GCRF_NF72 Development, evaluation and implementation of a digital support to improve the management of cancer and mitagate the impact of COVID-19
Lead Research Organisation:
Queen's University Belfast
Department Name: Sch of Nursing and Midwifery
Abstract
Over half a million people in Vietnam currently live with cancer or provide care to a relative or friend with the disease. Support and care in the form of palliative care or supportive units are rare in Vietnam. As a result, 70% of patients die at home, in the care of their families. Many families affected by cancer manage severe health issues with minimal knowledge and little help from health care professionals. Providing this care can have a significant negative impact on the carer's health and their ability to work. These challenges have worsened due to COVID-19 as many hospitals appointments throughout Vietnam were cancelled or treatments postponed. As a consequence of these disruptions, many families are managing cancer in isolation. Prior to 'lockdown', we conducted workshops with 100 patients, carers and health care professionals across five regions of Vietnam. Patients and families reported that they require urgent assistance to understand cancer, manage medications, daily personal care needs, nutrition, wound care, emotional issues, how to tell if a patient's health is getting worse and when you should seek help. In response to these needs, we hosted a workshop in March 2020 with cancer experts from across Vietnam to design a remote digital cancer management tool to provide families the support, information and skills they require. This project aims to develop this digital resource called V-CCC (Vietnam -Cancer Caring Coping) to support families to manage cancer remotely.
The team have developed a written version of the digital support V-CCC. This project will 1) Develop the digital version of V-CCC 2) Evaluate the impact V-CCC may have on patient and carer outcomes 3) Explore V-CCC usage throughout the country. We will develop the best possible digital advice and information by working together as a large group of doctors, nurses, carers, patients, academics and allied health professionals from across all regions of Vietnam. An expert digital supports team will transfer this information online ensuring that it is easy to use e.g. videos/pictures/ interactive games. We will demonstrate the V-CCC in workshops involving 50 carers from five different regions of Vietnam (Hanoi, HCMC, Hue, Danang and Can Tho). Changes will be made to V-CCC based on this feedback. We will then evaluate the V-CCC with 150 carers (and patients if willing) across five cancer hospitals (Hanoi, Ho Chi Mhin City, Can Tho, Danang and Hue). Nurses in cancer hospitals will recruit participants and assist them to complete baseline measures (mental health, quality of life, health literacy). Cancer carers will be provided with a web-link and access code to V-CCC for two weeks. Participants will be asked to complete follow-up surveys identical to those they completed at the onset. We will then conduct 30 online interviews over Skype with a range of carers to explore their experiences of using V-CCC. We will also ask N=15 Health Care professionals to share their thoughts and experiences of V-CCC interviews. Following evaluation, partners will widely distribute V-CCC throughout Vietnam using hospital clinics, waiting rooms, advocacy groups and social media. We will use google analytics to explore how many people access the resource, from which region and how long they use the resource for. We hope that V-CCC will reduce isolation, poor management and ultimately deterioration of cancer outcomes that have increased due to COVID-19. The lessons we learn during this project will be exchanged with our academic partners in Colombia , Uganda and Malaysia so that they too can learn how remote digital management tools may be useful in those countries.
