UK Health Informatics Research Network
Lead Research Organisation:
University of Dundee
Department Name: Div of Cardiovascular&Diabetes Medicine
Abstract
The primary aim of the UK Health Informatics Research Network ("Network") is to strengthen the UK's capability in health informatics research. It will achieve this by building inclusive partnerships, promoting co-ordination of key activities and acting as a signpost of best practice both in the UK and internationally.
The Network will be led by the Farr Institute of Health Informatics Research ("Farr Institute") which is comprised of four nodes distributed across the UK and led from the University College London, University of Manchester, Swansea University, and the University of Dundee. In total the Farr Institute involves 24 UK academic institutions and two MRC units with expertise in health informatics research. It aims to deliver high-quality, cutting-edge research linking electronic health data with other forms of research and routinely collected data, as well as building capacity in health informatics research.
The Network will be inclusive and harness expertise in the wider UK and where appropriate international research community; develop methodologies; share best practice; provide a central route for collaborating with industry, the NHS and policy; and engage with the public to promote wider debate about the use of health records in research. It will act as an open and dynamic forum to promote outstanding research. The Network and Farr Institute are not responsible for providing data, but will work with the data providers within the NHS, academia, industry and across the public sector to share and develop methodological approaches to using the data and sharing best practice. Together the Network and the Farr Institute aim to transform the landscape of health informatics in ways that will lead to significant health and economic benefits for the UK.
In order to build the UK's capability in health informatics research, the UK Health Informatics Research Network will promote wide participation. Membership is open to all academic, government, NHS, public and private sector researchers and other professionals with an interest in health informatics from bona fide organisations. This will include colleagues from across all sectors who are involved in the provision, collection, analysis, management, control, and promotion of health and health-related data for approved research purposes. These individuals include, but are not limited to, computer scientists, software engineers, statisticians, healthcare providers, clinicians, ethicists, bio-informaticians, social scientists, and regulators. The objective of the Network is to make a significant global impact in seven key areas:
? Promoting cutting-edge inter-disciplinary research at scale
? Providing an interface to promote collaboration between academia, industry and the NHS
? Developing methodologies for the linkage and analysis of large data sets
? Developing standards and best practice for interoperability across health and non-health related data sets
? Coordinating training and career development opportunities
? Developing dynamic and sustained ways of engaging with the public
? Developing a coherent vision of health informatics research in the UK supporting the knowledge economy in a global context.
The Network will be led by the Farr Institute of Health Informatics Research ("Farr Institute") which is comprised of four nodes distributed across the UK and led from the University College London, University of Manchester, Swansea University, and the University of Dundee. In total the Farr Institute involves 24 UK academic institutions and two MRC units with expertise in health informatics research. It aims to deliver high-quality, cutting-edge research linking electronic health data with other forms of research and routinely collected data, as well as building capacity in health informatics research.
The Network will be inclusive and harness expertise in the wider UK and where appropriate international research community; develop methodologies; share best practice; provide a central route for collaborating with industry, the NHS and policy; and engage with the public to promote wider debate about the use of health records in research. It will act as an open and dynamic forum to promote outstanding research. The Network and Farr Institute are not responsible for providing data, but will work with the data providers within the NHS, academia, industry and across the public sector to share and develop methodological approaches to using the data and sharing best practice. Together the Network and the Farr Institute aim to transform the landscape of health informatics in ways that will lead to significant health and economic benefits for the UK.
In order to build the UK's capability in health informatics research, the UK Health Informatics Research Network will promote wide participation. Membership is open to all academic, government, NHS, public and private sector researchers and other professionals with an interest in health informatics from bona fide organisations. This will include colleagues from across all sectors who are involved in the provision, collection, analysis, management, control, and promotion of health and health-related data for approved research purposes. These individuals include, but are not limited to, computer scientists, software engineers, statisticians, healthcare providers, clinicians, ethicists, bio-informaticians, social scientists, and regulators. The objective of the Network is to make a significant global impact in seven key areas:
? Promoting cutting-edge inter-disciplinary research at scale
? Providing an interface to promote collaboration between academia, industry and the NHS
? Developing methodologies for the linkage and analysis of large data sets
? Developing standards and best practice for interoperability across health and non-health related data sets
? Coordinating training and career development opportunities
? Developing dynamic and sustained ways of engaging with the public
? Developing a coherent vision of health informatics research in the UK supporting the knowledge economy in a global context.
Technical Summary
The primary aim of the UK Health Informatics Research Network ("Network") is to strengthen the UK's capability in health informatics research. It will achieve this by building inclusive partnerships, promoting co-ordination of key activities and acting as a signpost of best practice both in the UK and internationally.
The Network will be led by the Farr Institute of Health Informatics Research ("Farr Institute") which is comprised of four nodes distributed across the UK and led from the University College London, University of Manchester, Swansea University, and the University of Dundee. In total the Farr Institute involves 24 UK academic institutions and two MRC units with expertise in health informatics research. It aims to deliver high-quality, cutting-edge research linking electronic health data with other forms of research and routinely collected data, as well as building capacity in health informatics research.
The Network will be inclusive and harness expertise in the wider UK and where appropriate international research community; develop methodologies; share best practice; provide a central route for collaborating with industry, the NHS and policy; and engage with the public to promote wider debate about the use of health records in research. It will act as an open and dynamic forum to promote outstanding research. The Network and Farr Institute are not responsible for providing data, but will work with the data providers within the NHS, academia, industry and across the public sector to share and develop methodological approaches to using the data and sharing best practice. Together the Network and the Farr Institute aim to transform the landscape of health informatics in ways that will lead to significant health and economic benefits for the UK.
In order to build the UK's capability in health informatics research, the UK Health Informatics Research Network will promote wide participation. Membership is open to all academic, government, NHS, public and private sector researchers and other professionals with an interest in health informatics from bona fide organisations. This will include colleagues from across all sectors who are involved in the provision, collection, analysis, management, control, and promotion of health and health-related data for approved research purposes. These individuals include, but are not limited to, computer scientists, software engineers, statisticians, healthcare providers, clinicians, ethicists, bio-informaticians, social scientists, and regulators. The objective of the Network is to make a significant global impact in seven key areas:
? Promoting cutting-edge inter-disciplinary research at scale
? Providing an interface to promote collaboration between academia, industry and the NHS
? Developing methodologies for the linkage and analysis of large data sets
? Developing standards and best practice for interoperability across health and non-health related data sets
? Coordinating training and career development opportunities
? Developing dynamic and sustained ways of engaging with the public
? Developing a coherent vision of health informatics research in the UK supporting the knowledge economy in a global context.
