Alternative Explanations: Disability and Inclusion in Africa

Lead Research Organisation: Lancaster University
Department Name: Languages and Cultures

Abstract

This collaboratively conceived project will establish the Disability and Inclusion in Africa network. Working across disciplines, the project will engage Arts and Humanities research to enhance disability inclusion in international development.

Discourses of disability are often created by medical professionals, social scientists or development agencies, and most often in the global north, quite removed from the realities experienced on the ground. This project focuses on the central theme of 'alternative explanations' for disability in African contexts to invite discussion of a range of beliefs and attitudes towards disability, which may include assumptions and misconceptions, traditional beliefs, religious beliefs, medical determinism, supernatural or witchcraft-related beliefs. By increasing awareness of the impact of these alternative explanations, the network will contribute to understandings of the ways in which approaches to inclusion in international development programmes and strategies can be enhanced.

Building on new and existing partnerships, the Disability and Inclusion in Africa network will forge international dialogue between researchers and stakeholders at a series of events and exhibitions in Nigeria, Cameroon, Tanzania, South Africa and the UK. The project not only responds to gaps in scholarship, but the culturally-informed research that will emerge from the project aims to bring about a step-change in the way in which disability studies is approached within and beyond Africa, and in the way in which disability is understood by stakeholders in communities, civil society and international development.

Planned Impact

The Disability and Inclusion in Africa network will bring together policy makers, advocates, representatives from NGOs, local community leaders, representatives of local disability groups and academics. Its work will focus on foregrounding the voices of people who have been the object of disability discourses and diversifying the narratives associated with disability to enhance disability inclusion in international development.

Through a series of workshops in four ODA recipient countries and a final conference in the UK, the network will connect academic researchers with non-academic civil society actors and policy makers. The network will create an international forum for people with disabilities and those who work with, represent and advocate for them, to share their experiences and ideas for solutions to enhancing the inclusion of people with disabilities. The involvement of project partners and representatives of local disability organisations in the network events will provide opportunities for sharing practice and expertise and networking.

A series of exhibitions will be organised to accompany each of the network workshops to share the local stories and narratives that have been gathered during fieldwork from people with disabilities, activists, NGOs, academics and disability organizations who have been the object of disability discourses. These will be shared via the network's website and will inform the project's outputs.

Importantly, the network will disseminate local knowledge and expertise to international development policy makers and practitioners in the UK and beyond, nuancing the visions of development set out in the UN 2030 SDGs. Representatives from DFID country offices and from our partner organizations, which are on the front line of development work in sub-Saharan Africa, will be invited to participate in the workshops. Organizations including the Department for International Development (DFID), the Overseas Development Institute (ODI), Disability Rights UK, Oxfam and Scope will participate in the conference at Lancaster University, building on established links with some of these institutions and developing new relationships.

We will also work to influence UK development policy through the co-production of a policy report with DFID officials. Findings will be disseminated through them and via the website, academic publications, and through the networks of participants, including the ODI.

The project website will further act as a forum for exchanging experiences and ideas and will articulate some of the experiences and ideas of people on the front line of disability politics across sub-Saharan Africa. It will carry reports of the workshops in each of the localities, a virtual version of the final exhibition, and will also host an open blog space where network members can discuss and debate.

Publications

10 25 50
 
Title A short animation co-produced with Kids Club Kampala 
Description With the NGO Kids Club Kampala, we co-wrote the script for an animation telling the story of a young boy with epilepsy in Uganda. They are using the animation for advocacy and it is also featured in our online exhibition. 
Type Of Art Film/Video/Animation 
Year Produced 2020 
Impact Kids Club Kampala are using the animation for advocacy on epilepsy in Uganda. 
URL http://dia-network.com/changing-attitudes-towards-epilepsy/
 
Title Disability and Inclusion Africa online exhibition 
Description This online exhibition was created in place of a series of physical exhibitions hosted by our partner organizations. It was initiated in 2020 with additional funding from the Festival of Social Sciences, and is now being developed further as an output of the Disability and Inclusion Africa project. The exhibition highlights the work being done by organizations including NGOs, disabled persons organizations and others to combat harmful misunderstandings of disability through the arts. 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2020 
Impact This information is not yet available. 
URL http://dia-network.com/exhibition-disability-alternative-explanations/
 
