Systemic prevention of poor adolescent mental health and promotion of social connection and wellbeing

Lead Research Organisation: University College London
Department Name: Clinical Health and Educational Psych

Abstract

Our proposal represents an ambitious and radical approach to improving the mental health of adolescents. Young people face numerous and increasing challenges, including rapidly changing technology, environmental concerns and uncertainty about economic and employment prospects. All of this can affect their mental health. This is particularly true for Black/African/Caribbean young people growing up disadvantaged in urban communities, exposed to high levels of discrimination, violence and trauma, as well as young people growing up in isolated, remote and rural communities.
Typical approaches to supporting the mental health of vulnerable young people, whilst well-intentioned, often fall short of providing the help that young people need. Too often formal support is absent - most young people experiencing mental health difficulties do not receive help from services. If support is made available, it often comes too late once problems have taken hold. The support that is provided is often removed from the realities in which young people live, and can inadvertently foster a reliance on help from outside their communities.

We want to flip models of mental health support from 'top-down' service models of help that can never realistically meet the needs of young people, to community-led approaches in which young people develop in rich, supportive social ties and networks of support. There is strong evidence to support our view that social support, connection and strengths that already reside within communities may be the best source from which to prevent the debilitating and serious effects of poor mental health that is gripping many communities.

Our approach brings together leading scientists, designers and community champions to explore the local influences upon young people's mental health in two areas: Black/African/Caribbean young people in disadvantaged urban London communities, and young people living in rural, remote areas in Devon. These are two often neglected populations.

Our partnership is led by Professor Peter Fonagy at University College London - a world leading expert on adolescent mental health, and his teams at both UCL and Anna Freud National Centre for Children and Families (AFNCCF). Our partnership also includes experts in systems and data science (PenARC and Dartington Service Design Lab), service design (Hilary Cottam and Shift) and youth work embedded within communities (Redthread).

We know that each community is different, with their own challenges but also their own strengths. We will work with young people to deeply understand the realities of growing up in dense urban or remote/rural communities and to chart the opportunities and strengths that reside within these communities. We want to tackle the underlying causes of poor mental health, not just the visible symptoms. Together, we will design a series of innovative interventions that build social ties within and across communities so that the positive promotion of mental health is everyone's business, and that the whole community is well equipped to support young people to thrive.
We will also make sure that the interventions and support systems that are designed stand the test of time. We do not want our work to be a one-off, time-limited effort that fizzles away in a few years. Approaches will be embedded within communities over the long-term.

We will also design interventions and approaches that can be picked up, adopted and replicated elsewhere. We think every community should have the tools and approaches to capitalise on the strengths that exist in their area to promote young people's mental health.

As such, we'll be working with leading entrepreneurs and business-minded partners to ensure that our approaches can be widely adopted, yet still reflect the local nuance and needs of specific communities.

Technical Summary

Poor adolescent mental health is a non-communicable disease, rising in prevalence, that represents a significant psychological and physical health burden on individuals, as well as affecting the economic and social welfare of communities and the state [1-3].

It is also a systems issue. Many presenting issues are typically manifestations of underlying patterns, structures and dynamics of the systems and communities within which adolescents develop [4].

Despite the systemic nature of poor mental health, too often it is conceptualised as an individualistic problem by siloed agencies responding to presenting manifestations, rather than tackling the underlying systemic patterns, structures and dynamics. Furthermore, current approaches run the risk of widening disparities in poor adolescent mental health: many of those populations most at risk of poor mental health receive disproportionately lower investments and engagement in supports and services.
We will undertake a comprehensive youth and community-led systemic enquiry into the antecedents and consequences of poor mental health in economically disadvantaged urban and rural/isolated environments. This will include causal loop diagramming, social network analysis, asset mapping and ethnography. Building on these insights we will facilitate a process of participatory group model building of system dynamic simulation models to guide community-based intervention design, prototyping of approaches and ongoing monitoring and systemic evaluation [5,6].

This systemic enquiry will inform an ambitious youth and community led design process in urban and rural places that capitalises on existing social assets and strengthens social ties and collective efficacy as a route to prevention of poor mental health. The process and intervention designs will be codified and disseminated so that they may be adapted for varying contexts across and inform national health policies.

