The Scottish eHealth Informatics Research Centre

Lead Research Organisation: University of Dundee

Abstract

Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.

Technical Summary

Background: The four health informatics research centres (HIRCs) were developed in isolation from one another. At their collective birth (March 2013), however, the Centres wish to grasp the opportunity to multiply their activities by creating a single UK institute (the ‘Farr Institute for Health Informatics Research’).
Vision: To harness the knowledge from health records data to improve the health of patients and communities by establishing a pre-eminent interdisciplinary UK health informatics research institute. The Farr Institute will be concentrated in the four Centres, act as the nexus of the wider UK Institute network and make the UK the come-to place for data-intensive, translational health science.
Aim: The aim of the Farr Institute is to integrate and scale, at the UK level, the work of the four Centres. The Institute will thus provide a new UK-wide focus for each of the workstreams in the Centres: e-infrastructure, research, capacity and public engagement.
Objectives for the capital spend
(i) E-Infrastructure: To establish an outstanding UK e-infrastructure across the Centres. Specifically by establishing a co-ordinated approach to safe havens for the storage and analysis of detailed, individual-level health data, and the formation of digital laboratories for larger scale research across the Centres and their collaborators.
(ii) Research: To enhance research productivity across the UK by widening access to well-described datasets through a prominent UK-wide portal, bringing new datasets to the research community and enhancing communication. The Institute will widen research partnerships beyond the four Centres, developing strategic UK links between academia, industry and the NHS.
(iii) Capacity: To develop a UK-wide co-ordinated offering for training and capacity development to address the acute skills shortage in health informatics research.
(iv) Public engagement: To engage the public and patients across the UK and locally, in a novel range of activities to enhance public trust in the use of health records for research.

People

ORCID iD

Publications

10 25 50

 
Description Academy of Medical Science
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://www.acmedsci.ac.uk/publications/?cat=Workshop%2C+symposium+and+lecture+reports
 
Description Academy of Medical Science
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://www.acmedsci.ac.uk/publications/?cat=Workshop%2C+symposium+and+lecture+reports
 
Description Cabinet Office consultation about good governance frameworks in data linkage
Geographic Reach National 
Policy Influence Type Participation in advisory committee
Impact Publication of CABINET OFFICE INITIAL DISCUSSION DOCUMENT ON DATA SHARING POLICY
URL http://datasharing.org.uk/current-proposals/
 
Description Chair of Scottish Digital Health and Care Strategy Strategic Overisight Group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL http://www.ehealth.nhs.scot/strategies/the-person-centred-ehealth-strategy-and-delivery-plan-stage-o...
 
Description Chair of Scottish Government Pharmacy Scoping Taskforce
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Chair, International Scientific Advisory Committee, OPTIMISE Project (CIHR Grant awarded to Prof Laura Rosella et al. to improve the use of routinely collected population-based data for health system and policy action), CANADA
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
URL http://www.dlsph.utoronto.ca/faculty-profile/rosella-laura-c/
 
Description Guangdong Province FAO
Geographic Reach Multiple continents/international 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Guangdong Province FAO return visit
Geographic Reach Multiple continents/international 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Guangdong Province Party Secretary visit
Geographic Reach Multiple continents/international 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Lead, "Evidence-Based Prioritization of Public Health Problems in Scotland" Project (for Scottish Government/NHS)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
Impact In November 2017, Prof Frank was asked to chair a half-dozen-member Stakeholder/Expert Advisory Group to create, based on scientific evidence, a set of criteria for use in a broadly participatory process to set public health priorities for Scotland, as one step in an ongoing Public Health Review headed by Dr Marion Bain, for the Scottish Government (SG) and NHS. Those criteria were created within six weeks, submitted to the Review, and are now (early 2018) being used in a series of Scotland-wide participatory stakeholder workshops to actually set public health priorities to guide a forthcoming major reorganisation of public health services in Scotland. Prof Frank is also a member of a small Task Force to synthesise all the results of that Scotland-wide stakeholder consultation to prioritise its public health problems, using the methodology his Advisory Group produced in late 2017, which is to meet for the first time on March 15, 2018, and then report to the SG's PH Review.
URL http://www.gov.scot/Topics/Health/Healthy-Living/Public-Health-Reform
 
