MICA: Centre for the Improvement of Population Health through E-health Research (CIPHER)
Lead Research Organisation:
Swansea University
Department Name: Institute of Life Science Medical School
Abstract
The aim of the Centre for Improving Population Health through E-Health Research (CIPHER) is to carry out research that will improve the health of the nation. It will do this by developing new methods to anonymise, link and analyse healthcare and similar data, to answer a wide range of important research questions. We will often work with researchers who have established large cohort studies, helping them make their cohorts more powerful, longer lasting, and cheaper to operate. E-health research is a new field and so CIPHER will be focussing on training researchers in how to use these data and methods.
CIPHER has four core research programmes: The first focuses on developing robust new methods to allow health and other information to be anonymised and analysed. For example, developing ways in which researchers accessing data cannot possibly identify the individuals involved, thereby ensuring that privacy is protected. CIPHER's other three research programmes focus on the impact on people's lives of (1) injury and the built environment; (2) mental health and substance use; and (3) infection. CIPHER researchers will undertake a range of studies to provide better insight into the causes of disease and injury, the consequences of these conditions on individuals and the population, and evaluations of treatments and policies which are designed to improve health. Knowledge of the longer term individual and societal impact of many conditions and treatments is currently very limited, as long term studies are very expensive. CIPHER's work will enable the long term follow up of outcomes using anonymised data, answering these questions effectively but at far less cost. Within its research programmes CIPHER will address many scientific questions, including: How effective are fall-prevention initiatives for older people? What is the impact of giving Vitamin D supplements to people in care homes in reducing hip fractures? Can linked data be used to help Fire and Rescue services prevent more home fires? Have interventions to make homes warmer reduced the number of deaths in winter? How much does substance use in young adults contribute to mental health problems? Does opiate substitution therapy in prison reduce the risk of death following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can information be better used to reduce antibiotic resistant infections? Are the different micro-organisms we carry in our bowels involved in the development of serious health conditions?
CIPHER will work with the NHS to develop better ways to measure patients' experiences and treatment outcomes. CIPHER will also develop methods to enable linkage of anonymised treatment data to important social outcomes such as staying in work, continuing in education, or being able to live independently at home. Such information will help the NHS design its services to meet a broader range of patients' needs. CIPHER's believes it is important to communicate effectively with patients, patient groups and the public at large about its research. A significant part of our work therefore will be setting up ways to aid this communication. We will have public representatives involved in our research throughout and they will help guide us and help us communicate effectively with wider groups.
CIPHER will be one of a small number of similar Centres that is being set up in the UK and we will be working together to train researchers in these new methods and making sure universities have suitable jobs for them. CIPHER aims to be an internationally recognised centre of expertise in the use of electronic health and associated records for research and, along with other network members, position the UK as the world leader in the field, improving the population's health, increasing UK research income, and improving the economy.
CIPHER has four core research programmes: The first focuses on developing robust new methods to allow health and other information to be anonymised and analysed. For example, developing ways in which researchers accessing data cannot possibly identify the individuals involved, thereby ensuring that privacy is protected. CIPHER's other three research programmes focus on the impact on people's lives of (1) injury and the built environment; (2) mental health and substance use; and (3) infection. CIPHER researchers will undertake a range of studies to provide better insight into the causes of disease and injury, the consequences of these conditions on individuals and the population, and evaluations of treatments and policies which are designed to improve health. Knowledge of the longer term individual and societal impact of many conditions and treatments is currently very limited, as long term studies are very expensive. CIPHER's work will enable the long term follow up of outcomes using anonymised data, answering these questions effectively but at far less cost. Within its research programmes CIPHER will address many scientific questions, including: How effective are fall-prevention initiatives for older people? What is the impact of giving Vitamin D supplements to people in care homes in reducing hip fractures? Can linked data be used to help Fire and Rescue services prevent more home fires? Have interventions to make homes warmer reduced the number of deaths in winter? How much does substance use in young adults contribute to mental health problems? Does opiate substitution therapy in prison reduce the risk of death following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can information be better used to reduce antibiotic resistant infections? Are the different micro-organisms we carry in our bowels involved in the development of serious health conditions?
CIPHER will work with the NHS to develop better ways to measure patients' experiences and treatment outcomes. CIPHER will also develop methods to enable linkage of anonymised treatment data to important social outcomes such as staying in work, continuing in education, or being able to live independently at home. Such information will help the NHS design its services to meet a broader range of patients' needs. CIPHER's believes it is important to communicate effectively with patients, patient groups and the public at large about its research. A significant part of our work therefore will be setting up ways to aid this communication. We will have public representatives involved in our research throughout and they will help guide us and help us communicate effectively with wider groups.
CIPHER will be one of a small number of similar Centres that is being set up in the UK and we will be working together to train researchers in these new methods and making sure universities have suitable jobs for them. CIPHER aims to be an internationally recognised centre of expertise in the use of electronic health and associated records for research and, along with other network members, position the UK as the world leader in the field, improving the population's health, increasing UK research income, and improving the economy.
Technical Summary
The vision of the Centre for Improving Population Health through E-Health Research (CIPHER) is to maximise the utility of routine health-related data on the UK population to support research to improve the nation's health. Objectives are: to provide a focus for innovative research using electronic health records; undertake novel linkage and analyses of large datasets; and build multi-disciplinary research capacity. The Centre will deliver four research programmes in: methodological innovation; injury, the built environment and health; psychosocial determinants of health; and, population aspect of infection. Much of the methodological work will be on enabling data to be used whilst protecting and ensuring privacy. The development of an anonymised data linkage platform will enable previously infeasible, large scale observational and interventional studies to be undertaken. CIPHER will address many scientific questions, including those listed below. How can data linkage improve measurement of the national and global burden of injury? What is the population impact of fall-prevention initiatives, Vitamin D supplements and targeted fire prevention activities? Have energy efficiency interventions reduced excess winter mortality? What is the relationship between urban design, obesity and mental health? To what extent do care and repair services protect health and prolong independent living? Is cannabis, alcohol and tobacco use associated with increased risk of psychosis? What is the burden of mental disorder in the young adult population from substance use? Does opiate therapy in prison reduce risk of death in the period immediately following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can linked data be used to evaluate interventions to reduce antibiotic resistant infections? Does carriage of bowel microflora influence development of bowel disorders?
Planned Impact
There are many different groups who will benefit from the research programmes outlined in this bid. The first group is the UK and global academic community. Creating novel methodologies and innovative e-health technology platforms will enable previously infeasible and unaffordable cutting-edge, large scale, observational and evaluative studies to be undertaken, resulting in a step change in research capability, capacity and efficiency. This is turn will result in substantially enhanced scientific understanding of disease aetiology, disease prevention and management. The scientific outputs of such research will be reflected in high impact scientific publications and the development of new research programmes by funding agencies.
Much of the research to be carried out by CIPHER is designed to be relevant to a very broad cross-cutting policy agenda and we would expect the results of the work to influence UK Government and international policies in several areas. Themes such as health and wellbeing, the 'Big Society' social mobility, housing, and healthy ageing are reflected in current UK policy documents and statements. Over time the focus may be on other areas but the breadth and scale of data linkage envisaged in the CIPHER application will be capable of dealing with new policy concerns. One of the difficulties policy makers face is great uncertainty about the impact of policies, particularly those which affect multiple Government departments or sectors. The research programmes outlined in this application demonstrate the potential to link data across multiple sectors to answer these difficult questions in a series of innovative demonstration studies. For example, anonymised linkage of health, benefits, housing and other datasets, together with the development of information platforms capable of evaluating natural experiments, policies, and interventions led by health, local government or the third sector, will provide new knowledge which will influence policy at multiple levels, including those who create, implement or evaluate policies. One would expect the results of such research to lead to increased effectiveness of public services, enhanced quality of life, and improved economic performance through better health and a variety of other mechanisms. Improved health results in reduced costs from disability associated benefits, delayed requirement for assisted living and care in an ageing population, increased employment, and improvements in the competitiveness of the UK economy. A considerable growth in e-health employment is envisaged in both academic and private sectors to take advantage of the increased availability of data and skills resulting from the e-health research initiative. This in turn should result in an increase in the UK capture of global research funds, greater inward investment and increased employment which will benefit the UK knowledge and general economy.
Research funding bodies and researchers are increasingly asked to demonstrate the social impact of their research. This has proven to be quite a challenge as many traditional research projects take time to impact as funding is generally over too short a period to capture much of the longer term benefits. It is likely that the financial and societal benefits from health research are considerably underestimated. Longitudinal cross-sectional data linkage is essential in accurately quantifying the longer term impact of investments in scientific research on the population's health, wellbeing and wealth.
The benefits of such research will start to be seen within the first few years of the Centre and should increase exponentially thereafter as the number of studies utilising the UK e-health platforms grows.
Much of the research to be carried out by CIPHER is designed to be relevant to a very broad cross-cutting policy agenda and we would expect the results of the work to influence UK Government and international policies in several areas. Themes such as health and wellbeing, the 'Big Society' social mobility, housing, and healthy ageing are reflected in current UK policy documents and statements. Over time the focus may be on other areas but the breadth and scale of data linkage envisaged in the CIPHER application will be capable of dealing with new policy concerns. One of the difficulties policy makers face is great uncertainty about the impact of policies, particularly those which affect multiple Government departments or sectors. The research programmes outlined in this application demonstrate the potential to link data across multiple sectors to answer these difficult questions in a series of innovative demonstration studies. For example, anonymised linkage of health, benefits, housing and other datasets, together with the development of information platforms capable of evaluating natural experiments, policies, and interventions led by health, local government or the third sector, will provide new knowledge which will influence policy at multiple levels, including those who create, implement or evaluate policies. One would expect the results of such research to lead to increased effectiveness of public services, enhanced quality of life, and improved economic performance through better health and a variety of other mechanisms. Improved health results in reduced costs from disability associated benefits, delayed requirement for assisted living and care in an ageing population, increased employment, and improvements in the competitiveness of the UK economy. A considerable growth in e-health employment is envisaged in both academic and private sectors to take advantage of the increased availability of data and skills resulting from the e-health research initiative. This in turn should result in an increase in the UK capture of global research funds, greater inward investment and increased employment which will benefit the UK knowledge and general economy.
Research funding bodies and researchers are increasingly asked to demonstrate the social impact of their research. This has proven to be quite a challenge as many traditional research projects take time to impact as funding is generally over too short a period to capture much of the longer term benefits. It is likely that the financial and societal benefits from health research are considerably underestimated. Longitudinal cross-sectional data linkage is essential in accurately quantifying the longer term impact of investments in scientific research on the population's health, wellbeing and wealth.
The benefits of such research will start to be seen within the first few years of the Centre and should increase exponentially thereafter as the number of studies utilising the UK e-health platforms grows.
Organisations
- Swansea University (Lead Research Organisation, Project Partner)
- 1000LivesPlus (Project Partner)
- Powys Teaching Health Board (Project Partner)
- University of Western Australia (Project Partner)
- Welsh Government (Project Partner)
- IBM (United Kingdom) (Project Partner)
- National Health Service Wales (Project Partner)
- Public Health Wales (Project Partner)
Publications
Dipnall JF
(2021)
Plos One
in Predicting fracture outcomes from clinical Registry data using Artificial Intelligence Supplemented models for Evidence-informed treatment (PRAISE) study Protocol.
Dipnall JF
(2021)
MDPI
in Health-Related Quality of Life (HRQoL) outcomes following injury in childhood and adolescence using the EuroQol (EQ-5D) with pooled longitudinal data
Dobbs TD
(2021)
Surgical activity in England and Wales during the COVID-19 pandemic: a nationwide observational cohort study.
in British journal of anaesthesia
Doiron D
(2017)
Software Application Profile: Opal and Mica: open-source software solutions for epidemiological data management, harmonization and dissemination.
in International journal of epidemiology
Doiron D
(2013)
Data harmonization and federated analysis of population-based studies: the BioSHaRE project.
in Emerging themes in epidemiology
Dommett RM
(2013)
Features of cancer in teenagers and young adults in primary care: a population-based nested case-control study.
in British journal of cancer
Eastwood S
(2016)
Algorithms for the Capture and Adjudication of Prevalent and Incident Diabetes in UK Biobank
in PLOS ONE
Eastwood SV
(2016)
Algorithms for the Capture and Adjudication of Prevalent and Incident Diabetes in UK Biobank.
in PloS one
Ekblad M
(2014)
Trends and risk groups for smoking during pregnancy in Finland and other Nordic countries.
in European journal of public health
Elizondo D
(2016)
Light source detection for digital images in noisy scenes: a neural network approach
in Neural Computing and Applications
Exeter D
(2014)
"Whose data is it anyway?" The implications of putting small area-level health and social data online
in Health Policy
Farroha A
(2013)
Using anonymized, routinely collected health data in Wales to estimate the incidence of depression after burn injury.
in Journal of burn care & research : official publication of the American Burn Association
Fehr A
(2022)
Prioritizing health information for national health reporting - a Delphi study of the Joint Action on Health Information (InfAct).
in Archives of public health = Archives belges de sante publique
Fisher H
(2013)
Inequalities in the uptake of human papillomavirus vaccination: a systematic review and meta-analysis.
in International journal of epidemiology
Fisher H
(2014)
Examining inequalities in the uptake of the school-based HPV vaccination programme in England: a retrospective cohort study.
in Journal of public health (Oxford, England)
Flachenecker P
(2014)
Multiple sclerosis registries in Europe - results of a systematic survey.
in Multiple sclerosis (Houndmills, Basingstoke, England)
Fleming LE
(2014)
Data mashups: potential contribution to decision support on climate change and health.
in International journal of environmental research and public health
Fletcher A
(2013)
Working towards "health in all policies" at a national level.
in BMJ (Clinical research ed.)
Fone D
(2014)
Effect of neighbourhood deprivation and social cohesion on mental health inequality: a multilevel population-based longitudinal study.
in Psychological medicine
Fone D
(2016)
Change in alcohol outlet density and alcohol-related harm to population health (CHALICE): a comprehensive record-linked database study in Wales
in Public Health Research
Fone D
(2013)
Common mental disorders, neighbourhood income inequality and income deprivation: small-area multilevel analysis.
in The British journal of psychiatry : the journal of mental science
Fone DL
(2013)
Cohort profile: the Caerphilly health and social needs electronic cohort study (E-CATALyST).
in International journal of epidemiology
Fonferko-Shadrach B
(2017)
Validating epilepsy diagnoses in routinely collected data.
in Seizure
Fonferko-Shadrach B
(2017)
Validating epilepsy diagnoses in routinely collected data.
in Seizure
Ford E
(2013)
Optimising the use of electronic health records to estimate the incidence of rheumatoid arthritis in primary care: what information is hidden in free text?
in BMC medical research methodology
Ford E
(2016)
Extracting information from the text of electronic medical records to improve case detection: a systematic review.
in Journal of the American Medical Informatics Association : JAMIA
Fortier I
(2017)
Maelstrom Research guidelines for rigorous retrospective data harmonization.
in International journal of epidemiology
Francis NA
(2017)
The management of acne vulgaris in primary care: a cohort study of consulting and prescribing patterns using the Clinical Practice Research Datalink.
in The British journal of dermatology
Francis NA
(2016)
Understanding flucloxacillin prescribing trends and treatment non-response in UK primary care: a Clinical Practice Research Datalink (CPRD) study.
in The Journal of antimicrobial chemotherapy
Fry R
(2018)
A best practice framework to measure spatial variation in alcohol availability
in Environment and Planning B: Urban Analytics and City Science
Fry R
(2016)
Using Routinely Collected Administrative Data in Public Health Research: Geocoding Alcohol Outlet Data
in Applied Spatial Analysis and Policy
Fuller GW
(2022)
The Socio-Demographics and Health Service Use of Opioid Overdose Decedents in Wales: A Cross-Sectional Data Linkage Study.
in European addiction research
Gabbe BJ
(2014)
Validating and Improving Injury Burden Estimates Study: the Injury-VIBES study protocol.
in Injury prevention : journal of the International Society for Child and Adolescent Injury Prevention
Gabbe BJ
(2015)
Level of agreement between patient-reported EQ-5D responses and EQ-5D responses mapped from the SF-12 in an injury population.
in Population health metrics
Gabbe BJ
(2015)
Reduced population burden of road transport-related major trauma after introduction of an inclusive trauma system.
in Annals of surgery
Gabbe BJ
(2013)
Comparison of measures of comorbidity for predicting disability 12-months post-injury.
in BMC health services research
Gabbe BJ
(2015)
RESTORE: REcovery after Serious Trauma--Outcomes, Resource use and patient Experiences study protocol.
in Injury prevention : journal of the International Society for Child and Adolescent Injury Prevention
Gabbe BJ
(2015)
How well do principal diagnosis classifications predict disability 12 months postinjury?
