Stress online: Developing a reliable and valid interactive online method for measuring stressful life events and difficulties.

Lead Research Organisation: Middlesex University
Department Name: School of Health and Education

Abstract

Stress is known to be a major contributor to illness and a significant obstacle to wellbeing. It is common in the general population, particularly adolescence and amongst those disadvantaged, and likely to increase at times of economic austerity as well as at key life transitions such as leaving home. To understand stress, it is important to differentiate its objective properties in terms of adverse life events and difficulties and stress responses such as physical or emotional illness or problem adaptation (such as at university). Objective stressors can arise in many forms. Some life events/difficulties are common across communities, such as unemployment or housing problems, while others are more personal such as in partner or parenting relationship problems. For all stressful experience personal context is key to understanding its specific harmful effects. Severe life events and related difficulties are consistently associated with the onset and relapse of common mental illnesses (eg depression), and serious physical conditions (eg cardiovascular disease or diabetes). Latest research seeking to examine how biological factors combine with stress in different disorder outcomes utilising large sample sizes. Here, brief checklist life events scales have been used, but create methodologically problems (because too brief, too subjective, and lacking in context and timing information). Intensive interview methods are superior in providing much richer information but are time consuming, complex and costly, which restricts their use. A new approach using latest technology is proposed which can take the best of both approaches in researching the effects of stress on illness and providing a tool for healthcare practice and in education for improving wellbeing.

The new online Computerised Life Event Assessment Record (CLEAR) will be developed to mimic characteristics of the face-to-face intensive interview approach, but administered remotely at much lower cost. It will be delivered online using latest web-based data capture technology, and consist of detailed questions on recent life events and difficulties in a broad range of categories, including both closed and open questions, completed by both tick box and text box responses which move from initial screening questions, to detailed probes specific to the category, including severity, timing and sequence of events. Aids will involve a derived personalised calendar, and help tools (reminders of key relationships included, or giving examples of types of events) and graphic displays of key information. The full electronic trail of data provided will be verified by an expert reviewer for the final scorings. Only then will the data be ready for either computerised statistical analysis (research) or clinician interpretation (practice). A laptop version will be developed for those without online access.

The study aims to test the reliability and validity of the CLEAR instrument in various ways and in two different samples. The tool will be developed based on an existing unique archive of life stress interviews, it will look at the comparability of both online and face-to-face interviews with the same individuals, will examine CLEAR response stability over time, and analyse the expected relationship of stressful events to social disadvantage, depression, physical illness and student academic performance. A subset of an existing national sample of Depression and Case Control adults (DeCC), and a newly selected sample of first year undergraduate student will be used to test the measures' robustness and association with problem outcomes in two lifestages. An International Scientific Advisory Board of academics and clinicians associated with the project will ensure use of the tool in ongoing longitudinal health research studies, in clinical and health practice and student monitoring. The measure will enhance the understanding of stress through improved research and clinical practice.

Planned Impact

Who will benefit from this research and how?
i) Practitioners involved in interventions/treatments focused on managing/reducing life stress and its impacts on emotional disorder. This will include practising psychiatrists, psychologists (clinical and health psychologists, psychotherapists and counsellors), and social workers.
- How benefited: the research findings identifying specific relationships between stress and emotional and physical disorder will aid clinician understanding of the role of stress. In addition, clinicians frequently need to document stressors both at initial assessment and between clinical sessions in order to understand the onset and maintenance of stress-related disorders. For example CBT, counselling and and Interpersonal Therapy is focused on managing stress responses in different domains such as relationships, work, finances etc. The provision of easily collected calendars of stress with details of category, severity and timing will help to focus therapeutic strategy and care provision.
ii) Medical practitioners involved with treatment planning for individuals with physical conditions impaired by high stress levels.
- How benefitted: research findings will add to understanding characteristics of life events and difficulties associated with illness. Providing an easy assessment of patient life stress will aid with providing support and managing treatment plans.
iii) Providers of university education can utilise the findings on stress and academic attainment in 1st year undergraduates to specify the likely stressors occurring for young people entering university for the first time. This will document areas of difficulty and show how these impact on academic performance, satisfaction and course drop-out. The tool can be incorporated into student counselling services.
- How benefited: Aid to targeting student support services and for standardising 'mitigating circumstances' in relation to exam and course work performance.
iii) Wider public and policy understanding of the effects of stress and its management on illness and problem adapatation.
- How benefited: findings of the study will be disseminated to the general population with the new online tool potentially useful in the wider population to identify common stressors. The tool can be adapted for psycho-educational use in relation to feedback of stress profiles with advice about stress management for the public at large.

Publications

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Bifulco A (2019) . in The Computerised Life Events and Assessment Record (CLEAR) online measure of life events: reliability, validity and association with depression

 
Description The main objectives were first to test the reliability and validity of CLEAR using a midlife and student sample; secondly to confirm the association of negative life events with depression symptoms and its better performance than a life events questionnaire; and thirdly to examine events in relation to poor grade outcome in students.

