Dynamic Insights for Health and Care

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

The project address the 'urban challenge' of delivering better, more cost effective healthcare in cities by enabling better resource planning based on data. It will develop a 'proof of concept' (POC) planning support solution for hospitals and health facilities using anonymised, aggregated mobile network data (extrapolated to provide insights representative of the total and segmented population in an area, including demographics, footfall and movement), together with health sector data (e.g. types of condition linked to demographics, environmental factors) and environmental data that can impact on health (weather, air pollution forecasts etc). The project will be led by O2, building on their Dynamic Insights platform, with Cambridge city and Addenbrooke's hospital providing the use case. This approach has been successfully applied in other sectors, such as retail and transport where it has enabled improvements in the nature and location of offerings based on detailed knowledge of the customer demographic. This will be the first time it has been used in the health sector. Successful demonstration of the POC (and supporting business models) will lead to commercial roll-out across the UK.

Planned Impact

The main beneficiaries from this project will be NHS A&E departments, and UK health boards

Demand on healthcare services is growing due to changing demographics (ageing population, migration to cities, movement of people within and between cities for work/social reasons etc). Combined with public spending limits this is leading to stresses on health and care services. Healthcare providers have only limited ability to predict peaks in demand at services such as A&E, GP surgeries etc. This leads to resourcing difficulties, bottle-necks, delays and increased costs. The situation could be partly addressed through improved planning, such as the ability to establish local drop-in clinics in strategic locations, encouraging better use of GP surgeries and improving capacity planning at A&E. However, to do this effectively, reliable data for factors linked to demand for services are needed (e.g. movement of people over time, routes taken by people visiting health facilities, weather, air pollution, links between illnesses & demographics). There are 180 A&E departments and 8,000 GP surgeries in England (plus walk-in centres and minor injury units). Demand is rising. Demographic pressures to 2017 will cost £1.1-1.4 bn extra pa to maintain quality (King's Fund). 18.3 million accident and emergency attendances were recorded at major A&E departments, single specialty A&E departments, walk-in centres and minor injury units in England in 2012/13; an increase of 4.0% from 2011-12. In Oct-Dec 2014 7.4% of patients waited more than 4 hrs from arrival in A&E to discharge, admission or transfer (47% up on the previous quarter and the poorest performance since quarter 3 of 2003/4). On average there are about 10,000 admissions each day. The cost of a hospital bed is c.£500 per night. One benefit of the application of the Dynamic Insights model to A&E would be to reduce hospital admissions. A 10% reduction in admissions (1,000 daily across England; about 5 per A&E) would lead to savingof £500,000 each day (£190m pa) if used in all A&E departments. We are targeting 20% of A&E departments over 5 years (£40m savings pa). Additional savings will occur in other parts of the UK and in walk-in clinics etc. Dynamic Insights will cost £50-100k pa for each hospital/trust (40-50 targetted in 5 yrs leading to an ROI of up to £5m pa).

Publications

10 25 50

publication icon
Jones K (2017) A UKSeRP for SAIL: striking a balance in International Journal of Population Data Science

publication icon
Jones KH (2017) The other side of the coin: Harm due to the non-use of health-related data. in International journal of medical informatics

publication icon
Lacey A (2017) Obtaining structured clinical data from unstructured data using natural language processing software in International Journal of Population Data Science

publication icon
Middleton R (2017) Clinical Validation of the UKMS Register Minimal Dataset utilising Natural Language Processing in International Journal of Population Data Science

publication icon
Middleton R (2017) iConsent an Electronic Consent Platform with the MS Register in International Journal of Population Data Science

publication icon
Thayer D (2017) Reusable, set-based selection algorithm for matched control groups in International Journal of Population Data Science

 
Description 1. Under legislation in force at the time the project was conducted, the majority of secondary uses of CDR data (provided that this was conducted at macro level with aggregated data) would be legal. Since the introduction of the General Data Protection Regulation and the UK Data Protection Bill, the position has become less clear. Whilst the contract between a mobile phone operator and a customer does give legitimate grounds for some data processing, it is unclear whether use of data for ancillary purposes such as secondary analytics could reasonably be described as necessary for the performance of the contract. Specific legal guidance on a case by case basis is recommended, and in all cases privacy notices should be employed.
2. The public engagement workshops conducted within the project indicated that the majority of participants were happy for CDR data to be used for health research provided their annoyminity was safeguarded. There was more ambiguity about other uses of the data.
3. The data modelling work undertaken in the project showed that where aggregated CDR data was used in isolation there was a low risk of an individual's privacy being compromised. The risk increases significantly where CDR data is combined with other datasets, but this can be overcome in most cases by the introduction of a robust governance framework for handling the data.
Exploitation Route Our findings give a comprehensive overview on potential issues and good practice when using CDR or similar data in research studies or for marketing / commercial purposes. These offer an overview of legal issues, general good practice and can be used to inform future study design for projects using mobile phone data.
Sectors Digital/Communication/Information Technologies (including Software),Electronics,Healthcare,Security and Diplomacy

 
Description Dataflow Development
Amount £279,263 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 09/2017 
End 08/2018
 
