Compositions for Cochlear Implantees Follow-On Project

Lead Research Organisation: University of Southampton
Department Name: Faculty of Engineering & the Environment

Abstract

For severely or profoundly deaf people who receive little benefit from conventional hearing aids a cochlear implant (CI) can provide useful speech perception. However, current devices are very poor at conveying pitch information and therefore, although many CI users express a desire to hear music again, they are often dissatisfied with the sound of music through their implant and some avoid music altogether.

Objectives for the original AHRC funded 'Compositions for Cochlear Implantees' research project included developing and evaluating rehabilitation materials to aid music appreciation for CI users. Feedback from CI users in a series of consultation sessions and workshops strongly suggested that a music rehabilitation programme should be interactive, creative, open-ended, educational and challenging. Furthermore, it was evident that CI users wanted a resource that not only enabled them to develop their music perception abilities, but also helped them to re-engage with music.

The 'Interactive Music Awareness Programme' (IMAP) was developed in response to the needs of CI users and can be run from a USB memory stick. It has an interface that links to software applications, which enable users to access music by creating, manipulating and playing with music in an open-ended way. In this follow-on project the IMAP will be developed further into an online resource, which will make it freely and readily accessible to CI users worldwide.

The IMAP will also be expanded to include artists and compositions from a wider range of genres to ensure that the IMAP will appeal, and be relevant to CI users with differing music preferences, hearing histories and cultural backgrounds. This will also help to expose CI users to music that may be more accessible through their implant, which they may not have previously considered. Artists currently featured include Philip Selway (Radiohead), Blueswerver, Robin Grey and Madelaine Hart.

Finally, IMAP use will be promoted and supported through a new training programme and workshop for service providers and CI users in the UK and through online training resources and guides for service providers and CI users further afield. It is anticipated that unique inter-professional learning opportunities will arise from bringing together audiologists, hearing therapists, teachers of the deaf, music therapists, musicians and other professionals that will ultimately benefit the provision of music rehabilitation and therapy.

Planned Impact

User groups: It is estimated that over 219,000 people worldwide have received a CI and in 2005 the patient opportunity in Western Europe and the USA was estimated at 2.2 million. Acquired hearing loss in adults with an interest in music may impact especially on their quality of life if it means that they are no longer able to, or are confident in, participating in music-related activities and pursuits. The 'Interactive Music Awareness Programme' (IMAP) was developed in response to the needs of CI users and runs from a USB memory stick with applications that enable users to access music by creating, manipulating and playing with it. The online version that will be developed in this follow-on project will provide CI users with free tools to enhance their music perception abilities, leading to increased satisfaction and participation in music related activities, quality of life and creative output. Forum facilities will be included to promote social inclusion and enable the exchange of strategies for listening to music. User focus groups will inform the design of the online resource and a workshop will be developed to support it. Participants in the user focus groups will be directly contributing to the development of a new online music rehabilitation resource and they will be invited, as experts, to experiment with the resource and discuss issues concerning usability with academics and other professionals. CI users attending the workshop will receive training and support in using the online resource in a friendly environment where they will be able to meet with other CI users and exchange experiences. Whilst the 'target audience' of this follow-on project are severely or profoundly deaf people who use a CI, it is anticipated that the resource will appeal to the hearing impaired population in general and access will not be exclusive. Other music therapy client groups may additionally benefit from the resource and use by these client groups will be explored by a Music Therapist. It is anticipated that the resource will be widely advertised to CI users through a demonstration at a National CI Users Association event and it will be promoted to CI users by service providers, charities and via the 'Music Focus Group' website, which was set up in the original Compositions for Cochlear Implantees project: www.soton.ac.uk/mfg.

Service providers: An IMAP training event and a workshop good practice guide will be developed for service providers. In bringing together audiologists, hearing therapists, teachers of the deaf, music therapists, musicians and other professionals, this project will provide unique inter-professional learning opportunities that will ultimately benefit the provision of music rehabilitation by CI centres, charities for the deaf, local education services and care providers. Service providers in general will directly benefit from this follow-on project in being able to advise on, as well as provide, resources for music rehabilitation.

