An investigation of women's experiences of an IVF egg sharing scheme for somatic cell nuclear transfer research

Lead Research Organisation: Newcastle University
Department Name: Geography Politics and Sociology

Abstract

This study will investigate the experiences of women donating eggs for stem cell research. In exchange for their eggs, women will receive cheaper IVF treatment.
Stem cell research promises much for the treatment of diseases. Such treatments will be improved if the problem of a patient rejecting stem cells from an unrelated donor can be solved. A technique called somatic cell nuclear transfer (SCNT: also known as ‘therapeutic cloning’) will help to overcome this difficulty.
More research is required to improve SCNT techniques but there is a shortage of human eggs. Therefore this ‘egg sharing’ scheme has been proposed. This scheme has been approved by the Human Fertilisation and Embryology Authority.
However, concerns have been raised, including: objections to embryo experimentation; fears that therapeutic cloning will lead to reproductive cloning; views that reduced IVF fees constitute an inappropriate inducement to egg sharers; questions whether egg sharers understand the research to which they are contributing. Therefore it is vital that SCNT research is accompanied by evaluations of its potential benefits and costs.
This study will provide such an evaluation and supply vital evidence to inform the deliberations and practices of policymakers, stem cell scientists, fertility clinicians, and the wider community, worldwide.

Technical Summary

This study takes place at a time of rapid developments in human embryonic stem cell (hESC) research and the need for human eggs and embryos for such research. hESC research promises much for future therapies, especially the possibility that patients with diseases resulting from the degeneration of certain cell types (e.g. Alzheimer?s, Parkinson?s, heart and liver disease) will have the chance to replace these cells. Somatic cell nuclear transfer (SCNT) research is needed, as transplanting genetically unrelated cell lines into a patient will provoke an immune response. Nuclear reprogramming, through SCNT, and the derivation of stem cell lines, enables the development of patient and disease specific cell lines to avoid this problem. This is achieved by taking out the nucleus from a (donated) human egg cell and replacing it with the nucleus of a somatic cell (e.g. a skin cell) from a patient; when activated, the resulting cell divides and ES cells which are genetically similar to the patient can be derived. There is a shortage of human eggs for this research so an egg sharing scheme, in which IVF patients will be offered reduced fees in exchange for some of their eggs, has been proposed (and approved by the HFEA).

However questions arise over the social and ethical aspects of this work. These include: concerns over embryo experimentation; fears of the ?slippery slope? from therapeutic to reproductive cloning; whether a reduction in IVF fees constitutes an inappropriate inducement to egg sharers; whether egg sharers fully understand the research to which they are contributing. Therefore it is vital that SCNT research is accompanied by robust social and ethical evaluations. The proposed study will provide just such an evaluation by investigating the views, values and experiences of those coming forward to donate eggs, in order to evaluate whether the potential scientific and therapeutic gains from SCNT are achieved at social and ethical costs to egg sharers.

This will be the first empirical study of this subject; it will provide vital evidence to inform the deliberations and practices of policymakers, stem cell scientists, fertility clinicians, and the wider community, in the UK and worldwide. The study will also build upon a current Wellcome Trust funded project investigating the social and ethical aspects of embryo donation for hESC research.

Organisations

Publications

10 25 50

 
Description Department of Health consultation on mitochondria donation
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description Ethics and Law Advisory Committee (ELAC) of the Human Fertilisation and Embryology Authority
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in advisory committee
 
Description Ethics and Public Policy Committee of the ISSCR
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in advisory committee
 
Description HFEA consultation response 2012
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description House of Commons Science and Technology Select Committee
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description ISSCR Ethics and Public Policy Committee: Brocher presentation
Geographic Reach Multiple continents/international 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Medical Research Council: Ethics, regulation and public involvement committee
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Nuffield Council on Bioethics 2008
Geographic Reach National 
Policy Influence Type Participation in advisory committee
 
Description Nuffield Council on Bioethics 2010
Geographic Reach National 
Policy Influence Type Participation in advisory committee
 
Description Nuffield Council on Bioethics: Treatments for mitochondrial diseases.
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description Nuffield Council on Bioethics: appointed Council member 2013-6
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description RCOG Ethics Committee: membership
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in a advisory committee
 
Description Wellcome Trust/MRC Expert Group on incidential findings
Geographic Reach National 
Policy Influence Type Participation in advisory committee
 
Description World Stem Cell Summit
Geographic Reach Multiple continents/international 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Canadian Institutes for Health Research
Amount $453,891 (CAD)
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 01/2011 
End 12/2013
 
Description Wellcome Trust Society and Ethics
Amount £199,905 (GBP)
Funding ID WT102609 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 11/2013 
End 03/2016
 
Title Interview schedules and aide-memoires 
Description A series of aide-memoires for semi-structured interviews with: (i) fertility centre staff; (ii) women and couples who have expressed interest in the egg sharing scheme and who did share eggs; (iii) women and couples who have expressed interest in the egg sharing scheme and who did not share eggs; and (iii) comparator groups. 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact The exchange of these materials has been discussed with colleagues in the PARTS network (e.g. USA, Canada, Australia and UK) but will not occur before the end of our fieldwork. These tools have informed the design of interview schedules and aide memoirs for a more recent study funded by the Wellcome Trust. 
 
