Pre-school autism intervention and autism development: a longitudinal follow up of the Preschool Autism Communication Trial (PACT)

Lead Research Organisation: University of Manchester
Department Name: Medical and Human Sciences

Abstract

Autism is a severe and persistent developmental disorder, starting in childhood and often extending throughout life and affecting about 1% of children in the community. Autism is diagnosed from about 2 years of age onwards. Parents find adjustment to diagnosis and the management of their child with autism very challenging; use of health, social care, and specialist education resources increases progressively through the pre-school and early school years with costs of supporting children with autistic spectrum disorders in the UK estimated at £2.7 billion per year. However, the additional impact of autism on families is probably far higher than this in terms of intense parental involvement and stretching of resources to care for other children and to sustain employment. Rates of family breakdown are higher than the average.
Early intervention is thought to be most beneficial and there is increasing evidence that programmes of appropriate advice and training improve child communication and behaviour. However, there has been a lack of research into the longer term effects of early intervention, if any, on the development and wellbeing of children with autism and also on family stress and family function.

We have conducted the largest early intervention trial to date of a treatment with parents to help them communicate better with their child with autism. This study (Green et al 2010) showed that, parents who took part in the intervention, were successful in adapting their style of interacting with their child, and in turn the child communicated more with the parent. In spite of these improvements in parent-child communication, children who received the intervention did not improve more than those who had the usual services in how they interacted with adults outside the family, that is the communication improvements did not seem to generalize. However our initial follow up was only at the end of the 13 month intervention - a very short time in the context of development for a child with autism. Therefore in this current study we wish to follow-up the same children about 3 years further on to see how our early intervention has affected longer term developmental outcomes. We will be doing the follow-up in the early school years which is a key time in the development of a child with autism, when many associated difficulties of social integration, and mental health problems such as anxiety, come to the fore. We will be looking at the child's language and communication, other symptoms of autism and social integration. We will also look at parent perceptions of their child's functioning and family life. We are interested in whether parents who took part in the intervention feel more confident and optimistic than those who did not.
This study will be to help us understand, for the first time, the impact of early intervention on later child communication, the presentation of autism in the early school years and family life, school adjustment and family need for services. This will help clarify how development proceeds into middle childhood, and give an indication of any necessary additional intervention required either in the pre-school years or later, to maximise the best developmental outcomes in autism. The findings will potentially impact the way early intervention and intervention in the pre-school and early school years is organised, ideally with the integration of medical, social care and education, and methods of supporting families as their children grow older.

Green J. Charman, T,. McConachie, H. et al (2010). Parent-Mediated Communication-Focused Treatment for preschool children with Autism (PACT); a randomised controlled trial. The Lancet, 375(9732), 2152-2160.

Technical Summary

We plan 3 year follow-up of at least 80% of the existing PACT cohort to test mediation/process hypotheses arising from observational studies. The unique strength of this proposal is that the initial randomisation in the PACT trial allows for a causal interpretation of subsequent effects in a way that is not possible in observational studies. We use a "hybrid trial" design(1,2); consisting of 1) initial randomised allocation to two parallel groups, 2) an intervention in one arm targeted at key theory-based variables and including analysis of mediation, and 3) the current follow-on observational study of subsequent development. Our findings on treatment effect and causal mediation in the original PACT trial, together with convergent findings from independent longitudinal observation studies in relevant areas of autism development, generate causal hypotheses on the effect of parent child dyadic communication (altered by the intervention) on downstream child and family outcomes, including language and communication, autism symptoms, and family functioning. Follow-up also includes our own innovative service-user generated family functioning questionnaire and measurement of longer-term intervention effects on parental care burden and service usage. This innovative hybrid trial design has not been undertaken before in autism and will enable the causal analysis of some key developmental hypotheses related to early autism development, as well as measurement of generalized effects of intervention that may have taken time to develop. This approach will be innovative in the autism literature and have significant application in service development and intervention planning.
1) Howe et al. (2002) Dev Psychopath, 14: 673-94; 2) Green et al. (2008) Brit J Psychiat, 192: 323-325

Planned Impact

Autism is a lifelong neurodevelopmental disorder that in many cases brings considerable burden and cost to the individual, their family and society. The proposed study has two main non-academic beneficiaries (i) individuals with autism, their families and those who care for them; and (ii) professionals, managers and commissioners in NHS, education and social care services who responsible for the care of individuals with autism.