in Injury prevention : journal of the International Society for Child and Adolescent Injury Prevention
| Title | Poster at Informatics for Health 2017 conference |
| Description | Poster displaying the results from the 'Longitudinal analysis of critical care outcomes in Wales' project |
| Type Of Art | Image |
| Year Produced | 2017 |
| Impact | Won Farr Institute prize for best abstract for poster |
| Description | COVID19 vaccine uptake by ethnicity |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Discussion with alcohol-lead, Public Health Wales NHS Trust |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Gave evidence on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Giving input into the development of Welsh Governement's new Digital Health strategy |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Influence on the development of Welsh Health Policy: Prudent Healthcare |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Citation in other policy documents |
| URL | http://www.prudenthealthcare.org.uk/ |
| Guideline Title | JRCALC (Joint Royal College Ambulance Liaison Committee) guideline on falls in older adults |
| Description | Input into JRCALC (Joint Royal College Ambulance Liaison Committee) guideline on falls in older adults |
| Geographic Reach | Europe |
| Policy Influence Type | Citation in clinical guidelines |
| Description | Member of SAGE Social Care Working Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | A member of the SAGE SCWG from May 2020 to time of submission. Informing national policy with insight from SAIL databank analyses. |
| URL | https://www.gov.uk/government/publications/scientific-advisory-group-for-emergencies-sage-coronaviru... |
| Description | Membership of the ABMU HealthBoard SBRI Project Board (funded by Innovate UK |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Membership of the Academy of Medical Sciences "Health of the Public 2040" Working group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Membership of the Health and Social Care Information Centre's Expert Advisory Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Ministerial Industry and Strategy Group's workshop on Maximising the potential of data assets for biomedical research and patient care |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Presented on SARS-CoV-2 vaccination by ethnicity update. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| Guideline Title | Rapid Review Screening for Prostate Cancer. |
| Description | Rapid Review Screening for Prostate Cancer. Public Consultation Document |
| Geographic Reach | National |
| Policy Influence Type | Citation in clinical guidelines |
| Impact | The research has helped policymakers make evidence-based decisions about the population impact of PSA-based screening for prostate cancer. The CAP trial led to changes in health policy and professional guidelines around the world, with clinicians and health services now advised to encourage individualised shared decision-making (informing men of the possible harms and benefits and supporting decision making) rather than routine screening. These new guidelines help ensure that patients (men aged 50-69 years), GPs and urologists are better informed about the benefits and harms of PSA screening for prostate cancer. |
| URL | https://view-health-screening-recommendations.service.gov.uk/prostate-cancer/ |
| Description | Report on the development of Inspirational Case Study for INFACT |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Research use cases measuring the impact of COVID-19 on population health. |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Update on research |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Vulnerable populations and COVID: EU Population Health Information Research Infrastructure |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://www.phiri.eu/ |
| Description | 2013 Project grant funding |
| Amount | $5,113,948 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | A Mapping Service for Census Data |
| Amount | £15,000 (GBP) |
| Organisation | UK Data Service |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 10/2014 |
| End | 01/2015 |
| Description | A profile of population-based stage at diagnosis by cancer type and geography in Wales, and one-year relative survival by stage for the main cancer types CRUK |
| Amount | £53,905 (GBP) |
| Organisation | Cancer Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2018 |
| Description | A real time pharmacoepidemiological surveillance system for children with asthma (PhD Studentship) |
| Amount | £56,382 (GBP) |
| Organisation | Joseph Fourier University |
| Sector | Academic/University |
| Country | France |
| Start | |
| Description | A series of studies aimed at evaluating LASER (Learning about Safety by Experiencing Risk) safety education schemes |
| Amount | £52,971 (GBP) |
| Organisation | Royal Society for the Prevention of Accidents |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 09/2014 |
| Description | ACoRN - Advancing cross-centre research networks |
| Amount | £30,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | ASTRODEM: Using astrophysics to close the "diagnosis gap" for dementia in UK general practice |
| Amount | £94,008 (GBP) |
| Funding ID | 202133/Z/16/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2016 |
| End | 06/2018 |
| Description | Abertawe Bro Morgannwg University Health Board - Pathway to Portfolio |
| Amount | £9,549 (GBP) |
| Organisation | Abertawe Bro Morgannwg University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2014 |
| End | 05/2016 |
| Description | Administrative Data Research Centre Wales |
| Amount | £5,390,771 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2018 |
| End | 03/2021 |
| Description | Administrative Data Research Centre Wales (Part of ADR UK) |
| Amount | £13,196,318 (GBP) |
| Funding ID | ES/W012227/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 03/2026 |
| Description | Administrative Data Research Centres |
| Amount | £7,986,463 (GBP) |
| Funding ID | ES/L007444/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 09/2018 |
| Description | Alcohol Misuse: Electronic Longitudinal Alcohol Study in Communities (ELAStiC) |
| Amount | £978,102 (GBP) |
| Funding ID | ES/L015471/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2014 |
| End | 10/2017 |
| Description | All Wales Injury Surveillance System |
| Amount | £64,000 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | All-Wales Injury Surveillance System (AWISS) : 2014-15 |
| Amount | £65,116 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2015 |
| Description | All-Wales Injury Surveillance System (AWISS) renewal : 2015-16 |
| Amount | £64,366 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2016 |
| Description | Alzheimer's Disease Data Enablement Fund sponsored project: Traumatic brain injury, emotional adversity and the long-term effects on adult outcomes and dementia. |
| Amount | £612,845 (GBP) |
| Organisation | National Philanthropic Trust |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 03/2019 |
| End | 12/2019 |
| Description | Application of machine learning to discover new multimorbidity phenotypes associated with poorer outcomes |
| Amount | £554,943 (GBP) |
| Funding ID | MR/S027750/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2019 |
| End | 12/2021 |
| Description | Are people with COVID-19 and pre-existing respiratory disease at a higher risk of future cardiovascular and venous thromboembolic events compared with COVID-19 patients without pre-existing respiratory disease? HDRUK/Alan Turing Institute/ONS |
| Amount | £248,760 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 10/2021 |
| End | 09/2022 |
| Description | Asthma UK Centre for Applied Research |
| Amount | £120,000 (GBP) |
| Organisation | Asthma + Lung UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2014 |
| End | 09/2017 |
| Description | Asthma UK Centre for Applied Research |
| Amount | £2,000,000 (GBP) |
| Funding ID | AUK-AC-2012-01 |
| Organisation | Asthma + Lung UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 09/2018 |
| Description | BRIDGE-Health (BRidging Information and Data Generation for Evidence-based Health Policy and Research) |
| Amount | € 5,833,629 (EUR) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 04/2015 |
| End | 10/2017 |
| Description | Building an understanding of Ethnic minority people's Service Use Relating to Emergency care for injuries (BE SURE) |
| Amount | £737,510 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2021 |
| End | 09/2023 |
| Description | CEDAR Collaboration Agreement, |
| Amount | £94,927 (GBP) |
| Organisation | National Institute for Health and Care Excellence (NICE) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 04/2017 |
| Description | Cardiff Regional Experimental Arthritis Treatment and Evaluation (CREATE) Centre |
| Amount | £450,000 (GBP) |
| Organisation | Versus Arthritis |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2012 |
| End | 06/2017 |
| Description | Cardiovascular Risk In Patients with Psoriatic and Rheumatoid Arthritis (CRIPPRA) |
| Amount | £40,508 (GBP) |
| Funding ID | W12027776 |
| Organisation | Pfizer Ltd |
| Department | Pfizer Inflammation Competitive Research Programme (I-CRP) |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 08/2016 |
| Description | Centre for Administrative Data Research and Evaluation (CADRE) |
| Amount | £7,986,463 (GBP) |
| Funding ID | ES/L007444/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 09/2018 |
| Description | Centre for the Improvement of Population Health through E-records Research (CIPHER) |
| Amount | £4,374,292 (GBP) |
| Funding ID | MR/K006525/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2017 |
| Description | Centre of Research Excellence in Medicines and Ageing. National Health and Medical Research Council, Centre for Research Excellence Grant |
| Amount | £1,278,130 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Centres of Excellence in Public Health Research |
| Amount | £2,935,823 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | Child Health Clinical Outcome Review Programme |
| Amount | £1,400,000 (GBP) |
| Organisation | The Health Quality Improvement Partnership (HQIP) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Childhood Obesity and Neighbourhood Environments: Integrating MEDMI and SAIL |
| Amount | £5,000 (GBP) |
| Organisation | Medical & Environmental Data Mash-up Infrastructure |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | |
| Description | Children of CALICE risk factors for alcohol-related emergency admission to hospital in children and young people |
| Amount | £6,846 (GBP) |
| Organisation | Wellcome Trust |
| Department | Wellcome Trust Institutional Strategic Support Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2015 |
| End | 12/2017 |
| Description | Collaboration with HDRUK Data-Can cancer data initiative |
| Amount | £103,302 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 10/2020 |
| End | 03/2022 |
| Description | Cost of not treating Multiple Sclerosis with Disease modifying therapy |
| Amount | £149,929 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | Cystic Fibrosis Epidemiological Network (CF EpiNet) (Identifying policy-relevant determinants of health inequalities in cystic fibrosis using data linkage) |
| Amount | £140,000 (GBP) |
| Funding ID | SRC004 |
| Organisation | Cystic Fibrosis Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | DECIPHer: Centre for the Development and Evaluation of Complex Interventions for Public Health Improvement |
| Amount | £2,935,823 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | DVLA/DfT commissioned research |
| Amount | £100,000 (GBP) |
| Organisation | Department of Transport |
| Department | DfT, DVLA and VOSA |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2015 |
| Description | Data Linkage Australia: Development and expansion of data linkage infrastructure for Western Australia to support health research |
| Amount | $5,113,948 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Data Linkage across ambulance services and acute trusts: assessing the potential for improving patient care |
| Amount | £486,405 (GBP) |
| Organisation | The Health Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 04/2017 |
| Description | Data phenotyping longitudinal multimorbidity trajectories in cardiovascular disease: a statistical machine learning approach using nationwide electronic healthcare records |
| Amount | £301,553 (GBP) |
| Organisation | Alan Turing Institute |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 12/2019 |
| End | 11/2022 |
| Description | DataSHIELD for Accessing Sensitive HEalth Data (DASHED) |
| Amount | £19,600 (GBP) |
| Funding ID | ES/L007444/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2016 |
| End | 09/2019 |
| Description | Dataflow Development |
| Amount | £279,263 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 08/2018 |
| Description | Defying the odds': Exploring the impact of perinatal outcomes, maternal social and health outcomes and level of culturally appropriate service availability on the health of Western Australian Aboriginal infants and children. National Health and Medical Re |
| Amount | £331,684 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Development and feasibility cluster randomised controlled trial evaluation of a Peer-Led physical Activity iNtervention for Adolescent girls (PLAN-A) |
| Amount | £527,571 (GBP) |
| Funding ID | PHR/13/90/16 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 07/2017 |
| Description | Did the Communities First regeneration programme improve mental health and enhance social cohesion? A natural experiment |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | Does continuity of primary care reduce demand on emergency department presentations and hospital admissions? National Health & Medical Research Council, Project Grant |
| Amount | £414,739 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort |
| Amount | £153,855 (GBP) |
| Funding ID | ES/R005478/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 03/2020 |
| Description | Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort |
| Amount | £153,855 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 03/2020 |
| Description | Dynamic Insights for Health and Care |
| Amount | £57,006 (GBP) |
| Funding ID | NE/N007255/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 04/2018 |
| Description | Dynamic Wales Electronic Cohort for Children (D-WECC): a dynamic e-cohort to assess the impact of health and social factors on inequalities in educational outcomes and child health in Wales |
| Amount | £249,010 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 03/2015 |
| Description | EMRTS - ABMU |
| Amount | £31,701 (GBP) |
| Organisation | Abertawe Bro Morgannwg University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2019 |
| Description | ERA - Electronic Records in Ambulances to support the shift to out of hospital care: challenges, opportunities and workforce implications |
| Amount | £380,318 (GBP) |
| Funding ID | HS&DR/14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | ERA - Electronic records in ambulances |
| Amount | £380,317 (GBP) |
| Funding ID | 14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | ERA - Electronic records in ambulances |
| Amount | £380,318 (GBP) |
| Funding ID | HS&DR/14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | EVALUATION OF THE OUTCOMES OF THE FAMILY NURSE PARTNERSHIP PROGRAMME IN SCOTLAND |
| Amount | £183,000 (GBP) |
| Organisation | Government of Scotland |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Electricity Safety Council |
| Amount | £5,000 (GBP) |
| Organisation | National Home Improvement Council (NHIC) |
| Department | Electricity Safety Council |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2013 |
| Description | Enabling data linkage in CLOSER studies: The DaLEC study (Data Linkage in Epidemiological Cohorts). CLOSER internal investigator award |
| Amount | £140,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 12/2016 |
| Description | Epidemiology of rheumatoid arthritis in Western Australia. |
| Amount | £13,060 (GBP) |
| Organisation | Arthritis Australia |
| Sector | Charity/Non Profit |
| Country | Australia |
| Start | |
| Description | Evaluating the impact of opiate substitution treatment on drug related deaths in the population: a natural experiment using primary care, other drug treatment databases and model projections (NIHR HS&DR CPRD) |
| Amount | £262,873 (GBP) |
| Funding ID | HS&DR/12/136/105 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2015 |
| Description | Evaluation of "LIVING WELL LIVING LONGER" programme |
| Amount | £41,600 (GBP) |
| Organisation | Aneurin Bevan University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 03/2019 |
| Description | Evaluation of an Integrated Healthcare Services Model of Care. Medibank Health Solutions Grant |
| Amount | £179,198 (GBP) |
| Organisation | Medibank Health Solutions |
| Sector | Private |
| Country | Australia |
| Start | |
| Description | Evaluation of the Neath Port Talbot Air Quality Alert System |
| Amount | £20,000 (GBP) |
| Organisation | Neath Port Talbot County Borough Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2011 |
| End | 12/2014 |
| Description | Farr Institute: A collaborative proposal submitted by the four UK Health Informatics Research Centres |
| Amount | £5,000,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2014 |
| Description | Farr NLP open source software development |
| Amount | £48,470 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2017 |
| End | 10/2018 |
| Description | Feasibility of using consumer-targeted activity monitors in collecting physical activity data within the HealthWise Wales cohort: A pragmatic pilot study |
| Amount | £22,731 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Green-blue space exposure changes and impact on individual-level wellbeing and mental health: a population-wide record-linked natural experiment |
| Amount | £613,804 (GBP) |
| Funding ID | PHR/16/07/07 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2021 |
| Description | HDRUK |
| Amount | £3,003,650 (GBP) |
| Funding ID | NIWA1 |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 05/2018 |
| End | 04/2023 |
| Description | HGT5 funding for SBRI Innovation Catalyst Programme |
| Amount | £49,552 (GBP) |
| Organisation | European Commission |
| Department | European Social Fund |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2014 |
| End | 04/2016 |
| Description | HTA Primary Care Interventions Themed Call |
| Amount | £1,691,831 (GBP) |
| Organisation | National Institute for Health Research |
| Department | Health Technology Assessment Programme (HTA) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 12/2018 |
| Description | Health and social consequences of child abuse and neglect: an analysis using South Australian linked data. |
| Amount | £357,576 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Health outcomes of children and adults with learning difficulties |
| Amount | £30,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 04/2017 |
| Description | HealthWise Wales |
| Amount | £1,600,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Identifying the true cost of asthma in the UK: secondary analyses of national stand-alone and linked databases in England, Northern Ireland, Scotland and Wales |
| Amount | £99,608 (GBP) |
| Funding ID | AUK-PG-2012-178 |
| Organisation | Asthma + Lung UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Increasing neonatal survival in low-resource settings: evidence from South Africa's Perinatal Problem Identification Program. UWA Research Collaboration Award |
| Amount | £8,881 (GBP) |
| Organisation | UWA Research Collaboration Award (RCA) |
| Sector | Academic/University |
| Country | Australia |
| Start | |
| Description | Information for Action (InfAct) |
| Amount | € 151,003 (EUR) |
| Funding ID | 776487 |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2018 |
| End | 02/2021 |
| Description | Innovative Governance Workstream |
| Amount | £45,000 (GBP) |
| Organisation | University of Edinburgh |
| Department | Health Informatics Research Network, Edinburgh University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | |
| Description | Integrated DEmentiA research environment (IDEA) |
| Amount | £321,000 (GBP) |
| Funding ID | MR/M024881/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2016 |
| Description | Integrating personalised genomics into risk stratification models of population screening for cancer. Cancer Council Wester Australia, Capacity Building & Collaboration Grant |
| Amount | £626,917 (GBP) |
| Organisation | Cancer Council Western Australia |
| Sector | Hospitals |
| Country | Australia |
| Start | |
| Description | International Digital Healthcare Conference grant |
| Amount | £50,000 (GBP) |
| Organisation | Welsh Assembly |
| Department | Welsh Government A4B programme |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Description | MQ Adolescent Data Platform. MQ Transforming Lives |
| Amount | £800,000 (GBP) |
| Organisation | MQ Mental Health Research |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2020 |
| Description | MRC |
| Amount | £1,328,163 (GBP) |
| Funding ID | MR/M006727/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | MRC Dementias Platform |
| Amount | £4,511,230 (GBP) |
| Funding ID | MR/L015382/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2019 |
| Description | MRC Medical Bioinformatics |
| Amount | £8,500,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | MRC Strategic Skills Fellowship |
| Amount | £197,300 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2019 |
| Description | MS register - Extension |
| Amount | £181,244 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 11/2018 |
| Description | Machine learning and text mining techniques for accurate disease phenotyping from SNOMED derived clinical texts |
| Amount | £55,026 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Mind the Gap! An examination of the interface between primary and secondary healthcare for eating disorders |
| Amount | £212,312 (GBP) |
| Funding ID | HRA-1079 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2015 |
| End | 09/2017 |
| Description | Mobile Operator-Related Phone & Health Data (MORPHeD) Governance: A review of the information governance implications of combining mobile phone network data with health data |
| Amount | £45,000 (GBP) |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 09/2017 |
| Description | Morbidity following urinary tract infection in young children: an electronic record- linked cohort study |
| Amount | £284,000 (GBP) |
| Funding ID | HRA-15-1068 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Morbidity following urnary tract infection in young children: an electronic record-linked cohort study |
| Amount | £248,000 (GBP) |
| Funding ID | HRA-15-1068 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Multi-funder call (MRC, BHF, CRUK, ESRC, Welsh Govt, Wellcome, UKCRC) : DECIPHer |
| Amount | £2,935,822 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | MytHICAL- Mental Health Informatics in Children, Adolescents and young adults How do my feelings become numbers? |
| Amount | £708,219 (GBP) |
| Funding ID | MC_PC_17211 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | NICE Cardiac Ablation Project |
| Amount | £19,624 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 04/2016 |
| Description | NIHR Doctoral Fellowship |
| Amount | £247,752 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | NIHR HS&DR Programme - GPs in EDs - Evaluating Effectiveness, safety, patient experience and system implications of different models of using GPs in or alongside Emergency Departments |
| Amount | £943,936 (GBP) |
| Funding ID | 15/145/04 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 09/2019 |
| Description | NIHR Health Protection Research Unit (Evaluation) (NIHR HPRU) |
| Amount | £3,865,761 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2019 |
| Description | NIHR Health Technology Assessment Programme - Care of older people who fall: evaluation of the clinical and cost effectiveness of new protocols for emergency ambulance paramedics to assess and refer to appropriate community based care |
| Amount | £1,843,786 (GBP) |
| Funding ID | 07/01/21 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2009 |
| End | 01/2014 |
| Description | NIHR Public Health Research Programme |
| Amount | £736,755 (GBP) |
| Funding ID | 11/3020/05 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2013 |
| End | 12/2015 |
| Description | NISCHR |
| Amount | £1,600,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | NISCHR Centre for Population Health and Wellbeing Research |
| Amount | £2,250,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | NISCHR Health Call |
| Amount | £249,010 (GBP) |
| Funding ID | RFS-12-39 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | NISCHR Health Call |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | NISCHR Health Call |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2012 |
| End | 09/2014 |
| Description | NISCHR Health Fellowship Award 2014 |
| Amount | £258,167 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2015 |
| End | 09/2017 |
| Description | NISCHR RFS: Social Care Research Award |
| Amount | £175,445 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 03/2015 |
| Description | NISCHR RfPB |
| Amount | £170,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2015 |
| Description | NISCHR: RFS Social Care Research Award |
| Amount | £151,464 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 03/2015 |
| Description | National Ankylosing Spondylitis Society |
| Amount | £30,000 (GBP) |
| Organisation | National Ankylosing Spondylitis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2015 |
| End | 07/2016 |
| Description | National Centre for Population Health and Wellbeing Research (NCPHWR) |
| Amount | £3,356,125 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2020 |
| End | 03/2025 |
| Description | National Confidential Enquiry into Patient Outcome and Death |
| Amount | £1,400,823 (GBP) |
| Organisation | The Health Quality Improvement Partnership (HQIP) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | National Core Studies - Data Sprint |
| Amount | £1,417,500 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2021 |
| Description | National Health and Medical Research Council (NHMRC) Project Grants 2014 |
| Amount | $738,450 (AUD) |
| Funding ID | APP1061786 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 04/2014 |
| End | 03/2018 |
| Description | National Virtual Incubator at Swansea |
| Amount | £205,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2013 |
| End | 03/2016 |
| Description | PREVENTING CHILD INJURIES IN WALES NEEDS ASSESSMENT |
| Amount | £25,985 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 03/2016 |
| Description | PRIME Centre Wales - Wales Centre for Primary and Emergency Care Research |
| Amount | £2,666,903 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | PRISMATIC - Predictive risk stratification: impact on care for people with or at risk of chronic conditions |
| Amount | £691,101 (GBP) |
| Funding ID | 09/1801/1054 |
| Organisation | National Institute for Health Research |
| Department | Health Services and Delivery Research (HS&DR) Programme |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2010 |
| End | 08/2015 |
| Description | Paediatric Validating Injury Burden Estimates Study (VIBES-Junior) |
| Amount | $490,000 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Pattern of recovery following serious injury and implications for service delivery |
| Amount | $738,450 (AUD) |
| Funding ID | APP1061786 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 04/2014 |
| End | 03/2018 |
| Description | Pattern of recovery following serious injury and implications for service delivery |
| Amount | $872,800 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 04/2014 |
| End | 03/2018 |
| Description | PhD Studentship in applied asthma research : A validation of the health and social costs of asthma using questionnaire data |
| Amount | £60,000 (GBP) |
| Organisation | Asthma + Lung UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Pharmacoepidemiological surveillance for children with chronic conditions using data mining |
| Amount | £15,000 (GBP) |
| Organisation | Farr Institute of Health Informatics Research |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 10/2016 |
| End | 09/2017 |
| Description | Professor Lyons, Swansea University, Health Attainment of Pupils in Primary Education Network (HAPPEN), +3 (Fellowship) - start date Oct16 (3 years) (Ronan) |
| Amount | £57,501 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2016 |
| End | 09/2019 |
| Description | Provision of healthcare data and support to the UK Biobank cohor |
| Amount | £429,544 (GBP) |
| Organisation | UK Biobank |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2012 |
| End | 12/2015 |
| Description | RCT of ACTIVE - Randomised Control Trial of Active Children Through Individual Vouchers Evaluation |
| Amount | £299,904 (GBP) |
| Funding ID | PG/16/16/32057 |
| Organisation | British Heart Foundation (BHF) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Reducing Arthritis Fatigue - clinical teams using cognitive behavioural approaches (RAFT) |
| Amount | £448,024 (GBP) |
| Funding ID | HTA/11/112/01 |
| Organisation | National Institute for Health Research |
| Department | Health Technology Assessment Programme (HTA) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2013 |
| End | 07/2017 |
| Description | Research grant, Innovation "Air pollution, pollen, asthma and hayfever and their interactive effect on cognitive development: an environment and health data linkage feasibility study" |
| Amount | £109,851 (GBP) |
| Funding ID | NE/P010660/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | Review of evidence relating to harms resulting from security breaches or infringement of privacy involving sensitive personal biomedical and health data (including any knock on effects on beneficial data sharing). (Nuffield Evidence Review) |
| Amount | £8,000 (GBP) |
| Organisation | Nuffield Council on Bioethics |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 08/2015 |
| Description | SAIL Dementia eCohort |
| Amount | £50,308 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 08/2021 |
| Description | Sail Databank extension |
| Amount | £1,373,112 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2020 |
| Description | School Health Action Research Partnership and Network (SHARPEN): scoping and feasibility study |
| Amount | £500,755 (GBP) |
| Funding ID | MR/L002787/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2013 |
| End | 04/2015 |
| Description | Secure Anonymised Information Linkage (SAIL) Databank |
| Amount | £2,059,668 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Secure Anonymised Information Linkage Databank (SAIL). |
| Amount | £4,837,844 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2020 |
| End | 03/2025 |
| Description | Self Harm electronic Portal (SHeP) |
| Amount | £66,000 (GBP) |
| Funding ID | SCS-14-11 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 03/2019 |
| Description | Senior Faculty Award (2013/14) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2014 |
| Description | Senior Faculty Award (2014/15) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2015 |
| Description | Senior Faculty Award (2015/16) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2016 |
| Description | Senior Faculty Award (2016-17) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 03/2017 |
| Description | Senior Research Leaders Discretionary Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2021 |
| End | 03/2022 |
| Description | Support to Public Health Wales' Specialist Training Programme |
| Amount | £54,212 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2017 |
| Description | Supporting people |
| Amount | £268,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 03/2020 |
| Description | Swansea University Staff Bursary |
| Amount | £9,300 (GBP) |
| Funding ID | 451864 |
| Organisation | Swansea University |
| Department | College of Medicine |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 07/2014 |
| End | 09/2021 |
| Description | The Airwave Health Monitoring Study (AHMS). An Occupational Cohort Study of the British Police Forces |
| Amount | £1,941,097 (GBP) |
| Funding ID | MR/R023484/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2018 |
| End | 04/2023 |
| Description | The CHERISH_DE Centre |
| Amount | £3,017,488 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2015 |
| End | 12/2020 |
| Description | The National Centre for Mental Health (NCMH) |
| Amount | £3,833,764 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | The UK Birth Cohort Study of environment, development, health and wellbeing: interim contract |
| Amount | £12,248 (GBP) |
| Funding ID | ES/J007501/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2011 |
| End | 09/2012 |
| Description | The UK Multiple Sclerosis Register |
| Amount | £755,611 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 04/2017 |
| Description | The UK Multiple Sclerosis Register |
| Amount | £285,212 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2013 |
| End | 03/2014 |
| Description | The Welsh Study of Mothers and Babies: Follow-up of a population-based cohort of children aged 4-6 years |
| Amount | £24,000 (GBP) |
| Organisation | Wellcome Trust |
| Department | Wellcome Trust Institutional Strategic Support Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | The cost of ankylosing spondylitis using patient reported outcomes and routine anonymised linked data |
| Amount | £44,234 (GBP) |
| Organisation | Pfizer Ltd |
| Sector | Private |
| Country | United Kingdom |
| Start | 08/2012 |
| End | 07/2013 |
| Description | The cost of ankylosing spondylitis using patient reported outcomes and routine anonymised linked data |
| Amount | £44,234 (GBP) |
| Organisation | Pfizer Ltd |
| Department | Pfizer Inflammation Competitive Research Programme (I-CRP) |
| Sector | Private |
| Country | United Kingdom |
| Start | 08/2013 |
| End | 08/2014 |
| Description | The effectiveness and cost effectiveness of an employer-led intervention to increase walking during the daily commute |
| Amount | £972,682 (GBP) |
| Funding ID | PHR/13/117/01 |
| Organisation | National Institute for Health Research |
| Department | Public Health Research (PHR) Programme |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | The epidemiology, healthcare and societal cost of Melanoma in Wales: Analyses of standalone and linked national databases |
| Amount | £7,706 (GBP) |
| Funding ID | TIG2019-08 |
| Organisation | Tenovus Cancer Care |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2019 |
| End | 03/2021 |
| Description | The health impacts of structural energy performance investments in Wales: an evaluation of the Arbed Programme |
| Amount | £736,755 (GBP) |
| Funding ID | 11/3020/05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2013 |
| End | 12/2015 |
| Description | The impact of COVID-19 on health equality and mortality in people with epilepsy in Wales |
| Amount | £158,810 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2021 |
| End | 09/2022 |
| Description | The role of SL-6R Mediated Trans-signalling in Cardiovascular Morbidity |
| Amount | £100,000 (GBP) |
| Organisation | F. Hoffmann-La Roche AG |
| Sector | Private |
| Country | Global |
| Start | |
| Description | Transient Ischaemic Attack 999 Emergency Referral (TIER): feasibility trial |
| Amount | £238,139 (GBP) |
| Funding ID | RfPPB-1053 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 10/2015 |
| End | 02/2016 |
| Description | UK MEDical BIOinformatics partnership - aggregation, integration, visualisation and analysis of large, complex data (UK MED-BIO). |
| Amount | £5,941,410 (GBP) |
| Funding ID | MR/L01632X/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2014 |
| End | 05/2019 |
| Description | UK MS Register |
