University of Edinburgh 2022-2026 ADR UK Programme

Lead Research Organisation: University of Edinburgh
Department Name: Sch of Geosciences

Abstract

Administrative data (that is, information collected primarily for administrative purposes) has long contributed to central government and other statistics. Technological advancement has resulted in the formation of very large administrative databases held by government, and by specialist agencies across the UK. The existence of such databases raises the possibility that administrative data could become, in an anonymised form, a core resource for social science academic research.

During the pilot phase of ADR UK the Scottish Centre for Administrative Data Research (SCADR) has, together with partners in the Scottish Government, delivered a series of policy-relevant projects based on the linking of novel sets of administrative data. In the next phase of ADR UK we aim to work with government to deliver a programme of impactful research in strategically important policy areas which demonstrates the value of investment in administrative data infrastructure, and to act as a centre for methodological, intellectual and policy innovation.

Our five policy-critical research strands are:
- Housing, Health and Welfare, which responds to the Scottish Government's key themes of inclusive growth, health and equality and will access new data to look at the interaction of health and labour market, and wealth and housing.
- Health and Social care, which will have a focus on end of life care (supporting the government manifesto commitment to develop a palliative end of life care strategy) and, drawing on new data, examine the dynamics of the nursing workforce.
- Community Safety and Equality will examine how to improve safety and equality across communities by linking data from law enforcement, justice and health. Studies will examine frequent and overlapping user demand for public services and provide insights on complex problems such as violence, problem drug use and rising crime.
- Children's Lives and Outcomes will focus on three areas: (1) the scarring effect of COVID-19 on aspects of young people's progress, (2) deepening the understanding the attainment gap and (3) support the data needs resulting from government policies such as the incorporation of the UNCRC into Scots Law.
- Lifelong Health and Wellbeing aims to provide evidence in support of Public Health Scotland's 'Fairer, healthier Scotland strategic framework', designing projects that explore how different factors can impact on people's lives and health as they age and identify interventions and policy areas that will help reduce health inequalities.

A cross-cutting research theme will address issues related to the COVID-19 pandemic and its consequences for society. This will continue to explore longer term outcomes and recovery and will be expanded to include any further emerging priorities over the next four years.

A world-leading aspect of our work is the creation of new study cohorts that can be made available for research use. In the next four years we will undertake a major programme of work that will reconstruct families over multiple generations (called the Scottish Historical Population Platform, or SHiPP). Ultimately the data could (with appropriate safeguards for anonymity of the individual) be linked to biomedical data, opening up the opportunity to investigate the role of genes, environment and social mobility - linking living conditions, family structure and genomics.

The researchers involved in SCADR will work closely with colleagues in the Scottish Government on the development of core national linked datasets on equalities, vulnerable people and families, prisoners and health, a care leaver's dataset and a study of drug deaths.

SCADR will continue its commitment to build research capacity though expansion of its training programmes and by working with partners and data controllers to develop better information about how to access data and about the datasets themselves.

Publications

10 25 50
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Kirielle N (2023) Unsupervised Graph-Based Entity Resolution for Complex Entities in ACM Transactions on Knowledge Discovery from Data

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Garrett E (2022) What was Killing Babies in Ipswich Between 1872 and 1909? in Historical Life Course Studies

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Morales A (2022) Using Health data to analyse repeat victimisation in Scotland. in International Journal of Population Data Science

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Christen P (2023) Thirty-three myths and misconceptions about population data: from data capture and processing to linkage. in International journal of population data science

 
Description ADR UK Studentship - Looked After Children longitudinal analysis
Amount £78,114 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2023 
End 10/2026
 
Description Creating harmonised and scalable methods and tools for constructing households in large diverse administrative and health research datasets
Amount £52,343 (GBP)
Funding ID ES/X00046X/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 02/2023 
End 01/2025
 
Description Evaluation of the N50k programme
Amount £660,468 (GBP)
Funding ID https://fundingawards.nihr.ac.uk/award/NIHR203842 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 12/2022 
End 12/2024
 
