 - Statistics support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | ADRC-W staff provided statistical advice to an external PhD student |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.27 - Cardiff Capital City Deal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Early meetings with local and government reps to discuss how Cardiff City deal could benefit from the work of the Swansea Group. Outcome: Increased awareness of Swansea's facilities and collaborative opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.27 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | NHS - District Nursing Student visit |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.28 - Cancer Research UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Strategic discussions to understand how Swansea data, facilities and expertise could support the work of Cancer Research UK. Outcome: High level understanding of Swansea potential contribution to CRUK's national activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.02 -Public Health Research, Policy and Practice: Working Together in Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales attendance offering researcher advice, networking and promotional ADRC-Wales stand |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.03 - Welsh Government KAS |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC-Wales staff helped run a seminar on analysing free-text data to inform research decision making |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.07 - MORPHeD Engagement workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | MORPHeD Engagement workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.07 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Internal staff public engagement workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.08 - IPDLN Executive Team meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overseeing the strategic development of the international society for academic, governmental and health system centres that use data linkage mechanism to conduct research. Outcome: Programme of events and activities across the world to support this interest group - showcasing UK and Swansea achievements internationally |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.09 - Information Governance review meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Working group advised commercial group on information governance implications of using data from mobile devices. Review of progress and IG challenges with MORPHeD project so far |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.09 - Meeting with the Wales Observatory on Human Rights of Children and Young People |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales attendance offering researcher advice, networking and promotional ADRC-Wales stand |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.11 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Swansea University school engagement day |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.13 - Familiy Justice Observatory |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Planning of the development of a potential new centre to help better understand family justice matters in the UK, with support and funding from the Nuffield. Outcome: Invitation to request funding in support of the development |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.14 - ADRC-Wales attendance at CyberUK 2017 conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales staff attended a 2 day conference event which looked at the changing landscape of UK Cyber Security and methods for using data more safely within organisations |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.22 - Care Provider Summit 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | ADRC-Wales staff attended event with promotional stand (banners and small stand). Main audience: Third sector and care services providers. Ian Thomas, Jo Davies |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.23 - Cymorth event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Attended the conference and engaged with audience for potential ADRC-Wales projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.28 - Digital Economy Imaginarium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Delivered workshop to gain better understanding of business and public sector needs and match them to expertise in academia. Outcome: Range of collaborative projects have arisen and been taken forward |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.29 - NHS Digital Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.30 - ADRN Operation Group meeting teleconference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Attendance at ADRN Operations Group meeting. Chairing and facilitation arrangements were provided by ADRC Wales staff, with ADS staff supporting teleconference arrangements |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.31 - D Berridge sessions |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | An ongoing series of monthly peer-led seminars on statistics for health data science |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.31 - Meeting with Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion with Welsh Government colleagues around the progression of work on Government Commissioned Research. This was to support a wider piece of work as requested by ADRN Directors Group to look into the feasibility of Government Commissioned Research projects. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.04 - Digital Economy Crucible |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop held to support ECR's idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.04 - Primary Care Public Health Information |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Steering group to help support needs of primary care in Wales through information provision. Outcome: Development of a project to deliver information products to support their needs |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.06 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to sumbit costed proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.06 - Welsh Scientific Advisory Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to Wales' primary scientific advisory committee on SAIL Databank, ADRC Wales, and associated work. Outcome: Inclusion of Swansea's work in national strategy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.07 - AAAI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.13 - Discussion with NWIS (ADRC-Wales TTP) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning around new linkage methodology |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.17 - Visit to ADRC Wales by ESRC |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Visit to ADRC Wales by Lucy Martin and Natalie Bennett to tour the centre and meet with ADRC-Wales colleagues. Presentations were delivered from ADRC and colleagues undertaking data research projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.28 - ADRN Operation Group meeting in Edinburgh |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Attendance at ADRN Operations Group meeting. Chairing and facilitation arrangements were provided by ADRC Wales staff, with ADS staff supporting teleconference arrangements and ADRC Scotland providing the venue |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.03 - ONS Data Science Campus |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic planning meeting to understand the collaborative opportunities possible between Swansea and the new ONS Data Science campus. Outcome: List of potential areas / projects for collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.08 - Welsh Governement Informatics Task Force |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.10 - WISERD Away Days |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Vale of Glamorgan - banners with small info stand - Ian Thomas/Suhaer Yunus/Rhys Davies |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.16 - H&CRW Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.17 - Nuffield Foundation (Oliver Bird fund) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Providing advice, based on Swansea's expertise and facilities, to the Nuffield on how to best utilise their Oliver Bird endowment. Outcome: New focussed plans for investment into data-related activities in the UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.22 - NWIS health data strategy meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | High level meeting to agree national approach to providing safe and secure access to health data for research. Outcome: Agreement in approach 2017-2020 |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.23 - Dynamic Insights Steering Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Board meeting for collaboration with O2 telecoms company. Outcome: funded InnovateUK collaborative project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.26 - Ian Thomas Production of Data Brief 8 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Ian Thomas produced Data Brief No. 8 - Fuel Poverty. The data brief gives an overview of data relating to fuel poverty interventions in Wales which are available via the ADRC-W. Data briefs are intended for use at conferences and workshops in order to promote the resources of the ADRC-W. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.26 - Ian Thomas Production of Data Brief 9 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Ian Thomas produced Data Brief No. 9 - WCVA. The data brief gives an overview of the Welsh Council for Voluntary Action's data which are available via the ADRC-W. Data briefs are intended for use at conferences and workshops in order to promote the resources of the ADRC-W. The WCVA data brief has been used by researchers applying to use this data source via the ADRC-W. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.31 - ADRC-Wales attendance at ADRN All Hands meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales attendance at ADRN All Hands meeting. ADRC Wales involvement included two sessions run by ADRC Wales colleagues and collaborative partners at the event |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.01 - ADRC-Wales attendance at ADRN Conference 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales attendance at ADRN Conference 2017. ADRC Wales involvement included a large number of abstract submissions, research posters and conference presentations delivered by ADRC Wales colleagues and collaborative partners. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.01 - Flying Start ADRN presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented the results of evaluations into the Welsh Government Flying Start programme |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.01 - Households ADRN presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented the results of research into creating households using routine data |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.01 - Workshop at the ADRN conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Part of a team running a workshop for the ADRN All Hands meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.02 - MCS-WT ADRN presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presenting the results of research linking the Millennium Cohort Study with routine health data |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.02 - bibInsight ADRN presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented the results of research into identifying data sources for research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.05 - Ian Thomas Attendance at Data Innovation workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Ian Thomas gave a 3 minute plug about ADRC-W and also distributed leaflets at a Data Innovation Research Institute, Data and Government workshop. The theme of the workshop was Data Intensive Research, and speakers at the event included a range of accadmeics from a range of disciplines, not limited to social sciences. Event provided the opportunity to engage with several new clients who were about to use the ADRC-W safe setting. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.07 - Data Acquisition planning session with Paul Jackson |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Hosted Paul Jackson for a visit at ADRC-Wales. Included a tour of the facility, update presentations on the work of the centre and discussions around Data Acquisition on an ADRC and ADRN level. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.07 - Digital Health Federation Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | First meeting of an international Board to steer the development of an international federations of data facilities, to answer requirements of internationally scaled research and industrial needs. Outcome: Agreement of basic HoA agreement for members to sign (subsequently signs as partner) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.08 - Diabetes families |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion with Diabetes Research Unit researchers regarding possible collaborations to develop a model of families |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.08 - Scopus |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Collaboration discussion with Scopus publications on scientometric methods. Agreed that this would probably not be a suitable collaboration. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.12 - AAAI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.12 - SAIL/UKSeRP workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-Wales hosting of a workshop with SAIL Databank staff. The aim of the workshop was to understand the similarities and distinctions between how SAIL and ADRC Wales environments functioned and identify areas of potential collaborative practice. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.13 - NHS Digital Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.14 - Presentation at WISERD Housing Network meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Ian Thomas gave a 10 minute presentation at a WISERD Housing Network meeting, updating colleagues on work and opportunities associated with ADRC-W. Attendees at the meeting included accademics at Cardiff University, third sector organisations, and Welsh Government. An outcome of this meeting was for involvement of Ian Thomas as a representative of the ADRC-W as part of the UK Collaborative Centre for Housing Evidence (CaCHE). |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.15 - MD2i (innovative and intelligent Medical Device) Grenoble, France |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk on UK and Swansea data infrastructures to support research. Outcome: Invitation to sit on Grenoble's Board overseeing their own local strategy |
| Year(s) Of Engagement Activity | 2007,2017 |
| Description | 2017.06.22 - Funding Panel: Canadian Cyber Infrastructure Initiative Toronto |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Supporting Canadian Government make strategic funding decisions on national data infrastructures. Outcome: Shortlisting of best proposals received |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.22 - Public Engagement and Social Science Research: Challenges and Emerging Solutions |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Workshop held as part of ADRC Wales Big Data series in Cardiff: Public Engagement Big Data event Public Engagement and Social Science Research: Challenges and Emerging Solutions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.26 - Ser Cymru |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing strategy for Climate Impact modelling for Wales. Outcome: Development of strategic plans for climate modelling |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.28 - Public Engagement Panel |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Consumer panel meeting held by ADRC- W PE Officer Lynsey Cross. Agenda items include panel review of new ADRC-W PE webpages. ADRC-S Carol Porteous canvassing view on re-use of public data |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.29 - MS Frontiers - Multiple Sclerosis Register outreach |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | High profile stand, talks and demos showcasing Swansea's MS Register project to people with MS and their families visiting this, the largest conference for people with MS in the country. Outcome: Large number of sign-ups to the Register, increased research and governmental interest, increased enthususaim in existing MS Register participants |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.03 - ADRN dashboard planning event at ESRC |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRN staff met with ESRC colleagues and other ADRC staff to discuss arrangements around metrics tracking. ADRC-Wales contributed drafted documents and facilitation support to the event. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.05 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.05 - WISERD Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC-W information and advice stand, attended by RSOs Ian Thomas and Suhaer Yunus |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.06 - ONS households |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited to discuss modeling households using routine administrative data for the ONS 2021 Census |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.07 - Engagement event with Swansea University College of Management |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion with College of Management colleagues to identify opportunities for collaborative working across projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.07 - Government Commissioned Research discussion with Welsh Government |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Update with Welsh Government colleagues on the progress of Government Commissioned Research project. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.07 - Ian Thomas Data Acquisition meeting with Swansea Social Care data manager |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Meeting between ADRC-W staff and Swansea Social Care data manager in order to discuss child social care data held by the authority. At the meeting, the structure of the data was discussed, and a run through of their reporting system was provided to ADRC-W staff. The outcome of the meeting was that child social care data were deposited by the authority into the SAIL databank and are available for researcher to use in data linkage projects. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.12 - GSS methodologies conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation given at the GSS Methodologies conference on creating households using routine administrative data |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.12 - Together for Mental Health |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Cymorth Cymru event ADRC- W stand Cardiff RSO Dora Pouliou. Event attended by researchers, civil servants, charities. Other organisations include Cardiff County Council, Housing associations, Crisis, Mind, Social Care Wales. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.13 - Discussion around Data Controller identification and agreements |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Teleconference with Miranda Mourby (Oxford University) around ADRN data controller agreements and definitions in the agreements |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.13 - Presentation to ONS on modeling households using administrative data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A member of ADRC Wales staff was asked to present on their research into households at an ONS event |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.19 - Visit to ADS |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales colleagues attended ADS for a day for various meetings. These included some colleagues going to a Directors Group meeting (which specifically focussed on funder decisions around the network), with other staff meeting with ADS colleagues to discuss methods for tracking outputs across the network |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.20 - Data research environment planning day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff attended a Swansea University Medical School event that focussed on identifying best joint practice for utilising multiple data research environments |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.20 - UK e-Infrastrucure consortium meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Working group developing a business case, in conjuntion with the UK research councils, to support funding for the UK's national e-infrastructures, across all science domains. Outcome: Business developed |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.21 - AMS Health of the Public 2040 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.27 - Data support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Provided support and advice to an external researcher on social care data |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.28 - Digital Economy Crucible |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop held to support ECRs idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.31 - ONS MOU development meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-Wales staff attended an event with Swansea University colleagues (various departments) and ONS at the ONS site in Newport. The objective of this discussion was to further develop an MOU that had been agreed previously between the two organisations and to identify collaborative opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.01 - IPDLN 2018 Conference - Scientific Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Planning the scientific content for the next international conference on data linkage research. Outcome: Speaker invites, topics selected, programme in draft |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.02 - Flying Start Cardiff |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with Cardiff Flying Start team to agree data acquisition and analysis |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.02 - Welsh Governement Informatics Task Force |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.09 - Webinar for the Asia eHealth Information Network (AeHIN) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 100 interested parties from government, academia and industry from Asia and the far east sat in on this webinar to understand how Swansea has built and operates its data infrastructure. Outcome: Potential collaborative activities and technology sharing (Swansea's technologies to Asia) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.10 - AMS Health of the Public 2040 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.10 - Giving evidence to the UK's Longitudinal studies review (Prof Ray Chambers) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Detailed discussion on the state of play of the UK's data systems to support longitudinal research. Outcome: Not aware of any outcome |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.11 - Persistent Identifiers |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration with University of Essex and UKDA researchers on publication data models |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.11 - Strategic meeting with CEQUR Ltd |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing needs and capabilities between Swansea Group and a major new industrial company. Outcome: Potential collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.30 - Discussion of data environment anonymisation process |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | ADRC Wales staff participated in a discussion with Privitar regarding the anonymisation process for data in the ADRC Wales data environment. This was in response to ADS passing the contact to ADRC Wales and requesting that this conversation take place. