Participatory Engagement for City Communities Against NCD Risk in Bangladesh and Nepal (The PECAN Project)
Lead Research Organisation:
UNIVERSITY COLLEGE LONDON
Department Name: Institute for Global Health
Abstract
There is a high burden of non-communicable diseases (NCDs) in South Asian cities, driven by key 'modifiable' risk exposures across the life course. Adults in Nepal and Bangladesh are estimated to have on average at least two NCD risk factors, and this is expected to be more in cities. Risk exposure is driven by individual-, household-, community- and environmental-level factors, e.g. access to safe and supportive 'healthy spaces' for physical activity. Therefore, 'modifying' these exposures is rarely a personal choice, rather it is determined by wider sociocultural, sociopolitical and economic factors (customs, gender norms, living conditions and housing, rural-urban migration, health service provision, and market forces and regulation). Interventions are needed that raise individual and collective awareness and understanding of risk and that foster and facilitate broad community action to reduce risk. Such responses must go beyond individual behaviour change and single diseases or risks to also address structural, political and economic factors common to multiple risks and diseases.
We have shown that community mobilisation using Participatory Learning and Action (PLA) tackles higher-level drivers of health by empowering individuals and enabling communities to understand and overcome barriers to health. With a whole-population focus on NCD risks, our 42-month implementation research will provide a comparative case study on adaptation, application and evaluation of PLA in cities in Nepal and Bangladesh to address risk determinants and consequences. We will study outcomes of common NCD risk, including diet, physical activity, tobacco and alcohol use, blood glucose, blood pressure and BMI in representative population samples of adults aged 18+. The PLA model will be complemented by co-developed, evidence-based strategies including group-based physical activity, digital (mHealth) health promotion and arts-based methods. We have shown these lead to contextually appropriate strategies of awareness raising, information sharing and collective community action to address broad determinants of health threats and improve population health. We will also focus specifically on physical activity outcomes among women aged 50+. Physical activity has well-established and multifaceted benefits, including for blood pressure, diabetes and cancer risk, mental health, locomotor activity and metabolism, and inflammation. Combined, this specific population (older women) and this specific outcome (physical activity) is an exemplar of a neglected group in NCD intervention research and an outcome that reflects social interactions, environment and gender norms. Our previous work aligns with global literature, showing that physical inactivity is highest among those migrating from rural to urban areas, older populations and women. Success in increasing physical activity among older women will illustrate our intervention's ability to tackle broad determinants of NCD risk, with likely positive impacts across genders, generations and environments.
We have shown that community mobilisation using Participatory Learning and Action (PLA) tackles higher-level drivers of health by empowering individuals and enabling communities to understand and overcome barriers to health. With a whole-population focus on NCD risks, our 42-month implementation research will provide a comparative case study on adaptation, application and evaluation of PLA in cities in Nepal and Bangladesh to address risk determinants and consequences. We will study outcomes of common NCD risk, including diet, physical activity, tobacco and alcohol use, blood glucose, blood pressure and BMI in representative population samples of adults aged 18+. The PLA model will be complemented by co-developed, evidence-based strategies including group-based physical activity, digital (mHealth) health promotion and arts-based methods. We have shown these lead to contextually appropriate strategies of awareness raising, information sharing and collective community action to address broad determinants of health threats and improve population health. We will also focus specifically on physical activity outcomes among women aged 50+. Physical activity has well-established and multifaceted benefits, including for blood pressure, diabetes and cancer risk, mental health, locomotor activity and metabolism, and inflammation. Combined, this specific population (older women) and this specific outcome (physical activity) is an exemplar of a neglected group in NCD intervention research and an outcome that reflects social interactions, environment and gender norms. Our previous work aligns with global literature, showing that physical inactivity is highest among those migrating from rural to urban areas, older populations and women. Success in increasing physical activity among older women will illustrate our intervention's ability to tackle broad determinants of NCD risk, with likely positive impacts across genders, generations and environments.
Technical Summary
There is a high burden of non-communicable diseases (NCDs) in South Asian cities. We have shown that community mobilisation using Participatory Learning and Action (PLA) tackles higher-level drivers of health by empowering individuals and enabling communities to understand and overcome barriers to health. With a whole-population focus on NCD risks, our 42-month implementation research will provide a comparative case study on adaptation, application and evaluation of PLA in cities in Kathmandu, Nepal and Faridpur, Bangladesh to address risk determinants and consequences. We will study outcomes of common NCD risk, including diet, physical activity, tobacco and alcohol use, blood glucose, blood pressure and BMI in representative population samples of adults aged 18+. The PLA model will be complemented by codeveloped, evidence-based strategies including group-based physical activity, digital (mHealth) health promotion and arts-based methods. Through mixed methods implementation science methods, including participatory research methods, population based surveys, an interrupted-time series analysis, and economic evaluation we will describe the implementation and impact of our intervention approach.
