Dynamic Insights for Health and Care

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

The project address the 'urban challenge' of delivering better, more cost effective healthcare in cities by enabling better resource planning based on data. It will develop a 'proof of concept' (POC) planning support solution for hospitals and health facilities using anonymised, aggregated mobile network data (extrapolated to provide insights representative of the total and segmented population in an area, including demographics, footfall and movement), together with health sector data (e.g. types of condition linked to demographics, environmental factors) and environmental data that can impact on health (weather, air pollution forecasts etc). The project will be led by O2, building on their Dynamic Insights platform, with Cambridge city and Addenbrooke's hospital providing the use case. This approach has been successfully applied in other sectors, such as retail and transport where it has enabled improvements in the nature and location of offerings based on detailed knowledge of the customer demographic. This will be the first time it has been used in the health sector. Successful demonstration of the POC (and supporting business models) will lead to commercial roll-out across the UK.

Planned Impact

The main beneficiaries from this project will be NHS A&E departments, and UK health boards

Demand on healthcare services is growing due to changing demographics (ageing population, migration to cities, movement of people within and between cities for work/social reasons etc). Combined with public spending limits this is leading to stresses on health and care services. Healthcare providers have only limited ability to predict peaks in demand at services such as A&E, GP surgeries etc. This leads to resourcing difficulties, bottle-necks, delays and increased costs. The situation could be partly addressed through improved planning, such as the ability to establish local drop-in clinics in strategic locations, encouraging better use of GP surgeries and improving capacity planning at A&E. However, to do this effectively, reliable data for factors linked to demand for services are needed (e.g. movement of people over time, routes taken by people visiting health facilities, weather, air pollution, links between illnesses & demographics). There are 180 A&E departments and 8,000 GP surgeries in England (plus walk-in centres and minor injury units). Demand is rising. Demographic pressures to 2017 will cost £1.1-1.4 bn extra pa to maintain quality (King's Fund). 18.3 million accident and emergency attendances were recorded at major A&E departments, single specialty A&E departments, walk-in centres and minor injury units in England in 2012/13; an increase of 4.0% from 2011-12. In Oct-Dec 2014 7.4% of patients waited more than 4 hrs from arrival in A&E to discharge, admission or transfer (47% up on the previous quarter and the poorest performance since quarter 3 of 2003/4). On average there are about 10,000 admissions each day. The cost of a hospital bed is c.£500 per night. One benefit of the application of the Dynamic Insights model to A&E would be to reduce hospital admissions. A 10% reduction in admissions (1,000 daily across England; about 5 per A&E) would lead to savings of £500,000 each day (£190m pa) if used in all A&E departments. We are targeting 20% of A&E departments over 5 years (£40m savings pa). Additional savings will occur in other parts of the UK and in walk-in clinics etc. Dynamic Insights will cost £50-100k pa for each hospital/trust (40-50 targetted in 5 yrs leading to an ROI of up to £5m pa).

Publications

10 25 50
 
Description 1. Under legislation in force at the time the project was conducted, the majority of secondary uses of CDR data (provided that this was conducted at macro level with aggregated data) would be legal. Since the introduction of the General Data Protection Regulation and the UK Data Protection Bill, the position has become less clear. Whilst the contract between a mobile phone operator and a customer does give legitimate grounds for some data processing, it is unclear whether use of data for ancillary purposes such as secondary analytics could reasonably be described as necessary for the performance of the contract. Specific legal guidance on a case by case basis is recommended, and in all cases privacy notices should be employed.
2. The public engagement workshops conducted within the project indicated that the majority of participants were happy for CDR data to be used for health research provided their annoyminity was safeguarded. There was more ambiguity about other uses of the data.
3. The data modelling work undertaken in the project showed that where aggregated CDR data was used in isolation there was a low risk of an individual's privacy being compromised. The risk increases significantly where CDR data is combined with other datasets, but this can be overcome in most cases by the introduction of a robust governance framework for handling the data.
Exploitation Route Our findings give a comprehensive overview on potential issues and good practice when using CDR or similar data in research studies or for marketing / commercial purposes. These offer an overview of legal issues, general good practice and can be used to inform future study design for projects using mobile phone data.
Sectors Digital/Communication/Information Technologies (including Software),Electronics,Healthcare,Security and Diplomacy

 
Description Police and Crime Commissioners
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Dataflow Development
Amount £279,263 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 09/2017 
End 08/2018
 
Description Dynamic Insights for Health and Care
Amount £57,006 (GBP)
Funding ID NE/N007255/1 
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 04/2016 
End 04/2018
 
Description MS register - Extension
Amount £181,244 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2018 
End 11/2018
 
Description Sail Databank extension
Amount £1,373,112 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2020
 
Description Wales Cancer Bank. Subcontract to Cardiff University for information system development.
Amount £502,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Commerical partnership - Collaboration with GPC Solutions Ltd 
Organisation GPC Solutions Ltd
Country United Kingdom 
Sector Private 
PI Contribution Guidance on the information governance implications of using linked clinical / non clinical data
Collaborator Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Impact Increased knowledge of the capability of third party software to link and process data
Start Year 2016
 
Description Commerical partnership - Collaboration with Telefonica UK 
Organisation Telefonica S.A
Department Telefónica UK Limited
Country United Kingdom 
Sector Private 
PI Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Collaborator Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Impact Promotion of SAIL Databank, promotion of the health informatics function at Swansea University
Start Year 2016
 
Description NHS Partnership - Collaboration with University Hospitals Bristol NHS Foundation Trust 
Organisation University Hospitals Bristol NHS Foundation Trust
Country United Kingdom 
Sector Hospitals 
PI Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Collaborator Contribution Sharing ideas for innovative uses of combinations of clinical and non clinical data
Impact Promotion of SAIL Databank
Start Year 2016
 
Description 2016.01.21 CHERISH-DE National Center Launch (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Launch event
Year(s) Of Engagement Activity 2016
 
Description 2016.05.09 - Open data in Healthcare conference (SCATA) (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation to delegates on making valuable personal based data safe for research use
Year(s) Of Engagement Activity 2016
 
Description 2016.05.11 - Health and Care Research Wales Board meeting (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Formulating research strategy for Wales
Year(s) Of Engagement Activity 2016
 
Description 2016.05.16 - Mobile Data Webex 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Mobile Data Webex
Year(s) Of Engagement Activity 2016
 
Description 2016.06.18 - IG discussion group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Working group advised commercial group on information governance implications of using data from mobile devices
Year(s) Of Engagement Activity 2016
 
Description 2016.07.26 - The Royal Society and the British Academy seminar on connecting debates on the governance of data and its uses (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Thought provoking event about the possible futures for personal data in the UK
Year(s) Of Engagement Activity 2016
 
Description 2016.08.28 - Running and chairing of international conference on data linkage (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact 600+ researchers from across the world, coming to hear about advances in safe and effective data sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.08.30 - Mobile Data Webex 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Mobile Data Webex
Year(s) Of Engagement Activity 2016
 
Description 2016.09.08 - Lunch and Learn session 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Further ideas generating session between ADRC Wales/MORPHeD staff and external collaborators on use of mobile data for research
Year(s) Of Engagement Activity 2016
 
Description 2016.09.28 - Health Informatics Consumer Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Health Informatics Consumer Panel
Year(s) Of Engagement Activity 2016
 
