MytHICAL- Mental Health Informatics in Children, Adolescents and young adults How do my feelings become numbers?

Lead Research Organisation: Swansea University

Abstract

Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.

Technical Summary

Swansea University (SU) has established an international reputation as a leader in health informatics, reflecting significant RCUK and Government investment (SAIL Databank, Farr, ADRC). Our ambition is to become a UK hub for data-driven, internationally-relevant research to improve children and young people’s mental health (MH). SU is particularly strong in population health research, data sharing platforms (e.g. UKSeRP), innovative governance and a collaborative ethos that underpins our many multidisciplinary research activities. Our key strengths in MH research lies in our advanced data science and informatics infrastructure and cross-disciplinary expertise.
Data science at SU has contributed much to MH research by linking diverse datasets for in-depth exploration of aetiology and the role of bio-psycho-social determinants of MH, bringing together cross-disciplinary research and data at scale, and solving problems inherent in standardisation and validation. This Award will build on our experience hosting the MQ Adolescent Data Platform, creating electronic and hybrid e-cohorts, phenotype validation, pharmaco epidemiology, and genetic and conceptual work. It will give widespread access to new Development and Well-Being Assessment and childhood maltreatment data, educational data linked to disorder-specific cohorts, health, environmental and social media data, and new partnerships with paediatricians, geographers, computer scientists and psychiatrists.
We aim to extend our expertise through studies with focussed validation and preparation of novel data and high quality transferable metadata, making future MH informatics studies more deeply phenotyped and more efficiently executed. In short, we will place children and young people within settings that may influence their MH using electronic data to better understand the causes of the causes. We will achieve this through up to eight studies to address the key challenges of mental health informatics.

Publications

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S. Rees (2019) BMC Medical Informatics and Decision Making in Developing a standardised approach to the aggregation of inpatient episodes into person-based spells in all specialties and psychiatric specialties

 
Title Be Heard video 
Description Using the computer software, Videoscribe, a video was created to describe the BeHeard initiative and attract more young people to complete the survey. This was shared on the website and social media. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact The video raised awareness of our BeHeard initiative through delivering information in an engaging way, and helped us to achieve 4000 completed surveys. 
 
Title Data anonymisation 
Description The process of data anonymisation was explained in simple terms in this video by a student, and pitched towards other young people, in order to aid understanding. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact The video was shared on the website and social media, as well as at the Swansea Science Festival 2019. This video helped to raise awareness of the platform and the secure processes that we have in place to protect data. 
 
Title World Suicide Prevention Day 2019, International Youth Day 2019 and World Mental Health Day 2019 videos 
Description I created videos using the online software, Adobe Spark, detailing the aims, objectives and achievements of the Adolescent Mental Health data Platform, and how our research is so important in making a difference. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Our Twitter followers have increased from 550 in June 2019, to 1250 in February 2020. This is as a result of spreading awareness through regular tweeting about ADP news and associated news, joining of national social media campaigns (e.g. #HelloYellow with Young Minds), and direct marketing following networking events and meetings. 
 
Description Mental Healthcare in Young People and Young Adults
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
Impact The recently published Healthcare Quality Improvement Partnership (HQIP) report on Mental Healthcare in Young People and Young Adults identifies areas of care that can be improved. The findings in the reports presented reinforce the message that the parity of esteem between mental healthcare and physical healthcare services is often still not present. However, the data do recognise the crucial role that acute general hospitals play in the complex system required to deliver mental healthcare. If mental healthcare in general hospitals is not given a higher priority then general hospitals and the staff who work in them will never be equipped to manage mental healthcare effectively. The report recommends the development of national guidance outlining the expectation required in the care of children and young people with mental health conditions.
URL http://www.ncepod.org.uk/2019ypmh.html
 
Description Responding to issues of self-harm and thoughts of suicide in young people
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
Impact This guidance provides information for adults who work with children and young people regarding how to respond to issues of suicide and self-harm. It addresses how to ask questions of children and young people who may have suicidal feelings or be self-harming, and how to respond to disclosure of these feelings and behaviours. It provides guidance on confidentiality, safeguarding and routes of escalation. The guidance has been produced to support teachers, and other professionals who regularly come into contact with children and young people, in dealing with issues of suicide and self-harm as they arise. It supports early intervention and prevention and the safe management of self-harm and suicidal thoughts in young people when they present.
URL https://gov.wales/sites/default/files/publications/2019-08/responding-to-issues-of-self-harm-and-tho...
 
