Recite: Building Research by Communities to Address Inequities through Expression
Lead Research Organisation:
Liverpool School of Tropical Medicine
Department Name: International Public Health
Abstract
Culture and the arts contribute to health and wellbeing, shifting the focus away from 'disease' to people. Storytelling can be utilised as a way of collecting data, highlighting inequities to policy makers, providing health messages to communities and redirecting public agendas to better promote health equity. Liverpool has a long history of strong and active communities, and vibrant creativity but also has entrenched health inequalities that mean many local people live shorter lives with fewer years of good health than they should. Our recent community insight work with parents of unvaccinated children highlighted mistrust towards government and public health information. Routine preventive and promotive health interventions such as cancer screening and childhood immunisation have fallen well below national targets and there is an increasing burden of poor mental wellbeing.
Our overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address these gaps and promote health equity by building a legacy of trust and collaborative action.
We will target people living in the poorest areas of Liverpool, Knowsley and South Sefton with a focus on addressing mistrust in relation to health prevention (cancer screening and childhood immunisation) and mental wellbeing promotion. We will build on existing structures to test a more integrated creative health approach. Communities, creatives and people with lived experience (PWLE) will benefit from training in community-based participatory research and in multi-media immersive storytelling to address mistrust and health inequities. We will catalyse action through the co-development of human stories on mental wellbeing, cancer screening and childhood immunisation. Creative health marketplaces will match creatives with community organisations and the health sector to galvanise new approaches.
Advocacy networks will lobby decision-makers to address structural issues beyond the reach of communities. Community Innovation Teams (CITs) are already integrated within 7 of Liverpool's Primary Care Networks and consist of health providers, volunteers, community champions and PWLEs (and we will add storytellers). We will expand to Knowsley and Sefton. Teams will benefit from training in combining routine GP practice data with behaviour insight data to identify root causes of local health inequities and can access community responsive funds to co-develop creative health solutions. Our Learning Events will be used as platforms for learning, celebration, and recognising good practice. ReCITe is a research consortium and we will work with academics from different backgrounds to evaluate what works and why. Our final evaluation toolkit will help organisations track health equity indicators and provide evidence of the effectiveness of their work.
We expect a legacy of community arts organisations who can attain funding through evidencing the impact of storytelling to commissioners. We further aim to develop a critical mass of storytellers, PWLE, and community organisations with the knowledge and tools to collaborate and train others beyond the programme. We expect that commissioners and policymakers will see the benefits of scaling-up and sustaining a strategic creative health approach which builds community trust and increases health equity.
Our overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address these gaps and promote health equity by building a legacy of trust and collaborative action.
We will target people living in the poorest areas of Liverpool, Knowsley and South Sefton with a focus on addressing mistrust in relation to health prevention (cancer screening and childhood immunisation) and mental wellbeing promotion. We will build on existing structures to test a more integrated creative health approach. Communities, creatives and people with lived experience (PWLE) will benefit from training in community-based participatory research and in multi-media immersive storytelling to address mistrust and health inequities. We will catalyse action through the co-development of human stories on mental wellbeing, cancer screening and childhood immunisation. Creative health marketplaces will match creatives with community organisations and the health sector to galvanise new approaches.
Advocacy networks will lobby decision-makers to address structural issues beyond the reach of communities. Community Innovation Teams (CITs) are already integrated within 7 of Liverpool's Primary Care Networks and consist of health providers, volunteers, community champions and PWLEs (and we will add storytellers). We will expand to Knowsley and Sefton. Teams will benefit from training in combining routine GP practice data with behaviour insight data to identify root causes of local health inequities and can access community responsive funds to co-develop creative health solutions. Our Learning Events will be used as platforms for learning, celebration, and recognising good practice. ReCITe is a research consortium and we will work with academics from different backgrounds to evaluate what works and why. Our final evaluation toolkit will help organisations track health equity indicators and provide evidence of the effectiveness of their work.
We expect a legacy of community arts organisations who can attain funding through evidencing the impact of storytelling to commissioners. We further aim to develop a critical mass of storytellers, PWLE, and community organisations with the knowledge and tools to collaborate and train others beyond the programme. We expect that commissioners and policymakers will see the benefits of scaling-up and sustaining a strategic creative health approach which builds community trust and increases health equity.