This grant is funded by the UK Prevention Research Partnership (UKPRP) which is administered by the Medical Research Council on behalf of the UKPRP's 12 funding partners: British Heart Foundation; Cancer Research UK; Chief Scientist Office of the Scottish Government Health and Social Care Directorates; Engineering and Physical Sciences Research Council; Economic and Social Research Council; Health and Social Care Research and Development Division, Welsh Government; Health and Social Care Public Health Agency, Northern Ireland; Medical Research Council; Natural Environment Research Council; National Institute for Health Research; The Health Foundation; The Wellcome Trust.

Publications

10 25 50
 
Description The Kailo Partnership 
Organisation Anna Freud Centre
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution This partnership was led by Professor Peter Fonagy at UCL as part of the UK Prevention Research Partnership (UKPRP) Consortium Development Grant (CDG), which was a fixed-term award designed to enable the final assembly of a multidisciplinary group of researchers and users to prepare for the full application for the UKPRP Consortium Awards. This partnership was created to refine a model for place-based, evidence-informed co-design of approaches to promote adolescent mental health. This model is called Kailo. We developed detailed research and design planning, refining research questions, hypotheses and methods to underpin an ambitious programme of model implementation, testing and refinement, scale-up and knowledge brokerage. We also undertook extensive engagement and partnership buy-in in two initial partnership sites - Newham and North Devon.
Collaborator Contribution The specific skills, experiences and contributions each member of the partnership included: 1. Cutting edge research and practice in relation to the wider determinants of adolescent mental health: Anna Freud National Centre for Children and Families (AFNCCF) and the South West and North Thames ARC's so that they could contribute their extensive knowledge of interdisciplinary research perspectives related to the promotion of adolescent mental health. 2. Systems science and innovations in evaluation: PenCHORD and Dartington have extensive experience in a range of practically applied system mapping and modelling techniques, including social network analysis and system dynamics simulation modelling, as well as extensive experience in the evaluation of complex system change initiatives. 3. Community engagement, strategy development and service design: Collectively this collaboration brought together unparalleled expertise on place-based strategy development and service design coupled with strong links to communities and young people via service settings and community links. 4. Business development / financial sustainability: Shift brought a sharp focus on business model development and sustainability, having worked extensively in mental health systems for last 10 years, including successfully taking to market a new youth focused digital intervention venture, BfB Labs. 5. Leadership and influencing: This group has extensive networks and partnerships through which to engage the wider scientific community and influence local and national policy. Partners in our collaboration included two leading youth work providers/network organisations in Devon and Newham, and local leadership of local authorities and Clinical Commissioning Groups (CCGs). These wider collaborators helped undertake initial insight generation to identify priority needs and mental health intervention priorities in each community. This included supporting engagements with 64 young people, from 34 different racial/ethnic groups, through a mixture of one-to-one conversations, group sessions and engagements with two SEND groups. It also included speaking to 81 professionals - ranging from Directors of Children's Services, Directors of Public Health and local Sustainability and Transformation Partnerships (STP) leadership, through to agency and service leadership, commissioners and local practitioners. These wider collaborations helped inform the focus areas, research questions and hypotheses to be tested, as well a refining our intervention model.
Impact The short-term Development Grant informed the development of an extensive full application to the Prevention Research Partnership research scheme. No other publications resulted (although plans were developed for an extensive programme of research activities and subsequent academic publication if successful with the full award.) Upcoming outputs will be forthcoming as the full Consortium is now under way, and this will be reflected in our next Researchfish submission for the full five-year Consortium
Start Year 2020
 
