The International DSD Network (I-DSD)

Lead Research Organisation: University of Glasgow
Department Name: College of Medical, Veterinary &Life Sci

Abstract

Development of the sex organs is a very complicated process and sometimes it does not occur as planned. It is not completely clear as to how often the problem occurs but we think that for every 250 children born there may be one affected child. The severity of the problem varies, with the more severe problems happening much less often. Some may need to undergo tests so that we can find out more about the condition and some may need one or more operations. The need for these procedures may vary from one affected person to another. In addition, these conditions are often managed in slightly different ways in different places and it is not clear whether these differences in practice are important. To improve and maintain the best standard of practice we want to keep a brief and secure record of some of the affected persona??s care and from time to time invite the affected person to take part in studies which have been approved by hospitals. Some conditions are very rare and the only way we can improve our knowledge is to discuss cases and share experience with other specialists in the UK, the European Union and even beyond. With the help of the EU, a group of people at the University of Glasgow have developed a special secure register which contains brief, non-identifiable information on over 700 people with a range of conditions, which are collectively called disorders of sex development (DSD). This international register of DSD (I-DSD) has been helping doctors and scientists in pooling their knowledge and experience and it will help them in the future from doing the right studies. Not only does I-DSD need to be maintained and developed further, it also needs to develop a panel which oversees its use. The funding that is currently being sought will support I-DSD for the next 5 years so that researchers in the UK as well as elsewhere can work with doctors at improving the long-term outlook for affected children and adults.

Technical Summary

Disorders of sex development (DSD) include a range of rare diseases that pose a clinical challenge because of poor standardization and understanding of the value of diagnostic investigations, differences in clinical practice and a gap in knowledge about the links between aetiology, clinical practice and long-term clinical outcome.

Recent advances in information, clinical and basic sciences coupled with a greater drive for multicentre collaboration have raised the prospects for managing patients with these conditions. However, there is a need to harness all these initiatives so that common goals can be defined and reached. For DSD, this has already started to occur through regional and national networks of clinical and research excellence and more, recently, through the EuroDSD programme of research (www.eurodsd.eu).

The European DSD Register funded initially by the European Society of Paediatric Endocrinology (www.eurospe.org), and, subsequently by EUFP7, is a cornerstone of the EuroDSD programme. It allows clinicians and researchers to interact in a secure, virtual research environment (VRE) where the data are stored with parent, patient and clinician approval. Interest in the VRE is now extending beyond Europe and across a wider group of clinical and scientific disciplines. Currently, 23 centres in 16 countries from 4 continents have expressed an interest in using the Register and 12 centres in 9 countries from 2 continents are actively using the Register which contains over 700 cases.

We wish to sustain this unique and successful resource for research and extend its use beyond the original partners of the EuroDSD programme. In undertaking this, we wish to maintain and extend the clinical and research network and translate its efforts into improving standards of clinical care. This will be achieved through maintenance and further development of the VRE and regular meetings of the DSD network aimed at closer involvement of clinicians and patients in the research that arises from the Register.

Publications

10 25 50
 
Description Cross-Party Group On Rare Diseases At Scottish Parliament
Geographic Reach National 
Policy Influence Type Participation in advisory committee
 
Description SfE/BSPED UK consensus on initial approach to DSD (Chair)
Geographic Reach National 
Policy Influence Type Membership of a guidance committee
 
Description UK Guidelines for diagnosing and managing severe primary IGF-1 deficiency (Chair)
Geographic Reach National 
Policy Influence Type Membership of a guidance committee
 
Description Clinical Research Fellowship
Amount £80,000 (GBP)
Funding ID Martina Rodie 
Organisation Glasgow Children's Hospital Charity 
Sector Charity/Non Profit
Country United Kingdom
Start 09/2013 
End 08/2015
 
Description Clinical Research Fellowship
Amount £62,000 (GBP)
Funding ID Kathryn Cox 
Organisation Royal Hospital for Children 
Sector Hospitals
Country United Kingdom
Start 10/2012 
End 09/2013
 