Description 2016.12.08 - Policy review meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Review of MORPHeD project progress and planning discussion for further progress
Year(s) Of Engagement Activity 2016
 
Description 2017.01.05 - Health of the public in 2040: implementation workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Wide range of governmental, research and charitable bodies working to move froward the recommendations of the report
Year(s) Of Engagement Activity 2016
URL https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf
 
Description 2017.01.09 - Mobile Operator-Related Phone & Health Data Governance (MORPHeD) Executive meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Mobile Operator-Related Phone & Health Data Governance (MORPHeD) Executive meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.01.11 - Data Journeys in Biomedicine: Research Translation and Infrastructure Management workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Identifying best practice in safely sharing data from and for research
Year(s) Of Engagement Activity 2016
URL http://www.datastudies.eu/data-journeys-in-biomedicine-2017
 
Description 2017.01.25 - Using Administrative Data: Information event for Finnish Government visitors 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact ADRC-Wales staff contributed to an information event around use of administrative data. ADRC-Wales contribution included info of ADRN, case study examples of benefits, and lessons learnt.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.07 - EDARA Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Steering group for a major national research study aimed at improving alcohol related hard in the UK. Significant public policy interest. Outcome: Changing the policy and practice landscape in the UK for alcohol
Year(s) Of Engagement Activity 2017
 
Description 2017.02.08 - Precision Medicine Catapult meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Summarising the work, data and facilities of Swansea to support possible involvement in industrial development activities with private and public sector around precision medicine. Outcome: Potential involvement in UK-wide data infrastructures for PM
Year(s) Of Engagement Activity 2017
 
Description 2017.02.09 - Finnish Government visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Delegation from Finnish government and health system representative with some senior academic collaborators to discuss how Finland might build on the work of Swansea in Final for a national data sharing architecture. Outcome: Influencing national policy for Finland, potential involvement in the supply of system to support Finland's progress.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.10 - RITREVA Project 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Sharing plans to develop an extension to Swansea's National Research Data Appliances to provide NLP facilities in support of clinical trials. Outcome: Potential funding for Wales-wide project
Year(s) Of Engagement Activity 2017
 
Description 2017.02.13 - BMS / Pfizer collaboration 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact A round table meeting to discuss the development of a formal MOU to cement relationship between two pharmaceutical companies and Swansea. Outcome: Formal MOU drafted and signed by both parties + initial funded project agreed and underway.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - Children's Legal Centre for Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Discussion to assess how Swansea's data and facilities could be extended to support work in Human Rights of the Child. Outcome: Potential for collaborative activities
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - MSSN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Project Board overseeing development of national safe setting architecture for the UK, based on "pods" technology. Outcome: Rollout of 40+ preconfigured and approved "safe" settings for use in universities and other sites across the UK to receive access to sensitive data for analysis
Year(s) Of Engagement Activity 2017
 
Description 2017.02.20 - MediWales 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.02.27 - Cardiff Capital City Deal 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Early meetings with local and government reps to discuss how Cardiff City deal could benefit from the work of the Swansea Group. Outcome: Increased awareness of Swansea's facilities and collaborative opportunities
Year(s) Of Engagement Activity 2017
 
Description 2017.02.28 - Cancer Research UK 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Strategic discussions to understand how Swansea data, facilities and expertise could support the work of Cancer Research UK. Outcome: High level understanding of Swansea potential contribution to CRUK's national activities
Year(s) Of Engagement Activity 2017
 
Description 2017.03.07 - GE Healthcare 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions
Year(s) Of Engagement Activity 2017
 
Description 2017.03.07 - MORPHeD Engagement workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact MORPHeD Engagement workshop
Year(s) Of Engagement Activity 2017
 
Description 2017.03.08 - IPDLN Executive Team meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Overseeing the strategic development of the international society for academic, governmental and health system centres that use data linkage mechanism to conduct research. Outcome: Programme of events and activities across the world to support this interest group - showcasing UK and Swansea achievements internationally
Year(s) Of Engagement Activity 2017
 
Description 2017.03.09 - Information Governance review meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Working group advised commercial group on information governance implications of using data from mobile devices. Review of progress and IG challenges with MORPHeD project so far
Year(s) Of Engagement Activity 2017
 
Description 2017.03.13 - Familiy Justice Observatory 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Planning of the development of a potential new centre to help better understand family justice matters in the UK, with support and funding from the Nuffield. Outcome: Invitation to request funding in support of the development
Year(s) Of Engagement Activity 2017
 
Description 2017.03.17 - WCRC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Group to take forward the development of a programme of work in support of Wales Cancer Research centre's community aspirations. Outcome: Funded programme of work
Year(s) Of Engagement Activity 2017
 
Description 2017.03.28 - Digital Economy Imaginarium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Delivered workshop to gain better understanding of business and public sector needs and match them to expertise in academia. Outcome: Range of collaborative projects have arisen and been taken forward
Year(s) Of Engagement Activity 2017
 
Description 2017.03.29 - NHS Digital Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.04.04 - Digital Economy Crucible 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Workshop held to support ECR's idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners
Year(s) Of Engagement Activity 2017
 
Description 2017.04.04 - Primary Care Public Health Information 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Steering group to help support needs of primary care in Wales through information provision. Outcome: Development of a project to deliver information products to support their needs
Year(s) Of Engagement Activity 2017
 
Description 2017.04.06 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to sumbit costed proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.04.06 - Welsh Scientific Advisory Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation to Wales' primary scientific advisory committee on SAIL Databank, ADRC Wales, and associated work. Outcome: Inclusion of Swansea's work in national strategy
Year(s) Of Engagement Activity 2017
 
Description 2017.04.07 - AAAI Project Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system
Year(s) Of Engagement Activity 2017
 
Description 2017.05.03 - ONS Data Science Campus 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic planning meeting to understand the collaborative opportunities possible between Swansea and the new ONS Data Science campus. Outcome: List of potential areas / projects for collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.05.04 - GE Healthcare 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions
Year(s) Of Engagement Activity 2017
 
Description 2017.05.08 - Welsh Governement Informatics Task Force 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published
Year(s) Of Engagement Activity 2017
 
Description 2017.05.09 - Keynote talk at ISBER 2017 (Toronto, Canada) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Provided talk on safe data infrastructures to support international biobanking initiatives. Outcome: Further discussions with various delegates who heard the talk (various countries)
Year(s) Of Engagement Activity 2017
 
Description 2017.05.16 - H&CRW Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research
Year(s) Of Engagement Activity 2017
 
Description 2017.05.17 - Nuffield Foundation (Oliver Bird fund) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Providing advice, based on Swansea's expertise and facilities, to the Nuffield on how to best utilise their Oliver Bird endowment. Outcome: New focussed plans for investment into data-related activities in the UK
Year(s) Of Engagement Activity 2017
 
Description 2017.05.22 - NWIS health data strategy meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact High level meeting to agree national approach to providing safe and secure access to health data for research. Outcome: Agreement in approach 2017-2020
Year(s) Of Engagement Activity 2017
 
Description 2017.05.23 - Dynamic Insights Steering Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Board meeting for collaboration with O2 telecoms company. Outcome: funded InnovateUK collaborative project
Year(s) Of Engagement Activity 2017
 
Description 2017.06.07 - Digital Health Federation Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact First meeting of an international Board to steer the development of an international federations of data facilities, to answer requirements of internationally scaled research and industrial needs. Outcome: Agreement of basic HoA agreement for members to sign (subsequently signs as partner)
Year(s) Of Engagement Activity 2017
 