Description Dynamic Insights for Health and Care
Amount £57,006 (GBP)
Funding ID NE/N007255/1 
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 04/2016 
End 04/2018
 
Description MS register - Extension
Amount £181,244 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2018 
End 11/2018
 
Description Sail Databank extension
Amount £1,373,112 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2020
 
Description Wales Cancer Bank. Subcontract to Cardiff University for information system development.
Amount £502,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Commerical partnership - Collaboration with GPC Solutions Ltd 
Organisation GPC Solutions Ltd
Country United Kingdom 
Sector Private 
PI Contribution Guidance on the information governance implications of using linked clinical / non clinical data
Collaborator Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Impact Increased knowledge of the capability of third party software to link and process data
Start Year 2016
 
Description Commerical partnership - Collaboration with Telefonica UK 
Organisation Telefonica S.A
Department Telefónica UK Limited
Country United Kingdom 
Sector Private 
PI Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Collaborator Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Impact Promotion of SAIL Databank, promotion of the health informatics function at Swansea University
Start Year 2016
 
Description NHS Partnership - Collaboration with University Hospitals Bristol NHS Foundation Trust 
Organisation University Hospitals Bristol NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Collaborator Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Impact Promotion of SAIL Databank
Start Year 2016
 
Description 2016.01.21 CHERISH-DE National Center Launch (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Launch event
Year(s) Of Engagement Activity 2016
 
Description 2016.05.09 - Open data in Healthcare conference (SCATA) (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation to delegates on making valuable personal based data safe for research use
Year(s) Of Engagement Activity 2016
 
Description 2016.05.11 - Health and Care Research Wales Board meeting (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Formulating research strategy for Wales
Year(s) Of Engagement Activity 2016
 
Description 2016.05.16 - Mobile Data Webex 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Mobile Data Webex
Year(s) Of Engagement Activity 2016
 
Description 2016.06.18 - IG discussion group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Working group advised commercial group on information governance implications of using data from mobile devices
Year(s) Of Engagement Activity 2016
 
Description 2016.07.26 - The Royal Society and the British Academy seminar on connecting debates on the governance of data and its uses (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Thought provoking event about the possible futures for personal data in the UK
Year(s) Of Engagement Activity 2016
 
Description 2016.08.28 - Running and chairing of international conference on data linkage (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact 600+ researchers from across the world, coming to hear about advances in safe and effective data sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.08.30 - Mobile Data Webex 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Mobile Data Webex
Year(s) Of Engagement Activity 2016
 
Description 2016.09.08 - Lunch and Learn session 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Further ideas generating session between ADRC Wales/MORPHeD staff and external collaborators on use of mobile data for research
Year(s) Of Engagement Activity 2016
 
Description 2016.09.28 - Health Informatics Consumer Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Health Informatics Consumer Panel
Year(s) Of Engagement Activity 2016
 
Description 2016.12.08 - Policy review meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Review of MORPHeD project progress and planning discussion for further progress
Year(s) Of Engagement Activity 2016
 
Description 2017.01.05 - Health of the public in 2040: implementation workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Wide range of governmental, research and charitable bodies working to move froward the recommendations of the report
Year(s) Of Engagement Activity 2016
URL https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf
 
Description 2017.01.09 - Mobile Operator-Related Phone & Health Data Governance (MORPHeD) Executive meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Mobile Operator-Related Phone & Health Data Governance (MORPHeD) Executive meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.01.11 - Data Journeys in Biomedicine: Research Translation and Infrastructure Management workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Identifying best practice in safely sharing data from and for research
Year(s) Of Engagement Activity 2016
URL http://www.datastudies.eu/data-journeys-in-biomedicine-2017
 
Description 2017.01.25 - Using Administrative Data: Information event for Finnish Government visitors 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact ADRC-Wales staff contributed to an information event around use of administrative data. ADRC-Wales contribution included info of ADRN, case study examples of benefits, and lessons learnt.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.07 - EDARA Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Steering group for a major national research study aimed at improving alcohol related hard in the UK. Significant public policy interest. Outcome: Changing the policy and practice landscape in the UK for alcohol
Year(s) Of Engagement Activity 2017
 
Description 2017.02.08 - Precision Medicine Catapult meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Summarising the work, data and facilities of Swansea to support possible involvement in industrial development activities with private and public sector around precision medicine. Outcome: Potential involvement in UK-wide data infrastructures for PM
Year(s) Of Engagement Activity 2017
 
Description 2017.02.09 - Finnish Government visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Delegation from Finnish government and health system representative with some senior academic collaborators to discuss how Finland might build on the work of Swansea in Final for a national data sharing architecture. Outcome: Influencing national policy for Finland, potential involvement in the supply of system to support Finland's progress.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.10 - RITREVA Project 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Sharing plans to develop an extension to Swansea's National Research Data Appliances to provide NLP facilities in support of clinical trials. Outcome: Potential funding for Wales-wide project
Year(s) Of Engagement Activity 2017
 
