MRC Centre of Epidemiology for Child Health

Lead Research Organisation: University College London
Department Name: Institute of Child Health

Abstract

Children face new and different threats to their health and wellbeing through conditions such as obesity that are becoming more frequent and are unlikely to have a simple cause. At the same time advances in scientific knowledge and clinical medicine have great potential to improve the health of children and their families. Health during childhood and later life is influenced by social, biological and emotional environments which act and change throughout pregnancy, childhood and adolescence, unique periods of growth and development. Thus research to understand the causes, outcome and prevention of these conditions requires complex statistical analyses and the development of new methods to investigate the role of genetic predisposition and environment and to support follow up to adult life. This grant for a MRC Centre of Epidemiology for Child Health will support population scientists and biostatisticians working in this field to develop these new methods, to find better ways of translating scientific evidence to guide policies for children and to carry out policy-relevant research. It will also provide training for scientists of the future who wish to improve children’s health and well-being through high quality scientific research.

Technical Summary

The proposed Collaborative Centre of Epidemiology for Child Health addresses an area of strategic importance ? the need to use research to inform strategies to improve the health and well being of children both during their childhood and their adult life. It links scientists who, by applying their understanding of the changes in health patterns and socio-demographic circumstances to the current policy context, can design and carry out research to inform such strategies. We will achieve this by forging new academic collaborations that bring together scientists from epidemiology, statistics, molecular and clinical genetics, informatics, and paediatric pharmacy. Through this unique collaboration we will address contemporary questions about children?s health and illness that are central to clinical practice, and to public health by conducting, and contributing to the application of, high quality interdisciplinary research. The Centre will develop capacity and sustainable expertise in relation to key methodological areas that have relevance to this research agenda, including statistical methods, genetic epidemiology, record linkage and policy research. These methodological developments will add value to our existing strong and internationally recognised research programmes in infections of the mother, her fetus and child; lifecourse and intergenerational epidemiology; and inherited, congenital and developmental disorders. They will also underpin new areas of research to be developed, including those relevant to the safety of medicines for children, the safety of new reproductive technologies for children, the causes and outcomes of sensorineural hearing loss in childhood, and the use of research in policy making. The Centre will engage patient groups, parents and young people in its mission at project, programme and Centre level. Our communication strategy will include the creation of an independent source of scientific expertise on children?s health for a range of key stakeholders, including parents. We will build research capacity by providing a strong and world class training environment in epidemiology, biostatistics and academic public health as applied to children.

Organisations

Publications

10 25 50
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Alam N (2012) Body fat abnormality in HIV-infected children and adolescents living in Europe: prevalence and risk factors. in Journal of acquired immune deficiency syndromes (1999)

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Atherton K (2008) Loss and representativeness in a biomedical survey at age 45 years: 1958 British birth cohort. in Journal of epidemiology and community health

 
Description Child death review (RG)
Geographic Reach National 
Policy Influence Type Citation in other policy documents
 
Description Citation in NICE guidance (CL)
Geographic Reach National 
Policy Influence Type Citation in other policy documents
 
Description Infomation Governance Review Evidence Session on Research
Geographic Reach National 
Policy Influence Type Gave evidence to a government review
 
Description Information Governance Review Evidence Session on Research (CD)
Geographic Reach National 
Policy Influence Type Gave evidence to a government review
 
Description MRC HO Panel to review Data Management Plans & Guidance (TCa)
Geographic Reach National 
Policy Influence Type Membership of a guidance committee
 
Description Plan for Growth (Health Research Regulatory Agency) (CD)
Geographic Reach National 
Policy Influence Type Citation in other policy documents
 
Description Tackling Physical Inactivity APPG report
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://parliamentarycommissiononphysicalactivity.files.wordpress.com/2014/04/apcopa-final.pdf
 
Description Audit grant - Hepatitis B in pregnancy in England
Amount £78,325 (GBP)
Organisation Public Health England 
Sector Public
Country United Kingdom
Start 01/2014 
End 12/2015
 
Description BHF Project Grant (Vitamin D GWAS - EH)
Amount £217,599 (GBP)
Organisation British Heart Foundation (BHF) 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2010 
End 03/2013
 
Description Centre for Health service and Academic Partnership in Translational eHealth Research (CHAPTER) Research Grant (RG, CD, HB)
Amount £113,526 (GBP)
Funding ID MR/K006584/1 
Organisation Medical Research Council (MRC) 
Department Medical Research Council (MRC) Centre Cambridge
Sector Public
Country United Kingdom
Start 03/2013 
End 02/2018
 
Description Clinical Cloud-based Large-scale Open User Data Store (C-CLOUD) TCa & (MCB)
Amount £11,876 (GBP)
Funding ID TSB ref: 24160-170177 
Organisation Innovate UK 
Sector Public
Country United Kingdom
Start 01/2013 
End 09/2013
 
Description DH - vulnerable children (RG)
Amount £148,961 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 08/2008 
End 03/2010
 
Description DH PRP (BPSU - CD)
Amount £825,000 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2009 
End 03/2012
 
Description ES/J007501/1 The UK Birth Cohort Study of environment, development, health and wellbeing: interim contract
Amount £985,898 (GBP)
Funding ID ES/J007501/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 07/2011 
End 12/2012
 
Description ESRC Centre Grant (CD, JR, LL) (Cohorts and Longitudinal Studies Enhancement Resources)
Amount £246,042 (GBP)
Funding ID ES/K000357/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2013 
End 09/2017
 
Description ESRC Centre grant (RG) (ADRC-England)
Amount £1,304,379 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2013 
End 09/2018
 
Description ESRC Project grant (RG) (Estimating matching variable error rates and match probabilities for linkage of large administrative data sources).
Amount £159,055 (GBP)
Organisation University of Southampton 
Department ESRC National Centre for Research Methods
Sector Charity/Non Profit
Country United Kingdom
Start 06/2013 
End 09/2014
 
Description ESRC Research Grant (CD) (Life Study)
Amount £2,220,688 (GBP)
Funding ID ES/L002507/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 01/2013 
End 12/2013
 
Description ESRC Research Grant (CD) (Life Study)
Amount £5,685,140 (GBP)
Funding ID ES/L002353/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 01/2013 
End 11/2019
 
Description HPA Project Grant (NSHPC)
Amount £514,133 (GBP)
Organisation Public Health England 
Sector Public
Country United Kingdom
Start 04/2008 
End 03/2011
 
Description HPA Project Grant (UA; MC-B)
Amount £316,221 (GBP)
Organisation Public Health England 
Sector Public
Country United Kingdom
Start 04/2009 
End 03/2011
 
Description HTA - Central venous catheter infections
Amount £70,076 (GBP)
Organisation National Institute for Health Research 
Department Health Technology Assessment Programme (HTA)
Sector Public
Country United Kingdom
Start 04/2008 
End 12/2009
 
Description JISC (SERPent TC)
Amount £44,971 (GBP)
Organisation Jisc 
Sector Public
Country United Kingdom
Start 01/2010 
End 10/2010
 
Description MRC Centenary Awards
Amount £30,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 01/2012 
End 12/2013
 
Description MRC Grant (China Workshop - RC)
Amount £15,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 07/2009 
End 10/2010
 
Description MRC Industrial CASE 2011 competition: 4 year PhD studentship (TC, CD)
Amount £117,308 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 01/2012 
End 12/2016
 
Description MRC PhD Studentship (JW)
Amount £89,870 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 10/2008 
End 09/2012
 
Description MRC Project Grant (Vitamin D GWAS study - EH)
Amount £424,115 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 07/2008 
End 06/2011
 
Description MRC Public Engagement Fund (VT)
Amount £6,325 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 08/2012 
End 10/2012
 