Individuals with autism will benefit from the research as the study will test the medium-term effects (and both the limits of these effects and service and family influences on them over time) of the PACT preschool parent-training intervention in terms of improved language and communication abilities, improved parent-child interaction, reduction in autism symptoms, reductions in mental health difficulties and its impact on family quality of life. Developmental studies in autism show that many of these characteristics measured in mid-childhood are predictive of outcomes through adolescence into adulthood. Thus, knowing the medium-term effects (and limits) of a treatment such as the PACT intervention holds some promise to reduce burden to the individual, their family and society across the lifespan in the future.

Parents will benefit not only potentially from improvements in their child's communication, mental health and social functioning, and their interaction with their child, but also from the contribution the study can make to the literature on early intervention in autism. Despite the considerable need for evidence-based early interventions in the autism field the evidence base is sparse and very variable in quality. As a result, many parents (and some practitioners) seek out and access interventions, often paid for from their own resources, for which no positive evidence of benefit exits and in some cases evidence of potential harm. As the largest and more rigorous psychosocial intervention RCT conducted internationally to date, the proposed work to understand the medium-term effect of the time-limited intervention and the developmental sequelae and influences on outcome over time has the potential to significantly inform the evidence-based literature in the autism field to the future benefits of families and practitioners.

Practitioner and commissioners with the NHS who are responsible for individuals with autism and their families are faced with a weak and variable evidence-base on which to make decisions about service provision. The NICE guidelines on management are due to be published in November 2013 and several of the applicants are on the Guideline Development Group. The publication of these guidelines will highlight to practitioners and policymakers the need for publically funded services for families with autism to be based on sound clinical evidence. Whilst this follow-up will not be completed in time for inclusion in these guidelines, it will be able to inform future decision-making about autism services to the benefit of those responsible for commissioning and delivering these services and ultimately to the families under their care.

Publications

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Botting N (2016) Emotional health, support, and self-efficacy in young adults with a history of language impairment. in The British journal of developmental psychology

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Durkin K (2016) Learning to drive in young adults with language impairment. in Transportation research. Part F, Traffic psychology and behaviour

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Green J (2015) Editorial: Process to progress? Investigative trials, mechanism and clinical science in Journal of Child Psychology and Psychiatry

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Green J (2019) Editorial Perspective: Delivering autism intervention through development. in Journal of child psychology and psychiatry, and allied disciplines

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Green, J (2019) Infants with Autism

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Hudry K (2013) Predictors of parent-child interaction style in dyads with autism. in Research in developmental disabilities

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Mok PL (2014) Longitudinal trajectories of peer relations in children with specific language impairment. in Journal of child psychology and psychiatry, and allied disciplines

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Pickles A (2014) Heterogeneity and plasticity in the development of language: a 17-year follow-up of children referred early for possible autism. in Journal of child psychology and psychiatry, and allied disciplines

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Salomone E (2016) Use of early intervention for young children with autism spectrum disorder across Europe. in Autism : the international journal of research and practice

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Vivanti G (2018) Implementing and evaluating early intervention for children with autism: Where are the gaps and what should we do? in Autism research : official journal of the International Society for Autism Research

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Wan MW (2019) A systematic review of parent-infant interaction in infants at risk of autism. in Autism : the international journal of research and practice

 
Description Advisory Board, Doctoral Research School, Karolinska Institute 2018 - 2021. Supervision and site visit
Geographic Reach Europe 
Policy Influence Type Participation in a advisory committee
 
Description Children and Young person IAPT Curriculum for Autism/LD
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
Impact IAPT is the main training committee for CAMHS services - the Curriculum should influence practice teaching - PACT is one of only two treatments evidenced for core autism symptoms in the curriculum
 
Description IAPT - Improving Access to Psychological Therapies - membership of curriculum development group. IAPT curriculum for Learning Disability and Autism (NHS England)
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
Impact Improving access to psychological therapies.
 
Description Lancet papers 2010 & 2016 & NIHR signal 2017 strengthens NICE CG170 recommendations and will contribute to the next NICE evidence update. These outputs should also influence DH policy and commissioning for NHS clinical practice re access to access to specific interventions for children with autism/ASD.
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
Impact The above outputs should influence DH policy and commissioning for NHS clinical practice re access to ASD specific interventions for children with autism/ASD.
 