| Amount | £897,833 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2017 |
| Description | UK MS register |
| Amount | £309,267 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 05/2018 |
| Description | UKRI Innovation / Rutherford Fund Fellowships at HDR UK |
| Amount | £560,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2018 |
| End | 02/2021 |
| Description | Understanding healthcare utilisation of responders and non-responders to the bowel screening programme in Wales before and after invitation to screening in order to improve early detection either through screening or opportunistic testing |
| Amount | £103,603 (GBP) |
| Funding ID | C42767/A13690 |
| Organisation | Cancer Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2012 |
| End | 05/2014 |
| Description | Unravelling polypharmacy: Mining the complex interaction patterns between medications for enhanced patient care |
| Amount | £56,000 (GBP) |
| Organisation | Swansea University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | |
| Description | Using electronic linkage analysis to inform the development of an improved care pathway for psychiatric and self-harm emergencies currently transferred by ambulance to Emergency Departments |
| Amount | £30,000 (GBP) |
| Funding ID | HICG/1/27 |
| Organisation | Chief Fire Officers Associaton (CFOA) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2015 |
| End | 02/2016 |
| Description | Using health record linkage in the Millennium Cohort Study to investigate childhood obesity, asthma and infections |
| Amount | £313,934 (GBP) |
| Funding ID | 087389/B/08/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2017 |
| Description | WCRC |
| Amount | £4,500,000 (GBP) |
| Organisation | NHS England |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Wales Cancer Bank. Subcontract to Cardiff University for information system development. |
| Amount | £502,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Wales Centre for Primary and Emergency Care Research - PRIME Centre Wales |
| Amount | £2,700,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Wales Kidney Research Unit |
| Amount | £121,644 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 09/2020 |
| Description | Wales Kidney Research Unit (WKRU) |
| Amount | £212,313 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 03/2018 |
| Description | Wales/NI substantive site. HDR UK |
| Amount | £3,003,650 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 05/2018 |
| End | 04/2023 |
| Description | Web-Based recruitment to cohort studies |
| Amount | £93,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Wellcome Trust Strategic Award |
| Amount | £7,756,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2014 |
| End | 03/2019 |
| Description | Welsh Government Social Policy Research Funding: Fuel Poverty |
| Amount | £190,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 01/2018 |
| Description | Welsh Government Social Policy Research Funding: Supporting People (Feasibility Study) |
| Amount | £60,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 05/2016 |
| Description | Welsh SBRI Innovation Catalyst Programme |
| Amount | £785,010 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Description | What is the uptake, safety and effectiveness of COVID-19 vaccines in: a. pregnancy; b. children and young people; c. those receiving booster doses; d. those co-administered COVID-19 and influenza vaccines? |
| Amount | £249,775 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 10/2021 |
| End | 09/2022 |
| Description | Whole Genome Sequencing for Health and Wealth: A bid to establish the Wales Genomic Medicine Centre to contribute to the UK 100,000 Genomes Project and Strengthen Genomics in Wales |
| Amount | £2,351,522 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 11/2018 |
| Description | Wolfson Foundation |
| Amount | £10,000,000 (GBP) |
| Organisation | The Wolfson Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2019 |
| Description | World Universities Network Research Development Fund - Workshop on sharing sensitive data |
| Amount | £25,028 (GBP) |
| Organisation | Worldwide Universities Network |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 08/2016 |
| End | 08/2017 |
| Title | DPUK Data Portal |
| Description | The DPUK Data Portal has been relaunched to include a seamless transition from the DPUK main welcome site into the research infrastructure. The Portal, hosted by Swansea University, now includes openly available metadata on the DPUK cohorts, as well as information on the various parts of the infrastructure, which include: Portal analysis environment powered by virtual desktop infrastructure, imaging platform powered by XNAT, genetic platform created by Digital Health Labs, data linkage possibilities using world-leading matching technology, and a new and easy-to-use application form for researchers to apply for access to data, based on categorised dementia-specific data ontologies. The Portal is now supporting data access applications with dedicated resource to manage this process, and data management based on consultation with other data consortia and the cohorts themselves is underway using novel data management infrastructure (research data appliance based at Swansea University), enabling governance to remain entirely with the data provider and data access permissions to be managed by a central facility. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | The relaunch of the Portal has seen a surge in scientific collaboration in DPUK - for the period November 2017-January 2018, there are 12 live studies on the Portal, all using multiple cohorts and all cross-institution, including internationally-led studies from Maastricht University and the University of Hong Kong. These studies have primarily phenotypic data as their main modality, however we are also seeing the combination of phenotypic, genotypic and imaging data in studies, thus showing the power of a central system for accessing and analysing data from previously disparate sources. Genetics and imaging work packages are also contributing to the studies being supported by DPUK, and the Portal is making data available to specialists in these areas in order for them to derive services for the epidemiological community to make use of data that was previously unobtainable, either due to access difficulties or specialist intervention being necessary. |
| URL | https://portal.dementiasplatform.uk/ |
| Title | DPUK Data Portal Datathon Virtual Desktop |
| Description | Bespoke virtual desktop infrastructure for DPUK Datathons - comprising of dedicated 32GB RAM/4 CPU machines supporting up to 60 concurrent users. Pre-loaded with software such as Stata 16, SPSS, SAS, R, Python (Anaconda), PyCharm, Spyder, Jupyter Notebook, Eclipse, SQL Server Management Studio, Matlab, and Office. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | The dedicated Datathon desktop has allowed us to run 4 DPUK Datathon events across the UK, which have had an international audience of over 150 researchers cumulatively. |
| URL | https://portal.dementiasplatform.uk/ |
| Title | SAIL Dementia eCohort (SAILDeC) |
| Description | DPUK has funded the creation of the SAIL (Secure Anonymised Information Linkage) Databank Dementia eCohort, known as SAILDeC. A team from the University of Edinburgh, led by Dr Tim Wilkinson and Dr Christian Schnier, have developed a research cohort from routine healthcare records found in the SAIL Databank, a research databank containing routine healthcare and adminstrative records for the Welsh populace. The eCohort is derived from 1.2 million individuals who met the inclusion criteria, and of those, ~130,000 dementia cases throughout the data coverage have been identified. This represents the first UK research-ready disease cohort derived solely from routine healthcare records, which can be analysed in its own right or combined with other rich sources of cohort and routine data. It is thought that the technical components of creating the cohort, in terms of coding and initial analysis, could be the lead for future eCohort generation in other disease fields. These eCohorts could then be analysed within their specific area of science, or combined for a rich multi-morbidity database. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | This is the first disease-specific eCohort of patients to be created from ~20 years of routine healthcare data. It provides a rich dementia-specific resource for episodic progression of patients with initial MCI through to mortality, and every stage in between. The process of creating the cohort can inform the creation of such cohorts from the SAIL source and other routine clinical data sources in many disease areas. |
| Title | The Housing Regeneration and Health Study dataset |
| Description | Data held within the SAIL gateway to analyse an intervention on housing and health |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | Dataset allowed us to evaluate a regional housing intervention at the individual level to produce exciting results about the impact on emergency hospital admissions. Dataset is available to use through the SAIL gateway. We are attempting to secure funding for further analyses through the ESRC Doctoral Training Partnership awards |
| Title | Dementias Platform UK Data Portal |
| Description | The DPUK Data Portal is a platform to allow the ingress of data from cohort studies and real-world evidence data from across the UK and internationally. The Portal allows access, subject to data provider approval, to said data via an integrated application system, and provides an analysis environment on remote desktop to allow distributed team science from anywhere in the world. The Portal environment comprises of front end user tools, a virtual desktop infrastructure for data analysis, a security system for permissions management and data upload, and an underlying architecture of substantial storage and applications to support the data needs. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2017 |
| Impact | To date (early 2019) we have had ~80 applications for cohort data via our new processes. Of these, 50 have been approved and at least 25 studies are underway with analysis of their approved cohort data. All of these studies are contributing to the dementia research community with a mixture of traditional epidemiological hypotheses, methodology validation, complex machine learning, and statistical modelling all being achieved in the Portal. Website: https://portal.dementiasplatform.uk |
| Title | UKSeRP (UK Secure eResearch Platform) |
| Description | UKSeRP is a secure data management and analysis platform created through MRC's capital investment in the Farr Institute. It is an integrated suite of hardware and software tools that enables uses to upload and remotely manage their data and make the data available for analysis to distributed research teams. UKSeRP instances have been created for the MRC Dementias Platform UK, UK Biobank outcome adjudication group, ALSPAC, linked Millennium Cohort Data and the Multiple Sclerosis Register. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2014 |
| Impact | UKSeRP supports the development and implementation of distributed multi-disciplinary UK Team Science in providing access to multi-modal multi-cohort data. |
| Description | "Data-driven drug safety signal detection methods in pharmacovigilance using electronic primary care records: A population based study, 2016 International Population Data Linkage Conference" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Raised the awareness of adverse drug issues and inspired the application of data-driven approach to this new domain |
| Year(s) Of Engagement Activity | 2016 |
| Description | "Development of data-driven framework for automatically identifying patient cohorts from linked electronic health records, 2016 International Population Data Linkage Conference" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Inspired the cross-disciplinary research across computer science, epidemiology, public health, health informatics |
| Year(s) Of Engagement Activity | 2016 |
| Description | "Presentation entitled Data Linking Progress and Plans at Welsh Statistical Liaison Committee" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Around 20 attendees; further discussions re use of data linking across public sector in Wales - Sarah Lowe |
| Year(s) Of Engagement Activity | 2014 |
| Description | "Presentation entitled The WG Programme to Maximise the Use of Existing Data Data Linkage Demonstration Projects at the WISERD Conference" - June 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | "Presentation entitled The WG Programme to Maximise the Use of Existing Data Data Linkage Demonstration Projects at the WISERD Conference" - Sarah Lowe |
| Year(s) Of Engagement Activity | 2014 |
| Description | 'Do the Right Thing', Cochrane Theatre, Southampton Row, London. - 27th January 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | debate regarding 'Do the Right Thing', Cochrane Theatre, Southampton Row, London. |
| Year(s) Of Engagement Activity | 2019 |
| Description | (2015.04.17) - Working Group: ABMU and Swansea University SBRI Project Board Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To make decisions Outcomes: New direction for important new initiaitve in Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | 03/07/17 Data Science at Swansea. Meeting with International Consortium for Health Outcome Measurement (ICHOM), Swansea |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with International Consortium for Health Outcome Measurement (ICHOM), Swansea |
| Year(s) Of Engagement Activity | 2017 |
| Description | 07/03/17 Evaluation of natural experiments of social & environmental interventions with potential impacts on population risk of diabetes and cardio-metabolic disease: the challenge of data availability |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | National Network of Public Health Institutes, Atlanta, US |
| Year(s) Of Engagement Activity | 2017 |
| Description | 10/08/17 Injury surveillance in Europe and the international context. Presentation to Royal Society for the Prevention of Accidents (RoSPA)., Public Health England and Royal Society of Emergency Medicine meeting 'Delivering the benefits of the ECDC', Birmingham |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Public Health England and Royal Society of Emergency Medicine meeting 'Delivering the benefits of the ECDC', Birmingham |
| Year(s) Of Engagement Activity | 2017 |
| Description | 11/05/17 Data Science Developments: options and opportunities for UK health data science. Presentation to All-Wales Critical Care and Trauma Network, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to All-Wales Critical Care and Trauma Network, Cardiff |
| Year(s) Of Engagement Activity | 2017 |
| Description | 12-14/9/18 - IPDLN conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Linking Data - Improving Lives, a forum for the presentation and discussion of research and innovation in the area of Linked Population Data Science and Policy Impact. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 15/06/17 Health informatics research - a view from Wales. OSCHR Health Informatics Group, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | OSCHR Health Informatics Group, London |
| Year(s) Of Engagement Activity | 2017 |
| Description | 16-02-17 - HealthWise Wales Steering Group (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Board meeting - Steering national strategy for new research infrastucture |
| Year(s) Of Engagement Activity | 2016 |
| Description | 16/05/17 Big data approaches to population health, Cardiff University Population Health Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cardiff University Population Health Conference |
| Year(s) Of Engagement Activity | 2017 |
| Description | 16/08/17 SAIL. Presentation to British medical association and GPC Wales Committee, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cardiff |
| Year(s) Of Engagement Activity | 2017 |
| Description | 17/01/17 Data linkage: an essential tool for efficient observational and interventional research and service delivery |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation for visit of Graham Spittle (MRC), Swansea |
| Year(s) Of Engagement Activity | 2017 |
| Description | 19/06/17 Linkage of routine data, use of the SAIL database and its application in orthopaedic research, Trauma and Orthopaedic Department Cardiff and Vale NHS Trust, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Trauma and Orthopaedic Department Cardiff and Vale NHS Trust |
| Year(s) Of Engagement Activity | 2017 |
| Description | 19/07/17 Harnessing Big Data to improve Respiratory Health, Cardiff, |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Asthma UK and British Lung Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 19/07/17 Round table discussion with NHS, academia, and funders (Asthma UK and British Lung Foundation) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Asthma UK and British Lung Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2-3/7/18 - International Workshop to develop a Burn Prevention Toolkit for resource-poor settings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | As part of our comprehensive approach to improving burn care and prevention in resource poor setting, Interburns will be developing a Burn Prevention & Implementation Toolkit. The purpose of this Toolkit is to provide an evidence-based resource on the different tools available for primary prevention of burn injuries at the community level, which can be adapted to the specific needs and context of a country, region or individual community. In order to ensure this Toolkit can be effective in a wide range of settings internationally, the development workshop will bring together a wide range of professionals with relevant expertise from across the world. Ronan invited to participate in the development workshop for this programme, which is hosted in Swansea over 2 days on 2nd & 3rd July 2018, by the Centre for Global Burn Injury Policy and Research (CGBIPR) at Swansea University in the UK. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2016-05-24 - Launch of the Irish Research Board' national data strategy (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Outlining Swansea's contribution to the Irish national strategy |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.hrb.ie/uploads/tx_hrbpublications/Proposals_for_an_Enabling_Data_Environment_for_Health_a... |
| Description | 2016-06-07 - HealthWise Wales Scientific Steering Group (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Steering high profile project with large public engagement component |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.healthwisewales.gov.wales/landingPage.php |
| Description | 2016-06-28 - Presentation to DVLA new CTO and colleagues (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Better understanding of Swansea's data linkage facilities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.14 Academy or Medical Sciences working group - 2016.01.14 (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Working up high impact publication, shaping data collection mechanisms |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf |
| Description | 2016.01.16 - HealthWise Wales Biosampling Workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion of new approaches to sample collection for Health Wise Wales program |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.18 - Strategy meeting with Janssen Pharmaceuticals (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing a working relationship with the company for joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.19 - Health and Care Research Wales Board (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | National health R&D strategic development |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.21 CHERISH-DE National Center Launch (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Launch event |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.02 - Presentation to NHS Digital's Data Access Advisory Group (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overview of safe data linkage and sharing opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.11 - Meeting with GE Healthcare (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Discussions leading to a research collaboration |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.29 - Novartis Steering Group Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing a working relationship with the company for joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.29 - Precision Medicine Catapult Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Building the case for a catapult node in Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.03.01 - ADRC Wales seminar (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Expert Seminar |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.03.22 - Cabinet Office Data Sharing workshop (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Resulted in important sections being included in the Digital Economy bill |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.13 - Conference on ME / Chronic Fatigue |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Debate about how to bring together a definitive research study to better understand ME/CFS |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.18 - Dynamic Insights discussion with 02 - Major mobile operator (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Workshop to agree a programme of joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.27 - People Verus Data debate (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Debate on personal privacy and whether it is still possible in the digital age |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.09 - Open data in Healthcare conference (SCATA) (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to delegates on making valuable personal based data safe for research use |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.10 - Introduction to ADRC W at Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sharing the benefits of ADRN with a wide selection of policymakers in Welsh Government |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.11 - Health and Care Research Wales Board meeting (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Formulating research strategy for Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.09 - EDARA Study Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Steering important study on changing alcohol care |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.13 - MediWales Directors meeting (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Steering national strategy of this membership organisation of life science businesses |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.13 - International Administrative Data Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Establishing a relationship with representatives of a major US initiative |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.14 - Meeting with US colleagues setting up a national data sharing initiative (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Establishing a relationship with the representative of a major US initiative |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.21 - Strategic discussions with the DVLA (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Describing trustworthy data safe haven approaches at Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.24 - Meeting with GE Healthcare (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Building a strategic relationship with an international company |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.27 - Presentation of MS register to patient audiences (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Heighten awareness of opportunity to become involved in sharing data for MS research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.29 - Asthma charity and Welsh Government lobbying event (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussions and presentations of Asthma and asthma research strategy |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.13 - Visit of US colleagues interested in national systems for data sharing (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Increased understanding of Swansea's capabilities and systems |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.21 - Visit of national delegation from Ireland (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Detailed fact finding mission from Irish government organisations |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.26 - The Royal Society and the British Academy seminar on connecting debates on the governance of data and its uses (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Thought provoking event about the possible futures for personal data in the UK |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.10 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.28 - Running and chairing of international conference on data linkage (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 600+ researchers from across the world, coming to hear about advances in safe and effective data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.30 - Public Engagement activity (Tenovus) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Tenovus networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.05 - Public Engagement activity (Age Cymru) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Age Cymru Swansea Bay networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.06 - Public Engagement activity (Swansea County Council) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Swansea County Council - Local Area Coordination team networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.06 - Visit of New Zealand's national data sharing infrastucture (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Recognition on Swansea's contribution to the formulation of New Zealand's national architecture and systems for data linkage and sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.13 - Presentation of MS register to patient audiences (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Heighten awareness of opportunity to become involved in sharing data for MS research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.13 - Public Engagement activity (SCVS) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | SCVS networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - Public Engagement activity (Involving People) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Involving People Network networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - Public Engagement activity (Technocamps) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Technocamps networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Follow up meeting on opportunites for data-driven asthma research (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Devising opportunities to use data to drive insights into asthma in the UK |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Public Engagement activity (Carmarthenshire 50+) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Carmarthenshire 50+ Networking Event |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Public Engagement activity (Dementia Friends) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Dementia Friends Networking Meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.19 - Public Engagement activity (PHW Carmarthenshire and Pembrokeshire) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public Health Wales Carmarthenshire and Pembrokeshire networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.20 - Public Engagement activity (CETMA) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | CETMA Llanelli |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.21 - Public Engagement activity (Llanelli Town Council) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Llanelli Town Council |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.22 - CHERISH Imaginarium (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Running a workshop to surface exciting new research and innovation project ideas |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - Public Engagement activity (Carmarthenshire Communities First) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire Communities First |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.26 - Strategic discussions about cooperation with new ONS Data Science campus (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Open discussion about opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.28 - Conference on ME / Chronic Fatigue (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Debate about how to bring together a definitive research study to better understand ME/CFS |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.29 - Public Engagement activity (Age Cymru Sir Gar) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Age Cymru Sir Gar |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.02 - ICES Scientific Advisory Committee - International steering group of major Canadian data research centre (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Advising on strategy |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.14 - Public Engagement activity (Afan Communities First) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Afan Communities First |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.19 - Public Engagement activity (Carmarthenshire 3rd sector Brokers) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire 3rd Sector Brokers |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.04 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.04 - Public Engagement activity (Digital Communities) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire County Council - Digital Communities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.11 - Early discussions about collaborative opportunites with industry leader in data platforms (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Scoping collaborative opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.11 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | SPICE - Time Banking Network |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.23 - Public-Academic Research Colloquium - International conference in the US on data sharing of US public data for social research (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Highlighted UK's strengths in platforms and approaches |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.24 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Ataxia and me |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.25 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Filming of participants of the ACTIVE project |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.29 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Engage conference |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.06 - Chairing a panel session of digital healthcare for a major life sciences conference (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Heightened understand on the future direction of digital health and healthcare |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.09 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | ACTIVE project peer mentoring day |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.12 - Telephone meeting as part of a recommisioning expert panel for Arthritis Research UK (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Evaluating the performance of a UK research infrastructure against best practice in the field |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2017.01.05 - Health of the public in 2040: implementation workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Wide range of governmental, research and charitable bodies working to move froward the recommendations of the report |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf |
| Description | 2017.01.06 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | ACTIVE project media launch |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.11 - Data Journeys in Biomedicine: Research Translation and Infrastructure Management workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Identifying best practice in safely sharing data from and for research |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.datastudies.eu/data-journeys-in-biomedicine-2017 |
| Description | 2017.01.11 - Public Engagement activity (Oriel Science) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Oriel Science project meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.17 - Referee for the Research council of Norway (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sitting in judgement about the quality and strategic fit for Norway's research infrastructure for next 5-10 years |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2017.01.21 - Member of panel awarding research grants for ESRC on proposals for the use of new and emerging forms of data (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Multiple awards made to the best project proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.26 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | NCPHWR Knowledge Exhange Group meeting presentation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.03 - Public Engagement activity (British Heart Foundation) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Planning meeting with British Heart Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.07 - EDARA Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Steering group for a major national research study aimed at improving alcohol related hard in the UK. Significant public policy interest. Outcome: Changing the policy and practice landscape in the UK for alcohol |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.08 - Precision Medicine Catapult meeting |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Summarising the work, data and facilities of Swansea to support possible involvement in industrial development activities with private and public sector around precision medicine. Outcome: Potential involvement in UK-wide data infrastructures for PM |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.09 - Finnish Government visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Delegation from Finnish government and health system representative with some senior academic collaborators to discuss how Finland might build on the work of Swansea in Final for a national data sharing architecture. Outcome: Influencing national policy for Finland, potential involvement in the supply of system to support Finland's progress. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.10 - RITREVA Project |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sharing plans to develop an extension to Swansea's National Research Data Appliances to provide NLP facilities in support of clinical trials. Outcome: Potential funding for Wales-wide project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.13 - BMS / Pfizer collaboration |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | A round table meeting to discuss the development of a formal MOU to cement relationship between two pharmaceutical companies and Swansea. Outcome: Formal MOU drafted and signed by both parties + initial funded project agreed and underway. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - Children's Legal Centre for Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Discussion to assess how Swansea's data and facilities could be extended to support work in Human Rights of the Child. Outcome: Potential for collaborative activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - MSSN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Project Board overseeing development of national safe setting architecture for the UK, based on "pods" technology. Outcome: Rollout of 40+ preconfigured and approved "safe" settings for use in universities and other sites across the UK to receive access to sensitive data for analysis |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - Public Engagement activity (NCMH) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | NCMH networking meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.15 - Public Engagement activity (Wales Digital Communities) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Supporters |
