COVID-19 Cancer Attitudes and Behaviour Study
Lead Research Organisation:
Cardiff University
Department Name: School of Medicine
Abstract
With COVID-19 at the forefront, people may not be aware of the importance of seeking medical help for early signs of cancer or taking up screening, when available, to diagnose cancer sooner. In addition, some people may not want to be referred to a hospital for diagnostic tests due to fear of catching coronavirus in the healthcare setting. COVID-19 may also affect whether people take part in healthy behaviours that can reduce the chances of getting cancer. These factors may lead to more cancers occurring, and more cancers being diagnosed at a late stage when treatment may be less successful.
Over 18 months, we will carry out a large study to measure cancer attitudes and behaviours in adults aged 18+ across the UK. We aim to include adults from a range of different backgrounds.
Working closely with Cancer Research UK, we will carry out an online survey with at least 3,500 people to ask about any recent symptoms, cancer screening and health behaviours during the UK lockdown period. Survey questions will include the time taken to visit the GP with a range of possible cancer symptoms, attitudes to cancer screening, anxiety about seeking help in the current situation, other barriers to seeking help, health behaviours including smoking, alcohol, diet and physical activity, and preferred ways of receiving public health information.
We will also interview by telephone around 30 people who have taken part in the survey to understand their attitudes and behaviours in more detail. The survey and interviews will be repeated with the same people around six months later, to assess any changes in their views and information preferences.
Finally, we will link the survey data with medical records available in Wales to assess the number of GP referrals and tests for suspected cancer symptoms, whether people have taken part in cancer screening, whether people who smoke have quit, and the number and stage of new cancers diagnosed.
Our study findings will be used to rapidly develop clear public health messages encouraging people to act on the early signs of cancer, take up cancer screening when it becomes available, and engage in healthy behaviours. We think this will help to reduce the negative impact of COVID-19 on cancer outcomes in the longer term.
Over 18 months, we will carry out a large study to measure cancer attitudes and behaviours in adults aged 18+ across the UK. We aim to include adults from a range of different backgrounds.
Working closely with Cancer Research UK, we will carry out an online survey with at least 3,500 people to ask about any recent symptoms, cancer screening and health behaviours during the UK lockdown period. Survey questions will include the time taken to visit the GP with a range of possible cancer symptoms, attitudes to cancer screening, anxiety about seeking help in the current situation, other barriers to seeking help, health behaviours including smoking, alcohol, diet and physical activity, and preferred ways of receiving public health information.
We will also interview by telephone around 30 people who have taken part in the survey to understand their attitudes and behaviours in more detail. The survey and interviews will be repeated with the same people around six months later, to assess any changes in their views and information preferences.
Finally, we will link the survey data with medical records available in Wales to assess the number of GP referrals and tests for suspected cancer symptoms, whether people have taken part in cancer screening, whether people who smoke have quit, and the number and stage of new cancers diagnosed.
Our study findings will be used to rapidly develop clear public health messages encouraging people to act on the early signs of cancer, take up cancer screening when it becomes available, and engage in healthy behaviours. We think this will help to reduce the negative impact of COVID-19 on cancer outcomes in the longer term.
Organisations
Publications
Anyanwu P
(2022)
Health behaviour change among UK adults during the pandemic: findings from the COVID-19 cancer attitudes and behaviours study.
in BMC public health
Quinn-Scoggins HD
(2021)
Cancer symptom experience and help-seeking behaviour during the COVID-19 pandemic in the UK: a cross-sectional population survey.
in BMJ open
Wilson R
(2021)
Intentions to participate in cervical and colorectal cancer screening during the COVID-19 pandemic: A mixed-methods study.