Description Bionet book collaboration 
Organisation London School of Economics and Political Science (University of London)
Department BIOS International Research Centre
Country United Kingdom 
Sector Academic/University 
PI Contribution The PI has contributed to ongoing discussion and debate within this network.
Collaborator Contribution The Bionet network has provided a forum for the discussion of a range of interests of direct relevance to our project.The Bionet network, administered from the LSE's BIOS Centre, has provided a forum for detailed discussion of policies and practices of direct relevance to our research. In particular the netowrk's connections with China provided valuable comparative material.
Impact Participation in discussions and workshops led to the PI contributing a chapter to a book edited by one member of the Bionet network in 2009. Socio-ethical considerations in the provision of eggs and embryos for hESC research: lessons from the UK, in Doering, O., ed. 'Life Sciences in Translation: a Sino-European dialogue on ethical governance of the life sciences', pp64-76, BIONET FP6 'Ethical governance of biological and biomedical research: Chinese-European Co-operation' (www.bionet-china.org/pdfs/BIONET)
Start Year 2008
 
Description Bionet book collaboration 
Organisation Ruhr University Bochum
Department Faculty of History
Country Germany 
Sector Academic/University 
PI Contribution The PI has contributed to ongoing discussion and debate within this network.
Collaborator Contribution The Bionet network has provided a forum for the discussion of a range of interests of direct relevance to our project.The Bionet network, administered from the LSE's BIOS Centre, has provided a forum for detailed discussion of policies and practices of direct relevance to our research. In particular the netowrk's connections with China provided valuable comparative material.
Impact Participation in discussions and workshops led to the PI contributing a chapter to a book edited by one member of the Bionet network in 2009. Socio-ethical considerations in the provision of eggs and embryos for hESC research: lessons from the UK, in Doering, O., ed. 'Life Sciences in Translation: a Sino-European dialogue on ethical governance of the life sciences', pp64-76, BIONET FP6 'Ethical governance of biological and biomedical research: Chinese-European Co-operation' (www.bionet-china.org/pdfs/BIONET)
Start Year 2008
 
Description Brocher Foundation 
Organisation Brocher Foundation
Country Switzerland 
Sector Charity/Non Profit 
PI Contribution Participation in networking activities.
Collaborator Contribution RP1 spent two months at the Brocher Foundation in Switzerland writing and networking with peers from a variety of disciplines and professional roles and developing early drafts of the fieldwork aide-memoires and the project literature review.
Impact Three publications and draft project fieldwork documents.
Start Year 2008
 
Description Canadian Institute for Health Research 
Organisation Dalhousie University
Department Department of Bioethics
Country Canada 
Sector Academic/University 
PI Contribution The PI is a co-applicant on this project. She was closely involved in the design of the project and preparation of documents for Research Ethics Board approval. The PI advised on the conduct and analysis of the research.
Collaborator Contribution The PI is a co-applicant on this funded project which will provide a comparative data set from Canada. The insights from this study will add to the depth and breadth of knowledge from our own project.
Impact The outcome of this multidisciplinary collaboration between individuals in the named organisations resulted in a successful bid for funding to the Canadian Institutes of Health Research and a research project that produced valuable findings. Collaboration has extended beyond the project's formal funding. Outputs include ongoing contact with members of the research team and a paper, published as part of a project-led special edition of the journal Monash Bioethics Review. Other outputs by the collaborators include: Alana Cattapan (2014) Risky Business: Surrogacy, Egg Donation, and the Politics of Exploitation. Canadian Journal of Law and Society / Revue Canadienne Droit et Société / Volume 29 / Issue 03 / December 2014, pp 361-379 DOI: http://dx.doi.org/10.1017/cls.2014.14 Angel Petropanagos, Alana Cattapan, Françoise Baylis, and Arthur Leader (2015) Social egg freezing: risk, benefits and other considerations CMAJ June 16, 2015 187:666-669 A. Cattapan (2014) On reproductive citizenship: thinking about social rights and assisted reproduction in Canada, in 'Fertile Ground: Exploring Reproduction in Canada', p.152-177 ISBN: 9780773592124, Elsevier Baylis,Françoise et al. (2013) The Tale of Assisted Human Reproduction Canada: A Tragedy in Five Acts. Canadian Journal of Women and the Law(2013),25(2):183 http://dx.doi.org/10.3138/cjwl.25.2.183 Cattapan, Alana (2013) Rhetoric and Reality: "Protecting" Women in Canadian Public Policy on Assisted Human Reproduction. Canadian Journal of Women and the Law(2013),25(2):202 http://dx.doi.org/10.3138/cjwl.25.2.202
Start Year 2010
 
Description Canadian Institute for Health Research 
Organisation University of Ottawa
Department Department of Obstetrics and Gynaecology
Country Canada 
Sector Academic/University 
PI Contribution The PI is a co-applicant on this project. She was closely involved in the design of the project and preparation of documents for Research Ethics Board approval. The PI advised on the conduct and analysis of the research.
Collaborator Contribution The PI is a co-applicant on this funded project which will provide a comparative data set from Canada. The insights from this study will add to the depth and breadth of knowledge from our own project.
Impact The outcome of this multidisciplinary collaboration between individuals in the named organisations resulted in a successful bid for funding to the Canadian Institutes of Health Research and a research project that produced valuable findings. Collaboration has extended beyond the project's formal funding. Outputs include ongoing contact with members of the research team and a paper, published as part of a project-led special edition of the journal Monash Bioethics Review. Other outputs by the collaborators include: Alana Cattapan (2014) Risky Business: Surrogacy, Egg Donation, and the Politics of Exploitation. Canadian Journal of Law and Society / Revue Canadienne Droit et Société / Volume 29 / Issue 03 / December 2014, pp 361-379 DOI: http://dx.doi.org/10.1017/cls.2014.14 Angel Petropanagos, Alana Cattapan, Françoise Baylis, and Arthur Leader (2015) Social egg freezing: risk, benefits and other considerations CMAJ June 16, 2015 187:666-669 A. Cattapan (2014) On reproductive citizenship: thinking about social rights and assisted reproduction in Canada, in 'Fertile Ground: Exploring Reproduction in Canada', p.152-177 ISBN: 9780773592124, Elsevier Baylis,Françoise et al. (2013) The Tale of Assisted Human Reproduction Canada: A Tragedy in Five Acts. Canadian Journal of Women and the Law(2013),25(2):183 http://dx.doi.org/10.3138/cjwl.25.2.183 Cattapan, Alana (2013) Rhetoric and Reality: "Protecting" Women in Canadian Public Policy on Assisted Human Reproduction. Canadian Journal of Women and the Law(2013),25(2):202 http://dx.doi.org/10.3138/cjwl.25.2.202
Start Year 2010
 