Description Scottish Graduate School of Social Science PhD studentship - Living with disabilities, household conditions and COVID-19: a Scottish population-based study using linked administrative data
Amount £78,114 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2023 
End 10/2026
 
Description ADR Scotland Away Day - fireside chat between Professor Susan McVie and the Chief Statistician 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Scotland Away Day on 10/11/2022 - fireside chat between Professor Susan McVie and the Chief Statistician, Ally McAlpine about Susan's long history involved in data research, working with Government and policy.
Year(s) Of Engagement Activity 2022
 
Description ADR UK Researcher Network Symposium - World of Work 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact 7 March - Nick Bailey presented at this symposium on welfare policy and health research we are undertaking to researchers across the ADR UK partnership.
Year(s) Of Engagement Activity 2023
URL https://www.eventbrite.com/e/adr-uk-researcher-network-symposium-7-world-of-work-tickets-52268431184...
 
Description Advisory group for nursing project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A nursing advisory group was developed to support the dynamics of the nursing workforce project. This group, led by Iain Atherton, brings together a range of expertise to discuss directions for data use; research and policy priorities; and public acceptance of this work.
Year(s) Of Engagement Activity 2022
 
Description Advisory group meeting for nursing project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact October 2022: This was the second advisory group meeting for the nursing study, led by Iain Atherton. The group are helping to shape the direction of nursing and midwifery data use, priorities in the nursing workforce and what other data this might be linked to.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/our-research/health-and-social-care/exploring-dynamics-nursing-workforce
 
Description An Introduction to Data Science for Administrative Data Research course (IDS-ADR)- online 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This course gives a full introduction to working with administrative data where participants will learn how to understand, access and prepare linked administrative data for analysis.

The IDS-ADR course was developed jointly by SCADR and the Scottish Longitudinal Study (SLS) Development Support Unit and has been run successfully for several years as a face-to-face 5 day course. During Covid-19, the IDS-ADR course was adapted to be run virtually as an online course.

The course will run online over 4 weeks:
Week 1: beginning Monday 6 March 2023
Week 2: beginning Monday 13 March 2023
Week 3: beginning Monday 20 March 2023
Week 4: beginning Monday 27 March 2023
Year(s) Of Engagement Activity 2023
URL https://www.scadr.ac.uk/administrative-data/training/introduction-data-science-administrative-data-r...
 
Description An introduction to the dynamics of the nursing workforce talk by Michelle Jamieson 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact An introduction to the dynamics of the nursing workforce talk given by Michelle Jamieson.
Year(s) Of Engagement Activity 2022
 
Description BLOG - Covid-19 fines in Scotland: What we know so far 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact In this blog, Dr Victoria Gorton and Professor Susan McVie, from the University of Edinburgh, describe the latest findings from the Policing the Pandemic in Scotland project. This analysis explores patterns of police-issued fines during the coronavirus pandemic and analysis of the payment outcomes of these fines.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-covid-19-fines-scotland-what-we-know-so-far
 
Description BLOG - How is repeated violence linked to other types of vulnerability? 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Information shared about the way that repeated violence is linked to other types of vulnerability and the future research plans of the Safer Communities team at SCADR.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/our-research/safer-communities/violence-related-incidents-and-underlying-vul...
 
Description BLOG - Improving justice data to promote data justice in Scotland 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Members of the Scottish Parliament were treated to a wealth of evidence by academic researchers and government analysts at the Evidence Week in Holyrood, to help inform critical policy issues in Scotland. Amongst the contributions, SCADR research lead Professor Susan McVie discussed ways in which data could be used to create more effective and equitable crime and justice policy, while Amy Wilson (Head of Justice Analytical Services) discussed Scottish Government plans to improve and expand the availability of justice data.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-improving-justice-data-promote-data-justice-scotland
 
Description BLOG - Public engagement through our public panel 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Our Impact and Knowledge Exchange Manager, Harriet Baird, shares her experiences of running the ADR Scotland public panel and why it's so important to the work we do.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-public-engagement-through-our-public-panel
 