in Preventive medicine
| Description | This UKRI Rapid COVID-19 funded study was successfully set up and started data collection within 6 weeks from the funding start date. This was a testament to the excellent partnership between Cardiff University and Cancer Research UK and the whole research team who were in a position to start immediately. By working in collaboration we set up two concurrent surveys (CABS and COVID-CAM). Key measures were aligned across both surveys. Recruitment took place between 6th August and 18th September 2020 and 7543 participants were recruited across both surveys. This surpassed our required sample size and the decision was made to close the survey early. Where appropriate survey data were pooled. Survey data captured participants experiences of potential cancer symptoms and help seeking, attitudes towards screening and engagement in health behaviours (diet, weight loss, smoking, drinking and exercise) during the first 6 months of the UK pandemic. A subsample (n=30) of participants were also interviewed to learn more in-depth about their experiences during this time. Findings on symptom help-seeking and intentions to engage in cervical and bowel screening have been published in two peer reviewed papers (Quinn-Scoggins et al 2021; Wilson et al 2021) and were also published in two policy briefings which were shared with over 50 stakeholder including third sector organisations, NHS organisations and government agencies/officials and gained significant media coverage. Results indicated that almost half of those participants who experienced a potential cancer symptom did not contact their GP, even for red flag symptoms (i.e. coughing up blood) and that 1 in 5 were less likely to take part in Cancer screening now than before the pandemic. Study findings have informed messaging of two national public health campaigns encouraging people to contact their GP if they experienced any unusual or persistent symptoms (Cancer Research UK's 'Don't Ignore It' and Cancer Research Wales; 'Get Checked' campaigns). We have also developed a study infographic and animation which summarises the key study findings and are available on our website here: https://cabs-study.yolasite.com/news.php The infographic will also been shared by UKRI on 23rd March 2022 as part of their planned communication with the UK government on the impact of their research and innovation funding. Prospective analysis of health behaviours data has now been completed and has been prepared for publication with the intention to submit this to BMC Public Health in the next few weeks. Findings indicate that participants were highly motivated to engage in healthy behaviours including: increased physical activity (52.4%), increased fruit/vegetable consumption (49.1%), weight loss (48.5%), reduction in alcohol consumption (19.0%) and stopped/reduction in smoking (51.5%/27.4%). Motivation to continue to engage in these healthy behaviours were sustained over a 6 month period. Analysis of anticipated symptom attribution and associated help-seeking and prospective analysis of symptom help-seeking are currently being finalised and prepared for subsequent publication. We have now also secured approval to access routine data through the SAIL data bank and intend to investigate GP referral data. We have identified a Medical Intercalated student at Cardiff University who will be taking up this project in October 2022. |
| Exploitation Route | We are calling for well evidenced, nationally funded and co-ordinated cancer awareness campaigns to get the message out to the general public that NHS services are open safely and to encourage people not to delay seeking help for any unusual or persistent symptoms. To do this we want to use the findings from this study to influence local and national campaigns and government messaging. We plan to engage with a range of stakeholder including third sector organisations, NHS organisations and government agencies/officials to ensure messages are well evidenced and uniform. This will ensure that the general public receive strong unified messages. |
| Sectors | Healthcare,Government, Democracy and Justice |
| URL | https://cabs-study.yolasite.com/news.php |
| Description | Both policy briefings received significant engagement from key stakeholders and resulted in further impact. The first policy briefing reporting on symptom experiences during COVID-19 received extensive media coverage, in particular, the findings were highlighted by prominent social media influencer Deborah Jones (@bowelbabe) and were featured in The Sun, The Daily Mail, BBC news and on Sky News to name a few. The study findings directly influenced three cancer campaigns. Cancer Research UK draw on the study findings when prioritising the focus for the 'Don't ignore it' campaign, while Cancer Research Wales amended their key messages and tone of their 'Get checked' campaign and Wales Cancer Network reiterated the key findings as part of their social media delivered with the support of rugby legends. Following the second policy briefing, reporting on cancer screening engagement, we supported Public Health Wales screening division in identifying key items as part of their screening strategy by drawing on barriers reported in both the symptom help seeking and cancer screening engagement papers. Furthermore, Professor Brain was invited to provide evidence at the Welsh Screening Committee meeting drawing on findings from the CABS study. |
| First Year Of Impact | 2021 |
| Sector | Healthcare,Government, Democracy and Justice |
| Impact Types | Societal,Policy & public services |
