Asha: Co-producing abortion knowledge & impact outputs with lay community health intermediaries in India

Lead Research Organisation: London School of Economics and Political Science
Department Name: Methodology

Abstract

My research demonstrates the urgent need to account for women's needs and lived realities in abortion care-provision in India. While abortion has been legal since 1971, women continue to encounter barriers to safe services; with the majority of abortions occurring outside of health facilities. I documented women's abortion experiences, illustrating how women's interactions with health workers and the health system involved numerous delays, negotiations and contestations that were underpinned by abortion stigma. My findings demonstrate that lay community health intermediaries (CHIs) like Accredited Social Health Activists (ASHAs) play pivotal roles in women's abortion experiences, enabling or restricting access to a range of abortion-related services, but lack accurate information. I found that their training does not adequately cover abortion-related information or support. Additionally, a highly medicalised approach to abortion persists in training materials and structures, overlooking women's experiences and needs that are shaped by their social and economic environments. Drawing on these data and narratives, I propose using visual methodologies to co-produce impact and scholarly outputs for a range of audiences including academia, and advocacy and policy organisations.

Building on existing relationships, I will work with an organisation that trains ASHAs on abortion-related care provision to design and deliver a novel workshop. In this workshop, I will utilise participatory methods to co-create, with approximately 30-45 ASHAs, a set of visual resources (e.g. zines- booklets created using images, sketches & narratives, used to create communities of practice). I will also investigate the production of audio materials for greater impact.

In order to enable knowledge exchange, I will ensure that these materials are made widely available and remain accessible to a range of groups- e.g. organisations working on sexual and reproductive health and rights (SRHR), policy actors, or institutions that train health workers. I will create and maintain a project website to ensure availability of resources and identify existing channels for dissemination (e.g. National ASHA Mentoring Group or CHW Central). I will also produce a resource on the workshop methodology and process, so it can be adapted for different settings for CHI trainings in India or other contexts. I will use a copyleft licence for these outputs, allowing copying, modification or adaptation for specific local contexts.

One of the core elements of my work is linking academia with policy or advocacy interventions. I am keen to continue building strong partnerships with civil society organisations to ensure my research contributes- directly or indirectly- to policy, advocacy or campaigning efforts at local or community levels. To bring these two different audiences together, I will organise an international workshop to discuss co-produced research and interventions in SRHR.

I am keen to build my academic and research career, aspiring to continue working on crucial social science research questions relating to SRHR and women's health. Towards that, I will be developing two grants for submission to research funders. I will also focus on building my publication record and disseminating my scholarly work. I will, based on the workshop with ASHAs, write one academic article on the methodology I developed and implemented. I will also continue to adapt my PhD research into at least three more articles. I aim to submit these to prestigious journals in my field, building on my previous experience of publishing high-impact articles.

Publications

10 25 50
 
Description COVID-19 added to the urgency around discussing and shifting policy on self-managed abortion. Part of the issue has been how self-managed abortion remains poorly understood. As part of this grant, I have co-authored a novel and well-received academic article on self-managed abortion, detailing the range of actors involved in enabling or restricting access. The article also reflects on the complex laws that add to confusion and potentially increase the amount of risk people are exposed to when seeking or supporting abortion care.

I was first author on an academic article on structural violence and abortion in the context of COVID-19. This article highlighted how COVID-19 exacerbated existing barriers and restrictions in abortion care conditions. We also suggested utilising the application of 'Structural Violence' in abortion research - a new framework for the topic and the discipline. I have since been invited to present this framework to other researchers and groups, and the article has inspired scholars to apply this to their own work and research. A blog on this article was also published for non-specialist audiences.

Drawing on strong body of evidence around abortion provision via telemedicine, I co-organised a series of workshops to encourage responses to a national (England) consultation on abortion telemedicine. Along with other academics focusing on abortion, I contributed to a responses template made available for public reference. I also submitted evidence to the consultation to influence policy. Unfortunately, in 2022, the England government has decided to end the option of abortion provision through telemedicine, overlooking scientific evidence and global standards.

I have further contributed to public discussion on abortion through organising a virtual seminar series aimed at a general audience. This series showcases abortion and sexual and reproductive health research from around the world. The series is extremely well attended, drawing practitioners and service providers in addition to activists, researchers, and students. The series has since given rise to collaborations (n=4), including research grant submissions amongst attendees.
Exploitation Route Academically, the work on constellation of actors and cacophonies of laws offers a new way of thinking about self-managed abortion. This offers possibilities for understanding where and how the abortion ecology functions, giving rise to new areas of inquiry and research (e.g., how anti-abortion groups function within this space). Another academic outcome is utilising and applying 'structural violence' within abortion research, enabling new analyses focused on the conditions that influence and impact peoples' lives.