Description BLOG - Reflections on engaging with children & young people about data 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Reflections on engaging with children & young people about data. At the start of 2022 we asked Children in Scotland to conduct a pilot project to engage children and young people with administrative data, and how we use it. We were delighted that they recruited a group of children to work with, completing the project in April, and working with us to publish the report in June.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-reflections-engaging-children-young-people-about-data
 
Description BLOG - Unlocking criminal justice data 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Information on Data First programme can be found in this blog ; showcasing Data First work with respondents from Scotland to encourage similar work in Scotland. Data First is an ambitious data linkage programme led by the Ministry of Justice (MoJ) and funded by Administrative Data Research UK (ADR UK). The purpose is to unlock the potential of linked administrative data across the various MoJ agencies and other government departments for research to inform policies to improve the outcomes and experiences of justice users.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-unlocking-criminal-justice-data
 
Description BLOG - Why is working with administrative data important? 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact This blog reflects on Michelle Jamieson' s experience of training the latest members of ADR Scotland's Public Panel- explaining what administrative data is and why working with it is important.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-why-working-administrative-data-important
 
Description BLOG No. 9 - Final blog in the 'deaths at home' series 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This is the final blog from our blog series looking at increased deaths at home during the pandemic. This blog series has contributed to creating awareness of this issue.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/blog-no-9-final-blog-deaths-home-series
 
Description Being a scout 'is good for you': Ex-members of child activity clubs end up healthier as adults, study finds 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The scouting study we published - https://www.scadr.ac.uk/our-research/lifelong-health-and-wellbeing/positive-youth-development - was picked up by a range of media outlets and the lead researcher, Chris Dibben, was quoted.
Year(s) Of Engagement Activity 2022
URL https://www.dailymail.co.uk/health/article-11353313/Adults-scouts-guides-children-healthier-middle-a...
 
Description Blog: Celebrating public engagement: Highlights from ADR Scotland 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact In this blog, Harriet Baird, Impact and Knowledge Exchange Manager for the Scottish Centre for Administrative Data Research, discusses public engagement work from ADR Scotland to mark one year since the publication of the ADR UK Public Engagement Strategy.
Year(s) Of Engagement Activity 2022
URL https://www.adruk.org/news-publications/news-blogs/celebrating-public-engagement-highlights-from-adr...
 
Description Care Home Data Review - Stakeholder Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dr Iain Atherton attended the following workshop:

Care Home Data Review - Stakeholder Online Workshop: Interactive online workshop on Tuesday 14 March 2023. The aim of the workshop was to discuss the experiences of providers and users of care home data, looking across all national care home data collections (Quarterly Source Return, Care Home Census, CI Annual Return, Turas Safety Huddle Tool etc).
Year(s) Of Engagement Activity 2023
 
Description Deaths at home advisory group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact August 2022: This was the first advisory group meeting for the deaths at home during the pandemic study, led by health and social care lead Iain Atherton. It brought together key stakeholders from Government, third sector and academia to discuss and help shape this research.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/our-research/health-and-social-care/deaths-home-during-covid-19-pandemic-sco...
 
Description Does cycling to work benefit mental health? International Medical Geography Symposium 2022- Presentation given by Dr Laurie Berrie 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conference presentation given by Dr Laurie Berrie at the International Medical Geography Symposium.
Year(s) Of Engagement Activity 2022
 
Description Education Data in Scotland: Developing Data Linkage Research for Policy and Public Good 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This ADR Scotland event introduced a range of Scottish Government education datasets which can be used for data linkage projects. This session:
• provided an outline of the datasets available
• background perspective on how the data and supporting information has been enhanced
• showcased ideas and examples of research use and linkage
• highlighted future linkage opportunities around the first children's health and wellbeing census, LEO data, and Growing up in Scotland
• encouraged networking and community building in this area
Year(s) Of Engagement Activity 2023
 
Description Event - Unlocking criminal justice data: Findings from Data First 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact We held a successful online seminar with Data First. It was great to showcase what is possible when linking crime and justice data. Amy Wilson, ADR UK ambassador, was a respondent for the event and we are planning next steps including a smaller workshop.
Year(s) Of Engagement Activity 2022
URL https://www.scadr.ac.uk/news-and-events/event-unlocking-criminal-justice-data-findings-data-first
 
