Linking health and education data for research to improve outcomes for children in England - Supplement
Lead Research Organisation:
UNIVERSITY COLLEGE LONDON
Department Name: Institute of Child Health
Abstract
ECHILD (Education and Child Health Insights from Linked Data) is a research database that joins together existing health, education and social care information for all children in England. This linked data is helping us to better understand how education affects children's health, and how health affects children's education. ECHILD has been recognised by the Office for Statistics Regulation as an example of good practice in increasing the visibility of children and young people by linking data to create a more rounded picture of their lives. The data has already been used to measure disruption to hospital services during the pandemic for different groups of children, based on health or social care needs, and to evaluate the risk of poor educational outcomes and the need for Special Educational Needs provisions at ages 7 and 11 depending on gestational age at birth.
The aim of the ECHILD partnership was and is to make the ECHILD database available to the wider research community. NHS Digital were funded to help find a governance solution to enable onward sharing of ECHILD beyond the UCL study team. Consensus amongst the ECHILD Task & Finish Group (including membership from NHS Digital, DfE, DHSC, ONS and UCL) is that the only viable route to opening up the data for wider research use in the short-term is for UCL to sublicense their existing ECHILD data.
Proposed Research
The aim of this proposal is to open up ECHILD for wider research use through a sublicensing agreement between UCL and NHS Digital. This will allow the wider research community and government analysts to use the data via the ONS SRS to undertake research in any area that provides significant benefits to health or education. Implementation of wider use via a sublicensing agreement will also enable road-testing of an end-to-end service of data flows, preparation, updating and extraction procedures, by UCL working in partnership with ONS SRS and the data custodians.
Objectives:
1. Obtain approval from ethics committees and data owners for ECHILD to become a Research Database that can be opened up for wider research use.
2. Create an expanded ECHILD website to promote transparency, with appropriate privacy notices, a register of approved research applications, and access to outputs.
3. Maintain the ECHILD User Guide and provide support to prospective applicants, including advice on carrying out further linkages (e.g. to rare disease cohorts, or wider health/education data)
4. Support applicants to use the data, e.g. by making code publicly available.
5. Establish processes for reviewing and approving (as license holders) project proposals submitted to the UK Statistics Authority Research Accreditation Panel.
6. Work with ONS to manage data transfers between data holders and ONS SRS and refreshes of data; check new linkages (and re-linkages) and organise data into a form that is useable by a wider research group.
7. Manage approvals for additional datasets for extended ECHILD (e.g. Maternity Services Data, Community Services Data, and Mental Health data).
8. Strategic development of ECHILD to allow for future enhancement as new resources become available / as governance allows.
The aim of the ECHILD partnership was and is to make the ECHILD database available to the wider research community. NHS Digital were funded to help find a governance solution to enable onward sharing of ECHILD beyond the UCL study team. Consensus amongst the ECHILD Task & Finish Group (including membership from NHS Digital, DfE, DHSC, ONS and UCL) is that the only viable route to opening up the data for wider research use in the short-term is for UCL to sublicense their existing ECHILD data.
Proposed Research
The aim of this proposal is to open up ECHILD for wider research use through a sublicensing agreement between UCL and NHS Digital. This will allow the wider research community and government analysts to use the data via the ONS SRS to undertake research in any area that provides significant benefits to health or education. Implementation of wider use via a sublicensing agreement will also enable road-testing of an end-to-end service of data flows, preparation, updating and extraction procedures, by UCL working in partnership with ONS SRS and the data custodians.
Objectives:
1. Obtain approval from ethics committees and data owners for ECHILD to become a Research Database that can be opened up for wider research use.
2. Create an expanded ECHILD website to promote transparency, with appropriate privacy notices, a register of approved research applications, and access to outputs.
3. Maintain the ECHILD User Guide and provide support to prospective applicants, including advice on carrying out further linkages (e.g. to rare disease cohorts, or wider health/education data)
4. Support applicants to use the data, e.g. by making code publicly available.
5. Establish processes for reviewing and approving (as license holders) project proposals submitted to the UK Statistics Authority Research Accreditation Panel.
6. Work with ONS to manage data transfers between data holders and ONS SRS and refreshes of data; check new linkages (and re-linkages) and organise data into a form that is useable by a wider research group.
7. Manage approvals for additional datasets for extended ECHILD (e.g. Maternity Services Data, Community Services Data, and Mental Health data).
8. Strategic development of ECHILD to allow for future enhancement as new resources become available / as governance allows.
Organisations
Publications
Baranyi G
(2024)
Screening for psychological distress in childhood and mental health-related hospital attendance among young adults
in International Journal of Population Data Science
Blackburn R
(2024)
Hospital admissions among adolescents in out-of-home care or special educational needs in England: insights from the ECHILD database of linked health, education and social care records
in International Journal of Population Data Science
Blackburn RM
(2022)
COVID-19-related school closures and patterns of hospital admissions with stress-related presentations in secondary school-aged adolescents: weekly time series.
in The British journal of psychiatry : the journal of mental science
Blake HA
(2023)
Linkage of multiple electronic health record datasets using a 'spine linkage' approach compared with all 'pairwise linkages'.
in International journal of epidemiology
Etoori D
(2022)
Reductions in hospital care among clinically vulnerable children aged 0-4 years during the COVID-19 pandemic.