The team have developed a written version of the digital support V-CCC. This project will 1) Develop the digital version of V-CCC 2) Evaluate the impact V-CCC may have on patient and carer outcomes 3) Explore V-CCC usage throughout the country. We will develop the best possible digital advice and information by working together as a large group of doctors, nurses, carers, patients, academics and allied health professionals from across all regions of Vietnam. An expert digital supports team will transfer this information online ensuring that it is easy to use e.g. videos/pictures/ interactive games. We will demonstrate the V-CCC in workshops involving 50 carers from five different regions of Vietnam (Hanoi, HCMC, Hue, Danang and Can Tho). Changes will be made to V-CCC based on this feedback. We will then evaluate the V-CCC with 150 carers (and patients if willing) across five cancer hospitals (Hanoi, Ho Chi Mhin City, Can Tho, Danang and Hue). Nurses in cancer hospitals will recruit participants and assist them to complete baseline measures (mental health, quality of life, health literacy). Cancer carers will be provided with a web-link and access code to V-CCC for two weeks. Participants will be asked to complete follow-up surveys identical to those they completed at the onset. We will then conduct 30 online interviews over Skype with a range of carers to explore their experiences of using V-CCC. We will also ask N=15 Health Care professionals to share their thoughts and experiences of V-CCC interviews. Following evaluation, partners will widely distribute V-CCC throughout Vietnam using hospital clinics, waiting rooms, advocacy groups and social media. We will use google analytics to explore how many people access the resource, from which region and how long they use the resource for. We hope that V-CCC will reduce isolation, poor management and ultimately deterioration of cancer outcomes that have increased due to COVID-19. The lessons we learn during this project will be exchanged with our academic partners in Colombia , Uganda and Malaysia so that they too can learn how remote digital management tools may be useful in those countries.
Organisations
- Queen's University Belfast (Lead Research Organisation)
- Vietnam National Cancer Hospital Hanoi (Collaboration)
- Hue University Pharmacy and Medicine (Collaboration)
- Hue Central Hospital (Collaboration)
- Global Focus on Cancer (Collaboration)
- Ho Chi Minh City Medicine and Pharmacy University (Collaboration)
- Ho Chi Minh City Oncological Hospital (Collaboration)
Publications
Bui Linh Chi
(2023)
Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam
in BMC Public Health
Carter G
(2020)
What is known from the existing literature about peer support interventions for carers of individuals living with dementia: A scoping review.
in Health & social care in the community
Dang TH
(2021)
Patient-Centered Care: Transforming the Health Care System in Vietnam With Support of Digital Health Technology.
in Journal of medical Internet research
Ho H
(2023)
Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam
in BMC Public Health
Ho HT
(2021)
Digital support for caregivers of patients with non-communicable diseases during COVID-19: Lessons from a cancer case study in Vietnam.
in Journal of global health
Jenkins C
(2021)
What works in global health partnerships? Reflections on a collaboration between researchers from Vietnam and Northern Ireland.
in BMJ global health
Jenkins C
(2021)
A qualitative study on the needs of cancer caregivers in Vietnam.
in Global health action
Komuhangi A
(2022)
The needs, challenges, and burden experienced by informal caregivers in Uganda: a scoping review
in Discover Social Science and Health
Description | This award developed an online digital resource to support families affected by cancer in Vietnam. This resource meet the health and social care needs of families, promoting health literacy and mental health outcomes. |
Exploitation Route | We are using this model of support for use in other disease groups and LMIC settings |
Sectors | Healthcare |
Description | The launch of an online support for families affected by cancer in Vietnamese Cancer Hospital |
First Year Of Impact | 2023 |
Sector | Healthcare |
Impact Types | Policy & public services |
Description | ESRC IMPACT ACCELERATION FUND |
Amount | £20,000 (GBP) |
Organisation | Queen's University Belfast |
Sector | Academic/University |
Country | United Kingdom |
Start | 01/2022 |
End | 12/2022 |
Description | MRC PHIND |
Amount | £150,000 (GBP) |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 04/2023 |
End | 08/2024 |
Description | Opportunity Led Funding HSC R&D |
Amount | £38,503 (GBP) |
Organisation | Public Health Agency (PHA) |
Department | HSC Research and Development |