Public awareness and engagement: Part of the original Compositions for Cochlear Implantees project involved the design of a stand called 'Hearing Music', which features the IMAP and promotes public engagement with hearing science and music (www.soton.ac.uk/mfg/current_projects/outreach). This stand is one of seven activities that form the University's 'Bringing Research to Life' Roadshow, which is touring science festivals, centres and schools across the south of England. The original project will conclude in September with a public seminar and performance at the Turner Sims Concert Hall (www.soton.ac.uk/mfg/current_projects/concert). In the follow-on project the outreach materials developed in the original project will feature again in the University of Southampton's 2012/13 'TEAtime lecture series' (www.soton.ac.uk/ses/outreach/activities/teatime.page) with an accompanying workshop designed to inspire and engage A-level students in the fields of hearing science and music.

Publications

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Hodkinson SM (2014) More from music: music rehabilitation for cochlear implant users in 14th World Congress of Music Therapy

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Hodkinson SM (2014) More from music: developing music rehabilitation resources for cochlear implant users in The first BAMT conference. Counterpoints: Music therapy practice in the 21st century

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Van Besouw RM (2015) Participatory design of a music aural rehabilitation programme. in Cochlear implants international

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Van Besouw RM (2014) Aural rehabilitation through music workshops for cochlear implant users. in Journal of the American Academy of Audiology

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Van Besouw RM (2013) Development and evaluation of a music rehabilitation program with adult cochlear implant users in 13th International Conference on Cochlear Implants and Other Implantable Auditory Technologies

 
Description The objectives of this follow-on project were to:

1. Develop the Interactive Music Awareness Programme (IMAP) into an online resource

2. Extend the applications in the IMAP to include artists from a wider range of genres

3. Promote and support IMAP use by developing a training programme and workshop for service providers and cochlear implant (CI) users in the UK, and through a guide/online resources for service providers and CI users further afield

Objectives 1 & 2 were met through iterative development and evaluation of an online version of the IMAP using a participatory design process with CI users. New audio and video material has been sourced from a range of artists including STOMP, 10cc, Philip Selway, Cliff Richard, WoodField and Zoe Bestel. The online version of the IMAP is now available at www.morefrommusic.org and is currently being used by over 200 CI users, hearing aid users and professionals.

Objective 3 was met through a 'Music workshops for adult CI users' good practice guide aimed at professionals and now available online at www.soton.ac.uk/mfg/music_info/professionals.html. The good practice guide was promoted to audiologists, hearing therapists, speech and language therapists, musicians, music therapists, students and other professionals at a one-day music workshop training event for professionals run by the project team in 2013. Resources from this event have been made available for professionals on the University of Southampton Music Focus Group website at www.southampton.ac.uk/mfg/music_info/professionals.html.
Exploitation Route An NIHR grant proposal planning meeting was held in January 2014 with potential collaborators and patient involvement to discuss funding for a multicentre trial of the online version of the IMAP. At this meeting it was agreed that the impact of the IMAP on music-related quality of life would be an important outcome to measure; however, such a measure does not currently exist. Research is now being undertaken to generate a conceptual framework to describe CI users' relationship with music, taking into account quality of life. This framework will be used as the basis for the development of a new music-specific quality of life measure that can then be used to evaluate the impact of training programmes such as the IMAP, as well as the impact of changes to CI fitting and technology.
Support for further development and maintenance of the IMAP is also currently being discussed with CI manufacturers.
Sectors Healthcare

URL http://www.southampton.ac.uk/mfg/
 
Description The IMAP is available at: www.morefrommusic.org and is currently being used by over 200 CI users, hearing aid users and professionals. We are in the process of distributing hard copies of the 'Music workshops for adult cochlear implant users: a good practice guide' with instructions for using the IMAP to CI centres across the UK. An annual programme of music workshops for adult CI users has also now been established at the University of Southampton Auditory Implant Service: http://ais.southampton.ac.uk/patient-workshops/ The research has also featured in 'The Limping Chicken', a deaf blog, which is the 6th most popular disability blog site in the world: http://limpingchicken.com/2014/10/16/music-cochlear-implant/#comments
First Year Of Impact 2014
Sector Communities and Social Services/Policy,Healthcare
Impact Types Societal

 
Description Music workshops for adult cochlear implant users: a good practice guide
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
URL http://www.southampton.ac.uk/mfg/music_info/professionals.html
 
