Fighting 4 Rights: Young People's International Evidence Network for Disability & Solidarity
Lead Research Organisation:
University of Central Lancashire
Department Name: Sch of Social Work, Care and Community
Abstract
The Global Network for Young Researchers Co-creating Change (GNYRCC) will enable collaboration between young disabled people aged 12-30 and their academic allies, across borders and across disciplines, to reflect on experiences of marginalisation and to set further agendas for research. They will share personal and research narratives and advice on how they learn together about research, co-creating evidence accessible learning resources to inform further inclusive research to support ongoing activism. The proposed network is being initiated by UCan, a group of experience young disabled co-researcher. It aims, through developing creative participatory methods to strengthen young disabled people's opportunities for influence, to surface narratives and intersecting issues in contexts identified by young disabled people. The network will address inequalities in power in research by enabling young disabled people to co-direct internal funds for co-creating accessible learning resources and through four project grants used to develop their research locally and cross-nationally to amplify the perspectives of other disabled children and young people. The network will also provide insights into strategies for inclusive collaboration and impact that can be sustained beyond the funding period. GNYRCC will link young disabled researchers who are already instigating and carrying out impressive research with support from leading academics including CO-Is Brady, Franklin and Robinson, and practitioners globally, who are supportive of a social model of disability and actively involved in the advancement of young disabled people's rights. For example UCan trained young disabled people in Japan to carry out research exploring experiences of rights and this informed an alternative report to the UN about rights in Japan. Research by RIP:STARS has informed policy in the UK and is currently conducting a study in the Philippines. The Centre links academics and practitioners across the world, and these allies will be instrumental in bringing young disabled people together, especially from those majority nations where most of the populations live but are least advantaged. A long-term approach is required to establish and coordinate and sustain GNYRCC beyond the funding period, so GNYRCC will be managed by a core academic team at The Centre for Children and Young People's Participation at UCLan. GNYRCC is of huge importance in addressing the minimal consideration in public decisions and absence from policy making processes of young disabled people. Through working together, amplifying their voices and impact strategies through the co-creation of learning resources and guidance on international networking, research and reflection, GNYRCC will build capacity to enable young disabled people to inform future scrutiny of each country by the UN Committee on the Rights of the Child and to respond to national calls to strengthen young disabled people's participation in policymaking. For example, in the UK, this will build studies which provided evidence to the Speaker of the Commons and to a Select Committee. GNYRCC will achieve its aims through innovative creative multi-modal and multi-lingual participatory approaches using media such as film, podcasts, photography to collate narratives and learning about effective research and impact practice in ways that are accessible for a wide audience. Young researchers will and work with media specialists to create a film of the evolving network, challenges and enablers to research for change in young disabled people's lives. They will develop a Disability Discrimination Digibank. The cocreated learning resources and Digibank examples, with young people's agreement will be located in the UCanMakeChange2.org Advice and Evidence banks. This website, developed by UCan provides a platform to open debate and share learning from across the network and will be sustained for at least 5 years beyond the grant period.
Description | The project has built an international network of young disabled researcher groups and their allies across five countries so far, increasing collaboration and inclusive engagement of wider communities in research agenda settings, co-design and critical reflection. Four young disabled people led micro-projects have been established and funded, the processes involved so far (for example, writing proposals, ethics and identifying the types of expenses young people need to proceed) and importantly the time required to do so in different settings, have provided data about collaborative research and experiences in a newly established network. There is early insight into what works or presents a challenge for young people with a very broad range of disability or impairments when using different platforms to communicate about their projects and critically reflect on narratives of marginalisation and how this might inform activism. This includes new methods for using websites and Discord servers in research. There is also data about how a growing sense of belonging might be fostered and the roles that academics perform in this process. Early findings about equitable and accessible participatory and co-researching methods have identified a set of elements for collaborative research with young disabled people. These involve fostering positive and equitable relationships through, for example, time to really get to know team members and understand who you are working with, opportunities to share and understand different points of view, young disabled people setting research agendas, academics and young disabled people training and learning together. |
Exploitation Route | Building better understanding of collaborative research and participatory practice with young disabled people across social services and education. The outcomes are likely to be taken forward through recommendations and training for local authority services for children and young people. The outcomes will enable members of the network to collaborate on international funding proposals that build on the findings and young people's micro-projects. At least one of these will be aimed at the education sector. |
Sectors | Communities and Social Services/Policy Education |