Description Fortnightly meetings with SCADR, ONS and Nursing & Midwifery Council 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Research lead Iain and Michelle meet colleagues in ONS (data) and NMC (nursing) on a fortnightly basis to discuss data sharing for research purposes. This has evolved throughout 2022-23 to data being ingested into ONS Secure Research Service with the view of data being analysed in 2023. This is a strong example of partnership working and knowledge exchange. It has been successful in coordinating and making data available to researchers to improve public services, namely around nursing and midwifery.
Year(s) Of Engagement Activity 2022,2023
 
Description Historic GIS Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact On 9th Jan 2023, the Scottish Historic Population Platform team successfully hosted a one day "Historic GIS Workshop" in Edinburgh. This workshop was a joint SHiPP/GB Atlas event with the purpose of sharing methodology between the two projects.
Year(s) Of Engagement Activity 2023
 
Description Holyrood Evidence Week - Policy Engagement meetings with representatives from the Scottish Parliament 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact 22-24.03.2022: As part of Holyrood Evidence Week, Professor Susan McVie had individual meetings with representatives from the Scottish Parliament (Charlie Pound, Jamie Greene MSP, Foysol Choudhary MSP). This was an innovative way of talking to parliamentary colleagues about data research.
Year(s) Of Engagement Activity 2022
 
Description IPDLN Conference Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Chris Dibben was Co-Director of the IPDLN conference with ADR UK director Emma Gordon. They led an organising committee and decision-making for this international data linkage conference held at University of Edinburgh in September 2022. Various SCADR colleagues were part of organising committee and events management. The conference was attended by over 400 researchers and colleagues from the UK and internationally, and is a vital conference in the field of data linkage and administrative data research, methodologies and ethics.
Year(s) Of Engagement Activity 2022
URL https://ipdln.org/2022-conference
 
Description IPDLN conference: Chris Dibben presented and contributed to 'Approaches to Creating Synthetic Data' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Chris Dibben presented and contributed to 'Approaches to Creating Synthetic Data' at the International Population Data Linkage Network (IPDLN) Conference 2022. The Conference promoted new and more effective methods and technology to analyse linked data sets are being regularly developed in our increasingly digitised world. The core of the IPDLN conference had been to facilitate a truly global exchange of ideas, findings, and expertise.
Year(s) Of Engagement Activity 2022
URL https://ipdln.org/2022-conference
 
Description IPDLN conference: Harriet Baird presented and contributed to 'Impact through Meaningful Engagements and Partnerships' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Harriet Baird presented and contributed to 'Impact through Meaningful Engagements and Partnerships' at the International Population Data Linkage Network (IPDLN) Conference 2022. The Conference promoted new and more effective methods and technology to analyse linked data sets are being regularly developed in our increasingly digitised world. The core of the IPDLN conference had been to facilitate a truly global exchange of ideas, findings, and expertise.
Year(s) Of Engagement Activity 2022
URL https://ipdln.org/2022-conference
 
Description IPDLN conference: Researcher Gillian Raab led a practical workshop 'Learning to Create Synthetic Data' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Researcher Gillian Raab led a practical workshop 'Learning to Create Synthetic Data' at the International Population Data Linkage Network (IPDLN) Conference 2022. The Conference promoted new and more effective methods and technology to analyse linked data sets are being regularly developed in our increasingly digitised world. The core of the IPDLN conference had been to facilitate a truly global exchange of ideas, findings, and expertise.
Year(s) Of Engagement Activity 2022
URL https://ipdln.org/2022-conference
 
Description Integration of health and social care in Scotland: progress so far 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A presentation given by Dr Zhiqiang Feng at the workshop by CSSA.
Year(s) Of Engagement Activity 2022
 
Description International group sponsored by UNECE on Synthetic Data 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact During all of 2022, Dr Gillian Raab has been part of an International group sponsored by UNECE producing a Starter Guide for Synthetic data. This Guide was published in January and the introduction cites Gillian as contributing to several chapters and the lead author of one.
Year(s) Of Engagement Activity 2022
URL https://unece.org/statistics/publications/synthetic-data-official-statistics-starter-guide
 