Organisations
- Liverpool School of Tropical Medicine (Lead Research Organisation)
- UNIVERSITY OF BRISTOL (Collaboration)
- Comics Youth CIC (Collaboration)
- Sefton Borough Council (Collaboration)
- LIVERPOOL CITY COUNCIL (Collaboration, Project Partner)
- LIVERPOOL UNIVERSITY HOSPITALS NHS FOUNDATION TRUST (Collaboration)
- LIVERPOOL JOHN MOORES UNIVERSITY (Collaboration)
- Collective Encounters (Collaboration)
- KNOWSLEY METROPOLITAN BOROUGH COUNCIL (Collaboration)
- EDGE HILL UNIVERSITY (Collaboration)
- Writing on the Wall Ltd (Collaboration)
- UNIVERSITY OF LIVERPOOL (Collaboration)
- NHS Cheshire and Merseyside (Project Partner)
- Healthwatch Liverpool (Project Partner)
- Knowsley Council (Project Partner)
- Central Liverpool PCT (Project Partner)
| Title | Bookmark |
| Description | A bookmark has been designed for the project to use for marketing purposes and has been provided to participants at engagement events. |
| Type Of Art | Artwork |
| Year Produced | 2024 |
| Impact | Pending |
| Title | Video shortlisting for KE Praxis Auril Awards |
| Description | Video has been developed to show the CIT model used by the Health Equity Liverpool Project (HELP) for the Praxis Auril KE 2024 Awards Public Vote. ReCITE will be adopting this CIT model, and this video will be used by the project to explain the model to stakeholders and future participants |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2024 |
| Impact | pending |
| URL | https://ke.org.uk/news/public-vote-ke-awards-2024-now-open/ |
| Title | Video shortlisting for WHO Film Festival |
| Description | Briefly describe any notable impacts resulting from the development of this artistic or creative product. * 'Four X-rays could save your life' was shortlisted for the Very Short Film prize at the World Health Organization's Health For All Film Festival. Although it did not win the category, to be shortlisted was an incredible achievement. This film was produced under LSTM's Health Equity Liverpool Project, a community-led programme tackling health inequities across the city. It will continue to be used under ReCITE Phase 3. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2024 |
| Impact | Shortlisted for award. |
| URL | https://www.youtube.com/watch?v=MEee3KFPWuE |
| Description | iiCON Infection Innovation Consortium Tackling Infections Mini Sandpit |
| Amount | £1,500,000 (GBP) |
| Funding ID | EP/Z531145/1 |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2024 |
| End | 08/2025 |
| Description | Collective Encounters |
| Organisation | Collective Encounters |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | LSTM are PI on this project, with an overall aim of scaling up and sustaining the integration of storytelling into community and health system efforts to address gaps and promote health equity by building a legacy of trust and collaborative action. |
| Collaborator Contribution | Collective Encounters are a project partner and have been subcontracted for £15,756.35 for the project duration. The role includes: • Membership of the ReCITE core group • Leading the facilitation and coordination of the Creative Health Advocacy Networks • Providing as nominated Co-Investigator, Aidan Jolly (Collective Encounters Research Lead). |
| Impact | Collective Encounters are part of the Core Group governance structure and attend Core Group meetings. They are leading on the facilitation of the Creative Health Advocacy Networks, which are due to be put in place during Year 2 of the project. |
| Start Year | 2024 |
| Description | Comics Youth Community Innovation Team |
| Organisation | Comics Youth CIC |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Following on from an EOI process, Comics Youth were awarded £10,000 from LSTM's Community Innovation Fund and £10,000 from Writing on the Wall's Artist's Response Fund. They will tackle the pressing issue of misdirected referrals to Sefton Child and Adolescent Mental Health Services, with a specific focus on neurodevelopmental conditions like autism spectrum disorder and ADHD. |
| Collaborator Contribution | Comics Youth will lead the Community Innovation Team hoping to bring about change to improve health and well-being. They will provide office and meeting space as an in-kind contribution |
| Impact | Phase 0 introductory meeting has been completed, with biweekly Community Innovation Team meetings commencing. Phase 1 training will commence this month. |
| Start Year | 2024 |
| Description | Edge Hill University |
| Organisation | Edge Hill University |
| Department | Evidence-Based Practice Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | LSTM are PI on this project - the overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address gaps and promote health equity by building a legacy of trust and collaborative action. |
| Collaborator Contribution | Edge Hill have been subcontracted for £28,995.90 for the project duration and will provide support to the research team. They will also attend Core Group and Research meetings. |
| Impact | Attendance at the ReCITE Engagement Event and input into the Advisory Board. The Edge Hill academic has changed during the first year of the project, and the newly appointed academic to the project has attended Core Group meetings and Research Group meetings. She has also provided support and input into the theme of disinformation, which has been identified as a theme to explore following on from the intervention work. |
| Start Year | 2024 |
| Description | Knowsley Metropolitan Borough Council |
| Organisation | Knowsley Metropolitan Borough Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | LSTM has committed to work with Knowsley Metropolitan Borough Council to tackle health inequity within the borough through the delivery of ReCITE project activities, including the funding of local community innovation teams. |
| Collaborator Contribution | Commitment of attendance at Core Group meetings and Advisory Group meetings. Providing support to Community Innovation Teams based in Knowsley. |
| Impact | Attendance at ReCITE Engagement Event. Attendance at Phase 1 and 2 training for cancer and immunisation CITs. Attendance at Core Group meetings. |
| Start Year | 2024 |
| Description | Liverpool City Council |
