Reproductive Bodylore: the role of vernacular knowledge in women's contraceptive decision-making

Lead Research Organisation: The Open University
Department Name: Faculty of Wellbg, Educ & Lang Sci(WELS)

Abstract

Unintended pregnancy remains a Public Health concern, yet we still do not know enough about the influences on women's contraceptive choices. Existing research calls for more insight about the influences of women's informal social networks on contraceptive choice. That is - stories, anecdotes, 'friend of a friend' tales, rumor, personal experience narratives and other informal communications. This project is highly significant in that it explores vernacular knowledge about the reproductive body and contraception through drawing together folklore studies and health research. An approach which is uniquely innovative and novel - there is at present no existing study on the topic in the UK and only very limited international focus.

The project addresses the question: How does vernacular knowledge influence women's contraceptive choices and mediate their experiences of reproductive control?
It has a number of aims: 1) To explore and document the greatest possible range of vernacular knowledge about the reproductive body and contraception 2) To offer an interpretation of this data, analysing and theorising how vernacular knowledge about contraception is transmitted between friendship and kinship groups, and how it may influence attitudes, behaviour, and experience 3) To engage with policy and practice and to enhance practitioner understandings about women's vernacular knowledge of the reproductive body, and to make appropriate suggestions for improving services.

In seeking to address these aims a multistrand approach comprising two Work Packages and a dissemination stage will be employed.

Work Package 1 will involve re-analysis of project data from a number of previous studies Victoria Newton (PI) and Lesley Hoggart (Co-I) have undertaken on women's contraceptive use and reproductive control (as listed in the case for support). This re-analysis will inform the development of the topic guides for the gathering of new qualitative data in WP2. In this way, the new research will be firmly grounded in research undertaken in the UK since 2010. It will provide a solid platform from which to develop robust and informed research tools (the 'prompt topics') for WP2.

Work Package 2 is a placement for the PI (VN) at Public Health England (PHE). This strand involves participatory research and will involve consulting with, including and working together with up to 20 lay researchers, who will be recruited via PHE's networks. Volunteer researchers will undertake interviews and focus groups among their own friendship/kinship and social networks. They will also search for media/social media stories stories. Data from this strand will be made available digitally via the Open University's Open Access Data Archive (ORDO).The placement will also involve sharing findings and implications for practice via 6-8 focus groups with clinicians at clinic sites across the UK. WP2 will culminate in a one-day symposium at The Folklore Society.

Dissemination: The project will culminate in a Public Engagement exhibition co-hosted in a public space in London - the geographic location of project partners (Public Health England and The Folklore Society). The exhibition will be designed and curated by The Liminal Space. The Reproductive Bodylore exhibition will be interactive and visitors will be invited to contribute their own thoughts and stories about contraception around the theme of 'I heard that....' The aim of the exhibition will be to demystify stories of contraception and invite engagement. The exhibition will also be showcased at sexual health practitioner conferences - eg, FIAPAC and RCOG to promote debate around informal communication, misinformation and individual contraceptive choice.

