Building the barricades: Three interdisciplinary studies on Mental and Substance Use Disorders in the context of armed violence in Brazil

Lead Research Organisation: Queen Mary University of London
Department Name: Drama

Abstract

This research aims to understand the impact of armed conflict on the mental health and wellbeing of people living in the context of violence in the Complex of Maré - a conglomeration of 16 peripheral communities in Rio de Janeiro with a population of over 140,000 people*. By focusing on Brazil - a LMIC in which the state pursues a military-style intervention into peripheral urban territories (favelas) regulated by armed gangs trading drugs - the research seeks to locate an understanding of MNS disorders within the intensity of armed conflicts in peripheral territories that characterise many of the world's poorest and least developed countries. The research will seek to bring new understanding about the mental health and wellbeing of people living within a community subject to multiple stress factors (socio-economic exclusion, high levels of violence, limited access to cultural networks and institutions, etc) where daily lives are circumscribed by multi-faceted armed regulation and combat resulting from the so-called 'war on drugs'.

While the situation of MNS disorders is acute in fragile territories on the peripheries of many major cities in LMICs, the favelas of Rio de Janeiro are characterized by a narcotic narrative of sale, consumption, conflict and abuse that makes the territorially-specific analysis at the heart of this research an appropriate means to open up new avenues for future research. In the absence of funding or state structures that can develop, evaluate and maintain complex mental health interventions in LMICs, civil society organizations that utilize existing personal and social resources that can be provided through trained lay people, volunteers, peers, and families. This proposal will learn from, and develop low-cost approaches that are found to be effective within the context of the urban battlefields of the war on drugs in Rio de Janeiro.

Locating the research in Maré is significant since it allows the contextualization of the research questions in a territory where there are 15 areas used for the open dealing of crack, known locally as 'cracolandias'** [http://bit.ly/2moGPC4]; a lethality rate due to police actions in Maré in 2016 (12.8:100,000 inhabitants) eight times higher than that of Brazil (1.6:) and three times that of Rio de Janeiro state (3.9:) in 2015], as well as informal care networks for people living with MNS disorders. Maré is of the scale of a small city and has an organization, Redes da Maré, which has a long experience in the field of studies on violence and public safety and in the field of care for people who use crack, alcohol and other drugs.

The research proposes 3 studies: Study 1 on 200 crack-cocaine users living on or at risk of living on streets within and on the borders of the Maré communities, investigating existing mental health of the respondents, their knowledge and perception about MNS disorders, possibilities of self- and community-based care, existence of informal care networks. Study 2: an investigation of the mental health and wellbeing of people affected by high levels of violence and insecurity, with a focus on their mental health, patterns of drug use (legal and illegal), family and educational background, income generation and access to social, health and drug treatment programmes. It will include a survey of 1,200 residents of Maré with respondents from each of the 16 communities and 20 semi-structured interviews with respondents from the survey who are living with mental disorders and/or substance abuse Study 3: Arts-based practices to produce narratives and images that challenge stigma and exclusion associated with MNS disorders, resulting in of life stories and a public photographic installation.

* Population data source: IBGE - Brazilian Institute of Geography and Statistics' Profile of Brazilian Municipalities 2011 http://bit.ly/2mgzu6M
** RUI, Taniele. Usage of "Luz" and "cracolandia": fieldwork of spatial practices"

Planned Impact

This proposal aims to enable local communities to collaborate with HEIs to create strategic means of resistance to MNS disorders and produce learning that can inform and shape public policy in support of UN Sustainable Development Goal 3, ensuring healthy lives and promoting well-being for all at all ages. The impacts of the project lie across intersecting arenas that will improve understanding of MNS disorders within peripheral communities affected by fragility and conflict, raise awareness, inform state and civil society practitioners, and influence public policymakers in Brazil and beyond.

Its main beneficiaries will be:

1) community members in the community of the Complex of Maré, Rio de Janeiro, Brazil, with particular attention to those living at with MNS disorders on or in proximity to the street, who will benefit from improved healthcare interventions and impacts that improve public policy;

2) civil society organisations delivering health and social care initiatives for mental health care in vulnerable communities, who will benefit from capacity building support to strengthen their delivery, cost effectiveness and structures;

3) Municipal and national government agencies and policy makers with responsibility for health and public security, as well as international researchers on these areas, whose knowledge will be extended by the way the project investigates the complex interrelationship of urban violence and MNS disorders;

4) International multilateral organisations and further international communities in developing countries, particularly within Latin America, that face similar challenges and may benefit from these insights in the planning and delivery of effective interventions and in the formulation of public policy around mental health and public security;

5) individual participants in the research, including both substance users and their families and friends, who will benefit from improvements to interventions in their care, from being signposted to services, and from changes in public perception of substance users that are the aim of the photographic, drama and narrative outputs of the research. Participants include 1,200 community members surveyed, 200 substance users surveyed and 20 who participate in in-depth interviews, and attendees to 8 focus groups convened by Redes da Mare.

The project will provide new empirical data to understand the challenges of living with and treating MNS disorders in Brazilian urban communities severely affected by fragility and conflict in territories subject to multiple stress factors such as socio-economic exclusion, high levels of violence, limited access to cultural networks and institutions, etc. The research moves beyond data collection to use innovative methodologies to identify social and human capital within the specific territory of Maré. The aim is to create mechanisms that lead to managing and preventing MNS disorders and associated health inequalities more effectively in the short- and long-term and to ensure coproduction and reciprocal exchange of knowledge which can shape public policy (municipal, national and regional). The impact will be maximised through the participatory, collaborative design of the three studies and through a variety of narrative outputs that will be disseminated as print and e-publications and through social media and door to door campaigns.
 