| Organisation | Liverpool City Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | LSTM is committed to working in partnership with Liverpool City Council to tackle health inequity through the delivery ReCITE activities, and the funding of local community innovation teams. |
| Collaborator Contribution | Commitment to engaging with Core Group and Advisory Group. Active involvement in engagement event and Community Innovation Team training. |
| Impact | Attendance at ReCITE Engagement Event, and Phase 1 and 2 Community Innovation training (cancer and immunisations). Participation in Core Group and Advisory Group meetings. |
| Start Year | 2024 |
| Description | Liverpool John Moores University |
| Organisation | Liverpool John Moores University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | LSTM are PI of this project - the overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address gaps and promote health equity by building a legacy of trust and collaborative action. |
| Collaborator Contribution | LJMU has been subcontracted to the value of £82,291.85 for the project duration. They will lead on one of the Research Questions ("How and why do PWLE value the Storytelling Partnerships?"). |
| Impact | Attendance at Core Group and Intervention Group meetings. Attendance at ReCITE Engagement Event. Attendance at Storytelling Partnership (What's Your Story?) sessions and participation in development of co-researcher roles. |
| Start Year | 2024 |
| Description | Liverpool University Hospital Foundation Trust Community Innovation Team |
| Organisation | Liverpool University Hospitals NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | Following an EOI process, LUHFT were awarded a combined total of £20,000 from LSTM's Community Innovation Fund and Writing on the Wall's Artist's Response Fund. LUFHT formed a Community Innovation Team with the objective to find ways to better support people who frequently attend the emergency department at Aintree Hospital. From funding awarded, a writer-in-residence was appointed to join the Community Innovation Team and work with staff and patients. |
| Collaborator Contribution | LUFHT leads the Community Innovation Team hoping to bring about change, improve health and well-being. They provide meeting space as an in-kind contribution. |
| Impact | Phase 1 training due to commence this month. Writer-in-residence has been appointed to attend Emergency Department at Aintree Hospital. Attendance at ReCITE Engagement Event. Regular biweekly meetings with CIT Coach. |
| Start Year | 2024 |
| Description | Sefton Council |
| Organisation | Sefton Borough Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | LSTM has committed to work in partnership with Sefton Borough Council to tackle health inequity through delivery of ReCITE activities and the funding of local Community Innovation Teams. |
| Collaborator Contribution | Commitment to attending Core Group and Advisory Group meetings. Commitment to providing support and guidance to Sefton-focused Community Innovation Teams. |
| Impact | Attendance at Core Group meetings. Attendance at ReCITE Engagement Event. Attendance confirmed at upcoming Phase 1 training for Sefton-based Community Innovation Teams. |
| Start Year | 2024 |
| Description | University of Bristol |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | LSTM are PI on this project - the overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address gaps and promote health equity by building a legacy of trust and collaborative action. |
| Collaborator Contribution | University of Bristol have been subcontracted for £193,603.95 for the project duration. The co-investigator from the institution is leading on two of the Research Questions (Do the Storytelling Partnerships catalyse change in how to tackle mistrust and promote health equity?/Do Creative Health Advocacy Networks lead to structural changes that improve community trust and promote health equity? |
| Impact | University of Bristol have attended Core Group and Advisory Group meetings, as well as participating in operational, research and intervention meetings to provide guidance and support. They participated in the ReCITE Engagement Event and attended Phase 1 and 2 Community Innovation Training. They are establishing co-researcher roles (People With Lived Experience, participants of What's Your Story?) within the research questions. They are engaging with the development of the Advocacy Network. |
| Start Year | 2024 |
| Description | University of Liverpool |
| Organisation | University of Liverpool |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | LSTM are PI of this project - the overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address gaps and promote health equity by building a legacy of trust and collaborative action. |
| Collaborator Contribution | University of Liverpool have been subcontracted for £260,862.09 for the project duration. They will be leading on one of the Research Questions (Do the PCN-based CITs have a measurable effect on childhood immunisation and cancer screening health equity indicators? If so, how?). |
| Impact | Attendance at Core Group and Research meetings. Providing input into data analysis and workshop training for cancer and immunisation-focused Community Innovation Teams. Attendance at Phase 1 and 2 training. Attendance at ReCITE Engagement Event. |
| Start Year | 2024 |
| Description | Writing on the Wall |
| Organisation | Writing on the Wall Ltd |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | LSTM are PI on this project, with the overall aim to scale-up and sustain the integration of storytelling into community and health system efforts to address gaps and promote health equity by building a legacy of trust and collaborative action. |
| Collaborator Contribution | Writing on the Wall are a project partner, and have been subcontracted for £456,273.87 over the course of the project. Their role includes: • Membership of the ReCITE core group and operational group • Leading the facilitation and coordination of the Storytelling Partnerships and Creative Health Exchanges • Supporting the coordination of the Creative Health Advocacy and Creative Health Learning Events • Coordinating, liaising with and mentoring arts organisations and individual artists engaged throughout the project • Supporting arts-based and community partners to develop and deliver storytelling projects that tackle issues of trust, raise awareness of health inequities, and promote social change. • Managing the Artist Response Fund budget. |
