Navigating the challenges of violence, gender and disability: A mixed method, longitudinal study with young people in Uganda (NAVIGENDI)
Lead Research Organisation:
UNIVERSITY COLLEGE LONDON
Department Name: Education, Practice & Society
Abstract
This research examines the intersections between violence, gender and disability through the lived experiences of young people with disabilities in Uganda in childhood, adolescence and into early adulthood. A billion children globally experience violence every year, and there is growing evidence of the extreme vulnerability of children with disabilities to many forms of violence. Young people with disabilities living in low-income settings, including in Uganda, are most at risk, and frequently have poor access to child protection and welfare systems. Girls and boys with disabilities often experience different forms and levels of violence so that gender becomes an important factor in understanding their experiences of violence. However, there is little research evidence to help researchers, practitioners and activists understand what shapes the forms of violence they experience, how their experiences of violence may change over time as they grow up and, most importantly, how they navigate and resist these experiences and build relationships free from violence. Uganda provides an important location for understanding these issues better. Despite laws and policies in Uganda that protect the rights of people with disabilities and strong civil society organisations advocating for them, young people with disabilities still face high levels of discrimination and violence. Why is this so? What are the important historical and contemporary contextual conditions in Uganda that perpetuate these inequalities and what is needed to promote and sustain effective violence prevention for all young people? How can we use this knowledge to inform and support violence prevention in other contexts, especially for young people with disabilities, and in important sites such as schools?
This study sets out to address these knowledge gaps by listening to the voices of young people with disabilities in Uganda using qualitative and quantitative research methods. We will use a longitudinal, mixed method research design that involves collecting new qualitative data through interviews and focus groups with 40 young people with disabilities and 150 stakeholders in three districts of Uganda between 2024-2026. We will also analyse quantitative data collected with young people in 2014, 2018 and 2022 in the large Contexts of Violence in Adolescence Cohort study (CoVAC) that was undertaken in Uganda by members of the research team. A very important part of the design will be applying a 'dialogical approach' to analysing the data and developing the research findings. This will involve constantly bringing together the data and findings from the qualitative and quantitative research to understand what the research is showing and using these insights to guide the next research steps. We will also involve processes of dialogue structured into the research process between members of the research team, young people with disabilities, activists and practitioners to reflect on and make plans based on the emerging findings.
Our research will build new knowledge of how multiple forms of violence influence the life pathways of young people with disabilities. We will shed light on how young people navigate these experiences, and the role of schools, families, communities and workplaces in shaping lived experiences of violence, gender and disability. The project will build new knowledge across all the research partners, who will draw on this knowledge to inform further research and curriculum development, build new skills and understandings among students and young researchers in Uganda and the UK, and strengthen activist capacity to influence policy change. An especially important impact of the research will be the contribution it will make to improving practices around violence prevention in Uganda and other low-income contexts that are more responsive to the needs of young people with disabilities, at the level of the school, community and within state services.
This study sets out to address these knowledge gaps by listening to the voices of young people with disabilities in Uganda using qualitative and quantitative research methods. We will use a longitudinal, mixed method research design that involves collecting new qualitative data through interviews and focus groups with 40 young people with disabilities and 150 stakeholders in three districts of Uganda between 2024-2026. We will also analyse quantitative data collected with young people in 2014, 2018 and 2022 in the large Contexts of Violence in Adolescence Cohort study (CoVAC) that was undertaken in Uganda by members of the research team. A very important part of the design will be applying a 'dialogical approach' to analysing the data and developing the research findings. This will involve constantly bringing together the data and findings from the qualitative and quantitative research to understand what the research is showing and using these insights to guide the next research steps. We will also involve processes of dialogue structured into the research process between members of the research team, young people with disabilities, activists and practitioners to reflect on and make plans based on the emerging findings.
Our research will build new knowledge of how multiple forms of violence influence the life pathways of young people with disabilities. We will shed light on how young people navigate these experiences, and the role of schools, families, communities and workplaces in shaping lived experiences of violence, gender and disability. The project will build new knowledge across all the research partners, who will draw on this knowledge to inform further research and curriculum development, build new skills and understandings among students and young researchers in Uganda and the UK, and strengthen activist capacity to influence policy change. An especially important impact of the research will be the contribution it will make to improving practices around violence prevention in Uganda and other low-income contexts that are more responsive to the needs of young people with disabilities, at the level of the school, community and within state services.
