Global Ageing and Long-Term Care Network

Lead Research Organisation: University of Southampton
Department Name: Sch of Economic, Social & Political Sci

Abstract

The world's population is ageing rapidly. In 2015, there were 900 million individuals aged 60 and over, of whom two-thirds live in the developing world; by 2050 this figure is expected to more than double to over 2 billion and 80% of these individuals will be living in less developed countries, many of which currently lack comprehensive systems of social protection (WHO, 2015). Globally, the family remains the dominant source of support for social care in later life. However, with increasing participation - particularly of women - in the paid labour market and higher levels of migration, traditional systems of family support are coming under pressure. Across the globe formal systems of long-term care are evolving to complement informal (unpaid) care from family members and non-family networks. In some contexts, such systems are already well developed but in others they are evolving organically with little or no oversight or regulation. The WHO, in its World Report on Ageing and Health (2015) highlighted the imperative of developing long-term care systems that enable older people to receive care and support that is 'consistent with their basic rights, fundamental freedoms and human dignity'.

Through the organisation of a series of workshops, the Global Ageing and Long-term Care (GALNet) will facilitate the sharing of insights into the factors underpinning the need for, and present realities of, long-term care and how these might vary across different social groups, along with discussion of alternative models for long-term care from different sources, and the balance between informal (unpaid) care provided by family members and non-family networks, formal support provided by the state or Non-Governmental Organisations (NGOs), or formal paid for support purchased through the private sector.

A key outcome of the Network will be its final report, which will identify a future research agenda for the long term care of older people within a rights based framework, drawing on south-south learning.

Planned Impact

Issues of population ageing and the well-being of older people remain neglected within the development discourse. However by 2045 it is estimated that the number of global citizens aged 60 and over will exceed the number aged under 16 for the first time in human history. By 2050 there will be more than 2 billion people aged 60 and over, comprising just over one fifth of the world's population, and the majority of these will live in developing countries, including those affected by conflict. In order to ensure all older women and men can lead dignified, healthy and secure lives as they grow older, local and national Government's and NGOs need to act now.

The main impact of the Network will be to ensure that older people are visible in the CGRF agenda. The Network activities will contribute to the evidence base informing policy-makers in an area with crucial policy implications, directly in line with the GCRF's theme of Dynamics of inequalities, and indirectly the themes of Migration, mobility and development, and Shocks, security, risks and resilience.

The extent of the wider impact delivered by this project will be premised on a) the fruitful exchange between academic and non-academic partners within the countries participating in the network; and b) the exchange of policy lessons between the countries in the network. The academic partners within the Network have significant experience in engaging the non-academic community interested in the areas of population ageing and long-term care, and three of the key international policy stakeholders - the World Health Organisation, HelpAge International and UNFPA - are already committed to participating in the Network activities.

The exchange of policy lessons between the countries in the network is equally important, highlighting policy solutions or alternatives which have been applied effectively in other country contexts. The Network is extremely timely in that the government of China has just announced its intention to introduce a National Long-term Care Insurance Scheme, the African Union is developing a monitoring and evaluation framework for, and revision of the African Union Plan of Action on Ageing (2015-2016) and the government of India is also re-considering its national strategy on ageing. Thus the potential scope for impact through enhanced South-South learning is significant.

Publications

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Falkingham J (2019) Informal care provision across multiple generations in China in Ageing and Society

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VLACHANTONI A (2017) Unmet need for social care among older people in Ageing and Society

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Vlachantoni A (2017) Unmet need for social care among older people in Ageing & Society

 
Description This network was aimed at bringing together academics, policy makers and practitioners from different disciplines to share experiences and best practice from different countries and inform the design of integrated long-term care centred on older people's needs. Network members came from Argentina, China, India, Kenya and the UK. Three areas were developed:
1. The network engaged in exchange of information and expertise in population ageing and long-term care, resulting in the design of a new agenda on long-term care.

Reflecting the complexity in defining long-term care in different country contexts, and organising long-term care provision in diverse circumstances (e.g. low-income settings, among migrant population), the information exchange between network members allowed for a better understanding of the conditions necessary to provide effective long-term care. For example, representatives from the Kenya Ministry of Labour & Social Protection engaged with the Kenya Hospices and Palliative Care Association and academics, resulting in a more holistic understanding of long-term care provision in sub-Saharan Africa. Comparative analyses of long-term care across geographical regions were facilitated by supra-national organisations, such as Help Age International and the WHO. The network discussed the WHO's Healthy Ageing framework, and how it can be operationalised. A new agenda for long-term care was developed based on a common terminology; the usefulness of the WHO Healthy Ageing framework; the provision of training in diverse cultural contexts; and the importance of quality measurement in long-term care.