Description Introduction to Multilevel Modelling. SGSSS Summer School 2022 - Training course led by Dr Patricio Troncoso and Dr Ana Morales-Gómez 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Full day training course on Multilevel Modelling led by Dr Patricio Troncoso and Dr Ana Morales-Gómez. Primarily aimed at PhD students, but also attended by postdocs
Year(s) Of Engagement Activity 2022
URL https://social.sgsss.ac.uk/event/introduction-to-multilevel-modelling-full-day-course/
 
Description Marie Curie roundtable to inform Scottish Government Palliative Care strategy: supporting carers. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Dr Iain Atherton participated in Marie Curie roundtable and contributed insights from ongoing work.
Year(s) Of Engagement Activity 2022
 
Description Media interview with political journalist from The National 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Media interview with political journalist from The National resulting in two articles published on 31 March 2022.
Year(s) Of Engagement Activity 2022
URL https://www.thenational.scot/news/20031271.calls-dwp-end-cover-up-key-benefit-sanctions-data/
 
Description Media interview: Professor Nick Bailey was interviewed by The Mirror 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Professor Nick Bailey was interviewed by The Mirror which resulted in this article titled ''Major study on how benefit sanctions hit health is scrapped after DWP pulls out'' on 10 Oct 2022.
Year(s) Of Engagement Activity 2022
URL https://www.mirror.co.uk/news/politics/major-study-how-benefit-sanctions-28202766
 
Description Meetings of the Age of Criminal Responsible Data and Research Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meetings of the Age of Criminal Responsible Data and Research Group attended by Professor Susan McVie. Ongoing activity, which has resulted in discussions with Police Scotland about doing a data linkage project on children who experience contact with the law.
Dates: 10/02/2022, 27/04/2022, 03/05/2022, 01/02/2023
Year(s) Of Engagement Activity 2022,2023
 
Description Met Scottish Government regarding children's health and wellbeing census 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact In Sept 2022, this strategic meeting with a group of SCADR researchers and Jill from Scottish Government, identified a key new dataset - the first children's health and wellbeing census in Scotland. This led to the data being a priority for ADR Scotland sourcing and an invite to speak at our children's data event in 2023. This meeting established a working relationship with this new data owner and discussions around its great research potential.
Year(s) Of Engagement Activity 2022
 
Description NMC multi-departmental data meeting for the dynamics of the nursing workforce project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Michelle Jamieson (research fellow working within SCADR's Health and Social Care research programme) had a meeting with department heads at NMC to discuss supporting them with potential data issues on ongoing basis.
Year(s) Of Engagement Activity 2022
 
Description Northern Ireland Public Panel Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Harriet Baird sits on this advisory group as a public engagement expert, offering her experiences and insights from running the SCADR public panel. The advisory group involves colleagues from across the UK and shares best practice in this area, specifically related to public data panels and their establishment. The group met in January and March 2023.
Year(s) Of Engagement Activity 2023
 
Description ONS Safe Researcher Training Sessions - online 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact The ONS Safe Researcher Training is run approximately monthly online by SCADR and is a vital part of training for researchers in order for them to securely access de-identified administrative data. The number of people trained on each occasion varies from 10 to 20 people. The training took place on the following dates:
In 2022:
24th January 2022,
18th February 2022,
21st March 2022,
30th May 2022,
24th June 2022,
25th July 2022,
26th August 2022,
26th September 2022,
28th October 2022,
21st November 2022,
16th December 2022-
In 2023:
23rd January 2023,
24th February 2023
Year(s) Of Engagement Activity 2022,2023
URL https://www.scadr.ac.uk/administrative-data/training/ons-safe-researcher-training-course-ons-srt
 
Description Occupational differences in COVID-19 hospital admission and mortality between women and men in Scotland: A population-based study using linked administrative data, Presentation given by Dr Serena Pattaro at the European Network for Social Policy Analysis (ESPAnet) 2022 Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given by Dr Serena Pattaro at the ESPAnet's 20th Anniversary Conference 'Social Policy Change between Path Dependency and Innovation', Vienna, 12-16 September.
Year(s) Of Engagement Activity 2022
URL https://www.espanet-vienna2022.org/
 
Description Parliamentary debate on Impacts of Benefit Sanctions 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Serena Pattaro attended a partliamentary debate led by Kaukab Stewart, MSP, based on the findings from a review article published by SCADR researchers; 31 March 2022.
Year(s) Of Engagement Activity 2022
URL https://www.parliament.scot/chamber-and-committees/official-report/search-what-was-said-in-parliamen...
 