| Description | Cross-party Senedd meeting on public health research |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Evidence provided at Welsh Government Technical Advisory Group |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Invited presentation Welsh Screening Committee |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Contribution to a national consultation/review |
| Description | Policy briefing - CERVICAL AND COLORECTAL CANCER SCREENING DURING COVID-19 |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | We received significant interest from prominent stakeholders and held follow-up meetings with Yorkshire Cancer Research regarding their planned campaigns, Public Health Wales screening division and Welsh Government screening division to discuss future screening strategies. Following this Professor Brain was invited to provide evidence at the Welsh Screening Committee and we were invited to deliver a public webinar hosted by Welsh Cancer Alliance. |
| URL | https://www.cardiff.ac.uk/news/view/2534678-more-than-one-in-five-people-less-likely-to-attend-cance... |
| Description | Policy briefing - Potential cancer symptom experience and help seeking behaviour during the UK COVID-19 pandemic |
| Geographic Reach | National |
| Policy Influence Type | Implementation circular/rapid advice/letter to e.g. Ministry of Health |
| Impact | A policy briefing was released on 25th February 2021 outlining the initial findings from the first survey on participants experience of potential cancer symptoms and help-seeking. The policy briefing was made available on the study website (https://cabs-study.yolasite.com/news.php) and also emailed directly to over 40 key stakeholders across the UK including policy makers, UK/Welsh/Scottish government, NHS organisations and third sector organisations. The policy briefing was accompanied by a press release. Following this, we received a large amount of media coverage and are now in contact with a range of stakeholders to plan follow-on meetings to discuss the next steps of this work. The findings were also brought directly to the attention of the First Minister of Wales during 'First Ministers Questions' on 2nd March 2021 (https://record.senedd.wales/Plenary/11181#C360574 ) by Caroline Jones MS who asked in light of these findings, and apart from reinforcing the messages about the NHS being open, what more the government could do to ensure the backlog in diagnostics is dealt with and improve chances of survival for those seeking treatment. |
| URL | https://cabs-study.yolasite.com/news.php |
| Description | CRUK ' Don't ignore it' campaign Wales |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Cancer Research UK with support from NHS Wales and the Welsh Cancer Network ran a symptom awareness campaign called 'Don't Ignore it' with the aim to reduce barriers to help seeking. The mass media campaign was aired in two bursts in June and August 2021 in Wales for 6 weeks via TV and social media and drew on the barriers identified by the CABS findings (i.e. worry about wasting GP time, overstretching the NHS, worried about making a fuss). In developing the campaign, we shared a report with CRUK outlining a breakdown of the CABS symptom help seeking findings by UK nation. On launch of the campaign this was shared with local media and several news stories were published including in the Daily Express, ITW Wales and Wales Online to name a few, which reported the devolved nation findings. An evaluation of the campaign is currently being conducted and will be available at the end of March 2022. |
| Year(s) Of Engagement Activity | 2021 |
| Description | CRUK internal cross-departmental presentations departments |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Between 28.04.2021 and 11.05.2021 Dr Victoria Whitelock delivered 5 internal presentations highlighting the screening results to a range of teams at CRUK, including Senior leadership; Policy, Public Affairs and Campaigns; Information and Innovation; Intelligence and Clinical Engagement; Policy, Information & Communication. These were attended by senior staff and team leads. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | CRUK newsletter highlighting symptom help seeking results to previous volunteers |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | On 13.03.21 CRUK sent their email newsletter highlighting findings from the study to 743,841 individuals who previously fundraised for CRUK and opted to received information from CRUK. 305,261 opened the link of which 10,981 were unique clicks. The article received 173 clicks and some 'thumbs up'. This raised awareness of the CABS study. |
| Year(s) Of Engagement Activity | 2021 |
| Description | CRUK newsletter highlighting symptom help seeking results to stakeholders |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | On 23.03.21 CRUK sent their email newsletter to stakeholders including NHS, academia, Government, third sector highlighting findings from the study sent to 1,461 individuals, 451 opened the link of which 250 were unique clicks. The article received 46 clicks. This raised awareness of the CABS study. |
| Year(s) Of Engagement Activity | 2021 |
| Description | CU Vice Chancellor's VIP Hosting event - Title 'Public awareness of cancer in the COVID-19 era' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Kate Brain and Dr Harriet Quinn-Scoggins were invited to present at Cardiff University Vice Chancellors VIP event on 13.05.2021. The presentation was titled: 'Public awareness of cancer in the COVID-19 era' and drew on findings from the CABS study. 74 people registered to attend the online event, with 31 attending on the day. The recording was made available on YouTube and a further 106 views were recorded after the event [accurate on 11.03.2022]. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| URL | http://www.youtube.com/watch?v=Tc3hVEK0h3o |