Description 2017.06.12 - AAAI Project Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system
Year(s) Of Engagement Activity 2017
 
Description 2017.06.13 - NHS Digital Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.06.15 - MD2i (innovative and intelligent Medical Device) Grenoble, France 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Talk on UK and Swansea data infrastructures to support research. Outcome: Invitation to sit on Grenoble's Board overseeing their own local strategy
Year(s) Of Engagement Activity 2007,2017
 
Description 2017.06.22 - Funding Panel: Canadian Cyber Infrastructure Initiative Toronto 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Supporting Canadian Government make strategic funding decisions on national data infrastructures. Outcome: Shortlisting of best proposals received
Year(s) Of Engagement Activity 2017
 
Description 2017.06.26 - Ser Cymru 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Developing strategy for Climate Impact modelling for Wales. Outcome: Development of strategic plans for climate modelling
Year(s) Of Engagement Activity 2017
 
Description 2017.06.29 - MS Frontiers - Multiple Sclerosis Register outreach 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact High profile stand, talks and demos showcasing Swansea's MS Register project to people with MS and their families visiting this, the largest conference for people with MS in the country. Outcome: Large number of sign-ups to the Register, increased research and governmental interest, increased enthususaim in existing MS Register participants
Year(s) Of Engagement Activity 2017
 
Description 2017.07.05 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.07.14 - MediWales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.07.20 - UK e-Infrastrucure consortium meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Working group developing a business case, in conjuntion with the UK research councils, to support funding for the UK's national e-infrastructures, across all science domains. Outcome: Business developed
Year(s) Of Engagement Activity 2017
 
Description 2017.07.21 - AMS Health of the Public 2040 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.07.28 - Digital Economy Crucible 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Workshop held to support ECRs idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners
Year(s) Of Engagement Activity 2017
 
Description 2017.08.01 - IPDLN 2018 Conference - Scientific Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Planning the scientific content for the next international conference on data linkage research. Outcome: Speaker invites, topics selected, programme in draft
Year(s) Of Engagement Activity 2017
 
Description 2017.08.02 - Welsh Governement Informatics Task Force 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published
Year(s) Of Engagement Activity 2017
 
Description 2017.08.09 - Webinar for the Asia eHealth Information Network (AeHIN) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact 100 interested parties from government, academia and industry from Asia and the far east sat in on this webinar to understand how Swansea has built and operates its data infrastructure. Outcome: Potential collaborative activities and technology sharing (Swansea's technologies to Asia)
Year(s) Of Engagement Activity 2017
 
Description 2017.08.10 - AMS Health of the Public 2040 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.08.10 - Giving evidence to the UK's Longitudinal studies review (Prof Ray Chambers) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Detailed discussion on the state of play of the UK's data systems to support longitudinal research. Outcome: Not aware of any outcome
Year(s) Of Engagement Activity 2017
 
Description 2017.08.11 - Strategic meeting with CEQUR Ltd 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Establishing needs and capabilities between Swansea Group and a major new industrial company. Outcome: Potential collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.09.05 - New Brunswick (Canada) visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Deputation from province of New Brunswick (Canada) made up of government executives, research funders, and academics to understand how Swansea has set up and run SAIL DataBank and other initiatives. Outcome: Agreement to support New Brunswick as they develop their plans to build a similar data infrastructure
Year(s) Of Engagement Activity 2017
 
Description 2017.09.20 - H&CRW Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research
Year(s) Of Engagement Activity 2017
 
Description 2017.09.22 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK
Year(s) Of Engagement Activity 2017
 
Description 2017.09.25 - Joint Clinical Research Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Board meeting agreeing strategy for this research facility operated in partnership with NHS Wales' Health Board. Outcome: New focus on research in Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.09.26 - Pfizer UK Board meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Attending Pfizer pharmaceutical Board meeting to provide updates into Wales' data systems and collaboration opportunities. Outcome: Further research opportunities
Year(s) Of Engagement Activity 2017
 
Description 2017.09.29 - MediWales 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.10.01 - ICES Scientific Advisory Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Seat on the Institute of Clinical Evaluatiative sciences (ICES) Scientific Advisory Committee to provide guidance on their strategic development and recommendations to their funders and Board. Outcome: Insights into overseas centres similar to ours
Year(s) Of Engagement Activity 2017
 
Description 2017.10.06 - International Collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact International strategic meeting, mapping future collaborative opportunities across jurisdictions
Year(s) Of Engagement Activity 2017
 
Description 2017.10.19 - Centre for Epidemiology Renewal Site visit 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Part of a multi-expert team of assessors, working for Asthma Research UK to assess the progress and plans of Manchester's Centre for Epidemiology. Outcome: A formal report leading to a recommendation to refund
Year(s) Of Engagement Activity 2017
 
Description 2017.10.24 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2017
 
Description 2017.10.27 - Digital Economy Act regualtion consultation event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Participation in workshop to help refine the regulations that are currently in development to operationalise the Digital Economy Act's Research and Statistics strand. Outcome: Revised regulations
Year(s) Of Engagement Activity 2017
 
Description 2017.11.07 - Data Linkage courses and teaching 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Development of an extended agreement to provide University of Western Australia teaching and expertise to the UK via Swansea. Outcome: Continuation of high quality, subject relevant teaching to any student in the UK (short course and MSc)
Year(s) Of Engagement Activity 2017
 
Description 2017.11.10 - Super Computing Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with Welsh national supercomputing programme (all sciences) to discover levels of support and facilities potentially on offer to support health and social data sciences in Wales. Outcome: Agreement on the level and nature of on-going facilities and expertise available
Year(s) Of Engagement Activity 2017
 
Description 2017.11.14 - Discussions with Paul Bonnington and colleagues (Research Computing, Montash Universty, Australia) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact A set of discussions to scope the sharing of Swansea's data sharing platforms (SeRP and NRDAs) for use in Australia via Monash University. Outcome: An agreement for them to fund the costs of providing our technology to Australia
Year(s) Of Engagement Activity 2017
 
Description 2017.11.22 - Presentation to the English NHS National Data Opt Out Advisroy Group on SAIL Databank 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Provided a high level overview of the differing emergent strategies in Wales and England relating to patient opt-out and how Wales has managed to maintain high trust and support with its population and practitioners throughout. Outcome: Better understanding (in NHS England) about how Wales has managed population trust in health data research
Year(s) Of Engagement Activity 2017
 
Description 2017.11.27 - Presentation and facilitiate workshop to various SMEs about opportunities to access PhD studentships 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Presentation on Swansea's data expertise and facilities available to support data science agenda with industry partners and mechanisms by which Swansea can support the needs of Welsh companies. Outcome: DTC proposal
Year(s) Of Engagement Activity 2017
 
Description 2017.12.01 - Presentation and workshop participating to help Nuffield Foundation and Arthritis Research UK develop a data strategy for musculoskeletal research in the UK 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact To inform the development of a new data strategy for ARUK and Nuffield. Outcome: New strategy
Year(s) Of Engagement Activity 2017
 
