UKCRC Joint Funders Tissue Directory and Coordination Centre
Lead Research Organisation:
University College London
Department Name: Surgery
Abstract
Summary of Aims and Delivery
The main aim of our Coordination Centre is to provide strong leadership in realising the UKCRC
Funders' Vision for Human Tissue Resources1, by increasing the quality, visibility and accessibility of
the UK's world class specimen and cohort collections for academic and commercial researchers. Four
concepts will form the foundation of our vision: (1) to identify the current limitation to optimal
biobanking amongst a wide range of stakeholders and custodians of research samples; (2) to reach
consensus on optimal solutions to those issues; (3) to implement the changes through three Work
Streams, informatics, harmonisation and engagement; (4) to evaluate project outputs and identify
future needs. The project will bring together UCL and University of Nottingham, to provide a worldclass
environment with wide-ranging engagement of experts from internationally renowned
biobanks.
The Coordination Centre will be based in the UCL Office of the Vice Provost for Health and will be led
by Anne Carter who has a strong track record of engaging with biobanking communities to deliver
harmonisation and standardisation strategies. This strategic positioning will ensure the centre's
objectivity by embedding it within an environment already experienced in dealing with multiple
institutional interests across organisations such as UCL Partners and UCL Bioresource. The
informatics development and database will be hosted within the University of Nottingham Advanced
Data Analysis Centre. Our partnership will align an unrivalled combination of world leading academic
institutions, with expertise in coordinating national biobanking initiatives, developing novel
biobanking IT systems, and leading public/patient/stakeholder engagement, as demonstrated by the
letters of support in Appendix I. The project will also bring together a wide and diverse range of
biobanks and internationally recognised researchers in informatics and 'omics' activities, for
example, cancer biobanks, eye banks, dental banks, a range of biobanks at the Institute of Child
Health and Institute of Neurology and a collection of large cohort studies in healthy and disease
populations.
Our main deliverable will be the development of a robust and scalable web based informatics
platform with simple functionality, which will be used to link and disseminate information on the
informatics, harmonisation and engagement work streams. Success will depend on effectively
engaging researchers, biosample collections, the public, regulators and policy makers, so as to
develop an agreed, unified system for the UK. Biobanking groups will benefit by understanding and
being actively involved in developing a pan-UK system, allowing reliable exchange of human
biospecimens and associated clinical data. Researchers will gain from increased visibility of, and
ease of access to appropriate quality assured samples and data, whilst funders will avoid supporting
unnecessary bioresources. We will deliver a biobanking system appropriate for international
biobanking collaboration.
The main aim of our Coordination Centre is to provide strong leadership in realising the UKCRC
Funders' Vision for Human Tissue Resources1, by increasing the quality, visibility and accessibility of
the UK's world class specimen and cohort collections for academic and commercial researchers. Four
concepts will form the foundation of our vision: (1) to identify the current limitation to optimal
biobanking amongst a wide range of stakeholders and custodians of research samples; (2) to reach
consensus on optimal solutions to those issues; (3) to implement the changes through three Work
Streams, informatics, harmonisation and engagement; (4) to evaluate project outputs and identify
future needs. The project will bring together UCL and University of Nottingham, to provide a worldclass
environment with wide-ranging engagement of experts from internationally renowned
biobanks.
The Coordination Centre will be based in the UCL Office of the Vice Provost for Health and will be led
by Anne Carter who has a strong track record of engaging with biobanking communities to deliver
harmonisation and standardisation strategies. This strategic positioning will ensure the centre's
objectivity by embedding it within an environment already experienced in dealing with multiple
institutional interests across organisations such as UCL Partners and UCL Bioresource. The
informatics development and database will be hosted within the University of Nottingham Advanced
Data Analysis Centre. Our partnership will align an unrivalled combination of world leading academic
institutions, with expertise in coordinating national biobanking initiatives, developing novel
biobanking IT systems, and leading public/patient/stakeholder engagement, as demonstrated by the
letters of support in Appendix I. The project will also bring together a wide and diverse range of
biobanks and internationally recognised researchers in informatics and 'omics' activities, for
example, cancer biobanks, eye banks, dental banks, a range of biobanks at the Institute of Child
Health and Institute of Neurology and a collection of large cohort studies in healthy and disease
populations.