The Network will be led by the Farr Institute of Health Informatics Research ("Farr Institute") which is comprised of four nodes distributed across the UK and led from the University College London, University of Manchester, Swansea University, and the University of Dundee. In total the Farr Institute involves 24 UK academic institutions and two MRC units with expertise in health informatics research. It aims to deliver high-quality, cutting-edge research linking electronic health data with other forms of research and routinely collected data, as well as building capacity in health informatics research.
The Network will be inclusive and harness expertise in the wider UK and where appropriate international research community; develop methodologies; share best practice; provide a central route for collaborating with industry, the NHS and policy; and engage with the public to promote wider debate about the use of health records in research. It will act as an open and dynamic forum to promote outstanding research. The Network and Farr Institute are not responsible for providing data, but will work with the data providers within the NHS, academia, industry and across the public sector to share and develop methodological approaches to using the data and sharing best practice. Together the Network and the Farr Institute aim to transform the landscape of health informatics in ways that will lead to significant health and economic benefits for the UK.
In order to build the UK's capability in health informatics research, the UK Health Informatics Research Network will promote wide participation. Membership is open to all academic, government, NHS, public and private sector researchers and other professionals with an interest in health informatics from bona fide organisations. This will include colleagues from across all sectors who are involved in the provision, collection, analysis, management, control, and promotion of health and health-related data for approved research purposes. These individuals include, but are not limited to, computer scientists, software engineers, statisticians, healthcare providers, clinicians, ethicists, bio-informaticians, social scientists, and regulators. The objective of the Network is to make a significant global impact in seven key areas:
? Promoting cutting-edge inter-disciplinary research at scale
? Providing an interface to promote collaboration between academia, industry and the NHS
? Developing methodologies for the linkage and analysis of large data sets
? Developing standards and best practice for interoperability across health and non-health related data sets
? Coordinating training and career development opportunities
? Developing dynamic and sustained ways of engaging with the public
? Developing a coherent vision of health informatics research in the UK supporting the knowledge economy in a global context.
Organisations
- University of Dundee (Lead Research Organisation)
- Alan Turing Institute (Collaboration)
- Farr Institute of Health Informatics Research (Collaboration)
- Wellcome Trust (Collaboration)
- UK and Scottish Renal Registries (Collaboration)
- Institute of Clinical and Evaluative Sciences (ICES) (Collaboration)
- Association of the British Pharmaceutical Industry (Collaboration)
- UK Renal Data Collaboration (Collaboration)
- MQ Mental Health Research (Collaboration)
Publications
Abraham M
(2017)
A systematic review of maternal smoking during pregnancy and fetal measurements with meta-analysis.
in PloS one
Al Sallakh MA
(2017)
Defining asthma and assessing asthma outcomes using electronic health record data: a systematic scoping review.
in The European respiratory journal
Aucott L
(2017)
Differences in Body Mass Index between Siblings Who Are Discordant for Exposure to Antenatal Maternal Smoking.
in Paediatric and perinatal epidemiology
Babl FE
(2017)
Bell's Palsy in Children (BellPIC): protocol for a multicentre, placebo-controlled randomized trial.
in BMC pediatrics
Bates DW
(2017)
Innovative Environments In Health Care: Where And How New Approaches To Care Are Succeeding.
in Health affairs (Project Hope)
Bhattacharya S
(2016)
Maternal gestational weight gain and offspring's risk of cardiovascular disease and mortality.
in Heart (British Cardiac Society)
Busby J
(2017)
The effect of medications which cause inflammation of the gastro-oesophageal tract on cancer risk: a nested case-control study of routine Scottish data.
in International journal of cancer
Chapko D
(2018)
Life-course determinants of cognitive reserve (CR) in cognitive aging and dementia - a systematic literature review.
in Aging & mental health
Clemens T
(2017)
Living in stressful neighbourhoods during pregnancy: an observational study of crime rates and birth outcomes.
in European journal of public health
Conklin AI
(2018)
Economic policy and the double burden of malnutrition: cross-national longitudinal analysis of minimum wage and women's underweight and obesity.
in Public health nutrition
Cresswell K
(2017)
Creating a climate that catalyses healthcare innovation in the United Kingdom - learning lessons from international innovators.
in Journal of innovation in health informatics
Dibben C
(2015)
Place of work and residential exposure to ambient air pollution and birth outcomes in Scotland, using geographically fine pollution climate mapping estimates.
in Environmental research
Elseviers
(2016)
Drug Utilization Research: Methods and Applications
Faber T
(2017)
Effect of tobacco control policies on perinatal and child health: a systematic review and meta-analysis.
in The Lancet. Public health
Farran B
(2017)
Modelling cumulative exposure for inference about drug effects in observational studies.
in Pharmacoepidemiology and drug safety
Ferkh KE
(2017)
Healthcare costs of asthma comorbidities: a systematic review protocol.
in BMJ open
Fitton CA
(2017)
In-utero exposure to antihypertensive medication and neonatal and child health outcomes: a systematic review.
in Journal of hypertension
Flannick J
(2017)
Sequence data and association statistics from 12,940 type 2 diabetes cases and controls.
in Scientific data
Fleming M
(2017)
Educational and Health Outcomes of Children Treated for Attention-Deficit/Hyperactivity Disorder.
in JAMA pediatrics
Francis NA
(2017)
Oral and Topical Antibiotics for Clinically Infected Eczema in Children: A Pragmatic Randomized Controlled Trial in Ambulatory Care.
in Annals of family medicine
Goodrich JK
(2021)
Determinants of penetrance and variable expressivity in monogenic metabolic conditions across 77,184 exomes.