Planned Impact

The project has been designed collaboratively with key stake holders and project partners and will have impact on a number of communities beyond academia. Our advisory group will provide multiple routes for stakeholder engagement.
Women as users of contraception: On an individual level, the project will enhance the wellbeing of women through a number of different avenues. The main output of the project - the public engagement exhibition - will facilitate discussions about contraceptive use. The event will be a 'living exhibition', where visitors will be able to contribute their own stories and anecdotes to the project. The exhibition will also be an opportunity for common misperceptions to be addressed. Universal contraceptive choice will be at the heart of the exhibition, and all viewpoints will be valued. The aim of the event is not to encourage use of one type of contraceptive over another. Rather it is intended to value and highlight women's different contraceptive decision-making pathways without judgement. By making obvious the different stories about contraception (and women's concerns) the project will address and challenge stigma about the contraceptive choices women make, showcasing the different processes and values involved in an individual's choice. We hope that visitors to the exhibition will broaden their views and awareness about different methods of contraception. Evaluation: Following a model established with previous public engagement projects, the project team will undertake a formative evaluation process. We will collect visitor feedback (written and interview); interview volunteers; monitor social media and Press reception. We will then share our learning by: speaking at medical conferences; writing peer-reviewed publications and Press-releases; and running a social media campaign.
Participant and Public Involvement: The project contains a large component of participatory research, where lay researchers are involved in the collection and analysis of research data. The participatory methods benefit these communities by providing an opportunity to contribute towards and inform research that makes a difference to how other women's contraceptive choices and decision-making are supported. The participatory research will also upskill participants and give them experience in research methods and analysis techniques, which may be beneficial to CV development and future employability. The lay researchers' may also benefit from increased confidence as their contribution will directly inform the concept development of the Public Engagement exhibition.
Clinical partners who deliver contraception services: The project will provide an evidence base for the public health concern of unintended pregnancy and will facilitate the development of interventions and resources to support women in their contraceptive choices. During the placement at Public Health England, the PI will work with practitioners to develop new resources to support contraceptive consultations. These may include interventions such as an 'aide mémoire' for asking women about their preferences and concerns about a particular type of contraceptive.
Impacts will also extend beyond individual organisations to UK national bodies: The exhibition will be showcased at practitioner conferences such as the Faculty of Sexual and Reproductive Health and the Royal College of Obstetricians and Gynaecologists. Engaging with these national professional bodies is key to promoting growth in both awareness and activity around vernacular contraceptive knowledge. Collective efforts to explore vernacular knowledge has benefits for the wellbeing of women, and for contraceptive care providers. The project will highlight how arts and humanities research can be applied to a public health setting and break down barriers between academia and practice, leading to possible further interdisciplinary collaborations to tackle difficult and yet unaddressed research problems.

Publications

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Title Illustrated definition - 'vernacular knowledge of contraception' 
Description We commissioned Lucy Wright (a folklorist and artist) to design a visual representation of our definition of vernacular knowledge. We intend to use this artwork to help support our lay researchers in their fieldwork. The artwork is grounded in the qualitative analysis of Work Package 1. 
Type Of Art Artwork 
Year Produced 2020 
Impact TBC - we intend to use this ourwork during our training sessions with lay researchers in Work Package 2. 
 
Description Internal OU Funding - Research Development (Competitive Round) - Literature Review: Male partner's involvement in contraceptive and reproductive decision-making. Funding applied for after discussion at Bodylore Advisory Group.
Amount £1,783 (GBP)
Organisation Open University 
Sector Academic/University
Country United Kingdom
Start 03/2021 
End 07/2021
 
Description Placement at Public Health England (part of Work Package 2) 
Organisation Public Health England
Country United Kingdom 
Sector Public 
PI Contribution The PI (Victoria Newton) is currently on virtual placement at PHE. As part of this placement, Victoria has: 1) Attended PHE team meetings 2) Presented at a webinar with PHE and Bloody Good Period on menstruation, language and stigma (circa 550 participants signed up) 3) Has joined a steering group for a project on women's reproductive health experiences (between PHE and LSHTM) 4) Assisted in initiating a seminar series aimed at knowledge exchange with policy makers. The first seminar took place on 26th February 2021.
Collaborator Contribution The placement at PHE has afforded a number of opportunities in networking and knowledge exchange. 1) Victoria presented an overview of the project at a PHE team meeting in November 2020. 2) PHE is supporting a seminar series (detailed above) which is aimed at sharing research findings with policy makers. Victoria shared the findings from Work Package 1 at the first seminar in February 2021. 3) PHE is supporting project recruitment and has brokered introductions to a number of networks who can support recruitment to the project (E.g. PHE's people's panel) 4) PHE has brokered introductions to other researchers working in similar fields, some of whom have agreed to join the project Advisory Group.
Impact 1) Webinar with PHE and Bloody Good Period on menstruation, language and stigma (circa 550 participants signed up) - interdisciplinary (health and folklore studies) 2) Seminar with PHE's Reproductive and Public Health Research Group - "Choosing Contraception: the impact of knowledge, experience and social influence on women's decision-making" - Victoria presented the themes from Work Package 1 of the Reproductive Bodylore project on 26th February 2021.
Start Year 2020
 