Description 'Be Seen: an arts-led participatory approach to understanding 'big data' in young people's mental health and use of images by young people
Amount £78,788 (GBP)
Funding ID MR/T046597/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2020 
End 04/2021
 
Description Administrative Data Research Centre Wales (Part of ADR UK)
Amount £13,196,318 (GBP)
Funding ID ES/W012227/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2022 
End 03/2026
 
Description CSO Scotland - The role of Childhood Adversities and their subsequent impact on mental ill-health and Suicidal behaviour
Amount £80,064 (GBP)
Organisation Scottish Government Health and Social Care Directorates (SGHSC) 
Sector Public
Country United Kingdom
Start 05/2018 
End 05/2019
 
Description DATAMIND: Data Hub for Mental health INformatics research Development
Amount £2,031,434 (GBP)
Funding ID MR/W014386/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 07/2021 
End 08/2024
 
Description Wolfson Foundation
Amount £10,000,000 (GBP)
Organisation The Wolfson Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2019 
 
Title developed and validated code lists and algorithms 
Description As part of this project, we have developed and validated code lists and algorithms to identify childhood maltreatment in routinely collected healthcare records (paper in draft) 
Type Of Material Improvements to research infrastructure 
Year Produced 2022 
Provided To Others? No  
Impact Paper currently in draft - impact expected to be an influence in more efficient measures. 
 
Title The Minimum Dataset (MDS) from Cardiff and Vale University Health Board (2004-2015) 
Description The Minimum Dataset (MDS) from Cardiff and Vale University Health Board (2004-2015) dataset of childhood maltreatment has been brought into the SAIL databank for the purpose of this project. 
Type Of Material Data analysis technique 
Year Produced 2015 
Provided To Others? Yes  
Impact It has been used to develop and validate code lists for identifying childhood maltreatment routinely collected healthcare data 
 
Description Adverse childhood events for children and young people aged 13-19 
Organisation University of Cambridge
Country United Kingdom 
Sector Academic/University 
PI Contribution ADP team members will write SQL scripts to create the study cohort , link the datasets,using available and bespoke linkage algorithms. use ADP curated/published code lists to identify cases and help with general queries re metadata, ADP specific processes.
Collaborator Contribution PhD project using linked data to examine ACEs in children and young people aged 13-19 - the student will do all data analysis.
Impact Signed scoping form for the collaboration, data algorithms being created.
Start Year 2021
 
Description The Wolfson Foundation 
Organisation Swansea University
Department Swansea University Medical School
Country United Kingdom 
Sector Academic/University 
PI Contribution We will be examining longitudinal data that tracks children over time to better understand how anxiety and depression develop.
Collaborator Contribution The Wolfson Foundation is investing £10m over the next five years and will bring together experts from different fields.
Impact The Wolfson Centre for Young People's Mental Health, based at Cardiff University and working with Swansea University, will be a dedicated interdisciplinary research centre where Cardiff and Swansea University experts will work in partnership with, Welsh Government, NHS Wales, University Health Boards and schools across Wales. The Wolfson Centre will have five work streams: population health (Collishaw), genetics (Thapar), early intervention (Rice), schools (Murphy and Moore) and 'big data' (John), which will influence government policy and practice. Prof Ann John will be managing the 'Big Data' aspect of the project, in order to use a wide range of routinely-collected data in research, to understand and develop new ways of reducing anxiety and depression in young people.
Start Year 2019
 
Description 'Machine learning and routine data: helping clinicians identify those at risk of suicide' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation at Digital Innovation in Mental Health - The Value Of Unity, Westminster School, Dean's Yard, Westminster School, SW1P 3PF, London, UK
Year(s) Of Engagement Activity 2019
 
Description A talk- Super science Sunday 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact General public attended 'super science sunday' at the National Water Front Museum, an eventorgansied by Oriel Science. Menna Brown demonstrated the current iteration of the Champions for Health website using interactive and web-based medium. This sparked questions and disucssions.
Year(s) Of Engagement Activity 2020
 
Description Addressing the cost of exclusion from education - Samaritans Round Table Event 4th Feb 2019 - Socio economic disadvantage and suicidal behaviour 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Addressing the cost of exclusion from education - Samaritans Round Table Event 4th Feb 2019 - Socio economic disadvantage and suicidal behaviour.
Samaritans Children's Mental Health Week
Year(s) Of Engagement Activity 2018
 
Description Adolescent Mental Health Data Platform and Emerging Minds Joint Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The Adolescent Mental Health Data Platform teamed up with the Emerging Minds Network in a Joint Event to showcase opportunities for research in the field of Child Mental Health.

Over fifty people attended this Joint Event on Wednesday 23rd October 2019, whereby awareness was raised of the funding opportunities and wealth of data available for mental health research, and future collaboration ideas were shared among researchers, charities and public sector workers.