All the publications and blogposts can be added to academic reading lists, appropriate for both undergraduate and postgraduate students. Some courses - at my institution and others- already include these on their reading lists.

The publication on voluntary family planning challenges how international and national development policies understand and apply the notion of 'voluntary family planning', urging caution and to rethink the conditions that surround such interventions. This outcome can particularly support rethinking and redesigning such policies.

Service providers may also find the reflections in two academic publications (voluntary family planning article, and the constellations article) of interest, particularly in how it shapes their practice and provision of care.
Sectors Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice

 
Description The academic works has been used (i) in a policy response ('THE RIGHT TO SEXUAL AND REPRODUCTIVE HEALTH: CHALLENGES AND POSSIBILITIES DURING COVID-19') submitted to the UN Special Rapporteur on Health, calling for more evidence-informed policies and norms on sexual and reproductive health as affected by the pandemic, and (ii) in a policy review ('Radical Abortion Care in a Pandemic (Kenya and Zambia)') conducted by women's groups and researchers based in Kenya, Zambia, and Northern Ireland.
First Year Of Impact 2021
 
Description Participation in National Consultation [England government consultation on home use of early medical abortion, 2021]
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
URL https://rnandagiri.com/blog/response-to-the-government-consultation-on-abortion-telemedicine-keeptel...
 
Description "Acting in Good Faith": Reproductive Governance and Population Policies in India 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact I was invited to present at the IDD Guest Seminar Series at the University of Birmingham in Nov 2020. The seminar was based on a paper I was turning into a journal article over the course of the postdoctoral fellowship. The event has a number of attendees, sparking much discussion on the role of reproduction in development. I have since received requests for further information.
Year(s) Of Engagement Activity 2020
URL https://www.birmingham.ac.uk/schools/government/departments/international-development/events/guest-s...
 
Description "I felt like a namoona": Examining sterilisation in women's abortion trajectories in India. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I was invited to present my work on a forthcoming book chapter (completed under the grant)- "I felt like a namoona": Examining sterilisation in women's abortion trajectories in India- at the seminar series organised by the Sexual and Reproductive Health and Justice Research Group at the Faculty of Health, Psychology and Social Care, Manchester Metropolitan University, UK in Jun 2021. I have since received requests for further comments on my approach in the chapter, as well as requests for further collaboration.
Year(s) Of Engagement Activity 2021
 
Description A constellation of actors, a cacophony of laws: expanding understandings of self-managed abortion. Centre for Health, Law, and Society. University of Bristol 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact My co-author Dr Lucía Berro Pizzarossa and I were invited to present our paper 'A constellation of actors, a cacophony of laws: expanding understandings of self-managed abortion' at a virtual workshop (Reproductive Expectations: Disruption, Transgression and Re-Configuration Exchanges across Anthropology, Law, and Social Policy) organised by the Centre for Health, Law, and Society, University of Bristol (October 2021). The attendees - a global audience of practitioners, academics, researchers, and students- engaged in a rich discussion on the topics presented, reflecting on the commonalities and overlaps. We have since submitted our work for a special issue in a journal.
Year(s) Of Engagement Activity 2021
URL http://www.bristol.ac.uk/law/events/2021/chls-workshop-reproductive-expectations.html
 
Description Abortion & SRH Seminar Series 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact In collaboration with Professor Ernestina Coast and Joe Strong [LSE], I co-organise a monthly series of interdisciplinary abortion and SRH themed seminars [via zoom], open to the general public. We have co-organised ten seminars featuring abortion and SRH researchers [including academics and those working with non-profit organisations or as independent researchers] from around the world. The seminars have covered pre-marital sexual activity in China, abortion and the law, researching abortion as an African male feminist, the role of pharmacists in abortion care provision, global abortion activist trails, and the interviewer effect in surveying abortion, amongst other topics. These seminars have been extremely well attended, with each seminar averaging approximately 30 attendees. Our most well attended seminar had 98 sign-ups via the event page and 73 attendees.

