Care for Late Stage Parkinsonism
Lead Research Organisation:
University College London
Department Name: Institute of Neurology
Abstract
The aim of this project is to evaluate the needs and provision of care for patients in the late stages of Parkinsonism and their carers in several European countries, to compare the effectiveness of different health and social care systems, and to lay the foundation for improved outcomes in this population. We will undertake an in-depth assessment of patients and their care arrangements in a population recruited through networks in six European countries. The systems and procedures that are used in the provision of care will be reviewed through a systematic literature review, interviews and assessments of patients, carers and health care providers, and through a trial comparing assessment by a specialist with management suggestions, guidance and access to telephone advice to that of usual care.
Through interviews, questionnaire assessment and review of current health-care and social care arrangement, we will assess the needs, provision of care and use of health-care resources, and their impact on patient and carer outcomes in different countries. National and regional databases will also be interrogated to identify current practice and use of health-care resources and drug usage. A systematic literature review of the evidence for effective management strategies, analysis of the study data, and evaluation of change in outcomes following specialist review will provide the basis for recommendations in the management of late stage Parkinsonism. We will also evaluate potentially useful outcome measures for use in this patient group.
In addition to charting the needs and current care provision for late stage Parkinsonism in different European countries, its cost and effectiveness, and an analysis of health-care and social care predictors of improved outcome, the project will produce a platform for the assessment of patients with late stage Parkinsonism, their current treatment and care provision, as well as guidelines on the management of this late disease phase.
Through interviews, questionnaire assessment and review of current health-care and social care arrangement, we will assess the needs, provision of care and use of health-care resources, and their impact on patient and carer outcomes in different countries. National and regional databases will also be interrogated to identify current practice and use of health-care resources and drug usage. A systematic literature review of the evidence for effective management strategies, analysis of the study data, and evaluation of change in outcomes following specialist review will provide the basis for recommendations in the management of late stage Parkinsonism. We will also evaluate potentially useful outcome measures for use in this patient group.
In addition to charting the needs and current care provision for late stage Parkinsonism in different European countries, its cost and effectiveness, and an analysis of health-care and social care predictors of improved outcome, the project will produce a platform for the assessment of patients with late stage Parkinsonism, their current treatment and care provision, as well as guidelines on the management of this late disease phase.
Planned Impact
The information on current strategies and pathways for care provision and on interventions that are associated with better outcome in this study, both from the intervention part and the cross-sectional and longitudinal analyses, will provide important information to researchers planning studies on improved care provision. The results will also form the basis for an application for a full RCT of successful interventions of this group. As added value, there will be increased knowledge of different approaches to healthcare in different systems and of difficulties encountered by health and social care providers across European countries, which will supply social and economic studies in different health care systems.
The results may also provide a model for the research on better management of other chronic neurological disorders and age-related disorders in various health-care systems.
The results may also provide a model for the research on better management of other chronic neurological disorders and age-related disorders in various health-care systems.
Organisations
- University College London (Lead Research Organisation)
- Parkinson's UK (Collaboration)
- Philipp University of Marburg (Collaboration)
- Central and North West London NHS Foundation Trust (Collaboration)
- University of Lisbon (Collaboration)
- National Health Service (Collaboration)
- Luton and Dunstable University Hospital NHS Foundation Trust (Collaboration)
- Essen University Hospital (Collaboration)
- European Parkinson's Disease Association (EPDA) (Collaboration)
- Central London Community Healthcare NHS Trust (Collaboration)
- Imperial College Healthcare NHS Trust (Collaboration)
- University of Bordeaux (Collaboration)
- Lund University (Collaboration)
- NELFT NHS Foundation Trust (Collaboration)
- Radboud University Nijmegen (Collaboration)
- Shift MS (Collaboration)
People |
ORCID iD |
| Anette Schrag (Principal Investigator) |
Publications
Rosqvist K
(2021)
Perspectives on Care for Late-Stage Parkinson's Disease.
in Parkinson's disease
Rosqvist K
(2021)
Factors Associated with Health-Related Quality of Life in Late-Stage Parkinson's Disease.
in Movement disorders clinical practice
Rosqvist K
(2022)
Caregiver Burden and Quality of Life in Late Stage Parkinson's Disease.
in Brain sciences
Schrag A
(2018)
Patient experiences of receiving a diagnosis of Parkinson's disease.