Description Canadian Institute for Health Research 
Organisation Western University
Department Department of Philosophy
Country Canada 
Sector Academic/University 
PI Contribution The PI is a co-applicant on this project. She was closely involved in the design of the project and preparation of documents for Research Ethics Board approval. The PI advised on the conduct and analysis of the research.
Collaborator Contribution The PI is a co-applicant on this funded project which will provide a comparative data set from Canada. The insights from this study will add to the depth and breadth of knowledge from our own project.
Impact The outcome of this multidisciplinary collaboration between individuals in the named organisations resulted in a successful bid for funding to the Canadian Institutes of Health Research and a research project that produced valuable findings. Collaboration has extended beyond the project's formal funding. Outputs include ongoing contact with members of the research team and a paper, published as part of a project-led special edition of the journal Monash Bioethics Review. Other outputs by the collaborators include: Alana Cattapan (2014) Risky Business: Surrogacy, Egg Donation, and the Politics of Exploitation. Canadian Journal of Law and Society / Revue Canadienne Droit et Société / Volume 29 / Issue 03 / December 2014, pp 361-379 DOI: http://dx.doi.org/10.1017/cls.2014.14 Angel Petropanagos, Alana Cattapan, Françoise Baylis, and Arthur Leader (2015) Social egg freezing: risk, benefits and other considerations CMAJ June 16, 2015 187:666-669 A. Cattapan (2014) On reproductive citizenship: thinking about social rights and assisted reproduction in Canada, in 'Fertile Ground: Exploring Reproduction in Canada', p.152-177 ISBN: 9780773592124, Elsevier Baylis,Françoise et al. (2013) The Tale of Assisted Human Reproduction Canada: A Tragedy in Five Acts. Canadian Journal of Women and the Law(2013),25(2):183 http://dx.doi.org/10.3138/cjwl.25.2.183 Cattapan, Alana (2013) Rhetoric and Reality: "Protecting" Women in Canadian Public Policy on Assisted Human Reproduction. Canadian Journal of Women and the Law(2013),25(2):202 http://dx.doi.org/10.3138/cjwl.25.2.202
Start Year 2010
 
Description IDARTSS 
Organisation Newcastle University
Department Policy, Ethics and Life Sciences Research Centre
Country United Kingdom 
Sector Academic/University 
PI Contribution This MRC project constitutes a detailed case study upon which the IDARTSS analysis can progress.
Collaborator Contribution The research team on the Interdisciplinary Approaches to uses of Reproductive Tissue in Stem cell Science (IDARTSS) project provide international interdisciplinary input on the analysis of the role of reproductive tissue in science.
Impact A presentation by the PI at the European Association of Centres of Medical Ethics, 2011 Annual Conference in Istanbul drew on work with IDARTSS and this project. A publication on representations of the human egg in medical texts is in preparation drawing on aspects of this project and the IDARTSS research.
Start Year 2010
 
Description ISSCR Ethics and Public Policy Committee 
Organisation International Society for Stem Cell Research ISSCR
Department Ethics and Public Policy Committee
Country United States 
Sector Charity/Non Profit 
PI Contribution The PI acted as a facilitator in the Ethics and Public Policy committee workshop on the rights of tissue donors at the ISSCR Annual Conference 2010. This committee provides a forum in which global scientific issues around the uses of human gametes in research can be debated and acted upon. In June 2011 the PI chaired the Ethics and Public Policy committee sattelite workshop on Ethics for Researchers at the Frontiers of Science- the Case of Stem Cell Research.
Collaborator Contribution This committee provides a forum in which global scientific issues around the uses of human gametes in research can be debated and acted upon. Forthcoming developments in stem cell science and ethics are raised that can inform our work.
Impact The PI has led the writing and submission of an Ethics Committee Position Paper on the payment of egg providers that was published in Cell Stem Cell (impact factor 25.943). The committee is also drafting a publication on tissue donors rights.
Start Year 2009
 
Description ISSCR and Brocher Foundation 
Organisation Brocher Foundation
Country Switzerland 
Sector Charity/Non Profit 
PI Contribution The PI presented a paper 'The missing stakeholders? What role should patients, the public and tissue providers play in formulating practice and policy guidelines for the ethical conduct of stem cell research?'
Collaborator Contribution Members of the ISSCR Ethics and Public Policy Committee include experts in law, ethics, social science and stem cell science and this event at the Brocher Foundation enabled wide ranging discussion within the theme 'Pathways towards a sustainable ethics of human stem cell research'. As a participant in the event and member of the committee, the PI brought the findings from our project to the attention of a wide range of international stakeholders.The Brocher Foundation is a Swiss private law Foundation instituted by Mr and Mrs Wilhelm and Lucette Brocher who endowed it with a vast domain. It is a private non profit foundation of public interest. According to the Founder's will, its main task is to put at the disposal of researchers a place to work and hold scientific meetings.
Impact This collaboration is interdisciplinary, involving an international group of scholars and practitioners from the fields of law, philosophy, ethics, social science, stem cell science and medicine. Output will be a presentation that will inform future publications.
Start Year 2011
 