Title Interactive Music Awareness Programme (IMAP) 
Description The aim of the IMAP is to aid music appreciation and it was developed using a participatory design approach with adult cochlear implant (CI) users from the University of Southampton Auditory Implant Service and members of the UK National Cochlear Implant Users Association. CIs can enable severely or profoundly deaf people to perceive sounds and understand speech. However, current devices are very poor at conveying pitch information and therefore, although many CI express a desire to hear music again, many are dissatisfied with the way music sounds through their implant. The IMAP has 24 sessions that link to stand alone applications, which enable users to create and manipulate music. The applications are introduced using written and subtitled video instructions, and each session ends with either a test or directed listening task. Users can also comment on the IMAP in a forum and give feedback. 
Type Of Technology Webtool/Application 
Year Produced 2014 
Impact The IMAP is currently being used by over 130 cochlear implant users, hearing aid users and professionals. The findings from a randomised, crossover trial of the prototype with adult cochlear implant users undertaken in 2012 indicate that the IMAP is beneficial for music perception and in particular, instrument recognition. 
URL http://morefrommusic.org/
 
Description BBC Radio Solent Interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Local radio interview promoting the launch of the IMAP.

Potential impact includes raised public awareness of deafness and music.
Year(s) Of Engagement Activity 2014
 
Description British Cochlear Implant Group Conference and Annual General Meeting presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact An oral presentation titled 'An Interactive Music Awareness Programme for cochlear implant recipients (IMAP)' was given by Mary Grasmeder from the University of Southampton Auditory Implant Service. The presentation was well received and generated interest in the IMAP.

After the presentation the Treasurer of the National Cochlear Implant User Association (NCIUA) invited us to contribute an article about the IMAP for the NCIUA newsletter.
Year(s) Of Engagement Activity 2014
 
Description Focus group 1 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Participants in your research and patient groups
Results and Impact Focus group with adult cochlear implant users to evaluate a demo online version of a computer-based music aural rehabilitation programme

Feedback from the focus groups were used to improve the Interactive Music Awareness Programme, which is now available online for free at www.morefrommusic.org
Year(s) Of Engagement Activity 2013
URL http://www.southampton.ac.uk/mfg/news/imap_focusgroups.shtml
 
Description Focus group 2 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Participants in your research and patient groups
Results and Impact Focus group with adult cochlear implant users to evaluate a demo online version of a computer-based music aural rehabilitation programme.

Feedback from the focus groups were used to improve the Interactive Music Awareness Programme, which is now available online for free at www.morefrommusic.org
Year(s) Of Engagement Activity 2013
URL http://www.southampton.ac.uk/mfg/news/imap_focusgroups.shtml
 
Description IMAP Launch Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Participants in your research and patient groups
Results and Impact An event aimed at patients and professionals to launch the online version of the 'Interactive Music Awareness Programme'.

The launch event was used to publicise the Interactive Music Awareness Programme, which is now available online at www.morefrommusic.org and is currently being used by over 130 cochlear implant users, hearing aid users and professionals.
Year(s) Of Engagement Activity 2014
URL http://www.southampton.ac.uk/mfg/news/imap_launch.shtml
 
Description Music workshop for adult cochlear implant users 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Participants in your research and patient groups
Results and Impact A music workshop to 1) enable attendees to explore which aspects of music they are able to perceive and appreciate and 2) to raise awareness of listening strategies, technology and rehabilitation resources (including the IMAP) for music.

We had lots of positive feedback from patients about this workshop and several of the attendees indicated that they would go on using the IMAP. Potential impact includes positive changes in attitude and behaviour towards music (as measured for previous workshops - see: van Besouw et al. (2014) Aural rehabilitation through music workshops for cochlear implant users. J Am Acad Audiol, 25, 311-323). An annual programme of music workshops for adult CI users has also now been established at the University of Southampton Auditory Implant Service: http://ais.southampton.ac.uk/patient-workshops/
Year(s) Of Engagement Activity 2013
URL http://www.southampton.ac.uk/mfg/news/september_workshop.shtml
 
Description Rehabilitation training day invited presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited presentation about the Compositions for Cochlear Implantees project at a 'Rehabilitation for the Cochlear Implanted Adult' training day aimed at Audiologists, Speech and Language Therapists, Hearing Therapists, Social Workers and other professionals.

Potential impact includes a raised awareness of music rehabilitation resources.
Year(s) Of Engagement Activity 2013
 
Description Research seminar at the Nottingham Hearing Biomedical Research Unit 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited presentation on the 'Development and Evaluation of a Music Rehabilitation Programme with Adult Cochlear Implant Users'.

Potential future research collaboration.
Year(s) Of Engagement Activity 2013