| Results and Impact | Wales Digital Communities networking meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.20 - MediWales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++ |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.27 - Cardiff Capital City Deal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Early meetings with local and government reps to discuss how Cardiff City deal could benefit from the work of the Swansea Group. Outcome: Increased awareness of Swansea's facilities and collaborative opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.27 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | NHS - District Nursing Student visit |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.28 - Cancer Research UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Strategic discussions to understand how Swansea data, facilities and expertise could support the work of Cancer Research UK. Outcome: High level understanding of Swansea potential contribution to CRUK's national activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.07 - GE Healthcare |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.07 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Internal staff public engagement workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.08 - IPDLN Executive Team meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overseeing the strategic development of the international society for academic, governmental and health system centres that use data linkage mechanism to conduct research. Outcome: Programme of events and activities across the world to support this interest group - showcasing UK and Swansea achievements internationally |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.11 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Swansea University school engagement day |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.13 - Familiy Justice Observatory |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Planning of the development of a potential new centre to help better understand family justice matters in the UK, with support and funding from the Nuffield. Outcome: Invitation to request funding in support of the development |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.17 - WCRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Group to take forward the development of a programme of work in support of Wales Cancer Research centre's community aspirations. Outcome: Funded programme of work |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.28 - Digital Economy Imaginarium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Delivered workshop to gain better understanding of business and public sector needs and match them to expertise in academia. Outcome: Range of collaborative projects have arisen and been taken forward |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.29 - NHS Digital Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.04 - Digital Economy Crucible |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop held to support ECR's idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.04 - Primary Care Public Health Information |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Steering group to help support needs of primary care in Wales through information provision. Outcome: Development of a project to deliver information products to support their needs |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.06 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to sumbit costed proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.06 - Welsh Scientific Advisory Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to Wales' primary scientific advisory committee on SAIL Databank, ADRC Wales, and associated work. Outcome: Inclusion of Swansea's work in national strategy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.07 - AAAI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.03 - ONS Data Science Campus |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic planning meeting to understand the collaborative opportunities possible between Swansea and the new ONS Data Science campus. Outcome: List of potential areas / projects for collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.04 - GE Healthcare |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.08 - Welsh Governement Informatics Task Force |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.09 - Keynote talk at ISBER 2017 (Toronto, Canada) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Provided talk on safe data infrastructures to support international biobanking initiatives. Outcome: Further discussions with various delegates who heard the talk (various countries) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.16 - H&CRW Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.17 - Nuffield Foundation (Oliver Bird fund) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Providing advice, based on Swansea's expertise and facilities, to the Nuffield on how to best utilise their Oliver Bird endowment. Outcome: New focussed plans for investment into data-related activities in the UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.22 - NWIS health data strategy meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | High level meeting to agree national approach to providing safe and secure access to health data for research. Outcome: Agreement in approach 2017-2020 |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.23 - Dynamic Insights Steering Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Board meeting for collaboration with O2 telecoms company. Outcome: funded InnovateUK collaborative project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.07 - Digital Health Federation Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | First meeting of an international Board to steer the development of an international federations of data facilities, to answer requirements of internationally scaled research and industrial needs. Outcome: Agreement of basic HoA agreement for members to sign (subsequently signs as partner) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.12 - AAAI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.13 - NHS Digital Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.15 - MD2i (innovative and intelligent Medical Device) Grenoble, France |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk on UK and Swansea data infrastructures to support research. Outcome: Invitation to sit on Grenoble's Board overseeing their own local strategy |
| Year(s) Of Engagement Activity | 2007,2017 |
| Description | 2017.06.22 - Funding Panel: Canadian Cyber Infrastructure Initiative Toronto |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Supporting Canadian Government make strategic funding decisions on national data infrastructures. Outcome: Shortlisting of best proposals received |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.26 - Ser Cymru |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing strategy for Climate Impact modelling for Wales. Outcome: Development of strategic plans for climate modelling |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.29 - MS Frontiers - Multiple Sclerosis Register outreach |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | High profile stand, talks and demos showcasing Swansea's MS Register project to people with MS and their families visiting this, the largest conference for people with MS in the country. Outcome: Large number of sign-ups to the Register, increased research and governmental interest, increased enthususaim in existing MS Register participants |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.05 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.14 - MediWales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++ |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.20 - UK e-Infrastrucure consortium meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Working group developing a business case, in conjuntion with the UK research councils, to support funding for the UK's national e-infrastructures, across all science domains. Outcome: Business developed |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.21 - AMS Health of the Public 2040 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.28 - Digital Economy Crucible |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop held to support ECRs idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.01 - IPDLN 2018 Conference - Scientific Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Planning the scientific content for the next international conference on data linkage research. Outcome: Speaker invites, topics selected, programme in draft |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.02 - Welsh Governement Informatics Task Force |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.09 - Webinar for the Asia eHealth Information Network (AeHIN) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 100 interested parties from government, academia and industry from Asia and the far east sat in on this webinar to understand how Swansea has built and operates its data infrastructure. Outcome: Potential collaborative activities and technology sharing (Swansea's technologies to Asia) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.10 - AMS Health of the Public 2040 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.10 - Giving evidence to the UK's Longitudinal studies review (Prof Ray Chambers) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Detailed discussion on the state of play of the UK's data systems to support longitudinal research. Outcome: Not aware of any outcome |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.11 - Strategic meeting with CEQUR Ltd |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing needs and capabilities between Swansea Group and a major new industrial company. Outcome: Potential collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.05 - New Brunswick (Canada) visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Deputation from province of New Brunswick (Canada) made up of government executives, research funders, and academics to understand how Swansea has set up and run SAIL DataBank and other initiatives. Outcome: Agreement to support New Brunswick as they develop their plans to build a similar data infrastructure |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.20 - H&CRW Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.22 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.25 - Joint Clinical Research Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Board meeting agreeing strategy for this research facility operated in partnership with NHS Wales' Health Board. Outcome: New focus on research in Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.26 - Pfizer UK Board meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Attending Pfizer pharmaceutical Board meeting to provide updates into Wales' data systems and collaboration opportunities. Outcome: Further research opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.29 - MediWales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++ |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.01 - ICES Scientific Advisory Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Seat on the Institute of Clinical Evaluatiative sciences (ICES) Scientific Advisory Committee to provide guidance on their strategic development and recommendations to their funders and Board. Outcome: Insights into overseas centres similar to ours |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.06 - International Collaboration meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | International strategic meeting, mapping future collaborative opportunities across jurisdictions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.19 - Centre for Epidemiology Renewal Site visit |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Part of a multi-expert team of assessors, working for Asthma Research UK to assess the progress and plans of Manchester's Centre for Epidemiology. Outcome: A formal report leading to a recommendation to refund |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.24 - Biobanking task and finish group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.27 - Digital Economy Act regualtion consultation event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Participation in workshop to help refine the regulations that are currently in development to operationalise the Digital Economy Act's Research and Statistics strand. Outcome: Revised regulations |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.07 - Data Linkage courses and teaching |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of an extended agreement to provide University of Western Australia teaching and expertise to the UK via Swansea. Outcome: Continuation of high quality, subject relevant teaching to any student in the UK (short course and MSc) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.10 - Super Computing Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion with Welsh national supercomputing programme (all sciences) to discover levels of support and facilities potentially on offer to support health and social data sciences in Wales. Outcome: Agreement on the level and nature of on-going facilities and expertise available |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.14 - Discussions with Paul Bonnington and colleagues (Research Computing, Montash Universty, Australia) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | A set of discussions to scope the sharing of Swansea's data sharing platforms (SeRP and NRDAs) for use in Australia via Monash University. Outcome: An agreement for them to fund the costs of providing our technology to Australia |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.22 - Presentation to the English NHS National Data Opt Out Advisroy Group on SAIL Databank |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Provided a high level overview of the differing emergent strategies in Wales and England relating to patient opt-out and how Wales has managed to maintain high trust and support with its population and practitioners throughout. Outcome: Better understanding (in NHS England) about how Wales has managed population trust in health data research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.27 - Presentation and facilitiate workshop to various SMEs about opportunities to access PhD studentships |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation on Swansea's data expertise and facilities available to support data science agenda with industry partners and mechanisms by which Swansea can support the needs of Welsh companies. Outcome: DTC proposal |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.01 - Presentation and workshop participating to help Nuffield Foundation and Arthritis Research UK develop a data strategy for musculoskeletal research in the UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | To inform the development of a new data strategy for ARUK and Nuffield. Outcome: New strategy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.06 - Working group to devise plan to move NHS Wales to using SNOMED CT in future years |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Conducting baselines review of compliant systems and framework for moving towards 100% use of SNOMED CT in the future. Outcome: New approach for Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Annual Awards ceremony, giving prizes to the NSH and to industry for a range of awards |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Giving prizes (previously selected) to the winner of a range of awards. Outcome: Increased focus on co-working between NHS, government, academia and industry in Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Wales Centre of Public Policy / SAIL Databank strategy meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | First of a series of workshops to help the newly formed WCPP understand how it might pursue its work through using data and data science techniques. Outcome: Close working relationship |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.03 - Follow on to conversation with Ministry of Health (England) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping discussion to asses how SAIL / ADRN / HDR UK can support DoH taking part in data sharing projects for public good. Outcome: Not aware of any outcome |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.08 - Early scoping discussions about utilising GeL's genetics platforms to process Welsh patinet sames and return the data. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Scoping discussion. Outcome: Potential agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.11 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.16 - Informatics Statment of Intent implementation workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.17 - Research Data Alliance Workshop and Invited talk - Amsterdam |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Keynote talk on the issues related to curation and sharing of highly sensitive person-based data + workshops participation. Outcome: New highlighted focus on person-based data and privacy in the RDA |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.22 - Biobanking task and finish group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending) |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.30 - Strategic meetings with ONS in the context of next stage of what was ADRN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.01 - Public Health Wales / ADRC / SAIL strategic meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Framing a new relationship between Swansea's data platforms and Public Health Wales. Outcome: More policy-relevant research analyses |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.02 - Data for Children themed workshop - Chair Leon Feinstein |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Co-chair and participation in a workshop to frame a new data request to multiple government ministries and agencies to construct a linked data resource for the benefit of children though research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.07 - Informatics Statement of Intent implementation workship |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.13 - Biobanking task and finish group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending) |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.14 - ONS and Welsh Government meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.27 - Asthma Data and Digital Funding Call Frontiers Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Helping to devise a new approach to the use of data to drive forward asthma research in the UK. Outcome: New data investments for asthma data research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.28 - Workshop to help support a new mean of producing national statistics from routine administrative data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Helping to devise a new approach to the use of data to support the production of national statistics. Outcome: New use and methodologies |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.01 - Further clarifying implementation place, costs and time scales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Agreement for Monash to use Swansea's data platforms to support research and public analyses in Australia. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.06 - Workshop with British Columbia Government officals about data sharing facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.07 - Workshop with British Columbia Health system officals about data sharing facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.08 - Talk on data sharing system to support Learning Health Systems in the UK and internationally |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | To highlight the good practice in the UK and in Wales, to promote the use of Swansea's technology set and expertise. Outcome: Possible inquiries |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.14 - Cardiovascular research workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Talk on data opportunities and ways of achieving joint research objectives. Resulted in a decision being made to engage in project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.16 - SNOMED CT Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing SNOMED strategy for Wales, resulting in the formulation of a national strategy |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.19 - UKRI e-Infrastructure Expert Group Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of UKRI Roadmap with senior UKRI staff |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.21 - UKSeRP, DDP and HSAR meeting. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Infrastructure development meeting with Welsh Government colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.22 - Innovator Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford took part in an innovation workshop as a member of the judging panel for proposed innovations |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.26 - IPDLN Conference Scientific Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of the international conference programme |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.27 - WCRC Senior Operational meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attendance at steering group for major Welsh Research Centre |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.28 - DKUT, NMAIST & Kabarak Universities discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | International collaborative project with African univeristies discussing opportunities for collaboration on MRC funding call |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.18 - ADRN Data for Children |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Developing new Data for Children resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.20 - HDR UK Site visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | David Ford attended a series of meetings with HDR UK representatives on their visit to Swansea University and the Data Science research teams based there, following which the decision was made to establish Swansea as an HDR site |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.24 - Biobanking Task and Finish Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Discussions primarily focused around the Wales Biobank, which is supported with staff based within the Swansea University Data Science team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.25 - Workstream 3 - Stakeholders event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | This event contributed towards the development of a new vision for a national data resource for NHS Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.26 - Health Data Research UK - Scientific Retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Senior ADRC Wales staff participated in a strategic planning event for HDR |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.02 - DataLab with ADRC Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions about development of Education data resources for use with ADRC Wales data research projects |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.14 - The Future of Justice International Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Event to take forward evidence production for the court systems |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.17 - HDR UK Technical meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales attended a wider discussion around understanding data infrastructure needs for UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.18 - Commission on Justice in Wales Scoping |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping unmet legal needs in Wales, with a view to developing research opportunities with government and academics in this field |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.24 - GeDI workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing genetic data strategy in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.01 - Talk in Victoria, Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentations to Ministry of Health, British Columbia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.05 - Qresearch, SHIP and SAIL discussion for HDR |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation and discussion with Q Research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.07 - UKRI Event on "Places" |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Cluster development workshop |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.08 - National MSK Health Data Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation on SAIL Databank to ARUK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.11 - ADRN Directors Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion around how to manage new elements of transition work following London meetings the previous week |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.12 - ADRC Stakeholder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing working arrangements with Welsh Government |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.14 - MS Society Research Strategy Committee |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation on UKMS Register |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.20 - HDR UK Infrastructure meeting (Technical) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Follow up discussion with sector experts on the data infrastructure needs for UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.21 - ADRN Directors Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Round table strategy event with ADRN Directors |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.22 - Health and Wellbeing Childhood & Mental Health |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford led a research theme discussion around Health and Wellbeing Childhood & Mental Health at the ADR Conference in Belfast |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.27 - Panel meeting to discuss Family Justice Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | David Ford delivered a presentation to a senior research group around Family Justice and the opportunities for using linked data in this area |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.28 - SAIL scientific External Advisory Board |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended an event around the launch and future plans for an International expert panel |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.09 - Due diligence & MoU ceremony |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Formal signing of MoU with Bangalore |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.13 - ADRN Themed Data for children Partners meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Roundtable to devise data build for data research resources using assets relating to children/young people's data |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.18 - Summer School in digital Epidemiology from the Arthritis Research UK Centre for Epidemiology |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford participated in a talk on linking EHRdata to other data sources |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.20 - MRC Mental Health Data Pathfinder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions with colleagues involved in other research council funded project around the development of a common data platform |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.24 - AAAI workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UKRI e-infrastructre development |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.27 - Research and Innovation Infrastructure Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford participated in an innovation workshop as a 'Dragons Den' judge |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.23 - Developing an admin data spine |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Providing expert advice to UKRI on the development of a cross sector administrative data resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.24 - Meeting RE: HDR UK Implementation Projects |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with senior NHS Wales Informatics Service colleagues around the development of a Welsh response to DIH initiative |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.28 - Meeting: MS Society and Benevolent AI |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Round table with innovative AI company |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.30 - Scottish Government visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Hosted visit from Scottish Government to demonstrate arrangements in place for admin data research at Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.31 - Visit to Blackpool Local Authority |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentations around the opportunities for collaborating with Swansea University on data research projects and work |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.03 - Chris Newbrook meeting RE: Info Governance - and Wales' "Data Promise" |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Round table session with senior Welsh Government to develop national strategy to data sharing |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.03 - Longitudinal administrative data spine meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Discussions around the further development of an administrative data resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - HDR UK Science Strategy visit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff inputted into the development of a science strategy with HDR colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - Haroldas Petkus re: RE: Previous 'NHS in a lab' facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Discussions to share experience and best practice around data infrastructure technology |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.05 - HDR UK Design thinking workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff participation in an HDR UK design workshop |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.07 - ADRN Data for Children Technical Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.07 - ADRN Data for Children Technical Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.24 - EDARA Study Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended and chaired a session of the EDARA Study Steering Committee |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.24 - Scoping an administrative spine with ESRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Further work building upon initial discussions with research council colleagues around the development of an administrative data research resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.25 - UKRI MRC |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended and chaired a workshop on e-infrastructure requirement for MRC |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.28 - Morgan Academy to host cabinet office innovation team |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford gave a presentation to Cabinet Office team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.02 - ICES Scientific Advisory Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation as a formal member of the External Advisory Board to ICEs |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - ADRC Wales impact and engagement overview meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact strategy for Wales discussions |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - Pfizer programme of work |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation and collaboration discussions with Pfizer Ltd |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.05 - SAIL scientific External Advisory Board Launch event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on data research in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.08 - Discussions with MoJ about Data sharing for family justice |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Building on previous discussions, this event aimed to define some of the plans made around Ministry of Justice data sharing for family justice research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.15 - Launch of Monash University HeLIX data platform |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford was an invited speaker at a launch event for HeLIX |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.16 - Keynote speaker at E-Research Australia conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford participated in an Australian e-Research Conference as a keynote speaker |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.19 - Keynote talk at Precision Public Health 2018 conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford participated at a Precision Public Health conference in Australia as a keynote speaker |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.24 - Presentations to Sydney Ministry of Health, Australia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford delivered a presentation on the work being done in the Swansea University Data Science research team to the Ministry of Health, Sydney, Australia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.02 - Nuffield Foundation Oliver Bird Tendering Consultation Group Teleconference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Expert advice to funder, resulting in decisions taken around shaping a funding call |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.07 - New Brunswick Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford delivered a keynote talk at New Brunswick conference, Canada |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.09 - Meeting with Ted McDonald's team |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Roundtable workshop New Brunswick centre |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.15 - Administrative Data Spine Scoping |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Further discussions around developments of an administrative data research resource, with a focus on defining future work |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.21 - HCRW Centre and Unit leads' meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Roundtable strategy meeting for Welsh research infrastructure |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.11.28 - Science Strategy Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation in a Science Strategy Board with colleagues from Oxford academia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.12.10 - UKCRIS visit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Roundtable with research group from London, focussing on the development of collaborative work being undertaken |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2019.01.07 - NHS Digital/HDR UK Interoperability Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation in an NHS Digital/HDR UK Interoperability Workshop |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.08 - National Social Care Data set linking to SAIL databank |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford attendance at a workshop with Social Care Wales |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.09 - UKRI Research and Innovation Infrastructure Roadmap |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | UKRI workshop on research infrastructure |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.10 - MRC Mental Health Data Pathfinder meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | MRC workshop on mental health platform |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.15 - Health & Care Research Wales Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Participation at a session of the Wales Research Board (funders) |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.16 - TexGov workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | NLP for research workshop |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.23 - Inward Investment team from Welsh Assembly Gov |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on Swansea research |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.29 - Roundtable discussion at the Nuffield foundation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Presentation on Swansea's data facilities |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019.01.30 - Research Council Norway |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Funding panel member, Norway's Research Board |