in Journal of neurology
Schrag A
(2020)
The late stage of Parkinson's -results of a large multinational study on motor and non-motor complications
in Parkinsonism & Related Disorders
Schrag A
(2018)
Experience of care for Parkinson's disease in European countries: a survey by the European Parkinson's Disease Association.
in European journal of neurology
Thomas GEC
(2020)
Brain iron deposition is linked with cognitive severity in Parkinson's disease.
in Journal of neurology, neurosurgery, and psychiatry
Weil RS
(2018)
Assessing cognitive dysfunction in Parkinson's disease: An online tool to detect visuo-perceptual deficits.
in Movement disorders : official journal of the Movement Disorder Society
| Description | We have gained significant insight into the patient experience of receiving a diagnosis of Parkinson's disease, the subjective experience of which has implications from the early to the late stages of the disease. This includes information on the key challenges for patients as well as carers, the issues of greatest impact on quality of life and functioning, the particular needs of patients in nursing homes, the patients' and carers' views on health care provided and unmet needs, and aspects of palliative care. We have provided an in-depth account of patient experiences at the late stage of the disease in the UK through qualitative interviews and quantitative assessments. The findings has been communicated internationally and nationally at conferences and through publications, and at stakeholder events at the European Parliament in Brussels. The results of the current grant has been feeding significantly into the content of the new grant on palliative intervention in this stage of the disease, and the development of a personalised tool to support self-management. |
| Exploitation Route | These findings provide important information for improving care for patients at the late stage of PD taking into account their priorities, experiences and unmet needs. Ongoing grants aim to provide solutions for the issues identified, including grants from the European Commission, the NIHR, and the Royal College of Physicians. |
| Sectors | Healthcare |
| Description | The projected has yielded a number of publications providing information on the presentation, impact and health-care provision of late stage Parkinson's. As a consequence of the new information, there have been stakeholder events at the European Parliament, supported by the European Parkinson's Disease Association, two new project grants have been funded (one by the NIHR with the CLaSP PI as co-lead and one by the European Commission on Palliative Care in PD, in which the CaSP PI is a co-applicant). The results have been presented, e.g. at the annual Movement Disorders Conferences and at the Parkinson's Disease UK Executive Network in London, meetings on Parkinson's disease and Related Disorders and a conference on Non-motor symptoms in Parkinson's. |
| First Year Of Impact | 2018 |
| Sector | Healthcare |
| Impact Types | Societal,Policy & public services |
| Description | Communication skills for doctors when delivering a Parkinson's diagnosis |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | The European Parkinson's Disease Association (EPDA) and Parkinson's UK have produced a film highlighting the importance of good communication when doctors give their patients a Parkinson's diagnosis; with Prof Anette Schrag chairing the patient group discussing the personal impact of diagnosis delivery. |
| URL | https://www.youtube.com/watch?v=9DBA5D5Mx74 |
| Description | (PD_Pal) - Palliative care in Parkinson's disease |
| Amount | € 3,995,437 (EUR) |
| Funding ID | 825785 |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 01/2019 |
| End | 06/2022 |
| Description | NIHR Programme grant |
| Amount | £220,900,400 (GBP) |
| Funding ID | RP-PG-1016-20001 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 08/2023 |
| Description | Partner Application to the National Institute for Health Research School for Primary Care Research (NIHR SPCR) Administrative Funds |
| Amount | £554,690 (GBP) |
| Funding ID | 285 |
| Organisation | National Institute for Health Research |
| Department | School for Primary Care Research |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 11/2020 |
| End | 05/2021 |
| Description | Rosetrees Trust Joint Research Fellowship - 'Supporting the needs of people with complex long term health conditions through remote delivery methods' by Dr Jen Pigott' |
| Amount | £25,000 (GBP) |
| Funding ID | RCP-2020\11 |
| Organisation | Rosetrees Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 01/2022 |
| Description | Royal College of Physicians Joint Research Fellowship in support of the project 'Supporting the needs of people with complex long term health conditions through remote delivery methods' |
| Amount | £25,000 (GBP) |
| Organisation | Royal College of Physicians of London |
| Sector | Learned Society |
| Country | United Kingdom |
| Start | 02/2021 |
| End | 02/2022 |
| Description | CLaSP UK collaboration |
| Organisation | Central London Community Healthcare NHS Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Co-ordination of all study site activity, including of recruitment and assessment activity; also study set up and recruiting and assessing participants, analysis and preparation of publications. |
| Collaborator Contribution | These sites recruited and assessed participants for the CLaSP study |
| Impact | All publications resulting from the study are listed in the relevant publications section. The collaborators at these sites were researchers and research nurses. |
| Start Year | 2014 |
| Description | CLaSP UK collaboration |