Description Podcast- Research Update: Were people who died at home less likely to attend hospital at the end of life during the Covid19 pandemic? 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Iain Atherton and Jan Savinc have provided us with SCADR's inaugural Research Update, discussing the progress of their research that focuses on 'Were people who died at home less likely to attend hospital at the end of life during the Covid19 pandemic?' .
Year(s) Of Engagement Activity 2023
 
Description Policy Engagement Meeting with Police Scotland and Scottish Government to agree data linkage strategy using policing data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Professor Susan McVie had a policy engagement meeting with Police Scotland and Scottish Government to agree data linkage strategy using policing data- 09/02/2023
Year(s) Of Engagement Activity 2023
 
Description Policy Engagement Meeting with colleagues from Marie Curie 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Dr Iain Atherton - SCADR research lead for Health and social care research programme - had an introductory meeting with Amy Dalrymple and Ellie Wagstaff from Marie Curie about their end of life research and how it can inform policy and fill evidence gaps.
Year(s) Of Engagement Activity 2022
 
Description Policy Engagement Meeting with colleagues from Scottish Government 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr. Dr Serena Pattaro - Dr. Gina Anghelescu had an online meeting with colleagues from Labour Market and Employability Analysis & Research, Scottish Government, to discuss SCADR project on "Labour market transitions for disadvantaged groups using linked administrative data"; 18 January 2023.
Year(s) Of Engagement Activity 2023
 
Description Policy Engagement Meeting with colleagues from Scottish Government 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Iain Atherton (Research lead for Health and social care research programme) met with Christine McGregor about social data that Scottish Government colleagues worked with previously.
Year(s) Of Engagement Activity 2022
 
Description Policy Engagement Meeting with colleagues from Social Security Scotland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Prof. Nick Bailey- Dr. Serena Pattaro- Dr. Gina Anghelescu had an online meeting with colleagues from Social Security Scotland (SSS) and University of Glasgow to discuss SSS' research priority areas and potential collaboration; 10 August 2022.
Year(s) Of Engagement Activity 2022
 
Description Policy Engagement Meetings with Scottish Government about violence reduction 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Professor Susan McVie had two meetings with Scottish Government (6/4/2022 and 6/10/2022) about violence reduction, in relation to development of the new Violence Reduction Framework, which included presenting findings from SCADR research.
Year(s) Of Engagement Activity 2022
 
Description Policy briefing meeting on Impacts of Benefit Sanctions with Kaukab Stewart, MSP 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Prof. Nick Bailey and Dr Serena Pattaro had a policy briefing meeting with Kaukab Stewart, MSP, and her team on the impacts of benefit sanctions (29 March), ahead of Parliamentary Debate led by Kaukab Steward on 31 March 2022.
Year(s) Of Engagement Activity 2022
URL https://www.scottishparliament.tv/meeting/members-business-s6m-03259-kaukab-stewart-impacts-of-benef...
 
Description Policy engagement meeting with Geospatial team at ADR Scotland 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dr Iain Atherton had a policy engagement meeting with Alex Ramage to discuss geospatial data related to the Nursing workforce and Deaths at home during Covid in Scotland projects.
Year(s) Of Engagement Activity 2022
 
Description Policy engagement meeting with Research Data Scotland on predicting final 90 days of life 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Iain Atherton had a policy engagement meeting with Roger Halliday and Duncan Buchanan at Research Data Scotland to discuss the potential for Scottish mortality prediction using administrative data and survey data replicating work in Canada and New Zealand.
Year(s) Of Engagement Activity 2023
 