Title A Maré de Casa: Imagens da Quarentena 
Description The photographic workshops with young artists from Maré were expanded into an open call where local residents were invited to join a photographic competition, documenting their daily experiences and what they saw from their windows. The general public then voted on the winners - the outputs were curated, presented and remain publicly available on a dedicated exhibition website: https://www.amaredecasa.org.br/ 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2020 
Impact Too early to comment 
URL https://www.amaredecasa.org.br/
 
Title A short film about 6 digital arts workshops 
Description In response to the preliminary findings of this research - that community arts organisations play a vital role in promoting mental wellbeing by supporting young people using different art forms and methodologies - Heritage set up six arts workshops in collaboration with two spoken word poets from Maré (Thais Ayomide and Matheus de Araújo). Led by young artists, the ambition of the workshops was to employ creative methodologies to understand young people's experiences of Covid-19 in Complexo da Maré, and develop a creative output to share their experiences of how the pandemic is affecting their lives with wider audiences. 
Type Of Art Film/Video/Animation 
Year Produced 2020 
Impact Too early to comment 
 
Title Audio Drama: Becos 
Description This four-part audio drama -an immersive 'play for voices' - was created by six spoken-word poets from Maré, with dramaturgy, editing and direction by Heritage and Catherine Paskell. The audio drama is publicly available from the project website. 
Type Of Art Performance (Music, Dance, Drama, etc) 
Year Produced 2020 
Impact Too early to comment 
URL https://becos.art.br/
 
Title Normal Sounds 
Description Due to COVID-19, the choir project with people who use drugs at Espaço Normal was suspended in April 2020. Normal Sounds was a photography project Heritage devised to engage people with experience of using drugs and understand their experiences of the Covid-19 global pandemic. Six members of the choir were given disposable cameras, notebooks and provocations to document their experiences. 
Type Of Art Artwork 
Year Produced 2020 
Impact To early to comment 
 
Title Performance/Installation with artists from Maré 
Description We produced a high-profile performance/installation, based on the original research findings. The live performance/installation included popular art-forms, photography and soundscapes and were presented in a major venue in Rio de Janeiro, bringing the socio-cultural divide between the residents of favela-complex of Maré and residents from the rest of the city of Rio de Janeiro. The performance/installation was created in partnership with Multiplicidade International Festival of Art and Technology, and engaged other artist from Maré residents from the 16 favelas of Maré, including substance users. 
Type Of Art Performance (Music, Dance, Drama, etc) 
Year Produced 2021 
Impact We got a good press coverage with over 7 Brazilian TV Channels covering the performance and doing interviews to Paul Heritage. 
 
Title Satellite 
Description Satellite is an album written, produced and released by Rafael Rocha in collaboration with Heritage, inspired by the six poets' texts, videos and recordings. It is publicly available on the Becos website: https://www.becos.art.br/ 
Type Of Art Composition/Score 
Year Produced 2020 
Impact Too early to comment 
URL https://becos.art.br/
 
Title Website 
Description The research team developed a project website for disseminating the creative practice research outputs, including the four-part audio drama and Satellite album that were created. 
Type Of Art Artefact (including digital) 
Year Produced 2020 
Impact Too early to comment 
URL https://becos.art.br/
 
Description 1. 30 months into this project one of the major discoveries has been the capacity of a Brazilian civil society organisation based in vulnerable territories subject to multiple stress factors to produce data that would otherwise be inaccessible or unavailable to policy makers, government agencies, academics, etc. Without the infrastructural support and local knowledge from Redes da Maré (Maré Development Networks) it would not have been possible to devise and implement a representative quantitative survey that is the basis for the rest of the studies. Official socio-economic and health data about the 16 favelas in which the research is being conducted is limited by the conflict between three armed criminal organisations, and between these groups and the on-going military police violence. The combined research team has been able to implement a domestic survey in 1200 residences across the 16 communities, statistically weighted to ensure that the research represents not only the gender and age balance of the territories but also ensures that the survey considers each of the three armed criminal organisations as a potential variable on residents' mental health, wellbeing and substance abuse. The insights and findings generated by the project so far, therefore, represent significant new knowledge and insights into a community and local that has until now been largely inaccessible to outside intervention.

2. The collaboration between researchers from Psychiatry, Sociology, Economics and the arts has produced a set of unique research instruments which will enable analysis of the factors that build resilience to mental health disorders and substance abuse in contexts of armed violence. The interdisciplinary research methods of this project have been central to the development of new data and insights. It has been a notable achievement to produce a quantitative survey built from multidisciplinary tools and to collect data successfully from a residential population that is usually outside of datasets on mental health and substance disorders. The domestic survey has also been applied to 200 'residents' of the open-use drug scene in the Complex of Maré (Rio de Janeiro, Brazil), opening up separate but related research on the relationship between mental health and substance abuse within territories of armed conflict. The results that are emerging from the quantitative study are already throwing up challenges to the understanding of how violence affects mental health and the role of the arts and cultural practices as a means to build resilience.