| Organisation | Central and North West London NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Co-ordination of all study site activity, including of recruitment and assessment activity; also study set up and recruiting and assessing participants, analysis and preparation of publications. |
| Collaborator Contribution | These sites recruited and assessed participants for the CLaSP study |
| Impact | All publications resulting from the study are listed in the relevant publications section. The collaborators at these sites were researchers and research nurses. |
| Start Year | 2014 |
| Description | CLaSP UK collaboration |
| Organisation | Imperial College Healthcare NHS Trust |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | Co-ordination of all study site activity, including of recruitment and assessment activity; also study set up and recruiting and assessing participants, analysis and preparation of publications. |
| Collaborator Contribution | These sites recruited and assessed participants for the CLaSP study |
| Impact | All publications resulting from the study are listed in the relevant publications section. The collaborators at these sites were researchers and research nurses. |
| Start Year | 2014 |
| Description | CLaSP UK collaboration |
| Organisation | Luton and Dunstable University Hospital NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Co-ordination of all study site activity, including of recruitment and assessment activity; also study set up and recruiting and assessing participants, analysis and preparation of publications. |
| Collaborator Contribution | These sites recruited and assessed participants for the CLaSP study |
| Impact | All publications resulting from the study are listed in the relevant publications section. The collaborators at these sites were researchers and research nurses. |
| Start Year | 2014 |
| Description | CLaSP UK collaboration |
| Organisation | NELFT NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Co-ordination of all study site activity, including of recruitment and assessment activity; also study set up and recruiting and assessing participants, analysis and preparation of publications. |
| Collaborator Contribution | These sites recruited and assessed participants for the CLaSP study |
| Impact | All publications resulting from the study are listed in the relevant publications section. The collaborators at these sites were researchers and research nurses. |
| Start Year | 2014 |
| Description | CLaSP collaboration |
| Organisation | Essen University Hospital |
| Country | Germany |
| Sector | Hospitals |
| PI Contribution | Co-ordinated study activity across all collaborating sites. Collaboration included study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Collaborator Contribution | Study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Impact | Publications resulted from this collaboration are all listed in. Collaboration consists of clinicians and researchers. |
| Start Year | 2014 |
| Description | CLaSP collaboration |
| Organisation | Lund University |
| Department | Neurology |
| Country | Sweden |
| Sector | Academic/University |
| PI Contribution | Co-ordinated study activity across all collaborating sites. Collaboration included study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Collaborator Contribution | Study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Impact | Publications resulted from this collaboration are all listed in. Collaboration consists of clinicians and researchers. |
| Start Year | 2014 |
| Description | CLaSP collaboration |
| Organisation | Philipp University of Marburg |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Co-ordinated study activity across all collaborating sites. Collaboration included study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Collaborator Contribution | Study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Impact | Publications resulted from this collaboration are all listed in. Collaboration consists of clinicians and researchers. |
| Start Year | 2014 |
| Description | CLaSP collaboration |
| Organisation | Radboud University Nijmegen |
| Department | Donders Institute for Brain, Cognition and Behaviour |
| Country | Netherlands |
| Sector | Academic/University |
| PI Contribution | Co-ordinated study activity across all collaborating sites. Collaboration included study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Collaborator Contribution | Study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Impact | Publications resulted from this collaboration are all listed in. Collaboration consists of clinicians and researchers. |
| Start Year | 2014 |
| Description | CLaSP collaboration |
| Organisation | University of Bordeaux |
| Country | France |
| Sector | Academic/University |
| PI Contribution | Co-ordinated study activity across all collaborating sites. Collaboration included study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Collaborator Contribution | Study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Impact | Publications resulted from this collaboration are all listed in. Collaboration consists of clinicians and researchers. |
| Start Year | 2014 |
| Description | CLaSP collaboration |
| Organisation | University of Lisbon |
| Department | Institute for Molecular Medicine |
| Country | Portugal |
| Sector | Academic/University |
| PI Contribution | Co-ordinated study activity across all collaborating sites. Collaboration included study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Collaborator Contribution | Study design, recruitment and assessment of local participants for the study, collaborated in data analysis and publication preparation |
| Impact | Publications resulted from this collaboration are all listed in. Collaboration consists of clinicians and researchers. |