Description Medical Research Council Public Engagement in Science Project Grant (JR)
Amount £6,392 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 08/2012 
End 01/2013
 
Description NIHR - HTA trial (CATCH - RG)
Amount £1,712,750 (GBP)
Organisation National Institute for Health Research 
Department Health Technology Assessment Programme (HTA)
Sector Public
Country United Kingdom
Start 03/2010 
End 02/2013
 
Description NIHR - MEND (CL)
Amount £417,845 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 12/2010 
End 11/2012
 
Description NIHR - Visual impairment (PC)
Amount £4,500 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 01/2010 
End 03/2011
 
Description NIHR Project Grant (RG) (Risks and benefits of psychotropic medication in pregnancy)
Amount £243,444 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 05/2013 
End 10/2014
 
Description NIHR via BMRC (visual impairment - PC)
Amount £4,500 (GBP)
Organisation National Institute for Health Research 
Department UCLH/UCL Biomedical Research Centre
Sector Public
Country United Kingdom
Start 01/2010 
End 12/2010
 
Description National Patient Safety Agency (NPSA) Clinical Outcome Review Programme (RG)
Amount £264,719 (GBP)
Organisation NHS England 
Department National Patient Safety Agency (NPSA)
Sector Charity/Non Profit
Country United Kingdom
Start 01/2011 
End 01/2013
 
Description Newborn Screening Programme Centre UK Collaborative Study of Congenital Hypothyroidism (RK)
Amount £129,608 (GBP)
Organisation Public Health England 
Department UK National Screening Committee
Sector Public
Country United Kingdom
Start 03/2011 
End 03/2012
 
Description Public Health Research Consortium - Consortium Management Group (CL)
Amount £47,210 (GBP)
Organisation Public Health Research Consortium 
Sector Public
Country United Kingdom
Start 04/2011 
End 03/2016
 
Description Research Data Management (TC)
Amount £99,120 (GBP)
Organisation Jisc 
Sector Public
Country United Kingdom
Start 10/2011 
End 09/2012
 
Description Support to UCL Partners Biostatistics Network Symposium (MG / MCB)
Amount £1,825 (GBP)
Organisation National Institute for Health Research 
Department UCLH/UCL Biomedical Research Centre
Sector Public
Country United Kingdom
Start 10/2012 
End 11/2012
 
Description Travel award: Paediatric Workshop, Rome (CF)
Amount £636 (GBP)
Organisation University College London 
Sector Academic/University
Country United Kingdom
Start 07/2011 
End 08/2011
 
Description UCL graduate school travel award: Royal Statistical Society Conference, Newcastle (MG)
Amount £248 (GBP)
Organisation University College London 
Sector Academic/University
Country United Kingdom
Start 09/2013 
End 10/2013
 
Description Wellchild Research Training Fellowship (CTo)
Amount £89,998 (GBP)
Organisation WellChild 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2011 
End 09/2013
 
Description Wellcome Trust (record linkage)
Amount £393,929 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 06/2010 
End 05/2013
 
Description Wellcome Trust - Enhanced IT for UK HIV databases
Amount £9,131 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2009 
End 04/2012
 
Description Wellcome Trust Value in People Award (CTo)
Amount £8,060 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 07/2011 
End 09/2011
 
Title Aofamilies (MG, MCB) 
Description Open-source statistical software for analysis of binary variables and bounded outcomes using Aranda-Ordaz transformations 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact Provides easy application of advanced statistical methods to applied research 
 
Title Data Management Plan Editor (TCa) 
Description Editor application to create structured data management plans. 
Type Of Material Improvements to research infrastructure 
Year Produced 2013 
Provided To Others? Yes  
Impact The application has provided a tool to support the creation and management of research data management plans but it is too early to demonstrate specific impact. 
URL http://www.openmetadata.org/site/?page_id=373
 
Title ISMS Explorer (TCa) 
Description Browser and editor application that is designed to work in conjunction with documentation relating to an ISO 27001 compliant Information Security management System. 
Type Of Material Improvements to research infrastructure 
Year Produced 2013 
Provided To Others? Yes  
Impact To early to say 
 
Title Metadata catalogue 
Description Metadata catalogue for epidemiological research studies, several of which have been funded by the MRC at some point (e.g. national HIV surveillance and research data, national congenital heart defects database, Whitehall II, and UKCTOCS study). 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact Common framework developed for use in other studies. Piloting and development of training in DDI and DDX metadata standards. Searchable databases for potential users. Capability to develop metadata for new UK Birth Cohort Study. 
 
Title NHS Information Governance Toolkit (TCa) 
Description Successfully sought accreditation with the NHS IG Toolkit (level 2) under the Hosted Secondary Use Project/Team View. 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact epiLab-SS was the first research service in Ucl to be accredited with the NHS IG Toolkit and we worked closely with AISC and other UCL stakeholders to facilitate the adoption of the IG Toolkit across other services at UCL. 
 
Title epiLab 
Description Secure data centre environment accessible by all users in the Centre through a virtual desktop. 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact Secure data platform, enhanced computing facility, ability to meet information governance standards to a level sufficient for honest broker functions, support for large-scale computation (bioinformatics and genetic epidemiology), capability to manage new UK Birth Cohort Study data. 
 
Title epiLab-SS (TCa) 
Description Development and certification (ISO-27001) of a secure cloud VDI environment to be used as a service for management of sensitive or identifiable data. 
Type Of Material Improvements to research infrastructure 
Year Produced 2012 
Provided To Others? Yes  
Impact This is the first service of its kind in the UK, offering a scalable model of secure data processing in a private cloud, paving the way for better integration of data with NHS and other government agencies. 
 
Title lqmm (MG) 
Description Open-source statistical software for quantile regression analysis of clustered data 
Type Of Material Improvements to research infrastructure 
Year Produced 2011 
Provided To Others? Yes  
Impact Provides easy application of advances statistical methods to applied research 
 
Title pawacc (MG) 
Description Open-source statistical software for acceleromerty data processing 
Type Of Material Improvements to research infrastructure 
Year Produced 2012 
Provided To Others? Yes  
Impact Novel package for fast processing and storing of large numbers of biaxial and triaxial accelerometer files 
 
Title MCS accelerometry database 
Description Dataset of accelerometry obtained on more than 6000 7 year old Millennium Cohort Study members 
Type Of Material Database/Collection of data 
Year Produced 2013 
Provided To Others? Yes  
Impact Creation of data accessible via UK data service on physical activity and sedentary behaviours. Publication of papers which attracted much public and policy interest. Resource for secondary research. Open source software to analyse data. The MRC centre provided the epilab infrastructure and statistical capability to create these resources. 
URL http://discover.ukdataservice.ac.uk/catalogue/?sn=7238&type=Data%20catalogue
 
Title MCS oral fluid database 
Description Oral fluid data analysed for infections with varicella zoster, norovirus and EpsteinBarr virus and with IgG measures in more than 12000 3 year old Millennium cohort members 
Type Of Material Database/Collection of data 
Year Produced 2012 
Provided To Others? Yes  
Impact Creation of unique resource of oral fluid data in context of longitudinal data resource, experience of non-invasive biosample collection in preschool aged children which has been transferred to Life Study; the MRC Centre provided the epilab infrastructure for data analysis 
URL http://discover.ukdataservice.ac.uk/catalogue/?sn=6993&type=Data%20catalogue
 
Description Administrative Data Research Centre England (RG) 
Organisation London School of Hygiene and Tropical Medicine (LSHTM)
Department Faculty of Public Health and Policy
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-I and deputy director for the centre and coordinator for the Bloomsbury group.
Collaborator Contribution Co-investigators
Impact -
Start Year 2013
 