| Description | CanTest Summit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Invited presentation at the prestigious CanTest Summit event, sponsored by Cancer Research UK. Increased visibility of Wales-based research to a national and internal audience of leading experts in the field cancer early diagnosis. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.cantest.org/ |
| Description | Cancer screening news story |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | In parallel to publishing of the screening engagement policy report, a news story was published on the Cardiff University and CRUK websites on 16.07.2021 highlighting the findings. Accessible here: https://www.cardiff.ac.uk/news/view/2534678-more-than-one-in-five-people-less-likely-to-attend-cancer-screening-post-pandemic https://news.cancerresearchuk.org/2021/07/16/surv ey-results-reveal-attitudes-towards-cancer-screening-during-the-pandemic/ Following this release, the Zoe study published a story on the impact of covid and cancer on 21.10.21 which was sent to their mailing list and referenced the news story: https://covid.joinzoe.com/post/covid-and-cancer-research The BBC also published an article on 20.01.22 citing this news story entitled ' Public told not to delay cancer check-ups': https://www.bbc.co.uk/news/health-60070512 |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.cardiff.ac.uk/news/view/2534678-more-than-one-in-five-people-less-likely-to-attend-cance... |
| Description | Featured in opening keynote presentation by Professor Claire Wilkinson - PRIME annual conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Professor Claire Wilkinson delivered the opening keynote to the PRIME annual conference 2020 which was held virtually on 3rd November 2020. As part of this she drew attention to the CABS study, highlighting early findings would be available in the new year. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Invited oral presentation - NHS Wales "What opportunities are there with the things we're already doing?" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Professor Kate Brain was invited by the Wales Cancer Network to deliver a short oral presentation at NHS Wales event on 17th November 2021 what opportunities exist in cancer early diagnosis in the current environment. This raised the awareness of the CABS study sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited presentation - COPE Cymru webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Professor Brain and Ms Moriarty were invited to present the CABS study at the COPE Cymru webinar on 30th September 2020. The title of the webinar was 'Stemming the tide of COVID-19 - insights from early research in the UK' and Prof Brain presented and overview of the CABS study data collection and planned analysis. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://copestudy.yolasite.com/ |
| Description | Invited presentation - CRUK Early Diagnosis Virtual Series |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Professor Brain was invited to give an oral presentation at this year's CRUK Early Diagnosis virtual series on 1st February 2021. Session title: Cancer Screening - Current Challenges and Opportunities. Presentation title: Barriers to cervical screening during COVID-19: Preliminary results from CABS. This raised awareness of the study, preliminary findings and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited presentation - CTR Stakeholder event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ms Moriarty (Research Associate and CABS study manager) and Professor Brain were invited to present the CABS study at the Centre for Trials Research virtual Stakeholder event on 10th September 2020. The title of the session was 'Maximising the Use of Existing Data' and Ms Moriarty presented the planned routine data collection and analysis. This raised awareness of the CABS study and sparked questions and discussion. Subsequent meetings have taken place with internal collaborators to discuss the possibilities of linking cancer service provisions data. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Invited presentation - Cardiff University College of Biological Life Sciences: Cancer Theme |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Professor Brain was invited to present the CABS study at the Cardiff University College of Biological Life Sciences: Cancer Theme virtual meeting on 29th January 2021. Title of the presentation: Public awareness of cancer and help-seeking in the COVID era. This raised awareness of the CABS study with key individuals within the College, highlighting the first findings and sparked questions and discussion. Following this, further discussion were had with a colleague (Dr Sarah Fry) in the School of Healthcare Sciences regarding engaging BAME groups in cancer research. Dr Fry was been invited to present at an upcoming departmental meeting and further knowledge and ideas were exchanged on how to promote cancer awareness and prevention in ethnic minority groups. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited presentation - MediWales LifeStories webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Professor Brain and Ms Moriarty were invited to give an oral presentation at the 2020 MediWales LifeStories Live: Innovation, Research and University collaboration webinar on 3rd September 2020. Presentation title: UKRI Rapid COVID-19 Cancer Attitudes and Behaviour Study (CABS). This raised awareness of the upcoming study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.mediwales.com/event/lifestories-life-innovation-support-and-university-collaborations/ |