in Nature communications
| Title | #datasaveslives |
| Description | A video shot at The Farr Institute conference in 2015. Captures researchers talking about why use of routinely collected administrative data for health and health care research improves the populations health and care. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | Ability to positively promote use of administrative data linkage to the publics at meetings and through social media. |
| URL | https://www.youtube.com/watch?v=jWfuPTmUti4 |
| Title | PhD Student videos |
| Description | The students attending the Farr Institute PhD Symposium in 2015 were asked to record 2 minute videos to explain their research and aspirations. Collected for viewing on the Farr Institute youtube channel. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2015 |
| Impact | Ability to advertise the research of the Farr Institute to professionals and the publics. |
| URL | https://www.youtube.com/watch?v=Iea7wqW_mWs&list=PLVzvg5mhXh5PmbJDKjL-4gAhqS11f1z-q |
| Description | AMS Academic Careers Committee presentation |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | AMS Team Science |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | https://acmedsci.ac.uk/publications/working-group-and-taskforce-reports |
| Description | AMS Team Science Working Group |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | http://www.acmedsci.ac.uk/more/news/collaborating-on-large-science-projects-must-not-harm-careers/ |
| Description | Advice to Jo Churchill MP, Private members bill on NDG |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| URL | http://services.parliament.uk/bills/2016-17/healthandsocialcarenationaldataguardian.html |
| Description | Chair of Privacy and Security Task team- GA4GH |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Membership of a guideline committee |
| URL | https://genomicsandhealth.org/work-products-demonstration-projects/privacy-and-security-policy |
| Description | Co-Lead Clinical working Group- GA4GH |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Membership of a guideline committee |
| URL | https://genomicsandhealth.org/working-groups/clinical-working-group |
| Description | Contribution to NCOB Report-The collection, linking and use of data in biomedical research and health care: ethical issues |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | http://nuffieldbioethics.org/project/biological-health-data/ |
| Description | Decision-making matrix for organisations to assess readiness for data sharing |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| URL | https://www.youtube.com/watch?v=9H1wpoAwmZc&list=PLbqYbaI1ml7RV3ZzsYzSCxcL1mD5X0Ai5&index=4 |
| Description | Dept Health Consultation- The role of the National Data Guardian for health and social care |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.gov.uk/government/consultations/the-role-of-the-national-data-guardian-for-health-and-so... |
| Description | EMIF consortium report on legal and technical frameworks for record linkage |
| Geographic Reach | Europe |
| Policy Influence Type | Membership of a guideline committee |
| Description | EU Data Protection Regulation |
| Geographic Reach | Europe |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | The Farr Institute Directors were signatories to a letter organised by CRUK and the Wellcome Trust to the Institutions of the EU to bring attention to the effect the proposed new wording in the EU data protection act would have on scientific research. In the end the European Parliament, Council of Ministers and the European Commission agreed a compromise text on the Data Protection Regulation. This will help to ensure genuine scientific research with health data can continue, subject to safeguards that will ensure individuals' data are used safely and securely. |
| URL | http://www.datasaveslives.eu/ |
| Description | Expert Review panel member- ESRC Resaerch ethics framework |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| URL | http://www.esrc.ac.uk/funding/guidance-for-applicants/research-ethics/ |
| Description | Expert panel member for Council Canadian Academies |
| Geographic Reach | North America |
| Policy Influence Type | Membership of a guideline committee |
| URL | http://www.scienceadvice.ca/en/assessments/completed/health-data.aspx |
| Description | Guangdong Province FAO |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Description | Guangdong Province FAO return visit |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Description | Guangdong Province Party Secretary visit |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Description | HSCIC 5 year Strategy |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | As part of this national consultation and ongoing discussions between the Farr Institute, HSCIC and other bodies, who wish to maximise the value and benefits that the health and social data can provide, the environment for governance is slowly improving to facilitate the timely access to HSCIC held data for researchers. |
| URL | https://www.gov.uk/government/publications/hscic-strategy-2015-20 |
| Description | Health Data Research UK, the Academy of Medical Sciences and the Collaboration for the Advancement of Sustainable Medical Innovation (CASMI. "Realising patient and NHS benefits from health and care data - from policy to practice" (A report on the meeting held on 22nd January 2020 at the Academy of Medical Sciences) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Health Data Research UK, the Academy of Medical Sciences and the Collaboration for the Advancement of Sustainable Medical Innovation (CASMI. "Realising patient and NHS benefits from health and care data - from policy to practice" (A report on the meeting held on 22nd January 2020 at the Academy of Medical Sciences. |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | House of Commons Big Data Dilemma |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | http://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-co... |
| Description | Information Commissioner's Office Triennial Review |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://consult.justice.gov.uk/digital-communications/ico-triennial-review |
| Description | Irish Health Board Data Sharing model |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | http://www.hrb.ie/uploads/tx_hrbpublications/Proposals_for_an_Enabling_Data_Environment_for_Health_a... |
| Description | Led commission report for NCOB and Wellcome Trust- |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| URL | http://nuffieldbioethics.org/wp-content/uploads/FINAL-Report-on-Harms-Arising-from-Use-of-Health-and... |
| Description | Members of eHealth Task Team- GA4GH |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Membership of a guideline committee |
| URL | https://genomicsandhealth.org/working-groups/our-work/ehealth |
| Description | Nuffield Council on Bioethics endorsement of Proportionate Governance approaches of Farr Institute |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | Adoption of SHIP blueprint in Scotland has allowed academics, NHS and government to demonstrate how use of the principals facilitates the use of health data linkage to provide evidence to support and evaluate health care and management policy implementation. The successful demonstration of these principals in action is influencing the governance and development with the public of data sharing and linkage principals in the rest of the UK and other countries such as Canada and Australia. |
| URL | http://nuffieldbioethics.org/project/biological-health-data/ |
| Description | Research Project Supervision for 12 MPH students since 2013 |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Each year since 2013, three or four graduating MPH students from the University of Edinburgh's on-campus MPH programme have selected SCPHRP as the venue for conducting their three-month MPH research project, under the active supervision of SCPHRP Fellows and staff. While they are based with us, they also become familiar with how SCPHRP works with its policy and practice stakeholders to move its research into action. This contributes to the research and knowledge transfer skills of these graduates - many of them from abroad -- who are joining the international public health professional workforce. All our student evaluations of their project time with us have been very positive. |
| Description | Baily Thomas Foundation |
| Amount | £109,310 (GBP) |
| Organisation | Baily Thomas Charitable Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | British Council Iran SEED funding |
| Amount | £5,000 (GBP) |
| Organisation | British Council |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | DETECT CANCER EARLY PROGRAMME |
| Amount | £80,000 (GBP) |
| Organisation | NHS Grampian |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2019 |
| Description | DEVELOPMENT TRUST |
| Amount | £5,000 (GBP) |