in Archives of disease in childhood
| Title | ECHILD Illustrations |
| Description | These are illustrations commissioned by the team to bring to life the aims of the ECHILD project. |
| Type Of Art | Artwork |
| Year Produced | 2024 |
| Impact | the illustrations capture the attention of general audiences |
| URL | https://www.echild.ac.uk/what-is-echild |
| Title | What is ECHILD |
| Description | An animation to show what ECHILD is about to lay audiences |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2024 |
| Impact | People found it engaging and easy to understand reaching general audiences |
| URL | https://youtu.be/X6y7XGhQHNI |
| Description | We have created a national data resource for England - the ECHILD database (Education and Child Health Insights from Linked Data). ECHILD represents a step-change in research capability for children and young people, built on an academic-government partnership. Our efforts to establish a governance framework for linkage at NHS England and data access via the Office for National Statistics means that this data resource is now open to UK researchers who aim to answer policy-relevant research questions to benefit the public. The Education and Child Health Insights from Linked Data (ECHILD) Research Database has unlocked the power of administrative data from health, education, and children's social care services for understanding the complex relationships between health and education. ECHILD is the largest dataset of its kind, capturing detailed information on 20 million children in England, from birth to adulthood, and is the first ever comprehensive linkage of health, education and social care data for all children born in England since 1984. Cross-sector partnerships have been built to safely and securely open this pioneering resource for research with clear public benefit for the provision of healthcare and education. Enabling reuse of ECHILD's pseudonymised data and resources leads to gains in productivity for research, removes the need for linkage using personally identifiable information, and delivers public value for money, removing data requests from government departments. Since 2021, the data has been used for research to inform public policy. For example, we used the data to show that children in contact with social care services or those with Special Educational Needs were most affected by COVID-19 and associated lockdowns in terms of hospital admissions, to show that each week of gestational age at birth is associated with improved outcomes at school age. Ongoing research is being conducted to understand whether special educational needs provision in schools can improve health outcomes. Other research includes evaluating how childhood chronic liver disease, cancer, and congenital anomalies are related to cognitive development, and evaluating mortality in children in contact with social care services. Our data development and research has been underpinned by extensive patient and public engagement. For example, we created a video for the PEDRI initiative to describe how linked data are being used for research for children and families and commissioned lay input on the ECHILD website material. ECHILD is a ground-breaking example of public good arising from access to large health and education datasets, with appropriate measures in place to safeguard privacy and data security, which will ultimately lead to improved services for millions of children in England. Advancing Methods and Technology: ECHILD drives research and innovation by offering secure and anonymised data access. Through the implementation of enhanced transparency standards, researchers have benefited from streamlined practices, including easier and transparent data access, resources, a supportive GitHub community, and a new website. Forming Public Trust: ECHILD established a Lay Public Involvement and Engagement group comprising 20 members. These individuals contributed to the digital content and design of the ECHILD video animation and illustrations. Improving Health and Well-Being: ECHILD provides evidence on which groups of children to target for early intervention to ensure that all children have the best possible start in life. This evidence will lead to the development of evidence-based guidelines and inform decisions about the information that should be shared across services. Informing Decision Making: ECHILD is a core resource for the NIHR funded Children and Families Policy Research Unit (CPRU), which undertakes research to inform decision-making by government and arms-length bodies. CPRU works closely with the Department of Health and Social Care (DHSC) to determine priorities and provide evidence directly to the Secretary of State for Health, government departments and arms-length bodies. ECHILD is also a core component of the Data Improvement Across Government (DIAG) initiative, which is a programme of work funded by HM Treasury Shared Outcomes Fund and led by the Department for Education. It is designed to improve the way data are used and shared across government to improve the outcomes for vulnerable children and families. Improving Research Culture and Capacity: ECHILD training has equipped participants with essential skills for navigating and maximizing the use of the dataset. We host seminars that foster community learning and collaborations and promote interdisciplinary exchanges and partnerships. These initiatives support team science, open practices, and diverse research outputs while ensuring sustainable leveraging of funding. ADR UK funded Research Fellowships have been highly sought after for ECHILD; 3 fellowships were awarded in 2023, with an additional 4 awards in 2024. Enhanced Visibility and Credibility ECHILD is regularly mentioned by external organizations and government bodies. This recognition attracts more researchers, influences policy, helps secure funding, builds partnerships, and expands the dataset's use: • House of Lords Preterm Birth Committee 2024: ECHILD given as an example of the type of data that should be used to better understand the determinants and outcomes of preterm birth. • The Academy of Medical Sciences: ECHILD highlighted as a key initiative to improve access to and use of data to improve health in the early years. • NIHR funding calls: ECHILD highlighted as a key data resource. • Department for Education report on government policy on information sharing: ECHILD highlighted as a key dataset for informing policymaking. • Office for Statistics Regulation report on the importance of including children and young people in official statistics: ECHILD given as a good practice example. • Support for ECHILD from young people, parents and children's charities has been voiced during many events and consultations, including a stakeholder meeting which included representatives from 15 charities, the Children's Commissioner's Office, and other groups. • Administrative Data Research UK: ECHILD recognized as one of their flagship datasets. |
| Exploitation Route | The ECHILD data are now available to access for all UK based accredited researchers. Beneficiaries of the impact Children and young people and their families will benefit from the more detailed information that can be generated from the huge sample size of ECHILD on likely outcomes for children with specific conditions. Clinicians and educational / early years services professionals will also benefit from ECHILD, as they can use this information to inform decisions about clinical follow up for specific groups of children. These data will help develop evidence-based policies, better planning, and quality improvement of services. Reach of the impact ECHILD is an internationally unique resource thanks to its scale and population coverage. It is being sought to be replicated in other countries where administrative data linkage is currently being developed, e.g. Chile. Partnerships between ECHILD and other jurisdictions with similar data have been established with Ontario. |
| Sectors | Communities and Social Services/Policy Education Healthcare |
| URL | http://www.echild.ac.uk |
| Description | ECHILD is regularly referenced by non-academic organizations and government bodies. This recognition attracts more researchers, influences policy, helps secure funding, builds partnerships, and expands the dataset's use: • House of Lords Preterm Birth Committee 2024: ECHILD given as an example of the type of data that should be used to better understand the determinants and outcomes of preterm birth. • The Academy of Medical Sciences: ECHILD highlighted as a key initiative to improve access to and use of data to improve health in the early years. • NIHR funding calls: ECHILD highlighted as a key data resource. • Department for Education report on government policy on information sharing: ECHILD highlighted as a key dataset for informing policymaking. • Office for Statistics Regulation report on the importance of including children and young people in official statistics: ECHILD given as a good practice example. • Support for ECHILD from young people, parents and children's charities has been voiced during many events and consultations, including a stakeholder meeting which included representatives from 15 charities, the Children's Commissioner's Office, and other groups. ECHILD is also a core component of the Data Improvement Across Government (DIAG) initiative, which is a programme of work funded by HM Treasury Shared Outcomes Fund and led by the Department for Education. It is designed to improve the way data are used and shared across government to improve the outcomes for vulnerable children and families. |
| First Year Of Impact | 2023 |
| Sector | Communities and Social Services/Policy,Education,Healthcare |