Description UK National Autism Project. Invited expert member. Authoritative advice on autism research and practice to general public and policy audience
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
URL http://nationalautismproject.org.uk
 
Description Communication-centered Parent-mediated treatment for Autism Spectrum Disorder in South Asia (COMPASS).
Amount £1,944,849 (GBP)
Funding ID MR/R006164/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2022
 
Description Enhancing the scientific study of early autism: A network to improve research, services and outcomes. Co-PI
Amount € 400,000 (EUR)
Organisation European Cooperation in Science and Technology (COST) 
Sector Public
Country Belgium
Start 01/2010 
End 05/2014
 
Description NIHR/MRC EME
Amount £1,699,810 (GBP)
Funding ID 13/119/18 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 02/2016 
End 07/2019
 
Description PASS: Parent-mediated intervention for autism spectrum disorders (ASD) in South Asia, Co PI
Amount $300,000 (USD)
Organisation Autism Speaks 
Sector Charity/Non Profit
Country United States
Start 05/2012 
End 04/2014
 
Description Parent-mediated intervention for autism spectrum disorders (ASD) in South Asia, Co-PI
Amount $200,000 (CAD)
Organisation Government of Canada 
Department Grand Challenges Canada
Sector Public
Country Canada
Start 04/2014 
End 11/2016
 
Description Preschool Autism Communication Trial; Follow up, CI
Amount £912,000 (GBP)
Funding ID G0401546 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 08/2012 
End 10/2015
 
Title PACT 
Description PACT manual, materials and training method/materials. Assigned into the new IMPACT CiC 2017. 
IP Reference  
Protection Copyrighted (e.g. software)
Year Protection Granted
Licensed No
Impact National and International Training in the PACT method
 
Company Name IMPACT 
Description A spin-out community interest company with the purpose of disseminating training in the PACT and associated interventions and increase social value. 
Year Established 2017 
Impact Training already achieved in UK, France, Italy, Spain, Canada, Hong Kong, Australia, India. In 2018, IMPACT will train in USA, Turkey and through the NHS within the DH 'Improving Access to Psychological Treatment' (IAPT) curriculum for Autism (2018).Here are some metrics for number of professionals who have received PACT training: PACT training 2017-18 Country UK 20 France 50 Hong Kong 20 Italy 25 Australia 3 Turkey 2 TOTAL 120 2018-19 Spain 25 USA 26 Italy 20 UK 20 Romania 18 France (Versaille, Toulouse, Lyon) 75 TOTAL 184
 
Description 'Pint of Science', Didsbury Manchester, 'Improving the outcome for Autism', 20th May 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact lecture in a debate series with general public on mental health
Year(s) Of Engagement Activity 2019
 
Description All India Institute of Medical Sciences, Lecture, 'The ASD phenotype in Neurofibromatosis and its intervention', 23rd Jan 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact invited lecture in India
Year(s) Of Engagement Activity 2019
 
Description Asturias Special Education Services for Autism 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Key note lecture
Year(s) Of Engagement Activity 2016
 
Description Autistic identities, participatory research & gender, National Conference, University of Kent, Keynote and Panel, 4th July 2019. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact keynote lecture and debate on autistic identiy
Year(s) Of Engagement Activity 2019
 
Description BBC 2 - interview on Victoria Derbyshire TV show (26-10-16) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To discuss the PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description BBC News TV (26-10-16) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To discuss the PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description BBC Radio 4 - 'Today' programme (26-10-16) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To discuss the PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description BBC Radio 5 - 'Breakfast' programme (26-10-16) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To discuss the PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description BBC World Service Radio (26-10-16) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact To discuss the PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description British Association of Clinical Psychology, National Conference; Bath UK, , Keynote, Early development intervention for Autism Spectum Disorder', 5th Sept 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact keynote lecture
Year(s) Of Engagement Activity 2019
 
Description Channel Five News TV (26-10-16) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To discuss the PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description Coram BAAF, lecture on first evidence for autism treatment success 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2016
 
Description Danish National conference on autism 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Keynote - Intervention for Autism'
Year(s) Of Engagement Activity 2017
 
Description Deutsche Bank, Birmingham - new treatments for autism; major donor for national group Autistica 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2017
 
Description European Conference on Autism - ethics aspects of early intervention in autism. Agenda setting for field. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Audience reported changes in views, opinions or behaviours.
Year(s) Of Engagement Activity 2016
 
Description How can we help Autism 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact invited participation in Manchester's Pint of Science event 2019
Year(s) Of Engagement Activity 2019
 
Description IMFAR, International meeting for autism research, lecture on outputs from trial. First evidence for autism treatment success. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2016
 