Description 2017.12.06 - Working group to devise plan to move NHS Wales to using SNOMED CT in future years 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Conducting baselines review of compliant systems and framework for moving towards 100% use of SNOMED CT in the future. Outcome: New approach for Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.12.12 - Annual Awards ceremony, giving prizes to the NSH and to industry for a range of awards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Giving prizes (previously selected) to the winner of a range of awards. Outcome: Increased focus on co-working between NHS, government, academia and industry in Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.12.12 - Wales Centre of Public Policy / SAIL Databank strategy meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact First of a series of workshops to help the newly formed WCPP understand how it might pursue its work through using data and data science techniques. Outcome: Close working relationship
Year(s) Of Engagement Activity 2017
 
Description 2018.01.03 - Follow on to conversation with Ministry of Health (England) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Scoping discussion to asses how SAIL / ADRN / HDR UK can support DoH taking part in data sharing projects for public good. Outcome: Not aware of any outcome
Year(s) Of Engagement Activity 2017
 
Description 2018.01.08 - Early scoping discussions about utilising GeL's genetics platforms to process Welsh patinet sames and return the data. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Scoping discussion. Outcome: Potential agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.01.11 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals
Year(s) Of Engagement Activity 2018
 
Description 2018.01.16 - Informatics Statment of Intent implementation workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.01.17 - Research Data Alliance Workshop and Invited talk - Amsterdam 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Keynote talk on the issues related to curation and sharing of highly sensitive person-based data + workshops participation. Outcome: New highlighted focus on person-based data and privacy in the RDA
Year(s) Of Engagement Activity 2018
 
Description 2018.01.22 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2018
 
Description 2018.01.30 - Strategic meetings with ONS in the context of next stage of what was ADRN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS
Year(s) Of Engagement Activity 2018
 
Description 2018.02.01 - Public Health Wales / ADRC / SAIL strategic meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Framing a new relationship between Swansea's data platforms and Public Health Wales. Outcome: More policy-relevant research analyses
Year(s) Of Engagement Activity 2018
 
Description 2018.02.02 - Data for Children themed workshop - Chair Leon Feinstein 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Co-chair and participation in a workshop to frame a new data request to multiple government ministries and agencies to construct a linked data resource for the benefit of children though research
Year(s) Of Engagement Activity 2018
 
Description 2018.02.07 - Informatics Statement of Intent implementation workship 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.02.13 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2018
 
Description 2018.02.14 - ONS and Welsh Government meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS
Year(s) Of Engagement Activity 2018
 
Description 2018.02.27 - Asthma Data and Digital Funding Call Frontiers Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Helping to devise a new approach to the use of data to drive forward asthma research in the UK. Outcome: New data investments for asthma data research
Year(s) Of Engagement Activity 2018
 
Description 2018.02.28 - Workshop to help support a new mean of producing national statistics from routine administrative data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Helping to devise a new approach to the use of data to support the production of national statistics. Outcome: New use and methodologies
Year(s) Of Engagement Activity 2018
 
Description 2018.03.01 - Further clarifying implementation place, costs and time scales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Agreement for Monash to use Swansea's data platforms to support research and public analyses in Australia. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.06 - Workshop with British Columbia Government officals about data sharing facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.07 - Workshop with British Columbia Health system officals about data sharing facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.08 - Talk on data sharing system to support Learning Health Systems in the UK and internationally 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact To highlight the good practice in the UK and in Wales, to promote the use of Swansea's technology set and expertise. Outcome: Possible inquiries
Year(s) Of Engagement Activity 2018
 
Description 2018.03.14 - Cardiovascular research workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Talk on data opportunities and ways of achieving joint research objectives. Resulted in a decision being made to engage in project
Year(s) Of Engagement Activity 2018
 
Description 2018.03.16 - SNOMED CT Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing SNOMED strategy for Wales, resulting in the formulation of a national strategy
Year(s) Of Engagement Activity 2018
 
Description 2018.03.19 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Development of UKRI Roadmap with senior UKRI staff
Year(s) Of Engagement Activity 2018
 
Description 2018.03.21 - UKSeRP, DDP and HSAR meeting. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Infrastructure development meeting with Welsh Government colleagues
Year(s) Of Engagement Activity 2018
 
Description 2018.03.22 - Innovator Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford took part in an innovation workshop as a member of the judging panel for proposed innovations
Year(s) Of Engagement Activity 2018
 
Description 2018.03.26 - IPDLN Conference Scientific Committee meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Development of the international conference programme
Year(s) Of Engagement Activity 2018
 
Description 2018.03.27 - WCRC Senior Operational meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact David Ford attendance at steering group for major Welsh Research Centre
Year(s) Of Engagement Activity 2018
 
Description 2018.03.28 - DKUT, NMAIST & Kabarak Universities discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International collaborative project with African univeristies discussing opportunities for collaboration on MRC funding call
Year(s) Of Engagement Activity 2018
 
Description 2018.04.18 - ADRN Data for Children 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Developing new Data for Children resource
Year(s) Of Engagement Activity 2018
 
Description 2018.04.20 - HDR UK Site visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact David Ford attended a series of meetings with HDR UK representatives on their visit to Swansea University and the Data Science research teams based there, following which the decision was made to establish Swansea as an HDR site
Year(s) Of Engagement Activity 2018
 
Description 2018.04.24 - Biobanking Task and Finish Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Discussions primarily focused around the Wales Biobank, which is supported with staff based within the Swansea University Data Science team
Year(s) Of Engagement Activity 2018
 
Description 2018.04.25 - Workstream 3 - Stakeholders event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This event contributed towards the development of a new vision for a national data resource for NHS Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.04.26 - Health Data Research UK - Scientific Retreat 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Senior ADRC Wales staff participated in a strategic planning event for HDR
Year(s) Of Engagement Activity 2018
 
Description 2018.05.02 - DataLab with ADRC Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions about development of Education data resources for use with ADRC Wales data research projects
Year(s) Of Engagement Activity 2018
 
Description 2018.05.14 - The Future of Justice International Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Event to take forward evidence production for the court systems
Year(s) Of Engagement Activity 2018
 
Description 2018.05.17 - HDR UK Technical meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADRC Wales attended a wider discussion around understanding data infrastructure needs for UK
Year(s) Of Engagement Activity 2018
 
Description 2018.05.18 - Commission on Justice in Wales Scoping 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Scoping unmet legal needs in Wales, with a view to developing research opportunities with government and academics in this field
Year(s) Of Engagement Activity 2018
 
Description 2018.05.24 - GeDI workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing genetic data strategy in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.06.01 - Talk in Victoria, Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Presentations to Ministry of Health, British Columbia
Year(s) Of Engagement Activity 2018
 
Description 2018.06.05 - Qresearch, SHIP and SAIL discussion for HDR 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation and discussion with Q Research
Year(s) Of Engagement Activity 2018
 
Description 2018.06.07 - UKRI Event on "Places" 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Cluster development workshop
Year(s) Of Engagement Activity 2018
 
Description 2018.06.08 - National MSK Health Data Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation on SAIL Databank to ARUK
Year(s) Of Engagement Activity 2018
 
Description 2018.06.11 - ADRN Directors Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Discussion around how to manage new elements of transition work following London meetings the previous week
Year(s) Of Engagement Activity 2018
 
Description 2018.06.12 - ADRC Stakeholder meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Developing working arrangements with Welsh Government
Year(s) Of Engagement Activity 2018
 
Description 2018.06.14 - MS Society Research Strategy Committee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation on UKMS Register
Year(s) Of Engagement Activity 2018
 