Description ISSCR and Brocher Foundation 
Organisation International Society for Stem Cell Research ISSCR
Department Ethics and Public Policy Committee
Country United States 
Sector Charity/Non Profit 
PI Contribution The PI presented a paper 'The missing stakeholders? What role should patients, the public and tissue providers play in formulating practice and policy guidelines for the ethical conduct of stem cell research?'
Collaborator Contribution Members of the ISSCR Ethics and Public Policy Committee include experts in law, ethics, social science and stem cell science and this event at the Brocher Foundation enabled wide ranging discussion within the theme 'Pathways towards a sustainable ethics of human stem cell research'. As a participant in the event and member of the committee, the PI brought the findings from our project to the attention of a wide range of international stakeholders.The Brocher Foundation is a Swiss private law Foundation instituted by Mr and Mrs Wilhelm and Lucette Brocher who endowed it with a vast domain. It is a private non profit foundation of public interest. According to the Founder's will, its main task is to put at the disposal of researchers a place to work and hold scientific meetings.
Impact This collaboration is interdisciplinary, involving an international group of scholars and practitioners from the fields of law, philosophy, ethics, social science, stem cell science and medicine. Output will be a presentation that will inform future publications.
Start Year 2011
 
Description PEALS - CRB Collaboration 
Organisation Uppsala University
Department Centre for Research Ethics & Bioethics
Country Sweden 
Sector Academic/University 
PI Contribution PI and RA participated in and presented at a three day workshop between the Policy, Ethics and Life Sciences Research Centre and the Centre for Research and Bioethics, Uppsala University. They discussed interim findings from this project on egg provision for research and methodological issues in conducting evidence based bioethics.
Collaborator Contribution PI and RA participated in and presented at a three day workshop between the the Policy, Ethics and Life Sciences Research Centre and Centre for Research and Bioethics. The members of CRB discussed the presentation on interim findings from this project. Discussion covered research and methodological issues in conducting evidence based bioethics.
Impact In January 2010 PEALS and CRB approved a Memorandum of Understanding which formalised our collaboration with them. We are committed to pursuing joint activities which bring together CRB's philosophical approach and PEALS' expertise in empirical bioethics. Outputs include ongoing discussions about future research collaborations. The subject matter for the presentation was developed into a publication that was accepted for publication in the journal, Sociology of Health and Illness in November 2011.
Start Year 2010
 
Description Portugese comparative study 
Organisation University of Porto
Department Department of Hygiene and Epidemiology
Country Portugal 
Sector Academic/University 
PI Contribution The PI has provided advice and comment during the preparation of the successful bid and will act as a consultant to the project.
Collaborator Contribution This project will provide comparative data from Portugal that will increase the breadth of knowledge to be gained from our research.
Impact The project has produced a number of outputs: Samorinha, C. et al (2015) Self-reported psychosocial factors among in vitro fertilization patients interviewed alone or with the partner. Psychology, Health and Medicine, DOI:10.1080/13548506.2015.1109672 Samorinha, C. et al (2015) Factors associated with willingness to donate embryos for research among couples undergoing IVF, Reproductive BioMedicine Online, Volume 32, Issue 2, February 2016, Pages 247-256 Pereira, M. et al (2015) Patients' views on the embryo storage time limits, Reproductive BioMedicine Online Volume 31, Issue 2, August 2015, Pages 232-238 Samorinha, C. et al (2014) Factors associated with the donation and non-donation of embryos for research: a systematic review. Hum. Reprod. Update (September/October 2014) 20 (5): 641-655. doi: 10.1093/humupd/dmu026 Alves et al (2013) Reflections on human embryo research: the debate in Portuguese ethics organizations, Hist. cienc. saude-Manguinhos vol.20 supl.1 Rio de Janeiro nov. 2013. http://dx.doi.org/10.1590/S0104-59702013000400003
Start Year 2010
 
Description Project Advisory Group (PAG) 
Organisation Durham University
Department Durham Law School
Country United Kingdom 
Sector Academic/University 
PI Contribution Whilst the PAG is primarily in place to provide advice and support to our project, the individual members gain detailed insight into the social and ethical aspects of a challenging scheme which they would not otherwise have. Each member of the PAG plays various policy advisory roles (e.g. as members of the Human Fertilisation and Embryology Authority, the Human Genetics Commission, research and professional committees) and it is an invaluable experience for them to hear how the actual and potential consumers of their work (as patients, members of the public and also as professionals) experience such policies.
Collaborator Contribution The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.
Impact PAG members contributed to the project's International Symposium (further details below) and public engagement event in February 2011 as key events in the dissemination of project findings.
Start Year 2008
 
Description Project Advisory Group (PAG) 
Organisation King's College London
Department School of Biomedical Sciences KCL
Country United Kingdom 
Sector Academic/University 
PI Contribution Whilst the PAG is primarily in place to provide advice and support to our project, the individual members gain detailed insight into the social and ethical aspects of a challenging scheme which they would not otherwise have. Each member of the PAG plays various policy advisory roles (e.g. as members of the Human Fertilisation and Embryology Authority, the Human Genetics Commission, research and professional committees) and it is an invaluable experience for them to hear how the actual and potential consumers of their work (as patients, members of the public and also as professionals) experience such policies.
Collaborator Contribution The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.
Impact PAG members contributed to the project's International Symposium (further details below) and public engagement event in February 2011 as key events in the dissemination of project findings.
Start Year 2008
 
Description Project Advisory Group (PAG) 
Organisation Lancaster University
Department Department of Politics, Philosophy and Religion
Country United Kingdom 
Sector Academic/University 
PI Contribution Whilst the PAG is primarily in place to provide advice and support to our project, the individual members gain detailed insight into the social and ethical aspects of a challenging scheme which they would not otherwise have. Each member of the PAG plays various policy advisory roles (e.g. as members of the Human Fertilisation and Embryology Authority, the Human Genetics Commission, research and professional committees) and it is an invaluable experience for them to hear how the actual and potential consumers of their work (as patients, members of the public and also as professionals) experience such policies.
Collaborator Contribution The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.
Impact PAG members contributed to the project's International Symposium (further details below) and public engagement event in February 2011 as key events in the dissemination of project findings.
Start Year 2008
 