Description Administrative Data Research Centre England (RG) 
Organisation University College London
Department Research Department of Epidemiology and Public Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-I and deputy director for the centre and coordinator for the Bloomsbury group.
Collaborator Contribution Co-investigators
Impact -
Start Year 2013
 
Description Administrative Data Research Centre England (RG) 
Organisation University of Southampton
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-I and deputy director for the centre and coordinator for the Bloomsbury group.
Collaborator Contribution Co-investigators
Impact -
Start Year 2013
 
Description Aranda-Ordaz Transformations (MG, MCB) 
Organisation Imperial College London
Department Faculty of Medicine
Country United Kingdom 
Sector Academic/University 
PI Contribution Statistical and programming expertise, drafting papers
Collaborator Contribution -
Impact Open-source software. Drafting papers
Start Year 2012
 
Description BRISSKIT (TCa) 
Organisation University of Leicester
Department Biomedical Research Infrastructure Software Service kit (BRISSkit)
Country United Kingdom 
Sector Academic/University 
PI Contribution We are acting as a pilot for a University Modernisation Fund sponsored cloud services project that aims to provide open source software tools for medical researchers
Collaborator Contribution 36 days programming and support
Impact BRISSKIT HackDay resulted in the team winning top prize for best hack
Start Year 2012
 
Description Canine as a genetic model for human complex disease research (XK) 
Organisation University of Alaska
Department Institute of Arctic Biology
Country United States 
Sector Academic/University 
PI Contribution Initializing, co-ordinating the project, manuscript preparation and publication
Collaborator Contribution Data and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyDataData
Impact Publications - PMID:21070295
Start Year 2008
 
Description Canine as a genetic model for human complex disease research (XK) 
Organisation University of Edinburgh
Department Royal School of Veterinary Studies
Country United Kingdom 
Sector Academic/University 
PI Contribution Initializing, co-ordinating the project, manuscript preparation and publication
Collaborator Contribution Data and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyDataData
Impact Publications - PMID:21070295
Start Year 2008
 
Description Canine as a genetic model for human complex disease research (XK) 
Organisation University of Helsinki
Department Department of Medical Genetics
Country Finland 
Sector Academic/University 
PI Contribution Initializing, co-ordinating the project, manuscript preparation and publication
Collaborator Contribution Data and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyDataData
Impact Publications - PMID:21070295
Start Year 2008
 
Description Canine as a genetic model for human complex disease research (XK) 
Organisation University of Liverpool
Department School of Veterinary Science Liverpool
Country United Kingdom 
Sector Academic/University 
PI Contribution Initializing, co-ordinating the project, manuscript preparation and publication
Collaborator Contribution Data and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyDataData
Impact Publications - PMID:21070295
Start Year 2008
 
Description Canine as a genetic model for human complex disease research (XK) 
Organisation University of Manchester
Department School of Medicine Manchester
Country United Kingdom 
Sector Academic/University 
PI Contribution Initializing, co-ordinating the project, manuscript preparation and publication
Collaborator Contribution Data and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyData and expertise on canine genetics, genomics and epidemiologyDataData
Impact Publications - PMID:21070295
Start Year 2008
 
Description Centre for Health service and Academic Partnership in Translational eHealth Research (CHAPTER) (RG, CD) 
Organisation University College London
Department Research Department of Epidemiology and Public Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-I and lead for MCH theme. On senior management team.
Collaborator Contribution Centre lead
Impact -
Start Year 2012
 
Description Child Health Review UK- Child Death Overview (RG) 
Organisation Royal College of Paediatrics and Child Health (RCPCH)
Country United Kingdom 
Sector Multiple 
PI Contribution RG is PI for the child death overview- a retrospective anaysis of what children die of within the four UK countries.
Collaborator Contribution Financial
Impact Papers in preparation. Paper in PlosOne published 23874585. Final report published.
Start Year 2011
 
Description Child-Reported Outcomes and Experience Working Group (VT, RK, JR) 
Organisation Great Ormond Street Hospital (GOSH)
Country United Kingdom 
Sector Hospitals 
PI Contribution Leading and undertaking research, dissemination of research, writing reports and research papers, organising and running a multidisciplinary meeting, securing further funding, patient and public involvement. Securing further funding, patient and public engagement
Collaborator Contribution Leading and undertaking research (systematic reviews, qualitative data analyses), dissemination of research, writing reports and research papers, organising and runing a multidisciplinary meeting, securing further funding, patient and public involvement.
Impact "Publications: (1) PMID 23743433; (2) Tadic V, et al. (2012) DOI:http://dx.doi.org/10.5334/512f8b249ab13; (3) Tadic V, et al. (2012) URL:http://discovery.ucl.ac.uk/1397058/; (4) Knowles RL, et al. DOI:10.1017/S104795111300036X; (5) Knowles RL, et al. (2013) 6th Europaediatrics conference presentation. A mixed methods study investigating narrative of illness experience in children with congenital heart defects (manuscript in preparation). An MRC Public Engagement award (£6,393). Establishment of a mutiprofessional PROM/PREM network of academics, clinicians and service users. Establishement of an online support system for the PROM/PREM network (www.ucl.ac.uk/childproms, and LISTSERV UCL maillist: ich-promgroup@ucl.ac.uk)."
Start Year 2011
 
Description Child-Reported Outcomes and Experience Working Group (VT, RK, JR) 
Organisation University College London
Department Institute of Child Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Leading and undertaking research, dissemination of research, writing reports and research papers, organising and running a multidisciplinary meeting, securing further funding, patient and public involvement. Securing further funding, patient and public engagement
Collaborator Contribution Leading and undertaking research (systematic reviews, qualitative data analyses), dissemination of research, writing reports and research papers, organising and runing a multidisciplinary meeting, securing further funding, patient and public involvement.
Impact "Publications: (1) PMID 23743433; (2) Tadic V, et al. (2012) DOI:http://dx.doi.org/10.5334/512f8b249ab13; (3) Tadic V, et al. (2012) URL:http://discovery.ucl.ac.uk/1397058/; (4) Knowles RL, et al. DOI:10.1017/S104795111300036X; (5) Knowles RL, et al. (2013) 6th Europaediatrics conference presentation. A mixed methods study investigating narrative of illness experience in children with congenital heart defects (manuscript in preparation). An MRC Public Engagement award (£6,393). Establishment of a mutiprofessional PROM/PREM network of academics, clinicians and service users. Establishement of an online support system for the PROM/PREM network (www.ucl.ac.uk/childproms, and LISTSERV UCL maillist: ich-promgroup@ucl.ac.uk)."
Start Year 2011
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation The British Library
Department Scholarship and Collections
Country United Kingdom 
Sector Public 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University College London
Department Institute of Child Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University College London
Department MRC Unit for Lifelong Health and Ageing
Country United Kingdom 
Sector Public 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University College London
Department Quantitative Social Science
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University of Bristol
Department School of Social and Community Medicine
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University of Essex
Department Institute for Social and Economic Research, Essex
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University of Leicester
Department Department of Health Sciences
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University of Southampton
Department MRC Lifecourse Epidemiology Unit
Country United Kingdom 
Sector Public 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Cohort Resources Facility (CLOSER) (CD, JR) 
Organisation University of St Andrews
Department School of Geography & Sustainable Development
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership team- high level strategic implementation and oversight; leadership on scientific programme of one of 7 workstreams offering a cross-cohort comparison on visual function and refractive error; advising on development of unified data management platform
Collaborator Contribution Through our membership on the CLOSER leadership team, and contribution to their workstream packages, we are well networked to other longitudinal studies and benefit from their experience
Impact Interdisciplinary. Scientific programme on eyes and vision to start in 2014
Start Year 2012
 