We continue to confirm seminar speakers and continue to organise the seminars. Our upcoming speakers will be covering themes including the sexual and reproductive health experiences of Haredi Jews, and trade union activism and abortion, amongst other topics.
Year(s) Of Engagement Activity 2020,2021,2022
 
Description Abortion Book Club: Public Engagement 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact I co-organise [with Joe Strong] a monthly 'abortion book club' series, open to the general public [via zoom], that reads and interrogates depictions of abortion in fiction. We choose books from around the world [e.g., USA, UK, Zimbabwe, South Africa, Ireland] to explore how abortion access is governed in these contexts and the barriers that womxn experience and navigate in care-seeking. In our discussions, we draw on existing academic research to reflect on and expand our discussions about the text.

We have organised eight book club meetings thus far. These meetings have been attended by members of the general public with an interest in abortion, as well as abortion and sexual and reproductive health researchers in universities and non-profit organisations. Our members include university students, as well as abortion activists and advocates. We also manage a very engaged and diverse audience via Twitter (https://twitter.com/AbortionBooks_). In total, we estimate 40 unique attendees across the different meetings. Our e-mail list has 127 unique sign-ups. In response to members' requests, we have shifted to a longer format of 90 minutes instead of the original 60 minutes.

Recent discussions have included potential writing - for academic and non-specialist audiences- on depictions of abortion in fiction.
Year(s) Of Engagement Activity 2020,2021,2022
URL https://www.otherabortionstories.space/bookclub
 
Description Blogpost on Abortion, COVID-19, and Structural Violence 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact We published a blog post based on an article. We shared this via specialist list-servs, receiving positive feedback from practitioners and advocacy groups. We also shared this via social media channels, receiving comments and discussion points from a range of actors including researchers, third sector organisations, and policy makers.
Year(s) Of Engagement Activity 2020
URL https://blogs.lse.ac.uk/covid19/2020/12/17/abortion-in-the-time-of-covid-19-a-study-in-structural-vi...
 
Description Blogpost: Shame and Reproductive Justice 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact We were invited to publish a blogpost reflecting on shame and reproductive in/justice. We shared this via specialist list-servs and social media platforms, receiving positive feedback from medical professionals, researchers, and patient advocacy groups. We also shared this via social media channels, receiving comments and discussion points from a range of actors including researchers, third sector organisations, and policy makers.
Year(s) Of Engagement Activity 2021
URL https://shameandmedicine.org/controlling-fertility-reproducing-shame-uk-policies-and-reproductive-in...
 
Description COVID-19 and abortion: making structural violence visible. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Based on a paper published under the grant 'COVID-19 and abortion: making structural violence visible', I was invited to present the paper at the NORC-University of Chicago, USA seminar series in Jan 2021.
Year(s) Of Engagement Activity 2021
 
Description Global Threats to Abortion Rights 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact I was invited to speak at the University of Cambridge's UN Women and FemSoc organised panel on Global Threats to Abortion Rights. The primary audience were undergraduate and postgraduate students at the University of Cambridge, with approximate 40 people attending. There was a robust discussion on abortion and anti-abortion narratives, followed by several questions from students how to engage more effectively in policy and advocacy. There were also additional links and discussions between panellists after the event, exploring possibilities for further collaboration.
Year(s) Of Engagement Activity 2021
 
Description In/Fertile Environments Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I was invited to participate in the 'In/Fertile Environments: Making Kin in a Time of Crisis' project led by Dr Katharine Dow and Dr Heather McMullen. The project is funded by the ISRF. As part of this small working group of scholars from different contexts, we reflect on and produce scholarship on reproduction and kinship in relation to the environmental crisis. We are working towards a public workshop and building future projects.
Year(s) Of Engagement Activity 2021,2022
 
Description Interview for LSE Research: Roe v. Wade: The global ripple effects 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact To follow up on the interview for LSE Research on the global impact of the overturning of Roe v. Wade in the US, I was interviewed for the LSE Research for the World. This builds on my work during the ESRC project - writing about social movements and 'constellations of actors', for example. This interview has been referenced in editorials and in academic articles.
Year(s) Of Engagement Activity 2022
URL https://www.lse.ac.uk/research/research-for-the-world/health/backstreet-abortions-not-the-only-optio...
 