Description Member of International Independent Expert Advisory Panel to advise the Scottish Government on the Scottish Digital Health and Care Strategy
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Member, International Advisory Board, School of Population and Global Health, McGill University, Montreal, CANADA
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
URL https://www.mcgill.ca/spgh/
 
Description Member, Scientific Advisory Group, Better Start Bradford Innovation Hub
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL https://borninbradford.nhs.uk/research/grants/better-start-bradford-innovation-hub/
 
Description Participation in Academy of Medical Sciences roundtable on real world evidence
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Participation in MCRI international review of research strategy
Geographic Reach Australia 
Policy Influence Type Participation in a advisory committee
 
Description Research Project Supervision for 12 MPH students since 2013
Geographic Reach Multiple continents/international 
Policy Influence Type Influenced training of practitioners or researchers
Impact Each year since 2013, three or four graduating MPH students from the University of Edinburgh's on-campus MPH programme have selected SCPHRP as the venue for conducting their three-month MPH research project, under the active supervision of SCPHRP Fellows and staff. While they are based with us, they also become familiar with how SCPHRP works with its policy and practice stakeholders to move its research into action. This contributes to the research and knowledge transfer skills of these graduates - many of them from abroad -- who are joining the international public health professional workforce. All our student evaluations of their project time with us have been very positive.
 
Description Scottish Government Data Management Board
Geographic Reach National 
Policy Influence Type Membership of a guidance committee
Impact The Board have published a Data Vision for Scotland and associated Strategic Action Plan.
URL http://www.scotland.gov.uk/Topics/Economy/digital/digitalservices/datamanagement/dmbvfs/dmbvfspdf
 
Description Scottish Government Short Life Working Group on research training
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Baily Thomas Foundation
Amount £109,310 (GBP)
Organisation Baily Thomas Charitable Fund 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description British Council Iran SEED funding
Amount £5,000 (GBP)
Organisation British Council 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2017 
End 03/2018
 
Description CIHR- Filling for the void: public engagement around a new model for access to research resources
Amount $530,000 (CAD)
Funding ID 367424 
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start  
 
Description Citizen Jury- Use of Guthrie Cards for Research Purposes
Amount £40,000 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description DETECT CANCER EARLY PROGRAMME
Amount £80,000 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 04/2017 
End 03/2019
 
Description DEVELOPMENT TRUST
Amount £5,000 (GBP)
Organisation University of Aberdeen 
Sector Academic/University
Country United Kingdom
Start 01/2017 
End 12/2018
 
Description DOES PLACE OF RESIDENCE, DISTANCE AND TRAVELLING TIMES FROM HEALTH SERVICES WITHIN NORTH-EAST SCOTLAND INFLUENCE THE DIAGNOSTIC PATHWAY AND OUTCOMES FROM EIGHT COMMON CANCERS: ANALYSIS OF A LINKED DATASET
Amount £137,669 (GBP)
Organisation Cancer Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 11/2016 
End 10/2018
 
Description Dementia Global Challenge
Amount £9,980 (GBP)
Organisation Government of Scotland 
Department Scottish Funding Council
Sector Public
Country United Kingdom
Start 05/2017 
End 04/2018
 
Description EMA - Diclofenac pharmacovigilance Study
Amount € 198,854 (EUR)
Organisation European Medicines Agency 
Sector Public
Country United Kingdom
Start 07/2017 
End 12/2018
 
Description EMA - Hydroxyzine pharmacovigilance study
Amount € 199,384 (EUR)
Organisation European Medicines Agency 
Sector Public
Country United Kingdom
Start 04/2018 
End 12/2019
 
Description FAMILIAL HYPERCHOLESTEROLAEMIA
Amount £840,509 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2017 
End 03/2020
 