| Impact Types | Societal Economic Policy & public services |
| Description | ADR England Community Catalyst: Children at risk of poor outcomes |
| Amount | £759,592 (GBP) |
| Funding ID | ES/Y010566/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2024 |
| End | 12/2025 |
| Description | Children Affected by Domestic Abuse Evaluation |
| Amount | £852,895 (GBP) |
| Organisation | Home Office |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2022 |
| End | 03/2025 |
| Description | Enhancement of ECHILD with a mother-child and Unique Property Reference number link |
| Amount | £271,850 (GBP) |
| Funding ID | ES/X000427/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2022 |
| End | 01/2025 |
| Description | Improving transparency of processes for accessing health data for research purposes |
| Amount | £15,000 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2023 |
| End | 03/2024 |
| Description | Linking health and education data for research to improve outcomes for children in England - Supplement 2 |
| Amount | £399,845 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2024 |
| End | 12/2025 |
| Title | ECHILD (Education and Child Health Insights from Linked Data) |
| Description | ECHILD brings together linked administrative data from health, social care and education on 20 million children born since 1984 in England. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2024 |
| Provided To Others? | Yes |
| Impact | Numerous outputs, publications and public engagement activities which are detailed at www.ucl.ac.uk/child-health/echild |
| URL | http://www.ucl.ac.uk/child-health/echild |
| Description | 2-day ECHILD Training Course - Online |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This short course is designed to give participants a practical introduction to ECHILD (Educational and Child Health Insights from Linked Data). ECHILD is a collection of linked, longitudinal administrative datasets covering health, education and children's social care. The course is aimed at both analysts intending to use ECHILD and researchers who want to understand more about how the data can be used for policy relevant research. This course includes a mixture of lectures and practical sessions that will enable participants to put theory into practice. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://instats.org/seminar/introduction-to-echild-education-and-child-health-2761 |
| Description | 2022 Inaugural Symposium "Seizing the Opportunity: Child Health Equity Research in Post-Pandemic Recovery" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Our inaugural Symposium "Seizing the Opportunity: Child Health Equity Research in Post-Pandemic Recovery" took place in Toronto on November 18, 2022. It gathered leading Canadian and international academics and policymakers to discuss the role that research should play in addressing equity in children's health outcomes in an era of pandemic recovery. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://leongcentre.utoronto.ca/2022-inaugural-symposium |
| Description | 2023 Wennberg International Collaborative Fall Meeting: Novel data and data linkage methods for health care evaluation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Using linked, administrative data to assess variation in health, education and social care services for children with chronic health conditions: the ECHILD database by Ruth Gilbert |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.wic.santannapisa.it/ |
| Description | A Brighter Future: Transforming Child Health in the UK | Public Health Voices |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | In this webinar, Professor Katie Harron explores how linked, longitudinal data on health, education and social care services can be used to understand the key maternal and early life factors that influence and improve child health outcomes. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.youtube.com/watch?v=ctE19KoMcHo&t=10s |
| Description | A Course: Introduction to the National Pupil Database and its linked data (LEO, GRADE, GUiE) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | We are pleased to offer this free training opportunity in partnership with Administrative Data Research (ADR) UK. This online introduction to the National Pupil Database (NPD) course is split into three sessions with the third session being optional. This course is designed to offer a basic introduction to the data and how to apply for it for those who have not used the National Pupil Database (or Longitudinal Education Outcomes, Grading and Admissions Data England or Growing Up in England data) previously, rather than for more experienced researchers wanting to obtain a more detailed understanding of the data. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.ucl.ac.uk/ioe/departments-and-centres/centre-education-policy-and-equalising-opportuniti... |
| Description | ADR UK Children's Social Care: Data Driven Insights |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Katie Harron presenting ECHILD to the audience |
| Year(s) Of Engagement Activity | 2024 |
| Description | ADR UK Researcher Network Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | the purpose of the event is to provide an opportunity exclusively for ADR UK-funded researchers to discuss the work underway across the partnership. Our theme for this event will be Covid-19. This is not an open event - it is only open to ADR UK-affiliated researchers. |
| Year(s) Of Engagement Activity | 2022 |
| Description | ADR UK Researcher Symposium: Exploring experiences of education through administrative data research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This ADR UK Researcher Symposium will bring together researchers from across the ADR UK partnership who are generating insights on education. Speakers will share their findings and discuss how insights from administrative data can support policy and practice. Presentation: Educational outcomes of children with complex health needs: insights from the ECHILD database - Dr Ania Zylbersztejn, University College London (ADR England) |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.adruk.org/news-publications/publications-reports/recording-adr-uk-researcher-symposium-e... |
| Description | ADR UK Researcher Symposium: Health and wellbeing - insights from administrative data research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | How can research using data from across the public sector help us better understand issues around health and wellbeing? Join researchers from across the ADR UK (Administrative Data Research UK) partnership to hear insights from their health and wellbeing research. Speakers will share their findings, methodology, and stories of impact on how health interacts with other parts of our lives, from education to the way we travel to work. You'll hear how linking de-identified data from across different areas of public life, and providing secure research access to these datasets, leads to unprecedented insights that can inform better decisions in policy and practice. You'll also have the chance to ask questions. This online event is open to all researchers - whether you're familiar with administrative data or not - as well as policymakers, practitioners and professionals working with insights on health and wellbeing. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.adruk.org/news-publications/events/adr-uk-researcher-symposium-health-and-wellbeing-insi... |
| Description | ADRUK "Building connections for sustaining impactful research using administrative data" |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | To foster the development of a professional academic peer network for ADR England flagship data users • Strengthen peer connections & networks (both national and international) • Provide space for inspiring new ideas and collaborations • Establish our researchers as leaders within a wider ADR England community than can help nurture the foundations for future collaborations and opportunities • Kick-off event for Northern Administrative Data hub based at Manchester Metropolitan University |
| Year(s) Of Engagement Activity | 2025 |
| Description | ADRUK 2023 Conference Workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Katie Harron presenting at workshop 'Key challenges for linking education data to health data for each of the four home nations (England, Scotland, Wales, Northern Ireland)'. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://2023conference.adruk.org/ |
| Description | ADRUK 2023 call Fellows Induction |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Webinar induction for 2023 Fellows with the ECHILD database |
| Year(s) Of Engagement Activity | 2024 |
| Description | ADRUK 2024 Fellows Induction |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | What support is available for Fellows starting with ECHILD DATA |
| Year(s) Of Engagement Activity | 2024 |
| Description | ADRUK Ambassadors |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | hybrid event for the ADR UK Ambassadors, the ADR UK Programme Delivery Board, and other key government stakeholders, to reflect on the year and look ahead to future priorities. As part of this event, Emma Gordon is giving a presentation looking back over some key achievements this year. ECHILD an ideal case study about the potential of linking data and making it available for research. |
| Year(s) Of Engagement Activity | 2024 |