Description Clinical Research Fellowship
Amount £60,000 (GBP)
Funding ID Suet Ching Chen 
Organisation Glasgow Children's Hospital Charity 
Sector Charity/Non Profit
Country United Kingdom
Start 02/2014 
End 02/2015
 
Description MRC research grant
Amount £652,400 (GBP)
Funding ID G1100236 
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 11/2011 
End 10/2016
 
Description McLatchie Trust Research Grant
Amount £24,000 (GBP)
Organisation McLatchie Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 09/2011 
End 08/2013
 
Description Medical Research Scotland grant
Amount £147,067 (GBP)
Organisation Medical Research Scotland 
Sector Charity/Non Profit
Country United Kingdom
Start 09/2011 
End 08/2013
 
Description Project Grants (HP-PJ) 3rd EU Health Programme) Topic: HP-06-2016
Amount € 660,000 (EUR)
Funding ID 777215 
Organisation European Commission 
Department Consumer, Health and Food Executive Agency
Sector Public
Country Luxembourg
Start 02/2018 
End 01/2021
 
Description Yorkhill Children's Charity
Amount £8,600 (GBP)
Organisation Glasgow Children's Hospital Charity 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2013 
End 07/2014
 
Title I-CAH Registry 
Description Research database of patients with CAH 
Type Of Material Biological samples 
Year Produced 2012 
Provided To Others? Yes  
Impact Improve patient care. Raise understanding of the condition. 
URL http://www.i-cah.org
 
Title I-DSD Registry 
Description Registry of patients with DSD and some biosamples 
Type Of Material Biological samples 
Year Produced 2008 
Provided To Others? Yes  
Impact Development of a growing network of clinicians and researchers internationally to improve knowledge of DSD and enhance patient care 
URL http://www.i-dsd.org
 
Title I-CAH Registry 
Description International registry of patients with Congenital Adrenal Hyperplasia 
Type Of Material Database/Collection of data 
Year Produced 2013 
Provided To Others? Yes  
Impact Support for a drug trial (pending) Development of a growing network of clinicians and researchers internationally to improve knowledge of CAH and enhance patient care 
URL http://www.i-cah.org
 
Title I-DSD Registry 
Description An international registry of patients with a range of conditions in Disorders of Sex Development 
Type Of Material Database/Collection of data 
Year Produced 2008 
Provided To Others? Yes  
Impact Over 1400 patients with rare conditions of DSD registered to support research studies. Development of a growing network of clinicians and researchers internationally to improve knowledge of DSD and enhance patient care 
URL http://www.i-dsd.org
 
Description BSPED DSD SIG 
Organisation University of Birmingham
Country United Kingdom 
Sector Academic/University 
PI Contribution A Special Interest Group for DSD in the British Society for Paediatric Endocrinology & Diabetes - Founder and Chair
Collaborator Contribution Development of joint research projects
Impact Preparation of research grant proposals
Start Year 2010
 
Description COST DSDnet 
Organisation University of Lubeck
Department Division of Paediatric Endocrinology
Country Germany 
Sector Academic/University 
PI Contribution forming part of a European network for DSD care and support and lead of WG5
Collaborator Contribution forming part of a European network for DSD care and support
Impact World-wide survey of paediatric endocrinologists launched October 2014
Start Year 2013
 
Description Endo-ERN 
Organisation European Commission
Department Consumer, Health and Food Executive Agency
Country Luxembourg 
Sector Public 
PI Contribution I-DSD acted as a model for research registries and clinical and research networks. It also allowed this collaboration to be successful in applying for further grants
Collaborator Contribution This project is led by LUMC but has a number of other active partners.
Impact The most important outcome that has resulted from this partnership is a successful new application to CHAFEA led by myself. This project, European Registries fir Rare Endocrine Conditions was funded by EU CHAFEA this year.
Start Year 2016
 