30 people completed a 'collaboration form,' expressing their interest in future communications with the ADP, and many have already been in contact with the Project Manager.
Year(s) Of Engagement Activity 2019
URL https://bit.ly/2SiEd7w
 
Description Bringing together mental health data to improve care, Venture Builder virtual event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended to give presentation and participate in talks at the Bringing together mental health data to improve care, Venture Builder virtual event
Year(s) Of Engagement Activity 2022
 
Description Bupa Foundation Head Talks: Taking Care of Your Mind for Cheltenham Science Festival 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Ann Pre-recorded a video to be presented at Bupa Foundation Head Talks: Taking Care of Your Mind for Cheltenham Science Festival
Year(s) Of Engagement Activity 2021
 
Description Challenging Statistics in Public Health, Royal Statistical Society South Wales Group Event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended and gave "How do my feelings become numbers?" presentation at the Challenging Statistics in Public Health, Royal Statistical Society South Wales Group Event
Year(s) Of Engagement Activity 2021
 
Description Cross-Government CYP External Advisory Group Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann gave presentation on Absences & Exclusions in Education at the Cross-Government CYP External Advisory Group Meeting
Year(s) Of Engagement Activity 2022
 
Description Excellence in Paediatrics 2021 virtual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended as speaker, presenting on adolescent mental health at the Excellence in Paediatrics 2021 virtual conference
Year(s) Of Engagement Activity 2021
 
Description Improving Younger Peoples Mental Health with MQ Adolescent Mental Health Data Platform, MQ Science meeting, Royal College of Physicians, London - 7th/8th February 2019 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The international scientific meetings dedicated solely to mental health science. researchers, healthcare professionals and members of the mental health community from around the world met to talk about the the biggest challenges in mental health.Professor Ann John presented the Adolescent Data Platform at the meeting.
Year(s) Of Engagement Activity 2019
 
Description Interview for regional/national news 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Press interviews with sky news radio, heart radio, BBC Wales and BBC radio Wales
Year(s) Of Engagement Activity 2019
 
Description Interview with Sky news - 1st February 2019  
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Professor Ann John was interviewed by Sky News to discuss the topic of Cyber Bulling.
Year(s) Of Engagement Activity 2019
 
Description MQ Data Science meeting - Underserved and underrepresented populations 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended as chair and keynote speaker - Underserved and underrepresented populations at the virtual MQ Data Science meeting
Year(s) Of Engagement Activity 2021
 
Description MQ Mental Health summit virtual meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann Attended by way of presentation and discussion for Youth mental health and the Brighter Futures programme
Year(s) Of Engagement Activity 2021
 
Description Mental Health Digital Science panel session at Expo 2022 Dubai virtual event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Ann attended as a speaker at the Mental Health Digital Science panel session at Expo 2022 Dubai virtual event
Year(s) Of Engagement Activity 2022
 
Description Poster presentation at MQ Data Science Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Poster presentation at MQ Data Science conference - hosted by MQ with attendance from a wide range of audiences including patients, people with lived experience and policy makers
Year(s) Of Engagement Activity 2018
 
Description Presentation at Young People's Mental Health Webinar, MQ 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended the Webinar as a panelist by way of presentation and discussion
Year(s) Of Engagement Activity 2021
 
Description RCN School nurses conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended and gave presentation 'Suicide in young people' at the online RCN School nurses conference
Year(s) Of Engagement Activity 2021
 
Description Regional Safeguarding Board: National Safeguarding Week 2021 - Suicide Event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended to give presentation and participate in talks at the Regional Safeguarding Board: National Safeguarding Week 2021 - Suicide Event
Year(s) Of Engagement Activity 2021
 
Description Seminar talk at Kings College London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact Presentation given at Kings College London IoPPN 26th Nov 2018
Year(s) Of Engagement Activity 2018
 
Description Speaker - Advancing population health science and life course mental health research - Swansea mental health data pathfinder meeting, BEIS Conference Centre London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Speaker at Advancing population health science and life course mental health research - Swansea mental health data pathfinder meeting, BEIS Conference Centre London
Year(s) Of Engagement Activity 2018
 
Description Stall, promotion and recruitment at ABMU Health Board World Mental Health Day Event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Stall and presentation at World Mental Health Day Event organised by the ABMU Health Board
Year(s) Of Engagement Activity 2018
 
Description Swansea Science Festival 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Stall, promotion and recruitment at public event, engaging with over 300 general public
Year(s) Of Engagement Activity 2019
 
Description T4CYP Expert Reference Group 15th Jan 2018 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact T4CYP Expert Reference Group 15th Jan 2018
Year(s) Of Engagement Activity 2018
 
Description Teenage Mental Health Digital Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Ann attended as speaker to give presentation on the topic - Identifying and Supporting the Complex Mental Health Challenges Facing Teens Living Through a Global Pandemic at the Teenage Mental Health Digital Conference
Year(s) Of Engagement Activity 2021
 
Description Westminster Time to Talk Day, Department of Digital, Culture, Media of Sport, 100 Parliament Street, London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Professor Ann John presented the Adolescent Mental Health Platform at the Westminster Time to Talk Day on 7th February to highlight the capabilities of the platform for the research.
Year(s) Of Engagement Activity 2019