| Description | ADRUK Case Study: Engaging with an established young person's advisory group on adolescent mental health and schools |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | We gathered children and young people's views on using the Education and Child Health Insights from Linked Data - England (ECHILD) dataset to understand stress and mental health in secondary schools in England. Author: Ruth Blackburn |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.adruk.org/learning-hub/skills-and-resources-to-use-administrative-data/public-engagement... |
| Description | ADRUK Fellowships 2023 Expert Panel Induction |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRUK fellowship panel Induction on ECHILD data: Ruth Gilbert to deliver a 10 min presentation followed by Questions from panel. |
| Year(s) Of Engagement Activity | 2023 |
| Description | ADRUK Impact Case Study |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | A researcher working with ECHILD (Education and Child Health Insights from Linked Data) has developed and shared code designed to clean children's social care data included in the National Pupil Database. This addresses many of the common cleaning steps that users need, speeding up analysis and increasing the potential of impactful research using this data. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.adruk.org/our-mission/our-impact/echild-childrens-social-care-and-the-impact-of-code-sha... |
| Description | ADRUK Reception for ADR UK Ambassadors |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | ADRUK Reception for ADR UK Ambassadors |
| Year(s) Of Engagement Activity | 2024 |
| Description | ARC North Thames Health Economics and Data theme meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ECHILD 'masterclass', to share knowledge and experiences on the ECHILD |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.arc-nt.nihr.ac.uk/about-us/research-theme-health-economics-and-data/ |
| Description | ActEarly Spring Conference Tackling wider determinants of health: lessons for research and policy |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Tackling wider determinants of health: lessons for research and policy |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://actearly.org.uk/tackling-the-wider-determinants-of-health-research-into-policy-conference-18... |
| Description | BHF Data Science Centre |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | A presentation to/knowledge share ECHILD work with the BHF group |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://bhfdatasciencecentre.org/about-us/ |
| Description | Big Data: Blood Spot Task Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation on ECHILD by Ruth Gilbert. Big data in tracking outcomes of conditions that we screen for or that we might want to screen for in the future. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Blog: A stitch in time saves nine': A public health approach to improving children's outcomes |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | In this blog, ADR UK Research Fellow Dr Amanda Mason-Jones explores her decision to use the Education and Child Health Insights from Linked Data (ECHILD) dataset and shares her ambitions for its application in public health research. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.adruk.org/news-publications/news-blogs/a-stitch-in-time-saves-nine-a-public-health-appro... |
| Description | Blog: Child health is in crisis in the UK - here's what needs to change |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A new report from the Academy of Medical Sciences highlights the "appalling decline" in child health and a need for "urgent action". In recent years, child vaccination rates have fallen well below World Health Organization target levels, creating a resurgence of outbreaks of serious disease such as measles. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://theconversation.com/child-health-is-in-crisis-in-the-uk-heres-what-needs-to-change-223606 |
| Description | Blog: ECHILD: What we can learn from linked health and education data in England |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ECHILD is a unique research database that joins together existing records from health, education and social care services for all children in England. The ECHILD research team at UCL has been using these linked data to better understand the complex inter-relationships between children's health and education. Linking data in this way allows us to build a more detailed picture of the challenges that many children face as they grow up. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://ffteducationdatalab.org.uk/2023/05/echild-what-we-can-learn-from-linked-health-and-education... |
| Description | Blog: Gestational age at birth, chronic conditions, and school outcomes: Young person's version of a research paper |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | This study was summarised by Sara Duru during her eight-week internship at ADR England, with input and feedback from the Education and Child Health Insights from Linked Data (ECHILD) team who produced the original research. It looks at academic outcomes and special education needs across gestational age, for children born with and without chronic health conditions (e.g. long-term conditions affecting the brain, lungs, or heart). |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.adruk.org/news-publications/publications-reports/gestational-age-at-birth-chronic-condit... |
| Description | Blog: How administrative data can uncover the relationship between children's health and education |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | In this blog, Professor Katie Harron describes how de-identified data made available through ECHILD can be used to investigate the relationship between children's health and education. ECHILD stands for Education and Child Health Insights from Linked Data - England. Katie is the project lead for the ADR England-funded ECHILD project. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.adruk.org/news-publications/news-blogs/how-administrative-data-can-uncover-the-relations... |
| Description | Blog: How using linked data can help us understand the relationships between child health and education |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | In this guest blog, Katie Harron, Difei Shi and Joseph Lam from UCL Great Ormond Street Institute of Child Health explain the importance of linking data across public services, and how ECHILD (Education and Child Health Insights from Linked Data) can be used to understand the complex relationship between child health and education. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://understandingpatientdata.org.uk/news/blog-how-using-linked-data-can-help-us-understand-relat... |
| Description | Blog: Introducing ECHILD: the role and power of routine data linkage |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Matthew Jay, Research Fellow and Data Scientist at the UCL GOS Institute of Child Health, introduces the ECHILD project that links data on children in state schools with data from NHS-funded hospital. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://blog.ukdataservice.ac.uk/introducing-echild/ |
| Description | Blog: Is attending a grammar school bad for your mental health? |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Research has shown pupils compare themselves academically to their school peers. For those in grammar schools, this will mean comparing themselves against a disproportionate number of high-achieving pupils. Studies from the US have suggested that this may increase the academic pressure on young people who - in such a high-achieving environment - feel they need to "be the best of the best". This may lead some young people to overextend themselves, undermine their feelings of self-worth and - ultimately - impact their mental health. While much has been written about the pros and cons of grammar schools in England, its links with young people's mental health have been somewhat underexplored. In a new working paper published today I therefore explore this issue. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://ffteducationdatalab.org.uk/2025/02/is-attending-a-grammar-school-bad-for-your-mental-health/ |
| Description | Blog: Looking for the hidden population of children with an acquired brain injury |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Dr Hope Kent, an ADR UK Research Fellow using the Education and Child Health Insights from Linked Data (ECHILD) dataset, describes the challenges of identifying and supporting children with an acquired brain injury in the UK. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.adruk.org/news-publications/news-blogs/looking-for-the-hidden-population-of-children-wit... |
| Description | Blog: Socio-economic differences in self-harm (resulting in hospital admission) amongst high achieving children |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | This blog focuses on self-harm, with other issues (alcohol/drug abuse; eating disorders) explored in the paper. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ffteducationdatalab.org.uk/2024/10/socio-economic-differences-in-self-harm-resulting-in-hosp... |
| Description | Blog: Special educational needs policy requires research infrastructure |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Over the past 25 years, there have been successive policy changes to funding, categorisation and implementation of special educational needs (SEN) provision in England. Yet there is limited evidence regarding who actually benefits from SEN provision, and in what way. In this blog post, we summarise lessons from a mixed-methods study funded by the National Institute for Health and Care Research, called Health Outcomes for young People throughout Education (HOPE), which evaluated the impact of SEN provision in primary schools on health and education outcomes. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.bera.ac.uk/blog/special-educational-needs-policy-requires-research-infrastructure |