Description Project Advisory Group (PAG) 
Organisation University of Edinburgh
Department Department of Community Health Sciences
Country United Kingdom 
Sector Academic/University 
PI Contribution Whilst the PAG is primarily in place to provide advice and support to our project, the individual members gain detailed insight into the social and ethical aspects of a challenging scheme which they would not otherwise have. Each member of the PAG plays various policy advisory roles (e.g. as members of the Human Fertilisation and Embryology Authority, the Human Genetics Commission, research and professional committees) and it is an invaluable experience for them to hear how the actual and potential consumers of their work (as patients, members of the public and also as professionals) experience such policies.
Collaborator Contribution The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.The PAG assist the project team to maintain analytical and ethical independence from the clinical research. They also advise on: project design, conduct and interdisciplinary analysis; research, policy, practice and lay networks; dissemination activities.
Impact PAG members contributed to the project's International Symposium (further details below) and public engagement event in February 2011 as key events in the dissemination of project findings.
Start Year 2008
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Case Western Reserve University
Department Department of Bioethics
Country United States 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Dalhousie University
Department Department of Bioethics
Country Canada 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Durham University
Department Department of Theology and Religion
Country United Kingdom 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Flinders University
Department School of Nursing & Midwifery
Country Australia 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Johannes Gutenberg University of Mainz
Department Institute of History, Theory and Ethics of Medicine
Country Germany 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Johns Hopkins University
Department Berman Institute of Bioethics
Country United States 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation King's College London
Department Centre for Biomedicine & Society (CBAS)
Country United Kingdom 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation London School of Economics and Political Science (University of London)
Department BIOS International Research Centre
Country United Kingdom 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation McGill University
Department Institute on Biotechnology and the Human Future
Country Canada 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Monash University
Department Sociology
Country Australia 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Cambridge
Department School of the Humanities and Social Sciences
Country United Kingdom 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Lubeck
Department Institute of Medical History and Scientific Research
Country Germany 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Melbourne
Department Melbourne Law School
Country Australia 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of North Carolina at Chapel Hill
Department UNC Center for Bioethics
Country United States 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Otago
Department Biochemistry Department, Otago School of Medical Sciences & Pathology Department, Dunedin School of Medicine
Country New Zealand 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Otago
Department Faculty of Medicine
Country New Zealand 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Sydney
Department Department of Sociology and Social Policy
Country Australia 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation University of Wisconsin-Madison
Department Department of Medical History and Bioethics
Country United States 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description Provision and Acquisition of Reproductive Tissue for Science (PARTS) International Research Network 
Organisation Uppsala University
Department Centre for Research Ethics & Bioethics
Country Sweden 
Sector Academic/University 
PI Contribution The PI founded PARTS in 2009; she launched it via the Policy Ethics and Life Sciences (PEALS) Research Centre website, and she has initiated a number of meetings. A workshop took place in Sydney University, Australia, 23/03/2010, where she presented on this research project. Further presentations took place in Melbourne and Adelaide through connections made via the PARTS International Research Network. The PI also visited a number of centres in New Zealand between March and April 2011. A presentation and meetings in Otago and meetings in Auckland and Wellington were closely connected to the work of the MRC project, though the trip was funded by other sources. (A further presentation, planned for Christchurch had to be cancelled owing to the 2011 earthquake.) Under the banner of PARTS and in collaboration with several PARTS members, the PI and RA submitted a proposal to host a symposium as part of the International Association of Bioethics, World Congress of Bioethics in Rotterdam in June 2012. This was successful and the symposium 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?' took place. The PI presented on 'Is it more ethically challenging to provide human embryos or human eggs for stem cell research?', drawing on the work of the MRC project and previous Wellcome Trust funded research. This event was attended by over 75 international delegates from a range of disciplines and professions and generated considerable interest, discussion and many positive comments.
Collaborator Contribution Contact through our PARTS network with members of the various international research centres and University departments, identified as collaborators, assists our project by helping us to locate the UK issues and experiences within an international comparative context. This in turn assists the production of a better informed, more robust, analysis. The PARTS network also provides access to other networks; for example links forged through PARTS have been a factor in an invitation for the PI to join the International Society for Stem Cell Research (ISSCR) Ethics and Public Policy Committee. Members of the network in Australia issued invitations to present our research in 2010. A worldwide group of members came together in Rotterdam in 2012 to participate in a symposium organised by PARTS members and hosted within the International Association of Bioethics World Congress.
Impact Membership of the Ethics and Public Policy Committee of the International Society for Stem Cell Research. In April and and June 2009, PI was Visiting Professor at, (i) Johns Hopkins University, Baltimore, USA; (ii) Case Western Reserve University, Cleveland, USA; (iii) Dalhousie University, Halifax, Canada. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Berman Institute of Bioethics, Johns Hopkins University, Baltimore MA, USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Center for Genetics Research Ethics and Law, Case Western Reserve University, Cleveland OH USA. April 2009. Presentation "Socio-ethical aspects of acquiring and providing eggs and embryos for human embryonic stem cell research", Department of Bioethics, Dalhousie University, Halifax, Canada. June 2009. Plenary lecture: "Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K." World Stem Cell Summit Baltimore, USA, September 2009. In March / April 2010 the PI was a Visiting Professor in the Department of Sociology, Monash University, Melbourne and also Flinders University, Adelaide. She delivered presentations to the Department of Sociology in Monash and the School of Nursing and Midwifery in Flinders University. Both presentations offered reflections on the challenges of interdisciplinary research and the nature of collaboration between the fields of Sociology and Bioethics. The University of Sydney organised an international one day workshop focusing on the PARTS research network. The PI presented two papers discussing the work of the PARTS International Research Network and some preliminary findings from this MRC funded research project. In March 2011 the PI was visiting Professor at Otago University, New Zealand and presented preliminary findings from the project. In October 2011 the PI and RA led a successful proposal to host a symposium within the International Association of Bioethics World Congress to be held in Rotterdam, June 2012; 'Ethical challenges in the uses of human reproductive tissue in scientific research: procurement and protection?'. This involved an international panel of PARTS members including colleagues from Dalhousie, Sydney and Flinders Universities as well as the PI and RA.
Start Year 2009
 