| Impact | Writing on the Wall have led and delivered upon the Storytelling Partnerships intervention (now known as "What's Your Story?"), working with three separate groups based in Liverpool, Knowsley and Sefton respectively. They are also leading on our Creative Health Marketplace (Exchange) taking place on 18th March 2025. They are part of the Core Group governance structure and also attend Advisory Group and Intervention meetings to provide input and support. They also participated in the ReCITE Engagement Event. |
| Start Year | 2024 |
| Description | Co-Researcher Drop-in Session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | An informal drop-in sessions for people to learn more about being a co-researcher as part of the ReCITE project. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Community-Based Participatory Research Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | An "Introduction to Research" session with appointed co-researchers on the project, designed to orient them on the co-researcher process and next steps. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Online ReCITE Information Webinar - two-day session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop on upcoming funding call for ReCITE aimed at creatives and healthcare organisations. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Phase 1 workshop (AMR CIT) - two-day workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Community Innovation Team workshop: orienting CITs on the ReCITE programme; review and analyse data relating to antibiotic knowledge and use; reflect on lessons learned in gathering community insights and gathering community assets; plan for gathering local insights in target populations |
| Year(s) Of Engagement Activity | 2024 |
| Description | Phase 2 workshop (Immunisations and AMR) - two-day workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | To reflect on progress and learning since phase 1.To review and analyse community insights data.To refine the CIT problem statement and target population based on data. To conduct a root cause analysis.To ideastorm potential solutions and identify those that tackle root causes.To develop a draft innovation plan. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Phase 2 workshop (Immunisations) - two-day workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | To reflect on progress and learning since phase 1; to review and analyse community insights data and MMR uptake data; to refine the CIT problem statement and target population based on data; to conduct a root cause analysis; to ideastorm potential solutions and identify those that tackle root causes; to develop a draft innovation plan. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Phase 2 workshop (cancer) - two-day workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | To reflect on progress and learning since phase 1.To review and analyse community insights data and targeted lung health check uptake data.To refine the CIT problem statement and target population based on data. To conduct a root cause analysis.To ideastorm potential solutions and identify those that tackle root causes.To develop a draft innovation plan. |
| Year(s) Of Engagement Activity | 2025 |
| Description | ReCITE Engagement Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Half-day event repeated twice with mixed audience to promote the ReCITE project and opportunities to get involved. |
| Year(s) Of Engagement Activity | 2024 |
| Description | ReCITE: Community Innovation Team Workshop (Phase 1 - Immunisations)- two-day event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Orient CIT Teams on the ReCITE Programme. Review and analyse national and local immunisation data. Present national/regional data (Explore CIC, Liverpool Lighthouse). Define target population/s, the change we want to see and how we will measure it.Identify what we do and don't know about our target population/s using the 5Cs framework. Reflect on lessons learned in gathering community insights and the use of language and messaging. Plan for gathering local insights in target populations. Co-design tools for rapid collection of community and health provider insights. Develop skills in listening to peoples' stories and insights. Structure and practice note taking using the 5Cs. Agree data collection plan. |
| Year(s) Of Engagement Activity | 2024 |
| Description | ReCITE: Community Innovation Team Workshop (Phase 1 - cancer) - two-day workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Orient CIT Teams on the ReCITE Programme. Review and analyse cancer screening data (targeted lung health check programme). Present national/regional data. Present local lung health data (Anfield & Everton, One Knowsley). Define target population/s, the change we want to see and how we will measure it. Identify what we do and don't know about our target population/s using frameworks. Reflect on lessons learned in gathering community insights and the use of language and messaging. Plan for gathering local insights in target populations. Co-design tools for rapid collection of community and health provider insights. Develop skills in listening to peoples' stories and insights. Structure and practice note taking. Agree data collection plan. |
| Year(s) Of Engagement Activity | 2024 |
| Description | What's Your Story? Liverpool, Knowsley, Sefton |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | What's Your Story? Working with residents of Liverpool, Knowsley, and Sefton, meeting weekly for a period of six weeks to share and develop stories in a supportive group setting led and supported by local writers. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Writing on the Wall: What's Your Story? Celebration Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | A celebration event led by Writing on the Wall, bringing together the three What's Your Story? groups to share their stories and creative insights. |
| Year(s) Of Engagement Activity | 2025 |
