Experiences of Genetic Relatedness among Donor-Conceived Adults Sharing the same Sperm Donor.

Lead Research Organisation: University of Huddersfield
Department Name: Sch of Human and Health Sciences

Abstract

Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.
 
Description Key findings and outputs relate to:

- description and critical analysis of policies regarding access to genetic and birth origins information for donor-conceived people in the UK in four distinct time periods, including the period during which participants in this study were conceived;

- tracking study participants' endeavours to trace their genetic heritage from the time of initial revelation of their donor-conceived status to the identification of their donor and location of donor half-siblings.
Exploitation Route Contribution to regulatory/policy consultations eg Parliament of Victoria Law Reform Committee (2011) Inquiry into access by donor_conceived people to information about donors, to which I gave written evidence (Submission No DCP 43) http://www.parliament.vic.gov.au/images/stories/committees/lawrefrom/iadcpiad/submissions/DCP43_-_Eric_Blyth.pdf

The Committee's report was tabled before the Victorian Legislative Assembly

and the Legislative Council on 28 March 2012 (www.parliament.vic.gov.au/law
Sectors Education,Healthcare
 
Description Citations in subsequent peer reviewed papers
First Year Of Impact 2012
Sector Healthcare
Impact Types Policy & public services
 
Description citation in Nuffield Council on Bioethics (2013) Donor conception: ethical aspects of information sharing
Geographic Reach National 
Policy Influence Type Citation in other policy documents
Impact informed public and professional debate on access to information about genetic origins information following donor conception
URL http://nuffieldbioethics.org/project/donor-conception/
 
Description Experiences of genetic relatedness among donor-conceived adults sharing the same sperm donor 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Health professionals
Results and Impact Seminar at the Faculty of Health and Social Sciences Leeds Metropolitan University 7 December 2011

Participants included staff from local fertility clinics who discussed the implications of the research findings for their practice
Year(s) Of Engagement Activity 2011
 
Description Experiences of genetic relatedness among donor-conceived adults sharing the same sperm donor 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Seminar at the Centre for Research on Families and Relationships, University of Edinburgh 16 August 2011

The presentation promoted discussion among a wide audience primarily of academic social scientists - but also health care and social work professionals - regarding the research method employed (asynchronous email interviews) and the specific findings of the study
Year(s) Of Engagement Activity 2011
 
Description Experiences of genetic relatedness among donor-conceived adults sharing the same sperm donor 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Seminar at the Institute of Psychology, Health and Society, University of Liverpool 23 November 2011

The audience comprised a mix of university staff and students and members of the public. Interest was shown in both the study findings and the methods employed in undertaking the research (asynchronous email interviews)
Year(s) Of Engagement Activity 2011
 
Description Experiences of genetic relatedness among donor-conceived adults sharing the same sperm donor 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Seminar at the Queen Margaret Hospital and Centre on Behavioral Health, University of Hong Kong, Hong Kong 8 November 2011

This open invitation meeting attracted staff and students from various disciplines at the University of Huddersfield. The presentation promoted discussion about the findings of the study and their implications, the ethics of anonymous gamete donation (still the "norm" in Hong Kong), and the research method employed in the study (asynchronous email interviews)
Year(s) Of Engagement Activity 2011
 
Description Experiences of genetic relatedness among donor-conceived adults sharing the same sperm donor. European Society of Human Reproduction and Embryology (ESHRE) 27th Annual Meeting, Stockholm 3-6 July. Human Reproduction 26 (S1): I78-I79. 
Form Of Engagement Activity Scientific meeting (conference/symposium etc.)
Part Of Official Scheme? No
Type Of Presentation paper presentation
Geographic Reach International
Primary Audience Health professionals
Results and Impact Oral presentation at European Society of Human Reproduction and Embryology (ESHRE) 27th Annual Meeting, Stockholm 3-6 July 2011. Abstract published in Human Reproduction 26 (S1): I78-I79.

Presentation prompted questions and discussion both during and after the formal session (since this was time-limited)

Colleagues from various countries were in contact primarily via email following the conference presentation to ask further questions and discuss the findings of the study
Year(s) Of Engagement Activity 2011