Title Drama performance at Disability and Stigma project workshop, Yaounde, Cameroon 
Description In a four-day workshop, university students and members of NGOs with disability explored applied theatre tools and techniques to reflect on the nuances related to disability especially in Cameroon and the disparity between policies that favour the disabled and their actual implications. Concerns raised during the discussions constituted the thematic of an open-ended 45-minute play that was presented to the public and policy makers on the final day of the workshop. 
Type Of Art Performance (Music, Dance, Drama, etc) 
Year Produced 2021 
Impact There were two principal impacts: 1) The Minister for Education attended the workshop and, upon hearing of the challenges faced by persons with albinism in educational settings, wrote a letter to regional and district education officials, school inspectors and headteachers in pre-schools and primary schools in Cameroon requesting that they ensure that schools are made accessible to students with albinism. This is evidenced in a letter from the Education minister, Laurent Serge Etoundi Ngoa, dated 6 December 2021. 2) Workshop participants were asked to reflect on their participation. Many participants reported, for example, improved understandings of disability and enhanced awareness of the language used to talk about disability. This is evidenced in the feedback comments of workshop participants. 
URL http://dia-network.com/workshop-2/
 
Title Online exhibition: Alternative Explanations 
Description This exhibition explores understandings of disability in African contexts, exploring the role of NGOs and advocates in enhancing understandings and challenging harmful practices through the arts and humanities. This exhibition was hosted online due to the pandemic. It was launched by the PI and CI at an online event as part of the 2020 Festival of Social Sciences and was co-funded by the Festival. 
Type Of Art Performance (Music, Dance, Drama, etc) 
Year Produced 2020 
Impact Collaboration on this exhibition has led to further small grant applications with two partners: the NGO Medical Assistance Sierra Leone and the NGO Advantage Africa. Feedback from Festival of Social Science participants showed that the exhibition enhanced their understanding of the challenges faced by disabled persons in African contexts. 
URL http://dia-network.com/exhibition-disability-alternative-explanations/
 
Description Our findings underline the shared experiences of disabled persons, particularly as concerns stigmatization as a result of a range of beliefs attached to disability, which also make them the targets of various forms of stigmatization and violence.

Disabled persons do not feel that their voices are heard in any of the contexts we worked in (Cape Town, Lagos, Yaoundé)

All participants had experienced discrimination as a result of different explanations attached to disability, for example, medical determinism, misconceptions, religious beliefs, traditional or supernatural beliefs.

The impact of these beliefs is often not recognised by medical professionals, education professionals, advocates and policy makers

In particular, participants reported that many healthcare practitioners in the sub-Saharan African contexts studied express little understanding of lived experiences of disability or empathy for persons with disabilities.

In intellectual terms, these beliefs or attitudes prompt us to think about disability in terms that move beyond the established models.
Exploitation Route We have submitted a follow-on funding application for a project focusing on disability and healthcare. It engages healthcare practitioners through a series of arts-based workshops to sensitize them to experiences of disability in sub-Saharan African places, to enable them to address negative attitudes and lack of knowledge to enhance their provision of quality healthcare to disabled persons.
Sectors Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections

URL http://dia-network.com/
 
Description Disability in Uganda - influence on local practice
Geographic Reach Africa 
Policy Influence Type Contribution to new or improved professional practice
 
Description Invited speaker at UN OHCHR Expert Consultation on harmful practices
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in a guidance/advisory committee
URL https://www.ohchr.org/sites/default/files/documents/issues/culturalrights/activities/2022-07-21/Conc...
 
Description Demystifying the Public Health Conditions Considered as Signs of Witchcraft
Amount £9,130 (GBP)
Organisation Lancaster University 
Sector Academic/University
Country United Kingdom
Start 03/2020 
End 12/2020
 
Description Impact Acceleration Account
Amount £19,500 (GBP)
Organisation Arts & Humanities Research Council (AHRC) 
Sector Public
Country United Kingdom
Start 03/2023 
End 12/2024
 