Description Crohn's disease - statistical consulting (MG) 
Organisation University of Udine
Department Department of Clinical and Experimental Pathology and Medicine
Country Italy 
Sector Academic/University 
PI Contribution Statistical and programming expertise. Drafting and publishing papers.
Collaborator Contribution -
Impact Publications - PMID: 20139033; 21108595; 22252267
Start Year 2009
 
Description Data Management Planning for Secure Services (DMP-SS) 
Organisation Metadata Technology, Ltd.
Country United Kingdom 
Sector Private 
PI Contribution Principal investigator and project management- devised the concept and project managaed a project aimed at demonstrating a mechanism for structured collection of data management plans in support of secure services
Collaborator Contribution Provision of use case for assessment within the development of the DMP-SS project and expertise in data management of cohort studies. Expertise in metadata standards and software development resource. Expertise in research data management best practice. Developments of suite of software for structured markup of data management plans and web based catalogue. Guidance on national strategy for data management planning and liasison with DMPOnline service
Impact The project led to the successful certification of epilab-SS to ISO27001 AND THE nhs ig Toolkit. Also, a suite of metadata tools were developed for the creation of structured data management plans (see: http://www.openmetadata.org/site/?page_id=373 ) and a separate application called ISMSExplorer was developed to assist with the review of information security management systems that comply with IS027001 (see: http://ismsexplorer.codeplex.com/). Both software products are open source.
Start Year 2011
 
Description Data Management Planning for Secure Services (DMP-SS) 
Organisation University College London
Department MRC Unit for Lifelong Health and Ageing
Country United Kingdom 
Sector Public 
PI Contribution Principal investigator and project management- devised the concept and project managaed a project aimed at demonstrating a mechanism for structured collection of data management plans in support of secure services
Collaborator Contribution Provision of use case for assessment within the development of the DMP-SS project and expertise in data management of cohort studies. Expertise in metadata standards and software development resource. Expertise in research data management best practice. Developments of suite of software for structured markup of data management plans and web based catalogue. Guidance on national strategy for data management planning and liasison with DMPOnline service
Impact The project led to the successful certification of epilab-SS to ISO27001 AND THE nhs ig Toolkit. Also, a suite of metadata tools were developed for the creation of structured data management plans (see: http://www.openmetadata.org/site/?page_id=373 ) and a separate application called ISMSExplorer was developed to assist with the review of information security management systems that comply with IS027001 (see: http://ismsexplorer.codeplex.com/). Both software products are open source.
Start Year 2011
 
Description Data Management Planning for Secure Services (DMP-SS) 
Organisation University of Edinburgh
Department Digital Curation Centre (DCC)
Country United Kingdom 
Sector Academic/University 
PI Contribution Principal investigator and project management- devised the concept and project managaed a project aimed at demonstrating a mechanism for structured collection of data management plans in support of secure services
Collaborator Contribution Provision of use case for assessment within the development of the DMP-SS project and expertise in data management of cohort studies. Expertise in metadata standards and software development resource. Expertise in research data management best practice. Developments of suite of software for structured markup of data management plans and web based catalogue. Guidance on national strategy for data management planning and liasison with DMPOnline service
Impact The project led to the successful certification of epilab-SS to ISO27001 AND THE nhs ig Toolkit. Also, a suite of metadata tools were developed for the creation of structured data management plans (see: http://www.openmetadata.org/site/?page_id=373 ) and a separate application called ISMSExplorer was developed to assist with the review of information security management systems that comply with IS027001 (see: http://ismsexplorer.codeplex.com/). Both software products are open source.
Start Year 2011
 
Description Development of statistical methods for longitudinal and other clustered data (MG) 
Organisation Karolinska Institute
Department Institute of Environmental Medicine
Country Sweden 
Sector Academic/University 
PI Contribution Statistical and programming expertise. Drafting papers.
Collaborator Contribution Preparation of manuscripts
Impact Publications: PMID: 16636139; 17968859
 
Description Enhanced IT for UK HIV Studies (PT, CT) 
Organisation HIV i-Base
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Co-investigators on successful application to MRC/Wellcome to develop IT infrastructure for UK HIV studies
Collaborator Contribution PI on grant application; lead centre; data harmonisation.Data harmonisationData harmonisationDeveloping patient-public involvement
Impact Funding from MRC/Wellcome Trust obtained. Publication 21673558. Participation in HIV Advocates Training Day
Start Year 2009
 
Description Enhanced IT for UK HIV Studies (PT, CT) 
Organisation Medical Research Council (MRC)
Department MRC Clinical Trials Unit
Country United Kingdom 
Sector Public 
PI Contribution Co-investigators on successful application to MRC/Wellcome to develop IT infrastructure for UK HIV studies
Collaborator Contribution PI on grant application; lead centre; data harmonisation.Data harmonisationData harmonisationDeveloping patient-public involvement
Impact Funding from MRC/Wellcome Trust obtained. Publication 21673558. Participation in HIV Advocates Training Day
Start Year 2009
 
Description Enhanced IT for UK HIV Studies (PT, CT) 
Organisation Public Health England
Department Centre of Infectious Disease Surveillance and Control
Country United Kingdom 
Sector Public 
PI Contribution Co-investigators on successful application to MRC/Wellcome to develop IT infrastructure for UK HIV studies
Collaborator Contribution PI on grant application; lead centre; data harmonisation.Data harmonisationData harmonisationDeveloping patient-public involvement
Impact Funding from MRC/Wellcome Trust obtained. Publication 21673558. Participation in HIV Advocates Training Day
Start Year 2009
 
Description Enhanced IT for UK HIV Studies (PT, CT) 
Organisation Royal Free Hospital
Country United Kingdom 
Sector Hospitals 
PI Contribution Co-investigators on successful application to MRC/Wellcome to develop IT infrastructure for UK HIV studies
Collaborator Contribution PI on grant application; lead centre; data harmonisation.Data harmonisationData harmonisationDeveloping patient-public involvement
Impact Funding from MRC/Wellcome Trust obtained. Publication 21673558. Participation in HIV Advocates Training Day
Start Year 2009
 
Description Epidemiology of Hepatitis C virus infection in pregnant women in North Thames (MCB, CTh, TCa) 
Organisation Great Ormond Street Hospital (GOSH)
Department Clinical Immunology Laboratory
Country United Kingdom 
Sector Hospitals 
PI Contribution To validate the use of an assay to test anti-HCV on dried blood spot samples, and to estimate the prevalence of this infection among pregnant women in the North Thames region, stratifying by demographic characteristics
Collaborator Contribution Provide data for pilot study
Impact Upcoming publications
Start Year 2011
 
Description Epidemiology of Hepatitis C virus infection in pregnant women in North Thames (MCB, CTh, TCa) 
Organisation St Mary's Hospital, London
Department Department of Hepatology
Country United Kingdom 
Sector Hospitals 
PI Contribution To validate the use of an assay to test anti-HCV on dried blood spot samples, and to estimate the prevalence of this infection among pregnant women in the North Thames region, stratifying by demographic characteristics
Collaborator Contribution Provide data for pilot study
Impact Upcoming publications
Start Year 2011
 
Description Epigenomics and social adversity (CP) 
Organisation McGill University
Department Department of Pharmacology and Therapeutics
Country Canada 
Sector Academic/University 
PI Contribution The MRC Centre has funded analyses on the 1958 birth cohort exploting opportunities to link life course perspective on childhood and adult adversity and epigenetic expression. Centre staff contribute knowledge of life-course epidemiology on the topics of interest and expertise of the exposure measures in the 1958 cohort.
Collaborator Contribution Collaborators have contributed laboratory analyses and expertise in epigenetics
Impact Collaboration is multidisciplinary. Publication: 22422449, Paper in preparation: Matthew Suderman, Nada Borghol, Jane Pappas, Snehal Pinto Pereira, Marcus Pembrey, Clyde Hertzman, Chris Power, Moshe Szyf. Associations with Childhood Abuse in Adult DNA Methylation.
Start Year 2006
 