Sector | Public |
Country | United Kingdom |
Start | 02/2021 |
End | 02/2022 |
Description | Global Focus On Cancer |
Organisation | Global Focus On Cancer |
Country | United States |
Sector | Charity/Non Profit |
PI Contribution | Partnership with NGO to develop supportive interventions in cancer in Vietnam |
Collaborator Contribution | Building partnerships across Vietnam |
Impact | NGO |
Start Year | 2019 |
Description | Ho Chi Minh Oncology Hospital |
Organisation | Ho Chi Minh City Oncological Hospital |
Country | Viet Nam |
Sector | Hospitals |
PI Contribution | largest oncology hospitals in Southern Vietnam. The QUB/HUPH team have facilitated iterative workshops on 3 occasions in the hospital with hospital management, doctors, nurses, allied health professionals, carers and patients to identify the need for psychosocial supports and the potential components of an online vietnamese resource. The hospital have given their time commitment to work in partnership with QUB and HUPH to develop the CCC-V which has been described as an urgent priority. |
Collaborator Contribution | Participation as a research site and joining a national research consortium to develop supports for patients and carers |
Impact | 2 x publications 1 publication 1x ESRC grant 20,000 |
Start Year | 2018 |
Description | Hue Central Hospital (Oncology Centre) |
Organisation | Hue Central Hospital |
Department | Oncology Center of Hue Central Hospital |
Country | Viet Nam |
Sector | Hospitals |
PI Contribution | Delivery of large focus group to identify the psychosocial support needs of cancer patients and carers. |
Collaborator Contribution | Participation in research and joining national research consortium |
Impact | Multi-disciplinary: nurses , oncologists, social work and medicine |
Start Year | 2019 |
Description | Hue University |
Organisation | Hue University Pharmacy and Medicine |
Country | Viet Nam |
Sector | Academic/University |
PI Contribution | Facilitation of priority setting workshop to develop su |
Collaborator Contribution | Participation in priority setting workshop |
Impact | Nursing, ,medicine |
Start Year | 2019 |
Description | National Psychiatric Hospital 2 HCMC |
Organisation | Ho Chi Minh City Medicine and Pharmacy University |
Country | Viet Nam |
Sector | Academic/University |
PI Contribution | Development of a funded grant and agreed partnership to host joint seminars |
Collaborator Contribution | Development of a funded grant and agreed partnership to host joint seminars |
Impact | ESRC Impact acceleration grant and committment to host seminars focused on families affected by dementia |
Start Year | 2022 |
Description | National Psychiatric Hospital 2 HCMC |
Organisation | Ho Chi Minh City Medicine and Pharmacy University |
Country | Viet Nam |
Sector | Academic/University |
PI Contribution | Development of a funded grant and agreed partnership to host joint seminars |
Collaborator Contribution | Development of a funded grant and agreed partnership to host joint seminars |
Impact | ESRC Impact acceleration grant and committment to host seminars focused on families affected by dementia |
Start Year | 2022 |
Description | Vietnam National Cancer Hospital in Hanoi (K Hospital) |
Organisation | Vietnam National Cancer Hospital Hanoi |
Country | Viet Nam |
Sector | Hospitals |
PI Contribution | . The QUB/HUPH team have facilitated iterative workshops on 3 occasions in Vietnam National Cancer Hospital in Hanoi (K Hospital) with hospital management, doctors, nurses, allied health professionals, carers and patients to identify the need for psychosocial supports and the potential components of CCC-V. |
Collaborator Contribution | Participation in focus groups and joining a consortium of experts across vietnam to develop psychosocial supports |
Impact | 2 publications in psychooncology and 1 currently under review. 1 further grant ESRC 20,000 |
Start Year | 2019 |
Title | Vietnam- Cancer Caring Coping |
Description | An online resource to support families affected by cancer in Vietnam https://chamsocbenhnhanungthu.vn/wp-login.php |
Type Of Technology | Webtool/Application |
Year Produced | 2022 |
Impact | None to date |
URL | https://chamsocbenhnhanungthu.vn/wp-login.php |
Description | Resource Launch Of Digital Resource In Vietnamese Cancer Hospital Can Tho |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | National launch in Can Tho Oncology Hospital of a digital resource to support families affected by cancer |
Year(s) Of Engagement Activity | 2023 |
Description | Resource Launch Of Digital Resource In Vietnamese Cancer Hospital Hue |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | National launch of digital resource to support families affected by cancer in Vietnam Hospitals |
Year(s) Of Engagement Activity | 2023 |