Description The Kailo Partnership 
Organisation Dartington Service Design Lab
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution This partnership was led by Professor Peter Fonagy at UCL as part of the UK Prevention Research Partnership (UKPRP) Consortium Development Grant (CDG), which was a fixed-term award designed to enable the final assembly of a multidisciplinary group of researchers and users to prepare for the full application for the UKPRP Consortium Awards. This partnership was created to refine a model for place-based, evidence-informed co-design of approaches to promote adolescent mental health. This model is called Kailo. We developed detailed research and design planning, refining research questions, hypotheses and methods to underpin an ambitious programme of model implementation, testing and refinement, scale-up and knowledge brokerage. We also undertook extensive engagement and partnership buy-in in two initial partnership sites - Newham and North Devon.
Collaborator Contribution The specific skills, experiences and contributions each member of the partnership included: 1. Cutting edge research and practice in relation to the wider determinants of adolescent mental health: Anna Freud National Centre for Children and Families (AFNCCF) and the South West and North Thames ARC's so that they could contribute their extensive knowledge of interdisciplinary research perspectives related to the promotion of adolescent mental health. 2. Systems science and innovations in evaluation: PenCHORD and Dartington have extensive experience in a range of practically applied system mapping and modelling techniques, including social network analysis and system dynamics simulation modelling, as well as extensive experience in the evaluation of complex system change initiatives. 3. Community engagement, strategy development and service design: Collectively this collaboration brought together unparalleled expertise on place-based strategy development and service design coupled with strong links to communities and young people via service settings and community links. 4. Business development / financial sustainability: Shift brought a sharp focus on business model development and sustainability, having worked extensively in mental health systems for last 10 years, including successfully taking to market a new youth focused digital intervention venture, BfB Labs. 5. Leadership and influencing: This group has extensive networks and partnerships through which to engage the wider scientific community and influence local and national policy. Partners in our collaboration included two leading youth work providers/network organisations in Devon and Newham, and local leadership of local authorities and Clinical Commissioning Groups (CCGs). These wider collaborators helped undertake initial insight generation to identify priority needs and mental health intervention priorities in each community. This included supporting engagements with 64 young people, from 34 different racial/ethnic groups, through a mixture of one-to-one conversations, group sessions and engagements with two SEND groups. It also included speaking to 81 professionals - ranging from Directors of Children's Services, Directors of Public Health and local Sustainability and Transformation Partnerships (STP) leadership, through to agency and service leadership, commissioners and local practitioners. These wider collaborations helped inform the focus areas, research questions and hypotheses to be tested, as well a refining our intervention model.
Impact The short-term Development Grant informed the development of an extensive full application to the Prevention Research Partnership research scheme. No other publications resulted (although plans were developed for an extensive programme of research activities and subsequent academic publication if successful with the full award.) Upcoming outputs will be forthcoming as the full Consortium is now under way, and this will be reflected in our next Researchfish submission for the full five-year Consortium
Start Year 2020
 
Description The Kailo Partnership 
Organisation Redthread
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution This partnership was led by Professor Peter Fonagy at UCL as part of the UK Prevention Research Partnership (UKPRP) Consortium Development Grant (CDG), which was a fixed-term award designed to enable the final assembly of a multidisciplinary group of researchers and users to prepare for the full application for the UKPRP Consortium Awards. This partnership was created to refine a model for place-based, evidence-informed co-design of approaches to promote adolescent mental health. This model is called Kailo. We developed detailed research and design planning, refining research questions, hypotheses and methods to underpin an ambitious programme of model implementation, testing and refinement, scale-up and knowledge brokerage. We also undertook extensive engagement and partnership buy-in in two initial partnership sites - Newham and North Devon.
Collaborator Contribution The specific skills, experiences and contributions each member of the partnership included: 1. Cutting edge research and practice in relation to the wider determinants of adolescent mental health: Anna Freud National Centre for Children and Families (AFNCCF) and the South West and North Thames ARC's so that they could contribute their extensive knowledge of interdisciplinary research perspectives related to the promotion of adolescent mental health. 2. Systems science and innovations in evaluation: PenCHORD and Dartington have extensive experience in a range of practically applied system mapping and modelling techniques, including social network analysis and system dynamics simulation modelling, as well as extensive experience in the evaluation of complex system change initiatives. 3. Community engagement, strategy development and service design: Collectively this collaboration brought together unparalleled expertise on place-based strategy development and service design coupled with strong links to communities and young people via service settings and community links. 4. Business development / financial sustainability: Shift brought a sharp focus on business model development and sustainability, having worked extensively in mental health systems for last 10 years, including successfully taking to market a new youth focused digital intervention venture, BfB Labs. 5. Leadership and influencing: This group has extensive networks and partnerships through which to engage the wider scientific community and influence local and national policy. Partners in our collaboration included two leading youth work providers/network organisations in Devon and Newham, and local leadership of local authorities and Clinical Commissioning Groups (CCGs). These wider collaborators helped undertake initial insight generation to identify priority needs and mental health intervention priorities in each community. This included supporting engagements with 64 young people, from 34 different racial/ethnic groups, through a mixture of one-to-one conversations, group sessions and engagements with two SEND groups. It also included speaking to 81 professionals - ranging from Directors of Children's Services, Directors of Public Health and local Sustainability and Transformation Partnerships (STP) leadership, through to agency and service leadership, commissioners and local practitioners. These wider collaborations helped inform the focus areas, research questions and hypotheses to be tested, as well a refining our intervention model.
Impact The short-term Development Grant informed the development of an extensive full application to the Prevention Research Partnership research scheme. No other publications resulted (although plans were developed for an extensive programme of research activities and subsequent academic publication if successful with the full award.) Upcoming outputs will be forthcoming as the full Consortium is now under way, and this will be reflected in our next Researchfish submission for the full five-year Consortium
Start Year 2020
 