| Description | Disability Research Unit, Uganda |
| Organisation | Medical Research Council (MRC) |
| Department | MRC/UVRI and LSHTM Research Unit Uganda |
| Country | Uganda |
| Sector | Academic/University |
| PI Contribution | We have brought intellectual input and expertise on violence prevention, gender, young people and education. The project has enabled 5 Ugandan early career researchers to be recruited, and we have led and supported training in research design, research ethics, data management, and participatory development of research instruments. |
| Collaborator Contribution | The Disability Research Group at MUL have brought considerable expertise and contextual knowledge about young people with disabilities in Uganda. The unit also has extensive experience in conducting research in Uganda, and working with national bodies, including steering our successful ethics application to the Uganda National Council for Science and Technology (UNCST). |
| Impact | This is a multi-disciplinary collaboration, to which the Disability Research Group and MUL bring expertise in the field of public health, while our UCL team work in the field of education and international development. |
| Start Year | 2024 |
| Description | NUDIPU |
| Organisation | Agency for Persons with Disabilities |
| Country | United States |
| Sector | Public |
| PI Contribution | Our team have brought expertise and intellectual input on violence prevention, gender, education and disability studies, and, through the project, developed a dialogical approach that brings together researchers in the UK and Uganda, violence prevention and disability rights activists, and young people with disabilities. |
| Collaborator Contribution | NUDIPU is the national umbrella body for Organisations of People with Disabilities in Uganda, and brings in-depth knowledge of disabilities in Uganda. They bring strong connections with policy makers, and with local organisations and activists for disability rights in Uganda. |
| Impact | The collaboration is multi-disciplinary, bringing expertise on policy and practice relating to disabilities. |
| Start Year | 2024 |
| Description | Raising Voices |
| Organisation | Raising Voices |
| Country | Uganda |
| Sector | Charity/Non Profit |
| PI Contribution | We have had a longstanding collaboration with Raising Voices, in which we bring research expertise on violence prevention, young people and education. New to this project is the focus on disabilities, aiming to bring together work on violence prevention and disability rights, and enhance Raising Voices' work on violence prevention for young people with disabilities. |
| Collaborator Contribution | Raising Voices brings considerable experience of school-based interventions to prevent violence in Uganda. They bring valuable experience of ethical approaches to research with young people, contextual knowledge of the project districts, and strong networks among policy makers and practitioners. |
| Impact | There are many publications resulting from our previous research, including the Good Schools Study and CoVAC (Contexts of Violence in Adolescence Cohort Study). NAVIGENDI builds on and extends the CoVAC collaboration. Raising Voices has contributed to the project design and planning, but we have not yet produced publications from NAVIGENDI. |
| Start Year | 2011 |
| Description | University of Oxford |
| Organisation | University of Oxford |
| Department | Department of Social Policy and Intervention |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We have brought expertise and intellectual input on violence prevention, education, gender and international development. We have presented an invited seminar to the department on qualitative methods for researching violence with young people. Through NAVIGENDI we have supported two early career scholars, one in the UK and one in Uganda, working with the Oxford Co-I. |
| Collaborator Contribution | The team at Oxford bring expertise in quantitative methods, and have enhanced the project design's longitudinal, mixed methods research design. |
| Impact | This is a multi-disciplinary collaboration, with the Oxford team's expertise in public health, public policy and quantitative research complementing UCL's expertise in education, and strengths in qualitative research approaches. While team members have co-published articles, we have not yet published in connection with NAVIGENDI. |
| Start Year | 2024 |
| Description | NAVIGENDI Inception Workshops |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Over four days, we held a series of workshops, training and inception meetings in Entebbe and Kampala, Uganda. The purpose was to consult on and finalise the research approach and design, to build research relationships in the new project team, and to exchange knowledge with other partners, including the Advisory Group of Young People with Disabilities, Ugandan academics (at Makerere University) and civil society organisations. |
| Year(s) Of Engagement Activity | 2024 |
| Description | NAVIGENDI Qualitative Research Tools Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | The purpose was to develop research instruments for the first round of data collection, through a collaborative process, that engaged the research team in Uganda and UK, and members of the Advisory Group of Young People with Disabilities. The outcome was a set of interview guides, that have been pre-tested, with young people with disabilities, caregivers, teachers and peers. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Reflections on ethical approaches for Navigating the challenges of Violence, Gender and Disability: A study with young people in Uganda |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | This was an invited presentation, for a workshop coordinated by University of Leeds, on Using Arts & Participatory Approaches to Research GBV with Survivors with Disabilities. The purpose was to exchange knowledge and build a community of practice among researchers working on gender-based violence and disability. |
| Year(s) Of Engagement Activity | 2025 |