| Year(s) Of Engagement Activity | 2019 |
| Description | 23/06/15. Privacy protecting data linkage research : a key tool in hastening translation and achieving population impact. Invited presentation McGill University, Montreal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 23/06/15. Privacy protecting data linkage research : a key tool in hastening translation and achieving population impact. Invited presentation McGill University, Montreal. |
| Year(s) Of Engagement Activity | 2015 |
| Description | 25/10/18 - HCRW Conference SWALEC Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Future-proofing research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 26/06/17 Innovative research: maximising capabilities in Wales: SAIL. National Centre for Population Health and Wellbeing research, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | National Centre for Population Health and Wellbeing research, Cardiff |
| Year(s) Of Engagement Activity | 2017 |
| Description | 28/01/2020 Big Data and Public Health. Sandra Macara BMA Memorial Lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | PRESENTATION TO BIG DATA AND PUBLIC HEALTH, SANDRA MACARA MEMORIAL LECTURE IN CARDIFF |
| Year(s) Of Engagement Activity | 2020 |
| Description | 9/2/18 - MRC Mental Health Data Pathfinder expert Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MRC recently launched a Mental Health Data Pathfinder call. The development of a coordinated informatics resource for mental health research is a key priority of the MRC's Strategy for Lifelong Mental Health. In taking forward this strategy, a rapid spend call for institutional awards was launched to lay the groundwork for the development of a Mental Health Research Platform. The purpose of this call is to provide flexible pump-priming funds, of up to £1.5m per research organisation, to support the development of such a resource and address key challenges in: data discoverability; methodologies for data linkage, integration and interoperability; harmonisation of mental health measures; and feasibility studies for scaling up for the next phase of platform development. Details of the call can be found here: https://www.mrc.ac.uk/funding/browse/mh-data-pathfinder/mental-health-data-pathfinder/ I was recruited to a Panel to provide expert review of applications and attend the meeting on the 9th of February 2018 at MRC Head Office in London. It is envisaged that Panel members would also be involved in the assessment of bids for a future MRC investment in a Mental Health Research Platform. |
| Year(s) Of Engagement Activity | 2018 |
| Description | A talk- Super science Sunday |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | General public attended 'super science sunday' at the National Water Front Museum, an eventorgansied by Oriel Science. Menna Brown demonstrated the current iteration of the Champions for Health website using interactive and web-based medium. This sparked questions and disucssions. |
| Year(s) Of Engagement Activity | 2020 |
| Description | AAIC 2017 - Dementias Platform UK Showcase presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A talk from several DPUK work packages on the component products and research ongoing as part of the Data Portal setup |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://portal.dementiasplatform.uk |
| Description | ADRN Conference Presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to academics and practitioners on the use GIS in measuring alcohol outlet density. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/conference/2017/ |
| Description | ADRN research conference 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on geocoding routine administrative data to measure access to alcohol outlets in Wales - generated a lot of methodological interest and in its wider application to policy |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.adrn.ac.uk/media/1249/adrnconf16programme.pdf |
| Description | Academy of Medical Sciences Health of the Public 2040 workshop, chaired by Dame Anne Johnson |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Many of the brightest minds in the UK came together in this first of several workshops to envisage the challenges facing public health in 2040. The results of this will be a major publication, authored by the Working Group members, which will aim to influence policy making and practice. High levels of engagement in the initiative from the invited delegates |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Administrative Data Research Network Conference - Belfast, June 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation on the DPUK Data Portal and the potential applications of Administrative Data and Linked Health Data |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | Alcohol outlet density and hospital admissions for alcohol-related injury: an electronic record-linked cohort study at the ADRN conference, Edinburgh 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 40 professional practitioners attended my presentation on alcohol outlets, which prompted a number of questions and a podcast recording for the ADRN website |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn2017.net/ |
| Description | Alcohol outlet density and hospital admissions for alcohol-related injury: an electronic record-linked cohort study at the IMGS conference, Angers, France 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | this presentation disseminated the methods and results that had a geographical methodological focus from the CHALICE study |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.irdes.fr/imgs2017/ |
| Description | All-Wales Patient Consent/Dissent workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To improve understanding of other thinking outcomes: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | All-Wales risk-sharing project: Novartis |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To make decisions Outcome: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | Alzheimer's Research UK Conference - London - Poster Presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster on the Data Portal was presented and substantial interest developed over the day of its presentation. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | An evaluation of the impact of 'Lifeskills' training on road safety, substance use and hospital attendance in adolescence |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation - An evaluation of the impact of 'Lifeskills' training on road safety, substance use and hospital attendance in adolescence. Farr Institute International Conference 2015. UK: St. Andrews, 2015. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement and networking. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Anti-Microbial Resistance Databank collaboration meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An invite to present the DPUK Data Portal as an exemplar use case of the UK Secure eResearch Platform, to a group interested in using the infrastructure. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://portal.dementiasplatform.uk |
| Description | Arthritis research, NCPHWR and Farr Institute: Pharmacovigilance expanded. Wales Arthritis Research Network - 23/5/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Arthritis research, NCPHWR and Farr Institute: Pharmacovigilance expanded. Wales Arthritis Research Network, Cardiff |
| Year(s) Of Engagement Activity | 2016 |
| Description | Article circulated to the Welsh Collaboration for Health and Environment (WCHE) |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented article about data collection practices in local government to local government practitioners. Useful feedback received from this engagement exercise and increased understanding of the environmental directorates throughout Wales. As a result we are developing a programme to discuss standardised data capture and circulate material to more local council staff who are responsible for data collection, particularly those who collect address data. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Article for The Conversation |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Published article 17th December 2018: NHS spends millions on emergency admission risk tools - with no evidence of patient benefit. Authors: Kingston M, Porter A, Evans B. The article has been read by over 12,000 people |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://theconversation.com/nhs-spends-millions-on-emergency-admission-risk-tools-with-no-evidence-of... |
| Description | Article in GIS Professional magazine |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Magazine article titled "Realising the potential of routinely collected administrative data" - on the benefits of using administrative data in research. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.gis-professional.com/content/author/richard-fry |
| Description | Association for Geographic Information Cymru Steering committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Higher education representative for Wales advising UK national policy on geography related matters for Wales. |
| Year(s) Of Engagement Activity | 2015,2016,2017,2018 |
| URL | https://www.agi.org.uk/agi-groups/national-groups/agi-cymru/agi-cymru-committee |
| Description | Association of Geographic Information Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Association of Geographic Information Steering Committee - Richard Fry |
| Year(s) Of Engagement Activity | 2015 |
| Description | Attending Health and Housing Conference 18th July 2013, Cardiff City Stadium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk sparked questions and discussion afterwards Discussion provided key information |
| Year(s) Of Engagement Activity | 2013 |
| Description | Attending SHIP conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk sparked questions and discussion afterwards Great opportunity to share information with peers, and audience share information based on their experience |
| Year(s) Of Engagement Activity | 2013 |
| Description | Big Data - next big thing: evaluation. Presentation to 1st NHS Wales Digital Health and Care Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited talk on the future of health informatics and 'Big Data' for the NHS. The purpose was to demonstrate what was already happening, how evaluations of numerous interventions were being carried out using multi-sectoral data linkage, how this was also supporting DiscoverY Science and the potential for these activities to grow into normal practice for the NHS and wider public services. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Blog post for DECIPHer |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The blog post was one of the most read on the website it was published. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Brains for Dementia Research Study Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on the use of BDR data on the DPUK Data Portal to the cohort study panel |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | Bridge Health Injury Surveillance Platform. European Public Health Conference, Milan - 17/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Bridge Health Injury Surveillance Platform. European Public Health Conference, Milan |
| Year(s) Of Engagement Activity | 2015 |
| Description | COVID-19 through a public health data lens |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | COVID-19 through a public health data lens. Health Services Research UK national conference, 08/07/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | COVID19 through a public health and data lens. Swansea University Faculty of Medicine, Health and Life Sciences |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | COVID19 through a public health and data lens. Swansea University Faculty of Medicine, Health and Life Sciences. Summer Scientific meeting, 22/06/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | COVID19 vaccine uptake by ethnicity. First Minister's BAME (Black Asian and Minority Ethnic) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | COVID19 vaccine uptake by ethnicity. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 21/04/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | Calculating the burden of injuries. 10th Meeting of the EU-Network of IDB National Data Administrators - 17/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Calculating the burden of injuries. 10th Meeting of the EU-Network of IDB National Data Administrators, Lisbon |
| Year(s) Of Engagement Activity | 2015 |
| Description | Carmarthenshire Council Visit |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Carmarthenshire Council have invested £2M in housing improvements and colleagues at Swansea and Cardiff Universities have evaluated the health impact using linked data. This meeting presented our final results and described the method to local council staff and independent steering group members. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Case study for ADRN dissemination |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This is a widely disseminated Case Study on CHALICE, part of an ADRN series. From this, and other similar publicity, we have received requests for further information. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/research-impact/research/chalice/ |
| Description | Conference Keynote address - BINOCAR UK Annual Scientific conference - Shantini Paranjothy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | E-health records research:optimising congenital anomaly data. BINOCAR UK Annual Scientific Conference Keynote Address, Swansea |
| Year(s) Of Engagement Activity | 2014 |
| Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. Welsh Government COVID19 Technical Advisory Group's Research and Development Subcommittee. 28/04/21. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. Public Health Wales Research and Evaluation Conference, 23/09/21. |
| Year(s) Of Engagement Activity | 2021 |
| Description | DPUK Annual Conference - Data Portal presentation session |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on the DPUK Data Portal at the DPUK Annual Conference |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | DPUK Cohort Collaboration Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | DPUK commissioned a cohort collaboration meeting to allow its network to facilitate cohort to cohort projects and to gain feedback on how DPUK can best support the science being already performed by cohorts and how to integrate this into the Data Portal. |
| Year(s) Of Engagement Activity | 2016 |
| Description | DPUK Cohort Seminar |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A cohort working group convened by DPUK to gather cohort staff, including principal investigator's, data managers and researchers, to disseminate information about DPUK's various work packages. Main involvement surrounded the ongoing build and operation of the DPUK Data Portal and Informatics Network. |
| Year(s) Of Engagement Activity | 2016 |
| Description | DPUK Cohort Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A meeting to discuss plans, Portal and general DPUK next steps, and gain advice from an expert panel of DPUK cohorts |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | DPUK Data Portal Live Demonstration |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A live demonstration of the operational DPUK Data Portal was given by Chris Orton, Data Project Manager for DPUK at Swansea University, at the DPUK Annual Scientific Meeting at the Royal College of Obstetricians and Gynaecologists, on 4th May 2017. The demonstration showed a live log-in of the system, including the security measures and services available to researchers. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://portal.dementiasplatform.uk |
| Description | DPUK Data Portal demonstration at the EMIF/DPUK Joint Conference, February 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The DPUK Data Portal was demonstrated to researchers and policy makers from both DPUK and EMIF at the EMIF/DPUK Joint Conference in Manchester on 23rd February 2017. The session was designed to give a live run-through of the Portal, its tools, and its analytic potential, which inspired questions and interaction from the research community present. |
| Year(s) Of Engagement Activity | 2017 |
| Description | DPUK Exeter Datathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | DPUK Exeter Datathon held at the University of Exeter. 22 researchers convened to focus on machine learning and AI from two cohort datasets (ELSA, NACC), and used the DPUK Data Portal datathon virtual desktop to investigate this data and test methodology. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.exeter.ac.uk/news/events/details/index.php?event=9294 |
| Description | DPUK Infrastructure Presentation at the EMIF DPUK Joint Conference, February 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Simon Thompson, Head of IT for Swansea University Medical School, gave a talk on DPUK infrastructure at the EMIF/DPUK Joint Conference in Manchester on 23rd February 2017. The presentation outlined the completion of the infrastructure build and move to live operation of the DPUK Data Portal which had begun to provision data. |
| Year(s) Of Engagement Activity | 2017 |
| Description | DPUK Presentation at the Internation Population Data Linkage Network Conference, Swansea, August 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation was given on DPUK infrastructure and informatics work at the IPDLN Conference, hosted at Swansea University in August 2016. The presentation was in front of an audience of international researchers and policy makers and explained the UKSeRP architecture used by DPUK and the plans to integrate cohort data and enhance modality knowledge. |
| Year(s) Of Engagement Activity | 2016 |
| Description | DPUK Swansea Datathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | DPUK Swansea Datathon held at Swansea University - October 2019. 25 researchers convened to investigate the co-morbidity of dementia across 4 DPUK cohorts' data - BRACE, CaPS, ELSA, Generation Scotland. The event consisted of talks on each of the cohorts and analysis sessions to explore and investigate data across teams. Findings were reported in a final presentation session on the third day. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://popdatasci.swan.ac.uk/population-data-science-at-swansea-university-dpuk-datathon/ |
| Description | DPUK Turing Institute Datathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A DPUK Datathon held at the Alan Turing Institute in London. The event comprised 42 researchers using the DPUK Data Portal datathon virtual desktop to investigate data from the Deep and Frequent Phenotyping study. The focus of the Datathon was on machine learning and artificial intelligence, and made use of phenotypic and imaging data from the DFP pilot. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.turing.ac.uk/events/innovative-data-science-alzheimers-research |
| Description | DPUK UEA Datathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | DPUK Datathon held at University of East Anglia. 60 researchers convened to explore and investigate data from 3 DPUK cohorts (ELSA, CaPS, DFP), using the DPUK Data Portal datathon virtual desktop. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.dementiasplatform.uk/upcoming-events/dpuk-datathon-2013-uea |
| Description | Data Linkage to Cohort Studies. Presentation to CLOSER research group, London - 3/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Data Linkage to Cohort Studies. Presentation to CLOSER research group, London |
| Year(s) Of Engagement Activity | 2014 |
| Description | Data Linkage: an essential tool for efficient observational and interventional research and service delivery. Keynote address at Public Health Science Conference, Cardiff - 27/11/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Data Linkage: an essential tool for efficient observational and interventional research and service delivery. Keynote address at Public Health Science Conference, Cardiff |
| Year(s) Of Engagement Activity | 2016 |
| Description | Data Science and Population Health : a Team Science Approach |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Data Science and Population Health : a Team Science Approach. Liverpool University MSc in Data Science lecture, 03/11/21. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Data Science and Population Health Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Data Science and Population Health Research. University of British Columbia, Canada, 21/01/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | Data science: solving the grand challenge of interdisciplinary working for UK biomedical, clinical and epidemiological sciences. Invited presentation at UK Roadmap for Biomedical Metabolic Phenotyping retreat, Wellcome Genome Campus, Hinxton - 11/10/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Data science: solving the grand challenge of interdisciplinary working for UK biomedical, clinical and epidemiological sciences. Invited presentation at UK Roadmap for Biomedical Metabolic Phenotyping retreat, Wellcome Genome Campus, Hinxton |
| Year(s) Of Engagement Activity | 2016 |
| Description | Dementias Research Platform UK. Presentation to Farr Institute International Advisory Board - 15/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dementias Research Platform UK. Presentation to Farr Institute International Advisory Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Developing an online School Travel and Child Safety Survey (STCSS) to support the planning and evaluation of local child safety interventions - PPHI Seminar - Samantha Turner |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing an online School Travel and Child Safety Survey (STCSS) to support the planning and evaluation of local child safety interventions - PPHI Seminar |
| Year(s) Of Engagement Activity | 2015 |
| Description | Developments in data sharing technologies at Farr centre in Swansea: UKSeRP and NRDAs. MRC Stratified Medicine consortia, London - 24/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developments in data sharing technologies at Farr centre in Swansea: UKSeRP and NRDAs. MRC Stratified Medicine consortia, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Digital Health International Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The intended purpose was to to stimulate thinking Outcomes: Next conference agreed for Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Digital Health in the North: Connected Health Ecosystem for the northern AHSNs |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Connected Health Ecosystem for the northern AHSNs: At our September Ecosystem event we will be collaborating with our three AHSN partners across the north. The event will explore digital health in the north of England, showcasing some of the regions greatest digital assets. The Innovation Agency, Yorkshire & Humber AHSN, Health Innovation Manchester and AHSN North East North Cumbria are bringing together their Connected Health Ecosystems to form a collaborative Ecosystem for Digital Health in the North. This brings together partners from health and social care, industry, academia and patient organisations. We focus on improving health across the North at the same time as generating economic benefits for the region, partly through the uptake and deployment of digital health solutions. Sarah Rodgers presented on several projects and described the SAIL data linkage system to this very engaged audience. She mainly focussed on the NIHR PHR funded Carmarthenshire Housing project. See this video: https://www.youtube.com/watch?v=HW-fraEuSQo as a useful summary. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.eventbrite.co.uk/e/eco-digital-health-in-the-north-tickets-48273855401# |
| Description | Drug policy effectiveness - exploratory meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To stimulate thinking outcome: Collaborative project possibility |
| Year(s) Of Engagement Activity | 2015 |
| Description | ELAStiC Study Group Steering Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To make decisions Outcomes: Adjustmets to research strategy for ELAStiC |
| Year(s) Of Engagement Activity | 2015 |
| Description | ESRC Annual Investment Directors Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | intended purpose: To inform decision making Outcomes: New strategy |
| Year(s) Of Engagement Activity | 2015 |
| Description | ESRC Future Research Leaders Commissioning Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To make decisions Outcome: funding of high quality ECRs |
| Year(s) Of Engagement Activity | 2015 |
| Description | EU Joint Programme - Neurodegenerative Disease Research, ADDITION Consortium Kick-off meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion with the initial working group of the ADDITION Consortium, regarding the DPUK Data Portal supporting the research analysis. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://portal.dementiasplatform.uk |
| Description | Effects of an air pollution personal alert system on health service usage in a high-risk general population: a quasi-experimental study using linked data. UKCRC Public Health Conference, Edinburgh - 19/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Effects of an air pollution personal alert system on health service usage in a high-risk general population: a quasi-experimental study using linked data. UKCRC Public Health Conference, Edinburgh |
| Year(s) Of Engagement Activity | 2015 |
| Description | Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. EMERTS Governance Meeting, 22/06/21. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Environment and health brokerage event (Edinburgh) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The intended purpose was to group researchers together from different environment and health disciplines. The engagement with different disciplines resulted in a resarch grant investigating the impact of pollution and pollen on educational attainment |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.nerc.ac.uk/innovation/activities/environmentaldata/health-call/ |
| Description | Ethical Risk Assessment in Biomedical Big Data - Protecting privacy through design |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Protecting privacy through design |
| Year(s) Of Engagement Activity | 2016 |
| Description | Evaluating environmental influences on health using privacy protecting data linkage. Presentation to environmental health research group at CREAL, Barcelona - 7/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Evaluating environmental influences on health using privacy protecting data linkage. Presentation to environmental health research group at CREAL, Barcelona |
| Year(s) Of Engagement Activity | 2014 |
| Description | Farr Institute Cancer Frontiers Meeting, London - 9/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Farr Institute Cancer Frontiers Meeting, London Plans made for further meetings of the group |
| Year(s) Of Engagement Activity | 2015 |
| Description | Farr Institute: Distributed multi-disciplinary team science in action. International Population Data Linkage Network Conference - 24/8/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Farr Institute: Distributed multi-disciplinary team science in action. International Population Data Linkage Network Conference, Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Farr and the vision for data: examples of evaluating complex interventions. MQ Transforming Mental Health meeting - 03/09/16 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Farr and the vision for data: examples of evaluating complex interventions. MQ Transforming Mental Health meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | Farr conference, St Andrews 01/08/15 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Introducing the PRIDAL model for linking routine health and identifiable patient reported data: using Electronic Routine Linked Health Records in Assessing Interventions in Emergency care |
| Year(s) Of Engagement Activity | 2015 |
| Description | Geospatial 'Big Data' and Privacy Protection. Association of Geographic Information Big Data and You conference - 8/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Geospatial 'Big Data' and Privacy Protection. Association of Geographic Information Big Data and You conference, Cardiff |
| Year(s) Of Engagement Activity | 2015 |
| Description | Global Alzheimer's Disease Data Iniative - Interoperability Working Group, Toronto, December 2018 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presence and interaction at the 1st Global AD Data Initiative Interoperability Working Group - discussing integrating worldwide AD data platforms. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | Global Alzheimer's Disease Data Iniative - Interoperability Working Group, Washington, March 2019 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance, presentation, and interaction at the 2nd Global AD Data Initiative Interoperability Working Group. Presentation of project plans and ideas to stakeholders, and involvement on debate and discussion surrounding development of initiatives. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://portal.dementiasplatform.uk |
| Description | HCRW PMC meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Intended purpose: To share information Outcome: Possible continuing involvment in the UK PMC initiaitive |
| Year(s) Of Engagement Activity | 2015 |
| Description | HDRUK QQR2 Public Health Research Vision |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | HDRUK QQR2 Public Health Research Vision. HDRUK national meeting, 26/04/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | HSAR |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Providing expert technical advice on the development of the housing stock analytical resource (HSAR) to assess housing conditions in Wales. Discussions ongoing about using UKSeRP platform to host HSAR to facilitate data collation, linkage and analysis. |
| Year(s) Of Engagement Activity | 2016,2017,2018 |
| URL | http://gov.wales/statistics-and-research/housing-conditions-evidence-programme/?lang=en |
| Description | HSCIC Care.Data Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The intended purpose was to inform decision making. outcomes: More thoughtful design of 2nd care.data rollout plans |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC Care.Data Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: to inform decision making Outcomes: New plans for recommencing data sharing activities in England. |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC Expert Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: New plans for recommencing data sharing activities in England. |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC follow up meeting on data acess |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To inform decision making Outcome: Accomodation of ADRN as a new entity with which HSCIC could deal |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC meeting on data access |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended Purpose: To inform decision making Outcome: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | HTAi conference, Oslo 15/07/15 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | SAFER 2 Results (oral presentation) SAFER 2 anonymised linked data outcomes (oral presentation) E Trials Panel Session PRISMATIC anonymised linked data (poster) |
| Year(s) Of Engagement Activity | 2015 |
| Description | Harnessing Data for Health Science and e-Health Innovation. Joint presentation by Farr Institute Directors to Farr Institute International Advisory Board, London - 15/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Harnessing Data for Health Science and e-Health Innovation. Joint presentation by Farr Institute Directors to Farr Institute International Advisory Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health Data Research UK Site Meeting - January 2019 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation and discussion of the DPUK Data Portal as an affiliate partner of Health Data Research UK. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://portal.dementiasplatform.uk |
| Description | Health Intelligence Unit, Kent County Council |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To stimulate thinking Outcome: Invitation to return to speak further about the subject. Possible collaboration using Swansea Farr UKSERP and RDA technologies |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health Science Research UK (HSRUK) Winter Meeting on impact |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | HSRUK Winter Meeting on impact. This seminar, hosted by the PPHI group at Swansea University Medical School, explores the impact of research into the planning, delivery and experience of health care. It will help researchers , practitioners and policy makers to understand how they can work together to identify and demonstrate impact for their research |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.participant.co.uk/hsrn_winter_meeting_-_impact_15102015 |
| Description | Health of the Pubiic in 2040 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | intended purpose: To inform decision making |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health of the Public in 2040 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended Purpose: To inform decision making Outcome: Not yet known |
| Year(s) Of Engagement Activity | 2015 |
| Description | Health of the Public in 2040 - additional working group meeting. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To inform decision making Outcome: Major Publication due mid 2016 |
| Year(s) Of Engagement Activity | 2015 |
| Description | Hong Kong Management Association Project Board |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended output: To stimulate thinking Outcomes: Continued discussions with the group |
| Year(s) Of Engagement Activity | 2015 |
| Description | Hosting senior delegation from Microsoft |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Familiarisation of Microsoft with Farr Aims and objectives and identification of collaborative opportunities with Farr CIPHER Joint strategic development plan in discussion |
| Year(s) Of Engagement Activity | 2014 |
| Description | I-CRP Investigator Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on The cost of ankylosing spondylitis in the UK Stefan Siebert presented |
| Year(s) Of Engagement Activity | 2014 |
| Description | IASIS: Big Data for Precision Medicine, Plenary Meeting, March 2019 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attendance and interaction at the IASIS plenary meeting. DPUK is supporting IASIS on data access and to discuss integration of the IASIS tools to the DPUK Data Portal. The tools comprise discovery tools, data subset selection mechanisms and data analysis pipelines. The two pilot use cases for the IASIS tools are analysis of dementia outcomes, and lung cancer. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://project-iasis.eu/ |
| Description | IPDLN Scientific Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To make decisions Outcome: New International data science conference |
| Year(s) Of Engagement Activity | 2015 |