Description Euro-DSD Network 
Organisation Erasmus Medisch Centrum - Sophia Children's Hospital
Country Netherlands 
Sector Hospitals 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation Hospices Civils de Lyon
Department Molecular Endocrinology & Rare Diseases
Country France 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation Karolinska Institute
Department Department of Women's and Children's Health
Country Sweden 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation Pasteur Institute, Paris
Department Human Evolutionary Genetics
Country France 
Sector Charity/Non Profit 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University College London
Department Institute of Child Health
Country United Kingdom 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University of Birmingham
Department Centre for Endocrinology, Diabetes and Metabolism
Country United Kingdom 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University of Cambridge
Department Department of Paediatrics
Country United Kingdom 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University of Kiel
Department Division of Pediatric Endocrinology and Diabetes
Country Germany 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University of Lubeck
Department Department of Paediatrics and Adolescent Medicine
Country Germany 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University of Münster
Department Institute of Human Genetics
Country Germany 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description Euro-DSD Network 
Organisation University of Pisa
Department Department of Reproductive Medicine and Pediatrics
Country Italy 
Sector Academic/University 
PI Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Collaborator Contribution sharing of knowledge of DSD through Registry and Network Collaboration
Impact Continuation of the network through the I-DSD Network Grant
Start Year 2008
 
Description I-CAH Network 
Organisation University of Sheffield
Country United Kingdom 
Sector Academic/University 
PI Contribution To support an international patient registry on Congenital adrenal hyperplasia including development of specific modules to capture data that will support a pharmaceutical study and creation of a website for patients and physicians
Collaborator Contribution To use the registry to add patients with CAH ad participate in the drug trial.
Impact I-CAH website
Start Year 2014
 
Description 5th I-DSD symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Event brought together 220 professionals from 32 countries with interests in the care and management of patients with DSD, researchers, patient support groups, patients over a 3 day period. There were almost 50 oral presentations in total and 50 posters which generated much discussion in sessions, during breaks and in the evenings. Collaborations were initiated and the event gave existing collaboration the chance to meet up face-to-face to progress projects and initiatives

After the event there was an increase in requests for further information, collaboration on research and new users joiing the registryin order to add patients from their centre.
Year(s) Of Engagement Activity 2013,2015
URL http://www.gla.ac.uk/idsdsymposium
 
Description Biannual International Symposium on DSD 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation Workshop Facilitator
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Increasing number of participants including researchers and patients/parent support groups (2013: 140, 2017: 220)

Facilitated woskhop ofr new investigators in DSD fiels
Parallel workshop for Parents/Patient support groups.
Interaction with parents/patients during main symposium
Year(s) Of Engagement Activity 2013,2015,2017
URL http://www.gla.ac.uk/idsdsymposium
 
Description COST DSDnet Working Group 4 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Participants in your research and patient groups
Results and Impact Create surveys of health professionals and patient groups in order to develop the basis for e European Reference Network in DSD

Early stages but beginning to develop a map of centres of expertise and facilities across Europe
Year(s) Of Engagement Activity 2015
URL http://www.dsdnet.eu
 
Description ESPE 2017 - Cools 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact European Consensus On The Standardized Follow- Up Of Individuals Who Have A Dsd Across The Life Span.
Year(s) Of Engagement Activity 2017
 
Description ESPE 2017 - Daniel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Defining The Dose, Type And Timing Of Glucocorticoid And Mineralocorticoid Replacement In 256 Children And Adults With Congenital Adrenal Hyperplasia (Cah) In The I-Cah Registry.
Year(s) Of Engagement Activity 2017
 
Description ESPE 2017 - Dessens 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Understanding The Needs Of Professionals Who Provide Psychosocial Care For Children And Adults With DSD
Year(s) Of Engagement Activity 2017
 
Description ESPE 2017 - Riedl 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Current Surgical Practice In Dsd: Results Of The Cost/Dsdnet Surgery Survey.
Year(s) Of Engagement Activity 2017
 
Description ESPE 2017 - Van der Linde 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Management Of Fludrocortisone And Salt Therapy In 0-3 Year Old Children With Congenital Adrenal Hyperplasia (CAH) - Preliminary Analysis.
Year(s) Of Engagement Activity 2017
 
Description I-DSD Registry Newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact A biennial newsletter produced to update the public on the I-DSD registry and network via a newsletter published on the I-DSD website