Description 2018.06.20 - HDR UK Infrastructure meeting (Technical) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Follow up discussion with sector experts on the data infrastructure needs for UK
Year(s) Of Engagement Activity 2018
 
Description 2018.06.21 - ADRN Directors Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Round table strategy event with ADRN Directors
Year(s) Of Engagement Activity 2018
 
Description 2018.06.22 - Health and Wellbeing Childhood & Mental Health 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford led a research theme discussion around Health and Wellbeing Childhood & Mental Health at the ADR Conference in Belfast
Year(s) Of Engagement Activity 2018
 
Description 2018.06.27 - Panel meeting to discuss Family Justice Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact David Ford delivered a presentation to a senior research group around Family Justice and the opportunities for using linked data in this area
Year(s) Of Engagement Activity 2018
 
Description 2018.06.28 - SAIL scientific External Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford attended an event around the launch and future plans for an International expert panel
Year(s) Of Engagement Activity 2018
 
Description 2018.07.09 - Due diligence & MoU ceremony 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Formal signing of MoU with Bangalore
Year(s) Of Engagement Activity 2018
 
Description 2018.07.13 - ADRN Themed Data for children Partners meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Roundtable to devise data build for data research resources using assets relating to children/young people's data
Year(s) Of Engagement Activity 2018
 
Description 2018.07.18 - Summer School in digital Epidemiology from the Arthritis Research UK Centre for Epidemiology 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford participated in a talk on linking EHRdata to other data sources
Year(s) Of Engagement Activity 2018
 
Description 2018.07.20 - MRC Mental Health Data Pathfinder meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussions with colleagues involved in other research council funded project around the development of a common data platform
Year(s) Of Engagement Activity 2018
 
Description 2018.07.24 - AAAI workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI e-infrastructre development
Year(s) Of Engagement Activity 2018
 
Description 2018.07.27 - Research and Innovation Infrastructure Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford participated in an innovation workshop as a 'Dragons Den' judge
Year(s) Of Engagement Activity 2018
 
Description 2018.08.23 - Developing an admin data spine 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Providing expert advice to UKRI on the development of a cross sector administrative data resource
Year(s) Of Engagement Activity 2018
 
Description 2018.08.28 - Meeting: MS Society and Benevolent AI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Round table with innovative AI company
Year(s) Of Engagement Activity 2018
 
Description 2018.08.30 - Scottish Government visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Hosted visit from Scottish Government to demonstrate arrangements in place for admin data research at Swansea University
Year(s) Of Engagement Activity 2018
 
Description 2018.08.31 - Visit to Blackpool Local Authority 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentations around the opportunities for collaborating with Swansea University on data research projects and work
Year(s) Of Engagement Activity 2018
 
Description 2018.09.03 - Chris Newbrook meeting RE: Info Governance - and Wales' "Data Promise" 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Round table session with senior Welsh Government to develop national strategy to data sharing
Year(s) Of Engagement Activity 2018
 
Description 2018.09.03 - Longitudinal administrative data spine meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Discussions around the further development of an administrative data resource
Year(s) Of Engagement Activity 2018
 
Description 2018.09.04 - HDR UK Science Strategy visit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADRC Wales staff inputted into the development of a science strategy with HDR colleagues
Year(s) Of Engagement Activity 2018
 
Description 2018.09.04 - Haroldas Petkus re: RE: Previous 'NHS in a lab' facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions to share experience and best practice around data infrastructure technology
Year(s) Of Engagement Activity 2018
 
Description 2018.09.05 - HDR UK Design thinking workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADRC Wales staff participation in an HDR UK design workshop
Year(s) Of Engagement Activity 2018
 
Description 2018.09.07 - ADRN Data for Children Technical Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes
Year(s) Of Engagement Activity 2018
 
Description 2018.09.07 - ADRN Data for Children Technical Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes
Year(s) Of Engagement Activity 2018
 
Description 2018.09.12 - IPDLN Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact ADRC Wales attendance at international conference - IPDLN 2018 in Banff. Included numerous abstracts, research posters, and presentations from ADRC participants
Year(s) Of Engagement Activity 2018
 
Description 2018.09.24 - EDARA Study Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford attended and chaired a session of the EDARA Study Steering Committee
Year(s) Of Engagement Activity 2018
 
Description 2018.09.24 - Scoping an administrative spine with ESRC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Further work building upon initial discussions with research council colleagues around the development of an administrative data research resource
Year(s) Of Engagement Activity 2018
 
Description 2018.09.25 - UKRI MRC 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford attended and chaired a workshop on e-infrastructure requirement for MRC
Year(s) Of Engagement Activity 2018
 
Description 2018.09.28 - Morgan Academy to host cabinet office innovation team 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact David Ford gave a presentation to Cabinet Office team
Year(s) Of Engagement Activity 2018
 
Description 2018.10.02 - ICES Scientific Advisory Committee meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Participation as a formal member of the External Advisory Board to ICEs
Year(s) Of Engagement Activity 2018
 
Description 2018.10.04 - ADRC Wales impact and engagement overview meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Impact strategy for Wales discussions
Year(s) Of Engagement Activity 2018
 
Description 2018.10.04 - Pfizer programme of work 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Presentation and collaboration discussions with Pfizer Ltd
Year(s) Of Engagement Activity 2018
 
Description 2018.10.05 - SAIL scientific External Advisory Board Launch event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation on data research in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.10.08 - Discussions with MoJ about Data sharing for family justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Building on previous discussions, this event aimed to define some of the plans made around Ministry of Justice data sharing for family justice research
Year(s) Of Engagement Activity 2018
 
Description 2018.10.15 - Launch of Monash University HeLIX data platform 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact David Ford was an invited speaker at a launch event for HeLIX
Year(s) Of Engagement Activity 2018
 
Description 2018.10.16 - Keynote speaker at E-Research Australia conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford participated in an Australian e-Research Conference as a keynote speaker
Year(s) Of Engagement Activity 2018
 
Description 2018.10.19 - Keynote talk at Precision Public Health 2018 conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford participated at a Precision Public Health conference in Australia as a keynote speaker
Year(s) Of Engagement Activity 2018
 
Description 2018.10.24 - Presentations to Sydney Ministry of Health, Australia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact David Ford delivered a presentation on the work being done in the Swansea University Data Science research team to the Ministry of Health, Sydney, Australia
Year(s) Of Engagement Activity 2018
 
Description 2018.11.02 - Nuffield Foundation Oliver Bird Tendering Consultation Group Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Expert advice to funder, resulting in decisions taken around shaping a funding call
Year(s) Of Engagement Activity 2018
 
Description 2018.11.07 - New Brunswick Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford delivered a keynote talk at New Brunswick conference, Canada
Year(s) Of Engagement Activity 2018
 
Description 2018.11.09 - Meeting with Ted McDonald's team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Roundtable workshop New Brunswick centre
Year(s) Of Engagement Activity 2018
 
Description 2018.11.15 - Administrative Data Spine Scoping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Further discussions around developments of an administrative data research resource, with a focus on defining future work
Year(s) Of Engagement Activity 2018
 
Description 2018.11.21 - HCRW Centre and Unit leads' meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Roundtable strategy meeting for Welsh research infrastructure
Year(s) Of Engagement Activity 2018
 
Description 2018.11.28 - Science Strategy Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participation in a Science Strategy Board with colleagues from Oxford academia
Year(s) Of Engagement Activity 2018
 