Description Scoping a Public Health Toolkit on Witchcraft-related Beliefs 
Organisation Witchcraft and Human Rights Information Network
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution We co-organized a webinar and two online workshops in partnership with WHRIN to scope out the potential to develop a toolkit for front line public health workers in the Global South, to enable them to respond appropriately to links made between public health conditions and disabilities including autism, epilepsy and dementia and witchcraft-related beliefs. The aim is to extend the reach of the Disability Inclusion Africa project beyond Cameroon, Nigeria, South Africa and Tanzania.
Collaborator Contribution WHRIN invited four of their existing partners to work with us on this scoping project - Alzheimers Dementia Namibia, Sierra Leone Autistic Society, Medical Assistance Sierra Leone, and Dr Tunde Ayinde, University College Hospital, Ibadan, Nigeria. We also invited a mutual partner, Ikponwosa Ero, UN Independent Expert on the enjoyment of human rights by person with albinism to participate. WHRIN undertook the majority of the organization of the workshop and is collaborating on the final report from the pilot.
Impact A major outcome has been the development of collaborative work with the partners on this pilot project. To date, these partners have contributed to blog posts for the Disability Inclusion Africa webpage and several have agreed to support the development of a virtual exhibition on 'Alternative Explanations' which we are curating for the Festival of Social Sciences. The partners have agreed to collaborate on a future grant application in support of the development of a Public Health Toolkit.
Start Year 2020
 
Description Alternative Explanations online exhibition launch 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact In November 2020 the DIA Project Team launched an online exhibition 'Disability: Alternative Explanations', as part of the ESRC Festival of Social Sciences. The online exhibition is hosted on our DIA Project website and has had over 500 visitors to date. We launched the exhibition with an online presentation and Q&A session on 11th November 2020.
Year(s) Of Engagement Activity 2020
URL http://dia-network.com/exhibition-disability-alternative-explanations/
 
Description BBC World Service People Fixing the World programme and podcast 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The PI was interviewed by Ann Hepburn, Producer of the BBC World Service programme and podcast 'People Fixing the World'. This 30 minute programme will be aired on 28 February 2023 and features interviews with many of our partners on the Disability Inclusion Africa project, highlighting the practical responses of these organizations to enhancing understanings of disability in sub-Saharan Africa.
Year(s) Of Engagement Activity 2023
URL https://www.bbc.co.uk/programmes/p04grdbc
 
Description Charlotte Baker - Invited respondent at the Languages of Disease in the Francophone World workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Charlotte Baker was invited to act as respondent to presentations at the Languages of Disease in the Contemporary Francophone World, organized by Hannah Grayson (Stirling) and Steve Wilson (QUB) as part of their IMLR-funded project.
Year(s) Of Engagement Activity 2021
URL https://modernlanguages.sas.ac.uk/events/event/23842
 
Description DIA Project Workshop 1: Disability and African Indigenous Thought', hosted by the CI at SOAS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact On 25 February 2021, we hosted the first of our project workshops, led by Elvis Imafidon (CI; SOAS, University of London). The workshop included 18 papers by 27 presenters from across Africa (Nigeria, Tanzania, Cameroon, Rwanda, Zimbabwe, and South Africa), as well as the UK, Germany, Canada and North America. The keynote speaker was Professor Edwin Etieyibo (University of the Witwatersrand, South Africa).
Year(s) Of Engagement Activity 2021
URL http://dia-network.com/alternative-explanations/
 
Description DIA Project Workshop: ''The role of the arts and humanities in enhancing understandings of disability in African contexts' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This workshop focused on the broad theme of African arts and aesthetics in relation to the understanding of disability in African contexts. Participants included African artists, writers, and researchers, who reflected on what African art forms reveal about African conceptions of disability, as well as how such art forms and aesthetic perspectives impact the lived experience of disability in indigenous and contemporary African societies. The workshop also explored how art can be significant in improving the lives and wellbeing of persons with disabilities in African communities and the potential of the arts for various forms of advocacy and activism.

The keynote speaker was Professor Jim Ferris (Toledo) and the workshop was attended by approximately 50 people.
Year(s) Of Engagement Activity 2022
URL http://dia-network.com/workshop-4-university-of-the-western-cape-south-africa/
 
Description DIA Project Workshop: 'Alternative Explanations: Implications for Advocacy and Activism - held online 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact This online workshop examined how culturally and socially constructed conceptions of disability and disabilities shape, influence and impact both positively and negatively
advocacy and activism for the lives, wellbeing, dignity and inclusion of persons with disabilities.
Year(s) Of Engagement Activity 2021
URL http://dia-network.com/implications-for-advocacy-and-activism/
 