Description IMPACT symposium: Autism, Evidence to Practice, keynote: Scientific background and innovative solutions, 26th June 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact IMPACT symposium: Autism, Evidence to Practice, keynote: Scientific background and innovative solutions, 26th June 2020.
Year(s) Of Engagement Activity 2020
 
Description Institute of Neurology, London, Karl Friston Research Seminar, 'Autistic experience and cognitive neuroscience', 12th March 2019. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact a neuroscience presentation with autism advocates
Year(s) Of Engagement Activity 2019
 
Description International Autism Congress, Lyon, France, keynote; 3rd Sept 2021. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International Autism Congress, Lyon, France, keynote; 3rd Sept 2021.
Year(s) Of Engagement Activity 2021
 
Description International Society for Autism Research, Summer Institute, keynote; Development and Early Intervention Science in Autism, 18th June 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International Society for Autism Research, Summer Institute, keynote; Development and Early Intervention Science in Autism, 18th June 2020.
Year(s) Of Engagement Activity 2020
 
Description Invited presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited Keynote lecture to the British Academy of Childhood Disability on 'Early Intervention'. The evidence on long-term benefit to children receiving PACT therapy was highly relevant to community paediatricians in arguing for development of local services.
Year(s) Of Engagement Activity 2017
 
Description Journal - 'Nature' - 'Autism study finds early intervention has lasting effects' 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description Lancet Commission, London; 'Doing clinical intervention science within global autism research' 23 Feb 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Lancet Commission, London; 'Doing clinical intervention science within global autism research' 23 Feb 2020.
Year(s) Of Engagement Activity 2020
 
Description Lecture " Making a difference- how has autism research improved the daily lives of individuals with autism?" University of Newcastle, Neurodevelopment and Disability Research Day - 15th June 2017. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Lecture " Making a difference- how has autism research improved the daily lives of individuals with autism?" University of Newcastle, Neurodevelopment and Disability Research Day - 15th June 2017.
Year(s) Of Engagement Activity 2010
 
Description Lecture Malta 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact lecture keynote: Diagnosis & early intervention in young children with ASD
Year(s) Of Engagement Activity 2017
 
Description Lecture New York 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Keynote.'Parent-mediated intervention for autism and its long term effects on reducing autism severity'. Oct 2017.
Year(s) Of Engagement Activity 2017
 
Description Magazine - 'New Scientist' - 'Autism intervention is first to show benefits over the long term' 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description Montreal - evidence for autism treatment. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Audience reported change in views, opinions or behaviours.
Year(s) Of Engagement Activity 2016
 
Description NW Deanery, Manchester lecture on outputs from trial. First evidence for autism treatment success. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2016
 
Description National Autism Conference. Tonsberg Norway 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Keynote. 'Early Social Communication Intervention for Autism'. June 2016
Year(s) Of Engagement Activity 2016
 
Description National Autistic Society early intervention for autism - evidence and practice in early intervention for autism. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2016
 
Description National Conference, Autistica, University of Reading, , 'Global Evidence to local action; evidence based intervention for autism', 23rd May 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact keynote lecture and debate
Year(s) Of Engagement Activity 2019
 
Description Newcastle University Child Health Academic Programme: Early intervention in ASD (Ann Le Couteur) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Findings from the PACT 7-11 follow up study.
Year(s) Of Engagement Activity 2016
 
Description Newcastle University, Institute of Health and Society presentation: Neurodisability across the lifespan including presentation of early intervention in ASD (Ann Le Couteur) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact To inform.
Year(s) Of Engagement Activity 2016
 
Description Newspaper - 'Independent' - 'Parent-led therapy in autistic children can help reduce core symptoms long-terms, study shows' 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description Newspaper - 'The Guardian' - 'Study offers potential breakthrough in care of children with autism' 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description Newspaper - 'The Telegraph' - 'Scientists hail first successful treatment for children with autism' 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description Newspaper - 'The Times' - 'Autistic children can be helped by video training for parents' 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description North East Regional Paediatric Neurodisability Conference (Jeremy Parr) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact To inform.
Year(s) Of Engagement Activity 2016
 
Description Norwegian Association for Autism - first evidence for autism treatment. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2016
 
Description PACT 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact presentation about PACT to London Special Interest Group for Autism (speech and language therapists). Dissemination meeting. 


positive interest in intervention training
Year(s) Of Engagement Activity 2010
 
Description Perth Children's Hospital Telethon Institute. Keynote: 'Parent-mediated Developmental Interventions for Autism', June 2018. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Compaiired looks for sericulse be cose it absence of h
Year(s) Of Engagement Activity 2018
 
