Childhood limiting long-term illness/disabilty and socioeconomic disadvantage in the UK: exploring predictors, trends and causal directions
Lead Research Organisation:
University of Warwick
Department Name: Sch of Health & Social Studies
Abstract
Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.
Publications
Blackburn C
(2011)
P2-27 Does social disadvantage in earlier childhood predispose to onset of limiting longterm illness (LLTI)/disability in later childhood? A population based study using the UK ONS Longitudinal Study (ONSLS)
in Journal of Epidemiology & Community Health
Clare Blackburn (Author)
(2011)
Disabled parents and disabled children in the same family : exploring the evidence and implications
Nick Spencer (Author)
(2012)
Social disadvantage and childhood limiting longterm illness/disability : cause or consequence?
| Title | DisCOVER: Disabled children and their families |
| Description | A video interview of Clare Blackburn and Janet Read talking about their research findings. The video was for recorded by Professor Dan Goodley for undergraduate and postgraduate students on critical disability studies, psychology, education and social work courses, and the general public. This is available at: |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2011 |
| Impact | Requests for information from students on disability studies and social work courses. |
| URL | http://www.youtube.com/watch?v=QmptJAMAX1o |
| Description | Our findings have been used by a wide range of non-academic audiences. We have increased the knowledge of policy makers, services planners and providers, and organisations and individuals working on behalf of disabled children and their families in relation to i) the nature of the association between socio-economic disadvantage and childhood disability ii) the characteristics and circumstances of disabled children and their families iii) the need for policies and interventions which seek to reduce children's exposure to socio-economic disadvantage in early childhood. Our findings informed the basis for an invited chapter for the Annual Report of the Chief Medical Officer for England, 2012. The aim of this report is to provide an assessment of the state of the public's health and to advise government on where action is required. Our study findings have been incorporated into professional education programmes in higher education institutions, including in the teaching programme for LLM students at Cardiff Law School, for Social Work Students at the University of Bristol, Masters in Public Health Students and Undergraduate Medical Students at the University of Warwick. In addition, our work has been used as part of a YouTube video for undergraduates in psychology and disability studies. Study findings were tweeted by the NHS England Head of Patient Participation and blogged by Dr Jenny Morris, prominent disability rights campaigner and author to increase awareness of the link between childhood disability and socio-economic disadvantage. Organisations say they have used this information to inform practice, political lobbying, respond to public debates and press reports. We have contributed to cross-disciplinary discussions on the human rights of disabled children, particularly rights under the UN Convention of the Rights of Persons with Disabilities. This has contributed to the identification of barriers and solutions to ensure the rights of disabled children. Our research was used to inform a funding application from a user-led organisation of families with children with learning disabilities. We have assisted this organisation to apply for research funding to undertake a scoping study to improve provision for children with learning disabilities and their families, in line with the recommendations of the Chief Medical Officer's report. We have increased knowledge among those providing services for disabled children and their families. Community paediatricians, lawyers and law students, local service managers, and carer organisations say they feel better informed and will use the information in their work. Individual parents attending many of our public engagement events tell us they have valued the information and have shared it with other parents. Information provided to the Office for Disability Issues was incorporated in the major evidence review Fulfilling Potential: Working together to Empower Disabled People, which was written to inform the government's disability strategy. Groups and individuals who have told us our findings have had an impact on their knowledge and activities are: organisations representing the interests of disabled children: general children's charities and organisations working to support disabled children and their parents/carers; individual parents; professionals working with disabled children e.g. hospital and community paediatricians, social workers, nurses working with disabled children; policy-makers in national and local government; a Peer in the House of Lords. |
| First Year Of Impact | 2011 |
| Sector | Communities and Social Services/Policy,Education,Healthcare,Government, Democracy and Justice |
| Impact Types | Societal,Policy & public services |
| Description | House of Lords debate : child development |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Description | Analysis of Longitudinal Study of Australian Children |
| Organisation | Australian National University (ANU) |
| Department | National Centre for Epidemiology and Population Health |
| Country | Australia |
| Sector | Academic/University |
| PI Contribution | As a result of our work, Professor Nick Spencer was invited to work with Dr Lyndall Strazdins at the National Centre for Epidemiology and Public Health, Australian National University, Melbourne, Australia. Professor Spencer was a visiting fellow in the Centre. During his time there he analysed the Longitudinal Study of Australian Children to see if our findings from the UK ONS Longitudinal Study, on the clustering of parent and child disability, were replicable in the Australian data-set. |
| Start Year | 2011 |
| Description | Disabled children and disabled parents in the same family : what is the evidence and how might it be explained? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Seminar paper during ESRC Social Science Festival 2011 Further invitations to present findings Discussions with parents interested in participating in support or providing service user expertise |
| Year(s) Of Engagement Activity | 2011 |
| Description | Disabling chronic conditions in childhood and social disadvantage : exploring the temporal pathway |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote lecture at Annual Scientific Meeting of the British Association for Community Child Health: Action in an age of austerity 2012. We received invitations for to make further presentations. Request to provide research summary to non-government organisations for distribution |
| Year(s) Of Engagement Activity | 2012 |
| URL | http://www.bacch.org.uk/conferences/documents/ASM2012fullprogramme_final.pdf |
| Description | Exploring the social circumstances of children with chronic disability conditions |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Presentation given to faculty members at the National Centre for Epidemiology and Public Health during Professor Spencer's visit to the National Australian University. Some joint research work and a publication with a staff member in the National Centre for Epidemiology and Public Health at the National Australian University. |
| Year(s) Of Engagement Activity | 2013 |
| Description | Social disadvantage and childhood limiting longterm illness/disability : cause or consequence? |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at Essop annual meeting 2011 Requests for further information from participants (paediatricians and other child health practitioners Audience reports of greater understanding of the issues |
| Year(s) Of Engagement Activity | 2011 |
| Description | Social disadvantage: a cause of disability? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A keynote address given at the conference entitled Disabled Children and the UN Convention on the Rights of Persons with Disabilities. This conference was attended by national and international participants, including parents of disabled children, academics from a range of disciplines, policy makers (national and local government), practitioners providng services for families, representatives from organisations representing the interests of families, law students. A recording of this presentation was made publicly available and can be viewed at: http://www.law.cf.ac.uk/newsandevents/events2.php?id=582 Law students attending the event were very interested in the health impacts we described. This was new information to many of them. Some international students from low income countries asked for information about the association of child disability with socio-economic disadvantage in low income and we were able to provide them with sources of information to use to assist in their work when they return home. We were also able to discuss findings with some parents who felt that the information together with that from other presentations, would help them in their effort to secure greater resources for their children. |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.law.cf.ac.uk/newsandevents/events2.php?id=582 |
| Description | The impact of socio-economic disadvantage on childhood disability |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was a presentation to approximately 150 Tribunal Judges at the National Conference of Tribunal Judges to update the audience on the latest research on how socio-economic disadvantage is associated with childhood disability and its implications for policy and professional practice. |
| Year(s) Of Engagement Activity | 2015 |
| Description | The social circumstances of children with chronic disabling conditions MSPH October 2012 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Invited presentation given to faculty members at the School of Population and Global Health, University of Melbourne, Australia. Raising awareness of faculty staff and networking |
| Year(s) Of Engagement Activity | 2013 |