Tinnitus, Auditory Knowledge and the Arts

Lead Research Organisation: University of Lincoln
Department Name: Lincoln School of Film and Media

Abstract

The aim of this project is to interrogate the relationship between tinnitus and the creative arts, with a view to enriching understandings of and diversifying dominant cultural tropes about the condition. Around 30% of people experience tinnitus at some point in their lives, with prevalence increasing with age. Clinical approaches rely on measurable, objectifying frameworks for discussing the condition, understanding it in terms of impairment and dysfunctionality. In humanities and popular discourse, descriptions of tinnitus rarely extend beyond evocations of ringing in the ears. Yet experiences of tinnitus are highly individualized and context-specific. The project proposes that the creative arts - as a field concerned with self-expression and sensory, subjective and contextual experience - may serve a key role in developing alternative methods, frameworks and terminologies that can effectively account for tinnitus' variations, resulting in better understandings of the diverse ways in which tinnitus is experienced by listeners.

In this project, tinnitus is framed as a condition with diverse manifestations and a critical lens through which to re-evaluate understandings of auditory experience in the arts and humanities. The objectives are explored through four questions: 1) how can the creative arts generate and mediate knowledge about tinnitus? 2) How does tinnitus transform concepts of listening, embodiment, noise and soundscape? 3) How might practice-based arts research be used to develop alternative approaches to tinnitus, enriching understandings of the condition? 4) How might the creative arts be beneficial to the tinnitus community?

This project offers an innovative response to RCUK's theme of Lifelong Health and Wellbeing. Consisting of three strands, it involves collaboration between academics, artists and two non-HEI partners: The British Tinnitus Association (BTA) and Oxford Visual Arts Development Agency (OVADA). The non-HEI partners' relationships with medical researchers, care professionals, clinicians and support groups (BTA); and artists and the general public (OVADA), will enable the project to engage with a wide range of stakeholders and benefit from the sharing of expertise. The project will also be aided by an advisory committee of two external collaborators: Professor of Hearing Sciences, David Baguley and Professor of Music, John Levack Drever.

The first strand examines the aesthetics of tinnitus, critically reflecting upon aural, visual and rhetorical depictions in the arts. It involves a cross-disciplinary symposium, bringing together clinicians with arts, humanities and sciences academics, resulting in the development of a special issue of the journal The Senses and Society.

The second strand explores how artistic methods adapted from soundwalking and sound-mapping can generate knowledge about the spatial, psychoacoustic and affective properties of tinnitus. It involves three one-day workshops with participants from the tinnitus community. These will be held in Sheffield, Oxford and London; and will offer a space to critically and creatively reflect upon how experiences of tinnitus are shared. The BTA and the advisory committee will help promote the workshops and offer practical guidance. Outcomes from the workshops will be hosted on an interactive, public-facing website, alongside work from the other strands of the project.

The third strand involves the development of an art exhibition, facilitated by OVADA. Consisting of newly-commissioned work responding to the project's core themes, this will also interrogate how tinnitus and auraldiversity can inform curatorial and exhibition practice.

Combining artistic methods, theoretical reflection and stakeholder engagement, this project makes an original contribution to discourses around health, medical science and the arts; and to important discussions about disability and accessibility in sound studies, arts theory and practice.

Planned Impact

The project beneficiaries outside of academia are our two non-HEI partners: the British Tinnitus Association (BTA) and Oxfordshire Visual Arts Development Agency (OVADA). These organisations represent two mixed publics. The BTA offers support to those who experience tinnitus and work with a network of independent support groups, counselling service providers, audiologists and other medical practitioners. OVADA is an artist-led organisation, which works with creative networks in Oxfordshire, as well as emerging and established national and international artists. OVADA has working links with local organisations and public bodies, including the Oxford City and Oxfordshire County Council; and Oxford City College.

The active participation of non-HEI partners in the project provides a number of opportunities for impact between academia, the tinnitus community and the arts. The project's workshops, interactive website and exhibition will be developed in consultation with the partner organisations and the project's advisory committee. These parties will also help shape the website's content, ensuring it is accessible to a wide range of stakeholders.

The project will build upon the recognition of the two non-HEI partners to reach out to members of the tinnitus community and the general public. The workshops will provide an opportunity for those with tinnitus to share their experiences and to engage with artist practitioners. The public-facing website will outline the project's progress and provide resources and documentation from the different strands in a way that is accessible, interactive and innovative. The exhibition will draw public attention to the diversity of tinnitus as a condition, as well as the work of the non-HEI partners' organisations. It will also provide OVADA and their artistic communities with an opportunity to raise questions as to how auraldiversity may impact upon audience's experience of exhibitions, gallery spaces and art events, potentially resulting in revisions to policy and practice.