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.01 - bibInsight collaboration |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Establishment of a new research team working for an academia/industry partnership to develop methods to steer research development |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.04 - Internship programme presentation event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff supported and attended an event that showcased the work that ADRC funded technical interns had undertaken. This demonstrated to colleagues the benefits of the internship programme that ADRC Wales had supported |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.05 - New Brunswick (Canada) visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Deputation from province of New Brunswick (Canada) made up of government executives, research funders, and academics to understand how Swansea has set up and run SAIL DataBank and other initiatives. Outcome: Agreement to support New Brunswick as they develop their plans to build a similar data infrastructure |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.05 - Welsh Government Data Max meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales hosted and facilitated a discussion group between all participating Welsh Government Social Care research projects utilising ADRC Wales data research environment. The objective was to identify opportunities for collaborative working to avoid duplicated efforts |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.08 - Swansea Science Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Public engagement event at Swansea University, Swansea Science Festival at Waterfront museum. ADRC-W PE Officer mat. cover Cate Batchelder hosted interactive stand demonstrating anonymisation, the journey of data from collection, and the benefits of data science research and data linkage. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.12 - British Heart Foundation |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Swansea University. Public engagement event Cate Batchelder PE officer stand |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.12 - Welsh Government project overview |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff briefed a colleague working on a separate research project on the existing work taking place with similar projects under ADRC Wales. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.14 - Bevan Commission Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Public engagement event Cate Batchelder PE officer stand |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.14 - Ian Thomas meeting with Cardiff University PhD student |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Ian Thomas met with a postgraduate student from Cardiff University to discuss potential data sources for their PhD project. Their project focused on households in fuel poverty and the energy efficiency of residences in the Brecon Beacons. Ian provided the student with relevant informaiton sources and pointed them to Geographic Information System packages that they might use to visualise the data for their thesis. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.15 - Carmarthenshire's 50+ Forum Feel Good Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Public engagement event Cate Batchelder PE officer stand |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.15 - DRU |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Part of a collaboration to explore research with the Diabetes Research Unit. Agreed to explore future funding opportunities. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.20 - ADRC Wales internal planning session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff organised a discussion with colleagues working on ADRC Wales and other related projects to update on current work and resolve queries. This included a review of data management processes across different data research environments |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.20 - H&CRW Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.22 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.26 - Pfizer UK Board meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Attending Pfizer pharmaceutical Board meeting to provide updates into Wales' data systems and collaboration opportunities. Outcome: Further research opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.28 - Internal administration organisation event |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales hosted and facilitated a discussion group between administrators and operations staff on other Swansea University data research projects. The objective here was to improve methods of recording and sharing project information. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.01 - ICES Scientific Advisory Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Seat on the Institute of Clinical Evaluatiative sciences (ICES) Scientific Advisory Committee to provide guidance on their strategic development and recommendations to their funders and Board. Outcome: Insights into overseas centres similar to ours |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.02 - Data Management process overview discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff briefed a colleague working on a separate research project on the methods of data management being employed within ADRC Wales. This was to improve the colleague's understanding of the ADRC Wales (and similar) data research environments to contribute positively to their own working practices. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.02 - GeoCymru: Opportunities and Challenges around Free and Open Source Geospatial and Open Data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Attended the conference and engaged with audience for potential ADRC-W projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.04 - Hafal Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Discussion of linked data research for Mental Health outcomes |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.05 - H&CRW Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Information and advice stand, Dora Pouliou, SWALEC Stadium |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.06 - Flying Start Flintshire |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with Flintshire Flying Start team to agree data acquisition and analysis |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.06 - International Collaboration meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | International strategic meeting, mapping future collaborative opportunities across jurisdictions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.10 - Ian Thomas Presentation to ESRC |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Ian Thomas gave a presentation of Individual Deprivation project to ESRC representatives at a Welsh Government DataMax meeting. DataMax are a partnership between Swansea University, ADRC-W, and Welsh Government. One of the ESRC representatives was interested in the project, having worked in Local Government previously, and having used the current measure of area level deprivation. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.10 - Visit to ADRC Wales by ESRC |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales hosted a visit by ESRC. The objective of this visit was for the ESRC to receive further information on the work of Welsh Government Social Research projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.11 - ADRC-Wales Adverse Childhood Experiences |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff took the lead on the organisation and facilitation of the workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.12 - bibInsight EMIF |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration meeting with Director of the European Medicines Information Framework. Agreed to explore extending the collaboration. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.18 - Ian Thomas call with Bangor University and Welsh Government |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Ian Thomas took part in a Skype meeting with researchers from Bangor University interested in the use of social care data for a linkage project. Other attendees present were members of the DataMax team, a collaboration between ADRC-W, Swansea University, and Welsh Government. Discussion centred around the potential collaboration between the researchers and the DataMax team in order to obtain local authority social care data. The researchers have drafted a research proposal and will be applying for funding to undertake the study. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.19 - Centre for Epidemiology Renewal Site visit |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Part of a multi-expert team of assessors, working for Asthma Research UK to assess the progress and plans of Manchester's Centre for Epidemiology. Outcome: A formal report leading to a recommendation to refund |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.27 - DWP Data Linkage discussion with NWIS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales facilitated a discussion between research project staff and NWIS regarding the process for acquiring DWP data. The objective was to identify a best working practice to deal with similar acquisitions in the future |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.27 - Digital Economy Act regualtion consultation event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Participation in workshop to help refine the regulations that are currently in development to operationalise the Digital Economy Act's Research and Statistics strand. Outcome: Revised regulations |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.02 - Planning session for anonymisation of police data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff met with a Swansea University colleague who wanted to determine what the feasibility was of hosting police data in a similar secure data research environment. The understanding was that the anonymisation would take place prior to hosting the data |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.06 - ESRC Festival of Social Science, Cardiff University |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Information and advice stand, Ian Thomas and Suhaer Yunus, School of Social Science |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.07 - Data Linkage courses and teaching |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of an extended agreement to provide University of Western Australia teaching and expertise to the UK via Swansea. Outcome: Continuation of high quality, subject relevant teaching to any student in the UK (short course and MSc) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.08 - ADRC Stand at WISERD Away Day event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRC-W attended the WISERD awayday, and had an informaiton stand over the two days of the event. The event is attended by WISERD associated researchers from all partner universities in Wales. Rhys Davies and Ian Thomas delivered a workshop to promote the ADRC-W and to discuss the research questions that readily available Welsh data could be used to answer. Attendees at the event were accademics and postgraduate students from Swansea University, Cardiff University, and University of South Wales. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.10 - Super Computing Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion with Welsh national supercomputing programme (all sciences) to discover levels of support and facilities potentially on offer to support health and social data sciences in Wales. Outcome: Agreement on the level and nature of on-going facilities and expertise available |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.14 - Discussions with Paul Bonnington and colleagues (Research Computing, Montash Universty, Australia) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | A set of discussions to scope the sharing of Swansea's data sharing platforms (SeRP and NRDAs) for use in Australia via Monash University. Outcome: An agreement for them to fund the costs of providing our technology to Australia |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.14 - ONS households |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Continued update on collaboration with ONS Household Census team. Agreed to submit a funding application to ONS |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.14 - bibInsight REF meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Planning meeting to provide scientometric methods to Swansea University Medical School's REF and Postgraduate Research teams. Agreed to explore providing support to postgraduate student research projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.22 - Presentation to the English NHS National Data Opt Out Advisroy Group on SAIL Databank |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Provided a high level overview of the differing emergent strategies in Wales and England relating to patient opt-out and how Wales has managed to maintain high trust and support with its population and practitioners throughout. Outcome: Better understanding (in NHS England) about how Wales has managed population trust in health data research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.24 - Ian Thomas/Peter Mackie attendance at housing charity meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Meeting at The Wallich (housing charity) attended by Pete Mackie and Ian Thomas to promote the use of linked administrative data. Aim of the meeting was to discuss a new centralised rough sleeper data collection system for Wales. Other attendees at the meeting included representatives from third sector homelessness organisations and Welsh Government. Pete Mackie and Ian Thomas have since been asked to become part of a steering group for the new street homelessness data system. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.27 - ADRC Wales/CLOSER/WISERD |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Co-badged workshop with CLOSER and WISERD at Cardiff University. CLOSER presented on their resources and discussed data linkage with longitudinal studies. The event was attended by academics, students and Welsh Government. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.27 - Presentation and facilitiate workshop to various SMEs about opportunities to access PhD studentships |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation on Swansea's data expertise and facilities available to support data science agenda with industry partners and mechanisms by which Swansea can support the needs of Welsh companies. Outcome: DTC proposal |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.01 - Presentation and workshop participating to help Nuffield Foundation and Arthritis Research UK develop a data strategy for musculoskeletal research in the UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | To inform the development of a new data strategy for ARUK and Nuffield. Outcome: New strategy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.04 - Breaches Policy meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales facilitated a discussion between ADRN colleagues to discuss changes to the ADRN breaches policy. ADRC Wales had led on the work required to update the policy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.05 - Cafcass meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of a UK Data Platform in collaboration with MoJ and Cafcass Cymru/Cafcass England. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.06 - SDSL |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited to speak to the Social Data Science Lab at Cardiff University about possible future collaborations with ADRC-W |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.06 - Working group to devise plan to move NHS Wales to using SNOMED CT in future years |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Conducting baselines review of compliant systems and framework for moving towards 100% use of SNOMED CT in the future. Outcome: New approach for Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Annual Awards ceremony, giving prizes to the NSH and to industry for a range of awards |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Giving prizes (previously selected) to the winner of a range of awards. Outcome: Increased focus on co-working between NHS, government, academia and industry in Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Conference on social services policy in Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attended the conference and engaged with audience for potential ADRC-W projects |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Wales Centre of Public Policy / SAIL Databank strategy meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | First of a series of workshops to help the newly formed WCPP understand how it might pursue its work through using data and data science techniques. Outcome: Close working relationship |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.14 - Statistics support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC-W staff provided statistical advice to an external researcher |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.03 - Follow on to conversation with Ministry of Health (England) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping discussion to asses how SAIL / ADRN / HDR UK can support DoH taking part in data sharing projects for public good. Outcome: Not aware of any outcome |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.08 - Early scoping discussions about utilising GeL's genetics platforms to process Welsh patinet sames and return the data. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Scoping discussion. Outcome: Potential agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.08 - Statistics support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Provided statistical support to an external researcher on linked cohort data |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.11 - ADRN Approvals Panel visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales hosted a visit by ADRN Approvals Panel. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.11 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.11 - UKRI Fellowship recruitment |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales hosted and facilitated the planning and recruitment of UKRI Fellowship posts for HDR UK. ADRC Wales staff provided operational support to the process and an ADRC Wales Co-Investigator chaired the recruitment panel |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.12 - Ian Thomas/Peter Mackie meeting with South Wales Police |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting between Ian Thomas (ADRC-W), Pete Mackie (Cardiff Univeristy), PhD student, and the Assistant Commissioner for the South Wales Police. Meeting was to discuss the potential uses of police recorded crime data as part of data linkage projects, specifically through its linkage to homelessness data. The outcome of the meeting was the submission of a proposal to Welsh Government for funds for a project to analyse linked crime data from South Wales Police. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.16 - Informatics Statment of Intent implementation workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.17 - ESRC teleconference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales staff were in contact with the ESRC to update them on the work that was taking place around outputs tracking and planning for the future (post award). ADRC Wales staff have been in a leading role for network co-ordination at the Operations Group level and are managing the output tracking method |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.17 - Research Data Alliance Workshop and Invited talk - Amsterdam |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Keynote talk on the issues related to curation and sharing of highly sensitive person-based data + workshops participation. Outcome: New highlighted focus on person-based data and privacy in the RDA |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.17 - Statistics support |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC-W staff provided statistical advice to an external researcher |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.17 - bibInsight Swansea Uni Library Services |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ran a training session on scientometric methods to research librarians at Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.18 - bibInsight IJPDS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration meeting with Editor of the International Journal of Population Data Science on publication metadata standards and scientometric methods. Agreed to apply for joint funding |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.19 - Maths refresher seminar series |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Setting up a seminar series to provide mathematical support to colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.24 - ADRN Future Planning session |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales facilitated a discussion session to begin planning the work programme for moving ADRN into the next grant phase. Dial in facilities, organisational duties and chairing of the group were all provided by ADRC Wales staff |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.25 - Housing information seminar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ian Thomas as ADRC-W representative and attendee |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.25 - UKSPA Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Presented at the conference about ADRC-W projects as well as engaged with participants about potential projects |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.29 - ADRN Security Assurance |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning around security assurances for ADRN network with colleagues in ADRC Scotland |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.30 - NWIS Team Day |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning session around future joint activity between ADRC Wales and NWIS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.30 - Strategic meetings with ONS in the context of next stage of what was ADRN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.01 - Public Health Wales / ADRC / SAIL strategic meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Framing a new relationship between Swansea's data platforms and Public Health Wales. Outcome: More policy-relevant research analyses |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.02 - Data for Children themed workshop - Chair Leon Feinstein |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Co-chair and participation in a workshop to frame a new data request to multiple government ministries and agencies to construct a linked data resource for the benefit of children though research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.02 - HSAR Event |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Welsh Gov Housing Policy meeting - Developing an online data platform for Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.07 - ADRC Wales All Staff Forum |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff organised a discussion with colleagues working on ADRC Wales and other related projects to update on current work and resolve queries. This included an update on the known future position of the network, meaning the event served primarily as an information sharing/Q&A session. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.07 - Informatics Statement of Intent implementation workship |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.14 - ADRN post grant plan update |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales facilitated a discussion session to further develop the work programme for moving ADRN into the next grant phase. Dial in facilities, organisational duties and chairing of the group were all provided by ADRC Wales staff |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.14 - ONS and Welsh Government meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.16 - Ian Thomas meeting with DECIPHer, Swansea University and Cardiff University |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Ian Thomas met with research team members from DECIPHer, Swnsea Univeristy (SAIL), and Cardiff University School of Social Science, in order to update them on progress in data acquisition for their data linkage project. Project will link children in care data to education and health outcomes. Ian Thomas has been asked to form part of the steering group for the project, along with his continued angagement in obtaining local authority social care data. Leading from this meeting, future project plans between the ADRC-W and DECIPHer have also been discussed. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.02.16 - Resource relocation discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff were asked to take part in an exercise with Swansea University Medical School to support the relocation of project staff that were engaged in data research projects. ADRC Wales staff led on monitoring the capacity within the Medical School's Data Science Building and provided important information and documentation to support this process. This event was an internal planning session to determine how these information assets would best support the resource relocation project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.27 - Asthma Data and Digital Funding Call Frontiers Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Helping to devise a new approach to the use of data to drive forward asthma research in the UK. Outcome: New data investments for asthma data research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.28 - Workshop to help support a new mean of producing national statistics from routine administrative data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Helping to devise a new approach to the use of data to support the production of national statistics. Outcome: New use and methodologies |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.01 - Further clarifying implementation place, costs and time scales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Agreement for Monash to use Swansea's data platforms to support research and public analyses in Australia. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.06 - Workshop with British Columbia Government officals about data sharing facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.07 - Workshop with British Columbia Health system officals about data sharing facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.08 - Public Health Research, Policy and Practice: Research with Impact |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Cardiff. Dora Pouliou Attendance. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.08 - Talk on data sharing system to support Learning Health Systems in the UK and internationally |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | To highlight the good practice in the UK and in Wales, to promote the use of Swansea's technology set and expertise. Outcome: Possible inquiries |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.13 - LSST |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Part of a multidisciplinary machine learning expert group, developing research collaborations between the departments of Computer Science, Mathematics, Physics and Medicine at Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.14 - Cardiovascular research workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Talk on data opportunities and ways of achieving joint research objectives. Resulted in a decision being made to engage in project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.14 - Cymorth Cymru conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | ADRC Wales exhibited at Cymorth Cymru event and presented on research findings against Welsh Government commissioned research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.15 - ADRN Directors Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Meeting around ADRN future funding plans and transition, also covering the arrangements for the close down of the ADRN |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.16 - SNOMED CT Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing SNOMED strategy for Wales, resulting in the formulation of a national strategy |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.19 - UKRI e-Infrastructure Expert Group Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of UKRI Roadmap with senior UKRI staff |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.20 - Meeting with Peter Mackie |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion with ADRC Wales Co-Investigator around further funding opportunities for ongoing admin data research projects |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.20 - Welsh Government stakeholder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion with Welsh Government colleagues around future of ADRC Wales and plans for future developments around Welsh Admin Data Research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.21 - UKSeRP, DDP and HSAR meeting. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Infrastructure development meeting with Welsh Government colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.22 - Innovator Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford took part in an innovation workshop as a member of the judging panel for proposed innovations |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.26 - IPDLN Conference Scientific Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of the international conference programme |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.27 - WCRC Senior Operational meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attendance at steering group for major Welsh Research Centre |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.28 - DKUT, NMAIST & Kabarak Universities discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | International collaborative project with African univeristies discussing opportunities for collaboration on MRC funding call |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.29 - Discussion with Chief Statistician for Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Follow on conversation with senior Welsh Government stakeholder around future plans for next funding round for admin data research in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.06 - Workshop session with ADRP Delivery Planning Group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Advisory session on the progression of plans for the next stage of admin data research investments in the UK. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.09 - ADRN Operations Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Planning session with ADRN operations colleagues to prepare for closure of ADRN programmes and plans around transition process |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.12 - ADRN Directors Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Meeting of senior ADRN operations and director staff to discuss outcomes of ESRC decisions and how to proceed with projects in relation to new funding round |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.17 - ADRN Transition Planning |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | ADRC Wales attendance at a transition planning session for ADRN with senior ESRC colleagues. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.18 - ADRN Data for Children |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Developing new Data for Children resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.20 - HDR UK Site visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | David Ford attended a series of meetings with HDR UK representatives on their visit to Swansea University and the Data Science research teams based there, following which the decision was made to establish Swansea as an HDR site |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.24 - Biobanking Task and Finish Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Discussions primarily focused around the Wales Biobank, which is supported with staff based within the Swansea University Data Science team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.25 - Workstream 3 - Stakeholders event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | This event contributed towards the development of a new vision for a national data resource for NHS Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.26 - Cardiff University Centre for Public Policy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales attendance at a meeting with Public Policy research group to discuss engagement opportunitites with ADRC Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.26 - Flying Start statistics support |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales stats staff provided support to Flying Start Cardiff analysts in assessing the statistical significance of data research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.26 - Health Data Research UK - Scientific Retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Senior ADRC Wales staff participated in a strategic planning event for HDR |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.02 - DataLab with ADRC Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions about development of Education data resources for use with ADRC Wales data research projects |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.03 - ADRN Operations Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRN Operations colleagues meeting to discuss their response to ADRN Directors session and impact on transition plans |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.10 - ADRN Directors Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Further development of network plans for transition |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.11 - HDR UK/NHS Digital Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meetings with NHS Digital colleagues around the work of HDR UK and allied data research projects. Included input from and presentations by ADRC Wales colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.14 - The Future of Justice International Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Event to take forward evidence production for the court systems |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.17 - HDR UK Technical meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales attended a wider discussion around understanding data infrastructure needs for UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.18 - Commission on Justice in Wales Scoping |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping unmet legal needs in Wales, with a view to developing research opportunities with government and academics in this field |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.21 - Advances in Data Science conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales attendance at Advances in Data Science conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.24 - GeDI workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing genetic data strategy in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.01 - Ian Thomas presentation at Danish conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Ian Thomas gave a presentation at the 'Intimacies Online, Online Intimacies conference held at Roskilde University, Denmark. The title for the presentation was, ''Young guy looking for mutual arrangement': Capitalism, digital media, and men who have sex with men's commercial sex'. The presentation drew on Dr Thomas' PhD into the digital sexual practices of men who have sex with men, specifically focusing on the use of media to engage in sex work. Attendees at the conference were primarily academics from a range of international research institutes. After the presentation, several audience members expressed an interest in the particular theoretical approach adopted in the study, and Dr Thomas suggested readings for them to pursue. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.01 - Talk in Victoria, Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentations to Ministry of Health, British Columbia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.05 - Qresearch, SHIP and SAIL discussion for HDR |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation and discussion with Q Research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.06 - ADR Technical Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff attended an ONS hosted event around the transition arrangements for ADR and where they fit within the plan. Further discussion around UK data infrastructure, following HDR sponsored technical meeting |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.06 - ADRN Transition session |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales staff attended a short session that focussed on resolving raised issues within the transition process between ADRN and ADRP |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.07 - Ian Thomas presentation at Housing Information Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ian Thomas gave a presentation at the Welsh Government's Housing Information Group meeting, held within Welsh Government. The presentation was titled, 'Re-thinking homelessness data reporting & analysis: the case for individual level data', and gave an introduction to the secondment activity Dr Thomas was due to begin. The presentation covered the planned activities of the secondment, and the purpose, being to create options for a new administrative data collection on homelessness in Wales. The meeting was attended by a mixture of Welsh Government policy and analysts, local government, third sector, and academics. Following the session, Dr Thomas was approached to write a blog for the National Assembly for Wales Research Blog series on the secondment. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.07 - UKRI Event on "Places" |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Cluster development workshop |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.08 - National MSK Health Data Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation on SAIL Databank to ARUK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.11 - ADRN Directors Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion around how to manage new elements of transition work following London meetings the previous week |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.12 - ADRC Stakeholder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing working arrangements with Welsh Government |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.14 - MS Society Research Strategy Committee |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation on UKMS Register |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.20 - HDR UK Infrastructure meeting (Technical) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Follow up discussion with sector experts on the data infrastructure needs for UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.21 - ADR Conference Belfast |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff attended a large international conference in Belfast, providing numerous speakers, academic posters and a significant level of support to the running of the event |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.21 - ADRN Directors Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Round table strategy event with ADRN Directors |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.22 - Health and Wellbeing Childhood & Mental Health |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford led a research theme discussion around Health and Wellbeing Childhood & Mental Health at the ADR Conference in Belfast |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.26 - CAFCASS Cymru meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion of how to further develop work around CAFCASS/SAIL collaboration |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.27 - Ian Thomas presentation at SAIL consumer panel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Ian Thomas presented at the Secure Anonymised Information Linkage (SAIL) databank consumer panel at Swansea University. The consumer panel is composed of members of the general public, and provides a forum to discuss data linkage project ideas with the public in order to gain their input. Dr Thomas presented on ADRC-W project PROJ-005, which proposed to link administrative data to the National Survey for Wales, in order to create a measure of deprivation for individuals in Wales. The purpose of the talk was to explore the public's acceptability of the project, specifically the use of Census data. The panel found the project interesting, and indicated that they had no issue with the use of the Census for research, even going as far as to encourage greater use of the Census. Feedback from the panel provided evidence of public engagement, and positive public sentiment toward the use of the Census, which has been used to provide a case for ONS to enable Dr Thomas to access the Census. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.27 - Panel meeting to discuss Family Justice Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | David Ford delivered a presentation to a senior research group around Family Justice and the opportunities for using linked data in this area |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.28 - SAIL scientific External Advisory Board |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended an event around the launch and future plans for an International expert panel |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.02 - Transition co-ordination discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion with ADRC Scotland and ADRC Northern Ireland to set about a co-ordinated approach for handling shared transition actions |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.03 - NCRM Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff attended a Research Council sponsored event in Bath which covered a range of research and methodological themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.05 - ESRC Transition planning |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Setup discussion for series of ADRC Wales led working group meetings around handling network transition actions for ADRN/ADRP |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.09 - Due diligence & MoU ceremony |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Formal signing of MoU with Bangalore |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.12 - ESRC Transition planning |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Review of initial actions from group and progress against action plan |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.13 - ADRN Themed Data for children Partners meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Roundtable to devise data build for data research resources using assets relating to children/young people's data |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.16 - SRS Roadshows |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales attended an ONS hosted engagement event around the Secure Research Service, which covered plans for the future of the service |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.17 - ADRC Wales transition co-ordination |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Scheduled discussion with ADRC Wales project partners (Cardiff University) around the future plans for admin data research collaborative work. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.18 - Ian Thomas presentation at WISERD Conference 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Ian Thomas gave a presentation at the Wales Institute of Social & Economic Research, Data & Methods (WISERD) Annual Conference 2018 at the University of South Wales. The title for the presentation was, 'Individual deprivation in Wales: Steps towards the construction of a measure using linked survey and administrative data '. In this presentation, Dr Thomas gave an overview of his work to date on ADRC-W project PROJ-005, mainly the use of the National Survey for Wales to attempt to construct an individual deprivation measure for Wales. The audience included members from Welsh Government's knowledge and analytical services, academics, and PhD students. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.18 - Summer School in digital Epidemiology from the Arthritis Research UK Centre for Epidemiology |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford participated in a talk on linking EHRdata to other data sources |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.18 - WISERD Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales representation at 2018 WISERD Conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.19 - ESRC Transition Planning |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Further review of transition progress, including ONS attendance |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.19 - Ian Thomas presentation at WISERD Conference 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Ian Thomas gave a presentation at the Wales Institute of Social & Economic Research, Data & Methods (WISERD) Annual Conference 2018 at the University of South Wales. The title for the presentation was, 'Exploring multiple exclusion homelessness through network analysis'. In this presentation, Dr Thomas gave an overview of his experimental analysis using networks to explore the linkage of different needs face by people who are homeless. The audience included members from Welsh Government's knowledge and analytical services, academics, and PhD students. The audience gave good feedback during the question and answer session following the presentation, specifically the use of visualisations in order to illustrate the complex interlinking of issues faced by homeless people. An academic member of the audience was interested in setting up a meeting between Dr Thomas and a local council in order to discuss one of the study's findings related to crime and homelessness. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.20 - MRC Mental Health Data Pathfinder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions with colleagues involved in other research council funded project around the development of a common data platform |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.24 - AAAI workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UKRI e-infrastructre development |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.26 - Secondment arrangements |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion of arrangements for ESRC colleague to receive a seconded position within ADRC Wales team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.27 - Research and Innovation Infrastructure Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford participated in an innovation workshop as a 'Dragons Den' judge |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.20 - Project initiation discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Set up discussion led by ADRC Wales staff for Unmet Legal Needs project with senior UCL academics, legal services colleagues and Chief Statistician for Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.23 - Developing an admin data spine |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Providing expert advice to UKRI on the development of a cross sector administrative data resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.24 - Meeting RE: HDR UK Implementation Projects |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with senior NHS Wales Informatics Service colleagues around the development of a Welsh response to DIH initiative |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.28 - Meeting: MS Society and Benevolent AI |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Round table with innovative AI company |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.29 - Transition meeting with ESRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Summary meeting of regular transition discussion groups and handover of actions to ESRC project management team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.30 - ADRC Wales intern showcase |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Showcase event of work undertaken by student interns working with admin data science team at Swansea University, including ADRC Wales supported roles |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.30 - Scottish Government visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Hosted visit from Scottish Government to demonstrate arrangements in place for admin data research at Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.31 - Visit to Blackpool Local Authority |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentations around the opportunities for collaborating with Swansea University on data research projects and work |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.03 - Chris Newbrook meeting RE: Info Governance - and Wales' "Data Promise" |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Round table session with senior Welsh Government to develop national strategy to data sharing |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.03 - Longitudinal administrative data spine meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Discussions around the further development of an administrative data resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - HDR UK Science Strategy visit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff inputted into the development of a science strategy with HDR colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - Haroldas Petkus re: RE: Previous 'NHS in a lab' facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Discussions to share experience and best practice around data infrastructure technology |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - RSS Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff attendance at RSS Conference, representing the admin data research opportunities within Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.05 - HDR UK Design thinking workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff participation in an HDR UK design workshop |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.07 - ADRN Data for Children Technical Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.07 - ADRN Data for Children Technical Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.10 - Meeting with Microsoft India representative |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | ADRC Wales attendance at event organised by allied Swansea University project, promoting the work of Swansea Uni data science research and identifying collaborative opportunities |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.12 - H&CRW Project and Investment board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales staff presenting at H&CRW board to demonstrate the data science research capabilities at Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.12 - IPDLN Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales attendance at international conference - IPDLN 2018 in Banff. Included numerous abstracts, research posters, and presentations from ADRC participants |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.20 - Welsh Government stakeholder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion around the necessary preparations for the new grant period, including co-ordination of research programmes and how to progress |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.24 - EDARA Study Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended and chaired a session of the EDARA Study Steering Committee |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.24 - Scoping an administrative spine with ESRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Further work building upon initial discussions with research council colleagues around the development of an administrative data research resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.25 - UKRI MRC |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended and chaired a workshop on e-infrastructure requirement for MRC |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.26 - Unmet Legal Needs Governance advisory meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff provided advice on governance arrangements for the Unmet Legal Needs project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.27 - Spatial analysis of population data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff attended a seminar event around the use of population data for spacial analysis, including in depth discussions of new techniques and methodologies |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.28 - Morgan Academy to host cabinet office innovation team |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford gave a presentation to Cabinet Office team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.02 - ICES Scientific Advisory Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation as a formal member of the External Advisory Board to ICEs |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - ADRC Wales impact and engagement overview meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact strategy for Wales discussions |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - Ian Thomas National Assembly for Wales research blog series |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ian Thomas was invited to wrote a blog for the National Assembly for Wales' (NAW) Research Blog series. The blog was title 'Revolutionising homelessness data in Wales: Steps towards a centralised data collection system' and related to the need for a new form of homelessness data collection in Wales. Dr Thomas was invited to write the blog after a member of the NAW research team saw a presentation about the secondment. The blog also contained details to attend a workshop being held by Dr Thomas in October 2018. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - Pfizer programme of work |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation and collaboration discussions with Pfizer Ltd |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - Welsh Government KAS team visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Initial introduction of Welsh Government new appointments to ADRC Wales staff, with focus on future arrangements for researcher management within ADRP |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.05 - Academic advisory session |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff advised postgraduate colleague on how to structure and present their academic response to a specialist area of research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.05 - SAIL scientific External Advisory Board Launch event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on data research in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.08 - Discussions with MoJ about Data sharing for family justice |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Building on previous discussions, this event aimed to define some of the plans made around Ministry of Justice data sharing for family justice research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.11 - Ian Thomas workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ian Thomas ran a workshop in October 2018 at Cardiff University, entitled 'Revolutionising homelessness data collection in Wales'. The purpose of the workshop was to bring together the homelessness sector, including government (local/national) and third sector service providers, in order to gauge their perspectives on new forms of homelessness data colleciton for Wales. The workshop ran for 3 hours, and included presentations from the Street Homeless Informaiton Network, the Centre for Homelessness Impact, and Dr Thomas. Following these presentaitons, the participants engaged in group activities, in order to elicit their views of different methods of collecting homelessness administrative data. Informal feedback from participants was that the workshop was a success in bringing the sector together, particularly as they were discussing data. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.11 - Revolutionising Homelessness Data Collection in Wales - ADRC Wales seminar series |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales organised a seminar around the use of homelessness data for research in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.11 - Welsh Government engagement |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales led introduction session with Welsh Government colleague to a range of Swansea University data science research initiatives |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.15 - ADRP Impact discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Advisory discussion with colleagues in Northern Ireland around producing evidence of impact in the new grant |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.15 - Launch of Monash University HeLIX data platform |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford was an invited speaker at a launch event for HeLIX |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.16 - Keynote speaker at E-Research Australia conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford participated in an Australian e-Research Conference as a keynote speaker |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.17 - ADRP OMG Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Set up meeting for ADRP OMG meeting series, attended by ADRC Wales staff |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.19 - Keynote talk at Precision Public Health 2018 conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford participated at a Precision Public Health conference in Australia as a keynote speaker |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.19 - NWIS staffing discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Discussion of staffing arrangements to facilitate more efficient data flow between Swansea University and NWIS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.24 - Presentations to Sydney Ministry of Health, Australia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford delivered a presentation on the work being done in the Swansea University Data Science research team to the Ministry of Health, Sydney, Australia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.25 - Flying Start Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales led discussion around the on-going work to role out data transfer capabilities to Local Authorities participating in the Flying Start DDP work |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.25 - H&CRW Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales attendance at H&CRW Conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.26 - Legal Needs review discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales attended and initiated a further discussion between senior academic and government stakeholders for the Legal Needs Project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.02 - Nuffield Foundation Oliver Bird Tendering Consultation Group Teleconference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Expert advice to funder, resulting in decisions taken around shaping a funding call |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.02 - Statistical support |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff provided statistical support and advice to colleagues on associated data research project within Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.07 - New Brunswick Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford delivered a keynote talk at New Brunswick conference, Canada |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.07 - Welsh Government project management co-ordination |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales staff attended a discussion around co-ordinating work between Welsh Government and ADRP projects |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.09 - Meeting with Ted McDonald's team |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Roundtable workshop New Brunswick centre |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.12 - Site visit to UCL Faculty of Law |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff attended a visit at the UCL Faculty of Law to advance the academic discussions around the Unmet Legal Needs project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.13 - CAFCASS Learning Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales attendance at Cafcass event around sharing best practice |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.13 - NRDA reconfiguration |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff supported the installation of a data linkage tool for Swansea Flying Start team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.14 - Ian Thomas presentation at Street Homelessness Information Network |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Ian Thomas gave a presentation at a Street Homeless Information Network (SHIN) steering group meeting, held in Cardiff. The purpose of the presentation was to provide the steering group with guidance on how data linkage can be undertaken, specifically through the use of the Secure Anonymised Information Linkage (SAIL) databank. Attendees at the event were primarily from third sector homelessness services, however there was representation from local authority housing services, and Welsh Government knowledge analytical services. The outcome of the presentation was a redesign of the SHIN system to enable data linkage research, which included re-wording privacy notices provided to data subjects. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.15 - Administrative Data Spine Scoping |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Further discussions around developments of an administrative data research resource, with a focus on defining future work |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.15 - Monmouthshire Flying Start |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff visited the Monmouthshire Flying Start team to identify how to progress the linkage of their data and gain value from the process |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.16 - NWIS/Swansea Uni collaboration discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales staff attended a discussion around the potential development of a National Data Resource and presented on the use and functionality of a UKSeRP |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.21 - HCRW Centre and Unit leads' meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Roundtable strategy meeting for Welsh research infrastructure |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.22 - ADRP Co-Applicant meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Initial discussion of ADRP Co-Applicants around the SIPs for ADRP and how to progress them going forwards |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.23 - ADRP OMG Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Further development of ADRP Operations Management arrangements |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.26 - Academic advisory session |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | ADRC Wales staff advised postgraduate colleague on how to structure and present their academic response to a specialist area of research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.26 - Legal Needs review discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales attended and initiated a further discussion between senior academic and government stakeholders for the Legal Needs Project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.28 - Science Strategy Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation in a Science Strategy Board with colleagues from Oxford academia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.04 - Data analysis advisory session |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Advice given to postgraduate colleague undertaking specialist research, based on gained experience from the ADRC Wales grant period |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.04 - NWIS Academic Collaboration workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Formal workshop, follow up from discussion around National Data Resource. This event was primarily focussed on planning out the next 6-12 months of engagement between NWIS and academia around this workstream |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.05 - Housing Investments seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Delegates heard about the latest research on housing quality in Wales and how investments in housing can help to improve health and wellbeing, covering a number of projects evaluating warm homes initiatives, such as Arbed and NEST schemes, and housing improvements by social housing providers to attain the Welsh Housing Quality Standard, as well as the Welsh Housing Condition Survey. A panel discussion followed that included: Dr Simon Nicol, Director, BRE Housing, Gaynor Toft, Community Wellbeing Manager Ceredigion County Council and Chair of the Wales Private Sector Housing Expert Panel, Paul Davies, Welsh Government lead for the WHQS, and Gowan Watkins, Head of Housing Conditions Evidence Programme, Welsh Government. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.06 - Torfaen Flying Start |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff visited the Torfaen Flying Start team to identify how to progress the linkage of their data and gain value from the process |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.10 - Flintshire Flying Start |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | ADRC Wales staff visited the Flintshire Flying Start team to identify how to progress the linkage of their data and gain value from the process |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.10 - UKCRIS visit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Roundtable with research group from London, focussing on the development of collaborative work being undertaken |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.12 - Welsh Government project scoping discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion with Welsh Government around how to progress work undertaken under the ADRC Wales grant around dataflow development with Local Authorities |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.14 - Discussion with Lord Thomas |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with Lord Thomas, Chair for the Wales Legal Commission, to present the early outcomes of the Unmet Legal Needs project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2019.01.07 - NHS Digital/HDR UK Interoperability Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation in an NHS Digital/HDR UK Interoperability Workshop |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.08 - National Social Care Data set linking to SAIL databank |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford attendance at a workshop with Social Care Wales |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.09 - UKRI Research and Innovation Infrastructure Roadmap |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | UKRI workshop on research infrastructure |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.10 - MRC Mental Health Data Pathfinder meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | MRC workshop on mental health platform |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.10 - Wales Housing Research Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ian Thomas gave a presentation at the Wales Housing Research Conference 2019 held at Cardiff University, entitled 'Crime, substance use and homelessness: how a data revolution in Wales could answer new questions'. In the presentation, Dr Thomas provided an overview of how homelessness administrative data could be used in data linkage studies in order to explore links with crime. The audience included third sector, policy/Welsh Government knowledge analytical services, academics and PhD students. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.15 - Health & Care Research Wales Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Participation at a session of the Wales Research Board (funders) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.16 - TexGov workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | NLP for research workshop |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.22 - ONS engagement of further research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion with ONS and Welsh Government around how to continue the work of administrative data research in Wales through development of research themes and priority areas |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.23 - Inward Investment team from Welsh Assembly Gov |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on Swansea research |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.24 - Welsh Government DDP planning |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Supporters |
| Results and Impact | Discussion with Welsh Government around how to work together to complete work started during the ADRC Wales grant lifecycle. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.29 - Roundtable discussion at the Nuffield foundation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Presentation on Swansea's data facilities |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.29 - Use of family data workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop with academic and senior Ministry of Justice colleagues to identify opportunities for making better use of their administrative data |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.30 - Research Council Norway |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Funding panel member, Norway's Research Board |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.01 - Leadership Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Committee to support close collaboration between the accountable leads within the ADR partner organisations. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.11 - National Data Resource meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting to set out how to progress the on-going work around the National Data Resource with NWIS |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.13 - Family Justice Observatory |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Initial meeting with Family Justice Observatory, Welsh academics and Welsh Government to discuss progression of work and initial data quality queries |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.18 - DPAS Initiation discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion around project initiation for DPAS - collaboration between Lancaster University, SAIL and Welsh Government |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.20 - Legal Needs review discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Following on from work in this area (undertaken by ADRC-Wales), discussion between senior academic and government stakeholders for the Legal Needs Project |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.26 - Citizens Advice Bureau data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Initial discussion with Citizens Advice Bureau around research value and potential use of their data |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.26 - Gwynedd Flying Start |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Clarification of data linkage requirements and plans made for setting up initial research data |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.02.27 - Swansea Flying Start |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Scoping meeting to identify options for making data available to Swansea Flying Start for pre-approved, public benefit research |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.01 - Flintshire Flying Start |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion of barriers to data transfer and identification of options to facilitate linkage |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.05 - Ian Thomas seminar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Ian Thomas held an hour long seminar as part of the Wales Institute of Social & Economic Research, Data & Methods (WISERD) lunchtime seminar series, at Cardiff University. The title of the seminar was 'Designing a new homelessness data system for Wales', in which Dr Thomas provided an update on a secondment he is currently taking part in. The presentation briefly explored the landscape of homelessness data in Wales, before exploring options for how homelessness data could be collected in the future. Participants at the seminar included WISERD staff, the Head of School for the Social Sciences, third sector organisations, and PhD students based at Cardiff University. After the seminar, Dr Thomas was put in contact with the Wales Audit Office, with the aim of contributing to a new webinar which the Audit Office are producing on data sharing. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.07 - ADRP Operations Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with ESRC colleagues and allied admin data research projects to provide update on progress of work |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.11 - Glyn Jones SAIL mapping |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Engagement with Chief Statistician for Wales - mapping the SAIL Databank |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.11 - QUB: NI Health Data & SAIL |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement with Queen's University Belfast - linkage and project collaboration potential between SAIL and Northern Ireland health datasets |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.13 - Meeting with Prof Andrew Morris HDRUK |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Meeting with Prof Andrew Morris HDRUK |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.15 - Telecon w/ Lisa Holmes regarding Department for Education |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Teleconference with Lisa Holmes, Director of the Rees Centre (Department of Education, Oxford University) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.15 - UKSeRP Discussion w/ AISP, Asemio (Dennis Culhane) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with Prof Dennis Culhane, Co-PI for Actionable Intelligence for Social Policy (AISP) at Penn University (Philadelphia). Discussion around UKSeRP infrastructure and opportunities for collaboration |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.18 - UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.19 - Paul Jackson |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Ad hoc catch up meeting with Paul Jackson |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.21 - UKRI e-Infrastructure Expert Group Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation at UKRI e-Infrastructure Expert Group Meeting |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.25 - Interoperability PoC Update w/ Kay Snowley (HDR) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interoperability PoC Update w/ Kay Snowley (HDR) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.03.27 - HDR Scotland - connect represcribing initiative |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Participation in the HDR Scotland - connect represcribing initiative event |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.03 - ADR Hack Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation at the ADR Hack Day event |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.08 - ADR Steering group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Planning, coordianting and attendance of the ADR Steering Group meeting series, which aimed to engage with policy leads in government outside of the ADRU (Welsh Government) project team |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.08 - Blackpool Council/Better Start/Swansea Uni |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration opportunity - Sharing best practice advice and the potential to support with UKSeRP infrastructure a Blackpool Council project |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.10 - Teleconference w/ ScHARR team |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Teleconference with University of Sheffield, School of Health and Related Research (ScHARR) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.21 - Census data discussion |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Hosted ONS colleagues to advise on the development of the Welsh Census data dictionary and variables involved in data linkage process |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.24 - Developing the ADR UK brand and website |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in developing the ADR UK brand and website |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.04.29 - Karen Dennison: embedding longitudinal cohort studies into population administrative data sets |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with Karen Dennison: embedding longitudinal cohort studies into population administrative data sets |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.01 - ONS Census Data into SAIL |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Welsh Government and SAIL discussions to co-ordinate the approach to ONS Census data acquisition |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.10 - DPAS development meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Participation in major planning session for the development of DPAS data analysis programme; a collaboration across multiple government and academic groups to analyse Family Justice data |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.14 - TC Betsy Stanko (UCL) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Teleconference call with Prof Betsy Stanko OBE, Visiting Professor at UCL and former Head of Evidence and Insight at Mayor of London's Office for Policing and Crime. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.21 - ADRP Gateway review w/ Tricia Dodd & Glyn Jones |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales participation in the ADRP Gateway review |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.22 - Court Reform Evaluation Advisory Panel (MoJ) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Court Reform Evaluation Advisory Panel: Arranged by MoJ; multidisciplinary expert meeting |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.24 - Population Research Resources Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Population Research Resources Workshop |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.28 - Meeting with Tiffany Veinot, University of Michigan |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration discussion with Tiffany Veinot, University of Michigan |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.29 - Tom Margrain collaboration meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tom Margrain collaboration meeting re: WOPEC (Optometry) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.05.30 - MoJ Family Justice Meeting w/ Emma Gordon |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Engagement with Emma Gordon regarding MoJ Family Justice work |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.04 - Progressing Further Data Linkage for Family Justice |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Progressing Further Data Linkage for Family Justice: Engaging MoJ into the DPAS arena |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.12 - Wellcome Event Belfast |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Participation in an event delivering a series of presentations to Wellcome |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.13 - AOCDRCA project |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | ADR Wales staff have provided ongoing coordination and technical support to a South Wales police sponsored data research project. This project is undertaken by a Swansea/Cardiff university research team, which is looking into linguistic trends used by child groomers. Due to the incredibly sensitive nature of the data, ADR Wales safe room infrastructure (and associated accreditations) provided the sponsor with the confidence they needed to commission the research |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.13 - HDRUK BSO Project Update |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADR Wales participation at HDRUK BSO Project Update meeting |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.13 - Mark Lawler (QUB) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Meeting with Prof Mark Lawler, Associate Pro-VC and Professor of Digital Health at QUB. Meeting to update on areas of research/collaboration potential |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.17 - Collaboration between Life Sciences Hub & SAIL |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration meeting between Life Sciences Hub & SAIL/ADR teams |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.17 - Collaboration between MS Register - Christoph Weidemann |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Discussion on potential collaboration between MS Register and Christoph Weidemann, Associate Professor in Swansea University Department of Psycology |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.18 - Prof Anna Vignoles & Judge Carol Atkinson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Lectures as part of a NFJO agenda |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.19 - NFJO Data Partnership Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in a series of regular catch ups around Nuffield Family Justice Observatory |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.20 - Justice Data Set w/ Kim McGrail |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion, and giving advice, to Australian colleagues (Prof Kim McGrail) on their justice datasets. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.24 - MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.24 - SAIL Scientific Advisory Group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADR Wales participation on the SAIL Scientific Advisory Group |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.25 - Harmonisation of legal frameworks for UK Health Data w/ HDR & NHS |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with HDR UK and NHS colleagues around harmonisation of legal frameworks for UK Health Data |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.25 - Safepod discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in discussions around the Safepod secure analysis technology |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.06.26 - UKRI Supercomputing Science Case TC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Teleconference to discuss ADR Wales involvement in the UKRI Supercomputing Science case |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.01 - Whitehall data acquisition meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion re: development of a joint strategy for acquiring data from Whitehall departments |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.04 - CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.05 - Nick Moberly & UK MS Register team meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | ADR Wales participation at meeting between Nick Moberly (Chief Executive for the MS Society) and MS Register team |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.08 - CAFCASS data transfer workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales participation in formal planning session re: streamlining the CAFCASS data transfer process. Participation from Lancaster University, Swansea University (including senior SAIL analysts and ADR Co-investigators) and CAFCASS |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.08 - Cancer IT Provision (Richard Clarkson) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement with Dr Richard Clarkson to discuss potential support opportunities with his cancer research department |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.09 - ONS metadata meeting |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADR Wales hosted event to inform on and plan the development of ONS's metadata across the ADR partnership. Included colleagues from HDR and SAIL to share their existing approaches |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.10 - Monash ARDC Proposal discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Monash ARDC Proposal discussion |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.12 - MoJ Discussion with Karen Broadhurst and Lisa Harker |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales participation in MoJ discussion with Karen Broadhurst and Lisa Harker |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.15 - Jeff Giansiracusa - application for ESPRC funded hub for mathematical sciences in healthcare |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Engagement with Prof Jeff Giansiracusa around an application for ESPRC funded hub for mathematical sciences in healthcare |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.17 - Manchester Digital Epidemiology Summer School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | David Ford participation in a wider programme of lecturing at the Manchester Digital Epidemiology Summer School |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.19 - SAIL External Advisory Board - Paul Roderick |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement with Prof Paul Roderick (University of Southampton) in advance of the SAIL Advisory panel |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.23 - Conference call with Univeristy of Chicago (Ronan Lyons, Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Discussion around potential collaborations with University of Chicago (Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.07.29 - Australian Global Experiences Digital Research Infrastructure Federations |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADR Wales participation and coordination of a fact finding delegation visiting Swansea from the Australian Global Experiences Digital Research Infrastructure Federations. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.08.06 - Oliver Bird Fund Research Programme Panel Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Participation as a member of the funding decision panel (Oliver Bird Fund Research Programme) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.08.07 - Digital Health CRC w/ Victor Pantano |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Discussion on Australia's use of data sharing with Victor Pantano, CEO of Digital Health CRC. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.08.07 - ONS National Statician's Quality Review (Anthony Edwards) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales engagement with an ONS review - assessing current linkage across government and linking across academia. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.08.29 - Karen Broadhurst update |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Update discussion with senior academic colleagues in Lancaster University around the opportunities to connect various justice data research projects. This was with a view to avoiding unnecessary duplication of work and building on existing work to maximise outputs. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.02 - Healthwise Wales External Panel Discussion (Shantini Parajothy) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Healthwise Wales External Panel Discussion (Shantini Parajothy) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.05 - ADR 2019 2nd Scientific Committee Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADR Wales membership and participation on ADR 2019 Scientific Committee |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.06 - EHDEN Data Partner Call (Nigel Hughes) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on a potential application - EHDEN Data Partner Call (Nigel Hughes) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.16 - Population segmentation w/ CTMUHB |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration discussions with Cwm Taf Morgannwg University Health Board re: population segmentation |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.17 - BREATHE discussion w/ Gwyn Davies |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion around research opportunities with Gwyn Davies re: BREATHE project. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.18 - Health Foundation social care call (Sarah Lowe & Lisa Trigg) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Health Foundation social care call (Sarah Lowe & Lisa Trigg) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.19 - ADR Wales: DDP Discussion & Monthly catch-up |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | As part of a regular catch up with senior Welsh Government colleagues, ADR Wales staff discussed the future options for the development of a data sharing solution for use with local authorities in Wales |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.20 - MediWales Directors Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | ADR Wales participation in the MediWales Directors meeting (David Ford is a Director) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.25 - Digital Leaders Wales (Swansea School of Management) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADR Wales participation in Digital Leaders Wales (Swansea School of Management) event |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.09.25 - Fliss Bennee (WG) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Engagement with Fliss Bennee, Deputy Director of Technology and Digital at Welsh Government |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.01 - ICES Scientific Advisory Committee |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Membership of the ICES Scientific Advisory Committee |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.04 - PHRN RIIP Funding Call |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales engagement with the Population Health Research Network re: RIIP funding call |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.08 - HealthWise Wales Meeting with HCRW |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in discussions between HealthWise Wales and Health and Care Research Wales |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.09 - Rebecca Cosgriff - CFT & BREATHE |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Potential collaboration discussion with Rebecca Cosgriff, Director of Data and Quality Improvement at Cystic Fibrosis Trust (CFT) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.14 - Barry Sandison CEO AIHW |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Engagement with Barry Sandison, CEO for Australian Institute of Health and Welfare (AIHW). AIHW is an independent group which provides information and statistics to the Australian Government in order to support better policy and service delivery decisions. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.16 - OECD Workshop in Paris |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ADR Wales attendance at the Organisation for Economic Co-operation and Development (OECD) event in Paris |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.22 - HCRW Infrastructure Away Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales attendance at Health and Care Research Wales away day - with a focus on health data infrastructure across Wales |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.23 - GSS Data Linkage Symposium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales attendance at GSS Data Linkage Symposium |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.28 - BREATHE project setup |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | ADR staff supported the development of BREATHE. The BREATHE Digital Innovation Hub is a consortium of five academic institutions in the UK and several industry partner seeking to facilitate and accelerate respiratory science initiatives and outcomes. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.28 - Daniel Reidpath Safe Havens (Bangladesh) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion around potential collaboration with Daniel Reidpath, Senior Director for Health Systems and Population Studies Division in Bangladesh |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.29 - UK Health Data Research Alliance Board |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in the UK Health Data Research Alliance Board |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.30 - Current Australian Initiatives - Merran Smith |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement with Merran Smith, Chief Executive for Population Health Research Network in Australia. Discussion was re current Australian initiatives |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.30 - Wellcome Landscape Review - UCL team on lesssons learnt from longitudinal population studies |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Feedback discussion with UCL team on lesssons learnt from longitudinal population studies |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.10.30 - Welsh Centre for Emergency Medicine Research (WCEMR) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions around collaborative opportunities with the Welsh Centre for Emergency Medicine Research (WCEMR) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.06 - Office for Statistics Regulations Conference 'A New Regulatory Vision' |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | ADR Wales attendance at the ONS Regulations Conference 'A New Regulatory Vision' |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.13 - Hub Commerical Leads Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | ADR Wales participation at the Hub Commercial leads meeting |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.18 - Daffodil Cymru meeting |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Supporters |
| Results and Impact | ADR staff supported an engagement with Daffodil Cymru, an organisation that utilises multiple sources of data to identify care services needs across Wales. This discussion was aimed at identifying opportunities for joint working between Daffodil and the research centres that work alongside ADR Wales |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.19 - Technical Team Meeting/Trusted Research Environments (Gerry Reilly) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in a discussion led by Gerry Reilly, Chief Technology Officer for HDR UK. Discussion was around trusted research environments |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.21 - Health Data Research UK Science Leadership Symposium and Dinner |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales colleagues (alongside other Swansea University data research teams) attended Health Data Research UK Science Leadership Symposium and Dinner |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.26 - Fuel Poverty presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Fuel Poverty in Wales conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.11.27 - HDR UK Public Health meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation at the HDR UK public health meeting |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.02 - SAIL External Scientific Advisory Board |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales staff participated and supported the coordination of the SAIL External Scientific Advisory Board |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.03 - Housing, Health & Fuel Poverty (Paul Roderick) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of ongoing collaborative discussions and planning with Paul Roderick in the areas of housing, health and fuel poverty data. Conversations included research team members on the Welsh Government Fuel Poverty project |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.06 - PPHI Management Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | ADR Wales participation in the Population and Patient Health Informatics (PPHI) Management Board. PPHI is a cross disciplinary research group within Swansea University which brings together academic colleagues that have a joint interest in population data research |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.09 - 4th International Conference on Administrative Data Research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | ADR Wales team heavily supported the delivery of the ADR 2019 conference, with a number of staff facilitating the events and discussions throughout the day. A number of associated researchers and academics attended and presented |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.09 - Fuel Poverty presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at ADR 2019 conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.09 - Presentation of research at International Conference on Administrative Data Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presented paper on Receipt and Effectiveness of Careers Guidance in Wales (with Katy Huxley) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.09 - Presentation of research at International Conference on Administrative Data Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presented Paper on Careers Guidance and Transitions to Further Education in Wales (with Katy Huxley) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.10 - Flying Start presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on 'Analysis of Flying Start outcomes using linked data: Childcare analysis' at ADR 2019 conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.10 - Ministerial speech at ADR Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Minister for Finance and Trefyndd opened the second day of the ADR Conference with a speech that reflected their strong support for the work of ADR Wales and the SAIL Databank |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.10 - Well-being SIP presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on 'Assessing the health impacts of adults' participation in Wales: Investigating the mediating role of accesibility to sports facilities' at ADR 2019 conference. Presntation was a high level descriptive/text based update on the work of an upcoming report. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.11 - Early Years SIP presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The association between mother's alcohol consumption during pregnancy and their child's educational attainment and risk of hospitalisation by age 14 - presentation at ADR 2019 conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.11 - Housing and homelessness presentation (IT) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Better data, better knowledge: developing an ideal honlessness data system drawing on lessons from global practice' - presentation at ADR 2019 conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.11 - Housing and homelessness presentation (PM) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The Prevention priority - linking education and homelessness data to inform policy in Wales' - presentation at ADR 2019 conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.12 - Pennsylvania University visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales hosted a visit from senior research and academic visitors from Pennsylvania University to discuss opportunitites for future collaboration |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.18 - GPW & SAIL - UK Genomics Strategy |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales engagement with colleagues at the Genomic Partnership Wales (GPW - Wales Gene Park) to support development of the UK Genomics Strategy |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.12.19 - CDSI visit to SAIL |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Hosted a visit from the Leicester Clinical Data Science Institute. ADR staff in attendance provided an overview of the model utilised in Wales to help identify opportunities for the CDSI to utilise a similar method (supported by the UKSeRP) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2020.01.08 - HDRUK/Hub Commercial Framework Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Meeting with HDR UK to discuss the Hub Commercial Framework |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.09 - CTUHB/Sollis Project Plan |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration discussions |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.09 - Pfizer project meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.10 - Hubs Commercial Framework Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.10 - UKRI discussion on Swansea business model and costings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.14 - MoJ, FJO and SAIL data linkages |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales participation in discussions around data linkage opportunities between Moj, Family Justice Observatory, and SAIL datasets. |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.16 - MS Register Monthly Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.23 - Presentation to WRA |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Supported Chief Statistician for Wales in an engagement with the Welsh Revenue Authority to discuss the development of a collaborative research project |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.27 - ADR Wales monthly catch up |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.27 - ALABAMA TSC Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Update meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.29 - CAFCASS Discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.30 - ADRNI Coordinating Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.30 - Fuel Poverty presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Housing Information Group event |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.30 - Research and Innovation Awards |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Swansea University reward and recognition event |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.01.31 - MS Register Scientific Strategy Consultation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | To drive forwards the MS research agenda and focus on outputs |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.03 - BREATHE meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.04 - DIH Programme Symposium & Hybrid Cloud Architecture Discussion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance at external workshop to represent ADR Wales and identify opportunities for collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.05 - ADR Leadership Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.05 - Data First AAG Initial meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attendance at meeting to represent ADR Wales and identify opportunities for collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.06 - ADP Steering Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular Meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.06 - Welsh Government Quarterly Contract Management Review |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.10 - Meeting with Jonathan Brown - Gloucester |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informing Jonathan Brown's presentation to the RCP regarding 'Big Data' |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.11 - ADR UK Deep Dive |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Review |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.12 - HWW forward planning meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion re: future strategy for health data research under the HealthWise Wales project |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.17 - ADR Steering Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADR Wales undertook a process of refocusing the programme steering group to include participants from senior policy (Welsh Government) who could take a more active advisory role. This re-aligned group included the senior SIP academics as well, with the intention of reinforcing a direct link between the work being done at a research level and the policy team implementing the outputs |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.19 - Stroke Epidemiological Data Meeting w/ Janet Whitley & Philip Evans |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions on data held & IGRP |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.21 - Casefiles w/ Matthew Pinnell CAFCASS CYMRU |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussions on CAFCASS Cymru data |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.21 - PAA Presentation Planning Meeting (UPENN) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invite to attend the PAA later in the year |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.25 - Patients know best (Sarah White) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Exploring collaborations and synergies |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.02.27 - HDR UK Collaboration AIMES |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Exploring opportunities for collaborations |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.03 - Data Partnership Quarterly Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting on data partnership (Nuffield & University of Lancaster) |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.05 - Quebec delegation discussion on data and technology |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Invitation by WG to speak with a fact finding delegation from Quebec |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.06 - SAIL HDR Phenomics discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Swansea & UCL collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.11 - HCRW Directors Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion re: future strategy for health data research |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.13 - Cardiovascular Research in Wales Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | BHF new opportunities event |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.18 - Chiesi & BREATHE discussions |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions re: existing collaboration and opportunities to support ongoing work |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.19 - MOJ discussion - panel set up |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attendance at external advisory group to represent ADR Wales and identify opportunities for to support the MOJ re: data research requirements |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.19 - Novartis discussions |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.24 - NWEH & BREATHE |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Discussions re: existing collaboration and opportunities to support ongoing work |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.03.31 - ZOE technical meeting w/ HDR UK |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions re: existing collaboration and opportunities to support ongoing work |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.01 - Roche, BREATHE & Discover now |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.02 - Gates Foundation Proposal |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales support of the Gates Foundation proposal for collaborating on data research infrastructure project |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.03 - GSK discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Discussions re: existing collaboration and opportunities to support ongoing work |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.07 - Data First Seminar (MOJ) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussions re: existing collaboration and opportunities to support ongoing work |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.17 - AAG |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.20 - EHDEN & COVID |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions re: existing collaboration and opportunities to support ongoing work |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.21 - FRQS Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Fonds de rechereche du Quebec. Committee member to assess innovation funds for AI and deep learning bids |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.04.27 - meeting with Renate Apse (mendelian) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Questions regarding SAIL database application |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.05 - BME proposal with Leicester |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration - Leicester council |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.05 - National Data Strategy for social services and social care in Wales (KPMG) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategy discussion |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.07 - Contact tracing in ABUHB |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Potential collaboration - ABUHB |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.08 - UKRI MRC Digital Research infrastructure bid |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR Wales support of upcoming proposal for collaborating on data research infrastructure project |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.12 - LPS linkage to NHS X |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration - NHS X |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.15 - UDG session chair discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.19 - DSAG Data Science Advisory Group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance at advisory group to represent ADR Wales and other Swansea University data research initiatives |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.20 - Care Home Working Group (DHSC) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration - DHSC |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.05.28 Shirley Wong BC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Report discussion |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.01 SAIL Scientific External Advisory Board |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited attendance to the SAIL Advisory Group to input on discussion items raised by the panel |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.04 CTUHB - Welsh Health Specialised Services Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.11 Inspirata and HDR UK Data Quality |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.17 BREATHE and Respiri |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.17 CICERO - CATALINI Databank |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.18 ADD Advisory Group (accelerating disease detection)_ |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance at advisory group to represent ADR Wales and other Swansea University data research initiatives |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.06.30 CASCADE Infrastructure Governance |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.07.01 HSR UK (Health Services Research) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.07.09 REACH meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Initial meeting in a series |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.07.16 ICES Scientific Advisory Committee Call |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Regular meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.07.20 AI Pattern recognition - OCT retinal scans & linking |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential SAIL collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.08.28 Stroke Register (Anne Freeman) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.01 ADHD Registry (Anita Thapar) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Update |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.07 UKAD Anti Doping Research collaboration |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.14 Turing collaboration |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.15 Paul Watry (Liverpool) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.16 GSK - SLS data |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.23 - Data Connecitivity CO-CIN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UK wide approach to routine health data for linkage |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.23 - Meeting with Mark Parsons (Edinburgh) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.25 - LEO hosting meeting w/ UKRI |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.09.30 - Wales Data Nation Accelerator - health and wellbeing workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance at external workshop to represent ADR Wales and identify opportunities to support upcoming health data research initiatives |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.10.01 - Meeting with Michael Schull ICES |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.10.14 - NCS D&C Federation Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendees from various sectors |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.10.26 - Welsh Police introduction to the SAIL Databank |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Introduction to SAIL for the Violence prevention unit - representation from all forces in Wales |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.10.27 - ESRC early life cohort feasibility study |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration with UCL and Cardiff |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.02 - BREATHE & ISARIC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on sustainable approach to data access for ISARIC data |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.02 - IPDLN Virtual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Conference |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.10 - DSAG and DARE |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.11 - BEDL Colin Dayan (Cardiff) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.16 - WSIB |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Fact finding discussion with Canadian company |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.23 - Wales Cancer Bank Advisory Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Board meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.24 - Ben Goldacre |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on SAIL databank |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.27 - CoRePa UK Long Covid Partnership |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential collaboration |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.11.30 - CASP meeting with Andrew Jones (DVLA) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Fact finding discussion |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.12.04 - Asymptomatic mass testing and NCS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | DHSC and others |
| Year(s) Of Engagement Activity | 2020 |
| Description | 2020.12.04 - MSK Health Data Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Versus Arthritis |
| Year(s) Of Engagement Activity | 2020 |
| Description | 21/6/18 - ADR conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This year's conference-the 5thin the series of administrative data research conferences-hosted nearly 250 attendees from around the UK, Europe, Australia, and Canada. Attendees came to share expertise, transfer knowledge, and build collaborations. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 23/06/15. Privacy protecting data linkage research : a key tool in hastening translation and achieving population impact. Invited presentation McGill University, Montreal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 23/06/15. Privacy protecting data linkage research : a key tool in hastening translation and achieving population impact. Invited presentation McGill University, Montreal. |
| Year(s) Of Engagement Activity | 2015 |
| Description | 5/6/18 - Expert advice to ESRC on longitudinal studies |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The independent Longitudinal Studies Review was published on 8 May and makes recommendations for future priorities and innovations. ESRC is now working on shaping its strategy and priorities for data for research, including longitudinal survey data and other types of data. Event for people who could offer expert advice to ESRC in this work, chaired by Professor Anna Vignoles. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 7/9/18 - ADRC data for children meeting (Simon Thompson) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration |
| Year(s) Of Engagement Activity | 2018 |
| Description | 9/2/18 - MRC Mental Health Data Pathfinder expert Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MRC recently launched a Mental Health Data Pathfinder call. The development of a coordinated informatics resource for mental health research is a key priority of the MRC's Strategy for Lifelong Mental Health. In taking forward this strategy, a rapid spend call for institutional awards was launched to lay the groundwork for the development of a Mental Health Research Platform. The purpose of this call is to provide flexible pump-priming funds, of up to £1.5m per research organisation, to support the development of such a resource and address key challenges in: data discoverability; methodologies for data linkage, integration and interoperability; harmonisation of mental health measures; and feasibility studies for scaling up for the next phase of platform development. Details of the call can be found here: https://www.mrc.ac.uk/funding/browse/mh-data-pathfinder/mental-health-data-pathfinder/ I was recruited to a Panel to provide expert review of applications and attend the meeting on the 9th of February 2018 at MRC Head Office in London. It is envisaged that Panel members would also be involved in the assessment of bids for a future MRC investment in a Mental Health Research Platform. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Academy of Medical Sciences Health of the Public 2040 workshop, chaired by Dame Anne Johnson |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Many of the brightest minds in the UK came together in this first of several workshops to envisage the challenges facing public health in 2040. The results of this will be a major publication, authored by the Working Group members, which will aim to influence policy making and practice. High levels of engagement in the initiative from the invited delegates |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | All-Wales Patient Consent/Dissent workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To improve understanding of other thinking outcomes: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | Arthritis research, NCPHWR and Farr Institute: Pharmacovigilance expanded. Wales Arthritis Research Network - 23/5/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Arthritis research, NCPHWR and Farr Institute: Pharmacovigilance expanded. Wales Arthritis Research Network, Cardiff |
| Year(s) Of Engagement Activity | 2016 |
| Description | Big Data - next big thing: evaluation. Presentation to 1st NHS Wales Digital Health and Care Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited talk on the future of health informatics and 'Big Data' for the NHS. The purpose was to demonstrate what was already happening, how evaluations of numerous interventions were being carried out using multi-sectoral data linkage, how this was also supporting DiscoverY Science and the potential for these activities to grow into normal practice for the NHS and wider public services. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Bridge Health Injury Surveillance Platform. European Public Health Conference, Milan - 17/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Bridge Health Injury Surveillance Platform. European Public Health Conference, Milan |
| Year(s) Of Engagement Activity | 2015 |
| Description | CESG meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The intended purpose was to improve understanding of other thinking outcomes: Better understanding of IG approach by CESG |
| Year(s) Of Engagement Activity | 2015 |
| Description | Calculating the burden of injuries. 10th Meeting of the EU-Network of IDB National Data Administrators - 17/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Calculating the burden of injuries. 10th Meeting of the EU-Network of IDB National Data Administrators, Lisbon |
| Year(s) Of Engagement Activity | 2015 |
| Description | Canadian Institute of Clinical Evaluative Sciences Advisory Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: Significant discussions relating to achivements of ICES and, most notably, its future strategic direction |
| Year(s) Of Engagement Activity | 2015 |
| Description | Canadian Institute of Clinical Evaluative Sciences Board of Directors |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: Agreement for ICES to take advantage of an offer to sign an MoU with the Farr Instutute in the Uk. Agreementfor ICEs to participate in a pan-Canadian development to link existing centres of excellence together |
| Year(s) Of Engagement Activity | 2015 |
| Description | Closing remarks at International Population Data Linkage Network conference, Vancouver Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Considerable discussion during and afterwards Swansea (Ford) has been elected as the next Director of the IPDLN commencing Jan 2015 |
| Year(s) Of Engagement Activity | 2014 |
| Description | Data Linkage to Cohort Studies. Presentation to CLOSER research group, London - 3/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Data Linkage to Cohort Studies. Presentation to CLOSER research group, London |
| Year(s) Of Engagement Activity | 2014 |
| Description | Data Linkage: an essential tool for efficient observational and interventional research and service delivery. Keynote address at Public Health Science Conference, Cardiff - 27/11/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Data Linkage: an essential tool for efficient observational and interventional research and service delivery. Keynote address at Public Health Science Conference, Cardiff |
| Year(s) Of Engagement Activity | 2016 |
| Description | Data science: solving the grand challenge of interdisciplinary working for UK biomedical, clinical and epidemiological sciences. Invited presentation at UK Roadmap for Biomedical Metabolic Phenotyping retreat, Wellcome Genome Campus, Hinxton - 11/10/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Data science: solving the grand challenge of interdisciplinary working for UK biomedical, clinical and epidemiological sciences. Invited presentation at UK Roadmap for Biomedical Metabolic Phenotyping retreat, Wellcome Genome Campus, Hinxton |
| Year(s) Of Engagement Activity | 2016 |