Description Interview for LSE Research: Roe v. Wade: The global ripple effects 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact In response to the overturning of Roe v. Wade in the United States, I was interviewed by LSE Research to reflect on the implications of this judgement for abortion rights globally. The video has been viewed by over 3000 people on youtube, and over 250 interactions via Twitter and other social media platforms. This has led to discussions and reflections on how the US might learn from the Global South on abortion and reproductive rights organising.
Year(s) Of Engagement Activity 2022
URL https://www.youtube.com/watch?v=2fkTBy3VJkA
 
Description Situating Voluntary Family Planning, Development, and Reproductive Politics. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I was invited to present some of my work on family planning to the Fertility and Reproduction Studies Group at the School of Anthropology & Museum Ethnography, University of Oxford in Jan 2021.
Year(s) Of Engagement Activity 2020
 
Description Talking about and visualising abortion research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact With Professor Ernestina Coast, I presented some reflections on visualising abortion research for general audiences. This draws on my learning from producing resources as part of the ESRC postdoctoral fellowship. The discussions led to co-authoring an abstract on visual abortion research for a special issue journal on graphic representations of gender and health. The abstract has been accepted and work on the manuscript is underway. The video is also available on youtube and currently has 222 views and 10 comments.
Year(s) Of Engagement Activity 2021
URL https://www.youtube.com/watch?v=o7Bm5PeRAGw
 
Description Template for responses for Govt Consultation on home-use EMA in England 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact As part of a group of abortion researchers (led by Dr Heini Väisänen and supported by Katy Footman, Joe Strong, Dr Rachel Scott, Dr Tiziana Leone, and Professor Ernestina Coast), I contributed to the creation of a resource (a response template) drawing on current evidence to call for home use of early medical abortion to be made a permanent measure.
Year(s) Of Engagement Activity 2021
URL https://heinivaisanen.files.wordpress.com/2021/02/ma-consultation-example-answers-final.pdf
 
Description The Power to say Yes, the Right say No: a conversation with Dr Natalia Kanem, Executive Director of the United Nations Population Fund. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact I chaired a public event with Dr Natalia Kanem, the Executive Director of the United Nations Population Fund. We discussed sexual and reproductive health globally, taking questions from the audience. I received seven follow-up requests and questions after the event.
Year(s) Of Engagement Activity 2021
URL https://www.youtube.com/watch?v=_2lg1FokJB4
 
Description Workshop 1 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact In December 2022, partner organisation (Asia Safe Abortion Partnership) hosted a workshop with third sector partners and feminist collectives in Lonavala, India. The workshop, delayed from 2021, engaged partners and practitioners on abortion advocacy. They presented the resources produced for feedback. The feedback was all positive, including brainstorming ways to utilise this for advocacy and activist efforts.
Year(s) Of Engagement Activity 2022
 
Description Workshop: Dealing with frustration and conflict in Academia. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact I was invited as a panellist on a workshop 'Dealing with frustration and conflict in Academia' organised at the European Association for Population Studies in May 2021. There were a number of questions and a rich discussion that followed. The feedback on the event was positive and some attendees followed up personally about potential publications based on the discussion.
Year(s) Of Engagement Activity 2021
 
Description Workshops for England Government Consultation on Abortion Telemedicine 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact With Joe Strong, I co-organised three workshops to support submissions to the government consultation on home use of early medical abortion (EMA) in England. This builds on previous work with colleagues working on abortion research (reported here) to produce a response template, available to the public, to support consultation responses. We hosted 'write-in' workshops, where key service provision organisations (British Pregnancy Advisory Service, Doctors for Choice UK), as well as activist organisations (Abortion Rights UK) shared their research and knowledge, offering key evidence to highlight/reflect on in consultation responses. The intended purpose of these sessions was to (i) encourage responses to the government consultation, calling for the measure to be made permanent, (ii) inform/update people of the current evidence on EMA in England, (iii) support their use of the evidence to craft a response to the government consultation, and (iv) create a space where people can clarify questions or concerns around their responses.

We advertised the events via social media & through our partners' list-servs. Our website offered a sign-up sheet. Over the week of our events, our website received a total of 248 *unique* visitors, indicating high levels of engagement.

To enable engagement, I generated a shared resource folder with current evidence, as well as current response templates, allowing for easy access to up-to-date evidence and support for crafting responses. Additionally, I wrote a short guide to crafting policy responses (building on existing evidence and suggestions from our partners), that was also made available to all attendees. This folder was also shared with at least ten other persons [reported data] who did not attend the workshops, but used the resources to craft and submit their responses. A total of 25 people attended these sessions, drawing from the general public, service users, service providers, academics, and students.
Year(s) Of Engagement Activity 2021
URL https://www.otherabortionstories.space/abortion-telemedicine-consultation