3. In additional to the quantitative data gathered via the project's survey, through a collaboration with Fundação Oswaldo Cruz/FIOCRUZ (Brazil's major public health agency), the research team has set up a testing service for HIV, Hepatitis B and Hepatitis C for respondents that frequent the open-use drug scene in Maré, Rio de Janeiro (Brazil). Initial results reveal an incidence of infection for both viruses that is over double the general population. This will allow the creation of new targeted initiatives directed at this population based on the knowledge produced through the research findings generated by this project.

4. Alongside the project's projected quantitative findings and their potential applications, early experiments with cultural interventions to build resilience for those that frequent Maré's open-use drug scene have shown the effectiveness of music-based (singing) activities. These initiatives will form part of the ongoing research and public engagement activities of the project going forward.
Exploitation Route 1) The community-level research process (questionnaires/interviews/focus groups) has already engaged over 1400 residents from the Complex of Maré (Rio de Janeiro, Brazil) in a process of reflecting on their experiences, providing opportunities for them to seek appropriate help and think through practices that enable them to identify and build resistance to Mental, Neurological and Substance (MNS) disorders which will ultimately improve their health and well-being. Participants have been signposted to Maré Development Networks and other relevant organisations, services and community-based care structures.

2) The civil society organisation Redes da Maré (Maré Development Networks) has benefited from the outcome of the capacity building support and is putting to use the preliminary research findings to shape new strategies to support people living with Mental Health and Substance Abuse (MHSA) disorders in Maré (Rio de Janeiro, Brazil).

3) FIOCRUZ (Brazil's Federal Public Health Agency) has collaborated with the research team to set up an HIV/Hepatitis C testing programme for people living on the street in open use drug sites in Maré. This will enable them to take forward the outcomes of the research that specifically relate to substance use disorders. Their direct involvement in the research - via participation in seminars and public engagement initiatives - will extend the way in which this project can influence Municipal, State and Federal policy.

4) The datasets and qualitative research produced through these three interconnected studies are already being shared with research projects looking at the arts role in building resilience to mental health disorders in Bogotá, Lima and Buenos Aires (see GRANT Nº: MR/S03580X/1, BUILDING RESILIENCE).

5) Individual research participants are already benefiting from improvements to interventions in their care and from changes in public perception of substance users that are the aim of the cultural interventions (including photography and singing/music).
Sectors Communities and Social Services/Policy,Creative Economy,Education,Environment,Healthcare,Leisure Activities, including Sports, Recreation and Tourism,Culture, Heritage, Museums and Collections,Security and Diplomacy