| Description | Dementias Research Platform UK. Presentation to Farr Institute International Advisory Board - 15/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dementias Research Platform UK. Presentation to Farr Institute International Advisory Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Developments in data sharing technologies at Farr centre in Swansea: UKSeRP and NRDAs. MRC Stratified Medicine consortia, London - 24/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developments in data sharing technologies at Farr centre in Swansea: UKSeRP and NRDAs. MRC Stratified Medicine consortia, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Digital Health International Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The intended purpose was to to stimulate thinking Outcomes: Next conference agreed for Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | ESRC Future Research Leaders Commissioning Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To make decisions Outcome: funding of high quality ECRs |
| Year(s) Of Engagement Activity | 2015 |
| Description | Effects of an air pollution personal alert system on health service usage in a high-risk general population: a quasi-experimental study using linked data. UKCRC Public Health Conference, Edinburgh - 19/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Effects of an air pollution personal alert system on health service usage in a high-risk general population: a quasi-experimental study using linked data. UKCRC Public Health Conference, Edinburgh |
| Year(s) Of Engagement Activity | 2015 |
| Description | Ethical Risk Assessment in Biomedical Big Data - Protecting privacy through design |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Protecting privacy through design |
| Year(s) Of Engagement Activity | 2016 |
| Description | Evaluating environmental influences on health using privacy protecting data linkage. Presentation to environmental health research group at CREAL, Barcelona - 7/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Evaluating environmental influences on health using privacy protecting data linkage. Presentation to environmental health research group at CREAL, Barcelona |
| Year(s) Of Engagement Activity | 2014 |
| Description | Farr Institute Cancer Frontiers Meeting, London - 9/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Farr Institute Cancer Frontiers Meeting, London Plans made for further meetings of the group |
| Year(s) Of Engagement Activity | 2015 |
| Description | Farr Institute: Distributed multi-disciplinary team science in action. International Population Data Linkage Network Conference - 24/8/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Farr Institute: Distributed multi-disciplinary team science in action. International Population Data Linkage Network Conference, Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Farr and the vision for data: examples of evaluating complex interventions. MQ Transforming Mental Health meeting - 03/09/16 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Farr and the vision for data: examples of evaluating complex interventions. MQ Transforming Mental Health meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | Geospatial 'Big Data' and Privacy Protection. Association of Geographic Information Big Data and You conference - 8/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Geospatial 'Big Data' and Privacy Protection. Association of Geographic Information Big Data and You conference, Cardiff |
| Year(s) Of Engagement Activity | 2015 |
| Description | HCRW PMC meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Intended purpose: To share information Outcome: Possible continuing involvment in the UK PMC initiaitive |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC Care.Data Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The intended purpose was to inform decision making. outcomes: More thoughtful design of 2nd care.data rollout plans |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC Care.Data Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: to inform decision making Outcomes: New plans for recommencing data sharing activities in England. |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: New plans for recommencing data sharing activities in England. |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC follow up meeting on data acess |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To inform decision making Outcome: Accomodation of ADRN as a new entity with which HSCIC could deal |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC meeting on data access |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended Purpose: To inform decision making Outcome: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | Harnessing Data for Health Science and e-Health Innovation. Joint presentation by Farr Institute Directors to Farr Institute International Advisory Board, London - 15/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Harnessing Data for Health Science and e-Health Innovation. Joint presentation by Farr Institute Directors to Farr Institute International Advisory Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health of the Pubiic in 2040 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | intended purpose: To inform decision making |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health of the Public in 2040 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended Purpose: To inform decision making Outcome: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health of the Public in 2040 - additional working group meeting. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: Major Publication due mid 2016 |
| Year(s) Of Engagement Activity | 2015 |
| Description | Hong Kong Management Association Project Board |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended output: To stimulate thinking Outcomes: Continued discussions with the group |
| Year(s) Of Engagement Activity | 2015 |
| Description | Hosting senior delegation from Microsoft |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Familiarisation of Microsoft with Farr Aims and objectives and identification of collaborative opportunities with Farr CIPHER Joint strategic development plan in discussion |
| Year(s) Of Engagement Activity | 2014 |
| Description | IPDLN Scientific Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To make decisions Outcome: New International data science conference |
| Year(s) Of Engagement Activity | 2015 |
| Description | Impact of falls. Swansea Occupational Health and Safety Group Conference - 29/6/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 160629 Impact of falls. Swansea Occupational Health and Safety Group Conference - Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Influencing wellbeing at the population level. Invited presentation at A Regional Collaboration for Health (ARCH), Swansea - 14/10/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Influencing wellbeing at the population level. Invited presentation at A Regional Collaboration for Health (ARCH), Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Informatics and Population Health Sciences. Presentation to MRC Population Health Strategy Board, London - 19/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informatics and Population Health Sciences. Presentation to MRC Population Health Strategy Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Informatics, epidemiology and interventions: Network working and coordination of data resources. MRC Neurodevelopmental Disorders Research Network, London - 23/11/15 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informatics, epidemiology and interventions: Network working and coordination of data resources. MRC Neurodevelopmental Disorders Research Network, London Decision made that a Neurodevelopmental Disorders Research Network would require a data platform similar to the Dementias Research Platform UK |
| Year(s) Of Engagement Activity | 2015 |
| Description | Injury Prevention as Social Change. Invited Seminar. World Injury Prevention Conference (Safety 2016), Tampere, Finland - 18/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Injury Prevention as Social Change. Invited Seminar. World Injury Prevention Conference (Safety 2016), Tampere, Finland |
| Year(s) Of Engagement Activity | 2016 |
| Description | Injury Surveillance Platform, Kick off BRIDGE-Health meeting - 20/5/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Injury Surveillance Platform, Kick off BRIDGE-Health meeting The talk initiated a considerable amount of discussion on the development of appropriate comparative metrics and indicators for regional, national and EU use |
| Year(s) Of Engagement Activity | 2015 |
| Description | Innovate UK / Welsh Government supported ABMU Board SBRI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Led to the development of innovate new "big data" software for use by health organisations to improve the quality and efficiency of the services they provide patients Development programme moved forward into the funded development of two new major software products by the finalist companies involved. |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | International Collaborative Effort on Injury Statistics and Methods, Helsinki 2016. Grand research Challenge - Update - 15/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | International Collaborative Effort on Injury Statistics and Methods, Helsinki 2016. Grand research Challenge - Update |
| Year(s) Of Engagement Activity | 2016 |
| Description | Interview for BBC TV Wales |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Broadcast on the early evening (Welsh) news further media enquiries (BBC Radio) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Invited presentation: Privacy protecting data linkage in evaluation. Part of the EUPHA Child and Adolescent Public Health pre-conference workshop. Child Maltreatment: a Public Health Perspective. Half way to 2020, where are we now? |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This was an invited talk at a specialist workshop involving European researchers working in the field of Child Maltreatment and the World Health Organisation. My talk demonstrated the utility of multi-sectoral data linkage in the UK in evaluating medium and long term consequences of maltreatment and the potential to embed interventions at a policy or individual level for evaluation. Further meetings of the group are planned. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited speaker - Public Health Wales conference 2015 (2/11/15) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public Health Wales annual conference - 2/11/15 - Ronan Lyons |
| Year(s) Of Engagement Activity | 2015 |
| Description | Joint presentation with Ruth Gilbert (UCL) and John Franks (Edinburgh) Farr Institute Research Meeting, Edinburgh |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Adversity-related injury admission to hospital of adolescents and young people - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Judging of Digital Economy Cruicible enttrants |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Judging and then coaching of bright young researchers and their ideas |
| Year(s) Of Engagement Activity | 2016 |
| Description | Keynote Speaker and Wales premier International Life Science Conference - BioWales 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Numerous questions from audience on the potential for big data to support research and industrial progress. Increased awareness of Wales as a significant focus for health informatics. Several inward investment decisions could be tracked to this talk, whihc would have played a part in the company decisions |
| Year(s) Of Engagement Activity | 2013 |
| Description | Keynote presentation at British Isles Network of Congenital Anomaly Registers (BINOCAR), Swansea |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Data Linkage: the key to long term outcomes - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Keynote talk at ThinkCloud Health event, 15 Jan 2015. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk c;clarified obstacles and solutions to the use of cloud technology for healthcare purposes. Industrials better understood NHS issues with cloud approaches, NHS understood better the opportunities cloud can provide Multiple discussions and requests to meet for further information on how these technologies can be safely and acceptably used in healthcare and healthcare research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Launch of the MRC UK Dementias Platform, Royal Society, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | More than 200 people attended the conference launch. I presented as leader of the Informatics Platform Work Package in the morning and the interactive discussion with industry in the afternoon a number of contacts were made with industry colleagues with plans for follow up meetings |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.mrc.ac.uk/research/facilities/dementias-research-platform-uk/ |
| Description | MED-BIO: Links to Farr Institute and CIPHER. Presentation to MED-BIO MRC bioinformatics centre, London - 6/7/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MED-BIO: Links to Farr Institute and CIPHER. Presentation to MED-BIO MRC bioinformatics centre, London |
| Year(s) Of Engagement Activity | 2016 |
| Description | MEDMI / UK Biobank workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To stimulate thinking Outcome: Agreement to draft a letter to research councils asking for more cross-funder calls on this topic. Agreement to produce report looking at opportunities and barriers for further work |
| Year(s) Of Engagement Activity | 2015 |
| Description | MIT Expert Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The intended purpose was to inform decision making. Outcome: Requests for continued imput into the programme |
| Year(s) Of Engagement Activity | 2015 |
| Description | Measuring patient outcomes and reducing population impact. Presentation to South Wales Trauma Collaborative - 3/6/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Measuring patient outcomes and reducing population impact. Presentation to South Wales Trauma Collaborative |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Chairman of Health and Social Care Information Centres, Skipton House, London |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Agreement to work jointly on developing the case for large scale data linkage and data sharing in secure environments Influencing HSCIC's view on how secure setting could be designed and operated and how powerful research outputs could help swing public (and media) opinion in favour of using data to improve care and services |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Frances Maude, Cabinet Secretary and officials about changes to data sharing legislation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Debate and discussion about privacy vs research utility and about public acceptability Continued invitations to contribute to open policy making meetings (once every few weeks for most of 2014) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Programme Manager of Care.Data from Health and Social Care Information Centre |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions led to invitation to be a member of HSCIC's Expert Advisory Group Beginning discusssions to work towards an agreed national (UK) approach to Safe Havens and Secure Settings |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Member of small delegation to Grenoble University forming strategic links for research and capacity building |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Multiple expressions of interest in collaboration from delegates strategic institutional memorandum of understanding between two universities. Joint masters degree in HI under development |
| Year(s) Of Engagement Activity | 2014 |
| Description | Member of small senior delegation to Texas, building relationships with the Texas Medical Center; the world biggest healthcare conglomoration |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | talked sparked several discussions about collaborative opportunities between UK and Texas collaboration on capacity building (training) in health informatics (university of Texas) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Mental Health Data Science Meeting (event part-funded by Farr Institute CIPHER) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Assessment of complex interventions using routine data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Ministerial Health Data Programme - External Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended Purpose: To inform decision making Outcome: New plans for recommencing data sharing activities in England. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Multi-sectoral data linkage for intervention and policy evaluation. Invited presentation to 7th ESRC Research Methods Festival: advancing social science research methods - 6/7/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Multi-sectoral data linkage for intervention and policy evaluation. Invited presentation to 7th ESRC Research Methods Festival: advancing social science research methods, Bath |
| Year(s) Of Engagement Activity | 2016 |
| Description | NHS R&D Forum Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To improve understanding of other thinking Outcome: Request to learn more about the subject from multiple NHs organisations. Many follow on discussions |
| Year(s) Of Engagement Activity | 2015 |
| Description | NHS Wales Health Intelligence Unit planning group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Plans to develop new NHS Wales functional unit, as part of Swansea University's Data Science building initiative (Unit to be co-located within the MRC/ESRC funded building), along with Farr / ADRN teams from the university. Stakeholder partners inclide Public Health Wales, ABMU Health Board, NHS Wales Informatics Service Agreement to form the Unit |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | NIB Workstream 2.2 Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: Better understanding of the needs of researchers and how exisiting "safe" approchaes to data sharing (Farr, ADRN, SAIL) could be used to move datasharing along more quickly in the UK |
| Year(s) Of Engagement Activity | 2015 |
| Description | NISCHR Cancer Centre Theme and WP Leads meeting Work Package Leads |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Engagment with our research strategy and collaborative opportunities |
| Year(s) Of Engagement Activity | 2015 |
| Description | National Centre for Population Health and Wellbeing Research, Health and Care Research Wales launch - 14/5/15 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | National Centre for Population Health and Wellbeing Research, Health and Care Research Wales launch |
| Year(s) Of Engagement Activity | 2015 |
| Description | Novatis / Welsh Government shared risk scheme pilot |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussions have led to the formation of a formal Project Board for the initiative to be launched by the Minister for Health and Social Services at the BIO Wales conference in March 2015 Potential revolutionise the Way in which major pharmaceutical companies provide and are reimbursed for their drugs based on a risk-sharing approach. |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Operating at Scale Throughout the UK. Farr Institute Industrial Forum in association with Genesis 2015 conference, London - 10/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Operating at Scale Throughout the UK. Farr Institute Industrial Forum in association with Genesis 2015 conference, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Panel member debating data linkage techniques and technologies at Health Data Linkage Conference, Rio de Janeiro, Brazil. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Very lively debate informed new national policy for Brazilian governement of data linkage approaches across all of Brazil |
| Year(s) Of Engagement Activity | 2014 |
| Description | Participation in Cabinet Office Open Plenary session on data sharing |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | questions and discussion continued engagement with policy makers and privacy lobby groups |
| Year(s) Of Engagement Activity | 2014 |
| Description | Participation in Welsh Government policy making group to determine industrial engagement strategy for Wales in relation to health research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion of collaborative opportunities with a major company Welsh Government's position with regard to a strategic collaboration with this industry partner clarified |
| Year(s) Of Engagement Activity | 2014 |
| Description | Peter Mackie - Attendance at CLG/DWP event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales Co-PI attended an event that reviewed the causes of homelessness. He made a case to attendees for the importance of data linkage in supporting research in this area |
| Year(s) Of Engagement Activity | 2018 |
| Description | Peter Mackie - Engagement with Welsh Government KAS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales Co-PI met with Welsh Government Knowledge and Analytical Services colleagues to highlight the importance of linked data for research. Output: Gained support to apply for secondment funding to improve data collection |
| Year(s) Of Engagement Activity | 2017 |