Description Policy meeting with Scottish Government on end of life care 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Research lead, Iain Atherton, met the Deputy Chief Scientific Adviser and Clinical Lead for Palliative Care to discuss our end of life research and how we can inform latest policy and strategy in Scotland.
Year(s) Of Engagement Activity 2023
 
Description Political engagement activity: Question about the benefits sanction research using DWP data 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact There was a written parliamentary question for DWP which was raised by Jonathan Ashworth MP on 8 Sept 2022, and answered on 29 Sept 2022 around the benefits sanction research using DWP data.
Year(s) Of Engagement Activity 2022
URL https://questions-statements.parliament.uk/written-questions/detail/2022-09-08/49671
 
Description Presentation ' How private is synthetic data?' by Dr Gillian Raab at a workshop run by HDR UK in UCL in London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 16th June 2022 - Gillian Raab was invited to give a presentation at a workshop run by HDR UK in UCL in London.

Presentation Title: How private is synthetic data?
Year(s) Of Engagement Activity 2022
 
Description Presentation by Eilidh Garrett at SCADR Scottish Historic Population Platform (SHiPP) update meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Workshop presentation by Eilidh Garrett: 'From Deathbed to Database: coding causes of death with ICD10h' at SCADR Scottish Historic Population Platform (SHiPP) update meeting.
Year(s) Of Engagement Activity 2022
 
Description Presentation of Napier's SCADR team to the ENU Chancellor 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation of ongoing SCADR work by colleagues employed at ENU with the view of establishing a research centre in the future.
Year(s) Of Engagement Activity 2022
 
Description Presentation to Scottish Government on Longitudinal Looked After Children Dataset by Dr Gillian Raab, Dr Joanna Soraghan and Cecilia MacIntyre 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation to Scottish Government and Local Authority Analysts on the development and benefits of the dataset, at the Looked After Children Statistics User Forum by Dr Gillian Raab, Dr Joanna Soraghan and Cecilia MacIntyre. This enhanced understanding among local and national government staff on the research possibilities provided by high-quality individual-level administrative data.
Year(s) Of Engagement Activity 2022
 
Description Presentation to the ADR UK Network Symposium: Crime and Justice 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Professor Susan McVie and Dr Ana Morales-Gómez gave a presentation to the ADR UK Network Symposium: Crime and Justice 24/04/2022 about their violence and vulnerability research.
Year(s) Of Engagement Activity 2022
 
Description Presentation to the Data Intelligence Network Ethics Panel given by Professor Susan McVie 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Professor Susan McVie gave a presentation to the Data Intelligence Network Ethics Panel on 17/11/2022. The panel is exploring and testing the participants' perception of using data about citizens in the public sector. Susan presented on her Covid-19 research on covid fines and a case study on this.
Year(s) Of Engagement Activity 2022
 
Description Presentation to the SCADR Research Meeting on Covid Fixed penalty notices 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation to the SCADR Research Meeting on Covid Fixed Penalty Notice work given by Professor Susan McVie (28/04/2022).
Year(s) Of Engagement Activity 2022
 
Description Press release - Scouts and Guides boosts later life health 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The University of Edinburgh did a press release for the findings of the scouts and guides study. It was widely picked up in the media, including:
The Times - https://www.thetimes.co.uk/article/scouts-and-guides-earn-health-badge-in-middle-age-knjx7pr53
The Express - https://www.express.co.uk/life-style/health/1687838/scouts-better-health-middle-age
It was also retweeted by Bear Grylls.
Year(s) Of Engagement Activity 2022
URL https://www.ed.ac.uk/news/2022/scouts-and-guides-boosts-later-life-health
 
Description Public Panel Session - 01/06/2022 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact ADR Scotland run a public panel to discuss data research and issues with members of the public.

1st June 2022
In this session, three projects were presented:
• Children's care project, Mirjam Alik (University of Glasgow)
• Violence and vulnerability, Susan McVie and Ana Morales - presenting findings and debate about health and crime data
• UK-wide public dialogue exploring public perceptions of 'public good' use of data and statistics, Shayda Kashef, ADR UK
Year(s) Of Engagement Activity 2022
 
Description Public Panel Session - 29/09/2022 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact ADR Scotland run a public panel to discuss data research and issues with members of the public.