Description DIA Project Workshop: 'Stigma as a Barrier to Participation', hosted by Prof. Emelda Ngufor Samba, University of Yaoundé 1 in Cameroon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact The 'Stigma as a Barrier to Participation' workshop was hosted by Prof. Emelda Ngufor Samba at the University of Yaoundé 1 in Cameroon over four days in November 2021, to coincide with International Day of People with Disabilities. The primary objective of this workshop is to explore the contribution of stigma to the non-participation of people with disability in the social, economic, educational, and political domains Africa. Alongside the workshop, Prof. Samba organized a theatre workshop involving undergraduate and postgraduate student members of the University of Yaoundé Disability Group, which culminated in a theatre performance. It was attended by c.£100 participants and received coverage by Cameroonian television and radio broadcasters.
Year(s) Of Engagement Activity 2021
URL http://dia-network.com/workshop-2/
 
Description Disability Inclusion Africa Biannual Conference, March 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact We have established this Biannual Conference of the Disability Inclusion Africa Network as a regular online event which will keep up the momentum of the network and enable us to meet and update one another on current and developing research and advocacy.
Year(s) Of Engagement Activity 2023
URL http://dia-network.com/international-conference-lancaster-university/
 
Description Disability and Covid-19: 6th International Conference on Disability and Development 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Charlotte Baker participated in this conference, which brought together people to discuss and debate Disability and COVID-19. The focus was on new research findings, methodologies and tools and implications of evidence for policy and practice. The focus included both low-, middle and high-income settings as well as humanitarian contexts.
Year(s) Of Engagement Activity 2022
URL https://www.lshtm.ac.uk/newsevents/events/6th-international-conference-disability-and-development-di...
 
Description Exhibition: Disability in Sub-Saharan Africa - Alternative Explanations 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The Disability Inclusion Africa network exhibited a display of images and extracts from fieldwork interviews as part of the Lancaster University Library Festival on Friday 23 September 2022. Charlotte Baker was interviewed by Dr Ann-Marie Houghton about her work on disability in African contexts.
Year(s) Of Engagement Activity 2022
URL https://www.lancaster.ac.uk/library/whats-on/library-festival-2022/
 
Description Invited interview - Languages of Disease in the Francophone World 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Charlotte Baker was interviewed by Steven Wilson (QUB) and Hannah Grayson (Stirling) as part of their Languages of Disease in the Francophone World project, which is funded by the Institute of Modern Languages Research (IMLR) Regional Conference Grant Scheme. This 30 minute interview focused on the Disability and Inclusion Africa project and is available open access via the IMLR website.
Year(s) Of Engagement Activity 2020
URL https://www.sas.ac.uk/videos-and-podcasts/culture-language-and-literature/languages-disease-contempo...
 
Description Invited presentation - First High Level Dialogue on Epilepsy 2020: Epilepsy in Africa: What is the way forward? 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Charlotte Baker gave an invited presentation on the Disability and Inclusion Africa project at the First High Level Dialogue on Epilepsy 2020 'Epilepsy in Africa: what is the way forward?', organized by Epilepsy Alliance Africa (EAA) on Friday 25th September 2020.
Year(s) Of Engagement Activity 2020
 
Description Invited presentation - Making Epilepsy a Health Priority in Africa webinar 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact Invited presentation at the first in a series of webinars 'Making Epilepsy a Health Priority in Africa', organized by The International Bureau for Epilepsy - Africa Region on Wednesday 23rd September 2020 to share my work with an audience of NGOs and specialists in epilepsy, including medical professionals and a representative from the WHO.
Year(s) Of Engagement Activity 2020
 
Description Invited presentation at the Epilepsy Alliance Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact The PI was invited to present a paper at the Epilepsy Alliance Annual Conference, held online in July 2021. She presented an update on the Disability and Inclusion Africa project, focusing particularly on the different understandings attached to disability in African contexts.
Year(s) Of Engagement Activity 2021
 
Description Membership of the AHRC UNPRPD Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The PI was invited to join a AHRC UNPRPD Advisory Group, which meets 3-4 times a year to advise on disability-related matters.
Year(s) Of Engagement Activity 2021,2022
 
Description Postgraduate webinar: 'Alternative Explanations: Disability Research in the Global South' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact On 6 November 2020 we hosted a Postgraduate webinar 'Alternative Explanations: Disability Research in the Global South'. 18 PhD students presented their research in this field.
Year(s) Of Engagement Activity 2020
URL http://dia-network.com/alternative-explanations/
 
Description Public Lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact A public lecture by Professor Charlotte Baker in January 2023, attended by c.50 people.
Year(s) Of Engagement Activity 2022
 
Description Radio interview for SAfm 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Dr Elvis Imafidon (CI) was interviewed on South Africa FM (South African Broadcasting Service) about the Disability Inclusion Africa project
Year(s) Of Engagement Activity 2020