| Description | Platforms and Governance. Progress in setting up the environment for delivery: trusted research environments for federated, scalable research. Farr Institute International Advisory Board, London - 1/12/15 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Platforms and Governance. Progress in setting up the environment for delivery: trusted research environments for federated, scalable research. Farr Institute International Advisory Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation and workshop discussion with the Minister of Health and Social Service's Life Science Advisory Panel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | intense debate in the role of e-health companies in the life science industry. Subsequent recognition of this sub sector in Wales in policy documents. |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation as part of the Farr - CIPHER launch event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Interest in CIPHER (Farr) Better engagement with NHS Wales amd its staff. More collaborations with academics in Wales |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation at Academy of Medical Sciences, Data in Safe Havens meeting, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Farr Institute: Safe Havens - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Connecting Big Data conference in Truro, Cornwall |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Lots of discussion about approaches and responsibilities to privacy protection and research Better understanding by the non-health research communities (environmental and weather) to the use of health data, in terms of privacy protection, computational issues and professional practice |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Farr Institute Research Meeting, Edinburgh |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Farr Institute - CIPHER: overview and recent activities - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at High Performance Computing and Big Data Conference, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Improving health through Big Data - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Innovation in Healthcare and Higher Education conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Considerable interest from NHS participants a number of follow up enquiries |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation at International Collaborative Effort on Injury Statistics and Methods, Washington DC |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Grand Research Challenge: Global Collaboration in Measuring the Incidence and Burden on Injuries - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at International Health Data Linkage Conference, Vancouver |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Using data linkage to support measurement of the Global Burden of Injuries - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at MRC Strategic meeting between health and bioinformatics centres - 29/1/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Centre for Improvement of Population Health through E-records Research (CIPHER). Presentation at MRC Strategic meeting between health and bioinformatics centres, Windsor |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Nottingham University seminar - 15/1/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Data linkage in injury research - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Preventing Injury to Children Conference, Dublin, Ireland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - How can we improve child injury outcomes? - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at UK LifeSciences - prospects for innovation , investment and global competitiveness in Whitehall, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Much debate as how data and data business can be used to drive the economy and improve public services Seveeral on-going connections with delegates |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Wales Housing Network Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presenation at Wales Housing Network Meeting, organised by Welsh Govenrment. The title for the presentaiton was, "Homelessness in Wales: The potential of big data". The purpose of the activity was to start a dialogue on the future of indnvidualised administrative data collecitons in Wales, and the potential for data linkage. At least 50 persons attended, covering a range of internal Welsh Government policy makers, analytical services staff, housing providers, and industry members. The presentaiton resulted in a further meeting between WG and ADRC-Wales/Cardiff University staff to explore future work in the area of data colleciton and homelessness. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at Welsh Stroke Conference, SWALEC Stadium, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Using linked data for research and continuous quality improvement - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at launch of Digital Innovation Week Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Interested audience with many questions heigthened public awareness of the challenges and benefits of big health data research |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation on Health / Bioinformatics at Swansea University. Visit of Prof Julie Williams, Chief Scientific Advisor for Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation on High Performance Computing and health data science at HPCWales event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Considerable interest in big data capabilities and high performance computing Increased level of interest in the use of big health data for research and for company benefit. |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation on Information Governance to Health Data Linkage Conference, Rio de Janeiro, Brazil |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | talked followed by 40 minute plenary discussion session Asked as international expert to provide input into the conference to guide the development of a Brazilian national strategy for data sharing and reuse. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation on National Centre for Population Health and Wellbeing Research (NCPHWR) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on National Centre for Population Health and Wellbeing Research (NCPHWR) at Research in Wales showcase event, Cardiff. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on UK Secure eResearch Platform (DPUK) - 24/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on UK Secure eResearch Platform (DPUK) at MRC meeting 'Managing the data life-cycle for stratified medicine', London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on future Farr UK Institute |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on future Farr UK Institute to MRC Population Health Sciences Group, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on research at Farr Institute CIPHER to Rebecca Endean - 26/1/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on research at Farr Institute CIPHER to Rebecca Endean, Director Research Base, Business and Science |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation to Association of Geographical Information GEO 5 conference series: 'Big Data and You", Cardiff - 25/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Association of Geographical Information GEO 5 conference series: 'Big Data and You", Cardiff. This was voted best conference presentation and short listed for AGI Awards for Geospatial Excellence ceremony on 25/11/15, Kenilworth. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to BIG Innovation Centre |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | High levels of interaction with other senior delegates Influenced the direction of the BIG workplan; hightened awareness of Farr, its plans and its capabilities |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Chief Economist and Child Poverty Group, Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Wales Electronic Cohort for Children (WECC) study: design, early results and creation of a hybrid e-cohort - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Clinithink, Swansea - 10/4/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | NLP of Emergency Department data: Early experience. Presentation to Clinithink, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Computer Science away day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | change of attitude of Wales's Computer Science communities towards big data research joint data science degree programme in planning. investment from Swansea Computer Science department in data science posts to complement College of Medicine investments in Farr |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Delegates from Curtin University, Western Australia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To share information Outcome: Possible future international collaboration discussed |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Devolved Nations Healthcare approach workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Exchange of information about health data strategies across the 4 UK countries. Part of a newly established series of meetings better understanding of national strategies and influence on improving interoperation at a data level. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Fellows of the Royal Society of Arts and Commerce seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Much discussion among a highly influential group in a subject about which they knew little Increased awareness in senior figures across Wales about big health data and how the Farr is moving things froward in Wales and across the UK |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to IBM Innovation Centres, Dublin, Ireland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Setting the scene for possible H2020 collaborations by outline the work of Farr and Farr-CIPHER New H2020 project in planning with IBM |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to MRC Council - Centre for the Improvement of Population Health through E-records Research (CIPHER) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Presentation to MRC Council on the success of the Farr CIPHER centre and its impact through science and public engagement, including the development of data sharing research platforms that underpin a number of major research initiatives, including DPUK and MQ Adolescent Mental Health Platform |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation to Ministerial advisory group on genomics strategy in Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | considerable interest in how big data approaches could work across genetics and health records informed investment decisions in new advanced genetics capacity in Wales |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to NCRI Conference 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Type Of Presentation | workshop facilitator |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Many questions and positive comments. Many subsequent discussions continued dialogue with cancer informatics leads in UK |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to NHS Cornwall meeting about big data analytics and how Farr technologies could support research, policy and service development |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interest in how data could improve NHS Cornwall's performance Commitment to plan the use of SAIL/UKSERP/RDAs in Cornwall. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to NISCHR SEWAHSP/GSK meeting, Caerleon |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Health Informatics for respiratory disease research - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to PHW Board - 26/2/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration between SU/SAIL and PHW: a tremendous opportunity to improve population health and care outcomes. Presentation to PHW Board, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Precision Medicine Catapult - 17/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Precision Medicine Catapult tem leaders from Cambridge University at visit to Swansea University Precision Medicine Catapult team asked to come back to discuss opportunities and projects in more detail |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Royal Society of Arts and Commerce Fellows seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | much discussion after talk support for data linkage for health research in an influential senior group |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to South Wales Trauma Collaboration, Bridgend |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Data Linkage in major trauma: the key to improving clinical effectiveness, NHS efficiency and reducing population impact - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to UK Biobank and Oxford Big Data Institute, Swansea |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Use of UK Secure e-Research Platform (UKSeRP) - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to UK Biobank team |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Presentation title - Potential to use UK Secure e-Research Platform (SeRP) for some access needs to UK Biobank data - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Welsh Governement health officals on improving data linkage opportunies in Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion about most suitable way to implement an intitative New funding available |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to all senior health practitioners and managers from ABMU Health Board as part of the Changing for the Better programme |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Considerable discssion on how big data could steer clinical, management and commissioning decisions Contrinuted to the decisions to incorporate of e-health into the change plan for the health board |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to and involvment in NISCHR HI planning workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | very interactive discussions about the role big data research can play as part of a national health research strategy incorporation of health informatics as a integrated and integral theme in Wales health R&D strategy |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to companies and academics as part of NVI Launch event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Much interest in becoming involved from academic and business communities high take up of NVI participation |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to industry and research funders on 'Big Data for Asthma', Wales in London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title -BigDatA. Why Asthma, why us, why now? - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to international researchers from four countries as part of the BGER symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Identification of potential collaborators in research from France, US and China Collaboration with French researchers |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to joint meeting of UKDP, EMIF (European Medical Information Framework) and eTRIKS (European Translational Information and Knowledge Management Services), London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - UK Dementia Platform Informatics - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to researchers currently using the SAIL data bank (streamed on-line and face-to-face) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | increased awareness of strategic direction for SAIL, Farr and ADRN better engagement from academic collegues, increased research use of big health data |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to senior NHS Bristol CLARWEST officials |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Much discussion about opportunities Farr technolgies could bring to Avon area Agreed collaboration with NHS Bristol organisations |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to senior NHS Bristol officials |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Planning for the use of Farr technologies in NHS Bristol Agreement to collaborate to extend data available to Farr via NHS Bristol organisation |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to senior academics and policy makers at Wales GenePark seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Agreement to collaborate strategically formal relationship between Farr and Wales GenePark expressed in their recent funding application |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to senior policy makers considering EME programme in Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | debate about how Wales should address emerging EME opportunites Emergant strategy via Chief Scientific Advisor for Wales |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to the EU Joint Action on Monitoring Injury in Europe (JAMIE) meeting, Vienna |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation with Mick Dennis (Swansea) and Daniel Davies (UCL) to UK Biobank/DPUK neorodegerative outcomes group - 6/1/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research Proposal: Dementia and Cognitive Impairment identification in routine health data: development and validation of algorithms within SAIL using CFAS cases. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation/workshop at DECIPHer annual seminar - 9/6/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An Introduction to Data Linkage. Presentation/workshop at DECIPHer annual seminar, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: Big data approaches to the evaluation of factors influencing children's health and wellbeing. SPIRIT international children's play conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This was an invited talk for a charity working on improving children's play opportunities. Much of the focus of my talk was on how multi-sectoral data linkage could support large scale, previously infeasible evaluations of the impact of children's play on health, educational outcomes and wellbeing. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation: Managing Data and Analysis. In Workshop: Designing an ERIC on health information to maximize research and evidence-based policy making. EUPHA Conference, Stockholm |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | I gave a presentation on how to manage multi-country data and analysis for European projects. This was part of a workshop at the EUPHA Conference, Stockholm: Designing an ERIC (European Research Infrastructure Consortium) on health information to maximize research and evidence-based policy making. It led to widespread discussion. The EU subsequently funded the €5M InFact project: Joint Action on Health Information towards a sustainable EU health information system that supports country knowledge, health research and policy-making. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Privacy protecting data linkage for population health. Presentation for Fondazione Lanza, Padua - 2/12/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Privacy protecting data linkage for population health. Presentation for Fondazione Lanza, Padua |
| Year(s) Of Engagement Activity | 2014 |
| Description | Privacy protecting data linkage research: a key tool in hastening translation and achieving population impact. Invited Seminar - 10/6/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Privacy protecting data linkage research: a key tool in hastening translation and achieving population impact. Invited Seminar, Cambridge University |
| Year(s) Of Engagement Activity | 2015 |
| Description | Protecting privacy through design - 14/3/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Protecting privacy through design. Invited presentation to Brocher Foundation, Oxford Internet Institute, Geneva |
| Year(s) Of Engagement Activity | 2016 |
| Description | Providing expert contribution to meeting with Cabinet Office on new draft policy and legislation (data sharing) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New policy in draft. New legal viries pending Increased the understanding of policy makers about the needs of researchers for sharing personal data from public services; increased their understanding of good practice in data sharing practice |
| Year(s) Of Engagement Activity | 2014 |
| Description | Prudent Healthcare: achieving better outcomes through information technology. Presentation to NHS managers/clinicians - 18/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Prudent Healthcare: achieving better outcomes through information technology. Presentation to NHS managers/clinicians |
| Year(s) Of Engagement Activity | 2014 |
| Description | Realising the potential of Big Data: Secure Anonymised Information Linkage (SAIL). Presentation to UK Asthma Centre for Applied Research scientific meeting, Oxford - 4/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Realising the potential of Big Data: Secure Anonymised Information Linkage (SAIL). Presentation to UK Asthma Centre for Applied Research scientific meeting, Oxford |
| Year(s) Of Engagement Activity | 2014 |
| Description | Reception for Canada's Honorary Consult to Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To share information Outcome: A number of relevant connections made in Canadian government |
| Year(s) Of Engagement Activity | 2015 |
| Description | Research workshop on natural experiments at Health and Care Research Wales Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | We conducted a research workshop on the evaluation of natural experiments using linked data at Health and Care Research Wales Annual Conference. Many examples were provided from studies funded by the Farr Institute funding group, DECIPHer, MRC, ESRC, NIHR and Health and Care Research Wales. A discussion followed on the potential for further evaluations with researchers, practitioners from many organisations and members of the public, with several ideas being developed. |
| Year(s) Of Engagement Activity | 2017 |
| Description | SUSSEX EHR Workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To stimulate thinking Outcome: Subsequent workshop taken forward on the specific topic of de-identification of freetext documents. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC) - 22/4/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC). National Centre for Population Health and Wellbeing Research, Newport |
| Year(s) Of Engagement Activity | 2016 |
| Description | Secure Anonymised Information Linkage (SAIL) system. Educational presentation to the Confidentiality Advisory Group, Health Research Authority - 7/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Secure Anonymised Information Linkage (SAIL) system. Educational presentation to the Confidentiality Advisory Group, Health Research Authority, London |
| Year(s) Of Engagement Activity | 2016 |
| Description | Sensitivity of national injury presentation estimates. Presentation to Joint Action on Monitoring Injuries in Europe (JAMIE) project group and national injury data administrators , Berlin - 4/12/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sensitivity of national injury presentation estimates. Presentation to Joint Action on Monitoring Injuries in Europe (JAMIE) project group and national injury data administrators , Berlin |
| Year(s) Of Engagement Activity | 2014 |
| Description | Sensitivity of national injury presentations estimates. 10th Meeting of the EU-Network of IDB National Data Administrators - 17/10/15 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sensitivity of national injury presentations estimates. 10th Meeting of the EU-Network of IDB National Data Administrators, Lisbon This discussion was held with national data administrators from 20 EU countries and senior EU policy makers on the development of appropriate injury indicators to support national and EU injury prevention policy development |
| Year(s) Of Engagement Activity | 2015 |
| Description | Socioeconomic inequalities and injury risks: opportunities for using IDB system, BRIDGE-Health EU meeting, Vienna - 9/11/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Socioeconomic inequalities and injury risks: opportunities for using IDB system, BRIDGE-Health EU meeting, Vienna |
| Year(s) Of Engagement Activity | 2016 |
| Description | Speaker at the Shifting the goal posts: how racism in sport impacts mental health? Hope not Hate webinar. - 22nd March 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Webinar - Speaker at the Shifting the goal posts: how racism in sport impacts mental health? Hope not Hate webinar |
| Year(s) Of Engagement Activity | 2022 |
| Description | Speaker at the suicidal ideation webinar. - 31st March 2022 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Speaker at the suicidal ideation webinar |
| Year(s) Of Engagement Activity | 2022 |
| Description | Supporting Prudent Healthcare through analysis of primary care data at the cluster level using SAIL, Prudent Healthcare International Conference - 9/7/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Supporting Prudent Healthcare through analysis of primary care data at the cluster level using SAIL, Prudent Healthcare International Conference, Cardiff |
| Year(s) Of Engagement Activity | 2015 |
| Description | The Effect of European Funded Training Programmes on Enhancing Employment in Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Paper presented at the conference of the 'UK labour economics and pensions study group' (WPEG). The WPEG event is sponsored by the Department for Work and Pensions. The primary function is to foster, promote and disseminate research in labour economics, pensions, and related research areas (including poverty, housing and savings) between the academic and policy communities. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.sheffield.ac.uk/economics/events/wpeg/conference/2017-programme |
| Description | The European Injury Data Base (IDB). EUPHA meeting, Vienna - 11/11/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The European Injury Data Base (IDB). EUPHA meeting, Vienna |
| Year(s) Of Engagement Activity | 2016 |
| Description | Think Cloud for Health talk |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To stimulate thinking Outcome: Notable change in audience thinking about how technology can be used to produce trustworthy safe settings |
| Year(s) Of Engagement Activity | 2015 |
| Description | Transforming UK Biomedical and Health Informatics. Lecture to MSc in Health Data Analytics students, Swansea - 26/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Transforming UK Biomedical and Health Informatics. Lecture to MSc in Health Data Analytics students, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | UK Biological Security Strategy Roundtable: Pandemics and Emerging Infectious Diseases. - 19th April 2022 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Meeting regarding UK Biological Security Strategy Roundtable: Pandemics and Emerging Infectious Diseases |
| Year(s) Of Engagement Activity | 2022 |
| Description | Use of data linkage in trauma and emergency care research. Wales International Seminar on Emergency Medicine - 17/5/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Use of data linkage in trauma and emergency care research. Wales International Seminar on Emergency Medicine, Cardiff |
| Year(s) Of Engagement Activity | 2016 |
| Description | Using long bone fractures as an injury incidence indicator in Europe. World Injury Prevention Conference (Safety 2016), Tampere, Finland - 20/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Using long bone fractures as an injury incidence indicator in Europe. World Injury Prevention Conference (Safety 2016), Tampere, Finland |
| Year(s) Of Engagement Activity | 2016 |
| Description | What SAIL data tells us about housing and health? ABMU Changing for the Better Housing and Health Group - 5/7/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | What SAIL data tells us about housing and health? ABMU Changing for the Better Housing and Health Group, Swansea |
| Year(s) Of Engagement Activity | 2016 |