Description 2017.02.13 - BMS / Pfizer collaboration 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact A round table meeting to discuss the development of a formal MOU to cement relationship between two pharmaceutical companies and Swansea. Outcome: Formal MOU drafted and signed by both parties + initial funded project agreed and underway.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - Children's Legal Centre for Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Discussion to assess how Swansea's data and facilities could be extended to support work in Human Rights of the Child. Outcome: Potential for collaborative activities
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - MSSN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Project Board overseeing development of national safe setting architecture for the UK, based on "pods" technology. Outcome: Rollout of 40+ preconfigured and approved "safe" settings for use in universities and other sites across the UK to receive access to sensitive data for analysis
Year(s) Of Engagement Activity 2017
 
Description 2017.02.20 - MediWales 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.02.27 - Cardiff Capital City Deal 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Early meetings with local and government reps to discuss how Cardiff City deal could benefit from the work of the Swansea Group. Outcome: Increased awareness of Swansea's facilities and collaborative opportunities
Year(s) Of Engagement Activity 2017
 
Description 2017.02.28 - Cancer Research UK 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Strategic discussions to understand how Swansea data, facilities and expertise could support the work of Cancer Research UK. Outcome: High level understanding of Swansea potential contribution to CRUK's national activities
Year(s) Of Engagement Activity 2017
 
Description 2017.03.07 - GE Healthcare 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions
Year(s) Of Engagement Activity 2017
 
Description 2017.03.07 - MORPHeD Engagement workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact MORPHeD Engagement workshop
Year(s) Of Engagement Activity 2017
 
Description 2017.03.08 - IPDLN Executive Team meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Overseeing the strategic development of the international society for academic, governmental and health system centres that use data linkage mechanism to conduct research. Outcome: Programme of events and activities across the world to support this interest group - showcasing UK and Swansea achievements internationally
Year(s) Of Engagement Activity 2017
 
Description 2017.03.09 - Information Governance review meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Working group advised commercial group on information governance implications of using data from mobile devices. Review of progress and IG challenges with MORPHeD project so far
Year(s) Of Engagement Activity 2017
 
Description 2017.03.13 - Familiy Justice Observatory 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Planning of the development of a potential new centre to help better understand family justice matters in the UK, with support and funding from the Nuffield. Outcome: Invitation to request funding in support of the development
Year(s) Of Engagement Activity 2017
 
Description 2017.03.17 - WCRC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Group to take forward the development of a programme of work in support of Wales Cancer Research centre's community aspirations. Outcome: Funded programme of work
Year(s) Of Engagement Activity 2017
 
Description 2017.03.28 - Digital Economy Imaginarium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Delivered workshop to gain better understanding of business and public sector needs and match them to expertise in academia. Outcome: Range of collaborative projects have arisen and been taken forward
Year(s) Of Engagement Activity 2017
 
Description 2017.03.29 - NHS Digital Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.04.04 - Digital Economy Crucible 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Workshop held to support ECR's idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners
Year(s) Of Engagement Activity 2017
 
Description 2017.04.04 - Primary Care Public Health Information 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Steering group to help support needs of primary care in Wales through information provision. Outcome: Development of a project to deliver information products to support their needs
Year(s) Of Engagement Activity 2017
 
Description 2017.04.06 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to sumbit costed proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.04.06 - Welsh Scientific Advisory Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation to Wales' primary scientific advisory committee on SAIL Databank, ADRC Wales, and associated work. Outcome: Inclusion of Swansea's work in national strategy
Year(s) Of Engagement Activity 2017
 
Description 2017.04.07 - AAAI Project Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system
Year(s) Of Engagement Activity 2017
 
Description 2017.05.03 - ONS Data Science Campus 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic planning meeting to understand the collaborative opportunities possible between Swansea and the new ONS Data Science campus. Outcome: List of potential areas / projects for collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.05.04 - GE Healthcare 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions
Year(s) Of Engagement Activity 2017
 
Description 2017.05.08 - Welsh Governement Informatics Task Force 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published
Year(s) Of Engagement Activity 2017
 
Description 2017.05.09 - Keynote talk at ISBER 2017 (Toronto, Canada) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Provided talk on safe data infrastructures to support international biobanking initiatives. Outcome: Further discussions with various delegates who heard the talk (various countries)
Year(s) Of Engagement Activity 2017
 
Description 2017.05.16 - H&CRW Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research
Year(s) Of Engagement Activity 2017
 
Description 2017.05.17 - Nuffield Foundation (Oliver Bird fund) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Providing advice, based on Swansea's expertise and facilities, to the Nuffield on how to best utilise their Oliver Bird endowment. Outcome: New focussed plans for investment into data-related activities in the UK
Year(s) Of Engagement Activity 2017
 
Description 2017.05.22 - NWIS health data strategy meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact High level meeting to agree national approach to providing safe and secure access to health data for research. Outcome: Agreement in approach 2017-2020
Year(s) Of Engagement Activity 2017
 
Description 2017.05.23 - Dynamic Insights Steering Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Board meeting for collaboration with O2 telecoms company. Outcome: funded InnovateUK collaborative project
Year(s) Of Engagement Activity 2017
 