| Organisation | University of Aberdeen |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2018 |
| Description | DOES PLACE OF RESIDENCE, DISTANCE AND TRAVELLING TIMES FROM HEALTH SERVICES WITHIN NORTH-EAST SCOTLAND INFLUENCE THE DIAGNOSTIC PATHWAY AND OUTCOMES FROM EIGHT COMMON CANCERS: ANALYSIS OF A LINKED DATASET |
| Amount | £137,669 (GBP) |
| Organisation | Cancer Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2016 |
| End | 10/2018 |
| Description | Dementia Global Challenge |
| Amount | £9,980 (GBP) |
| Organisation | Government of Scotland |
| Department | Scottish Funding Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2017 |
| End | 04/2018 |
| Description | EMA - Diclofenac pharmacovigilance Study |
| Amount | € 198,854 (EUR) |
| Organisation | European Medicines Agency |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2017 |
| End | 12/2018 |
| Description | EMA - Hydroxyzine pharmacovigilance study |
| Amount | € 199,384 (EUR) |
| Organisation | European Medicines Agency |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 12/2019 |
| Description | FAMILIAL HYPERCHOLESTEROLAEMIA |
| Amount | £840,509 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2020 |
| Description | Fast-tracking Health Innovation for NHS Scotland (MRC Confidence in Concept 2017) / R170262-104 |
| Amount | £37,063 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 02/2019 |
| Description | Gates Foundation ICODA including Grand Challenges |
| Amount | $4,576,000 (USD) |
| Funding ID | 197296/33701 |
| Organisation | Bill and Melinda Gates Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 06/2020 |
| End | 10/2022 |
| Description | Global Challenges Research Fund Networking Grant |
| Amount | £24,956 (GBP) |
| Organisation | Academy of Medical Sciences (AMS) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 02/2019 |
| Description | Higher network assurance / AAAI project |
| Amount | £1,038,000 (GBP) |
| Organisation | Jisc |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | MODELLING LIFE-COURSE DETERMINANTS OF COGNITIVE RESILIENCE USING ROUTINELY COLLECTED AND COHORT DATA. |
| Amount | £79,922 (GBP) |
| Organisation | Roland Sutton Academic Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 11/2018 |
| Description | NHS GRAMPIAN PUBLIC HEALTH |
| Amount | £36,000 (GBP) |
| Organisation | NHS Grampian |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2017 |
| End | 10/2018 |
| Description | NHS Grampian R&D Pump Priming |
| Amount | £23,502 (GBP) |
| Organisation | NHS Grampian |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 02/2019 |
| Description | Phase 1 COVID-19 Data and Connectivity - National Core Study (Phase 1 D&C-NCS) |
| Amount | £15,150,000 (GBP) |
| Funding ID | MC_PC_20058 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2021 |
| End | 09/2022 |
| Description | Roland Sutton Academic Trust |
| Amount | £40,599 (GBP) |
| Organisation | Roland Sutton Academic Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2018 |
| Description | Rutherford Fund Fellowship at HDR UK: Risk Prediction in Pharmacoepidemiology |
| Amount | £300,466 (GBP) |
| Funding ID | MR/S003967/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2018 |
| End | 02/2021 |
| Description | SPOR Innovative Clinical Trial Multi-Year Grant |
| Amount | $1,065,001 (CAD) |
| Organisation | Canadian Institutes of Health Research |
| Sector | Public |
| Country | Canada |
| Start | 07/2017 |
| End | 06/2021 |
| Description | SULSA Pooling Network |
| Amount | £4,850 (GBP) |
| Organisation | Scottish Universities Life Sciences Alliance |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 10/2017 |
| End | 09/2018 |
| Description | SYMPTOMS ASSOCIATED WITH CANCER [Prof P Hannford] |
| Amount | £415,272 (GBP) |
| Organisation | Cancer Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2017 |
| Description | Scottish School of Primary Care/Scottish Government |
| Amount | £120,000 (GBP) |
| Organisation | Government of Scotland |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2017 |
| End | 06/2018 |
| Description | Sustainable health interventions to tackle the emerging threat of antimicrobial resistance (Newton Funds Institutional Links) |
| Amount | £99,909 (GBP) |
| Organisation | British Council |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | The HDRUK/Turing Wellcome PhD Programme in Health Data Science |
| Amount | £6,005,246 (GBP) |
| Funding ID | 218529/Z/19/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2020 |
| End | 06/2028 |
| Description | The Heath Foundation: Better Care Programme |
| Amount | £500,000 (GBP) |
| Funding ID | 849322 |
| Organisation | The Health Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2019 |
| End | 03/2022 |
| Description | UKRI trusted and connected Data and Analytics Research Environments, Phase 1 |
| Amount | £1,062,754 (GBP) |
| Funding ID | MC_PC_21005 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2021 |
| End | 08/2022 |
| Description | Wellcome Trust/University of Edinburgh ISSF3 Citizen's Jury on use of Guthrie Cards for Research Purposes |
| Amount | £40,000 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2017 |
| End | 03/2018 |
| Title | Jisc Safe share |
| Description | The project will inform decisions on a potential Jisc national infrastructure for secure access to data for researchers across various academic disciplines. We are also piloting an authentication, authorisation and accounting infrastructure (AAAI) to demonstrate how our access and identity management services can be used to control access to sensitive data. Controlled access will further enhance the UK's research capacity in areas such as medical, clinical, health and the social sciences. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | -A coordinated partnership to help support UK research into disease, public health and social issues -Improved knowledge and a scalable solution providing benefits for other members of the community -Reduced duplication of effort and avoidance of potential competing, incompatible solutions in different research centres -Support for Research Councils UK (RCUK) and government strategies for research with sensitive data Swansea University and Cardiff University are the first to complete trialling the new infrastructure. |
| URL | https://www.jisc.ac.uk/rd/projects/safe-share |
| Title | Supporting data for "An extensible big data software architecture managing a research resource of real-world clinical radiology data linked to other health data from the whole Scottish population" |
| Description | To enable a world-leading research dataset of routinely collected clinical images linked to other routinely collected data from the whole Scottish National population. This includes 30 million different radiological examinations from a population of 5.4 million and over 2 petabytes of data collected since 2010. Scotland has a central archive of radiological data used to directly provide clinical care to patients. We have developed an architecture and platform to securely extract a copy of that d |
| Type Of Material | Database/Collection of data |
| Year Produced | 2020 |
| Provided To Others? | Yes |
| URL | http://gigadb.org/dataset/100780 |
| Title | The Scottish National Prescribing Information System (PIS) |
| Description | PIS provides summary information on reimbursed medicines from 1993, and individual prescribing and dispensing data since 2009 with the incorporation of the Community Health Index (CHI) number, |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | The data in PIS is used to enhance decisions about Scottish healthcare to improve the health of the people of Scotland. Several studies using PIS have already been published, for example: Use of antimicrobials and the risk of acquiring a healthcare associated infection Use of direct oral anticoagulants in patients with atrial fibrillation Factors influencing the prescribing of antidepressants The burden of irritable bowel syndrome Enhancing prescribing efficiency in Europe |
| URL | http://www.isdscotland.org/Products-and-Services/eDRIS/ |
| Description | Alan Turing Institute- Synthetic Datasets |
| Organisation | Alan Turing Institute |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | The Farr Network is contributing £50,000 to fund a joint research project with ATi. The first goal of the FASHIN project is to develop techniques that will provide more automation in running queries over The Farr Institute infrastructure. Secondly, it aims at reducing the amount of computational resources from The Farr Institute infrastructure required to run experiments, by shipping part of the execution to third-party infrastructure. A final goal is to identify subsets of the NHS data that could be made available to the public without compromising privacy. The algorithms that will be developed will be implemented in a prototype and demoed using data from NHS and query workloads from The Farr Institute. |