Description The Kailo Partnership 
Organisation Shift Design
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution This partnership was led by Professor Peter Fonagy at UCL as part of the UK Prevention Research Partnership (UKPRP) Consortium Development Grant (CDG), which was a fixed-term award designed to enable the final assembly of a multidisciplinary group of researchers and users to prepare for the full application for the UKPRP Consortium Awards. This partnership was created to refine a model for place-based, evidence-informed co-design of approaches to promote adolescent mental health. This model is called Kailo. We developed detailed research and design planning, refining research questions, hypotheses and methods to underpin an ambitious programme of model implementation, testing and refinement, scale-up and knowledge brokerage. We also undertook extensive engagement and partnership buy-in in two initial partnership sites - Newham and North Devon.
Collaborator Contribution The specific skills, experiences and contributions each member of the partnership included: 1. Cutting edge research and practice in relation to the wider determinants of adolescent mental health: Anna Freud National Centre for Children and Families (AFNCCF) and the South West and North Thames ARC's so that they could contribute their extensive knowledge of interdisciplinary research perspectives related to the promotion of adolescent mental health. 2. Systems science and innovations in evaluation: PenCHORD and Dartington have extensive experience in a range of practically applied system mapping and modelling techniques, including social network analysis and system dynamics simulation modelling, as well as extensive experience in the evaluation of complex system change initiatives. 3. Community engagement, strategy development and service design: Collectively this collaboration brought together unparalleled expertise on place-based strategy development and service design coupled with strong links to communities and young people via service settings and community links. 4. Business development / financial sustainability: Shift brought a sharp focus on business model development and sustainability, having worked extensively in mental health systems for last 10 years, including successfully taking to market a new youth focused digital intervention venture, BfB Labs. 5. Leadership and influencing: This group has extensive networks and partnerships through which to engage the wider scientific community and influence local and national policy. Partners in our collaboration included two leading youth work providers/network organisations in Devon and Newham, and local leadership of local authorities and Clinical Commissioning Groups (CCGs). These wider collaborators helped undertake initial insight generation to identify priority needs and mental health intervention priorities in each community. This included supporting engagements with 64 young people, from 34 different racial/ethnic groups, through a mixture of one-to-one conversations, group sessions and engagements with two SEND groups. It also included speaking to 81 professionals - ranging from Directors of Children's Services, Directors of Public Health and local Sustainability and Transformation Partnerships (STP) leadership, through to agency and service leadership, commissioners and local practitioners. These wider collaborations helped inform the focus areas, research questions and hypotheses to be tested, as well a refining our intervention model.
Impact The short-term Development Grant informed the development of an extensive full application to the Prevention Research Partnership research scheme. No other publications resulted (although plans were developed for an extensive programme of research activities and subsequent academic publication if successful with the full award.) Upcoming outputs will be forthcoming as the full Consortium is now under way, and this will be reflected in our next Researchfish submission for the full five-year Consortium
Start Year 2020
 
Description Community engagements in Newham and North Devon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This development grant allowed the Kailo partnership form collaborations with local mental health and youth organisations in two areas: Newham in East London, and in North Devon. The Development Grant allowed us to undertake extensive engagements with health, local authority and community leadership in each area in order to secure engagement and buy-in for Phase 1 feasibility testing and delivery, if we are successful in the full application. This included speaking with 81 professionals - ranging from Directors of Children's Services, Directors of Public Health and local Sustainability and Transformation Partnerships (STP) leadership, through to agency and service leadership, commissioners and local practitioners. This resulted in a high degree of enthusiasm, and importantly, long-term commitment to support the implementation and testing of our proposed Kailo framework.

The development grant also allowed us to speak to 64 young people, from 34 different racial/ethnic groups, through a mixture of one-to-one conversations, group sessions and engagements with two SEND groups. Given the COVID-19 pandemic, the majority of these were via digital / video or phone engagements (with a small number in person, in line with national guidance and protocols). These engagements were an incredibly rich, humbling and challenging set of reflections from young people about what affects the mental health of young people in their area that informed our full proposal development.

The engagement activities were pivotal in informing and refining our plans and approaches for our full proposal. In particular, they helped refine primary research questions and hypotheses, and helped ensure patient/public involvement was written in throughout all planned activities.
Year(s) Of Engagement Activity 2020