Description Presentation at the ACAMH annual meeting in June 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation ACAMH annual meeting June 2018
Year(s) Of Engagement Activity 2018
 
Description Presentation by Prof T Charman at IMFAR preconference symposium on Outcomes 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The presentation made by Professor Tony Charman at a preconference symposium at the International Meeting for Autism Research was entitled 'Outcomes from Early Childhood to Adulthood and in Clinical Trials vs. Practice', May 2017. The symposium aimed to make the argument for harmonizing the tools used in trials, but with reference to measuring what parents and others think are worthwhile targets. The symposium is likely to be influential in future trial design and funding.
Year(s) Of Engagement Activity 2017
 
Description Royal College of Psychiatrists, CPD update on ASD 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of research findings.
Year(s) Of Engagement Activity 2016
 
Description Salford Autism Group, lecture on evidence base for autism treatment and new findings. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation of clinical activity and choices.
Year(s) Of Engagement Activity 2017
 
Description The Danish Mental Health Foundation; Keynote, 11th workshop on applied research for mental health in children and adolescents. Dec, 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote in US charity
Year(s) Of Engagement Activity 2018
 
Description The Danish Mental Health Foundation; Keynote, 11th workshop on applied research for mental health in children and adolescents. Dec, 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote lecture led to research collaboration
Year(s) Of Engagement Activity 2018
 
Description The Great North Children's research Community conference, Newcastle - PACT 7-11: improving outcomes for children with autism (Ann Le Couteur) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact To inform re PACT 7-11 results.
Year(s) Of Engagement Activity 2016
 
Description The PDA Society, Research Meeting, Kings College, London, 'PDA, a sceptical viewpoint', 8th January 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact talk at seminar
Year(s) Of Engagement Activity 2019
 
Description The emergence and development of pre-school autism" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact DISSEMINATION MEETING


positive interest in intervention training
Year(s) Of Engagement Activity 2010
 
Description UK Association of Child Psychology and Psychiatry National Conference, London, Keynote, 'Early dyadic intervention in Autism Spectrum Disorder', 8th March 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote lecture at annual meeting of main professional association in child mental health in UK
Year(s) Of Engagement Activity 2019
 
Description University of Haifa, Israel; A developmental and early autism intervention, keynote, 8th Sept 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact University of Haifa, Israel; A developmental and early autism intervention, keynote, 8th Sept 2020.
Year(s) Of Engagement Activity 2020
 
Description Update: Early intervention in autism. Invited Polani 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact McConachie, H Update: Early intervention in autism. Invited Polani
lecture, British Academy of Childhood Disability, Manchester,
Year(s) Of Engagement Activity 2007
 
Description Welsh Neurodevelopmental Service Improvement Programme in September 2018 Regards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Welsh Neurodevelopmental Service Improvement Programme in September 2018
Year(s) Of Engagement Activity 2018
 
Description Workshop : Intervención en niños con autismo.Teachers Education and Resource Centre, Oviedo, Asturias. Jan 19 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Workshop : Intervención en niños con autismo.Teachers Education and Resource Centre, Oviedo, Asturias. Jan 19 2018
Year(s) Of Engagement Activity 2018
 
Description World Association of Infant Mental Health 17th World Congress, Brisbane Australia, Keynote, 'Developmentally-focused early intervention for Autism', 7th June 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact key note lecture
Year(s) Of Engagement Activity 2020
 
Description World Association of Infant Mental Health 17th World Congress, Brisbane Australia, Keynote, 'Developmentally-focused early intervention for Autism', 7th June 2021. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact World Association of Infant Mental Health 17th World Congress, Brisbane Australia, Keynote, 'Developmentally-focused early intervention for Autism', 7th June 2021.
Year(s) Of Engagement Activity 2021
 
Description World Health Organisation, Experts Conference on Childhood Disability, Rome, Italy, 6th December 2018. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact WHO expert meeting Milano
Year(s) Of Engagement Activity 2018
 
Description Zero to Three Annual Conference, Ft Lauderdale Florida, USA, Keynote, 'Delivering Autism Intervention in Development', 4th October 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote lecture
Year(s) Of Engagement Activity 2019
 
Description lecture Isreal 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Keynote.'Parent-mediated Developmental Interventions for Autism' Oct 2017.
Year(s) Of Engagement Activity 2017