| Description | Blog: The socio-economic gap in teenage motherhood |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | The socio-economic gap in teenage motherhood By John Jerrim|26th November 2024|Pupil demographics Being a teenage parent brings several challenges. For those in education, it will bring a disruption to learning and educational progression. Yet it may also lead to young people leaving the education system at a relatively young age, to deal with the financial, social and health burdens of becoming a parent. This may be a particular concern for high-achieving young people who become young mothers and fathers, whose sudden parental responsibilities may lead them to not fulfil their early academic potential. In my on-going Nuffield Foundation project, I am exploring the later life-time outcomes of children who obtained top Key Stage 2 test scores, and how this varies across those from different socio-economic backgrounds. This blog presents estimates of how likely high-achieving young women are to become teenage mothers. The full working paper on which this blog is based can be found here. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ffteducationdatalab.org.uk/2024/11/the-socio-economic-gap-in-teenage-motherhood/#:~:text=Thi... |
| Description | Blog: When might children with neurodisability conditions benefit from extra support in primary school? |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Ayana is part of a team based at the Great Ormond Street Institute of Child Health at UCL using the ECHILD database, which links health and education data in England, to better understand how education affects children's health, and how health affects children's education. They will be publishing key insights on the Datalab blog over the course of their research. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ffteducationdatalab.org.uk/2024/07/when-might-children-with-neurodisability-conditions-benef... |
| Description | CHORAL Data Linkage MRG workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ruth Gilbert. How to solve specific problems in accessing and linking datasets to improve child health outcomes facilitating a whole system approach |
| Year(s) Of Engagement Activity | 2023 |
| Description | Catherine Peckham Symposium: Stress-related presentations to hospital, term time & holidays among adolescents |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This talk at the UCL ICH Catherine Peckham Symposium, which was hosted by the NIHR Children and Families Policy Research Unit, reports on a study that evaluates the timing of stress-related presentation to hospital in relation to school term or holidays and relationship with health behaviours, based on analyses of the ECHILD database of children in England. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.youtube.com/watch?v=oHaKHSJ-WV0 |
| Description | Children with Cancer UK (CwC UK) Q&A with Katie Harron |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Find out more about Katie Harron's research project, which focuses on understanding the impact of a diagnosis of childhood cancer on school attainment and attendance. We also want to find out whether childhood cancer survivors are more likely than other children to have further health conditions when they get older. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.childrenwithcancer.org.uk/stories/qa-prof-katie-harron-school-attainment-attendance/ |
| Description | Children's Rights Conference - Ending the School to Prison Pipeline: Promoting Universal Children's Rights |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Garden Court Chambers Children's Rights Team, in collaboration with the University College London (UCL)'s Centre for Access to Justice, hosted an in-person conference on Universal Children's Day. The Garden Court Chambers Children's Rights Team is at the forefront of protecting and upholding children's rights, domestically and internationally, whether in the family courts or as a child defendant. We strive for the highest standards for children and provide training and guidance to continually improve legal knowledge and expertise on children's rights. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://gardencourtchambers.co.uk/event/childrens-rights-conference-ending-the-school-to-prison-pipe... |
| Description | Chilean Institute of National Statistics (INE): Probabilistic Linkage Methodologies: challenges and opportunities for the Chilean National Statistical System |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was an online seminar with the Chilean Institute of National Statistics (INE) on linkage between health and education data |
| Year(s) Of Engagement Activity | 2023 |
| Description | DATAMIND & MQ's Data Science Meeting: presenting ECHILD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | meetings provide a forum for the mental health data science community to share findings and best practice. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://datamind.org.uk/datamind-mqs-data-science-conference-2/ |
| Description | Department for Education CSCAR Seminar - Health determinants and outcomes for children receiving statutory support. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 1. The ECHILD Database (Professor Ruth Gilbert & Dr Harriet Fearn 2. Exemplar studies relevant to ECHILD: Gestational age & chronic conditions as predictors of SEN provision & attainment ( Dr Nicolás Libuy Vulnerable adolescents & stress related presentations to hospital ( Dr Ruth Blackburn Vulnerable adolescents & non enrolment/exclusions ( Dr Matt Jay) |
| Year(s) Of Engagement Activity | 2022 |
| Description | Dr Robbie Duschinsky's group at Cambridge |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Using linked social care and education data in ECHILD to explore outcomes for children and young people who are care-experienced and/or have special educational needs, presented by Ruth Blackburn, Ania Zylbersztejn and Kate Lewis to Dr Robbie Duschinsky's group at Cambridge. |
| Year(s) Of Engagement Activity | 2024 |
| Description | ECHILD PPIE Activities |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | A numbers of PPIE activities have been carried out with various groups: Children and Young People's Representative Panel stakeholder meeting - GOSH YPAG meeting on ECHILD UPRN/linkages GOSH Parent and Carer Advisory Group meeting on ECHILD UPRN/linkages HOPE Parent and Carer Advisory Group meeting on ECHILD UPRN/linkages HOPE YPAG meeting - on ECHILD UPRN/linkages HDRUK Public Advisory Board engagement HDR UK PPIE Strategic Steering Group |
| Year(s) Of Engagement Activity | 2022,2023,2024 |
| URL | https://www.echild.ac.uk/engagements |
| Description | ECHILD Seminar Series: Target trial emulation for policy evaluation |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | There are many challenges in designing studies to address policy evaluation using linked administrative data. Designing such studies highlights the difficulties of defining the target population (e.g., children in need of Special Educational Needs (SEN) provision, a very heterogeneous group), qualifying the exposure (e.g., school-recorded SEN), understanding its drivers whilst also accounting for clustering of provision by local authority and school. Additionally, data completeness and temporal variability in coding practices raise issues of how to account for selection bias (due to selection into the study) and residual confounding (due to poorly measured confounders). In this seminar, we will discuss how adopting a target trial emulation framework in this context helps clarify the limitations of the data and the questions that can be addressed. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.youtube.com/watch?v=vtlxc4MG4zs |
| Description | ECHILD Seminar Series: The HOPE study: Examining the variation in SEN provision and its impact on childhood outcomes in England |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. Part of the HOPE study uses the ECHILD database to explore the variation and impact of SEN provision. Our approach informs the interpretation of findings for policy, practice and families and methods for future evaluation. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.youtube.com/watch?v=tFlAaurH2oM |
| Description | ECHILD Seminar Series: Using linked social care and education data in ECHILD to explore outcomes for vulnerable children and young people |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | We present findings from research using the ECHILD database for all children in England to understand the health and education trajectories of secondary school pupils whose records indicate SEN provision, social care intervention or both. We present findings from three studies. Firstly, on planned and unplanned hospital admissions as we follow adolescents into their early twenties. Second, we compare rates of death from year 10 until age 23 for these different groups and compared with peers without SEN or social care intervention. Finally, we examine rates of non-enrolment and formal exclusion from secondary school. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.youtube.com/watch?v=bXCFSB3ZCU0 |
| Description | ECHILD Training Course - in person |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The course is aimed at both analysts intending to use ECHILD and researchers who want to understand more about how the data can be used for policy relevant research. This course includes a mixture of lectures and practical sessions that will enable participants to put theory into practice learning how to analyse and interpret ECHILD data using R or Stata. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://static1.squarespace.com/static/656e0231751d7f580c71a32e/t/671ba0cc57fdc43b62ff5e04/172986388... |