Description 2018.12.10 - UKCRIS visit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Roundtable with research group from London, focussing on the development of collaborative work being undertaken
Year(s) Of Engagement Activity 2018
 
Description 2019.01.07 - NHS Digital/HDR UK Interoperability Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participation in an NHS Digital/HDR UK Interoperability Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.01.08 - National Social Care Data set linking to SAIL databank 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact David Ford attendance at a workshop with Social Care Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.01.09 - UKRI Research and Innovation Infrastructure Roadmap 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact UKRI workshop on research infrastructure
Year(s) Of Engagement Activity 2019
 
Description 2019.01.10 - MRC Mental Health Data Pathfinder meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact MRC workshop on mental health platform
Year(s) Of Engagement Activity 2019
 
Description 2019.01.11 - NWIS NDR Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with NWIS around collaborative opportunities with NDR development
Year(s) Of Engagement Activity 2019
 
Description 2019.01.15 - Health & Care Research Wales Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation at a session of the Wales Research Board (funders)
Year(s) Of Engagement Activity 2019
 
Description 2019.01.16 - TexGov workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact NLP for research workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.01.22 - ONS SIP development roadshow 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Planning session with ONS and ADR Wales colleagues to develop Welsh SIPs and guide national data acquisition strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.01.23 - Inward Investment team from Welsh Assembly Gov 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on Swansea research
Year(s) Of Engagement Activity 2019
 
Description 2019.01.29 - Roundtable discussion at the Nuffield foundation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Presentation on Swansea's data facilities
Year(s) Of Engagement Activity 2019
 
Description 2019.01.30 - Research Council Norway 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Funding panel member, Norway's Research Board
Year(s) Of Engagement Activity 2019
 
Description 2019.02.04 - Lecturing PMIM 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Teaching delivery to postgraduate students (PMIM)
Year(s) Of Engagement Activity 2019
 
Description 2019.02.08 - HCRW Centre & Unit Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact Discussion on collaborative working with Health and Care Research Wales Centre and Unit leads
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - HCRW Infrastructure call w/ Donald Forrester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussion on children social care data with Prof Donald Forrester, Director of CASCADE at Cardiff University
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - SAIL & Social Care Research call w/ Lisa Trigg 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion on opportunities with Lisa Trigg, Assistant Director at Social Care Wales.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.12 - Exascale Science Board Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular meetings to understand researcher requirements and to assess if supercomputing techniques could assist
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - Glyn Jones SAIL mapping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Chief Statistician for Wales - mapping the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - QUB: NI Health Data & SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Queen's University Belfast - linkage and project collaboration potential between SAIL and Northern Ireland health datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.03.13 - Meeting with Prof Andrew Morris HDRUK 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Andrew Morris HDRUK
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - Telecon w/ Lisa Holmes regarding Department for Education 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with Lisa Holmes, Director of the Rees Centre (Department of Education, Oxford University)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - UKSeRP Discussion w/ AISP, Asemio (Dennis Culhane) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Meeting with Prof Dennis Culhane, Co-PI for Actionable Intelligence for Social Policy (AISP) at Penn University (Philadelphia). Discussion around UKSeRP infrastructure and opportunities for collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.03.18 - UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable
Year(s) Of Engagement Activity 2019
 
Description 2019.03.19 - Paul Jackson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Ad hoc catch up meeting with Paul Jackson
Year(s) Of Engagement Activity 2019
 
Description 2019.03.21 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at UKRI e-Infrastructure Expert Group Meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.03.25 - Interoperability PoC Update w/ Kay Snowley (HDR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Interoperability PoC Update w/ Kay Snowley (HDR)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - HDR Scotland - connect represcribing initiative 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation in the HDR Scotland - connect represcribing initiative event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.03 - ADR Hack Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the ADR Hack Day event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - ADR Steering group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Planning, coordianting and attendance of the ADR Steering Group meeting series, which aimed to engage with policy leads in government outside of the ADRU (Welsh Government) project team
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - Blackpool Council/Better Start/Swansea Uni 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration opportunity - Sharing best practice advice and the potential to support with UKSeRP infrastructure a Blackpool Council project
Year(s) Of Engagement Activity 2019
 
Description 2019.04.10 - Teleconference w/ ScHARR team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with University of Sheffield, School of Health and Related Research (ScHARR)
Year(s) Of Engagement Activity 2019
 
Description 2019.04.21 - Census data discussion 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted ONS colleagues to advise on the development of the Welsh Census data dictionary and variables involved in data linkage process
Year(s) Of Engagement Activity 2019
 
Description 2019.04.24 - Developing the ADR UK brand and website 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in developing the ADR UK brand and website
Year(s) Of Engagement Activity 2019
 
Description 2019.04.29 - Karen Dennison: embedding longitudinal cohort studies into population administrative data sets 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting with Karen Dennison: embedding longitudinal cohort studies into population administrative data sets
Year(s) Of Engagement Activity 2019
 
Description 2019.05.01 - ONS Census Data into SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Welsh Government and SAIL discussions to co-ordinate the approach to ONS Census data acquisition
Year(s) Of Engagement Activity 2019
 
Description 2019.05.10 - DPAS development meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Participation in major planning session for the development of DPAS data analysis programme; a collaboration across multiple government and academic groups to analyse Family Justice data
Year(s) Of Engagement Activity 2019
 
Description 2019.05.14 - TC Betsy Stanko (UCL) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Teleconference call with Prof Betsy Stanko OBE, Visiting Professor at UCL and former Head of Evidence and Insight at Mayor of London's Office for Policing and Crime.
Year(s) Of Engagement Activity 2019
 
Description 2019.05.21 - ADRP Gateway review w/ Tricia Dodd & Glyn Jones 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in the ADRP Gateway review
Year(s) Of Engagement Activity 2019
 
Description 2019.05.22 - Court Reform Evaluation Advisory Panel (MoJ) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Court Reform Evaluation Advisory Panel: Arranged by MoJ; multidisciplinary expert meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.05.24 - Population Research Resources Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Population Research Resources Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.05.28 - Meeting with Tiffany Veinot, University of Michigan 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Potential collaboration discussion with Tiffany Veinot, University of Michigan
Year(s) Of Engagement Activity 2019
 
Description 2019.05.29 - Tom Margrain collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Tom Margrain collaboration meeting re: WOPEC (Optometry)
Year(s) Of Engagement Activity 2019
 
Description 2019.05.30 - MoJ Family Justice Meeting w/ Emma Gordon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Engagement with Emma Gordon regarding MoJ Family Justice work
Year(s) Of Engagement Activity 2019
 
Description 2019.06.04 - Progressing Further Data Linkage for Family Justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Progressing Further Data Linkage for Family Justice: Engaging MoJ into the DPAS arena
Year(s) Of Engagement Activity 2019
 