Description Fast-tracking Health Innovation for NHS Scotland (MRC Confidence in Concept 2017) / R170262-104
Amount £37,063 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 03/2017 
End 02/2019
 
Description Global Challenges Research Fund Networking Grant
Amount £24,956 (GBP)
Organisation Academy of Medical Sciences (AMS) 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2018 
End 02/2019
 
Description Improving Health with Environmental Data Call
Amount £61,532 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 12/2016 
End 01/2018
 
Description Improving Health with Environmental Data Call
Amount £60,000 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 12/2016 
End 01/2018
 
Description Improving Health with Environmental Data Call
Amount £63,000 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 12/2016 
End 01/2018
 
Description MODELLING LIFE-COURSE DETERMINANTS OF COGNITIVE RESILIENCE USING ROUTINELY COLLECTED AND COHORT DATA.
Amount £79,922 (GBP)
Organisation Roland Sutton Academic Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 12/2016 
End 11/2018
 
Description NHS GRAMPIAN PUBLIC HEALTH
Amount £36,000 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 11/2017 
End 10/2018
 
Description NHS Grampian R&D Pump Priming
Amount £23,502 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 03/2018 
End 02/2019
 
Description Roland Sutton Academic Trust
Amount £40,599 (GBP)
Organisation Roland Sutton Academic Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2018 
End 12/2018
 
Description Rutherford Fund Fellowship at HDR UK: Risk Prediction in Pharmacoepidemiology
Amount £300,466 (GBP)
Funding ID MR/S003967/1 
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 02/2018 
End 02/2021
 
Description SPOR Innovative Clinical Trial Multi-Year Grant
Amount $1,065,001 (CAD)
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 07/2017 
End 06/2021
 
Description SULSA Pooling Network
Amount £4,850 (GBP)
Organisation Scottish Universities Life Sciences Alliance 
Sector Academic/University
Country United Kingdom
Start 10/2017 
End 09/2018
 
Description SYMPTOMS ASSOCIATED WITH CANCER [Prof P Hannford]
Amount £415,272 (GBP)
Organisation Cancer Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2017 
 
Description Scottish School of Primary Care/Scottish Government
Amount £120,000 (GBP)
Organisation Government of Scotland 
Sector Public
Country United Kingdom
Start 07/2017 
End 06/2018
 
Description Sustainable health interventions to tackle the emerging threat of antimicrobial resistance (Newton Funds Institutional Links)
Amount £99,909 (GBP)
Organisation British Council 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2017 
End 03/2018
 
Description Wellcome Trust/University of Edinburgh ISSF3 Citizen's Jury on use of Guthrie Cards for Research Purposes
Amount £40,000 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2017 
End 03/2018
 
Title NHS National Services Scotland (NSS) national safe haven 
Description Hosted by the EPCC provides a secure environment to provide access to researchers for data analysis to anonymised linked data from NSS national data sets. 
Type Of Material Data handling & control 
Year Produced 2016 
Provided To Others? Yes  
Impact Increased the number of data linkage projects which eDRIS can set up and will allow for more automated systems to be developed. Allowed improved governance and security for provisioning and access to national data sets. 
URL http://www.farrinstitute.org/news/creating-a-safe-haven-for-health-data
 
Title The Scottish National Prescribing Information System (PIS) 
Description PIS provides summary information on reimbursed medicines from 1993, and individual prescribing and dispensing data since 2009 with the incorporation of the Community Health Index (CHI) number, 
Type Of Material Database/Collection of data 
Year Produced 2016 
Provided To Others? Yes  
Impact The data in PIS is used to enhance decisions about Scottish healthcare to improve the health of the people of Scotland. Several studies using PIS have already been published, for example: Use of antimicrobials and the risk of acquiring a healthcare associated infection Use of direct oral anticoagulants in patients with atrial fibrillation Factors influencing the prescribing of antidepressants The burden of irritable bowel syndrome Enhancing prescribing efficiency in Europe 
URL http://www.isdscotland.org/Products-and-Services/eDRIS/
 