| Description | ECHILD Training at the RCPCH 2023 Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | A training day on ECHILD data during the 2023 RCPCH Conference |
| Year(s) Of Engagement Activity | 2023 |
| Description | ECHILD User Day -in person |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The User Group day provides an opportunity for existing and prospective users of ECHILD to learn about new data developments, analysis and research findings, and meet other users. There will be a range of talks and time for discussion and networking. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://static1.squarespace.com/static/656e0231751d7f580c71a32e/t/671b9bc83c8cf4037f44f057/172986260... |
| Description | ESRC: data linkage presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | data linkage provides numerous opportunities to these longitudinal surveys, whilst there are certain challenges to overcome. We are very keen to learn about not only the basics of data linkage (please note that not many of us have a research background in social science let alone data linkage) but also where opportunities and challenges occur in relation to data linkage to longitudinal surveys and how ESRC may best help the social science research community via data linkage. We are also interested in learning about the resourcing needs (eg. time, staff, cost) as a funder when data linkage is conducted. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Education Law Conference - Legal Action Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Legal Action Group encourages you to join them for this one day in-person conference which will be held on the 6th of December at DLA Piper, London and is sponsored by Garden Court Chambers. This Conference includes a Disability Discrimination Toolkit Workshop which will be attended by Judge Eden (First-tier Tribunal; Health, Education and Social Care Chamber). |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://localgovernmentlawyer.co.uk/events/education/education-law-conference-legal-action-group |
| Description | Fairer Start Mission here at Nesta |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ruth Gilbert presented ECHILD at the NESTA event. Better use of administrative data is a key part of our Fairer Start Mission here at Nesta. Our work with local authorities suggests that challenges linking data is a key barrier to improving services. We think that improved linkage and use of early years administrative data would provide a more complete view of the child's journey and needs, to support early detection and targeting of interventions. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.nesta.org.uk/blog/the-future-of-early-years-data/ |
| Description | GOSH BRC Applied Child Health Informatics (ACHI) Scientific Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The meeting will give the those within the ACHI theme and wider GOSH-ICH research community the opportunity to hear about new and ongoing research projects/platforms that will shape our use and application of big data. We'd like to invite you to this meeting to present on your work on ECHILD. We hope the programme will consist of speakers/presentations from both the DRE/DRIVE side and Pia's administrative/data linkage side in ICH's PPP theme. This will be in person meeting in the Ryan Connolly Seminar Room (ZCR building). |
| Year(s) Of Engagement Activity | 2025 |
| Description | HDR UK Core Funders Committee & Board Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | HDR UK Core Funders Committee & Board Meeting - Katie Harron speaking 8 mins on investment in ECHILD research and data infrastructure. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Health Data Science Seminar: Administrative data and data linkage for health data science and analysis. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | We are delighted to announce that we will be joined by Robin Flaig, Ruth Gilbert and Rich Fry, who will be presenting three interlinked presentations on behalf of HDR UK. The three talks from HDR UK will highlight research and novel linked databases that connect information on the social and physical environments in which people live to administrative health data generated by the NHS and other services, such as education and social care. Anonymised linkage through place can generate insights for policy on how health problems cluster in households or areas, and how where we live and with whom affects our health. The research aims to inform public health interventions to reduce health inequalities. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.hdruk.ac.uk/events/health-data-science-seminar/ |
| Description | ICES Research Forum 2024 - Strength of Numbers: Partnering for Impact |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | We are an independent not-for-profit research and analytics institute and registered charity with seven sites across Ontario. Formed in 1992, ICES is governed by a Board of Directors and guided by a Scientific Advisory Committee and a Public Advisory Council, representing diverse regions and communities across Ontario. ICES is powered by a community of research, data, and clinical experts. Many are practicing clinicians who understand the everyday challenges of healthcare delivery. Together, we produce insightful research and analytics that informs thoughtful policy. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://registration.socio.events/e/ices2024 |
| Description | IPDLN Conference: Screening for psychological distress in childhood and mental health-related hospital attendance among young adults |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: 10 year risk of death in adolescents with learning disability or autism in England: a national cohort study using linked health and education data from ECHILD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: Creating an intergenerational cohort of mothers and their children using administrative data from health, education and social care in England (ECHILD) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: Cumulative incidence of chronic health conditions recorded in hospital admissions from birth to age 16 in England: a cohort study using linked hospital and education administrative data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: Hospital admissions among adolescents in out-of-home care or special educational needs in England: insights from the ECHILD database of linked health, |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: Mainstream vs. Special School: Primary school placement for children with Down syndrome in England |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: Mortality in adolescents receiving special education and social care provision: A population-level cohort study in England |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: One rapid fire: School readiness in children with chronic liver disease (CLD) in England: Evidence from ECHILD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: WORKSHOP: Contextualising children's care and welfare across the family life course: cross-sectoral data linkage |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | IPDLN Conference: WORKSHOP: ECHILD: Education and Child Health Insights from Linked Data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The theme of the 2024 International Population Data Linkage Network Conference was "Adapting to a Changing World". Together we discovered real-world applications, explored community engagement strategies, and discussed emerging technologies. Conference sub-themes built on those from the previous biennial IPDLN conferences and included: - Innovations in population data science and linkage - Privacy and governance including public engagement - Advanced data analytics and infrastructure - Policy impact across domains and disciplines. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ipdln.org/2024-conference/ |
| Description | Invited presentation at RSS Conference (Harrogate) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Session on Measuring children's wellbeing before and after COVID-19. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited presentation: "Using Linked Health and Education Data for Research on Outcomes on Children with Chronic Conditions: Lessons from the ECHILD Database in England" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This webinar presents an overview of the ECHILD database and highlights examples of research carried out using ECHILD: the HOPE study, which aims to explore impact of special educational needs provision on health and education outcomes of children with chronic conditions, and multiple descriptive studies exploring outcomes of adolescents as they become young adults. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://leongcentre.utoronto.ca/sites/default/files/inline-files/ECHILD%20HOPE%20slide%20deck.pdf |
| Description | Keynote Session: NIHR PRUs and ARCs economics meeting: NIHR PRUs and ARCs economics meeting - 'Enhancing utility of national administrative data in England' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote session- 'Enhancing utility of national administrative data in England' |
| Year(s) Of Engagement Activity | 2022 |