Description 2017.06.07 - Digital Health Federation Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact First meeting of an international Board to steer the development of an international federations of data facilities, to answer requirements of internationally scaled research and industrial needs. Outcome: Agreement of basic HoA agreement for members to sign (subsequently signs as partner)
Year(s) Of Engagement Activity 2017
 
Description 2017.06.12 - AAAI Project Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system
Year(s) Of Engagement Activity 2017
 
Description 2017.06.13 - NHS Digital Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.06.15 - MD2i (innovative and intelligent Medical Device) Grenoble, France 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Talk on UK and Swansea data infrastructures to support research. Outcome: Invitation to sit on Grenoble's Board overseeing their own local strategy
Year(s) Of Engagement Activity 2007,2017
 
Description 2017.06.22 - Funding Panel: Canadian Cyber Infrastructure Initiative Toronto 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Supporting Canadian Government make strategic funding decisions on national data infrastructures. Outcome: Shortlisting of best proposals received
Year(s) Of Engagement Activity 2017
 
Description 2017.06.26 - Ser Cymru 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Developing strategy for Climate Impact modelling for Wales. Outcome: Development of strategic plans for climate modelling
Year(s) Of Engagement Activity 2017
 
Description 2017.06.29 - MS Frontiers - Multiple Sclerosis Register outreach 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact High profile stand, talks and demos showcasing Swansea's MS Register project to people with MS and their families visiting this, the largest conference for people with MS in the country. Outcome: Large number of sign-ups to the Register, increased research and governmental interest, increased enthususaim in existing MS Register participants
Year(s) Of Engagement Activity 2017
 
Description 2017.07.05 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.07.14 - MediWales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.07.20 - UK e-Infrastrucure consortium meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Working group developing a business case, in conjuntion with the UK research councils, to support funding for the UK's national e-infrastructures, across all science domains. Outcome: Business developed
Year(s) Of Engagement Activity 2017
 
Description 2017.07.21 - AMS Health of the Public 2040 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.07.28 - Digital Economy Crucible 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Workshop held to support ECRs idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners
Year(s) Of Engagement Activity 2017
 
Description 2017.08.01 - IPDLN 2018 Conference - Scientific Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Planning the scientific content for the next international conference on data linkage research. Outcome: Speaker invites, topics selected, programme in draft
Year(s) Of Engagement Activity 2017
 
Description 2017.08.02 - Welsh Governement Informatics Task Force 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published
Year(s) Of Engagement Activity 2017
 
Description 2017.08.09 - Webinar for the Asia eHealth Information Network (AeHIN) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact 100 interested parties from government, academia and industry from Asia and the far east sat in on this webinar to understand how Swansea has built and operates its data infrastructure. Outcome: Potential collaborative activities and technology sharing (Swansea's technologies to Asia)
Year(s) Of Engagement Activity 2017
 
Description 2017.08.10 - AMS Health of the Public 2040 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.08.10 - Giving evidence to the UK's Longitudinal studies review (Prof Ray Chambers) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Detailed discussion on the state of play of the UK's data systems to support longitudinal research. Outcome: Not aware of any outcome
Year(s) Of Engagement Activity 2017
 
Description 2017.08.11 - Strategic meeting with CEQUR Ltd 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Establishing needs and capabilities between Swansea Group and a major new industrial company. Outcome: Potential collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.09.05 - New Brunswick (Canada) visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Deputation from province of New Brunswick (Canada) made up of government executives, research funders, and academics to understand how Swansea has set up and run SAIL DataBank and other initiatives. Outcome: Agreement to support New Brunswick as they develop their plans to build a similar data infrastructure
Year(s) Of Engagement Activity 2017
 
Description 2017.09.20 - H&CRW Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research
Year(s) Of Engagement Activity 2017
 
Description 2017.09.22 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK
Year(s) Of Engagement Activity 2017
 
Description 2017.09.25 - Joint Clinical Research Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Board meeting agreeing strategy for this research facility operated in partnership with NHS Wales' Health Board. Outcome: New focus on research in Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.09.26 - Pfizer UK Board meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Attending Pfizer pharmaceutical Board meeting to provide updates into Wales' data systems and collaboration opportunities. Outcome: Further research opportunities
Year(s) Of Engagement Activity 2017
 
Description 2017.09.29 - MediWales 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.10.01 - ICES Scientific Advisory Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Seat on the Institute of Clinical Evaluatiative sciences (ICES) Scientific Advisory Committee to provide guidance on their strategic development and recommendations to their funders and Board. Outcome: Insights into overseas centres similar to ours
Year(s) Of Engagement Activity 2017
 
Description 2017.10.06 - International Collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact International strategic meeting, mapping future collaborative opportunities across jurisdictions
Year(s) Of Engagement Activity 2017
 
Description 2017.10.19 - Centre for Epidemiology Renewal Site visit 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Part of a multi-expert team of assessors, working for Asthma Research UK to assess the progress and plans of Manchester's Centre for Epidemiology. Outcome: A formal report leading to a recommendation to refund
Year(s) Of Engagement Activity 2017
 