Our main deliverable will be the development of a robust and scalable web based informatics
platform with simple functionality, which will be used to link and disseminate information on the
informatics, harmonisation and engagement work streams. Success will depend on effectively
engaging researchers, biosample collections, the public, regulators and policy makers, so as to
develop an agreed, unified system for the UK. Biobanking groups will benefit by understanding and
being actively involved in developing a pan-UK system, allowing reliable exchange of human
biospecimens and associated clinical data. Researchers will gain from increased visibility of, and
ease of access to appropriate quality assured samples and data, whilst funders will avoid supporting
unnecessary bioresources. We will deliver a biobanking system appropriate for international
biobanking collaboration.
Publications
Quinlan P
(2017)
The UK Clinical Research Collaboration (UKCRC) Tissue Directory and Coordination Centre: The UK's Centre for facilitating the Usage of Human Samples for Medical Research
in Open Journal of Bioresources
Quinlan PR
(2017)
Directories: Build Them and They Will Come?
Quinlan PR
(2016)
BBMRI.uk: The UK's National Biobanking Node
| Title | Biobank Board game |
| Description | Biobanking: The Board Game was funded by a Beacon Bursary last year and aimed to create a board game which places people in a scenario that closely matched real-life biobanking (the storage and collection of human biological samples for research purposes) and biomedical research. Jessica brokered relationships with game designers, cafés and venues in Hackney and members of the public with an interest in gaming to create a unique engagement opportunity. Jessica approached the project with the dual aim of educating the public on these important issues and to give public groups an opportunity to feedback on and develop this research field. |
| Type Of Art | Artistic/Creative Exhibition |
| Year Produced | 2015 |
| Impact | Raised public awareness of biobanking won public engagement award |
| URL | https://www.ucl.ac.uk/public-engagement/provostsawards/awardwinners2016/professionalservices |
| Title | Yarning to Consent: Tabletop Display for Biobanking Public Engagement |
| Description | A table top exhibition of interactive material presenting information about biobanking (the collection, storage and use of human biological samples for research use). The exhibition consists of a series of books which tell stories of biobanking from different perspectives (patients, researchers, biobankers) via recorded audio interviews and through the use of hand knitted objects. This activity was facilitated by Debra Watson and Jessica Mai Sims at Stratford Library, London. |
| Type Of Art | Artistic/Creative Exhibition |
| Year Produced | 2018 |
| Impact | Raised public awareness of biobanking to local community who attend Stratford Library. 50 audience members browsing the exhibition with six further discussions on the impact of medical research generally. The final product can be used as a resource for further public engagement work. |
| URL | https://www.biobankinguk.org/engaging-biobanking-via-knitting/ |
| Description | Directory registration part of Cancer Research UK funding conditions |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | This change in funding policy will lead to increased efficiency in biomedical research, as it will lead to increased visibility of what resources are where. It will also lead to increased sharing of human samples between different biomedical researchers. These efficiencies and increased sharing will lead to an increase in the rate of scientific developments for patient benefit. |
| URL | http://www.cancerresearchuk.org/funding-for-researchers/applying-for-funding/conditions-of-your-gran... |
| Description | Directory registration part of MRC funding suggestions for Biobank infrastructure grant |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | This change in funding policy will lead to increased efficiency in biomedical research, as it will lead to increased visibility of available sample resources. It will also lead to increased sharing of human samples between different biomedical researchers. These efficiencies and increased sharing will lead to an increase in the rate of scientific developments for patient benefit. |
| URL | https://www.mrc.ac.uk/funding/browse/capital-investment-in-human-tissue-banking/capital-investment-i... |
| Description | Directory registration part of NIHR funding conditions |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | This change in funding policy will lead to increased efficiency in biomedical research, as it will lead to increased visibility of the location of available sample resources. It will also lead to increased sharing of human samples between different biomedical researchers. These efficiencies and increased sharing will lead to an increase in the rate of scientific developments for patient benefit. |
| Description | Directory registration part of ethical approval |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | The Research Ethics Committee favour collection of tissue for future research use by research tissue banks, however, there is an expectation that this tissue is made visible to the research community. The UKECA are keen to maximise the re-use of samples and so will now expect Research Tissue Banks to register their collections on the UKCRC Tissue Directory. Registration will also be a condition of the five-year renewal of the ethical opinion. |
| URL | https://www.biobankinguk.org/directory-registration-favorable-terms/ |
| Description | Health Research Authority / Human Tissue Authority public dialogue workshops |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | A key result was the need for transparency on the recruitment and membership of volunteers who sit on sample and data access committees. This includes the process of how applications are assessed (i.e. who is granted access to data and samples). Findings from these groups will be incorporated into HTA and HRA best practice guidance. |