| Description | Knowledge Exchange activity with the Chilean delegation |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Knowledge Exchange activity with the Chilean delegation. Presentation to the Chilean group about the experience of (ECHILD and WED) on producing high-impact policy research using UK administrative and survey data. Agenda: 9.15 - 9.30 Introduction 9.30 - 9.50 CLS. Alissa Goodman, Professor of Economics and Director of the Centre for Longitudinal Studies, SRI. (or a CLS representative) 9.50 - 10.10 IFS. Imran Rasul Professor of Economics, University College London, Director, ESRC Centre for the Microeconomic Analysis of Public Policy (CPP) at the Institute for Fiscal Studies (IFS) 10.10 - 10.30 CEPEO Lindsey Macmillan: Director of the Centre for Education Policy and Equalising Opportunities (CEPEO). (or a CEPEO representative) 10.30 - 11.30 Panel Discussions 11.30 - 11.40 Break 11.40 - 12.00 MCS Emla Fitzsimons, Professor of Economics and Director of Millennium Cohort Study 12.00 - 12.20 ECHILD. Ruth Gilbert, Professor of Clinical Epidemiology co-directs the NIHR Children and Families Policy Research. 12.20 - 12.40 Wage and Employment Dynamics (WED) Felix Ritchie, Professor of Applied Economics and Director of Bristol Centre for Economics and Finance, Bristol Business School 12.40 - 13.20 Panel Discussions 13.20 - 14.30 Lunch 14.30 - 15.30 Wrap up meeting with Chilean delegates. 16.00-18.00 Networking Activity at the Chilean Embassy, 37-41 Old Queen St, London SW1H 9BP |
| Year(s) Of Engagement Activity | 2023 |
| Description | MRC Community Visit for London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | MRC Strategy Board and Council have discussed emerging opportunities for the future in preparation for the upcoming SR. Members identified three challenge themes (light blue boxes) underpinned by three key enablers (dark blue boxes) summarized in the 'elevator pitch' below. At our community visit meeting, we will be exploring the three challenge themes and the People enabler. |
| Year(s) Of Engagement Activity | 2023 |
| Description | NCRM 2023 Research Methods eFestival - online |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | We introduce the ECHILD Research Database, which links longitudinal administrative records from health, education and social care for >20 million children in England. ECHILD will soon be available for access by accredited researchers on the ONS Secure Research Service. We use this session to describe the data available in ECHILD, demonstrate how it can be used, and explain how to apply for access. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.youtube.com/watch?v=cgJQGJB3uSY&t=2s |
| Description | NCRM 2023 Workshop: What is the ECHILD Database |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | We will introduce the ECHILD Research Database, which links longitudinal administrative records from health, education and social care for >20 million children in England. ECHILD will soon be available for access by accredited researchers on the ONS Secure Research Service. We will use this session to describe the data available in ECHILD, demonstrate how it can be used, and explain how to apply for access. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.ncrm.ac.uk/training/RMeF2023/programme/show.php?event=28 |
| Description | NFER (National Foundation For Educational Research) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion group on ECHILD planned work |
| Year(s) Of Engagement Activity | 2024 |
| Description | NIHR GOSH BRC Junior Faculty Bitesize Seminar series: Electronic Health Records and Admin data research resources at ICH/GOSH |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The GOSH BRC Junior Faculty run short seminars for researchers working in the areas of child health. The seminars are intended to give researchers handy tips and learn more about topics that will enhance research planning and grant applications. This session will focus on Electronic Health Records and Admin data research resources at ICH/GOSH and provide insights into available data, examples of research and the steps required to access and work with big data sets available at ICH/GOSH. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.youtube.com/watch?v=x77heD0Eny8 |
| Description | NIHR PDG RCPCH webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation about ECHILD for a NIHR programme development grant to lead to a programme grant. Fellowships can be included in this programme. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.bacdis.org.uk/articles/nihr-child-health-and-wellbeing-research |
| Description | NIHR Programme Development Grants call for child health and wellbeing research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The NIHR Programme Grants for Applied Research (PGfAR) programme for child health is offering significant funding to address some of the most challenging issues in paediatrics, and the College has supported this grant call. The funding opportunity extends beyond health research and includes wider aspects of child wellbeing, including public health, mental health, social care and education. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://youtu.be/NO-7AGgxTtg |
| Description | ONS Public Health Research and Statistics Seminar: Using linked health and education data for research on outcomes of children with chronic conditions: lessons from the ECHILD database in England " |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Ania Zylbersztejn presents the ECHILD database |
| Year(s) Of Engagement Activity | 2024 |
| Description | ONS Research Excellence Awards Series 2025: ECHILD: Linking longitudinal data from health, education and social care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Education and Child Health Insights from Linked Data (ECHILD) team were the winners of the Secure Data Creation Award. The ECHILD project has enabled linkage of multi-agency data to provide a more holistic understanding of children's lives, and how they interact with services spanning health, education and social care. Please join us for our virtual event on Thursday 27 February from 10:30 to 11:30. We are delighted to welcome the project lead, Professor Katie Harron who will discuss "ECHILD. Linking longitudinal data from health, education and social care to create a national resource for research in children and families". |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.eventbrite.co.uk/e/echild-linking-longitudinal-data-from-health-education-and-social-car... |
| Description | Oxford Quantitative Methods Hub |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Katie Harron presented in the Department of Education at 15 Norham Gardens, Oxford, OX2 6PY, dedicated to Q&A from those attending (a mix of postgraduate students and staff, mostly but not exclusively from the Department of Education). |
| Year(s) Of Engagement Activity | 2023 |
| Description | PEDRI video |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Video aimed at the general public to explain how data is used in research for children and families |
| Year(s) Of Engagement Activity | 2024 |
| URL | http://www.hdruk.ac.uk/about-us/involving-and-engaging-patients-and-the-public/get-involved/your-dat... |
| Description | PPIE Impact Case Study |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Public engagement at the New Scientist Live Weekend, with a highly diverse audience, interacting with approximately 150-200 members of the public over four days, including school children. Led by Laura Horsfall from IHI-UCL who showcased ECHILD work on school lockdowns during the COVID-19 pandemic and children's mental health. The sessions presented a case study based on Dr Ruth Blackburn's research paper "COVID-19-related school closures and patterns of hospital admissions with stress-related presentations in secondary school-aged adolescents: weekly time series". |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://pubmed.ncbi.nlm.nih.gov/36004552/ |
| Description | Pan-UK Data Governance Steering Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Governance of using UPRN data. UPRN is available and mappable to a full address and is a unique identifier. Whilst it is personal data, UPRN data alone (unlinked) can be considered as relatively low sensitivity. Furthermore, there is a general expectation that the data is already in use and is routinely shared in the public domain. Once UPRN is linked to other identifiable data it must be treated with the appropriate governance. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://ukhealthdata.org/wp-content/uploads/2024/11/20240621-Steering-group-summary-.pdf |
| Description | Pre-conference workshop at the International Population Data Linkage Network |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Pre-conference workshop at the International Population Data Linkage Network 2022 |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation at the International Population Data Linkage Network 2022 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at the IPDLN conference 2022 |
| Year(s) Of Engagement Activity | 2022 |
| Description | RCPCH 2022 Conference: Overview of ECHILD and stress related presentations. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A talk on Stress related presentations using ECHILD data |
| Year(s) Of Engagement Activity | 2022 |
| Description | RCPCH 2023 Conference - Specialty Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | NIHR RCPCH Children National Specialty meeting - Ruth Gilbert presenting |
| Year(s) Of Engagement Activity | 2023 |