Description 2019.06.12 - Wellcome Event Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Participation in an event delivering a series of presentations to Wellcome
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - AOCDRCA project 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact ADR Wales staff have provided ongoing coordination and technical support to a South Wales police sponsored data research project. This project is undertaken by a Swansea/Cardiff university research team, which is looking into linguistic trends used by child groomers. Due to the incredibly sensitive nature of the data, ADR Wales safe room infrastructure (and associated accreditations) provided the sponsor with the confidence they needed to commission the research
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - HDRUK BSO Project Update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation at HDRUK BSO Project Update meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - Mark Lawler (QUB) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Mark Lawler, Associate Pro-VC and Professor of Digital Health at QUB. Meeting to update on areas of research/collaboration potential
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between Life Sciences Hub & SAIL 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration meeting between Life Sciences Hub & SAIL/ADR teams
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between MS Register - Christoph Weidemann 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Discussion on potential collaboration between MS Register and Christoph Weidemann, Associate Professor in Swansea University Department of Psycology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.18 - Prof Anna Vignoles & Judge Carol Atkinson 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Lectures as part of a NFJO agenda
Year(s) Of Engagement Activity 2019
 
Description 2019.06.19 - NFJO Data Partnership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a series of regular catch ups around Nuffield Family Justice Observatory
Year(s) Of Engagement Activity 2019
 
Description 2019.06.20 - Justice Data Set w/ Kim McGrail 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion, and giving advice, to Australian colleagues (Prof Kim McGrail) on their justice datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - SAIL Scientific Advisory Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact ADR Wales participation on the SAIL Scientific Advisory Group
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Harmonisation of legal frameworks for UK Health Data w/ HDR & NHS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting with HDR UK and NHS colleagues around harmonisation of legal frameworks for UK Health Data
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Safepod discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around the Safepod secure analysis technology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.26 - UKRI Supercomputing Science Case TC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Teleconference to discuss ADR Wales involvement in the UKRI Supercomputing Science case
Year(s) Of Engagement Activity 2019
 
Description 2019.07.01 - Whitehall data acquisition meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion re: development of a joint strategy for acquiring data from Whitehall departments
Year(s) Of Engagement Activity 2019
 
Description 2019.07.04 - CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.07.05 - Nick Moberly & UK MS Register team meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact ADR Wales participation at meeting between Nick Moberly (Chief Executive for the MS Society) and MS Register team
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - CAFCASS data transfer workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in formal planning session re: streamlining the CAFCASS data transfer process. Participation from Lancaster University, Swansea University (including senior SAIL analysts and ADR Co-investigators) and CAFCASS
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - Cancer IT Provision (Richard Clarkson) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Engagement with Dr Richard Clarkson to discuss potential support opportunities with his cancer research department
Year(s) Of Engagement Activity 2019
 
Description 2019.07.09 - ONS metadata meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales hosted event to inform on and plan the development of ONS's metadata across the ADR partnership. Included colleagues from HDR and SAIL to share their existing approaches
Year(s) Of Engagement Activity 2019
 
Description 2019.07.10 - Monash ARDC Proposal discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Monash ARDC Proposal discussion
Year(s) Of Engagement Activity 2019
 
Description 2019.07.12 - MoJ Discussion with Karen Broadhurst and Lisa Harker 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in MoJ discussion with Karen Broadhurst and Lisa Harker
Year(s) Of Engagement Activity 2019
 
Description 2019.07.15 - Jeff Giansiracusa - application for ESPRC funded hub for mathematical sciences in healthcare 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Engagement with Prof Jeff Giansiracusa around an application for ESPRC funded hub for mathematical sciences in healthcare
Year(s) Of Engagement Activity 2019
 
Description 2019.07.17 - Manchester Digital Epidemiology Summer School 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact David Ford participation in a wider programme of lecturing at the Manchester Digital Epidemiology Summer School
Year(s) Of Engagement Activity 2019
 
Description 2019.07.19 - SAIL External Advisory Board - Paul Roderick 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Prof Paul Roderick (University of Southampton) in advance of the SAIL Advisory panel
Year(s) Of Engagement Activity 2019
 
Description 2019.07.23 - Conference call with Univeristy of Chicago (Ronan Lyons, Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Discussion around potential collaborations with University of Chicago (Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan)
Year(s) Of Engagement Activity 2019
 
Description 2019.07.29 - Australian Global Experiences Digital Research Infrastructure Federations 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales participation and coordination of a fact finding delegation visiting Swansea from the Australian Global Experiences Digital Research Infrastructure Federations.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.06 - Oliver Bird Fund Research Programme Panel Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation as a member of the funding decision panel (Oliver Bird Fund Research Programme)
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - Digital Health CRC w/ Victor Pantano 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Discussion on Australia's use of data sharing with Victor Pantano, CEO of Digital Health CRC.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - ONS National Statician's Quality Review (Anthony Edwards) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales engagement with an ONS review - assessing current linkage across government and linking across academia.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.29 - Karen Broadhurst update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Update discussion with senior academic colleagues in Lancaster University around the opportunities to connect various justice data research projects. This was with a view to avoiding unnecessary duplication of work and building on existing work to maximise outputs.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.02 - Healthwise Wales External Panel Discussion (Shantini Parajothy) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Healthwise Wales External Panel Discussion (Shantini Parajothy)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.05 - ADR 2019 2nd Scientific Committee Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales membership and participation on ADR 2019 Scientific Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.09.06 - EHDEN Data Partner Call (Nigel Hughes) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion on a potential application - EHDEN Data Partner Call (Nigel Hughes)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.16 - Population segmentation w/ CTMUHB 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration discussions with Cwm Taf Morgannwg University Health Board re: population segmentation
Year(s) Of Engagement Activity 2019
 
Description 2019.09.17 - BREATHE discussion w/ Gwyn Davies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussion around research opportunities with Gwyn Davies re: BREATHE project.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.18 - Health Foundation social care call (Sarah Lowe & Lisa Trigg) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Health Foundation social care call (Sarah Lowe & Lisa Trigg)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.19 - ADR Wales: DDP Discussion & Monthly catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact As part of a regular catch up with senior Welsh Government colleagues, ADR Wales staff discussed the future options for the development of a data sharing solution for use with local authorities in Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.09.20 - MediWales Directors Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation in the MediWales Directors meeting (David Ford is a Director)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Digital Leaders Wales (Swansea School of Management) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales participation in Digital Leaders Wales (Swansea School of Management) event
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Fliss Bennee (WG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Fliss Bennee, Deputy Director of Technology and Digital at Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.10.01 - ICES Scientific Advisory Committee 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Membership of the ICES Scientific Advisory Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.10.04 - PHRN RIIP Funding Call 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with the Population Health Research Network re: RIIP funding call
Year(s) Of Engagement Activity 2019
 
Description 2019.10.08 - HealthWise Wales Meeting with HCRW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions between HealthWise Wales and Health and Care Research Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.09 - Rebecca Cosgriff - CFT & BREATHE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Potential collaboration discussion with Rebecca Cosgriff, Director of Data and Quality Improvement at Cystic Fibrosis Trust (CFT)
Year(s) Of Engagement Activity 2019
 
Description 2019.10.14 - Barry Sandison CEO AIHW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Engagement with Barry Sandison, CEO for Australian Institute of Health and Welfare (AIHW). AIHW is an independent group which provides information and statistics to the Australian Government in order to support better policy and service delivery decisions.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.16 - OECD Workshop in Paris 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales attendance at the Organisation for Economic Co-operation and Development (OECD) event in Paris
Year(s) Of Engagement Activity 2019
 