29th September 2022
• Labour market transitions and progression for disadvantaged populations, University of Glasgow - Nick Bailey
• Unique property reference number (UPRN) and research data, University of Edinburgh - Chris Dibben
Year(s) Of Engagement Activity 2022
 
Description Public Panel Session- 06/02/2023 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact ADR Scotland run a public panel to discuss data research and issues with members of the public.

6th February 2023
• Understanding the health and employment support needs of the Scottish working age population - Vittal Katikireddi, University of Glasgow and Serena Pattaro, SCADR
• Proposal to create a joint public panel with Research Data Scotland in 2023 - Layla Robinson, Research Data Scotland
Year(s) Of Engagement Activity 2023
 
Description RDS Synthetic Data Working Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Gillian Raab and Cecilia MacIntyre from ADR Scotland are part of this working group contributing their expertise on synthetic data, sharing learnings and developing RDS strategy and approach with other data and research colleagues. The group aims to meet every 2 months.
Year(s) Of Engagement Activity 2022,2023
 
Description RDS synthetic data forum 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dr Iain Atherton participated in the RDS synthetic data forum, discussing aspects of synthetic data availability and use by researchers, and helping to inform RDS' future work in this area.
Year(s) Of Engagement Activity 2022
URL https://researchdata.scot/sites/default/files/2022-12/RDS%20-%20Synthetic%20Data%20Workshop.pdf
 
Description SAIL Scientific External Advisory Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Chris Dibben is part of the SAIL Scientific External Advisory Board. They advise the SAIL Management Board on the quality, direction, scope, relevance and focus of SAIL's work, and review its achievements towards its mission. Chris contributes a long-term expertise in data linkage research, methods and governance.
Year(s) Of Engagement Activity 2022
URL https://saildatabank.com/meeting-of-the-sail-scientific-external-advisory-board/
 
Description Scottish Data for Research Alliance 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Chris Dibben and Renata Samulink are part of this group to help steer the data system in Scotland. The alliance began meeting in October 2022 and meet roughly every six weeks.
Year(s) Of Engagement Activity 2022,2023
 
Description Scottish Historic Population Platform (SHiPP) workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact SCADR hosted a Scottish Historic Population Platform (SHiPP) workshop on 28th June 2022. This hybrid workshop gathered experts from various parts of the world. Some of the topics included: The automatic coding pipelines for occupations & causes of death, SHiPP geocoding update, and Efficient Population Record Linkage with Temporal & Spatial Constraints.
Year(s) Of Engagement Activity 2022
 
Description Scottish Police Authority Roundtable event on mental health and policing 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact On 9/12/2022, Professor Susan McVie attended Scottish Police Authority Roundtable event on mental health and policing contributing her expertise to the discussion.
Year(s) Of Engagement Activity 2022
URL https://www.spa.police.uk/strategy-performance/joint-evidence-and-research-roundtables/mental-health...
 
Description Spatial disparities of COVID-19 mortality and the socioeconomic and environmental determinants in England: an analysis over two waves- Conference presentation given by Dr Zhiqiang Feng at the International Medical Geography Symposium 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conference presentation given by Dr Zhiqiang Feng at the International Medical Geography Symposium
Year(s) Of Engagement Activity 2022
URL https://imgs2022.org/
 
Description Strategic meeting with NHS Education Scotland 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact March 2023 - Health and Social Care lead, Iain, met Colin Tilley from NES to discuss nursing workforce research and next steps in Scotland with registrant data.
Year(s) Of Engagement Activity 2023
 
Description Synthetic Data symposium 2022 - Keynote presentation given by Dr Gillian Raab and Dr Beata Nowok 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact 29th September 2022 - Synthetic Data symposium at The Hague - Gillian Raab and Beata Nowok were invited to give the keynote presentation at a symposium organised by DUO, the branch of the Dutch Government who handle and disseminate data from their education systems. It was the main academic presentation.
Year(s) Of Engagement Activity 2022