Linkage, analysis and dissemination of national birth and maternity data for England and Wales.

Lead Research Organisation: City University London

Abstract

Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.

Technical Summary

1 To build on the work already done to link birth registration data to the NHS numbers for babies dataset by further linking these data to the maternity hospital episode statistics for England and the patient episode database Wales (PEDW) linked to the national community child health database for Wales. 2 To compare and validate key common data items across datasets, notably the items in the core HES and PEDW records and, where available, items from the maternity tail including gestational age, birthweight, ethnicity and multiplicity. 3 To compare routine data submitted to national systems with those recorded in and available from local systems in east London and north-east England. 4 To assess whether the introduction of payment by results has led to an improvement in the quality and completeness of data in maternity HES, notably in the maternity tail. 5 To explore the scope for using the dataset to analyse data about care given at delivery and parity record

Publications

10 25 50

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Dattani N (2011) Linking maternity data for England, 2005-06: methods and data quality. in Health statistics quarterly

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Dattani Nirupa (2012) Linking maternity data for England 2007: methods and data quality. in Health statistics quarterly / Office for National Statistics

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Dattani Nirupa (2012) Linking maternity data for Wales, 2005-07: methods and data quality. in Health statistics quarterly / Office for National Statistics

 
Description Citation of data about gestational age and ethnicity in national policy documents
Geographic Reach National 
Policy Influence Type Citation in other policy documents
 
Description Barts and the London Charity
Amount £19,938 (GBP)
Organisation Barts Charity 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2011 
End 12/2013
 
Description National Institute for Health Research
Amount £416,845 (GBP)
Funding ID 12/136/93 
Organisation NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC) 
Sector Academic/University
Country United Kingdom
Start 01/2014 
End 04/2017
 
Title Linkage of data recorded at birth registration and notification in England and Wales to data about care at birth 
Description Linkage of data from birth registration and notification to data from Maternity Hospital Episode Statistics and separately,to Patient Episode Database Wales 
Type Of Material Database/Collection of data 
Year Produced 2018 
Provided To Others? Yes  
Impact It enabled us to analyse births by time of day and day of the week in relation to data collected about care at birth. Data are held in secure facilities and can be used by other researchers on application to relevant organisations. The TIGAR project is using data we have linked. 
 
Description TIGAR: Tracking the Impact of Gestational Age on Health, Educational and Economic outcomes: a Longitudinal Record Linkage Study 
Organisation University of Oxford
Department National Perinatal Epidemiology Unit Oxford
Country United Kingdom 
Sector Academic/University 
PI Contribution Contribute experience of data linkage of birth, maternity and child health data derived from earlier projects funded by MRC and NIHR
Collaborator Contribution Obtained funding from MRC MR/M01228X/1 for further analysis and linkage.
Impact Described along with previous projects which fed into it in a posters presented at the Farr Institute International Conference, St Andrews, Scotland, August 26-28, 2015 Using data linkage to build a national database of data about birth and its outcome for policy analysis in England and Wales Alison Macfarlane and Nirupa Dattani Centre for Maternal and Child Health Research, City University London
Start Year 2015
 
Description maternity data linkage project partnership 
Organisation BirthChoiceUK
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Design of project
Collaborator Contribution Linkage of data for Wales
Impact See Publications from this project
 
Description maternity data linkage project partnership 
Organisation Government of Wales
Department Health Statistics Wales
Country United Kingdom 
Sector Public 
PI Contribution Design of project
Collaborator Contribution Linkage of data for Wales
Impact See Publications from this project
 
Description maternity data linkage project partnership 
Organisation NHS Direct Wales
Department Health Solutions Wales
Country United Kingdom 
Sector Public 
PI Contribution Design of project
Collaborator Contribution Linkage of data for Wales
Impact See Publications from this project
 
Description maternity data linkage project partnership 
Organisation Newcastle University
Country United Kingdom 
Sector Academic/University 
PI Contribution Design of project
Collaborator Contribution Linkage of data for Wales
Impact See Publications from this project
 
Description maternity data linkage project partnership 
Organisation Office for National Statistics
Department Health Statistics
Country United Kingdom 
Sector Public 
PI Contribution Design of project
Collaborator Contribution Linkage of data for Wales
Impact See Publications from this project
 
Description All Party Parliamentary Group on Medical Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? Yes
Type Of Presentation Poster Presentation
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Attendants, who included, MPs, their researchers, representatives of funding bodies and the chair of the new NHS Research Authority viewed our poster and discussed the contents with us. The event took place on July 11 2012.

Together with the other poster presenters we contributed to a great appreciation of the benefits of access to data for medical and health care research.
Year(s) Of Engagement Activity 2012
 
Description Health data: blight or blessing 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The event took place on July 3 2012 and prompted useful exchanges of ideas between statisticians and parliamentarians.

This forms part of the Royal Statistical Society's ongoing Getsats campaign for statistical literacy.
Year(s) Of Engagement Activity 2012
 
Description Maternity Information Exchange meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Health professionals
Results and Impact Drew attention availability of linked data to statisticians working in policy departments in the four countries of UK, notably the Department of Health for England.

Department considering use of data for policy-related analysis.
Year(s) Of Engagement Activity 2011
 
Description Talk on impact of care.data on data linkage 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Talk at a discussion meeting on the wider impact of care.data on use of national health data and data linkage. The talk prompted questions and discussions afterwards.

The talks and slides were put on the Royal Statistical Society web site and so will reach a wider audience.
Year(s) Of Engagement Activity 2014
URL http://www.statslife.org.uk/events/eventdetail/264/-/linking-health-care-records-for-statistical-ana...