URL https://peoplespalaceprojects.org.uk/en/projects/building-the-barricades/
 
Description The research generated by the Building the Barricades project is providing new understandings of mental health and substance-use disorders in vulnerable territories subject to high indices of armed violence as a means to identify effective strategies to build resilience and recovery. The data produced demonstrates the impact on the social and economic well-being of individuals, families, and the Maré communities and demonstrates how health capital - and hence human capital development - is undermined by Mental Health and Substance Abuse (MHSA) disorders. This research contributes directly to Sustainable Development Goal (SDG) 3 - ensuring healthy lives and promoting well-being for all at all ages - by developing new understandings of mental, neurological and substance abuse (MNS) disorders and substance abuse on people living in urban communities subject to multiple stress-factors (socio-economic exclusion, high levels of violence, limited access to cultural networks and institutions, etc) is essential to ensure that no-one is left behind in the improvement of health and wellbeing of people's lives - an imperative of the 2030 Agenda for Sustainable Development. Over the first 18 months of this project, the research team has tested and demonstrated the effectiveness of building collaborations between community-based civil society organisations, HEIs and local stakeholders in mental health and related services to produce learning that can inform and shape public policy that will build resilience to MHSA disorders. The project has already produced new empirical data from a quantitative research instrument (survey) that was devised specifically for this project from the disciplines of psychiatry, the economics of culture and sociology. The preliminary analysis of the data already provides new understanding about the challenges of living with and treating MHSA disorders in Brazilian urban communities severely affected by fragility and conflict in territories subject to multiple stress factors such as socio-economic exclusion, high levels of violence, limited access to cultural networks and institutions. The research team has established an active partnership with community members, collaborating with civil society groups and academic partners as agents to produce data inductively rather than in an extractive manner. The gender balance among the various project teams has been rigorously monitored. The project is led by a male PI and female Director of a community organisation. Measures were taken to ensure the sample selected for the survey and focus groups was representative, and attention was paid to differences between experiences for those of different genders (e.g. differences between men's and women's experiences of violence). Steps were taken to ensure the project's activities were inclusive for people of all genders. Among the community of people who use drugs, because women are a minority, the team consulted carefully with PWUD themselves as well as with social workers to determine whether separate sessions should be offered for men and women. Already certain mechanisms have been designed and are being tested as a means to manage and prevent Mental, Neurological and Substance (MNS) disorders and associated health inequalities. Through the coproduction and reciprocal exchange of knowledge on which this research is based, the aim is to seek active ways to shape public policy (municipal, national and regional). The research team has also begun to share learning about MHSA disorders with other territories affected by fragility and conflict in Latin America. The project's impacts span intersecting disciplines as the research seeks to improve understanding of disorders within peripheral communities affected by fragility and conflict, raise awareness, inform state and civil society practitioners, and influence public policymakers in Brazil and beyond. The psychiatrists on the team have used three internationally-recognised tools for measuring mental health and wellbeing that ensure the findings about Maré can be understood globally in relation to other territories. The social scientists have constructed quantitive and qualitative research instruments to ensure a unique analysis of the relationship between mental health, cultural practices and territories affected by armed conflict. The arts and humanities researchers/practitioners have brought different investigative tools to the research questions and are now beginning to explore alternative ways to reach new audiences for the research. HERITAGE and PRIEBE's extensive international network already ensure that the impact of the research is being disseminated in a variety of academic and non-academic fora which cultivates a diverse engagement with the research findings and will continue to extend its impact. In order to achieve the aim of increasing the effectiveness of public health services, the project team has already engaged FIOCRUZ (Brazil's leading public health agency) directly in the research process. They have worked alongside our researchers to test people who frequent the open-use drug scenes for their infection with HIV and Hepatitis C and B viruses. We have also begun to create joint platforms to explore the ways in which learning from the research can shape public services and policy. The project includes specific activities that focus on how the research will enhance the quality of life for residents in Maré. Since September 2019, the research team has established a community singing project in association with a drop-in centre for illicit substance users (principally crack cocaine) which meets twice a week in the headquarters of the Maré Development Networks. The observational evaluation carried out by the social care professionals notes behaviour which reduces risk and improves socialization through the creative activities. The newly formed choir's public performances were delayed due to Covid-19, but Heritage devised a series of new creative projects including 'Normal Sounds' as part of a programme of cultural integration that challenges social stigma and prejudice that excludes people from access to adequate health care and services. Alongside his work with the choir, in 2020 HERITAGE established a series of performance-based and visual arts practices to produce new narratives about people with mental health and substance-use disorders in relation to the territory of Maré, with a focus on how such practices build resilience and recovery: creative workshops with six young poets from Maré and creative workshops with six young photographers from Maré. The photographic workshops were expanded into an open call where local residents were invited to join a photographic competition, documenting their daily experiences and what they saw from their windows. The general public then voted on the winners and the artworks have been curated and are publicly available on the project website: https://www.amaredecasa.org.br/. The poetry workshops led to the production of an hour-long four-part immersive audio drama entitled Becos, with text written and performed by six poets from Maré with direction, dramaturgy and editing by HERITAGE and Catherine Paskell. The 'play for voices' was recorded in August 2020 in a professional studio in Rio de Janeiro with a soundtrack composed and performed by Rafael Rocha, one of Brazil's leading contemporary percussionists. Rocha and HERITAGE also collaborated with the six Maré artists to produce and release a music album entitled Satellite, based on the outputs generated and inspired by the research findings. Both are available on a dedicated website (https://www.becos.art.br/) and have been widely circulated via the partners platforms, ensuring research findings reach local and international audiences. To continue to ensure that the impact continues to resonate amongst residents of the communities who were the object and protagonists of the study (in the 16 favelas that form the Complexo da Maré), as well as reaching new audiences via public health agencies and other intermediaries in Rio de Janeiro and Brazil we have secured a follow-on impact and engagement grant. This will allow us to build on the arts research and outputs, engage with a network of arts organisations from other Latin American LMICs that has recently been formed to strengthen knowledge about building resilience to and recovery from mental disorders and sustain dialogue between civil society organisations based in fragile urban territories (in particular those that provide arts and cultural programmes) and a wide range of stakeholders (government and non-government agencies) committed to delivering improved healthcare interventions.
First Year Of Impact 2019
Sector Communities and Social Services/Policy,Creative Economy,Education,Environment,Healthcare,Government, Democracy and Justice,Culture, Heritage, Museums and Collections,Security and Diplomacy
Impact Types Cultural,Societal,Economic,Policy & public services

 
Description Brazil Accelerator Fund: Cultural strategies as tool for social inclusion of vulnerable populations in the field of public policies on mental disorders and drugs: a case study in the community of Manguinhos (Rio de Janeiro)
Amount £5,001 (GBP)
Organisation Queen Mary University of London 
Sector Academic/University
Country United Kingdom
Start 08/2021 
End 07/2022
 
Description Building resilience in adolescence - improving quality of life for adolescents with mental health problems in Colombia (BRiCs study)
Amount £438,896 (GBP)
Funding ID MR/S023674/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 11/2019 
End 10/2022
 
Description Building the Barricades (ES/S000720/1) Follow-On: mobilising research on mental health and substance use in Complexo da Maré, Rio de Janeiro
Amount £149,955 (GBP)
Funding ID AH/V012363/1 
Organisation Arts & Humanities Research Council (AHRC) 
Sector Public
Country United Kingdom
Start 02/2021 
End 12/2021
 
Description Counting Culture: What Do We Need to Know About How the Creative Industries Can Deliver Equitable, Just and Sustainable Development in Brazil and the UK?
Amount £67,704 (GBP)
Funding ID NAFR1180095 
Organisation The British Academy 
Sector Academic/University
Country United Kingdom
Start 09/2018 
End 09/2020
 
Description Far Apart UK: Looking beyond lockdown to understand how UK arts organisations can continue to support young people's wellbeing during COVID-19
Amount £354,850 (BTC)
Funding ID AH/V015613/1 
Organisation Arts & Humanities Research Council (AHRC) 
Sector Public
Country United Kingdom
Start 01/2021 
End 01/2022
 