| Description | Research design workshop (Research Community Catalyst: Children at Risk of Poor Outcomes) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Join the ADR England Research Community Catalyst: Children at Risk of Poor Outcomes team for an in-person writing workshop. This is designed for researchers working on grant proposals that use administrative data in the field of children's social care. This free event offers an opportunity to refine your research ideas, develop impactful proposals, and to network with peers and experts in the field. Gain valuable insights from UKRI Funding Panel Chairs, who will share their expertise on crafting successful funding applications. Whether you are an early or mid-career researcher, this workshop provides tailored guidance to help you with your funding applications. This event is especially useful for early and mid-career researchers with an interest in children's social care and the use of administrative data in research. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.adruk.org/news-publications/events/research-design-workshop-research-community-catalyst-... |
| Description | Royal Statistical Society 2023 International Conference - Harrogate |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The RSS International Conference regularly attracts more than 500 attendees from over 30 countries providing one of the best opportunities for anyone interested in statistics and data science to come together to share knowledge and network. We are delighted to be holding the conference in Harrogate, Yorkshire for the first time in 2023. As usual, the conference programme will feature top keynote speakers, invited topic sessions, professional development workshops, contributed and rapid-fire talks, and poster presentations, as well as many opportunities for networking. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://rss.org.uk/training-events/conference-2023/ |
| Description | SLLS Annual International Conference 2024 Inequalities Across Life Courses and Generations: Interdisciplinary Perspectives: ECHILD Creating an intergenerational cohort of mothers and their children using administrative data from health, education and social care in England |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The programme this year highlights the inequalities that are experienced within and across populations in terms of differential opportunities for optimal development within the broader societal contexts in which they live. Inequalities have persisted across time and generations and understanding how to reduce their causes as well as mitigate their impacts and their societal and economic costs is at the core of much of the life course and longitudinal research that we collectively undertake. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.slls.org.uk/events/2024-slls-annual-international-conference |
| Description | Short Course: An Introduction to Children Social Care in England - IoE |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | To provide training on Children Social care in England using the ECHILD database |
| Year(s) Of Engagement Activity | 2024 |
| Description | Stress and mental health presentations in secondary school-aged young people - recording |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This event was organised by ACAMH's Adverse Childhood Experiences (ACEs) Special Interest Group, and was led by Dr. Ruth Blackburn and Sorcha Ní Chobhthaigh from UCL Great Ormond Street Institute of Child Health present research on mental health in secondary school-aged young people. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.acamh.org/freeview/stress-and-mental-health-presentations-in-secondary-school-aged-young... |
| Description | The Grand Challenges in Health Data: Panel presentations at HDR UK Conference 2024 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The UK is in a unique position to realise the potential of health data, thanks to the NHS and its cradle-to-grave records for a population of over 65 million people. The last few years have demonstrated the enormous power of data to advance medical knowledge and deliver radical improvements to people's lives. But there is much more that can be done through large-scale data, advanced analytics and innovative developments in data governance. Health Data Research UK's annual conference will be a free two-day, hybrid event to celebrate this progress and allow us to come together and continue to build momentum in the health data research revolution. The conference will: Day 1 tackles the grand challenges in health data. Talks and panel discussions will cover everything from molecules to AI, GP data to wearables, maintaining public confidence to gaining an international perspective. The sessions are designed to inspire, enthuse and bring together members of the scientific community, industry, patients and the public. Day 2 aims to promote the technology ecosystem and the contributions of colleagues across the sector addressing the grand challenges in health data research. This means bringing together the community to develop technical solutions, encouraging the adoption of standards for interoperability and pushing the science of data infrastructure, capacity building and training. Join scientists, research software engineers and technologists from across the UK and around the world in sessions to share learning and technical solutions and build new networks. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.youtube.com/watch?v=IQ9Yp45aByE |
| Description | The Strategy and Innovation Group SinG- HDRUK |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | showcase ECHILD as the English exemplar for linking non-health and health administrative data for wider use by government and researchers |
| Year(s) Of Engagement Activity | 2023 |
| Description | The Voices of Young People Conference in Chelmsford |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | A Conference of CYP where ECHILD presented the HOPE study plans and did some PPIE. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Transparency standards Posters and showcase |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | We will be hosting the Alliance Transparency Showcase on Wednesday 22 May 2024 to celebrate the impacts of the 19 funded projects and our shared commitment to promoting transparency of data access processes. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.eventbrite.co.uk/e/alliance-transparency-showcase-tickets-809177942007 |
| Description | UCL Institute of Health Informatics IHI seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ruth Blackburn presented at the January 2023 IHI seminar: overview of ECHILD and stress related presentations. |
| Year(s) Of Engagement Activity | 2023 |
| Description | UCL and Ukraine seminar series |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Etoori and Ruth Blackburn have been invited to present at joint UCL and Ukraine seminar series. David and Ruth presented their work to 60 Ukrainian doctors on 25.2.22: event organised by Sara Pett from UCL Institute for Global Health |
| Year(s) Of Engagement Activity | 2022 |
| Description | UCL- ICH Mental Health of Children and Families Research Showcase |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The event will share child and family mental health-related research within the UCL GOS Institute of Child Health. It will celebrate and bring together researchers within the Institute and provide students across UCL (including ICH, PaLS, DoP and IoE) with research insight to help them plan their own projects and consider a career route that includes research. |
| Year(s) Of Engagement Activity | 2024 |
| Description | UKRI Clear Air SPF Programme |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presenting the work and plans of ECHILD social clustering to the UKRI Clear Air SPF Programme. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.ukcleanair.org/funding/#:~:text=Funding%20for%20the%20Clean%20Air,review%20of%20the%20Re... |
| Description | UKRMP Genetic Stability Workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Its overall aim was to address the key translational challenges in regenerative medicine and to bring innovative regenerative medicine therapies to the clinic. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Webinar- MatCHNet: Using the ECHILD database to explore variation in school-recorded SEN for children with major congenital anomalies |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Matchnet: Using the ECHILD database to explore variation in school-recorded SEN for children with major congenital anomalies Speakers: Kate Lewis and Ruth Gilbert |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.youtube.com/watch?v=ea_aCh2aUYU |
| Description | Webinar: ECHILD Fellows Induction |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | To inform prospective fellows on how to apply for the fellowships to use ADRUK flagship datasets including ECHILD data, datelines and expectations. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.youtube.com/watch?v=Wr3duskCaP0 |
| Description | Workshop: Harnessing administrative data for health and criminal justice pathways |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This is an in-person workshop delivered by the South East Network for Social Sciences (SeNSS) Doctoral Training Partnership (DTP) and ADR UK. The sessions will introduce academics and students to ADR UK's work and highlight the linked administrative datasets available for research. They will also inform researchers about how they can access these datasets, the research potential of the data, and what other resources are available to support their use. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.adruk.org/news-publications/events/workshop-harnessing-administrative-data-for-health-an... |
| Description | X-Gov Family Policy Analyst Group Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ruth Gilbert and Louise McGrath-Lone presenting ECHILD to x-government colleagues |
| Year(s) Of Engagement Activity | 2024 |