Description 2017.10.24 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2017
 
Description 2017.10.27 - Digital Economy Act regualtion consultation event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Participation in workshop to help refine the regulations that are currently in development to operationalise the Digital Economy Act's Research and Statistics strand. Outcome: Revised regulations
Year(s) Of Engagement Activity 2017
 
Description 2017.11.07 - Data Linkage courses and teaching 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Development of an extended agreement to provide University of Western Australia teaching and expertise to the UK via Swansea. Outcome: Continuation of high quality, subject relevant teaching to any student in the UK (short course and MSc)
Year(s) Of Engagement Activity 2017
 
Description 2017.11.10 - Super Computing Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with Welsh national supercomputing programme (all sciences) to discover levels of support and facilities potentially on offer to support health and social data sciences in Wales. Outcome: Agreement on the level and nature of on-going facilities and expertise available
Year(s) Of Engagement Activity 2017
 
Description 2017.11.14 - Discussions with Paul Bonnington and colleagues (Research Computing, Montash Universty, Australia) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact A set of discussions to scope the sharing of Swansea's data sharing platforms (SeRP and NRDAs) for use in Australia via Monash University. Outcome: An agreement for them to fund the costs of providing our technology to Australia
Year(s) Of Engagement Activity 2017
 
Description 2017.11.22 - Presentation to the English NHS National Data Opt Out Advisroy Group on SAIL Databank 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Provided a high level overview of the differing emergent strategies in Wales and England relating to patient opt-out and how Wales has managed to maintain high trust and support with its population and practitioners throughout. Outcome: Better understanding (in NHS England) about how Wales has managed population trust in health data research
Year(s) Of Engagement Activity 2017
 
Description 2017.11.27 - Presentation and facilitiate workshop to various SMEs about opportunities to access PhD studentships 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Presentation on Swansea's data expertise and facilities available to support data science agenda with industry partners and mechanisms by which Swansea can support the needs of Welsh companies. Outcome: DTC proposal
Year(s) Of Engagement Activity 2017
 
Description 2017.12.01 - Presentation and workshop participating to help Nuffield Foundation and Arthritis Research UK develop a data strategy for musculoskeletal research in the UK 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact To inform the development of a new data strategy for ARUK and Nuffield. Outcome: New strategy
Year(s) Of Engagement Activity 2017
 
Description 2017.12.06 - Working group to devise plan to move NHS Wales to using SNOMED CT in future years 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Conducting baselines review of compliant systems and framework for moving towards 100% use of SNOMED CT in the future. Outcome: New approach for Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.12.12 - Annual Awards ceremony, giving prizes to the NSH and to industry for a range of awards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Giving prizes (previously selected) to the winner of a range of awards. Outcome: Increased focus on co-working between NHS, government, academia and industry in Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.12.12 - Wales Centre of Public Policy / SAIL Databank strategy meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact First of a series of workshops to help the newly formed WCPP understand how it might pursue its work through using data and data science techniques. Outcome: Close working relationship
Year(s) Of Engagement Activity 2017
 
Description 2018.01.03 - Follow on to conversation with Ministry of Health (England) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Scoping discussion to asses how SAIL / ADRN / HDR UK can support DoH taking part in data sharing projects for public good. Outcome: Not aware of any outcome
Year(s) Of Engagement Activity 2017
 
Description 2018.01.08 - Early scoping discussions about utilising GeL's genetics platforms to process Welsh patinet sames and return the data. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Scoping discussion. Outcome: Potential agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.01.11 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals
Year(s) Of Engagement Activity 2018
 
Description 2018.01.16 - Informatics Statment of Intent implementation workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.01.17 - Research Data Alliance Workshop and Invited talk - Amsterdam 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Keynote talk on the issues related to curation and sharing of highly sensitive person-based data + workshops participation. Outcome: New highlighted focus on person-based data and privacy in the RDA
Year(s) Of Engagement Activity 2018
 
Description 2018.01.22 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2018
 
Description 2018.01.30 - Strategic meetings with ONS in the context of next stage of what was ADRN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS
Year(s) Of Engagement Activity 2018
 
Description 2018.02.01 - Public Health Wales / ADRC / SAIL strategic meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Framing a new relationship between Swansea's data platforms and Public Health Wales. Outcome: More policy-relevant research analyses
Year(s) Of Engagement Activity 2018
 
Description 2018.02.02 - Data for Children themed workshop - Chair Leon Feinstein 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Co-chair and participation in a workshop to frame a new data request to multiple government ministries and agencies to construct a linked data resource for the benefit of children though research
Year(s) Of Engagement Activity 2018
 
Description 2018.02.07 - Informatics Statement of Intent implementation workship 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.02.13 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2018
 
Description 2018.02.14 - ONS and Welsh Government meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS
Year(s) Of Engagement Activity 2018
 
Description 2018.02.27 - Asthma Data and Digital Funding Call Frontiers Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Helping to devise a new approach to the use of data to drive forward asthma research in the UK. Outcome: New data investments for asthma data research
Year(s) Of Engagement Activity 2018
 
Description 2018.02.28 - Workshop to help support a new mean of producing national statistics from routine administrative data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Helping to devise a new approach to the use of data to support the production of national statistics. Outcome: New use and methodologies
Year(s) Of Engagement Activity 2018
 