Description Far apart but close at heart: How do arts organisations in Latin America support the mental health of young people online during a global pandemic?
Amount £123,428 (GBP)
Funding ID AH/V006517/1 
Organisation Arts & Humanities Research Council (AHRC) 
Sector Public
Country United Kingdom
Start 09/2020 
End 07/2021
 
Title Quantitative Survey Questionnaires for Residents in the Complex of Maré and Drug Users at Espaço Normal, Redes da Maré (Brazil) 
Description A quantitative survey of 1,200 adults living in Maré (statistically weighted to ensure that the research represents the gender and age balance of the territories) and of 200 individuals who frequent the open-use drug sites was conducted in 16 favelas in the area of Maré in Rio de Janeiro (Brazil) between August-November 2019. The survey uses internationally recognized psychiatric instruments and metrics alongside questions devised and piloted for this study in order to quantify sociodemographic characteristics, experiences of different forms of violence, physical and mental health status (including drug use) and active participation in cultural consumption and production. For the 200 participants with declared histories of substance abuse interviewed at Espaço Normal, there was an additional section to determine their potential risk of infectious diseases (specifically HIV and Hepatitis B and C). The research team is currently undertaking 60 in-depth interviews and 8 focus groups of participants selected from respondents to the survey to assess in more detail their experiences of violence and their coping strategies. 
Type Of Material Physiological assessment or outcome measure 
Year Produced 2019 
Provided To Others? No  
Impact The combined research team has been able to implement a domestic survey in 1200 residences across the 16 communities, statistically weighted to ensure that the research represents not only the gender and age balance of the territories but also ensures that the survey considers each of the three armed criminal organisations as a potential variable on residents' mental health, wellbeing and substance abuse. Official socio-economic and health data about the 16 favelas in which the research is being conducted is limited by the conflict between three armed criminal organisations, and between these groups and the on-going military police violence. The insights and findings generated by the project so far, therefore, represent significant new knowledge and insights into a community and local that has until now been largely inaccessible to outside intervention. 
 
Title Datasets from questionnaires - Building the Barricades 
Description The dataset consists of responses to a quantitative survey of 1,200 adults living in Maré (statistically weighted to ensure that the research represents the gender and age balance of the territories) and of 200 individuals who frequent the open-use drug sites was conducted in 16 favelas in the area of Maré in Rio de Janeiro (Brazil) between August-November 2019. The survey uses internationally recognized psychiatric instruments and metrics alongside questions devised and piloted for this study in order to quantify sociodemographic characteristics, experiences of different forms of violence, physical and mental health status (including drug use) and active participation in cultural consumption and production. For the 200 participants with declared histories of substance abuse interviewed at Espaço Normal, there was an additional section to determine their potential risk of infectious diseases (specifically HIV and Hepatitis B and C). 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? No  
Impact The research team is currently in the data cleaning and analysis phase. Preliminary results are yet to be presented. 
 
Description Building the Barricades collaborative partnership 
Organisation Federal University of Rio Grande do Sul
Country Brazil 
Sector Academic/University 
PI Contribution As Principal Investigator, I am leading the multi-disciplinary collaborative research team to devise the project structure and timetable in partnership with two Brazilian NGOs based in Rio de Janeiro.
Collaborator Contribution Redes da Mare: this community-based NGO is the key partner in the research project. Their contribution includes brokering and facilitating the engagement with the community of local people in Complexo da Mare, including a group of around 200 people who frequent the open drugs scene and access treatment and support facilities at a centre run by Redes; management, including the recruitment, training and employment of field researchers, data analysts and other project staff who will conduct the large scale survey and support the access of early career researchers based at Federal University of Rio in order to conduct in-depth interviews; guidance on risk management and security protocols in the field; employment of the data analysis team; contracting and management of the communications and local engagement programme around the project to ensure its local impact. People's Palace Projects do Brasil; this Brazilian NGO,
Impact This is the central collaborative partnership delivering the project. Disciplines: Drama / applied arts Psychiatry Sociology/social work Economics
Start Year 2018
 
Description Building the Barricades collaborative partnership 
Organisation Federal University of Rio de Janeiro
Country Brazil 
Sector Academic/University 
PI Contribution As Principal Investigator, I am leading the multi-disciplinary collaborative research team to devise the project structure and timetable in partnership with two Brazilian NGOs based in Rio de Janeiro.
Collaborator Contribution Redes da Mare: this community-based NGO is the key partner in the research project. Their contribution includes brokering and facilitating the engagement with the community of local people in Complexo da Mare, including a group of around 200 people who frequent the open drugs scene and access treatment and support facilities at a centre run by Redes; management, including the recruitment, training and employment of field researchers, data analysts and other project staff who will conduct the large scale survey and support the access of early career researchers based at Federal University of Rio in order to conduct in-depth interviews; guidance on risk management and security protocols in the field; employment of the data analysis team; contracting and management of the communications and local engagement programme around the project to ensure its local impact. People's Palace Projects do Brasil; this Brazilian NGO,
Impact This is the central collaborative partnership delivering the project. Disciplines: Drama / applied arts Psychiatry Sociology/social work Economics
Start Year 2018
 