Description Health record linkage in MCS - obesity, asthma, infections 
Organisation University of London
Department Institute of Education
Country United Kingdom 
Sector Academic/University 
PI Contribution Leadership in record linkage of major birth cohort study to hospital episode data across UK as well as proof of concept work on record linkage to primary care data. Specific expertise in health record linkage, as well as scientific areas being addressed in this grant namely childhood disability, infections, obesity and asthma; epidemiological and statistical expertise; secure governance data environment through epiLab and associated expertise in research data management and metadata.
Collaborator Contribution Fieldwork support; social science expertise.
Impact Wellcome Trust grant awarded. Multidisciplinary team.
Start Year 2009
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Aberdeen
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Bergen
Country Norway 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Edinburgh
Department Psychology
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Manchester
Department Community-Based Medicine
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Melbourne
Country Australia 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Oslo
Country Norway 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic factors for cognitive ageing (XK) 
Organisation University of Queensland
Department Queensland Institute of Medical Research
Country Australia 
Sector Academic/University 
PI Contribution Expertise on genetic epidemology and statistical genetics, manuscript preparation and publication
Collaborator Contribution Expertise on cognitive ability and psychological respectsExpertise on cognitive ability and psychological respectsExpertise on statistical geneticsDataDataDataData
Impact Publications-PMID: 21826061, 22045296, 22628180, 23207651, 23300510
Start Year 2008
 
Description Identifying genetic risk factors for rheumatoid arthritis (XK) 
Organisation Karolinska Institute
Country Sweden 
Sector Academic/University 
PI Contribution Initializing, co-ordinating and supervising the project, manuscript preparation and publication
Collaborator Contribution Data, expertise on disease genetics Expertise on genetic epidemiology
Impact Publication - PMID: 21293383
Start Year 2009
 
Description Identifying genetic risk factors for rheumatoid arthritis (XK) 
Organisation University of Manchester
Department School of Medicine Manchester
Country United Kingdom 
Sector Academic/University 
PI Contribution Initializing, co-ordinating and supervising the project, manuscript preparation and publication
Collaborator Contribution Data, expertise on disease genetics Expertise on genetic epidemiology
Impact Publication - PMID: 21293383
Start Year 2009
 
Description Infants Hearts Study (RK) 
Organisation Birmingham Women's and Children's NHS Foundation Trust
Department Cardiac Unit
Country United Kingdom 
Sector Hospitals 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description Infants Hearts Study (RK) 
Organisation Children's Heart Federation (CHF)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description Infants Hearts Study (RK) 
Organisation Great Ormond Street Hospital (GOSH)
Department Cardiorespiratory Unit
Country United Kingdom 
Sector Hospitals 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description Infants Hearts Study (RK) 
Organisation London South Bank University
Department Faculty of Health and Social Care
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description Infants Hearts Study (RK) 
Organisation Royal Brompton & Harefield NHS Foundation Trust
Department Paediatric Cardiology
Country United Kingdom 
Sector Hospitals 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description Infants Hearts Study (RK) 
Organisation University College London
Department National Institute for Cardiovascular Outcomes Research (NICOR)
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description Infants Hearts Study (RK) 
Organisation University of Leicester
Department Paediatric Intensive Care Audit Network (PICANet, Universities of Leeds and Leicester)
Country United Kingdom 
Sector Academic/University 
PI Contribution Co-Principal Investigator/senior project team. Epidemiological, statistical and clinical expertise. Development of research protocol, funding application. Provision of epilab services for data storage and analysis.
Collaborator Contribution Clinical expertise, collaboration in data collection, management and analysis; expertise in qualitative research methods in paediatric clinical care; data resource and secure data linkage, anonymisation of dataset; public engagement and inolvement; dissemination activities
Impact "Published systematic review protocols: (1) PROSPERO 2013:CRD42013003483. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003483; (2) PROSPERO 2013:CRD42013003484. http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42013003484 "
Start Year 2012
 
Description MEND - evaluating interventions for childhood obesity 
Organisation MEND (Mind, Exercise, Nutrition…Do it!) Programme
Country United States 
Sector Charity/Non Profit 
PI Contribution PI on project, guarantor of the data, management of funding. Quantitative data analysis; statistical and epidemiological expertise; project management.
Collaborator Contribution Facilitate collation, anonymisation and transfer of data.Expertise in socio­environmental determinants of health and the evaluation of community interventions to combat obesity. Supervision of environmental data collation.Expertise in Childhood obesity
Impact NIHR Grant (£417k) 2010 ('NIHR - MEND (CL)'). Disciplines include nutrition, statistics, geography, epidemiology, sociology, psychology. Fagg, J., Cole, T., Cummins, S., Goldstein, H., Roberts, H., & Law, C. (2012). From Trial To Population: Effect Of A Weight Management Intervention On Body Mass Index When Scaled Up. Journal Of Epidemiology And Community Health, 66, A2-A3. doi:10.1136/jech-2012-201753.005. Proceedings from Society of Social Medicine 2012, London School of Hygiene and Tropical Medicine. Fagg, J. and Law, C. (2012). Does scaling up a family-based community intervention for childhood overweight and obesity impact socio-economic inequalities in health?. Obesity Facts: the European journal of obesity, 5 (Suppl. 1), 36-37. Proceedings from the European Congress of Obesity 2012, Lyon. Fagg, J., Goldstein, H., Law, C. (2012) Multiple imputation to address missingness in multilevel service data. Medical Research Council Public Health Research Methods and Challenges Conference, Birmingham. Presentations detailed in engagement activities.
Start Year 2009
 
Description MEND - evaluating interventions for childhood obesity 
Organisation Queen Mary University of London
Country United Kingdom 
Sector Academic/University 
PI Contribution PI on project, guarantor of the data, management of funding. Quantitative data analysis; statistical and epidemiological expertise; project management.
Collaborator Contribution Facilitate collation, anonymisation and transfer of data.Expertise in socio­environmental determinants of health and the evaluation of community interventions to combat obesity. Supervision of environmental data collation.Expertise in Childhood obesity
Impact NIHR Grant (£417k) 2010 ('NIHR - MEND (CL)'). Disciplines include nutrition, statistics, geography, epidemiology, sociology, psychology. Fagg, J., Cole, T., Cummins, S., Goldstein, H., Roberts, H., & Law, C. (2012). From Trial To Population: Effect Of A Weight Management Intervention On Body Mass Index When Scaled Up. Journal Of Epidemiology And Community Health, 66, A2-A3. doi:10.1136/jech-2012-201753.005. Proceedings from Society of Social Medicine 2012, London School of Hygiene and Tropical Medicine. Fagg, J. and Law, C. (2012). Does scaling up a family-based community intervention for childhood overweight and obesity impact socio-economic inequalities in health?. Obesity Facts: the European journal of obesity, 5 (Suppl. 1), 36-37. Proceedings from the European Congress of Obesity 2012, Lyon. Fagg, J., Goldstein, H., Law, C. (2012) Multiple imputation to address missingness in multilevel service data. Medical Research Council Public Health Research Methods and Challenges Conference, Birmingham. Presentations detailed in engagement activities.
Start Year 2009
 