Description 2018.03.01 - Further clarifying implementation place, costs and time scales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Agreement for Monash to use Swansea's data platforms to support research and public analyses in Australia. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.06 - Workshop with British Columbia Government officals about data sharing facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.07 - Workshop with British Columbia Health system officals about data sharing facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.08 - Talk on data sharing system to support Learning Health Systems in the UK and internationally 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact To highlight the good practice in the UK and in Wales, to promote the use of Swansea's technology set and expertise. Outcome: Possible inquiries
Year(s) Of Engagement Activity 2018
 
Description 2018.03.14 - Cardiovascular research workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Talk on data opportunities and ways of achieving joint research objectives. Resulted in a decision being made to engage in project
Year(s) Of Engagement Activity 2018
 
Description 2018.03.16 - SNOMED CT Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing SNOMED strategy for Wales, resulting in the formulation of a national strategy
Year(s) Of Engagement Activity 2018
 
Description 2018.03.19 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Development of UKRI Roadmap with senior UKRI staff
Year(s) Of Engagement Activity 2018
 
Description 2018.03.21 - UKSeRP, DDP and HSAR meeting. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Infrastructure development meeting with Welsh Government colleagues
Year(s) Of Engagement Activity 2018
 
Description 2018.03.22 - Innovator Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford took part in an innovation workshop as a member of the judging panel for proposed innovations
Year(s) Of Engagement Activity 2018
 
Description 2018.03.26 - IPDLN Conference Scientific Committee meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Development of the international conference programme
Year(s) Of Engagement Activity 2018
 
Description 2018.03.27 - WCRC Senior Operational meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact David Ford attendance at steering group for major Welsh Research Centre
Year(s) Of Engagement Activity 2018
 
Description 2018.03.28 - DKUT, NMAIST & Kabarak Universities discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International collaborative project with African univeristies discussing opportunities for collaboration on MRC funding call
Year(s) Of Engagement Activity 2018
 
Description 2018.04.18 - ADRN Data for Children 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Developing new Data for Children resource
Year(s) Of Engagement Activity 2018
 
Description 2018.04.20 - HDR UK Site visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact David Ford attended a series of meetings with HDR UK representatives on their visit to Swansea University and the Data Science research teams based there, following which the decision was made to establish Swansea as an HDR site
Year(s) Of Engagement Activity 2018
 
Description 2018.04.24 - Biobanking Task and Finish Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Discussions primarily focused around the Wales Biobank, which is supported with staff based within the Swansea University Data Science team
Year(s) Of Engagement Activity 2018
 
Description 2018.04.25 - Workstream 3 - Stakeholders event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This event contributed towards the development of a new vision for a national data resource for NHS Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.04.26 - Health Data Research UK - Scientific Retreat 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Senior ADRC Wales staff participated in a strategic planning event for HDR
Year(s) Of Engagement Activity 2018
 
Description 2018.05.02 - DataLab with ADRC Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions about development of Education data resources for use with ADRC Wales data research projects
Year(s) Of Engagement Activity 2018
 
Description 2018.05.14 - The Future of Justice International Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Event to take forward evidence production for the court systems
Year(s) Of Engagement Activity 2018
 
Description 2018.05.17 - HDR UK Technical meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADRC Wales attended a wider discussion around understanding data infrastructure needs for UK
Year(s) Of Engagement Activity 2018
 
Description 2018.05.18 - Commission on Justice in Wales Scoping 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Scoping unmet legal needs in Wales, with a view to developing research opportunities with government and academics in this field
Year(s) Of Engagement Activity 2018
 
Description 2018.05.24 - GeDI workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing genetic data strategy in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.06.01 - Talk in Victoria, Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Presentations to Ministry of Health, British Columbia
Year(s) Of Engagement Activity 2018
 
Description 2018.06.05 - Qresearch, SHIP and SAIL discussion for HDR 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation and discussion with Q Research
Year(s) Of Engagement Activity 2018
 
Description 2018.06.07 - UKRI Event on "Places" 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Cluster development workshop
Year(s) Of Engagement Activity 2018
 
Description 2018.06.08 - National MSK Health Data Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation on SAIL Databank to ARUK
Year(s) Of Engagement Activity 2018
 
Description 2018.06.11 - ADRN Directors Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Discussion around how to manage new elements of transition work following London meetings the previous week
Year(s) Of Engagement Activity 2018
 
Description 2018.06.12 - ADRC Stakeholder meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Developing working arrangements with Welsh Government
Year(s) Of Engagement Activity 2018
 
Description 2018.06.14 - MS Society Research Strategy Committee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation on UKMS Register
Year(s) Of Engagement Activity 2018
 
Description 2018.06.20 - HDR UK Infrastructure meeting (Technical) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Follow up discussion with sector experts on the data infrastructure needs for UK
Year(s) Of Engagement Activity 2018
 
Description 2018.06.21 - ADRN Directors Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Round table strategy event with ADRN Directors
Year(s) Of Engagement Activity 2018
 