| Description | Invited presentation - Wales Cancer Alliance & Macmillan Cancer meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Professor Brain was invited to give an oral presentation at the Wales Cancer Alliance & Macmillan Cancer meeting on 28th January 2021. Presentation title: Public awareness of cancer and help-seeking in the COVID era. This raised awareness of the preliminary findings and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited presentation - Wales Cancer Network Clinical Reference Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Following publication of the symptom help seeking policy briefing, Yvonne Moriarty was invited to present the findings at the Wales Cancer Network Clinical Reference Group on 19.03.2021. Around 20 individuals from across Wales attended the meeting. This raised the awareness of the study findings to clinical and third sector community and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited presentation - Wales Cross Party Group on Cancer |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Professor Brain was an invited to deliver a presentation to the Wales Cross Party Group on Cancer on 24th September 2020. Title of the presentation: Public awareness of cancer and help-seeking behaviour in the COVID era. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Invited presentation on patient access to cancer diagnostics |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited presentation at the CanTest Primary Care Cancer Detection Summit, a prestigious event with high profile national and internal speakers. I presented to an audience of around 150 including senior NHS leaders and clinical academics. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Live radio interview - BBC Radio Wales with Gareth Lewis |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | On launch of the CABS study (https://www.cardiff.ac.uk/news/view/2413601-uk-wi de-research-to-look-at-impact-of-covid-19-on-early -cancer-diagnosis) Professor Brain was interviewed live by Gareth Lewis from BBC Radio Wales on 3rd July 2020. Professor Brain highlighted the new study which launched in July and discussed the importance of understanding the current situation regarding peoples experience and behaviours around potential cancer symptoms during the pandemic in the UK. The interview raised awareness of expected results to be released in the new year. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.bbc.co.uk/programmes/m000kh3k |
| Description | Oral presentation - CaPRI Conference 2021 Screening |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Ms Yvonne Moriarty delivered an oral presentation CaPRI 2021 conference on the 10.06.2021 on the intentions to engage with cervical and bowel screening during the UK COVID-19 pandemic. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Oral presentation - CaPRI Conference 2021 Symptom help seeking |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Dr Rebecca Cannings-John and Dr Harriet Quinn-Scoggins delivered a plenary presentation on the symptom help seeking results and barriers to help-seeking during the first 6 months of the UK COVID-19 lockdown at the CaPRI 2021 conference on 10.06.2021. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Oral presentation - Cardiff University Immunity and Infection COVID event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Liba Sheerman delivered a presentation at the Cardiff University Infection and Immunity Covid event on 9.06.21. The session aimed to share ideas for future collaborations around covid research and referenced findings from the CABS study. The event was attended by roughly 50 staff members across the University and raised awareness of the study. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Oral presentation - PHW Bowel screening group Engagement in screening |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Following publication of the screening policy briefing, Yvonne Moriarty was invited to present the findings at the Public Health Wales Bowel Screening group on 24.09.2021. Around 20 clinicians from across Wales attended the meeting. The presentation was also tweeted on the day and gained 1026 impressions and 89 engagements. This raised the awareness of the study findings and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Oral presentation - SAPC Conference 2021 Symptom help seeking |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Rebecca Cannings-John and Dr Harriet Quinn-Scoggins delivered an oral presentation on the symptom help seeking results and barriers to help-seeking during the first 6 months of the UK COVID-19 lockdown at the annual SAPC 2021 conference on 30.06.2021. The session was attended by 47 delegates and raised the awareness of the CABS study to the clinical and academic primary care community and raised the awareness of the study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Panel member - Cancer Research Wales panel discussion for 'World Cancer Day' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Professor Brain was an invited panellist at a virtual discussion panel held by Cancer Research Wales on 4th February 2021 for 'World Cancer Day'. This raised awareness of the CABS study, preliminary findings and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Panel member - UKSBM Cancer Prevention and Screening Special Interest Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Professor Brain was an invited panellist at the virtual UKSBM Cancer Prevention and Screening Special Interest Group Roundtable event on 13th January 2021. This raised awareness of the CABS study and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Poster Presentation - Annual UKSBM Conference 2021 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Dr Whitelock Presented a poster on the preliminary findings of potential cancer symptom experience and barriers to help-seeking during the first 6 months of the UK COVID-19 lockdown. This raised awareness of the CABS study and sparked questions and discussion. Dr Whitelock was also awarded the best poster presentation prize. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Poster presentation - National Cancer Research Institute (NCRI) 2020 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Ms Moriarty (Research Associate and CABS study manager) presented a poster on the CABS study design and planned analysis at the virtual National Cancer Research Institute conference on 2nd-3rd November 2020. The title of the poster was 'COVID-19 Cancer Attitudes and Behaviour Study: A UK wide prospective mixed-methods cohort study'. This raised awareness of the CABS study at a key national cancer research conference and audience. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.ncri.org.uk/ |
| Description | Poster presentation - PRIME conference 2021: Intentions to participate in cervical and colorectal cancer screening during the COVID-19 pandemic |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Ms Moriarty presented a poster at the annual PRIME Centre Wales conference on 16th November 2021 on participants intentions to participate in cervical and colorectal cancer screening during COVID-19. This raised awareness of the CABS study and a copy of the poster is accessible on the PRIME centre website. |
| Year(s) Of Engagement Activity | 2021 |
| URL | http://www.primecentre.wales/2021-annual-meeting.php |
| Description | Press release - Potential cancer symptom experience and help-seeking behaviour during the UK COVID-19 pandemic |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | The first findings on participant potential cancer symptom experiences and help seeking behaviour was released on the 25th February 2021 via a policy briefing. This was accompanied by a press release which received extensive media coverage on a national and international scale and covered as a news story on Cardiff University and CRUK websites. There were over 200 news items in local newspapers or news websites covering these findings and 30 pieces of coverage on local/Welsh radio. Professor Brain was interviewed on the study's findings on two live UK radio stations (LBC and Times radio), one live UK TV programme (Good Morning Britain on ITV) and one pre-recorded Canadian TV news channel (CBC news). Sky News presented the findings with a live interview with Matt Black who was diagnosed with bowel cancer during the first lockdown and with prominent social media influencer Deborah Jones (@bowelbabe). The findings were also extensively covered via social media with the Cardiff University twitter account recording 13.8 impressions and 67 engagements, while the CABS study twitter account released a sting of tweets highlighting the key findings and recorded 11.6K impressions and 222 engagements. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.cardiff.ac.uk/news/view/2501357-nearly-half-of-people-with-potential-cancer-symptoms-in-... |
| Description | Primary and Emergency Care (PRIME) Research Centre Annual Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Two presentations from CABS were delivered by an intercalated medical student to a large multidisciplinary audience. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Primary care conference presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Unpublished study findings on public satisfaction with remote GP consulting presented to an audience of primary care and allied healthcare professionals and researchers. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://sapc.ac.uk/conference/2023swsapc |
| Description | Public profile - Website & Twitter |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A study Logo was developed to use for all future communications regarding the study. A twitter account (@CABSCovid19) was set up in July 2020 and a study specific website (https://cabs-study.yolasite.com/) was set up in December 2020. The study also has a presence on the Centre for Trials Research website (https://www.cardiff.ac.uk/centre-for-trials-resea rch/research/studies-and-trials/view/covid-health- and-help-seeking-behaviour-study) and CRUK website (https://www.cancerresearchuk.org/health-professio nal/awareness-and-prevention/the-cancer-awareness- measures-cam#can_i_use_the_cam0). Since setting up the Twitter account we have had 33.3K impressions with the highest number of impressions on release of the first wave 1 findings on 26.02.21 (18.6K impressions). Since setting up the study website, we have had 407 visitors across 559 visits and 938 page views. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://cabs-study.yolasite.com/ |
| Description | Public webinar - Public Awareness of cancer during COVID |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Professor Kate Brain and public research partner Julie Hepburn delivered a webinar hosted by Wales Cancer Alliance on ''Public Awareness of cancer during COVID' drawing on findings from the CABS study. The webinar was open to members of the public and was attended by third sector organisations, academics and the general public. The webinar raised awareness of the study findings and sparked questions and discussion. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Senedd Cymru (Welsh Parliament) Cross-Party Group in Cancer - Inequalities Inquiry Evidence Session |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | I presented evidence to Welsh Parliament on inequalities in cancer help-seeking behaviours, including the CABS study findings. |
| Year(s) Of Engagement Activity | 2022 |