Description Innovative Healthcare Delivery Programme 
Organisation Farr Institute of Health Informatics Research
Department Innovative Healthcare Delivery Programme
Country United Kingdom 
Sector Learned Society 
PI Contribution The Farr Institute provides resources infrastructure to the IHDP and knowledge and research expertise. Prof Andrew Morris is on the Steering committee.
Collaborator Contribution The aims and objectives of IHDP align with The Farr Institute. The programme brings leadership and focus to realise the vision of harnessing the power of informatics to link NHS Scotland's rich data assets and deliver value rapidly to patients, healthcare professionals, and the wider NHS. All high performing healthcare systems internationally are supported by systematic data collection, collation, analysis, and sharing. NHS Scotland aspires to be recognised as one of those high performing systems and the IHDP has been established to provide the strategic framework to achieve this aim.
Impact Project funded by the Scottish Funding Council and lead by the Data Lab Innovation centre.
Start Year 2015
 
Description MQ Transforming mental health through research 
Organisation MQ Transforming Mental Health
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The Farr Institute have hosted and participated in one day conferences hosted in Edinburgh and Swansea to facilitate the use of linked administrative data in mental health research
Collaborator Contribution Joint Meeting organisers
Impact Meetings in Edinburgh http://www.farrinstitute.org/events-courses/event/mental-health-research-in-the-digital-age and Swansea.
Start Year 2016
 
Description Research visit from Prof Gavin Stuart, University of British Columbia 
Organisation University of British Columbia
Country Canada 
Sector Academic/University 
PI Contribution Enhance and strengthen the exchange and sharing of information between the Parties. Facilitate the sharing of experience related to sustainability and strategic policy and enable realization of the value of public data for public benefit
Collaborator Contribution We have hosted Prof Stuart at Farr Scotland and are liaising with NHS Research Scotland to identify suitable collaborations within Scotland.
Impact Research visit has just commenced so no outputs yet.
Start Year 2017
 
Description Research visit from Prof Martin Dawes from the University of British Columbia 
Organisation University of British Columbia
Country Canada 
Sector Academic/University 
PI Contribution Farr Scotland hosted a visit by Prof Dawes to as part of a memorandum of understanding between the Government of British Columbia and the Scottish Government to facilitate the sharing of experience related to sustainability and strategic policy and enable realization of the value of public data for public benefit.
Collaborator Contribution Sharing of information to assist in the collaboration between the two governments in data science and precision medicine.
Impact The initiation of collaboration in data science and precision medicine.
Start Year 2017
 
Description 'Gearing an entire country for Health Data Science', Royal Society Science Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description 'Go-DARTS History - Establishing the Go-DARTS cohort' at the Go-DARTS 20th Annual Symposium 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description 'Working together to identify and address the issues' at event called 'Grand Challenges in Artificial Intelligence in Clinical Radiology & Clinical Oncology' at the Wellcome Collection 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description Attitudes to data linkage in the UK and Sweden 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact This was a Seminar given at the Higher Series of the Centre for Research Ethics & Bioethics (CRB) at the University of Uppsala, Sweden
Year(s) Of Engagement Activity 2017
 
Description Big Data in Health (KTN event, Cambridge) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Talk led to networking opportunities and stimulated new collaborative ideas.


Support and programme development for the Digital Health Assembly -Open Innovation conference to be held in Feb 2015 partly supported by the Farr Institute.
Year(s) Of Engagement Activity 2014
URL http://researchfunding.sunderland.ac.uk/joint-ict-ktn-health-and-medicines-ktn-event/#.VGNRS_msWSp
 
Description Celebrating Your Contribution to Scottish Cohort Studies, The Mound, Edinburgh 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description Contribution to discussion session on 'Wider informatics - Farr2/HDR UK' at Biomedical Research Directors' Forum Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description Data Linkage Scotland Showcase 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The Farr Institute joined with Administrative Data Research Network and The Urban Big Data Centre to show case ongoing research and explain the role of each organisation. Event attracted professionals and organisations who were not currently using administrative data in research and will lead to greater use of linked administrative data in research. Enquiries received by all organisations.
Year(s) Of Engagement Activity 2016
URL http://www.farrinstitute.org/news/data-linkage-scotland-showcase-2016
 