Description Maternal Factors and Childhood Adiposity and CVD Risk Factors in Portugal (LL) 
Organisation University of Coimbra
Department Department of Life Sciences
Country Portugal 
Sector Academic/University 
PI Contribution Statistical expertise. Data analysis. Drafting papers.
Collaborator Contribution Provided data of the National Portuguese Children's Survey. Sponsored our academic visit to Coimbra
Impact One paper submitted to Pediatrics. A futher paper to be submitted shortly. Academic visit and invited talk (University of Coimbra).
Start Year 2010
 
Description Measuring Environmental Exposure to Lead in the Childhood using Shed Milk Teeth: A Pilot Analysis to Refine Laboratory Methods (MG, RK) 
Organisation Imperial College London
Department School of Public Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Statistical expertise. Co-applicant in pilot study
Collaborator Contribution -
Impact Proposal for pilot study
Start Year 2012
 
Description Policy Research Unit for Children and Young People 
Organisation National Children's Bureau
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Lead on Healthy Child Theme, Health Services theme and response mode research. Evidence synthesis; analysis of routine health and other data; policy research; epidemiology; statistical expertise; secure data infrastructure.
Collaborator Contribution Social care perspectives to improve health outcomes for children, young people and families. National organisation for promoting evidence-based practice in social care.Lead organisation for public involvement of children and young people. Facilitating public involvement in the PRU.
Impact DH Policy Research Programme award; £4.4 million. Multidisciplinary collaboration including health economics, child psychiatry, and involvement of children and young people, adolescent medicine.
Start Year 2010
 
Description Policy Research Unit for Children and Young People 
Organisation Social Care Institute for Excellence (SCIE)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Lead on Healthy Child Theme, Health Services theme and response mode research. Evidence synthesis; analysis of routine health and other data; policy research; epidemiology; statistical expertise; secure data infrastructure.
Collaborator Contribution Social care perspectives to improve health outcomes for children, young people and families. National organisation for promoting evidence-based practice in social care.Lead organisation for public involvement of children and young people. Facilitating public involvement in the PRU.
Impact DH Policy Research Programme award; £4.4 million. Multidisciplinary collaboration including health economics, child psychiatry, and involvement of children and young people, adolescent medicine.
Start Year 2010
 
Description Positron emission tomography - statistical expertise (MG) 
Organisation Washington University in St Louis
Department Mallinckrodt Institute of Radiology
Country United States 
Sector Academic/University 
PI Contribution Statistical and programming expertise. Drafting and publishing papers.
Collaborator Contribution Preparation of manuscripts
Impact Publications - PMID: 22033021; 19647171
Start Year 2008
 
Description SERPent 
Organisation Government of the UK
Department UK Data Archive
Country United Kingdom 
Sector Academic/University 
PI Contribution Project management, coordination of catalogue development and dissemination
Collaborator Contribution Training and consultancy services with respect to the implementation of an international data standardTraining and consultancy services with respect to the implementation of an international data standard
Impact Metadata catalogue created (see Research Materials section). Presentation at "Managing Metadata for Logitudinal Data: Best Practice", Schloss Dagstuhl, October 2010. Upcoming presentation at European DDI User Group meeting, Utrecht December 2010.
Start Year 2010
 
Description SERPent 
Organisation Metadata Technology, Ltd.
Country United Kingdom 
Sector Private 
PI Contribution Project management, coordination of catalogue development and dissemination
Collaborator Contribution Training and consultancy services with respect to the implementation of an international data standardTraining and consultancy services with respect to the implementation of an international data standard
Impact Metadata catalogue created (see Research Materials section). Presentation at "Managing Metadata for Logitudinal Data: Best Practice", Schloss Dagstuhl, October 2010. Upcoming presentation at European DDI User Group meeting, Utrecht December 2010.
Start Year 2010
 
Description Shared-Services Health Applications and Resources Environment (SHARE) project 
Organisation AIMES Grid Services Ltd
Country United Kingdom 
Sector Private 
PI Contribution Local system administration, requirements specification and use case evaluation.
Collaborator Contribution Provision of data centre services, legal expertise for the development of a suitable SLA and assistance with the development of security infrastructure
Impact Technology Strategy Board peer-reviewed grant. ; Attracted funding from UK Collaborative Study of Congenital Hypothyroidism (UKCS-CHT) which utilises secure data environment created through the SHARE Project.
Start Year 2010
 
Description The Life Study (CD) 
Organisation Cardiff University
Department School of Psychology
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation Imperial College London
Department School of Public Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation King's College London
Department Institute of Pharmaceutical Science
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation London School of Hygiene and Tropical Medicine (LSHTM)
Department Faculty of Epidemiology and Population Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation Swansea University
Department Institute of Life Science
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation University College London
Department Department of Psychology and Human Development
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation University College London
Department Institute of Child Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation University of Bristol
Department School of Social and Community Medicine
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation University of Leicester
Department Department of Epidemiology and Public Health
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation University of Southampton
Department MRC Lifecourse Epidemiology Unit
Country United Kingdom 
Sector Public 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description The Life Study (CD) 
Organisation University of St Andrews
Department School of Geography & Geosciences
Country United Kingdom 
Sector Academic/University 
PI Contribution Scientific leadership, development of hypotheses, innovative methodology
Collaborator Contribution Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics
Impact Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry;
Start Year 2009
 
Description Trends for BP, resting pulse rate, and body size in UK children (LL) 
Organisation St George's University of London
Department Division of Population Health Sciences and Education
Country United Kingdom 
Sector Academic/University 
PI Contribution Statistical expertise. Data analysis. Drafting papers.
Collaborator Contribution Data on child CVD studies, expertise on CVD
Impact (1) Two published papers - one in J Hypertens (doi:10.1097/HJH.0b013e3283562a6b) and one in Arch Dis Child (to appear, selected for press release). (2) MRC Centre Small Project Grant, £36,500.
Start Year 2009
 
Description UK Collaborative Study of Congenital Hypothyroidism (RK, JO) 
Organisation British Thyroid Foundation (BTF)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Leading and undertaking the research. This project will enhance the evidence base for newborn screening policies for congenital hypothyroidism a preventable cause of childhood intellectual impairment. It exploits our expertise in surveillance of rare childhood conditions, the capability of epiLab and access to secure data facility and partnerships across the UK with clinical networks, screening laboratories and policy makers. It pioneers a new electronic method for rare disease surveillance that potentially overcomes issues of information governance relating to reporting conditions without patient consent.
Collaborator Contribution data, expertise in implementation, policy development and quality assurance of newborn screeninginfrastructure for and expertise in rare disease surveillanceclinical expertise diagnostic and screening test expertise Public engagement
Impact Invited presentations: UKNSLN conference (March 2011), NHS UK Newborn Screening Programme Centre Bloodspot Scientific Advisory Group (Aug 2012), Joint Standing Committee on Congenital Hypothyroidism (Sept 2012); Knowles RL, Olafsdottir F. Initial Clinical Referral for Congenital Hypothyroidism after Newborn Bloodspot Screening: Expert Working Group and Systematic Evidence Review 2010-2011. A report for the UK Newborn Screening Programme Centre, April 2012. URL:http://discovery.ucl.ac.uk/1385570/
Start Year 2011
 