Description Building the Barricades collaborative partnership 
Organisation Maré Development Networks
Country Brazil 
Sector Charity/Non Profit 
PI Contribution As Principal Investigator, I am leading the multi-disciplinary collaborative research team to devise the project structure and timetable in partnership with two Brazilian NGOs based in Rio de Janeiro.
Collaborator Contribution Redes da Mare: this community-based NGO is the key partner in the research project. Their contribution includes brokering and facilitating the engagement with the community of local people in Complexo da Mare, including a group of around 200 people who frequent the open drugs scene and access treatment and support facilities at a centre run by Redes; management, including the recruitment, training and employment of field researchers, data analysts and other project staff who will conduct the large scale survey and support the access of early career researchers based at Federal University of Rio in order to conduct in-depth interviews; guidance on risk management and security protocols in the field; employment of the data analysis team; contracting and management of the communications and local engagement programme around the project to ensure its local impact. People's Palace Projects do Brasil; this Brazilian NGO,
Impact This is the central collaborative partnership delivering the project. Disciplines: Drama / applied arts Psychiatry Sociology/social work Economics
Start Year 2018
 
Description Building the Barricades collaborative partnership 
Organisation Queen Mary University of London
Department People's Palace Projects
Country United Kingdom 
Sector Academic/University 
PI Contribution As Principal Investigator, I am leading the multi-disciplinary collaborative research team to devise the project structure and timetable in partnership with two Brazilian NGOs based in Rio de Janeiro.
Collaborator Contribution Redes da Mare: this community-based NGO is the key partner in the research project. Their contribution includes brokering and facilitating the engagement with the community of local people in Complexo da Mare, including a group of around 200 people who frequent the open drugs scene and access treatment and support facilities at a centre run by Redes; management, including the recruitment, training and employment of field researchers, data analysts and other project staff who will conduct the large scale survey and support the access of early career researchers based at Federal University of Rio in order to conduct in-depth interviews; guidance on risk management and security protocols in the field; employment of the data analysis team; contracting and management of the communications and local engagement programme around the project to ensure its local impact. People's Palace Projects do Brasil; this Brazilian NGO,
Impact This is the central collaborative partnership delivering the project. Disciplines: Drama / applied arts Psychiatry Sociology/social work Economics
Start Year 2018
 
Description Building the Barricades collaborative partnership 
Organisation Queen Mary University of London
Department People's Palace Projects
Country United Kingdom 
Sector Academic/University 
PI Contribution As Principal Investigator, I am leading the multi-disciplinary collaborative research team to devise the project structure and timetable in partnership with two Brazilian NGOs based in Rio de Janeiro.
Collaborator Contribution Redes da Mare: this community-based NGO is the key partner in the research project. Their contribution includes brokering and facilitating the engagement with the community of local people in Complexo da Mare, including a group of around 200 people who frequent the open drugs scene and access treatment and support facilities at a centre run by Redes; management, including the recruitment, training and employment of field researchers, data analysts and other project staff who will conduct the large scale survey and support the access of early career researchers based at Federal University of Rio in order to conduct in-depth interviews; guidance on risk management and security protocols in the field; employment of the data analysis team; contracting and management of the communications and local engagement programme around the project to ensure its local impact. People's Palace Projects do Brasil; this Brazilian NGO,
Impact This is the central collaborative partnership delivering the project. Disciplines: Drama / applied arts Psychiatry Sociology/social work Economics
Start Year 2018
 
Description Building the Barricades collaborative partnership 
Organisation Queen Mary University of London
Department Unit for Social and Community Psychiatry
Country United Kingdom 
Sector Academic/University 
PI Contribution As Principal Investigator, I am leading the multi-disciplinary collaborative research team to devise the project structure and timetable in partnership with two Brazilian NGOs based in Rio de Janeiro.
Collaborator Contribution Redes da Mare: this community-based NGO is the key partner in the research project. Their contribution includes brokering and facilitating the engagement with the community of local people in Complexo da Mare, including a group of around 200 people who frequent the open drugs scene and access treatment and support facilities at a centre run by Redes; management, including the recruitment, training and employment of field researchers, data analysts and other project staff who will conduct the large scale survey and support the access of early career researchers based at Federal University of Rio in order to conduct in-depth interviews; guidance on risk management and security protocols in the field; employment of the data analysis team; contracting and management of the communications and local engagement programme around the project to ensure its local impact. People's Palace Projects do Brasil; this Brazilian NGO,
Impact This is the central collaborative partnership delivering the project. Disciplines: Drama / applied arts Psychiatry Sociology/social work Economics
Start Year 2018
 
Description Collaboration between Eliana Sousa Silva/Instituto Maria e Joao Aleixo and The Interuniversity Institute for Research and Development (INURED) 
Organisation Coventry University
Department Centre for Trust, Peace and Social Relations
Country United Kingdom 
Sector Academic/University 
PI Contribution Through the research relationships built during The Art of Cultural Exchange, Paul Heritage was able to support and broker the entry of a new Brazil research partner to the MIDEQ Migration for Development and Equality research partnership (South-South Migration Corridor: Haiti-Brazil). Paul Heritage and PPPdoBrasil will continue to support IMJA's participation in the research and exchange with international partners throughout the course of the project.
Collaborator Contribution IMJA will conduct 3.5 years of research including large scale fieldwork to contribute comparator studies in Brazil as part of this large international study.
Impact Accession agreement. Multi-disciplinary collaboration: - Migration studies - Social science/Human Geography - Practice-based arts research.
Start Year 2021
 