Organisations
- UNIVERSITY COLLEGE LONDON (Co-funder, Lead Research Organisation)
- Transcultural psychosocial Organization (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- UNIVERSITY OF YORK (Collaboration)
- London School of Hygiene and Tropical Medicine (LSHTM) (Collaboration)
- UNIVERSITY OF SUSSEX (Collaboration)
- Global Alliance for Chronic Diseases (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
- Monash University (Collaboration)
| Title | Fieldwork beyond data: Building connections, finding stories |
| Description | Blog about doing fieldwork in urban Kathmandu, Nepal. |
| Type Of Art | Creative Writing |
| Year Produced | 2025 |
| Impact | Learning shared to researchers and general public. |
| URL | https://herdint.com/fieldwork-beyond-data-building-connections-finding-stories/ |
| Title | Measuring human movement: the answer fits on your wrist - blog by Herd International researchers |
| Description | Blog about the experience of measuring physical activity through accelerometers in Kathmandu, Nepal. |
| Type Of Art | Creative Writing |
| Year Produced | 2026 |
| Impact | Learning shared to researchers and the general public. |
| URL | https://herdint.com/measuring-human-movement-the-answer-fits-on-your-wrist/ |
| Title | Trainer and learning: A researcher's experience - blog by Herd International Researchers |
| Description | Personally reflective blog about doing research in Kathmandu, Nepal. |
| Type Of Art | Creative Writing |
| Year Produced | 2025 |
| Impact | Learning shared to researchers and the general public. |
| URL | https://herdint.com/trainer-and-learning-a-researchers-experience/ |
| Description | Project initation community meeting in Faridpur, Bangladesh |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Community and Consumer Involvement in Health Research in LMICs - team |
| Organisation | Monash University |
| Country | Australia |
| Sector | Academic/University |
| PI Contribution | Contribute to a systematic review of CCI in low and middle income countries |
| Collaborator Contribution | Lead the CCI review. |
| Impact | Systematic review protocol is in development. |
| Start Year | 2025 |
| Description | Conducting interviews with those with disabilities |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I raised awareness about the lack of guidance for doing STEPS surveys (related to Non communicable diseases and risk factors) with people with disabilities. |
| Collaborator Contribution | Some generic guidance was shared about doing interview with people with disabilities. |
| Impact | We developed an Standard operating procedure for use with people with disabilities participating in our survey. |
| Start Year | 2025 |
| Description | ENMESH working group - equity focused working group as part of the GACD |
| Organisation | Global Alliance for Chronic Diseases |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Participate in regular meetings with the working group contribute to the design and implementation of cross project research about equity. |
| Collaborator Contribution | Participate in regular meetings with the working group, contribute to the design and implementation of cross project research about equity. |
| Impact | Draft of a commentary submitted to Lancet Global Health, was rejected and we are deciding how to move forward. Tool development to measure how equity is captured and promoted through GACD projects. |
| Start Year | 2024 |
| Description | International advisory group |
| Organisation | King's College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Discussion and dissemination of our research protocol. |
| Collaborator Contribution | Advice on our research process and methods. |
| Impact | One advisory committee meeting with minutes. Advice given regarding engagement of communities about mental health. |
| Start Year | 2025 |
| Description | International advisory group |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Discussion and dissemination of our research protocol. |
| Collaborator Contribution | Advice on our research process and methods. |
| Impact | One advisory committee meeting with minutes. Advice given regarding engagement of communities about mental health. |
| Start Year | 2025 |
| Description | International advisory group |
| Organisation | University of Oxford |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Discussion and dissemination of our research protocol. |
| Collaborator Contribution | Advice on our research process and methods. |
| Impact | One advisory committee meeting with minutes. Advice given regarding engagement of communities about mental health. |
| Start Year | 2025 |
| Description | International advisory group |
| Organisation | University of Sussex |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Discussion and dissemination of our research protocol. |
| Collaborator Contribution | Advice on our research process and methods. |
| Impact | One advisory committee meeting with minutes. Advice given regarding engagement of communities about mental health. |
| Start Year | 2025 |
| Description | International advisory group |
| Organisation | University of York |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Discussion and dissemination of our research protocol. |
| Collaborator Contribution | Advice on our research process and methods. |
| Impact | One advisory committee meeting with minutes. Advice given regarding engagement of communities about mental health. |
| Start Year | 2025 |
| Description | Mental health advice and referral |
| Organisation | Transcultural Psychosocial Organization |
| Country | Nepal |
| Sector | Charity/Non Profit |
| PI Contribution | We have employed a counsellor from TPO and employed team members to development capacity in how to manage people with poor mental health, or those who are upset by interviews, in a sensitive and ethical manner. |
| Collaborator Contribution | TPO gave training to researchers doing semi-structured interviews in urban Kathmandu and urban Faridpur, Bangladesh on how to deal with participants who are upset by interviews in a sensitive and ethical manner. TPO gave training to researchers at Herd International who were doing structured interviews about how to manage these in an ethical and sensitive manner. |
| Impact | A training brief and video. |
| Start Year | 2025 |