Description 2019.10.22 - HCRW Infrastructure Away Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at Health and Care Research Wales away day - with a focus on health data infrastructure across Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.23 - GSS Data Linkage Symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at GSS Data Linkage Symposium
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - BREATHE project setup 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR staff supported the development of BREATHE. The BREATHE Digital Innovation Hub is a consortium of five academic institutions in the UK and several industry partner seeking to facilitate and accelerate respiratory science initiatives and outcomes.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - Daniel Reidpath Safe Havens (Bangladesh) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion around potential collaboration with Daniel Reidpath, Senior Director for Health Systems and Population Studies Division in Bangladesh
Year(s) Of Engagement Activity 2019
 
Description 2019.10.29 - UK Health Data Research Alliance Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in the UK Health Data Research Alliance Board
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Current Australian Initiatives - Merran Smith 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Engagement with Merran Smith, Chief Executive for Population Health Research Network in Australia. Discussion was re current Australian initiatives
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Wellcome Landscape Review - UCL team on lesssons learnt from longitudinal population studies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Feedback discussion with UCL team on lesssons learnt from longitudinal population studies
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Welsh Centre for Emergency Medicine Research (WCEMR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions around collaborative opportunities with the Welsh Centre for Emergency Medicine Research (WCEMR)
Year(s) Of Engagement Activity 2019
 
Description 2019.11.06 - Office for Statistics Regulations Conference 'A New Regulatory Vision' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales attendance at the ONS Regulations Conference 'A New Regulatory Vision'
Year(s) Of Engagement Activity 2019
 
Description 2019.11.13 - Hub Commerical Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation at the Hub Commercial leads meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.11.18 - Daffodil Cymru meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Supporters
Results and Impact ADR staff supported an engagement with Daffodil Cymru, an organisation that utilises multiple sources of data to identify care services needs across Wales. This discussion was aimed at identifying opportunities for joint working between Daffodil and the research centres that work alongside ADR Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.11.19 - Technical Team Meeting/Trusted Research Environments (Gerry Reilly) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a discussion led by Gerry Reilly, Chief Technology Officer for HDR UK. Discussion was around trusted research environments
Year(s) Of Engagement Activity 2019
 
Description 2019.11.21 - Health Data Research UK Science Leadership Symposium and Dinner 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales colleagues (alongside other Swansea University data research teams) attended Health Data Research UK Science Leadership Symposium and Dinner
Year(s) Of Engagement Activity 2019
 
Description 2019.11.26 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Fuel Poverty in Wales conference
Year(s) Of Engagement Activity 2019
 
Description 2019.11.27 - HDR UK Public Health meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the HDR UK public health meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.12.02 - SAIL External Scientific Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales staff participated and supported the coordination of the SAIL External Scientific Advisory Board
Year(s) Of Engagement Activity 2019
 
Description 2019.12.03 - Housing, Health & Fuel Poverty (Paul Roderick) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Development of ongoing collaborative discussions and planning with Paul Roderick in the areas of housing, health and fuel poverty data. Conversations included research team members on the Welsh Government Fuel Poverty project
Year(s) Of Engagement Activity 2019
 
Description 2019.12.06 - PPHI Management Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact ADR Wales participation in the Population and Patient Health Informatics (PPHI) Management Board. PPHI is a cross disciplinary research group within Swansea University which brings together academic colleagues that have a joint interest in population data research
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - 4th International Conference on Administrative Data Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact ADR Wales team heavily supported the delivery of the ADR 2019 conference, with a number of staff facilitating the events and discussions throughout the day. A number of associated researchers and academics attended and presented
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented Paper on Careers Guidance and Transitions to Further Education in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented paper on Receipt and Effectiveness of Careers Guidance in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Flying Start presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Analysis of Flying Start outcomes using linked data: Childcare analysis' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Ministerial speech at ADR Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Minister for Finance and Trefyndd opened the second day of the ADR Conference with a speech that reflected their strong support for the work of ADR Wales and the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Well-being SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Assessing the health impacts of adults' participation in Wales: Investigating the mediating role of accesibility to sports facilities' at ADR 2019 conference. Presntation was a high level descriptive/text based update on the work of an upcoming report.
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Early Years SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The association between mother's alcohol consumption during pregnancy and their child's educational attainment and risk of hospitalisation by age 14 - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (IT) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Better data, better knowledge: developing an ideal honlessness data system drawing on lessons from global practice' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (PM) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The Prevention priority - linking education and homelessness data to inform policy in Wales' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.12 - Pennsylvania University visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales hosted a visit from senior research and academic visitors from Pennsylvania University to discuss opportunitites for future collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.12.18 - GPW & SAIL - UK Genomics Strategy 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with colleagues at the Genomic Partnership Wales (GPW - Wales Gene Park) to support development of the UK Genomics Strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.12.19 - CDSI visit to SAIL 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted a visit from the Leicester Clinical Data Science Institute. ADR staff in attendance provided an overview of the model utilised in Wales to help identify opportunities for the CDSI to utilise a similar method (supported by the UKSeRP)
Year(s) Of Engagement Activity 2019
 
Description 2020.01.08 - HDRUK/Hub Commercial Framework Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with HDR UK to discuss the Hub Commercial Framework
Year(s) Of Engagement Activity 2020
 
Description 2020.01.14 - MoJ, FJO and SAIL data linkages 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around data linkage opportunities between Moj, Family Justice Observatory, and SAIL datasets.
Year(s) Of Engagement Activity 2020
 
Description 2020.01.23 - Presentation to WRA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Supported Chief Statistician for Wales in an engagement with the Welsh Revenue Authority to discuss the development of a collaborative research project
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Housing Information Group event
Year(s) Of Engagement Activity 2020
 
Description 2020.02.17 - ADR Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales undertook a process of refocusing the programme steering group to include participants from senior policy (Welsh Government) who could take a more active advisory role. This re-aligned group included the senior SIP academics as well, with the intention of reinforcing a direct link between the work being done at a research level and the policy team implementing the outputs
Year(s) Of Engagement Activity 2020
 
Description Presentation as part of the Farr - CIPHER launch event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Other audiences
Results and Impact Interest in CIPHER (Farr)

Better engagement with NHS Wales amd its staff. More collaborations with academics in Wales
Year(s) Of Engagement Activity 2013
 
Description Presentation at Connecting Big Data conference in Truro, Cornwall 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Lots of discussion about approaches and responsibilities to privacy protection and research

Better understanding by the non-health research communities (environmental and weather) to the use of health data, in terms of privacy protection, computational issues and professional practice
Year(s) Of Engagement Activity 2014
 
Description Presentation at UK LifeSciences - prospects for innovation , investment and global competitiveness in Whitehall, London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Much debate as how data and data business can be used to drive the economy and improve public services

Seveeral on-going connections with delegates
Year(s) Of Engagement Activity 2014
 
Description Presentation on High Performance Computing and health data science at HPCWales event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Considerable interest in big data capabilities and high performance computing

Increased level of interest in the use of big health data for research and for company benefit.
Year(s) Of Engagement Activity 2013
 
Description Presentation on Information Governance to Health Data Linkage Conference, Rio de Janeiro, Brazil 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact talked followed by 40 minute plenary discussion session

Asked as international expert to provide input into the conference to guide the development of a Brazilian national strategy for data sharing and reuse.
Year(s) Of Engagement Activity 2014
 
Description Presentation to NCRI Conference 2013 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation workshop facilitator
Geographic Reach National
Primary Audience Other audiences
Results and Impact Many questions and positive comments. Many subsequent discussions

continued dialogue with cancer informatics leads in UK
Year(s) Of Engagement Activity 2013