Description UK Collaborative Study of Congenital Hypothyroidism (RK, JO) 
Organisation Royal College of Paediatrics and Child Health (RCPCH)
Department British Paediatric Surveillance Unit (BPSU)
Country United Kingdom 
Sector Learned Society 
PI Contribution Leading and undertaking the research. This project will enhance the evidence base for newborn screening policies for congenital hypothyroidism a preventable cause of childhood intellectual impairment. It exploits our expertise in surveillance of rare childhood conditions, the capability of epiLab and access to secure data facility and partnerships across the UK with clinical networks, screening laboratories and policy makers. It pioneers a new electronic method for rare disease surveillance that potentially overcomes issues of information governance relating to reporting conditions without patient consent.
Collaborator Contribution data, expertise in implementation, policy development and quality assurance of newborn screeninginfrastructure for and expertise in rare disease surveillanceclinical expertise diagnostic and screening test expertise Public engagement
Impact Invited presentations: UKNSLN conference (March 2011), NHS UK Newborn Screening Programme Centre Bloodspot Scientific Advisory Group (Aug 2012), Joint Standing Committee on Congenital Hypothyroidism (Sept 2012); Knowles RL, Olafsdottir F. Initial Clinical Referral for Congenital Hypothyroidism after Newborn Bloodspot Screening: Expert Working Group and Systematic Evidence Review 2010-2011. A report for the UK Newborn Screening Programme Centre, April 2012. URL:http://discovery.ucl.ac.uk/1385570/
Start Year 2011
 
Description UK Collaborative Study of Congenital Hypothyroidism (RK, JO) 
Organisation Royal College of Paediatrics and Child Health (RCPCH)
Department British Society for Paediatric Endocrinology and Diabetes (BSPED)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Leading and undertaking the research. This project will enhance the evidence base for newborn screening policies for congenital hypothyroidism a preventable cause of childhood intellectual impairment. It exploits our expertise in surveillance of rare childhood conditions, the capability of epiLab and access to secure data facility and partnerships across the UK with clinical networks, screening laboratories and policy makers. It pioneers a new electronic method for rare disease surveillance that potentially overcomes issues of information governance relating to reporting conditions without patient consent.
Collaborator Contribution data, expertise in implementation, policy development and quality assurance of newborn screeninginfrastructure for and expertise in rare disease surveillanceclinical expertise diagnostic and screening test expertise Public engagement
Impact Invited presentations: UKNSLN conference (March 2011), NHS UK Newborn Screening Programme Centre Bloodspot Scientific Advisory Group (Aug 2012), Joint Standing Committee on Congenital Hypothyroidism (Sept 2012); Knowles RL, Olafsdottir F. Initial Clinical Referral for Congenital Hypothyroidism after Newborn Bloodspot Screening: Expert Working Group and Systematic Evidence Review 2010-2011. A report for the UK Newborn Screening Programme Centre, April 2012. URL:http://discovery.ucl.ac.uk/1385570/
Start Year 2011
 
Description UK Collaborative Study of Congenital Hypothyroidism (RK, JO) 
Organisation UK Newborn Screening Laboratory Network (UKNSLN)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Leading and undertaking the research. This project will enhance the evidence base for newborn screening policies for congenital hypothyroidism a preventable cause of childhood intellectual impairment. It exploits our expertise in surveillance of rare childhood conditions, the capability of epiLab and access to secure data facility and partnerships across the UK with clinical networks, screening laboratories and policy makers. It pioneers a new electronic method for rare disease surveillance that potentially overcomes issues of information governance relating to reporting conditions without patient consent.
Collaborator Contribution data, expertise in implementation, policy development and quality assurance of newborn screeninginfrastructure for and expertise in rare disease surveillanceclinical expertise diagnostic and screening test expertise Public engagement
Impact Invited presentations: UKNSLN conference (March 2011), NHS UK Newborn Screening Programme Centre Bloodspot Scientific Advisory Group (Aug 2012), Joint Standing Committee on Congenital Hypothyroidism (Sept 2012); Knowles RL, Olafsdottir F. Initial Clinical Referral for Congenital Hypothyroidism after Newborn Bloodspot Screening: Expert Working Group and Systematic Evidence Review 2010-2011. A report for the UK Newborn Screening Programme Centre, April 2012. URL:http://discovery.ucl.ac.uk/1385570/
Start Year 2011
 
Description UK Collaborative Study of Congenital Hypothyroidism (RK, JO) 
Organisation UK Newborn Screening Laboratory Network (UKNSLN)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Leading and undertaking the research. This project will enhance the evidence base for newborn screening policies for congenital hypothyroidism a preventable cause of childhood intellectual impairment. It exploits our expertise in surveillance of rare childhood conditions, the capability of epiLab and access to secure data facility and partnerships across the UK with clinical networks, screening laboratories and policy makers. It pioneers a new electronic method for rare disease surveillance that potentially overcomes issues of information governance relating to reporting conditions without patient consent.
Collaborator Contribution data, expertise in implementation, policy development and quality assurance of newborn screeninginfrastructure for and expertise in rare disease surveillanceclinical expertise diagnostic and screening test expertise Public engagement
Impact Invited presentations: UKNSLN conference (March 2011), NHS UK Newborn Screening Programme Centre Bloodspot Scientific Advisory Group (Aug 2012), Joint Standing Committee on Congenital Hypothyroidism (Sept 2012); Knowles RL, Olafsdottir F. Initial Clinical Referral for Congenital Hypothyroidism after Newborn Bloodspot Screening: Expert Working Group and Systematic Evidence Review 2010-2011. A report for the UK Newborn Screening Programme Centre, April 2012. URL:http://discovery.ucl.ac.uk/1385570/
Start Year 2011
 
Description Visual Impairment due to adverse drug reactions (ADR) in the UK (PC, JR) 
Organisation Moorfields Eye Hospital NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Conducting national surveillance study including data collection, statistical analysis and dissemination
Collaborator Contribution As with Moorfields
Impact Data collection in complete, paper in preparation. Presentation at RCOphthalmol Congress (May 2012)
Start Year 2010
 
Description Visual Impairment due to adverse drug reactions (ADR) in the UK (PC, JR) 
Organisation University College London
Department Institute of Ophthalmology UCL
Country United Kingdom 
Sector Academic/University 
PI Contribution Conducting national surveillance study including data collection, statistical analysis and dissemination
Collaborator Contribution As with Moorfields
Impact Data collection in complete, paper in preparation. Presentation at RCOphthalmol Congress (May 2012)
Start Year 2010
 
Title R library for accelerometry - pawacc 
Description R software package for large scale analysis of accelerometry measured using Actigraph GT1M or equivalent uniaxial accelerometer created by lecturer in medical statistics appointed as part of university contribution to MRC centre. Dr Geraci's description of the software can be found here http://discovery.ucl.ac.uk/1361733/ 
Type Of Technology Software 
Year Produced 2012 
Open Source License? Yes  
Impact Ability to analyse MCS data 
URL http://cran.r-project.org/web/packages/pawacc/index.html
 
Description 2012 UCL Partners Biostatistics Network Symposium (MG) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact 70 people attended a one-day symposium (Contemporary Statistical Methods in Statistical Methods)
Medical Research

Stimulate discussion about recent methodological developments among statistician across UCL, UCL Partners and other institutions
Year(s) Of Engagement Activity 2012
 
Description APPG: Life Study Showcase (CD) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Poster Presentation
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Poster to All-Party Parliamentary Group on Medical Research Showcase on data: Life Study: New times, a new birth cohort-Delivering a shared vision for science, policy and practice


Raising awarenesss for parliamentarians- written parliamentary questions to ministers from MPs who attended
Year(s) Of Engagement Activity 2012
 
Description Academy of Medical Sciences Working Group (CD) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Centre Director was a member of the Academy of Medical Sciences Working Group which met under Sir Mike Rawlins to review regulation and governance of research and to recommend ways to reduce obstacles to such research. The Director's membership drew on her and her Centre's experience with multicentre studies in patient and population cohorts in children and mothers as well as experience with use of electronic health and other research records including left over blood spots and record linkage for HIV surveillance previously funded by MRC.