| Description | Impact of falls. Swansea Occupational Health and Safety Group Conference - 29/6/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 160629 Impact of falls. Swansea Occupational Health and Safety Group Conference - Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Improving the accuracy of GIS generated environmental exposures for children's routes to school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation to raise awareness of methodological inaccuracies of GIS methods used to generate children's daily exposure to the retail food environment. The presentation provoked interest in the topic and raised questions about what impact using different methods may have on research results |
| Year(s) Of Engagement Activity | 2017 |
| Description | Improving the accuracy of GIS generated environmental exposures for children's routes to school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Promoting the use of a high resolution spatial modelling in children's health research |
| Year(s) Of Engagement Activity | 2018 |
| Description | Influencing wellbeing at the population level. Invited presentation at A Regional Collaboration for Health (ARCH), Swansea - 14/10/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Influencing wellbeing at the population level. Invited presentation at A Regional Collaboration for Health (ARCH), Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Informatics and Population Health Sciences. Presentation to MRC Population Health Strategy Board, London - 19/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informatics and Population Health Sciences. Presentation to MRC Population Health Strategy Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Informatics, epidemiology and interventions: Network working and coordination of data resources. MRC Neurodevelopmental Disorders Research Network, London - 23/11/15 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informatics, epidemiology and interventions: Network working and coordination of data resources. MRC Neurodevelopmental Disorders Research Network, London Decision made that a Neurodevelopmental Disorders Research Network would require a data platform similar to the Dementias Research Platform UK |
| Year(s) Of Engagement Activity | 2015 |
| Description | Injury Prevention as Social Change. Invited Seminar. World Injury Prevention Conference (Safety 2016), Tampere, Finland - 18/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Injury Prevention as Social Change. Invited Seminar. World Injury Prevention Conference (Safety 2016), Tampere, Finland |
| Year(s) Of Engagement Activity | 2016 |
| Description | Injury Surveillance Platform, Kick off BRIDGE-Health meeting - 20/5/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Injury Surveillance Platform, Kick off BRIDGE-Health meeting The talk initiated a considerable amount of discussion on the development of appropriate comparative metrics and indicators for regional, national and EU use |
| Year(s) Of Engagement Activity | 2015 |
| Description | Innovate UK / Welsh Government supported ABMU Board SBRI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Led to the development of innovate new "big data" software for use by health organisations to improve the quality and efficiency of the services they provide patients Development programme moved forward into the funded development of two new major software products by the finalist companies involved. |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Innovate UK Stratified Medicine Platform meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To improve understanding of other thinking Outcome: Considerable interest in Swansea'a advanced technology stack. Multiple conversations about potentiasl to support specific precision medicien intitiatives |
| Year(s) Of Engagement Activity | 2015 |
| Description | Innovate UK follow up meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The intended purpose was to improve understanding of other thinking outcome: Wales considered as PMC Centre |
| Year(s) Of Engagement Activity | 2015 |
| Description | Interactive talk- Champions for Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interactive talk and presenattion to local health board staff at their annual People Development Conference. Menna Brown gave an interactive session, took questions and showcased the champions programme. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Interactive talk- Champions for Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Interactive informative presentation to local branch of charity-Crisis about the current champions for health programme. |
| Year(s) Of Engagement Activity | 2020 |
| Description | International Collaborative Effort on Injury Statistics and Methods, Helsinki 2016. Grand research Challenge - Update - 15/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | International Collaborative Effort on Injury Statistics and Methods, Helsinki 2016. Grand research Challenge - Update |
| Year(s) Of Engagement Activity | 2016 |
| Description | International Medical Geography Symposium (Vancouver) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | 40 students and academics attended my presentation at an international conference, which gave me ideas for follow-on questions to ask. The audience reported an increase in knowledge about data linkage and natural experiments |
| Year(s) Of Engagement Activity | 2015 |
| Description | International Population Data Linkage Network Conference - Banff, Canada, September 2018 - Data Services presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Laura North presented on the data curation and preparation services offered by DPUK to enhance cohort data usability and integrity. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | International Population Data Linkage Network Conference - Banff, Canada, September 2018, Data Portal presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Infrastructure presentation on technical and data integration of the DPUK Data Portal |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | International conference in clinical trials |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | International conference in clinical trials, Florida 27/7/15 PRIDAL model for linking data (poster) PRISMATIC (poster) Using electronic routine linked health records (oral) Developing a model to enhance patient involvement in research (oral) Implementation of a predictive risk tool in primary care: a qualitative study of understanding and engagement among practitioners (poster) |
| Year(s) Of Engagement Activity | 2015 |
| Description | International conference presentation (Housing and Health) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation at the International Population Data Linkage Network conference, Swansea August 2016 |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ipdlnconference2016.org/ |
| Description | International conference presentation - 12th World Safety Conference (Tampere, Finland) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of the CHALICE study results on relation of density of alcohol outlets and alcohol related harm |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.thl.fi/fi/web/injury-prevention/safety-2016 |
| Description | Interview for BBC TV Wales |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Broadcast on the early evening (Welsh) news further media enquiries (BBC Radio) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Invited Departmental talk - Computer processing of non-standard language |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Invited departmental talk - Computer processing of non-standard language |
| Year(s) Of Engagement Activity | 2015 |
| Description | Invited Presentation. CLOSER Knowledge Exchange Workshop on Disclosure Control. Flexible disclosure control for microdata using DataSHIELD. London, January 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | As a recipient of funding from CLOSER for a project (led by Andy Boyd) focussing on the sharing/co-analysis of sensitive data I was invited to contribute to this workshop which was pitched at a mathematically more technical audience with greater theoretical and practical experience in working in data integration and the sharing of sensitive information than at most of the venues where I present. As well as describing DataSHIELD and its role as tool to support the sharing/co-analysis of sensitive data, I was also able to provide the workshop with practical issues and challenges arising from my work with the 1958 Birth Cohort under 58READIE (now 58FORWARDS) grant and ALSPAC. This was particularly useful for me because it enabled me to get more technical feedback than I usually receive. This was useful not only for DataSHIELD development, but also for strategy relating to infrastructural development under the 58FORWARDS grant |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.closer.ac.uk/event/methods-disclosure-control/ |
| Description | Invited Presentation. Isaac Newton Institute, Workshop on new research developments in techniques for data privacy. DataSHIELD: taking the analysis to the data not the data to the analysis. Cambridge. Talk acknowledged Farr Institute funding of DataSHIELD development. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Useful opportunity to raise and discuss some of the more technical aspects of DataSHIELD relating to theory and application of statistics and informatics |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited Presentation. UCL Farr Institute. DataSHIELD: taking the analysis to the data not the data to the analysis. London. Talk acknowledged Farr Institute funding of DataSHIELD development. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Disseminated understanding and knowledge of DataSHIELD in Farr UCL (to complement pre-existing interface with CIPHER, Farr Scotland and Farr Manchester) |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited chair of discussion session. Working Group in Data Privacy and Trust. Research Data Alliance, Denver, US - Paul Burton |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Disseminated understanding and knowledge of DataSHIELD internationally, but particularly in US. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited presentation. Big Data in Biology and Health Conference (EMBL). DataSHIELD: taking the analysis to the data not the data to the analysis. European Molecular Biology Laboratories, Heidelberg, Germany. Talk acknowledged Farr Institute funding of DataSHIELD development - Paul Burton |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Disseminated understanding and knowledge of DataSHIELD internationally, but particularly in Europe. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited presentation. Doctoral School of Public Health in Paris: Epidemiology and biomedical information sciences - conference on cohort studies. DataSHIELD: taking the analysis to the data not the data to the analysis. St Malo, France. Talk acknowledged Farr Institute funding of DataSHIELD development - Paul Burton |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Disseminated understanding and knowledge of DataSHIELD amongst students training across the field of Public Health Science |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited presentation. Workshop on Infrastructure for confidential Research Data in the Health and Social Sciences. The DataSHIELD Project. Berlin, Germany. Talk acknowledged Farr Institute funding of DataSHIELD development. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Disseminated understanding and knowledge of DataSHIELD internationally, with a particular aim of extending knowledge amongst social scientists |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited presentation: Privacy protecting data linkage in evaluation. Part of the EUPHA Child and Adolescent Public Health pre-conference workshop. Child Maltreatment: a Public Health Perspective. Half way to 2020, where are we now? |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This was an invited talk at a specialist workshop involving European researchers working in the field of Child Maltreatment and the World Health Organisation. My talk demonstrated the utility of multi-sectoral data linkage in the UK in evaluating medium and long term consequences of maltreatment and the potential to embed interventions at a policy or individual level for evaluation. Further meetings of the group are planned. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Invited speaker - Public Health Wales Research Showcase event - 9/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public Health Wales Research Showcase event - 9/11/15 - Ronan Lyons |
| Year(s) Of Engagement Activity | 2015 |
| Description | Invited speaker - Public Health Wales conference 2015 (2/11/15) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public Health Wales annual conference - 2/11/15 - Ronan Lyons |
| Year(s) Of Engagement Activity | 2015 |
| Description | Invited speaker - Welsh Arthritis Research Network Annual Conference (Ernest Choy) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Welsh Arthritis Research Network Annual Conference - April 2015 |
| Year(s) Of Engagement Activity | 2015 |
| Description | J&J visit |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | The intended purpose was to share information. Outcomes: New research project possible |
| Year(s) Of Engagement Activity | 2015 |
| Description | Joint presentation with Ruth Gilbert (UCL) and John Franks (Edinburgh) Farr Institute Research Meeting, Edinburgh |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Adversity-related injury admission to hospital of adolescents and young people - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Judging of Digital Economy Cruicible enttrants |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Judging and then coaching of bright young researchers and their ideas |
| Year(s) Of Engagement Activity | 2016 |
| Description | Keynote Speaker and Wales premier International Life Science Conference - BioWales 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Numerous questions from audience on the potential for big data to support research and industrial progress. Increased awareness of Wales as a significant focus for health informatics. Several inward investment decisions could be tracked to this talk, whihc would have played a part in the company decisions |
| Year(s) Of Engagement Activity | 2013 |
| Description | Keynote presentation at British Isles Network of Congenital Anomaly Registers (BINOCAR), Swansea |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Data Linkage: the key to long term outcomes - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Keynote talk at ThinkCloud Health event, 15 Jan 2015. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk c;clarified obstacles and solutions to the use of cloud technology for healthcare purposes. Industrials better understood NHS issues with cloud approaches, NHS understood better the opportunities cloud can provide Multiple discussions and requests to meet for further information on how these technologies can be safely and acceptably used in healthcare and healthcare research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Launch of the Burden of Injuries in Wales Report |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation at BMA sponsored launch of the the Burden of Injury in Wales Report The BMA agreed to support the recommendations of the Report and pressed Welsh Government to implement them |
| Year(s) Of Engagement Activity | 2012 |
| Description | Launch of the MRC UK Dementias Platform, Royal Society, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | More than 200 people attended the conference launch. I presented as leader of the Informatics Platform Work Package in the morning and the interactive discussion with industry in the afternoon a number of contacts were made with industry colleagues with plans for follow up meetings |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.mrc.ac.uk/research/facilities/dementias-research-platform-uk/ |
| Description | Learning differentially expressed gene pairs in microarray data, Informatics for Health 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Learning differentially expressed gene pairs in microarray data, Informatics for Health 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Linking routinely collected health and environment data for large scale evaluations of how the food environment impacts obesity rates |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Conversations with international colleagues to develop work further into an international comparison |
| Year(s) Of Engagement Activity | 2016 |
| Description | Linking routinely collected health and environment data for large scale evaluations of how the food environment impacts obesity rates |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Research conference for research undertaken in association with the Administrative Data Research Network. Discussion followed that provoked interest in the topic and raised questions about what impact using poor quality secondary data sets may have on research results |
| Year(s) Of Engagement Activity | 2016 |
| Description | MED-BIO: Links to Farr Institute and CIPHER. Presentation to MED-BIO MRC bioinformatics centre, London - 6/7/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MED-BIO: Links to Farr Institute and CIPHER. Presentation to MED-BIO MRC bioinformatics centre, London |
| Year(s) Of Engagement Activity | 2016 |
| Description | MIT Expert Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The intended purpose was to inform decision making. Outcome: Requests for continued imput into the programme |
| Year(s) Of Engagement Activity | 2015 |
| Description | MS Frontiers |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To stimulate thinking Outcome: Considerable interest in using participant data for research |
| Year(s) Of Engagement Activity | 2015 |
| Description | MS Soc Management Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Intended purpose: To inform decision making Outcomes: Influencing future investments by the Charity |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mathematics Masterclasses for Girls |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | As part of an on-going programme of public engagement for The Farr Institute CIPHER, a team of female researchers and analysts from CIPHER and the Office of National Statistics (ONS) conducted a master class session; 'the Spread of Disease'. The session focused on how mathematics is used to measure the frequency and spread of diseases by using probabilities associated with the risk of infection. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.farrinstitute.org/news/mathematics-and-glitter-a-public-engagement-masterclass-on-the-spr... |
| Description | Measuring patient outcomes and reducing population impact. Presentation to South Wales Trauma Collaborative - 3/6/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Measuring patient outcomes and reducing population impact. Presentation to South Wales Trauma Collaborative |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Chairman of Health and Social Care Information Centres, Skipton House, London |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Agreement to work jointly on developing the case for large scale data linkage and data sharing in secure environments Influencing HSCIC's view on how secure setting could be designed and operated and how powerful research outputs could help swing public (and media) opinion in favour of using data to improve care and services |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Frances Maude, Cabinet Secretary and officials about changes to data sharing legislation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Debate and discussion about privacy vs research utility and about public acceptability Continued invitations to contribute to open policy making meetings (once every few weeks for most of 2014) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Geoff Segal and Justin (Cerner) - |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To stimulate thinking Outcome: Heightened awarenes of our work with a major multinational IT company |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Programme Manager of Care.Data from Health and Social Care Information Centre |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions led to invitation to be a member of HSCIC's Expert Advisory Group Beginning discusssions to work towards an agreed national (UK) approach to Safe Havens and Secure Settings |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Member of small delegation to Grenoble University forming strategic links for research and capacity building |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Multiple expressions of interest in collaboration from delegates strategic institutional memorandum of understanding between two universities. Joint masters degree in HI under development |
| Year(s) Of Engagement Activity | 2014 |
| Description | Member of small senior delegation to Texas, building relationships with the Texas Medical Center; the world biggest healthcare conglomoration |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | talked sparked several discussions about collaborative opportunities between UK and Texas collaboration on capacity building (training) in health informatics (university of Texas) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Mental Health Data Science Meeting (event part-funded by Farr Institute CIPHER) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Assessment of complex interventions using routine data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Methodological and Technical Challenges in the Statistical Modelling of Linked Data - Damon Berridge (August 2016) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Methodological and Technical Challenges in the Statistical Modelling of Linked Data', Pre-Conference Workshop, IPDLN Conference, Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | Ministerial Health Data Programme - External Reference Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended Purpose: To inform decision making Outcome: New plans for recommencing data sharing activities in England. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Misinformation versus Information: Statistical Modelling of Health Data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Very positive feedback from session attendees |
| Year(s) Of Engagement Activity | 2016 |
| Description | Multi-sectoral data linkage for intervention and policy evaluation. Invited presentation to 7th ESRC Research Methods Festival: advancing social science research methods - 6/7/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Multi-sectoral data linkage for intervention and policy evaluation. Invited presentation to 7th ESRC Research Methods Festival: advancing social science research methods, Bath |
| Year(s) Of Engagement Activity | 2016 |
| Description | NCMH Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To make decisions Outcomes: Infleuncing the role of the National centre's research |
| Year(s) Of Engagement Activity | 2015 |
| Description | NHS Digital Collaboration Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with NHS Digital to discuss infrastructure solutions for DPUK cohorts, and wider onward sharing to the UKSeRP infrastructure tenants. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | NHS Wales Health Intelligence Unit planning group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Plans to develop new NHS Wales functional unit, as part of Swansea University's Data Science building initiative (Unit to be co-located within the MRC/ESRC funded building), along with Farr / ADRN teams from the university. Stakeholder partners inclide Public Health Wales, ABMU Health Board, NHS Wales Informatics Service Agreement to form the Unit |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | NISCHR Cancer Centre Theme and WP Leads meeting Work Package Leads |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Engagment with our research strategy and collaborative opportunities |
| Year(s) Of Engagement Activity | 2015 |
| Description | NISCHR Wales Cancer Research Centre Open Forum |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To stimulate thinking Outcomes: Follow-up discussions |
| Year(s) Of Engagement Activity | 2015 |
| Description | National Centre for Population Health and Wellbeing Research, Health and Care Research Wales launch - 14/5/15 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | National Centre for Population Health and Wellbeing Research, Health and Care Research Wales launch |
| Year(s) Of Engagement Activity | 2015 |
| Description | National conference presentation for Administrative Data Research Network (June, 2016) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Purpose was to present a novel data validation technique to a national audience to show practitioners that it is possible to complete the retrospective evaluation of natural experiments to improve policy and practice. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.adrn.ac.uk/media/1249/adrnconf16programme.pdf |
| Description | National conference presentation for The Lancet Public Health Conference (2016) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of results of our decade long housing and health study. There were several questions as part of a lively debate following Sarah's presentation. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(16)32239-5/fulltext |
| Description | Nature Neuroscience Interoperability Meeting, Toronto, December 2018 - Data Portal presentation and panel appearance |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A technical presentation on the DPUK Data Portal, followed by an appearance on the data platform panel, answering policy and practice questions from an expert meeting audience |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://portal.dementiasplatform.uk |
| Description | Novartis Partnership Roles |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To make decisions Outcome: Structure of new emerging collaborative initiative |
| Year(s) Of Engagement Activity | 2015 |
| Description | Novartis meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | the intended purpose was to improve understanding of other thinking. Outcomes: Wales signed contract with Novartis on a risk sharing pilot project |
| Year(s) Of Engagement Activity | 2015 |
| Description | Novatis / Welsh Government shared risk scheme pilot |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussions have led to the formation of a formal Project Board for the initiative to be launched by the Minister for Health and Social Services at the BIO Wales conference in March 2015 Potential revolutionise the Way in which major pharmaceutical companies provide and are reimbursed for their drugs based on a risk-sharing approach. |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Obtaining structured clinical data from unstructured data using natural language processing software, presentation at the International Population Data Linkage Conference - A Lacey |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Obtaining structured clinical data from unstructured data using natural language processing software, presentation at the International Population Data Linkage Conference |
| Year(s) Of Engagement Activity | 2016 |
| Description | Operating at Scale Throughout the UK. Farr Institute Industrial Forum in association with Genesis 2015 conference, London - 10/12/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Operating at Scale Throughout the UK. Farr Institute Industrial Forum in association with Genesis 2015 conference, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Oral presentation: Access to emergency admission risk prediction tools: A cross sectional survey of UK CCGs and health boards |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Mark Kingston gave a well attended oral presentation, followed by lively discussion, at the Society for Academic and Primary Care Annual Conference 12th to 14th July 2017 at the University of Warwick, which attracted over 340 delegates. The Society for Academic and Primary Care aims to champion expertise in Academic Primary Care and drive improvements in Primary Care provision |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://sapc.ac.uk/conference/2017 |
| Description | Oral presentation: Big Data, Better Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The BSF is one of Europe's biggest science festivals bringing together more than 350 leading scientists in an event that showcases the latest scientific breakthroughs and discoveries from across the globe. In September 2016, the festival was hosted by Swansea University, and gained extensive coverage in the national media. As part of a presentation on the use of Big Data in Health care, Dr Alison Porter presented PRISMATIC as a case study of how linked datasets could support improvements to the delivery of health care. The mid-day presentation was delivered to an audience of about 100 members of the public, as part of the public engagement remit of the festival. To make the presentation more accessible and engaging, co-presenter Martin Heaven dressed up as a giant jigsaw puzzle piece and involved members of the audience in an exercise of assembling further puzzle pieces into a metaphorical linked dataset. The presentation sparked many questions and much debate with the audience. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.swansea.ac.uk/british-science-festival-2016/ |
| Description | Oral presentation: Clinical effectiveness of an emergency admission predictive risk model in primary care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Helen Snooks gave a well attended oral presentation and poster display at the HSRUK annual symposium 6th to 7th July 2017, followed by discussion. Health Services Research (HSR) informs and evaluates innovations in health services and policy, representing and championing UK HSR. HSRUK members include research units and NHS organisations and a growing number of third sector bodies, professional groups and private sector associates. This dissemination work prompted follow up enquiries from individuals and organisations. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.eventsforce.net/eventage/frontend/reg/tAgendaWebsite.csp?pageID=55823&ef_sel_menu=1024&e... |
| Description | Oral presentation: Clinical effectiveness of an emergency admission predictive risk model in primary care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Mark Kingston gave an oral presentation, followed by discussion, at the HTAi 14th Annual Conference in Rome, 17th - 21st June 2017: 'Towards An HTA Ecosystem: From Local Needs To Global Opportunities', Health Technology Assessment international (HTAi) is the professional society for the promotion of Health Technology Assessment and embraces all who practice and use HTA across all sectors. Its mission is to support the growth of the HTA community by providing a neutral, global forum for the exchange of information, methods and expertise. The conference attracted over 1000 delegates from 65 countries. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://meeting.htai.org/events/htai-rome-2017/custom-136-1c2301d261504d679c3b63c233b5033a.aspx |
| Description | Oral presentation: Cost effectiveness of a predictive risk model in primary care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Helen Snooks gave an oral presentation, followed by discussion, at the HTAi 14th Annual Conference in Rome, 17th - 21st June 2017: 'Towards An HTA Ecosystem: From Local Needs To Global Opportunities', Health Technology Assessment international (HTAi) is the professional society for the promotion of Health Technology Assessment and embraces all who practice and use HTA across all sectors. Its mission is to support the growth of the HTA community by providing a neutral, global forum for the exchange of information, methods and expertise. The conference attracted over 1000 delegates from 65 countries. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://meeting.htai.org/events/htai-rome-2017/custom-136-1c2301d261504d679c3b63c233b5033a.aspx |
| Description | Oral presentation: Effects of implementation of predictive risk stratification in primary care: a randomised stepped-wedge trial (PRISMATIC) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Mark Kingston gave a well attended oral presentation, followed by lively discussion, at the Society for Academic and Primary Care Annual Conference 12th to 14th July 2017 at the University of Warwick, which attracted over 340 delegates. The Society for Academic and Primary Care aims to champion expertise in Academic Primary Care and drive improvements in Primary Care provision |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://sapc.ac.uk/conference/2017 |
| Description | Oral presentation: Emergency ambulance care of older adults who have fallen: cluster RCT |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Helen Snooks gave an oral presentation, followed by discussion, at the HTAi 14th Annual Conference in Rome, 17th - 21st June 2017: 'Towards An HTA Ecosystem: From Local Needs To Global Opportunities', Health Technology Assessment international (HTAi) is the professional society for the promotion of Health Technology Assessment and embraces all who practice and use HTA across all sectors. Its mission is to support the growth of the HTA community by providing a neutral, global forum for the exchange of information, methods and expertise. The conference attracted over 1000 delegates from 65 countries. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://meeting.htai.org/events/htai-rome-2017/custom-136-1c2301d261504d679c3b63c233b5033a.aspx |
| Description | Oral presentation: Implementation of emergency risk stratification: A cross sectional survey of 171 UK health boards and CCGs. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Alison Porter gave a well attended oral presentation and poster display at the HSRUK annual symposium 6th to 7th July 2017, followed by discussion. Health Services Research (HSR) informs and evaluates innovations in health services and policy, representing and championing UK HSR. HSRUK members include research units and NHS organisations and a growing number of third sector bodies, professional groups and private sector associates. This dissemination work prompted follow up enquiries from individuals and organisations. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.eventsforce.net/eventage/frontend/reg/tAgendaWebsite.csp?pageID=55823&ef_sel_menu=1024&e... |
| Description | Oral presentation: Implementing risk stratification in primary care: a qualitative study |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Bridie Evans gave a well attended oral presentation and poster display at the HSRUK annual symposium 6th to 7th July 2017, followed by discussion. Health Services Research (HSR) informs and evaluates innovations in health services and policy, representing and championing UK HSR. HSRUK members include research units and NHS organisations and a growing number of third sector bodies, professional groups and private sector associates. This dissemination work prompted follow up enquiries from individuals and organisations. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.eventsforce.net/eventage/frontend/reg/tAgendaWebsite.csp?pageID=55823&ef_sel_menu=1024&e... |
| Description | Oral presentation: Implementing risk stratification in primary care: a qualitative study |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Alison Porter gave an oral presentation, followed by discussion, at the HTAi 14th Annual Conference in Rome, 17th - 21st June 2017: 'Towards An HTA Ecosystem: From Local Needs To Global Opportunities', Health Technology Assessment international (HTAi) is the professional society for the promotion of Health Technology Assessment and embraces all who practice and use HTA across all sectors. Its mission is to support the growth of the HTA community by providing a neutral, global forum for the exchange of information, methods and expertise. The conference attracted over 1000 delegates from 65 countries. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://meeting.htai.org/events/htai-rome-2017/custom-136-1c2301d261504d679c3b63c233b5033a.aspx |
