Monitoring symptoms of Parkinson's disease to improve quality of life

Lead Research Organisation: University of Wolverhampton
Department Name: Faculty of Education, Health & Wellbeing

Abstract

The ISCF Healthy Ageing Round two Follow on Fund 2023 is part of the Healthy Ageing Catalyst Award programme, funded by the UKRI Healthy Ageing Challenge and in collaboration with the US National Academy of Medicine's (NAM) Healthy Longevity Global Grand Challenge. With Zinc's programme of support, the Follow on Funding will be used to build upon previous Healthy Ageing Catalyst Award funding, with the aim of commercialising research in symptom monitoring by people living with Parkinson's disease.

Parkinson's disease affects 1% of adults over 60 years old, and due to an ageing population, its prevalence is increasing. The disease is characterised by movement symptoms and as there is currently no cure, living well with these symptoms is a priority. Movement symptoms vary during the course of a day and over the long-term, and being able to monitor these symptoms accurately and precisely has various benefits. These include informing current health status to help plan daily activities, and recording changes over time to enable optimization of treatment.
Building on the work of the project team's Catalyst Funding, this project aims to develop our prototype device which accurately and precisely measures upper limb movement relevant to symptoms of Parkinson's disease, into a commercial venture. Thus, providing people living with Parkinson's with the opportunity to efficiently and easily monitor symptoms at home.

Key elements of the project will involve; undertaking activities to ensure the continued development and commercialisation of the product, and the formation of a mission led company to deliver the product to users. The company will have user needs and benefits at it core with key stakeholders advising on product and company developments throughout the journey.

Publications

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Description The most significant achievements from this award were: the incorporation of ConnectingPD, continued development of the prototype UX and product testing, and planning the next stages of our funding strategy. As a result of this work we have expanded our team and partners who have worked will us on this project and who work with us moving forward, this includes clinicians and other stakeholders in the technology space. Also there have been notable developments in the software platform that will be further tested and innovated in our ongoing work.
Exploitation Route The findings from this project are being taken forward by the project team in the next stage of our work.
Sectors Digital/Communication/Information Technologies (including Software)

Healthcare

 
Company Name Connecting PD Limited 
Description  
Year Established 2024 
Impact None yet - newly incorporated.
 
Description Co-design workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact People with Parkinson's disease and their carers/close family members took part in a co-design session to help inform the innovation of our prototype device which monitors symptoms of Parkinson's disease. This was an interactive session and provided the research team with useful suggestions towards the development of the device this project centres around and informed decisions on device prototype development.
Year(s) Of Engagement Activity 2024
 
Description Multiple PPIE Sessions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact a. Four people agreed to form a Patient and Public Involvement and Engagement (PPIE) group for the duration of our current research project. The group were recruited through the Parkinson's UK, PPI network and consisted of people living with Parkinson's disease. Three members of the group had been members of a PPIE group during the award that preceded this one and asked to stay on for the current project. They attended three PPIE workshops from November to February 2024, where interesting and lively discussion took place about the current project. This resulted in suggestions being provided to help the ongoing management and direction of the project.
Year(s) Of Engagement Activity 2023,2024
 
Description Multiple co-design interviews with health professionals 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact One-to-one and small group interviews with health professionals to aid with co-design of the device being developed for this project.
Year(s) Of Engagement Activity 2023,2024