| Start Year | 2014 |
| Description | Collaboration with the European Parkinson's Disease Association (EPDA) on their project "My Patient Journey" |
| Organisation | European Parkinson's Disease Association (EPDA) |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The aims of the EPDA project "My Patient Journey" overlap with those of our project, but utilise different methodology and aim at a slightly different target group (all patients with Parkinson's disease, primarily those in earlier disease stages). In order to maximise the information gained from both studies and to complement the research from both projects, AS have been acting as the scientific advisor to the EPDA project and facilitate information exchange. I have advised on the methodology and content of a European-wide survey in people with PD, carers and health care professionals, and presented the results to members of the European Parliament in Brussels. |
| Collaborator Contribution | The "My PD Journey" project is initiated by the the EPDA, in collaboration with the Movement Disorders Society European Section, and funding has been provided by the EPDA and Abbvie Pharmaceuticals. Details of EPDA publication currently in press: Title: Patient experiences of receiving a diagnosis of Parkinson's disease Authors: Schrag A, Modi S, Hotham S, Merritt R, Khan K, Graham L. A on behalf of the European Parkinson's Disease Association, Journal of Neurology |
| Impact | Engagement with multiple stakeholders, in particular through the EPDA, including national policy makers in several European countries, national Patient Associations, members of the European Parliament and the International Movement Disorders Society. |
| Start Year | 2014 |
| Description | Confidence College: Parkinson's disease |
| Organisation | NHS England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Key contributor to the research and development of Confidence College, and provider of specialist neurological information for a tool that enables those with PD to make an informed, personalised and achievable plans, for use in their daily lives. |
| Collaborator Contribution | As described in Confidence College website: Confidence College was created through a collaboration between NHS England and Shift.ms. Specialist neurological input was provided by NHS England London Neuroscience clinical network. Shift.ms service design team have used their experience in digital and innovation design to create an accessible web experience for those living with neurological conditions. Confidence College aims to provide media that will empower both people living with a neurological condition and primary care services equally. The tools have been developed to increase knowledge, break down barriers and allow stakeholders to plan together for better care and quality of life for people with a neurological condition. By preparing Clinicians and people living with a neurological condition to have better conversations, Confidence College can support integrated care implementation wherever it is happening. The project was developed with the help of many contributors and participation from Clinical experts, GP's and patients. Content has been developed through co-design sessions with patients and research interviews with clinicians. |
| Impact | None to report as yet. |
| Start Year | 2017 |
| Description | Confidence College: Parkinson's disease |
| Organisation | Shift MS |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Key contributor to the research and development of Confidence College, and provider of specialist neurological information for a tool that enables those with PD to make an informed, personalised and achievable plans, for use in their daily lives. |
| Collaborator Contribution | As described in Confidence College website: Confidence College was created through a collaboration between NHS England and Shift.ms. Specialist neurological input was provided by NHS England London Neuroscience clinical network. Shift.ms service design team have used their experience in digital and innovation design to create an accessible web experience for those living with neurological conditions. Confidence College aims to provide media that will empower both people living with a neurological condition and primary care services equally. The tools have been developed to increase knowledge, break down barriers and allow stakeholders to plan together for better care and quality of life for people with a neurological condition. By preparing Clinicians and people living with a neurological condition to have better conversations, Confidence College can support integrated care implementation wherever it is happening. The project was developed with the help of many contributors and participation from Clinical experts, GP's and patients. Content has been developed through co-design sessions with patients and research interviews with clinicians. |
| Impact | None to report as yet. |
| Start Year | 2017 |
| Description | Parkinson's Excellence Network |
| Organisation | Parkinson's UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Co-chaired the inaugural London Parkinson's Excellence Network meeting; including overseeing the establishment of network working groups. AS is the North London lead for the Parkinson's Excellence Network, which involves chairing bimonthly meetings of professionals. The aim of the network is to promote collaboration between health and social care professionals, and patients groups, with the objective of transforming care for people affected by Parkinson's. |