Description The Network on Ethics of Families 
Organisation Linkoping University
Country Sweden 
Sector Academic/University 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description The Network on Ethics of Families 
Organisation Michigan State University
Country United States 
Sector Academic/University 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description The Network on Ethics of Families 
Organisation University of Gothenburg
Country Sweden 
Sector Academic/University 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description The Network on Ethics of Families 
Organisation University of Groningen
Country Netherlands 
Sector Academic/University 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description The Network on Ethics of Families 
Organisation University of Lubeck
Country Germany 
Sector Academic/University 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description The Network on Ethics of Families 
Organisation Uppsala University
Country Sweden 
Sector Academic/University 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description The Network on Ethics of Families 
Organisation World Health Organization (WHO)
Department Collaborating Centre for Bioethics (Singapore)
Country Singapore 
Sector Public 
PI Contribution Participation in workshops to stimulate conceptual analysis.
Collaborator Contribution Participation in workshops to stimulate conceptual analysis.
Impact This is a multi-disciplinary collaboration of social scientists, sociologists, ethicists and philosophers who take empirical and theoretical approaches to their work. The aim of this network is to develop new theoretical approaches that can address the contemporary challenges to responsibility created by new areas of healthcare practice and intervention.
Start Year 2013
 
Description Wellcome Trust: Embryo Donation project 
Organisation Wellcome Trust
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The PI on this MRC project was also PI on a Wellcome Trust project. The Wellcome Trust project was a major influence on the design of parallel projects in Switzerland, (see publications by RP1 in publications list) and China (see publications list). The Wellcome Trust project design has also now been adapted and replicated in studies in Portugal and Canada. Wellcome Trust agreed to a no-cost extension to this project, including an offer of access to unspent salary fund. This enabled the PI and research team to explore the cumulative benefits of building upon both Wellcome Trust and the MRC project reported on in this submission to address the social, ethical, policy and practice issues around the uses of reproductive tissue in clinical research.
Collaborator Contribution The Wellcome Trust funded a study by the PI on the donation of human embryos to stem cell science. That study is an acknowledged influence on the design, conduct and analysis of the MRC project being reported. Wellcome Trust agreed to a no-cost extension to this project, enabling the PI to visit New Zealand, as Visiting Professor at Otago University and described under the PARTS collaboration, with the financial backing of this collaboration.
Impact Outputs include, academic publications, parallel project designs, PARTS collaborative network. The PI visited New Zealand, as Visiting Professor at Otago University and described under the PARTS collaboration, with the financial backing of this collaboration. Findings from this project have informed the PI and RA's contributions to consultations on regulation and legislation by the Department for Health, Nuffield Council on Bioethics, Human Fertilisation and Embryology Authority and the House of Commons Select Committee on Science and Technology. The collaboration was multidisciplinary in that the PI is a Sociologist and interviewee recruitment was conducted in close cooperation with a Consultant Gynecologist in the local NHS Trust. Findings from this collaboration were published in both sociology and specialist embryology and related science journals.
Start Year 2006
 
Description 4Thought.tv 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact The PI was consulted by a television production company on the social and ethical aspects of providing eggs and embryos for research as a contribution to the daily '4Thought' strand on Channel 4.

Aspects of issues around the uses of reproductive tissue in research were aired on national television.
Year(s) Of Engagement Activity 2011
 
Description American Sociological Association Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Other audiences
Results and Impact 'Does payment for eggs increase or reduce inequalities? Gains, loss and uncertainties in IVF patients' accounts of volunteering for a U.K. 'egg sharing for research' scheme. Invited speaker on panel on 'New Reproductive Technologies and the Reproduction of Inequality', American Sociological Association Annual Conference: 'Interrogating inequality: linking micro and macro' , New York City, USA, August 10 - 13, 2013 (all expenses paid).

Informed a US audience about UK empirical research.
Year(s) Of Engagement Activity 2013
 
Description Brocher Foundation Fellowship 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact RP1 spent two months at the Brocher Foundation in Geneva, Switzerland, writing and networking with peers from a variety of disciplines and professional roles and developing early drafts of the fieldwork aide memoires and the project literature review.

Three academic publications.
Year(s) Of Engagement Activity 2008
 
Description Cafe Scientifique 2009 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact RA chaired a public discussion of issues directly relating to the project at which a leading scientist debated issues with a lay audience.

Wider local public knowledge of the scientific and the social scientific studies going on in the region.
Year(s) Of Engagement Activity 2009
 
Description Cafe Scientifique 2011 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? Yes
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact On 21st February 2011 prior to the project's International Symposium of invited experts we hosted a Café Scientifique at which the topic 'Should we use human reproductive tissue in scientific research' was debated by the PI and other delegates from the UK and Australia with an audience of the wider public from Newcastle upon Tyne and surrounding areas. Invitations to this event were also sent to our interviewees, as one means of disseminating our early findings to them. Owing to measures followed to protect confidentiality we do not know how many interviewees attended.