| Collaborator Contribution | The Alan Turing Institute will provide £50,000 and a research fellow to provide the computer science and mathematical expertise required for successful completion of the project. |
| Impact | n/a yet |
| Start Year | 2016 |
| Description | Kidney Disease @ Farr |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research. |
| Collaborator Contribution | Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration |
| Impact | So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. |
| Start Year | 2015 |
| Description | Kidney Disease @ Farr |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research. |
| Collaborator Contribution | Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration |
| Impact | So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. |
| Start Year | 2015 |
| Description | Kidney Disease @ Farr |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research. |
| Collaborator Contribution | Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration |
| Impact | So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. |
| Start Year | 2015 |
| Description | Kidney Disease @ Farr |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research. |
| Collaborator Contribution | Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration |
| Impact | So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. |
| Start Year | 2015 |
| Description | Kidney Disease @ Farr |
| Organisation | UK Renal Data Collaboration |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research. |
| Collaborator Contribution | Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration |
| Impact | So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. |
| Start Year | 2015 |
| Description | Kidney Disease @ Farr |
| Organisation | UK and Scottish Renal Registries |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research. |
| Collaborator Contribution | Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration |
| Impact | So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. |
| Start Year | 2015 |
| Description | MOU with ABPI |
| Organisation | Association of the British Pharmaceutical Industry |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | In 2014 the Farr Institute and the ABPI jointly hosted the Farr Industry Forum. A significant output of this event was signing of an MOU and closer involvement between Farr and ABPI in contributing to each others meetings through the year. |
| Collaborator Contribution | In 2014 the Farr Institute and the ABPI jointly hosted the Farr Industry Forum. A significant output of this event was signing of an MOU and closer involvement between Farr and ABPI in contributing to each others meetings through the year. |
| Impact | Increase in Farr members participation in ABPI roundtable events- providing expert opinion and opportunity to influence policy |
| Start Year | 2015 |
| Description | MQ Transforming mental health through research |
| Organisation | MQ Mental Health Research |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The Farr Institute have hosted and participated in one day conferences hosted in Edinburgh and Swansea to facilitate the use of linked administrative data in mental health research |
| Collaborator Contribution | Joint Meeting organisers |
| Impact | Meetings in Edinburgh http://www.farrinstitute.org/events-courses/event/mental-health-research-in-the-digital-age and Swansea. |
| Start Year | 2016 |
| Description | Memorandum of Understanding between The Farr Institute and ICES, Ontario |
| Organisation | Institute of Clinical and Evaluative Sciences (ICES) |
| Country | Canada |
| Sector | Academic/University |
| PI Contribution | The ICES-Farr MOU is a non-binding agreement that outlines the intent of the Farr Institute, Farr UK, and ICES to share information and work collaboratively, with a focus on five areas: • Capacity Building • Methodology, Data Science and Research • Public Engagement Research • Governance, Policies and Procedures • Research Exemplars |
| Collaborator Contribution | Working Group consisting of 10 members from across The Farr and ICES has been created to operationalize the MoU. Research outcomes and best practice in the theme of Public Engagement and Involvement in research have been shared. ICES invited to an international workshop on this subject organised by the Farr team for 27th April 2017. Existing research collaborations on the theme of maternal and child health between Astrid Guttmann (ICES) and Ruth Gilbert (The Farr) |
| Impact | None as yet |
| Start Year | 2016 |
| Description | Understanding Patient Data |
| Organisation | Wellcome Trust |
| Department | Understanding Patient Data |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Farr Network Communications manager is a member of the task force and has advised on the collation and data base to present case studies. Contributed the Farr collection of '100 Ways of using data to make life better' case studies. |
| Collaborator Contribution | Farr Institute will have access to materials and best practice collected through the task force. |
| Impact | A database of case studies contributed by research organisations and charities. |
| Start Year | 2016 |
| Description | #datasaveslives |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | #datasaveslives is a public engagement campaign initiated by the Farr Institute Centre HeRC and now promoted across the Farr Institute UK. in 2015 the campaign was mostly promoted through Twitter with participants encouraged to tweet pictures of themselves holding a placard with #datasaveslives or linking the hashtag to news stories and publications promoting the use of data in research. Going forward the campaign will be used to collect case studies and testimonials in both written and video format to promote the use of health data and data linkage for public health research. https://vimeo.com/147327770 |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.herc.ac.uk/get-involved/data-saves-lives/ |
| Description | 'Big Data/AI Symposium' at Pharmacology 2018, QEII Westminster |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Big data and dementia: joining up the dots' at DPUK Conference, British Medical Association, BMA House, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Big data and the future of medicine: hope or hype' at event called 'Evolving Concepts in Anti-Thrombotic Treatment: Prevention, Prediction, Pharmacotherapy and Personalised Medicine', RCP |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Gearing an entire country for Heath Data Science Research' at University of Dundee Medical School Seminar, Ninewells Hospital, Dundee |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'HDR UK - a national programme of health data science' at Genome's BC Annual Genomics Forum 2018 UBC, Vancouver, Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'HDR UK: the role of HDR UK and partnering with charities' at AMRC CEO Summit & Dinner, Wallacespace, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Health and Data Science' at Asthma UK Data & Digital Frontiers Event, Friend's House, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'How can NICE support clinicians and managers in preparing for the new wave of care?' at the NICE Annual Conference, Manchester |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Medicine in the Information Age' at Festival of Genomics, ExCEL Centre, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Options and opportunities for Health Data Research UK', Faculty of Medicine's Annual Wade Lecture 2018, University of Southampton |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Options and opportunities for Health Data Science' at the Wellcome Genome Campus Distinguished Lecture, Cambridge |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'QMUL and KCL Life Sciences, East London, Communities and Collaboration' at East London Genes & Health Life Science Industry Workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 1st International Common Disease Alliance Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 1st International Common Disease Alliance Meeting Washington DC Session 4: Health Data Research-UK |
| Year(s) Of Engagement Activity | 2019 |
| Description | 2019 University of Leicester Clinical Sciences Lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 2019 University of Leicester Clinical Sciences Lecture University of Leicester. Health Data Research UK (HDR UK): Options and Opportunities for Health Data Science. |
| Year(s) Of Engagement Activity | 2019 |
| Description | ABPI Annual Conference. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ABPI Annual Conference. 155 Bishopsgate London Session: A focus on data, transforming UK research/Keynote: "A road map for the future". |
| Year(s) Of Engagement Activity | 2019 |