Description Collaboration between Eliana Sousa Silva/Instituto Maria e Joao Aleixo and The Interuniversity Institute for Research and Development (INURED) 
Organisation Institute Maria and João Aleixo
Country Brazil 
Sector Charity/Non Profit 
PI Contribution Through the research relationships built during The Art of Cultural Exchange, Paul Heritage was able to support and broker the entry of a new Brazil research partner to the MIDEQ Migration for Development and Equality research partnership (South-South Migration Corridor: Haiti-Brazil). Paul Heritage and PPPdoBrasil will continue to support IMJA's participation in the research and exchange with international partners throughout the course of the project.
Collaborator Contribution IMJA will conduct 3.5 years of research including large scale fieldwork to contribute comparator studies in Brazil as part of this large international study.
Impact Accession agreement. Multi-disciplinary collaboration: - Migration studies - Social science/Human Geography - Practice-based arts research.
Start Year 2021
 
Description Collaboration between Eliana Sousa Silva/Instituto Maria e Joao Aleixo and The Interuniversity Institute for Research and Development (INURED) 
Organisation The Interuniversity Institute for Research and Development
Country Haiti 
Sector Charity/Non Profit 
PI Contribution Through the research relationships built during The Art of Cultural Exchange, Paul Heritage was able to support and broker the entry of a new Brazil research partner to the MIDEQ Migration for Development and Equality research partnership (South-South Migration Corridor: Haiti-Brazil). Paul Heritage and PPPdoBrasil will continue to support IMJA's participation in the research and exchange with international partners throughout the course of the project.
Collaborator Contribution IMJA will conduct 3.5 years of research including large scale fieldwork to contribute comparator studies in Brazil as part of this large international study.
Impact Accession agreement. Multi-disciplinary collaboration: - Migration studies - Social science/Human Geography - Practice-based arts research.
Start Year 2021
 
Description Fiocruz 
Organisation Oswaldo Cruz Foundation (Fiocruz)
Country Brazil 
Sector Public 
PI Contribution The infrastructural support and local knowledge contributed to the research partnership by Redes da Maré (Maré Development Networks) has enabled Fiocruz researchers to broker safe access to a population, and to data, that would normally be inaccessible/unavailable to them. In particular, the research team has added questions about the exposure risk of survey participants who frequent the open drug (crack) use scene in the Mare favela complex to HIV, Hepatitis B and Hepatitis C to its main survey, generating new data for Fiocruz.
Collaborator Contribution Fiocruz has made tests for HIV, Hepatitis B and Hepatitis C available to survey participants in an easy to access manner once they have completed the survey aspect of the research.
Impact There has been significant takeup of the voluntary tests, adding to Fiocruz's data on HIV and Hepatitis B and C infection among substance users in Rio de Janeiro. Initial results reveal an incidence of infection for both viruses that is over double the rate within the general population. This will allow the creation of new targeted initiatives directed at this population based on the knowledge produced through the research findings generated by this project.
Start Year 2019
 
Description Multiplicidade/Theatro Municipal 2020 
Organisation Multiplicidade Festival
Sector Public 
PI Contribution This collaboration has opened up the opportunity to develop a new installation as part of Multiplicidade Festival 2020, building on the arts research work undertaken with the Choir at Espaco Normal.
Collaborator Contribution Multiplicidade has committed to provide producing support and Theatro Municipal has made an offer of space for the installation to be performed as part of the Festival, with dates pencilled in their schedule.
Impact At present, outputs/outcomes include planning meetings, scoping for an arts installation, and the drafting of a funding application.
Start Year 2019
 
Description Multiplicidade/Theatro Municipal 2020 
Organisation Rio de Janeiro Municipal Theatre
Country Brazil 
Sector Public 
PI Contribution This collaboration has opened up the opportunity to develop a new installation as part of Multiplicidade Festival 2020, building on the arts research work undertaken with the Choir at Espaco Normal.
Collaborator Contribution Multiplicidade has committed to provide producing support and Theatro Municipal has made an offer of space for the installation to be performed as part of the Festival, with dates pencilled in their schedule.
Impact At present, outputs/outcomes include planning meetings, scoping for an arts installation, and the drafting of a funding application.
Start Year 2019
 
Description Community Choir with users of Espaço Normal, Redes de Maré (Brazil) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact In March 2018, Maré Development Networks (Civil Society Organization) opened a Drugs Reference Centre in Maré known as Espaço Normal which operates as: (1) a drop-in centre for drug users and their relatives (2) a place for institutional articulation between public and local care services (3) a research hub on drug use and the impact of drug policies in the region. The success of this initiative enabled People's Palace Projects to establish a choral project with users of Espaço Normal from September 2019, based on methodologies Professor Paul Heritage used to create choirs of homeless people in Rio de Janeiro (With One Voice). Although still embryonic, the new choir of approximately twenty people (male and female) who frequent the open-use drug scenes that border Maré has opened up a unique way in which those who are the object of a research study can become actively engaged in mobilizing the knowledge produced by academic researchers.