Around 40 people attended the event and the range of questions and comments indicated that the presentations had encouraged participants to consider issues they had not previously engaged with. The participants were drawn from a city noted for hosting world class research using human reproductive tissue and so the event will have contributed to ongoing public debate, potentially amongst future researchers and tissue providers.
Year(s) Of Engagement Activity 2011
 
Description Cafe Scientifique 2012 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact A small audience, including members of the public and a practicing clinician engaged in a wide ranging discussion of how best to acquire human eggs for research and drew comparisons with other types of human tissue procurement.

The RA received an invitation to present findings from the project and the wider implications arising, to a school group. Five participants took PEALS annual reviews, which includes a description of the project and its progress. They also took details of the project website.
Year(s) Of Engagement Activity 2012
 
Description Centre for Life School event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Schools
Results and Impact Around 100 pupils between 14 and 16 years of age attended a workshop session where social and ethical aspects of genetics and stem cell research were explored. The RA acted as one of two experts who were questioned by pupils.

Feedback from the event revealed a high level of interest in the ethical aspects of research using human eggs and embryos and the event is likely to be repeated in following years.
Year(s) Of Engagement Activity 2010
 
Description Durham: Centre for Ethics, Law and the Life Sciences, 2013 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Haimes, E. 'Juggling on a rollercoaster? Gains, loss and uncertainties in women's accounts of volunteering for an IVF 'egg sharing for research' scheme', Presentation to Centre for Ethics, Law and the Life Sciences, Durham University, UK, January 2013

Informed collaborators at Durham Law School about the value of exploring regulatory challenges through empirical research.
Year(s) Of Engagement Activity 2013
 
Description ELSI 2.0 inaugural conference 2015, Translations in Healthcare 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conference paper 'What's in a name? Identifying multiple representations of women who provide eggs for mitochondrial research' presented at the Inaugural ELSI 2.0 Conference 'Translations in Healthcare' 2015, in HeLEX, Oxford University. Drawing on MRC and Wellcome Trust-funded research, this paper reported on the social aspects of human egg provision to an international audience of academics (philosophy, bioethics, law, social sciences, sociology, anthropology, medical ethics, medicine) and clinical practitioners.
Year(s) Of Engagement Activity 2015
 
Description ISSCR Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Poster Presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ISSCR Annual Conference, Boston USA, June 2013: 'What is the role of reduced fees in persuading IVF patients to volunteer to provide eggs for SCNT research?'. Awarded an ISSCR Travel Award to attend conference and present poster.


Informed an international audience of primarilly practising stem cell scientists about the need to consider the socio-ethical aspects of the acquisition of human tissue for their research.
Year(s) Of Engagement Activity 2013
 
Description ISSCR Annual Conference: Ethics Focus Session 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Workshop Facilitator
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Panellist, Ethics Focus Session, "Somatic Cell Donation for Stem Cell Research: Current Challenges, Future Directions", organized by the ISSCR Ethics and Public Policy Committee at the ISSCR Annual Conference, Boston, USA, June 2013 - open to health professionals / scientists, academic researchers, commercial companies, patient groups.

Facilitated debate about the practical and ethical implications of somatic cell donation amongst a diverse audience of health professionals / scientists, academic researchers, commercial companies, patient groups.
Year(s) Of Engagement Activity 2013
 
Description Institute of Medical Ethics 2015 conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Conference paper 'Mitochondrial research and therapy: sharpening the socio-ethical debates' presented at the Institute of Medical Ethics Annual Research Conference 'SHARPENING THE EDGE OF BIOETHICS IN THE UK' 2015, in Newcastle. Drawing on MRC and Wellcome Trust-funded research, this paper reported on the social aspects of human egg provision to an audience of UK medical and medical ethics academics and clinical practitioners.
Year(s) Of Engagement Activity 2015
 
Description International Symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Our International Symposium of invited delegates gave us the opportunity to disseminate and debate findings from our research with an audience of professionals from a range of disciplines and representing a number of national and international policy-making bodies. Senior members of the following organisations attended: Medical Research Council; Human Fertilisation and Embryology Authority; Human Tissue Authority; ESRC Genomics Policy Forum; Human Developmental Biology Resource; Human Genetics Commission; Nuffield Council on Bioethics; Church of England; National Patient Safety Agency; National Research Ethics Service; the Society for Applied Philosophy; Genome Canada; Great Ormond Street Hospital for Children NHS Trust; ISSCR; The European Society for Human Reproduction and Embryology (ESHRE) and the UK Biobank Ethics and Governance Council.


Ongoing contact with a number of participants ensures continued interest in our work. Early findings from this project that were presented at the Symposium have been referenced in the Nuffield Council on Bioethics report 'Human bodies: donation for medicine and research'.
Year(s) Of Engagement Activity 2011
 
Description Linkoping University conference 2012 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presnted findings from empirical research: Haimes, E. 'Juggling on a rollercoaster? Gains, loss and uncertainties in IVF patients' accounts of volunteering for a U.K. 'egg sharing for research' scheme.', Keynote presentation to conference on 'Relational selves and families in medicine', Linkoping University, Sweden, December 10-12, 2012.