| Description | ADEGS annual conference on 'Academic Primary Care in the Information Age', University of St Andrews |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | AMS/HDRUK/CASMI/DIT January 2020 meeting: Realising the value of healthcare data from policy to practice |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | AMS/HDRUK/CASMI/DIT January 2020 meeting: Realising the value of healthcare data from policy to practice Academy of Medical Sciences, London |
| Year(s) Of Engagement Activity | 2020 |
| Description | AMS/MRC/NIHR roundtable on 'Artificial intelligence and health' |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | AMS/MRC/NIHR roundtable on 'Artificial intelligence and health'. Academy of Medical Sciences |
| Year(s) Of Engagement Activity | 2019 |
| Description | APPG Medical Research event July 12th |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Forum to allow charities and researchers to meet politicians to explain benefits of using administrative data in health and health care research. After event follow up communications providing papers and policy documents to MPs and members of house of Lrds we met at the event. Jo Churchill MP has adopted #datasaveslives campaign to support her private members bill. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Attitudes to data linkage in the UK and Sweden |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | This was a Seminar given at the Higher Series of the Centre for Research Ethics & Bioethics (CRB) at the University of Uppsala, Sweden |
| Year(s) Of Engagement Activity | 2017 |
| Description | BioData World Congress 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Farr Network Manager and Research Partnership and Industry engagement officers hosted an exhibition stand to promote the Farr Institute. Signed up new people to mailing list, established contacts in other organisations which have lead to follow up activities. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.terrapinn.com/conference/biodata/index.stm |
| Description | Cambridge Bradford Hill Series Seminar, Cambridge |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | Chair Scottish Government COVID-19 CMO Advisory Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | N/A |
| Year(s) Of Engagement Activity | 2020,2021,2022 |
| Description | Chair Scottish Government Committee Pandemic Preparedness |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | N/A |
| Year(s) Of Engagement Activity | 2022 |
| Description | DeMEC |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | DeMEC Manchester Central Conference Centre Petersfield Manchester Medical Education in the 4th Industrial Revolution |
| Year(s) Of Engagement Activity | 2019 |
| Description | Developing WHO Guidance on Ethics & Governance of Artificial Intelligence (AI) in Health |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing WHO Guidance on Ethics & Governance of Artificial Intelligence (AI) in Health Geneva, Switzerland |
| Year(s) Of Engagement Activity | 2019 |
| Description | Diabetes UK - UK Diabetes Data Hub workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Diabetes UK - UK Diabetes Data Hub workshop London |
| Year(s) Of Engagement Activity | 2020 |
| Description | Digital Health Assembly Open innovation Conference, Cardiff |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | 359 thought leaders and practitioners from the Digital Health and Open Innovation fields from the industry, NHS, government and academics from the UK and overseas (USA, Europe and Asia). Conference themes: Big Data;Empowering Patients and Staff;Innovative Business Model Impact: new partnerships created, knowledge exchange across business, academia and public bodies. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.digitalhealthassembly.com/ |
| Description | Drawing on data to transform lives: improving services for vulnerable adolescents |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Members of the Farr Institute communications attended to talk about The Farr research and to promote the '100 Ways' case study project |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.eventbrite.co.uk/e/drawing-on-data-to-transform-lives-improving-services-for-adolescents... |
| Description | Edinburgh Diabetes Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Edinburgh Diabetes Day Queens Medical Research Institute, Little France, Edinburgh |
| Year(s) Of Engagement Activity | 2020 |
| Description | EuroMedlab 2019 Barcelona. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | EuroMedlab 2019 Barcelona. CCIB - Centre Convencions Internacional de Barcelona. Session: How Big Data can impact on patient care - Title of Talk: "HDR UK: Options and Opportunities for Health Data Science" |
| Year(s) Of Engagement Activity | 2019 |
| Description | Farr Institute Inaugural lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talks provided ideas, lessons learnt and inspiration for Farr Researchers to incorporate into their own research. n/a |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.farrinstitute.org/200_Farr-Institute-And-UK-HIRN-Meeting-Reports.html |
| Description | Farr Institute Industry Forum 2014 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | In December 2014 the Farr Institute partnered with the ABPI to host the Farr Industry Forum 2014. The aim of the forum was to explore the models by which the Farr Institute and the pharmaceutical industry can work together. The Forum sought to identify: Shared research interests; Methodology challenges which require partnership to solve; Training needs and standardisation in the pharmaceutical industry that can be met by the Farr Institute. Themes were; Real world evidence; Trials - pragmatic and stratified medicine; Capacity building. Discussions and presentations explored: How different stakeholders can co-create with the Farr Institute to utilise relevant linked data sets; How to access the innovative methodologies and expertise within the Farr institute for improved analysis of datasets; The work the Farr Institute is doing to enable research with linked electronic data sets in terms of informing discussions on: a) Proportionate governance for access to data; b) Setting standards for safe havens; c) Public engagement; d) Infrastructure to enhance research collaborations. One outcome of the Forum was a signed MOU between the Farr institute and the ABPI. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Farr Institute Industry Forum 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | The Farr Institute partnered with One Nucleus to lead sessions at the Genesis 2015 Conference (London, 10th December 2015) to promote opportunities for collaboration between Industry and the Farr Institute. The sessions showcased a number of different areas including clinical trials and wearable and smart phone app technology where Farr is already partnering with Industry. The event raised the profile of the Farr Institute led to interest from a number of companies who have not previously partnered with the Farr. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.genesisconference.com/genesis-2015/ |
| Description | Farr Institute Scientific Research Forum |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshops led to researchers from across the UK sharing ideas for collaborative research in a number of topic areas. Pharmacoepidemiology and Pharmacovigilance Cardiometabolic Disease Children & Early Life e-Health Trials Methodology Infection and Vaccinations Public Engagement Computer Science and Big Data New research proposals have been written for cross-centre UK research projects. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.farrinstitute.org/200_Farr-Institute-And-UK-HIRN-Meeting-Reports.html |
| Description | Farr institute Annual PhD Symposium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | 22 PhD Students attended a 2 day symposium, June 2016. Day 1: Students presented their research Day 2: Worked in small groups of mixed-disciplines.Set problems by guest organisations and asked to provide solutions to the problems. Guest organisations were: Cerner; NHS choices; Public Health England; Patients Know Best; AstraZeneca. Some of the organisations asked to continue working with their student groups. Students improved their presentation skills and gained valuable feedback on their projects. New contacts made. |
| Year(s) Of Engagement Activity | 2008,2016 |
| Description | HETT (Healthcare Excellence Through Technology) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | HETT (Healthcare Excellence Through Technology) Excel Centre, London Identifying and overcoming the challenges to utilising patient data |
| Year(s) Of Engagement Activity | 2019 |
| Description | Health Data Science 2019 Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Wellcome Genome Campus Conference Centre, Hinxton, Cambridge. Keynote Lecture: "HDR UK: A National Institute for Health Data Science". |
| Year(s) Of Engagement Activity | 2019 |