2. The network allowed for complementary knowledge to be built based on new insights on theoretical approaches and methodologies.

Debates among the network members allowed the comparison of empirical evidence, focusing on the demand for care and how 'need' is defined, and the supply of care through informal, formal state and formal paid care. An important development was the identification of inconsistencies in the way questions about long-term care provision/ receipt are asked in surveys, and the compromises which researchers must make in order to obtain an accurate picture of the demand for and supply of long-term care. For example, in many national surveys in India, China and the UK, older people are only asked whether they receive support with daily activities if they have first reported difficulties with such activities, possibly resulting in an under-estimation of need.

3. Strong partnerships were established between academics, governmental departments and non-governmental organisations globally working in areas related to older people.

The GALNet project established strong networks between stakeholders in the area of long-term care, facilitating the development of global partnerships into the future and expanding the network beyond the geographical coverage stated in the original proposal. For example, the third meeting was attended by representatives from the Ministry of Social Development in Lesotho, and the University of Hong Kong. During the final network meeting, the first India-China Ageing Forum took place, where scholars exchanged evidence on the causes, consequences and policy implications of population ageing, and long-term care. Network members in the UK secured additional ESRC funding to contribute to the second India-China Ageing Forum in Mumbai (January 2019).
Exploitation Route The new research agenda co-produced by members of the GALNet project can be taken forward by three key groups in society. Firstly, academic experts in long-term care can continue investigating efficient ways of comparing data on need and the receipt of support across different country contexts and surveys. This is important in order to arrive at a consistent picture of long-term care demand and supply. Secondly, policymakers can facilitate the use of a common terminology when discussing long-term care, which can help to strengthen links between community-level non-governmental organisations and government departments aimed at improving older people's wellbeing. Finally, the network's resources presenting empirical findings on older people's needs in different countries can be used by stakeholder groups monitoring older persons' wellbeing in different countries around the world (e.g. Help Age International).
Sectors Communities and Social Services/Policy,Education,Healthcare,Government, Democracy and Justice

 
Description From the outset the Network has included representatives from government and NGOS as well as academics. In particular findings have been shared with NGOs in India and China sharing lessons learnt and best practice. A key outcome from GALNet has been the establishment of the China-India Ageing forum bringing together academics and civil society from the two most populous nations in the world to discuss issues around ageing and the challenge of long term care.
First Year Of Impact 2019
Sector Communities and Social Services/Policy,Healthcare
Impact Types Societal,Policy & public services

 
Description GALNet partnerships 
Organisation African Population and Health Research Center
Country Kenya 
Sector Academic/University 
PI Contribution The team at the University of Southampton is leading the collaboration and has set up a website and a secure DropBox for the sharing of resources.
Collaborator Contribution The collaboration involved 3 workshops, hosted by APHRC in Nairobi, Kenya; TISS in Hyderabad, India; and Renmin in Beijing China. Our partners are responsible for all the local arrangements. Together we are jointly responsible for developing the scientific agenda and drafting the outputs.
Impact outputs are under preparation
Start Year 2017
 
Description GALNet partnerships 
Organisation Help Age International
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The team at the University of Southampton is leading the collaboration and has set up a website and a secure DropBox for the sharing of resources.
Collaborator Contribution The collaboration involved 3 workshops, hosted by APHRC in Nairobi, Kenya; TISS in Hyderabad, India; and Renmin in Beijing China. Our partners are responsible for all the local arrangements. Together we are jointly responsible for developing the scientific agenda and drafting the outputs.
Impact outputs are under preparation
Start Year 2017
 
Description GALNet partnerships 
Organisation HelpAge India
Country India 
Sector Charity/Non Profit 
PI Contribution The team at the University of Southampton is leading the collaboration and has set up a website and a secure DropBox for the sharing of resources.
Collaborator Contribution The collaboration involved 3 workshops, hosted by APHRC in Nairobi, Kenya; TISS in Hyderabad, India; and Renmin in Beijing China. Our partners are responsible for all the local arrangements. Together we are jointly responsible for developing the scientific agenda and drafting the outputs.
Impact outputs are under preparation
Start Year 2017
 
Description GALNet partnerships 
Organisation Renmin University of China
Country China 
Sector Academic/University 
PI Contribution The team at the University of Southampton is leading the collaboration and has set up a website and a secure DropBox for the sharing of resources.
Collaborator Contribution The collaboration involved 3 workshops, hosted by APHRC in Nairobi, Kenya; TISS in Hyderabad, India; and Renmin in Beijing China. Our partners are responsible for all the local arrangements. Together we are jointly responsible for developing the scientific agenda and drafting the outputs.
Impact outputs are under preparation
Start Year 2017
 