The project also raises important questions for both academic researchers and non-academic organisations around processes of working collaboratively with medical communities and auraldiverse participants. In providing an opportunity to creatively and critically reflect upon how experiences of tinnitus are mediated and communicated, the project will enable the non-HEI partners to subsequently raise questions around these issues in their communities of experts and actors. As a consequence, it is anticipated that the project will lead to the development of new information resources for those with tinnitus and contribute to discussions around best practice.

Publications

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Farmer P (2023) The mention of flies: chance, environment, depiction in The Senses and Society

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Marie Thompson (2021) Tinnitus, Exclusion, Relationality (Beyond Normate Phenomenology) in Capacious: Journal for Emerging Affect Inquiry

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Thompson M (2024) Introduction: The aesthetics of tinnitus in The Senses and Society

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Thompson M (2023) Mapping tinnitus in The Senses and Society

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Thompson, M S (2021) Listening with tinnitus in FKW // ZEITSCHRIFT FÜR GESCHLECHTERFORSCHUNG UND VISUELLE KULTUR

 
Title The Hidden Noise: Tinnitus and Art, OVADA, Oxford 
Description An exhibition featuring artists Fern Thomas and Nina Thomas, who transformed the OVADA warehouse into a multi-layered exploration of their shared experiences of tinnitus. Fern Thomas' Sucking Sea Water Through Stones and Nina Thomas' [the sound of memory] offer an artistic exploration of tinnitus, and its relationship to listening, memory, environment and the self. Created during the Covid-19 pandemic, these new works were commissioned as part of a the Arts and Humanities Research Council project Tinnitus, Auditory Knowledge and the Arts. This exhibition also features a selection of creative responses from those who took part in the research project's digital workshops. Taking place between February and June 2021, these workshops explored how arts activities could be used to share different experiences of tinnitus. 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2021 
Impact The exhibition ran for 16 days during October 2021 and was attended by 187 visitors. Amongst these visitors, the exhibition changed perceptions of tinnitus. Of the visitors that completed the audience survey, 85% suggested the exhibition encouraged them to think differently about tinnitus, and 90% felt the exhibition gave them an insight into other people's experiences of tinnitus. In engaging with issues regarding variations in hearing, the exhibition has also impacted OVADA's accessibility practices: it has informed how the gallery space will host sound-based works in future. Finally, the exhibition had impacts relating to the commissioned artists' practice: for example, it provided an opportunity for Nina Thomas to engage with sound in her practice for the first time, and this will inform future work. 
URL https://www.ovada.org.uk/event/tinnitus-and-art/
 
Description British Association for Teachers of the Deaf magazine article 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Article published in BATOD magazine about the project and the upcoming workshops and exhibition associated with the workshop. The publication approached the research team as they felt their readership (those in d/Deaf education) would consider the project to be of interest.
Year(s) Of Engagement Activity 2021
 
Description Tinnitus and the arts workshops 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact A series of online workshops exploring how arts activities might be used to share experiences of tinnitus were held over 2021 for members of the public with tinnitus. A pilot workshop was held with members of the British Tinnitus Association's consultancy group. Participants suggested that taking part in the workshops changed the perception of their own tinnitus, and other people's tinnitus. For example, one participant suggested that: "It's been quite insightful learning how others are impacted and respond to tinnitus. Having the opportunity and encouragement to explore tinnitus throughout has helped me work through my own responses. I think I live with tinnitus well - maybe more now." Some participants noted using the art activities again in their own time following the workshops. Out of the participants that completed the evaluation survey, 71% suggested taking part in the workshops made them think differently about their own tinnitus, and 85% felt taking part made them think differently about other people's tinnitus. 91% felt the workshops had given them a new way of communicating about tinnitus.
Year(s) Of Engagement Activity 2021
 
Description Tinnitus, Auraldiversity and the Arts roundtable (British Tinnitus Association conference) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Members of the research project team participated in an online discussion and question and answer session about tinnitus, auraldiversity and the arts as part of the British Tinnitus Association's conference. This event was attended mainly by people with tinnitus (i.e. patients) and staff from the British Tinnitus Association.
Year(s) Of Engagement Activity 2020