| Description | ICDA Scientific Meeting on March 9-10, 2020 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ICDA Scientific Meeting on March 9-10, 2020 Denmark |
| Year(s) Of Engagement Activity | 2020 |
| Description | Innovative Governance Symposium at International Association of Bioethics World Congress June 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Symposium on 'Governance Interoperability in Health Research Regulation'. Series of talks by International leaders. A report is being written. |
| Year(s) Of Engagement Activity | 2016 |
| Description | International Population Data Linkage Conference 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Farr joined with IPDLN and ADRN to host international conference on data linkage based research. Created new collaborations, disseminated best practice. David Ford, Deputy Director Farr CIPHER hosted the conference and chaired the scientific programme committee. Catharine Goddard, Farr Network manger, led the abstract review and submission process. David Ford, Deputy Director Farr CIPHER hosted the conference and chaired the international scientific committee (ISC). Farr investigators Athanasios Anastasiou, Chris Dibben, Goran Nenadic and Tjeerd van Staa members of the ISC. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ipdlnconference2016.org/ |
| Description | Joint SQIL/NHS Digital Academy Development Day "Transformational Healthcare" |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Joint SQIL/NHS Digital Academy Development Day "Transformational Healthcare" Leonardo Royal Hotel London Tower Bridge Goal-orientated case study: Establishing HDR UK |
| Year(s) Of Engagement Activity | 2019 |
| Description | Joint meeting of Health and Pharmaceutical Sector Chief Officers (CMO, CDO, CNO and Directors of Pharmaceutical Policy) Health Systems for the wellbeing of people in the 2020s |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Joint meeting of Health and Pharmaceutical Sector Chief Officers (CMO, CDO, CNO and Directors of Pharmaceutical Policy) Health Systems for the wellbeing of people in the 2020s. Finlandia Hall, Mannerheimintie 13e, 00100 Helsinki, Finland. Academic perspective: How can health data science benefit regulators and HTA organisations? |
| Year(s) Of Engagement Activity | 2019 |
| Description | Medical Schools Council, Ditchley |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | Mhairi Aitken, 26th April 2017, " Discrete choice experiment on commercial use of health data" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation given at the Informatics for Health Conference, Manchester UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | Morris: Invited Speaker, Leeds Institute for Data Analytics "Data Intensive Biomedical and Health Research: July 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential Collaboration; sharing best practice |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: Academy of Medicial Sciences: Stratified, Personlaised or P4* Medicine: University of Southampton: May 2015: Application of informatvis to sudy the epidemiological and molecular aetiological basis of chronic disease |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The symposium highlighted several key challenges that remain to be addressed if the potential of P4 medicine is to be realised. These include the need to: Better incentivise and reward the development of this approach. Further integrate and share information and knowledge. Promote interdisciplinary collaboration. More closely align medical education and training to the needs of the modern healthcare system. Encourage and ensure societal acceptance of emerging technologies and approaches. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: Centre for Big Data Research in Health. Harnessing the power of big data to transform health. "Gearing an entire country for informatics and big data research. UNSW Australia, 6 May 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Sharing best practice and experiences |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: Conversation Series "Health Informatics and Big Data" Australia 8 May 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Professional engagement with interested parties. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: Data Science for Health - an Alan Turing Institute Summit, Centre for Mathematicsl Sciences, Cambridge. "The Farr Insitute: Options and Opportunities for Health Data Science in the UK" July 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to inform audience. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: Medical Schools Council: Big Data and cross border working: Oxfordshire, December 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to inform audience. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: RCUK Research Innovate Grow Conference - London, July 2015 - "The Farr Institute" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Business leaders, entrepreneurs, world-leading researchers, parliamentarians and policymakers came together at the Queen Elizabeth II Conference Centre, London for an exciting, interactive showcase event and exhibition - Research Innovate Grow. Hosted by Research Councils UK (RCUK), the UK's biggest investors in public sector research and innovation, we all considered how together we can ensure that the UK remains the best place in the world to do research, develop innovation and grow business. We were asked to talk about The Farr Institute of Health Informatics Research to inform audience of our work. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Invited Speaker: Wellcome Trust "A New Paradign for Medicine" - "Big data and digitalisation" London, Sept 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to inform audience. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Keynote: Nuffield Trust Health Policy Summit 2015: Surrey 26-27 February 2015: The impact of big data on the future of health care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A forum for health care experts to assess evidence and experience from home and abroad. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://vimeo.com/121255690 |
| Description | Morris: Keynote: The Great Festival of Creativity, the Long Museum, China 2-5 March 2015: Big Data for better health care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential International Collaboration |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Opening Address: Digital Health Assembly "Open Innovation" Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Digital health professionals from around the world united in a common goal - to accelerate developments in ehealth through Open Innovation. It focussed on the themes of Big Data, Empowering Patients and Staff and Innovative Business Models, top level global presenters shared their insights and experiences of how they are enhancing the evolution of healthcare through Open Innovation. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Morris: Opening Plenary 27th Annual Euro Meeting: DIA Paris 13-15 April 2015: Advancing Innovation to combat the gloabl burden of Disease: A call to action |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The DIA's Annual EuroMeeting is global in scope and attracts well over 3,000 professionals from more than 50 countries. It brings together professionals from the biopharmaceutical industry, contract research and service organisations, academic research centres, regulatory agencies and health ministries as well as delegates from patient organisations. This convergence affords participants the opportunity to network with professional colleagues from around the world. |
| Year(s) Of Engagement Activity | 2015 |
| Description | NHS Innovation Accelerator 2019 Launch |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | NHS Innovation Accelerator 2019 Launch. The Victory Services Association, London. Keynote speaker invitation: launch of NIA 2019. |
| Year(s) Of Engagement Activity | 2019 |
| Description | NIHR Nottingham BRC Annual Conference. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | NIHR Nottingham BRC Annual Conference. East Midlands Conference Centre, Nottingham |
| Year(s) Of Engagement Activity | 2019 |
| Description | Open Data and the importance of Confidentiality, Control and Public Benefits |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | This was the closing Keynote speech at the University of Edinburgh's Dealing with Data conference |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://media.ed.ac.uk/media/0_7172qesr |
| Description | Opening Zayed Centre for Research into Rare Diseases in Children |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Opening Zayed Centre for Research into Rare Diseases in Children. Kennedy Lecture Theatre, UCL GOS Institute of Child Health Keynote: Health Data Research UK (HDR UK): Options and Opportunities for Health Data Science |
| Year(s) Of Engagement Activity | 2019 |