| Description | Oral presentation: Introducing the PRIDAL model for linking routine and identifiable patient reported questionnaire data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The three day IPDLN Conference saw a record number of 500 attendees as international data linkage representatives descended on Swansea from 22 countries, spanning 6 continents. This oral presentation was well received and stimulated a debate on the best approaches to linking survey and routine data. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ipdlnconference2016.org/ |
| Description | PMC visit |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | the intended outcome was to improve understanding of other thinking outcome: Wales considered as PMC Centre |
| Year(s) Of Engagement Activity | 2015 |
| Description | Panel Presentation - The role of e-trials in the future of HTA - HTAi International Conferemce, Oslo |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The role of e-trials in the future of HTA - HTAi International Conference, Oslo. Helen Snooks (plus Alan Watkins and colleagues from Farr Manchester & Farr London) June 2015 |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participation in Cabinet Office Open Plenary session on data sharing |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | questions and discussion continued engagement with policy makers and privacy lobby groups |
| Year(s) Of Engagement Activity | 2014 |
| Description | Participation in Welsh Government policy making group to determine industrial engagement strategy for Wales in relation to health research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion of collaborative opportunities with a major company Welsh Government's position with regard to a strategic collaboration with this industry partner clarified |
| Year(s) Of Engagement Activity | 2014 |
| Description | Platforms and Governance. Progress in setting up the environment for delivery: trusted research environments for federated, scalable research. Farr Institute International Advisory Board, London - 1/12/15 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Platforms and Governance. Progress in setting up the environment for delivery: trusted research environments for federated, scalable research. Farr Institute International Advisory Board, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Plenary Panellist: Child Health Research: the key to a Healthier European Society. Joint meeting of four EU FP7 and public health research programmes |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Plenary Panellist: Child Health Research: the key to a Healthier European Society. Joint meeting of four EU FP7 and public health research programmes Development of a road map for child health research in the EU. |
| Year(s) Of Engagement Activity | 2013 |
| Description | Podcast: crime and hospital admissions: is there a link with the availability of alcohol nearby? |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | This podcast was recorded to be an accessible summary of the NIHR PHR funded CHALICE project, which was reported in 2016 in the PHR journal. This lay summary podcast is suitable for a wide audience and captures the main associations of increased alcohol with increased crime and hospital admissions. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adrn.ac.uk/research-impact/podcasts/crime-and-hospital-admissions/ |
| Description | Poster - Using address data to compare accuracy of accessibility to health services (Paper to GISRUK 2014 conference) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Using address data to compare accuracy of accessibility to health services (Paper to GISRUK 2014 conference) - Sarah Rodgers and Richard Fry |
| Year(s) Of Engagement Activity | 2014 |
| Description | Poster - airAware evaluation |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster - airAware evaluation - Rowena Bailey |
| Year(s) Of Engagement Activity | 2015 |
| Description | Poster entitled Flying Start Data Linking Demonstration Project at the WG GSR Poster Competition [FIRST PLACE!] - June 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Won first prize for poster demonstrating how the research had influenced policy - Sarah Lowe |
| Year(s) Of Engagement Activity | 2015 |
| Description | Poster presentation at DPUK Annual Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Outline presentation of work package 2 of DPUK, the informatics stream, at the time focusing on the build and purpose of the DPUK Data Portal. The poster featured a description of the envisaged tools, data management and planned activity for the coming year. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Poster presentation at Research Data Alliance symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | An international conference, the poster provoked discussion about the importance of administrative data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Poster presentation: Use of PRISM risk prediction tool in general practice: a qualitative study |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | HSRUK represents and connects everyone interested in health service innovation, evidence and improvement. It is the collective voice for health services research in policy and practice. It brings together those who produce and use evidence to improve services.The abstract was selected through a peer-review process for poster presentation. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.eventsforce.net/eventage/frontend/reg/thome.csp?pageID=37790&ef_sel_menu=814&eventID=91&... |
| Description | Poster: Retrospectively Defining a study cohort using housing intervention data' |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster: Retrospectively Defining a study cohort using housing intervention data' - Rhodri Johnson |
| Year(s) Of Engagement Activity | 2015 |
| Description | Predictive factors associated with intensity of physical activity of 12 month infants in Environment of Healthy Living Cohort Study, Informatics for Health 2017 - Haider Raza |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | "Predictive factors associated with intensity of physical activity of 12 month infants in Environment of Healthy Living Cohort Study, Informatics for Health 2017 " |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation -MEDMI - Connecting health and environment data project; Evaluating environmental influences on health using privacy protecting data linkage |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | MEDMI - Connecting health and environment data project; Evaluating environmental influences on health using privacy protecting data linkage, London, January 2015 - Sarah Rodgers |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation -Wales Electronic Cohort for Children. International Health Data Linkage Conference, Vancouver, Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Wales Electronic Cohort for Children. International Health Data Linkage Conference, Vancouver, Canada - Shantini Paranjothy (April 2014) |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation and workshop discussion with the Minister of Health and Social Service's Life Science Advisory Panel |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | intense debate in the role of e-health companies in the life science industry. Subsequent recognition of this sub sector in Wales in policy documents. |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation as part of the Farr - CIPHER launch event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Interest in CIPHER (Farr) Better engagement with NHS Wales amd its staff. More collaborations with academics in Wales |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation at ADRN 2017 conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presenting the methods and results from the 'Longitudinal analysis of critical care outcomes in Wales' project which sparked questions and discussion afterwards with an analyst interested in carrying out research using Scottish Critical Care data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation at Academy of Medical Sciences, Data in Safe Havens meeting, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Farr Institute: Safe Havens - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Canadian Injury Prevention and Safety Promotion Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to 300+ delegates at Canadian Injury Prevention and Safety Promotion Conference, Montreal, 5-7th November, 2013 Title of Panel" Social and contextual determinants of injury" My title: "Data linkage supporting observational and international research" Several collaborative research projects will inevitably follow |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.injurypreventionconference.ca/program/ |
| Description | Presentation at Chartered Institute of Environmental Health conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation at Chartered Institute of Environmental Health conference: Public Health:Joining up for maximum impact. Conference was attended by 130+ delegates, mostly local authority environmental health offices Several local authorities subsequently contacted CIPHER to ask for support in evaluation of their non-healthcare interventions |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation at Connecting Big Data conference in Truro, Cornwall |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Lots of discussion about approaches and responsibilities to privacy protection and research Better understanding by the non-health research communities (environmental and weather) to the use of health data, in terms of privacy protection, computational issues and professional practice |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Database Resources for Large-Scale and Complex Data workshop, Engineers' House, Bristol, 21st June 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chris Orton presented on the DPUK use case of UKSeRP and the enhancement of cohort data and research that this brings to the epidemiological and general scientific community in the sphere of Dementia. The presentation detailed the infrastructure supporting advancement in multi-modal data use and how to harness disparate data from eclectic and valuable sources across the world within a centralised management and access system, whilst allowing data providers to retain governance of their data. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation at ESRC Alcohol and Tobacco Workshop December 16th 2015, Edinburgh - Professor David Fone |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ESRC Alcohol and Tobacco Workshop 16/12/15 Conference Room, Edinburgh Centre for Carbon Innovation, High School Yards, Edinburgh EH1 1LZ Presentation entitled - Change in alcohol outlet density and alcohol related harm, Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Aaron Lacey |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Using Welsh GP records to assess cardiovascular risk |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Angharad Walters |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Does inadequate treatment of Escherichia coli (E.coli) urinary tract infections lead to increased risk of E.coli bacteraemia? |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Christine Dobbs |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation - Barriers and enablers to cross-organizational and cross-sectoral data sharing and linkage across the UK: A consultation workshop |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Christine Dobbs |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Harm versus impact in cases of data breach and misuse: examining legal insufficiencies and what lies beyond the regulatory space? |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Daniel Thayer |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation - Exploratory Data Linkage Study of Palliative Care Register Use in Primary Care |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Daniel Thayer |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Getting There is 50.0% of the Fun (95% CI [47.7, 52.3]): Software Development Methodologies for Research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Daniel Thayer |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentaiton - Dual Diagnosis of Mental Health Problems and Substance Abuse in Primary Care in South Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Gareth Davies |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Electronic follow up of a double blind randomised controlled trial: probiotic supplementation in the prevention of childhood atopy |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Hazel Lockhart Jones |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - A tool to encourage ongoing participation in an online longitudinal study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Jo Davies |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Utilisation of evidence-based Statin treatment for the prevention of Acute Coronary Syndromes in ABMU Health Board |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Joanne Demmler |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Is poor educational attainment a risk factor for adverse health in adolescence? |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - John Macleod |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Adolescent Cannabis and Tobacco use and Educational Outcomes at Age 16: Birth Cohort Study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Julie Kennedy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Developing and validating algorithms to identify Rheumatoid Arthritis from routine administrative data - a data mining approach |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Julie Kennedy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Identifying important risk factors for phenotyping patients with arthropathy conditions from high dimensional imbalanced routine date |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Karen Tingay |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Dementias Platform UK: Cohort identification and engagement |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Kerry Bailey |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Interactive visualisations to Evaluate and Predict Health |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Mark Atkinson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Diabetes case confirmation in the UK Biobank by data linkage |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Martin Heaven |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Social care and health of older people: what can we learn from linking routine data? |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Martin Heaven |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation - Setting up the Information Governance for a UK Secure eResearch Platform (UKSeRP) - "It's a people thing, not just a set of clever IT boxes" |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Martin Heaven / Helen Snooks |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Introducing the PRIDAL model for linking routine health and identifiable patient reported data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Rhodri Johnson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Retrospectively defining a study cohort using housing intervention data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Richard Fry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Linking the outputs from complex spatial models to routine health records |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Ronan Lyons |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Effects of an air pollution personal alert system on helath service useage in a high risk general population: a quasi-experimental study using linked data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Rosie Cornish |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Using linked administrative data to reduce bias due to missing data: a study of the association between breastfeeding and IQ using ALSPAC data and simulations |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Rosie Cornish |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Using Data Linkage to investigate inconsistent reporting of self-harm and questionnaire non-response |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Rosie Cornish |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Defining cases of adolescent anxiety and depression using electronic primary care data: an external validation using linkage to a cohort study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Rowena Bailey |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - The effects of an area based social housing regeneration programme on the physical and mental health of tennants |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Samantha Turner |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - The 'School Travel and Child Safety Survey' Project: Linking Results from a School Based Survey to Other Routinely Collected Data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Sarah Rodgers |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Assessing the accuracy of patient-provided addresses |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Simon Moore |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Electronic Longitudinal Alcohol Study in Communities (ELAStiC) |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Simon Thompson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Developing UK Dementias Platform based on UKSeRP |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Simon Thompson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - UK Secure Research Platform - SAIL-ing to a new World |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Simon Thompson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - UKSeRP/NRDA Data Quality & Data Catalogue |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute International Conference 2015 - Sinead Brophy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation - Obesity in pregnancy: a retrospective study on health service utilisation and costs on the NHS |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Farr Institute Research Meeting, Edinburgh |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Farr Institute - CIPHER: overview and recent activities - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at GISRUK 48 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Academic presentation of technical CHALICE outlet density measures at the GISRUK conference 2016. Much interest in our methods from other groups in the alcohol field. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at High Performance Computing and Big Data Conference, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Improving health through Big Data - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Innovation in Healthcare and Higher Education conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Considerable interest from NHS participants a number of follow up enquiries |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation at International Collaborative Effort on Injury Statistics and Methods, Washington DC |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Grand Research Challenge: Global Collaboration in Measuring the Incidence and Burden on Injuries - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at International Health Data Linkage Conference, Vancouver |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Using data linkage to support measurement of the Global Burden of Injuries - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at International Health Data Linkage Conference, Vancouver, Canada - Shantini Paranjothy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Does the HPV vaccination programme have implications for cervical screening programmes? International Health Data Linkage Conference, Vancouver, Canada |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at MRC Strategic meeting between health and bioinformatics centres - 29/1/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Centre for Improvement of Population Health through E-records Research (CIPHER). Presentation at MRC Strategic meeting between health and bioinformatics centres, Windsor |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at MRC organised conference: Strengthening the UK's capability in health informatics research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation as MRC organised conference: Strengthening the UK's capability in health informatics research. Conference was attended by 200+ delegates including, UK Minister, policymakers, research community and industry Agreement to create the Farr Institute; development of the UK Health Informatics Research Network |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation at North South Alcohol Policy Advisory Group - Professor David Fone |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | North South Alcohol Policy Advisory Group Using alcohol licensing data in public health research and policy - A knowledge exchange seminar across the UK and Ireland 30 November 2015, Riddel Hall, Belfast Presentation entitled - Learning from the Welsh CHALICE study - exploring changes in alcohol outlet density and alcohol-related harms over time |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at Nottingham University seminar - 15/1/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Data linkage in injury research - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at Preventing Injury to Children Conference, Dublin, Ireland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - How can we improve child injury outcomes? - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at UK LifeSciences - prospects for innovation , investment and global competitiveness in Whitehall, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Much debate as how data and data business can be used to drive the economy and improve public services Seveeral on-going connections with delegates |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at UKCRC Public Health Research Centres of Excellence Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | To raise awareness of the inaccuracies of secondary environmental data sets as they are often not documented in the literature. These data are used over primary datasets because they are easily accessible and advertised as analysis-ready. However, relatively little is known about the accuracy of these datasets. The presentation provoked interest in the topic and raised questions about what impact using poor quality secondary data sets may have on research results |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation at UKSPA conference 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presenting some of the Farr Institute case studies from the '100 Ways of Using Data to Make Lives Better' which sparked questions and discussion afterwards |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation at Welsh Stroke Conference, SWALEC Stadium, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Using linked data for research and continuous quality improvement - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at an ADRC-W Alcohol Consumption and Population Health Seminar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at the ADRC-W Alcohol Consumption and Population Health Seminar on 31/1/2017 (see https://adrn.ac.uk/about/news/newsitem?newsid=4933). The webpage includes: "The event was attended by policy makers, social scientists, statisticians and others interested in social and health research. Delegates came to find out more about how administrative data from Wales and Scotland has been utilised to carry out research on alcohol consumption and alcohol-related harm. One focus of the event was around the change in alcohol outlet density and alcohol-related harm to population health (CHALICE), a comprehensive record-linked database study in Wales. The CHALICE study carried out a natural experiment of change in alcohol outlet density between 2006 and 2011 in Wales on alcohol consumption and alcohol related harm, using novel geographic information system (GIS), administrative and survey data linkage and statistical methods". |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://adrn.ac.uk/about/news/newsitem?newsid=4933 |
| Description | Presentation at launch of Digital Innovation Week Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Interested audience with many questions heigthened public awareness of the challenges and benefits of big health data research |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation at the International Population Data Linkage Conference 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A technical presentation of CHALICE outlet density methodology that generated considerable interest from others working in the field, and the wider applicability to the measurement of other densities (fast food, tobacco, for example). |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation entitled Assessing the health impacts of sports participation in Wales What is the role of the accessibility of sport facilities? at the ADRN Conference, Belfast - May 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation entitled Assessing the health impacts of sports participation in Wales What is the role of the accessibility of sport facilities? at the ADRN Conference, Belfast - Sarah Lowe |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation entitled Comparing patient experiences from anonymised routinely collected linked datasets at the International Data Linking Conference, Vancouver - April 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation entitled Comparing patient experiences from anonymised routinely collected linked datasets at the International Data Linking Conference, Vancouver - Sarah Lowe |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation entitled ESRC-WG Data Linking Demonstration Projects 2012-13: Methodological Challenges and Lessons Learned at SHIP Conference - August 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation entitled ESRC-WG Data Linking Demonstration Projects 2012-13: Methodological Challenges and Lessons Learned at SHIP Conference - Sarah Lowe |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation entitled ESRC-WG Demonstration Projects 2012-13: Methodological Challenges and Lessons Learned at the Welsh Health Analysts Network - October 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Around 20 attendees; intial dicsussions re use of data linking - Sarah Lowe |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation entitled Examining the Feasibility of Creating an Individual Deprivation Score using Linked Data at the ADRN Conference, Belfast - May 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation entitled Examining the Feasibility of Creating an Individual Deprivation Score using Linked Data at the ADRN Conference, Belfast - Sarah Lowe |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation entitled Patient Pathways: Comparing patient experiences using anonymised, routinely collected linked datasets to identify variations in 'patient pathways' for stroke at Older People & Ageing Research & Development Network - May 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation entitled Patient Pathways: Comparing patient experiences using anonymised, routinely collected linked datasets to identify variations in 'patient pathways' for stroke at Older People & Ageing Research & Development Network - Sarah Lowe Around 20 attendees; initial discussions re use of data linking |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation entitled The WG Programme to Maximise the Use of Existing Data - Update at Welsh Statistical Liaison Committee - March 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Around 20 attendees; further discussions re use of data linking across public sector in Wales - Sarah Lowe |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation entitled The WG Programme to Maximise the Use of Existing Data - challenges for STFC at meeting between WG and STFC - May 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Around 15 attendees. Initial discussions about collaborations on data linking projects - Sarah Lowe |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation entitled The Welsh Government Programme to Maximise the Use of Existing Data at the International Data Linking Conference, Vancouver - April 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation entitled The Welsh Government Programme to Maximise the Use of Existing Data at the International Data Linking Conference, Vancouver - Sarah Lowe |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation entitled Using Data Linking to Improve the Evidence Base at Welsh Government - September 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Around 35 attendees; helping policy colleagues to understand the potential of data linking to improve their evidence base. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation on DPUK as a use case of UKSeRP at the Administrative Data Research Network Conference, Royal Surgeon's Hall, Edinburgh, 1-2 June 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chris Orton, Data Project Manager for DPUK at Swansea University, presented on DPUK as a use case of UK Secure eResearch Platform at the ADRN Conference in Edinburgh on Friday 2nd June 2017. The presentation outlined the complex instance of UKSeRP that DPUK uses to host its infrastructure, namely the DPUK Data Portal, and also showed how this links to other national research organisations who are also making use of UKSeRP. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation on GP notes anonymisation at Clinical Text De-Identification Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion of technical, governance, and public engagement issues concerning the use of medical free text in research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on Health / Bioinformatics at Swansea University. Visit of Prof Julie Williams, Chief Scientific Advisor for Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation on High Performance Computing and health data science at HPCWales event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Considerable interest in big data capabilities and high performance computing Increased level of interest in the use of big health data for research and for company benefit. |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation on Information Governance to Health Data Linkage Conference, Rio de Janeiro, Brazil |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | talked followed by 40 minute plenary discussion session Asked as international expert to provide input into the conference to guide the development of a Brazilian national strategy for data sharing and reuse. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation on National Centre for Population Health and Wellbeing Research (NCPHWR) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on National Centre for Population Health and Wellbeing Research (NCPHWR) at Research in Wales showcase event, Cardiff. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on UK Secure eResearch Platform (DPUK) - 24/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on UK Secure eResearch Platform (DPUK) at MRC meeting 'Managing the data life-cycle for stratified medicine', London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on future Farr UK Institute |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on future Farr UK Institute to MRC Population Health Sciences Group, London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation on research at Farr Institute CIPHER to Rebecca Endean - 26/1/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on research at Farr Institute CIPHER to Rebecca Endean, Director Research Base, Business and Science |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation to Association of Geographical Information GEO 5 conference series: 'Big Data and You", Cardiff - 25/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Association of Geographical Information GEO 5 conference series: 'Big Data and You", Cardiff. This was voted best conference presentation and short listed for AGI Awards for Geospatial Excellence ceremony on 25/11/15, Kenilworth. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to BIG Innovation Centre |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | High levels of interaction with other senior delegates Influenced the direction of the BIG workplan; hightened awareness of Farr, its plans and its capabilities |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Baroness Finlay |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to member of House of Lords CIPHER: Centre for Improvement of Population Health through E-health Research. informing member of House of Lords on potential of data linakge |
| Year(s) Of Engagement Activity | 2012 |
| Description | Presentation to Baroness Jenny Randerson |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to member of House of Lords on Centre for Improvement of Population Health through E-records Research. Information sharing and awareness raising of the potential for data linkage to support a wide variety of health research |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to Chief Economist and Child Poverty Group, Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Wales Electronic Cohort for Children (WECC) study: design, early results and creation of a hybrid e-cohort - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Clinithink, Swansea - 10/4/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | NLP of Emergency Department data: Early experience. Presentation to Clinithink, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Computer Science away day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | change of attitude of Wales's Computer Science communities towards big data research joint data science degree programme in planning. investment from Swansea Computer Science department in data science posts to complement College of Medicine investments in Farr |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Delegates from Curtin University, Western Australia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To share information Outcome: Possible future international collaboration discussed |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Devolved Nations Healthcare approach workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Exchange of information about health data strategies across the 4 UK countries. Part of a newly established series of meetings better understanding of national strategies and influence on improving interoperation at a data level. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Fellows of the Royal Society of Arts and Commerce seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Much discussion among a highly influential group in a subject about which they knew little Increased awareness in senior figures across Wales about big health data and how the Farr is moving things froward in Wales and across the UK |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to IBM Innovation Centres, Dublin, Ireland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Setting the scene for possible H2020 collaborations by outline the work of Farr and Farr-CIPHER New H2020 project in planning with IBM |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to MRC Council - Centre for the Improvement of Population Health through E-records Research (CIPHER) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Presentation to MRC Council on the success of the Farr CIPHER centre and its impact through science and public engagement, including the development of data sharing research platforms that underpin a number of major research initiatives, including DPUK and MQ Adolescent Mental Health Platform |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation to Ministerial advisory group on genomics strategy in Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | considerable interest in how big data approaches could work across genetics and health records informed investment decisions in new advanced genetics capacity in Wales |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to NCRI Conference 2013 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Type Of Presentation | workshop facilitator |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Many questions and positive comments. Many subsequent discussions continued dialogue with cancer informatics leads in UK |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to NHS Cornwall meeting about big data analytics and how Farr technologies could support research, policy and service development |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interest in how data could improve NHS Cornwall's performance Commitment to plan the use of SAIL/UKSERP/RDAs in Cornwall. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to NHS Medical Directors |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Medical Directors of all NHS Health Boards in Wales on the opportunities for data linkage to improve health care The medical directors agreed to support SAIL and engage with it |