The choir has met weekly (on Thursdays) from October 2019 onwards for 2 hours per session. The sessions are led by choirmaster Ricardo Branco and supported by social worker Cristiane Santos.
Year(s) Of Engagement Activity 2019
 
Description Creative workshops with six young photographers from Maré. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Between April and September 2020, HERITAGE curated workshops with renowned visual artist Tatiana Altberg and researcher Raquel Tamaio with six young photographers from Maré: Christine Jones, Fagner França, Jailton Nunes, Juliana Oliveira, Jonas Willame and Larisse Paiva. In the workshops the young photographers captured and documented their lives in lockdown through photography and written diaries, which reflected on their experience of mental health, arts and resistance living within the Maré community.
Year(s) Of Engagement Activity 2020
URL https://www.amaredecasa.org.br/
 
Description Creative workshops with six young poets from Maré. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Between March and September 2020, with the support of Welsh theatre director Catherine Paskell, HERITAGE led workshops twice a week with six young artists from Maré: MC Martina, Rodrigo Souza, Matheus de Araújo, Jonathan Panta, Thais Ayomide and Thaina Farias. The workshops explored and generated information about young people's experiences of health and wellbeing in Maré (with reflections on Covid-19), with the artists collaboratively producing a series of texts, poems, short stories and narratives about their daily lives. This included four short conceptual videos about their experience of mental health, arts and resilience living within the Maré community.

The poetry workshops led to the production of an hour-long four-part immersive audio drama entitled Becos, with text written and performed by the six poets with direction, dramaturgy and editing by HERITAGE and Catherine Paskell. The 'play for voices' was recorded in August 2020 in a professional studio in Rio de Janeiro with a soundtrack composed and performed by Rafael Rocha, one of Brazil's leading contemporary percussionists. Rocha and HERITAGE also collaborated with the six Maré artists to produce and release a music album entitled Satellite, based on the outputs generated and inspired by the research findings.
Year(s) Of Engagement Activity 2020
URL https://becos.art.br/
 
Description Final Seminar with wider academic community 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Final Seminar in November 2021 to share learning with the wider academic community, hosted by Queen Mary University London. The five members of the Brazilian research team were present, sharing their experiences with the international academics.
Year(s) Of Engagement Activity 2021
 
Description IPHS online seminar: Beyond the barricades: Building mental health resilience and wellbeing through the arts (Presenter: Paul Heritage) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Talk by Prof. Paul Heritage for online seminar organised by Institution of Population Health Sciences (QMUL), addressing new forms of knowledge production and mobilisation through the co-creation of research between social scientists, psychiatrists, and artists.
Year(s) Of Engagement Activity 2020
 
Description Internal seminar at Casa rio, Rio de Janeiro (Brazil) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact The focus of this meeting was to discuss the preliminary data analysis of the quantitative research generated by the 1400 interviews conducted with both residents and substance users in Mare. Team members also conducted a review of the project's qualitative methodologies, its cultural and artistic outputs generated by the research, and the project's timeline overall.
Year(s) Of Engagement Activity 2019
 
Description Internal seminar at The Newham Centre for Mental Health, London (UK) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This event was hosted by the Newham Centre for Mental Health and focused on fostering academic exchange between the Building the Barricades project, its own research and methods, and the work and research conducted at the Newham Centre.
Year(s) Of Engagement Activity 2019
 
Description Internal seminar/workshop at Casa rio, Rio de Janeiro (Brazil) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This event marked the first full-team meeting of Brazilian and UK-based team members engaged in the Building the Barricades project. First and foremost, it aimed to established a shared language and encourage dialogue concerning the project's interdisciplinary scope, its aim, ambitions and research methods. Members discussed the project's qualitative and quantitative methodological approaches to the research, the instruments that would be used for gathering and analysing data, related ethical implications, planning for the literature reviews and timelines for the project going forward.
Year(s) Of Engagement Activity 2018
 
Description Mad Hearts: the Arts and Mental Health Conference, Queen Mary University of London (UK) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A two-day conference organised by Arts and Culture and the MSc Creative Arts and Mental Health at Queen Mary University of London. This event explored productive, radical, contemporary encounters between the arts and mental health, bringing together clinical, artistic and research perspectives that offer a re-interpretation of contemporary mental health science and practice. As part of the event, Paul Heritage, Marcelo Cruz, Eliana Sousa Silva, and Maíra Gabriel Anhorn delivered an hour-long presentation on entitled 'People's Palace Projects: Building the Barricades', outlining the project and its potential impact(s).
Year(s) Of Engagement Activity 2019
URL https://www.qmul.ac.uk/sed/events/mad-hearts/
 
Description Press Coverage of the Performances/Installations 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Over August 2021 we got a press coverage of more than 350 stories on TV, Radio, Newspapers and Online published by local, national and international media.
Year(s) Of Engagement Activity 2021
URL https://www.youtube.com/watch?v=RhJtThusVpY&list=PLfY0CqsFwo-VyElykqsr6o_XJJ9p-uP5a&index=2
 
Description Public Seminar at Queen Mary University of London (UK) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The event marked the first public presentation of the project's aims, methods, key fields of research and investigation and literature that it is engaging with to a UK audience.
Year(s) Of Engagement Activity 2019
 
Description Public Seminar/Workshop at Medicine Department, Federal University of Rio de Janeiro (Brazil) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact This seminar-workshop was facilitated by Stefan Priebe (co-investigator, Queen Mary University of London) for postgraduate psychiatry students in the Medicine Department, Federal University of Rio de Janeiro. As part of this event, Professor Priebe discussed the Bridging the Barricades project in relation to his wider research and practice.
Year(s) Of Engagement Activity 2018
 
Description Virtual Seminar to share research with relevant agencies and institutions 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Final webinar to share research with relevant agencies and institutions and discuss ways to take the research forward.
Year(s) Of Engagement Activity 2021