| Description | OptumLabs event - data infrastructure seminar at Royal Society of Medicine, London |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | PPI&E workshop at Farr Institute International Conference 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Members of the Farr Institute public panels were invited to present to delegates at the Farr Institute International conference on the topic of patient involvement in research- setting priorities; co-designing research; co-analysing results and assessing impact. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participant UK Government SAGE |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Through the Data and Connectivity NCS, HDRUK convened weekly then fortnightly calls bringing together the national health data community to report on emerging insights and data needs. A regular report was submitted to SAGE with most recent research insights and update on health data available via the national TREs |
| Year(s) Of Engagement Activity | 2020,2021,2022 |
| Description | Patient Perspective - The Patient and Public Voice - using big data for public benefit |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was a keynote lecture as part of The International Society for Pharmacoepidemiology EuroDurg Conference 2017 |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://eurodurg2017.net/scientific-programme/ |
| Description | Personal Demographic Data Workshop - January 2020 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Personal Demographic Data Workshop - January 2020 Academy of Medical Royal Colleges, London |
| Year(s) Of Engagement Activity | 2020 |
| Description | PhD Summer School |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | The Farr Institute Capacity Building WG organised a summer school for PhD students and early career researchers as part of the IPDLN conference 2016. The students learnt 1) methodology around using open and non-standard data ( e.g. from wearables and apps) 2) communicating research to the public through the media. Student feedback that they had a better understanding of both topics and would be able to apply to their research. |
| Year(s) Of Engagement Activity | 2014,2016 |
| Description | Public benefits: a central justification and problematic dimension of health informatics |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at Informatics for Health Conference, Manchester UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | Public engagement with data science: Reflections on past experiences and future approaches. CRISP Being digital: Digital technologies and citizen-centred approaches to participation, surveillance and privacy |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | This was a workshop initiated by CRISP Being to discuss digital technologies and citizen-centred approaches to participation, surveillance and privacy |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.stir.ac.uk/management/news/events/2017/crispbeingdigitalworkshop/ |
| Description | Queensland Health's eHealth Expo Brisbane. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Queensland Health's eHealth Expo Brisbane. Brisbane Convention and Exhibition Centre. "Gearing an entire country for quality healthcare and innovation". |
| Year(s) Of Engagement Activity | 2019 |
| Description | RCPE Symposium: Futuristic Medicine |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | RCPE Symposium: Futuristic Medicine. The Royal College of Physicians of Edinburgh "Healthcare in the 4th Industrial Revolution" |
| Year(s) Of Engagement Activity | 2019 |
| Description | Rheumatology 2018 (Annual Scientific Meeting of the British Society for Rheumatology) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Rheumatology 2018 (Annual Scientific Meeting of the British Society for Rheumatology). ICC Birmingham "Healthcare in the 4th Industrial Revolution" |
| Year(s) Of Engagement Activity | 2019 |
| Description | Schools Engagement at Farr Institute International conference 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | As part of the Farr Institute International Conference 2015 a half day event was run for sixth formers attending 2 local schools. The sixth form students were all studying maths and statistics and the object of the event was to demonstrate how these skills are required within research. Students were introduced to how statistics is applied within the context of a clinical trial through a number of interactive and hands-on exercises. At the end of the event we captured on video the students learning experiences from the event. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://vimeo.com/148115522 |
| Description | The Farr Institute International Conference 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 450 health informatics researchers and associated Industry, funding and government partners attended the inaugural Farr Institute International conference, St Andrews, 26-28 August 2015. There were 275 oral and poster presentations from participants and a number of Keynote speakers from international guests.The aim of the Conference is to promote 1) Opportunities for early career researchers to meet and converse with current leaders in the field and 2) Sharing of knowledge and best practice to enable health informatics research at scale across traditional country boundaries with the objective to deliver improved health care and outcomes for populations. The conference provided opportunities to establish new networks, receive critical feedback on research, inform policy developments. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.farrinstitute.org/news/143/2015-09-02/international-ehealth-research-community-attend-the... |
| Description | The Peter Tizard lecture on 'Data science - the cornerstone of medical discovery', at Trinity Biomedical Science Institute, Trinity College Dublin |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | The UK Science and Innovation Network, the ETH Zurich and the Swiss National Science Foundation (SNF) Digital Health Research and Policy in the UK and Switzerland: Lessons from the Past, Plans for the Future |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The UK Science and Innovation Network, the ETH Zurich and the Swiss National Science Foundation (SNF) Digital Health Research and Policy in the UK and Switzerland: Lessons from the Past, Plans for the Future. ETH Zurich. "Which policy initiatives have been implemented? What other ones do we need in order to enable access and use of data for the right purpose? |
| Year(s) Of Engagement Activity | 2019 |
| Description | UK HIRN Industry Forum 2013 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interactive workshops resulting in opinions from various stakeholders. Discussions helped form forward going strategy for UK HIRN with regards to Industry Engagement. |
| Year(s) Of Engagement Activity | 2013 |
| Description | UK HIRN Innovative Governance Working Group Consultation Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | We aim to bring together data linkage researchers from across the Farr Institute and its partners, so that you, the researcher, can help us, the IG Team, understand the barriers and enablers you experience in undertaking your research. Specifically, we would like to know about your past (poor and best) experiences based on case studies, your future expectations for cross-organisational linkage and, importantly, what lessons can we learn about delivering good (cross-sectoral: health and administr To be determined |
| Year(s) Of Engagement Activity | 2014 |
| Description | UK-Japan Joint Symposium on Data-Driven Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | UK-Japan Joint Symposium on Data-Driven Health Academy of Medical Sciences, London |
| Year(s) Of Engagement Activity | 2020 |
| Description | WHO: 2nd consultation on Ethics & governance of AI, Copenhagen, 5-6 March 2020 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | WHO: 2nd consultation on Ethics & governance of AI, Copenhagen, 5-6 March 2020 Copenhagen, Denmark |
| Year(s) Of Engagement Activity | 2020 |
| Description | Workshop on "Clinical academia for the future: research Leaders and innovators" |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | Workshop on "Clinical academia for the future: research Leaders and innovators" Academy of Medical Sciences, London |
| Year(s) Of Engagement Activity | 2019 |
| Description | https://www.ed.ac.uk/centre-genomic-medicine/news-events/news-2017/debate-genome-screening-pandoras-box |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | This was presented as part of a University of Edinburgh Medical Debate: The motion of the debate was "This house believes that the UK should have whole genome screening". Professor Graeme Laurie, and Professor Sarah Cunningham-Burley, both Farr Scotland argued against the motion. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.ed.ac.uk/centre-genomic-medicine/news-events/news-2017/debate-genome-screening-pandoras-... |