Description 2018.06.22 - Health and Wellbeing Childhood & Mental Health 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford led a research theme discussion around Health and Wellbeing Childhood & Mental Health at the ADR Conference in Belfast
Year(s) Of Engagement Activity 2018
 
Description 2018.06.27 - Panel meeting to discuss Family Justice Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact David Ford delivered a presentation to a senior research group around Family Justice and the opportunities for using linked data in this area
Year(s) Of Engagement Activity 2018
 
Description 2018.06.28 - SAIL scientific External Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford attended an event around the launch and future plans for an International expert panel
Year(s) Of Engagement Activity 2018
 
Description 2018.07.09 - Due diligence & MoU ceremony 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Formal signing of MoU with Bangalore
Year(s) Of Engagement Activity 2018
 
Description 2018.07.13 - ADRN Themed Data for children Partners meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Roundtable to devise data build for data research resources using assets relating to children/young people's data
Year(s) Of Engagement Activity 2018
 
Description 2018.07.18 - Summer School in digital Epidemiology from the Arthritis Research UK Centre for Epidemiology 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford participated in a talk on linking EHRdata to other data sources
Year(s) Of Engagement Activity 2018
 
Description 2018.07.20 - MRC Mental Health Data Pathfinder meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussions with colleagues involved in other research council funded project around the development of a common data platform
Year(s) Of Engagement Activity 2018
 
Description 2018.07.24 - AAAI workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI e-infrastructre development
Year(s) Of Engagement Activity 2018
 
Description 2018.07.27 - Research and Innovation Infrastructure Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford participated in an innovation workshop as a 'Dragons Den' judge
Year(s) Of Engagement Activity 2018
 
Description 2018.08.23 - Developing an admin data spine 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Providing expert advice to UKRI on the development of a cross sector administrative data resource
Year(s) Of Engagement Activity 2018
 
Description 2018.08.28 - Meeting: MS Society and Benevolent AI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Round table with innovative AI company
Year(s) Of Engagement Activity 2018
 
Description 2018.08.30 - Scottish Government visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Hosted visit from Scottish Government to demonstrate arrangements in place for admin data research at Swansea University
Year(s) Of Engagement Activity 2018
 
Description 2018.08.31 - Visit to Blackpool Local Authority 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentations around the opportunities for collaborating with Swansea University on data research projects and work
Year(s) Of Engagement Activity 2018
 
Description 2018.09.03 - Chris Newbrook meeting RE: Info Governance - and Wales' "Data Promise" 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Round table session with senior Welsh Government to develop national strategy to data sharing
Year(s) Of Engagement Activity 2018
 
Description 2018.09.03 - Longitudinal administrative data spine meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Discussions around the further development of an administrative data resource
Year(s) Of Engagement Activity 2018
 
Description 2018.09.04 - HDR UK Science Strategy visit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADRC Wales staff inputted into the development of a science strategy with HDR colleagues
Year(s) Of Engagement Activity 2018
 
Description 2018.09.04 - Haroldas Petkus re: RE: Previous 'NHS in a lab' facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions to share experience and best practice around data infrastructure technology
Year(s) Of Engagement Activity 2018
 
Description 2018.09.05 - HDR UK Design thinking workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADRC Wales staff participation in an HDR UK design workshop
Year(s) Of Engagement Activity 2018
 
Description 2018.09.07 - ADRN Data for Children Technical Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes
Year(s) Of Engagement Activity 2018
 
Description 2018.09.07 - ADRN Data for Children Technical Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes
Year(s) Of Engagement Activity 2018
 
Description 2018.09.12 - IPDLN Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact ADRC Wales attendance at international conference - IPDLN 2018 in Banff. Included numerous abstracts, research posters, and presentations from ADRC participants
Year(s) Of Engagement Activity 2018
 
Description 2018.09.24 - EDARA Study Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford attended and chaired a session of the EDARA Study Steering Committee
Year(s) Of Engagement Activity 2018
 
Description 2018.09.24 - Scoping an administrative spine with ESRC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Further work building upon initial discussions with research council colleagues around the development of an administrative data research resource
Year(s) Of Engagement Activity 2018
 
Description 2018.09.25 - UKRI MRC 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford attended and chaired a workshop on e-infrastructure requirement for MRC
Year(s) Of Engagement Activity 2018
 
Description 2018.09.28 - Morgan Academy to host cabiet office innovation team 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact David Ford gave a presentation to Cabinet Office team
Year(s) Of Engagement Activity 2018
 
Description 2018.10.02 - ICES Scientific Advisory Committee meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Participation as a formal member of the External Advisory Board to ICEs
Year(s) Of Engagement Activity 2018
 
Description 2018.10.04 - ADRC Wales impact and engagement overview meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Impact strategy for Wales discussions
Year(s) Of Engagement Activity 2018
 
Description 2018.10.04 - Pfizer programme of work 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Presentation and collaboration discussions with Pfizer Ltd
Year(s) Of Engagement Activity 2018
 