The working group published, in Janurary 2011, an influential report published "A new pathway for the regulation and governance of health research" This sets out a new regulatory and governance pathway that will increase the speed at which healthcare innovations become available to patients, whilst eliminating unnecessary bureaucracy. Several of the recommendations were taken up by the government in a statement that accompanied the March 2011 budget statement and are currently being enacted in the Health Bill.
Year(s) Of Engagement Activity 2010
 
Description BBC News Channel 'BABY Cure' interview March 2013 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Live interview, discussed background to and implications of news story about an infant who was allegedly cured of HIV;
Publicising work of NSHPC, public information.


Unknown - hopefully better public understanding. Asked to participate in 3-way live radio discussion on Voice of Russia Radio
Year(s) Of Engagement Activity 2013
 
Description BPSU Workshop: Scientific and Financial Strategy 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Round table discussions on future scientific strategy, and financial support for BPSU.

tbc
Year(s) Of Engagement Activity 2013
 
Description BRISSKit Hackday (TCa) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Engage with about 25 developers and health informatics professionals to explore opportunitites to extend the BRISSkit open source software suite.


The epilab team won £100 prize for the best hack
Year(s) Of Engagement Activity 2012
 
Description DCC Roadshow Imperial (TCa) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Workshop Facilitator
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact About 50 people met for a day's workshop. A debate developed relating to the possibility of assigning DOIs to Research Data Management plans

Growing interest in the use and reuse of structured Data Management plans
Year(s) Of Engagement Activity 2012
 
Description IASSIST 2013 Conference (TCa) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact The panel discussion was attended by about 35 delegates and the discussion drew on examples from USA and the UK mainly. I discussed the approach that we have adopted in UCL with respect to the implementation of the epiLab-SS system, ISO 27001 certification and IG Toolkit compliance.

-
Year(s) Of Engagement Activity 2013
 
Description IASSIST Conference (TCa) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Active debate relating to the relevanceof international information security standards for research data management


-
Year(s) Of Engagement Activity Pre-2006,2012
 
Description Invited speaker at UCL/ICH/GOSH Childhood Obesity Research Group (CORGI) (CL) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Presentation of the impact of MEND (mind, exercise, nutrition, do it), an obesity prevention and treatment programme. Questions and discussion followed.

No measurable impacts
Year(s) Of Engagement Activity 2013
 
Description JANET CSIRT Information Security Conference - presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Presented current state of development of secure cloud computing platform and associated ISO-27001 certification plan

Met the UCL information secuirty team and agreed to work closely with them in the development of our policies so that these may be encorporated more generally at UCL
Year(s) Of Engagement Activity 2011
 
Description LSHTM RDM Meeting (TCa) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Assisted in the development of a strategy for data managemt that has led to the recruitment of a project manager.

Closer working relations established with LSHTM in respect of data management
Year(s) Of Engagement Activity 2012
 
Description MRC Data Management Workshop (TCa) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact About 45 people attended and this has provided the basis for a sustained discussion and growing discussion group


Fed back to MRC for guidance on the development of Data Management Planning template requirements
Year(s) Of Engagement Activity 2012
 
Description Multidisciplinary workshop to establish an academic-clinical service user collaboration (VT) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Health professionals
Results and Impact 40 professionals and 2 service users attended a multiprofessional workshop on patient reported outcomes and experience measures (PROMs and PREMs), which included a showcase from colleagues at Great Ormond St Hospital. Our team presented research, charied the day and led break out group discussions.

The workshop participants expressed enthusiasm and the need for a collaborative support network on the topic e.g. via an internet webpage and a online discussion room. In response to this, our workshop organising group (VT, RK and JR) set up a support/information webpage (www.ucl.ac.uk/childproms - under construction) and a listserve mail list (ich-promgroup@ucl.ac.uk).
Year(s) Of Engagement Activity 2012
 
Description Oral presentation at the European Congress of Epidemiology 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Oral presentation reporting inequalities in childhood thinness. Over 650 delegates. Held in Aarhus, Denmark.


Led to an invited talk at University of Newcastle
Year(s) Of Engagement Activity 2013
 
Description Oral presentation at the Society for longitudinal and Life-course Studies: Growing Up and Growing Old: Health Transitions Throughout the (AP) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Oral presentation comparing inequalities in child emotional wellbeing as reported by parents and teachers. Around 300 delegates attended the conference, which was held in Amsterdam.

No measureable impacts
Year(s) Of Engagement Activity 2013
 
Description Oral presentation at the Society for longitudinal and Life-course Studies: Growing Up and Growing Old: Health Transitions Throughout the Lifecourse 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Oral presentation comparing inequalities in child emotional wellbeing as reported by parents and teachers. Around 300 delegates attended the conference, which was held in Amsterdam.


No measurable impacts
Year(s) Of Engagement Activity 2013
URL http://media.wix.com/ugd/df1448_fdb566d85c314637a903f91710d90f43.pdf
 
Description Plenary presentation at the British HIV Association Conference (CTh) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach National
Primary Audience Health professionals
Results and Impact Preterm delivery in HIV-positive women was the focus of the talk. Attended by several hundred delegates


Webcast on BHIVA website
Year(s) Of Engagement Activity 2012
 
Description Presentation at the EUCCONET and Society for longitudinal and Life-course Studies: Childhood and beyond: tracing cohorts over the lifecourse (AP) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Poster Presentation
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Poster presentation about ethnicity, poverty and child emotional wellbeing. Around 300 delegates attended the conference, which was held in Paris.

No measureable impacts
Year(s) Of Engagement Activity 2012
 
Description Public Health Data Forum - Convened by the World Health Organization (Geneva) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Presentation of our plans to make use of the FFI 3 (Life-cycle) standard for the representation of data management plans and encorporation in our local information security management system.

No notable impacts yet
Year(s) Of Engagement Activity 2011
 
Description Public Health Research Data Forum (TCa) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Health professionals
Results and Impact Conference calls take place about every 6 months with a focus on standards and tooling to support research data management. A reoprt on the citation of research data has been produced.


Broad acceptance that DDI is a viable standard for the documentation of public health research
Year(s) Of Engagement Activity 2012
 
Description Royal Statistical Society (RSS) meeting (MG) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation Workshop Facilitator
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Half day workshop/tutorial and half day research presentations. Organised on behalf of the RSS General Applications Section Committee.

-
Year(s) Of Engagement Activity 2013
 
Description SERPent metadata standard for epidemiology and public health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Presented our experiences using the DDI metadata standard for the development of a research catalogue service within UCL.

This was the first of a series of planned workshops to be sponsored by MRC Head Office.
Year(s) Of Engagement Activity 2011
 
Description Service user consultations with patients attending GOSH services and their parents (VT) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Participants in your research and patient groups
Results and Impact 12 family members and 6 children&young people attended parallel focus groups to share their views on patient reported outcomes and experience measures (PROMs&PREMs) and their use in routine clinical practice. The focus groups sparked a lively discussion regarding barriers and solutions of PROMs&PREMs in routine practice for children, which was summarised in form of a report and a presentation at the multiprofessional workshop (see left column).

Two parents attended the health professionals' workshop. Research considered for adoption by the INVOLVE (forthcoming on project database: http://www.invo.org.uk/resource-centre/research-project-database/).
Year(s) Of Engagement Activity 2012
 
Description Voice of Russia 'Baby Cure' discussion March 2013 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Live radio discussion on background to and implications of news story about an infant who was allegedly cured of HIV
Publicising work of NSHPC, public information


Unknown - hopefully better public understanding.
Year(s) Of Engagement Activity 2013
 
Description e-RedBook workshop at RCPCH (TCa) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact About 50 people met and reviewed two main options from competing companies who wish to develop an eRedBook.

Discussions continue however the RCPCH has not endorsed any single solution.
Year(s) Of Engagement Activity 2012