Contributed empirical findings from our UK study to an international audience debating the formation of relational selves through clinical encounters.
Following this conference arrangements were made for a doctoral candidate from Linkoping University to make an extended, 10 week, visit to the PI's Research Centre in 2014.
Year(s) Of Engagement Activity 2012
 
Description MitoSoc Symposium: The sociology of mitochondrial disorders and novel reproductive technologies 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The PI gave a presentation, 'Rendering the invisible, visible: the roles, values and interests of egg providers in mitochondrial research and therapy' at this symposium, that drew on work from this MRC and later Wellcome Trust projects. The symposium, of around 30 people, took place at the British Sociological Association offices in London and included social scientists, clinicians, embryologists and policymakers, as well as doctoral students and post-doctoral researchers. The RA gave a presentation 'Sharpening the cutting edge: considerations for the UK debates on embryonic interventions for mitochondrial diseases', which drew upon a study of UK embryo research policy and its implementation that was undertaken during this MRC award. Both presentations were well received and stimulated debate, particularly with the clinicians present.
Year(s) Of Engagement Activity 2017
URL https://www.dmu.ac.uk/documents/research-documents/health-and-life-sciences/reproduction-research/mi...
 
Description Mitochondria Matters, 2014 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The PI spoke within a session of the workshop concerned with the ethics of mitochondrial disease research and brought to the attention of the participants the women who provide eggs for such research. Findings from the MRC-funded study informed the presentation. Both the PI and RA participated in the event, which was organised by the Wellcome Trust Centre for Mitochondrial Research.

Contact was made with a number of groups and individuals who were interested in participating in the Wellcome Trust-funded study identified in the 'Further Funding' section.
Year(s) Of Engagement Activity 2014
 
Description PEALS Annual International Symposium 2013 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation paper presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Haimes, E. 'Like juggling on a rollercoaster? Gains, loss and uncertainties in IVF patients' accounts of volunteering for a U.K. 'egg sharing for research' scheme', Presentation to the PEALS Annual International Symposium, 'Privileged Embodiments: Securing and Resisting the 'Valuable' Body'
Newcastle, UK, March 21-22, 2013


Informed an international interdisciplinary audience about the impact of payment for bodily parts on women's perceptions of embodiment.
Year(s) Of Engagement Activity 2013
 
Description Press release 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact A press release was issued describing the start of the project.

Established media awareness of this social science project.
Year(s) Of Engagement Activity 2008
 
Description Project website 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact We have produced text for a publicly available project web page hosted on the PEALS Research Centre website.

Establishes awareness of this project amongst wider national and international publics.
Year(s) Of Engagement Activity 2008,2009
URL http://www.ncl.ac.uk/peals/research/project/2744
 
Description Project website update 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The project specific webpage was updated on completion of the project and it is intended to make four 'Briefing Notes' available through this page. These will be accessibly written summaries of the project outcomes and findings and are aimed at our research particpants, other academics, policymakers and funders.

The University has not yet implemented a scheme to log 'hits' or 'number of downloads', but this is under consideration.
Year(s) Of Engagement Activity 2012
 
Description Public meeting, Adelaide 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The PI was an invited speaker at a public meeting organised by the Ethics Centre South Australia (ECSA), Adelaide, Australia, March, 2010. She spoke and discussed 'Empirical investigations into socio-ethical aspects of acquiring eggs and embryos for human embryonic stem cell research: insights from the U.K.'.

Lively and prolonged discussion amongst members of a large and diverse audience comprising members of the health profession, various church groups and members of the wider public.
Year(s) Of Engagement Activity 2010
 
Description RP Norway 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at a workshop discussing approaches to bioethics amongst a mixed audience including health professionals.

Wider international awareness of the developments in SCNT research in the UK and the need for socio-ethical evaluation.
Year(s) Of Engagement Activity 2008
 
Description School visit 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach Local
Primary Audience Schools
Results and Impact RA gave a series of short talks and question and answer sessions that were designed to help school students prepare to debate ethical issues around stem cell science and used SCNT as a particular example where ethical issues are complex.

Students were made aware of the egg sharing scheme and the socio-ethical evaluation of it.
Year(s) Of Engagement Activity 2009
 
Description Uppsala conference presentation, 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Communicated the results of empirical research on egg providers perspectives on sharing eggs with stem cell researchers to an international audience at the symposium 'Sharing bodies within and across borders' at the Swedish Collegium for Advanced Study, Uppsala University, Sweden May 21-23, 2014. This presentation sparked questions and discussion afterwards.


This keynote presentation led to an invitation to contribute to an edited collection of papers.
Year(s) Of Engagement Activity 2014
 
Description Women's Institute event 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact The PI and RA attended a local Women's Institute meeting (WI) to explore with members how they might discuss the possibility of providing eggs to research with young women they know (daughters, sisters, nieces, granddaughters, friends, colleagues). Approximately 55 WI members enthusiastically engaged in discussions centred around a real-life scenario presented by Erica.
Year(s) Of Engagement Activity 2015
 
Description Workshop: Mobilizing stem cells: production and tourism in the human stem cell economy' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation Paper Presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Haimes, E. '"Egg sharing" for stem cell research: socio-ethical perspectives on money, markets and meanings', presented to international workshop on 'Mobilizing stem cells: production and tourism in the human stem cell economy' ,Pufendorf Institute, Lund University, Sweden, October 17, 2013

Workshop led to the establishment of the Stem Cell Cultures International Interdisciplinary Consortium, hosted by Professor Susanne Lundin and colleagues, Lund University, Sweden. Current members from Sweden, Netherlands, UK, USA and Canada.
Year(s) Of Engagement Activity 2013
 
Description World Stem Cell Summit 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact PI was invited to present a plenary lecture to key stakeholders in stem cell science, e.g. policy-makers, patient groups, commercial interests and public sector scientists. The lecture was made available as an open access web-cast accessible to the general public.

Contacts were made or renewed that will further enhance the analysis in this project.
Year(s) Of Engagement Activity 2009
URL http://worldstemcellsummit.com/2009-world-stem-cell-summit/
 
Description York presentation, 2010 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact The presentation sparked questions and discussion afterwards.

The audience reported appreciation of the information.
Year(s) Of Engagement Activity 2010