Description GALNet partnerships 
Organisation Tata Institute of Social Sciences
Country India 
Sector Academic/University 
PI Contribution The team at the University of Southampton is leading the collaboration and has set up a website and a secure DropBox for the sharing of resources.
Collaborator Contribution The collaboration involved 3 workshops, hosted by APHRC in Nairobi, Kenya; TISS in Hyderabad, India; and Renmin in Beijing China. Our partners are responsible for all the local arrangements. Together we are jointly responsible for developing the scientific agenda and drafting the outputs.
Impact outputs are under preparation
Start Year 2017
 
Description GALNet partnerships 
Organisation Zhejiang University
Country China 
Sector Academic/University 
PI Contribution The team at the University of Southampton is leading the collaboration and has set up a website and a secure DropBox for the sharing of resources.
Collaborator Contribution The collaboration involved 3 workshops, hosted by APHRC in Nairobi, Kenya; TISS in Hyderabad, India; and Renmin in Beijing China. Our partners are responsible for all the local arrangements. Together we are jointly responsible for developing the scientific agenda and drafting the outputs.
Impact outputs are under preparation
Start Year 2017
 
Description 1st China-India Population Ageing Forum Renmin University, Beijing, June 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Brought together academics and policy makers interested in population gaeing from India and China to discuss common themes and research agendas.
Agreed to continue to meet, with next meeting in Mumbai, India
Year(s) Of Engagement Activity 2018
 
Description 2nd China-India Population Ageing Forum Mumbai Jan 28-30 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The meeting, held in Mumbai Jan 28-30 2019 brought together a delegation of 20 leading academics from China (including the Director of the China Association of Gerontology & Geriatrics) with Indian scholars and practitioners, including the CEO of HelpAge India and colleagues from TISS, IPS and CDS.

Several joint papers and research projects were discussed and a further meeting planned to take place in China in 2020
Year(s) Of Engagement Activity 2019
 
Description Global Ageing and Long-Term Care Network Workshop I: Understanding Demand for LTC 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The aim of the Global Ageing and Long-Term Care Workshop I was 'Understanding the demand for LTC'.

As the first international meeting of the Global Ageing and Long-Term Care Network (GALNet), the workshop also (i) established connections and rapport among network participants; (ii) discussed potential common frames of reference for the network in terms of definitions and policy goals concerning long-term care internationally; (iii) shared current knowledge and empirical evidence regarding provision and receipt of LTC across regions of the world; (iv) shared current knowledge and practice regarding the measurement of disability, and the need and unmet need for long-term care; (v) begun discussions around an agenda for long-term care research and policy engagement.

The Network participants discussed the WHO definition of long-term care and the WHO healthy ageing framework and critically engaged with it as a common frame of reference. There were also discussions of empirical studies of need for LTC, discussing the measurement of disability, and the need and unmet need for long-term care in the UK, India, China and Latin America. The Network participants exchange knowledge and discussion of the realities of long-term care provision and receipt across regions in the world, with empirical insights from Asia, Latin America and Sub-Saharan Africa.
The Workshop was attended by 30 participants from the UK, Switzerland, Sub-Saharan Africa, India, China and Latin America, covering academia, policy makers, government departments, third sector organisations and the private sector. The Network participants, particularly from government departments and from third sector organisations reported that they had found the presentations, discussions and evidence referred to very useful and policy relevant.
Year(s) Of Engagement Activity 2017
URL https://www.southampton.ac.uk/ageingcentre/research-projects/galnet.page
 
Description Global Ageing and Long-Term Care Workshop II:Understanding the supply for LTC 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact The overarching aim of the Global Ageing and Long-Term Care Workshop II was 'Understanding the supply for LTC' (9th-10th Feb 2018, Hyderabad). At the second Workshop of the Global Ageing and Long-Term Care Network (GALNet) focussed on the empirical evidence, underlying methodologies, and knowledge gaps on the supply of long-term care in different regional and country contexts.

The Network participants shared knowledge and discussed (i) the WHO's work programme on healthy ageing including LTC; (ii) the challenges and opportunities of delivering care to older people by the private sector and third sector in India, Kenya and Latin America; (iii) the work being conducted in developing country capacity in long-term care in the Asia Pacific region, covering Thailand, Viet Nam, Sri Lanka, Indonesia, Mongolia and Tonga; (v) an agenda for long-term care research and policy engagement.

The Workshop was attended by circa 30 participants from India, Thailand, China, Latin America, UK, and Switzerland, covering academia, third sector organisations and the private sector. The Network participants, particularly from the third sector organisations and the private sector reported that they had found the presentations, discussions and evidence referred to very useful and policy relevant.
Year(s) Of Engagement Activity 2018
URL https://www.southampton.ac.uk/ageingcentre/research-projects/galnet.page