| Description | ADOPT |
| Amount | £23,000 (GBP) |
| Organisation | Biobanking and Biomolecular Resources Research Infrastructure |
| Sector | Charity/Non Profit |
| Country | Austria |
| Start | 11/2016 |
| End | 11/2017 |
| Description | DEMISTIFI Multi Morbidity: DEfining MechanIsms Shared across mulTI-organ FIbrotic disease to prevent the development of long term multi-morbidity |
| Amount | £100,810 (GBP) |
| Funding ID | MR/V005324/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2020 |
| End | 01/2021 |
| Description | UCL Beacon Bursary for Public Engagement |
| Amount | £1,400 (GBP) |
| Organisation | University College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 07/2016 |
| Description | UKCRC Tissue Directory and Co-ordination Centre Phase II |
| Amount | £900,000 (GBP) |
| Funding ID | MR/R022488/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2017 |
| End | 11/2020 |
| Title | UKCRC Tissue Directory and Coordination Centre |
| Description | The Coordination Centre has played a role in quality standards and working within BBMRI-ERIC. The directory contains the details of biological samples and data taken from UK individuals, held across numerous institutions in the UK. Human tissue samples are routinely collected by researchers and biobanks across the UK and this resource will now make collections more visible. The directory aims to facilitate communication between researchers and biobanks, providing a quick and efficient route for researchers to access appropriate samples and data to match their research needs. Researchers can search the online directory and locate appropriate tissue samples held by a specific biobank, based on the associated datasets available, the age and gender of donors, and the sample type. It is possible to search the directory using the specific disease term, by viewing the list of diseases or the A-Z of Biobanks. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | The directory aims to facilitate communication between researchers and biobanks, providing a quick and efficient route for researchers to access appropriate samples and data to match their research needs. |
| URL | https://directory.biobankinguk.org/ |
| Title | The UKCRC Tissue Directory |
| Description | The directory contains the details of biological samples and data taken from UK individuals, held across numerous institutions in the UK. Human tissue samples are routinely collected by researchers and biobanks across the UK and this resource will now make collections more visible. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | Facilitates biomedical researchers locating human tissue samples. |
| URL | https://directory.biobankinguk.org/ |
| Description | BC Platforms and UKCRC Tissue Directory Research Platform |
| Organisation | BC Platforms AG |
| Country | Switzerland |
| Sector | Private |
| PI Contribution | The Nottingham team has worked on the technical development to create a platform which combines the data on the UKCRC Tissue Directory with BC|RQUEST system created by BC Platforms. |
| Collaborator Contribution | BC Platform's BC|RQUEST facilitates research access of more detailed information held by biobanks about their collections. The collaboration has involved scoping of the possibility of linking the two platforms to provide a richer search of biobanks data by researchers. |
| Impact | Outcomes are forthcoming, but include scoping the possibility of providing a service at minimal, or no, cost to the user. |
| Start Year | 2016 |
| Description | The University of Nottingham |
| Organisation | University of Nottingham |
| Department | Stroke research |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | The UCL team has worked on the engagement work that has informed the development of the UKCRC Tissue Directory. |
| Collaborator Contribution | ADAC at the University of Nottingham has provided all the IT development for the UKCRC Tissue Directory. |
| Impact | Outcomes include the establishment of the UKCRC Tissue Directory. The collaboration is multidisciplinary with UCL leading on the harmonisation and engagement work streams and Nottingham leading on the IT work stream. |
| Start Year | 2014 |
| Description | UKCRC Tissue Directory collaboration with the Medicines Discovery Catapult |
| Organisation | Medicines Discovery Catapult |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | The Nottingham and UCL teams have worked on the partnership arrangements with the Medicines Discover Catapult. Specifically, background work on the UK biobanking landscape to shape the Medicines Discovery Catapult work programme. |
| Collaborator Contribution | Medicines Discovery Catapult conducted a survey of SMEs to determine the barriers to using sample collections in the UK. Using this information, they have planned a work programme provide outreach services to help SMEs access UK-based collections. They are also planning the kinds of support they can give biobanks to be in a position to work with SMEs. |
| Impact | Outcomes include a better understanding of the barriers SMEs face in accessing UK-based human sample collections and the identification of practical support for both SME researchers and biobanks to facilitate collaborative working. |
| Start Year | 2017 |
| Description | UKCRC Tissue Directory procurement referral to Scientist.com |
| Organisation | Scientist.com |
| Country | United States |
| Sector | Private |