After each issue of the newsletter, visits to the I-DSD website rise sharply and correspondence increases.
Year(s) Of Engagement Activity 2012,2013,2014,2015
URL http://www.gla.ac.uk/idsd
 
Description Oral presentation at ENDO 2013 (Kathryn Cox) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Talk attended by 100 members of the international endocrinology community

??
Year(s) Of Engagement Activity 2013
URL http://www.endocrine-abstracts.org/ea/0031/ea0031p148.htm
 
Description Oral presentation at ESPE 2012 to DSD Working Group (Jillian Bryce) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact An update of the I-DSD registry was presented to the Working Group on DSD at ESPE 2012, Leipzig, Germany. The WG audience comprised around 300 members (clinicians and researchers) in the field of paediatric endocrinology, many of whom are experts in the field of DSD.

The update resulted in an increase in the number of people registering to use the I-DSD registry for adding cases or conducting research.
Year(s) Of Engagement Activity 2012
URL http://www.espe.org
 
Description Oral presentation at ESPE Barcelona 2015 (F Ahmed) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Participants in your research and patient groups
Results and Impact An update of the I-DSD and I-CAH registry was presented to the Working Group on DSD at ESPE Meeting 2015, Barcelona, Spain. The WG audience comprised around 400 members (clinicians and researchers) in paediatric endocrinology, many of whom are experts in the field of DSD.

After the talk there was an increase in the number of registered users of the I-DSD registry and requests for research
Year(s) Of Engagement Activity 2015
URL http://abstracts.eurospe.org/hrp/0084/hrp0084WG3.4.htm
 
Description Oral presentation at ESPE Dublin 2014 (Jillian Bryce) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Participants in your research and patient groups
Results and Impact An update of the I-DSD registry was presented to the Working Group on DSD at Joint Meeting 2014, Dublin, Ireland. The WG audience comprised around 400 members (clinicians and researchers) in paediatric endocrinology, many of whom are experts in the field of DSD.

After the talk there was an increase in the number of registered users of the I-DSD registry
Year(s) Of Engagement Activity 2014
URL http://www.eurospe.org
 
Description Oral presentation at ESPE Joint Meeting 2013 (Zosia Kolesinska) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Paper Presentation
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Talk on research using the I-DSD registry data give to an audience of >100 paediatric endocrinologists.

??
Year(s) Of Engagement Activity 2013
URL http://www.jointmeeting2013.org
 
Description Oral presentation at I-DSD symposium (Kathryn Cox) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Paper Presentation
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact A talk using the I-DSD registry data given to 100 academic peers and members of the affected DSD community

??
Year(s) Of Engagement Activity 2013
URL http://www.gla.ac.uk/idsdsymposium
 
Description Oral presentation at I-DSD symposium (Martina Rodie) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Paper Presentation
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Talks given on research that used I-DSD registry data. Audience of around 100 academic peers and affected members of the public

??
Year(s) Of Engagement Activity 2013
URL http://www.gla.ac.uk/idsdsymposium
 
Description Oral presentation at I-DSD symposium (Zosia Kolesinska) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Paper Presentation
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Audience of around 100 academics and affected members of the public. the talk was based on research using the I-DSD registry data.

??
Year(s) Of Engagement Activity 2013
URL http://www.gla.ac.uk/idsdsymposium
 
Description Oral presentation to DSD Working Group at the 9th Joint Meeting of Paediatric Endocrinology (Jillian Bryce) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact An update of the I-DSD registry was presented to the Working Group on DSD at Joint Meeting 2013, Milan, Italy. The WG audience comprised around 300 members (clinicians and researchers) in the field of paediatric endocrinology, many of whom are experts in the field of DSD.