Description Analysis workshop with volunteer researchers 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact 10 volunteer researchers attended an analysis workshop over Zoom. During this 2-hour workshop we discussed qualitative analysis and undertook some basic coding exercises. We then asked participants to reflect on the tentative findings and discuss whether they resonated with the experiences and knowledge of their interviewees.
Our findings related to the following themes: natural vs. medical; family and friends; diverse information sources; reproductive control as a balancing act; experiential knowledge valuing different knowledges. After presenting these largely descriptive themes we asked two key questions: 1) Do these findings resonate with what your participants were saying? 2)Are there any additional points we have missed/should look at?
At the workshop, attendees actively discussed their experiences with conducting the interviews and noted some emerging themes from their experiences. On reflecting on their involvement volunteer researchers noted that they gained skills in data collection and conducting interviews, commenting that they found the interviewing process creative and insightful. It led them to have increased knowledge and openness and they noted that the interview process increased their knowledge around contraception and allowed them to have these conversations with friends. This helped to address some of the stigma of the subject as a more open discourse is a powerful tool in addressing reproductive stigma.
Year(s) Of Engagement Activity 2021
 
Description Invited to join a research project Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Was able to contribute to the design of a new study on women's reproductive health led by PHE and LSHTM.
Year(s) Of Engagement Activity 2021
 
Description Menstrual Wellbeing Seminar with Public Health England and Bloody Good Period 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact I gave a short presentation about menstruation, language and stigma, which sparked chat questions and discussion about the significance of language in perpetuating menstruation-relate stigma.
Year(s) Of Engagement Activity 2021
URL https://eur01.safelinks.protection.outlook.com/?url=https:%2F%2Fclicks.eventbrite.com%2Ff%2Fa%2F7nwg...
 
Description Presentation at the Folklore Society Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Presented at a panel on Applied Folkloristics, which sparked debate around belief and knowledge, which continued throughout the conference,
73 registered participants at the conference, mix of academics, general public and hobbyists. International reach.
Year(s) Of Engagement Activity 2021
 
Description Public engagement workshop with volunteer 'lay' researchers 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Development workshop for Public Engagement exhibition. Led by public engagement consultants The Liminal Space. Attended by project advisory group members and four volunteer 'lay' researchers.
Year(s) Of Engagement Activity 2023
 
Description Reproductive and public health research group - evidence informing policy. Seminar 1: Choosing Contraception: the impact of knowledge, experience and social influence on women's decision-making 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact As part of her placement at PHE, Victoria has helped to set up a bi-monthly seminar group: reproductive and public health research group - evidence informing policy. The seminars are aimed at maximising the policy-research impact of reproductive health research.

The seminars consider the following broad questions as well as specific issues that are brought up by the research being presented.

Who are the key target audiences for this research?
What are the relevant policy questions of the research?
What are the key outcomes that are likely to influence change?
What needs to happen, by who, how and when to respond to the research?
What are the key levers to help influence change?
What are the recommended next steps?

Participants were engaged and thought about how the research/presentations could be applied in their own context.

Plans have been made to continue discussions around 'contraceptive choices' using an online whiteboard, in addition to holding future seminars on new topics. The next seminar will be on 'supported self-care'.
Year(s) Of Engagement Activity 2021
 
Description Research presentation at Reproduction, Sexualities and Sexual Health Research Group (internal OU) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact VN gave a 'work in progress' presentation to the Reproduction, Sexualities and Sexual Health Research Group at the OU. The presentation reflected on the participatory research aspect of the Bodylore project. Two postgraduate students asked for follow up meetings/mentoring to discuss further the learning from the Bodylore project and possible applications for their own postdoctoral studies.
Year(s) Of Engagement Activity 2021
 
Description Research workshop with volunteer 'lay' researchers 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact 24 participants attended a workshop to brief them about the project and train them in a basic research interview. Workshops lasted 2 hours and took place on 27/03/21, 31/03/21, 01/04/21. Participants reported enjoying the training and being enthusiastic about their involvement in the project.
Year(s) Of Engagement Activity 2021