| PI Contribution | The Nottingham team has worked on the agreement and technical development to allow Tissue Directory users to be passed on to Scientist.com for procuring samples. Currently there is no way to search for samples on the Scientist.com platform. Industry are often constrained by being required to use Scientist.com to procure samples. A solution was suggested that when a user searches the UKCRC Tissue Directory and finds samples that they could procure via the Scientist.com, they are referred over to that platform to finish the transaction. |
| Collaborator Contribution | Scientist.com has worked internally to see if the link between the two systems would benefit their business. They are also determining the value of a referral fee that can be passed back to the UKCRC Tissue Directory. |
| Impact | Outcomes include a way for industry to now search for samples and then be directly linked with a compatible procurement system, further facilitating access and use of samples and increasing efficiency. |
| Start Year | 2017 |
| Title | UKCRC Tissue Directory code |
| Description | Researchers can search the online directory and locate appropriate tissue samples held by a specific biobank, based on the associated datasets available, the age and gender of donors, and the sample type. It is possible to search the directory using the specific disease term, by viewing the list of diseases or the A-Z of Biobanks. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2016 |
| Impact | The directory aims to facilitate communication between researchers and biobanks, providing a quick and efficient route for researchers to access appropriate samples and data to match their research needs. |
| URL | https://directory.biobankinguk.org/ |
| Description | 2016 UK Roadshows |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Series of Roadshows across UK higher education institutions to introduce and demonstrate the UKCRC Tissue Directory to potential users. The 2016 Roadshows were held in Cardiff, Edinburgh, Leicester, London, Manchester, Newcastle and Nottingham. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.biobankinguk.org/events/ |
| Description | 2017 UK Directory Roadshows |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Led by Centre Director Dr Phil Quinlan, this event is designed to tell potential users more about the Centre's role in biobanking in the UK (and Europe via BBMRI-ERIC). On the day we'll explain the Tissue Directory's capabilities, address user feedback, and also show how to register collections on the Directory. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.biobankinguk.org/events/ |
| Description | Biobank Boardgame at Wilderness Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The Biobank Boardgame was featured as part of a two hour board games session at a stall at Wilderness Festival, Oxfordshire. Festival attendees were invited to play the game and give feedback on their experience, including whether it improved their knowledge and attitude towards biobanking. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Biobanking UK Stall at Europe Biobank Week 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The research team maintained a three-day exhibition stall at the 2017 Europe Biobank Week annual conference in Stockholm Sweden. The stall featured case studies of biobanks from different parts of the UK, opportunity to discuss the UK regulatory environment with a representative from the Human Tissue Authority, and demonstrations of the UKCRC Tissue Directory. The purpose of the stall was to promote the UK as having a joined-up research environment in terms of accessing and using human samples and data. The primary impact was reaching, and educating, European industry researchers as to how to conduct more UK based research. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Development of Biobank Boardgame |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Five research and development workshops for the development of a board game for public engagement use. The project sought to develop a biobanking board game to simulate the process of real-life biobanking. The project involved members of the public and biobanking professionals in helping to devise and test a game. |
| Year(s) Of Engagement Activity | 2015,2016 |
| URL | https://www.biobankinguk.org/public-engagement-award-biobanking/ |
| Description | Health Research Authority / Human Tissue Authority public dialogue workshops |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The HRA and HTA commissioned IPSOS MORI to consult the public on how patients can consent to their personal data (e.g. their age, or medical history) being linked to their donated tissue samples (e.g. blood samples or skin cells). A key feature of public dialogue is that it brings together members of the public, scientists and other expert stakeholders to deliberate, to reflect and come to conclusions on national public policy issues. The dialogue consisted of two events: • Event 1: An introductory event where participants will learn about the topic. • Event 2: A workshop event where participants will be able to reflect on what they have learnt. Project staff featured in the planning and as experts for a number of these events across the country. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Hunterian Museum Games Room |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Jessica Sims organised a 'Games Room' for the Transplant and Life Exhibition at the Royal College of Surgeon's Hunterian Museum. The room featured different stations to introduce participants to the various aspects of transplant through table top games. Over 60 people came to the room to play games during the evening opening event. Ten participants shared their opinions on how a transplant card game added to their understanding of the matching process. Three participants shared their opinions on how the Biobank boardgame gave them insight to the possible use of explanted organs as donated tissue samples that can be used for research purposes. |
| Year(s) Of Engagement Activity | 2017 |