Description 2018.10.05 - SAIL scientific External Advisory Board Launch event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation on data research in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.10.08 - Discussions with MoJ about Data sharing for family justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Building on previous discussions, this event aimed to define some of the plans made around Ministry of Justice data sharing for family justice research
Year(s) Of Engagement Activity 2018
 
Description 2018.10.15 - Launch of Monash University HeLIX data platform 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact David Ford was an invited speaker at a launch event for HeLIX
Year(s) Of Engagement Activity 2018
 
Description 2018.10.16 - Keynote speaker at E-Research Australia conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford participated in an Australian e-Research Conference as a keynote speaker
Year(s) Of Engagement Activity 2018
 
Description 2018.10.19 - Keynote talk at Precision Public Health 2018 conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford participated at a Precision Public Health conference in Australia as a keynote speaker
Year(s) Of Engagement Activity 2018
 
Description 2018.10.24 - Presentations to Sydney Ministry of Health, Australia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact David Ford delivered a presentation on the work being done in the Swansea University Data Science research team to the Ministry of Health, Sydney, Australia
Year(s) Of Engagement Activity 2018
 
Description 2018.11.02 - Nuffield Foundation Oliver Bird Tendering Consultation Group Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Expert advice to funder, resulting in decisions taken around shaping a funding call
Year(s) Of Engagement Activity 2018
 
Description 2018.11.07 - New Brunswick Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford delivered a keynote talk at New Brunswick conference, Canada
Year(s) Of Engagement Activity 2018
 
Description 2018.11.09 - Meeting with Ted McDonald's team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Roundtable workshop New Brunswick centre
Year(s) Of Engagement Activity 2018
 
Description 2018.11.15 - Administrative Data Spine Scoping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Further discussions around developments of an administrative data research resource, with a focus on defining future work
Year(s) Of Engagement Activity 2018
 
Description 2018.11.21 - HCRW Centre and Unit leads' meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Roundtable strategy meeting for Welsh research infrastructure
Year(s) Of Engagement Activity 2018
 
Description 2018.11.28 - Science Strategy Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participation in a Science Strategy Board with colleagues from Oxford academia
Year(s) Of Engagement Activity 2018
 
Description 2018.12.10 - UKCRIS visit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Roundtable with research group from London, focussing on the development of collaborative work being undertaken
Year(s) Of Engagement Activity 2018
 
Description 2019.01.07 - NHS Digital/HDR UK Interoperability Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participation in an NHS Digital/HDR UK Interoperability Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.01.08 - National Social Care Data set linking to SAIL databank 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact David Ford attendance at a workshop with Social Care Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.01.09 - UKRI Research and Innovation Infrastructure Roadmap 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact UKRI workshop on research infrastructure
Year(s) Of Engagement Activity 2019
 
Description 2019.01.10 - MRC Mental Health Data Pathfinder meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact MRC workshop on mental health platform
Year(s) Of Engagement Activity 2019
 
Description 2019.01.15 - Health & Care Research Wales Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation at a session of the Wales Research Board (funders)
Year(s) Of Engagement Activity 2019
 
Description 2019.01.16 - TexGov workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact NLP for research workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.01.23 - Inward Investment team from Welsh Assembly Gov 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on Swansea research
Year(s) Of Engagement Activity 2019
 
Description 2019.01.29 - Roundtable discussion at the Nuffield foundation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Presentation on Swansea's data facilities
Year(s) Of Engagement Activity 2019
 
Description 2019.01.30 - Research Council Norway 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Funding panel member, Norway's Research Board
Year(s) Of Engagement Activity 2019
 
Description Presentation as part of the Farr - CIPHER launch event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Other audiences
Results and Impact Interest in CIPHER (Farr)

Better engagement with NHS Wales amd its staff. More collaborations with academics in Wales
Year(s) Of Engagement Activity 2013
 
Description Presentation at Connecting Big Data conference in Truro, Cornwall 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Lots of discussion about approaches and responsibilities to privacy protection and research

Better understanding by the non-health research communities (environmental and weather) to the use of health data, in terms of privacy protection, computational issues and professional practice
Year(s) Of Engagement Activity 2014
 
Description Presentation at UK LifeSciences - prospects for innovation , investment and global competitiveness in Whitehall, London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Much debate as how data and data business can be used to drive the economy and improve public services

Seveeral on-going connections with delegates
Year(s) Of Engagement Activity 2014
 
Description Presentation on High Performance Computing and health data science at HPCWales event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Considerable interest in big data capabilities and high performance computing

Increased level of interest in the use of big health data for research and for company benefit.
Year(s) Of Engagement Activity 2013
 
Description Presentation on Information Governance to Health Data Linkage Conference, Rio de Janeiro, Brazil 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact talked followed by 40 minute plenary discussion session

Asked as international expert to provide input into the conference to guide the development of a Brazilian national strategy for data sharing and reuse.
Year(s) Of Engagement Activity 2014
 
Description Presentation to NCRI Conference 2013 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation workshop facilitator
Geographic Reach National
Primary Audience Other audiences
Results and Impact Many questions and positive comments. Many subsequent discussions

continued dialogue with cancer informatics leads in UK
Year(s) Of Engagement Activity 2013