| Collaborator Contribution | Network working groups have selected to focus on the following areas: Advanced Care, Surgery for Parkinson's Disease, Integrated Care, Local Guidelines, and Research. The aim is that members of the working groups work together on these areas and feedback findings to the main network meetings. |
| Impact | Formation of working groups to improve local service provision for patients with PD. The outputs and outcomes will evolve in due course but already there has been a wider distribution of guidelines for PD across London health care providers and joint working A map to improve access to PD-services in London is currently being planned. |
| Start Year | 2015 |
| Description | Breakfast workshop in Brussels |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The workshop trigger a number of further engagement activities by the EPDA with stakeholders at international level. as above |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.epda.eu.com/en/projects/my-pd-journey/work-programme/european-inventory/?Opentab=c2,3#c2 |
| Description | Calman Teaching for Neurology trainees. Treatment of Non-motor symptoms of Parkinson's disease. February 2022. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | This was part of the formal postgraduate training for neurology trainees. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Chaired Session at British Neuropsychiatric Institute |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chaired Session at British Neuropsychiatric Institute |
| Year(s) Of Engagement Activity | 2018 |
| Description | Collaboration with the European Parkinson's Disease Association |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The project is ongoing. However, the preliminary results have already led to a presentation to members of the European Parliament, sparking several further engagement events with stakeholders and policy makers through the EPDA. An abstract to the Movement Disorders Society meeting has been submitted. as above |
| Year(s) Of Engagement Activity | 2014,2015 |
| URL | http://www.epda.eu.com/en/projects/my-pd-journey/work-programme/european-inventory/?Opentab=c2,2#c2 |
| Description | Depression in Parkinson's disease: From Epidemiology to Treatment. The Youdim lecture 2018, National Institute for Psychobiology in Israel (NIPI), Hebrew University, Jerusalem. 31st January 2018. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Depression in Parkinson's disease: From Epidemiology to Treatment. The Youdim lecture 2018, National Institute for Psychobiology in Israel (NIPI), Hebrew University, Jerusalem. |
| Year(s) Of Engagement Activity | 2018 |
| Description | JPND/JPco-fuND symposium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was a Symposium for Supported Projects from JPND, involving presentations, workshops and posters from all projects in the JPND initiative. The aim of the symposium was the exchange of information, challenges, results, and further discussions across the different areas of research, led by leaders in their respective, diverse fields in neurodegeneration. A vivid interchange, both during the workshops and in between stiumulated ensuing exchange of ideas and further collaboration. So far, this has resulted in the current organisation of a further meeting, and plans for the development of guidelines. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.neurodegenerationresearch.eu/initiatives/annual-calls-for-proposals/closed-calls/call-fo... |
| Description | Parkinson's London Excellence Network meeting on 11 October Queen Square House, Institute of Neurology, London WC1N 3BG |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Organisation and attendance at the Parkinson's Excellence Network meeting in the capacity of North London Lead. Presented the Personalised Care for People with Parkinson's Disease: PD-Care study. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Presentation on pharmacological treatment of depression and anxiety in Parkinson's disease. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on pharmacological treatment of depression and anxiety in Parkinson's disease: Parkinson's Foundation meeting on Anxiety in Parkinson's Disease. Baltimore, |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation: Depression in Parkinson's disease: From Epidemiology to Treatment. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Depression in Parkinson's disease: From Epidemiology to Treatment. Cambridge University April 2018 |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation: Psychiatric and cognitive features. Non-motor symptoms in Parkinson's disease. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Psychiatric and cognitive features. Non-motor symptoms in Parkinson's disease. International Meeting, Rostock, Germany March 2018 |
| Year(s) Of Engagement Activity | 2018 |
| Description | Teaching session for Trainees. ABN Conference May 2021. Acute presentations in PD/Care in late stage Parkinson's, and managing the non-motor complications |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was a teaching session for neurology trainees across all neurology units in the UK as part of the ABN Conference May 2021. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.theabn.org/page/virtual_meeting_2021 |
| Description | Training Video: The importance of good communication in a Parkinson's diagnosis: EPDA and PUK training video for doctors |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | The European Parkinson's Disease Association (EPDA) and Parkinson's UK have produced a film highlighting the importance of good communication when doctors give their patients a Parkinson's diagnosis; with Prof Anette Schrag chairing the patient group discussing the personal impact of diagnosis delivery. |
| Year(s) Of Engagement Activity | 2011 |
| URL | https://www.youtube.com/watch?v=9DBA5D5Mx74 |