| Description | PHE Biobank Link Webinar: linking cancer registries to Biobanks in England |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | In this webinar, participants learnt about Public Health England's (PHE) Biobank Link. Dominic Dwyer, Data Access Officer, presented how biobanks can link their samples to cancer registries through Biobank Link for easier access to data about diagnoses and treatment information. Dominic covered what information is needed from biobanks to link to the registries and then what information can be returned from registries to biobanks. Finally, the webinar covered how the UKCRC Tissue Directory will work with PHE to avoid duplication. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.biobankinguk.org/event/phe-biobank-link-webinar/ |
| Description | UK Biobanking Showcase 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The Centre's annual meeting was held on the 16th November at the Oval in London. UK Biobanking Showcase was a unique opportunity to bring together all stakeholders in the field. panel The day kicked off with a brief introductory video on the centre; Professor Dame Jessica Corner, Pro-Vice-Chancellor at The University of Nottingham then opened the day with her thoughts on the initiative stating that humans tissue donations are a precious resource which should be made more accessible for research. Peter McIntyre, journalist at CancerWorld then went on to discuss observations from his article Unlocking progress: why we need to change the culture of biobanking making the point that "Good Biobanks put patients first". A panel discussion on the topics raised followed, featuring Mairead McKenzie, ICPV member; Dr Nick Easom, UCL; Professor Andy Hall, Conferderation of Cancer Biobanks and Dr John Spaull, GSK. The discussions, chaired by Amanda Gibbon varied from the incentives that drive research and hinder sharing to the data that's needed to get optimum use from samples. "No amount of data is enough" was one valuable point made by John Spaull. The research perspectives session demonstrated the variety of work that depends on human tissue donations. Rebecca Lumsden from ABPI gave an industry persepctive on how all stages of drug development are reliant on human tissue samples. Helen Stevens, sample handling manager at Genomics England gave an interesting overview of the 100,000 genomes project. Innovate UK's Dr Penny Wilson introduced Innovate UK and explained the vital role of human samples in precision medicine. Finally, Dr Martin MacCabe talked about his experience of biobanking from a cancer perspectives. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.biobankinguk.org/uk-biobanking-showcase-2016/ |
| Description | UK Biobanking Showcase 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This one day conference was attended by over 140 people from human sample resources across the country, universities, medical funders and different medical companies and organisations. The event sought to highlight some of the recent discussions and developments in biobanking including recognition, standards, collaborations and changes impacting public interactions. As with the previous year, the delegates also had the opportunity to debate some controversial topics like, 'researchers should be able to leave reviews about the resources they have accessed'. Overall, the aim was to present practical information on the future possibilities of biobanking to support the ongoing work in the field. Key topics included 'How can we recognise the work of human sample resources?', new standards and emerging issues in society. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.biobankinguk.org/uk-biobanking-showcase-2017/ |
| Description | UKCRC TDCC Twitter Account |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | We have a dedicated Twitter account to communicate project activities (such as events and pieces of work), 'live tweets' from events and workshops, and related news from other research projects/organisations. At the time of writing we had 544 followers and published over a thousand tweets since June 2015. |
| Year(s) Of Engagement Activity | 2015,2016,2017 |
| URL | https://twitter.com/BiobankingUK |
| Description | UKCRC TDCC YouTube Channel |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The UKCRC Tissue Directory and Coordination Centre maintains a YouTube Channel to collect all videos related to the project for reference. On the Channel, users can view five instructional videos that go through the process of how to register their sample collections. There are also six video case studies that provide an introduction to the operations of different UK-based biobanks. The Channel also holds recordings of past webinars. The instructional videos in particular have resulted in a useful resource for users, simplifying the instructions for UKCRC Directory registration. |
| Year(s) Of Engagement Activity | 2016,2017 |
| Description | UKCRC Tissue Coordination Centre Annual meeting 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | On 29 September 2015, the Centre held its first annual biobanking event. Coordination of Biobanking in the UK, marked the UK becoming the 17th Member State to join BBMRI-ERIC, and was organised alongside ESBB's 2015 Annual Conference to further connect to global developments in biobanking. Day's Agenda Introduction to coordination of biobanks in Europe - BBMRI-ERIC, Jan-Eric Litton. The Role of the UKCRC Tissue Directory and Coordination Centre - the UK National Node of BBMRI-ERIC, Anne Carter. Next Generation Biobanking; QMS improvement impacts research output - joint presentation by Andrea Wutte and Maurice Bardsley The tissue directory - aims, problems, solutions, Phil Quinlan. Biobanking for the 1000,000 Genomes project, Tim Peakman. Enhancing the interface with industry, Kirstin Goldring. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.biobankinguk.org/coordination-of-biobanking-in-the-uk/ |