| Year(s) Of Engagement Activity | 2012 |
| Description | Presentation to NISCHR Primary Care Research Group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to NISCHR Primary Care Research Group on the SAIL Databank Some 40 GPs attended. The vast majority were happy for their practices to contribute to the databank additional recruitment of practices to the SAIL databank |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to NISCHR SEWAHSP/GSK meeting, Caerleon |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - Health Informatics for respiratory disease research - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to ONS Beyond 2011 team |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to ONS Beyond 2011 Team on opportunities for collaboration with CIPHER Agreement to work together, collaborative bid submitted to ESRC in 2013 |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to Office for National Statistics Data Science Campus on environment and health related projects |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on work related to environment and health being conducted as part of CIPHER. Discussion included how some of the accessibility work developed as part of CIPHER could be included in the Welsh Index for Multiple Deprivation (WIMD) and future plans for assessing the impact of green and blue space availability on mental health and wellbeing. Discussions how expertise on green space assessment can be shared. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation to Office for National Statistics on household data linkage |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to health team within ONS on SAIL and household data linkage |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation to PHW Board - 26/2/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Collaboration between SU/SAIL and PHW: a tremendous opportunity to improve population health and care outcomes. Presentation to PHW Board, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Precision Medicine Catapult - 17/11/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to Precision Medicine Catapult tem leaders from Cambridge University at visit to Swansea University Precision Medicine Catapult team asked to come back to discuss opportunities and projects in more detail |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Public Health Wales/ Public Health England |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on data linkage to chief executives and board members of Public Health Wales and Public Health England Agreement to work collaboratively on a number of projects, including the Global Burden of Diseases- UK project |
| Year(s) Of Engagement Activity | 2012 |
| Description | Presentation to Royal Society of Arts and Commerce Fellows seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | much discussion after talk support for data linkage for health research in an influential senior group |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to South Wales Trauma Collaboration, Bridgend |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Data Linkage in major trauma: the key to improving clinical effectiveness, NHS efficiency and reducing population impact - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to UK Biobank and Oxford Big Data Institute, Swansea |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation title - Use of UK Secure e-Research Platform (UKSeRP) - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to UK Biobank team |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Presentation title - Potential to use UK Secure e-Research Platform (SeRP) for some access needs to UK Biobank data - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to Welsh Collaboration for Health and Environment |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The presentation to Local Authority directors and Public Health Practitioners highlighted the value of Local Authority collected environmental data. The talk encouraged the listeners in the importance of managing their data and improved their awareness of poor quality secondary environmental data sets. The talk sparked questions and discussion afterwards. After my talk, the Local Authority representatives were interested that the data they collect is very valuable for natural experiments and public health research. Public Health Practitioners became aware that secondary source environmental data sets need to validated before using for research. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation to Welsh Governement health officals on improving data linkage opportunies in Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion about most suitable way to implement an intitative New funding available |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to all senior health practitioners and managers from ABMU Health Board as part of the Changing for the Better programme |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Considerable discssion on how big data could steer clinical, management and commissioning decisions Contrinuted to the decisions to incorporate of e-health into the change plan for the health board |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to and involvment in NISCHR HI planning workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | very interactive discussions about the role big data research can play as part of a national health research strategy incorporation of health informatics as a integrated and integral theme in Wales health R&D strategy |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to companies and academics as part of NVI Launch event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Much interest in becoming involved from academic and business communities high take up of NVI participation |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to industry and research funders on 'Big Data for Asthma', Wales in London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title -BigDatA. Why Asthma, why us, why now? - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to international researchers from four countries as part of the BGER symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Identification of potential collaborators in research from France, US and China Collaboration with French researchers |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to joint meeting of UKDP, EMIF (European Medical Information Framework) and eTRIKS (European Translational Information and Knowledge Management Services), London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation title - UK Dementia Platform Informatics - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to researchers currently using the SAIL data bank (streamed on-line and face-to-face) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | increased awareness of strategic direction for SAIL, Farr and ADRN better engagement from academic collegues, increased research use of big health data |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation to senior NHS Bristol CLARWEST officials |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Much discussion about opportunities Farr technolgies could bring to Avon area Agreed collaboration with NHS Bristol organisations |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to senior NHS Bristol officials |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Planning for the use of Farr technologies in NHS Bristol Agreement to collaborate to extend data available to Farr via NHS Bristol organisation |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to senior academics and policy makers at Wales GenePark seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Agreement to collaborate strategically formal relationship between Farr and Wales GenePark expressed in their recent funding application |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to senior policy makers considering EME programme in Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | debate about how Wales should address emerging EME opportunites Emergant strategy via Chief Scientific Advisor for Wales |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation to the Bevan Commission |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to the Bevan Commission "Potential for SAIL to support health boards in delivering high quality services" The Bevan Commission expressed great interest in this work and have asked CIPHER/SAIL to arrange a visit from the Commission in December 2013 |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://wales.gov.uk/topics/health/nhswales/organisations/bevan/?lang=en |
| Description | Presentation to the EU Joint Action on Monitoring Injury in Europe (JAMIE) meeting, Vienna |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | - |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation with Mick Dennis (Swansea) and Daniel Davies (UCL) to UK Biobank/DPUK neorodegerative outcomes group - 6/1/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research Proposal: Dementia and Cognitive Impairment identification in routine health data: development and validation of algorithms within SAIL using CFAS cases. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation/workshop at DECIPHer annual seminar - 9/6/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An Introduction to Data Linkage. Presentation/workshop at DECIPHer annual seminar, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: "Future Directions & Priorities in UK Health Informatics Research" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Part of the Farr Institute's presentation "Future Directions & Priorities in UK Health Informatics Research", at the Scottish Health Informatics Programme Conference, St Andrews Development of the UK Health Informatics Research Network |
| Year(s) Of Engagement Activity | 2013 |
| Description | Presentation: Big data approaches to the evaluation of factors influencing children's health and wellbeing. SPIRIT international children's play conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This was an invited talk for a charity working on improving children's play opportunities. Much of the focus of my talk was on how multi-sectoral data linkage could support large scale, previously infeasible evaluations of the impact of children's play on health, educational outcomes and wellbeing. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation: Creating a natural experiment dataset from routinely collected administrative data: the story from CHALICE |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation: Creating a natural experiment dataset from routinely collected administrative data: the story from CHALICE. Richard Fry. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: Housing and Health Study |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation: Housing and Health Study - Rowena Bailey |
| Year(s) Of Engagement Activity | 2014 |
| Description | Presentation: Linking the outputs from complex spatial models to routine health records |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation: Linking the outputs from complex spatial models to routine health records - Richard Fry |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: Managing Data and Analysis. In Workshop: Designing an ERIC on health information to maximize research and evidence-based policy making. EUPHA Conference, Stockholm |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | I gave a presentation on how to manage multi-country data and analysis for European projects. This was part of a workshop at the EUPHA Conference, Stockholm: Designing an ERIC (European Research Infrastructure Consortium) on health information to maximize research and evidence-based policy making. It led to widespread discussion. The EU subsequently funded the €5M InFact project: Joint Action on Health Information towards a sustainable EU health information system that supports country knowledge, health research and policy-making. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation: SAIL databank - what, why, how? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation: SAIL databank - what, why, how? - Rowena Bailey |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: SAIL databank - what, why, how? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation: SAIL databank - what, why, how? - Rowena Bailey |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: evaluation of airaware - statistical methods (January 2015) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation: evaluation of airaware - statistical methods - Rowena Bailey |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: evaluation of airaware - statistical methods (October 2015) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation: evaluation of airaware - statistical methods - Rowena Bailey |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation: measuring the effects of housing regeneration on health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation: measuring the effects of housing regeneration on health - Rowena Bailey |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentations at 4th European Conference on Injury Prevention and Safety Promotion 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Disseminating key results from 2 reports based on the European Injury Data Base (IDB) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Privacy protecting data linkage for population health. Presentation for Fondazione Lanza, Padua - 2/12/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Privacy protecting data linkage for population health. Presentation for Fondazione Lanza, Padua |
| Year(s) Of Engagement Activity | 2014 |
| Description | Privacy protecting data linkage research: a key tool in hastening translation and achieving population impact. Invited Seminar - 10/6/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Privacy protecting data linkage research: a key tool in hastening translation and achieving population impact. Invited Seminar, Cambridge University |
| Year(s) Of Engagement Activity | 2015 |
| Description | Protecting privacy through design - 14/3/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Protecting privacy through design. Invited presentation to Brocher Foundation, Oxford Internet Institute, Geneva |
| Year(s) Of Engagement Activity | 2016 |
| Description | Providing expert contribution to meeting with Cabinet Office on new draft policy and legislation (data sharing) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New policy in draft. New legal viries pending Increased the understanding of policy makers about the needs of researchers for sharing personal data from public services; increased their understanding of good practice in data sharing practice |
| Year(s) Of Engagement Activity | 2014 |
| Description | Prudent Healthcare: achieving better outcomes through information technology. Presentation to NHS managers/clinicians - 18/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Prudent Healthcare: achieving better outcomes through information technology. Presentation to NHS managers/clinicians |
| Year(s) Of Engagement Activity | 2014 |
| Description | Publicity from press release: Swansea University research into ways to ease A&E workload 14 November 2013 |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Following the press release the BBC filmed members of the study team and featured the study on BBC Wales Today and BBC online. Wider public awareness |
| Year(s) Of Engagement Activity | 2010,2013,2014 |
| URL | http://www.bbc.co.uk/news/uk-wales-24949485 |
| Description | Realising the potential of Big Data: Secure Anonymised Information Linkage (SAIL). Presentation to UK Asthma Centre for Applied Research scientific meeting, Oxford - 4/11/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Realising the potential of Big Data: Secure Anonymised Information Linkage (SAIL). Presentation to UK Asthma Centre for Applied Research scientific meeting, Oxford |
| Year(s) Of Engagement Activity | 2014 |
| Description | Reception for Canada's Honorary Consult to Wales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Intended purpose: To share information Outcome: A number of relevant connections made in Canadian government |
| Year(s) Of Engagement Activity | 2015 |
| Description | Reinvigorating health registries during COVID for rapid policy analyses. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Reinvigorating health registries during COVID for rapid policy analyses. Norwegian Health Registry Conference, Oslo, 16/11/21. Helse- og Kvalitetsregisterkonferansen 2021 | Keynote presentation. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.registerkonferansen.no/ |
| Description | Report on the development of Inspirational Case Study for INFACT Desirable Healthcare Utilisation Profiles and Indicator |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Report on the development of Inspirational Case Study for INFACT Desirable Healthcare Utilisation Profiles and Indicator, European Union Information for Action meeting |
| Year(s) Of Engagement Activity | 2021 |
| Description | Research use cases measuring the impact of COVID-19 on population health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research use cases measuring the impact of COVID-19 on population health. The European Health Data Space (THEDAS), Brussels. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Research workshop on natural experiments at Health and Care Research Wales Annual Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | We conducted a research workshop on the evaluation of natural experiments using linked data at Health and Care Research Wales Annual Conference. Many examples were provided from studies funded by the Farr Institute funding group, DECIPHer, MRC, ESRC, NIHR and Health and Care Research Wales. A discussion followed on the potential for further evaluations with researchers, practitioners from many organisations and members of the public, with several ideas being developed. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Roundtable event - Harnessing Big Data to improve Respiratory Health |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A roundtable event was held on 'Harnessing Big Data to improve Respiratory Health', supported by the Farr Institute of Health Informatics Research and the National Centre for Population Health & Wellbeing Research. The aim of the roundtable event was to bring together key stakeholders - clinical leads, NHS Wales Informatics Service (NWIS), population health researchers, Welsh government (WG), Bevan Commisssion, and the third sector - to arrive at innovative solutions to optimise the opportunities of big data to improve respiratory health. The focus was a high level discussion on 'Where do we need to get to?' and 'How can we align and work together to achieve our goals'. This Consensus Position Statement summarises the current position and identifies the opportunities and challenges in harnessing big data to improve respiratory health in Wales and beyond. |
| Year(s) Of Engagement Activity | 2017 |
| Description | SAGE Social Care Working Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | RF has been an active member of Scientific Advisory Group for Emergencies (SAGE) Social Care working group since May 2020 contributing academic research and advice the Department of Health and Social Care, Downing Street, UK Health Security Agency, Public Health England, Public Health England, Public Health Scotland, Public Health Wales and third sector organisations. |
| Year(s) Of Engagement Activity | 2020,2021,2022 |
| URL | https://www.gov.uk/government/publications/scientific-advisory-group-for-emergencies-sage-coronaviru... |
| Description | SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | Safety 2016: World Conference, Tampere Finland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on risk of emergency hospital admission associated with change in alcohol outlet density generated considerable interest in the methods and in the implications for health inequalities and interventions/policies to reduce alcohol-related harm. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.thl.fi/fi/web/injury-prevention/safety-2016 |
| Description | Scottish Government Cross-Party Group on Arthritis and Musculoskeltal conditions |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting on The true Cost of Ankylosing Spondylitis to the NHS and Society Presentation at Scottish Government Cross-Party Group on Arthritis and Musculoskeltal conditions |
| Year(s) Of Engagement Activity | 2014 |
| Description | Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC) - 22/4/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC). National Centre for Population Health and Wellbeing Research, Newport |
| Year(s) Of Engagement Activity | 2016 |
| Description | Secure Anonymised Information Linkage (SAIL) system. Educational presentation to the Confidentiality Advisory Group, Health Research Authority - 7/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Secure Anonymised Information Linkage (SAIL) system. Educational presentation to the Confidentiality Advisory Group, Health Research Authority, London |
| Year(s) Of Engagement Activity | 2016 |
| Description | Sensitivity of national injury presentation estimates. Presentation to Joint Action on Monitoring Injuries in Europe (JAMIE) project group and national injury data administrators , Berlin - 4/12/14 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sensitivity of national injury presentation estimates. Presentation to Joint Action on Monitoring Injuries in Europe (JAMIE) project group and national injury data administrators , Berlin |
| Year(s) Of Engagement Activity | 2014 |
| Description | Sensitivity of national injury presentations estimates. 10th Meeting of the EU-Network of IDB National Data Administrators - 17/10/15 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sensitivity of national injury presentations estimates. 10th Meeting of the EU-Network of IDB National Data Administrators, Lisbon This discussion was held with national data administrators from 20 EU countries and senior EU policy makers on the development of appropriate injury indicators to support national and EU injury prevention policy development |
| Year(s) Of Engagement Activity | 2015 |
| Description | Seventh New Perspectives in Research and Management in AS |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | What can we learn from the Welsh? Stefan Siebert presented |
| Year(s) Of Engagement Activity | 2014 |
| Description | Socioeconomic inequalities and injury risks: opportunities for using IDB system, BRIDGE-Health EU meeting, Vienna - 9/11/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Socioeconomic inequalities and injury risks: opportunities for using IDB system, BRIDGE-Health EU meeting, Vienna |
| Year(s) Of Engagement Activity | 2016 |
| Description | Speaker at the Shifting the goal posts: how racism in sport impacts mental health? Hope not Hate webinar. - 22nd March 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Webinar - Speaker at the Shifting the goal posts: how racism in sport impacts mental health? Hope not Hate webinar |
| Year(s) Of Engagement Activity | 2022 |
| Description | Speaker at the suicidal ideation webinar. - 31st March 2022 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Speaker at the suicidal ideation webinar |
| Year(s) Of Engagement Activity | 2022 |
| Description | Strategic collaboration discussions with major pharma company (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Senior members of the international team of the company |
| Year(s) Of Engagement Activity | 2016 |
| Description | Supporting Prudent Healthcare through analysis of primary care data at the cluster level using SAIL, Prudent Healthcare International Conference - 9/7/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Supporting Prudent Healthcare through analysis of primary care data at the cluster level using SAIL, Prudent Healthcare International Conference, Cardiff |
| Year(s) Of Engagement Activity | 2015 |
| Description | Swansea Science Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Stall, promotion and recruitment at public event, engaging with over 300 general public |
| Year(s) Of Engagement Activity | 2019 |
| Description | Swansea University Consumer Panel Presentation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Presented the blue and green space project proposal to members of the public who advise on how to maximise the PPI involvement with SAIL databank based research projects. |
| Year(s) Of Engagement Activity | 2017 |
| Description | The European Injury Data Base (IDB). EUPHA meeting, Vienna - 11/11/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The European Injury Data Base (IDB). EUPHA meeting, Vienna |
| Year(s) Of Engagement Activity | 2016 |
| Description | The Housing Regeneration and Health Study Results presentation to the housing and health group including WG policy and PHW director, Cardiff September 2017 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 20 practitioners and policy makers attended a housing and health discussion to listen to results presented by Sarah Rodgers on the Housing Regeneration and Health Study. This sparked a number of research questions and the writing of a policy and impact paper suitable for polititians and policy makers. 25 September 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | The Quality of Local Authority Spatial Data - PPHI Seminar - Amy Burden |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | PPHI Seminar - The Quality of Local Authority Spatial Data |
| Year(s) Of Engagement Activity | 2015 |
| Description | The Secure Anonymised Information Linkage System |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Secure Anonymised Information Linkage System. Edinburgh University Usher Institute, 05/07/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | The Secure Anonymised Information Linkage System |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Secure Anonymised Information Linkage System. Presentation to PHW Specialist Registrars, 04/08/21 |
| Year(s) Of Engagement Activity | 2021 |
| Description | Transforming UK Biomedical and Health Informatics. Lecture to MSc in Health Data Analytics students, Swansea - 26/10/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Transforming UK Biomedical and Health Informatics. Lecture to MSc in Health Data Analytics students, Swansea |
| Year(s) Of Engagement Activity | 2015 |
| Description | UK Biological Security Strategy Roundtable: Pandemics and Emerging Infectious Diseases. - 19th April 2022 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Meeting regarding UK Biological Security Strategy Roundtable: Pandemics and Emerging Infectious Diseases |
| Year(s) Of Engagement Activity | 2022 |
| Description | UK Ireland research planning conference at Cardiff University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on alcohol outlet density and community well being generated much interest from a mixed audience of researchers and practitioners |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/conferences/2016-uk-ireland-planning-research-conference/overview |
| Description | UK MED-BIO Partners meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Swansea were invited to attend the board meeting for the UK MED-BIO initiative hosted at Imperial College London, as both lead for the DPUK Data Portal development and as host of CIPHER. The meeting detailed how both Swansea research organisations as well as DPUK could work with UK MED-BIO, which has led to subsequent projects being commissioned and setup. |
| Year(s) Of Engagement Activity | 2016 |
| Description | UKSPA Data Matters presentation on SAIL databank |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation on the use of linked data and SAIL databank. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.ukspa.org.uk/blog/17/11/ukspa-conference-swansea-jan-2018 |
| Description | UKSeRP Demonstration at Informatics for Health 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Swansea University took a team of researchers, technical staff and project support staff to Informatics for Health to showcase the SAIL Databank and UK Secure eResearch Platform. As part of the showcase, both research and technical staff performed demonstrations of the live UKSeRP infrastructure to a varied audience, and this included using UKSeRP tenant organisations as exemplar instances of UKSeRP, examples including SAIL, DPUK, and ADRC Wales. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Understanding and improving complex interventions through linked data - The Informatics for Health Conference, Manchester 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at the Informatics for Health conference in Manchester 2017 to an audience of about 60 including professional practitioners, third party organisations. Following the presentation there were many questions and the audience had increased in the topic area. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://informaticsforhealth.org/ |
| Description | University of Adelaide. Talk on development of DataSHIELD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Disseminated understanding and knowledge of DataSHIELD within Australia and related this to importance of liberal but secure data sharing from major biomedical studies such as ALSPAC and 1958BC. There was a particular focus on potential for vertical DataSHIELD for record linkage and including plans for implementation on SAIL, as developed under CIPHER, Farr Scotland and ALSPAC |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.datashield.ac.uk |
| Description | Update on research |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Update on research. SAIL Consumer Panel, 30/06/21. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Use of data linkage in trauma and emergency care research. Wales International Seminar on Emergency Medicine - 17/5/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Use of data linkage in trauma and emergency care research. Wales International Seminar on Emergency Medicine, Cardiff |
| Year(s) Of Engagement Activity | 2016 |
| Description | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. Maurice Bloch Lecture, Glasgow University, 26/01/22. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://youtu.be/2B4Ak0YuOng |
| Description | Using long bone fractures as an injury incidence indicator in Europe. World Injury Prevention Conference (Safety 2016), Tampere, Finland - 20/9/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Using long bone fractures as an injury incidence indicator in Europe. World Injury Prevention Conference (Safety 2016), Tampere, Finland |
| Year(s) Of Engagement Activity | 2016 |
| Description | Validating epilepsy diagnosis in routinely collected data, poster presentation at ILEA UK conference - Dr W O Pickrell |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Validating epilepsy diagnosis in routinely collected data, poster presentation at ILEA UK conference. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Vulnerable populations and COVID: EU Population Health Information Research Infrastructure |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Vulnerable populations and COVID: EU Population Health Information Research Infrastructure (PHIRI - https://www.phiri.eu/ ) meeting with OECD, ECDC, 24/09/21. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.phiri.eu/ |
| Description | Wales Cancer Bank Advisory Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To inform decision making Outcome: new accrual strategy |
| Year(s) Of Engagement Activity | 2015 |
| Description | Wales Novartis Steering group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | intended purpose: To make decisions Outcomes: further meetings |
| Year(s) Of Engagement Activity | 2015 |
| Description | Wales Public Health Conference, Cardiff 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation of the emerging results from the Housing Regeneration and Health Study |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.wales.nhs.uk/sitesplus/888/document/298449 |
| Description | Wellbeing Champions engagement |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement with AMBU staff as wellbeing champions and with participatory design and feasibility study of web-based wellbeing tool |
| Year(s) Of Engagement Activity | 2018 |
| Description | Welsh Institute of Social and Economic Research: Data and methods symposium for Welsh Government |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Welsh Institute of Social and Economic Research: Data and methods symposium for Welsh Government, - Evidence review: I presented to the Chief Medical Officer and senior policy makers on a paper I co-authored: UK health performance: findings of the Global Burden of Disease Study 2010 The potential of SAIL to support wider Welsh Government policy development and evaluation was recognised and subsequently included in the CMO's annual report |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://wales.gov.uk/topics/health/cmo/publications/annual/report-2013/?lang=en |
| Description | Welsh Research Cooperative Scientific Steering Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Intended purpose: To inform decision making Outcomes: Development of overarching strategy for "Healthwise Wales" |
| Year(s) Of Engagement Activity | 2015 |
| Description | Welsh Study of Mothers and Babies. Frontiers of risk epidemiology in early childhood. Experts meeting, Munich |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Welsh Study of Mothers and Babies. Frontiers of risk epidemiology in early childhood. Experts meeting, Munich - Shantini Paranjothy |
| Year(s) Of Engagement Activity | 2014 |
| Description | What SAIL data tells us about housing and health? ABMU Changing for the Better Housing and Health Group - 5/7/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | What SAIL data tells us about housing and health? ABMU Changing for the Better Housing and Health Group, Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | World Universities Network Workshop: Data Analysis with Privacy Protection for Epidemiological Research (DAPPER). Bristol, August 2016 - a Satellite workshop of International Population Data Linkage Conference, Swansea, Wales. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | I led the workshop and gave two lectures. The workshop focused on the importance and challenges associated with largescale sharing and co-analysis of biomedical/health/social data - particularly data that might be classified as sensitive. This pushed forward international discussion of a number of strategies for taking forward new approaches (including governance) and tools for managing, sharing and co-analysing sensitive data in the biomedical, health and social sciences The workshop has catalysed a follow-up workshop in the coming year. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.wun.ac.uk/wun/research/view/dapper-data-analysis-with-privacy-protection-for-epidemiologi... |