Description Edinburgh Fringe Festival 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Research Fellow Dr Mahiri Aitken performed in a stand up show as part of the 'Cabaret of Dangerous ideas' at the Edinburgh Fringe Festival. Title of show was "Hands Off My Clubcard Just take my DNA!" Explores ideas around: Would you rather researchers were looking at your Clubcard data or your DNA? Is this information personal and private, or a public asset to be used in the "public interest"?
Year(s) Of Engagement Activity 2016
URL http://www.ed.ac.uk/usher/news-events/events-2016/mhairi-aitken-at-cabaret-of-dangerous-ideas
 
Description Farr Institute @Scotland Public Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact Two workshops have been held with the Public Panel for Farr Institute @ Scotland.
The first of these workshops served to introduction to the HeRCs and the Farr Institute and lead to preliminary discussions/reflections on governance issues and the role of public engagement in relation to the Farr Institute. The second meeting focussed on exploring the role that the public panel will play in Farr@Scotland.

The 2nd workshop resulted in the production of a statement on the role and value of the panel. This is now on the Farr website.
Year(s) Of Engagement Activity 2014
URL http://www.farrinstitute.org/centre/Scotland/23_Activities.html
 
Description Mhairi Aitken, 26th April 2017, " Discrete choice experiment on commercial use of health data" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation given at the Informatics for Health Conference, Manchester UK
Year(s) Of Engagement Activity 2017
 
Description Open Data and the importance of Confidentiality, Control and Public Benefits 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This was the closing Keynote speech at the University of Edinburgh's Dealing with Data conference
Year(s) Of Engagement Activity 2017
URL https://media.ed.ac.uk/media/0_7172qesr
 
Description Opening Plenary 'Options and opportunities for diabetes and the 4th industrial revolution', 10th World Congress on Prevention of diabetes and its complications, Edinburgh 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description PPI-Edinburgh Fringe 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Talk provoked lively debate amongst audience members who were happy to share their views. A review noted: "I Know What You Ate Last Summer made an intellectual topic accessible in an engaging and thought-provoking discussion".

Generated interest in the PPI activities of Farr Institute at Scotland,. Mhairi Aitken has been asked to speak at the Edinburgh International Science Festival April 2015.
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=wY2_vnt-hJ0
 
Description Patient Perspective - The Patient and Public Voice - using big data for public benefit 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This was a keynote lecture as part of The International Society for Pharmacoepidemiology EuroDurg Conference 2017
Year(s) Of Engagement Activity 2017
URL http://eurodurg2017.net/scientific-programme/
 
Description Public Debate (Edinburgh) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Public Debate entitled 'Who owns my genome?' discussed ethics and governance issues, public health benefits, awareness raising of issues for general public
Year(s) Of Engagement Activity 2016
 
Description Public benefits: a central justification and problematic dimension of health informatics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at Informatics for Health Conference, Manchester UK
Year(s) Of Engagement Activity 2017
 
Description Public engagement with data science: Reflections on past experiences and future approaches. CRISP Being digital: Digital technologies and citizen-centred approaches to participation, surveillance and privacy 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact This was a workshop initiated by CRISP Being to discuss digital technologies and citizen-centred approaches to participation, surveillance and privacy
Year(s) Of Engagement Activity 2017
URL https://www.stir.ac.uk/management/news/events/2017/crispbeingdigitalworkshop/
 
Description https://www.ed.ac.uk/centre-genomic-medicine/news-events/news-2017/debate-genome-screening-pandoras-box 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact This was presented as part of a University of Edinburgh Medical Debate: The motion of the debate was "This house believes that the UK should have whole genome screening". Professor Graeme Laurie, and Professor Sarah Cunningham-Burley, both Farr Scotland argued against the motion.
Year(s) Of Engagement Activity 2017
URL https://www.ed.ac.uk/centre-genomic-medicine/news-events/news-2017/debate-genome-screening-pandoras-...