The update resulted in an increase in the number of people registering to use the I-DSD registry for adding cases or conducting research.
Year(s) Of Engagement Activity 2013
URL http://www.jointmeeting2013.org
 
Description Poster at ENDO 2016 (Boston) (Angela Lucas-Herald) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Oral presentation at ENDO conference attended by over 2000 participants. Talk sparked much discussion immediately after and for the duration of the conference
Year(s) Of Engagement Activity 2016
URL http://press.endocrine.org/doi/10.1210/endo-meetings.2016.re.13.or10-1
 
Description Poster at ESPE 2016 (Paris) (Laura Lucaccioni) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presented at ESPE annual conference with over 3000 attendees. Much discussion with peers at session with potential for future collaboration/new research.
Year(s) Of Engagement Activity 2016
URL http://abstracts.eurospe.org/hrp/0086/hrp0086p1-p744.htm
 
Description Poster at ESPE 2016 (Paris) (Mariam Kourime) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presented at ESPE annual conference with over 3000 attendees. Much discussion with peers at session with potential for future collaboration/new research.
Year(s) Of Engagement Activity 2016
URL http://abstracts.eurospe.org/hrp/0086/hrp0086p1-p356.htm
 
Description Poster at ESPE 2016 (Paris) (Marie Lindhart-Johansen) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presented at ESPE annual conference with over 3000 attendees. Much discussion with peers at session with potential for future collaboration/new research.
Year(s) Of Engagement Activity 2016
URL http://abstracts.eurospe.org/hrp/0086/hrp0086p1-p352.htm
 
Description Poster presentation at BES 2013 (Kathryn Cox) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Poster Presentation
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Poster presentation on research using the I-DSD registry data

??
Year(s) Of Engagement Activity 2013
 
Description Poster presentation at ESPE Barcelona 2015 (Anat Segev-Becker) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation poster presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact poster attracted much attention from audience

requests for further information and collaboration increased following the poster presentation
Year(s) Of Engagement Activity 2015
URL http://abstracts.eurospe.org/hrp/0084/hrp0084p2-318.htm
 
Description Poster presentation at ESPE Barcelona 2015 (Ellen Maris) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation poster presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Lots of interest generated with the audience

Increase in requests for further information and collaboration
Year(s) Of Engagement Activity 2015
URL http://abstracts.eurospe.org/hrp/0084/hrp0084p2-310.htm
 
Description Poster presentation at ESPE Dublin 2014 (Arundathi Jayasena) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation poster presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Lots of interest generated in the poster with many questions

Contacted by several participants keen for further information and collaboration
Year(s) Of Engagement Activity 2014
URL http://abstracts.eurospe.org/hrp/0082/hrp0082p2-d2-581.htm
 
Description Poster presentation at ESPE Joint Meeting 2013 (Kathryn Cox) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Poster Presentation
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Poster presentation to ESPE Joint Meeting -= potential audience of >1000 paediatric endocrinologists

??
Year(s) Of Engagement Activity 2013
URL http://www.jointmeeting2013.org
 
Description Poster presentation at ESPE Joint Meeting 2013 (Martina Rodie) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Poster presentation to ESPE Joint Meeting -= potential audience of >1000 paediatric endocrinologists

After presentation there was an increase in request for further information and collaboration
Year(s) Of Engagement Activity 2013
URL http://www.eurospe.org/
 
Description Poster presentation at ESPE Meeting 2015 (Andreas Kyriakou) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Health professionals
Results and Impact Presentation attracted many interested participants who asked many interesting questions

Increase in requests for further information and collaboration possibilities
Year(s) Of Engagement Activity 2015
URL http://abstracts.eurospe.org/hrp/0084/hrp0084p2-307.htm
 
Description Poster presentation at ESPE Meeting 2015 (Andreas Kyriakou) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Health professionals
Results and Impact Poster attracted a lot of interest with many questions

Increase in requests for further information and collaboration possibilities
Year(s) Of Engagement Activity 2015
URL http://abstracts.eurospe.org/hrp/0084/hrp0084p1-61.htm
 
Description Poster presentation at ESPE Meeting 2015 (Angela Lucas-Herald) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation poster presentation
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster attracted much attention with many questions asked

Increase in requests for further information and collaboration possibilities
Year(s) Of Engagement Activity 2015
URL http://abstracts.eurospe.org/hrp/0084/hrp0084p1-58.htm