Description | One of the key aims of the project is to build an international network of young disabled researcher groups and their allies. We have extended existing research partnerships by bringing together young disabled researcher groups UCan (with UCLan) and RIP:STARS (with Nottingham Trent and Portsmouth Universities). Using findings about collaborative research methods from their first event enabled them to plan engagement events to link up with young disabled researcher groups in Japan and Australia. Sharing learning including progress of four ongoing young people's micro-projects from across the new network has helped us develop alliances with groups from two majority world nations through new international partnerships in Zimbabwe and Uganda. We have been feeding back early findings from the academic and young people steering group critical reflections as an ongoing process of iterative analysis and this has impacted the young people by enabling them to identify shared concerns and through this build confidence to speak and solidarity across the group. Early findings are also being used to inform the theme and approaches to be used at the Network conference in April 2024. The young people have decided on a working title of 'Challenging outdated ideologies around disability' and will explore belonging, intergenerational relationships and attitudes to disability through this. |
First Year Of Impact | 2024 |
Sector | Communities and Social Services/Policy |
Impact Types | Cultural |
Description | MA PPCYP SW4822 |
Geographic Reach | Local/Municipal/Regional |
Policy Influence Type | Contribution to new or improved professional practice |
Description | Youth Researchers Uganda |
Organisation | Medical Research Council (MRC) |
Department | MRC/UVRI and LSHTM Research Unit Uganda |
Country | Uganda |
Sector | Academic/University |
PI Contribution | Expertise in collaborative research with young people. Resources to conduct collaborative research with young disabled people. |
Collaborator Contribution | Expertise in participatory research, Uganda. Intellectual input to the new research network. The group have enabled young disabled researchers to join and access the network activities. Through the collaboration with have access to data about young people's experiences of disability in Uganda. |
Impact | Network event January 2023. |
Start Year | 2023 |
Description | Network Hybrid Event 20th January 2024 |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | This Network Hybrid Event on Saturday January 20th 2024 brought together young disabled people who are interested in or undertaking collaborative research. Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry), Northern Ireland, Zimbabwe, Uganda, Japan and Australia. At this event, we met new members from our collaborations with Oberlin University, Japan and Flinders, Australia. Young people from Uganda and Japan gave presentations about their peer led micro-projects, which are being funded by this project. The young people were engaged in sharing perspectives about disability issues and collaborative research which will be used to inform the conference in April 2024 and to co-create resources. Young people unable to join the online activity took part in participatory activities planned using learning from the previous events and shared these using Discord. Student film-makers who have engaged with the project also took part and added footage for a film that will introduce and draw together learning from the network later in the project. |
Year(s) Of Engagement Activity | 2023 |
Description | Network Online Event 11th December 2023 |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | This Network Online Event on December 11th 2023 brought together young disabled people who are interested in or undertaking collaborative research. Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry), Zimbabwe and Uganda. At this event, we met new members from a new collaboration with MRC, Uganda. The young people were engaged in sharing perspectives about disability issues and collaborative research which will be used to inform the conference in April 2024 and to co-create resources. |
Year(s) Of Engagement Activity | 2023 |
Description | Network Online Event 20th November 2023 |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | This Network Online Event on November 20th 2023 brought together young disabled people who are interested in or undertaking collaborative research. Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry), Belfast, and Zimbabwe. At this event, we met new members from a new collaboration with DYANZ, Zimbabwe. The event was also attended by academics (Berni Kelly) from Queens University, Belfast, who were interested in inviting a young disabled group they are working with, to join the project, which they did after the meeting. The young people were engaged in sharing perspectives about disability issues and collaborative research which will be used to inform the conference in April 2024 and to co-create resources. |
Year(s) Of Engagement Activity | 2023 |
Description | Network Online Event 26th October 2023 |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | This Network Online Event on Thursday morning October 26th 2023 brought together young disabled people who are interested in or undertaking collaborative research. Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry) and Japan. At this event, we met new members from our collaborations with Oberlin University, Japan. The young people were engaged in sharing perspectives about how to build the network, how we can overcome language and communication barriers online, and how their micro-project proposals were developing. This was used to inform planning for the next events. |
Year(s) Of Engagement Activity | 2023 |
Description | RIP:Stars visit to UCLan |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Study participants or study members |
Results and Impact | The workshop at UCLan on 22nd April 2023, brought new partners (RIP:Stars) together with our own team of young people (UCan) to explore collaborative research with young disabled people. The main outcomes were: a name and aims for the new FreindsF4R network; a co-created guide to what makes a good collaborative research project for young disabled people, which is being made into an animated info-graphic. |
Year(s) Of Engagement Activity | 2023 |