1. Test-retest reliability looked at the association of 60 participants who filled out the measure on two occasions 4 weeks apart. Demographic characteristics were highly associated (.70 and above). For events identified both time there was good agreement for severity of event (.69) and focus on the individual (.74) and negative event attributes (.69) as well as positivity of events (.72). However, identification of all events on both measures was only poor agreement (.25) but higher in midlife respondents (.40). More routine events were missed by CLEAR.
2. Validity examined association of CLEAR and the LEDS interview for 30 respondents. Demographic characteristics showed high agreement (.70 and above). For events identified by both methods good agreement was reached for classification (.74), focus (.83), long term threat reported (.89). This was lower for positive events (.50). However, the interview reflected more events and overlap for any event was poor (.18). This was mainly accounted for around clustering of events and those more routine.
3. Among 328 participants CLEAR showed good predictive validity, with severe life events significantly related to the onset of depression. This was not confirmed using the life events questionnaire alone. A model of vulnerability (insecure attachment style) severe life event and depression was confirmed.
4. In the student group life events, vulnerability and depression were examined in relation to poor first year grades. The best predictor was insecure avoidant attachment style. This has implications for student engagement and attainment.
Exploitation Route CLEAR was shown to be an effective assessment of life events and associated symptoms superior to a checklist of life events and confirming the expected model of depression. It provided a more cost effective and time efficient method than interviewing with data ready-programmed for effective analyses. It also generated helpful feedback to respondents. It has the advantage of being able to capture large amounts of time-based data and is programmed and is easily accessed.
In comparison to interviews, the cost/time investment in rating events is good but the richness of information valuable to clinicians superior to self-report questionnaires. CLEAR is being tested in clinical settings to determine risk for perinatal depression. It is also being utilised in student cohorts to look further at student lifestress and vulnerability in relation to both depression and poor grade attainment. Collaborations with trauma clinicians as well as wellbeing in staff are also in process.
Sectors Education,Healthcare

 
Description The online measure of stressful events is now being piloted in a perinatal service in the Western Health Trust Derry Northern Ireland. It is being tested for feasibility and usability with a view to an in-depth assessment of stressful experience amongst pregnant women and their partners. If it proves effective it will be used as part of a nationwide intervention being set up by the WAVE charity to offer tailored services to pregnant women in order to improve attachment and interaction with the newborn baby.The CLEAR online system is also being used by Middlesex University to monitor student mental health and problems with transitioning to university. Several cohorts have completed the online tool and it is being integrated within a wider student welfare framework to highlight students at risk of lowered educational performance or university drop out. Further funding is being sought for use of the CLEAR epidemiologically as a means of gauging stress over wider populations. This particularly at a time of economic uncertainty (eg Brexit) and prolonged austerity.
Sector Education,Healthcare
Impact Types Societal

 
Title Redesigned training for Life Events and Difficulties Schedule interview. 
Description The interview has become outdated because of lack of available training. Whilst the main project is to design an online measure of life events and difficulties, the project has additional designed a training package for the interview version of the measure. It is expected that the online version will also trigger interest in the face-to-face interview, particularly for practitioners in health and social care. 
Type Of Material Model of mechanisms or symptoms - human 
Year Produced 2016 
Provided To Others? Yes  
Impact The traning is yet to be enacted. There have been queries from the USA. In addition the measure has been named in a new application related to domestic violence for a funding charity. 
 
Description Western Health Trust, Derry, Northern Ireland 
Organisation Western Health and Social Care Trust
Country United Kingdom 
Sector Public 
PI Contribution We have a license agreement with the Western Health Trust, Derry, and have installed our online CLEAR system to aid with their assessment of stress in patients perinatally.
Collaborator Contribution The use of the online CLEAR assessment aims to improve assessment of stress in pregnancy in order to flag up need in relation to services to be offered. It is in the pilot stage of assessing perinatal patients. The license agreement is in place.
Impact The collaboration involves perinatal practice, and therefore includes midwifery; health visitors; social work and obstetrics. The health trust will use the assessment for their own practice and to offer patients more tailored support services.
Start Year 2017
 
Description Greek mental health charity organisation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation provided to Klimaka Greek charitable organisation for mental health and suicide. This a preliminary to setting up partnership working.
Year(s) Of Engagement Activity 2022
 
Description Presentation on the CLEAR online stress project to the Perinatal department, Institute of Psychiatry, Psychology & Neuroscience, KCL 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact An invited presentation to psychologists and psychiatrists, researchers and practitioner at KCL. As well as describing research on adversity and depression in the perinatal period, the new CLEAR tool and project was described with an invitation for collaborative use when it is finally validated. Its use for junior doctors and postgraduate students at KCL was also discussed as a future project.
Year(s) Of Engagement Activity 2016
 
Description University Psychology department in Dubai 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Undergraduate students
Results and Impact An invited presentation to psychology in the Dubai campus of Middlesex University focussing on issues of life events and stress as related to Covid19
Year(s) Of Engagement Activity 2021
 
Description University research group presentation on CLEAR 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact The talk was to researchers and practitioner in population health at St George's University of London. It triggered discussion about the potential use of the new online stress measure being developed in the project.

The group leader recommended I approach Biobank in Cardiff to see if the online life events might be utilised in the next tranche of measurement.
Year(s) Of Engagement Activity 2014
 
Description Website developed for project 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Health professionals
Results and Impact Setting up a website for the Online stress project. Sections for both public and professional audiences. Psychoeducational aspect in explaining stress and its measurement.

Not yet identified
Year(s) Of Engagement Activity 2014
 
Description Workshop on CLEAR to launch the online stress site 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Undergraduate students
Results and Impact A workshop on wellbeing was set up for undergraduates in order to mark the launch of the CLEAR online stress tool, to increase visibility, institutional ownership and participation in the project. It was well attended and led to participation.
Year(s) Of Engagement Activity 2016